Lisa C’s Healing Story

I took Cipro off and on for about 10 years for recurring UTIs. I discovered in July of 2016 that Cipro was causing my rapidly declining health.

My symptoms included knee pain/tendonitis, hip pain, memory loss, cognitive processing delays, brain fog, headaches, insulin regulation problems/prediabetes, night sweats, anxiety, panic attacks, extreme sensitivity to noise, sensitivity to light, dry skin (very dry and cracked skin on feet that resembled athlete’s foot), sensitive skin (while removing a band-aid, pieces of the skin on my arm came off), insomnia, and chronic fatigue.

This illness affected all areas of my life including work, relationships, and my ability to be physically active. For many years, I was an active runner and it was one of the truest joys of my life. When I was ill, I grieved a lot of things about my pre-illness life, but I especially grieved the ability to wake up early and run by the lake. There are many things in life that bring me joy, but one that’s top on my list is a sunrise run by Lake Michigan. It makes me feel so alive and connected to the natural beauty in the world.

Sometimes when driving down Lake Shore Drive, I would get teary-eyed seeing other joggers out doing something that seemed so effortless and natural for them, yet I was at home struggling to walk up my stairs.  I am now 100% recovered and recently finished a 31-day running challenge called Marcothon.  Runners from all over the world commit to running every day in the month of December, including Christmas Day. The challenge is to run at least 3 miles or 25 minutes, whichever comes first, each day. I completed the challenge with flying colors and it was everything I hoped and dreamed. I consider it one of the great blessings of my life to regain my health and to be able to run again.

When I was sick, I read recovery stories over and over again and while no one story was exactly like mine, I took something from every story and applied it to my own journey. So here is my recovery journey and hopefully something in it will offer hope and helpful information for someone else.

Treatment Plan

1. Acupuncture – I did this treatment for about 3 months. The pain started to dissipate after about 6 weeks.

2. Neurofeedback – I did this treatment twice a week for about 10 weeks. This helped with my memory issues, brain fog, cognitive processing, anxiety, and headaches.

3. Vitamins & Supplements – My naturopathic doctor ran intracellular nutrient testing to see which vitamins and minerals I was deficient in. I was taking about 30 pills a day at one point. I took all of these for about 6 months before starting to ween off. (Vitamin A, B-complex, Vitamin C, Vitamin D, Vitamin E, Vitamin K2, Magnesium, Calcium, D-ribose, CoQ10, Acetyl L-Carnitine, Zinc, Copper, L-asparagine, Chromium, 5-HTP, Curcumin, NAC, Kavinace, Probiotic) Prior to going to the naturopathic doctor, I used the book The Real Vitamin & Mineral Book by Shari Lieberman to put together a supplement plan for myself.

4. Plant-based diet – I cut out all meat, dairy and animal products and focused on eating a diet high in micronutrients and low in saturated fat. I used the nutrition advice from Dr. Neal Barnard (Reversing Diabetes) and Dr. Joel Fuhrman (Eat to Live).

5. Meditation – I started practicing Yoga Nidra and began cultivating a meditation practice using the techniques I learned in those classes. I use several apps to do meditation at home including Headspace and Insight Timer. I meditate at least once a day and sometimes twice daily. Yoga Nidra is a specific type of meditation that allows the body to enter a deep state of relaxation that promotes healing. More information about how this works can be found here: https://www.yogajournal.com/meditation/your-brain-on-yoga-nidra

6. Mindbody connection/tension myositis syndrome treatment – I used the techniques in Dr. John Sarno’s book (The Mindbody Prescription) to deal with underlying issues that were causing pain. After following the techniques in that book, all my remaining pain went away.

7. CFS Unraveled (https://cfsunravelled.com/) – This site has great videos on how chronic pain and other issues manifest in the body and I used the techniques outlined here to put together my own treatment plan. The recovery stories are also inspiring. Although the site isn’t dedicated to FQT, I do think that the antibiotics I took triggered the same response in the autonomic nervous system that many CFS and fibromyalgia sufferers deal with.

While I was sick, I read a lot of recovery stories, not just of people who were affected by fluoroquinolone toxicity syndrome, but stories from people who’d overcome all kinds of illnesses and injuries. One story that really resonated with me was the story of NBA star Stephen Curry. Early in his career he had recurring ankle injuries. Through those injuries he had to find a way to get stronger and through his recovery and adjustments, he became a better player than he ever was before. He’s now one of the best players the NBA has ever seen. I took inspiration from his story and vowed to myself that I would come back from this and be a better version of myself than I was before the illness. And I’m happy to say that that is now my story. I’m physically active again. I run regularly. I do indoor cycling, strength training, and everything I used to do back when I was at my peak activity level. All of my symptoms are gone and I’m completely pain-free.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

17 thoughts on “Lisa C’s Healing Story

  1. Sophie October 13, 2017 at 8:04 am Reply

    Hi Lisa!
    Thank you for your recovery story. It gives hope!
    I have severe sugar issues with a pre diabetic state and hypoglycemias at the same time with too much insulin. What was your insulin problem? Has a specific supplement helped you for sugar issues? Thank you for your story and enjoy your life! 🙂
    Hugs
    Sophie

    • Lisa May 23, 2018 at 2:51 pm Reply

      Hi Sophie, I was prediabetic and my A1C numbers kept creeping up. The doctors wanted to give me more medication (like Metformin) but I was wary about additional meds. I didn’t take any supplements to treat it, but removed almost all fat from my diet per Dr. Neal Barnard’s suggestions. This included switching to a plant-based diet. My AC1 numbers came back into a normal range after doing this.

  2. Sophie October 13, 2017 at 9:16 am Reply

    Last question, do you think insulin problems could be related to autonomic nervous dysfunction?

    • Lisa R Carter September 24, 2018 at 7:23 pm Reply

      While I can’t point to the specific research at the moment, I do think I read something at the time that suggested the two could be correlated. So it is my belief that the insulin problems were related to autonomic nervous dysfunction.

  3. andy October 23, 2017 at 8:20 am Reply

    well done Lisa your healing commitment got you there

  4. Rob November 5, 2017 at 1:24 pm Reply

    Thank you for sharing your story! Glad to see you are better. How long did you recovery take? Also did you find anything to help the insomnia?

    • Lisa May 23, 2018 at 2:54 pm Reply

      My recovery took about 9-10 months. When I took my last pill in July 2016, I only took 1 pill and then quit the prescription.

      • Ann October 29, 2018 at 2:40 pm Reply

        Lisa, did it take 9 to 10 months for your cognitive processing to heal too?

  5. Nat D February 24, 2018 at 2:15 pm Reply

    Lisa, is there I chance I can PM you? I must live very close to you (Shorewood). I’m 1.5 years in to extreme floxing and have another friend in town that just got floxed. I’d love to get some of the resources on where you were treated. Please let me (us) know.
    Nat
    Ps. Feeling hope from your post that I could run by the lake again too

    • Lisa May 23, 2018 at 3:02 pm Reply

      I live in the Chicago area. Below are the places I sought treatment.
      Bodyscapes Acupuncture in Evanston and Olympia Fields
      Dr. Chavez at The Raby Institute in Chicago for naturopathic medicine
      Healthy Brain Training in Frankfort, IL for neurofeedback

  6. Otto August 24, 2018 at 12:22 pm Reply

    Hi, Lisa. I hope you are well. I am also plant based in my diet and it helps so much to see people getting better with this lifestyle. Can you tell me what are your staple foods? Like a basic day in food choices? Foods you always make sure to have on hand?
    Also, thank you for sharing your supplements. I may experiment with some of these. I am almost 2 months out from the Cipro. I feel I am healing then have setbacks but I know I am healing overall.
    Thanks again for sharing your plant based recovery!! You rock

    • Lisa C September 24, 2018 at 7:31 pm Reply

      I usually eat oatmeal for breakfast with wild blueberries mixed in plus a couple other toppings depending on my mood. For lunch I usually do a salad or a veggie patty sandwich.I like the Dr. Praeger’s veggie patties since they’re mostly veggies and not that weird plant protein isolate that lots of veggie patties and burgers have. For dinner, it depends on the season. In the summer I do a lot of pastas with fresh veggies. In the winter I do a lot of soups. I try to stick to whole foods and keep the processed foods to a minimum. I also drink a lot of herbal tea, mostly rooibos. I hope that helps

      • Otto September 24, 2018 at 8:42 pm Reply

        Thanks a bunch, Lisa =)

  7. Lila August 29, 2018 at 1:01 am Reply

    Hey Lisa,

    My name is Lila and have been floxed 2,5 months ago for a suspected UTI (was nothing but stress).

    I’m now dealing with extreme fatigue. I could hardly do things in a day.

    Can you maybe give me some advices to get my energy back?

    Any help would be appreciated. 🙏

    Lila

    • Lisa C September 24, 2018 at 7:33 pm Reply

      I think stress was one of the things that really affected my energy, so finding ways to turn off the stress response helped me get my energy back. Yoga nidra and meditation helped me a lot with that. I also got weekly massages for about a month. That really helped. I also think the vitamins and supplements helped reset my vitamin and mineral levels. So I think that also helped with my energy.

      • Lila October 1, 2018 at 8:28 am Reply

        Hey Lisa,

        Thanks a lot for ur answer. I’m taking vitamins and supplements till day 1 since I rapidly linked my symptoms with the Ofloxacin. I tried massages but it seems that they put the toxins out of my body and get my brain fog back so I stopped them.

        At 3,7 months after my last pill (I took around 3400mg), I’m experiencing a big relapse with a lost of energy as I had at the beginning of my intox.

        How long did it take for you to get your energy level back as normal ?

        Thanks by advance for the help.

        Lila

        • Layla November 1, 2018 at 4:19 pm

          Hey guys I am 8 months floxed here. I have severe depersonalization, cognitive function stuff, and weakness and fatigue soooo bad I feel like I will die from it. Lisa can you be so kind as to help me . 310.432.3381. Thank you .

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