Lisa’s Recovery Story – Cipro Toxicity

Lisa for Floxiehope

*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

Lisa’s Story 

In the middle of November, 2011, I took Cipro to treat a urinary tract infection.  I took 2 pills (500 mg each, I believe) a day for three days.  I didn’t feel like the infection was gone, so I went back to the doctor and requested more antibiotics.  He gave me macrobid and the infection subsided within a couple of days.  Life went on as normal for the next couple of weeks, until December 2, 2011, at which time I got my period and started taking ibuprofen to help me to deal with the cramps.

Before I continue with my story, I would like to note that I had taken Cipro to treat a urinary tract infection approximately a year earlier.  I had no notable side effects at that time.  Though, looking back on things, I did develop an eyelid twitch at that time and some strange stomach cramping that came and went started then.  I didn’t think anything of the eyelid twitching or the stomach cramps.  I certainly didn’t think that they were tied to the Cipro.  I took ibuprofen regularly after taking Cipro with no adverse effects.

On December 2, 2011 my legs started to itch.  On December 4th I broke out in hives all over my body.  I went to the doctor and was told to take Benadryl.  I took more Benadryl than the box recommends and my hives got progressively worse.  On December 5th my feet and hands swelled to the point that I couldn’t use them anymore.  It was painful to walk, or even to just stand.  I went back to the doctor and was put on prednisone.  The prednisone suppressed the swelling and calmed the hives a bit.  On December 7th my left leg went weak.  For the next few weeks the following symptoms got worse and worse:

  1.  Weakness in my legs.  I could barely walk.  The steps that I could take took a tremendous amount of effort and energy.  I couldn’t stand for more than a minute.  I had to drag a chair into the kitchen in order to cook rice because I couldn’t stand to stir the pot.
  2. Tightness of the tendons in my legs.  I had inflammation, and possibly tears, in most of the tendons in my legs and feet.  My hips, knees and ankles, to simplify things, didn’t work right.
  3. Loss of use of muscles / loss of strength.  My muscles, especially the muscles in my legs, wouldn’t move like they used to.  All of my movements were slow and deliberate.
  4. Brain fog.  I couldn’t think straight.  I felt stupid.  I couldn’t concentrate.  It was a struggle to do my job.
  5. Loss of memory.  My short-term memory decreased significantly.
  6. Loss of peripheral vision.  Large, black floaters entered my peripheral vision.
  7. Loss of appetite and weight.
  8. Loss of flexibility.  I went from being able to do yoga several times a week to being unable to sit with my legs curled up under me.
  9. Loss of balance.
  10. Severe loss of energy.  I felt like the plug had been pulled from my energy source.  I wasn’t necessarily sleepy, I was just drained.  The feeling was similar to the feeling that I have when I have a cold – weak and like I just want to collapse.  Just slight exertion would drain me of my energy.  Walking would make me tired for a whole day afterward.
  11. Dry mouth.
  12. Anxiety.  I had an ongoing anxiety attack for the first couple of months after being floxed.
  13. Pain in my feet.  I felt like I was walking on hot coals with every step I took.
  14. Loss of reading comprehension.  I would read a page and have no idea what I had just read.
  15. Loss of social skills / connectedness.  I felt anxious and scared in social situations.  I lost confidence in both my physical and mental abilities.  I felt very alone despite having a wonderfully supportive family.

I felt as if I had aged 20 years in just a week or two.  I couldn’t move, think or eat.  My body and mind were falling apart and I had no idea why.  I didn’t think that the sudden decline in my health had anything to do with the Cipro.  After all, I had stopped taking it a couple of weeks before my body started to fall apart.  I thought that I had an autoimmune disease.  My symptoms seemed similar to those of rheumatoid arthritis.  I went back to the doctor and they ran every test imaginable on me.  I was relieved to find out that I didn’t have an autoimmune disease, but it was somewhat frustrating to hear that all of the tests were showing that I was normal and healthy when, clearly, I was neither normal nor healthy.  The doctors did not provide me with a diagnosis or a prognosis.  Though I was desperately seeking a diagnosis and prognosis, I am thankful, in retrospect, that they didn’t misdiagnose me.  If I had been mistakenly diagnosed as having an autoimmune disease, I may have treated it with pharmaceuticals that could have made me feel even worse.

I was desperate for some treatment, something to stop the downward spiral that my body, mind and spirit were in.  The traditional medical doctors I saw provided no relief, treatment or healing.  I started seeing an acupuncturist.  He was able to stabilize my condition, calm my nerves and keep me from spiraling physically or mentally.  After a few weeks feeling stable physically, I started to have days where I felt better than I had the day before.  Mentally, I kept going downhill for a while, but, eventually my mental health stabilized and started to improve as well.

Eventually, with the help of my acupuncturist, I connected my symptoms to Cipro.  Once the connection was made, I realized that all of my symptoms were consistent with those of others who have been poisoned by Cipro and other fluoroquinolone antibiotics.  I entered the scary world of being a floxie.

For about a year, I considered myself to be sick.  Though the symptoms listed above were improving, slowly but steadily, I was still sick, and a long ways from the healthy, active, energetic woman that I was before I took Cipro.  After a year, I started to put “sick” in the past tense.  Though I wasn’t back to the level of health that I was prior to being floxed, I was getting better and, as far as most people could tell, I was well.

Following is a list of things that I did to help me to get well, to heal.  I am not a doctor.  This is a description of my experience and what helped me.  I hope that what helped me helps you.  Everyone is different though.  What helped me may not help you.  One thing that I know helped me and that I know will help you is hope.  I hope that the fact that I have largely recovered helps you to have hope.  I hope that the other steps that I took to get well also help you to gain hope and healing.

Please feel free to contact me with any questions, comments or concerns, or to share your story.

Lisa’s Healing Tips

One of the many frustrating things about fluoroquinolne toxicity is that everyone’s body is different.  Everyone’s symptoms are different and everyone’s body reacts differently to treatments.  Following is a list of things that helped me.  I hope that what helped me will help you, but it may not.  I am including other people’s healing tips as well, in case their tips can help.  Of course, please read these tips with the typical disclaimer in mind – I am not a doctor or medical professional of any kind.  I am sharing my experience with the hope that others may find it to be useful.  Please ask your doctor, or other trusted medical professional, for medical advice, and before taking any of my advice.

In no particular order, here are the things that helped me to heal.

  1. Time.  With time, I have healed.  Each day is better than the day before.  Time will heal your wounds too.  Eventually, you will get better.  The poisonous reaction affecting every part of your body will eventually stop and you will begin to recover.  I have heard several stories of fellow floxies having a timeline similar to mine – slow, steady recovery for about 2 years.  Other people take more, or less, time to recover.  Time does help though, and most people do end up getting better as time goes on.  Very few people get worse and worse indefinitely.  There may be bumps in the road, but time is your friend.  Time will help you to return to a state of health.

Try to be patient with yourself.  It will take time for your body and mind to heal.  I see this whole ordeal of getting sick as a lesson in patience (and compassion, gratitude and health).  Pushing yourself too hard too soon can lead to pain, frustration and injury.  Try to give yourself the time necessary to heal, and, with time, your body and mind will, indeed, heal.

2.  Avoid NSAIDs and steroids like the plague.  Both NSAIDs and steroids are contraindicated with fluoroquinolone toxicity.  They will make your reactions and symptoms worse.  There are some published medical articles on PubMed about the contraindication between NSAIDs/steroids and fluoroquinolones.  Searching at the library or on Google will give you more detailed information than I can provide.  Anecdotally, I know that my reaction was triggered by taking NSAIDs (ibuprofen that I took to help me to deal with menstrual cramps) and it was exacerbated by taking prednisone (a steroid).  Please note that I did NOT take NSAIDs or steroids at the same time as Cipro.  I took ibuprofen 2 weeks after I finished taking Cipro and it triggered my toxic reaction and I took prednisone 3 weeks after I had finished taking Cipro, after my reaction had started.  I will never take another NSAID or steroid again.

Unfortunately, NSAIDs and steroids are the drugs that are the most commonly prescribed drugs used to “treat” fluoroquinolone toxicity.  This is because the combination of NSAIDs/steroids and fluoroquinolones does not always cause a toxic reaction, the toxic reaction of combining fluoroquinolones and NSAIDs/steroids can occur even when the drugs are taken weeks or months apart, doctors and other medical professionals don’t acknowledge fluoroquinolone toxicity and so they don’t look for the contraindications and because many of the symptoms of fluoroquinolone toxicity are treated with NSAIDs and steroids.  The pain killing qualities of NSAIDs and the swelling reduction qualities of steroids make them the drugs of choice for treating many of the symptoms of fluoroquinolone toxicity.  Don’t take them though!  In my nonmedical opinion, I suggest taking non-NSAID over-the-counter pain medicine like acetaminophen (Tylenol) for pain (or marijuana – which is probably better for your liver), and antihistamines for the swelling.

Often, fluoroquinolne toxicity is misdiagnosed as an autoimmune disease.  In particular, it is often misdiagnosed as rheumatoid arthritis.  Many of the drugs that are used to treat rheumatoid arthritis are NSAIDs.  Don’t take them.

3.  Acupuncture.  I credit my acupuncturist with saving my life.  I can only guess how I would have fared without my acupuncturist, but I imagine that I would have ended up in the emergency room, pumped full of steroids and antidepressants, having a massive anxiety attack and unable to walk.  That didn’t happen though and there really isn’t any point in surmising about what could have been.  I do know that acupuncture stopped my downward spiral and got me on the road to recovery.  Both the acupuncture needles and the herbs that he provided gave me immense relief.  I don’t know why or how acupuncture works, but I do know that it worked wonders for me.

4.  Supplements.  I have taken more supplements than I can remember.  90% of them had no noticeable effect on my health.  Here is a list of supplements that I think helped me.

Iron.  I take a low dose iron supplement – only 5 mg. – daily.  The brand of iron supplement that I use is Pur Absorb, but I’m guessing that other low-dose iron supplements will work equally well.  Within just a couple days of starting taking the iron supplement, my energy levels increased dramatically.  I could walk a mile without being exhausted afterward.  In addition to improving my energy level, the iron supplement seems to make my muscles and tendons more supple and malleable.  When my tendons are feeling tight, a dose of iron helps to loosen them up – within just a couple hours.  Too much iron is really bad for you, so please be careful with supplementing it (ask your doctor, yada yada), but it helps me immensely.

Magnesium.  I take 250 mg of chelated magnesium daily.  I don’t necessarily notice that it makes me feel better, but I do notice that I feel worse when I don’t take it.  My muscles twitch if I don’t take my mag.

Zinc.  I take zinc when I get around to it.  I remember feeling mildly better when I started taking it.  It doesn’t seem to affect my health dramatically though.

Chlorophyll.  I take chlorophyll about every other day.  It seems to help with my energy level and mental functioning.

I also take fish oils, resveratrol, a probiotic, a joint supplement, CoEnzyme Q10, vitamin B12, chlorella, glucosamine, brewer’s yeast and some other supplements.  They may help.  I can’t say that I feel a difference using any of them.

5.  Meditate.  Meditating has so many amazing, positive benefits for your brain, your life, your spirit, etc. that I can go on about it ad nauseam.  Meditation helped relieve a lot of the mental symptoms of my fluoroquinolone toxicity.  My anxiety, inability to concentrate, inability to connect with others, depression, loss of reading comprehension, decreased mental acuity, etc. were greatly reduced (or improved) through meditating.  I meditate about 10 minutes each day.  I should meditate more like 20-30 minutes a day.

Meditating helped me to gain compassion for myself and my situation.  It also helped me to let go of the anger that I felt toward the pharmaceutical companies and the medical culture that allows fluoroquinolones to be on the market.  The pharmaceutical companies and the medical culture are both messed up and blame of them is justified, but anger and blame were not serving me mentally, emotionally, spiritually or physically.  I needed to let go of my anger and blame in order to move on with my life.  Meditating helped with that.

I learned to meditate through taking a class called Mindfulness Based Stress Reduction that was offered by my health insurer.  It was an excellent class based on the work of Jon Kabat-Zinn.  Many Buddhism centers offer Mindfulness Based Stress Reduction or Meditation 101 classes.

6.  Get off the internet.  Most of the information available on the internet about fluoroquinolone toxicity is horrifying.  Fluoroquinolone toxicity is horrifying.  It is scary.  It is completely unacknowledged by the medical community – the doctors, nurses, etc. who we go to in order to make sense of things when our body goes hay-wire – so we seek answers on the internet.  Unfortunately, most internet sites devoted to fluoroquinolone toxicity do not provide a balanced picture.  They show the harm and the horror of fluoroquinolone poisoning, but they don’t show the healing and hope that most people eventually experience.  I am writing and distributing this in order to provide the perspective of hope and healing.  Some people are permanently disabled from fluoroquinolones.  My heart goes out to those people and they have every right to scream their story on the internet.  However, their story is not your story.  My story is not your story either.  But if you’re going to look to the internet for a prognosis, it’s better to find a hopeful prognosis than one that is full of doom and gloom.

When I participated in the online forums for Floxies, I noticed that my anxiety levels increased significantly.  Even after I was 90% recovered and I thought I could handle it, my anxiety levels would go up simply by reading about people being floxed.  Inducing anxiety is one of the worst things that someone suffering from fluoroquinolone toxicity should do.  Anxiety makes all symptoms worse.  I would slowly relapse and my symptoms would get worse every time I participated in the online forums.

Of course, the people participating in the online forums are seeking to help fellow Floxies, to commiserate and to participate in a support group.  It is not their fault that my anxiety levels increased when viewing their sites and/or support groups.  After all, most people on those sites are trying to be helpful and supportive.  However, the net result of participating in the forums for Floxies is that my anxiety levels increased and my health declined while I was on those sites.  I am healthier and happier not participating in the online “support groups” than I was while I did participate in those groups.  Of course, this is my experience only.  Many people find solace in the Floxie community and if it helps you, great!

The people who have worked hard to create a community of Floxies to support one another should be commended.  It is because of their hard work that thousands of people have realized what is going on with their bodies and that they are not alone.  The community of Floxies is full of wonderful people.  However, you need to do what you need to do to take care of your health and if you find that hearing other people’s stories increases your anxiety levels, get off the internet.  For you.

7.  Diet.  I lost 11 pounds in 18 days when I first got floxed.  My body was going hay-wire and it seemed like an allergic reaction.  I had no idea what I could possibly be allergic to so I stopped eating almost everything.  I didn’t eat sugar (including fruit), gluten, dairy, soy, anything non-kosher or anything spicy, or drink any alcohol or caffeine, for a month.  I only ate vegetables and organic meat.  It’s a highly effective way to lose weight, but I don’t think that restricting my diet severely helped me to heal.  Restricting my diet gave me a sense of control, and that’s not a bad thing when your body is self-destructing, but I don’t think that it made me feel any better physically.  After a month of only eating veggies and organic meat, I started to add normal foods into my diet.  As soon as I started eating an appropriate number of calories, I started to feel better.  Not only was I Floxed, I was also wasting away when I wasn’t eating normally.  Getting enough food is an important part of healing.  Of course, it’s generally good to be on the “don’t eat junk” diet, but I didn’t find that cutting my food intake significantly helped me to feel better.

Many Floxies develop GI problems.  I was lucky in that I didn’t have many GI problems.  Many people seem to be helped by cutting gluten, sugar and/or junk food out of their diet.

I notice that I feel slightly worse than normal when I consume sugar and/or caffeine.  I think that most people do, I am just now accustomed to paying closer attention to my body.

The only food that makes me feel noticeably better is beets.  For some reason, beets make me feel great.  I just boil them and eat them.

I’ve heard good things about the benefits for Floxies of eating broccoli and other cruciferous vegetables.  I love broccoli so I try to eat a lot of it.  Unfortunately, I can’t say that I’ve noticed that it makes me feel better.

8.  Swim.  My tendons and muscles feel significantly better when I’m in the water, and for several hours after I finish swimming.  Swimming in the ocean feels especially therapeutic.  There are so many minerals and trace nutrients in the ocean, I surmise that they’re helpful for healing.  Unfortunately, I don’t live near the sea, so I swim in a pool.  I feel better when I do so.

9.  Pilates.  I started doing Pilates about 7 months post-floxing.  Pilates strengthens the core, something that is generally important, and gently stretches muscles, tendons and ligaments, something that is particularly important for Floxies.  I started slowly and gently and didn’t push my tendons, muscles or ligaments too much.  I feel that gently stretching helped my tendons, muscles and ligaments to heal and return to (close to) their pre-floxing capacity.  Take it easy though.

10.  Healing arts.  I love to dance.  I’m not a good dancer, but I love to do it.  About 16 months post-floxing I started to dance again.  Dance has been healing for me.  I feel spiritual, strong and joyful when I dance.  I’m not sure if it’s the dancing itself that I find to be healing, of if it’s the joy that I feel when I dance that is healing.  Either way, it helps.  I surmise that other forms of expression would have similar healing qualities.  If you love to sing, sing.  If you love to paint, paint.  If you love to write, write.

11.  Attitude tips.

Try not to compare yourself to how you used to be.  I used to hike 20 miles in a day.  I can’t do that anymore, but I can hike 3 miles today and I couldn’t do that when I first got floxed. Compare yourself to how you were yesterday, not to how you were before you got floxed.

Do something – anything – to work toward healing, every day.  Walk a little further than you did yesterday.  Meditate.  Take an Epsom Salt bath.  Get an acupuncture treatment.  Do a puzzle.  Whatever makes you feel good – do it.  Every little step helps.

Don’t kill yourself.  Have hope.  You will get better.

You’re not crazy.  You’re sick.  Have hope.  You will get better.

You’re not stupid.  You’re sick.  Have hope.  You will get better.

Try not to identify yourself as sick.  The mind is a powerful thing so try to stay positive. It’s hard, I know.  But try, because it’s worth it.

You will have bad days.  They will pass.  This all will pass.  It is not permanent.  You are strong –  present tense.  You were knocked down, but you weren’t killed.  You will get better.

Don’t quit your job.  Try to maintain as much normalcy in your life as you can.

It is not your fault.  Even if you knew better, even if you demanded the most powerful drug possible from your doctor, even if you self-medicated, even if you coerced your doctor into giving you the fluoroquinolone antibiotic, even if the infection that you were treating was something that you got because of doing something stupid, or from sex, even if you continued to take it after you started to get sick, even if you floxed your child/parent or other loved one – IT IS NOT YOUR FAULT.  You are sick.  You are poisoned.  You are not to blame for your sickness or for the fact that you are poisoned.  Who to blame is a discussion that I don’t want to get into because I want this to be positive, but it is not you.  You are not to blame.  You are a victim.  It is not your fault.

Lisa’s Life now

Life is good.  I don’t consider myself to be sick any more.  I’m not quite up to my pre-floxing capacity in a couple of areas.  I don’t have the endurance, energy, strength or flexibility that I used to.  However, I’m pretty close to my pre-floxing capacity in those, and other, areas.  I’m about 99% better.  Not being capable of intense exercise since December, 2011 has left me a bit out of shape, but I’m working toward being able to exercise intensely again and my stamina, strength, energy, etc. are increasing.  I can’t hike 15 miles with a backpack on quite yet (something I could do before I was floxed), but I am capable of most physical and mental activities that would put me in the “normal” or “not sick” categories.

I can work full-time.  I am grateful for the fact that I have a job that is not too demanding physically or mentally because I was able to hold onto it through my worst times.  My boss and coworkers were wonderfully understanding and they claim not to have noticed that I couldn’t think straight for about a year.  I even  got a promotion about a year post-floxing!

I can do Pilates 4 times a week, swim 2 times a week, dance once a week and walk daily.

When I was unable to walk a block I told myself that I would consider myself to be “better” when I could dance all night in heels (my feet hurt like hell when I was sick), I can do that now.  I never liked high heels, but I can wear them now.

My memory isn’t quite what it used to be, but it’s good enough to do well at my job and to maintain my relationships.

In many ways, I’m a different person than I was before I got floxed.  This has been perplexing for me and my loved ones, but it’s not an altogether negative thing.  I’m a much more spiritual person than I was before I got sick.  I was a pretty firm Atheist before I was floxed.  Now, through meditation, dancing, believing in alternative therapies that focus on energy, etc., I’m finding some spiritual outlets that I didn’t have, need or want in the past.

I have become a more compassionate and patient person.  I now empathize with people who have mystery diseases.  I used to have the attitude that I now find so frustrating in medical professionals – that if there isn’t a way to diagnose or treat an ailment, it doesn’t exist.  Now I know that people are genuinely suffering and that there is a real cause for their pain – regardless of whether or not it is acknowledged by the medical community.  My heart goes out to those in pain.

I had to become more compassionate and patient with myself as well.

I like some things that I didn’t like before I was floxed and I don’t like some things that I used to like a lot.  I hated swimming for the first 32 years of my life.  Now I love it and consider it to be an important aspect of my healing.  I used to like working out in an intense way that got me dripping with sweat.  Now I like to do exercises like Pilates that are focused, slow and deliberate.  I used to love hiking, camping and backpacking.  I miss loving those things so I’m going to try to get back into them, but I’m not sure that they’re my passions any more.  Drinking used to be one of my favorite pastimes.  My tolerance for alcohol is shot now and I don’t really enjoy it any more.  I missed it for a while even though I knew that it was for the best that I wasn’t drinking like a fish.  My appetite has changed as well.  I used to be able to eat a lot of food and I loved to eat.  I still eat, of course, but I don’t eat as much as I used to and I don’t eat with as much gusto.  This is probably a good thing seeing as I’m not into exercising intensely any longer.

Even though I would do just about anything to turn back time and not take Cipro, the place that I am in life isn’t bad, and I probably would be someplace different if I hadn’t gotten sick.  It sucks that I had to gain empathy for people who suffer from pain, mystery ailments and debilitating fatigue, but it’s probably a good thing that I now have more empathy.  I would like to think that I’m a better person from going through this.  I’m not a stronger person, but maybe I am a better person.

I hope that my tips and words of advice are welcome and helpful.  Please feel free to contact me if you have any questions or concerns.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

2,364 thoughts on “Lisa’s Recovery Story – Cipro Toxicity

  1. Claude October 28, 2017 at 5:15 am Reply

    Same thing left side weaker doctors knows lest than us about Cipro conter reaction

  2. Peter October 28, 2017 at 11:53 am Reply

    Hi Lisa – thank you very much for your efforts. I took one dose of Cipro, and am having side effects, and concerned how much they will develop. I have a family member who was also on Cipro, and is having severe reactions. I will point him to your site.

  3. Peter October 28, 2017 at 1:27 pm Reply

    I visited my acupuncturist today, and explained the Chinese view of what was happening. He said he was already treating a man who took only a few doses of Cipro and now all of his connective tissues are affected, causing pain throughout his body. The doctor says that even if the Cipro is removed from the body, the condition is actually a triggering of the immune system such that it incorrectly attacks connective tissue, and has to be reversed. He gave me both acupuncture and Chinese herbs to take for a week. He has been very accurate in the past, and has taught doctors at UMiami about acupuncture. The Chinese view is that my “blood needs to go up”, in order to correct the immune system activity. I will continue with him while I do the regime. He discouraged calcium supplements, due to the importance of magnesium being absorbed properly.

    • Robert October 28, 2017 at 6:30 pm Reply

      Can you tell me the name of the doctor with the Chinese herbs

      • Peter October 28, 2017 at 7:01 pm Reply

        His name is Dr. Fu Di –

        Tamarac, FL

        954-752-8888

    • Lisa November 5, 2017 at 10:28 am Reply

      I’m so glad you found Dr. Fu Di, Peter! He sounds great! I am a fan of Chinese medicine, acupuncture, and herbs, and have found them to be immensely helpful.

      • Ed March 19, 2018 at 11:13 pm Reply

        Hi Lisa…was just wondering if your peripheral vision recovered…i see a faint gray line that doesnt move in the left eye when i focus vision on something close…have had my retina checked and it was ok…havent had field of vision testing yet though…im.hoping it will go with time…its been 6 weeks since getting floxed now.

  4. Spencer November 3, 2017 at 7:11 am Reply

    Lisa that you so much for so story. I hope you all will not mind me not sifting through all the post and ask… How far in did you (Lisa or anyone) start to take supplements. I’m only about 2 weeks in and wondering if I can supplement now. Thank you

    • jat92517 November 3, 2017 at 9:29 am Reply

      Hello Spencer,

      I hope you and Lisa don’t mind me butting in. First, you are fortunate you found Lisa’s blog only two weeks in. While the floxacin has left your blood, it is still inside you adsorbed on the surface of your cells, particularly the brain. The amount is significant like 30% and it desorbs and quickly moves to another cell continuing to damage you.

      To get rid of this quickly is important. Magnesium makes the floxacin insoluable once it goes back into your blood. It leaves as a white floc in your urine. The removal process takes four days but you escape the floxie feeling an about 12 hours. The only way to do get enough magnesium is let the magnesium enter through your skin. You cannot get a sufficient quantity by ingesting. Epsom Salts found in any grocery store is a good magnesium source. Make a bucket with enough salt so some remains undissolved salt on the bottom. This is a saturated solution and through your feet (in the bucket) you will bring your blood to saturation also (10 minutes). Do this as quickly as you can, every day is important.

      After that you will start a major nutritional deficiency recover project. There is a lot of good information on this blog. It is a lot of reading. There are good websites on nutritional recovery. The problem is satisfying one thing with a suppliment creates a difficiency in another so you get a new symptom…and need another suppliment. In the end you can get almost all this chemistry through food…with some exceptIons. Magnesium is one as it generally is not in our food anymore.

      I have one more tip. If you are sleepy and have low energy, it is a glucose deficiency inside your brain cells. The floxacins are especially good at preventing the brain from getting the fuel it needs. The short cut to sleepiness relief is to eat the brain’s alternate fuel – oil. Any oil other than soybean oil(toxic) works. Raw unrefined coconut oil,is best. 4 to,6 once’s a day at first. Taking it is a penance as it is tasteless but getting your brain back to full functionality is key…and your going to need your brain to work its best to figure out everything else.

      Finally, you are lucky to find Lisa. Her blog saved my life. Good luck.

      • Spencer November 3, 2017 at 10:28 am Reply

        The support on this site is truly overwhelming. I am crying and just really want to say thank you from my heart for replying and truly seeming to care. Yes, as I type, I am sleepy and have low energy but will certainly will muster the energy to go and get the items you mentioned.

      • Dee November 3, 2017 at 10:47 am Reply

        John. I am 4 1/2 months out and haven’t done too many Epsom salt foot baths as I was mostly hit with CNS issues. Is it too late to leach some of the FQ out of my system by doing the foot soaks this late in recovery? I deal mostly with brain fog, spacey light headed issues so I guess lots of oils would be my course of direction? Any other suggestions for the brain fog?? You said to take 4-6 TBL of coconut oil a day?

        • jat92517 December 1, 2017 at 6:31 am

          Deb,

          I have taken 4 tbs of coconut oil a day for a few days when the Cipro was starving my brain for glucose. That helped me survive. It is a chore. Now I do 1 or 2.

          I think I owe you answers on other questions. I can’t find them anymore. I have been slow to respond because of working 22 hours a day to recover from Cipro’s financial damage.

          Please ask your questions again. My (hopefully) last issue is leg pain. I now am taking Ca and potassium plus foot soaks daily. The potassium is three 99mg pills spaced out during the day. It is improving and as it does I realize it could be a fascia muscular weakness. My other muscles are getting weaker.

          As my blood sugar is dropping due to chemistry change to increase glucose transfer into the brain. The muscles get less. So I am starting Metformin. Initial results are promising. Complex? Absolutely.

      • Spencer November 4, 2017 at 2:05 pm Reply

        How many times can I do the Epsom salt foot soak a day?

        • jat92517 November 5, 2017 at 1:06 pm

          Spencer, I think once is enough but there is no downside to more. If you are getting relief and feeling better after a few hours, go for it.

          My body was using 200 to 300 grams a day at first. Now 2-3 weeks later it is much less. It only takes 2-3 grams to chelate all the floxacin but as floxacin depletes you of magnesium there is lots of other uses for the magnesium. It used by the central nervous system and muscles big time.

      • Deb November 5, 2017 at 1:31 pm Reply

        John,
        I have tingling on my head and head pressure as if I have a band around my head. Do you have any suggestions? Thanks.

      • Deb November 5, 2017 at 1:47 pm Reply

        John,
        Can you use olive oil instead of coconut oil?

      • Deb November 5, 2017 at 3:14 pm Reply

        John,
        How much Epsom salt do I need? I usually use about a cup in a foot soak.

    • Peter November 3, 2017 at 9:52 am Reply

      I got floxied a week ago. I notice that the pain and joint weakness seems to gravitate to where there was already some joint or tendon stiffness, as in the knees and rotator cuffs.
      I have been doing epsom baths and multiple doses of liquid magnesium, made some bone broth, taking the vitamins and supplements, and changing the diet. Also going to bed earlier, as the site mentions that the human growth hormone is created during sleep between the hours of 11:00 pm and 1:00 am. The magnesium seems to have relaxed the whole body (I’m not a bath person, but the epsom baths are great) without any side effects.
      Brain is still a bit spacy but getting better. More energy due to earlier sleep and all the supplements and diet changes. Grateful that I found this site on first day.

      I spoke to my GP and the hospital that prescribed the Cipro. They are paralyzed by custom, and by the pharmaceutical companies. Many medications in the same group have been removed from public consumption due to too many toxic reactions. It would be interesting to know how many lawsuits have come out of these drugs, but one would assume the disclaimers and warnings that come with the drug might protect the drug companies.

      If the infection for which someone has taken the drug persists, I have been going to Chinese acupuncture, and he has prescribed herbs that seem to be helping alot. Manuka honey (expensive) is also a good antibiotic, as is garlic. Doctor should be consulted first.

      • Spencer November 3, 2017 at 10:37 am Reply

        Thanks so much for the reply Peter. I scheduled Chinese acupuncture for this coming Monday. He also mentioned herbs and said that I could take 2 ounces each of yellow dock root and sasparilla, boil in a gallon of water in a glass or ceramic pot, bottle it in the refrigerator then drink throughout the day like water. He said it detoxes the blood among other things I can’t remember at the moment. I will update later and share more details. Thank you all!

        • Peter November 5, 2017 at 9:32 am

          Just started using a magnesium oil spray. Company is Life-flow. Says the salt is from the Zechstein sea bed, where the formation of the salt was such that it is supposedly less diluted. Found it in Whole Foods, but it is easy to get on the Internet. Not expensive.
          Stings a bit on first try due to the salt, but much less on following applications. Seems to be providing relief to shoulder sockets, hands, forearms, neck after just 2 applications yesterday and one today. Muscles are relaxed, much less discomfort and joint weakness. I took only one dose of Cipro to activate the auto immune response, and started on the regime from Kerri Knox immediately, so maybe that is helping as well. Read many testimonials about the spray online – mostly very positive. A few non-positive ones saw little relief, but most did, and some quite a bit.
          I am not a doctor, but was in professional sports, and have been aware of magnesium applications for muscle stiffness for years, so ask your doctor first.
          Too soon to tell if this relief will continue, but some of the testimonials were very encouraging, and I am feeling much better in the areas that became painful and weak after the Cipro.

    • Lisa November 5, 2017 at 10:35 am Reply

      Hi Spencer,

      Sorry for the late reply. I’m so glad that others have answered your questions. This is a truly wonderful community. 🙂

      I started taking supplements as soon as I realized what was going on. That was 3ish weeks after I finished taking the ciprofloxacin. If I had an immediate reaction, and if I had realized what was going on with me, I would have taken supplements sooner. Mineral – especially magnesium, and antioxidant supplements have been the most helpful for most people. Several antioxidant supplements also help to repair the mitochondria. B vitamins are also necessary for mitochondrial health, but balancing them can be difficult. I like to get my B vitamins through brewer’s yeast. I’m also a fan of Chinese medicine, acupuncture, and herbs, and I hope that your Chinese medicine doctor helps you!

      There are also wonderful gems of advice in all of the recovery stories on this site. I suggest that you read through them and try the things that resonate with you.

      As with everything – be careful and listen to your body. Know that none of us are doctors, but we are here to support and help as we can.

      Huge hugs,
      Lisa

      • Dee November 5, 2017 at 12:00 pm Reply

        Lisa. Did you take “methyl” B vitamins or just like a B complex? I was taking methyl and I seemed to have broke out in a itchy rash on my back. I stopped taking them and itchiness went away in week or two. How do you take the Brewers yeast for B vitamins? Brand and dosege??

        • Deb November 5, 2017 at 1:11 pm

          Dee,
          How are you doing with your supplements. I’m still having a hard time.

        • Deb November 5, 2017 at 1:14 pm

          Dee,
          Are you still dealing with neuropathy and is it getting better?

        • Dee November 5, 2017 at 2:03 pm

          Deb. I am struggling with what supplements to take! It is so confusing!! I didn’t have a lot of neuropathy. I do have cycles of mild to moderate neuropathy that mainly affects my legs and feet but it comes and goes! I mainly deal with brain fog and pretty bad tinnitus that won’t go away or calm down as of yet! My insomnia has improved although I still wake up pretty early with anxiety! Mostly dealing with CNS issues! I sure am hoping things start to calm down in the next couple of months!! How are you doing?? Improving any??

        • Deb November 5, 2017 at 2:39 pm

          Dee,
          I have days when I am better, but it seems sometimes when I start a new supplement I have issues. I started acidophilus for a feminine issue and it helps the issue but it does cause other things to be worse. I was disappointed today. I went to a new church that I have visited a couple of times, and I had some muscle weakness while walking in the church from the car. So I was very disappointed. I do have an appointment with Sujata and I’m hoping we can get through these supplement issues. Also I was supposed to go to a play (I have season tickets to several theatres and a friend always reminds our group when we have a play coming up) this afternoon and I didn’t notice the voice mail until too late (I was out of town at the new church) so I’ve spent most of the afternoon at home worrying about not getting well yet. Stress doesn’t help the symptoms at all.

          I do have times when the shaking is almost non-existent, and many days I don’t have any anxiety. I am using liquid Remag right now and I think I like it, but I do take a lower dosage. I do the Epsom foot soaks most days and the magnesium oil, and I think they help.

          So glad to hear your insomnia is better. How did you get it to improve? Don’t CNS issues improve on their own?

          We’ll get through this. Thanks for responding!! You always are encouraging.

        • Dee November 5, 2017 at 3:39 pm

          Deb, I really didn’t do anything to improve my insomnia. Before I would wake up at 1 or 2am and not go back to sleep. Now I wake up and I can manage to get back to sleep. It just improved with some time. I still wake up early with anxiety and tinnutus so am hoping that will get better in time! I hope the CNS issues will improve in time but as you know sometimes people are left with some issues. I pray that I fully recover along with everyone else that are in the recovery phase! It sounds like you are having a good day here and there so see that as imptovement!!’ I sure hope you, Helena and I will have much improvement in the next couple of months!!! Let’s keep believing in our healing to continue forward!! We will get there but we have to be patient. ❤️

        • Pam November 5, 2017 at 6:01 pm

          Hi Dee,
          250 mg Niacin and 1 mg melatonin, along with a little magnesium before bed helped me get back to sleeping soundly. I try to take the melatonin 1 1/2 hrs. before I want to sleep, but even if I forget, it still helps.
          Good luck with your recovery!

        • Dee November 5, 2017 at 6:18 pm

          Pam, thanks for the tip on insomnia I took a half mg of melatonin a few weeks ago and had a terrible reaction to it! It was a hyper reaction….extreme anxiety, heart racing and didn’t sleep all night. Next day developed horrible tinnutus like jet engine running in my head! So I cannot take melatonin. I have calmed down quite a bit and sleep is getting better! Any suggestions on tinnitus?? I am still dealing with that and it is a constant low throbbing buzz!

        • Dee November 5, 2017 at 3:43 pm

          Deb. I also have appt with Sujata tomorrow morning so am hoping for some good guidance from her!!! When is your appt??

        • Deb November 5, 2017 at 4:18 pm

          Dee,
          My appointment is next Monday. I’m supposed to get some results back from the doctor next week and I wanted to wait until I get those results, and also next week is a busier week at work so I wanted to wait til the 13th. I’m so hoping for some good guidance from Sujata on how I can take supplements and not get reactions and also how to detox without reactions. She has had success in her own recovery and helped others to recover. This will be the first real help I’ve had. Medical doctors aren’t helpful at all for me except for the testing that they can do. Since I got the appointment with Sujata, I have done better at letting all this go until today

          Let’s just continue to believe we’re going to get better. It’s hard to be patient when you are not feeling up to par. I have improved but I still don’t have the health I had before. I, like all of us, want my health back!!

        • Dee November 5, 2017 at 5:25 pm

          Deb. We will get there!!!! I want my health back too! It is just a long journey to get there!! But I believe we will reach our destination of healing with persistence, faith, belief and positive thoughts!! I wouldn’t mine comparing notes with you. I have thought about exchanging phone numbers so we could talk. If that is something you are interested in email me to my personal email. deegilmore75@yahoo.com

        • Deb November 6, 2017 at 5:48 am

          Dee,
          I sent you an email.

      • Bob November 5, 2017 at 2:06 pm Reply

        After over 4 years of this battle I am just about at the end of my rope with terrible Neuropathy and pain in my head. Lisa have you or anyone else had any results with CBD oil and if so what brand.

        • Pam November 5, 2017 at 6:07 pm

          Bob, acupuncture with electric stimulation helped the neuroma in my foot a lot. For the months before I discovered the acupuncture, Meriva 500 helped with the pain. It is quite pricey, but so worth it! I take it with a little pepper to make it even more active. At this point, if I’ve been on my foot for a long hike, or if the ball of my foot was bent in a strange position, like trying to do a little yoga, it still swells and feels a little numb, but the pain cycle has diminished.
          I hope this works for you, too!

        • Bob November 5, 2017 at 6:35 pm

          A long hike for me is to the mailbox. I already take Meriva but thanks anyway.

        • Dee November 5, 2017 at 6:40 pm

          Bob, have you had these symptoms since the beginning for 4years? Have you tried glutathione or ozone IVs??

        • Bob November 5, 2017 at 7:48 pm

          I have had glutathione IV’s and prolozone injections. I am having a year long relapse. The neuropathy has gotten worse over time as well as the head pain.

        • Pam November 5, 2017 at 6:09 pm

          Bob, I just realized the neuropathy might be in your head… I’m not sure if you can do the electric stimulation there, but you can definitely get acupuncture there.

        • Bob November 5, 2017 at 6:29 pm

          I already thought of that. I tried acupuncture for awhile it are me better. Then I got to where I couldn’t tolerate. Right now it feels like all my nerves and my brain are on fire.

        • Janeth January 14, 2018 at 8:35 pm

          Hi mms help me, google it , there are diferente protocols but I took 6 drops of each with 1/2 glass water and next day I wake up without neuropathy pain but is you have tummy problems I will suggest take with precaution, sometimes mms make me have tummy aches and diarrea because the fluoroquinolone damage my stomach, good luck, on winter I start to have a Little neuropathy pain but I take mms and it goes away the next day, good luck

      • Dpk January 6, 2018 at 3:38 am Reply

        Does your vision improve ?

  5. Peter November 5, 2017 at 9:34 am Reply

    Sorry – misspelling – company is “Life-flo” for the spray. Check with your doctor first.

  6. Deb November 5, 2017 at 2:09 pm Reply

    John,
    How are you doing in your recovery?

  7. jat92517 November 5, 2017 at 8:25 pm Reply

    Dee,

    As regards sleep,issues:

    Have you looked into Vitamin D. It improves sleep,quality when it,is above 30. If you don’t know what your level is, ask your doctor to test it. If you know,it is low and are taking a supplement long term and going nowhere, you need to add Vitamin K2.

    • Deb November 6, 2017 at 5:55 am Reply

      John,
      Are you familiar with acidophilus and how that may cause side effects? Thanks.

      • jat92517n Taylor November 6, 2017 at 6:23 pm Reply

        Deb,

        I am not familiar with the side effects. I would guess Google is. One problem with new symptoms is they may just show up on an ongoing basis due to all the deficiencies the floxacin effected.

        After I got all the Cipro out of my body, new problems continued to arise for four weeks.

        • Deb November 7, 2017 at 5:10 am

          Are you doing okay now?

        • John Taylor November 7, 2017 at 8:47 am

          Hi Deb,

          Yes I am Ok and back to earning a living and going forward. Overall I am at 80 percent. I want more energy and strength in my legs. The legs are a potassium defeciency. Very delicate treatment to manage as overdosing is easy and can be an emergency. The energy requires time to replace the glut1 protein so more glucose can get into my brain. March is my projection. BUT thanks to this blog, I am signifantly increasing my oil consumption.

          My resting glucose level is 170. It is now trending downward. At 120 I will have full energy again — 6AM to midnight without being sleepy or taking a nap.

          So I feel this issue is under control and is no longer primary goal. I went to my GP for blood work yesterday to see says about issues I can’t feel. She said many Cipro patients have similar complaints.

          Finally I will sue Bayer. There are many offers on the web. As Bayer is German I will pick a German firm. When my business throws off enough money, I intent to find a University Study on my protocol for reversing diabetes. The goal is an article in the New England Journal of medicine. That will hit the pharmacy companies on the pocket book. After that I will find a Inivetsity study on floxacin removal so people will get treated after completing the treatment. We need some way to take antibiotics or we will all die from infections.

          So thanks for your concern and asking.

          You could liken me to a battleship that took three torpedoes and nearly sank. But the crew repaired it at sea and now I am back in action sinking enemy ships. The captain can’t wait to get back to Pearl Harbor so the new tactics he has learned can be passed on to other captains…and you are one of those. Let me know you are progressing.

          LOL

          John Taylor

        • Dee November 7, 2017 at 8:59 am

          John. Did you deal with any anxiety or insomnia?? My insomnia has improved but still have a sudden wake up every morning and my body goes into high gear! Would you know how to correct that? Pineal gland dysfunctional? Too much fluoride still in brain? Any suggestions?

        • Deb November 7, 2017 at 6:39 am

          John,
          What has helped you the most in your recovery?

        • Deb November 7, 2017 at 10:05 am

          John,
          Steven Buhner has written a book on herbal antibiotics. That may something we all can look into.

        • Deb November 7, 2017 at 10:26 am

          John,

          Sorry about so many questions. How much oil do you take a day. I would like to take olive oil instead of coconut oil. Any ideas? Thanks.

      • Janeth January 14, 2018 at 8:37 pm Reply

        Acidofilus is a probiotic , I take it , I don’t feel diferente

        • John January 15, 2018 at 3:50 am

          Yes, it is a digestive aid. I had a girlfriend who needed it all the time.I saw no effect. Generally I do not have stomach problems anyway. I eat yogurt off and on when I think I need calcium. That is where I go after taking and antibiotic. I drink skim milk for protein, and glucose that Does not require the liver to process. I think if you can digest milk your digestive track is back. BUT people have different issues. Your GP should be helpful. If you have digestion problems our doctors do a good job dealing with this.

  8. Peter November 15, 2017 at 3:38 pm Reply

    Hi John – Please let me know how it goes with your lawsuit. Perhaps a class action would work. I suspect their defense will be the literature that accompanies the drug.

    To Deb – if you use olive oil, my understanding is it has to be pure virgin cold pressed, and organic – and not a mixture, which most olive oils are, even if they say organic virgin first cold pressed. Need to research the provider.

    I am encouraged by John’s posts, very thankful for Lisa’s posts, and for Kerri’s regime, which I am following best I can. To address someone else’s concern above, I also get tinnitus, and it may be coincidental, but it seems to lessen when I put magnesium gel around the jaw and on the bone surrounding the back of the ear (not the ear itself). Tinnitus is usually caused by TMJ (a jaw joint disorder), or a very fragile bone in the ear pushing against a nerve, or from arthritic formations doing the same. I suspect that the Cipro inflames that area due to leeching magnesium and mis-transfering calcium to that area. Just a guess.

    Acupuncture is huge. Always feel much less pain and more relaxed afterwards. My acupuncturist is treating two other floxed people (by coincidence), one whose Achilles tendon ruptured, and all his joints are aching. My main symptoms so far are loose joints and pain in the shoulders and hands, and popping in the other joints. – After one dose, and I had symptoms immediately following. The acupuncturist, who is Chinese and learned from his grandfather, also uses Chinese herbs. The Chinese term is getting the “blood up”, which means getting oxygenated blood to all the tissues that are starved by the poison reaction, and overcoming the cells damaged by damaged DNA and mitachondria, etc.
    That also means that the blood needs to be properly nourished for it to be really effective,
    so I am using all the basic supplements and foods Kerri suggests, plus a few of the “super” supplements. He also stresses the importance of magnesium, and says calcium supplements should be avoided, and to get calcium from your food. I mentioned the other
    supplements, which he said were fine.

    Another acupuncturist I spoke to supports EFT (emotional frequency training), which is a method of using accupressure “tapping” along with affirmations, toward a specific ailment or emotional
    issue. VERY POWERFUL. I have been doing it for years. It can be found online.
    There are videos teaching how to do it. It has also helped with the floxing. After one
    treatment I felt no pain for hours, though I still had to be careful not to get too excited and aggravate the already affected joints, which are still weak. If people are not into accupuncture at first,
    this is an excellent precursor and aid.

    Epsom salt baths or foot soaks are really great – seem to help alot. Also a good alternative for the Magnesium gel, which burns a bit due to the salt content, and dries the skin. I
    applied it for hours on the shoulders and got a slight rash, which is diminishing quickly.
    I won’t keep it on the skin so long when I continue. I have noticed that the gel will ease
    the pain immediately at certain times, so it is very effective.

    I know my body was deficient before taking Cipro, which likely allowed the reaction to take hold. I had stiff back and shoulders before, not realizing I was not feeding the body enough nutrients, especially magnesium. I know this could be an extended fight, so my intention is to improve overall health while fighting this aberrant
    immune system behavior. I am also taking more protein (organic whey protein), along with bone broth – every medical practitioner I talk to recommends organic bone broth strongly, for collagen and protein and other minerals. .

    My gut feeling is that the healthier one proceeds, with proper diet, supplements and
    activity, the faster the body will reverse its “sick” state, and the immune system will override
    the poisoning or toxic reaction.

    On another site, one person who said he is mostly recovered said he did a lot of positive
    affirmations. This is good along with the EFT tapping mentioned above.

    The one I use is:

    “There is one God, one Truth and one Spirit, and that Spirit is one with God and Truth, and that Spirit is the Spirit of pure and perfect health, and I know that spirit is within me now,
    completely curing me of Cipro poisoning and healing all the damage done from it, and I know
    that the spirit is protecting my body from any other harm, and is powerfully healing every joint, connective tissue, brain and eye tissue, blood, organs and every part of my body all the way to my DNA, to bring me into a state of pure and shining health. I know this to be true, I accept it, and release it into the Law, and so be it.”

    Each person can word it however they want. The point is to acknowledge and empower the healing force within your own body to do its utmost to heal you. The last sentence of acceptance, release and stating it to be is important. When I have done it right, it is powerful, and there are goosebumps, and endorphins going wherever needed to heal and cure whatever ailment needs to be addressed. Can’t hurt.

    It remains to be seen how the liver and kidneys will fare through the poisoning and supplements, but I think attitude and balanced approach along with common sense, and trusting yourself is the main thing, so you don’t over do it. I’m not a doctor, but have
    been through a lot of medical stuff, and have found that you have to be your own best advocate, have courage, be your own best supporter, and remain focused and visualize
    great health, and be patient.

    I haven’t found a western medical practitioner who knows what they are doing with regards to floxing. They all want to prescribe prednisone or something else that will just make it worse. If anyone finds anyone good, please advise. Bayer and the other manufacturers would do well to come up with a anti – product or antidote to their poison. They owe it to the public.

    • Bob November 15, 2017 at 6:12 pm Reply

      I like the affirmation. I suggest drawing a symbol or picture that represents your healed body and focus on it in meditation. The brain works with pictures.

    • Deb November 16, 2017 at 5:19 am Reply

      Thanks Peter. I am having trouble with supplements. Trying hard to figure out what can work for me.

      • Peter November 16, 2017 at 10:20 am Reply

        Hi Deb – Kerri’s protocol seems pretty thorough regarding supplements, but I personally trust my gut on how much to take . I never take more than recommended, sometimes less. Also, I am tall and weigh about 200 pounds, which is about right for my height. It would be good to
        know, especially with someone smaller, whether the amounts in the protocol should be altered for different body types and sizes.

        I take what makes sense to me and research what is in the protocol. There is a balance to all of this, as some supplements need other supplements to create a balanced regime. It is all potentially very healthy stuff, as far as I can see, but one should be careful to not overdo it, and should know how the different supplements inter-relate. Also, a person may have other conditions (blood sugar issues, for example), that should be taken into account to adapt
        the regime to their situation.

        Again, I am no doctor, and just trying to use common sense. As mentioned, everyone should find a doctor to bounce things off of.

    • John Taylor November 16, 2017 at 6:40 am Reply

      Hi Peter,

      I intend to file a suit after the economic impact of the Cipro is fully complete meaning I am completely normal. I expect that to take another four months.

      I am glad to see all this discussion about magnesium and your insight on Tinnitus.

      I have tried to explain Magnesium chemistry and how to use it. Many people use treatments that have much less effect than what is possible. Mag supplements, while helpful, are much less than SATURATED salt solution soaking. Feet are preferred because they are tough and less effected by salt.

      Perhaps the numbers will get the point across. One can take 800 milligrams to 1000 milligrams or 1 gram with a pill per day. More gives you diarrhea. Soaking my foot in a saturated solution absorbed all the salt on the bottom of my bucket in about 2 days. That had to be a pound or more – that is 454 Grams. So 200 grams per day verses 1. The foot soak provides 200 times the amount you can get from supploments. 200 for 4 days is what it took. That equals 800 grams or two years worth of supplements. Sound familiar? The blog says “keep you hope up for two years”.

      • Chris November 27, 2017 at 5:09 pm Reply

        John,

        Quick question on the salt baths. Do it once or two times a day and for how many days? I did it for 4 days last week and noticed an improvement. That’s with once a day at night for 15 mins.

        Thanks again,
        Chris

        • John Taylor November 28, 2017 at 9:17 pm

          Hi Chris,

          I hope your are talking about SATURATED salt foot soaks and not bathing in 20 gallons of water, Using a saturated salt solution will give you about 50 times the amount of magnesium in your blood stream…and that will knock out the flouroquinolone from your body is about four days, Exactly how to do this is well described in prior posts.

          You can do as many soaks as you like and should go by feel. Read the comments to Deb for what happens once the Cipro is out of your body – you are starting on a nutritional cure path which has its own ups and downs as you are rebuilding your body.

          Somehow I can’t find your post so I don’t know if I has answered aalyour questions. If not send me a question.

        • Chris November 30, 2017 at 1:50 pm

          Thanks John. I am at the tail end of my flox. It’s been almost two years now and noticed some improvement after the saturated salt soaks.
          After taking 60+ Cipro tablets 18 months ago I am down to a few symptoms VS the 30+ I had a year ago. The ones still lingering around are the slight pain behind my eyes, irregular bowel issues and that’s about it. I can’t drink soda anymore and that was my drink of choice. I take VSL3 once daily now and with the soaks and good diet everything is coming back to normal. I can do physical activities with ease now and my slow healing is back to normal. This site has provided me with a lot of solid information. I live in California and I was a military medic for 21 years so being sick like this was all new to me but I am just about over it. By the way I stopped by and spoke with my pharmacist yesterday and he was following my case and gave him more insight and he told me more folks are coming down with this toxicity issue and my doctor said the same thing last week after my follow up. So they are starting to really recognize it in California. Thanks again John!

    • John Taylor November 16, 2017 at 6:51 am Reply

      Hi again Peter,

      Two more points.

      A saturated solution is one where solids salt no longer dissolves. I save mine for months and that is why I just put a foot in it. Putting your whole body in is unnecessary and abuse to your skin elsewhere. No one would do this more than once even it they could afford 50 pounds of salt.

      Magnesium is the antidote for the floxacin, it takes the medicine out of solution to a very low concentration. It forms a powder that leaves with the urine.

      • Deb November 16, 2017 at 7:56 am Reply

        John,
        You put a pound of Epsom salt in a foot tub and this saturation point, and you can reuse the Epsom salt. Four days should pull out the floxin–is that right. I think you said you soak for 10 minutes–correct? Thanks.

        • John Taylor November 16, 2017 at 2:20 pm

          Deb,

          Yes. You got it. If the pound disappears. Pore more salt in.

      • Peter November 16, 2017 at 10:09 am Reply

        Hi John – thank you for the clarity on the Mg soak.

    • Deb November 16, 2017 at 7:55 am Reply

      Peter,
      I just noticed your last paragraph. You are so right–the drug companies owe it to the public to come up with an antidote. It’s made even worse by medical professionals who know nothing or say they know nothing about FQ toxicity. And most people can’t believe that an antibiotic would have long lasting side effects. So we are on our own.

      • John Taylor November 16, 2017 at 4:58 pm Reply

        Peter,

        Well, big pharm build the doctor schools and trained the professors and provide visiting lecturers. So our Doctors are trained as pill pushers. Then they follow up with monthly luncheons with hot female and male eye candy.

        But this is the US. Our doctors can think for themselves. My GP said “many of her Cipro patients describe these symptoms. Many” Then she thanked me for sorting out the chemistry. I know she needs some legal defense for using it and also needs to be comfortable with handling the issues as they come up.

        One way to effect a change is to fund a study at a University and get it reported in the New England journal of medicine. I think that should be at one of the new nutritional doctor’s schools.

        Maybe I should get a quote and ask the blog for ideas on how to find it.

        • Peter November 16, 2017 at 5:31 pm

          John –

          Good ideas on getting a study done. I feel the same way – see what happens over time regarding personal health progress, and then gather ammunition.

    • Deb November 30, 2017 at 7:25 am Reply

      Peter,
      What kind of magnesium gel do you use? Thanks.

      • Peter November 30, 2017 at 8:22 am Reply

        Hi Deb –
        The magnesium gel is from Ancient Minerals. Blue tube. Same as recommended by the Kerri Knox regime. Can also be found on Amazon, which has all the supplements, sometimes cheaper. I also got magnesium oil from Life-Flo, which is a spray. Both get their magnesium from the Zechstein Seabed. I continue to find that it relieves the stiffness, clicking and pain very quickly when applied to the affected area. Need to be careful with them because the magnesium is concentrated. I used it too liberally and had really unpleasant overdose reaction for 3 days – nausea and really loose stools. I have a condition that is prone to create heart palpitations, which came on strong as well. Both also sting a little at first, and I got a rash on my shoulders from using too much. The spray provides 66 mg of Mg in four sprays. It can add up quickly. Especially If you get too aggressive or also do Epsom soaks and pills, overdose can easily happen. Really unpleasant.

        I now apply small amounts to affected areas and spread it thin while massaging the area, and then wipe off with water after 10 minutes, It seems that is enough time for absorption, and helps avoid the rash. Because it is so strong, and in general, a doctor should be consulted first.

        I have seen my PCP, urologist, and phrenologist. All recommend seeing a rheumatologist, because of the auto immune aspect and where in the body the toxic reaction occurs (joints, connective tissue),
        and none objected to the magnesium and supplements in theory , but all warned to be careful, especially re: kidneys. Kerri’s protocols has warnings about the regime possibly having adverse effects on certain people, based on their specific health status. I found I couldn’t handle the amounts of supplements recommended, so it has been trial and error. See a doctor first.

        • Deb November 30, 2017 at 12:19 pm

          Thanks much Peter. I have been to several doctors and none really knew about FQ toxicity. I may try the rheumatologist. Did you find he/she helped you? I haven’t gotten any help from medical doctors. I think I mentioned this to you before but I’m leary of medical doctors since trusting a doctor got me into this health situation.

          I also use the Life Flo mag oil and had not looked at the amount of magnesium in it. It helps me too, but it is so greasy I have to take a shower right after using it. I am getting more magnesium from mag oil than I thought. I was hoping the magnesium gel wouldn’t be as salty and greasy. Magnesium seems to be a really important supplement to recover from this toxicity.

          I’m having to ease my way into supplements also. I did start MitoQ this week (1/3 of a 10 mg. capsule). My arm and leg muscles are weak and I need some energy for them. I hope to slowly be able to take a full capsule.

          Thanks for your reply.

        • John Taylor December 4, 2017 at 4:08 am

          Deb,

          I have been learning how to overcome lleg pain. There are several types but I need to treat all of them all the time despite how well I feel. Otherwise they come back.. Magnesium (foot soaks), calcium, potassium and now zinc as I am getting colds. I haven’t had a cold for 20 years.

          Hope you are doing well. I’d love to hear just how well.

          I have a tenz unit. You can buy one on the web. I now use it while I am soaking. I run the1st or second level that I can feel. Afterwards it takes a while but it runs the leg pain right out of the section I have treated.

          If I soak every 1 1/2 hours starting in the morning, I have very little pain in the afternoon and can get something else done. I will drop the soaking to every 3 hours. I will sleep 4 hours straight but then the pain is severe again and I must start the foot soaks and take a potassium pill. I am up to 3/day and thinking about 4. at 99 milligrams each, How much potassium do you take?

          LOL,

          John

        • Deb December 6, 2017 at 4:21 pm

          John,
          I think I had a reaction to the MitoQ. All my symptoms got worse. I took only 1/3 of a dose for six days. So I’m at a loss right now. I felt I was getting over the MitoQ yesterday when I felt really well, but today I had the symptoms. I think if my body was stronger the MitoQ would work well for me. The leg pain got better and then got worse plus my other symptoms. I haven’t started the potassium

          I only do one soak a day since I work away from home. The mag oil helps the pain too.

        • John Taylor December 6, 2017 at 6:04 pm

          Deb,

          I suspect the MitcoQ consumed the minerals. Mitochondria uses a lot of magnesium. I know bones get priority over muscles. So perhaps the Mitochondria does too.

          I have similar issues. I started making VitaminD with sunlight and MSM. I also was taking Resveratol for the Mitochondria….and five days back I got severe pain on my right leg. I am using crutches and am getting a wheel chair tomorrow. I could tell I was deficient in Magnesium and potassium. I stopped the D and Resveratrol and started soaking every 2-4 hours.

          One day back themagnesium got satisfied and the pain is gone when I lie down and put no force on the leg. I have slept 14 out of 20 hours. I measured my leg diameter at the calf and found I lost 50 percent of the leg muscles. Now strength is the issue. So I am taking Metformin and 3 ounces of glucose four times a day. I am getting stronger but it is slow.

          Well today I could do the activities of daily living. I feel I can avoid going into a care facility. I cannot work yet but I can go to the store. So while it set me back I am going to get past it.

          You were wise to stop the MitoQ. When your leg is better start it very slowly. Tough duty this.

          LOL, John

  9. helena November 16, 2017 at 9:38 am Reply

    hello
    any suggestions on peripheral neuropathy?
    and wondering what cold meds are allowed?

    • John Taylor November 16, 2017 at 5:06 pm Reply

      Helena,

      Peripheral neuropathy is caused by low glucose levels inside your nerve cells. The nerve cells don’t function well when they don’t have enough energy. It also has to with magnesium level as this is part of how the electrical signals are tranmitted.

      I think this blog has good information on restoring Mg levels and brain/ nerve glucose penetration or transport into the central nervous system. Please try the things posted on the blog and feel free to ask further questions.

    • Deb November 17, 2017 at 4:52 pm Reply

      Helena,

      I used oil of oregano. It helped me.

  10. Dee November 20, 2017 at 2:39 pm Reply

    Lisa, I am 5 months into recovery and my physical body has improved quite a bit. I am still battling with brain fog, insomnia, anxiety and tinnutus so basically CNS issues. I read your blog on brain fog and was curious how long it took you to get your brain fog cleared in your head?? Did you have the anxiety to go along with it?? I feel hopeful that my body has improved quite a bit but discouraged that my brain symptoms are not making much improvement! Is this typically slower to heal then muscles/tendon/ joints. Hoping for improvement soon to give me more hope!!

  11. varun chawla November 20, 2017 at 11:06 pm Reply

    Help!!!

    Dear lisa,

    I took a single doses of cipro 250 antibiotic with a painkiller & a antihistamine four months ago. I also takes magnesium , i remember i maintain some time gap as well but i doubt there is serious interaction ongoing which is causing fatigue, pain, cracking & pooping sound of joints.

    Please tell should i stop taking magnesium oral as i am sure this is only happening as i am taking magnesium oral or should i switch to magnesium topical now or after complete depletion of oral magnesium reserves?

    Please help, i am in big need.

    Thanks,
    Varun.

  12. Candace November 22, 2017 at 9:07 pm Reply

    Oh how I cannot thank you enough for this information! I am sitting here now typing through tears because of the horrible journey I have been on for a year now because of medications!!! I just endured a long gi battle after receiving IV levaquin and two weeks ago was given Colton for what was thought to he new onset diverticulitis.
    I am in so much pain -my hip,LLQ,knees legs you make it! I have been looking in to this but as many have said Doctors won’t bring themselves to believe it is the medication “an antibiotic” that could cause this but it IS real!!! And it’s interrupting my life.
    I have been so sad the last few days even reading this almost panicking,came to the healing tips and your closing remarks I had to tell myself I WILL get better!!!!!
    I am a woman of faith -without it I would have already given up:(
    Thank you thank you so much for giving me hope from someone like myself who knows too well this terrible terrible battle…..

    • Candace November 22, 2017 at 9:09 pm Reply

      Cipro ** not Colton

  13. Deb November 26, 2017 at 3:35 pm Reply

    Any suggestions for muscle pain in the thighs? I’m taking 425 mg magnesium, CoQ10, mag oil and Epsom salt foot soaks. Thanks. This is new. I’ve had weakness but not pain.

    • John Taylor November 26, 2017 at 6:26 pm Reply

      Hello Deb,

      Your leg pain is actually good news in disguise. It means you are now starting to heal nutritionally. It also means you have flushed out the floroquiolone that has been adsorbed on the surface of your cells and continuing to cause damage. The Epsom salt soaks did this. Now you will heal. Great news. I am happy for you…but nutritional healing is a bumpy road. You have hit your first bump.

      Leg pain, particularly when you stand and the muscle is working to keep you upright, is caused by a lack of potassium. If you sit down and the pain stops, that is potassium.That fact that you didn’t have pain before is because you were not healing and not consuming potassium.

      Vitamin D, K2, potassium, Magnesium, and calcium (P,M,C) combine to make bones, cartilage, and tendons. This process will steal the minerals from your muscles — and you are noticing pain from lack of (P) potassium in your muscles. So take a potassium supplement but start slowly. Excess potassium is very toxic to heart rhythm. Start at about 25 milligrams. If your heart does not flutter, continue. You can take 25 milligrams 2 or 3 times a day. Buy a pill splitter. The recommended daily allowance for potassium is way too high in my opinion. Once you are doing 100 mg a day, I think that will satisfy you… There are other types of muscle pain you can encounter and you you need to learn how to tell which pain is caused by P or M or C. M is stiff non stretchy muscles – cramps and Charley horses. C is pain that does not diminish when the muscle is not under tension. P is pain under tension.

      Your body has a priority. P,M,C go into bone first, then tendons and cartilage and then muscle. These three minerals also are part of how our muscles and nerves work. Vitamin D goes into bones first. It needs K2 to do this. If you are not doing anything for new K2, the bone building will stop and shut down further Vitamin D work.

      If you combine Vitamin D with MSM, this compound is needed to make cartilage and tendons. You need sunlight to make this combination. The combination also helps glucose get inside your brain cells (less brain fog, less sleepiness during the day, better sleep quality) and muscle cells giving you increased strength and endurance.

      I hope this helps. Welcome to the bumpy nutritional recovery road. It gets gradually better. It looks to be 3 or 4 months to get the big bumps. You can feel quite well and then wham a new bump. You have taken a major step forward. You should feel free to have a little celebration. You have made my day.

      John Taylor

      • Deb November 27, 2017 at 7:01 am Reply

        Thanks much John. I have been taking supplements consistently for two weeks which I haven’t been able to do before. I would quit when I hit a snag and then start back up. My muscle weakness was much better the first week but then it got worse the second week. I do have potassium supplements but haven’t taken them. I will start slowly with it. I have started taking a little calcium too because I’m not eating dairy right now. I do eat a lot of green vegetables but I don’t think I’m getting enough calcium from them. I prefer not to supplement calcium but I think I need it right now. I eat some kind of greens every day (kale greens, turnip greens, collard greens). Do you think I need to supplement vitamin K2 since I eat two servings of greens a day? I did an infrared sauna last Friday and one on Saturday this weekend. I thought that might be causing a detox also.

        I hope this is a step forward–it is tough!!!

        Thank you for your reply!! Hope you had a good Thanksgiving and are continuing to recover.

        Deb

      • Deb November 28, 2017 at 10:43 am Reply

        John,
        What dosage of vitamin D, calcium, magnesium and K2 do you take? The calcium I took yesterday helped, but it’s not helping today. Thanks.

  14. Claude November 26, 2017 at 3:37 pm Reply

    Méditation get it free on the MIT
    Site

  15. John Taylor November 28, 2017 at 9:41 pm Reply

    deb,

    Calcium, K2, and potassium I take one pill. I get all my calcium form yogurt. I know your are avoiding dairy. Can you tolerate goats cheese? Potassium I am uo to 2 or 3 99mg a day. It has taken me 4 weeks to reduce the leg pain Potassium and magnesium were the big hitters, Whenever I have leg pain I take another potassium and foot soak,

    Arthritis is gone. I can walk for 15 minutes now, Blood sugar is trending down and I have more energy and am not chronically sleepy anymore. It has been six weeks since I flushed the Cipro out. Each week gets a little easier. All my symptoms come and go. I stopped taking the yogurt as my calcium was satisfied. Silly me, that didn’t last long.

    • Deb November 29, 2017 at 5:05 am Reply

      Thanks much John. I took 600 mg. calcium yesterday and last night I took 300 mg. more after mag oil and a foot soak and that helped. I’m still having a hard time getting enough Epsom salt in my foot soak for it to be saturated. One pound isn’t quite enough.

      I did start the MitoQ (I think it’s a powerful CoQ10) and it is supposed to help with the mitochondria. I’m hoping that will help with the muscle issues too!

      Glad to hear you are making steady progress.

      Deb

      • jat92517 December 1, 2017 at 6:36 am Reply

        Deb,

        When the salt is leaving the soak water, it means your body is using it somewhere and everywhere. Initially I was using 1/2 a pound a day. Crazy but I just kept adding salt. Now the indissolved salt it is sticking around.

        lol,
        John

        • Mashud December 3, 2017 at 4:06 pm

          Jt pls did you get peeling skin while using magnesium oil?

        • Mashud December 3, 2017 at 4:15 pm

          Sorry John did you get peeling skin from the magnesium? my skin at the bottom of my feet and my palms are peeling excessively

        • john December 3, 2017 at 4:32 pm

          Mashed,

          I only used Magnesium oil once. My skin did not peel. I then got on to Epsom salt saturated feet soaks as it puts 50 times into your blood verse the oil. I have not have skin peel9ng issues.

          Keep plugging.

        • Mashud December 3, 2017 at 7:42 pm

          John I really can’t do this anymore. It’s been a year and two months of a whole plethora of symptoms everyone I’ve told all say it’s not possible that I should get over it.

        • Chris December 3, 2017 at 8:45 pm

          You can and will get over it. Like I posted earlier everyone is different and I was one of the folks that took 1000mg a day for 30 days. That was 2 years ago and I am still not 100%. What I found works best for me was a number of things I have listed but I will list again. You have to keep moving forward and keeping active. That’s what has worked for me.
          1) VSL3 probiotic. Take 1 capsule every 12 hours. This helped a lot with the always feeling sick to my stomach issues I had for 16 months.
          2) Fruits and vegetables. Bananas, apples and oranges are my favorite.
          3) Epson saturated soaks. This I noticed worked really well after my 3rd day. I started these a few weeks ago.
          4) At least 8-10 hours of sleep daily.
          5) Drinking at least 3 bottled waters a day.
          6) Vitamin water worked for me as well.
          7) Exercise… simple things and start with baby steps.. Walks, arm weights, and keeping your mind busy with reading or puzzles. Just keep active.

          I stopped all soda and chocolate. I wasn’t a chocolate eater anyway so that was easy. Soda and the caffeine made me sick to my stomach every single time I had one soda.

          As for antibiotics and steroids… well I have used both with no issues.

          Healing times are back to normal which took over a year.

          So try more things like I have listed.

        • John Taylor December 3, 2017 at 10:54 pm

          Mashud,

          I regret I have not been able to keep up with the posts. I fully understand what you are going through. It is a torture chamber. It doesn’t help that so few people and especially doctors do not understand what is going on with us floxies. we are on our own. I thank God for Lisa as her blog gave me lots of chemical clues on how to reverse this. I have a long chemical background plus I have the experience of recovering from the nutritional degradation of food intolerance. My intestines were down to 15% of capacity which allows no micronutrients to enter the body. No one in my family related and I could find no Doctor I thought would help. I found plenty who take $2000 for some blanket analysis and then recommend 29 supplements, I also have the experience of trend charting natural diabetes cures. So I know how to get sugar into my brain.

          Without this background I believe Cipro would have killed me in the first six days.

          Well, It didn’t and I learned…and I am still learning.

          The first step is to get the antibiotic out of your system. It has bene hiding out of the blood stream by adsorbing to your cell walls – not in solution – and especially on your brain cells where It has a chemical affinity, You do this by placing a foot in a saturated solution of Epsom salt for 10 minutes a day. After four days the floxacin is gone and you will feel much better. It must must must be saturated – some solid salt left on the bottom of the pan.

          However you will have escaped one torture chamber for another. The difference is the dungeon master of the second one takes vacations. You will start to get your brain back, say goodbye to nightmares, and be able to do things. But he can return and be quite nasty

          The floxacin has flushed out of your body all the repair nutrients to the point where your body cannibalizes some things like muscles, tendons, ands cartilage to keep other things like your brain, heart, and organs alive so your body can repair itself when the toxin is gone. These repairs do not go smoothly. As you heal one ting It will deplete other chemistry and that causes new issues.

          if you read Deb and my correspondence, it is a fairly complete “how to” on the nutritional recovery path. I am 8 weeks since I chelated the Cipro out of my body. Deb is about 5 or 6. We are dealing with leg pain now. That requires Potassium, Calcium, and magnesium to restore muscle function. As the floxacin destroys muscles the fascia muscles holding my knee together got so weak my knee was falling apart and that was very painful. I reversed this by taking Metformin for 2 days as this puts glucose into muscles and that makes them stronger. Your muscles can store 10% of your weight as solid glucose inside your muscles. When it does your strength doubles. Metformin causes a high glucose demand. It will strip the glucose out of your blood, reduce its availability for the brain and make your sleepy. to avoid this I drink pure glucose (your body can’t make it fast enough) or no fructose corn syrup. I buy 3 bottles at a time.

          You have fought this for two years. You have every right to be discouraged and quit, but thanks to Lisa you can get out of this in about four days and then when you master each issue your life just keeps getting better.

          I don’t know when I will have recovered to the point where the Cipro can’t keep tagging me. My trend chart says March or another 4 months. not bad for a total rebuild,

          I am 70 years old. I look forward to welcoming Lisa to Heaven in about 30 years. I am in better health despite the Cipro than I was at age 50. I am in better health than 90% of the people my age. you follow this blog and you will be too.

          Please post your questions on Lisa’s blog so others can make use of your experience.

          God luck and I look forward to you reporting you have escaped from this dungeon.

          Sincerely,

          John Taylor

        • Mashud December 3, 2017 at 8:58 pm

          I serious can symptoms that have to do with sleep. I took mine with very strong anti malarial before I went to bed so I’m suffering from sleep psychosis. I go to bed quite easy and quick but I dream excessively and basically hear my thoughts randomly flow during sleep. And I have very loud multi pitched tinnitus. With pots. It’s ridiculous.

        • Mashud December 3, 2017 at 9:05 pm

          I have serious cns symptoms that are debilitating. I have sleep related psychosis. I dream excessively and basically hear my thoughts running while I sleep. Random thoughts about cartoons,music,things that don’t exist etc. I took the cipro with a very strong anti malarial at night. And I woke up about 2-3hours later with a migraine so painful it felt like my head had cracked and very loud multi toned tinnitus.

        • Deb December 6, 2017 at 4:28 pm

          Chris,
          When you did the saturated foot soaks did you notice any Cipro coming out of your body as John did? I didn’t notice anything.

        • Chris December 6, 2017 at 5:42 pm

          Deb,

          I did notice the water changed color all 4 times that I did the soaks and that was after a shower as well. Not immediately after but a couple hours after. This was 18 months after my last Cipro tablet. I felt I really improved over the year then I had a setback when I tried to drink a soda 4 weeks ago. I had never had that bad of an issue but it got bad. Then I saw Johns saturated soaks and his explanation so I tried and noticed another improvement. Now my stomach and feeling sick all the time has just about gone away. I am at 96% of 100% now. Before the soaks I was a steady 89% of 100%. So yes I did notice a color in the water. My second and 3rd soaks took a lot of salt. My 5th soak, two days ago, had very little color change. I am going to do another soak this evening. My doctor also said to try otc magnesium tabs at 200-400 mgs with the soaks but I feel almost 100% now. Like you and everyone here it’s been a long and slow process. It’s almost two years for me. I have been active as well. A lot more now with shoveling thousands of pounds of rocks in my front yard on a project to walking 1-2 miles a day. I did jogging last with my dog and it felt so awesome.

        • Cathy February 3, 2018 at 12:20 pm

          John, I have a quick question about foot soaks. Should the water be warm or room temp? Does the temp change efficacy?

        • jat92517 February 3, 2018 at 1:40 pm

          Cathy, As a practical matter as you are going to reuse the salt water, room temperature water is fine. Technically it will take longer to get the same amount of salt – like 2X for room temperature vs. 130 F. So 5 minutes vs 10. You’ll more than that trying to reheat it.

        • Dee February 5, 2018 at 6:37 pm

          John, how are you??? Haven’t checked on you for awhile and hoping you are doing much better!!! How is your back doing? Do you feel recovered from the Cipro reaction? I hope so!!! I’m doing a little better day by day but still dealing with anxiety and tinnutus. I hope it will start to calm down soon!!’ Dee

  16. Alice Primm November 29, 2017 at 6:52 am Reply

    Lisa, thank you! I now have hope of recovering. After 4+ months in a boot (and my other foot starting to exhibit symptoms of a plantar fasciitis-tear) I was truly despairing ever getting better. Severe pain in my shoulders, hips and back mean that my work life, private life, and sleep are all severely diminished.

    I had taken Cipro for a urinary tract infection and, when the plantar fasciitis started, was given steroids. I regularly took Ibuprophen for back pain. So, that unholy triumvirate sent me down the rabbit hole of Copro toxicity.

    Although I’ve had nowhere near the range of symptoms you had, the pain has been bad enough to send me into significant depression. Now that I know what caused this, my hope is that recovery is down the road. Thank you!

  17. Kelsi Burrier December 1, 2017 at 6:46 pm Reply

    Hi Lisa! I have a question regarding your rash. You said you initially had a rash. When did it go away? Did it go away and come back daily? My story is almost exactly like yours. I took cipro mid sept for a UTI, took midol mid octobe, itch severely then rash a few days later, then muscle ache, severe pains, swelling. All these syptoms have come and gone on a daily basis. Everyday I have a rash, a pain and inflammation, but it isn’t always in the same place as the day before. My rash isnt always the same as in somedays they are raised hives, some are flush red spots some itch and some never itch. My left leg pain and swelling is pretty constant but other areas come and go.I have been to my general doctor who told me my syptoms along with some blood tests that I had some sort of cancer but they didn’t know what kind, which has taken me on a journey to a rheumogologist, 2,hemotologists, dermatologist, obgyn and many sleepless nights. All but 1 denied my Cipro concerns, stating it was too long after my treatment to have any sides effects. After 43 viles of blood and $1000.00 out of pocket expenses. I am ready to self diagnose myself and go with my original gut feeling.the kicker is I originally went to my doctor for back and slight bladder leakage and to get healthy. He stated I had a uti and prescibed me cipro 500mg twice a day for 10 days (I took it for 7), but when share those test results with other doctors they don’t believe that the test indicates a uti to start with!
    Anyways I am just starting my journey and trying to make sense out of all of this. So back to my question, did your rash and pain change daily or was it pretty consistent?
    Thank you very much !!
    Kelsi

    • Lisa December 3, 2017 at 6:45 pm Reply

      Hi Kelsi,

      My rash/hives lasted for a few months. I’m struggling to remember exactly how many, but I’m guessing around 4 months. It changed and morphed on a daily basis, just like what you’re describing for your rash/hives. I remember waking up one day and my chest looked like it had a tree design on it. Other times my arms had hives on them. Other times it was on my knees. It was quite bizarre.

      Time helped the hives/rash the most. Acupuncture may have helped too.

      Have you looked into the histamine/mast cell activation connection? This post is a good place to start – https://floxiehope.com/2015/10/01/can-fluoroquinolones-activate-mast-cells/. A low histamine diet may be helpful – or at least worth looking into.

      Regards,
      Lisa

      • Kelsi Burrier December 4, 2017 at 5:28 am Reply

        Thank you so much for your reply. I will look into to low histamine diet. The dermatologist suggested I take a low dose of antihistamine, but I am no longer willing to put any type of “medication” in my body.
        Again, I appreciate your reply and you sharing your story. It has helped me confirm that this is actually a thing, I am going down the right path and that I am not crazy.

  18. Margaret Bruce December 10, 2017 at 5:04 am Reply

    I am 79. I live in Scotland. Got cipro several times. I am asthmatic and took it with prednisolone. I woke one night with severe pain in my leg and along the sole of my foot. Saw my GP who said I should never have cipro again. Two years later I still have burning pain in my leg and along the sole of my foot. Increases when I am on steroids and antibiotics but I have no choice as I have regular lung infections. Go for acupuncture weekly and think this is keeping me on my feet. Seem to be in a catch22 situation.

  19. Dee December 14, 2017 at 7:53 am Reply

    John, last time you posted you were having a rough time with your muscle aches and pains. I am hoping that you are doing better and improving? I was thinking about you and wanted to check on you! I really hope you are going better!! I am 6 months out and “slowly” seem to be improving. I hope it continues on that path!!! I have mostly CNS issues which I have heard takes longer to heal! I hope this finds you doing much better!!!! Dee

    • John Taylor December 14, 2017 at 4:14 pm Reply

      Dee ,

      I think the Cipro is taking one last stand . It has weakened my back muscles to the point where it’s activated an old injury was pinched nerves this is extremely painful. I went to the hospital to get this checked out and that’s when I discovered I had pinched nerves. I knew my muscles were getting weaker but I didn’t think about the back muscle being an issue. So I have progressed to the point where they’ve given me the first epidermal and initially it felt better but now I can tell you it has done very little. They have a long protocol to go but I’m sure in the end they will solve the problem. The hospital does not allow me to practice my natural cures which I’m sure would be a big help and probably cut the time for healing to a third. I’m kind of stuck in the bureaucracy of Western medicine because they have to practice what they are tight. So it’s a question of how to go forward and they also have rules about so much money they can spend and will see how all this plays out I don’t see it I think it will take to my name and do significant economic damage to me. However I see lots of reasons for hope the Cipro affect on my sugar transport has made remarkable progress in my resting blood sugar now is like 110 it has never been below 125 in the supra had me stuck at 1:55 I have reversed the arthritis I have reduce the demand for magnesium. I’m waiting for a vitamin D test to see if my bones are satisfied for vitamin D. I have reached the goal of having less than 5 pounds of this real fat visceral fat and my liver is making all kinds of chemistry which is helpful . So when I get past this muscle issue I think there is nothing left I can throw at me all my natural health indicators will be good and I can start a physical rebuilding on my body. I’ve lost half the muscle mass in my legs from this but I know how to rebuild that quickly so so I have lots of reasons to hope. I’ve had several spiritual experiences which so many things will get better and then I will get through this. I think in two weeks the hospital will either fully succeed or I will find a way to go home and be able to’s to make progress at home. This will give me a complete freedom with the natural cures and I know that tutmeric will reduce the inflammation and clear this back pain. I’ve had several spiritual experiences to convince me I will get past this. When that happens I’m set up in pretty good shape to recover financially and proceeded to have a life free of Cipro .

      So presently it’s next to news news. I also take a lot of encouragement from the blog and in the people that I have helped. It’s interesting that a lot of people in the hospital are interested in my story and my chemical explanations and it’s just amazing to me. I’m glad to hear that you’re seeing progress and fortunately don’t have an old bed back. So you don’t have to go through this part.

      well I need

      • Dee December 14, 2017 at 5:47 pm Reply

        John, I am sorry to hear you are battling back pain and hope with a little more healing time you will start feeling back to your old self!! The rest of your body sounds like it is heathy and improving so that is s goof thing!! I have also lost slot of muscle mass and would be interested in hearing how you would rebuild your muscles. I actually lost 40 lbs in all of this and a lot of it was muscle mass!! I really want to rebuild again but my muscles are still a little weak, achy and stiff. Hopefully time will improve this!! Keep us posted on your progress with your back and I truly hope you start regaining your strength and agility soon so you can get back to living life again!! Blessings and may you heal quickly!!

        • Dee December 15, 2017 at 7:11 am

          John. I hope the hospital is not giving you any kind of steroids or NDAIDs! That does not go hand in hand with your Cipro reaction. It could really set you back from what I know????

        • John Taylor December 16, 2017 at 1:49 pm

          Dee.

          I will get back surgery to remove the disc pinching the nerve. Early week. This is an old injury that has been brought back to life as my muscles have gotten weaker.

          And I’m going to get on my supplements that reverse diabetes along with my diet and start the glucose level trending down.

          Next time going to take Matt Foreman which puts glucose into your muscles. You can double your muscle strength this way in a very short time. However at foreman will take a close-up of your bloodstream very quickly and can make you sleepy. So every time I take a metformin pill I will take 3 ounces of fructose free corn syrup. This was double the muscle strength in a very short time. After that I will start doing knee ups which strengthens your leg muscles and and go to the gym that has an elliptical with the lateral side motion. You can get metformin if you don’t have a prescription on one of these online pharmacies or you can go to your doctor and request a prescription . The trick to building strength is to not sweat the elliptical and the knee ups can move you into a sweating mode. When you are sweating your body is burning protein inside the muscle cells this you don’t want to do so as soon as you feel yourself starting to sweat your stock that’s the fastest way to build muscle. I expect to be in pretty reasonable shape in about a month

        • Dee December 22, 2017 at 7:16 am

          John, just checking on you?? Did you have back surgery? Are you feeling any better? I pray you are starting to heal and getting stronger!!! Dee

        • John Taylor December 22, 2017 at 2:38 pm

          Dee, there have been a lot of twists and turns. I have had an epidural which has reduce the pinched nerve pain issue about 60 percent. So they’re evaluating if I’m going to need anymore or just anti-inflammatory medicine. There were four things from on with my back if you get out of giving me leg pain. So starting with the big news is I have The Cipro effect on my blood sugar and my blood sugar is now back to where it was and the trend is that it’s going to continue down. I’ve had some readings below 100 which I’ve never had before. And that means a diabetes problem is totally cured. So as far as separate goes I now see my score is super one and me five.

          The one is I’m still losing weight but it is slowing down significantly and when I start gaining weight it will be Cipro zero. I I keep taking the minerals and the vitamin D that Cipro has depleted me and I can see where I’m gaining muscle strength.

          So I’m pretty happy about things and I don’t think I’ll be out of the rehab in two weeks. I wish you all a merry Christmas and a escape from Cipro next year .

        • Dee December 22, 2017 at 3:41 pm

          John, that is great that you are gaining strength and your blood sugar is in check!!!! it also sounds like your pain level is down!!!! All good news to hear!! I wish you a Merry Christmas and most definetly a full recovery for us and other floxies going through this!!! I pray for a happy, joyful HEALTHY and yes cipro free future!!!!! Will check in with you after the holidays!! Dee

        • John Taylor December 22, 2017 at 4:50 pm

          Yes yes yes. When I get through this we all know one path to recovery. And then when people try it and run into a problem will have more information on how to fix that so will have two paths and hopefully a lot more full recovery stories. Merry Christmas

        • Dee December 28, 2017 at 7:59 am

          John. Checking on you!! I hope you are doing better!!?? How is your back doing? I hope you are recovering and have less pain! I am about the same improving very slowly with some issues and staying about the same with other symptoms. I have a fair amount of muscle soreness from working more then usual around the house etc. sleeping is still an issue along with ear noise! I hope to keep moving forward in next few weeks!!!’ I sure hope you are getting a lot better John!!!

      • Deb December 16, 2017 at 3:24 pm Reply

        Hi John,
        I, too, am sorry that you had to go in for surgery. I’m glad you have high spirits. I will be sending you healing thoughts for a quick recovery from surgery and Cipro!!

        All the best,
        Deb

  20. Deb December 16, 2017 at 3:35 pm Reply

    John,
    I think some people with FQ toxicity tolerate anesthesia with fluorine and some have setbacks. You might want to check on the anesthesia and see if it has fluorine.

    Quick healing to you!

    Deb

    • Chris December 16, 2017 at 4:34 pm Reply

      I have had no issues with anesthesia and I go in for a routine procedure next month and will undergo general anesthesia. I haven’t heard of anyone with this issue. Is this a new thing or?

      • Deb December 17, 2017 at 4:36 pm Reply

        Hi Chris,

        I really don’t know much about this. Lisa knows much more than I do. But I think some people have had setbacks from anesthesia.

        Deb

        • Chris December 20, 2017 at 11:45 pm

          Oh ok. Got ya.
          Just an update with me. So I can’t take any antibiotics right now and it’s been 18 months after my last dose. I can tolerate an antibiotic but I have blood in my stools again which is what I had 18 months ago. I have had blood in my stools off and on for the past 18 months and had every work up done to see why. Final analysis is that every time I take an antibiotic it wipes out all my good bacteria in my colon, therefore creating blood in my stool. No straining or anything. Just appears. I took 1 capsule of minocycline last night and it looked like I blew off my finger with the amount of blood I had. Apparently it’s damage done from the Cipro. I just had an endoscopy and colonoscopy and both normal including the same day I had a lot of blood in my stool. So I guess for me the damage can be permanent. Meaning blood in my stools is normal because whatever antibiotic I take kills off the good bacteria. I am even on VSL3 probiotics which is the strongest on the market and that didn’t even help after 1 capsule. So this sucks. I may never be normal again.

  21. Dee December 29, 2017 at 8:47 am Reply

    John, are you doing ok?? I hope you are getting stronger and improving!! How is your back doing? I hope you are home and out of your pain getting stronger and better each and everyday!!! Sending good healing thoughts to you!!!

    • jat92517 December 30, 2017 at 10:08 am Reply

      I have made progress in many areas . The Cipro has stopped interfering with my glucose. My fasting glucose level is nowbelow hundred. That is the specification for a healthy human being. The weight loss associated with this attack has stopped and I am gaining weight. I can walk 150 feet with a walker. The anti-inflammatories are working so I think I don’t need surgery. What is left is getting rid of a Charlie horses that prevent me from walking normally. Since the hospital doesn’t understand nutritional recovery this Charlie horse thing is going to take some time. I figure I have about two weeks left.

      • Dee December 30, 2017 at 10:25 am Reply

        John, that is so awesome to hear of your progress!!! Fantastic news!! You aren’t reacting to the anti inflammatories?? I thought most floxies get a boost in symptoms when taking even OTC ones like Advil etc? You are lucky you can take them without getting worse?? Anyway the good news is that you are getting better!! I am 6 1/2 months in with “slow” improvement but hoping for continued forward progress. Mostly CNS issues to resolve and I think that takes longer??? Brain fog, insomnia, anxiety and tinnitus! Hopefully will get to full recovery in next 2-3 months! Nothing wrong with praying for a speedy recovery! Keeping my fingers crossed!! Any suggestions on CNS issues? Thrilled to hear of your progress!! Let’s get this done!!! Dee

        • jat92517 December 30, 2017 at 10:40 am

          Dee/,

          I know you have done that Epson salt soak and have removed the Saxon from your body. So now I think brain fog is easy. It is from low glucose levels in your brain. To increase this you need to increase The transfer rate of the glucose from your blood into your brain. There are a variety of chemicals collect on the surface of the cell and help push to close and your brain. Paragraph omega-3 fish oil. The RDA is 4000 mg. Take 8000 for two weeks.

          Eight oil it Siri alternate fuel for the brain. This allows the rain to burn less Cucos so Moore is stored. Very best oil is raw coconut oil. I also to hear olive oil . But I admit I can only Ingest an and I don’t serve each. It fills you up.

          Vitamin B 12. Are used things are quick. No more of the longer-term. Stop taking all artificial sweeteners except Stevia

        • Dee December 30, 2017 at 11:26 am

          John. Thanks. I do take about 2-3 TBL. Of raw coconut oil and fish oil caps but could definetly up the dose on both! Any suggestions on insomnia and tinnutus? So how do you react to those anti inflammatories? They don’t exasperate your symptoms?? Are you on strong ones??

        • jat92517 December 30, 2017 at 1:16 pm

          What. Is your Vitamin d level

        • Dee December 30, 2017 at 1:27 pm

          John. In early Nov my Vit D was 42. I am currently taking 5000 icu a day of D to raise that some! You said no caffene. Is decaf coffee ok to drink while recovering?

        • jat92517 December 30, 2017 at 2:09 pm

          Ah ha. Decafe comtainws 4 mg per small,cup, I think 1/2 a cup is OK ,

          5000 unit of D is way over normal demand. IT MEANS TYOU NEED K2 and cutback to 1000 ofD .or Your insomnia is from overdosing on Vitamin. D.

          I’d stop the D for 5 days

          Lol, John

        • Dee December 30, 2017 at 2:24 pm

          John. Thanks for advice. I will cut back on D and see what happens. Just trying to get my D level from 42 back to the 60s! This is such a process and so confusing! I worry about not getting better but I guess if I am improving I have a good chance of full recovery! It is just such a slow process!!

        • John Taylor December 30, 2017 at 3:13 pm

          Dee,

          The K2 will give you a kick. Because once the bones are satisfied the D will start to work on everything else.

        • Dee December 30, 2017 at 3:28 pm

          John. How much K2 should I take?

        • John Taylor December 31, 2017 at 8:41 am

          One pill a day. Read the label.

          I eat one pound of bacon in two weeks.

          John

  22. jat92517 December 30, 2017 at 11:52 am Reply

    A brain burns oil so it uses less glucose. And More is stored.

    You you should be seeing some brain f0g relief. Next is vitamin D. Vitamin D needs vitamin K two to work. You can get vitamin from a pill or pork fat. Three strips of juicy bacon is enough for a week. Heat destroys the vitamin so crisp bacon is useless. When your vitamin D level reach 30 it starts to work on your brain and you should feel very sleepy, and sleep should be deep.

    The artificial sweeteners dissolve the Glut1 protein from your Brain. This is Most effective transporter for getting glucose into your brain and muscles.

    Caffeine also resolves Glut1 . To break the caffeine addiction to start sipping your coffee until you feel the benefit and then stop. When you get down to 3 cups A day. Switch to decaf. When you are down to one cup always shipping until it goes away then switched to Green tea. You will have many gays when you will not even think of green tea.

    The other symptoms just disappeared for me during this process. I don’t know about ton your other symptoms just disappeared for me during this process. I don’t know about tinnitus. Except untilDo you reach the state little is likely to work because your brain is not functioning normally.

    • Dee December 30, 2017 at 12:07 pm Reply

      John. Ok thank you for all the info! I actually have been a caffene coffee drinker got 40 years and stopped drinking it when I got floxed because of CNS issues!! I have thought about adding back decaf organic coffee to give me a much needed taste of coffee I miss so much but have hesitated? I always enjoyed a nice glass of red wine in the eve and scared to add that back also. I have also been told that CA wines have a lot of fluoride from the pesticide sprayed on grapes so if and when I add it to my diet again would have to buy European wines with little fluoride. I want to feel close to recovered before I would even try a glass of wine but I have considered the decaf coffee??

      • jat92517 December 30, 2017 at 1:10 pm Reply

        No caffeine

    • Deb January 2, 2018 at 1:28 pm Reply

      John,

      Glad you are doing better. Hope that is continuing every day.

      Do you have any suggestions for knee pain? It started over the weekend, and I don’t know why. Do you think the vitamin K2 would help me?

      Thanks.

      Deb

      • jat92517 January 2, 2018 at 7:10 pm Reply

        Dee,

        Complex question buecause there. Can be many causes. Cipro dissolves cartlidge, Tendons and muscles so I’ll start there. The first thing to check out is the facia muscle which wraps around the knee and holds it together. So when you stand on your leg feel like your bone scanslide out of joint if so that’s a facial muscle. If the pain is more in the center of the joint that’s like arthritis. To build muscle there are three conditions. You must have adequate levels of potassium and magnesium and calcium and your blood sugar has to be relatively low meaning your brain hs stored glucose. Your muscles need stored lglucose to function normally, repair themselves and build now muscle. Tt

  23. Bill January 2, 2018 at 11:40 am Reply

    Lisa
    I took cipro on and off for uti for weeks before (and after) my prostectomy 5 months ago. I am 70. I had no reaction to it then except minor leg pain that went away in few days. However, one week ago both my legs started to ache to the point cant sleep or walk. I recently retired and this is ruining my lfe, I am very frustrared and scared. Urologist says call my GP who has no idea what to do. But i am sure it was Cipro!
    I have many questions:
    1) Is your website (floxiehope.com), i dont know social media just found you by search engine.
    2) How do you get beets? Raw from grocer ,or the common beet powder advertised now.
    3) Magnesium and potassium supplements helped a few days but 250 mg/day seems low? How much can you take as trial?
    4) Is accupuctue covered by medicare and plan F supplement?
    5) Is it better to stay on your feet or in bed? Wife tells me to get up and not think about it but normal chores seem to make it worse.
    6) I am in st louis county (chesterfield 63005) but dont know how to find good accupinturist. I am sure there are good and bad ones like everything. What wound he need to know (from your experience) to help me?
    7) There is also a website that sells a “Leviquin Cure” or something like that name for $29? Is that worth buying?
    8) Are muscle relaxers good to help me sleep?
    9) I am so dense i didnt even notice the replies below. Just got this iphone
    And have nt figured it out . Probably answers down there
    Thanks Bill

  24. jat92517 January 2, 2018 at 7:33 pm Reply

    Dee,

    You also need protein in your blood.

    To build cartilage need magnesium calcium potassium collagen that makes cartilage, glucosamine chondroid and MSM combined with vitamin D. The last you have to make in your Body And it takes sunlight to provide the energy of combination. You need a sunlamp that you can get from Grainger.com I don’t know the item number But it is listed in a prior post.

    Since you are a Flexi I would start with the Cartlidge when you get all chemistry set up should feel a difference of three or four days.

    As for me I am still in thehospital

  25. John Taylor January 2, 2018 at 7:38 pm Reply

    Dee,

    They are working on the pinched nerve and I think it will take about a week to resolve. Then it’s a question of having enough strength to go home. At that point I believe Cipro cannot do me any further harm. 8. Months of struggling to figure the chemistry,

    Keep plugging

    • Dee January 2, 2018 at 8:28 pm Reply

      John. Thanks for all that information! A lot to take in!! I’m sorry to hear you are back in hospital. Please take care of yourself and get well and regain your strength soon. Keep believing in your healing and recovery and keep fighting to get better. May you find strength in all of this and get better soon. Keep us posted on your progress!! Hang in there!

      • jat92517 January 3, 2018 at 12:09 pm Reply

        Dee,

        It is complex and very detailed. I think this doctor will make another move this week and nail the nerve pain next week. Then it is just a matter of getting my strength back.

        Sent from my iPhone

        >

        • Dee January 3, 2018 at 12:49 pm

          John. Thanks for getting back. Please keep us posted on your progress and I hope you can go home soon! Sending you good thoughts and prayers to get better soon!!!

  26. sue sharp January 3, 2018 at 11:52 pm Reply

    Hello Lisa I live in Australia and they have now found a link with chronic fatigue which calcium at the queensland university
    http://www.meaction.net/2017/03/16/calcium-channel-ion-defects-research-from-australias-griffith-uni/
    it is an interesting article and hopefully you get to read it
    Happy New Year
    Sue

  27. Lyse January 8, 2018 at 4:16 am Reply

    Most of if not all of the symptoms you listed in your post are prednisone side effects…. the link in this comment is the official goverment site regarding meds and diganosis and so on so you cant deny the side effect list that im giving you a link to

    https://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0044942/#DDIC603543.side_effects_section

  28. Dee January 11, 2018 at 8:29 am Reply

    John, thought I would check on you and see how you are doing? Are you out of the hospital? Is your back pain getting better? Hoping you are recovering and getting stronger!!! Dee

    • jat92517 January 12, 2018 at 5:14 pm Reply

      I leaved rehab Sunday. I have 85 percent strength on my right leg. Beats what I had when I came here. Zero.

      Cipro’s attacks have all been defeated. I will get my old life back.

      WiFi and the internet is spotty here. SonI keep it short. It has been a tug.

      John Yaylor

      • Chris January 12, 2018 at 5:32 pm Reply

        Good to hear John! I am happy for you.

        • jat92517 January 12, 2018 at 6:46 pm

          Thanks Chris.

          Tell me what is going on with you.

          John Taylor

      • Deb January 14, 2018 at 2:32 pm Reply

        John,

        So glad you are out of rehab or are leaving today and feeling much better!

        Deb

        • jat92517 January 14, 2018 at 8:08 pm

          Deb,
          Now that I am in a less regourus environment, off narcotics and have a brain again, with internet access, How are you? Are you leg issues under control?

          I did two Epsom salt soaks today and know the pain from Charley horses will be gone.

          I still have to deal with pinched nerve pain but it is slowly receeding. With the lower back strengthening exercises rehab taught me plus the big kahuna for the lower back – an oscelating eliptical. it’s an open question whether I just need exercise and turmerik to see if I can keep the nerve pain under control or if that’s going to slowly decided I will go for an epidural .

  29. Ann mcmahon January 14, 2018 at 2:50 pm Reply

    Hi everyone.
    My husband was floxed back in July last year. Symptoms are easing all the time but we wondered if any of you has had reactions to alcohol? He had a few drinks 2 days ago and now feels foggy and headache. Could it be due to the floxing or are we blaming everything on it!
    Thoughts?

    • Bob January 14, 2018 at 5:17 pm Reply

      After getting floxed I had relapses to alcohol which I only drank on vacation. I suspect this is due to severe kill off of gut flora. I am afraid to drink anymore.

  30. Janeth January 14, 2018 at 8:22 pm Reply

    Thank you for the post, i got very ill after I took nitrofurantoin 3 times in 2016, I got all the bad symptoms, since tendinitis , artritis, mental fog, loss of memory , ibs, tummy problems, blader, ear pain, etc, I was taking suplementos too, I got floxed with Nitrofurantoin ( macrobic), 21 months ago, I was getting better after I took aminoácidos complete, multivitamin, magnesium , caltrate, probiotic, wheet grass, during all this time I ha 3 relapses by November I was 99% better but after that until today the cold affects me a lot with muscle pain and no energy, I start to feel nauseous and my heart start to going fast sometimes and I can feel it , this scare me, does anyone had this problem and how you solved , thank you

  31. jessicamambro January 18, 2018 at 6:35 pm Reply

    Hi, all. Doctors think I might have fibromyalgia, as I have had mild symptoms for many years with flares every now and then. But I took Cipro about 10 years ago for a bladder infection. All the symptoms described here are spot on and I’m starting to wonder. Could this be a delayed reaction to the Cipro? I also took NSAIDs regularly for pain and headaches.

    • Lisa January 28, 2018 at 11:18 am Reply

      Hi Jessica,

      People often have delayed symptoms of fluoroquinolone toxicity. There may be several mechanisms, but one is that mitochondrial damage can cause delayed reactions. Here is a post about that – https://www.hormonesmatter.com/fluoroquinolone-time-bomb-mitochondria-damage/. Since you have taken NSAIDs regularly, you may have a leaky gut from both the NSAIDs and the fluoroquinolones, and that may be contributing to your illness. There are lots of web sites and books about healing your gut. A lot of floxies have found The Wahls Protocol to be helpful.

      Regards,
      Lisa

  32. Amanda Lundbld January 28, 2018 at 7:46 am Reply

    I took ciprofloxacin for 5 days and stoppad on july 29 (2017) after 3 months came the symptoms as you descibe it. All the blodtest were good and the Doctor could not fond Any reason to This reaction. Is it common that the side effekts of ciprofloxacin can come 3 months after stoppning with the medicine?

    // Amanda from sweden

    • Lisa January 28, 2018 at 11:21 am Reply

      Hi Amanda,

      One of the signs of fluoroquinolone toxicity is that all the tests come back “normal.” None of my tests found anything either. I was clearly not “normal” though – as I was going through all the symptoms I describe above.

      Unfortunately, it is common to be experiencing side effects 3 months after stopping the medicine.

      Here are some tips for getting through – https://floxiehope.com/2015/10/12/im-floxed-now-what/.

      Regards,
      Lisa

  33. Davide January 28, 2018 at 10:40 am Reply

    I took few of this pills since I am no myself my main problem is dry mouth eyes pain depression I just feeling bad everyday I am 41 years old from the Uk thanks for telling your story I hope to get better soon.

  34. jasmina January 28, 2018 at 4:16 pm Reply

    Dear Lisa,
    “If I could turn back time…”
    So, I am doing “research” on pudendal neoropathy and I have stumbled upon your post again. Since it is from March 2015, I was wondering have you resolved your PN?
    When I rewind my memory, my PN evolved from lighting pain in the groin in April 2015 to constant pain of different intensity and location priory to pregnancy in March 2017 and till than it’s become “richer” due to spontaneous miscarriage. And I thought I have recovered… Some sneaky details were telling no, but most MDs are clueless. Since May I have been losing my time, tossed around (gyno, urologist, colonoscopy, poor neurology exam), so I set down, started to read basic anatomy and it became pretty evident to me what is the problem. According to doctors, “it is in my head”. I begg the difference, I have MRI to prove adhesive capsulitis (frozen shoulder). Very painful. So, if scar tissue formed there, it could be anywhere causing problems. But, PT for pelvic pain is difficult for me to find where I live. PT did break adhesion in my shoulder. It is not quite as it was., but most important it doesn’t hurt. Half an inch shorter arm and slightly lesser range of movement to other arm is tolerable. I have started taking enzyme serapeptase in attempt to break adhesion elsewhere in body. Do you know someone with success story with that? And, once again, how are you PN wise?

  35. jasmina January 29, 2018 at 5:02 am Reply

    Dear Lisa,

    I hope you’ve resolved your pudendal neuropathy. Any advice besides all ready written?
    Tanks

  36. Rebecca Green February 6, 2018 at 5:33 pm Reply

    Hi Lisa,
    I tried to email you a while ago but I think perhaps it didn’t get through. Thank you so much for making this resource. I did take this class of antibiotics but I did take Bactrim the sulfa drug. Hopefully you will get this though and we can find a way to email? Many thanks, Rebecca

  37. Dee March 5, 2018 at 8:30 am Reply

    John, I don’t know if you still get on this site but I was wondering how you are doing? I sure hope you are much better and that your back is also a lot better not causing you pain. Hopefully you are well and back engaging in life again!! I am almost 9 months out and slowly getting better. I am still dealing with insomnia, tinnutus and some anxiety. I hope I will begin to see more relief in the upcoming weeks!! Dee

    • jat92517 March 5, 2018 at 4:48 pm Reply

      Hi Dee,

      I have been out if commission the months of Dec, Jan, and February. Now I am pain free most of the time and resuming normal activities. I am slow and not as strong as I used to be but exercise will restore that. It has been 8 months since I started this journey but now I believe I am out of danger.

      I have found lawyers in the US who claim they have settled lawsuits against Bayer. This is good news but it also means the settlements will not be $100 K plus. Probably more like 20 -50 K. When I get some slack from working to pay the hospital bills, I’ll write my experience and what it cost me. I’ll post the results – probably two years from now.

      LOL,
      John

  38. […] made several posts on Floxie Hope and other resources and am forever indebted to Lisa and others for providing pages for this mind-boggling under-documented syndrome. I’m amazed […]

  39. Ambra April 16, 2018 at 10:39 am Reply

    Hi Lisa!! I hope you continue to heal everyday!! Your story ((I’m sorry)) is great hope for me!!!
    4/16/2018 I’ve just been floxed!!! The side effects are crazy!! Insomnia & rapid heartbeat & breathing with twitching & blurred vision on top of all GI issues & rash.
    I have 1 kidney & had a uti. Cipro was administered after sulfer antibiotic reaction.
    This is by far the worst experience I’ve ever had in my life.
    May Healing & Strength Be Restored!!
    Ps: My immediate family “thinks I’m making this up!!” That’s hard to swallow.

  40. Sally Drinkhouse April 21, 2018 at 10:29 pm Reply

    My name is Saly Drinkhouse , I got floxed in 2016. I was an avid roller blader, with a demanding job . I took Cipro fives days for a UTI infection , my legs started getting weak and achy . A year later I could no longer blade . My rotator cup tore , then my Achilles’ tendon tore . I have peripheral neuropathy , I saw many Drs. But no one knew It was caused from Cipro . In April this year I did stem cells from my own fat. They injected my shoulder , hip and heel about a week ago . The Cipro had caused more trouble to a preexisting heart condition. So they used one vail straight into my artery to go to my heart and lungs . The neuropathy seems to be improving , but I can’t walk at night after walking on my heel everyday . I also do acupuncture which I do believe helps a lot , especially with stress and my brain is much sharper . I also get a weekly massage . These helps the neuropathy and stress levels
    I take magnesium Malate , Coq10, chorella. 1000 milligrams of Vit.C , Zeolite for inflammation, Amatillo for sleeping . I take an epsom salt bath once a week and I also get into a dry sauna, I get a body wrap by suddenly slender , (only do the wraps that are affiliated with Victoria Marton ) . The rest of them could be fakes . She is the real deal . if they have one in your area , I heavily advise it. It pulls toxins out by going through osmosis and replacing your cells with minerals . Get a support team who genuinely cares about you . There is always hope out there. I have faith Im going to beat this and help anyone out there that has been suffering as I have . Your Floxie friend Sally Drinkhouse . If you can’t afford stem cells , then have a little fun raising party .
    Maybe a raffle with family and friends . It will change your life ! Key word . HAVE FAITH , and remember to thank GOD and his divine universe for answering your prayers .

    • Claude April 22, 2018 at 3:06 am Reply

      Hello Sally

      Please contact me
      Claudejacquesroy@post.harvard.edu

      I was flox 2015 now I play tennis

    • Dee April 22, 2018 at 2:03 pm Reply

      Hi Sally! Thanks for your info and I sure hope the stem cell therapy will get you back roller blading again!!! When did your ligaments tear?? Was it fairly soon after Cipro or was it a year later?? Are you doing a lot better since the first few months of being floxed?? How is your walking and mobility? Prayers for your continued healing!!

  41. Dee April 23, 2018 at 3:13 pm Reply

    John Taylor, are you still checking this website?? Just checking on you and hoping you are mostly recovered???!! I hope this is finding you healthy and well again!! Let us know how you are doing!!!

  42. ciprofloxacin recovery time - fqhelp April 23, 2018 at 9:05 pm Reply

    […] Lisa’s Recovery Story – Cipro Toxicity | Floxie Hope […]

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