Lisa’s Recovery Story – Cipro Toxicity

Lisa for Floxiehope

*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

Lisa’s Story 

In the middle of November, 2011, I took Cipro to treat a urinary tract infection.  I took 2 pills (500 mg each, I believe) a day for three days.  I didn’t feel like the infection was gone, so I went back to the doctor and requested more antibiotics.  He gave me macrobid and the infection subsided within a couple of days.  Life went on as normal for the next couple of weeks, until December 2, 2011, at which time I got my period and started taking ibuprofen to help me to deal with the cramps.

Before I continue with my story, I would like to note that I had taken Cipro to treat a urinary tract infection approximately a year earlier.  I had no notable side effects at that time.  Though, looking back on things, I did develop an eyelid twitch at that time and some strange stomach cramping that came and went started then.  I didn’t think anything of the eyelid twitching or the stomach cramps.  I certainly didn’t think that they were tied to the Cipro.  I took ibuprofen regularly after taking Cipro with no adverse effects.

On December 2, 2011 my legs started to itch.  On December 4th I broke out in hives all over my body.  I went to the doctor and was told to take Benadryl.  I took more Benadryl than the box recommends and my hives got progressively worse.  On December 5th my feet and hands swelled to the point that I couldn’t use them anymore.  It was painful to walk, or even to just stand.  I went back to the doctor and was put on prednisone.  The prednisone suppressed the swelling and calmed the hives a bit.  On December 7th my left leg went weak.  For the next few weeks the following symptoms got worse and worse:

  1.  Weakness in my legs.  I could barely walk.  The steps that I could take took a tremendous amount of effort and energy.  I couldn’t stand for more than a minute.  I had to drag a chair into the kitchen in order to cook rice because I couldn’t stand to stir the pot.
  2. Tightness of the tendons in my legs.  I had inflammation, and possibly tears, in most of the tendons in my legs and feet.  My hips, knees and ankles, to simplify things, didn’t work right.
  3. Loss of use of muscles / loss of strength.  My muscles, especially the muscles in my legs, wouldn’t move like they used to.  All of my movements were slow and deliberate.
  4. Brain fog.  I couldn’t think straight.  I felt stupid.  I couldn’t concentrate.  It was a struggle to do my job.
  5. Loss of memory.  My short-term memory decreased significantly.
  6. Loss of peripheral vision.  Large, black floaters entered my peripheral vision.
  7. Loss of appetite and weight.
  8. Loss of flexibility.  I went from being able to do yoga several times a week to being unable to sit with my legs curled up under me.
  9. Loss of balance.
  10. Severe loss of energy.  I felt like the plug had been pulled from my energy source.  I wasn’t necessarily sleepy, I was just drained.  The feeling was similar to the feeling that I have when I have a cold – weak and like I just want to collapse.  Just slight exertion would drain me of my energy.  Walking would make me tired for a whole day afterward.
  11. Dry mouth.
  12. Anxiety.  I had an ongoing anxiety attack for the first couple of months after being floxed.
  13. Pain in my feet.  I felt like I was walking on hot coals with every step I took.
  14. Loss of reading comprehension.  I would read a page and have no idea what I had just read.
  15. Loss of social skills / connectedness.  I felt anxious and scared in social situations.  I lost confidence in both my physical and mental abilities.  I felt very alone despite having a wonderfully supportive family.

I felt as if I had aged 20 years in just a week or two.  I couldn’t move, think or eat.  My body and mind were falling apart and I had no idea why.  I didn’t think that the sudden decline in my health had anything to do with the Cipro.  After all, I had stopped taking it a couple of weeks before my body started to fall apart.  I thought that I had an autoimmune disease.  My symptoms seemed similar to those of rheumatoid arthritis.  I went back to the doctor and they ran every test imaginable on me.  I was relieved to find out that I didn’t have an autoimmune disease, but it was somewhat frustrating to hear that all of the tests were showing that I was normal and healthy when, clearly, I was neither normal nor healthy.  The doctors did not provide me with a diagnosis or a prognosis.  Though I was desperately seeking a diagnosis and prognosis, I am thankful, in retrospect, that they didn’t misdiagnose me.  If I had been mistakenly diagnosed as having an autoimmune disease, I may have treated it with pharmaceuticals that could have made me feel even worse.

I was desperate for some treatment, something to stop the downward spiral that my body, mind and spirit were in.  The traditional medical doctors I saw provided no relief, treatment or healing.  I started seeing an acupuncturist.  He was able to stabilize my condition, calm my nerves and keep me from spiraling physically or mentally.  After a few weeks feeling stable physically, I started to have days where I felt better than I had the day before.  Mentally, I kept going downhill for a while, but, eventually my mental health stabilized and started to improve as well.

Eventually, with the help of my acupuncturist, I connected my symptoms to Cipro.  Once the connection was made, I realized that all of my symptoms were consistent with those of others who have been poisoned by Cipro and other fluoroquinolone antibiotics.  I entered the scary world of being a floxie.

For about a year, I considered myself to be sick.  Though the symptoms listed above were improving, slowly but steadily, I was still sick, and a long ways from the healthy, active, energetic woman that I was before I took Cipro.  After a year, I started to put “sick” in the past tense.  Though I wasn’t back to the level of health that I was prior to being floxed, I was getting better and, as far as most people could tell, I was well.

Following is a list of things that I did to help me to get well, to heal.  I am not a doctor.  This is a description of my experience and what helped me.  I hope that what helped me helps you.  Everyone is different though.  What helped me may not help you.  One thing that I know helped me and that I know will help you is hope.  I hope that the fact that I have largely recovered helps you to have hope.  I hope that the other steps that I took to get well also help you to gain hope and healing.

Please feel free to contact me with any questions, comments or concerns, or to share your story.

Lisa’s Healing Tips

One of the many frustrating things about fluoroquinolne toxicity is that everyone’s body is different.  Everyone’s symptoms are different and everyone’s body reacts differently to treatments.  Following is a list of things that helped me.  I hope that what helped me will help you, but it may not.  I am including other people’s healing tips as well, in case their tips can help.  Of course, please read these tips with the typical disclaimer in mind – I am not a doctor or medical professional of any kind.  I am sharing my experience with the hope that others may find it to be useful.  Please ask your doctor, or other trusted medical professional, for medical advice, and before taking any of my advice.

In no particular order, here are the things that helped me to heal.

  1. Time.  With time, I have healed.  Each day is better than the day before.  Time will heal your wounds too.  Eventually, you will get better.  The poisonous reaction affecting every part of your body will eventually stop and you will begin to recover.  I have heard several stories of fellow floxies having a timeline similar to mine – slow, steady recovery for about 2 years.  Other people take more, or less, time to recover.  Time does help though, and most people do end up getting better as time goes on.  Very few people get worse and worse indefinitely.  There may be bumps in the road, but time is your friend.  Time will help you to return to a state of health.

Try to be patient with yourself.  It will take time for your body and mind to heal.  I see this whole ordeal of getting sick as a lesson in patience (and compassion, gratitude and health).  Pushing yourself too hard too soon can lead to pain, frustration and injury.  Try to give yourself the time necessary to heal, and, with time, your body and mind will, indeed, heal.

2.  Avoid NSAIDs and steroids like the plague.  Both NSAIDs and steroids are contraindicated with fluoroquinolone toxicity.  They will make your reactions and symptoms worse.  There are some published medical articles on PubMed about the contraindication between NSAIDs/steroids and fluoroquinolones.  Searching at the library or on Google will give you more detailed information than I can provide.  Anecdotally, I know that my reaction was triggered by taking NSAIDs (ibuprofen that I took to help me to deal with menstrual cramps) and it was exacerbated by taking prednisone (a steroid).  Please note that I did NOT take NSAIDs or steroids at the same time as Cipro.  I took ibuprofen 2 weeks after I finished taking Cipro and it triggered my toxic reaction and I took prednisone 3 weeks after I had finished taking Cipro, after my reaction had started.  I will never take another NSAID or steroid again.

Unfortunately, NSAIDs and steroids are the drugs that are the most commonly prescribed drugs used to “treat” fluoroquinolone toxicity.  This is because the combination of NSAIDs/steroids and fluoroquinolones does not always cause a toxic reaction, the toxic reaction of combining fluoroquinolones and NSAIDs/steroids can occur even when the drugs are taken weeks or months apart, doctors and other medical professionals don’t acknowledge fluoroquinolone toxicity and so they don’t look for the contraindications and because many of the symptoms of fluoroquinolone toxicity are treated with NSAIDs and steroids.  The pain killing qualities of NSAIDs and the swelling reduction qualities of steroids make them the drugs of choice for treating many of the symptoms of fluoroquinolone toxicity.  Don’t take them though!  In my nonmedical opinion, I suggest taking non-NSAID over-the-counter pain medicine like acetaminophen (Tylenol) for pain (or marijuana – which is probably better for your liver), and antihistamines for the swelling.

Often, fluoroquinolne toxicity is misdiagnosed as an autoimmune disease.  In particular, it is often misdiagnosed as rheumatoid arthritis.  Many of the drugs that are used to treat rheumatoid arthritis are NSAIDs.  Don’t take them.

3.  Acupuncture.  I credit my acupuncturist with saving my life.  I can only guess how I would have fared without my acupuncturist, but I imagine that I would have ended up in the emergency room, pumped full of steroids and antidepressants, having a massive anxiety attack and unable to walk.  That didn’t happen though and there really isn’t any point in surmising about what could have been.  I do know that acupuncture stopped my downward spiral and got me on the road to recovery.  Both the acupuncture needles and the herbs that he provided gave me immense relief.  I don’t know why or how acupuncture works, but I do know that it worked wonders for me.

4.  Supplements.  I have taken more supplements than I can remember.  90% of them had no noticeable effect on my health.  Here is a list of supplements that I think helped me.

Iron.  I take a low dose iron supplement – only 5 mg. – daily.  The brand of iron supplement that I use is Pur Absorb, but I’m guessing that other low-dose iron supplements will work equally well.  Within just a couple days of starting taking the iron supplement, my energy levels increased dramatically.  I could walk a mile without being exhausted afterward.  In addition to improving my energy level, the iron supplement seems to make my muscles and tendons more supple and malleable.  When my tendons are feeling tight, a dose of iron helps to loosen them up – within just a couple hours.  Too much iron is really bad for you, so please be careful with supplementing it (ask your doctor, yada yada), but it helps me immensely.

Magnesium.  I take 250 mg of chelated magnesium daily.  I don’t necessarily notice that it makes me feel better, but I do notice that I feel worse when I don’t take it.  My muscles twitch if I don’t take my mag.

Zinc.  I take zinc when I get around to it.  I remember feeling mildly better when I started taking it.  It doesn’t seem to affect my health dramatically though.

Chlorophyll.  I take chlorophyll about every other day.  It seems to help with my energy level and mental functioning.

I also take fish oils, resveratrol, a probiotic, a joint supplement, CoEnzyme Q10, vitamin B12, chlorella, glucosamine, brewer’s yeast and some other supplements.  They may help.  I can’t say that I feel a difference using any of them.

5.  Meditate.  Meditating has so many amazing, positive benefits for your brain, your life, your spirit, etc. that I can go on about it ad nauseam.  Meditation helped relieve a lot of the mental symptoms of my fluoroquinolone toxicity.  My anxiety, inability to concentrate, inability to connect with others, depression, loss of reading comprehension, decreased mental acuity, etc. were greatly reduced (or improved) through meditating.  I meditate about 10 minutes each day.  I should meditate more like 20-30 minutes a day.

Meditating helped me to gain compassion for myself and my situation.  It also helped me to let go of the anger that I felt toward the pharmaceutical companies and the medical culture that allows fluoroquinolones to be on the market.  The pharmaceutical companies and the medical culture are both messed up and blame of them is justified, but anger and blame were not serving me mentally, emotionally, spiritually or physically.  I needed to let go of my anger and blame in order to move on with my life.  Meditating helped with that.

I learned to meditate through taking a class called Mindfulness Based Stress Reduction that was offered by my health insurer.  It was an excellent class based on the work of Jon Kabat-Zinn.  Many Buddhism centers offer Mindfulness Based Stress Reduction or Meditation 101 classes.

6.  Get off the internet.  Most of the information available on the internet about fluoroquinolone toxicity is horrifying.  Fluoroquinolone toxicity is horrifying.  It is scary.  It is completely unacknowledged by the medical community – the doctors, nurses, etc. who we go to in order to make sense of things when our body goes hay-wire – so we seek answers on the internet.  Unfortunately, most internet sites devoted to fluoroquinolone toxicity do not provide a balanced picture.  They show the harm and the horror of fluoroquinolone poisoning, but they don’t show the healing and hope that most people eventually experience.  I am writing and distributing this in order to provide the perspective of hope and healing.  Some people are permanently disabled from fluoroquinolones.  My heart goes out to those people and they have every right to scream their story on the internet.  However, their story is not your story.  My story is not your story either.  But if you’re going to look to the internet for a prognosis, it’s better to find a hopeful prognosis than one that is full of doom and gloom.

When I participated in the online forums for Floxies, I noticed that my anxiety levels increased significantly.  Even after I was 90% recovered and I thought I could handle it, my anxiety levels would go up simply by reading about people being floxed.  Inducing anxiety is one of the worst things that someone suffering from fluoroquinolone toxicity should do.  Anxiety makes all symptoms worse.  I would slowly relapse and my symptoms would get worse every time I participated in the online forums.

Of course, the people participating in the online forums are seeking to help fellow Floxies, to commiserate and to participate in a support group.  It is not their fault that my anxiety levels increased when viewing their sites and/or support groups.  After all, most people on those sites are trying to be helpful and supportive.  However, the net result of participating in the forums for Floxies is that my anxiety levels increased and my health declined while I was on those sites.  I am healthier and happier not participating in the online “support groups” than I was while I did participate in those groups.  Of course, this is my experience only.  Many people find solace in the Floxie community and if it helps you, great!

The people who have worked hard to create a community of Floxies to support one another should be commended.  It is because of their hard work that thousands of people have realized what is going on with their bodies and that they are not alone.  The community of Floxies is full of wonderful people.  However, you need to do what you need to do to take care of your health and if you find that hearing other people’s stories increases your anxiety levels, get off the internet.  For you.

7.  Diet.  I lost 11 pounds in 18 days when I first got floxed.  My body was going hay-wire and it seemed like an allergic reaction.  I had no idea what I could possibly be allergic to so I stopped eating almost everything.  I didn’t eat sugar (including fruit), gluten, dairy, soy, anything non-kosher or anything spicy, or drink any alcohol or caffeine, for a month.  I only ate vegetables and organic meat.  It’s a highly effective way to lose weight, but I don’t think that restricting my diet severely helped me to heal.  Restricting my diet gave me a sense of control, and that’s not a bad thing when your body is self-destructing, but I don’t think that it made me feel any better physically.  After a month of only eating veggies and organic meat, I started to add normal foods into my diet.  As soon as I started eating an appropriate number of calories, I started to feel better.  Not only was I Floxed, I was also wasting away when I wasn’t eating normally.  Getting enough food is an important part of healing.  Of course, it’s generally good to be on the “don’t eat junk” diet, but I didn’t find that cutting my food intake significantly helped me to feel better.

Many Floxies develop GI problems.  I was lucky in that I didn’t have many GI problems.  Many people seem to be helped by cutting gluten, sugar and/or junk food out of their diet.

I notice that I feel slightly worse than normal when I consume sugar and/or caffeine.  I think that most people do, I am just now accustomed to paying closer attention to my body.

The only food that makes me feel noticeably better is beets.  For some reason, beets make me feel great.  I just boil them and eat them.

I’ve heard good things about the benefits for Floxies of eating broccoli and other cruciferous vegetables.  I love broccoli so I try to eat a lot of it.  Unfortunately, I can’t say that I’ve noticed that it makes me feel better.

8.  Swim.  My tendons and muscles feel significantly better when I’m in the water, and for several hours after I finish swimming.  Swimming in the ocean feels especially therapeutic.  There are so many minerals and trace nutrients in the ocean, I surmise that they’re helpful for healing.  Unfortunately, I don’t live near the sea, so I swim in a pool.  I feel better when I do so.

9.  Pilates.  I started doing Pilates about 7 months post-floxing.  Pilates strengthens the core, something that is generally important, and gently stretches muscles, tendons and ligaments, something that is particularly important for Floxies.  I started slowly and gently and didn’t push my tendons, muscles or ligaments too much.  I feel that gently stretching helped my tendons, muscles and ligaments to heal and return to (close to) their pre-floxing capacity.  Take it easy though.

10.  Healing arts.  I love to dance.  I’m not a good dancer, but I love to do it.  About 16 months post-floxing I started to dance again.  Dance has been healing for me.  I feel spiritual, strong and joyful when I dance.  I’m not sure if it’s the dancing itself that I find to be healing, of if it’s the joy that I feel when I dance that is healing.  Either way, it helps.  I surmise that other forms of expression would have similar healing qualities.  If you love to sing, sing.  If you love to paint, paint.  If you love to write, write.

11.  Attitude tips.

Try not to compare yourself to how you used to be.  I used to hike 20 miles in a day.  I can’t do that anymore, but I can hike 3 miles today and I couldn’t do that when I first got floxed. Compare yourself to how you were yesterday, not to how you were before you got floxed.

Do something – anything – to work toward healing, every day.  Walk a little further than you did yesterday.  Meditate.  Take an Epsom Salt bath.  Get an acupuncture treatment.  Do a puzzle.  Whatever makes you feel good – do it.  Every little step helps.

Don’t kill yourself.  Have hope.  You will get better.

You’re not crazy.  You’re sick.  Have hope.  You will get better.

You’re not stupid.  You’re sick.  Have hope.  You will get better.

Try not to identify yourself as sick.  The mind is a powerful thing so try to stay positive. It’s hard, I know.  But try, because it’s worth it.

You will have bad days.  They will pass.  This all will pass.  It is not permanent.  You are strong –  present tense.  You were knocked down, but you weren’t killed.  You will get better.

Don’t quit your job.  Try to maintain as much normalcy in your life as you can.

It is not your fault.  Even if you knew better, even if you demanded the most powerful drug possible from your doctor, even if you self-medicated, even if you coerced your doctor into giving you the fluoroquinolone antibiotic, even if the infection that you were treating was something that you got because of doing something stupid, or from sex, even if you continued to take it after you started to get sick, even if you floxed your child/parent or other loved one – IT IS NOT YOUR FAULT.  You are sick.  You are poisoned.  You are not to blame for your sickness or for the fact that you are poisoned.  Who to blame is a discussion that I don’t want to get into because I want this to be positive, but it is not you.  You are not to blame.  You are a victim.  It is not your fault.

Lisa’s Life now

Life is good.  I don’t consider myself to be sick any more.  I’m not quite up to my pre-floxing capacity in a couple of areas.  I don’t have the endurance, energy, strength or flexibility that I used to.  However, I’m pretty close to my pre-floxing capacity in those, and other, areas.  I’m about 99% better.  Not being capable of intense exercise since December, 2011 has left me a bit out of shape, but I’m working toward being able to exercise intensely again and my stamina, strength, energy, etc. are increasing.  I can’t hike 15 miles with a backpack on quite yet (something I could do before I was floxed), but I am capable of most physical and mental activities that would put me in the “normal” or “not sick” categories.

I can work full-time.  I am grateful for the fact that I have a job that is not too demanding physically or mentally because I was able to hold onto it through my worst times.  My boss and coworkers were wonderfully understanding and they claim not to have noticed that I couldn’t think straight for about a year.  I even  got a promotion about a year post-floxing!

I can do Pilates 4 times a week, swim 2 times a week, dance once a week and walk daily.

When I was unable to walk a block I told myself that I would consider myself to be “better” when I could dance all night in heels (my feet hurt like hell when I was sick), I can do that now.  I never liked high heels, but I can wear them now.

My memory isn’t quite what it used to be, but it’s good enough to do well at my job and to maintain my relationships.

In many ways, I’m a different person than I was before I got floxed.  This has been perplexing for me and my loved ones, but it’s not an altogether negative thing.  I’m a much more spiritual person than I was before I got sick.  I was a pretty firm Atheist before I was floxed.  Now, through meditation, dancing, believing in alternative therapies that focus on energy, etc., I’m finding some spiritual outlets that I didn’t have, need or want in the past.

I have become a more compassionate and patient person.  I now empathize with people who have mystery diseases.  I used to have the attitude that I now find so frustrating in medical professionals – that if there isn’t a way to diagnose or treat an ailment, it doesn’t exist.  Now I know that people are genuinely suffering and that there is a real cause for their pain – regardless of whether or not it is acknowledged by the medical community.  My heart goes out to those in pain.

I had to become more compassionate and patient with myself as well.

I like some things that I didn’t like before I was floxed and I don’t like some things that I used to like a lot.  I hated swimming for the first 32 years of my life.  Now I love it and consider it to be an important aspect of my healing.  I used to like working out in an intense way that got me dripping with sweat.  Now I like to do exercises like Pilates that are focused, slow and deliberate.  I used to love hiking, camping and backpacking.  I miss loving those things so I’m going to try to get back into them, but I’m not sure that they’re my passions any more.  Drinking used to be one of my favorite pastimes.  My tolerance for alcohol is shot now and I don’t really enjoy it any more.  I missed it for a while even though I knew that it was for the best that I wasn’t drinking like a fish.  My appetite has changed as well.  I used to be able to eat a lot of food and I loved to eat.  I still eat, of course, but I don’t eat as much as I used to and I don’t eat with as much gusto.  This is probably a good thing seeing as I’m not into exercising intensely any longer.

Even though I would do just about anything to turn back time and not take Cipro, the place that I am in life isn’t bad, and I probably would be someplace different if I hadn’t gotten sick.  It sucks that I had to gain empathy for people who suffer from pain, mystery ailments and debilitating fatigue, but it’s probably a good thing that I now have more empathy.  I would like to think that I’m a better person from going through this.  I’m not a stronger person, but maybe I am a better person.

I hope that my tips and words of advice are welcome and helpful.  Please feel free to contact me if you have any questions or concerns.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

2,555 thoughts on “Lisa’s Recovery Story – Cipro Toxicity

  1. Naina June 2, 2018 at 11:20 am Reply

    What to take for the heavy head and brain fog?

    • RaeAnn Peter July 7, 2018 at 12:04 pm Reply

      Did you ever figure out how to deal with the heavy head/brain fog?

  2. Claude June 2, 2018 at 3:14 pm Reply

    Friend

    You will be better
    Time will help you
    I am 3 years this month

    Today I bike 30 kilometers

    I will pray for you

    • Rita De Cassia Dias Gomes October 19, 2019 at 12:09 am Reply

      Depois que tomei esse remédio,comecei a sentir dores nas pernas,quero saber quem é o responsável,o fabricante,a médica ou o hospital?

      • Claude roy October 19, 2019 at 1:34 am Reply

        Thee if them are responsible
        When did you take it
        And how are you

  3. Steve Weyenberg June 4, 2018 at 3:11 pm Reply

    I just gathered the nerve to go to a neurologist after seeing one over a decade ago and just got reminded why I didn’t waste my time and money going again within that time. I laughed inside when He broke out the Ol reflex tools. I didn’t get any further testing done and was told He couldn’t do anything else for me. I stayed respectful but I made sure that He earned His money today. He can only do so much due to only being allowed to. Just sad. Life goes on and Love to all Floxies.

    • Bob June 4, 2018 at 6:32 pm Reply

      Sounds just the 2 visits I had to neurologists at the Cleveland clinic. I told the last one within 10 years they would all be replaced with functional medicine doctors. He replied, “your probably right.”

    • lisalisa12years August 3, 2019 at 6:16 am Reply

      D you say it leaves you ? What about progressive neuropathy? I was FLOXED 13 years ago March 19th 2007..had no idea what was happening to me..meanwhile every vitamin and mineral storage were bring depleted. 13 years later I still have to take subligual vitamins my teeth have become soft and easily break.. I swim daily with shoulder tendon tears and left knee injury. I still have problems with depression. Things I’ve never had before. I was 42 going to the gym 6 days a week walking two miles afterwards. I still have horrible guy issues. Please send me the list lisalisa61@live.com thank you and I hope your right. Odd how this hits harder after completely stopping it. I had very vivid nightmares woke with tremors Depersonalzation when I was always out going ? So many other things that happened without explanation. There was nothing online as people who sued were told not to speak about it
      It’s left people young healthy people bedridden. I was barely able to pick up my head for three years. I’m sure it had a lot to do with not starting a vitamin and mineral regimen immediately. This could have been avoided if the company were honest about the things that were going to happen. Giving such powerful antibiotics out for simple infections. Was the worst medication disaster in U.S. History as the late Dr J Cohen stated in his book of the same name. 13 years of suffering ? All because of a greedy pharmaceutical company. Hoping your right.

  4. Dee June 11, 2018 at 4:10 pm Reply

    Lisa, now that summer is upon us it is also a great activity to swim and cool off in the hot weather!! I am a year out from being floxed and “mostly” recovered with a few issues left that hopefully will improve or go away ( primarily pretty loud tinnitus). I have read that swimming in a chlorinated swimming pool can aggravate your floxie symptoms?? I noticed in your story that you swam a lot and really enjoyed it. I would like to swim this summer as I love to swim! What do you know about floxies and getting into swimming pools or hot tubs?? I really enjoy both but also don’t want to take a big risk of triggering or ramping up symptoms!! Being floxed has already taken so much from me and I hope it doesn’t take away swimming too!!

    • Ruth Young June 21, 2018 at 6:20 pm Reply

      Dee,
      I really don’t think chlorine pools and hot tubs are an issue for us. They have not been for me and I was in them at less than half a year out. I always washed the chlorine off me right away. But I never noticed a flare. In fact I spent a significant amount of time in motel pools and hot tubs this week as we are making our annual deliveries up north of fireworks for the shows shot by fire departments and the company pays for us to stay overnight in motels. Nice perk and definitely feels good after a long day in the fireworks truck. No problems from it that I can notice.

      In fact, I had very deep restorative sleep last night, so much so that we overslept today and had to scramble to make our first delivery on time. And most people with laterally tracking patellae as bad as mine would have knee pain after two hours sitting with bent knees, and I did not notice any knee pain until our seventh hour in this truck. And I wasn’t sore from unloading half a semi-trailer of fireworks yesterday with my husband and the driver of that truck. I lifted some really heavy boxes and today I felt fine, despite sleeping on a motel bed.

      If chlorine pools were going to do anything this week would be where I should notice it and instead I feel great. Some very mild anxiety, but fleeting and definitely nothing new or severe. The never ending trees were freaking me out a bit and giving me some anxiety, I had some uridine and fish oil pills with me in the truck so I thought, “This stuff helps with sleep, let’s see what it does for anxiety.” Knocked it down within about fifteen minutes. All those trees though, it’s so weird how they go forever on both sides of the road, and at every turn or intersection there are just more… it was just freaking me out, giving me that weird feeling of pressure in my face. But it wasn’t anything more than my usual flox response to life in general.

      So I would say that the effect of the chemicals in pools and hot tubs, for me, is not noticeable if there is one. The swimming actually relaxed me and made me feel good. You should do it and feel good. A lot of floxies say It really helps them.
      Ruth

  5. Debbie Hooper June 21, 2018 at 5:46 pm Reply

    Dear Lisa I’ve thought about writing to you for so long I’m heading for my fourth year of being floxed. End of July 2014 I finished a 5day course of cipro I’ve suffered greatly and severely. I’m ready to shout it out now and be another voice to tell anyone I can that floroquinilone
    S should only exist in life and death scenarios please would you be kind enough to email me at lperrysmusic@hotmail.co.uk and so I can write you via email. Thank you for being you and for shouting it out from the roof tops huge hugs debx

  6. Tigerz June 22, 2018 at 3:49 pm Reply

    I was prescribed 500 mg Cipro for a tooth infection. After taking the 3rd pill, I was watching tv and I told my husband my hands hurt. He said to turn on a light to see what weasel going on. Turned on the light, my fingernails had all curled into my fingertips. I did not take another pill. They straightened back the next day. I went to the dentist and the Cipro had caused blisters to form in my mouth. I also started popping and snapping when I moved. I had read about tendons rupturing, so I moved very cautiously. I also developed a pain around my right kidney/liver? I’ve had several abnormal liver blood works. Will get another blood draw and an ultrasound soon. That’s my Cipro story so far.

    • Chris June 22, 2018 at 5:24 pm Reply

      I took 60 of those same tablets for my infection and the pain in your liver/kidney area was the same for me. Walking and being mobile helped that pain go away. Took almost 24 months for that to go away. But it finally did. It’s now been almost 3 years for me and my stools and mild stomach upset is all that’s lingering around and my gastric doc told me I could have that for life. But I can say for me VSL3 probiotic has done wonders for me. 2-3 capsules at noon everyday and the foot soaks healed me as well as staying active and sweating and exercise.

      • tammy gyarmathy November 19, 2018 at 11:54 am Reply

        Hey Chris did you have pain in your legs? Arms? If so what did you do for that? I’m two weeks out my legs and arms hands wrists ankles etc hurt .. I can walk but it hurts. Just wondering if this will get worse?

        • Chris November 19, 2018 at 2:58 pm

          Tammy,
          I had pain in my left leg for about 8 months and it finally went away. No arm pain unless I lifted weights which I had to stop early on. I am ok now with it. I am almost 3 years out and still have pain behind my eyes, slightly elevated pulse now(it was high at one point), irregular stools. That’s about it. I am still on VSL3 twice a day and Protonix for my acid reflux. Acid reflux popped up year 2 with eating salads with no dressing and drinking water. I can say the protonix helped settle my stomach and sick feeling. I ended up with an ulcer like 2 months ago. It’s completely gone now. So overall I am at 95%. I still walk 2 miles everyday and driving is normal again. I was a healthy military vet when this happened. 8 months out of retirement.

        • tammy gyarmathy November 19, 2018 at 3:23 pm

          With the leg pain were you able to walk on it?

        • Chris November 19, 2018 at 4:39 pm

          With the leg pain I was still able to walk. The issue I had was trying to sleep with a sore leg that twitched all the time and had an aching pain that would go away no matter how I laid down. Its completely gone now. I would say 99.5% gone after 3 years. I was one of the men that took 60, 500mg tablets.

        • tammy gyarmathy November 19, 2018 at 4:47 pm

          As long as I don’t lose my ability to walk I will be happy! I’m glad you’re healed!

    • Soban November 25, 2018 at 11:08 am Reply

      How are you now?

    • Soban November 25, 2018 at 11:08 am Reply

      How are you now??

  7. Maria nunez June 23, 2018 at 6:17 pm Reply

    Lisa please help! I took cipro for 4.5 days at 500 mg every 12 hours for a uti. I stopped taking it because i developed joint stiffness and burning sensations. It has been a day since i stopped and i feel very nauseous and super thirsty and my skin burns. What can i take. I reached out to a hollistic doctor but none seem available. Please help. I feel like really sick as if i was poisoned.

    • Chris June 23, 2018 at 8:39 pm Reply

      A lot of us have gone through this. It’s not the end of the world buts it’s a pain and could be a lifelong of dealing with some issues. The immediate relief for me was epson foot soaks daily and VSL3. I take 3 capsules at noon a day. That got me out of the itching/burning phases and nausea and colon issues stages. Nothing else beside water. No NSAIDS and now steroids for at least 6 months and if you absolutely have to take antibiotics then you must take them with VSL3. Rest but keep hydrated. Last thing you need is a kidney stone from not eating or drinking right.

      • RaeAnn Peter July 7, 2018 at 12:13 pm Reply

        What about for brain fog?

    • Charles June 23, 2018 at 10:19 pm Reply

      Get a lot of Magnesium Glycinate in you. Lots of fluids.

      • RaeAnn Peter July 7, 2018 at 12:16 pm Reply

        What about for brain fog?

        • methylphenidate or its derivative July 7, 2018 at 2:15 pm

          Donepezil or galantamine.

        • Chris November 19, 2018 at 4:46 pm

          Brain fog has just about gone. Only thing left I have really is soreness behind both eyes but I had two eye doctors do full examinations and found nothing wrong and said it was possibly nerve damage and it could be temporary or lifelong. One thing I forgot to add is that healing has slowed down a lot and I am more susceptible to allergies or pollen now. A simple dog scratch used to take 3-4 days to completely heal. Its been 3-4 weeks now for a couple years now. A simple pimple can last a month. Before it was gone inside a week. So healing is a big thing I have noticed now years down the line that wasnt on my radar in 2016 because I was dealing with a dozen other things. So as things slowly heal you get to see whats left.

        • tammy gyarmathy November 19, 2018 at 5:04 pm

          Did your leg pain get worse before it got better?

    • Jeanne Stewart June 19, 2019 at 5:21 am Reply

      Maria I can’t stress enough to take magnesium. I took 1/2 teaspoon three times a day. You can’t overdose on magnesium. If you get more then your body needs you’ll just end up in the bathroom and expel it that way. I found a nurse who told me how to heal from this fluoroquinolone toxicity. And yes I felt poisoned. Also you need to dose yourself with glutathione. This nurse told me that I needed to heal from the cellular level and Glutathione does this. Glutathione is expensive but I was willing to break the bank to be normal again. I’ve always been very active. An active Y member, swimmer, rollerblader, dancer. You name it I did it. I couldn’t do any of it. I was nearly wheelchair-bound but I didn’t give up. Now I’m back to the Y. I even teach a Cardio drumming class. Everything that I took worked. She told me it would take 3 to 6 months possibly and it took me seven months. I had it so bad I couldn’t even roll over on my side at night to change positions. My legs hurt so bad I would put them on pillows to elevate but I just couldn’t get rid of the pain. I loved my life and my children but I told God he’s going to have to either show me a way to heal tell me what is wrong with me or take me early because I can’t live like this. And that’s when I thought, “ oh my gosh, is this due to the antibiotics I took?” I then found this site on line how to heal from fluoroquinolone
      ( cipro ) toxicity. This nurse said she could not stress more on the three most important things to take to heal. Magnesium ( trace minerals ) glutathione, and bone broth. Along with these I took krill CuraMed, vitamins B, C,D & E, nobenzyme/neprenol (enzyme) ubiquinole.

      • Jeanne Stewart June 19, 2019 at 5:30 am Reply

        Also a high multiple vitamin. I took “Beyond Any Multiple” To get magnesium in your body an additional way you can also use magnesium bath flakes or Epson salt in your bath. I took many baths

    • lisalisa12years August 3, 2019 at 6:27 am Reply

      I’m 13 years out the burning in legs and pain when touched is usually a type of neurological/ neuropathy after a neurologist told me to take Gabapentin I refused horrible side effects. I searched and found b6 and Biotin helped. I took a lot of subligual. B6 and Biotin in coconut oil. That pains gone if I feel it coming back. I take the biotin and b6 again. Please get blood tests to see what. Vitamins and minerals you’ve been depleted off. That’s a great start. I probably wouldn’t have suffered so much had I replaced my body’s reserves right away. Best of luck to you.

  8. Betsy July 4, 2018 at 5:06 am Reply

    Thank you for sharing your story. This is frustrating. Your offering of hope is the best gift I could receive right now.

  9. Naina July 26, 2018 at 3:26 pm Reply

    Hello Lisa..I think my liver hurts..was checking to see what everyone took to detox the liver…thanks

  10. Vicki August 1, 2018 at 7:03 am Reply

    I took 2 cipro pills the beginning of January for a uti, after the 2nd I felt like I was hit by a bus. I called the pharmacist to see if it could be from the cipro. He told me he didn’t think so but to call my dr. Dr. said quit taking cipro. The next day the bus hit my and decided to run over me a thousand times…I was in unbearable pain, couldn’t walk, think, barely talk. My daughter took me to The ER. Nurses thought immediately I was septic, Dr. was an incompetent fool. He gave me morphine then said you seem better go home. Next day went to my dr, he didn’t know what was wrong with me, he sent me for blood work and made an appointment for Rheumatologist. Blood work came back ok, I was getting no better. A week later I called Dr crying I was in soo much pain, I was told….”he won’t see you, he can’t do anything for you..go to the Rheumatologist. Mind you he had been my dr for 30 years!!!
    A week before I finally got in to rheumatologist I came across your story, I decided to take the advice of seeing an acupuncturist. I agree he save my life! Before I went in I could not open the door, buckle seatbelt, lift a glass.. I walked out stopped amazed I open the door without crying I buckled my own seatbelt that day.
    I was still in a lot of pain however not as much as I was. I went to my appointment for rheumatologist she told me it was a coincidence it had been 7 to 8 weeks that’s when I would been feeling better anyway. She also sent me for more bloodwork wanted to give me steroids I refused. Every time I see her that’s what she wants to do she begs me to Let her give me steroids I refuse. She doesn’t know what else to do for me.
    I am going on seven months of pain every day, nobody knows what to do, the end of the day my son has to walk me in for my car and carry even my purse because by then I can’t carry nothing. I am so frustrated at this point I’m about willing to try anything to get my life back.
    Oh I forgot to say the doctor that gave me the Cipro had also put me on prednisone at the same time so it made the chances of getting a reaction so much more.
    A few things that have helped me a little…deep tissue Massage (with this for 6 days, if I held perfectly still I would have a moment of no pain except where I was touching something…and as you can imagine a moment of no pain felt absolutely wonderful), and having someone squeeze a part of me (example: I’m talking squeezing my wrist so tight they turn purple…when they do this it doesn’t feel like they are squeezing at all but it Dissipates the pain a little.
    I’m looking into going to the Cleveland clinic now to see if there’s anything they can do, but by reading all of the replies to your post I’m very doubtful.
    I just want my life back!!! And My son needs to be able to live his not having to make sure I’m ok, he has to open my medicine bottles and water bottles for me, walk me. .etc..it’s my job to take care of him not him take care of me.

    • Bob August 1, 2018 at 5:49 pm Reply

      Vicky where do you live.

      • Vicki August 2, 2018 at 4:23 am Reply

        New York ..around Buffalo area

        • Bob August 2, 2018 at 6:51 pm

          I don’t think it’s worth your time and money to go to the Cleveland Clinic. My daughter has Lyme and they can’t help her.

        • Jasmi August 3, 2018 at 12:31 am

          For Bob

          Jack Kruse has something that seems to be very simple Rx for Lyme: 1. Course of antibiotics (tetracycline, not floxy), 2. Leptin reset 3. Some droge for lowering cholesterol to take out of the body toxins that died bacteria left You can look for your self on net.

    • Vicki August 8, 2018 at 11:48 am Reply

      I have another question..when the pain is horrendous if I wrap area very tightly (tourniquet tight)it brings pain down a little. Does this help anyone else?

    • Chris August 28, 2018 at 9:04 pm Reply

      Sorry to hear Vicki. When the doctors can’t find anything wrong you know it’s the side effects. It’s the Cipro. We all have a tolerance and yours was a day. The only way to get back your life is to stay active, drink lots of water and push those probiotics. There is no cure. That worked for me for 2+ years and last weekend had a relapse and got sick again same old symptoms from 2 years ago but I am managing them better but I am going back to my doctor Friday. I want an ekg and labwork. I will f/u with you guys when I get done. It sucks being sick again.

    • Vicki August 28, 2018 at 9:06 pm Reply

      Update on Cleveland Clinic…they refused to see me because I’m already seeing a rheumatologist.
      And I’m still no better.

  11. Kita Parker August 28, 2018 at 8:11 pm Reply

    Thank you for helping me make sense of how Crazy I’ve been feeling. You are a gift.

  12. Chris August 28, 2018 at 8:55 pm Reply

    Well after slowly healing the past 2 years I had a reflash 2 days ago. Sick to my stomach, eye pain, heartburn, brain fog, heat flashes etc. Good thing is I am still on probiotics and back on protonix for heartburn. After 2 days I am getting better and have a doctors appointment on Friday. I honestly now think this will last for the rest of my life. It sucks but at least it’s not cancer but being sick again sucks.

  13. Barrington Allaby August 31, 2018 at 9:10 am Reply

    Hi Lisa-I read with interest about your experience with Ciprofloxacin as I am taking it (14 days) myself. Glad to hear that your health has improved and I hope that you are feeling much better these days.I was wondering if you still have the large,black floaters in your peripheral vision? Have a great day!

    • Bob August 31, 2018 at 2:47 pm Reply

      Unless your life is in danger if you don’t take cipro I would urge you to stop taking it immediately and start taking magnesium and calcium supplements. You are risking your health for the rest of your life.

      • Chris August 31, 2018 at 2:59 pm Reply

        Absolutely agree.

      • Julie May 17, 2019 at 10:02 pm Reply

        I was given Ciprofloxacin 500 mg daily x 10 days for a UTI on April 12th. The following night pain was noticeable on the top of both feet and tingling sensations started within 12 hours. Walking was painful and I became weaker, feeling totally wiped out by the third day. By then I was wondering if this was related to the Cipro but knew going back to my doctor would be hard (no insurance and limited income). So I decided to continue taking the Cipro. Now I’m thinking that was the worst choice! The pain spread up my legs, into my back, my anxiety level skyrocketed from time to time, and my vision became blurry. It’s been five weeks since these symptoms began and they’re not going away. Can somebody please tell me if they think what I’m describing could be toxicity to Cipro.

        • Jeanne Stewart July 18, 2019 at 4:48 am

          Julie yes it is from the Cipro. This is Jeanne. Scroll back and read my story on how to heal from this horrible side affect. I posted in June 2019 shortly after you posted your story. The FDA has now blackbox Cipro. Can you believe that? We’ve been there guinea pigs. I have healed completely. It took seven months to heal following advice from a nurse that I found online that told me how to heal from this Cipro toxicity. Or, fluoroquinolone toxicity. Don’t ever take any anabiotic’s from the fluoroquinolone family again. No one not even a doctor can understand the pain that a human being goes through after being poisoned by this anabiotic. The pain in my entire body was so bad I just wanted to die to get away from it. I love life, I love my children but I could not live with the pain. Keep up the faith and hope and you will heal along with your supplements. You must take your supplements. I spent a lot of money but it was worth the healing. This nurse told me it would take 3 to 6 months but it took me seven.

        • Chris July 19, 2019 at 1:50 am

          Keep in mind that everyone’s body is different and some “floxed” patients are at year 6 and year 12 and still not completely healed. I am at year 3 and have done everything and still have the brain fog and behind the eye pain which my ophthalmologist and pcm said is nerve damage caused by the Cipro. I just recently saw my gastro doc because I went back to the ER with a relapse at year 3. He told me a lot of things I recorded. He says I am way ahead of his year 4+ patients. He has treated dozens and dozens of patients with this. The behind the eye pain flared up a few days ago and hasn’t been this bad since 2016. I had a dizzy spell and had to sit down. I had 3 of those over the past 3 years and all related to nerve damage. Anyway I hope she is one of the lucky ones and heals in 12 months or sooner. Some of us aren’t so lucky.

  14. Laura September 5, 2018 at 8:53 am Reply

    Thank you for your words of encouragement. I’m almost two weeks out after a 10 day cycle of cipro that left me weak in all my muscles. Even lifting my arms to wash my own hair is an effort. It’s like I have tendonitis in every joint. I don’t do sick very well and this is killing me. I had been taking inhaled corticosteroids for many years before taking this drug. The doctor who prescribed it obviously did not look at the contraindications. I’ve cut the inhaler in efforts to combat this and am taking a million supplements including magnesium and glutathione. Will add iron to the list per your suggestion. I don’t see any improvement so far but have only been on the supllements 3 days. I still have hope.

  15. Vicki September 10, 2018 at 4:03 pm Reply

    My Dr. now wants to put me on Duloxetine for the pain. I’m so scared to take any medicine’s now ..but there are days I can’t walk into the house after work without help…has anyone tried this medicine? Did it help? I’m becoming desperate for any relief..

  16. Julien September 11, 2018 at 7:22 am Reply

    Hi Lisa, great to read your story – back in April 2015 i was also floxed and it helped me to read about recovery – i recovered and thought it was all over – but stupidely i took eardrops containing NSAID a few days ago, which is 3,5 years after initial floxing – and all the symptoms are back, still less strong – in 2015 i had tiredness and achile akes and tendons akes everywhere; this was all fully recovered i would say 18 months after – however, i now remember that before taking the NSAID, i felt abnormal tiredness : 1 month of vacation this summer had not me feel re-energized. Were the floxing effects coming back ? anyway, getting back the supplements and taking rest and hoping this recovery will not be too long. Thanks for your website. it helps to not feel alone

  17. Kimberly September 26, 2018 at 11:27 pm Reply

    Hi how are you , I recently got floxed and now I feel like I have either a uti or bacterial vaginosis . . I’m scare to even take any other antibiotic for this . But would it be safe to use the gel (Metronidazole)? Or what would you recommend I do ? Thank you.

  18. Shannon October 27, 2018 at 10:22 am Reply

    I am in the throws of it. I feel like I am getting worse not better. I rate my pain a 10/10. What did you take for Pain? I am trying to build up the courage to even take supplements. I don’t know if this is the right spot to ask these questions but I feel hopeless. Trying to see an a cupuncturist today possibly.

    • Dee October 27, 2018 at 10:47 am Reply

      Shannon, when did you get floxed? Just wondering how far out you are in recovery? For starters make sure you are taking a good form of Magnesium!! Liquid mag is best although is a little pricey. You can look at Angstrom Minerals brand or ReMag by Carolyn Dean. Also taking Epsom salt baths or foot soaks. And rubbing Magnesium oil on sore muscles and joints. Many floxies take 600-800 mgs a day of mag but you could start slow with 300-400 to see if it gives you diarrhea. Although the good liquid kind should not cause diarrhea as much as the pills might (for some people). Also eat a clean diet and eat only antibiotic free meats. Lots of organic (if possible) veggies and fruits. Some do better with low sugar, no gluten, dairy etc. drink lots of clean fluoride free water. You can ice site areas also. Try to slowly be active and walk, move around etc if your joints allow. There are some natural things floxies take for pain but maybe start with those things depending on how recently you were floxed???

      • tammy gyarmathy November 19, 2018 at 9:39 am Reply

        Are you recovered? Can we chat?

        • Shannon November 19, 2018 at 10:13 am

          I was floxed in May. Worked until August. Feel like I am getting worse. I will get that magnesium today. My muscles are wasting more. I don’t feel much recovery. Thank you.

      • tammy gyarmathy November 19, 2018 at 11:35 am Reply

        Dee have you fully recovered?

        • Dee November 19, 2018 at 11:58 am

          Tammy, I am 17 months out and about 85-90% recovered. I still have a handful of lingering symptoms. Some insomnia and early wakeup but way way better, mild anxiety, morning GI issues and the most annoying is pulsating tinnitus although improved from the first several months. Time seems to be the healer in my opinion. I still take Angstrom Minerals liquid Magnesium and quite a few supplements. I also have been on homeopathic treatment since I was first floxed. I am a bit older (62) so I think my recovery time will be longer then those that are younger. In my opinion It just takes time and taking extra good care of your body, diet, supplements, activity/exercise within your limitations and most of “patience”!! Being positive and believing you will heal is a plus but I know it is hard not to worry about this whole ordeal but you have to try your best to relax and stay positive.

        • tammy gyarmathy November 19, 2018 at 12:28 pm

          Dee did you have tendon issues? I’m about two weeks out my legs ankles arms and wrists hurt. I can walk but it hurts and I can use my arms normally most of the time dispite some weakness.. I am just scared it will get worse or ill lose the ability to walk … i started supplements the day my leg started to hurt I soak in epson baths daily and use magnesium lotion as well.

        • Dee November 19, 2018 at 1:00 pm

          Tammy, yes…..in the beginning my tendons and joints were sore, achy and weak. Especially my ankles and knees. I had a lot of muscle wasting too. I lost 50 lbs in about 4 months. I also had pherphial neuropathy mostly in my lower legs and feet which were tingly, burning and numbness. I still get mild neuropathy in my feet and toes but it is improving. I could walk but I was sore and weak. It is pretty much back to normal now but I do think my tendons and ligaments might be a little weaker? I was at my worst for the first 6-7 months then I “slowly” improved. I still have cycles of symptoms so am still in the process of healing. Everyone is different in their healing progression and recovery time. You are still very early so try to stay calm but know that it may take time and you could feel worse for awhile but most of us will come through the worst to the other side in time. Try to stay positive and accept where you are for the moment. Take one day at a time and take good care of yourself. Don’t compare yourself to yesterday but as you start to see improvement compare yourself to a month or so before. You will then see progress! You might be lucky and have a speedy recovery so anything goes but also know that it may take longer then you would like so be patient with it.

        • Lisa M November 19, 2018 at 12:56 pm

          I was floxed in 2007. I had absolutely no idea what was wrong, actually was in the best physical shape of my life at 45. Started with left shoulder pain. I didn’t know it was from Levequin until 2011. I now have torn tendons bilateral shoulders, knees. Progressive neuropathy heart valve and heart damage. Chronic fatigue. Anxiety. I used everything possible to heal. I was feeling better, I quit smoking 5 years ago and blew up, full of water. That’s when heart valve regurgatation was found. Then 3 years ago left ventricle pumping at 65%. Floxie Hope gave me hope. I started Mega dosing vitamins and minerals blood tests showed I was deficient in almost everything.. I have horrible microbial issues. After 12 years of fighting and still getting more side effects it’s extremely challenging. I took a total of 66 , 750 mg of levequin. Oddly it seemed to effect me after I stopped taking it. 2007, 20008, 2009. That’s when my left shoulder began to tear. I had shoulder pain from a previous job, it was never torn only needed to rest. The inflammation always went away. I’ve learned so much from here and on my own hit and miss of trying things. I had sores on my legs that scarred me. So many things that happened and went away. The most serious issues have stayed. I’m not getting better because I have no desire to get moving again. It’s worn me out. Twelve years of THIS. I’m very angry because I still see others getting hurt. I never tried to get into a lawsuit because you weren’t allowed to talk about it. The people who did get settlements because they didn’t speak up about this medication disaster – Dr Jay S Cohen. RIP
          I believed they were greedy people. They should have warned others. Then perhaps I would have been able to avoid this horrible tragedy, I would have shared my knowledge with others as I have been doing since I’ve learned what happened to me and millions of others Worldwide. Wishing all the best possible recovery. I’m just tired, I will continue to fight for as long as I need too. Taking Sovereign labs Colostrum got me back on my feet within 4 days my knees and shoulders stopped hurting as much. Magnesium is good for everyone.85% of the population are deficient. Get a full blood panel of all vitamins and minerals. Go from there. You’ll have good and bad days. Looks like newly floxed were able to start healing faster because of sites like this. Thank you Lisa. Still wished none of you were given these poisons especially after being blackboxed in 2009. For tendon injury. Oh my left ankle gives me sharp pains here and there. Both were all swollen and distorted. Finally going back to as normal as possible. Wear those elastic ankle supports. Help from rupturing your ankles. ✌ and best possible health to all.

        • tammy gyarmathy November 19, 2018 at 1:58 pm

          Dee

          So it took 6-7 months for your legs to feel better? Did they get worse or stay the same

        • Dee November 19, 2018 at 2:10 pm

          Tammy, my joint and muscle issues cycled. I had good days and bad days. If I pushed too hard during the first few months I would feel it and be more sore. Try not to give yourself a timeline as you will most likely cycle. When you have a good day push yourself a little more….when you feel more sore rest a little more. No matter how I felt I walked everyday for at least 30 min. It was close to a year before I felt like my legs were getting more back to normal and able to push more. They have gotten better every month since then.

        • tammy gyarmathy November 19, 2018 at 2:36 pm

          Dee I guess I am just scared I’ll end up in a wheelchair

        • Dee November 19, 2018 at 2:58 pm

          Tammy, I understand. I was scared too and worried all the time. I still do worry but not very much now. It is most likely that you will recover and heal! Most floxies do get better and improve and carry on with their lives. Yes there are those that suffer and don’t seem to get better and my heart breaks for them but let’s think positive and believe in your heart that you will recover. It takes time and being scared is part of it. Try not to panic. Try and stay calm if you can and take care of yourself. How much FQ did you take?

        • tammy gyarmathy November 19, 2018 at 3:00 pm

          Dee

          I took 8 pills of 500mg day five my calf and ankle started to hurt next day my arms from shoulder to fingers … little blurry vision …I stopped taking it as soon as I felt pain in my calf. Been 16 days since last pill and onset of symptoms

        • Dee November 19, 2018 at 4:31 pm

          Tammy. At least you stopped after 8 pills when you started feeling symptoms so it wasn’t super high dosage. There is more potential I think for higher doses to make recovery more challenging. Of course it is different for everyone but hopefully you caught it before too much damage took place. I took 7 500 mg pills of cipro but like I said everyone reacts differently regardless of dose. But my thinking is the fewer pills the better chance you have so again “let’s think positive”. I’m sure you have a great chance to fully recover but unfortunately it does take time so be gentle on yourself. Hang in there and be patient and you will get there. “Most” floxies get better with time!

    • tammy gyarmathy November 19, 2018 at 11:34 am Reply

      Have you not taken any supplements? What are your symptoms?

      • shannon November 19, 2018 at 11:39 am Reply

        i have been afraid to take anything. i have chelated magnesium here. i have sporadically taken collagen and probiotic. i have to take gabapentin because the pain is horrific. i have been on so many sites i get confused on what to take. so liquid mag is a must correct? i will order today. what else?

        • tammy gyarmathy November 19, 2018 at 12:13 pm

          I was Floxed two weeks ago I started taking magnesium, q10, vitamin d, amino acids, probiotic and and Multi vitamin… my symptoms are calf, thigh, ankle, wrist, hand, elbow and shoulder pain. Forearms abs biceps burn as well. I can walk but it hurts and I can use my arms sometime they hurt sometime they don’t..

        • jasmina November 19, 2018 at 2:06 pm

          Tendons issues, peripheral neuropathies, weight loss, depression, frozen shoulder, tinitus, eyesight worsening, GI problems… I finally met MD who told me “no, you are not imagining and you are not crazy, those antibiotics are extremely neurotoxic and nefrotoxic”. After 3 years of levofloxacin (and 5 after cipro) I think that I have figure it out… Fluorine in those “medicines” bounds to a collagen where iodine supposed to be. That’s why first to hurt are peripheral nerves, than tendons. Body is smart, it tries to save the brain and heart. Unfortunately, if you get more F to your system there will be no more place for junk in the periphery. Electric currents in tissues are distributed, hence the pain. After iodine, magnesium is depleted next. I have been using magnesium topically since January. I have started Lugols iodide solution lately. When I experience pain in my small joints, I put some Lugols solution. Pain stops. I would like to know would it help anyone else. I am trying to eat food with more iodine. Off course, it is important to load up selenium intake with it. I read somewhere that takes up to 3 years for F to get out of the system if you stop taking it with bad water. I think that recovery depends on someone’s age, the older you are, the damage is more likely to stay in higher percentages but it gets better, just have to realize you are not crazy and STOP wasting time and money on specialist. Restore your sleep with melatonin, walk outside (holidays in mountains and pine forests helped me – back than I didn’t know why), swim outside on sunshine, drink good water, change your diet (no sugar, no gluten, good fats), plenty of magnesium chloride on skin (try also with iodine but cautiously, start with small concentration and low dose), amino acid glycine and electroacupuncture. B6 in moderation. It can disrupt hormones. I was taking (Millgama) 200 mg, recommended by another useless neurologists and my progesterone rose above normal leaving me with mastalgia for 2 months. Needless to say, another thing I figure out my self. I even got advice for another useless specialist to put some progesterone cream. Live and learn. Everything is correlated to your body mass.

        • Lisa M November 19, 2018 at 1:00 pm

          I have progressive neuropathy and numerous other issues. I refused gabapentin. I take B-6 and Biotin it actually takes the nerve pain away. I built it up. I sometimes take the biotin in coconut oil just because I chew the capsules. 30 years ago my surgeon for carpal tunnel told me to take B-6. It really helps the body’s nervous system.

        • tammy gyarmathy November 19, 2018 at 2:25 pm

          Jasmina

          How long before your legs started feeling better? I’m 37 not sure where that leaves me as far as recovery time?

        • jasmina November 20, 2018 at 12:37 am

          Tammy

          I hope, since you are 37 that your chances are pretty good if you had good lifestyle “visa vi” smoking, drinking… I hope you still have enough stem cells to reverse damage. The first two months after Levo I had pains all over, feet and tendons in groin area at that time were the worst. Intuitively I have changed the diet like I was diagnosed with RA (I taught I was, by CRP never rose above normal – to be truthful, 3 years after my CRP is 0.1 – some would say it’s great – but I still have from time to time shooting pains in feet and groins due to pudendal neuropathy that come last after long and painful miscarriage). Back to track… With diet and every night salty baths I started to feel better, but suddenly problems with shoulder come back, very painful frozen shoulder. I think that was my bad… I was working really late on my PC for months, sitting literally half the day. Didn’t know for problems with blue lights. It took another six months to get better with physical therapy. After 15 months I was on 90% of my previous self. I started LCHF/paleo diet and got more energy. My advice, stay off PC and modern technology, limit yourself harshly.
          Do not get angry with your self. You can not take back the time. You will get depressed, it goes with that poison. Try to be proactive — feed the brain properly with sleep and good food so that depression goes away quickly and spread awareness to people you know and especially to any MDs you know. I do that. That level and versatility of pain I wouldn’t wish to a biggest enemies.

        • tammy gyarmathy November 20, 2018 at 5:54 am

          My lifestyle wasn’t great but I didn’t drink in occasionally smoked but habe quit since all this started.. taking all my supplements and changing my diet… did a bunch of blood work and good news is my liver is already doing much better numbers were high last week and now back to normal range… arms hurt less so I am seeing these things as improvements!

        • jasmina November 20, 2018 at 10:02 am

          Tammy
          Feet still hurt but bearable. Sometimes I “feel” them after getting up, sometime I don’t. Occasionally I have shooting pains. The worse will pass in a three to six months depending on tendon. Get yourself comfortable walking shoes and push yourself into regular outside walking. Swim outside. Find a good massage therapist, buy TENS. Have discipline. Do not ride a bike. It made my pudendal neuropathy horrible for months. I am back on my bike but I ride standing. Avoid sitting especially on hard and cold chairs. Walk.

        • tammy gyarmathy November 20, 2018 at 10:14 am

          I just ordered some ankle braces was thinking about getting heel supports! I walked a lot yesterday and today by butt and thighs are sore lol. But arms feels pretty good today.. my liver is already improving as well

        • jasmina November 20, 2018 at 10:39 am

          Hang on. And try that Lugols solutions on your ankles. I am convinced that you’ll feel the difference.

        • tammy gyarmathy November 20, 2018 at 10:41 am

          What is that

        • jasmina November 21, 2018 at 1:51 am

          Buy it in locale pharmacy, I think it must be cheaper than on Amazon (it is potassium iodine and iodide salt). Transdermal use is safer, as it is for magnesium chloride. You need both. Your gut bacteria is destroyed by antibiotics any way. You must eat right (bone broths) to mend it to be capable to absorb nutrients from food again.

  19. Claude roy November 19, 2018 at 12:39 pm Reply

    Keep calm is very important
    I will be difficult but you will survive and comme back to 95 %

    I was badly hurt by ciprofloraxin
    But now 3 years after I do 15 miles biking and 4 miles speed walking etc etc

    Faith is the key
    Every day do minimum 30 minutes in the morning and the afternoon of walking

    If to difficult ask someone to help you
    Claudejacquesroy@post.harvard.edu

    • Lisa M November 19, 2018 at 1:10 pm Reply

      Exercise is a good thing. This poison causes so much damage. I’ve been fighting it for 12 years. I get tired of the regime and stop. Knowing that I must continue to keep living. Having issues with not wanting to do anything at all. I have paperwork piled up from 2012 that’s when everything hit me hard at once. I had fought it off from 2007. 5 years without knowing what was going on. I’m extremely ANGRY because people are still being hurt by this poison. It should have stopped in 1996 when they knew, then in 2009 the black box warning to Dr’s. THAT should have stopped it. Still unbelievable to see so many people being hurt because of the LAZINESS of their Drs to check on updates for bad side effects reported. Do everything possible to get better. Don’t let it control your life. I’ve been in a rut for awhile. I’m getting out of it. Knowing I’m only hurting myself more by not following the best possible recovery plan for me. Wishing you all the best possible recovery plan for you.

  20. Berna November 24, 2018 at 4:32 am Reply

    Hi lisa, i used two times a day 500 mg cipro two months ago. Since then i have low fever. 37.8 c max. I think it is due to cipro. What do you think and what can i do to recover?please advise. Thanks.

  21. Lauren Aparicio December 5, 2018 at 12:19 pm Reply

    I am in tears reading this after I just got off of taking it for three days due to having severe Travelers Diarrhea. I had violent nightmares, suicidal thoughts, stomach pain, headaches, and everything you have listed. And now Im at my gyno because Im experiencing the worst period of my life. She told me she had serious side effects from taking Cipro in the past. I am so upset right now and don’t know what to do. Very scared and emotional…..i feel like i was poisoned.

    • Bob December 22, 2018 at 1:24 pm Reply

      You were poisoned. Don’t panic as it won’t help. Lots of info on this website. The first few months are the worst. Take magnesium and start on lots of vegetable and fruit juices, especially celery juice.

  22. NY Resolution to Heal My Gut | Floxie Hope December 29, 2018 at 8:05 am Reply

    […] Lisa’s Story […]

  23. Eugene Ramey January 1, 2019 at 2:06 pm Reply

    Lisa, thank you for sharing your story. Your story, as well as many others on FloxieHope, has given my the strength to get out of my depression and finally see hope. I am newly “floxed” as of 12/12/2018. The only symptoms I’ve gotten so far have all been some minor neuropathy and musculoskeletal (pain in legs, calves, tendons, arms, and hands). I just saw Dr. Mark Ghalili in Los Angeles and he recommended a whole arsenal or supplements which I plan on taking. I am praying for a speedy recovery and I hope to post my recovery story on here in the future. Much love and support to anyone poisoned by this drug.

    • Adam January 6, 2019 at 6:59 pm Reply

      Sorry to bother you Eugene, but I’d be interested to know what supplements he recommended. If you wouldn’t mind sharing. I’m 4 months out and looking for any and all advice.

      • Eugene Ramey January 8, 2019 at 8:46 am Reply

        Hi Adam,
        I’d be more than happy to share my list of supplements with you. Please feel free to email me at: eugeneramey88@aol.com. I put all the supplements On a spreadsheet to help me with the dosing. I just started taking the supplement so I am still in the experimentation stage. I’ll be looking out for your email. God bless and happy healing!

        • Claude roy January 8, 2019 at 8:58 am

          Be aware of taking to many supplements could be worse than good

          Time and meditation are the bests supplements for the first 18 months
          Avoiding all fluoride

          After 18 months slowly improve fast walk and bicycle
          Last week I did 25 miles in bike

          I took Cipro 3 years ago

        • Dee January 8, 2019 at 9:12 am

          Claude Roy, Are you fully recovered now?? If so, how long did it take? Any helpful tips on what helped you recover?? I am 18 months out with a few lingering symptoms. Hoping like crazy that I will “fully” recover!! Thanks for any helpful advice you can maybe give me!!

        • Claude roy January 8, 2019 at 9:26 am
    • Rob March 1, 2019 at 8:15 pm Reply

      Hi Eugene,

      It seems like I am having similar symptoms. I am 39 and took 5 days, twice a day 500mg. I am a week out and notice hands especially are pins and needles, or almost nerve like pain. Forearms, shoulders and back would be next and legs aren’t too bad but notice twitching and the odd aches. Neck is also quite stiff and achy. I have not obviously been diagnosed as being floxed, but my bloodwork and urine is immaculate…so why do I feel terrible!!?? Doctors keep saying I have a stomach bug or digestive issues but I really wonder. I do play sports which is food to stay active but do feel quite weak and tired lately. Supplement wise what may help this??

    • Tony D March 15, 2019 at 9:46 am Reply

      what are the supplements that were recommended? I took cipro last week, and after the second dose I immediately got side effects. They went away, but I ended up tearing ligaments in my big toe after a road trip

      • Tony D March 15, 2019 at 9:46 am Reply

        never mind just saw the post with the email. will email you

  24. diegofrancoferreira2013ylfaer January 4, 2019 at 6:09 pm Reply

    Took one pill yesterday, with one pill of NSAID. Feeling tingles through the body, anxiety and heat waves. Will stop this thing and take some Magnesium to slow down the poisoning.

  25. Chris January 12, 2019 at 8:01 am Reply

    So I went to my ophthalmologist and was seen for my yearly eye exam little did I know he also is an ER doctor and knows a lot about Floruquinolones and the damage they do to the body. He has treated dozens and dozens of patients. He has been working with a lot of them for over 6 years. All were “floxed”. So my appointment started at 3pm and I left at 530pm after an hour and a half of his explanation of everything I went through and still am going through was simply amazing. He literally wrote me 4 scripts for medications to take for any bacterial and viral infections I get over the next few years and call if I need refills.. He specifically told me that I will get really sick or die if I ever get MRSA because the drug Vancomycin has a very bad interaction with Cipro users. He said you will die or be in the hospital for a few weeks. So that was news to me. He typed out a list of all medications I have to avoid for the rest of my life and he said he will let me know when more are added. I went over my scopes with him and he said that although everything was normal which is what we want the blood in your stools was due to permanent damage to my small bowel. He said the Cipro did irreparable damage and I will never be 100% again. He said if he could cut my small bowel open I would see cheese grader damage or shredding on the walls as if a Bear had scratched the insides of the small bowel. I was like ok. I kinda knew it might be permanent and he confirmed it. It was a wealth of knowledge. So he said the Cipro toxicity term we don’t use anymore…. He told me I have a modified version of Pseudomembranous colitis similar to Crohns but minus any diarrhea. I have normal stools or as close as I am going to get and will have it for life. He said plan on it. Less than 1% heal to 100%. He said you can get up to 95%. So I was ok with that. Bright blood in my stool which isn’t bad now is my new normal. That was hard to believe but even as scar tissue in the small bowel is formed stool passing through can tear it again and again. Stool softener and milk of magnesia he said will help and makes it much easier. I went from a lot of blood to now it’s like an finger nail amount once every 4-5 months.. I also told him I feel sick 3 out 7 days a week and that’s 3 years after my last Cipro tablet. He said that will slightly improve over the years and it has. He talked about diet and exercise which I do 7 days a week. Added a multivitamin and continue my over 100 billion probiotics. Covers 8-9 strains and to take them for life now. I have to cut down on the cardio to 3-4 days a week and continue the diet. I told him my issues with more and more sensitivity to foods and drinks. He said well as we age that list grows and grows and will never be normal again and my Cipro issues speeded up that process. So a lot of things I knew from my other doctors and being a medic for 20 years in the military so he put it in the best layman’s terms. Every question he had a thorough and complete explanation with graphs from his other patients on things they tried and things they changed. What worked and didn’t work. The last things we talked about was some other antibiotics that are worse than Cipro and levaquin and to be glad I didn’t get sick from those drugs. He said they are 10Xs worse than anyone being floxed. I forgot the name of the 2 he named.

    So in the end I learned some new things and have a clear diagnosis.
    For folks that want to read about it here it is….

    https://www.mayoclinic.org/diseases-conditions/pseudomembranous-colitis/symptoms-causes/syc-20351434

    I have posted here before and I have improved from a list of issues to now about a few that will linger for life.

    • Shannon January 12, 2019 at 9:39 am Reply

      Can I ask who is this Dr and where do you live? Do you have a list of medications?

      • Chris January 12, 2019 at 3:41 pm Reply

        Hey Shannon,

        I live in Southern California. In the United States. I do have the list. I can forward you what to avoid if yours is severe like mine. I took 60 500mg tablets over 30 days. I can also provide you his info.

        • Shannon January 12, 2019 at 5:11 pm

          Yes please I would REALLY appreciate it. Shannonschneider50@gmail.com.

        • Dee January 14, 2019 at 2:52 pm

          Chris. Could you please forward me the list of medications to avoid too?? Does your Doc feel that this is mainly for severely floxed people or all floxies?? I took 7 500 mg pills of cipro but hand taken over a year in a half to get about 80-85% healed. I still havf a few lingering symptoms and I am 62 so sorry about healing completely because of my age and especially taking future medications!! How long did it take you to mostly recover?? I wish you continued healing. Thanks! Dee
          deegilmore75@yahoo.com

        • Becky Odell January 25, 2019 at 3:05 pm

          Hi! I’d love this list too. Thank you! I live in MA and I’m currently being treated at MassGeneral by allergy/ immunology. (Mast cell issues – thanks, Cipro…) Email is odell3@comcast.net

        • Chris January 25, 2019 at 4:09 pm

          List sent. Email me there if you have any other questions. I provided issues as well with the medications in my case.

        • Vicki Gould February 5, 2019 at 12:09 pm

          Chris could you please send me the list also. I am so afraid of taking anything it would be great to have a heads up of what I absolutely shouldn’t take.
          I am a year and a month out.. Thank God I only took 2 pills otherwise I’d prob. Be dead.
          There are so many days I wish I were but I have children ( adult children now) so that’s not an option. I feel like I’m getting worse instead of better. So many days I can barely walk. I can’t even open a stupid bottle of water on my own anymore. I am right handed and I can’t lift a glass with my right hand most days.
          Sorry, I am tired of hurting and getting very disgusted and discouraged.
          Thank you.
          Vicgouldok@yahoo.com

        • Mike February 26, 2019 at 7:36 am

          Could you mail me with the list too Chris? Thanks kirmix21@gmail.com

    • Chris January 14, 2019 at 5:33 pm Reply

      I sent everyone an email that requested the list.

      This was specific to me after being “floxed”

      • D. August 3, 2019 at 1:49 am Reply

        Chris hi, can I get the list too, THANK YOU so much

        deniz.cizmeci@gmail.com

        • Shaina Powers August 8, 2019 at 6:18 am

          Hi everybody, I’ve been dealing with the repercussions of cipro for a little over 2 months. The beginning was terrible because I had terrible anxiety for 5 weeks and lost 11lbs. A lot of muscle spasms and my knees were stiff and weak. Somewhere in the midst my Achilles started flaring up bilaterally. I had already had one bad one to begin with (why I took this medication is beyond me…) anyway, the spasms, anxiety and knees are much much better! The lingering is Achilles throbbing which is freaking me out. Although I am now able to go to bed without compressions stockings on the past week. My question is… is this progress? I would like to think so but then my worry gets in the way. I take 200mg chelate magnesium as well as epsom salt baths most nights for 20 minutes. I take 2,000 IU vitamin D, a probiotic with vitamin C and Omega 3. Any other recommendations? Tips? Positive thoughts? I appreciate you all xx

    • Sachi February 15, 2019 at 12:35 am Reply

      Dear Chris, Is it possible to send your list, too? I’m wishing you all the best with your healing and thank you for posting, it’s great that someone took the time to collect all of that information. My email is webb.sachi@gmail.com

      • Chris February 17, 2019 at 3:10 am Reply

        I just sent you the email with a couple updated things.

        • Mirka May 23, 2019 at 8:11 am

          Hi Chris
          Could you send me the list of medications, too? I am from Czech Republic in Europe. I was foxed in 7.december 2018,now i have relaps, sorry for my english. Thank you. My email is
          g.horse@seznam.cz

    • Leomary Rodriguez April 15, 2019 at 10:01 am Reply

      Hi Chris,

      Could you send me the list of medications that floxies should not take after being floxed? As well as the socal doctor’s information and any other helpful information you might have?

      Thank you so much, I would greatly appreciate this and I hope you’re healing daily.

    • Maureen Nelson April 15, 2019 at 10:04 am Reply

      Chris, Would it be possible to send me your list as well? I am just at the beginning stages and hope that it doesn’t get too bad. Thank you for the information. mnelson1025@gmail.com

  26. Flox January 14, 2019 at 2:21 pm Reply

    @Cris
    Is it possible to send me the list too?
    Thank you
    Smibo@web.de

  27. Chris January 14, 2019 at 3:53 pm Reply

    Shannon sorry it took me so long on the email. I just sent it out now. So please check your email.

    • Jasmina January 15, 2019 at 5:06 am Reply

      Chris,

      please send me the list, too. I would be very greatful.
      eremicy@gmail.com

      • Chris January 17, 2019 at 8:13 pm Reply

        Sent…

    • Amanda f January 19, 2019 at 3:24 pm Reply

      Me too please manders071@yahoo.com

      • Chris January 21, 2019 at 11:23 am Reply

        Ok sent!

        • Berna January 21, 2019 at 11:40 pm

          Hi Chris, could you please send me also the list. Thanks in advance. berna.meric@pro-line.com.tr

        • Leondra D Lewis March 8, 2019 at 7:11 am

          I would like the list as well please. Thank you so much! nina18_00@yahoo.com

        • Chris March 8, 2019 at 3:05 pm

          List sent.

    • felicia January 26, 2019 at 2:28 pm Reply

      Hi Chris,
      I’m 7 months out and still having significant issues…ESPECIALLY the gut. Could you please share your list.
      Thank you for sharing 🙂

  28. Ellen Hall January 16, 2019 at 9:09 am Reply

    Me too

    • Chris January 17, 2019 at 8:13 pm Reply

      Ellen,

      What’s your contact email?

      • Ellen Hall January 18, 2019 at 12:12 am Reply
      • Amanda January 19, 2019 at 3:24 pm Reply

        Me too please manders071@yahoo.com

        • Ag January 25, 2019 at 2:53 pm

          Chris,

          Could you send me the list too please? I might have to take an antibiotic and would like to know which ones to avoid. Thank you for your help. Agnes790@ymail.com

      • Seth June 9, 2019 at 4:24 am Reply

        Hi Chris, not sure if you’re still checking this thread, but I would also like a copy of the list please. 8 months into recovery (still lots of pain) and wanting to avoid anything that hurts the process. noworries981@gmail.com (the account was created a long time before being Floxed!)

  29. Belinda Marshall January 19, 2019 at 7:51 pm Reply

    I took one 500 mg pill Cipro two weeks ago and am developing pain and weakness in my legs. Are my chances of recovering higher if I only took one pill than if I had taken more?

    • Vicki Gould February 5, 2019 at 12:15 pm Reply

      I think it depend more on your body than how much you’ve taken. I only took 2 pills and it’s been 13 months for me so far. I’ll pray for you to get better soon. Good luck, the people on here are great and have a lot more in site and knowledge about our situation than any Dr I’ve met.
      Vicki

  30. Vicki Gould January 25, 2019 at 4:35 pm Reply

    It’s been a little over a year now for me. Still no relief. Just wondered did anyone get worse (I know it doesn’t seem possible to be worse) at a year mark? Now not i only have my “normal pain” but also now it seems to be in my muscles.

    • Shannon January 25, 2019 at 5:20 pm Reply

      Unfortunately I have had muscle plain the entire time. I go for periods of not having the pain as bad but it has come back some. Remember that our healing is not linear. When we have a good day it doesn’t mean tomorrow will be the same. But we have to believe we are getting better. Have your muscles wasted? Are you taking any supplements? Eating a clean diet? Sending lots of love and light.

    • Vicki Gould February 21, 2019 at 2:36 pm Reply

      Well, I found out I have a large tear in my labrum. I go to orthopedic surgeon march 1st.

  31. mok February 5, 2019 at 8:04 am Reply

    can someone send me the books’The Fluoroquinolone Toxicity Solution and “The Floxie Food Guid”‘ .in our country we dont have the permission to use credit card to buy on internet and i dont have money .please help me this my email
    elmouelhimohamed@gmail.com

  32. Suzanne Van Hecke March 17, 2019 at 5:51 pm Reply

    Thank you Lisa for sharing your story. It does give me hope. I do get overwhelmed with the FB group and I will take your advice to actively take steps toward healing, even if they are small steps, and to look forward, not back. I am a Christian and have yet to follow what I have been taught in this particular situation- you mediate, I should pray. Thank you for the advice.

  33. Tom March 25, 2019 at 7:57 am Reply

    Chris- if you are still there, I would love that list as well as the name of your opthamologist in SoCal. Its been 2.5 years for me and after what seemed like a quick recovery I ended up relapsing after a year. It’s been a neverending cycle of weird symptoms ever since.

  34. Lc March 30, 2019 at 1:40 pm Reply

    Thank you. I am a week after 10 days of cipro and on the floor at the moment
    This story is both scary and up lifting
    I hope I am not so impacted but at least a recovery path exists

  35. Regina April 15, 2019 at 4:07 pm Reply

    Thanks Lisa. Your story is very encouraging. You got well and so will I.

  36. nancy April 30, 2019 at 7:48 pm Reply

    Chris, can you please send me the list too. For my mom who had been on cipro 500 mg for 6 days.

  37. Nancy April 30, 2019 at 7:50 pm Reply

    Chris my email is ngmalang@hotmail.com

  38. Joey M Soto June 1, 2019 at 1:16 pm Reply

    I was floxed as a child. Just turned 44. I will never know how much of my personality, and for that point, life was shaped by this. After 19 years trying to heal with plant based diets and anti fungal regimens, never got to the bottom, until now. So grateful I now know. Saddened by the life I missed. At least I know I am not crazy.

  39. Jonathan Edelman June 8, 2019 at 5:27 pm Reply

    I am 48 years old and I was just Floxed 2 days ago. I only took 5 (500Mg) doses and then stopped since the Dr. told me the tests for Urinary Infection came back negative. (what a joke, I never needed it in the first place) I had blood in urine so Dr. started me immediately. I have pins and needles in my hands and burning on hands, face and feet. Obviously I’m scared shitless that its going to get worse. Anyone have a feeling about whether 5 (500mg) doses is small enough where there is hope? Haven’t had any muscle issues yet, but obviously I have no idea where this is going. Burning came on stronger today. Don’t know what tomorrow will bring. All I can say is that I am so grateful for finding this web site. All of the info on the web said that the neuropathy is permanent. I would love to hear from anyone that had success in getting better with the neuropathy. How long does it take before symptoms improve? I am taking most of the supplements listed already and am thinking about adding alpha lipoic acid since it helps diabetic neuropathy. my email is jedelman@pdiconnected.com. Would love to hear from anyone who can give advice. Thanks to all of you. Really need your support.

    • Mike June 26, 2019 at 11:32 am Reply

      Peripheral neuropathy is not necessarily permanent. I suggest researching it more. The thing with it is what the underlying cause is and treating it. For something like getting “floxed,” if you stop taking it and get peripheral neuropathy, it’ll likely heal over the course of months.

      When folks have recurring, chronic issues like diabetes or physical trauma from something that would sever the nerve, that’s a bit more involved. But based on the stories from folks here and what your situation is, it seems it lasts for a bunch of months and gets better.

      Peripheral nerves have a great ability to heal.

      • Jonathan Edelman June 29, 2019 at 1:02 pm Reply

        Thank you so much for you kind efforts in helping me we the hope of a recovery. As I’m still in the early stages, I am battling not only what I am currently experiencing, but the potential for new symptoms to emerge in time. But thanks to this web site and people like yourself, I hold onto the hope that one day I will move beyond this nightmare and back to a happy way of life. People like yourself are truly a blessing in what has to be one of the darkest periods of my life. Thank you! God bless you.

        • lisalisa12years June 29, 2019 at 3:17 pm

          I’ve been diagnosed with progressive neuropathy so yeah I’m just going to get worse or stay the same. I waa given Gabapentin which went right in the trash. That burning pain like bugs crawling inside your skin biting you relentlessly. I found by taking b6 and Biotin it helps nerves naturally. I Mega dosed myself until the burning went away. Than I take it a few times per week to keep the levels up in my body. It’s works for over 7 years. I was floxed 13 years ago and suffered through a lot as most of us have. My ankles didn’t rupture but the side and top tendons of my ankles swelled up severely to the point they hung over the sides of my sneakers or shoes. They’ve finally gone down after several years. I wear elastic bands over my foot they cover the Plantar fasciitis it just might help you from developing the problem such as I did prevention is better than trying to cure it. My ankles will NEVER be the same. Best of luck to you on a journey none of us chose to go on. One day at a time. Understand this also makes us lose patient. It effects us all in many different ways. Hoping your able to slow or stop things from developing. I had no idea what happened to me the first FIVE years even back then there wasn’t much information to help. Thankfully I found ” Floxie Hope” it gave me so much information about so many different things. I’ve had set backs when I just get fed up with it all. I than restart what I know will help me. I’ve just had a CT scan of my chest abdomen and pelvis. I’ve been getting out of breath on little exertion. I have a scar on my left lung. In the upper corner also my spleen levels are really high ? I’ll see my Dr this week. No idea what’s causing this. I’ve never smoked. Just another day in the life of a ” FLOXIE” This has to stop. These drugs must be banned from EVERYTHING. If given an option of life or death. Knowing what I know now about what Levequin was going to do to me. I certainly wouldn’t have taken it. I would have lived Thirteen wonderful healthy happy years instead of being crippled and depressed about everything most of the time. These companies must be held accountable for what they’ve done to people and are still doing. Absolutely no right to purposely cause harm to anyone just to make profits. The makers and seller’s of this poison should be forced to take a 5 day course. Than they’ll know no money in the World is worth your health. They’ve stolen people’s health and lives without a blink of an eye. They must be held accountable for it. Wishing you all the best. Praying for you guys to heal.

    • Larry June 29, 2019 at 1:32 pm Reply

      Hello, I am dealing with the same issues you are. I took my last pill on 4/19 and the symptoms hit me at about 3am on 4/20. The burning etc

      • lisalisa12years June 29, 2019 at 2:49 pm Reply

        I am more than furious to KNOW that these toxic drugs are still being given out at all. Firstly make sure you take Magnisium and other vitamins and minerals this stuff depletes your bodies supplies and than the real horrors begin. We’re all different yet tendon tears neuropathy chronic fatigue all kinds of simular symptoms happen. I had very mild ones in the beginning really vivid strange dreams” I would wake up shaking from tremors. Loss of weight of which I didn’t know was a part of this as I was going to the gym and walking 2 miles daily. Have your vitamin and mineral levels checked. Keep track of them. Best of luck to you both. 13 years later I’m still having issues. This is relentless and it should have been STOPPED from being prescribed years ago. I am not a Dr or any type of healthcare provider. I’m just one of the MILLIONS of people Worldwide who’ve been poisioned by a Fluroquonolone. These drug companies need to be held accountable for their actions. ALLOWING people’s lives to be ruined in order to keep the stock holders happy. Peace and tranquility to all. I’m so sorry this happened to you guys.

        • Larry June 29, 2019 at 8:56 pm

          Hey Lisalisa, I agree I cannot believe these drugs are sill being given out. Sadly, I didn’t even have an infection and I didn’t even know they were dangerous until I got sick from them. Every second of everyday I’m living in regret for taking this medication. It has turned my life upside down, and I feel like I’m living in some alternate horror universe. My body hurts from head to toe, and I’m not sure how much longer I can continue to work. I still can’t believe it happened to me. My cousins wife told me she has taken Cipro for years (without issue) but her new Doc. wouldn’t prescribe them to her because of potential for serious side effects. I told her NEVER EVER take them again. Its just not worth it. Wish someone had clued my Doc. in. F* me.

  40. Mike June 26, 2019 at 11:23 am Reply

    When do you know if it’s okay to start eating regular foods again? This seems like the hardest thing to gauge; is a little inflammation okay to retrain your body and ease back into it?

    • lisalisa12years June 29, 2019 at 3:43 pm Reply

      I have learned to only eat GMO antibiotic free everything. I stopped drinking coffee for several years, missed it too much so only one cup a day sometimes I skip. We’ve all different and have different reactions it’s a hit or miss kind of thing. One thing works for some and doesn’t for others. The cleaner you eat the better you’ll be. I’m 13 years out and that’s what I do. If I mess up I suffer a few days. Flush myself with lots of filtered water. Life of a Floxie I guess I really don’t believe this ever totally leaves us. I believe it just stays dormant or is working on messing with something else ? Just from my life and things that have happened to me. Good luck Magnisium helps a lot for me. Biotin and B 6 have taken the neuropathy pain / burning away. I have all my vitamin and mineral levels checked yearly. I was low on D this time but Summer just started. A big difference from the 1st test extremely low on everything. One thing I can say that REALLY sucks is how it leeches our vitamins and minerals from our bodies storage. I’ve ALWAYS had strong healthy teeth. I actually had a primary tooth until 54. Four years ago I woke up it was cracked in half. The dentist told me I had ” very soft teeth ” I’ve never been told that in my life. I’m someone who was always taken to the dentist as a kid. Than always as an adult check ups cleaning ect. I’ve lost THREE teeth in four years ? I can actually see where they’ve become translucent. I take caltrate daily with D now. We can absorb calcium without D we can’t absorb D without K it’s a system our bodies have used since the beginning of time I suppose. I mostly take subliguals a bit more expensive but they go through the cheek right into the blood stream. I also take oil of oregano capsules and probiotics pre biotics whenever I feel I’m getting sick. Oil of oregano is a natural antibiotic. No side effects unless allergic to oregano. It’s worked for me since reading about natural remedies years ago. I shared it here several times. I stop by every so often. Hoping to see good news. Perhaps all Flouroquonolones have been BANNED worldwide that would make me so happy. Until that day. I tell anyone who will listen about how dangerous Cipro Avelox levequin are. Made to treat anthrax poisoning Not simple infections. Dr’s need to update themselves on side effects. I was given a list of FOUR. May cause drowsiness , dizziness Diahreah or constipation. Now there’s over 179 pages of side effects. They KNEW and kept it from US. Now we have to do whatever it takes to stop or slow this down. Trying to live the best possible life. Eat clean keep an eye on vitamin and mineral levels. No Flouride ever. Filtered water and try to keep muscles in use. Best of luck to you 🍀 Best of luck to all. We need to hang in there until they figure out how to stop this. ✌

      • Mike June 30, 2019 at 4:16 pm Reply

        I still don’t believe it “stays” with you. If you have tissue turnover and exercise regularly, mitochondrial biogenesis occurs. You also burn fat cells. I think that’s a “wives tale” some folks have made up to explain protracted symptoms.

        It hits you. It damages you. It leaves you.

        • Mike June 30, 2019 at 4:18 pm

          Also, taking a shower isn’t going to hurt you. Or swimming. Or brushing your teeth. Ask Ruth.

          If you have fluoride sensitivity, sure. But that’s extremely rare with FQT, even in general.

        • lisalisa12years July 1, 2019 at 6:11 am

          13 years later I’ve done everything possible to heal. I wasn’t aware of this poisoning me until five years later. There was nothing anywhere that explained what these toxins could do. That’s your belief. In glad that your 100% better. Your old self again. I certainly hope you stay that way. In 13 years I’ve had four relapses. I didn’t change anything. So it’s my reality not an ” Old wives tale” We also aren’t here to judge. We are here to help support each other. I believe what you said was degrading to me. You should apologize.

        • Chris July 1, 2019 at 10:54 am

          You can prevent the relapses. One of my doctors who has treated many “floxed” patients said that so called relapses are due to things in your diet that trigger them. I found this to be true and stick to my normal routine diet and I am ok. If I try to eat or drink something that I liked from my past, before being floxed, I have a week long relapse. It happened once this year and once last year. Relapse happened both times. As we get older our sensitivity list gets bigger. Just try to avoid what you know triggers it and you will be better off.
          For me caffeine, lots of cheese, sugar, salt etc are big no no’s for me.

        • D. August 1, 2019 at 11:05 am

          Hello Mike,
          maybe you have an answer for my question. Unfortunately after floxed I have a cartilage damage on my knees, we will start PRP and ozone therapy for all my body. I have been floxed 1.5 years ago ( 2018_ January ) after treatments ( acupuncture, and fcked up gut healing process ) I have got only one problem on my body; my knees ( so much noise and stiffness no pain ) I was tired and stop this terrible search. 1 month ago I go to gym and run. My knees got worse, unfortunately I had a cartilage damage both of my knees. I know that all these problems will pass one day but I am wondering about one thing. What is the cause of pain ? İs it because of neurological damage or what is the main cause?
          Thank you so much.

        • D. August 3, 2019 at 1:51 am

          Hello Mike,
          maybe you have an answer for my question. Unfortunately after floxed I have a cartilage damage on my knees, we will start PRP and ozone therapy for all my body. I have been floxed 1.5 years ago ( 2018_ January ) after treatments ( acupuncture, and fcked up gut healing process ) I have got only one problem on my body; my knees ( so much noise and stiffness no pain ) I was tired and stop this terrible search. 1 month ago I go to gym and run. My knees got worse, unfortunately I had a cartilage damage both of my knees. I know that all these problems will pass one day but I am wondering about one thing. What is the cause of pain ? İs it because of neurological damage or what is the main cause?
          Thank you so much.

  41. D. August 1, 2019 at 10:50 am Reply

    Hello everyone, I wrote to Lisa Bloomquist but I haven’t get any answer yet. I really want to learn the cause of pain ? What makes the pain happened? İs it because of neurological damage or what is the main cause?
    Thank you so much

    • Krabiwi September 4, 2019 at 1:28 pm Reply

      It’s a combination of inflamation, autoimmune reaction and nerve damage due to damaged mitochondria, their deleted mtDNA and high oxidative stress inside cells.

  42. Fred S August 25, 2019 at 1:40 pm Reply

    Chris – can you send me the list as well. Thanks
    fscott0863@yahoo.com

  43. Fred S September 7, 2019 at 1:53 pm Reply

    Lisa – great story. One question for you – what do think help your tendons the most besides time?

  44. Donna September 22, 2019 at 11:01 am Reply

    Chris, please send me the list as well. Thank you. donnalady23@gmail.com

  45. Ed September 27, 2019 at 9:46 am Reply

    Dear young lady, profuse thanks for you taking the time to share your Cipro experience. We who have been prescribed a Fluoroquinolone and have reaped the side effects are left in a wasteland of lack of medical community information, and moreover, physician stubbornness. We the sufferers have felt desperately alone.
    Like you, I also took Cipro for 3 days, twice a day at 500 mg. as a prescribed analgesic after laser prostate surgery for BPH. On the third morning I awoke to a searing pain in my right knee. When I looked at it, the knee and most of my leg had swollen to twice its normal size, and it felt like my quadricep tendon had snapped. Although the doctor had prescribed the Cipro with a “no big deal” attitude, he told me to stop taking it. It took a week for the pain and stiffness in the knee to subside, and another week to be able to bend it. (It took 6 months before it felt normal as before the operation.)
    Like you, I also have had an inexplicable fatigue and sleepiness, which was not there pre-op. The 2 Urologists told me “it could take a year for you to heal.” But they were assuming the fatigue was due to the operation. I theorized the various possible sources of my fatigue:
    Direct effects of the operation, and healing time required;
    Effects of the operation, which weakened my system enough to induce the onset of some other health effect, such as mono or lingering effects of Valley Fever (contracted years prior);
    Effects of Propofol anesthesia. I had serious brain fog and confusion for a week post-op, followed by 3 more months of minor brain fog. My legs from the knees down have also been mysteriously weak, and slight balance issues in standing and walking. Short term memory loss has been very strange, but improving after 6 months;
    The coincidental onset to the urinary surgery of some other condition, like heart issues or spinal stenosis;
    Cipro damage. I left this for last because my information was lacking and didn’t have any speculations until I ran across the Facebook group “Fluoroquinolone Toxicity.” There I read horror stories, plus other symptoms which I shared.
    But….in finally searching Cipro and fatigue, I came across this dear young lady’s article on her Cipro experience. Upon reading her story, I am now leaning heavily toward the Cipro cause of my fatigue, since my symptoms are almost exactly similar. I’m also now greatly encouraged in hearing her stated “time” factor. There may be hope, and since I had good energy before my procedure (and Cipro), I can better assurance I’m on the right track.
    ***Thank you again for your hugely informative article!!!

  46. Claude October 19, 2019 at 1:50 am Reply

    A was floxie 24 June 2015

    It was so bad
    No energy could not walk more than 400 feet’
    Brain fog difficulty to think to talk
    Gut problem lose weight 50 pounds
    Tendons hurts muscles dissapears
    Pancreatic for a few months
    No sleep , very high anxiety
    Afraid to died PTSD

    I am 63 years old
    Now 2019 I can bike 25 milles 3 times a week
    Tennis , speed walking and I enjoy life again

    You can do the sane God bless you

    Claude j roy 1 514 231 3259
    Claudejacquesroy@post.harvard.edu

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