Lisa’s Recovery Story – Cipro Toxicity

Lisa for Floxiehope

*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

Lisa’s Story 

In the middle of November, 2011, I took Cipro to treat a urinary tract infection.  I took 2 pills (500 mg each, I believe) a day for three days.  I didn’t feel like the infection was gone, so I went back to the doctor and requested more antibiotics.  He gave me macrobid and the infection subsided within a couple of days.  Life went on as normal for the next couple of weeks, until December 2, 2011, at which time I got my period and started taking ibuprofen to help me to deal with the cramps.

Before I continue with my story, I would like to note that I had taken Cipro to treat a urinary tract infection approximately a year earlier.  I had no notable side effects at that time.  Though, looking back on things, I did develop an eyelid twitch at that time and some strange stomach cramping that came and went started then.  I didn’t think anything of the eyelid twitching or the stomach cramps.  I certainly didn’t think that they were tied to the Cipro.  I took ibuprofen regularly after taking Cipro with no adverse effects.

On December 2, 2011 my legs started to itch.  On December 4th I broke out in hives all over my body.  I went to the doctor and was told to take Benadryl.  I took more Benadryl than the box recommends and my hives got progressively worse.  On December 5th my feet and hands swelled to the point that I couldn’t use them anymore.  It was painful to walk, or even to just stand.  I went back to the doctor and was put on prednisone.  The prednisone suppressed the swelling and calmed the hives a bit.  On December 7th my left leg went weak.  For the next few weeks the following symptoms got worse and worse:

  1.  Weakness in my legs.  I could barely walk.  The steps that I could take took a tremendous amount of effort and energy.  I couldn’t stand for more than a minute.  I had to drag a chair into the kitchen in order to cook rice because I couldn’t stand to stir the pot.
  2. Tightness of the tendons in my legs.  I had inflammation, and possibly tears, in most of the tendons in my legs and feet.  My hips, knees and ankles, to simplify things, didn’t work right.
  3. Loss of use of muscles / loss of strength.  My muscles, especially the muscles in my legs, wouldn’t move like they used to.  All of my movements were slow and deliberate.
  4. Brain fog.  I couldn’t think straight.  I felt stupid.  I couldn’t concentrate.  It was a struggle to do my job.
  5. Loss of memory.  My short-term memory decreased significantly.
  6. Loss of peripheral vision.  Large, black floaters entered my peripheral vision.
  7. Loss of appetite and weight.
  8. Loss of flexibility.  I went from being able to do yoga several times a week to being unable to sit with my legs curled up under me.
  9. Loss of balance.
  10. Severe loss of energy.  I felt like the plug had been pulled from my energy source.  I wasn’t necessarily sleepy, I was just drained.  The feeling was similar to the feeling that I have when I have a cold – weak and like I just want to collapse.  Just slight exertion would drain me of my energy.  Walking would make me tired for a whole day afterward.
  11. Dry mouth.
  12. Anxiety.  I had an ongoing anxiety attack for the first couple of months after being floxed.
  13. Pain in my feet.  I felt like I was walking on hot coals with every step I took.
  14. Loss of reading comprehension.  I would read a page and have no idea what I had just read.
  15. Loss of social skills / connectedness.  I felt anxious and scared in social situations.  I lost confidence in both my physical and mental abilities.  I felt very alone despite having a wonderfully supportive family.

I felt as if I had aged 20 years in just a week or two.  I couldn’t move, think or eat.  My body and mind were falling apart and I had no idea why.  I didn’t think that the sudden decline in my health had anything to do with the Cipro.  After all, I had stopped taking it a couple of weeks before my body started to fall apart.  I thought that I had an autoimmune disease.  My symptoms seemed similar to those of rheumatoid arthritis.  I went back to the doctor and they ran every test imaginable on me.  I was relieved to find out that I didn’t have an autoimmune disease, but it was somewhat frustrating to hear that all of the tests were showing that I was normal and healthy when, clearly, I was neither normal nor healthy.  The doctors did not provide me with a diagnosis or a prognosis.  Though I was desperately seeking a diagnosis and prognosis, I am thankful, in retrospect, that they didn’t misdiagnose me.  If I had been mistakenly diagnosed as having an autoimmune disease, I may have treated it with pharmaceuticals that could have made me feel even worse.

I was desperate for some treatment, something to stop the downward spiral that my body, mind and spirit were in.  The traditional medical doctors I saw provided no relief, treatment or healing.  I started seeing an acupuncturist.  He was able to stabilize my condition, calm my nerves and keep me from spiraling physically or mentally.  After a few weeks feeling stable physically, I started to have days where I felt better than I had the day before.  Mentally, I kept going downhill for a while, but, eventually my mental health stabilized and started to improve as well.

Eventually, with the help of my acupuncturist, I connected my symptoms to Cipro.  Once the connection was made, I realized that all of my symptoms were consistent with those of others who have been poisoned by Cipro and other fluoroquinolone antibiotics.  I entered the scary world of being a floxie.

For about a year, I considered myself to be sick.  Though the symptoms listed above were improving, slowly but steadily, I was still sick, and a long ways from the healthy, active, energetic woman that I was before I took Cipro.  After a year, I started to put “sick” in the past tense.  Though I wasn’t back to the level of health that I was prior to being floxed, I was getting better and, as far as most people could tell, I was well.

Following is a list of things that I did to help me to get well, to heal.  I am not a doctor.  This is a description of my experience and what helped me.  I hope that what helped me helps you.  Everyone is different though.  What helped me may not help you.  One thing that I know helped me and that I know will help you is hope.  I hope that the fact that I have largely recovered helps you to have hope.  I hope that the other steps that I took to get well also help you to gain hope and healing.

Please feel free to contact me with any questions, comments or concerns, or to share your story.

Lisa’s Healing Tips

One of the many frustrating things about fluoroquinolne toxicity is that everyone’s body is different.  Everyone’s symptoms are different and everyone’s body reacts differently to treatments.  Following is a list of things that helped me.  I hope that what helped me will help you, but it may not.  I am including other people’s healing tips as well, in case their tips can help.  Of course, please read these tips with the typical disclaimer in mind – I am not a doctor or medical professional of any kind.  I am sharing my experience with the hope that others may find it to be useful.  Please ask your doctor, or other trusted medical professional, for medical advice, and before taking any of my advice.

In no particular order, here are the things that helped me to heal.

  1. Time.  With time, I have healed.  Each day is better than the day before.  Time will heal your wounds too.  Eventually, you will get better.  The poisonous reaction affecting every part of your body will eventually stop and you will begin to recover.  I have heard several stories of fellow floxies having a timeline similar to mine – slow, steady recovery for about 2 years.  Other people take more, or less, time to recover.  Time does help though, and most people do end up getting better as time goes on.  Very few people get worse and worse indefinitely.  There may be bumps in the road, but time is your friend.  Time will help you to return to a state of health.

Try to be patient with yourself.  It will take time for your body and mind to heal.  I see this whole ordeal of getting sick as a lesson in patience (and compassion, gratitude and health).  Pushing yourself too hard too soon can lead to pain, frustration and injury.  Try to give yourself the time necessary to heal, and, with time, your body and mind will, indeed, heal.

2.  Avoid NSAIDs and steroids like the plague.  Both NSAIDs and steroids are contraindicated with fluoroquinolone toxicity.  They will make your reactions and symptoms worse.  There are some published medical articles on PubMed about the contraindication between NSAIDs/steroids and fluoroquinolones.  Searching at the library or on Google will give you more detailed information than I can provide.  Anecdotally, I know that my reaction was triggered by taking NSAIDs (ibuprofen that I took to help me to deal with menstrual cramps) and it was exacerbated by taking prednisone (a steroid).  Please note that I did NOT take NSAIDs or steroids at the same time as Cipro.  I took ibuprofen 2 weeks after I finished taking Cipro and it triggered my toxic reaction and I took prednisone 3 weeks after I had finished taking Cipro, after my reaction had started.  I will never take another NSAID or steroid again.

Unfortunately, NSAIDs and steroids are the drugs that are the most commonly prescribed drugs used to “treat” fluoroquinolone toxicity.  This is because the combination of NSAIDs/steroids and fluoroquinolones does not always cause a toxic reaction, the toxic reaction of combining fluoroquinolones and NSAIDs/steroids can occur even when the drugs are taken weeks or months apart, doctors and other medical professionals don’t acknowledge fluoroquinolone toxicity and so they don’t look for the contraindications and because many of the symptoms of fluoroquinolone toxicity are treated with NSAIDs and steroids.  The pain killing qualities of NSAIDs and the swelling reduction qualities of steroids make them the drugs of choice for treating many of the symptoms of fluoroquinolone toxicity.  Don’t take them though!  In my nonmedical opinion, I suggest taking non-NSAID over-the-counter pain medicine like acetaminophen (Tylenol) for pain (or marijuana – which is probably better for your liver), and antihistamines for the swelling.

Often, fluoroquinolne toxicity is misdiagnosed as an autoimmune disease.  In particular, it is often misdiagnosed as rheumatoid arthritis.  Many of the drugs that are used to treat rheumatoid arthritis are NSAIDs.  Don’t take them.

3.  Acupuncture.  I credit my acupuncturist with saving my life.  I can only guess how I would have fared without my acupuncturist, but I imagine that I would have ended up in the emergency room, pumped full of steroids and antidepressants, having a massive anxiety attack and unable to walk.  That didn’t happen though and there really isn’t any point in surmising about what could have been.  I do know that acupuncture stopped my downward spiral and got me on the road to recovery.  Both the acupuncture needles and the herbs that he provided gave me immense relief.  I don’t know why or how acupuncture works, but I do know that it worked wonders for me.

4.  Supplements.  I have taken more supplements than I can remember.  90% of them had no noticeable effect on my health.  Here is a list of supplements that I think helped me.

Iron.  I take a low dose iron supplement – only 5 mg. – daily.  The brand of iron supplement that I use is Pur Absorb, but I’m guessing that other low-dose iron supplements will work equally well.  Within just a couple days of starting taking the iron supplement, my energy levels increased dramatically.  I could walk a mile without being exhausted afterward.  In addition to improving my energy level, the iron supplement seems to make my muscles and tendons more supple and malleable.  When my tendons are feeling tight, a dose of iron helps to loosen them up – within just a couple hours.  Too much iron is really bad for you, so please be careful with supplementing it (ask your doctor, yada yada), but it helps me immensely.

Magnesium.  I take 250 mg of chelated magnesium daily.  I don’t necessarily notice that it makes me feel better, but I do notice that I feel worse when I don’t take it.  My muscles twitch if I don’t take my mag.

Zinc.  I take zinc when I get around to it.  I remember feeling mildly better when I started taking it.  It doesn’t seem to affect my health dramatically though.

Chlorophyll.  I take chlorophyll about every other day.  It seems to help with my energy level and mental functioning.

I also take fish oils, resveratrol, a probiotic, a joint supplement, CoEnzyme Q10, vitamin B12, chlorella, glucosamine, brewer’s yeast and some other supplements.  They may help.  I can’t say that I feel a difference using any of them.

5.  Meditate.  Meditating has so many amazing, positive benefits for your brain, your life, your spirit, etc. that I can go on about it ad nauseam.  Meditation helped relieve a lot of the mental symptoms of my fluoroquinolone toxicity.  My anxiety, inability to concentrate, inability to connect with others, depression, loss of reading comprehension, decreased mental acuity, etc. were greatly reduced (or improved) through meditating.  I meditate about 10 minutes each day.  I should meditate more like 20-30 minutes a day.

Meditating helped me to gain compassion for myself and my situation.  It also helped me to let go of the anger that I felt toward the pharmaceutical companies and the medical culture that allows fluoroquinolones to be on the market.  The pharmaceutical companies and the medical culture are both messed up and blame of them is justified, but anger and blame were not serving me mentally, emotionally, spiritually or physically.  I needed to let go of my anger and blame in order to move on with my life.  Meditating helped with that.

I learned to meditate through taking a class called Mindfulness Based Stress Reduction that was offered by my health insurer.  It was an excellent class based on the work of Jon Kabat-Zinn.  Many Buddhism centers offer Mindfulness Based Stress Reduction or Meditation 101 classes.

6.  Get off the internet.  Most of the information available on the internet about fluoroquinolone toxicity is horrifying.  Fluoroquinolone toxicity is horrifying.  It is scary.  It is completely unacknowledged by the medical community – the doctors, nurses, etc. who we go to in order to make sense of things when our body goes hay-wire – so we seek answers on the internet.  Unfortunately, most internet sites devoted to fluoroquinolone toxicity do not provide a balanced picture.  They show the harm and the horror of fluoroquinolone poisoning, but they don’t show the healing and hope that most people eventually experience.  I am writing and distributing this in order to provide the perspective of hope and healing.  Some people are permanently disabled from fluoroquinolones.  My heart goes out to those people and they have every right to scream their story on the internet.  However, their story is not your story.  My story is not your story either.  But if you’re going to look to the internet for a prognosis, it’s better to find a hopeful prognosis than one that is full of doom and gloom.

When I participated in the online forums for Floxies, I noticed that my anxiety levels increased significantly.  Even after I was 90% recovered and I thought I could handle it, my anxiety levels would go up simply by reading about people being floxed.  Inducing anxiety is one of the worst things that someone suffering from fluoroquinolone toxicity should do.  Anxiety makes all symptoms worse.  I would slowly relapse and my symptoms would get worse every time I participated in the online forums.

Of course, the people participating in the online forums are seeking to help fellow Floxies, to commiserate and to participate in a support group.  It is not their fault that my anxiety levels increased when viewing their sites and/or support groups.  After all, most people on those sites are trying to be helpful and supportive.  However, the net result of participating in the forums for Floxies is that my anxiety levels increased and my health declined while I was on those sites.  I am healthier and happier not participating in the online “support groups” than I was while I did participate in those groups.  Of course, this is my experience only.  Many people find solace in the Floxie community and if it helps you, great!

The people who have worked hard to create a community of Floxies to support one another should be commended.  It is because of their hard work that thousands of people have realized what is going on with their bodies and that they are not alone.  The community of Floxies is full of wonderful people.  However, you need to do what you need to do to take care of your health and if you find that hearing other people’s stories increases your anxiety levels, get off the internet.  For you.

7.  Diet.  I lost 11 pounds in 18 days when I first got floxed.  My body was going hay-wire and it seemed like an allergic reaction.  I had no idea what I could possibly be allergic to so I stopped eating almost everything.  I didn’t eat sugar (including fruit), gluten, dairy, soy, anything non-kosher or anything spicy, or drink any alcohol or caffeine, for a month.  I only ate vegetables and organic meat.  It’s a highly effective way to lose weight, but I don’t think that restricting my diet severely helped me to heal.  Restricting my diet gave me a sense of control, and that’s not a bad thing when your body is self-destructing, but I don’t think that it made me feel any better physically.  After a month of only eating veggies and organic meat, I started to add normal foods into my diet.  As soon as I started eating an appropriate number of calories, I started to feel better.  Not only was I Floxed, I was also wasting away when I wasn’t eating normally.  Getting enough food is an important part of healing.  Of course, it’s generally good to be on the “don’t eat junk” diet, but I didn’t find that cutting my food intake significantly helped me to feel better.

Many Floxies develop GI problems.  I was lucky in that I didn’t have many GI problems.  Many people seem to be helped by cutting gluten, sugar and/or junk food out of their diet.

I notice that I feel slightly worse than normal when I consume sugar and/or caffeine.  I think that most people do, I am just now accustomed to paying closer attention to my body.

The only food that makes me feel noticeably better is beets.  For some reason, beets make me feel great.  I just boil them and eat them.

I’ve heard good things about the benefits for Floxies of eating broccoli and other cruciferous vegetables.  I love broccoli so I try to eat a lot of it.  Unfortunately, I can’t say that I’ve noticed that it makes me feel better.

8.  Swim.  My tendons and muscles feel significantly better when I’m in the water, and for several hours after I finish swimming.  Swimming in the ocean feels especially therapeutic.  There are so many minerals and trace nutrients in the ocean, I surmise that they’re helpful for healing.  Unfortunately, I don’t live near the sea, so I swim in a pool.  I feel better when I do so.

9.  Pilates.  I started doing Pilates about 7 months post-floxing.  Pilates strengthens the core, something that is generally important, and gently stretches muscles, tendons and ligaments, something that is particularly important for Floxies.  I started slowly and gently and didn’t push my tendons, muscles or ligaments too much.  I feel that gently stretching helped my tendons, muscles and ligaments to heal and return to (close to) their pre-floxing capacity.  Take it easy though.

10.  Healing arts.  I love to dance.  I’m not a good dancer, but I love to do it.  About 16 months post-floxing I started to dance again.  Dance has been healing for me.  I feel spiritual, strong and joyful when I dance.  I’m not sure if it’s the dancing itself that I find to be healing, of if it’s the joy that I feel when I dance that is healing.  Either way, it helps.  I surmise that other forms of expression would have similar healing qualities.  If you love to sing, sing.  If you love to paint, paint.  If you love to write, write.

11.  Attitude tips.

Try not to compare yourself to how you used to be.  I used to hike 20 miles in a day.  I can’t do that anymore, but I can hike 3 miles today and I couldn’t do that when I first got floxed. Compare yourself to how you were yesterday, not to how you were before you got floxed.

Do something – anything – to work toward healing, every day.  Walk a little further than you did yesterday.  Meditate.  Take an Epsom Salt bath.  Get an acupuncture treatment.  Do a puzzle.  Whatever makes you feel good – do it.  Every little step helps.

Don’t kill yourself.  Have hope.  You will get better.

You’re not crazy.  You’re sick.  Have hope.  You will get better.

You’re not stupid.  You’re sick.  Have hope.  You will get better.

Try not to identify yourself as sick.  The mind is a powerful thing so try to stay positive. It’s hard, I know.  But try, because it’s worth it.

You will have bad days.  They will pass.  This all will pass.  It is not permanent.  You are strong –  present tense.  You were knocked down, but you weren’t killed.  You will get better.

Don’t quit your job.  Try to maintain as much normalcy in your life as you can.

It is not your fault.  Even if you knew better, even if you demanded the most powerful drug possible from your doctor, even if you self-medicated, even if you coerced your doctor into giving you the fluoroquinolone antibiotic, even if the infection that you were treating was something that you got because of doing something stupid, or from sex, even if you continued to take it after you started to get sick, even if you floxed your child/parent or other loved one – IT IS NOT YOUR FAULT.  You are sick.  You are poisoned.  You are not to blame for your sickness or for the fact that you are poisoned.  Who to blame is a discussion that I don’t want to get into because I want this to be positive, but it is not you.  You are not to blame.  You are a victim.  It is not your fault.

Lisa’s Life now

Life is good.  I don’t consider myself to be sick any more.  I’m not quite up to my pre-floxing capacity in a couple of areas.  I don’t have the endurance, energy, strength or flexibility that I used to.  However, I’m pretty close to my pre-floxing capacity in those, and other, areas.  I’m about 99% better.  Not being capable of intense exercise since December, 2011 has left me a bit out of shape, but I’m working toward being able to exercise intensely again and my stamina, strength, energy, etc. are increasing.  I can’t hike 15 miles with a backpack on quite yet (something I could do before I was floxed), but I am capable of most physical and mental activities that would put me in the “normal” or “not sick” categories.

I can work full-time.  I am grateful for the fact that I have a job that is not too demanding physically or mentally because I was able to hold onto it through my worst times.  My boss and coworkers were wonderfully understanding and they claim not to have noticed that I couldn’t think straight for about a year.  I even  got a promotion about a year post-floxing!

I can do Pilates 4 times a week, swim 2 times a week, dance once a week and walk daily.

When I was unable to walk a block I told myself that I would consider myself to be “better” when I could dance all night in heels (my feet hurt like hell when I was sick), I can do that now.  I never liked high heels, but I can wear them now.

My memory isn’t quite what it used to be, but it’s good enough to do well at my job and to maintain my relationships.

In many ways, I’m a different person than I was before I got floxed.  This has been perplexing for me and my loved ones, but it’s not an altogether negative thing.  I’m a much more spiritual person than I was before I got sick.  I was a pretty firm Atheist before I was floxed.  Now, through meditation, dancing, believing in alternative therapies that focus on energy, etc., I’m finding some spiritual outlets that I didn’t have, need or want in the past.

I have become a more compassionate and patient person.  I now empathize with people who have mystery diseases.  I used to have the attitude that I now find so frustrating in medical professionals – that if there isn’t a way to diagnose or treat an ailment, it doesn’t exist.  Now I know that people are genuinely suffering and that there is a real cause for their pain – regardless of whether or not it is acknowledged by the medical community.  My heart goes out to those in pain.

I had to become more compassionate and patient with myself as well.

I like some things that I didn’t like before I was floxed and I don’t like some things that I used to like a lot.  I hated swimming for the first 32 years of my life.  Now I love it and consider it to be an important aspect of my healing.  I used to like working out in an intense way that got me dripping with sweat.  Now I like to do exercises like Pilates that are focused, slow and deliberate.  I used to love hiking, camping and backpacking.  I miss loving those things so I’m going to try to get back into them, but I’m not sure that they’re my passions any more.  Drinking used to be one of my favorite pastimes.  My tolerance for alcohol is shot now and I don’t really enjoy it any more.  I missed it for a while even though I knew that it was for the best that I wasn’t drinking like a fish.  My appetite has changed as well.  I used to be able to eat a lot of food and I loved to eat.  I still eat, of course, but I don’t eat as much as I used to and I don’t eat with as much gusto.  This is probably a good thing seeing as I’m not into exercising intensely any longer.

Even though I would do just about anything to turn back time and not take Cipro, the place that I am in life isn’t bad, and I probably would be someplace different if I hadn’t gotten sick.  It sucks that I had to gain empathy for people who suffer from pain, mystery ailments and debilitating fatigue, but it’s probably a good thing that I now have more empathy.  I would like to think that I’m a better person from going through this.  I’m not a stronger person, but maybe I am a better person.

I hope that my tips and words of advice are welcome and helpful.  Please feel free to contact me if you have any questions or concerns.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

2,055 thoughts on “Lisa’s Recovery Story – Cipro Toxicity

  1. A September 24, 2016 at 7:05 am Reply

    Hi Brenda

    My symptoms sound a lot like yours regarding the joints. How long from your first test for autoimmune issues did you test again for it when it came back negative?

    • bhndiaye December 11, 2016 at 9:17 pm Reply

      it took a couple of weeks for the negative results after further testing. My SED rate went down to within normal range. I have had a positive monoclonal protein test which is a precursor to multiple myeloma. I had a biopsy and it was negative for malignancy. I spoke with another floxie who had the same positive test for the same protein and her hematologist told her that it was the Cipro.
      Every day it is something new. Peace to you and be well.

  2. Bob September 24, 2016 at 8:29 am Reply

    FYI all, I haven’t been on here for awhile as I get weary of hearing about all of the new cases and symptoms. Last night on the ABC news from Cleveland Ohio they ran a story of a woman who after taking one dose of cipro several weeks later parked her car on I-90 and walked out in front of a semi and killed herself. She complained of symptoms of her skin crawling and was no longer able to work. I know many of us have had reactions so bad in the early days of poisoning that suicide seemed like the only rational option. Its not. After taking cipro for 4 days I couldn’t drive for 4 months and felt like I was being microwaved from the inside out. I still have peripherial neuropathy in my feet and my left leg is pretty bad but I am alive to play with my grandson. The story went on to mention the recent warnings by the FDA and said that there had been 3000 reported deaths but the toll is likely much higher as we know. I had the thought of “It’s about time.” Yet the story brought back a lot of the terror I felt. I am sure most of the ass hats in the medical profession still won’t pay any attention but the public will slowly wake up id the word keeps getting out. My wife and daughter were both in the hospital recently and made if very clear no cipro or floroquinolones. They look at me as if i am crazy and ask, “is she allergic to it.” If i said don’t poison them with cyanide would they ask me if they were “allergic.” I said, “Its a dangerous poison and it is not to be given to her, end of discussion.” Some times I think it’s counter productive to concentrate on you symptoms too much. Don’t let the doctors intimidate you, they are not that smart. Good luck to all.

  3. Tod Gregoire September 29, 2016 at 11:30 pm Reply

    Thank you Lisa for posting your story. I have been hitting rock bottom and needed to hear the word Hope. Your suggestion to stay away from the internet is a good one. I have way too much anxiety and my symptoms go through the roof. Thank you again for sharing.

  4. Ms addy October 7, 2016 at 3:36 pm Reply

    Lisa, I’m 3 years almost exact since my cipro. I was prescribed prednisone and 800 mg ibuprofen for a SEVERE pinched nerve in my neck on September first. I took it against my better judgment. It didn’t seem to help or hurt at the time. Now, here we are a month later and I feel those old terrible feelings. Weakness, fatigue, headache etc. is it a relapse???

  5. bhndiaye October 14, 2016 at 5:34 am Reply

    Lisa,
    Sorry that it has taken so long to respond. It took about 3 weeks for my second testing to come back normal. My SED rate had returned to within normal range at that time too. I am still on the anti inflammatory diet. My body is unable to deal with fruits that are high in sugar, night shades, dairy, wheat and goodness knows what else. I still deal with easy muscle bruising, joint pain and heart palpitations. I take a magnesium supplement daily, which really helps and another supplement that helps with my energy levels.

    I am a nursing student and I am making a presentation on flouroquinolone toxicity to my pathophysiology class on November 16. I am grateful for this forum. It has aided in my healing and also in finding out more about this condition. I hope to do more outreach on the effects of flouroquinolones and how possibly people can be screened for serious reactions.

    • Lisa February 6, 2017 at 10:22 am Reply

      What is the other supplement you are taking for energy? I feel so depleted and am new to this.

      • Lisa February 6, 2017 at 2:38 pm Reply

        Hi Lisa,

        Iron really helped my energy levels. Supplementing it isn’t for everyone, and it’s best to get your levels tested first.

        Also, the KPax supplements mentioned in this post have a lot of nutrients in them that are good for cellular (mitochondrial) energy – https://floxiehope.com/2016/02/19/k-pax-for-floxies/.

        In Ruth’s story, she mentions several supplements that helped her with her energy levels as well.

        Regards,
        Lisa

  6. Bob October 14, 2016 at 3:21 pm Reply

    May I ask what the other supplement is that gives you energy. Also I have theorized that flouroquinalones damage people that may have a detoxification pathway in the liver that isn’t working properly. With such a large group of affected people that would be easy to test,

    • paulagbt October 31, 2016 at 12:12 pm Reply

      Bob, I also have thought about that. I have a detox pathway that does not work well. Have had problems with chemical sensitivities, etc. all my life. Finally a doc had me do genetic testing. One thing that showed was compound heterozygous MTHFR mutation, and that fits with the pathway problem & sensitivities/toxicities.

      Now I am concerned about floxi- because I was prescribed some a couple of times within about a year, and now I question whether some symptoms I am having are related. It is scary but I am trying not to get upset. As I sit here my lower legs & feet are twitching, & I am having worsening lower leg & feet cramps almost every morning. I think I need to detox somehow, but not sure what to do. Will ask the natural doc today for help with it.

      Anyway, I do think you are right. It makes perfect sense that if your body cannot rid itself of toxins as it should, you are at much higher risk of toxicity symptoms/ill health overall.

      If you are not familiar with MTHFR mutation, try mthfr.net for starters. I think you will find it interesting, & maybe helpful.

  7. heidiankenyntp October 16, 2016 at 8:51 pm Reply

    I would imagine that beets make you feel good because beets are a super food for the liver. Possibly there was liver damage, or your liver has been unable to detox itself fully of the drugs and the beets are giving your liver a boost! Keep eating them. Have you tried also supporting your liver by eating liver (yep, the old fashioned cooked liver and onions that our grandmothers grew up on). If you can’t tolerate eating liver, you can purchase desiccated liver supplements to support proper liver function.

  8. Tara B October 23, 2016 at 10:07 am Reply

    I too have experienced negative reactions after taking two rounds of these drugs: first was ciprofloxacin then after surgery I was given lexofloxacin. I’m allergic to a growing list of antibiotics and had never heard of problems related to Cipro before, so I just filled and completed the Cipro courses. Now I have chronic diarrhea, loss of appetite, easily nauseated and the medication I’ve taken, without incident, to control nerve damage that I sustained from uncontrolled diabetes 5+yrs ago, feels like it’s stopped working. Over the last 3yrs I’ve made leaps & bounds of progress in my health: lost 75lbs, reversed hypertension, reversed high cholesterol, revolutionized my eating habits by removing sauces, highly-processed & junk food, most bread, I eat carb+protein balanced meals and as much whole, raw food as possible and gained control over diabetes with my A1C numbers consistently testing below 4.1 (which is technically not diabetic at all). I have a friend who’s having a much worse time with Cipro toxicity than I am. Her story sounds more like your story with weakness, swelling and constant pain and she’s frustrated that no doctors are able to give her any answers. So I shared your article with her, in hopes it will give her some much-needed comfort. Thank you for your candor and willingness to share your story! Take care and continued healing to you! -Tara

  9. Donna Patterson October 25, 2016 at 8:10 am Reply

    excellent reading, I also took Cipro for a long time for UTI and many other drugs to clear up my UTI. I now use demmanos day and night for the last two years and have been successful
    and no UTI. However the residue from Cipro is, I too have a ringing in my ears and now I wear hearing aids I also have spinal stenosis in my lower back. I do a great deal of yoga poses and exercise for my back. In the food department I now drink lactose free products,and
    take zinc, fish oil and a multi vit. thanks for all your input, who knew. wow. DP

    • Lisa October 25, 2016 at 5:18 pm Reply

      It’s a really crazy scenario, isn’t it? Who would think that an antibiotic could do such damage? Your healing protocol sounds like a good one, and I hope that it helps your back and ears!

      Regards,
      Lisa

  10. Kristin October 25, 2016 at 3:28 pm Reply

    Wow! You have given me hope and understanding. I’m just realizing what has plagued me since a kidney stone/surgery (mega Cipro for 2 weeks) in July. I am in a completely different body from the day before the surgery, till the day after. A zillion tests, all negative too. Reached out to a naturopath, but not knowing what may be wrong. This gives me so much hope to be able to identify it and get moving in a healing direction. Thank you!

  11. Hendri November 7, 2016 at 9:48 pm Reply

    WOW lisa, an inspirational story

    so i am just 22 years old

    about may or june i have ciprofloxacin 2x500mg 5 days for DIARRHEA!!!!

    nothing happened

    september diagnosed with prostatitis and i was prescribed doxycylcine 2x100mg and levofloxacin 1x500mg for 2 weeks

    at 8th day i developed tinnitus, it was 14th september 2016

    idk it was doxycycline or levofloxacin but i developed it after levofloxacin (in that time i don’t know FQ Toxicity)

    my doc changed my antibiotics to cefixime, didn’t work

    he then lightly said that i have to continued LEVOFLOXACIN, and i insist that i don’t want

    he then change the drug to CIPROFLOXACIN

    thank god i didn’t follow my doctor suggestions

    things are ok for 1,5 month,

    on about 20th october 2016 i joined the group Fluoroquinolone Toxicity Group and make an introduction there

    a couple of member there warned me to be cautious because the side effect may occur weeks or months after stopping the drugs

    at first i was like, is it real?

    i am still relaxed at that time

    a couple of days later i got twitching on my leg and arm, and mild pain that goes away for 5 seconds

    damn i am on a panic stated, and then someone tell me to buy magnesium and vit E

    a couple of days later, wow i have weakness/fatigue in my legs, and sometimes arm, upper back feels not good

    then i bough magnesium oil, arm pain was gone

    then i bough coq10, nac, l-gluthathione, alpha lipoic acid, acetyl l-carnitine

    i was on panic state when i went to the mall and i feel pain while walking

    i haven’t tried to go to the mall again, but i can say maybe the pain has subsided

    sometimes i think i am just 22 and all of this happens, sometimes i think what will i become if i’m 50, and all the crazy stuff about the future T.T

    so my questions for you lisa,

    I am not panicking right now, but my concern is i feel maybe fatigue in my knee and hamstring, ( like i’ve been walking for miles even though i just woke up or i did’t do any exercise), and sometimes a little pain

    do you think i could heal normally, considering that i don’t have severe side effect like most of the floxies? ( i mean my symptoms certainly not severe, maybe i could say from 1-10 range it’s about 1-3)

    i really hope i could be normal again

    btw i already have spinal disc herniation on my low back and pain before i got floxed

    Sincerely,

    Hendri

  12. Bob November 8, 2016 at 11:22 am Reply

    Considering all of the new warnings on these drugs I would say you have a lawsuit against your doctor if you develope more symptoms. This is malpractice at its worst.

  13. Steve November 21, 2016 at 10:03 am Reply

    I had Cipro prescribed to me back in late July for a prostate infection. I was warned by both the doctor and pharmacist of the tendon rupture warning. No body mentioned possible nerve pain. My symptoms did not start until day 2 after my 10day course of Cipro. After 4 visits to Urgent care and 1 visit to the ER with an MRI. No diagnosis. Finally after finding a new PCP.
    Several blood tests performed with results concluded negative. Now my journey continues to a neurologist and Rheumatologist. The final diagnosis, Fibromyalgia

  14. Steve November 21, 2016 at 10:25 am Reply

    I had Cipro prescribed to me back in late July for a prostate infection. I was warned by both the doctor and pharmacist of the tendon rupture warning. No body mentioned possible nerve pain. My symptoms did not start until day 2 after my 10day course of Cipro. After 4 visits to Urgent care and 1 visit to the ER with an MRI. No diagnosis. Finally after finding a new PCP.
    Several blood tests performed with results concluded negative. Now my journey continues to a neurologist and Rheumatologist. The final diagnosis, Fibromyalgia. This is a BS diagnosis!
    I’m Now taking Gagapentin and Klonopin along with a host of supplements. I have good days and I have bad days with no warning. I have spoken to many health professionals off the record. Everybody will tell you it takes time. I am convinced it will take at least a year to
    gain a decent recovery. Cipro & Levaquin are very dangerous drugs. There is no turning back the clock. You have to move forward and accept the fact that time will heal. Medication,supplements will help along with proper diet and exercise. Everybody’s symptoms and duration of recovery differs. Sorry there is no magic cure. Accept the facts of the condition. Don’t get frustrated, move forward in your life, you will recover!

  15. Angie November 30, 2016 at 10:31 am Reply

    Also do anyone symptoms mimic RA symptoms? It’s crazy to me to wake up the next day after taking cipro to being told RA.

  16. Pam U. November 30, 2016 at 1:44 pm Reply

    Yes. In fact, I was told to get to a rheumatologist to get on prednisone asap. When I told the acupuncturist about the floxiehope website, and what Lisa’s experience was, she did the research and told me she was glad I had that resource. Without doing the RA protocol, I got much better, with just a neuroma in my left foot, and some leftover foot cramps, which isn’t horrible at this point, but I can have my bad days where I alter my lifestyle and don’t go for a hike, do nia, lift weights or bike ride. (The serrapeptase really helped the neuroma by the way.)
    I listed a whole group of things that helped me through all the RA symptoms earlier on this site. The one additional thing I started after posting that here was mixing a small amount of borax in water to help with the free floating anxiety I had. Go to earthclinic.com to find out more about that. I only did it 3 days and it really helped with what they called the fluoride toxicity.
    My doctor told me to give it a year, but I can tell you that it is so much better now than when new symptoms (mainly the terrible pain in different joints and horrible anxiety) were arising every day.
    I’m so sorry you’re going through this too, but hang in there and really jump on some of the treatments people found and reported on this site. They really help. Keep telling yourself that you can get through this.
    Best wishes,
    Pam

  17. Angie November 30, 2016 at 4:40 pm Reply

    Aww thanks Pam U. Just reading your comment made such a difference. Thanks for sharing the additional information. I will surly check out the information you provided. Every bit of encouragement helps.

  18. marylynn December 1, 2016 at 7:40 pm Reply

    this helped me immensely thank you sooo much!

  19. Angie December 2, 2016 at 10:48 am Reply

    Hello PamU,

    I just read some of your previous posts which again are very informative. I’m going to get some tumeric and try that for inflammation as I’ve seen others mention the benefits from it. I’ve also tried none broth from organic chickens. I need to get in the habit of doing this more often. Have you had your inflammation markers checked since your initial flicking symptoms of you don’t mind me asking? Thanks so much for sharing!

    • Pam U. December 2, 2016 at 2:46 pm Reply

      Hi Angie, No I didn’t have any tests. I had so little confidence in what doctors would do with the information, as well as ideas they would have about how to get out from under all the side effects that I didn’t pursue anything other than to frantically deal with the symptoms. My doctor’s advice was to not get exercise and to give the symptoms a year to resolve. Thanks to all the ideas on this website, and a cousin who gave me the leaky gut protocol, I had all kinds of different avenues to take to try to heal, and fortunately, I’ve come a long way!

      ***THANK YOU TO ALL THOSE WHO HAVE TAKEN THE TIME TO LOOK BACK ON THEIR RECOVERY AND HAVE SHARED WHAT HAS WORKED! THAT’S MADE SUCH A HUGE DIFFERENCE FOR THOSE OF US WHO FOLLOWED BEHIND!****

      -I put that in caps because I hope it will catch the eye of people who did that and are checking in. 🙂
      Good luck with your recovery too!
      -Pam

  20. Brenda Joyce December 9, 2016 at 12:26 pm Reply

    Hi, I have taken Cipro before for my diverticulitis. The doctors tell me with every flare up that Cipro and another antibiotic together are the only meds that will help diverticulitis. Each time I have taken it the side affects, nausea, panic, confusion, insomnia have gotten worse. I have taken it since Monday, four days and last night I woke around 2 am panicked, and in so much misery that I was terribly frightened. I thought this was never going to end and even thought of suicide . I had hallucinations. I stopped the medicine immediately. I actually felt like I was dying. Hopefully I stopped this in time. God bless all of the people out there suffering from this poison.

  21. Genevieve December 9, 2016 at 12:37 pm Reply

    It’s good that you stopped it–and I wonder, are you allergic to penicillin? I see penicillin/amoxacillin among the antibiotics recommended for diverticulitis.

  22. Genevieve December 9, 2016 at 12:42 pm Reply

    Also, it would be wise for you to start taking a magnesium supplement right away to fortify yourself since the cipro will be leaching it from your body. Did the doctor tell you to take a probiotic pill as well?

  23. Bob December 9, 2016 at 5:08 pm Reply

    Don’t believe anything doctors tell you about cipro. They are brainwashed.

  24. Mai December 11, 2016 at 5:56 pm Reply

    Hi Brenda, I just got floxed by cipro and I got joint pain, pain all over my body and also burning all over my body. Please help, what can I take to get rid of the burning sensation in my body and the joint pain.

    Thank you so much

  25. Brenda Ndiaye December 11, 2016 at 6:34 pm Reply

    Mai, I just saw your question. I did not know if you meant me or another Brenda. I think the one thing that we all learn after being floxed is there is no one solution for that works for everyone. I have read so much in the past six months since I have been floxed. I took Cipro for three days and my life has not been the same since. The one thing that I think helps most to see improvement is dietary changes. Since our gut linings are damaged by the fluoroquinolone that we took, going on an anti-inflammatory diet is the first thing that you should try. I just did not want to take the steroids that the doctor was suggesting, since she did not even know what was really wrong with me. The dietary changes will take a couple of weeks. Because you will react to foods that you were accustomed to eating. I immediately gave up gluten, corn, sugar: essentially all grains too. I only ate pastured eggs and meat that came from cows that were “grass grazed”. Lots of greens with every meal. I make and drink lots of chicken stock. I it is hard at first, but it lessens the pain. I take magnesium in powder form, the brand is called Calm. It helps.I don’t believe in medicating every problem, but some may find some success with pharmaceuticals. Most of us won’t use ibuprophen as it irritates the gut lining and will likely cause more damage. Everyone you talk to will tell you that you that for a while you will have a new symptom/problem every day almost and that is the most discouraging part of this. It gets better. Tell your doctor about what you are feeling and do your own research. If you are on facebook, there is a great group of people in the group “Fluoroquinolone Toxicity Group”. You can talk to people who understand what you are going through. Please have hope that you will get better. This is a great community and Ms. Bloomquist has done so much research that is helpful.

    The above link is a good discussion on how to take care of yourself. Hope you get on to the facebook group. Best to you. Peace.

  26. Mai December 11, 2016 at 8:50 pm Reply

    Thank you Brenda for replying fast to my comments. I will do like you said. Does calcium help too?

  27. bhndiaye December 11, 2016 at 9:07 pm Reply

    i don’t take extra Ca. You should get your doctor to do some blood work to check your levels. That is always a good and safe place to start. Peace

  28. Mai December 11, 2016 at 10:32 pm Reply

    Oh ok, thanks

  29. Michael December 19, 2016 at 3:14 pm Reply

    Lisa – I’m 6 months out, and like you I seem to feel worse if I have too much sugar or caffeine . I can have a little of both, but during the holidays I’ve been pushing it a little, and feel “hyped up” after just a couple of cups of coffee, and just bad if I have a couple of pieces of pie/cake. Did you’re body ever adjust to become more tolerant of caffeine/sugar? By the way, I haven’t tried any alcohol in 7 months, which isn’t that big a deal … but were you ever able to drink again? I mostly social drank, maybe monthly, and I don’t do that anymore, but on a positive note, while my liver tests were always “normal”, they are now the best I’ve ever seen them. 🙂

    • Lisa December 19, 2016 at 7:32 pm Reply

      Hi Michael,

      My tolerance for sugar, caffeine, and alcohol have increased with time and as I have healed. I don’t tolerate any of them like I used to before I got floxed, but my tolerance is getting better and better. In some ways, it’s a strange blessing to suddenly be unable to tolerate sugar, caffeine, and alcohol. Those things aren’t actually good for us. They are enjoyable though. When I first got floxed I really missed drinking alcohol. I used to love it. I was never an alcoholic, or even a drunk, but I really liked social drinking, and I was quite unhappy about it being taken away from me. I still can’t have more than 2 drinks in a sitting, but the desire to do so, and the loss over not being able to drink, have faded.

      As you feel comfortable trying those things again, I suggest that you go slowly and see how your body reacts.

      A healthy liver is necessary for healing. It’s probably best to abstain from alcohol. Right? Right. You probably won’t have to abstain forever though. Just listen to your body as you try it, and don’t go too wild.

      Best regards,
      Lisa

      • Emily December 31, 2016 at 4:29 pm Reply

        Lisa,

        I’m new to all of this, and I found your story full of hope rather than simply terrifying me further. I would truly like to talk with you via email if you would be okay with that. All of this “floxing” is occurring at a time when I have tremendous life changes coming up in the next few months, and I desperately need someone to tell me to not give up on my dreams, on the things I have worked so hard to accomplish over the last several years. I’m in desperation mode right now. Thank you in advance.

        • Lisa December 31, 2016 at 4:53 pm

          Hi Emily,

          I’m happy to correspond! If you send me a message through the “contact” link above, it will go to my email, I’ll respond, and we can go back and forth from there.

          Hang in there.

          Regards,
          Lisa

  30. Michael December 19, 2016 at 9:53 pm Reply

    Thanks for the quick response and for sharing you’re experiences! I have less trouble avoiding alcohol, than coffee … coffee sorta became a morning ritual, but I switched to decaf, and that doesn’t seem to bother me much. I probably won’t try drinking until the 1 year mark, and will certainly go slow. I’m actually focused on my blood tests right now, trying to increase my ferritin and thyroid #s. My ferritin was “normal” but very low … a little above the bottom limit. I do have one data point from 25 years ago, and it was 2x. I’m being careful, since too much iron can cause problems. I’m going to get tested every month until it hits ~80. My doctor has check my thyroid over the years, but mostly tsh and free t4, and on occasion free t3. All were low, but seem to be moving back towards normal (my normal). I started taking low doses of iodine, and it actually made me feel much better (energy level). Anyway, keep up the good work! I get most of my info from your site! 🙂

  31. Michael December 19, 2016 at 10:07 pm Reply

    Specific to my thyroid tests, I should have said all were low *after* the floxing, but seem to be moving back to my normal or traditional #s.

  32. Elise December 31, 2016 at 5:21 pm Reply

    Hi lisa I was floxed two months ago from cipro I very slowly was getting better well I have a staph infection now a bad one and have to take antibiotics they gave me doxycycline I took it for the first time this morning and I feel the twitches coming back and alot…and joint pops and feeling of fear if I keep taking it will it just keep getting worse or can I keep taking it and it stay about the same? In worried but I have to get rid of this infection…

    • Lisa January 7, 2017 at 4:36 pm Reply

      Hi Elise,

      I’m so sorry for the delay in getting back to you! How are you doing now? Did you continue with the doxy? Most “floxies” do okay with doxy (though there are some exceptions). A staph infection, especially a bad one, needs treatment, and I hope that you were able to get rid of it! There are some natural and alternative antibiotics that may be helpful – things like oregano oil and manuka honey. But, honestly, with a serious infection, I would stick with the doxy. That’s just me. Hang in there.

      Hugs,
      Lisa

      • Elise January 21, 2017 at 1:58 pm Reply

        I stopped it and got rid of it with coconut oil!! It worked!! Thank you for replying but I was started on Zyprexa by my doctor and it’s week 2 and I started feeling weighed down and heart fluttery and have to sit down for a bit I also just read that you can’t take that or other antipsychotic medications after having a reaction to cipro??!!! I’m worried

  33. Laurie January 4, 2017 at 4:54 am Reply

    Lisa,
    Thank you for posting your floxie journey. I’m going through all of the exact same symptoms hospitalized and recommended to an RA doctor for possible autoimmune disease. My appointment is today. 1 last steroid and my symthoms are coming back. I have always been very strong and active but feel very weak and dependent now. I thank God I didn’t get off the internet and found your story..and a path for healing

    Laurie K.

    • Lisa January 7, 2017 at 4:53 pm Reply

      Hi Laurie,

      What did the rheumatologist say? When I went to a rheumatologist she said to take Benadryl. Benadryl didn’t do much for me, so I didn’t go back to her. Other people have had more useful experiences with rheumatologists though.

      FQ toxicity symptoms can often look and feel a lot like an autoimmune disease. People think about it in a variety of different ways. Some people say that their autoimmune disease was triggered by FQs, others think that any autoimmune diagnosis is a false diagnosis and that it’s all FQ toxicity symptoms. I don’t know what the answer is for you, but I do think that it can be damaging to get a diagnosis of a permanent illness when it’s possible that your symptoms may subside with time (and a bunch of other healing methods). Some people view a diagnosis as a challenge though, and it gives them something to fight. Just be careful with your mind and emotions as well as your body. Does that make sense?

      I wish you healing, and please let me know if there is anything at all that I can do to help.

      Hugs,
      Lisa

  34. Sola January 7, 2017 at 10:18 am Reply

    Hi I was floxxed on the 30th of aug 2016. Unfortunately I was given cipro with fansidar. And then another round of cipro injections. My most worrying issues have to do with sleep. When I sleep I have abnormal dreams,loud tinnitus,I sleep in chunks and racing thoughts of made up people and stories. I’m really scared and worried. I’ve lost interest in almost everything. My fear of God is what’s keeping me intact and the love of my family. Pls help!

    • Lisa January 7, 2017 at 5:02 pm Reply

      Hi Sola,

      Here is a list of things that have helped other people through the insomnia that can come with fluoroquinolone toxicity – https://floxiehope.com/2016/01/18/48-tips-for-overcoming-insomnia/. Maybe some of the things that helped others with insomnia can help you with your symptoms. Magnesium helps a lot of “floxies,” myself included. (Please note that if your kidneys aren’t functioning optimally, magnesium shouldn’t be supplemented.) Meditation may help to calm your mind and I recommend it fully. It truly helped me immensely. L-theanine is mentioned in the comments, and it has helped a lot of people with anxiety. It is supposed to help calm the mind. Kava may help too, but it should only be used short-term, and please note that it can be hard on the liver. Keep praying – I think that is helpful too.

      Hang in there,
      Lisa

  35. Bob January 7, 2017 at 11:26 am Reply

    Maybe you should focus on the love of God to heal rather than the fear of God. If God is Love then why fear?

    • Sola January 7, 2017 at 12:32 pm Reply

      Bob

      I’ve been closer to God than I’ve ever been through this ordeal. But I need help still. To know that there’s a silver lining. I don’t have much of the physical problems. At least they aren’t debilitating. From the start they weren’t. But the mental side has been a battle. Elevated anxiety,nightmares/excessive dreaming,running thoughts and broken sleep. I can hardly function.

  36. Pam U. January 7, 2017 at 3:48 pm Reply

    I believe the anxiety I was going through was helped with borax. It is supposed to draw out the fluoride from your system. It only took me 1/8 tsp in a liter of water, stirred until all the way dissolved. Do not take this stuff dry because I read it’s hard on the kidneys. Please go to earthclinic.com and read about this treatment before trying it. The anxiety I was experiencing was life changing and worse than the pain I was experiencing! I only did 2 treatments and drank the water over the course of 2 days each time. I think it’s time to do it again, since a few times over the holidays I found myself out and about with no pure water and I’m feeling a bit sensitive. I do not want to go into the anxiety cycle again!
    Best wishes!

  37. Bob January 7, 2017 at 4:52 pm Reply

    Have you tried GABA and magnesium?

  38. Lisa January 7, 2017 at 5:04 pm Reply

    Sola, here is a post about anxiety and FQ toxicity, and some of the information in it may be useful too – https://floxiehope.com/2015/06/22/treating-fluoroquinolone-anxiety/. I like uridine a lot. It is a cholinergic supplement.

    Acupuncture may help too. It helped me to calm down and it got me out of the cycle of pain/anxiety/pain/anxiety.

  39. Laurie January 7, 2017 at 7:03 pm Reply

    Thank you Lisa! My symptoms mirror polymyalgia rheumatica . I asked about floxiquinolone toxicity as well and he told me very good question. Went for blood work and will be officially diagnosed in Feb. until then I’m on prednisone weekly reducing doses and all of my muscle pain is gone. I do have internal inflammation when I lower my prednisone dose the debilitating pain starts coming back. Emotions are in check now but I was a reck before my Dr appt. He did say it wasn’t triggered by anything I did or didn’t do and given my age he feels this may have been triggered by my virus and will eventually subside.. fingers crossed and hopeful now.

  40. Sola January 8, 2017 at 8:31 am Reply

    I have another question which I’m worried about did anyone get running thoughts inbetween sleep

  41. Olivia February 4, 2017 at 10:27 pm Reply

    I am 40 yrs old, I was recently hospitalized for kidney infection, they put me on cipro thru iv, by the 2nd day, I was having bad dreams, couldn’t sleep, hallucinations, very bad headaches and the drs nor the nurses never told me the side effects of cipro, I was released after 4 days, so I was on for 3 days. I still have very bad headaches, I sometimes wake up confused.

    • Lisa February 5, 2017 at 8:02 am Reply

      Hi Olivia,

      Fluoroquinolones (like cipro) can have CNS effects, including headaches, confusion, insomnia, and even psychiatric illness symptoms. Hopefully your symptoms will subside quickly! Everyone’s timeline is different. Some people get through it quickly, others take longer, and some have effects for a lifetime. Have hope that you will be minimally affected, and that you will get through this quickly!

      Here is a post with some tips – https://floxiehope.com/2015/10/12/im-floxed-now-what/.

      I hope that helps!

      Regards,
      Lisa

  42. Kristen February 9, 2017 at 8:53 am Reply

    Hi Lisa , have you found anything to help your floaters? I developed them after 6 months but hv gotten more noticable lately. They give me a lot of anxiety especially when going outside. Thanks. Kristen

  43. Jeanne February 10, 2017 at 5:56 am Reply

    Hi Everybody:
    My name is Jeanne. Back in October, I was hospitalized with Diverticulitis. My white cell count was only elevated a couple of points. However, they felt it necessary to give me bag upon bag of Cipro and Flagil. To make a long story short, I was poisoned by it. When I returned home, I noticed some changes that were frightening. When I walked, I was bumping into walls. My arm tendons felt like they were being ripped. My eyesight changed overnight. I immediately made an appt. with my neurologist. The MRI showed I had 5 TIA”S. Doesn’t seem possible when I have been taking Plavix for 8 years. No doctor wants to admit to the side-affects of Cipro. I’m flustered. The Gastro that ordered these up for me, is cocky and condescending. When I went to see him at his office, I asked what my restrictions were, and he said I had ” NONE”. I questioned his answer. He told me to eat whatever I wanted in moderation. Well, his idea of moderation could be entirely different than my idea of moderation.. He didn’t even check my stomach for soreness, nothing. He stated that I need a colonoscopy-soon. I told him to take the scope and stick it up his ass and say cheese, then I walked out. This doctor saw the excellent insurance I had, and decided to milk it. All this, and I will never be able to work. I have no office skills so working behind a desk is a mood point. Besides, I am 60 years old.
    . My advice to everyone out there: If you ever have to go into the hospital again, make sure they tell you what you are being given, and what the side-effects are. Being as I had a closed head injury, they never should have given me this lethal drug. I was already neurologically impaired.
    When we are all admitted into the hospital, there is a “Patient’s Rights” form you must sign. Nowhere does it state that medical staff are obligated to inform the patient of what he/she is given or its side-effects. If I would have known, I would have refused it. They could of sent me home with a script for Amoxicillan.- that would have taken care of what I had. There is a clause Or Act, you might say, that I am trying to pass through Legislature, that would require all medical facilities to add to their standard form that would read: “Patient’s Have A Right to ‘NO’ (know) A little play on words. By refusing these drugs, and asking for an antibiotic that is less lethal, stockholders would eventually lose a great deal of money- not to mention, the Pharamcutical companies.. I have not heard back, probably never will. I’m looking for people to back me and go to Washington. Together, we can stop doctors from freely prescribing this drug , in the name of greed. Please note: This only applies to people who were administered this drug in a hospital. If you were given a script which clearly states it’s side-effects, they would say, you were clearly warned. Please contact me.
    Lisa, your a great example for us all. I thank you for your story. You are clearly a positive example for us all.

  44. moldandlymeillness February 17, 2017 at 8:13 pm Reply

    Hi I was wondering if you could tell me why ibuprofen triggers the toxic reaction with floroquinolones? I had the same thing happen to me when I had a toxic reaction to a steroid. Three weeks later I took ibuprofen mixed with dmso and it kicked up all the steroid symptoms majorly and i realized it was still in my body. DMSO greatly potentiates medications its mixed with. That was seven months ago and im still struggling greatly. Any info would be appreciated as to why that may have happened. The next time I tried to take ibuprofen after that I could tell it was extremely toxic to me after that. Thank you

  45. No cipro February 17, 2017 at 9:21 pm Reply

    I don’t have an answer but I had a similar problem. I was majorly floxed in 2013. I started doing better over time. Severe reaction cns problems, eye floaters, vertigo, weak, fealing hypoglycemic etc. then I got pregnant and months later felt “normal” again for the most part. Then when baby was 1 I got a terrible nerve pinch in my upper back. Was prescribed steroids and 800 mg ibuprofen. HUGE mistake. Not only did it not at all help pinched nerve but brought on a severe relapse. I would like to know the same thing you ask!! I’m better now. That happened September. It took a few months.

    • Lisa February 19, 2017 at 2:19 pm Reply

      Please see my answer above for information about NSAIDs and FQs. It’s interesting that pregnancy helped your flox symptoms. I often wonder how connected the symptoms are to hormones, and I suspect that the answer is that they are VERY connected. Our guts, our hormones, our nervous system, our immune system, etc. are all intimately connected.

  46. Alan February 21, 2017 at 8:00 pm Reply

    Stop going to the doctor every time you have an itch or a twitch. Use your head: Ditch your overpriced health insurance. Get more sleep, walk more, eat real food. Reclaim your life and sanity.
    :})

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