*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
Lisa’s Story
In the middle of November, 2011, I took Cipro to treat a urinary tract infection. I took 2 pills (500 mg each, I believe) a day for three days. I didn’t feel like the infection was gone, so I went back to the doctor and requested more antibiotics. He gave me macrobid and the infection subsided within a couple of days. Life went on as normal for the next couple of weeks, until December 2, 2011, at which time I got my period and started taking ibuprofen to help me to deal with the cramps.
Before I continue with my story, I would like to note that I had taken Cipro to treat a urinary tract infection approximately a year earlier. I had no notable side effects at that time. Though, looking back on things, I did develop an eyelid twitch at that time and some strange stomach cramping that came and went started then. I didn’t think anything of the eyelid twitching or the stomach cramps. I certainly didn’t think that they were tied to the Cipro. I took ibuprofen regularly after taking Cipro with no adverse effects.
On December 2, 2011 my legs started to itch. On December 4th I broke out in hives all over my body. I went to the doctor and was told to take Benadryl. I took more Benadryl than the box recommends and my hives got progressively worse. On December 5th my feet and hands swelled to the point that I couldn’t use them anymore. It was painful to walk, or even to just stand. I went back to the doctor and was put on prednisone. The prednisone suppressed the swelling and calmed the hives a bit. On December 7th my left leg went weak. For the next few weeks the following symptoms got worse and worse:
- Weakness in my legs. I could barely walk. The steps that I could take took a tremendous amount of effort and energy. I couldn’t stand for more than a minute. I had to drag a chair into the kitchen in order to cook rice because I couldn’t stand to stir the pot.
- Tightness of the tendons in my legs. I had inflammation, and possibly tears, in most of the tendons in my legs and feet. My hips, knees and ankles, to simplify things, didn’t work right.
- Loss of use of muscles / loss of strength. My muscles, especially the muscles in my legs, wouldn’t move like they used to. All of my movements were slow and deliberate.
- Brain fog. I couldn’t think straight. I felt stupid. I couldn’t concentrate. It was a struggle to do my job.
- Loss of memory. My short-term memory decreased significantly.
- Loss of peripheral vision. Large, black floaters entered my peripheral vision.
- Loss of appetite and weight.
- Loss of flexibility. I went from being able to do yoga several times a week to being unable to sit with my legs curled up under me.
- Loss of balance.
- Severe loss of energy. I felt like the plug had been pulled from my energy source. I wasn’t necessarily sleepy, I was just drained. The feeling was similar to the feeling that I have when I have a cold – weak and like I just want to collapse. Just slight exertion would drain me of my energy. Walking would make me tired for a whole day afterward.
- Dry mouth.
- Anxiety. I had an ongoing anxiety attack for the first couple of months after being floxed.
- Pain in my feet. I felt like I was walking on hot coals with every step I took.
- Loss of reading comprehension. I would read a page and have no idea what I had just read.
- Loss of social skills / connectedness. I felt anxious and scared in social situations. I lost confidence in both my physical and mental abilities. I felt very alone despite having a wonderfully supportive family.
I felt as if I had aged 20 years in just a week or two. I couldn’t move, think or eat. My body and mind were falling apart and I had no idea why. I didn’t think that the sudden decline in my health had anything to do with the Cipro. After all, I had stopped taking it a couple of weeks before my body started to fall apart. I thought that I had an autoimmune disease. My symptoms seemed similar to those of rheumatoid arthritis. I went back to the doctor and they ran every test imaginable on me. I was relieved to find out that I didn’t have an autoimmune disease, but it was somewhat frustrating to hear that all of the tests were showing that I was normal and healthy when, clearly, I was neither normal nor healthy. The doctors did not provide me with a diagnosis or a prognosis. Though I was desperately seeking a diagnosis and prognosis, I am thankful, in retrospect, that they didn’t misdiagnose me. If I had been mistakenly diagnosed as having an autoimmune disease, I may have treated it with pharmaceuticals that could have made me feel even worse.
I was desperate for some treatment, something to stop the downward spiral that my body, mind and spirit were in. The traditional medical doctors I saw provided no relief, treatment or healing. I started seeing an acupuncturist. He was able to stabilize my condition, calm my nerves and keep me from spiraling physically or mentally. After a few weeks feeling stable physically, I started to have days where I felt better than I had the day before. Mentally, I kept going downhill for a while, but, eventually my mental health stabilized and started to improve as well.
Eventually, with the help of my acupuncturist, I connected my symptoms to Cipro. Once the connection was made, I realized that all of my symptoms were consistent with those of others who have been poisoned by Cipro and other fluoroquinolone antibiotics. I entered the scary world of being a floxie.
For about a year, I considered myself to be sick. Though the symptoms listed above were improving, slowly but steadily, I was still sick, and a long ways from the healthy, active, energetic woman that I was before I took Cipro. After a year, I started to put “sick” in the past tense. Though I wasn’t back to the level of health that I was prior to being floxed, I was getting better and, as far as most people could tell, I was well.
Following is a list of things that I did to help me to get well, to heal. I am not a doctor. This is a description of my experience and what helped me. I hope that what helped me helps you. Everyone is different though. What helped me may not help you. One thing that I know helped me and that I know will help you is hope. I hope that the fact that I have largely recovered helps you to have hope. I hope that the other steps that I took to get well also help you to gain hope and healing.
Please feel free to contact me with any questions, comments or concerns, or to share your story.
Lisa’s Healing Tips
One of the many frustrating things about fluoroquinolne toxicity is that everyone’s body is different. Everyone’s symptoms are different and everyone’s body reacts differently to treatments. Following is a list of things that helped me. I hope that what helped me will help you, but it may not. I am including other people’s healing tips as well, in case their tips can help. Of course, please read these tips with the typical disclaimer in mind – I am not a doctor or medical professional of any kind. I am sharing my experience with the hope that others may find it to be useful. Please ask your doctor, or other trusted medical professional, for medical advice, and before taking any of my advice.
In no particular order, here are the things that helped me to heal.
- Time. With time, I have healed. Each day is better than the day before. Time will heal your wounds too. Eventually, you will get better. The poisonous reaction affecting every part of your body will eventually stop and you will begin to recover. I have heard several stories of fellow floxies having a timeline similar to mine – slow, steady recovery for about 2 years. Other people take more, or less, time to recover. Time does help though, and most people do end up getting better as time goes on. Very few people get worse and worse indefinitely. There may be bumps in the road, but time is your friend. Time will help you to return to a state of health.
Try to be patient with yourself. It will take time for your body and mind to heal. I see this whole ordeal of getting sick as a lesson in patience (and compassion, gratitude and health). Pushing yourself too hard too soon can lead to pain, frustration and injury. Try to give yourself the time necessary to heal, and, with time, your body and mind will, indeed, heal.
- Avoid NSAIDs and steroids like the plague. Both NSAIDs and steroids are contraindicated with fluoroquinolone toxicity. They will make your reactions and symptoms worse. There are some published medical articles on PubMed about the contraindication between NSAIDs/steroids and fluoroquinolones. Searching at the library or on Google will give you more detailed information than I can provide. Anecdotally, I know that my reaction was triggered by taking NSAIDs (ibuprofen that I took to help me to deal with menstrual cramps) and it was exacerbated by taking prednisone (a steroid). Please note that I did NOT take NSAIDs or steroids at the same time as Cipro. I took ibuprofen 2 weeks after I finished taking Cipro and it triggered my toxic reaction and I took prednisone 3 weeks after I had finished taking Cipro, after my reaction had started. I will never take another NSAID or steroid again.
Unfortunately, NSAIDs and steroids are the drugs that are the most commonly prescribed drugs used to “treat” fluoroquinolone toxicity. This is because the combination of NSAIDs/steroids and fluoroquinolones does not always cause a toxic reaction, the toxic reaction of combining fluoroquinolones and NSAIDs/steroids can occur even when the drugs are taken weeks or months apart, doctors and other medical professionals don’t acknowledge fluoroquinolone toxicity and so they don’t look for the contraindications and because many of the symptoms of fluoroquinolone toxicity are treated with NSAIDs and steroids. The pain killing qualities of NSAIDs and the swelling reduction qualities of steroids make them the drugs of choice for treating many of the symptoms of fluoroquinolone toxicity. Don’t take them though! In my nonmedical opinion, I suggest taking non-NSAID over-the-counter pain medicine like acetaminophen (Tylenol) for pain (or marijuana – which is probably better for your liver), and antihistamines for the swelling.
Often, fluoroquinolne toxicity is misdiagnosed as an autoimmune disease. In particular, it is often misdiagnosed as rheumatoid arthritis. Many of the drugs that are used to treat rheumatoid arthritis are NSAIDs. Don’t take them.
- Acupuncture. I credit my acupuncturist with saving my life. I can only guess how I would have fared without my acupuncturist, but I imagine that I would have ended up in the emergency room, pumped full of steroids and antidepressants, having a massive anxiety attack and unable to walk. That didn’t happen though and there really isn’t any point in surmising about what could have been. I do know that acupuncture stopped my downward spiral and got me on the road to recovery. Both the acupuncture needles and the herbs that he provided gave me immense relief. I don’t know why or how acupuncture works, but I do know that it worked wonders for me.
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Supplements. I have taken more supplements than I can remember. 90% of them had no noticeable effect on my health. Here is a list of supplements that I think helped me.
Iron. I take a low dose iron supplement – only 5 mg. – daily. The brand of iron supplement that I use is Pur Absorb, but I’m guessing that other low-dose iron supplements will work equally well. Within just a couple days of starting taking the iron supplement, my energy levels increased dramatically. I could walk a mile without being exhausted afterward. In addition to improving my energy level, the iron supplement seems to make my muscles and tendons more supple and malleable. When my tendons are feeling tight, a dose of iron helps to loosen them up – within just a couple hours. Too much iron is really bad for you, so please be careful with supplementing it (ask your doctor, yada yada), but it helps me immensely.
Magnesium. I take 250 mg of chelated magnesium daily. I don’t necessarily notice that it makes me feel better, but I do notice that I feel worse when I don’t take it. My muscles twitch if I don’t take my mag.
Zinc. I take zinc when I get around to it. I remember feeling mildly better when I started taking it. It doesn’t seem to affect my health dramatically though.
Chlorophyll. I take chlorophyll about every other day. It seems to help with my energy level and mental functioning.
I also take fish oils, resveratrol, a probiotic, a joint supplement, CoEnzyme Q10, vitamin B12, chlorella, glucosamine, brewer’s yeast and some other supplements. They may help. I can’t say that I feel a difference using any of them.
- Meditate. Meditating has so many amazing, positive benefits for your brain, your life, your spirit, etc. that I can go on about it ad nauseam. Meditation helped relieve a lot of the mental symptoms of my fluoroquinolone toxicity. My anxiety, inability to concentrate, inability to connect with others, depression, loss of reading comprehension, decreased mental acuity, etc. were greatly reduced (or improved) through meditating. I meditate about 10 minutes each day. I should meditate more like 20-30 minutes a day.
Meditating helped me to gain compassion for myself and my situation. It also helped me to let go of the anger that I felt toward the pharmaceutical companies and the medical culture that allows fluoroquinolones to be on the market. The pharmaceutical companies and the medical culture are both messed up and blame of them is justified, but anger and blame were not serving me mentally, emotionally, spiritually or physically. I needed to let go of my anger and blame in order to move on with my life. Meditating helped with that.
I learned to meditate through taking a class called Mindfulness Based Stress Reduction that was offered by my health insurer. It was an excellent class based on the work of Jon Kabat-Zinn. Many Buddhism centers offer Mindfulness Based Stress Reduction or Meditation 101 classes.
- Get off the internet. Most of the information available on the internet about fluoroquinolone toxicity is horrifying. Fluoroquinolone toxicity is horrifying. It is scary. It is completely unacknowledged by the medical community – the doctors, nurses, etc. who we go to in order to make sense of things when our body goes hay-wire – so we seek answers on the internet. Unfortunately, most internet sites devoted to fluoroquinolone toxicity do not provide a balanced picture. They show the harm and the horror of fluoroquinolone poisoning, but they don’t show the healing and hope that most people eventually experience. I am writing and distributing this in order to provide the perspective of hope and healing. Some people are permanently disabled from fluoroquinolones. My heart goes out to those people and they have every right to scream their story on the internet. However, their story is not your story. My story is not your story either. But if you’re going to look to the internet for a prognosis, it’s better to find a hopeful prognosis than one that is full of doom and gloom.
When I participated in the online forums for Floxies, I noticed that my anxiety levels increased significantly. Even after I was 90% recovered and I thought I could handle it, my anxiety levels would go up simply by reading about people being floxed. Inducing anxiety is one of the worst things that someone suffering from fluoroquinolone toxicity should do. Anxiety makes all symptoms worse. I would slowly relapse and my symptoms would get worse every time I participated in the online forums.
Of course, the people participating in the online forums are seeking to help fellow Floxies, to commiserate and to participate in a support group. It is not their fault that my anxiety levels increased when viewing their sites and/or support groups. After all, most people on those sites are trying to be helpful and supportive. However, the net result of participating in the forums for Floxies is that my anxiety levels increased and my health declined while I was on those sites. I am healthier and happier not participating in the online “support groups” than I was while I did participate in those groups. Of course, this is my experience only. Many people find solace in the Floxie community and if it helps you, great!
The people who have worked hard to create a community of Floxies to support one another should be commended. It is because of their hard work that thousands of people have realized what is going on with their bodies and that they are not alone. The community of Floxies is full of wonderful people. However, you need to do what you need to do to take care of your health and if you find that hearing other people’s stories increases your anxiety levels, get off the internet. For you.
- Diet. I lost 11 pounds in 18 days when I first got floxed. My body was going hay-wire and it seemed like an allergic reaction. I had no idea what I could possibly be allergic to so I stopped eating almost everything. I didn’t eat sugar (including fruit), gluten, dairy, soy, anything non-kosher or anything spicy, or drink any alcohol or caffeine, for a month. I only ate vegetables and organic meat. It’s a highly effective way to lose weight, but I don’t think that restricting my diet severely helped me to heal. Restricting my diet gave me a sense of control, and that’s not a bad thing when your body is self-destructing, but I don’t think that it made me feel any better physically. After a month of only eating veggies and organic meat, I started to add normal foods into my diet. As soon as I started eating an appropriate number of calories, I started to feel better. Not only was I Floxed, I was also wasting away when I wasn’t eating normally. Getting enough food is an important part of healing. Of course, it’s generally good to be on the “don’t eat junk” diet, but I didn’t find that cutting my food intake significantly helped me to feel better.
Many Floxies develop GI problems. I was lucky in that I didn’t have many GI problems. Many people seem to be helped by cutting gluten, sugar and/or junk food out of their diet.
I notice that I feel slightly worse than normal when I consume sugar and/or caffeine. I think that most people do, I am just now accustomed to paying closer attention to my body.
The only food that makes me feel noticeably better is beets. For some reason, beets make me feel great. I just boil them and eat them.
I’ve heard good things about the benefits for Floxies of eating broccoli and other cruciferous vegetables. I love broccoli so I try to eat a lot of it. Unfortunately, I can’t say that I’ve noticed that it makes me feel better.
- Swim. My tendons and muscles feel significantly better when I’m in the water, and for several hours after I finish swimming. Swimming in the ocean feels especially therapeutic. There are so many minerals and trace nutrients in the ocean, I surmise that they’re helpful for healing. Unfortunately, I don’t live near the sea, so I swim in a pool. I feel better when I do so.
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Pilates. I started doing Pilates about 7 months post-floxing. Pilates strengthens the core, something that is generally important, and gently stretches muscles, tendons and ligaments, something that is particularly important for Floxies. I started slowly and gently and didn’t push my tendons, muscles or ligaments too much. I feel that gently stretching helped my tendons, muscles and ligaments to heal and return to (close to) their pre-floxing capacity. Take it easy though.
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Healing arts. I love to dance. I’m not a good dancer, but I love to do it. About 16 months post-floxing I started to dance again. Dance has been healing for me. I feel spiritual, strong and joyful when I dance. I’m not sure if it’s the dancing itself that I find to be healing, of if it’s the joy that I feel when I dance that is healing. Either way, it helps. I surmise that other forms of expression would have similar healing qualities. If you love to sing, sing. If you love to paint, paint. If you love to write, write.
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Attitude tips.
Try not to compare yourself to how you used to be. I used to hike 20 miles in a day. I can’t do that anymore, but I can hike 3 miles today and I couldn’t do that when I first got floxed. Compare yourself to how you were yesterday, not to how you were before you got floxed.
Do something – anything – to work toward healing, every day. Walk a little further than you did yesterday. Meditate. Take an Epsom Salt bath. Get an acupuncture treatment. Do a puzzle. Whatever makes you feel good – do it. Every little step helps.
Don’t kill yourself. Have hope. You will get better.
You’re not crazy. You’re sick. Have hope. You will get better.
You’re not stupid. You’re sick. Have hope. You will get better.
Try not to identify yourself as sick. The mind is a powerful thing so try to stay positive. It’s hard, I know. But try, because it’s worth it.
You will have bad days. They will pass. This all will pass. It is not permanent. You are strong – present tense. You were knocked down, but you weren’t killed. You will get better.
Don’t quit your job. Try to maintain as much normalcy in your life as you can.
It is not your fault. Even if you knew better, even if you demanded the most powerful drug possible from your doctor, even if you self-medicated, even if you coerced your doctor into giving you the fluoroquinolone antibiotic, even if the infection that you were treating was something that you got because of doing something stupid, or from sex, even if you continued to take it after you started to get sick, even if you floxed your child/parent or other loved one – IT IS NOT YOUR FAULT. You are sick. You are poisoned. You are not to blame for your sickness or for the fact that you are poisoned. Who to blame is a discussion that I don’t want to get into because I want this to be positive, but it is not you. You are not to blame. You are a victim. It is not your fault.
Lisa’s Life now
Life is good. I don’t consider myself to be sick any more. I’m not quite up to my pre-floxing capacity in a couple of areas. I don’t have the endurance, energy, strength or flexibility that I used to. However, I’m pretty close to my pre-floxing capacity in those, and other, areas. I’m about 99% better. Not being capable of intense exercise since December, 2011 has left me a bit out of shape, but I’m working toward being able to exercise intensely again and my stamina, strength, energy, etc. are increasing. I can’t hike 15 miles with a backpack on quite yet (something I could do before I was floxed), but I am capable of most physical and mental activities that would put me in the “normal” or “not sick” categories.
I can work full-time. I am grateful for the fact that I have a job that is not too demanding physically or mentally because I was able to hold onto it through my worst times. My boss and coworkers were wonderfully understanding and they claim not to have noticed that I couldn’t think straight for about a year. I even got a promotion about a year post-floxing!
I can do Pilates 4 times a week, swim 2 times a week, dance once a week and walk daily.
When I was unable to walk a block I told myself that I would consider myself to be “better” when I could dance all night in heels (my feet hurt like hell when I was sick), I can do that now. I never liked high heels, but I can wear them now.
My memory isn’t quite what it used to be, but it’s good enough to do well at my job and to maintain my relationships.
In many ways, I’m a different person than I was before I got floxed. This has been perplexing for me and my loved ones, but it’s not an altogether negative thing. I’m a much more spiritual person than I was before I got sick. I was a pretty firm Atheist before I was floxed. Now, through meditation, dancing, believing in alternative therapies that focus on energy, etc., I’m finding some spiritual outlets that I didn’t have, need or want in the past.
I have become a more compassionate and patient person. I now empathize with people who have mystery diseases. I used to have the attitude that I now find so frustrating in medical professionals – that if there isn’t a way to diagnose or treat an ailment, it doesn’t exist. Now I know that people are genuinely suffering and that there is a real cause for their pain – regardless of whether or not it is acknowledged by the medical community. My heart goes out to those in pain.
I had to become more compassionate and patient with myself as well.
I like some things that I didn’t like before I was floxed and I don’t like some things that I used to like a lot. I hated swimming for the first 32 years of my life. Now I love it and consider it to be an important aspect of my healing. I used to like working out in an intense way that got me dripping with sweat. Now I like to do exercises like Pilates that are focused, slow and deliberate. I used to love hiking, camping and backpacking. I miss loving those things so I’m going to try to get back into them, but I’m not sure that they’re my passions any more. Drinking used to be one of my favorite pastimes. My tolerance for alcohol is shot now and I don’t really enjoy it any more. I missed it for a while even though I knew that it was for the best that I wasn’t drinking like a fish. My appetite has changed as well. I used to be able to eat a lot of food and I loved to eat. I still eat, of course, but I don’t eat as much as I used to and I don’t eat with as much gusto. This is probably a good thing seeing as I’m not into exercising intensely any longer.
Even though I would do just about anything to turn back time and not take Cipro, the place that I am in life isn’t bad, and I probably would be someplace different if I hadn’t gotten sick. It sucks that I had to gain empathy for people who suffer from pain, mystery ailments and debilitating fatigue, but it’s probably a good thing that I now have more empathy. I would like to think that I’m a better person from going through this. I’m not a stronger person, but maybe I am a better person.
I hope that my tips and words of advice are welcome and helpful. Please feel free to contact me if you have any questions or concerns.
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
It’s hard to say what causes them, a food, supplement or drug that you can’t process I think is the most likely. A few days ago I felt like that and I think idebenone was causing it. You may have a lot of scarry stuff going on for awhile. You need to control your fear and move ahead. Just adopt the attitude that no matter how hard this is you will recover. if you believe that you will. My first 6 months i did a lot of smoothies with my own garden vegies with some whey powder and didn’t eat a whole lot else. That’s not all I ate but I ate a lot less that usual. I think that helped. You have a lot of oxidative stress that needs to be neutralized.
I did the same thing during this last relapse as you did, Bob. I ate very simply and all nutritious foods. I honestly ate no junk for the past month, not a bite. After three weeks of whole foods (some made into smoothies), I am on the mend. I plan to stay very close to this healthy way of eating.
I love your thoughts on moving forward. Even when those thoughts try to take over, as we know happens with the floxing, it is imperative that we keep moving forward in our bodies (whatever that means for you, with whatever your body can handle). Sometimes it’s just looking out the window and appreciating a light rain, but that is something.
Hi Charles, I am eating mostly whole foods (fruits, veggies, and seeds – raw pumpkin and sunflower, ground chia and flax) or smoothies in my NutriBullet. I know organic would be great, but I am not eating organic. If I were Rockefeller….
Here’s my daily diet for the past 4 weeks:
Breakfast: smoothie that I make the night before of spinach, banana, frozen pineapple and one other frozen fruit (cherries, strawberries, blueberries, peaches, raspberries, or blackberries).
Lunch: Big green salad with spinach, arugula, cilantro, mushrooms, sprouts or red cabbage, pumpkin seeds, sunflower seeds, and a dressing we blend in the NutriBullet made of red peppers, pineapple, and oranges blended together (best healthy dressing I’ve ever had, hands down, so glad we found this new recipe) I also eat beets with balsamic vinegar on the side, just a preference for me.
Afternoon snack: apple or a few mandarin oranges, grapes, sometimes cucumbers, raw carrots (only think I’m not a fan of),
Dinner: another smoothie (with same ingredients as above) plus an apple and possibly another fruit
I am always full and will continue to eat this way even though I’m technically off the 4 week detox. I have reintroduced decaf coffee this weekend and did well, and I may cook a veggie or two on the weekend, but this way of eating is delicious and has improved my health so much (paired with meditation and no exercise) that this basic plan is here to stay. Oh, plus my husband and I are really a big fan of the easy meal prep!
My husband was so upset when I had this relapse two months ago, that when I went to the doctor and he recommended this detox, he said he’d gladly do it with me. The only thing he kept in his diet was morning coffee and a couple of beers on Saturday night. He is very healthy, but he said he feels better and body functions are in tip-top shape….tmi, probably!
Six years ago when I was floxed I continued to eat cheese, meet, whatever I wanted basically until long after I got better. I now wonder: What would my recovery time have been if I did this back then? My guess is probably not two years….
I can’t be 100% on that, as hindsight is rarely 20/20, but I love the way I am feeling this past week. I am like a different person that I was the previous 7 weeks. No brain fog, no waking in the night with vibrations , no nerve pain in my hands. My husband said he thinks I’m 85% back. I would say that’s a good estimate.
Charles, oops! Forgot to answer your very specific question on grains and dairy. I’m not eating grains or dairy.
Before this relapse, I was eating a plant-based diet that included a lot of legumes (black, white, and garbanzo beans specifically) and barley once per day. I relied on those for my nutrients. I do think they’re great sources of nutrients, but I am not eating them now. We researched extensively the amount of protein, iron, and other nutrients in our current way of eating, and we’re getting all the required without them. So, for now, I’m not eating them.
I will probably reintroduce some gluten-free grains, maybe quinoa and the occasional brown rice, and possibly legumes, but they won’t be the staple of my diet like they once were. I’m feeling too good.
Dairy and meat are gone for good for me.
I had a medical intuitive advise me when i got floxed. No meat,dairy, or grains. when i when off that after about 6 months (thanksgiving) I started to get worse. it’s hard for me to restrict my diet so much but I think there is something to it as far as the body’s reactions in trying to process those foods for a floxed person.
Hey Bob, am I reading that correctly in thinking that you got off meat, dairy, and grains and got worse? I just wanted to clarify. I know we are all different, so what works for me is not the cure-all for everyone.
I don’t want anyone to think that I think grains, dairy, or meat caused my relapse this time (that, I believe was adding running to my exercise routine), but I am feeling so good I will keep the whole-foods, plant-based going.
Hi Charles, I get my carbs and protein from veggies, nuts, and seeds. Protein in seeds, nuts, mushrooms, bananas, and mung bean sprouts.
Several other people have lost weight too. My digestive system didn’t seem to be too effected by the FQ. Some constipation, but I have always had trouble with that (tmi….). My nervous system was most affected and then joints and, of course, brain/cognitive.
I would say my severity would be as follows: muscle wasting, PN, Visual, tinnitus, dry eyes, GI issues, insomnia, dry mouth, joint popping, tendon pain, anxiety.
Charles, from your past comments it seems like some things have improved. I hope that continues. I really feel so much better and want to give everyone hope that it can happen to them too.
I got off them last year after I got floxed. When I started to recover I started to eat them again (I was also more active) and then I got worse. I have now gone back on a restricted diet.
That seems to be it. I believe both diet and activity are involved. Which makes sense to me because both will cause stress to the body; activity or a food you can’t tolerate. However, the people that have recovered, or nearly recovered, seem to be undergoing the same cycle but not as severe. They can do a lot more before a relapse, and probably eat more. The variable may be either the condition you were in before you took the cipro or maybe even how much you took. I was already compromised with celiac and gut dysbiosis, and you took a lot more cipro than most. I’m just thinking out loud. I have been doing a lot of research on healing my gut because I don’t think I will heal until that’s better. When I do get better i’m going to try to take it slow and easy. No more climbing on roofs or shoveling snow.
Hi Charles and Bob, I think it’s an interesting thing to ponder and share what works/doesn’t work so others can benefit. I was floxed in 2006, and was not active at all for the first several months, then I added in light walking (mile or two on the weekends). When I quit my full-time job to start my tutoring business a year and a half into it, I started to walk every day and added more speed and distance (working up to a total of five miles a day at a fast clip….man in good shape tried to keep up with us one day and could not). About 2012, I started lifting free weights (5lbs, 8lbs, 10 lbs, and finally 15 lbs per arm). During that time, my diet was getting healthier and healthier. I was losing weight on purpose and, just before this relapse (the only one since 2008), I was in the best shape of my life. So, I think eating a clean diet and doing daily exercise (walking five miles a day, every day, and lifting weights three times a week) was definitely working for me. What sent me into the relapse was running. It took me 2 months and a 4 week detox diet to feel this good.
Tonight I was going to be Super Woman (akin to Charles fixing the roof!) and help my husband move a bed. It was as if my whole body went immediately numb – literally felt like I had been hit by a truck. So….slowly and steadily building back up is key with the physical, for me. I will stick with the diet because I feel like we really get along well.
Hope everyone is having a good night!
Thanks. Yes it does seem I do better when I work on diet. But my diet is very clean. Currently: Chicken, beef, ham, sausage, cheddar cheese, broccoli, califlour, red and green peppers, carrots, pecans, macadamia nuts, sunflower seeds, spinach, celery, asparagus, artichokes, romane, red and green lettuce, butter lettuce, butter, some whole milk yogurt, kefir, cocout oil, olive oil, garlic, onions, green onions, tomatoes, some quinoa, cucumbers, zucchini, squash, coconut flour, avocados, salt, pepper, cur cumin, turmeric, chili powder, oregano, green chilies, pickles, sauerkraut, kimchi, relish, mustard
All food is 100% organic and local from Coop. I usually have minor reacts when I eat, but seems more pronounced recently when eating my fermented foods, which had been working very well to help the function of my gut. When my gut is working better, most of my other symptoms are also reduced.
I have tried to add back in potatoes and Resistant Starch to help with gut function and butyrate production, but I don’t seem to handle them, or any type of carbs well. Least that is how is seems. Quinoa does not seem to effect me much but not sure.
My health gut/ was ok before this, but it was very carb heavy, and I loved breads, and beer. So maybe I had some preexisting issue with gut, and did not know it? I don’t crave carbs much now, but I do enjoy them if I could eat them. i never have had much of sweet tooth.
For me, the relapses do seem to less intense, (at least the last one was), but the first two were actually much worse than the initial insult.
I want to try the juicing as I have heard a few floxies comment that they were really helped by juicing, but I am leery of the sugars…
Bob, I took about 70 to 80 cipro pills. 500mg b.i.d for 35 days. 🙁
Did you ever have a cross reactive test to see what foods bother you. the sweet tooth may indicate candida overgrowth. If my gut is inflammed my whole body is. Dairy really bothers me now but i had to get off of it for a while to find that out. I’m sure you have heard of “leaky gut.” I have that and it sounds like you may also. It has not been easy for me to get the gut back in balance. When I feel better I start eating the wrong thing and I fell bad fast.
yeah, my zonulin levels were off the chart back in July. This is indicative of leaky gut. I have tried lots of diets to help and the only thing that has really helped was fermented foods like pickles and sauerkraut. The real brine fermented kinds, not vinegar pickled. This really did help a good bit, but I had really bad stomach issues about 3 weeks that forced me to stop eating for about a week, and now I am trying to get those foods reintroduced. I don’t have a sweet tooth, never really have. I did crave carbs.
I have had 3 or 4 candida tests. Blood antibody, and stool tests. None of them have shown any type of Candida, but have shown signs of bacterial dysbiosis. and low counts.
Charles, based on the cardiologist-recommended detox that I just did, juicing is what he considers a Level 0 food (best you can eat). He treats people with diabetes as well. I am not sure if you think that the sugar will affect your relapse??? I have been heavy fruit these past four weeks and have seen such great improvements in my health.
Even if they’re organic, meats just aren’t in the plan for me. Lots of people do ’em, but I am going to test my theory and see if I can get to 100 without them. Maybe they can use me as an example or non-example. What is life if not a grand experiment, right?
Hi Charles, I know what you mean. I know one thing that causes my issues – trying to move a heavy mattress! Ugh, just three months ago this would not have been an issue. But I am still feeling better than I was just three weeks ago. Little steps and lots of trial and error.
I don’t wish this upon anyone, and it’s so good that we have people to toss ideas around with. Thank you!
have your visual issues got better Charles… I can see forward fine but my periphal just feels closed in or like im looking at something but im not looking as properly as I used to .. only way I can explain it … eyes have been checked and they are fine
Oh, as for improvement, it comes and goes. Some days better than others. Overall there may be a sight improvement over the last 9 months, but not much, this has been one symptoms that seems to have been pretty consistent though out. Fortuneately it’s been a mild symptom.