*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
Lisa’s Story
In the middle of November, 2011, I took Cipro to treat a urinary tract infection. I took 2 pills (500 mg each, I believe) a day for three days. I didn’t feel like the infection was gone, so I went back to the doctor and requested more antibiotics. He gave me macrobid and the infection subsided within a couple of days. Life went on as normal for the next couple of weeks, until December 2, 2011, at which time I got my period and started taking ibuprofen to help me to deal with the cramps.
Before I continue with my story, I would like to note that I had taken Cipro to treat a urinary tract infection approximately a year earlier. I had no notable side effects at that time. Though, looking back on things, I did develop an eyelid twitch at that time and some strange stomach cramping that came and went started then. I didn’t think anything of the eyelid twitching or the stomach cramps. I certainly didn’t think that they were tied to the Cipro. I took ibuprofen regularly after taking Cipro with no adverse effects.
On December 2, 2011 my legs started to itch. On December 4th I broke out in hives all over my body. I went to the doctor and was told to take Benadryl. I took more Benadryl than the box recommends and my hives got progressively worse. On December 5th my feet and hands swelled to the point that I couldn’t use them anymore. It was painful to walk, or even to just stand. I went back to the doctor and was put on prednisone. The prednisone suppressed the swelling and calmed the hives a bit. On December 7th my left leg went weak. For the next few weeks the following symptoms got worse and worse:
- Weakness in my legs. I could barely walk. The steps that I could take took a tremendous amount of effort and energy. I couldn’t stand for more than a minute. I had to drag a chair into the kitchen in order to cook rice because I couldn’t stand to stir the pot.
- Tightness of the tendons in my legs. I had inflammation, and possibly tears, in most of the tendons in my legs and feet. My hips, knees and ankles, to simplify things, didn’t work right.
- Loss of use of muscles / loss of strength. My muscles, especially the muscles in my legs, wouldn’t move like they used to. All of my movements were slow and deliberate.
- Brain fog. I couldn’t think straight. I felt stupid. I couldn’t concentrate. It was a struggle to do my job.
- Loss of memory. My short-term memory decreased significantly.
- Loss of peripheral vision. Large, black floaters entered my peripheral vision.
- Loss of appetite and weight.
- Loss of flexibility. I went from being able to do yoga several times a week to being unable to sit with my legs curled up under me.
- Loss of balance.
- Severe loss of energy. I felt like the plug had been pulled from my energy source. I wasn’t necessarily sleepy, I was just drained. The feeling was similar to the feeling that I have when I have a cold – weak and like I just want to collapse. Just slight exertion would drain me of my energy. Walking would make me tired for a whole day afterward.
- Dry mouth.
- Anxiety. I had an ongoing anxiety attack for the first couple of months after being floxed.
- Pain in my feet. I felt like I was walking on hot coals with every step I took.
- Loss of reading comprehension. I would read a page and have no idea what I had just read.
- Loss of social skills / connectedness. I felt anxious and scared in social situations. I lost confidence in both my physical and mental abilities. I felt very alone despite having a wonderfully supportive family.
I felt as if I had aged 20 years in just a week or two. I couldn’t move, think or eat. My body and mind were falling apart and I had no idea why. I didn’t think that the sudden decline in my health had anything to do with the Cipro. After all, I had stopped taking it a couple of weeks before my body started to fall apart. I thought that I had an autoimmune disease. My symptoms seemed similar to those of rheumatoid arthritis. I went back to the doctor and they ran every test imaginable on me. I was relieved to find out that I didn’t have an autoimmune disease, but it was somewhat frustrating to hear that all of the tests were showing that I was normal and healthy when, clearly, I was neither normal nor healthy. The doctors did not provide me with a diagnosis or a prognosis. Though I was desperately seeking a diagnosis and prognosis, I am thankful, in retrospect, that they didn’t misdiagnose me. If I had been mistakenly diagnosed as having an autoimmune disease, I may have treated it with pharmaceuticals that could have made me feel even worse.
I was desperate for some treatment, something to stop the downward spiral that my body, mind and spirit were in. The traditional medical doctors I saw provided no relief, treatment or healing. I started seeing an acupuncturist. He was able to stabilize my condition, calm my nerves and keep me from spiraling physically or mentally. After a few weeks feeling stable physically, I started to have days where I felt better than I had the day before. Mentally, I kept going downhill for a while, but, eventually my mental health stabilized and started to improve as well.
Eventually, with the help of my acupuncturist, I connected my symptoms to Cipro. Once the connection was made, I realized that all of my symptoms were consistent with those of others who have been poisoned by Cipro and other fluoroquinolone antibiotics. I entered the scary world of being a floxie.
For about a year, I considered myself to be sick. Though the symptoms listed above were improving, slowly but steadily, I was still sick, and a long ways from the healthy, active, energetic woman that I was before I took Cipro. After a year, I started to put “sick” in the past tense. Though I wasn’t back to the level of health that I was prior to being floxed, I was getting better and, as far as most people could tell, I was well.
Following is a list of things that I did to help me to get well, to heal. I am not a doctor. This is a description of my experience and what helped me. I hope that what helped me helps you. Everyone is different though. What helped me may not help you. One thing that I know helped me and that I know will help you is hope. I hope that the fact that I have largely recovered helps you to have hope. I hope that the other steps that I took to get well also help you to gain hope and healing.
Please feel free to contact me with any questions, comments or concerns, or to share your story.
Lisa’s Healing Tips
One of the many frustrating things about fluoroquinolne toxicity is that everyone’s body is different. Everyone’s symptoms are different and everyone’s body reacts differently to treatments. Following is a list of things that helped me. I hope that what helped me will help you, but it may not. I am including other people’s healing tips as well, in case their tips can help. Of course, please read these tips with the typical disclaimer in mind – I am not a doctor or medical professional of any kind. I am sharing my experience with the hope that others may find it to be useful. Please ask your doctor, or other trusted medical professional, for medical advice, and before taking any of my advice.
In no particular order, here are the things that helped me to heal.
- Time. With time, I have healed. Each day is better than the day before. Time will heal your wounds too. Eventually, you will get better. The poisonous reaction affecting every part of your body will eventually stop and you will begin to recover. I have heard several stories of fellow floxies having a timeline similar to mine – slow, steady recovery for about 2 years. Other people take more, or less, time to recover. Time does help though, and most people do end up getting better as time goes on. Very few people get worse and worse indefinitely. There may be bumps in the road, but time is your friend. Time will help you to return to a state of health.
Try to be patient with yourself. It will take time for your body and mind to heal. I see this whole ordeal of getting sick as a lesson in patience (and compassion, gratitude and health). Pushing yourself too hard too soon can lead to pain, frustration and injury. Try to give yourself the time necessary to heal, and, with time, your body and mind will, indeed, heal.
- Avoid NSAIDs and steroids like the plague. Both NSAIDs and steroids are contraindicated with fluoroquinolone toxicity. They will make your reactions and symptoms worse. There are some published medical articles on PubMed about the contraindication between NSAIDs/steroids and fluoroquinolones. Searching at the library or on Google will give you more detailed information than I can provide. Anecdotally, I know that my reaction was triggered by taking NSAIDs (ibuprofen that I took to help me to deal with menstrual cramps) and it was exacerbated by taking prednisone (a steroid). Please note that I did NOT take NSAIDs or steroids at the same time as Cipro. I took ibuprofen 2 weeks after I finished taking Cipro and it triggered my toxic reaction and I took prednisone 3 weeks after I had finished taking Cipro, after my reaction had started. I will never take another NSAID or steroid again.
Unfortunately, NSAIDs and steroids are the drugs that are the most commonly prescribed drugs used to “treat” fluoroquinolone toxicity. This is because the combination of NSAIDs/steroids and fluoroquinolones does not always cause a toxic reaction, the toxic reaction of combining fluoroquinolones and NSAIDs/steroids can occur even when the drugs are taken weeks or months apart, doctors and other medical professionals don’t acknowledge fluoroquinolone toxicity and so they don’t look for the contraindications and because many of the symptoms of fluoroquinolone toxicity are treated with NSAIDs and steroids. The pain killing qualities of NSAIDs and the swelling reduction qualities of steroids make them the drugs of choice for treating many of the symptoms of fluoroquinolone toxicity. Don’t take them though! In my nonmedical opinion, I suggest taking non-NSAID over-the-counter pain medicine like acetaminophen (Tylenol) for pain (or marijuana – which is probably better for your liver), and antihistamines for the swelling.
Often, fluoroquinolne toxicity is misdiagnosed as an autoimmune disease. In particular, it is often misdiagnosed as rheumatoid arthritis. Many of the drugs that are used to treat rheumatoid arthritis are NSAIDs. Don’t take them.
- Acupuncture. I credit my acupuncturist with saving my life. I can only guess how I would have fared without my acupuncturist, but I imagine that I would have ended up in the emergency room, pumped full of steroids and antidepressants, having a massive anxiety attack and unable to walk. That didn’t happen though and there really isn’t any point in surmising about what could have been. I do know that acupuncture stopped my downward spiral and got me on the road to recovery. Both the acupuncture needles and the herbs that he provided gave me immense relief. I don’t know why or how acupuncture works, but I do know that it worked wonders for me.
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Supplements. I have taken more supplements than I can remember. 90% of them had no noticeable effect on my health. Here is a list of supplements that I think helped me.
Iron. I take a low dose iron supplement – only 5 mg. – daily. The brand of iron supplement that I use is Pur Absorb, but I’m guessing that other low-dose iron supplements will work equally well. Within just a couple days of starting taking the iron supplement, my energy levels increased dramatically. I could walk a mile without being exhausted afterward. In addition to improving my energy level, the iron supplement seems to make my muscles and tendons more supple and malleable. When my tendons are feeling tight, a dose of iron helps to loosen them up – within just a couple hours. Too much iron is really bad for you, so please be careful with supplementing it (ask your doctor, yada yada), but it helps me immensely.
Magnesium. I take 250 mg of chelated magnesium daily. I don’t necessarily notice that it makes me feel better, but I do notice that I feel worse when I don’t take it. My muscles twitch if I don’t take my mag.
Zinc. I take zinc when I get around to it. I remember feeling mildly better when I started taking it. It doesn’t seem to affect my health dramatically though.
Chlorophyll. I take chlorophyll about every other day. It seems to help with my energy level and mental functioning.
I also take fish oils, resveratrol, a probiotic, a joint supplement, CoEnzyme Q10, vitamin B12, chlorella, glucosamine, brewer’s yeast and some other supplements. They may help. I can’t say that I feel a difference using any of them.
- Meditate. Meditating has so many amazing, positive benefits for your brain, your life, your spirit, etc. that I can go on about it ad nauseam. Meditation helped relieve a lot of the mental symptoms of my fluoroquinolone toxicity. My anxiety, inability to concentrate, inability to connect with others, depression, loss of reading comprehension, decreased mental acuity, etc. were greatly reduced (or improved) through meditating. I meditate about 10 minutes each day. I should meditate more like 20-30 minutes a day.
Meditating helped me to gain compassion for myself and my situation. It also helped me to let go of the anger that I felt toward the pharmaceutical companies and the medical culture that allows fluoroquinolones to be on the market. The pharmaceutical companies and the medical culture are both messed up and blame of them is justified, but anger and blame were not serving me mentally, emotionally, spiritually or physically. I needed to let go of my anger and blame in order to move on with my life. Meditating helped with that.
I learned to meditate through taking a class called Mindfulness Based Stress Reduction that was offered by my health insurer. It was an excellent class based on the work of Jon Kabat-Zinn. Many Buddhism centers offer Mindfulness Based Stress Reduction or Meditation 101 classes.
- Get off the internet. Most of the information available on the internet about fluoroquinolone toxicity is horrifying. Fluoroquinolone toxicity is horrifying. It is scary. It is completely unacknowledged by the medical community – the doctors, nurses, etc. who we go to in order to make sense of things when our body goes hay-wire – so we seek answers on the internet. Unfortunately, most internet sites devoted to fluoroquinolone toxicity do not provide a balanced picture. They show the harm and the horror of fluoroquinolone poisoning, but they don’t show the healing and hope that most people eventually experience. I am writing and distributing this in order to provide the perspective of hope and healing. Some people are permanently disabled from fluoroquinolones. My heart goes out to those people and they have every right to scream their story on the internet. However, their story is not your story. My story is not your story either. But if you’re going to look to the internet for a prognosis, it’s better to find a hopeful prognosis than one that is full of doom and gloom.
When I participated in the online forums for Floxies, I noticed that my anxiety levels increased significantly. Even after I was 90% recovered and I thought I could handle it, my anxiety levels would go up simply by reading about people being floxed. Inducing anxiety is one of the worst things that someone suffering from fluoroquinolone toxicity should do. Anxiety makes all symptoms worse. I would slowly relapse and my symptoms would get worse every time I participated in the online forums.
Of course, the people participating in the online forums are seeking to help fellow Floxies, to commiserate and to participate in a support group. It is not their fault that my anxiety levels increased when viewing their sites and/or support groups. After all, most people on those sites are trying to be helpful and supportive. However, the net result of participating in the forums for Floxies is that my anxiety levels increased and my health declined while I was on those sites. I am healthier and happier not participating in the online “support groups” than I was while I did participate in those groups. Of course, this is my experience only. Many people find solace in the Floxie community and if it helps you, great!
The people who have worked hard to create a community of Floxies to support one another should be commended. It is because of their hard work that thousands of people have realized what is going on with their bodies and that they are not alone. The community of Floxies is full of wonderful people. However, you need to do what you need to do to take care of your health and if you find that hearing other people’s stories increases your anxiety levels, get off the internet. For you.
- Diet. I lost 11 pounds in 18 days when I first got floxed. My body was going hay-wire and it seemed like an allergic reaction. I had no idea what I could possibly be allergic to so I stopped eating almost everything. I didn’t eat sugar (including fruit), gluten, dairy, soy, anything non-kosher or anything spicy, or drink any alcohol or caffeine, for a month. I only ate vegetables and organic meat. It’s a highly effective way to lose weight, but I don’t think that restricting my diet severely helped me to heal. Restricting my diet gave me a sense of control, and that’s not a bad thing when your body is self-destructing, but I don’t think that it made me feel any better physically. After a month of only eating veggies and organic meat, I started to add normal foods into my diet. As soon as I started eating an appropriate number of calories, I started to feel better. Not only was I Floxed, I was also wasting away when I wasn’t eating normally. Getting enough food is an important part of healing. Of course, it’s generally good to be on the “don’t eat junk” diet, but I didn’t find that cutting my food intake significantly helped me to feel better.
Many Floxies develop GI problems. I was lucky in that I didn’t have many GI problems. Many people seem to be helped by cutting gluten, sugar and/or junk food out of their diet.
I notice that I feel slightly worse than normal when I consume sugar and/or caffeine. I think that most people do, I am just now accustomed to paying closer attention to my body.
The only food that makes me feel noticeably better is beets. For some reason, beets make me feel great. I just boil them and eat them.
I’ve heard good things about the benefits for Floxies of eating broccoli and other cruciferous vegetables. I love broccoli so I try to eat a lot of it. Unfortunately, I can’t say that I’ve noticed that it makes me feel better.
- Swim. My tendons and muscles feel significantly better when I’m in the water, and for several hours after I finish swimming. Swimming in the ocean feels especially therapeutic. There are so many minerals and trace nutrients in the ocean, I surmise that they’re helpful for healing. Unfortunately, I don’t live near the sea, so I swim in a pool. I feel better when I do so.
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Pilates. I started doing Pilates about 7 months post-floxing. Pilates strengthens the core, something that is generally important, and gently stretches muscles, tendons and ligaments, something that is particularly important for Floxies. I started slowly and gently and didn’t push my tendons, muscles or ligaments too much. I feel that gently stretching helped my tendons, muscles and ligaments to heal and return to (close to) their pre-floxing capacity. Take it easy though.
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Healing arts. I love to dance. I’m not a good dancer, but I love to do it. About 16 months post-floxing I started to dance again. Dance has been healing for me. I feel spiritual, strong and joyful when I dance. I’m not sure if it’s the dancing itself that I find to be healing, of if it’s the joy that I feel when I dance that is healing. Either way, it helps. I surmise that other forms of expression would have similar healing qualities. If you love to sing, sing. If you love to paint, paint. If you love to write, write.
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Attitude tips.
Try not to compare yourself to how you used to be. I used to hike 20 miles in a day. I can’t do that anymore, but I can hike 3 miles today and I couldn’t do that when I first got floxed. Compare yourself to how you were yesterday, not to how you were before you got floxed.
Do something – anything – to work toward healing, every day. Walk a little further than you did yesterday. Meditate. Take an Epsom Salt bath. Get an acupuncture treatment. Do a puzzle. Whatever makes you feel good – do it. Every little step helps.
Don’t kill yourself. Have hope. You will get better.
You’re not crazy. You’re sick. Have hope. You will get better.
You’re not stupid. You’re sick. Have hope. You will get better.
Try not to identify yourself as sick. The mind is a powerful thing so try to stay positive. It’s hard, I know. But try, because it’s worth it.
You will have bad days. They will pass. This all will pass. It is not permanent. You are strong – present tense. You were knocked down, but you weren’t killed. You will get better.
Don’t quit your job. Try to maintain as much normalcy in your life as you can.
It is not your fault. Even if you knew better, even if you demanded the most powerful drug possible from your doctor, even if you self-medicated, even if you coerced your doctor into giving you the fluoroquinolone antibiotic, even if the infection that you were treating was something that you got because of doing something stupid, or from sex, even if you continued to take it after you started to get sick, even if you floxed your child/parent or other loved one – IT IS NOT YOUR FAULT. You are sick. You are poisoned. You are not to blame for your sickness or for the fact that you are poisoned. Who to blame is a discussion that I don’t want to get into because I want this to be positive, but it is not you. You are not to blame. You are a victim. It is not your fault.
Lisa’s Life now
Life is good. I don’t consider myself to be sick any more. I’m not quite up to my pre-floxing capacity in a couple of areas. I don’t have the endurance, energy, strength or flexibility that I used to. However, I’m pretty close to my pre-floxing capacity in those, and other, areas. I’m about 99% better. Not being capable of intense exercise since December, 2011 has left me a bit out of shape, but I’m working toward being able to exercise intensely again and my stamina, strength, energy, etc. are increasing. I can’t hike 15 miles with a backpack on quite yet (something I could do before I was floxed), but I am capable of most physical and mental activities that would put me in the “normal” or “not sick” categories.
I can work full-time. I am grateful for the fact that I have a job that is not too demanding physically or mentally because I was able to hold onto it through my worst times. My boss and coworkers were wonderfully understanding and they claim not to have noticed that I couldn’t think straight for about a year. I even got a promotion about a year post-floxing!
I can do Pilates 4 times a week, swim 2 times a week, dance once a week and walk daily.
When I was unable to walk a block I told myself that I would consider myself to be “better” when I could dance all night in heels (my feet hurt like hell when I was sick), I can do that now. I never liked high heels, but I can wear them now.
My memory isn’t quite what it used to be, but it’s good enough to do well at my job and to maintain my relationships.
In many ways, I’m a different person than I was before I got floxed. This has been perplexing for me and my loved ones, but it’s not an altogether negative thing. I’m a much more spiritual person than I was before I got sick. I was a pretty firm Atheist before I was floxed. Now, through meditation, dancing, believing in alternative therapies that focus on energy, etc., I’m finding some spiritual outlets that I didn’t have, need or want in the past.
I have become a more compassionate and patient person. I now empathize with people who have mystery diseases. I used to have the attitude that I now find so frustrating in medical professionals – that if there isn’t a way to diagnose or treat an ailment, it doesn’t exist. Now I know that people are genuinely suffering and that there is a real cause for their pain – regardless of whether or not it is acknowledged by the medical community. My heart goes out to those in pain.
I had to become more compassionate and patient with myself as well.
I like some things that I didn’t like before I was floxed and I don’t like some things that I used to like a lot. I hated swimming for the first 32 years of my life. Now I love it and consider it to be an important aspect of my healing. I used to like working out in an intense way that got me dripping with sweat. Now I like to do exercises like Pilates that are focused, slow and deliberate. I used to love hiking, camping and backpacking. I miss loving those things so I’m going to try to get back into them, but I’m not sure that they’re my passions any more. Drinking used to be one of my favorite pastimes. My tolerance for alcohol is shot now and I don’t really enjoy it any more. I missed it for a while even though I knew that it was for the best that I wasn’t drinking like a fish. My appetite has changed as well. I used to be able to eat a lot of food and I loved to eat. I still eat, of course, but I don’t eat as much as I used to and I don’t eat with as much gusto. This is probably a good thing seeing as I’m not into exercising intensely any longer.
Even though I would do just about anything to turn back time and not take Cipro, the place that I am in life isn’t bad, and I probably would be someplace different if I hadn’t gotten sick. It sucks that I had to gain empathy for people who suffer from pain, mystery ailments and debilitating fatigue, but it’s probably a good thing that I now have more empathy. I would like to think that I’m a better person from going through this. I’m not a stronger person, but maybe I am a better person.
I hope that my tips and words of advice are welcome and helpful. Please feel free to contact me if you have any questions or concerns.
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
I had a gut problem before I got floxed having celiac. I also had a problem with heavy metals and fungus. I had tried to detox the heavy metals with a supplement called chelorex but I couldn’t do it. It just made me sicker. So I just lived day to day sick and tired but functional. After I got floxed I knew I needed to get help fast. My wife told me about Linda Fred, a medical intuitive (The Healing Gift) She had been very sick herself once, as well as her husband, and they went to Europe and got treated over there. Both recovered. At some point she started working with one or more of these doctor’s as a medical intuitive. She seems to be expert at detoxing. She had me on a boatload of supplements but in a very controlled and and systematic way. She knows a lot about miasms which will prevent one from detoxing until they are cleared. I was improving until I went off her program and started to relapse fast. I went off the program because I didn’t want to keep taking all those supplements and I thought I didn’t need them. Charles you need someone that really knows what they are doing with detox. Maybe she could help. I know I tried to find generic advice in the past that work for others but it didn’t work for me.. If you have gut issues and your detoxing the toxins can go right thru a leaky gut right back into the blood stream. In my case I am nowhere near as good as I was last year at this time and I believe part of it is getting off the program. . You need periodic monitoring on your specific condition as you progress. I do think what Ruth says is true about whatever is healing hurts the most. I have worked with practitioners in the past that used frequency devices to diagnose and monitor supplements that would work for the person they are testing at the time. Linda Freud can do that without a machine. It’s something to consider. I was on her website recently and saw she is doing work with a detox center in CA. You seem pretty smart and committed to recovering and I think you can do it. From working with Linda I know one thing. A supplement that works for someone else may not work for me and a supplement that works for me in one phase will not work for me later. It’s always changing. I am confident we both will recover from this.
Hi Bob..did you go in and see Linda directly? i would love to get in touch w someone like her! Right now I’m taking so many supplements, I wish I had a naturopath Dr to oversee all my supplements and advise me on right dosage, etc. So far I’ve seen two holistic doctors, both I felt like I was teaching them about FQ toxicity,nerve and cell damage too. So far I’m not impressed w anyone I’ve seen, and I spent way too much money already!
Thanks Bob. Do you have any contact info for them?
No, you can have a session with her over the phone or skype. If you go to her website youc an get the info.
the website is “thehealinggift.com” Linda & David Freud. Linda believes her help and information comes from angels. I don’t know who or where it comes form and I don’t care. All information is available to everyone in the unified field if you study quantum physics. You just have to get on the right frequency. If you study Edgar Cayce he did this and proved it over many years. I am using some of his suggestions and i am going to try some more. I will report on the results. I know the body can heal anything if we don’t sabatoge it with our doubt and fear. “Your faith has made you whole.” Yes, faith that you will heal.
Bob. I am and have always been a believer in after life. Angels etc. There’s to many stories out there not to believe.
My Mum text me this morning. I had been talking to her about giving up. She told me she had had a message from her mum (my nan)
My Nan had been dead for about 8 yrs.I havnt talked to my mum yet about what this message is.
So im a total believer in what you are saying.
tThere are several of my family members that seem to have psychic abilities of one sort or another.
If you know anything about structured water I make my own using vortexes and magnets. During a session I asked her to give me a reading on the water and she said it was very good. I made an alteration in the device that changed the water flow and asked her to read it again and she picked right up on the change I had made without me telling her.Her husband David Freud wrote a book that goes into depth about detoxing issues. She is a bit expensive but It might be worth giving her a try if nothing else is working.
Yeah, it seems I am headed back into a relapse. the insomnia and anxiety has kicked in pretty good, and my skin is burning and biting all over. I took 600 mg of Mag glycinate last night and my anxiety was better, but my skin burned like fire for 4 hours… Ugh…. I don’t what the hell is going on. What worked at one point no longer works and what did not work, now does. This crap is about to drive me nuts…… 🙁
Melanie…. I hope you don’t give up, no matter how terrible this is. I just think that if you got better once, you will get better again, eventually. That’s interesting
about your grandmother,I hope it was a msg about healing. When you were floxed the first time, did you have to leave work right away? I just returned to work this week, have lots of joint pain that comes and goes, but my balance seems off, and vision a little offset too.
Charles, how many months out are you?
11 tricia. Month 1 was not bad, then bad relapse in months 2-3, recovery in 4-5, horrible relapse in 6-8, good recovery in 9-10, and now partial relapse in 11.
Hi Tricia
like you I work with scissors. Im a dog groomer. I had to give up work last time but luckily all my clients save a few came back to me. Ive had to give up again. I dont have the energy or desire right now. I did my last dogs in september.Luckily my husband’s money covers everything otherwise I just dont know. Last time we had more bills and my credit got hit hard because I couldn’t pay everything. Im just now getting back on my feet as far as thats concerned.
So I talked to my Mum. She’s not a religious person but spiritual in her own way. Many of my family members are “gifted” in one way or another. Its why I believe in the after life. So death doesn’t scare me. My Mum was at a funeral this morning. She never goes to church but she said she was at the church and had herceyes closed. She said she heard her mum say “there is no room here” meaning there is no room for me. Its not my time. I will heal.
my Mum has a picture of my Nan with a candle and a small bear id given her yrs ago in her living room. Shes always had the bear facing the picture. She said this morning it was facing outwards.
I believe in signs. Also one of the prayers at the funeral was the Lord’s prayer and I had been reciting that this morning.
One of my mum’s friends goes to a spiritual church and belongs to a chain from all over the world. One such place is in Rosemont Tx There arevsupposed to be great healers there. My name is in that chain.
Another girlfriend just called me. Her friend is a holistic. She deals is bio feed. She gave her my name so ill talk to her when she calls.
Unfortunately for me I can’t take many many things. All I can do is wait it out. I didn’t take anything last time. I didn’t know what had happened to me and I came through it. Maybe it us mind over matter. Because I know now maybe its scared the $/$/ out of me so my mind wont rest.If my head would clear id cope better. The thing with this is that nobody knows whats coming next. At the beginning of my relapse I could still function and work. For several months in fact. ..well..almost 4 months. So you see. Its just full of surprises.
I took 1 Levaquin and I think 1 Avalox but Avalox doesn’t show on my records so maybe not….so 1 Levaquin. ..really!!!!!
The hardest thing for everyone floxed is you don’t know when or if you will get better. You may not be able to control the when but I believe you have to KNOW you will get better. I struggle with that every day because I can’t walk with out a lot of pain along with the other symptoms. Faith in a doctor or angels or prayers or supplements will not work if you don’t KNOW you will get better. I am certain of that. I am making plans for what i will be able to do when I can walk without pain. I am fortunate because whenever I start to doubt my wife reminds me that is my worst enemy. I am not afraid to die either because my pain would be all over and I would still exist as a conscious being. But i would prefer to overcome this and do a lot more things before i go. I’ve never seen the pyramids of Egypt or the great cathedrals of Europe or the great wall of China or a million other things. I had a great teacher once who said you won’t accomplish anything if you don’t have an agenda. I can lament about what I can’t do now, which is easy and takes no effort, or I can plan on doing some things I have always wanted to do and believe in that. That can change your whole attitude and ATTITUDE IS EVERYTHING.
yeah, it’s hard to see that light in the middle of a flare, or when you have been sleep deprived for a week… You get kind of crazy with no sleep.
I agree.
Of course none of us know if we will get better and that is definitely the hard part.
I have days if absolue sorrow. I told my Mum yesterday. All I want to do is clean my house and be able to gricery shop. Things others take for granted.
Well I did clean house today. Shopping is another thing. I could probably do it but I look dreadful and I know it shouldn’t bother me but it does…and it would be a tremendous effort
My original floxing was horrific. .I remember days of just weeping and howling. Sitting in the corner of my shower just hugging my knees and rocking and crying. Praying God would take me. I GOT BETTER!!!!
Here I am again. Same doubts and same scenario. It sucks big time and I often wish I still didn’t know what this was.But I do and when I get through it I’ll know to look after myself better.If I don’t. …well thats another story
Bob.
My original floxing was horrific but perhaps because I didnt know what it was I healed..I dont know. I remember feeling dreadful and had again lost a ton of weight. Looked aweful. But somehow I started back to work…now I look back im not sure how I did it. I remember crying while grooming .and thinking it didn’t matter because the dogs didn’t care. (I work from home) so nobody to see me. I slowly got better and dont really recall when that moment was that I was “ok”
Your probably right. Once you learned about all the people and the horrible stories then the doubt sets in. Remember when I told you about my wife being sick all those years with lyme disease. No one diagnosed it and no one seemed to be able to help her. I did all I could to help her but after years I told her she was going to have to do it herself. We still tried other treatments after that but she got on the path of deep mediation and visualizing being well. Never in a million years did i dream I would be near disabled and she would be relatively healthy. When you agree that we don’t know if we will get better you’re not getting it. You MUST know you will get better regardless of how you feel. Your body will conform to your belief system. It’s terribly hard to have the patience but that’s where we at. Even if I am all wrong about this what is the alternative? resignation and hopelessness? Take your pick.
Melanie, I think that is such an inspiring story about your grandmother, and that there is no room for you yer, in the afterlife. I agree w Bob that nobody knows when, or if, they will get better. Believing and knowing is the only way we will heal, I think! And I know I’m only a month in and haven’t suffered terribly yet, but I’m guessing it seems hopeless after w while, months and months drag by w so much suffering. Maybe all we need is a sign from the otherside, like what your grandma gave you. She knows you will heal…eventually. At this point this point a sign, or any inclination of a positive outcome at this point would bring such relief. Even if I had to suffer horribly for a year or two, but knew with 100% certainty I’d recover, that would make all the anxiety and worry go away! Anyhow, I hope you do experience some healing soon, and hope someday you can groom dogs again!! Cutting hair, weather people or on animals….is a unique job, and I enjoy it too:) take care !
Yes. I remember you telling me about. Youre wife. She got better Bob so she could help you 🙂 Thats a blessing right there.
Yes. I love my job. I only came into it at y he age of 45 .Im 56 now. Wish id learnt sooner.
Gave to say it the best job ive ever done…nit really like a job. So I hope I can get back to it. I have a home based set up…it was perfect and will be again. Plus I loved my clients