*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
Lisa’s Story
In the middle of November, 2011, I took Cipro to treat a urinary tract infection. I took 2 pills (500 mg each, I believe) a day for three days. I didn’t feel like the infection was gone, so I went back to the doctor and requested more antibiotics. He gave me macrobid and the infection subsided within a couple of days. Life went on as normal for the next couple of weeks, until December 2, 2011, at which time I got my period and started taking ibuprofen to help me to deal with the cramps.
Before I continue with my story, I would like to note that I had taken Cipro to treat a urinary tract infection approximately a year earlier. I had no notable side effects at that time. Though, looking back on things, I did develop an eyelid twitch at that time and some strange stomach cramping that came and went started then. I didn’t think anything of the eyelid twitching or the stomach cramps. I certainly didn’t think that they were tied to the Cipro. I took ibuprofen regularly after taking Cipro with no adverse effects.
On December 2, 2011 my legs started to itch. On December 4th I broke out in hives all over my body. I went to the doctor and was told to take Benadryl. I took more Benadryl than the box recommends and my hives got progressively worse. On December 5th my feet and hands swelled to the point that I couldn’t use them anymore. It was painful to walk, or even to just stand. I went back to the doctor and was put on prednisone. The prednisone suppressed the swelling and calmed the hives a bit. On December 7th my left leg went weak. For the next few weeks the following symptoms got worse and worse:
- Weakness in my legs. I could barely walk. The steps that I could take took a tremendous amount of effort and energy. I couldn’t stand for more than a minute. I had to drag a chair into the kitchen in order to cook rice because I couldn’t stand to stir the pot.
- Tightness of the tendons in my legs. I had inflammation, and possibly tears, in most of the tendons in my legs and feet. My hips, knees and ankles, to simplify things, didn’t work right.
- Loss of use of muscles / loss of strength. My muscles, especially the muscles in my legs, wouldn’t move like they used to. All of my movements were slow and deliberate.
- Brain fog. I couldn’t think straight. I felt stupid. I couldn’t concentrate. It was a struggle to do my job.
- Loss of memory. My short-term memory decreased significantly.
- Loss of peripheral vision. Large, black floaters entered my peripheral vision.
- Loss of appetite and weight.
- Loss of flexibility. I went from being able to do yoga several times a week to being unable to sit with my legs curled up under me.
- Loss of balance.
- Severe loss of energy. I felt like the plug had been pulled from my energy source. I wasn’t necessarily sleepy, I was just drained. The feeling was similar to the feeling that I have when I have a cold – weak and like I just want to collapse. Just slight exertion would drain me of my energy. Walking would make me tired for a whole day afterward.
- Dry mouth.
- Anxiety. I had an ongoing anxiety attack for the first couple of months after being floxed.
- Pain in my feet. I felt like I was walking on hot coals with every step I took.
- Loss of reading comprehension. I would read a page and have no idea what I had just read.
- Loss of social skills / connectedness. I felt anxious and scared in social situations. I lost confidence in both my physical and mental abilities. I felt very alone despite having a wonderfully supportive family.
I felt as if I had aged 20 years in just a week or two. I couldn’t move, think or eat. My body and mind were falling apart and I had no idea why. I didn’t think that the sudden decline in my health had anything to do with the Cipro. After all, I had stopped taking it a couple of weeks before my body started to fall apart. I thought that I had an autoimmune disease. My symptoms seemed similar to those of rheumatoid arthritis. I went back to the doctor and they ran every test imaginable on me. I was relieved to find out that I didn’t have an autoimmune disease, but it was somewhat frustrating to hear that all of the tests were showing that I was normal and healthy when, clearly, I was neither normal nor healthy. The doctors did not provide me with a diagnosis or a prognosis. Though I was desperately seeking a diagnosis and prognosis, I am thankful, in retrospect, that they didn’t misdiagnose me. If I had been mistakenly diagnosed as having an autoimmune disease, I may have treated it with pharmaceuticals that could have made me feel even worse.
I was desperate for some treatment, something to stop the downward spiral that my body, mind and spirit were in. The traditional medical doctors I saw provided no relief, treatment or healing. I started seeing an acupuncturist. He was able to stabilize my condition, calm my nerves and keep me from spiraling physically or mentally. After a few weeks feeling stable physically, I started to have days where I felt better than I had the day before. Mentally, I kept going downhill for a while, but, eventually my mental health stabilized and started to improve as well.
Eventually, with the help of my acupuncturist, I connected my symptoms to Cipro. Once the connection was made, I realized that all of my symptoms were consistent with those of others who have been poisoned by Cipro and other fluoroquinolone antibiotics. I entered the scary world of being a floxie.
For about a year, I considered myself to be sick. Though the symptoms listed above were improving, slowly but steadily, I was still sick, and a long ways from the healthy, active, energetic woman that I was before I took Cipro. After a year, I started to put “sick” in the past tense. Though I wasn’t back to the level of health that I was prior to being floxed, I was getting better and, as far as most people could tell, I was well.
Following is a list of things that I did to help me to get well, to heal. I am not a doctor. This is a description of my experience and what helped me. I hope that what helped me helps you. Everyone is different though. What helped me may not help you. One thing that I know helped me and that I know will help you is hope. I hope that the fact that I have largely recovered helps you to have hope. I hope that the other steps that I took to get well also help you to gain hope and healing.
Please feel free to contact me with any questions, comments or concerns, or to share your story.
Lisa’s Healing Tips
One of the many frustrating things about fluoroquinolne toxicity is that everyone’s body is different. Everyone’s symptoms are different and everyone’s body reacts differently to treatments. Following is a list of things that helped me. I hope that what helped me will help you, but it may not. I am including other people’s healing tips as well, in case their tips can help. Of course, please read these tips with the typical disclaimer in mind – I am not a doctor or medical professional of any kind. I am sharing my experience with the hope that others may find it to be useful. Please ask your doctor, or other trusted medical professional, for medical advice, and before taking any of my advice.
In no particular order, here are the things that helped me to heal.
- Time. With time, I have healed. Each day is better than the day before. Time will heal your wounds too. Eventually, you will get better. The poisonous reaction affecting every part of your body will eventually stop and you will begin to recover. I have heard several stories of fellow floxies having a timeline similar to mine – slow, steady recovery for about 2 years. Other people take more, or less, time to recover. Time does help though, and most people do end up getting better as time goes on. Very few people get worse and worse indefinitely. There may be bumps in the road, but time is your friend. Time will help you to return to a state of health.
Try to be patient with yourself. It will take time for your body and mind to heal. I see this whole ordeal of getting sick as a lesson in patience (and compassion, gratitude and health). Pushing yourself too hard too soon can lead to pain, frustration and injury. Try to give yourself the time necessary to heal, and, with time, your body and mind will, indeed, heal.
- Avoid NSAIDs and steroids like the plague. Both NSAIDs and steroids are contraindicated with fluoroquinolone toxicity. They will make your reactions and symptoms worse. There are some published medical articles on PubMed about the contraindication between NSAIDs/steroids and fluoroquinolones. Searching at the library or on Google will give you more detailed information than I can provide. Anecdotally, I know that my reaction was triggered by taking NSAIDs (ibuprofen that I took to help me to deal with menstrual cramps) and it was exacerbated by taking prednisone (a steroid). Please note that I did NOT take NSAIDs or steroids at the same time as Cipro. I took ibuprofen 2 weeks after I finished taking Cipro and it triggered my toxic reaction and I took prednisone 3 weeks after I had finished taking Cipro, after my reaction had started. I will never take another NSAID or steroid again.
Unfortunately, NSAIDs and steroids are the drugs that are the most commonly prescribed drugs used to “treat” fluoroquinolone toxicity. This is because the combination of NSAIDs/steroids and fluoroquinolones does not always cause a toxic reaction, the toxic reaction of combining fluoroquinolones and NSAIDs/steroids can occur even when the drugs are taken weeks or months apart, doctors and other medical professionals don’t acknowledge fluoroquinolone toxicity and so they don’t look for the contraindications and because many of the symptoms of fluoroquinolone toxicity are treated with NSAIDs and steroids. The pain killing qualities of NSAIDs and the swelling reduction qualities of steroids make them the drugs of choice for treating many of the symptoms of fluoroquinolone toxicity. Don’t take them though! In my nonmedical opinion, I suggest taking non-NSAID over-the-counter pain medicine like acetaminophen (Tylenol) for pain (or marijuana – which is probably better for your liver), and antihistamines for the swelling.
Often, fluoroquinolne toxicity is misdiagnosed as an autoimmune disease. In particular, it is often misdiagnosed as rheumatoid arthritis. Many of the drugs that are used to treat rheumatoid arthritis are NSAIDs. Don’t take them.
- Acupuncture. I credit my acupuncturist with saving my life. I can only guess how I would have fared without my acupuncturist, but I imagine that I would have ended up in the emergency room, pumped full of steroids and antidepressants, having a massive anxiety attack and unable to walk. That didn’t happen though and there really isn’t any point in surmising about what could have been. I do know that acupuncture stopped my downward spiral and got me on the road to recovery. Both the acupuncture needles and the herbs that he provided gave me immense relief. I don’t know why or how acupuncture works, but I do know that it worked wonders for me.
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Supplements. I have taken more supplements than I can remember. 90% of them had no noticeable effect on my health. Here is a list of supplements that I think helped me.
Iron. I take a low dose iron supplement – only 5 mg. – daily. The brand of iron supplement that I use is Pur Absorb, but I’m guessing that other low-dose iron supplements will work equally well. Within just a couple days of starting taking the iron supplement, my energy levels increased dramatically. I could walk a mile without being exhausted afterward. In addition to improving my energy level, the iron supplement seems to make my muscles and tendons more supple and malleable. When my tendons are feeling tight, a dose of iron helps to loosen them up – within just a couple hours. Too much iron is really bad for you, so please be careful with supplementing it (ask your doctor, yada yada), but it helps me immensely.
Magnesium. I take 250 mg of chelated magnesium daily. I don’t necessarily notice that it makes me feel better, but I do notice that I feel worse when I don’t take it. My muscles twitch if I don’t take my mag.
Zinc. I take zinc when I get around to it. I remember feeling mildly better when I started taking it. It doesn’t seem to affect my health dramatically though.
Chlorophyll. I take chlorophyll about every other day. It seems to help with my energy level and mental functioning.
I also take fish oils, resveratrol, a probiotic, a joint supplement, CoEnzyme Q10, vitamin B12, chlorella, glucosamine, brewer’s yeast and some other supplements. They may help. I can’t say that I feel a difference using any of them.
- Meditate. Meditating has so many amazing, positive benefits for your brain, your life, your spirit, etc. that I can go on about it ad nauseam. Meditation helped relieve a lot of the mental symptoms of my fluoroquinolone toxicity. My anxiety, inability to concentrate, inability to connect with others, depression, loss of reading comprehension, decreased mental acuity, etc. were greatly reduced (or improved) through meditating. I meditate about 10 minutes each day. I should meditate more like 20-30 minutes a day.
Meditating helped me to gain compassion for myself and my situation. It also helped me to let go of the anger that I felt toward the pharmaceutical companies and the medical culture that allows fluoroquinolones to be on the market. The pharmaceutical companies and the medical culture are both messed up and blame of them is justified, but anger and blame were not serving me mentally, emotionally, spiritually or physically. I needed to let go of my anger and blame in order to move on with my life. Meditating helped with that.
I learned to meditate through taking a class called Mindfulness Based Stress Reduction that was offered by my health insurer. It was an excellent class based on the work of Jon Kabat-Zinn. Many Buddhism centers offer Mindfulness Based Stress Reduction or Meditation 101 classes.
- Get off the internet. Most of the information available on the internet about fluoroquinolone toxicity is horrifying. Fluoroquinolone toxicity is horrifying. It is scary. It is completely unacknowledged by the medical community – the doctors, nurses, etc. who we go to in order to make sense of things when our body goes hay-wire – so we seek answers on the internet. Unfortunately, most internet sites devoted to fluoroquinolone toxicity do not provide a balanced picture. They show the harm and the horror of fluoroquinolone poisoning, but they don’t show the healing and hope that most people eventually experience. I am writing and distributing this in order to provide the perspective of hope and healing. Some people are permanently disabled from fluoroquinolones. My heart goes out to those people and they have every right to scream their story on the internet. However, their story is not your story. My story is not your story either. But if you’re going to look to the internet for a prognosis, it’s better to find a hopeful prognosis than one that is full of doom and gloom.
When I participated in the online forums for Floxies, I noticed that my anxiety levels increased significantly. Even after I was 90% recovered and I thought I could handle it, my anxiety levels would go up simply by reading about people being floxed. Inducing anxiety is one of the worst things that someone suffering from fluoroquinolone toxicity should do. Anxiety makes all symptoms worse. I would slowly relapse and my symptoms would get worse every time I participated in the online forums.
Of course, the people participating in the online forums are seeking to help fellow Floxies, to commiserate and to participate in a support group. It is not their fault that my anxiety levels increased when viewing their sites and/or support groups. After all, most people on those sites are trying to be helpful and supportive. However, the net result of participating in the forums for Floxies is that my anxiety levels increased and my health declined while I was on those sites. I am healthier and happier not participating in the online “support groups” than I was while I did participate in those groups. Of course, this is my experience only. Many people find solace in the Floxie community and if it helps you, great!
The people who have worked hard to create a community of Floxies to support one another should be commended. It is because of their hard work that thousands of people have realized what is going on with their bodies and that they are not alone. The community of Floxies is full of wonderful people. However, you need to do what you need to do to take care of your health and if you find that hearing other people’s stories increases your anxiety levels, get off the internet. For you.
- Diet. I lost 11 pounds in 18 days when I first got floxed. My body was going hay-wire and it seemed like an allergic reaction. I had no idea what I could possibly be allergic to so I stopped eating almost everything. I didn’t eat sugar (including fruit), gluten, dairy, soy, anything non-kosher or anything spicy, or drink any alcohol or caffeine, for a month. I only ate vegetables and organic meat. It’s a highly effective way to lose weight, but I don’t think that restricting my diet severely helped me to heal. Restricting my diet gave me a sense of control, and that’s not a bad thing when your body is self-destructing, but I don’t think that it made me feel any better physically. After a month of only eating veggies and organic meat, I started to add normal foods into my diet. As soon as I started eating an appropriate number of calories, I started to feel better. Not only was I Floxed, I was also wasting away when I wasn’t eating normally. Getting enough food is an important part of healing. Of course, it’s generally good to be on the “don’t eat junk” diet, but I didn’t find that cutting my food intake significantly helped me to feel better.
Many Floxies develop GI problems. I was lucky in that I didn’t have many GI problems. Many people seem to be helped by cutting gluten, sugar and/or junk food out of their diet.
I notice that I feel slightly worse than normal when I consume sugar and/or caffeine. I think that most people do, I am just now accustomed to paying closer attention to my body.
The only food that makes me feel noticeably better is beets. For some reason, beets make me feel great. I just boil them and eat them.
I’ve heard good things about the benefits for Floxies of eating broccoli and other cruciferous vegetables. I love broccoli so I try to eat a lot of it. Unfortunately, I can’t say that I’ve noticed that it makes me feel better.
- Swim. My tendons and muscles feel significantly better when I’m in the water, and for several hours after I finish swimming. Swimming in the ocean feels especially therapeutic. There are so many minerals and trace nutrients in the ocean, I surmise that they’re helpful for healing. Unfortunately, I don’t live near the sea, so I swim in a pool. I feel better when I do so.
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Pilates. I started doing Pilates about 7 months post-floxing. Pilates strengthens the core, something that is generally important, and gently stretches muscles, tendons and ligaments, something that is particularly important for Floxies. I started slowly and gently and didn’t push my tendons, muscles or ligaments too much. I feel that gently stretching helped my tendons, muscles and ligaments to heal and return to (close to) their pre-floxing capacity. Take it easy though.
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Healing arts. I love to dance. I’m not a good dancer, but I love to do it. About 16 months post-floxing I started to dance again. Dance has been healing for me. I feel spiritual, strong and joyful when I dance. I’m not sure if it’s the dancing itself that I find to be healing, of if it’s the joy that I feel when I dance that is healing. Either way, it helps. I surmise that other forms of expression would have similar healing qualities. If you love to sing, sing. If you love to paint, paint. If you love to write, write.
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Attitude tips.
Try not to compare yourself to how you used to be. I used to hike 20 miles in a day. I can’t do that anymore, but I can hike 3 miles today and I couldn’t do that when I first got floxed. Compare yourself to how you were yesterday, not to how you were before you got floxed.
Do something – anything – to work toward healing, every day. Walk a little further than you did yesterday. Meditate. Take an Epsom Salt bath. Get an acupuncture treatment. Do a puzzle. Whatever makes you feel good – do it. Every little step helps.
Don’t kill yourself. Have hope. You will get better.
You’re not crazy. You’re sick. Have hope. You will get better.
You’re not stupid. You’re sick. Have hope. You will get better.
Try not to identify yourself as sick. The mind is a powerful thing so try to stay positive. It’s hard, I know. But try, because it’s worth it.
You will have bad days. They will pass. This all will pass. It is not permanent. You are strong – present tense. You were knocked down, but you weren’t killed. You will get better.
Don’t quit your job. Try to maintain as much normalcy in your life as you can.
It is not your fault. Even if you knew better, even if you demanded the most powerful drug possible from your doctor, even if you self-medicated, even if you coerced your doctor into giving you the fluoroquinolone antibiotic, even if the infection that you were treating was something that you got because of doing something stupid, or from sex, even if you continued to take it after you started to get sick, even if you floxed your child/parent or other loved one – IT IS NOT YOUR FAULT. You are sick. You are poisoned. You are not to blame for your sickness or for the fact that you are poisoned. Who to blame is a discussion that I don’t want to get into because I want this to be positive, but it is not you. You are not to blame. You are a victim. It is not your fault.
Lisa’s Life now
Life is good. I don’t consider myself to be sick any more. I’m not quite up to my pre-floxing capacity in a couple of areas. I don’t have the endurance, energy, strength or flexibility that I used to. However, I’m pretty close to my pre-floxing capacity in those, and other, areas. I’m about 99% better. Not being capable of intense exercise since December, 2011 has left me a bit out of shape, but I’m working toward being able to exercise intensely again and my stamina, strength, energy, etc. are increasing. I can’t hike 15 miles with a backpack on quite yet (something I could do before I was floxed), but I am capable of most physical and mental activities that would put me in the “normal” or “not sick” categories.
I can work full-time. I am grateful for the fact that I have a job that is not too demanding physically or mentally because I was able to hold onto it through my worst times. My boss and coworkers were wonderfully understanding and they claim not to have noticed that I couldn’t think straight for about a year. I even got a promotion about a year post-floxing!
I can do Pilates 4 times a week, swim 2 times a week, dance once a week and walk daily.
When I was unable to walk a block I told myself that I would consider myself to be “better” when I could dance all night in heels (my feet hurt like hell when I was sick), I can do that now. I never liked high heels, but I can wear them now.
My memory isn’t quite what it used to be, but it’s good enough to do well at my job and to maintain my relationships.
In many ways, I’m a different person than I was before I got floxed. This has been perplexing for me and my loved ones, but it’s not an altogether negative thing. I’m a much more spiritual person than I was before I got sick. I was a pretty firm Atheist before I was floxed. Now, through meditation, dancing, believing in alternative therapies that focus on energy, etc., I’m finding some spiritual outlets that I didn’t have, need or want in the past.
I have become a more compassionate and patient person. I now empathize with people who have mystery diseases. I used to have the attitude that I now find so frustrating in medical professionals – that if there isn’t a way to diagnose or treat an ailment, it doesn’t exist. Now I know that people are genuinely suffering and that there is a real cause for their pain – regardless of whether or not it is acknowledged by the medical community. My heart goes out to those in pain.
I had to become more compassionate and patient with myself as well.
I like some things that I didn’t like before I was floxed and I don’t like some things that I used to like a lot. I hated swimming for the first 32 years of my life. Now I love it and consider it to be an important aspect of my healing. I used to like working out in an intense way that got me dripping with sweat. Now I like to do exercises like Pilates that are focused, slow and deliberate. I used to love hiking, camping and backpacking. I miss loving those things so I’m going to try to get back into them, but I’m not sure that they’re my passions any more. Drinking used to be one of my favorite pastimes. My tolerance for alcohol is shot now and I don’t really enjoy it any more. I missed it for a while even though I knew that it was for the best that I wasn’t drinking like a fish. My appetite has changed as well. I used to be able to eat a lot of food and I loved to eat. I still eat, of course, but I don’t eat as much as I used to and I don’t eat with as much gusto. This is probably a good thing seeing as I’m not into exercising intensely any longer.
Even though I would do just about anything to turn back time and not take Cipro, the place that I am in life isn’t bad, and I probably would be someplace different if I hadn’t gotten sick. It sucks that I had to gain empathy for people who suffer from pain, mystery ailments and debilitating fatigue, but it’s probably a good thing that I now have more empathy. I would like to think that I’m a better person from going through this. I’m not a stronger person, but maybe I am a better person.
I hope that my tips and words of advice are welcome and helpful. Please feel free to contact me if you have any questions or concerns.
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
Lucero,
An anti-aging doc is your best bet. Dr. Whitcomb’s clinic is called “Brookfield Longevity.” Floxing ages us in many ways, so many of the anti-aging therapies are beneficial for us. Also,someone in that field is more open to new ways of thinking. They have to understand how the body works, not just treat symptoms or cover them up. I think the progesterone only HRT he put me on is the best thing I ever did. I would never have known that was even an aption had I not been floxed.
Ruth
Lucero,
Functional Medicine is another term to look for. I think it is more important that you find a doctor you can work with than what his or her actual discipline is. My regular doctor now is very good. I had to go through a couple to find him. I even considered going back o the one who floxed me but she said she could not help me and I should find someone else. At least she was honest. The truth is no doctor can cure FQ Toxicity Syndrome and you should not try to look for one who can. There is no cure. Too little is known at this time. However, certain things do support the body’s own ability to heal and with time, most people get well. In the meantime you don’t want to cause yourself more problems by taking too much of a supplement or two together that interact. Supplements are also drugs. You need a doctor who knows something about supplements and is willing to do some research when needed. You need a person with knowledge about the human body well beyond your own who can decide whether treatments you might want to try could possibly have any merit or could be risky. Most doctors just want to prescribe blindly and not have to think. Well, maybe not most, but a lot of them. You need to find a doctor who is willing to believe you and willing to work a little harder to help you and to protect you. Floxies are difficult patients. We just are. Complicated is the right word I guess. And for the rest of our lives it will be that way: “Will this affect me negatively because I am a floxie?” You are going to ask that a million times over things other people take for granted. You need a doctor who will at least be willing to give his or her opinion on that question over and over as it comes up. They might not always be right, but at least they have to be willing to try. You should not have to constantly be trying to convince your doctor that you were floxed.
Ruth
thanks Ruth,
To Janine: Ruth is right, Don’t take steroids and ditch this doctor. He’s no good for you. When I got floxed I felt like I was going to die but I didn’t go to the hospital because I was afraid of what they would give me, especially steroids. It’s hard to find a doctor that doesn’t have his head up his ass, excuse my French. Don’t let them scare you. You can get more accurate information on this website than from 100 doctors. Find a functional medicine doctor.
I don’t know how long ago you were floxed or what you have been doing or eating but extreme disturbance in you gut can cause that as well many other things caused by floxing. This is just a guess but try to calm down your gut with a formula with things like licorice, marshmallow root, slippery elm, L-Glutamine. such as FiberSmart of GI Fortify. Also if you could take a clay bath it would help you detox without it going through your system. I don’t know if it will work but it sure won’t hurt. Keep on keeping on and you’ll get through this.
Hi Lucero,
I know its hard but believe me you do your ECG and Chest X-ray just to make sure there should not be any visible thing which can be easily treated. Believe me it will be normal and you will be happy post report. Now question is how to come out of it. Take vitamin B12, Probiotics and Magnesium as per your digestion condition. Make sure that you are not eating any food which cause indigestion. for me shortness of breath is still there, i am going to see lung specialist and also endogystrologist and see what comes out of that visit. if everything comes out normal then only thing we can do is wait and it will go.
I can tell you one thing that you will be fine for sure and be strong don’t let thing come on you. You will be fine very soon and everything is very normal again it was before. It is just matter of time. I am not thinking that i am sick and just doing what all we need to do to find out the root cause of it.
Just wait for your time and it will come soon.
Best Regards,
MR
Does anyone suffer from your stomach feeling like it’s burning after eating food? I feel like my stomach is radiating heat after I eat, never happened to me before. My aniexty is more manageable than it was a few weeks ago. Deep breaths and acupuncture has helped. As well as keeping positive saying I will get better. I take magnesium every other day, cranberry mixed with probiotic pills everyday. As well as some herbs my acupuncturist gave me to help with anxiety and over thinking. I still feel numbness and tingling in my body every day at some point in the day still have some underlying aniexty but definitely better than I was in June when this began.
The vitamins should help some. I have heard of the ozone therapy helping some floxies. My doctor recommended hydrogen peroxide iv’s but i was afraid to do them. A glutathion iv helped me immensely early on. Not so much later. Good luck with the treatment.
Hi Lucero,
This is very good news that you found the good doctor and also root cause of shortness of breath. I am very happy for you. Can you please let me know which doctor you went means which specialist you have seen so that I will try to get one in my area and get it checked. I am planning to go to lung specialist though… one more question about PH if it is acidic do we fell any burning short of sensation while urinate not sure but just asking.
I am very happy to hear that you found root cause and now you will be fine. Also please let me know all medications name which doctor suggested to you. I will also try to get them since those are vitamins and will not hurt in any way.
will wait for your reply.
Thanks,
Maulin
Bananas are a very poor source of protein though…they contain almost 0.
Lucero,
Ancient Minerals is an excellent brand. Not the cheapest, but probably the best.
Ruth
I take about a gram a day of magnesium orally with no problem. I have to take well absorbed forms like malate and threonate, but so long as I avoid the less well absorbed forms I don’t have any problems tolerating even a little over a gram a day.
If you have a deficiency of magnesium it is more likely to cause you diarrhea. The more I have supplemented magnesium the better I can tolerate it. After a year and a half of as much magnesium as I can get into me through food, supplements and topically I am still not free of signs of magnesium deficiency, but now they only appear when I am sick, menstruating or very, very tired. After I was floxed my teeth were loose and shifting around. Now occasionally my front tooth will loosen so that I can wiggle it. Just that one tooth. When I was first floxed my standing tolerance was less than ten minutes due to pain in my leg muscles. Now I pretty much have unlimited standing tolerance, but once in awhile my legs will get that same cramping and pain and it is always relieved by magnesium, either toptical or oral.
So I’m not quite as healed as I’d like to be but I’m getting closer. For awhile I was taking only 600 mg a day, but my legs were really hurting and more than just my front tooth was wiggling loose. I think the fact that I was critically magnesium deficient for years (maybe decades) before I was floxed is part of the problem. I think this deficiency began when I was floxed in the 1980’s. It was then I noticed deep ridges in my fingernails. I always had them. Now my nails are smooth. I think the ridges are a sign of magnesium deficiency and my smooth nails are now a sign that my body is getting more of that much needed mineral.
My tinnitus being less, my sleep better and my ability to handle daily stress being improved is all evidence that conditions that seemed just normal for my body were probably signs of magnesium deficiency that was getting worse over the years. I definitely was not taking good care of myself right before I was floxed. I had loosened teeth, loud tinnitus, frequent insomnia and increased nervousness when playing the organ for church, which was not normal for me. I think all of that was attributable mainly to magnesium deficiency and partly due to hormonal changes common to women in their forties. It was easy to attribute all of it to hormonal changes and normal aging.
When I’d get my period my cramps would be so bad that I could barely stand the pain and the whole time it would feel like someone was holding me down trying to kill me. It was easily as intense as many of my flox symptoms, and yet it did not occur to me that something was wrong. I have little to no menstrual cramps now and I certainly don’t feel that intense psychological distress.
Some people won’t need to take as much magnesium as I do. They didn’t start out so low on it that any lost to the chelating effect of Cipro is a major problem. For me discovering magnesium has been a godsend and a lifesaver. I try to figure out if I am at 100% healing or not. Maybe even if my tendons are not perfectly healed and some GABA receptors are not upgraded yet I still should say I’m at 100% because other things are so much better, mostly due to the fact that I am no longer critically magnesium deficient.
Hi Ruth, I’ve been really wanting to give idebenone a try. My aniexty is still present everyday and my depression seems to come in and out. I’m always tired never enthusiastic about anything. I can barely sleep I dread going to bed because I can’t relax when I try I feel like my whole body turns hot and its difficult to breath granted some nights are worse than others. I’m taking herbs my acupunturist gave me they seem to help. I did a soul cycle class and I do feel my aniexty has gotten worse since then! Do you recommend pills or powder?
Janea, right now you are having a tough time but it will get better and I know what it is to be alone. I’m 63 and although my daughter can help me she has baby and husband and runs his dental practice. I don’t lije to brother her. Each day is a little better. Yes we are all different. I currantly have terrible bronchitis and sinusitus. I had to go on antibiotics and steroids due to how sick I was. I waited 10 days to see dr. Yes I was afraid of the meds but as a nurse I knew how sick I was. I’m on augmenting and prednisone. I’m not having too much trouble but my knees and hands did flare a little but I can tolerate that better then the severe facial pain from the sinus infection
Maybe I’m doing ok with the steroids because due to intractable migraine for the past 22yeats it and migraine specific drugs in high doses were the only thing to stop them. I know most people do terrible on steroids and I find stairs the hardest on my knees. I work 12 hr shifts with alit of working but things are getting better. It’s been about 6 weeks or 2 months since floxed. I do take mag citrate and co enzyme q10 and calcium and zink. You need to take the calcium and magneiun in equal amounts. About 70 percent of Americans are deficient in magneiun
Los I take vit d to aid with the absorbtion of the other vitamins. Being floxed probably really finished off any magneiun stores you had. Take Epsom salt baths too. Things are absorbed though the skin. Just before I was floxed I had run out of my magneiun informally took corny migraines and hadn’t taken itin several months. I noticed I was having a lot of general muscle aches that are now better back on my magneiun and the other vit. Take only a low dose of zinc. I think because I had not taken my magneiun is why I got floxed so bad. I had been on Cipro, levaquin and Levaquin at least 10 times before that with only minor problems looking back. I blamed my knee pain on old track meet injuries. Anyway. If you can go out and sit in the sunshine that will help too. Some night I take melatonin because I’m a night worker 12 days a month. I feel I’m getting better then most a little faster. I try to eat a lot of protein and little bits only of glutin. Glutin seems to make things worse for me. Also drink plenty of water. Be patient and try to avoid too much exercise for now. I don’t know why the steroids have helped me perhaps because most people feel awful on them and I just feel normal like I used too. For each of us its trial and error to find the things that help us.
Don’t be afraid to try things you read about it perhaps run it by yourself if you have a lot of health issues or take a lot of meds. In time as lisa says most recover. I tell everyone I know the hazards of the quinolones. I can’t have them again unless it’s life or death. My dr knew right away that the levaquin had floxed me but I don’t think he knows what to do about it. Hopefully soon you will be better. Perhaps your naibors can help you out a little for the time being. I told my dr neibor what had happened to me and he said to let him know if I need anything. People are more Caring them we imagine. Don’t be afraid to ask for a little help. I’m affected now mostly in my hand and knees due to arthritis. Go figure. Remember it will get better. Think positive. Keep checking the site for ideas. Most things due get better with time. We just must have patience. I do a lot less these days and I’m slower but it seems to help. I try to avoid stairs but live in a condo and have to go up and down 24 to get to my front door. Seven at a time. I sure wish I lived on the first floor now with a nearby parking place.
Take care and keep us posted. We are here to support you. I haven’t seem my grandbaby in 3 weeks due to the awful bronchitis. Almost pneumonia. Fortunately like I said I’m tolerating the meds pretty good. God bless you and continue to be think positive. Margaret.
Janea, perhaps since these drugs rob us of so many nutrients you might try eating some animal protein. I’m eating a lot of chicken and fish and taking the vitamins recommended. it seems to be helping. Maybe give it a try and try some Epsom salt baths to magneiun into your system. Take care and try to think positive and know most people recover. We are here for support.
God bless you Margaret.
Danielle,
I take Idebenone pills, 50 mg 3x a day with food. I get them from HBC Protocols online.
Idebenone may help you a lot or it will make the anxiety worse. If it does the effect will not last long. The serotonin boost lasts four hours. The half life of the drug is 18 hours. It is a very good antioxidant. I took it for its antioxidant properties and was happy to find that it lessened that feeling of needing to crawl out of my own skin. I went from feeling there was no way I could go to work to being functional. Still uncomfortable, but functional. It was not placebo because I expected negative side effects but I wanted to try to save my tendon by taking the best antioxidants I could find.
You won’t know your reaction to it until you try it. People with GABA receptor damage from benzodiazepines often cannot begin an antidepressant after withdrawal has begun. They have to start it ahead of time. Though not an SSRI, Idebenone does increase serotonin levels, so for someone with downgraded GABA receptors from a fluoroquinolone it can make you worse. But for me it was a life saver. I have not had one side effect from it and even today I notice my depression (which I had preflox) coming back if I miss too many doses. If you have no history of depression it may not help.
Unlike SSRI’s it works immediately– for me within fifteen or twenty minutes of my first pill. But you have to take it more frequently and if you stop taking it the effect wears off quickly. So you really have nothing to lose by trying it.
Sleep will get easier with time. I don’t have trouble winding down anymore and I sleep well nearly every night and even the nights that aren’t as good I wouldn’t really call it insomnia. I think it is normal to have some variation in sleep quality and I think I am back to normal in that respect. I may be sleeping a little better these days than before I took the Cipro.
Ruth. Thank you for additional information. I will try some of those new things. I am lucky that I seem to be getting better faster then most.
Perhaps supplementation has helped.
My appetite has been really bad since being floxed. I just don’t get hungrey.
That I’m working on. I have chosen this time to redo my condo to keep my mind off things and to help look to the future and a new but possibly different life. I hope to start yoga and swimmimg too. I used to walk 5 miles per day but was told by my dr at first not even to walk extra at all for awhile. I feel the above will be easier on my joints. I think I am tolerating being floxed due to the fact I’ve had such severe migraines for 22 years I’ve had to deal with. I try to stay positive. There are a lot of foods I can’t eat due to them but have been thinking about taking probiotics. Thank you again for your support and kindness. We all just have to stay positive about the future. Margaret????
Hi guys,
I just joined the club after a mild urinal track infection 🙁
Just have a quick question: Does it matter how much of the cipro one took? I stopped after 3 days (6 pills). So far I have the following symptoms:
– Burning right arm
– Havend pied in 1,5 days – though my number 2 is really just water
– barely hungry
– really high fever the first day after i started taking it (gone now)
– somewhat dry mouth
I immedialty bought and took magnesium after finding out about this
Thanks
Matt
Matt Go to the hospital and get your kidneys tested asap Your kidney function may be affected. You should probably avoid steroids if possible.
Matt,
I agree with Bob, go get your kidney function checked. Do this before you take anymore magnesium.
I got my liver and kidney function checked after I was floxed. ER docs are kind of useless when it comes to being floxed, but they can at least help you make sure everything is functioning properly. FQ’s can affect kidney function and that you aren’t peeing much and then it’s only just water– yeah, that does not sound good. Don’t panic or anything. But get things checked out.
Ruth