*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
Lisa’s Story
In the middle of November, 2011, I took Cipro to treat a urinary tract infection. I took 2 pills (500 mg each, I believe) a day for three days. I didn’t feel like the infection was gone, so I went back to the doctor and requested more antibiotics. He gave me macrobid and the infection subsided within a couple of days. Life went on as normal for the next couple of weeks, until December 2, 2011, at which time I got my period and started taking ibuprofen to help me to deal with the cramps.
Before I continue with my story, I would like to note that I had taken Cipro to treat a urinary tract infection approximately a year earlier. I had no notable side effects at that time. Though, looking back on things, I did develop an eyelid twitch at that time and some strange stomach cramping that came and went started then. I didn’t think anything of the eyelid twitching or the stomach cramps. I certainly didn’t think that they were tied to the Cipro. I took ibuprofen regularly after taking Cipro with no adverse effects.
On December 2, 2011 my legs started to itch. On December 4th I broke out in hives all over my body. I went to the doctor and was told to take Benadryl. I took more Benadryl than the box recommends and my hives got progressively worse. On December 5th my feet and hands swelled to the point that I couldn’t use them anymore. It was painful to walk, or even to just stand. I went back to the doctor and was put on prednisone. The prednisone suppressed the swelling and calmed the hives a bit. On December 7th my left leg went weak. For the next few weeks the following symptoms got worse and worse:
- Weakness in my legs. I could barely walk. The steps that I could take took a tremendous amount of effort and energy. I couldn’t stand for more than a minute. I had to drag a chair into the kitchen in order to cook rice because I couldn’t stand to stir the pot.
- Tightness of the tendons in my legs. I had inflammation, and possibly tears, in most of the tendons in my legs and feet. My hips, knees and ankles, to simplify things, didn’t work right.
- Loss of use of muscles / loss of strength. My muscles, especially the muscles in my legs, wouldn’t move like they used to. All of my movements were slow and deliberate.
- Brain fog. I couldn’t think straight. I felt stupid. I couldn’t concentrate. It was a struggle to do my job.
- Loss of memory. My short-term memory decreased significantly.
- Loss of peripheral vision. Large, black floaters entered my peripheral vision.
- Loss of appetite and weight.
- Loss of flexibility. I went from being able to do yoga several times a week to being unable to sit with my legs curled up under me.
- Loss of balance.
- Severe loss of energy. I felt like the plug had been pulled from my energy source. I wasn’t necessarily sleepy, I was just drained. The feeling was similar to the feeling that I have when I have a cold – weak and like I just want to collapse. Just slight exertion would drain me of my energy. Walking would make me tired for a whole day afterward.
- Dry mouth.
- Anxiety. I had an ongoing anxiety attack for the first couple of months after being floxed.
- Pain in my feet. I felt like I was walking on hot coals with every step I took.
- Loss of reading comprehension. I would read a page and have no idea what I had just read.
- Loss of social skills / connectedness. I felt anxious and scared in social situations. I lost confidence in both my physical and mental abilities. I felt very alone despite having a wonderfully supportive family.
I felt as if I had aged 20 years in just a week or two. I couldn’t move, think or eat. My body and mind were falling apart and I had no idea why. I didn’t think that the sudden decline in my health had anything to do with the Cipro. After all, I had stopped taking it a couple of weeks before my body started to fall apart. I thought that I had an autoimmune disease. My symptoms seemed similar to those of rheumatoid arthritis. I went back to the doctor and they ran every test imaginable on me. I was relieved to find out that I didn’t have an autoimmune disease, but it was somewhat frustrating to hear that all of the tests were showing that I was normal and healthy when, clearly, I was neither normal nor healthy. The doctors did not provide me with a diagnosis or a prognosis. Though I was desperately seeking a diagnosis and prognosis, I am thankful, in retrospect, that they didn’t misdiagnose me. If I had been mistakenly diagnosed as having an autoimmune disease, I may have treated it with pharmaceuticals that could have made me feel even worse.
I was desperate for some treatment, something to stop the downward spiral that my body, mind and spirit were in. The traditional medical doctors I saw provided no relief, treatment or healing. I started seeing an acupuncturist. He was able to stabilize my condition, calm my nerves and keep me from spiraling physically or mentally. After a few weeks feeling stable physically, I started to have days where I felt better than I had the day before. Mentally, I kept going downhill for a while, but, eventually my mental health stabilized and started to improve as well.
Eventually, with the help of my acupuncturist, I connected my symptoms to Cipro. Once the connection was made, I realized that all of my symptoms were consistent with those of others who have been poisoned by Cipro and other fluoroquinolone antibiotics. I entered the scary world of being a floxie.
For about a year, I considered myself to be sick. Though the symptoms listed above were improving, slowly but steadily, I was still sick, and a long ways from the healthy, active, energetic woman that I was before I took Cipro. After a year, I started to put “sick” in the past tense. Though I wasn’t back to the level of health that I was prior to being floxed, I was getting better and, as far as most people could tell, I was well.
Following is a list of things that I did to help me to get well, to heal. I am not a doctor. This is a description of my experience and what helped me. I hope that what helped me helps you. Everyone is different though. What helped me may not help you. One thing that I know helped me and that I know will help you is hope. I hope that the fact that I have largely recovered helps you to have hope. I hope that the other steps that I took to get well also help you to gain hope and healing.
Please feel free to contact me with any questions, comments or concerns, or to share your story.
Lisa’s Healing Tips
One of the many frustrating things about fluoroquinolne toxicity is that everyone’s body is different. Everyone’s symptoms are different and everyone’s body reacts differently to treatments. Following is a list of things that helped me. I hope that what helped me will help you, but it may not. I am including other people’s healing tips as well, in case their tips can help. Of course, please read these tips with the typical disclaimer in mind – I am not a doctor or medical professional of any kind. I am sharing my experience with the hope that others may find it to be useful. Please ask your doctor, or other trusted medical professional, for medical advice, and before taking any of my advice.
In no particular order, here are the things that helped me to heal.
- Time. With time, I have healed. Each day is better than the day before. Time will heal your wounds too. Eventually, you will get better. The poisonous reaction affecting every part of your body will eventually stop and you will begin to recover. I have heard several stories of fellow floxies having a timeline similar to mine – slow, steady recovery for about 2 years. Other people take more, or less, time to recover. Time does help though, and most people do end up getting better as time goes on. Very few people get worse and worse indefinitely. There may be bumps in the road, but time is your friend. Time will help you to return to a state of health.
Try to be patient with yourself. It will take time for your body and mind to heal. I see this whole ordeal of getting sick as a lesson in patience (and compassion, gratitude and health). Pushing yourself too hard too soon can lead to pain, frustration and injury. Try to give yourself the time necessary to heal, and, with time, your body and mind will, indeed, heal.
- Avoid NSAIDs and steroids like the plague. Both NSAIDs and steroids are contraindicated with fluoroquinolone toxicity. They will make your reactions and symptoms worse. There are some published medical articles on PubMed about the contraindication between NSAIDs/steroids and fluoroquinolones. Searching at the library or on Google will give you more detailed information than I can provide. Anecdotally, I know that my reaction was triggered by taking NSAIDs (ibuprofen that I took to help me to deal with menstrual cramps) and it was exacerbated by taking prednisone (a steroid). Please note that I did NOT take NSAIDs or steroids at the same time as Cipro. I took ibuprofen 2 weeks after I finished taking Cipro and it triggered my toxic reaction and I took prednisone 3 weeks after I had finished taking Cipro, after my reaction had started. I will never take another NSAID or steroid again.
Unfortunately, NSAIDs and steroids are the drugs that are the most commonly prescribed drugs used to “treat” fluoroquinolone toxicity. This is because the combination of NSAIDs/steroids and fluoroquinolones does not always cause a toxic reaction, the toxic reaction of combining fluoroquinolones and NSAIDs/steroids can occur even when the drugs are taken weeks or months apart, doctors and other medical professionals don’t acknowledge fluoroquinolone toxicity and so they don’t look for the contraindications and because many of the symptoms of fluoroquinolone toxicity are treated with NSAIDs and steroids. The pain killing qualities of NSAIDs and the swelling reduction qualities of steroids make them the drugs of choice for treating many of the symptoms of fluoroquinolone toxicity. Don’t take them though! In my nonmedical opinion, I suggest taking non-NSAID over-the-counter pain medicine like acetaminophen (Tylenol) for pain (or marijuana – which is probably better for your liver), and antihistamines for the swelling.
Often, fluoroquinolne toxicity is misdiagnosed as an autoimmune disease. In particular, it is often misdiagnosed as rheumatoid arthritis. Many of the drugs that are used to treat rheumatoid arthritis are NSAIDs. Don’t take them.
- Acupuncture. I credit my acupuncturist with saving my life. I can only guess how I would have fared without my acupuncturist, but I imagine that I would have ended up in the emergency room, pumped full of steroids and antidepressants, having a massive anxiety attack and unable to walk. That didn’t happen though and there really isn’t any point in surmising about what could have been. I do know that acupuncture stopped my downward spiral and got me on the road to recovery. Both the acupuncture needles and the herbs that he provided gave me immense relief. I don’t know why or how acupuncture works, but I do know that it worked wonders for me.
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Supplements. I have taken more supplements than I can remember. 90% of them had no noticeable effect on my health. Here is a list of supplements that I think helped me.
Iron. I take a low dose iron supplement – only 5 mg. – daily. The brand of iron supplement that I use is Pur Absorb, but I’m guessing that other low-dose iron supplements will work equally well. Within just a couple days of starting taking the iron supplement, my energy levels increased dramatically. I could walk a mile without being exhausted afterward. In addition to improving my energy level, the iron supplement seems to make my muscles and tendons more supple and malleable. When my tendons are feeling tight, a dose of iron helps to loosen them up – within just a couple hours. Too much iron is really bad for you, so please be careful with supplementing it (ask your doctor, yada yada), but it helps me immensely.
Magnesium. I take 250 mg of chelated magnesium daily. I don’t necessarily notice that it makes me feel better, but I do notice that I feel worse when I don’t take it. My muscles twitch if I don’t take my mag.
Zinc. I take zinc when I get around to it. I remember feeling mildly better when I started taking it. It doesn’t seem to affect my health dramatically though.
Chlorophyll. I take chlorophyll about every other day. It seems to help with my energy level and mental functioning.
I also take fish oils, resveratrol, a probiotic, a joint supplement, CoEnzyme Q10, vitamin B12, chlorella, glucosamine, brewer’s yeast and some other supplements. They may help. I can’t say that I feel a difference using any of them.
- Meditate. Meditating has so many amazing, positive benefits for your brain, your life, your spirit, etc. that I can go on about it ad nauseam. Meditation helped relieve a lot of the mental symptoms of my fluoroquinolone toxicity. My anxiety, inability to concentrate, inability to connect with others, depression, loss of reading comprehension, decreased mental acuity, etc. were greatly reduced (or improved) through meditating. I meditate about 10 minutes each day. I should meditate more like 20-30 minutes a day.
Meditating helped me to gain compassion for myself and my situation. It also helped me to let go of the anger that I felt toward the pharmaceutical companies and the medical culture that allows fluoroquinolones to be on the market. The pharmaceutical companies and the medical culture are both messed up and blame of them is justified, but anger and blame were not serving me mentally, emotionally, spiritually or physically. I needed to let go of my anger and blame in order to move on with my life. Meditating helped with that.
I learned to meditate through taking a class called Mindfulness Based Stress Reduction that was offered by my health insurer. It was an excellent class based on the work of Jon Kabat-Zinn. Many Buddhism centers offer Mindfulness Based Stress Reduction or Meditation 101 classes.
- Get off the internet. Most of the information available on the internet about fluoroquinolone toxicity is horrifying. Fluoroquinolone toxicity is horrifying. It is scary. It is completely unacknowledged by the medical community – the doctors, nurses, etc. who we go to in order to make sense of things when our body goes hay-wire – so we seek answers on the internet. Unfortunately, most internet sites devoted to fluoroquinolone toxicity do not provide a balanced picture. They show the harm and the horror of fluoroquinolone poisoning, but they don’t show the healing and hope that most people eventually experience. I am writing and distributing this in order to provide the perspective of hope and healing. Some people are permanently disabled from fluoroquinolones. My heart goes out to those people and they have every right to scream their story on the internet. However, their story is not your story. My story is not your story either. But if you’re going to look to the internet for a prognosis, it’s better to find a hopeful prognosis than one that is full of doom and gloom.
When I participated in the online forums for Floxies, I noticed that my anxiety levels increased significantly. Even after I was 90% recovered and I thought I could handle it, my anxiety levels would go up simply by reading about people being floxed. Inducing anxiety is one of the worst things that someone suffering from fluoroquinolone toxicity should do. Anxiety makes all symptoms worse. I would slowly relapse and my symptoms would get worse every time I participated in the online forums.
Of course, the people participating in the online forums are seeking to help fellow Floxies, to commiserate and to participate in a support group. It is not their fault that my anxiety levels increased when viewing their sites and/or support groups. After all, most people on those sites are trying to be helpful and supportive. However, the net result of participating in the forums for Floxies is that my anxiety levels increased and my health declined while I was on those sites. I am healthier and happier not participating in the online “support groups” than I was while I did participate in those groups. Of course, this is my experience only. Many people find solace in the Floxie community and if it helps you, great!
The people who have worked hard to create a community of Floxies to support one another should be commended. It is because of their hard work that thousands of people have realized what is going on with their bodies and that they are not alone. The community of Floxies is full of wonderful people. However, you need to do what you need to do to take care of your health and if you find that hearing other people’s stories increases your anxiety levels, get off the internet. For you.
- Diet. I lost 11 pounds in 18 days when I first got floxed. My body was going hay-wire and it seemed like an allergic reaction. I had no idea what I could possibly be allergic to so I stopped eating almost everything. I didn’t eat sugar (including fruit), gluten, dairy, soy, anything non-kosher or anything spicy, or drink any alcohol or caffeine, for a month. I only ate vegetables and organic meat. It’s a highly effective way to lose weight, but I don’t think that restricting my diet severely helped me to heal. Restricting my diet gave me a sense of control, and that’s not a bad thing when your body is self-destructing, but I don’t think that it made me feel any better physically. After a month of only eating veggies and organic meat, I started to add normal foods into my diet. As soon as I started eating an appropriate number of calories, I started to feel better. Not only was I Floxed, I was also wasting away when I wasn’t eating normally. Getting enough food is an important part of healing. Of course, it’s generally good to be on the “don’t eat junk” diet, but I didn’t find that cutting my food intake significantly helped me to feel better.
Many Floxies develop GI problems. I was lucky in that I didn’t have many GI problems. Many people seem to be helped by cutting gluten, sugar and/or junk food out of their diet.
I notice that I feel slightly worse than normal when I consume sugar and/or caffeine. I think that most people do, I am just now accustomed to paying closer attention to my body.
The only food that makes me feel noticeably better is beets. For some reason, beets make me feel great. I just boil them and eat them.
I’ve heard good things about the benefits for Floxies of eating broccoli and other cruciferous vegetables. I love broccoli so I try to eat a lot of it. Unfortunately, I can’t say that I’ve noticed that it makes me feel better.
- Swim. My tendons and muscles feel significantly better when I’m in the water, and for several hours after I finish swimming. Swimming in the ocean feels especially therapeutic. There are so many minerals and trace nutrients in the ocean, I surmise that they’re helpful for healing. Unfortunately, I don’t live near the sea, so I swim in a pool. I feel better when I do so.
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Pilates. I started doing Pilates about 7 months post-floxing. Pilates strengthens the core, something that is generally important, and gently stretches muscles, tendons and ligaments, something that is particularly important for Floxies. I started slowly and gently and didn’t push my tendons, muscles or ligaments too much. I feel that gently stretching helped my tendons, muscles and ligaments to heal and return to (close to) their pre-floxing capacity. Take it easy though.
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Healing arts. I love to dance. I’m not a good dancer, but I love to do it. About 16 months post-floxing I started to dance again. Dance has been healing for me. I feel spiritual, strong and joyful when I dance. I’m not sure if it’s the dancing itself that I find to be healing, of if it’s the joy that I feel when I dance that is healing. Either way, it helps. I surmise that other forms of expression would have similar healing qualities. If you love to sing, sing. If you love to paint, paint. If you love to write, write.
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Attitude tips.
Try not to compare yourself to how you used to be. I used to hike 20 miles in a day. I can’t do that anymore, but I can hike 3 miles today and I couldn’t do that when I first got floxed. Compare yourself to how you were yesterday, not to how you were before you got floxed.
Do something – anything – to work toward healing, every day. Walk a little further than you did yesterday. Meditate. Take an Epsom Salt bath. Get an acupuncture treatment. Do a puzzle. Whatever makes you feel good – do it. Every little step helps.
Don’t kill yourself. Have hope. You will get better.
You’re not crazy. You’re sick. Have hope. You will get better.
You’re not stupid. You’re sick. Have hope. You will get better.
Try not to identify yourself as sick. The mind is a powerful thing so try to stay positive. It’s hard, I know. But try, because it’s worth it.
You will have bad days. They will pass. This all will pass. It is not permanent. You are strong – present tense. You were knocked down, but you weren’t killed. You will get better.
Don’t quit your job. Try to maintain as much normalcy in your life as you can.
It is not your fault. Even if you knew better, even if you demanded the most powerful drug possible from your doctor, even if you self-medicated, even if you coerced your doctor into giving you the fluoroquinolone antibiotic, even if the infection that you were treating was something that you got because of doing something stupid, or from sex, even if you continued to take it after you started to get sick, even if you floxed your child/parent or other loved one – IT IS NOT YOUR FAULT. You are sick. You are poisoned. You are not to blame for your sickness or for the fact that you are poisoned. Who to blame is a discussion that I don’t want to get into because I want this to be positive, but it is not you. You are not to blame. You are a victim. It is not your fault.
Lisa’s Life now
Life is good. I don’t consider myself to be sick any more. I’m not quite up to my pre-floxing capacity in a couple of areas. I don’t have the endurance, energy, strength or flexibility that I used to. However, I’m pretty close to my pre-floxing capacity in those, and other, areas. I’m about 99% better. Not being capable of intense exercise since December, 2011 has left me a bit out of shape, but I’m working toward being able to exercise intensely again and my stamina, strength, energy, etc. are increasing. I can’t hike 15 miles with a backpack on quite yet (something I could do before I was floxed), but I am capable of most physical and mental activities that would put me in the “normal” or “not sick” categories.
I can work full-time. I am grateful for the fact that I have a job that is not too demanding physically or mentally because I was able to hold onto it through my worst times. My boss and coworkers were wonderfully understanding and they claim not to have noticed that I couldn’t think straight for about a year. I even got a promotion about a year post-floxing!
I can do Pilates 4 times a week, swim 2 times a week, dance once a week and walk daily.
When I was unable to walk a block I told myself that I would consider myself to be “better” when I could dance all night in heels (my feet hurt like hell when I was sick), I can do that now. I never liked high heels, but I can wear them now.
My memory isn’t quite what it used to be, but it’s good enough to do well at my job and to maintain my relationships.
In many ways, I’m a different person than I was before I got floxed. This has been perplexing for me and my loved ones, but it’s not an altogether negative thing. I’m a much more spiritual person than I was before I got sick. I was a pretty firm Atheist before I was floxed. Now, through meditation, dancing, believing in alternative therapies that focus on energy, etc., I’m finding some spiritual outlets that I didn’t have, need or want in the past.
I have become a more compassionate and patient person. I now empathize with people who have mystery diseases. I used to have the attitude that I now find so frustrating in medical professionals – that if there isn’t a way to diagnose or treat an ailment, it doesn’t exist. Now I know that people are genuinely suffering and that there is a real cause for their pain – regardless of whether or not it is acknowledged by the medical community. My heart goes out to those in pain.
I had to become more compassionate and patient with myself as well.
I like some things that I didn’t like before I was floxed and I don’t like some things that I used to like a lot. I hated swimming for the first 32 years of my life. Now I love it and consider it to be an important aspect of my healing. I used to like working out in an intense way that got me dripping with sweat. Now I like to do exercises like Pilates that are focused, slow and deliberate. I used to love hiking, camping and backpacking. I miss loving those things so I’m going to try to get back into them, but I’m not sure that they’re my passions any more. Drinking used to be one of my favorite pastimes. My tolerance for alcohol is shot now and I don’t really enjoy it any more. I missed it for a while even though I knew that it was for the best that I wasn’t drinking like a fish. My appetite has changed as well. I used to be able to eat a lot of food and I loved to eat. I still eat, of course, but I don’t eat as much as I used to and I don’t eat with as much gusto. This is probably a good thing seeing as I’m not into exercising intensely any longer.
Even though I would do just about anything to turn back time and not take Cipro, the place that I am in life isn’t bad, and I probably would be someplace different if I hadn’t gotten sick. It sucks that I had to gain empathy for people who suffer from pain, mystery ailments and debilitating fatigue, but it’s probably a good thing that I now have more empathy. I would like to think that I’m a better person from going through this. I’m not a stronger person, but maybe I am a better person.
I hope that my tips and words of advice are welcome and helpful. Please feel free to contact me if you have any questions or concerns.
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
Yes, some of them have that possibility. Note Charles also has a sulfur intolerance due to this CBS Gene Mutation as well.
Jason what do you recommend taking for anxiety? That has been my biggest obstacle. I’m currently taking l theanine and going to acupunture.
I’m 23 and I took cipro end of May, 6 pills for a UTI. The first two months were excruciating. I couldn’t sleep, had suicidal thoughts, had no appetite thus lost a lot of weight, then the aniexty hit. A feeling of doom like my throat was closing and I couldn’t catch my breath. Then I would just be anxious doing everyday things going to see friends going out to dinner with my boyfriend. I have improved since June but I’m still not the same person. I feel out of it and tired a lot of the time.
Jason,
Dr. Whitcomb told me that the Theanine in green tea blocks the caffeine so I am inclined to believe him. He sucks down cup afte cup of green tea all day long so I am inclined to think that it is safe, as he is a brilliant physician, probably one of the smartest people I have ever met.
There are floxies who can’t tolerate anything because of multiple food and chemical sensitivities, and I was lucky not to be one of them. I always could pretty much eat or drink anything I wanted, except that I avoided alcohol as cross tolerance could likely cause a problem. I never liked coffee anyway.
My experience has been that the caffeine in dark chocolate, although initially temporarily exacerbating symptoms, did not slow my overall healing in any way. But there were times I could not tolerate it at all and knew it, so I avoided it.
I do believe that a person who is at 85% healing or above and has not had any issues with food or chemical sensitivities can have coffee or tea in complete safety, in moderation of course, but that goes for everyone anyway.
Yes, I probably do forget that there are people whose liver cannot process many things or whose leaky gut limits their food choices dramatically. But I wasn’t saying that those people don’t have risk from caffeine. I’m saying you and I don’t, because I don’t believe we do. I know my current doctor would agree with me on that. He said pseudoephedrine was safe for me and that is a sympathetic nervous system agonist if there ever was one. But he was right. But I know it would not have been safe early on after I was floxed and he agreed.
I think that although some people end up very limited in what they can consume, aside from avoiding NSAID’s and steroids, most floxies, once healed, can live completely normal lives. For them it’s important to be able to shake off the fear. It is normal to have a little tea or coffee and to say it is “playing with fire” for someone 95% healed is to increase fear unnecessarily.
I’ve read articles that said natural fluoride is not an issue and it’s impossible to avoid because it’s in the soil– in some areas more than others. Do you think it isn’t in spinach? But that article did also say that the best way to avoid it in tea was to buy a more expensive tea and to stay away from decaf teas.
Speaking of spinach, a good friend online just posted about oxalates in spinach and nuts. Her daughter can’t handle oxalates. I was like, “dammit!” because I’ve been eating lots of spinach and nuts and who knew they contain these oxalates that are so bad? But then I calmed down and realized just because some people can’t process oxalates does not mean I can’t.
It would be hard for me to help or advise people so sick that spinach makes them worse. And I’ve always admitted that. But I can help those who are almost well but are still trapped by fear and having a hard time feeling like they can live a normal life. Because I’ve been there.
There is probably nothing worse for the human body than processed sugar, but I do eat the occasional donut after church. I think most floxies who have recovered or nearly recovered are very adept at listening to their bodies and they should do what makes them feel normal while not flaring symptoms too much.
Lisa, who runs this site, admits she now has caffeine or alcohol occasionally. I read one account somewhere in which a Floxie actually felt a lot better with small amounts of alcohol consumption. And we have Charles for whom coffee helped him. Had he stayed away from it for his health he never would have found out.
There are very few people, unless their bodies completely prevent it, who can live without any vices. I don’t think all of them are “playing with fire.” They’re human.
It is good you get the other side out there so people can make informed decisions and it’s good to remind people that where I’m coming from (99% healed) is not the same as the early, acute phase in any way, shape or form.
But I can’t get the image of Dr. Whitcomb sucking down cup after cup of green tea out of my mind, and he is in really good shape for an older guy. He was very careful to warn me of things I absolutely needed to avoid. Green tea was not in the list. Maybe because although it has some things that aren’t good it also has antioxidants that are great. Same goes for coffee. You will never find the food or beverage that is all good. I mean, even spinach isn’t perfect.
A normally working body handles things like oxalates and caffeine just fine. Some floxed bodies cannot. But some can.
The real crime here is that FQ’s are being given to unsuspecting people who don’t realize that their lives could be turned upside down so much that they’ll never be able to eat or drink what they want again. I know some floxies who are down to about seven foods they tolerate, while doctors tell them their troubles are all in their heads.
But for those of us who are healing or have healed it becomes a mind game. Doctor Whitcomb told me that and he was right. For those people it might be important to have a cup of tea or coffee or even a glass of wine and to see that the flox bomb didn’t go off in their bodies all over again and that they are ok and even if their symptoms flared a little they could handle it and they are ok. The world is a scary place after you’ve been floxed. I believe it’s important to do things, once you’ve healed, that restore as much normalcy as possible to your life and help to banish that fear. Which is worse? A cup of coffee that isn’t all that good for you or living in fear of something as normal as drinking a cup of coffee? People will have to make that decision for themselves, but you know what I would choose. (If I liked coffee.)
But I literally play with fire all the time– I’m a pyro technician. We have a show today– a farewell to one of our own who died of lung cancer from smoking. (So we definitely agree on the smoking is bad thing.) My personality is to be more of a risk taker, and getting floxed didn’t change that. But I’m glad that after all I went through I’m still me. I guess that’s the best any Floxie can hope for in the end.
Ruth
Ruth thanks – I am five weeks out and overwhelmed by information on what is good or not and the lack of knowledge by the physicians who are supposed to be experts and that I am supposed to trust. But I do feel fortunate in that my case is mild compared to many others on this site. Even so I feel as if my life has been blown up – I never know how I will feel each day. Will I hurt, will my nerves fire up again, will I feel nauseous again or have an anxiety attack today. I teach and I have had days when I feel like I am going to pass out in front of my class and I sit down and wonder will this ever end?
This week however I went almost five days with not symptoms except ended up getting a cold – no doubt my immune system is a bit weakened. But anyway it was a good week. Now I have symptoms again, woke up with an anxiety attack, weak feeling in my legs and an upset stomach and a few pins and needles. But I am tired of this so just want to start to go about my days like I always have as much as I can – I am tired of not being me, of worrying about what to take or not or what is good or not. I just want to live my life as normally as I can and if I eat something that makes me feel bad I don’t eat it anymore.
All this information on supplements is too confusing and I don’t trust these manufacturers at this point any more than the drug companies – I have switched to trying to eat organically as much as possible but the new vitamins and turmeric I started taking that are supposed to be natural made me sick – so I stopped. I think Lisa is right- we just have to listen to our bodies and go with that –
I know I will be better someday – I have had good days where I can walk my dog, work with my horse, teach my classes and laugh and have fun with colleagues and thank God for the early morning glow of sunrise with the mist rising on the pond behind our house where the geese are flying in and gathering for their long journey south in a few weeks- it brings me a few moments of joy. I will forever be angry at my doctor for doing this to me when it should not have happened but if I stay in that dark place I will not heal – so I want to try to create days that cast light and not shadow and hopefully this too will speed up the healing process. Thank you all for being here on this site.
Bob,
I made it six months without sugar after I got floxed. I don’t know how I did it. I’m not good with restrictive diets either. I hope your gut heals so that you don’t have to be so careful. I’ve been eating unpasteurized sauerkraut cold right out of the package because no else around here is going to eat that crap. But it does make me feel good. Probiotic foods make me feel really good. Foods like wheat or things high in sugar/carbs make me feel less good. So my motto has been, “If it’s good for me I will choke it down.” But I can only do that for just so long and then I’m hitting the donuts after church in the coffee time room or eating dark chocolate three times a day instead of just one small square after lunch. Thanks to Jason’s posts about the evils of caffeine I am trying to scale back on the dark chocolate today so I have a headache and I’m dragging my butt. So I feel your pain with “paying for your sins” but this too shall pass.
Ruth
Jason,
I don’t really blame you for my headache. I have been meaning to get my dark chocolate habit in check for awhile. Even if I’m right and the caffeine is ok for my nervous system (not saying for every floxie’s but for mine) I have a weight problem and an extra two hundred calories per day of dark chocolate is not needed. I work for the same school district where I live now so when I come home for lunch I have access to the contents of my entire kitchen at noon. This is not entirely a good thing. But at least I don’t go into the faculty room to sample treats at any of my buildings. I don’t even know where the teacher’s lounge is in most of them. I found it all too often last year, ha, ha.
I think it’s good you share the information you have researched because no one, and I mean no one, completely understands what FQ’s do to the human body or how to fix it. But when you combine the experience of lots of floxies along with all they’ve read since being floxed and their thoughts on how it pertains to their situation you might end up, by combining all of that experience and knowledge (which includes quoting the work of researchers who have worked on this problem) with at least some answers. Floxie hope does that. We are leading the way not only in helping other floxies to cope, but in painting the full picture of what it means to be floxed and how floxed patients could be treated so as to minimize disability and restore function as quickly as possible.
Ruth
Lisa,
Around how long did it take for you to get your leg strength back? My right leg seems to be in fine working order but lefty feels weak on a daily basis. Mainly in the knee and Achilles areas.
Mark
Hi Lisa,
Thanks for sharing your experiences and advices here. It is a big help for everyone. I was floxed two months ago. Same thing I got. Peripheral neuropathy. I overcome them after three weeks by following your tips. But last week, I was diagnosed by my doctor as having lupus. My ANA test is high. I have the butterfly rash in my face sometimes and got the feeling of getting a flu everyday. I checked all the prescribed medicines for lupus in the internet. They are NSAIDs, corticosteroids, chloroquine and immunosuppressants. My doctor told me to take hydroxychloroquine (Plaquenil) as it is the best for lupus. But I cannot take it as it belongs to the family of quinolones. I am afraid of getting bad reactions from taking NSAIDs, corticosteroids and chloroquine after being floxed. Now I am confused for my treatment for lupus. Please help me. Thank you.
I would get a second opinion on the Lupus. I have seen floxies with false positives for Lupus.
I agree with Charles, my body temperature went mad, in the middle of summer I was in a jumper and my winter coat and still shivering. Also dry skin particularly on my face, dry hair and loss of hair. I have a friend with lupus and my floxing very much mimicked her symptoms, my tests did all come back normal though.
My mental fog, lightheadedness etc didn’t start until the beginning of June, 6 weeks after other adrs, it lasted around 3.5 months, I just get occasional lightheadedness now, particularly in shops that use strip lighting for some reason!!
Thanks Lisa for sharing to me about Wahls Protocol. It is really difficult to follow. What I am doing now with my diet is just eating fruits and veggies everyday. I am also avoiding stress and sunlight as they trigger my lupus symptom like the malar rash in my cheeks. I checked my throid the other day. TSH, T3 and T4. All are normal. I didn’t do thyroid antibody tests as they are expensive. I don’t have health insurance. Today is almost 8weeks post floxed. I wish that my lupus diagnosis is not real in the next 6months when I will do again my ANA test as I am hoping that my positive ANA test for now is just only the effect of being floxed.
thank you Lisa for the Food Guide it is very helpful
how can i improve my sleep only 3 to 4 hours by night thank you
Jennifer, yes that is what I meant, the beginning of June when all my worst adrs occurred I had a tremendous increase in thirst and therefore also urine output, I would get up at least 3 times in the night. That has settled now, if I have to get up at all it is only once, it is only the last couple of weeks that it had settled so for me it lasted 4 months but gradually getting better after around 2.5
Lisa, On the Great Lakes Gelatin what is the difference in the green and orange cans?
Jennifer, I would be in bed for 7 – 8 hours, usually I could get back to sleep after having to get up to use the toilet but not always straight away, particularly if I had also had a bad dream and panic attack, sometimes I would wake with a racing heart and could feel the adrenaline flood down my arms and legs, this too has gone now. I think the thirst, urination, bad dreams, lightheadedness and temperature regulating problems are all to do with the nervous system. I also completely lost my appetite, alot of weight and could not digest food, this is better but still not as it was.
I have a general question – I have sinus problems and use neti pot and saline spray but does anyone know if Sudafed is ok to take? I don’t want to put anything in my system that might set things off -thanks all
Ruth thanks ever so much!
hello i would like to know if someone experiment cannabis oïl with our condition