Lizzy’s Story – Recovery from Ciprofloxacin Poisoning

o

*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

On October 11, 2014, just before my 28th birthday, I was jolted awake in the middle of the night by the sensation that bees were stinging me from head to toe. Tingling sensations crept all over my body; phantom pins and needles pricked and burned my hands and feet; roving numbness caused me to lose sensation in one finger, then one toe, then one earlobe; and what felt like icy water slid up and down my limbs. When I tried to get out of bed, my legs would not support my weight, and I crumpled onto the floor. As I hoisted myself back into bed, all of my joints popped and crunched with the exertion, random stabbing pains sliced through my neck and shoulders, and my muscles – all of my muscles – in my jaw, my abdomen, my feet, were aching as though I had the flu. Once lying still again, I noticed that, one by one, my muscles were twitching – first in my right toe, then in my cheek, then my left eye.

As I lay there in the dark, my mind whirling to comprehend what was happening, I thought about the past few days, attempting to pinpoint a cause. The only thing I had done differently was take the prescribed dose of antibiotic Ciprofloxacin (generic Cipro) for what my doctor’s vacation stand-in suspected to be a UTI (based on symptoms and white cells in the urine – I later found out that no culture was actually done).

At first, the idea of an antibiotic being responsible for the bizarre symptoms I was experiencing seemed laughable. After all, when I got a migraine after the first dose and had called the pharmacy, the pharmacist assured me that since I am prone to migraines, such a reaction is common and I should continue on the drug. She also suggested an NSAID pain reliever, but my instincts told me that adding more drugs to the mix would be a bad idea (I would later learn that NSAIDs drastically increase the risk of an adverse reaction to Flouroquinlones).

When the migraine continued into a second day (unheard of for me, even as a lifelong migranuer), I still avoided the NSAIDs and continued on the Cipro as prescribed. When, by the second evening, my legs seemed a bit weaker than normal, I chocked it up to 48 hours in bed with a headache. The fact that it could have been the Cipro never crossed my mind.

Now, as I lay in bed after only three days on the drug, my whole body in revolt, I reached for my phone in search of answers. The phone itself seemed to weigh a hundred pounds, and my wrist gave out upon trying to lift it. I finally managed to situate it in such a way that allowed my aching fingers to type “Adverse reaction to Cipro” in the search bar.

What popped up was terrifying.

Countless stories of previously healthy people who had been permanently disabled, ended up in wheel chairs, experienced chronic pain, lost their cognitive abilities, developed psychiatric problems,  – all from an antibiotic prescribed (in most cases) for minor infections — filled my iPhone’s tiny screen.

How is this possible? I thought. The reactions seemed so unrelated and so numerous, affecting virtually every system of the body. The one thing they all had in common was that they were utterly devastating. From an antibiotic?

The disbelief quickly dissolved into the panicked realization that what I was experiencing may only be the beginning. I called the pharmacy again and told them what was happening. This time, a different pharmacist spoke to me and told me I should have stopped taking the Cipro at the first sign of migraine. I was never able to determine the name of the first pharmacist I had spoken to, the one who had instructed me to continue on the drug. I then called my doctor’s emergency number, and the on-call physician told me to stop the medication and come in first thing in the morning.

This was the beginning of my journey as a “Floxie.”

I was diagnosed with the following conditions: widespread muscle deterioration; body-wide tendon damage (which put me at risk for rupture); and damage to my peripheral nervous system resulting in neuropathy (which caused chronic pain, extreme weakness, and severely limited mobility).

For the first few months after being “floxed,” I was almost completely bed-ridden. I could barely walk from my bedroom to my bathroom, and I often needed help dressing and undressing, cutting food, washing my hair, and lifting anything heavier than leaf of paper. My teaching job found long-term substitutes for my classes, and I was out of work until December, when I went back to work VERY part time (only one class). Being around my students again brightened my outlook immeasurably, but cutting so far back on work had drastic financial consequences, as my husband (also a teacher) and I were still paying rent, heat, etc. We have since moved out of our apartment and back in with my family while we get back on our feet.

As the months went on, the symptoms gradually became less severe, with better days and worse days. By April, I was teaching my normal class load and keeping up with my freelance writing deadlines again, and I was even going for the occasional short walk on good days. By June, I was having entire weeks where I felt relatively normal. I even went on a short hike and drank a glass of wine.

Then, on June 3, at the instruction of one of my doctors, I took Aleve for a migraine, as I was told it had been long enough and it was safe. Within twelve hours I was back to square one with regard to the peripheral neuropathy and mobility issues, and my migraine frequency increased severely (from once a month to multiple per week). It was at this point that my neurologist also diagnosed me with central nervous system damage, specifically the impairment of my GABA system, resulting in chronic migraine and hypersensitivity to medications and substances I once tolerated well, like NSAIDs, steroids, caffeine, alcohol, benzo drugs, etc. This leaves me with very few viable painkiller options for my migraines, which is something I am still trying to figure out, as they are frequent and debilitating.

Since the backslide in June, I have been recovering, with a two-day stomach bug in August significantly worsening the pain, neuropathy, fatigue, and impaired mobility symptoms again for nearly two months.

As of this writing (February, 2016), I have only occasional neuropathy, mobility, pain, and fatigue issues, though my chronic migraines persist. As a teacher, I am doing everything I can to keep my immune system up (as I dread another illness that could set me back by months the way the stomach flu did). Interestingly, common colds do not seem to aggravate symptoms. My neurologist suspects this has to do with whether or not a fever is present and my impaired GABA function.

Things I Did (and Do) that Seem to Help, and The Upside of being a Floxie:

Physically:

Epsom Salt baths: I do this every night before bed and also on mornings when I wake up with pain, weakness, or an oncoming migraine.

Acupuncture: This is something I did not begin until my Aleve-induced relapse, but it has been profoundly helpful both physically and spiritually, helping to cut down on migraine frequency a bit and helping with fatigue and neuropathy. I never imagined that I, a person who still gets teary-eyed and needs to lie down when having blood drawn, would willingly have needles stuck into my body on a regular basis, but it is worth it. Like most things, I am certain it depends on the practitioner, and I have happened upon one whose personality and gentleness complement my needs.

Supplements: I follow the suggestions in the Levaquin Toxicity Solution book quite closely, taking magnesium (in the form of Magnesium L-Threonate), Vitamin C, CoQ10, RLA, Probiotics, Turmeric, a B complex, Iron, and PA-free Butterbur for migraine prevention. I take D-Mannose to help prevent future UITs, and to help with digestion and bolstering my immune system I take apple cider vinegar in the morning with warm water, lemon, and raw, local honey. I also take a tablespoon of elderberry syrup in the morning and at night mixed with water.

I avoid: Caffeine, Alcohol, NSAIDs, Steroids, and any substance or medication known to affect the GABA system.

Emotionally/Spiritually: The Up Side:

Yin Yoga: Yin Yoga is a form of yoga that focuses on relaxation and settling deeply into a gentle pose (usually on the floor, not standing). Each pose is held for several minutes, allowing a great deal of deep breathing and meditation while letting your body gently settle into whatever stretch the pose strives for. This is something I only recently began doing, and I truly feel that one hour of this class has a more profound effect on me than any religious service, therapy session, workout, or calming drug/drink ever has. It slows my ever-racing mind and helps my body relax, both of which are difficult feats for me to achieve on my own sometimes.

Time in nature: I’ve always been an outdoors person, and while I may not be able to hike a tall mountain yet, there’s nothing stopping me from driving to the top and enjoying the view anyway. Also, I often just walk into the woods by my house, find a place in the pine grove, and just be still. Somehow, being around nature grounds me and calms me.

Practicing mindfulness and seizing the joy and peace available to me in the present moment (even with pain): I sought a therapist who specializes in mindfulness, and she has been remarkably helpful. I have learned that my life is not on hold or over; I am still very much alive, and I have the power to seize every ounce of joy and peace at my disposal if I can just let go of how I think things “should be.” For instance, I had bought a sparkling sequin dress before getting floxed, which I planned to wear that New Year’s, but since I was bedridden, I never wore it. This New Year’s, while I was somewhat better, I still could not go out and party. I decided it was silly to hold off on wearing my dress; it was silly to keep the good crystal in a cupboard until I could drink champagne again; so, I put on the dress, did my make-up, ordered takeout, put on my comfy slippers, and drank sparkling cider out of Waterford glasses while watching re-runs of funny TV shows with my husband and cat. And you know what? It was perfect. It wasn’t “good enough” or “the best I could do under the circumstances.” It was perfect.

LizzyNYE

Of course this is easier said than done many times, and I have plenty of moments when I burst into tears and wish it all away, but I’m learning to accept and be present in those moments too, rather than berating myself for “wallowing.” Which brings me to my next point:

Giving myself permission to have bad days: I have always been a hyper-responsible type of person, and it has been difficult for me to learn to let go of the guilt associated with being unable to make/keep plans, turning down invitations and work projects, and taking time for myself when I need to. This is something I am continually working on.

Advocating for myself and spreading awareness in person and through my writing: I am not shy about telling people what has happened to me; my hope is that I might be able to prevent the same thing happening to another person. I have learned that in telling my story, however, I must also let go of the response; some people will not or cannot understand for any number of reasons, and their reaction, I’ve learned, has little or nothing to do with me. I took this to the next level by providing written testimony for the FDA’s November 5th meeting. Writing the letter and knowing I had said my piece was cathartic, and hearing back from the organization directly was validating; the fact that they ruled in our favor was profoundly hopeful. Writing this for the Floxie Hope page has also been cathartic and positive, as this webpage was my only source of hope at the beginning, and if I can contribute to that in any way, I am deeply grateful.

I did not intend on this being so long, and if you are still reading, please know that I am in your corner. My thoughts are always with my fellow Floxies, and from what I have seen from my year-and-a-half as a member of this accidental club, we are capable of great things, both individually and as a group. Whether it’s celebrating that we were able to lift our own teapot this morning or moving mountains with major regulatory bodies, we are moving forward.

With love and solidarity,

Lizzy

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

44 thoughts on “Lizzy’s Story – Recovery from Ciprofloxacin Poisoning

  1. Paige February 3, 2016 at 10:12 am Reply

    So glad you are doing better, Lizzy! Thank you for sharing your story!

    PS…the story starts out in October 2015…should it say 2014?

    Paige

    • Lisa Bloomquist February 3, 2016 at 10:59 am Reply

      Hi Paige,

      Lizzy confirmed that it was 2014. I edited the story.

      Thanks!!!

  2. Richard February 3, 2016 at 10:30 am Reply

    Lizzy, how did your doctor diagnose damage to your GABA system? Are there tests? My doctors have not been helpful at all, but I have a lot of the same issues after being floxed. Thanks in advance

    • Elizabeth Mitchell February 3, 2016 at 2:23 pm Reply

      Hi Richard,

      The way the so it realize the damage to my GABA system was no through a test (I’m not sure if there is a test,) but through is own research. After I took the Aleve and had severely worsen symptoms, I called him from the emergency room. His initial response was that it would be impossible to have a reaction to a leave so many months after the Cipro. However, when I called him a few days later and confirmed that the worsen symptoms had not gotten better, rather than dismiss me, he thankfully began reading up on how that might be possible. What he came up with is that aleave and similar drugs can cause this type of reaction if a person’s GABA function is already severely impaired. Further research showed him that the Cipro can do that type of damage. He then figured out the relationship that way. I hope this helps!

      • Elizabeth Mitchell February 3, 2016 at 2:29 pm Reply

        Yikes, sorry for all the typos! I am trying to write this on my phone.

  3. Victoria February 3, 2016 at 10:58 am Reply

    Thanks for sharing! Your story sounds very similar to my history. I too had a history of migraines, and now I experience 24/7 head pressure that changes in intensity with flare ups of very sharp pain. It seems different than a migraine. Curious as to how your dr. Also came to the GABA dx as well, and I noticed you weren’t taking a supplement for GABA?

    • Elizabeth Mitchell February 3, 2016 at 2:28 pm Reply

      Hi Victoria,

      The way the doctor realized the damage to my GABA system was not through a test (I’m not sure if there is a test,) but through his own research. After I took the Aleve and had severely worsened symptoms, I called him from the emergency room. His initial response was that it would be impossible to have a reaction to aleave so many months after the Cipro. However, when I called him a few days later and confirmed that the worsened symptoms had not gotten better, rather than dismiss me, he thankfully began reading up on how that might be possible. What he came up with is that aleave and similar drugs can cause this type of reaction if a person’s GABA function is already severely impaired. Further research showed him that the Cipro can do that type of damage. He then figured out the relationship that way.
      He instructed me not to take a GABA supplement, as, according to him anyway, there is little evidence the supplements actually reach the brain effectively, and that if they did, havinf supplemented GABA present may cause my own GABA not to recover as quickly (pleas excuse the very layman explanation of what I was told!). I am in the process of looking up what kind of supplements help GABA naturally increase, and I have a cousin in neuroscience who is reading up on this for me. When I get some answers, I will write again!

  4. Trudy Keuchel February 3, 2016 at 5:10 pm Reply

    Lizzy: Migraine Sufferers who want to be cured is a group run by Angela Stanton. I joined awhile ago after being floxed the same month and year you were. I had a similar reaction as you did, being unable to even hold up a coffee cup! I have been fortunate in that I am self employed so I have been able to adjust. Thanks for sharing your story!

  5. Lucy Sky February 3, 2016 at 8:06 pm Reply

    Does phenytoin,CLOBAZAM and/or perampanel attack the GABA receptors?

  6. Tina February 3, 2016 at 11:19 pm Reply

    Lizzy I would try SpeaksWithEagles.com The spices are traditionally used to treat inflammation and might help with your headaches, Check out the reviews it is worth a try!

  7. dan February 4, 2016 at 11:34 am Reply

    liz, is your chiro anywhere near jersey? thanks dan.

    • Elizabeth Mitchell April 2, 2016 at 12:56 pm Reply

      Hi Dan,

      I am sorry for the delay here! I have neglected to check back for comments. My practitioner is in Western MA, I’m sorry! I hope that you can find someone near you who can help. All my best to you.

      • Diane June 27, 2016 at 12:54 pm Reply

        Liz, who is your practitioner in Western MA, as I live here also? I need help neurologically.

  8. Sharon P Martin February 4, 2016 at 12:28 pm Reply

    Thank you for sharing…it is helpful to read other’s similar experiences and what you found helpful on your journey back to wellness and wholeness. Hang in there!

  9. John February 7, 2016 at 7:47 pm Reply

    Hi lizzy,
    I’m glad you are doing much better! I was floxed coming up on a year now. I was fortunate enough to not get any severe symptoms but I developed neuropathy. I was wondering what you did for your neuropathy and what made if seem better. I started taking magnesium and I soak my feet in Epsom salt every night which makes it feel much Better. It has made progress but it’s been very minimal. Looking for suggestions.

  10. ChristmasCarla February 10, 2016 at 12:44 pm Reply

    Lizzy, please check the current posts about Colostrum. It appears to be truly helpful. Best to you … Carla

  11. Daniel Hsieh February 11, 2016 at 1:42 pm Reply

    Hi Elizabeth , please let us know about what you find to help recover GABA system in brain, thanks

  12. Peter February 11, 2016 at 4:17 pm Reply

    I been destroyed by Cyproglexin.

  13. Pete February 21, 2016 at 4:59 am Reply

    Hi just endorsing the query that Daniel has made, please advise if you find anything.

  14. Elizabeth Mitchell April 2, 2016 at 12:58 pm Reply

    I am still on the hunt for what may help for the damaged GABA system. I have a new doctor as of last week, and she seems genuinely interested in doing active research to see what can help me. I will keep you posted! All my best to each of you.

    • Luz February 6, 2017 at 6:44 pm Reply

      Hi Elizabeth! Hope all is good and you are batter and enjoying life. My question is this since it seems to be one of the two remaining issue left with me after 19 long months of pain and suffering. Have you found anything that might help with your headaches/headpressure? If so can you provide me with some sort of information on How to aliviate these headaches or of you have found a solution will ne really appreciate it. Thank you!

  15. Angie Magdy April 14, 2016 at 5:02 pm Reply

    Lizzy, r u any better now?! Cuz I did the same and took Advil for my period and I have worse symptoms now after I was 100% cured. I came back with more symptoms for 2 months so far. I took 3 advils 😞

  16. Linda May 3, 2016 at 9:02 pm Reply

    Glad you’re doing better. I too had my story read at the hearing and am beyond mortified the FDA still has done nothing. I just wanted to mention a couple things. If you should happen to catch something from one of the kids, try oil of oregano —a few drops in water several times a day. Works great! Also, should you get a UTI…go to a naturopath and they can give you the protocol to get rid of it naturally. It involves high dose C, vitamin a (it starts out very high, and then is reduced each day for two weeks), herb pharm urinary system support and d-mannose. The d mannose doesn’t actually cure it, it prevents the little buggers from hanging on the uterine wall. Got rid of my last one—no antibiotics! 🙂

  17. Maureen Hochberg May 5, 2016 at 7:33 pm Reply

    Glad your MD was willng to listen to you, that is not too common.And you look great in that dress!!

  18. kris t May 10, 2016 at 10:06 am Reply

    Lizzie, have you tried Botox for your migraines? My friend tried that and it really helped her. (they are injections) Not sure about the gaba’s and what it could do for that. I guess you could run it by Lisa first and get her take on it. Kris T

  19. Linda May 10, 2016 at 10:11 am Reply

    I have also heard about botox for migraines, but recently there have been a spate of negative articles on long term effects of Botox. I would stay away from it, especially if you already have flq or other toxins in your body.

  20. Tom May 13, 2016 at 9:58 pm Reply

    try to eat organic.Chicken and beef are fed antibiotics,and floroquinolones like cipro are included.All it takes is to injest a small amount of cipro again to give you a new flare up

  21. kris t May 14, 2016 at 6:24 am Reply

    Tom, places like Whole Foods and Fresh Thyme, do not use antibiotics in their beef or chicken products. Also I buy Perdue Perfect Portions chicken breasts and they are antibiotic free. Kris T

  22. […] Source: Lizzy’s Story – Recovery from Ciprofloxacin Poisoning […]

  23. Julie Hutson May 15, 2016 at 1:16 am Reply

    All the way in South Africa I experienced the same thing and thank god I stopped after only two doses. After my GP refused to admit the rashes, swollen massive glands, pain unbeleivable pain targeting different parts of my body on different days for up to 6 months I found my way to a rheumotoidologist. She researched it and found symptoms already documented. I had blood taken every months checking my inflammation counts and month after month they got lower and lower until they were normal. I now 4 years later am perfectly fine except for an extreme fear of taking any new medications – I only have taken penicillin and only take straight paracetamol for pain. And I’m fine. Thanks for your info – through it all I was so sick of being looked at like some weird hypochondriac. It was so good for someone to say hang on this is what it is.

  24. Nan May 16, 2016 at 7:13 am Reply

    Hi Julie

    What helped with your inflammation? I too was referred to a rheumatologist actually a few of them and some said RA and one said he simply didn’t know what was wrong and would say definitively RA. It’s like I know that I didn’t wake up the very next morning with RA when I was fine the night before taking cipro. When I first took this stuff my inflammation markets were very high.

  25. Julee May 19, 2016 at 8:33 pm Reply

    Hi Lizzy,

    I am a very new floxie (one week) and find your story inspiring. In addition I find myself less frightened at what comes next. I too had a two day migraine, stopped the Levaquin on my own after 5 days, and on day 6 I woke up almost paralyzed and unable to turn, bend, twist, stand, sit, or walk unassisted. I couldn’t kneel, or completely straighten my knees. I felt almost locked in place, with tingling and burning Charlie horse type pains in my hips, back, arms, and legs. I also have the sharp sudden pains that come from nowhere and sudden buckling of my joints as I try to use them. It even hurts to stay still for very long in bed. My arms and shoulders fatigue after a few minutes of any use. I have the joint popping, too. I am hobbling around now with almost constant pain but whatever happens I know I’m going to get through it. Thank you for posting your story.

    I have not seen others taking prednisone to help, but my dr told me to do 5 days of 20 mg, then a fast taper back down to 5 mg. The literature says that steroids worsen the symptoms, but I don’t think I’d be able to walk at all without them. I have a condition called PMR which is similar to RA but located in the muscles rather than the joints. I also take a low dose chemo drug to help with the muscle inflammation (methotrexate).

    I’m trying to flush with lots of water, taking C and D, B complex, folic acid, probiotics, magnesium spray, and burbur detox. I’m also drinking dandelion tea made with non-fluoridated water.

    I’m hoping my pain will improve soon. I’m a little worried about the steroids, but i start the taper tomorrow so there’s not much i can do about it until i do that. I intend to be a “Floxie with Moxie”. That will be my poster!

    -Julee : )

  26. L May 19, 2016 at 9:24 pm Reply

    I am convinced that my reactions were so bad because I was given prednisone with Cipro. I hope you taper off sooner rather than later. This is from Dr Jay Cohen’s book (“How We can Halt the Cipro and Levaquin Catastrophe: The Worst Medication Disaster in U.S. History”)

    “The FDA strongly warns doctors to avoid prescribing corticosteroids in patients who are takig FQ medications. Why? Becaue when used together both can increase the risk of tenodn ruptures. Even long after a FQ is discontinued, steroids alone can increase the risk of developing a ruptured tendon. Instances of this happening have been reported ina the medical literature many times.” It also makes sense that if they can exacerbate THAT risk that they can also exacerbate other risks.He goes on to say that doctors will give steroids to reduce pain or inflammation, but this is not advised with FQs. He says it may or may not hurt all patients, but why take the chance?

    • Julee June 9, 2016 at 12:33 pm Reply

      I got so scared after doing research, that I went from 20 to 10, then 5, then nothing, in 3 days. I did have detox reactions (headache behind my eyes, flu-like issues) from going down so fast, but I was more worried about tendon rupture than the discomfort of tapering too quickly.

      I have also discontinued the methotrexate.

      My rheumatologist started me on 30 mg Cymbalta for chronic pain, and after about 4 days I felt a real difference, though it isn’t completely addressing the pain or stiffness. I get especially stiff after not moving for a while – long periods of sitting or driving, first thing in the morning, etc.

      It does seem like it has improved some. I do get muscle fatigue very quickly though, and I feel like “everything aching” is sadly my new normal. My arms and neck are particularly bad.

      My primary is of the camp of “dilution is the solution to pollution” which in many cases is a great outlook, just maybe not THIS instance. I’m drinking up a river’s worth of water per day, along with magnesium, Nutramedix Burbur detox, and Nutramedix Pinella Brain cleanse (borrowing detox methods from the Lyme camp – part of the Cowden protocol for system cleansing). The Burbur and Pinella have made a remarkable difference in my brain fog.

      I will be seeing a new rheumy in the next few weeks, and maybe she will be a little more active in helping me address the Flox reactions.

  27. Elizabeth June 9, 2016 at 11:43 am Reply

    Can you go into more detail about your relapse and the course of it? The same thing has happened to me and any info or detail you could provide would be so helpful. Thank you!

  28. kris t June 10, 2016 at 6:05 am Reply

    Julee, isn’t Cymbalta an anti-depressant? Are you doing neck exercises? I have had neck pain for over a year since my last Cipro tablet. Although mine was more due to an injury. I have found that daily neck exercises helps and also getting a gentle massage in that area, plus chiropractic and yoga. Kris T

  29. Julee June 13, 2016 at 6:35 pm Reply

    Hi, Kris, yes, Cymbalta is an anti-depressant but it is also used for chronic pain control. I was on Methotrexate AND Prednisone for a chronic condition called PMR, which I am not taking now, so my primary started me on Cymbalta hoping it would help. It does, but not completely. My neck constantly aches and my knees are a continual source of pain – aching and crampy at rest and sharp and burning pain when moving, especially doing anything weight bearing. I can’t even kneel on my soft bed – my knees are too painful.

    I tried neck exercises, and knee exercises, so I don’t stiffen up completely, but it seems to irritate instead and makes me stiffer. I’m opting for very gentle movements so I don’t aggravate anything.

    I also just found out I have a fracture in one of my vertebrae, that may or may not be a year old (from a very bad fall in which I broke my shoulder in 3 places).

    I’m pretty resilient, but lately not getting around very well. I hope a year is as long as I have to deal with this newest thing. It’s not at all pleasant.

  30. kris t June 14, 2016 at 5:53 am Reply

    Does the Cymbalta make your mouth drier? I am thinking of asking my primary cr dr to put me on it for my pain and also I have so much depression. I am seeing an acupuncturist for my depression and my back and neck pain, but have not seen much of a difference. The members of Floxie Hope will tell you to stay away from anti-depressants as they increase some of the side effects from Cirpro and other like anti-biotics. Have you found this to be true since you started Cymbalta? Kris T

  31. Julee June 15, 2016 at 9:01 am Reply

    Hi Kris,

    I think the Cymbalta makes my eyes a little dry – mouth not so much – but I drink about 2 quarts of water or more a day, based on my Dr’s advice for clearing out toxins of any sort. So I don’t think it has a chance to make my mouth dry as I am almost constantly drinking water – or herbal unsweetened teas.

    The Cymbalta does not seem to do much for the floxie pain in my knees. When first getting up, my tendons are so tight and painful I can’t walk at first. But as I shuffle along with my cane for about 25 steps or so, then they seem to loosen a little. Still painful but not as crazy tight. This happens every time I’m inactive for any significant period of time (sitting in a meeting for 2 hours, driving to work for 45 min, getting up at night to use the restroom). But then if I do try to walk too much, I get the muscle fatigue and have to stop and shake out my legs a few times as they become weak.

    The Cymbalta has made a significant difference in my chronic back and shoulder pain, (from PMR) however. I was unable to turn over even in my bed, with the methotrexate and steroids. I also tried Plaquenil which did very little. Of course, 20 mg of prednisone (steroids) worked the best on the PMR pain, but it had horrible side effects (pancreatitis, osteoporosis). Now I have a compression fracture in my back, and Cymbalta and Oxy must be doing a very good job at relieving that pain (Better than Methotrexate, low dose Prednisone, and Oxy), because I don’t think of it like I used to…it’s faded into the background.

    You should know, I was quite sick (flu-like symptoms) for 3 days when I started the Cymbalta, but it very well may have been the rapid step-down from the prednisone that caused it. Maybe both. I was pretty sick, but I told my doc I’d give it a week, and by day 4 I was feeling better and my “regular” pain was much less.

    I find that if I take it easy and don’t roll my neck around and try to force it, it doesn’t hurt as much. The knees are still pretty awful, but certainly not worse since starting the Cymbalta.

    I don’t feel fuzzy headed from the Cymbalta – not really any personality changes or make me feel any different than I normally do – just less of my regular pain. So I do feel that it works. I hope that it works for you, too. That first few days may be a little rough getting used to it though.

  32. kris t June 18, 2016 at 6:12 am Reply

    Julee, I see my primary cr doc on Wed, will ask him about it. Have you tried that Purple Rice Powder? You can see Ruth’s story on this website. She used it and said it helped so many things heal, in a natural way. I am not sure if it healed her pain though. I did try it but it made my mouth so dry. Although you do mix it with water until it forms a paste and you take it three times a day. Its very expensive though. You might ask Ruth about it, I think she still takes it. Kris T

  33. Fad September 2, 2016 at 11:50 am Reply

    This is something terrible honestly, i feel hopeless sometimes, think that life has nothing left for me. PLEASE guide me something for migraines, 17 months and i am in a terrible state which is bothering me everyday, i am sick and tired of everything.

    Ps. Took cipro 17 months back for stomach infection and everything started than. Please guide on headaches panics migrains. PLEASE

  34. kris t September 2, 2016 at 12:17 pm Reply

    Fad, I feel the way you do about your headaches with my brain fog and back pain. Let’s see, have you tried Botox? My friend went to Cleveland Clinic in Ohio for her migranes and they helped her tremendously with a new drug designed for that. Can you afford to go to Cleveland Clinic? Another friend tried Botox and it helped her. There is the more natural way by going to an acupuncturist. Kris T

  35. kris t September 2, 2016 at 12:23 pm Reply

    Julee, I could not take the Cymbalta, I had a terrible reaction to it. Maybe I should have taken just a half of a capsule, tried Celexa next, could not take that, even 5 mg, and now I am going to try Lexapro. I may try the Cymbalta again and as you say try to get adjusted to it, but I felt like I was dying and went through horibble withdrawal feelings after one pill, had to call poison control. Kris T

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: