*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
My story revolves around two different sets of antibiotics taken approximately six months apart – November 2014 and April 2015.
The first antibiotic was Clarithromycin which I took for ten days to treat a stomach bacteria called Helicobacter Pylori (H. Pylori). This antibiotic was prescribed in the form of capsules and tablets.
The second antibiotic was Ciprofloxacin which I took for seven days to treat an ear infection. This antibiotic was prescribed in the form of liquid drops.
Before I share my story, it should be said that prior to these events, I was a completely healthy and active person who enjoyed backpacking, climbing mountains and hiking. I had no prior conditions and was in overall good health.
All that changed when my health, post-antibiotics, suddenly and rapidly began to deteriorate. Since then, I have been on a journey to not only reclaim my health, but also my life which vanished with a couple of bad decisions.
I am not going to sugar coat this. What transpired in the months following the above antibiotics was equivalent to being stuck in a nightmare of unparalleled proportions. It was surreal, to say the least.
Although I have been shaken to my core, I am still standing. My recovery has been slow and gradual but compared to the place I found myself in at the start of this whole ordeal, the difference is night and day.
If you’re reading this and dealing with your own nightmare scenario, know that you will emerge from this. No state is permanent. It may take months or even years but know that, in time, you will recover.
Keep the faith. Don’t give in. This is not the end of your story. Only a dark chapter which will eventually cease to exist.
That being said, here’s my account of events.
How It All Began
At the end of October 2014, upon having a blood test done at a local walk-in clinic, I received news that Helicobacter Pylori (H. Pylori) was present in my stomach and was told by the attending physician that antibiotics would be needed to eradicate the bacteria. Admittedly, back then I had little knowledge of the delicate intricacies of the human anatomy and in particular, the devastating effects of antibiotics on the stomach, gastrointestinal tract, liver and other vital organs. As such, I made the nearly fatal mistake of putting my trust in the doctor, believing that they have the knowledge and understanding to set me on the right path, in this case, to eradicate the bacteria without due harm. After all, if the antibiotics that were handed to me were not safe, the doctor would surely say something, give me a heads up of some sort. Unfortunately, that warning never came. When I decided to speak up and inquire about the safety of the pills myself, I was briskly and casually told that they were safe. Nor was there any mention of possible side-effects. I was simply sent on my way. As for the final hand-off, there was no warning at the pharmacy counter either. Little did I know that I was about to get myself into a life-threatening situation.
ER Visit On Day 2
Upon starting the antibiotics in November, I started to feel the powerful effects of the pills. I got through the first day but on the second day I could no longer tolerate the pills and felt absolutely brutal. The state of my health was bad enough that I had to be driven to the local hospital and attend ER in the late hours of the day. After spending countless hours in the ER, I was seen by a doctor who dished out three Tylenols for the road and sent me happily on my way. On the advice of the original doctor, I decided to continue with the antibiotic until Day 10. Upon the conclusion of the antibiotic course, I started to feel better with each day. I was certain that the worst was behind me. The worst, however, was yet to come.
The First Symptoms
It was now February 2015 and exactly three months after I ingested the first pills, the first wave of symptoms hit me. It began with an abrupt wakeup. I woke up at 5:30 am for absolutely no reason at all. The wakeup came in the form of a very sudden jolt and I could not fall asleep afterwards no matter what. I didn’t think much of it until the following night when I could not fall asleep all night. All I was able to do was close my eyes and rest but at no time would I be able to fall asleep. This sudden, inexplicable insomnia came out of nowhere. Prior to this, I had never had any sleeping issues whatsoever. Nor did I experience any abrupt wakeups. Now I was dealing with insomnia issues and the odd time that I did fall asleep for several hours, I would always wakeup abruptly at 5:30 am each and every time. This was beyond normal, yet it was only the start of my symptoms. In the coming weeks, I started to lose all my energy. I became so weak that I could barely get myself out of bed. It was as if my body was running out of fuel, even though I was providing the fuel in the form of food and water on a regular basis. I also started to lose weight very rapidly. Before the end of the month, I started to experience neurological impairments which I first noticed at work. Suddenly, I had trouble coping with my everyday tasks. Tasks that were natural to me before were all of a sudden becoming foreign to me. My concentration levels dipped, I could not focus and the world around me seemed to be closing in on me. People would be talking to me and I could barely make out what they were saying. I started to make a lot of errors at work. Things got so bad that I would exit the elevator on the wrong floor. I also started to lose track of time and could not tell how much time had passed by. It was becoming evident to me that something was very wrong, yet out of fear, I refused to acknowledge that the antibiotics had anything to do with these sudden changes in my daily function. I simply ignored the symptoms to the best of my ability and carried on. When I tried to shake off these symptoms at the gym, I was surprised to find that I could not lift anything remotely heavy. Prior to the antibiotics I could lift all sorts of heavy weights, this was virtually impossible at this point. I had no energy and my muscles felt extremely weak. Seeing as I was doing myself more harm than good, I decided to give the gym a rest for the time being.
Enter Ciprofloxacin
The old saying “When it rains, it pours” comes to mind when I reflect back on the six month period that started it all. Upon dealing with the sudden blow to my health, in a cruel twist of fate, I did something that nearly put the final nail in my coffin. In April, I went out and got poisoned a second time. Due to a so called medical professional, and I use the term loosely, I had sustained inner ear damage. This led to an infection and subsequently, a prescription for Ciprofloxacin from another doctor, one I thought would be the answer to my problems. Instead, with my continued lack of knowledge on the subject, I put multiple drops of Ciprofloxacin into my ear each day for seven days straight, in the hopes of healing my damaged ear. The antibiotic not only leaked into my ear but subsequently found its way into my body. At this point in time, I had enough toxicity in my body to create the perfect storm for neurological and physical dysfunction.
Here are just some of the symptoms that presented themselves in the days, weeks and months following the antibiotics:
-Abrupt wakeup
-Insomnia
-Depression
-Anxiety
-Lack of energy
-Weakness
-Muscle pain
-Joint pain
-Tendon pain
-Inflammation
-Eyelid twitch
-Burning sensation in the ear
-Sensitivity to light / sunlight
-Dry heaving
-Stomach / GI issues
-Urinary tract issues
-Muscle spasms
-Post-nasal drip
-Chest pain
-Heart palpitations
-Loss of appetite
-Major weight loss
-Psychosis
-Depersonalization
-Derealisation
-Paranoia
-Panic Attacks
-Suicidal Thoughts
-Fear of Dying
-Brain fog
-Confusion
-Numbness
-Apathy
-Irritability
-Depersonalization
-Derealisation
-Hearing loss
-Tinnitus (Ringing in the ears)
-Blurred vision (Double vision)
-Peripheral vision problems
-Back floaters in the field of vision
-Pressure near the frontal lobe
-Difficulty conducting activities
-Memory loss (Short / Long-term)
-Inability to form new memories
-Inability to concentrate / focus
-Inability to process information
-Inability to make a decision
-Inability to learn new tasks
-Inability to feel all emotions
The symptoms listed above occurred during different time periods. Some symptoms were short-lived while others persisted for longer periods of time. At the height of the toxicity, most were present.
Adverse Drug Reaction
It’s true that the human body can only take so much toxicity before it begins to shut down. In the weeks and months following the antibiotics, I entered a brand new world, a world filled with unimaginable horror and terror. I could no longer feel my frontal lobe working. It was as if it didn’t exist. For the first time in my life I was dealing with depression and anxiety. Not mild, not moderate, but major depression and anxiety. A blanket of sadness and despair overpowered any emotion I had left in me and drove me to the brink. I began to lose sense of what’s real and found myself battling depersonalization and derealisation. When I found myself outdoors, I felt as if the world was artificial, a 3D model of what I used to know. When around busy public spaces, my anxiety would skyrocket and I would seek to escape my environment as soon as possible. I began to close myself off from society and tried to conceal my degrading condition from my employer, co-workers, family and friends. Deep down inside I knew it wouldn’t be long before the truth would surface and surface it did. At the end of May, after months of agony, I suffered a mental breakdown at work. It was at this point that I knew I needed to leave my job behind and focus my efforts on making a recovery. I went on short-term medical leave and would later revise my leave to long-term status. From here on, all my energy and efforts were dedicated to healing.
Healing From Toxicity
The following is a list of items that I have undertaken towards my recovery from both sets of antibiotics. It is of upmost importance that each individual use his or her own discretion when undertaking any sort of treatment and/or supplement. I cannot be held responsible for any injury or mishap that occurs from this list. We are all incredibly unique and no DNA is the same. In other words what works for me may or may not work for you. Having said this, I hope this list will be of some benefit to you, your loved ones or anyone out there who has been injured by antibiotics.
# 1 – Obtain Support
When it comes to personal issues in my life, the last thing I wanted to do was to reach out to anybody during my ordeal. I thought to myself, “I can do this on my own”, “this is my fight, not anyone else’s”. The problem with this logic, as I found out, is that although it is your fight, winning this battle on your own is next to impossible. The reason being is that this is an invisible monster and going at it alone is setting yourself up for trouble. I had no choice but to reach out for support and I’m glad I did. I credit these people with saving my life and the same may hold true for you. Take my advice, reach out to someone, anyone. There are people out there who are willing to listen and help you through the storm. I enrolled myself in several groups such as an insomnia group and depression group. While it’s sad to hear about people’s problems, you will walk away with the sense that it’s not only you who is going through the storm. Countless others are going through the very same storm. This is very empowering.
# 2 – Positive Mindset
I know first-hand how difficult it is to stay positive during a nightmare that unfolds right in front of your eyes, however, I cannot stress the importance of at least attempting to keep as close to a positive mindset as possible. It’s essential to remove the persistent negative thoughts that flood our mind. The reason for this is because our thoughts turn to behaviours and our behaviours turn to actions. It’s a difficult and draining task but training the mind to stay on track is vital to recovery. As hard as it is at the present moment, finding things in your life to be grateful for, even if they are now in the distant past or minimized by your current state, will at least shine some light on the current situation. Afterall, what’s done is done. We cannot undo the past, however, we can write our future. In this future, you may feel like your old self or you may even be a happier you and the only way to get there is to stay in the game.
# 3 – Finding Forgiveness
It’s a major obstacle to overcome since it involves forgiving yourself, even if the effect was accidental, and forgiving those individuals who played a part in the process. Individuals who should have warned you about the possible side-effects but for whatever reason, did not. I believe that those of us who find ourselves in this situation are progressing through the five stages of grief with the end goal being not acceptance, but a feeling of having regained control of our lives. This is where we enter forgiveness. Holding on to the anger won’t solve the problem, it will only agitate it. Therefore, the only sensible act is to forgive yourself and those certain others. Times heals and it is only a matter of time before you feel better. Finding inner peace is part of the recovery process and it starts with us making peace with the situation we find ourselves in. Quite simply, it’s best to view this entire ordeal as another lesson in life.
# 4 – Fitness Club / Sauna
As I mentioned earlier, I had to give up the gym for a while since it was doing me more harm than good. In November 2015, I returned to the gym and this time, I felt different. This time around I could lift more weights and not be as exhausted as before. When I first returned, every single joint in my body started to crack like eggshells. I was concerned that this was going to be a long-term occurrence, however, the cracking of the joints dissipated after about a week or two and after that I no longer heard any cracking. So why should you hit the gym? The answer is simple. It will improve your mood and quite possibly, your overall state. Your brain needs to have its endorphins (hormones) stimulated and working out does the trick. This will reduce the pain and stress associated with the toxicity. You should only consider the gym when you’re ready though. This may take some time depending on when your toxicity took place. Also, what really helped me along was the use of a Swedish-style sauna that is located inside my fitness club. The use of a sauna helps eliminate toxins from your body. The toxins are removed through excessive sweating, as well as urine and stool excretion. You will need to drink a lot of fluids beforehand, during and after the sauna use. Water is best. Also, keep the sauna use to a minimum. 10-15 minutes is more than enough.
# 5 – Supplementation
Like most people on this website, I have gone out of my way to try and heal myself with supplements. It seemed like the easiest solution. The problem with supplementation is that you don’t know which ones work, if any. I bought my fair share of supplements, but in the end, I settled on only a few which may or may not be making me feel better. Again, it’s hard to say if these supplements work or if we are feeling better naturally with time. Perhaps both. The only supplements I continue to take are the ones I started off with which are:
Omega-3 (Heart/Brain/Mood) (NutraSea+D 1250mg liquid – 1 tsp daily)
Greens+ Original (Nourishing Superfood) (Genuine Health powder – 1.5 tsp daily)
Also, although this is not a supplement, I have been consuming Golden Flaxseed on a nightly basis to repair the stomach damage caused by the antibiotics. As I found out after the fact, antibiotics knock off both the good and bad gut flora / microflora. It does not discriminate. Seeing as the gut is considered a second brain with some in the field arguing that the state of your gut is more important than your brain itself, this means repairing your gut is critical to your overall health. In other words your gut health has great influence on how you feel. Consuming the flaxseed immediately before bedtime will kick start the repair process. It’s best to boil the flaxseed until it becomes a gel, let it cool slightly, and then drink it. It’s not the best tasting beverage in the world but it’s meant to help repair your stomach lining which may be damaged. The flaxseed is also high in fibre, iron and calcium so it has multiple benefits to it.
# 5 – Other Therapies
The only other therapy I sought out was Manual Lymphatic Drainage (MLD). MLD is conducted by a licensed therapist who specializes in this type of massage. This massage is meant to get the toxins moving away from their storage areas such as fatty tissue, organs and bloodstream. By moving toxins along, you are bound to remove/excrete them, a process similar to that of using a sauna. The price of these massages isn’t cheap ($70 CDN for 45 min session) however if you have coverage from your employer, it should help dampen the cost. It’s very relaxing and there is no pain involved whatsoever.
# 6 – Rebuilding Yourself
Let’s be honest with ourselves. This is a complete rebuild. Our house has been burned to the ground and we are being forced to start over. It’s a scary thought but it’s reality. How we emerge from this is up to us and our willingness to fight. There will be doubts, there will be setbacks, but in the end, one can only be victorious if he/she stands the test of time. Am I the same person I was before the poisoning? No. Do I hope to get there one day? Absolutely. I know it will take time and I also know I will need to exercise patience if I am to succeed. As difficult as it is, I urge you to do the same. Rediscover your old hobbies or find some new ones. I’ve started on some new projects. There is no better way to shelter from the storm than to keep yourself busy with hobbies/projects that you enjoy. I know the enjoyment is not the same as it used to be but in time, it will be. Believe me, you will be happier doing something than doing nothing at all.
One Year Update (February 2016)
It has now been one year from the start of the symptoms and I am feeling generally good. There are times when I still stumble along, however, when I think back to 2015 and the darkness that engulfed me, I can safely say that I have made huge strides in my recovery. Of all the symptoms that plagued me in 2015, the ones that remain are as follows:
Abrupt wakeup (No longer 5:30am! I usually wake up around 8:00am these days which has helped a lot)
Insomnia (There are nights that I sleep well and there are nights which I don’t but there is improvement)
Depression & anxiety (I have downgraded myself from major to moderate with mild being my next goal)
Lack of energy (I continue to have problems with energy but it has gone up substantially since last year)
Sensitivity to light / sunlight (On-going issue which I hope will resolve itself with time)
Dry heaving (On-going issue that has improved substantially; my guess is that it is connected to anxiety)
Muscle spasms (Major improvement in this department; I barely get spasms anymore)
Post-nasal drip (Still some excessive mucus forming in the lungs but it has gone down drastically of late)
Weight loss (Continues to be a problem as I have a difficult time putting on any weight)
Neurological issues (The brain fog is gone and I am able to make decisions quite well again; the biggest problem is my short and long term memory impairment – this really bothers me as my memories are extremely important to me; I am hoping that with the passing of time these memory issues will resolve)
Vision issues (Continues to be a big problem as my vision is still somewhat blurry; black floaters persist although they are mostly visible when looking at a screen or wall; peripheral vision has improved but is still obstructive; bright conditions are especially difficult to deal with but I’m hoping all this will vanish)
Concentration and focus issues (Improving steadily; I can concentrate and focus much better as of late)
Emotions (I’m still awaiting for my emotions to return; the numbness has gone down quite a few levels)
These days, I’m keeping busy with all sorts of projects and trying to put this whole nightmare behind me. A complete recovery is still a long way away but the thought of getting there has me excited and looking towards the future, with cautious optimism of course. I am incredibly thankful for the big improvements in my recovery but also know that I am not out of the woods yet.
Prior to this incident, traveling was my biggest passion in life. It was what I lived for. Unfortunately, this incident has robbed me of this passion and countless others. I will say this though. It is my goal to one day be able to set out into the world again. To one day, reclaim that ultimate feeling known as euphoria. It’s a work-in-progress but I am determined to get there at some point.
I hope the information contained here has been useful to you or your loved one. If there is anything I can do to help, please let me know.
I wish you all a speedy recovery.
Two Year Update (February 2017)
Hi, folks. Two years have now passed since the onset of a myriad of symptoms from Clarithromycin and subsequently, Ciprofloxacin. It’s been another tough year filled with successes and downfalls. Truthfully, I was hoping to be more or less recovered from this whole ordeal but it seems there is a lot of work left. Having said that, I do have to count my blessings as to where I stand currently. I’m sure things could be far worse than they are. As it stands, I have good days alternating with bad days. I’m hopeful that down the road more good days will follow but there are some things that have helped me along over the past year and I’m happy to share these with you in the hope that they may help you in some way or another.
Since my one year update, there’s been some minor changes in my life, both good and bad. For starters, in May of 2016, after missing a year of work due to my failing heath, I returned to my job and resumed full-time work. Originally, this seemed like the right move since I needed to keep myself busy and distracted from what was unfolding in front of me but as of late I’m beginning to question whether work is helping or hurting me. The problem is that I’ve been encountering some stress there lately and it has been taking a toll on me. My ability to handle stress has been greatly diminished since this whole ordeal began and along with the flu, it’s the easiest path towards experiencing my worst symptoms. This probably has something to do with a compromised immune system and/or damaged CNS. Avoiding stress and the flu isn’t an easy task. I was hit hard with the flu last winter (it was so bad that I had to be rushed to the ER) and this winter I’m undergoing a similar kind of battle but on a smaller scale (perhaps my immune system is slightly stronger this time around). As for the stress, my body and mind have endured so much of it over the past 2 years, that I’ve basically forgotten what it feels like to be free of it.
The aches and pain in my body are more or less under control at this point. Since I stopped going to the gym, there’s been little to no pain in my tendons, muscles and joints. Though I suggested exercise as a treatment in last year’s update, I’m not sure it’s a good idea for those that are newly floxed. In retrospect, I wish I had waited for some time as it’s clear to me now that a person who has been floxed has some significant damage to his/her tendons, muscles and joints and that these aspects of the body require lots of time and rest in order to heal. Perhaps undertaking lighter exercises is the best compromise. I have also been taking some oils so it’s quite possible that these oils have helped relieve the inflammation (I’ve been taking one full tablespoon of olive oil daily since the beginning of this year).
In regards to my symptoms, over the course of the past year, I have won more battles than I have lost. The psychosis, depersonalization and derealisation that these pills triggered in me back in 2015 are no more. Along with the frequent panic attacks, they were by far the worst and scariest symptoms I have experienced in my life. Not only did they inhibit my judgement and reason, but they also drove me to the brink of committing suicide. With the exception of the past couple weeks, I was able to downgrade myself from major depression to minor depression. Unfortunately, something has changed in the past couple of weeks and I’ve been attempting to right the ship ever since. It may be that I’m experiencing the Herxheimer Reaction. It’s hard to tell if that’s what’s happening or the usual relapses that seem to have no end. Presently, my most debilitating symptom is one that has been with me since pretty much the beginning – cluster headaches aka central pain syndrome. This condition can best be described as constant burning/melting of the brain. Currently it’s centred in the middle of my scalp but it does shift with time. The pain/pressure can sometimes be unbearable. Ironically, one of the very first symptoms that I complained about upon my November 2014 ER visit was an unbelievably painful pressure in the head. The ER doctor dismissed it as nothing and gave me three Tylenols for the road. There have been periods this past year whereby this issue seemed to be resolved only to come back later on. It’s almost always accompanied by concentration issues, short-term memory loss and blocked/burning ear canals.
Aside from this, insomnia and abrupt wakeups continue to be a problem for me. I haven’t had a good night’s sleep in 2 years and it doesn’t look like there is any end in sight. As a result of waking abruptly, I’m forced to sleep (I use the word loosely) in otherwise I’m extremely tired all day long. The ringing in the ears (tinnitus) only adds to the burden. This symptom ranges from mild to severe and seems to be worst when the cluster headaches occur. On the visual side of things, floaters continue to exist though I’ve somewhat become accustomed to them now. My throat issues have improved quite a bit but that too isn’t fully resolved. As for the nerves, I can sometimes feel myself shaking for no reason at all. My guess is that this has something to do with a damaged CNS and/or damaged nerve(s) within the body.
In addition to all this, I seem to be in worse shape when consuming wheat, dairy and recently, seafood. I’ve never had a problem consuming these types of foods in the past but since the ADRs I’ve developed some kind of allergy to them. Both wheat and milk seem to trigger either constipation or diarrhea. Fish, on the other hand, such as salmon, can set off multiple symptoms. Even beef can have this same effect. The only form of meat that seems to have no negative impact on my health is poultry (chicken, turkey). Needless to say this type of limited selection when it comes to food intake doesn’t make life any easier.
Speaking of digestion, I’ve found some interesting books that delve deeper into ADRs and our gut flora:
“Bitter Pills: Inside the Hazardous World of Legal Drugs” by Stephen Fried (HIGHLY RECOMMENDED)
“This Is Your Brain on Parasites: How Tiny Creatures Manipulate Our Behavior and Shape Society” by Kathleen McAuliffe (YET TO READ)
“I Contain Multitudes: The Microbes Within Us and a Grander View of Life” by Ed Yong (YET TO READ)
To end things off, the best advice I can give anyone who has been recently poisoned or at their wit’s end is to find something that makes you happy, even semi-happy, and stick with it. Anything from the arts to zip-lining and everything in-between, just do it and do it often. It’s these kinds of undertakings that have kept me alive and they might just do the same for you.
Remember, one day when you’re least expecting it, you’ll be feeling like your old familiar self and you’ll have these distractions to thank for getting you there.
List of things that have helped me along in 2016:
- Coconut Water [Contains Potassium, Calcium, Phosphorus, Magnesium, Manganese]
I believe drinking 500 mL of this water has helped with the inflammation in my body.
- Natural Spring Water [No Fluoride]
I’ve been using this water since the ADRs. I usually drink between 2L & 3L. I also drink tea.
- Fruits [Various]
I’ve been eating various seasonal fruits ranging from berries to melons and others.
- Vegetables [Various]
I’ve been eating various seasonal vegetables ranging from broccoli to spinach and others.
- Nuts [Various]
Mainly almonds, walnuts and hazelnuts. For enhanced/improved cognitive function.
- Carrots [Organic]
For the vision issues and antioxidant properties. High concentrations of Vitamin C in them.
- Avocados [Organic]
For cognitive function and inflammation management. Various other benefits as well.
- Vitamin C [Powder]
I tried Vitamin C in powder form for a while and it seemed to help a lot, albeit temporarily.
- Spirituality / Mythology / Philosophy
I’ve been reading books about the above topics and they’ve helped me cope better.
- Coconut Oil Pulling [Daily – Swish the oil around for your mouth for 10 mins then spit]
This helps remove harmful bacteria from the mouth. Thanks to Ger for the suggestion.
Last but not least, an unrelenting will to live. The ONLY way to beat depression is to OUTLAST IT.
The hard truth is that the road to recovery is a long and painful one…. but it’s there nevertheless.
I hope that you are all obtaining progress in your recovery.
I wish you days filled with peace, serenity, and tranquillity.
-Lukasz
5 Year Update – November 2019
Hello Friends,
I thought I’d write up a 5 year update. I have been hoping for months to be able to include positive news in this update, but reality is a different matter, and the truth of the matter is that I’m still in the fight of my life.
Unfortunately, my overall state has been on the decline and this has me very concerned. Issues that can become life-threatening are starting to appear. Things like brain inflammation, irregular heartbeat and chronic insomnia coupled with interrupted sleep are the major concerns for me at the moment. What’s worse, there is nowhere to turn to for help. The medical system in Canada cannot be trusted given their record of harm. Natural health practitioners are out of ideas as well. So I’ve been in the same pattern that I’ve been in for the past five years, which is a pattern of wait and see, try this and try that, hope for the best and prepare for the worst. When your chronic illness is complex and unrelenting, where do you turn to?
What is most troubling about the fallout from adverse drug reactions is that they bring about countless diseases and conditions in the human body. Diseases and conditions such as Celiac Disease, Bipolar Disorder, Depression/Anxiety, Arthritis, Peripheral Neuropathy, Chronic Fatigue Syndrome, Heart Disease, Alzheimer’s, Dementia, Parkinson’s and the list goes on. Sadly, the people who work in the field of medicine know this very well. They also know that their very livelihood depends on the population possessing these diseases and conditions, hence, we have this cycle of people falling into the trap, falling sick, and fighting for their life as a result of these incidents. It’s disturbing, to say the least.
I should add that I’ve been displaying symptoms of all of the above diseases and conditions and I know of many others who are as well.
Since we are on the subject of diseases and conditions, I have been especially concerned about my body exhibiting Parkinson’s Disease type symptoms. Tremors have been occurring more frequently and lasting for longer periods of time. Originally, this would occur after meals but lately the nerves have been shaking throughout the day. Coupled with cognitive decline and increased brain inflammation, I can’t help but wonder if that’s what I’m heading towards. Hope I’m wrong and it resolves.
Another matter that’s been on my mind of late is a condition called Craniocervical Instability (CCI) and Atlantoaxial instability (AAI). I’ve done quite a bit of research on this condition and while many items appear to line up, it’s another shot in the dark. Still, my mind keeps coming back to it as a real possibility, especially considering the fact that I suffered serious whiplash from a car accident just prior to the antibiotic catastrophe.
A lot of my organs are also acting up. My heart rhythm has changed quite a bit and feels somewhat off. It feels like its’ working overtime and under too much pressure/stress. In conjunction with my lack of sleep, I worry about a possible heart attack/stroke scenario. Again, hope I’m wrong and it resolves. In addition to the heart issues, I’m seeing other organ problems like that of my bladder which cannot handle much liquid. I have to urinate after only a few sips of water. Additionally, there is excessive mucus forming inside of my mouth which originally obstructs my throat. I have to clear out both often. Insomnia has also been kicked into high gear and when I do finally manage to get to sleep, it’s shallow and interrupted. This has been extremely difficult to cope with because it affects my overall state.
Then there is the brain inflammation. After the sets of antibiotics, I developed a burning sensation in my head. It felt like my brain was being fried. It was a very distressing feeling and I could barely cope. When this feeling would come over me, I could barely function as I could not utilize my brain’s normal function. This did at some point, resolve, but now it’s returned and it’s really making life hell for me. Taking all symptoms into consideration, this abnormality along with sleep deprivation (insomnia) are by far the most difficult to endure.
To wrap things up, I want to applaud each and every one of you who are battling to stay alive. In this daily struggle, I have endured many feelings of helplessness and imprisonment, but I’ve always kept all of you in mind. I wanted to see all of you return to good health, to get yourselves back to a decent quality of life, at the very least, because that’s what you all deserve. Many of you are my inspiration to keep going, to fight another day. I’m struggling… but I know I’m not alone.
Below I have posted an illustrative diagram of my current physical and mental health issues.
I believe this diagram best describes what it’s like to live in my body at the present moment.
Thanks for taking the time to read this update. I wish you all nothing but the very best.
-Lukasz
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
Your side effects pretty much mirror my own. I describe it as being caught somewhere between the Twilight Zone and a Stephen King Novel. Terrifying isn’t a strong enough word for it.
IT was interesting you said you felt like your body was running out of fuel. I think that is exactly what was happening, as the drugs damaged your mitochondria, which are responsible for energy to the cells.
I am aghast at not just how unaware most doctors are, but also how UNWILLING they are to even look at the information when you hand it to them. You mentioned you got the flq in the form of ear drops. Well, after I had such vision problems after my Cipro, I went armed with information to an opthamologist (who has outstanding creds on paper and lectures all over the country) and he was very dismissive. I am aware that he uses Cipro eye drops for some things. I also went online to the dollars for docs site and discovered he accepted around $25,000 from the pharmaceutical industry. I dropped him and now am in search of a more integrative opthamologist (if one exists.)
Forgiveness is the hard one for me. I am still very angry, because it not only almost killed me and caused body wide damage, but it has ruined me financially as well. I am down to my last dollars. I have spent over $40,000 all because a doctor gave me cipro and prednisone and never warned me. I also am not sure if I will be able to perform again, and acting was my passion. So, yeah, having a tough time with this one.
Glad you are doing better. Hope you come back 100%.
I am so glad you are on you’re way to recovery. I’m right along there with you. I also have my story here.
Positivity is crucial. Support is crucial. We will beat this thing. 🙂
Very interesting and inspiring to all of us going through the same he’ll on earth. Every day is a battle and even small victories need to be appreciated. I’ve started my own blog documenting my daily life trying to get well again.https://chriscwharris.wordpress.com/
You say in your blog “coincidence is just not likely.” That has already been put to rest. The FDA safety subcommittee in November came up with a constellation of side effects, such as you have endured, and labeled it Fluoroquinolone Associated Disability. Also, the late Dr Jay Cohen, who studied this and was a great supporter of the floxie community, published a book in November aptly titled: “How We Can Halt the Cipro and Levaquin Catastrophe: The Worst Medication Disaster in U.S. History.” I am so glad he didn’t mince words in the title. (I got it on Amazon, around $13.) Wonderful book. I disagree a bit with his suggestions re pharmaceutical use after being floxed, but this should be MUST reading for every physician out there. (PS I used to eat tuna several times a week (canned) and I no longer do because of the mercury. Also, I hope what little meat you do eat is organic, so you are not getting yet more antibiotics that were fed to the animals.)
Lukasz, I am just a little past my one year “floxiversary.”
There was actually a report on mitochondrial damage from Lisa (of Floxie Hope fame ;: ) http://www.hormonesmatter.com/fluoroquinolone-antibiotics-damage-mitochondria-fda-adds-warning/
I also was told by a researcher that the severe breathing problems I was experiencing was likely from mitochondrial damage to the heart muscle. The mitochondria are responsible for producting all the energy in your cells, so without that, things slow down and stop.
I think you are right that some doctors are aware of the side effects, but honestly, so many are brainwashed first in allopathic-only med schools and then again by pharma sales reps, I genuinely think many are just plain ignormant. Especially since I saw a dozen doctors and most of them looked at me like I had two heads when I said all this damage was from the Cipro. ,But yes, either way, our health be damned. Money is the really important thing here.
Totally agree with you on the naturopaths. While I am certain there are bad ones out there, I credit mine with saving my life. I was really hanging on by a thread by the time I went to see him…gasping for each breath, needing help to walk, hunched over, blurry eyed and in so much pain. The downward spiral only stopped after I started seeing him.
Yes, the vision issues persist. The blurriness is improved (at one point, a tv just 6 feet away was blurred, even though a week prior I was able to read the print on the screen). The ginormous floater in my right eye is still there and still huge, maybe a tad better. I have been using hemp oil once a day—a tsp over a salad or in cooking and I am wondering if it is helping (something I read online. BTW also read goji berries would help, but saw no evidence of that.) I still get little black dots although not as many or as frequent—much worse in bright light, and that sensitivity is still there, although again, not quite as bad. At the worst, I could go out with sunglasses, a visor, and STILL have to hold something in front of my face—it was just too blinding. One epidemiological researcher theorizes that the floaters are because this poison destroys the vitreous gel, just as it destroys collagen. I was not so lucky at my eye exam—was told I have early stage cataracts and early stage macular degeneration. I had never been told that before, so I think that is also thanks to the cipro, although of course the opthamologist denied it. As or your tests being normal, I am not surprised. Most medical tests come back negative with this stuff. Todd Plumb, a doctor who himself was floxed said that the reason tests come back normal is that the damage is functional, not structural.
Yeah, I need to get work…I think I have the energy for P/T, but my problem is GETTING the job, since I have crying issues that I think are related to the gaba receptor damage. Crying at a job interview isn’t exactly the best way to get the job. Hope you recover fully as well, and soon.
Yes, I got rid of the fluoride toothpaste months ago. I also buy natural floss that doesn’t have petrochemicals in it. I wait until I need a number of things and order from Vita cost who does free shipping over $49 and the prices are good. (Not sure where you are as far as shipping.)
Food is hard. I trust places like Trader Joe’s or the local health food stores. on the other hand, when the big chains label something as organic, my trust goes way down. Organic is expensive but it is more expensive dealing with the toxins afterwards. I also now see a holistic dentist (Huggins trained). They don’t use toxic materials or fluoride and are trained to remove mercury (haven’t done that yet.)
Thanks for the book recommendations…will look into them. (I have seen Ms Somers on several shows talking about health issues.)
Hi Lukasz
Thanks for the post. Share all your concerns. I was just wondering how long it was before concentration and focus came back in. Or motivation? How to get a job is quite key as well. I’m so upset that I can’t just eat anything as that was so convenient. Can’t believe I didn’t check this drug out on one of the sites.
Hi Lukasz,
I am really glad that you are somewhat better and hopefully the list that you wrote where you still have issues will get shorter.
Besides being floxed a few times in the 90s I too was given Biaxin in between and now wonder if that didn’t make me worse. In 2013, almost 3 years ago in March during a surgery, the surgeon used Floxin solution at the site of the operation even though it was all over my paperwork and more importantly discussed many times with her not to use any FQs. I was sick immediately but didn’t know until a week later after I got the op report that this was done to me. Unfortunately doctors do not feel that topicals harms us so therefore although she apologized for the “oversight”, she also added the small amount she used could not have done the damage I reported to her. What they used on some type of gauze that dissolves, takes 4 to 6 weeks to dissolve, and of course my rhetorical question has been where is it dissolving into to? Again unfortunately the FDA also excluded topicals in their 2013 PN report as well. When I spoke at the FDA meeting in November I made sure to say that the topicals are harmful and need to be researched further. They actually agreed! We need more people to tell their stories on how they too were harmed by ear and eye drops. As I sit right now at the eye doctor’s office, I look around and wonder how many people sitting here have FQS in their eyes right now!
As I said above I hope you continue to get better because you do have a much better mindset than I do. I have been dealing with this for over 21 years. I wish you the best.
As far as the mitochondrial damage, I have been told to take coq-10 (or ubiquinol if you are over 40), Alpha Lipoic Acid , acetyl L carnitine and a good omega 3 supplement. I am guessing it has worked since my energy is so improved and also my breathing, which this person believed was caused by mitochondrial damage to the heart muscle.
My naturopath put me on IVs and that’s when I really started turning around: H2O2, high dose vitaman C, Myers, phosphatydilcholine —all with glutathione except for the H2O2.
My eyes were very dry at one point for several months. They no longer are. As for the little black dots I believe they are just a different manifestation of floaters. I think what I have is just vitreous gel that has pulled away, causing all the black dots and large floaters.
I have read, and been told that floaters are permanent. I’m not giving up though. (One woman whom my ND treated a couple years ago got passed all her side effects—except that one.) I’m not giving up hope though—trying hemp seed oil which I read about on several sites. Nothing so far, but as long as it can’t hurt I’ll keep using it. I try to use 1 tsp a day on something.
Just noticed you are in Canada and you mentioned Heath Canada. There is a great video out from Canada on all this. (It’s older so doesn’t have much on side effects other than the ruptured tendons, but a few.) https://www.youtube.com/watch?v=Scyd59nUG7s
I am taking all those except lecithin, but the choline in the phosphatidylcholine is actually a component of lecithin. And at this very moment, I am having a smoothie right now with a tablespoon of coconut oil in it! I use it to cook with too.
If you reside in Canada and have been poisoned by a fluoroquinolone drug, please report your Adverse Drug Reaction (ADR) to Health Canada’s Vigilance Program. Help spread awareness regarding this toxin of a drug so that others can avoid it like the plaque.
Canada Vigilance Program – Operated by Health Canada (MedEffect)
Telephone: 1-866-234-2345 (Toll-free)
Website: http://www.hc-sc.gc.ca/dhp-mps/medeff/vigilance-eng.php
E-mail Address: CanadaVigilance_ON@hc-sc.gc.ca
Hi Lukasz, I was wondering if I could ask you a few questions. I think I got poisoned by clarithromycin antibiotics that were prescribed to me unnecessarily by my old gp back in September 2015. It has been 7 months now and I still feel awful and have been unable to work or keep fit, which I was doing a lot of prior to this.
When I took the clairythomycin, I immediately felt the side effects and have been sick ever since then, the sickest I’ve ever been my whole life.
When I took them, the first pill, I experienced stomach pain, nausea, headaches, chest pain, my whole left side of my back went numb, sharp pain in my right side just under my rib cage, trouble sleeping, skin rash…
The doctor told me to keep taking them, I should have stopped immediately as I didn’t know the future effects, but figured I was only taking them for 10 days and should return to normal after that.
But since then, I didn’t return back to normal and have got worse. It’s almost 7 months now since I took them and I have really bad stomach issues, fatigue, chest pains, tinnitus, back pain, eye twitching, and general unwell feeling.
I’ve been to the ER many times over these last 7 months and they did scans, x-rays and bloods and nothing showed up. They wouldn’t even acknowledge the fact that all this happened when I was given the antibiotics.
I’ve been googling around for ages now and trying to see if this has happened to anyone else, but a lot of the sites, like this one, are all about cipro. I’m not to clued up about cipro, but was wondering if the clarithromycin is similar and does my story seem like poisoning to you? I’m searching high and low, and trying supplement after supplement and still not getting anywhere.
I have really bad back pain for the last few months and it’s going hand in hand with my abdominal issues, I’m worried about this. I never injured my back before or before this happened so don’t know why I have this back pain, more in my mid back area and sometimes between my shoulder blades. I’ve pulled some muscles over the years so I can tell what muscular pain feels like, this doesn’t feel like it. And I’ve been to a physio for my back too and got treated for 6 weeks and that didn’t help either.
Would love to hear your thoughts on this, thanks for reading.
Ger
Lucasz,
I keep coming back to your story. I can so relate to your suffering and have so much compassion for all of us that have gone through this nightmare. I wanted to mention to you that Omega 3 really seemed to intensify my depression and anxiety. Other people have reported this as well. Here are a couple of links and there are plenty more online if you do a simple google search:
http://mentalhealthdaily.com/2015/03/20/fish-oil-causing-depression-or-anxiety-consider-acetylcholine/
http://www.curezone.org/forums/am.asp?i=1065417
My heart really went out to you when i saw that over a year has passed and you are still struggling with often moderate anxiety/ depression. I had that soooo terribly for about six months but now it just comes on in waves and is not nearly as bad. What did seem to work for me, that i highly recommend is turmeric. I also have found phosphatidylserine to work really well for sleep and the stress response. Perhaps you may want to lay off the fish oil for a bit and see if this alleviates some of the mood symptoms.
I hope this helps you! Blessings!
Lukasz, no need to apologise for the long messages, I appreciate all the information I can get from you.
Any research I’ve done looking for answers, all directed me to Biaxin. And I’ve read stories about people being sick when they took them, but couldn’t see anyone who reacted so much like we did and have been out of action for months / years because of it.
I’ll have a look over the link you gave me, see what the others are saying and have experienced.
My new doctor is still denying that I can be still sick or even sick in the first place from taking the clarithromycin, even though I’ve told her about these websites with tons of first hand experiences and about your own story from taking the same drug I did and is almost identical to mine.
Here is the actual info sheet from the clairythomycin I was given, the brand name in Ireland (where I’m from) is called minatev la…
http://www.hpra.ie/img/uploaded/swedocuments/PIL-2147219-22072014102556-635416215574568750.pdf
And you’ll see on the info sheet, “if you experience rash do not take these any more and contact your doctor, and also do not split or chew these tablets, they are to be taken whole.”
I did experience a rash and notified my previous octor about this a day or two after I started taking the pills, and his response was “you’ll be ok, if they’re too strong for you then break them in half and take one half in the morning and the other half in the evening.”
I took his word about the rash and didn’t break the pills as the info sheet said not to as they were timed release tablets. I should have just stopped taking them immediately but I wasn’t to know that all this was ahead of me.
As far as my symptoms go, I’m actually dealing with 3 different illnesses, total nightmare.
I started to have gi issues in October 2014, then in July 2015 I developed an inner ear problem, likely vestibular neuritis, that caused dizziness 24/7 and that led me to being given the clairythomycin in the first place and that was like a nuclear bomb going off in my body.
I still have these gi issues and dizziness on top of all the floxing symptoms too and I’m attending a gi specialist and a balance rehabilitation physio to help with the dizziness.
If I can get my gut healed a bit and rid of the dizziness too, then it will be a major help with the floxing.
I’ve been given ppi’s before along with anti spasmodics to see if they help the gi issues, but took them for a few weeks and did nothing so gave up.
You mentioned the ppi’s in your post, and I was not given them along with the clarithromycin to take. I was just given the clarithromycin on its own and nothing else. Like I said, I tried the ppi’s over the previous months here and there for a while but didn’t help so stopped taking them, I’m not a fan of prescribed meds and don’t like taking things.
For the supplements, the ones I’m taking at the moment, I’m taking them every day. I’m trying to limit my intake and not take a ton of supplements. So it’s 2 omega 3 pills and a multivitamin in the morning, then the vitamin c in water that I sip through the day and then the magnesium at night to stop the muscle spasms and help with sleep.
Before I got sick I would have took a daily multivitamin and some omega 3’s daily anyway. I’m only adding the magnesium and vitamin c because I saw a nutritionist a few months ago and she put me on them to help with some of my current symptoms, I stopped taking them after a month as I was really sick then and didn’t notice any help, but from reading more websites and stories abut them working for some peoples recovery then I decided to give them a go again. The magnesium has stopped the eye twitch anyway and the multivitamin has given me a slight boost of energy.
I was going to add a coq-10 supplement into the mix but read of the side effects for some people and it seems like that it causes a lot of my current symptoms, so decided against it.
http://www.mayoclinic.org/drugs-supplements/coenzyme-q10/safety/hrb-20059019
My multivitamin (oxylent) has a bit of coq-10 in it, but only a small amount and I don’t think it’s doing anything bad, but I won’t be taking any more of it or a higher dose. So it looks like the coq-10 could be the culprit in your recent setback. When you settle back down again, then maybe skip that and back to the other supplements.
I want to see if a probiotic will help my gi issues, but I’ve a visit back to the gi specialist in a few weeks for some test results, see how they go and then after that I might see a nutritionist again and start working on healing my gut the natural way, with diet and probiotics.
The bone broth is very easy to make, the only downide is you have to leave it in a pot to simmer for between 24-48 hours to extract all the nutrients from the bones. Otherwise is pretty straightforward. It can be made with chicken bones or beef bones, whatever you prefer. Here’s a recipie for it…
http://recipes.mercola.com/bone-broth-recipe.aspx
And the physio treatment, I did suspect that from reading other floxing stories, that the toxins were being moved around my body and causing the worse symptoms. I was in a bad way after the treatment, which didn’t seem right at all. I will probably put that on hold for the time being, seeing as it didn’t do much anyway.
I’d be more inclined to try the lymph drainage massage that you were talking about, I may look into that instead and see how a session or two goes.
There’s nothing more I want to do then get back doing some exercise. I went from working out 2 hours a day, 4 times a week, to not being able to work out at all for over 7 months now. It’s going to be tough anyway going back, but going to try and start slow and do some light body weight exercises and some light cardio. I’ve lost a bit of weight over the last few months and can’t seem to put it back on, so I’m worried if I go back training that my weight will drop even more. And I can’t even use protein shakes anymore, as I tested for a dairy intolerance that was suspected in also causing some of my gi issues.
But you’re right, I suppose I’ll listen to my body and do as much as I can, being away from training for so long anyway I’m not going to be able to do what I used to, need to work my way back up again.
Oh, and I have told my doc that I won’t be taking any more prescribed medication and don’t want any pain pills or anti-inflammatory meds. No chance I’m putting any more poison into my body. I’ll think twice about ever taking any prescribed medication ever again after this nightmare experience. Sure, they work for a lot of people and are taken by millions on a daily basis, but then there’s the unlucky few like us who react badly to them and are left in a nightmare scenario and then are told it’s impossible that it could happen by all the doctors.
Thanks again for the info, all the best
Ger
Thank you for writing.
It makes me so angry when I hear a doctor say that you couldn’t possibly STILL be sick from a drug. This is from Dr Jay Cohen’s book “how we can halt the cipro and levaquin catastrophe: the worst medication disaster in U.S. History” : “It is disappointing and discouraging when I hear stories of people with obvious FQ reactions going from doctor to doctor and being told the symptoms cannot possibly be related to the antibiotics. To say a side effect cannot persist after the drug has exited the human system is total ignorance of basic pharmacology. The entire field of toxicology is predicated on the fact that many drugs have toxic effects that last long after the drugs have exited…eg liver failure from …Lipitor..what is so hard to understand about that? (p 72). So take that with you next time!
Hi, Lukasz — thank you so much for sharing your story. I admire your strength and your bravery so much. Has the brain fog receded for you yet? I’m only 21 and I’ve been recently floxed and the fogginess is the scariest part of this by far. I know time is the greatest healer, but it’s hard when I’m so young and unable to enjoy my life.
Hello again Lukasz,
How are you doing following the set back you mentioned? In my experience protein powder (whey and others) would terribly increase my anxiety and insomnia issues. Others have reported similar things. I would suspect this may have been what triggered your flare-up, though we are all different. I am glad to hear you are taking a break from supplements for a bit. I also could not take a multivitamin without getting symptoms increasing, i think mainly from the B vitamin content. I think our nervous systems are just too fragile for many things. It was a long process of trial and error before i was able to find things that i could tolerate that did not set me back. I have also been wary of probiotics as others have reported these may increase their mood issues, though i have taken them off and on through this ordeal without noticing a definite correlation. Because of the fluctuating nature of our symptoms it can be hard to discern what may be helping or hurting.
To answer your questions, yes i was experiencing terrible panic/ anxiety, dark depression accompanied with suicidal thoughts, and terrible agitation at times bordering on rage. I also had the insomnia. While i have experienced anxiety before, i never experienced anything like this and it felt very neuro-chemical. The rage especially was not like me at all. At one point i lost control and broke a bunch of things as i could not handle the intensity of the rage i was feeling internally. Prior to this (and thankfully now again) i was super chill, gentle, and loving. During those first months it was as if i could not feel love or joy or even have a positive thought. I felt as if my thoughts and emotions had been hijacked. It was only through reading others with similar stories who said that it had passed that i was able to ride it out. I thought seriously about going to a psychiatric hospital and/ or trying psychiatric meds but i was terrified they would make me worse or i would become addicted to them as i had read this happened to others and i could feel my nervous system was just too sensitive. I felt hopeless and thought seriously about suicide many days. This lasted for me for about 5 months with some days of symptoms improving or even going away completely mixed in there. I had a terrible set back during month 4. It was the hardest thing i have ever gone through.
I saw improvements during month 5 and by month 6 I was able to return to work part-time. Returning to work was very hard at first but as i became more comfortable there and continued to improve weekly, i have come to feel that work is one of the best things for me as i continue to heal. It distracts me and gives me a sense of normalcy. I have also started socializing again. It has now been 7 months post-AB. My mood symptoms have not completely resolved though they have lessened in intensity a great deal. The suicidal thoughts are gone completely as are the panic attacks and episodes of rage. I do still experience some apathy, anxiety, and irritability but again it is nothing like it was. I am mostly happy now and no longer dread waking up in the morning. The depression and agitation is mostly gone. The anxiety still appears most days, especially in the evenings but i am now able to better observe it and not resist. I trust that this too will pass in time. I do believe the supplements, especially turmeric, have helped a great deal with the depression.
My biggest remaining issue is fatigue along with the anxiety. I feel totally wiped out some days and feel i just need to rest. So i do. I rest a lot. I try to nap most days. I let my friends know that my ability to follow through with plans depends on how i am feeling each day. I cancel a lot and try to be patient with the process. Again, I am just so grateful that i am able to feel joy again that that seems to be enough for me for now. I take my dog on lots of walks which i wasn’t able to do for several months. I love him. I love my mother who i had to move in with when this happened as i could not be alone (at 34 years of age). It is good to be able to feel love again.
I do not plan to take the supplements my entire life, though i will say they all seem pretty good for you! I did start with two turmeric at the beginning but now only take one capsule in the morning.
Healing blessings to you and all of us!!! Let me know if you have any other questions.
Kristi
Hi Lukasz,
Hope you are doing well. I too was floxed by cipro ear drops. Just wondering how many drops were you admintering daily into your ears? Did you experience loss of balance, ear fullness , deep ear pain and tinnitus and if so, how long did they last of course plus all the other symptoms we all get? Thx