*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
Mike wrote me the following email and gave me permission to publish it as his recovery story. It pleases me to no end to hear from people like Mike who have been helped by the recovery stories on this site! I hope that his recovery, and all the other stories on this site, help each of you to maintain hope for healing, and that you too find recovery!
Dear Lisa,
I just wanted to thank you for all of the work you have put into this website, which has been an invaluable resource to me over the last couple years. I actually wrote to you two and half years ago, when I was first floxed by cipro at the age of 32, and you wrote me a nice email back. It was really difficult that first year: I couldn’t walk, sleep, do anything physical whatsoever; I had bruises and rashes; developed carpel, cubital and tarsal tunnel syndrome almost over night, and I had pretty much given up all hope. It was an incredibly dark time in my life. Whenever I felt as if I might be on the mend, my legs would give out and it was like starting all over again. Whenever I became overly stressed, the symptoms would come back with full force. Doctors had no clue and steered me in all kinds of wrong directions. The second year was better, though my legs were still fragile and a slow walk was as much as I could get out of them.
These last 6 months have been the turnaround. At 34 I am now cycling, able to exercise again, lift weights and even run up stairs. My skin has cleared, the rashes and bruising are gone. I can sleep! I take good care of myself now, more than I ever have in the past, and I am very aware of what I put into my body.
Without your site, Lisa, I don’t know if I would have gotten here. But reading your and other people’s recovery stories — that magical 2-year mark, or even the 5-year one — gave me hope and a way to learn about what was happening to me. I found the diet and supplements that I needed to get better. When the medical professionals are so oblivious to such a severe and seemingly common condition, and completely unwilling to even consider the possibility, it’s so easy to just give up. Your site saved me from utter despair so many times. It helped me fall asleep at night.
Thank you so much for that…
Mike
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
Wonderful news and well stated!
Thanks for sharing your story! So similar to my story and many others. Floxie Hope is necessary! Thanks Lisa! So thankful for your recovery. May God continue to heal us to completion.
This site is dangerous in that there needs to be a REAL warning at the top and not just a disclaimer which people disregard. ALL of the supps and treatments need to be properly medically authorised, or AT LEAST tried in tiny doses at first and then built up. ANYTHING recommended needs to have an editor warning on immediately after it is mentioned.
People have been destroyed by MANY attempts at getting better. Literally destroyed.
Hi Mike,
Congratulations on ur recovery, r u fully recovered? Plz share with me the supplements u took thnx
Hi Mike, thanks for ur reply 🙂
Did u have neuropathy too? Cause am having both tendinitis and neuropathy in my hands, arms and legs.
Hi Mike thank you for sharing your story. How are you feeling now?
Hi mike, did u hv any heel or knee pain? Am having a bad relapse in my legs tendons a year in now ????
Hello Mike,
are there any premontion before the reaction stopped?
I am month 14 and lay on the couch the most time since moth 3.
I can only limp and this not far.
Best wishes!!
Yes, I experienced that as well. Sounds like you are making good progress.
well done mike i hope to follow your success one day
hey mike.
im happy that you have recovered and im so glad that you are still replying to comments on your story. im actually on month 10 and most of my things have improved. but i seem to be stuck with neuropathy. just wondering how long that lasted for you ,.i think you had it ?
im just really hoping that i get better and better and that everything goes away.. i think most people do get better around the year or year and half mark… sigh
Hi Mike, I am glad to hear that you have recovered. I can imagine it being a scary time. I am 6 months out, while my issues are not debilitating, and some seem to improve, a few seem to be worsening ( gut and joint issues) The joint popping is widespread. Starting to be painful as well. Did your joints pop and grind? Also how was your gut. I do appreciate any insight you can give, and I look forward to healing and being able to help others through this as well.
I was fortunate not to have any gut problems, but my joints were a nightmare. Plenty of pain, especially in the legs, and what felt like grinding, popping. Stiffness of joins, weakness and pain were immense for a long time, and then they would come and go depending on my activity. Eventually though this too cleared up, as I hope it will do for you.
Dear Mike, Please consider sharing your story to CBS 60 Minutes. 60m@cbs.news.com
OUR STORIES NEED TO BE HEARD, Dan
Hi Mike,
I was wondering if you have any relapses because of medication since being floxed?
Hey Mike, not sure if you still check this but was curious if you had muscle stiffness or muscle wasting? I’m 14 months off of 2 pills of levaquin and have muscle wasting on the left side of my body randomly and stiffness that gets worse whenever i’m stressed so i’m sure it’s nervous system related. Awesome you got through it, been extremely depressed about the situation being only 28 and chronically ill.
Hi Mike, thanks for your story. I lean on it for inspiration during the tough times.
Wonderig you had to deal with any shortness of breath or pounding/racing heart beats? Thanks
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