Nick’s Story – Recovery from Cipro

Nick FQ

*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

On February 8th, 2014 I made a fateful decision that would change my life.  I took a fluoroquinolone antibiotic called Cipro.  I was having frequent urination at the time and thought that I might have a urinary tract infection.  I went to my primary doctor in the morning and was waiting too long so I left.  I went to my local emergency room later that evening.  They took cultures and swabs and gave me zpak, cipro and pyridium.  I took them all at the hospital.  I should have known something was wrong that night because I had what seemed like a fever and tossed and turned all night. I was being poisoned.  I didn’t connect the dots and took two more doses the next day.  I felt dizzy that day but never connected anything to the Cipro.  On the second morning I did a workout with weights but felt weak and actually pulled a muscle with light weight which never happens to me.  I went to work and was having trouble seeing, as the lights were blinding me, and I was exhausted.  I then realized that something was going wrong with my body.  I looked up the side effects of Cipro and went to the emergency room.  By the evening my shoulders and achilles tendons were beginning to feel sore.  I discussed this with the emergency room doctors and they dismissed my concerns and just told me to stop taking the medication.  I had taken four 500 mg pills of Cipro total.A day after stopping Cipro, my triceps tendons became so painful that I had to sleep with ice packs on them, they felt like they were going to explode.  This felt all wrong, I knew something was off.  I sneezed and threw out my back.  I stopped working out because my body was killing me.  My tendons began to feel like they were going to break.  I felt something was wrong mentally as well.  It was like I lost all of my happiness and could not concentrate.  Ten days after Cipro, I decided to try to workout…that maybe this was all in my mind.  I began to do some lat pulldowns and while warming up I pulled my bicep tendon so severely I could not move my arm.  I then re-injured my back and was now out of work.  Then the peripheral neuropathy began.  My legs, arms, hands, and feet began to burn like a cold fire.  Muscle twitching all over my body.  I developed a rash on my groin, white growth on my tongue.  Insomnia, anxiety, crying, vision problems, weakness.  Most of my joints and tendons hurt me.  Achilles, back, triceps shoulder, knees and hands. Burning tendonosis.   Ulnar neuritis. Chronic fatigue was awful.  I slept most of the day.  I could not enjoy anything.  I stopped listening to music or watching movies.  I began seeing doctors and lots of them.  Orthopedics, MRI’s, X-rays,  no one could tell what was wrong.  They tested me for lymes disease, MS, ALS, etc, etc. and it all came back negative.  Not one doctor would admit or  believe me when I told them that I believed the Cipro poisoned me and I was having fluoroquinolone toxicity.  I went to physical therapy and slowly the back pain declined.  I still had neuropathy and tons of tendon pain.  I was taking all the supplements imaginable, every day.  I started eating more.  Six weeks after Cipro poisoning I began to force myself to do rehab exercises everyday in pain.   I started walking in pain and doing simple  band exercises.  My steps felt like I had dead legs and feet.  My muscles shook like I had epilepsy and couldn’t control them.  During this time I developed strange bruises on my calves and arms.    I slept in the sunlight outside during the day to increase my sunlight exposure.  I increased my magnesium and took magnesium oil and epsom salt baths.  I prayed and prayed.   I had been out of work for 3 months during this rehab time.  Three months of my life gone, trying to fix myself with a desperation I had never known, longing for my old life back and regretting all the times I took for granted my health.  I read the FloxieHope  stories every day even waking at night to reread them and tried to give myself hope.  They were the only thing that kept me going when I thought I was going to die.  I joined all the FQ boards and was on them religiously for awhile.  I spoke to others who had recovered and read their stories daily.

I finally went to the neurologist and found out that my nerve velocity was abnormal, which was indicative of a damaged myelin sheath.

I had glutathione IVs which gave me instant mental clarity.  Almost like the veil or cloud was lifted from my brain.  I did this twice.  I think I should do it more often.  I did acupuncture and massage therapy.  Acupuncture seemed to give me some much needed pain and anxiety relief.  I prayed a lot during this time and renewed my spirituality.

This is a brief synopsis of the hell I lived because I can’t and don’t want to remember all of it.

It is now eight months after I took my last pill of Cipro.  I have had a lot of up and down cycles.  I still go through them but they seem to be much shorter in duration.   The problems I still have are lessened.  They decreased incrementally.  I have some tendon flare ups, I have knee discomfort and some back pain.    Occasionally I will get a dizzy spell or have a forgetful moment where I can’t remember words.   My supplementation right now is:

vitamin c 1000mg
vit d 2000mg
b complex
coq10
alpha lipoic acid
acetyl l carnitine
l arginine
glucosmine chondroitin
collagen
magnesium oil 600mg
magnesium oxide 500mg
vit e 400mg
lots of whey protein

Within a few weeks of being floxed my IGF-1 levels skyrocketed to over 400, which was double my normal level.  I believe that my body sensed the cellular disruption and began a reboot, trying to increase growth hormone in the blood stream and start up normal cellular function including tendon repair and cellular repair.  My thyroid went off line and now I take armour thyroid which has helped my energy levels tremendously.  Somewhere along the line I had to make a choice to stop living my life in fear.  I lived every day in fear, and still fight it every day when something flares up.  I had to truly not give a fuck, because I knew that if I was going to win this fight I can’t be afraid to fight.

Today I can sleep with no problems.  I workout with weights three times a week.  Sometime I go very heavy and sometimes I go lighter for lots of reps, depending on how  I feel.  I squat, bench press, and train back, shoulders, and arms.   I do cardio and rehab another 3-4 times a week, this consists of sled dragging, sledgehammer swings, forearm, back, ab, and rotator cuff work.  Whatever I can move I train it.  I have a lot less pain.  I returned to and enjoy my hobbies again.   The neuropathy is only occasional and lasts for a few minutes of burning or what I call hot needles, but is still scares me.    I can laugh,  I can be happy.  My energy is returning.  My libido is normal.  My good days far outnumber my bad days.  On my bad days I retreat to my support system and try to regroup and refocus then reattack.  I eat tons of antioxidant rich foods.  I avoid processed foods and sugar.    I stay away from medical doctors, and am now truly an active participant in my own health.  I consider this not a recovery story but a progress story.  I know that things take time to heal, I am healing.  I know you have to believe, you will get better.  I may have setbacks to come but I’m not done fighting.  Neither should you.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

72 thoughts on “Nick’s Story – Recovery from Cipro

  1. uriaahh1 October 13, 2014 at 8:03 am Reply

    YAY NICK! 🙂

    • Linda October 20, 2015 at 9:19 am Reply

      Great you are doing so well. I had much of what you experienced…lights were blinding me, insomnia, anxiety, crying, vision problems, weakness, peripheral neuropathy, Ulnar neuritis, white growth on my tongue, back pain…all the tests negative, all the doctors dismissive. I actually woke up with a golf ball sized lump on my ulnar nerve, and now 8 months later, there is still some swelling there! I have not had the tendon issue, but I did have horrific, suffocating breathing problems, and olfactory damage so severe that everything in the world asphyxiated me. I take the same supplements as you and get a glutathione push with every IV I get. I would suggest asking your ND about high dose vitamin C IVs–you would need to be tested for it, but it contains 50,000 mg–something you could never do orally. It helps to rebuild collagen that is necessary for all bodily structures.

  2. rich October 13, 2014 at 8:28 am Reply

    fantastic

  3. rich October 13, 2014 at 8:29 am Reply

    has your vision improved. mate

  4. rich October 13, 2014 at 10:25 am Reply

    I had the stange leg bruises to…. that’s when I stopped at 12 tablets instead of taking the full 56..did you have any muscle loss?

    • nick October 13, 2014 at 11:01 am Reply

      Yes my vision got better. About 95% better. I did lose muscle but have been putting it back.

    • Djoo March 3, 2018 at 9:05 pm Reply

      I have strange leg bruises too… i thought I was having leukemia or something

  5. Ruth Young October 13, 2014 at 5:19 pm Reply

    Nick,
    We were floxed about the same time. I took a couple more Cipro, but otherwise our stories are similar. I seem to have been hit with more psychological symptoms than musculoskeletal ones, though I had both. I’m hoping the insomnia will totally end for me soon. It comes back one to three times a month.

    I’ve regained a lot of muscle too. I find that it didn’t come back just on it’s own– I had to carefully rehab every part of me. Now and then I find a muscle group I missed. At a waterpark this summer I realized my upper body isn’t as strong as it could be yet– pulling myself up out of the pool was really hard. I need to get to the gym– weights, bands and using my own body weight here are good, but there are some good machines at the gym and they have heavier weights there.

    Has cardio flared your symptoms at all or brought back the insomnia?

    So glad to hear you are doing so well and back to work! We can do this!
    We’ll both get to 100% soon!
    Ruth

    • nick October 14, 2014 at 10:04 am Reply

      Hi ruth. Yes. Your floxie hope inspired me to keep on truckin. Cardio hasnt hurt me at all. A good sweat actually makes me feel way better. The one thing thati find hat brings some neuropathy on is stress. I try to avoid it and use voping mechanisms to minimize it.

  6. Tara Fitz October 13, 2014 at 5:32 pm Reply

    Thanks for sharing Nick…my husband was floxed around the same time after taking 6 Cipro pills. He was fit and healthy, then flat on his back in excruciating pain, unable to lift his arms or leave the bed to use the bathroom. Hard to believe. He is able to work out lightly 3-5 days per week. We are thankful he is able to work and function.

    Keep the faith and the gratitude. You are not alone.

  7. Rose Casanova October 13, 2014 at 6:28 pm Reply

    Very inspiring Nick. This is good to hear especially when you are newly poisoned. It’s only been a month since floxed for me, and I’m doing everything I possibly can to help the recovery process. I started Physical Therapy, but I don’t think I am able to, nor should do any working out yet. I’m afraid of rupturing a tendon or pulling something since my muscles and joints feel so vulnerable. This whole experience is pretty terrifying. It helps to read stories like yours to get tips/ideas on healing because I have not got them from the medical community.

    • nick October 14, 2014 at 10:06 am Reply

      Yes give it time. Youll know when to push. But remain motivated.

    • Ruth Young October 14, 2014 at 4:09 pm Reply

      At first exercise for me was just walking back and forth in my house a little. It’s good to keep moving, even if it’s just moving your legs in bed a little.

  8. rich October 14, 2014 at 9:12 am Reply

    tara did you husband have tigh calves… that’s what I hope will go for me im at month 3

    • Ruth Young October 14, 2014 at 4:08 pm Reply

      I had the tight calves at first. Massaging them with a frozen water bottle really helped. Don’t be afraid to really dig in there. I did ultrasound too on the tendons and on the muscles, since I have a home machine. I still do the ultrasound now and then. After my calves got better my ankles got tight.

  9. Ruth Young October 14, 2014 at 4:04 pm Reply

    Thanks for the info! I still am not sure that my insomnia is really linked to cardio. Some times when I exerted a lot it didn’t appear. Other times I did less and it happened. Floxie symptoms cycle. All the symptoms cycle. When they do we all look for a possible cause, something we did we can just not do again to regain some control. But we don’t have control and our bodies heal as they are ready to heal. There is a much stronger connection between the insomnia and my monthly cycle than to exercise. I think if I were a young dude I’d be 100% better already. But I’m not a young dude, I’m a middle aged woman. I need to be patient with myself. I’ve come a long, long way in eight months. You’re right about stress. I love my new teaching job, but it can be stressful and that may have more to do with the insomnia than anything. I do usually feel very good after a workout. Maybe I need to workout more and stress less.

    • nick October 14, 2014 at 4:19 pm Reply

      Yes. Stress kills. Sets of my neuropathy.

      • Mark November 15, 2014 at 5:57 am Reply

        Nick,

        Do you take any hormones or had your levels checked?
        What about HIGH, Testo, etc?

        I’d love to write a couple emails with you if you don’t mind Lisa giving you my mail address.

        Mark

        • Mark November 15, 2014 at 5:59 am

          *HGH

  10. angie October 19, 2014 at 11:20 am Reply

    Your story is mine and I am in the process of healing myself also due to the fact that no doctors want to sway toward Cipro poisoning. Thank you for sharing your story it may help in the areas that I haven’t tried yet. My next step is to see a Neurologist.. I’m very happy for your success in feeling better Nick.

  11. jake October 19, 2014 at 5:00 pm Reply

    Hello Nick – I was floxed in 2006 and have recurring cycles every few months. I won’t go into details, it’s been very tough and am currently undergoing my worst cycle in probably 3 years. The reason I am posting this is your bruising sounds similar to mine. Several years ago I was taking a baby aspirin every day and got bruises on either side of my stomach. Quit the NSAIDs and it was still happening with bruises coming and going. Long story short my blood was clotting a second slower than normal human response times. Went to a hematologist who conducted many tests and was completely baffled – said what was happening to me was essentially impossible. All his tests ruled out everything but something exotic. The condition finally went away on its own after several more months. Just wondering if you had something similar in terms of the bruising component. I’m glad to hear you are doing better.

  12. melanie kemp October 22, 2014 at 1:43 pm Reply

    Jake
    I’m also having a severe relapse. What are youre symptoms. This is after 3 years of doing really well.

  13. jake October 22, 2014 at 5:29 pm Reply

    Melanie,
    I’m very sorry to hear of your relapse. My relapse is composed of perceptions of leg weakness and sensations in my legs – which are my typically cycle symptoms, as well as some hours of just feeling horribly ill. Some burning in shoulders. Leg weakness for this cycle (which never quite went away from last May) hit me severely in early September. Felt fluish on occasion. I got a flu shot two weeks ago. Things got much worse a few days later. Every morning I wake up my legs feel horribly weak with just unusual sensation that lasts for hours. Last night I was ready to go to the ER. Never fell asleep I felt so sick inside – my body felt way off. I’ve never felt this bad so continuously other than when I was floxed 8 years ago. Legs felt bad, body felt bad, heart rate was accelerated, like when you’re fighting a cold. This is the worst I’ve felt in years. However, the symptoms wax and wane from morning to night. I’ve had other quirky symptoms that border on the impossible, including digestive disorders and blood clotting issues. No cause has ever been found. I had none of this prior to Avelox.

    When I was 18 months out I thought I was almost cured. I was back to lifting weights and running a 5k every other day. Then I had a severe relapse around my 3 year mark too…followed by roughly 2 cycles per year.

    • Melanie Kemp October 22, 2014 at 5:51 pm Reply

      Hi Jake
      so sorry to hear this.
      Im in touch with another gal who’s having a relapse after 6 yrs.
      She thinks because of to much excersise. She did a 25 mile hike followed by her usual running.
      I believe mine was because I started a workout program and diet after gaining way to much weight.
      I believe my floxing changed my metabolism somehow because ive always been on the thin side but ballooned up to 170 .Never been above 138 my entire kife.
      Anyways the relapse dtarted shortly there after…so who knows.Im a groomer by trade so its not like im not physically moving everyday but I guess it was to much for me.
      Im back to where I was in 2010.. cant wirk..feel totally ill.Brain fog..weakness..burning…sore skin.
      Im just hoping it passes…How long do youre cycles last.This started really slow but its now full force.
      Ive had a couple if cycles but they only lasted a few hours…weird head stuff..this one just didnt go away.
      Ive had aches etc over the years but because I just found out this yr what happened I didnt think about it to much.
      Ill be much more careful if I get through this again…im praying!!
      Thanks so much for replying.Its hard to find people who have relapsed after several yrs.
      I do hope you get better soon.:)

  14. jake October 23, 2014 at 6:47 am Reply

    Melanie,
    Exercise may contribute to cycles and kick it off again. Just a theory though because I have done hard exercise without cycling. Guess the fact is I’ll never know why my cycles start, however, I am trying to stop exercise for now.

    My cycles typically last 2.5 to 3 months. x 2 per year. Not a great quality of life because I cannot plan to do something – like family vacations – without the fear that I’ll hit a bad cycle during that timeframe. Sucks as it really takes the enjoyment out of life when you’re feeling miserable.
    I’m so sorry you cannot work due to this horror. How about this for ironic…my primary internist was going to give me Bactrim for persistent sinusitis and I was so scared of the side effects I read of Bactrim that another doc gave me Avelox. Figured out it was a floroquinolone and I should have thrown the bottle away but was feeling so poorly thought I’d chance it. Biggest mistake ever.

  15. Melanie Kemp October 23, 2014 at 10:44 am Reply

    I took it to for a persistent sinus infection. Ended up having sinus surgery.
    This is now going into 5 months Jake so im extremely worried that I wont heal again.
    Its just as though I got floxed all over again.Cant say if it was the excersise or not really..maybe it would have happened anyways regardless.
    Im trying to get back home to England to be with my Mum.I need all the support I can get.Just not sure I have the energy for such a long trip. Im in Texas.
    I really need to try though

  16. jake October 23, 2014 at 12:22 pm Reply

    I believe you will heal up and the worst stuff will go away. Most people heal within 5 years. I’m one of the outliers, not you.

  17. melanie kemp October 23, 2014 at 12:52 pm Reply

    Thank you Jake
    Its when youre in the middle of this stuff that you seem to lose all hope of ever feeling better again. The days drag into weeks and weeks into months and its never ending. Hard not to think the worse. I feel like now if I recover i’ll more than likely have relapses . There’s no rhyme or reason to this stuff. Ive had a lot of stress over this year plus the dieting and exercise. Probably everything went towards this cycle. I just didn’t know about floxing until I read an article on facebook right after I started this relapse…lightbulb moment…guess I’d been doing everything wrong for 3 years..eating whatever etc.
    I.m glad to read about relapses but not glad people have to go through them. Once is enough for anybody expecially if it was severe and I put myself in that category so who knows if I actually will get through it again. Maybe with the support of my family if I can get home i’ll have a better chance. I wish good healing for you to Jake.I read about a lady who healed after 8 years Jake so never say never. If you ever want to E mail me feel free to do so. melglove@hotmail.com
    Thanks so much for getting in touch.. it really means a lot to me.

  18. rich October 24, 2014 at 9:35 am Reply

    how long was your vision bad nick…

  19. rainbowheartbeat November 5, 2014 at 4:46 pm Reply

    Hi Nick,

    Glad to read another flox recovery and progress. We were floxed on almost the exact same day! I was February 4th. (Tamara – my story is on here too) And so interesting how many stories I’ve read on here lately who say glutathione helped. That was my magic bullet. Anyways. Keep healing! 🙂

  20. rich November 10, 2014 at 10:21 am Reply

    did they try and tell you you had ms ?

  21. Miriam December 11, 2014 at 9:01 am Reply

    Hi All, I have been glided on Dec 1, 2014. Looking back & connecting the dots, I realized I have been having th symptoms all along for the last 1-2 years. I got Avelox in 2012, 2x in 2013, March 2014 & then now – after 1 pill started getting popping / cracking sound of my knee & feet joints – thought this is b/ c of winter & old age. After second pill, all my joints were cracking/ popping loudly every time I move. It is now 10 days post & I now also have pain on my joints & my numbness /tingling on both hands (last 3 fingers) at night is getting worst. Have had this for the last 2 years – negative nerve conduction test. I also get hot flashes/ night sweats , which I thought was from my menopause. In the last year I got the mystery bruises, blood tests negative & my doctor told me this can be from some connective tissue disorder. I also have been getting muscle cramps on my legs & feet. I am very scared. Did you all go on 100% organic & gluten free diet ? I am not used to taking supplements & somewhat fearful of these doing another type of harm – but I suppose I don’t have a choice. I had my thyroids out in 2010 for thyroid cancer. Any help I can get please…….

    • Ruth Young December 11, 2014 at 10:56 am Reply

      Miriam,
      I saw your post earlier and meant to respond. I’m a music teacher at a Catholic school with only a few days until the Christmas program. But I have ten minutes before I have to go help move a piano into the gym, so I will try to he brief but helpful.

      I did not go gluten free or 100% organic and I’m mostly healed. Gluten insensitivity is a symptom of vitamin C deficiency. Take a lot of vitamin C. Floxies need it. I take 3,000 mg a day. If you have enough C you should be fine, but cut back on wheat products a they can increase inflammation in anyone. That’s what I did.

      FQ’s can chelate magnesium, but also calcium, zinc and iron. I took magnesium but ate food rich in calcium. I take up to 25 mg of zinc a day when I remember, but never more than that.

      You’d better ask your doctor if you can supplement anything, even under the safe daily upper limit. The endocrine system is mighty tricky. Don’t say why, just ask if you can take up to the safe upper limit of whatever you want to take.

      Watch the position of your shoulder in sleep. I think you are getting some impingement of your ulnar nerve where it runs through the shoulder. You might need a new pillow. I have a PT friend who always looks at the pillow being possibly too flat I people are waking up with upper extremity nerve issues.

      Great Lakes Gelatin in the green can added to hot and cold beverages is great. If I keep up on my stretching I have less crepitus in my knees than before I was floxed. Stretch gently as you are able but listen to your body.

      Not every joint noise is related to having been floxed. Not every nerve issue is a precursor to something worse. Try to stay calm.

      Find out if you can take MitoQ. It’s a targeted antioxidant. It worked well for me but doesn’t help everyone. Anything you take has a risk. Some people heal from good food alone. I don’t think that means all organic necessarily.

      I gotta run. Goo luck to you!
      Ruth

  22. Rose Casanova December 11, 2014 at 1:37 pm Reply

    Miriam, I did go gluten free and mostly grain free (no wheat, corn, or soy in any form) but I had other issues prior to being floxed. I have also been doing intermittent fasting. I evaluate pretty much everything I eat now and ask myself, is this food going to nourish me or not? Of course, I am human and I have cravings so I eat the occasional crap.

    I would take Ruth’s (comment above) advice. https://floxiehope.com/ruths-story-cipro-toxicity/ I followed most of her recommendations and her protocol has really helped a lot. I believe I am really getting better every day. It’s slow going, but every week is better than the last. Certain areas of my health, that had nothing to do with FQ toxicity have been cured. I’m very happy with my recovery so far.
    And thanks Ruth for sharing your story. It helped me so much!
    Rose

  23. Ruth Young December 11, 2014 at 4:40 pm Reply

    Rose,
    I am so happy my story helped! I was already on top of the world after a great Christmas program rehearsal this afternoon and now your comment just really made my day!

    I pretty much followed the protocol in that e-book on Levaquin Tendonitis. Lisa has been promoting it on this site. They have done a revision of it and I really recommend it. Most of the supplements I took were based on their recommendations. The Idebenone and MitoQ I found on my own through reading a research study in which both of those were able to stop tendon damage from Cipro.

    I feel the same way, Rose, that certain areas of my health are better than before I was floxed. I was definitely magnesium deficient. I kept pushing calcium supplements over the years, never realizing with if you are low on magnesium all that calcium is useless. Nothing in your body works very well if you are magnesium deficient. I am finding that I need to keep pushing the magnesium. When I only take 400-600 mg I really start to feel mildly deficient again. I have a lot more stamina, less pain and better progress in my recovery when I take more like 800-1,000 mg plus the magnesium oil and the Epsom salt baths. I have read other floxies complaining that they have to keep taking 5-6 magnesium pills a day if they want to feel ok. I feel really good and if taking magnesium is all it takes at this point to keep me feeling good, I’ll gladly do it. I think I’m still correcting the pre-flox deficiency as well as the fact that I lost a massive amount of functional magnesium when I was floxed. I think that happens to a lot of people.

    Happy healing to us all!
    Ruth

  24. Rose Casanova December 11, 2014 at 6:17 pm Reply

    Hi Ruth,

    I am so glad you had a great rehearsal and this Christmas sounding good. I’ve been listening to lots of Christmas music already and I love it.

    I did notice that when I lower my magnesium dosage, I tend to burn out faster. I am only about 13 weeks out from my last dose of Cipro so I know I have a ways to go. If it wasn’t for this community of healing stories (and google scholar) I don’t know where I would be.

    The positive thing about this whole debacle is that I have not had a migraine headache and I have been able to stop taking the antidepressants that I had been on for over 20 years! I saw my psychiatrist of 20 years today and he was in shock. He suggested I not change a thing about my diet or vitamin protocol, since we have no idea what one thing helped cure my depression. It’s really hard to say since I changed pretty much everything.

    I am still physically healing but some miracles have come out of all this. I totally believe that the things you suggested really put me over the edge to heal.

    I can’t thank you enough.
    I hope your Christmas is awesome.

    Rose

    • Ruth Young December 12, 2014 at 4:38 am Reply

      Rose,
      I too have struggled with depression, but it’s just gone now. I think it’s the Idebenone. Did you get on Idebenone? It supports positive brain chemistry and helps your brain use tryptophan to make serotonin, as well as being a potent antioxidant. I had tried Prozac a couple times over the years and it worked but had side effects and I suspected that flooding my synaptic junction with serotonin could perhaps cause changes to my nervous system. When I took neurology for the PTA (I’m also a licensed physical therapist assistant) the professor confirmed that this was true. Some receptors will pull back. After discontinuing Prozac I would feel a lot worse for awhile.

      People think you can just suck it up if you have depression and in many cases they are right. Except that you still feel lousy. I remember feeling that life was just a lot harder than it should be. I knew it was true because it got easier when I was on the Prozac and my depression symptoms would lift sometimes on their own, especially if I was getting outside a lot in the bright sun. Right now was always my worst time of the year. It is so dark and dreary in Wisconsin right now. But I’m not depressed. It’s just gone. That monkey is off my back.

      So even though getting floxed truly sucks there is much to be thankful for. I don’t think I ever would have heard about or tried Idebenone had I not been floxed.
      Ruth

  25. Lisa January 25, 2015 at 10:47 am Reply

    Hi Nick,

    My daughter took 2 days worth of Cipro (she had taken it previously at other times with no adverse events) and wound up with terrible insomnia that 2nd night and woke up with muscle weakness and cramping, twitching in her shoulders and face, and pain in her muscles and joints. I am in the U.S., but she lives in the U.K. now. This literally just happened on January 13 ,2015. Reading your story gives me hope. Any help right now…any suggestions you can give me to help my daughter, would be appreciated. Thank you, Lisa

  26. Nick January 29, 2015 at 7:30 am Reply

    Hi Lisa, sounds like she crossed her threshold for FQs. I would immediately double up on antioxidants, magnesium and quality nutrients like whey protein along with good carbohydrates and fats. Gently move as much as possible for the first 2-3 months. Then progress slowly if you can. It might be a struggle and she might have to dig down and be tougher than she ever thought she would have to be. Anger, frustration, faith and hope are all her allies. Avoid the temptation to visit endless doctors and doctors. Most will not help, unless you are severely broken. symptoms will come and go after a while. some may stay for years. some will get better rather quickly. no one can tell. trust your body, trust in its own healing capacity. the younger she is the better. It is very hard to “move on” mentally from getting poisoned, but friends and family can help. If she can get on the boards and find a “partner” that she can chat with and motivate her, someone that is going through it with her, that would be excellent. Let me know if I can help.

  27. rich February 2, 2015 at 8:09 am Reply

    where in uk out of interest im in london

  28. Lisa February 2, 2015 at 8:31 am Reply

    She’s in London.

  29. rich February 3, 2015 at 2:27 am Reply

    ger her to join the https://www.facebook.com/groups/floxies/ she can ask all us floxies for help

  30. Aidan Walsh April 21, 2015 at 6:34 am Reply

    Another case of ‘undiagnosed’ Ehlers Danlos Syndrome no doubts about it now

    • Mark April 21, 2015 at 6:51 am Reply

      Sorry what? Explain.

    • Lisa Bloomquist April 21, 2015 at 6:53 am Reply

      Have you even looked into fluoroquinolone toxicity? Are you trying to say that fluoroquinolones induced latent EDS or are you saying that they’ve always had EDS? Because they weren’t sick prior to taking a fluoroquinolone. There are over 150 peer reviewed research articles on the Links & Resources page about the deleterious effects of fluoroquinolones on cells. Do you have any reason to think that these people have EDS? I am perplexed as to why you think Nick, or Gigi, or anyone else on this site is suffering from EDS.

      • Mark April 21, 2015 at 6:56 am Reply

        It’s clear that he’s either a troll, a doctor trying to save his ass or in bed with the pharma industry if he meant it that way…

        Lisa you don’t even have to explain it to him as he won’t listen. He’ll just try to push his agenda…

  31. bjacob131 April 22, 2015 at 4:44 am Reply

    Nick, your story is full of hope. Best wishes for continued health and happiness!

    • Nick May 16, 2015 at 8:15 pm Reply

      thank you. I plan on updating. when I get new milestones!

  32. Mark April 22, 2015 at 5:45 am Reply

    People we need to work together on this one. Very important!

    Cipro was just mentioned on Joe Rogan’s podcast:

    (@ 28:35 after she talked about anthrax)

    This podcast is listened to by millions of people on itunes, ustream, his website joerogan.net and youtube. We NEED to ask him to cover it in one of his next podcasts and even better to invite Lisa!!! 🙂 He is very open about every subject of interest and very direct and honest without having to answer to any sponsor or media group.

    PLEASE send him requests to invite Lisa and cover this subject.
    His twitter: https://twitter.com/joerogan
    His homepage: http://www.joerogan.net
    His youtube channel: https://www.youtube.com/channel/UCzQUP1qoWDoEbmsQxvdjxgQ
    His facebook page: https://www.facebook.com/JOEROGAN

    Send him as many requests as possible. I already contacted him via all this plattforms but we nee more. Only if there are enough requests will he look into it, as there are many requests send his way. So please let’s all send him at least 1 message.
    It’s a chance to reach a lot of people.

    Mark

  33. Linda Livingston May 25, 2015 at 3:39 pm Reply

    Hey Nick, just now seeing your post for the first time. I too got floxed after just 4 Cipro for a UTI. (Actually the floxing started after only three, and if I had known at the time, I would have stopped there, but took me some time and research to figure out what the hell was going on.) So glad to hear of your great recovery. I seem to be the odd one here for side effects—no muscle or joint problems (so far, just been 3 months) but some pretty horrific other ones—extreme breathing problems, hyperosmia (exaggerated sense of smell and even phantom smells—keep smelling “cigarette smoke”), pericardial effusion (fluid around the heart) and numbness in fingers and toes. Also a 30 pound weight loss in two months with a really screwed up GI system. (All started with floaters, black specks, blurred vision and a swollen Ulnar nerve on the wrist.) I get IVs and I too get a glutathione push after most of them. Keep up the great progress!

    • Del August 10, 2018 at 3:38 pm Reply

      Hi Linda,
      Hope you get my message. I am so desperate. In regards to weight loss. Did you lose your appetite? If so what did you take to get it back?

      • L August 12, 2018 at 12:10 am Reply

        Sorry, I don’t check often anymore. I lost my appetite and I was having severe breathing difficulties and my gut was ravaged, so food was the last thing on my mind. I lost 36 lbs in 6 weeks (about 1/4 my body weight.) I couldn’t eat anything, To top it off, my struggle to breathe was so grave it was hard to chew and swallow. I had to make a choice. So I literally lived on smoothies for the first year. It was the only thing I could physically take in.

        I started with fruits and juice…and realized way too late that that was too much sugar, so switched to fruits, some greens, almond milk, almond butter and one or two tablespoons of coconut oil. I had that once or twice a day, depending on how much I could get down. It took me a year to put the weight back on. (Now at three plus years out, I still usually have a smoothie for lunch, and I am more how I was pre-cipro, needing to watch my weight.)

        Healing the gut will help tremendously…digestive enzymes, Betaine HCL with protein meals and a good probiotic.

  34. Cindy October 20, 2015 at 9:01 am Reply

    Nick…thank you so much for your story….I am so impressed this your will power…My story is is nothing like what all of you and the others have had to deal with….I went into the hospital ER for a COPD Flare-up on June 30 of this year 2015….I have always told the doctors no Bactrim or Cipro…but i did not know about the other 5 ones on that list….My Pulmanory Doctor gave me Levaquin…that is when the trouble begin….leg cramps…severe pain in my heel tendons…brain fog…depression…insominia….and a few others…I found this site and found hope…I have been doing most all the supplements everyone else is doing…I just added Whey Protein….The pain is getting better…it scares me that a lot of people have relapes….I guess I will deal with that if it comes….no choice…I so pray all of you get better it is so hard to deal with…I also comfronted my Doctor…of course he denies it was the Levaquin…..I will never trust him again….but I will also never take any of the 6 antibotics that are in that group…….I am so glad I found this site…..it tells me what the doctors will not tell you….

  35. Nick November 23, 2015 at 7:24 pm Reply

    Cindy Message me on Facebook if you have questions.

    • Terry November 28, 2015 at 8:49 pm Reply

      Nick, I couldn’t find you on FB.

      • Nick December 10, 2015 at 8:07 pm Reply

        Terry I’m friends with Lisa Bloomquist. You can find me there and link to me.

  36. dan December 23, 2015 at 4:47 am Reply

    hello nick, i dont know whether you take phone calls but i am scared to death. my spasms have increased with tingling sensations. need some moral support. thanks dan. 732-614-0085.

  37. dan December 23, 2015 at 4:51 am Reply

    my e-mail is redstar5500@yahoo,com dan.

  38. Lucy Sky January 2, 2016 at 6:54 am Reply

    I too am having a flare up of tendonitis, stiffness, spasms. I feel terrible.

  39. Greg March 31, 2016 at 4:28 pm Reply

    hi guys im a 27 year old male , i was prescribed cipro a few times ,with the last dose 3 1/2 years ago ,still have alot of side effects coming and going randomly, but one seems to really stick around is the vision problems , i see people talk on here about floaters and blurry vision, i didn’t make that connection until reading it on here, i suddenly had double vision 6 months after taking cipro ,went to doctors,neurologist, and nothing came back expect the optometrist simply saying i needed lens for astigmatism, my doctor also admitted that you dont suddenly get astigmatism so i think it was caused by cipro, was hoping someone on here has had any luck restoring vision or helpful tips, thanks!

  40. Linda March 31, 2016 at 4:49 pm Reply

    Hey Greg…I didn’t have the double vision but definitely blurred vision and humongous floaters that further blur the vision. At one point—this was so bizarre, it was like my brain couldn’t put the vision from the two eyes together, so I was seeing different things out of each eye. Hard to describe an was so anxiety provoking.

    The blurred vision is still there intermittently but much less so. It was ALL the time before. The damned floaters are still there. (A researcher estimated that since cipro damages collagen, it does the same to the vitreous gel, and that’s what you are seeing with floaters—bits of vitreous gel floating on the back of the eye—you see the shadow of them.) I read serrapeptides help so tried that–no difference. I read that goji berries help—ate them for months with no difference. Now I am trying eyedrops that anecdotally have helped, with NAC in them. They say you need to use them for months and I only just started, so I don’t know if they will help.

    A friend of mine had double vision after a ski accident and she went to an optometrist who gave her eye exercises to do and they went away. You might want to look into that.

  41. greg March 31, 2016 at 6:00 pm Reply

    Oh OK great I apreciate the quick response I will have to try those ideas. I also plan on getting some vitamin IVs done and the glutathione I heard good things from that .as far as other symptoms go. It was mostly my Achilles tendons that were the worst hit. With crazy pains and could barely walk .now it’s a lot better .it took a lot of work tho. But still get flare ups . Lots of rest ,ice , magnesium suplements , float tanks , and laser treatment from the physiotherapist. There was articles with her laser treatment that talked about healing cipro related damage . So it’s worth a try if anyone never heard of it.

  42. Linda March 31, 2016 at 10:34 pm Reply

    and the high dose vitamin C IV (the one you will need a blood test for—a very small percentage of the population cannot do the high dose c) is good for rebuilding collagen

  43. Karon July 31, 2016 at 4:26 pm Reply

    Thankyou for your positive and encouraging story! Mine is similar with tension and ligament issues due to levaquin. Praying for you and all of us to recover . Karon

  44. Michael November 17, 2017 at 4:01 pm Reply

    Nick – are you still checking this site? Since you’re a weight lifter, I was wondering if you had tried Creatine? I’m a little over 1 year out from being floxed, and started lifting again and tried HMB and Creatine. Historically, when I had used them before, HMB had a positive effect (reduced soreness) and Creatine had zero effect, so I quit using it. This time around, HMB worked as expected, but Creatine also had a big impact. I was having problems with fatigue and low energy and the Creatine seem to give me a lot of energy. Surprising to me! I tied it again because of an article I read about it’s impact on mitochondria. Of course lifting also increases the number of mitochondria, so may have been a combination. In 1.5 month I went from arms shaking doing bench with 135 lbs, to do a set of 3 with 300 lbs. On the down side, I torn something in my chest, so got an MRI today. I guess because of the floxing, I’ll have to work with lower weights, higher reps in the future. Anyway, I was just curious as to your experiences with any weight lifting supplements, and was wondering how your lifting was going.

  45. Megan December 2, 2017 at 4:45 pm Reply

    so happy you are getting better nick. I took this demonic piece of garbage drug a month ago. It gave me insomnia for 4 days straight I was on the verge of hallucinating. I still suffer waking but go back to bed. My family doesn’t believe drugs given by doctors can do damage but cipro did for me. ***I have an auto immune disease that gives me UTI’s . I got my thyroid removed 10 years when I was 14. I am now on thyroid meds for the rest of my life. I am on synthroid the synthetic kind and switching over to the natural asap because I believe non natural drugs create auto immune problems.*** After this demonic drug cipro, i now have very bad vision. I uses glasses but now I cant see out of them. My eyes are dry as fuck now and my eyes are blood shot red. I use coconut oil to lubricate them. The drug definitely fucked up my eyes. I can no longer use contacts and now am trying a new diet; no hormone injected dairy or meat. I stopped eating bread. i make smoothies every day veg and fruit. do not add juice thats fake sugar just water. I supplement with fish oil, vitamin D, calcium, magnesium and vitamin c. I tried Chlorella for a while but it was making me have diarrhea due to …I believe interacting with my thyroid meds. Chlorella is a seaweed that detoxes medals and chemicals in you and contains many vitamins and minerals. I am going to also try flax seeds soon in my smoothies. It has been a month out post demonic cirpo and my wrist started hurting yesterday. I refuse to use NSAIDS because they will damage the body even more. I will never touch a lab made antibiotic again. My nurse literally told me I am making my side effects up and that cipro has no side effects. Please let this be a lesson to others to research the drug before you use one . I made the mistake of 3 days 500 X 2 day of this crap to alter my life. Don’t say it ruins your life because that gives it energy. God is good remain trusting in him, eat right, research and treat your body as a a ecosystem. Its like the rainforest in a way this drug is like the bad men cutting down all the trees. You need to now rebuild your ecosystem (gut and nutrients) in you. Sending prayers and positive vibes to all who are reading this . GOD bless and stay safe. Remember you are not alone in your suffering 🙂

  46. Shanks December 17, 2017 at 4:46 pm Reply

    Quick question. How did you treat rashes? Is it true that antihistamines from OTC can aggrevate symptoms?

  47. Gina Sponheimer May 26, 2018 at 2:57 pm Reply

    I went through the samething with cipro posioning no one wanted to believe me doctor wise, its been three years and i cant still workout the way i did before i get tired easy when i do alot with my arms and legs my tendons hurt all over again i could not even feed my self could move my arms or legs was hospitalized 3 differnt times all diffrent hospital’s they texted me fior lyme disease aids forgieon county diseases because i was on a plane a month before that i do wounder if i will ever feel the way I did before best of luck on your recovery

    • Naina July 5, 2018 at 8:24 am Reply

      How r i doing now Gina? I am still looking for the right treatment..

  48. Nunez July 5, 2018 at 10:16 pm Reply

    Hi Nick, i had a question. I took cipro about 9 pills which was 4.5 days. I have developed tendonitis in both of my shoulders where i feel pressure in my scapula but there is no pain just tightness and numbness but i still can move my arms around. The arms at the socket just crack alot. Do you think this will heal in time or do you think surgery is necessary. I start therapy this week. This happened from June 18-june 22, 2018. Thank you. PS i am a female of 25 years of age.

    • Ruth Young July 6, 2018 at 6:43 am Reply

      Nunez,
      Hi, I just happened to see your comment. I used to work in physical therapy before getting floxed made that impossible for me.

      What is going on with your shoulders does not need surgery, but physical therapy may have limited success until your nervous system heals.

      Fluoroquinolones damage the autonomic nervous system. One of the things that branch of our nervous systems does is regulate muscle tone. After FQ exposure you can experience pathological localized muscle tightness.

      It mainly hit my calves and around my ankles. Both would tighten in direct response to my body relaxing. Instead of relaxation I got the opposite response in those muscle groups. It happened other areas too, but more fleetingly. It rarely happens now even in my ankles at four and a half years out. It took a long time to normalize and didn’t respond well to things that normally restore appropriate muscle tone. I would even do ultrasound on my calves and ankles (I have a home machine) but the moment I would lie down to relax they would tighten right back up.

      You are experiencing localized tightness in only some of the muscle groups around your shoulder. It is critically important for the function of that joint that all the muscles around it be equally strong and equally flexible. When you move your arm overhead there is a force couple that happens at the scapula between muscles in more than one area to rotate it. Your scapula has to rotate as your shoulder moves. It is a complicated joint. A lot of things have to work together to make it move freely and without pain.

      I would still see a physical therapist but they need to be willing to learn about FQAD. Otherwise they are going to be baffled and frustrated treating you.

      It may take a long time for the muscle tone to return to normal. In the meantime the goal of treatment would be to minimize damage to the joint. Abnormal joint motions cause arthritic changes to joints over time. However, a little popping and snapping is not going to immediately cause osteoarthritis, especially if you are not having any pain with it.

      A lot of people experience just what you are experiencing for a variety of reasons– an injury, overtraining one muscle group over another (I did that to myself years ago), improper body mechanics when using the shoulder joint, or neglecting stretching as part of a workout routine.

      All you have going on now is tightness in one muscle group that is throwing off the entire mechanics of the shoulder joint. So don’t even worry about needing surgery for that. Normally it is very very easily corrected with the appropriate therapeutic exercise and modalities. It’s just going to be a bit more stubborn because of the nervous system disruption.

      Does the nervous system heal? Absolutely! We have what is called “neural plasticity” which means our nervous system and our brain are constantly adapting to our environment. You likely lost some receptors for the main calming neurotransmitter in your body. You have those receptors everywhere. But you lost some because they were damaged by the fluoroquinolone.

      So now instead of your muscles in the area of damage relaxing, they tighten. The message cannot get through. The brain sends gamma amino butyric acid (GABA) but the cells that would respond to that chemical messenger cannot get the message. But your body knows a response is called for so it gives you the only one it can. The receptors for stimulating messengers are still functioning. The FQ actually enhances their function. So you get what is called a paradoxical response– the opppsite of what is expected.

      Normally magnesium used topically (Epsom salts) relaxes muscles. For years it would sometimes cause my muscles to tighten to the point that it was painful. Other times it worked normally to relax them. That cycling of symptoms is a hallmark of nervous system damage.

      You are eventually going to have times your muscles function normally but then the tightness will come back. Very frustrating but this heals in that up and down, on and off again fashion. Your therapist needs to know about that too.

      The other danger is that FQ’s can cause degradation to connective tissue including cartilage. One theory for the mechanism of this damage is oxidative stress. Antioxidants help alleviate this damage. The book about FQ tendinitis available on this website is very good at explaining this. It is by Josh Tucker and Kerri Knox. She is a nurse and he is a massage therapist. I would recommend their book as a starting point for learning about what happened to your body. Please remember that not all people can tolerate all supplements.

      What helped my tendons considerably was a couple weeks of NAC, N-Aceytl Cysteine. I also took some very good antioxidants including MitoQ and Idebenone. Another thing that knocked down oxidative stress in my body was eating oranges. I would feel absolutely miserable in a way I cannot even describe to you, but after I ate an orange I would get a feeling of euphoria. I think nearly all my vitamin C must have been depleted. Taking vitamin C pills did not help at first in any noticeable way, but eating foods rich in that vitamin helped tremendously.

      You need to do a lot of research and even then remember that what works for one does not work for everyone. Your goal is to normalize muscle tone as much as you can, do whatever you can to protect joints affected by abnormal muscle tone, learn as much as you can about the relationship of form and function in your musculoskeletal system, support your body with excellent nutrition and work to minimize oxidative stress in your body, which may include supplements (well researched, added one at a time cautiously, and of course informing your doctor of everything you are taking.) There are many people who healed without taking any supplements so do not feel that they are necessary to healing. They help some people, do nothing for others and some have had bad reactions to them.

      It is not an “either or” situation of oxidative stress OR autonomic nervous system damage being the cause of the issues. Receptors for gamma amino butyric acid are harmed by exactly the same process that harms connective tissue and tendons. Some people’s receptors are more sensitive to this damage process. But if you have signs of autonomic nervous system damage then you have an overload of oxidative stress and you have to address that problem in order for your receptors to heal and further damage to be prevented.

      Dr Jay Cohen MD recommended zinc, Vitamin C, Vitamin E, magnesium and NAC as a possible protocol for treating FQ toxicity. I would also add methyl B-12 for nerve health to that regimen. Of course, keep in mind, there is no one protocol that works for everyone.

      FQ’s damage mitochondria, the powerhouse of our cells. Damaged mitochondria produce more waste products. These wastes damage more mitochondria that in turn produce more waste and so on. This is your real issue, of which the tightness in your shoulders is merely one symptom.

      It sounds like right now there is no permanent damage to your body at all. Your best bet would be to buy that FQ tendinitis book (it covers much more than tendon damage) and read the research articles on this site and people’s healing stories. Find a physical therapist who can help educate you about your musculoskeletal system because the more you know about that the less you will panic when things pop up. Right now you noticed a little shoulder dysfunction and immediately assumed surgery was necessary, but I could tell from what you described that it is a muscle imbalance and no damage to the joint at all at this point. There will be times that muscle tightness will impinge on a nerve and you’ll get a little tingling and think you have peripheral neuropathy. When it happens to me the location of the tingling tells me exactly where I need to work to loosen things up and free that nerve. You could find a good massage therapist or chiropractor if you cannot work with a PT. They could also educate you and treat you.

      The more you know about how your body works the less you will panic. Panic is your enemy. You absolutely need to get your parasympathetic (rest and digest) branch of your autonomic nervous system working as well as possible. Parasympathetic functions are restorative. Sympathetic (fight or flight) is not. FQ’s tip the balance toward fight or flight and that is one reason flox damage is so slow to heal. Our nervous system is not in healing mode. Lisa has a book about hacking the Vagus nerve available on this site also. You should get her book as well because doing do everything you can to increase vagal nerve tone is going to help you. In simple terms, do everything you can to get your nervous system back into balance, in a state where it can heal. This is as important as whatever you decide to do with nutrition and supplements. It might be more important. Meditation, acupuncture and absolutely anything that helps you relax and feel like everything is going to be ok are powerful healing tools.

      You absolutely can heal from this. You can beat it. It will take time and it will be frustrating and difficult at times, but many have managed to turn this around. Just don’t forget that your mental attitude is absolutely key. You can do this. Others have. And even if you end up with some residual damage you can learn to cope and your life will be just fine. I did, I cope, and I’m doing fine.
      Ruth

      • Lisa July 8, 2018 at 7:23 pm Reply

        Ruth just wondering did you have trouble with throat tightening? Hard to swallow- dry mouth- I’m wondering what you did to help that? Or how long it lasted? I’m having trouble taking magnesium- I take Epson salt baths and feel worse- throat tightens, I bought remag and put it in a spray bottle and also have been taking chelated magnesium – any ideas? Thank you so very much!!

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