Patricia’s Story of Recovery from Cipro Toxicity

Summary Details:

Story date: October 2019 (18 weeks after Cipro)

Dose Taken: Cipro XR 1000 mg/day for 2 days (Total= 2000 mg)

Date of last dose: May 26th, 2019

Reason: To prevent possible infection in small forehead wound. Original prescription 1000mg/day for 7 days (only took 2).


Whole Story:

My name is Patricia, I’m 31 years old, and I live in the Dominican Republic. Four months ago, on May 24th, 2019, I suffered a minor accident, and a small cut in my forehead.  The plastic surgeon who stitched the wound prescribed Cipro XR 1000mg/day for 7 days to “prevent” an infection. No warnings were given and I hadn’t taken this medication before (or any other fluoroquinolone). I am allergic to NSAIDs, so thankfully I wasn’t prescribed any. I looked up Cipro online before taking my first dose, but I didn’t find anything suspicious. I was actually glad to be prescribed antibiotics at the time, since a very close friend of mine recently spent 7 months bedridden and underwent several surgeries because of a wound infection that wouldn’t subside.

Before taking Cipro I was healthy but had been on a 1200 calorie/day diet for 1 week, therefore I believe my body wasn’t particularly strong when I took the medication. The day following the accident I took the first dose after lunch. I was feeling tired that day, I am not sure if due to the medication. The next day was Mother’s Day in my country. I woke up very excited, with a lot of energy, ready to celebrate the day with my mom and my whole family. After lunch, I took my second (and last) pill. Literally 5 minutes after I took it I started feeling sick, similar to how I feel when I get the flu. I told my family I had to lie down because apparently the antibiotic was too strong. Late afternoon, still in bed, I started feeling tingling sensations in my hands and wrists, cold fire in my feet, and numbness in my legs and arms. I could move and walk, but they felt extremely heavy. I immediately messaged my doctor and asked if there was a different antibiotic I could take, because I was having weird reactions to Cipro. He told me I could stop taking it because I did not have any infection in the first place. No other antibiotics were prescribed.

Since I was feeling so off and strange, I began researching side effects of Ciprofloxacin and was absolutely shocked. I read story after story about people who had taken even less doses than me and were still fighting the strong side effects 4 years out. That same night I downloaded the “FQ Toxicity Solution”, read the whole thing in absolute horror and decided to stay in my mom’s room for the night. I didn’t sleep that first night, out of panic, weird cold sweats and shivers. The following day I headed to a supplement store first thing in the morning. 19 hours after my last dose I started taking liquid magnesium chloride, CoQ10, NAC, B12 (Methylcobalamin), Vitamin B6, Selenium and Vitamin E. The Magnesium bottle I bought wrote “Magnesium is depleted during stress – both physical and emotional”. I realized that the accident probably had depleted me of any magnesium I had in my body before I started taking Cipro. That day I also visited a Neurologist, got a CT scan of my head, which showed the forehead wound was superficial and the accident didn’t cause any significant injuries. I spent the next two days feeling ill, with insomnia, very tender knees and ankles (not painful, but they felt as if they could break with every step), extreme fatigue and numbness in arms and legs.

The third day after taking the supplements I was able to sleep, and the fourth day I felt almost 100% better. I wasn’t sure if I had been indeed floxed or if my reaction was due to the drug being still in my system and/or the lack of magnesium and other nutrients inside my body prior to the antibiotic. I did not know how to act after this three-day episode (should I continue taking magnesium and the other supplements? Should I take high doses or low doses? Should I continue my life normally or should I act as if I was floxed?). I asked in several forums and got no answers. I continued my supplements regimen for 1 week, then I dropped most of the supplements and took only NAC, Magnesium and my Multivitamin. Fast forward week 3, I had forgotten about the whole thing; I was having coffee, coke, birthday cakes, aperol spritz and beers… I was living my life normally. On the weekend I went out dancing with my friends and had a little too many drinks of vodka. The next day I felt hungover, the following day I still felt hungover, which was not normal at all. On the third day I started having an eyelid twitch and by the afternoon I knew the answer to my question: I was floxed and now alcohol had exacerbated the neurotoxic reaction that started with Cipro.

The next 6 weeks I suffered what I believe to be the acute phase of my reaction. I had the following symptoms (most of these symptoms appeared and disappeared throughout the days and even hours):

  • Pins and needles throughout my body and face
  • Pain in my right knee and left ankle, and overall tender joints
  • Severe migraines and light sensitivity (every day for 1 week) that would worsen at night
  • Severe fatigue (couldn’t stand up for more than 5 minutes at once)
  • Insomnia (some days I would not sleep; most days I would be able to sleep 3-5 hours)
  • Upper back pain
  • Heartburn
  • Dyspnea – chest pain and difficulty when I tried to take a full breath (longest symptom that didn’t go away for 6 weeks).
  • Extremely dry skin in hands and feet (skin was flaking for weeks)
  • Extremely thirsty all the time
  • Cold sweats during my sleep some nights
  • Random crying spells every day
  • Overall feeling sick and unwell all the time

At week 4 of my acute phase (week 7 after Cipro) I thought I was making a full recovery and went out with my friends to a bar. The air conditioner was too cold; I was having goosebumps the entire time. I started having muscle pains in my arms and legs and feeling unwell overall. When I got home I spent three hours wrapped under two heavy covers shivering, as my body was unable to return to a normal temperature, even in the Caribbean summertime. This is how I learnt I was experiencing some autonomic nervous system dysfunction (which could also explain why I was having inconsistent digestion patterns throughout the days). That episode started a setback that lasted about 2 weeks.

After those 6 weeks of the acute phase I enjoyed 6 weeks almost symptom free. Then, I had a small setback of about 1 week (week 16 after Cipro). The only symptoms I had that week were: peripheral neuropathy started acting out again, insomnia, ankle pain after waking up and mild dyspnea. The fatigue, dry skin, migraines and cold sweats have not come back since week 9.

During the whole process, I consulted many doctors (MD): Internal Medicine, Neurologist, Gastroenterologist, Orthopedist. Most of them believed me and had some (vague) knowledge about FQ adverse reactions, however they couldn’t help. Since there is no test to diagnose, nor a standard treatment for FQ Toxicity, they could only tell me to wait, cross my fingers, eat very healthy and drink tons of water. All my bloodwork, MRIs, NCV Test, were normal, except that I had some Vitamin D deficiency. My thyroid markers were normal at week 4 after Cipro, but at week 8 some markers were out of range, especially my T3 was really low. It has now regulated.


What I did to recover:

I did several things to recover. Human beings need to feel they are doing something to solve a problem. I am not sure what worked and what didn’t, but I certainly felt better being proactive about it:

  1. Consulted an Osteopath Doctor in New York (Dr. Neil Paulvin): I took the money I had saved for a vacation in Iceland and visited Dr. Neil Paulvin in New York. He recommended a new supplement routine, which I would follow from week 6 to week 10 after Cipro: Probiotics, CoQ10 (Ubiquinol), PQQ, NeuroMag (Magnesium L-Threonate), Magnesium Chloride, Vitamin D3, Omega 3, Multivitamin. Magnesium oil also helped a lot with joint pain and tenderness.
  2. During the acute phase, I ate organic, gluten free, antibiotic and hormone free, diary free, (added) sugar free, soy free. I didn’t experience major problems with my gut, therefore I was following a clean diet to avoid any inflammation or extra toxins inside my body.
  3. Listened to sleep hypnosis videos on youtube. I wanted to avoid taking sleep medication or supplements. I found Dan Jones Hypnosis videos on youtube, and most nights they helped me fall asleep, especially “The Magical Mirror” story. I wasn’t able to sleep for more than 3-5 hours, however, I truly believe that sleeping some hours most nights helped me recover fast.
  4. Started seeing a psychologist:

During this ordeal I developed health anxiety. Any new symptom would trigger severe anxiety and obsession with looking up information about it. I never had any mental health issues before Cipro. I don’t know (and maybe will never know) if this was Cipro induced anxiety. It could also be that this particular uncertain health situation triggered parts of my personality that were unknown to me. Prior to Cipro I believed I was a very positive and strong person, but as soon as I became floxed and there were no timelines, cure, treatment, I became very negative. I thought I could “falsely control” the situation by reading 24/7 about the condition, every symptom, every possible symptom. I felt as if reading about it and understanding it, somehow would prepare me for the worst.  But one day one of the doctors I visited told me: “You want to control the situation, however you are letting fear control you instead”. My psychologist concluded I was having distorted thoughts, specifically “Predicting the Future” and “Catastrophizing”. Even though I feel better, I am still working on this by learning Meditation, since I want to be a stronger person throughout the difficult times in my life.

  1. Avoided medications: Every doctor I visited prescribed something different: Lyrica, Xanax, Nucleo CMP Forte, and others. I’ve forgotten most of them, but there were many. I refused all medication, except for half a pill of Diphenhydramine for my insomnia on 3 occasions during the acute phase.
  2. Read ONLY Floxie Hope stories. Because of the health anxiety I was experiencing, I couldn’t handle to read about permanent irreversible damages or about severe adverse reactions. Even stories on Floxie Hope sometimes triggered my anxiety, when I read about new symptoms appearing several months after Cipro. However, reading about similar situations and knowing that it is possible to recover fully, helped me get through the darkest times. Lisa, thank you so much for what you do for this community, words are not enough to express my gratitude towards your work and compassion.

It is useless to try to predict when we will recover, only God knows. During this time, I isolated myself. Stopped talking to my friends, stopped going out or posting on social media. At one point I resented my close friends for not understanding what was happening to me. I am not sure if my attitude would be more positive if I experienced a major relapse. It’s easy to think clearly when we are feeling better. But I would definitely try. It’s worth it.

During this time, I also understood that nothing can replace family. We know it, but times like these serve as a friendly reminder. My mom, my father and my sister went out of their way every day to understand, give me strength and hope. My mom prayed a lot for me, cooked for me the days I couldn’t get out of bed, took me to many doctor appointments. My father helped me financially during this ordeal.

Now, I continue to eat mostly organic and antibiotic free. Several weeks ago, Lisa recommended that I tried new things slowly as I felt comfortable. In the past weeks I’ve tried normal food and meats (a veterinarian friend of mine assured me that in my country they use Tetracycline instead of Fluoroquinolones in animals because it’s cheaper). I had a glass of rosé two weeks ago, and a glass of champagne one week ago. I have desserts and gluten sometimes. None of this has caused any major setbacks. I have tried coffee twice and both times the chest pain and back pain have returned for several days.  I haven’t tried any heavy exercises or swimming in chlorine pools. Two weeks ago I started exercising 3 times per week with a physiotherapist. The exercises I’m doing are similar to Pilates. Now I’m only taking Vitamin D, Magnesium Chloride, B Vitamin Complex and CoQ10 (Ubiquinol).

If you recently became floxed, please believe that it is possible to get better even before you think you will. Nobody knows what your timeline will be, but consider that the worst case scenario is not the only possible outcome. In my case, about 30% of my suffering was due to the mental state of constant worry, anxiety and desperation. I feared mostly for the health of my eyes, my ears and my mind.

I know I am extremely lucky to have recovered this fast. I’m sure there will be some lingering symptoms here and there for some time, but they don’t interfere with my daily life anymore. I have this newfound appreciation for my body, for the effort it has put in to heal despite the poisons I took. I am so thankful for my life, for having the chance to feel normal again. I really hope from the bottom of my heart, that all those who are battling every day to survive this illness, can recover soon.



23 thoughts on “Patricia’s Story of Recovery from Cipro Toxicity

  1. Aidan G Walsh October 2, 2019 at 9:04 am Reply

    She also has facial & clinical features of Ehlers Danlos Syndrome a Genetic connective tissue disorder which I believe these Antibiotics are attacking

  2. Patricia October 3, 2019 at 10:44 am Reply

    Hi Aidan! If I have that, I’ve never been diagnosed. Before Cipro I never had joint pain, chronic fatigue, dislocations, sprains, cardiovascular issues, trouble with wound healing, etc. I certainly hope that if I have any predisposition, Cipro only triggered it temporarily. During this process I’ve read that people with hypermobile joints should avoid taking FQs. I do have some hyper mobility, but never had any injuries weightlifting, running, cycling, etc.

    Note: I also feel that out of all my symptoms after Cipro, I wasn’t so concerned with joint pain or pain in general. It came in sometimes, not every day, and it would disappear after some hours. Joint weakness/tenderness was more worrying, I felt it in my ankles, knees and wrists. I don’t feel that anymore, only in my wrists sporadically.

    • Ashwin October 13, 2019 at 9:04 pm Reply

      Hi patricia…im floxed on 01 may2019 same as you…iniatially i have panic attack middle left back pain dizziness hand shivering then later in may i developed shoulder pain,wrist pain and ankle pain and all joints started snapping…i thought im getting this pain becoz of ra or lupus and started blood work to find wat kind of disease after all the blood work came negative i leterally dono what was happening to me…i got pain in finger joints,knee and even neck… Then in august i came to know that iam floxed….from then i try many supplements with eventually reduced joint snapping… My dizziness, nervous problem panic attack and all other symptoms except tendon pain subsided…now iam having only joint or tendon pain which the pain got reducing day by day till this october ….since october im started getting pain again….dono whether this is flare.. Im taking chelated magnesium,ashwagandha ayurvedic tab,vitamin d3,antioxidant tab,gluten and dairy free diet,only organic wild caught chicken fish,daily ayurvedic oil massage….whenever i take vitamin b complex i get neuropathy so stopped… And i have taken vitamin e, calcium, collagen peptide,coq10 which im not taking right now…can you plse help me what subsided your joint pain…

      • Patricia October 19, 2019 at 7:28 pm Reply

        Hi Ashwin! So sorry to hear you are going through this :(. I had joint pain some days, and I found Magnesium oil to be the most helpful with this symptom. Have you tried this? My joint pain wasn’t there every day or in the same joints throughout the days. I’ve read some people feel better by having Epsom salt baths. Hope you feel better really soon!

    • Ashwin October 13, 2019 at 11:14 pm Reply

      Im 27 yrs old male from india,i took 200mg cipro for 11 days…..just like you i had done my blood work ana thyroid cortisol ra, ct scan, xray, ultasound everything came negative except vitamin d… I too had the exact same symptoms like cold sweat,dry mouth throught day, chest pain,upper and middle back pain,pins and needles in face behind eye and throat body, muscle twitching,sleep insomnia cant sleep 2 hrs straight without wakingup, tremor,dizziness,ear tinnitus sometimes, dry eye,dry skin,eye neuralgia cant focus which all gone except tendon or joint pain…at first i have pain in shoulder elbow knee ankle neck amd wrist… Right now knee neck and shoulder pain almost gone… But ankle and wrist and finger exaggerated from sep last week like flare….i lost my hope eventhough last month my tendon pain reduced.. Particularly i got pain in my forefinger and thumb from this month which is bothering me as i have to work on computer and i have a 1yr old baby which cant lift if i lift the next day im having pain in shoulder….even my parents didnt believe me that these are because of cipro they took me to psycologist even he made fun of me and many doctor didnt believe amd laughed at me.
      …. Im lucky my wife understands me and help me many times….after reading your story i have some hope as both us floxed at same time same quantity and almost same symptoms…only diff is i realised that this pain bcoz of cipro in august…hope this pain too will subside…can i contact thru fb or insta my fb id:ashwin. achu.erode insta id :ashwin_aj93

      • Patricia October 21, 2019 at 2:27 pm Reply

        Hi Ashwin, sorry I didn’t realize there was another message. It is absolutely normal for symptoms to cycle, and for new symptoms to appear even weeks or months after. Tendons and other muskoloskeletal tissues have a slower cell turnover, so maybe this is why you are feeling tendon symptoms after other symptoms have ceased. There’s an article here in FloxieHope about Carpal Tunnel Syndrome (CTS), and it explains that people who have taken Fluoroquinolones in the past 91–365 days have a higher risk of developing CTS, than those who took FQs less than 90 days ago, or those who did not take any. So I don’t think it is rare that tendon pain is still persistent, have hope that eventually this will get better as well.

        Regarding your parents and doctors not believing you… I think all us floxies have had experience with this. I try to avoid thinking about it because it pisses me off. Keep those who believe and support you real close! Hope this helps!

      • Monika January 21, 2020 at 7:00 am Reply

        Hi Ashwin,
        I too have taken ofloxacin, same category medicine in May 2019. Doctors in India donnot believe that these so commonly prescrined antibiotics can cause side effects. Despite the fact this happening here as well. I am taking all sorts of supplements but still do not see any hope of recovery. Any neurologist who recognise this problem and you are consulting currently. Can you tell me if going dairy free helped you? Which probiotics did you take?

        • Ashwin May 12, 2020 at 11:25 pm

          Hang in there u will be alright… My advice dont take any non veg or animal product that are manufactured in india as all these are injected with cipro… And try to take as many as vitamin c fruitd and veg based protein a lots of protein

  3. harry October 20, 2019 at 5:31 am Reply

    Hi Patricia

    I took cipro in in september total of 4000mg 8X500mg.Now i am having issues with pain in my ankles and shoulder… my shoulder pain is dull pain and when i go to bed i dont feel that pain anymore and im using Magnesium oil too for the shoulder… for now im taking NAC – 500mg, Mag Chealate-700mg, Vit C,D 3000, PQQ and probiotics. Do u went gluten free diet and water free from Flurodie. and is their anything else i need to take as supplement which can help. Regards.

    • Patricia October 21, 2019 at 8:19 am Reply

      Hi Harry! I went gluten free for a short period of time (around 8 weeks), and then started incorporating some gluten. I’ve always drank bottled water my entire life, fluoride free water, because we cannot consume tap water in my country. I did change my toothpaste to fluoride free. For joints I’ve read that bone broth is great, as well as maybe a collagen supplement. I recently started incorporating a collagen supplement because I’m getting a lot of clicking joints, let’s see how that goes. In the FQ Toxicity Solution it mentions that if you can move, you should (maybe short walks) to keep circulation happening, but, my tendon pain was random (it came and went and it moved from place to place), so I don’t have a lot of experience with these issues. What I find helps me the most overall is CoQ10 (Ubiquinol 200mg), Magnesium, and patience (time). Once I noticed that most of my symptoms would cycle, disappearing after some weeks, I didn’t pay attention to pain symptoms that much. Hope this helps!

    • Patricia October 21, 2019 at 8:35 am Reply

      Harry, also I want to mention that what also helped me very much was to be very well fed. So if you don’t have any gut issues or food intolerances, I recommend to focus on eating very well, even if you don’t have much of an appetite. I tried to have breakfast, lunch and dinner always, as well as 2 snacks (smoothies). My diet consisted of organic and antibiotic-free foods, with minimal or no processing. I mostly consumed eggs, plantains, casava, pumpkin, rice, beans, chicken, beef, fish, avocados, green salads with olive oil, white cheese (from raw milk), hummus, smoothies with coconut meat, beets, carrots, bananas, papaya (great for digestion!), oranges (not all together but using those ingredients). Hope you recover very soon!

  4. Garrett D. October 22, 2019 at 1:10 pm Reply

    Hi Patricia,

    I was recently prescribed Levaquin on Friday Nov. 8th and only took 1 dose of 500mg before reading about the side effects online and shortly thereafter developing many severe side effects. Is there any way we can chat privately? (maybe email or phone)

    Thank you.

  5. Bruce October 29, 2019 at 9:01 am Reply

    Hi Patricia, Thanks for your post. I took one pill of Cipro on July 5, 2019 and have been suffering ever since.

    Peripheral Neuropathy
    Pain in both achillies tendons, and thumbs.
    Eye Pain
    Negative thoughts

    I live in NY, do you recommend seeing Dr Pualvin? Does he do a lot of blood work to come up with the necessary supplements? Thanks.

    • Patricia October 29, 2019 at 9:57 pm Reply

      Hi Bruce!!! Sorry to read about your floxing :(. When I visited him, he recommended a general supplement plan, until I got some specific lab work done and 23andme genetic testing. In a second visit he would design a more targeted plan for me. I did the lab work and genetic testing, but I’m still pending going for a follow-up consultation because I live abroad and I am already feeling much better. Although he also makes Skype consultations, I’ll wait to go and visit the NY area to see him again.

      Hope this helps!

      Note for Garrett in the message above: I’m traveling right now until November 13th, internet is very limited :/ I’ll be available after that date. Sorry 😦

      • Bruce October 30, 2019 at 8:44 am Reply

        Thanks Patricia, I will be making an appointment with Dr Paulvin. Glad you are feeling much better!

        • Garrett October 31, 2019 at 6:09 am

          Hi Bruce, I live just outside Manhattan and I’ve made an appointment to see Dr. Paulvin this afternoon. Please let me know if you want to talk offline. Thanks.

        • Bruce October 31, 2019 at 12:03 pm

          Hi Garrett, Hopefully Dr Paulvin can help. I took one pill of Cipro in July and my summer ended immediately.
          You can email me at Regards.

        • Ying Dong July 27, 2020 at 10:00 am

          Hi Bruce,

          Just wondering if your session with Dr. Paulvin helped? I am in ny area and really want to go see him.

    • Ying Dong July 27, 2020 at 11:00 am Reply

      Hi Garrett,

      I totally mistaken you as Bruce. Just wondering if your session with Dr. Paulvin helped? I am in ny area and really want to go see him.

  6. Garrett October 30, 2019 at 7:11 am Reply

    Hi Patricia,

    Thank you very much for your response. Noted that you’ll be traveling until Nov. 13th. Whenever you are ready please kindly send me your preferred method to talk!

    Thank you again.

  7. Dan Jervis November 27, 2019 at 9:11 pm Reply

    Hi Patricia, Thank you for sharing your story. My story is entitled War with Chronic Pain. I was floxed 15 years before Cipro was black boxed in July 2008. What all of us must realize and emphasize to our doctors is that it is onus upon them to know what side effects and risks accompany a drug they prescribe. That is the root of this iatrogenic nightmare.

    • Patricia December 2, 2019 at 7:01 pm Reply

      Hi Dan! Sorry to hear you’ve been suffering for so many years. Last week I had gastroenteritis. We did 4 stool tests and no bacteria was found, so we think it was a stomach virus because it went away on its own. Can you believe that two different gastroenterologists suggested that I take CIPRO even though no bacteria was found? This is insane. But you are right, we must do our best to spread the word! Hope you continue to find healing!

  8. abhikumar9 May 9, 2020 at 2:14 pm Reply

    Hi Patricia

    Just wanted to check in with you . I started having the same reaction to cipro 5 days into the course (500 mg) and stopped taking 3 days back . Would really appreciate your help to counteract the toxicity as early as possible

    Please reach out to me at
    Forever in your debt .

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