Rahul’s Story of Fluoroquinolone Toxicity and Recovery

Rahul’s story, in his own words, can be found in this video:

Please watch the video. Rahul is thoughtful, wise, wonderful, charming, and full of poignant advice. I (Lisa) can’t sum-up what he says even close to adequately, but here are a few notes from the video. They’re truly inadequate though, and I hope that you watch the video to get the actual story. Thank you for sharing your wonderful words of wisdom, Rahul!

Rahul was “floxed” by cipro.

His symptoms included, but are not limited to:

  • Anxiety
  • Insomnia
  • Needing to urinate constantly
  • Tinnitus
  • Random sharp pains
  • Suicidal ideation
  • Health anxiety (especially around what he ate and drank)
  • Hyper mania
  • Autonomic nervous system dysfunction
  • Weight loss
  • Inability to cry

He describes how his family came around to supporting him, and how other people in his family had similar reactions to fluoroquinolones in their lives.

When he deeply accepted his illness he stopped suffering. He still experienced symptoms, but he stopped suffering. (Watch the video, Rahul says it so much better than I am repeating.)

He describes his approach to healing and what helped him through fluoroquinolone toxicity. His relationships and inner strength were key more than anything else. (Watch the video, I am putting things way too simplistically, what he says is poignant and thoughtful and wonderful.)

He goes over how he turned the crisis and tragedy of fluoroquinolone toxicity into an opportunity to improve himself and his life. It changed his perspective and his life – and not all the perspective changes were bad.

*****

The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

*****

 

 

26 thoughts on “Rahul’s Story of Fluoroquinolone Toxicity and Recovery

  1. Rahul November 5, 2020 at 10:05 am Reply

    Thanks for posting this video, Lisa. I never thought that I would get to say the words ‘I recovered’ but I did with this video. It means so much to me. To those who are still struggling please know that you can recover and this isn’t the end of your life. It can be the beginning of something better too.

    • Claire November 8, 2020 at 3:39 pm Reply

      Hi Rahul – Thank you for sharing your amazing story, congratulations on your recovery. How long after the reaction did you feel recovered? Best wishes!

      • rahulkohli82 November 8, 2020 at 3:48 pm Reply

        Hi Clare. I would say maybe 3 years or so. I will add I get the odd symptom here or there but nothing worth worrying about. Elevated heart rate, health anxiety and dry eyes and clearly I have PTSD from the whole thing. As bizarre as it seems given what I just typed I do feel recovered. I.e. back to where I was. My life is back to where it was but improved because I made so many changes. Followed a new career, moved, look at the world differently, done a lot of trauma work on my early life which I guess opened up a lot of those doors. So overall I’m glad good came out of it. I don’t think I would have had the courage to change for a long while unless Cipro occurred.

        • Claire November 9, 2020 at 2:18 am

          Brilliant, I’m so pleased you’ve had such major positives come from such a terrible experience. I’m 9 months since my reaction and really struggling physically and mentally. I’ve not had much healing at all so far. It feels very bleak. I too feel like I will never recover. Thank you for posting and showing there is hope for healing!

    • fablepd November 30, 2020 at 9:48 am Reply

      Thank you Rahul. I’ve just been floxed. In 2020. Absurd. One week of Cipro and metronidazole. I completed therapy just 12 days ago and I have anxiety, trembling and cold hands. I previosly had ME/CFS and idiopathic Hypersomnia. It’s devastating. My doctor says that in these cases in 4-8 weeks symptoms will fade, but we know that it happens raraly. But your experience demonstrate you can go out of it. Thank you so much and greetings from Italy.

      • rahulkohli82 November 30, 2020 at 10:13 am Reply

        Lovely to hear from you and sorry to hear about your tough time with CFS/Cipro.

        II didn’t mention it in my story but I was recommended to carry on taking Cipro, even with side effects, by my family Dr. When I was hospitalized and came to my parent’s house to recuperate he told me that he was the head of the local hospital trust antibiotic board and that he had Cipro removed 3 years ago from their approved medications list because of the extreme side effects. I just sat there in silence because he had told me to carry on taking it. I stopped being angry with him at that point when I was reminded that so many Drs have low emotional intelligence with significant blocks in their knowledge and/or memory.

        • fablepd November 30, 2020 at 11:10 am

          Dear Rahul what you told about being told to carry on is simply devastating ! I suffer so much reading this !! Also, you are the only one who decided not to take supplements but I can understand you and your recovery is even more amazing due the situation !

  2. Josh November 7, 2020 at 4:26 pm Reply

    Hi Rahul, Wonder to hear that you recovered. My apologies, but my cognitive dysfunction currently limits me from following along with you video. Would you kindly provide some of key things that helped your recover here? Thank you 🙂

  3. rahulkohli82 November 8, 2020 at 5:31 am Reply

    Hi Josh, I did know it was too long for some people, so of course, feel free to split it into multiple viewings. I had difficulties concentrating too, which I allude to in the video. I tried to make a video that I would have liked to watch when I was in my worst health. In reality, I never watched anything. The video is spiritual, inspirational in nature so hard to get that across in written form so if you have any free bandwidth down the line I think watching or listening is better than any written summary that I can give.

    But I’ll try and summarise:
    • Listen to your own intuition about what works for you and what you need.
    • Don’t worry too much about making a mistake
    • Make sure you laugh a lot
    • Speak to people who don’t enable you and your anxiety. But those who listen with compassion and love.
    • My neurologist told me that people who have adverse reactions are often in a dysfunctional mental state before their adverse reaction. The adverse reaction isn’t just caused by the physical chemical but a combination of both things.
    • Processed my feelings during hypomania and managed to sleep for the first time in 3 days which lead me to understand how much anger and rage I had and that processing that was a key to calming down my system and healing.
    • Recovery is not a linear process, 2 steps back 3 steps forward.
    • Make progress as and when you feel safe.
    • Came out of it a better person. The worse thing that happened to me but made sure I made the best out of it. I decided to not let it beat me. I was suicidal but decided (when psychotic) that I’d had enough and had to survive and thrive.
    • I consider myself a survivor, not a victim
    • Didn’t take any medication or supplements. Kept it simple. Not trying to get a science degree to recover.
    • Deeply accepting I was ill and this wasn’t going to just stop. So prepared for the long haul.
    • Taking it one day at a time in the beginning. Was so ill that I couldn’t think further than the end of the day.
    • I found a strength in me that I didn’t know existed
    I was happy with small seemingly insignificant progress like being able to take a shower by myself and use some shower gel.
    •Made sure I made progress daily.

    • Mike November 8, 2020 at 8:18 am Reply

      This story is amazing to me. Hearing it today on my birthday gives me hope. You really hit home with me when you said that sometimes we need to be ill to become a better person and to be able to do things you may not have had the guts to do before. I need to remember to laugh. Day by day I get better. Thank you for sharing your story.

      • rahulkohli82 November 8, 2020 at 8:48 am Reply

        Thanks, Mike.
        As I mentioned in the video, when I got ill I wrote a suicide note. I didn’t think that I would survive. In those moments I wasn’t able to think any good was going to come from Cipro because I couldn’t imagine anything other than pain and suffering I was experiencing because the suffering consumed my every moment. Mental and physical.

        As time went on and I had huge mood swings, moving back and forth from suicidal ideation to spiritually awakened feeling. At my darkest moments, I would remember a line from one of my fave movies (Shawshank Redemption) and say it myself ‘Get busy living or get busy dying.’ As soon as I said it I knew why it came into my head. I didn’t want to die. I wanted to live. But living meant I had to not just survive, I had to thrive. I couldn’t go at life half-heartedly anymore as I had been.

  4. Claire November 12, 2020 at 6:07 am Reply

    Hi Rahul, when did you feel you were turning a corner in your recovery? When it didn’t feel so hopeless?

    • rahulkohli82 November 12, 2020 at 9:51 am Reply

      Hi Claire. I turned many, many corners. So many so that I don’t think I would even classify it as turning a corner it was just the recovery process itself. Overcoming roadblocks is the journey. It was very much non-linear.

      The overall progress over time was obviously up but day-2-day I can’t say I felt better than I did the day before. But when I checked in with myself every 2 weeks I could say I had improved, sometimes in the most mundane, nominal ways possible. That worked for me because when I’m checking for progress constantly the energy that takes can limit the progress that is possible.

      I felt hopeless throughout and often. Even at the start of this year, I felt hopeless. So I learned that what I think isn’t always true. I KNEW I wouldn’t recover, then I did and I realised I didn’t know 🙂

      • marie wheeler November 22, 2020 at 11:40 am Reply

        hi rahul
        How is your progress going. Im 11 months out and is still not feeling 100 percent.
        Can you give an update on your progress

        • rahulkohli82 November 24, 2020 at 1:37 pm

          Hi Marie. Not sure if my long reply is showing here. I’m never quite sure with this page. I did post it but it’s not here now. I can’t remember what I wrote I’m afraid. But I have recovered now, which my recovery video alludes to.

  5. marie wheeler November 24, 2020 at 6:34 pm Reply

    hi rahul
    Thanks for the reply. I’m glad you have recovered. Do you think there is hope for me. I was prescribed 2 antibiotics last september 2019. I had a secondary overgrowth from the first set of antibiotics. My doctor put me on cipro on jan 2020 i took three and then went on another seven days of bactrum and have been pretty messsed up. It seemed my body just broke down and i’m not sure if its because i took that many antibiotics in a short period of time that cause this big issue. My biggest symptom right now is body tremors and headaches. How long did yours take to go away. I noticed you said you had body tremors as well.I watched you video and have all the symptoms as you. Im feeling so hopeless and also like there is no end in site. Do you have any suggestions. i would really appreciate this. Also where are you located? i really was impressed with you that you didnt take any supplements and recovered? Hats off to you for being so brave especially when in a situation like this one. I personally get afraid if i dont take anything i would get worse. What are your thoughts on this?
    Marie Wheeler

    • rahulkohli82 November 25, 2020 at 3:29 am Reply

      I know there is hope for you. I KNEW I wouldn’t recover but I did. Our deepest fears are not the truth as they often feel. My fears were proved wrong but at the time I still thought I KNEW I wouldn’t recover. How could that be? My fear didn’t factor in time, incremental progress, my body wanting to heal and moving towards that or a whole host of other things. Our feelings are not facts. People do recover. You might not see them on message boards because message boards are skewed for long-term ill people. Well-people leave and live their lives.

      I got headaches for a long time. Not regular ones, but like a shooting pain around my head like I had electricity running through it. They stopped maybe early this year and occurred pretty much exclusively when I was pushing too hard or for too long and running myself ragged. Emotional or physical stimulation.
      Your symptoms will go away in their own time, so please don’t worry too much about the time frame because you are not in control of that. Your body wants to heal and it is in charge. In the big scheme of things, you won’t remember if it was 1 year or 2 years. I promise you that. I don’t remember when each symptom went away. But all I thought about at the beginning was when every symptom was going away. I drove myself into more anxiety. How you feel about yourself is a more important barometer than symptoms IMHO.

      The reason I didn’t take meds was:
      1. I’m in addiction recovery (so didn’t want to take benzos for the anxiety).
      2. I didn’t want to take any medication or supplements because I felt like I’d just been poisoned and didn’t want to put anything in my body. I knew in my heart of hearts that it wasn’t right for me because my system was so out of whack.
      3. I didn’t have the brain space for or emotional capacity to try something and have it not work.
      4. The advice wasn’t peer-reviewed tried and tested. It was the subjective opinions of people. What if I took something and got worse? I didn’t have the capacity to go through that. No Dr knew anything and I don’t trust message boards.
      5. I have done a lot of therapy, and 12-step meetings and know how to listen to my body and talk about what I need and mostly what I needed was to come to terms with the fact I’d almost died and the trauma of going through what I had done so.

      Ultimately Marie Wheeler can recover. It might take longer than she wants it to, but healing is happening.
      I used my illness time to do core emotional work on myself. You can come out of the other side in a better emotional state. Not sure if you watched the testimonial but if you get the chance it might explain more of why I think what I think.

      I’m from London, UK.

  6. marie wheeler November 25, 2020 at 11:02 am Reply

    thanks so much. i really need hope and i feel if you can do so can us that’s floxed. Thanks also for you kind words of encouragement. My left side of the body seemed where i was hard hit. Im trying to stay active and doing pt. Did you get ligament and tendon damage? Would you say you are 100 percent healed? Im in atlanta Ga usa.
    Marie

    • rahulkohli82 November 25, 2020 at 3:51 pm Reply

      I would say 100% or thereabouts but I have a few little bits outstanding still sometimes. E.g. I have PTSD from the whole episode.
      I got no ligament stuff but I got really bad mental stuff. Antibiomania and also psychosis. So I didn’t get a common one but got a rarely rare symptom I think.

      I know that one day that, that hope will turn into faith and then finally into knowing that you will recover. It just does take time. I think you probably know in your heart that it takes time. I did. The 2-4 weeks I was promised seemed far fetched. I kinda knew that it would take years to be fully recovered. But now I’m ok with that because it’s not 3 years of those acute initial stages. So please be super gentle with yourself and love yourself back to full health.

  7. marie wheeler November 28, 2020 at 1:48 pm Reply

    how much cipro did you take?

    • rahulkohli82 November 28, 2020 at 2:01 pm Reply

      9 days, 2 x 500mg per day.

  8. marie wheeler November 29, 2020 at 6:44 am Reply

    do you have a email/? can i message you for some other questions?
    thanks

    • rahulkohli82 November 29, 2020 at 10:09 am Reply

      Sure. Do you maybe want to comment on my video on YouTube and message me on my profile on there please? I don’t want to put my email as bots scan Web pages for email addresses to spam.

      Thanks.

    • rahulkohli82 November 29, 2020 at 2:55 pm Reply

      I’m not the right person to ask about supplements because I didn’t take any. My video talks about that. That is part of my recovery story and why I chose not to.

      I can tell from the frequency and the tone of your messages that you’re highly anxious and really looking desperately for a cure, progress, and to find a solution. But I think that worrying about it pushes it further away. Your system has gone out of whack and on some level, you have to reassure it that you are ok and that everything is as it’s meant to be right now. Deeply accept where you are. You cannot magically get better overnight. Right now you are ill. Creating anxiety about something that you cannot change will cause you distress.

      You may be angry, afraid, lonely, scared. Think of yourself as a child who needs love, compassion, guidance but you are its parent. So you know how best to look after yourself. Of course, ask what others did but we all get better differently. We all have a different path. Your job is to find what Marie needs to get better. No one else can do that for you.

      Not sure what your current state of mind is like at the moment or what it was like before Cipro but if you are prone to anxiety it may be worth speaking to a professional or looking into something like CBT.

      If you feel that you need supplements and are looking for a medical cure, help, intervention then I’m not your best person. No doubt there will be someone else here on this site or on one of the Facebook groups who could help you. I am just not that person.

  9. marie wheeler November 29, 2020 at 1:32 pm Reply

    i tried to go to youtube and message you and having a hard time doing that. Did you ever use magnesium when you were floxed?
    marie

  10. marie wheeler November 29, 2020 at 1:35 pm Reply

    right now i am using a fish oil tablet, turmeric 2 caps, and 1/2 tsp magnesium. Not sure if anything is working but time itself. so frustrating. 11 months and still having really bad ache, joint pain etc. any suggstions
    marie

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

%d bloggers like this: