Sarah’s Story – Cipro Recovery

Sarah FQhope

*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

Sarah posted the following on facebook and gave me permission to share it.  It’s in the format of a facebook post, so if it feels a bit disjointed, that’s why.  Thank you so much for sharing your story of hope, Sarah!

Sarah’s Story –

Hi floxies! Well…here I am…two and half years later! Life is…..GREAT! I wanted to send my love, encouragement and hope. Has everything been perfect?…..no. But…I am an advocate for my health and my family’s health (nobody bullies me into unnecessary meds); and I try to appreciate the good days and hug myself thru the bad days (which I don’t think are cipro related anymore). Sometimes I wonder if it was even real (it was). My parents now think I had shingles...I wonder if I didn’t also. But I also think cipro might have caused it. My symptoms : Horrible neuropathy, insomnia, anxiety, photosensitivity, palpitations, vertigo, etc, etc, etc….. I don’t know how to give hope other than to say…believe that the body is amazing and can heal; reach out to people; keep contributing to the world in some capacity; love yourself; understand that most doctors are at least 10 years behind the research (and are brainwashed by big pharma) so work to heal yourself; remember that nobody feels 100% everyday, no matter how healthy; accept that bad things happen to good people (this is a biggie); believe in a god; have sex (even when you don’t want to); get a pet (my doggie has been amazing for my health); stop blaming it all on FQs..sometimes it isn’t related; and just move forward, however you can. I am actually grateful for cipro….YES I AM! It has helped me become more cognitive of the importance of living life. Does everyone heal…no. BUT….MOST PEOPLE DO GET SIGNIFICANTLY BETTER if not completely healed (I believe I am completely healed). Stay away from most prescriptions…they all have side effects.

Hugs and peace to you all!

In comments Sarah said the following –

Good morning everyone! I didn’t have tendon tears, but I had terrible body pains. My biggest issue was neuropathy….absolutely terrible. I only took cipro one time and actually only five pills. The vertigo I had lasted on and off for about six months. I had it straight for one month. To heal I concentrated on my gut health (started making kefir), took loads of magnesium, a really good multi, lots of vit c, daily lemon water, tried vit d3, but made my hands tingle. I tried to exercise daily (usually just walking), ate only pure, whole foods…if your grandma wouldn’t recognize it as a food, I wouldn’t eat it. I have researched natural antibiotics and try to use those (about 75% of time I can forego rx)…when I have needed to use antibiotics (2x since being floxed), I have been ok using amoxicillin and zpak. I am a kindergarten teacher, so being exposed to germs is in my job description. I wish everyone the best. I guess mostly…I just tried to live my life despite my many ailments. My thought was…what if I didn’t heal? Was I going to live this one life locked in my house? I just got busy living the best life I could. I know I wasn’t as badly floxed as many, but my personal nightmare was hell. Hugs to you all!

SAM-e has helped me tremendously for the mentally crap! Expensive, but worth it!

My neuropathy was intense, painful and widespread! After the initial floxing period (I took the cipro in March ’12), my neuropathy settled around my right eye, cheekbone, forehead, ear, neck, shoulder, back and arm. I also had numbness in both arms at times, as well as lower legs and feet. I did not have mouth or throat neuropathy. The pain in my face was crazy!! I checked myself a lot in the mirror because I swore I was deformed. I also had on and off body twitching…great fun. The facial neuropathy lasted around a year. I occasionally get a very light, funky feeling in that area on my face which leads me to believe I might have had shingles on top of being floxed. I can not stress enough the importance of magnesium! I also believe doing some good sun therapy (can’t take vitamin d due to wool allergy), and eating a diet rich in organic foods, including meats and dairy was vital! I never thought I would heal….because healing is slow and tedious. It was like riding a roller coaster. That first hill is the biggest bitch! You never think you’ll reach the top…and then you do. But unfortunately, there’s more hills to climb….however, they’re not as bad as that first hill…but they still piss you off!

Mine (neuropathy) didn’t tingle, feel numb until the end. Mine was extremely painful….it felt like my face was being twisted and it burned like you can’t imagine. I can’t even describe the pain….absolutely horrific.

my life changed when I was floxed. I eat differently, think differently and react differently than I did before in my health. I still eat extremely good, but I am not so hypersensitive about the foods all the time. If I go out to eat…I enjoy myself. I do still use magnesium, good multi, dim plus, vit c, b complex and sam-e. Occassionally I have issues with sleep, but I always did. I also still make and drink daily kefir.

 

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

21 thoughts on “Sarah’s Story – Cipro Recovery

  1. Vicki October 2, 2014 at 12:40 pm Reply

    Sarah, wonderful news on your recovery. May I ask what you did for the vertigo? I have the same issue the last 5 months and it’s been frustrating. Thanks and continued good health

    • Caroline October 18, 2014 at 8:07 pm Reply

      Hi Amy, just want to chime in. I am a veteran in the vertigo game. In 2011 I actually got diagnosed with vestibular neuritis. Which is an ear nerve damage issue and gives you killer vertigo and brain fog. Felt like i was looking at everything through a fishbowl. I actually recovered from it 100% ..just like floxie stuff it wasn’t linear it was get better then I had a couple of set backs. Took me 10 months overall to feel human Then 18 months for residual feelings to go. What I would like to pass on to you from this horrible experience is to walk outdoors. The best thing you can do is just go for walks outside. Your brain will eventually compensate and everything will return to normal. No stress, healthy diet, gravol helped big time, walking outdoors, keep living life, and I don’t know if was just a coincidence.. But ACV helped me. But really time was the ultimate key to healing. But trust that it WILL go. People have found success with Vestibular rehabilitation Therapy. I did it but quit after 3 sessions. Just keep positive thoughts and remember you will beat this. This too shall pass.

      • Caroline October 18, 2014 at 8:08 pm Reply

        Sorry I meant Vicki 🙂

        • Angie April 23, 2016 at 10:36 am

          Hi Caroline,

          I suffered from vestibular neuritis too in 2011 and now am completely healed. But am 3 months in the floxie thing plz tell me how r u doing now and if u had any supplements. Also did u hv muscle twitches and body pains?

        • Caroline April 23, 2016 at 12:10 pm

          Hi Angie,
          Yes I’m now 20 months out and feeling much much better. After 3 months is when i started to see improvement. I took magnesium , vitC, vit D ( my levels were really low) and probiotics. I had muscle pain, twitching, joint pain, crazy pain in legs, migraines, neuropathy… The whole thing. It really does get better. Also eating fruits and veggies and lots of water. Praying for your speedy recovery 🙂

      • Angie May 20, 2016 at 11:54 am Reply

        Hi Caroline, thanks a lot for your reply 🙂 have u go through setbacks? And are u feeling normal now? Or still having issues?

  2. amy October 6, 2014 at 6:08 am Reply

    Sarah, this is such an awesome story! I would love to reach out to you on Facebook if you are willing. I have a lot of the same facial pain as my last remaining side effect. It’s almost been a year for me. Thanks!

  3. Vicki October 20, 2014 at 6:11 am Reply

    Thank you Caroline. I have had 2 Vestibular therapies actually and thought it was getting better. Going for the 3rd and last one – so she can rule out the “crystals” floating out of the tubes. I will try more walking outside and the ACV. It’s been 6 months and I think you might of hit on the “ear” issue. As I have had ear issues since being floxed and maybe I have what you have. Thanks for the encouragement. If I can get rid of this dizziness it would be a HUGE step for me in my recovery. Take care Caroline and thanks again for your reply.

    • Caroline October 20, 2014 at 6:34 am Reply

      No problem Vicki, keep the faith and I know the dizziness will go. The brain has an unbelievable capacity to compensate for our ear’s deficits.
      When i was going through the thick of it this site helped so much. a wealth of information from people who ALL recovered from inner ear and dizzy issues. http://www.theculture.org/rich/sharpblue/archives/000200.html
      If you would like to ask questions or need any encouragement or support feel free to email me
      carolinefay2000@gmail.com

  4. Rose Casanova December 15, 2014 at 8:56 am Reply

    Thanks Sarah. Great news on your recovery. I wish you the best!

  5. Aidan December 20, 2015 at 12:00 pm Reply

    I was just diagnosed Dec 1st with BPPVertigo they told me to take 10 days of Olive Oil drops then they cleaned out both ears now doing Maneuvers but see no difference I

    wonder if it MAV Migraine Associated Vetigo or a Virus inner ear…I got sick while being a Pilot I know there is some type associated with this in Aviation…

  6. Trudy Keuchel April 3, 2016 at 7:49 am Reply

    I’ve suffered off and on with vertigo. I believe I have MAV. There is a group headed by Dr. Angela Stanton that has been very helpful. Following her protocol has really helped.

  7. Steven April 3, 2016 at 11:25 pm Reply

    I had vertigo after being overdosed by FQs 750 MG x5 or so, since early 2000. Also pain pill related (no help). I had it off and on for about seven years maybe. I just took waves of dramamine. I believe fresh ginger works, as that may have helped now that I’m thinking about it. Fresh shredded into heated water then we’ll strained made into a drink. Ginger, hot water, half & half, organic sugar, vanilla extract, over ice. If preferred, one can add Green Tea or Jasmine Tea. Also good for the stomach. Lemon-water, crushed garlic in salsa (4 cloves), ginger, and turmeric root preferably fresh has been a big help. Organic is maybe better if the source is good. For a good dip that my Wife and I came up with a time ago is, sour cream, turmeric root, onion powder, sea salt, tarragon, ground or fresh ginger, black or white pepper(minimal). Look up turmeric root if You haven’t. It has some suprising benifets. You can buy organic, but I have found the darker the better. I sometimes wonder if some of the curcumin, which is the affective chemical in turmeric, is extracted out to be sold before making it into a dry form. I just know that we can tell a difference, (as it has an energy/anti-inflamitory affect), between the lighter and darker. The roots of surtain edible mushrooms have been found to be good also. CoQ10, Magnesium, Vit D, and Krill oil has been a lot of help. I have been meditating for a lot of years and it has worked well for many things. Vertigo is one of the worst things. Just wanted to help as these are all our experiences. Hope all the best, strength, and power to all here. I’ll check out the other suggestions as well.

  8. Debbie April 4, 2016 at 5:10 pm Reply

    Thanks, Sarah for the words of encouragement! Positive stories warm the soul.

  9. Erika Kelly April 4, 2016 at 7:16 pm Reply

    Thanks Sarah, so encouraging. I am almost 10 months out now and am already much better than I was at 9 months. My biggie was insomnia and anxiety, followed by random stabbing pains, all of which is now almost non existent. I agree, magnesium is a huge component in our healing along with gut health. Thank you for your message of hope!

  10. Victoria September 25, 2016 at 8:10 pm Reply

    Sarah thanks for your story. I also drink kefir daily (20-30 cups, insane I know)- I make my own from coconut milk and believe that it is primarily responsible for reversing the majority of my “fibromyalgia” symptoms thanks to a GABA-producing bacteria that it contains
    (L-rhamnosus). I found out about kefir and its ability to reverse sleep disorders and neurological conditions after lots of prayer to God. I had all the typical symptoms, which mostly have over a year long period reversed in exactly the order I experienced them when I was going downhill. I am not 100% yet but I am still getting better each week. I was floxed by Cipro the 2nd/3rd time I took it.

    • Kim December 27, 2016 at 12:00 pm Reply

      Any new updates

  11. Linda Harris December 31, 2016 at 6:01 am Reply

    Suddenly I can sleep better after 3 months but now I wake up dizzy and lightheaded. Can these symptoms emerge after three months? They are the worst upon waking (I sleep about 6 hours now but still awaken very early). I also feel more confused in the morning, especially before taking my supplements. Anyone else have these symptoms? Is it typical for symptoms to come and go and some to emerge suddenly after 3 months?

  12. Pili January 12, 2017 at 9:11 pm Reply

    How long did it take for vertigo to go away on your recovery

  13. Pili January 12, 2017 at 9:12 pm Reply

    How long did it take for vertigo to go away during recovery

  14. Pili January 12, 2017 at 9:22 pm Reply

    Is ACV ,apple cider vinegar ,how long and how to take it

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