Shelley’s Recovery Story

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*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

I have such happy, happy news. I am healed, just one month short of two years FLOXED. Hip pain all but gone, energy back, walking long distances again, able to wear high heels, able to go for rides on hubby’s motorcycle, interested in sex again (with hubby), LOL…I feel like myself. Brain fog gone, memory improving, ears healing, eye sight improved, shoulder pain gone (can lift it over my head and unfasten my bra), I can take hot showers, I am sweating again, my skin is soft and moist, hair isn’t falling out, I can eat a few more things that I had to avoid altogether (when sick). I can produce tears again and gag again. I attribute my healing to many things, but most of the credit shall always be to my Heavenly Father. Prayer, Time, Organic Paleo Diet, Adding Organ meats to my diet, like liver and kidney, Research about nutrition, the right *Supplements (see List), *Grounding, *Vagus Nerve Stimulation Exercises, Short Walks, Massage, Essential Oils, Chiropractic Adjustments, Learning to de-stress, Spending time with your Pet (my cat and dog), Sleep, Staying clear of PHARMACEUTICAL’s (even ASA, Advil and Tylenol), most especially NSAID’s and synthetic antibiotics, in favor of natural antibiotics like (Oil or Oregano, silver solution (Collidial silver), Berberine, and Allicin), time honored home remedies and homeopathic solutions, Being fortunate to have a Supportive Partner, even though we lost our house and declared bankruptcy. Life is good again, but I won’t forget how easily it can all go away! I will continue to SHOUT out the dangers of Fluoroquinolone’s and other Pharmaceutical poisons. I still have IBS and Celiac, some kidney damage from the Cipro, but these can be managed via diet and supplements, and hydration. So very grateful to my FLOXIE Community for your love and support through these dark, dark months and it is my prayer that each one of you will find some measure of healing daily. Don’t give up, never give up. Love and Hugs, 💕💋

*Supplements- Magnesium Bisglycinate, Calcium-Magnesium 1:2 Ratio, Vitamin A, B12 (Methyl), Folate (5-MTHF), B6, Biotin, C, D (Genestra drops- (20) which is 20,000 IU), E, K2, Selenium, Manganese, Chromium, Zinc Picolinate, Copper (temporarily, 2 weeks max), Tissue Salts, Sea Salt, Charcoal, Alka powder, Omega-3 Fatty Acids, Iodine, Milk Thistle + Dandelion, Lions Mane, NAC, CoQ10, (MSM, and Boswella (Maxi-Boz) which is actually Frankincense for inflammation/pain), Digestive Bitters, Digestive Enzymes, Probiotics + Lacto-Fermented foods like Sauerkraut and Kombucha, and Melatonin (at bed) with my Magnesium.

*Extras-I also used some gels and creams with magnesium, arnica, and DMSO to drag it in.

*DIET-
I made use of Anti-inflammatory herbs like Ginger, Turmeric, Cloves, Cinnamon, Italian herbs like Rosemary.

I drank lots and lots of water (non-fluoridated) 6-8 glasses daily (but not with meals), lemon water every morning. I had very low stomach acids and my body PH was too acidic. The lemon water + digestive bitters helped raise my stomach acids (but you could use HCL/w Pepsin). The digestive bitters also help your body digest fats. Healthy fats help you absorb nutrients. I don’t have a gallbladder or appendix, so I needed some help. I knew it was key to add more fats and proteins + organ meats in my diet.

I used Olive oil, Grape seed, and Coconut, also Avocados, no canola or vegetable oils, no soy. I made good use of hemp seeds (hearts) and nuts. I chose Organic meats, free of antibiotics…Highland beef is excellent because these “Coos,” originally from Scotland, don’t get sick. I ate Wild-caught Salmon, Tuna, Seafood, Free-Range Chickens and Eggs, avoided pork or sausages with fillers. The digestive enzymes helped me to break down carbs, fats and sugars. I avoided all GMO and products with chemicals like glyphosate and carrageenan.

My Sugars- Maple Syrup, Unpasteurized Honey, Raw Honey, Brown Rice Syrup, some Xylitol, avoiding high fructose corn syrups, GMO white sugar, and Aspartame; and

I Cut out cow dairy, added instead, full-fat goat milk and cheeses, almond milk (no carrageenan),

I Cut out most grains except for GF Oats, and GF Rice, avoided potatoes and corn. I stopped eating out at restaurants, especially Fast-food, nothing deep fried, nothing too spicy. Basically organic vegetable, fruit, proteins, fats, nuts, seeds, coconut meat and dark chocolate, goat dairy and/or nut milks = Paleo Diet.

On trails, with roots to maneuver, I have to go easy due to my hip, but my feet were not really affected by the Cipro. My kidney’s were hit hard, my liver too, instant menopause, blurred vision, headaches, migraine in nature, joint pain and inflammation, face swelling, especially eyes, ear pain, balance was off, reoccurring sinus infections, reoccurring kidney infections, some gut pain, bloating, gas and food sensitivities, seasonal allergies increased, shoulder tendonitis, hip sciatica, unable to walk 3 months post flox (lasted 7 months), mainly due to hip and left leg, short term memory was affected, brain fog, dry mouth, no tears, no sweating, no lubrication for sexual intercourse, dry (aged) skin, hair loss, lower back pain, extreme anxiety, panic attacks, forgot how to gag, pelvic bone had to be constantly re-aligned (that didn’t help walking either). Hope I didn’t leave anything out, LOL. *Ciproflaxin, 3 pills, August 2014 for a suspected kidney infection and I had an anaphylaxis response, rushed to ER with swollen tongue, given NSAID’s and basically made to feel like a Psychiatric patient when asked if this pain could have been from my antibiotic.

*Grounding-
http://wellnessmama.com/5600/earthing-sleep/

*Vagus Nerve Stimulation Exercises-
https://selfhacked.com/2015/07/30/28-ways-to-stimulate-your-vagus-nerve-and-all-you-need-to-know-about-it/

 

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

21 thoughts on “Shelley’s Recovery Story

  1. Melanie kemp August 3, 2016 at 8:18 am Reply

    You’re story sounds very similar to mine Shelley.
    So glad you are healing. I am to. It’s certainly a long and painful road but you got there in the end. As I did.
    I have a few issues left but for the most part very functional and back to work. I also dried up everywhere. Skin, nails, hair , nose, mouth etc. Hair fell out. But that’s almost normal now.
    Eyes are still blurry but not as bad so hopefully that’ll continue to improve.
    Glad to read you’re story 😊

  2. Gary August 3, 2016 at 6:38 pm Reply

    Sounds like you have mutations in your cytochrome P-450 pathway, as well as genetic variations in the catechol-o-methyl transferase enzyme, the Nacetyl transferase enzyme, and the glutathione-s-transferase enzyme necessary for glutathione conjugation and phase II detoxification – Which means you probably experienced cipro toxicity by your body not being able to correctly metabolize the drug and remove it correctly.

    • Shelley Sharp September 25, 2016 at 4:59 pm Reply

      Thanks Melanie! So happy you are feeling better

    • Shelley Sharp September 25, 2016 at 5:05 pm Reply

      Gary, that could be, I have never been tested.

  3. Sophie August 4, 2016 at 4:02 am Reply

    Dear Shelley, thank you sooo much for your post. I ve been floxed one year ago and have many many problems as you had. You seemed to have been severely floxed and you have made a great recovery. I have extreme dry eyes and mouth, hip inflammation, ankle arthritis and joint problems , bowel issues and CNS problems as well among other things. Thank you very much for sharing your story. It gives me hope and strength to continue on this dark road to hopefully reach a brighter one one day.
    Take care and enjoy your life!
    Sophie, 31, from france.

    • Madge hirsch August 4, 2016 at 2:14 pm Reply

      Dear Sophie I too live in France. The docs here seem very ignorant about FQ toxicity though ny endo told me she had had a bad reaction to Cipro. I too have a lot of pain in my hips from the tendons I think. I am a year out from one pill of Cipro and 22 months from iv Cipro in hospital. But I am much older than you. This is not my first floxing. I am sure I was floxed at least once and possibly twice when I lived in England and I did recover a lot though with relapes. Then I had no idea that I had been poisoned by an antibiotic. It is perhaps harder when you have no idea why you feel so awful! I don”t know what you are taking to help yourself but I have found probiotics and Curcumin helpful. I also take NAC . Bon courage .

      • Sophie August 5, 2016 at 3:33 am Reply

        Hi Madge! Thanks a lot for your lovely answer. I would need someone to talk to in France. Could we contact? Would you like to give your telephone number or email address to Lisa? I have no endo… even no possible blood tests done for my thyroid… so maybe yours could be helpful if she knows about quinolones toxicity… take care and hopefully talk to you soon on the phone! I m trying many many things to get better but are they the right things….!? Anyway we could share our knowledge! 🙂

        • Madge hirsch August 5, 2016 at 7:13 am

          I don’t think my endo knows much about quinolone toxicity but she did accept that it was probably that which caused an episode of atrial fibrillation rather than my thyroid meds because she had had a reaction.. I think my thyroid was damaged by an earlier floxing in UK and I was taking the meds before I moved here 15 years ago. If you go to your médecin traitant ( GP) and ask for thyroid tests he or she should give you a prescription to take to your local lab. You can also just go and ask for the tests without a prescription but then you have to pay the fee. I do not like talking on the phone that much but am happy to exchange emails. Iam not sure how to go about giving the email address to Lisa – perhaps you know how to do this. I assume you are an expat Brit or American. If you are French and prefer to communicate in French that’s fine though my written French is not grammatically very correct!

    • Aron Lycele August 21, 2016 at 6:21 am Reply

      Hi Sophie. Sorry to hear about your problems. Im young just like you. How do you manage the extreme dry eyes and mouth? I have the same issues, along with a host of other (eye pain, brainfog, severe depression, insomnia, tinnitus, floaters, head aches, fatigue and some joint pain). It appears my CNS was hit hardest. I take all kinds of preservative free eye drops every hour, yet it’s tough to manage. Im 5 weeks out after 3 cipro 500mg and its getting worse by the day. Trying to maintain a positive attitude, the recovery stories and helpful comments on floxiehope is the only light I see. I hope you heal.

      • Sophie October 12, 2016 at 2:51 am Reply

        Hi Aron! Sorry for the delay. I m not well at the moment. For my dry eyes, I use drops and take omega3 and 6 that a naturopath gave me but I don t see any difference… time seems to help for that… if you find anyhthing, please let me know. Good luck and remember every one is different so listen to your body and take care of yourself.

      • Cindy Jones November 3, 2016 at 1:16 pm Reply

        Hi aron
        Sorry for late reply. I would stop all eye drops and stick to tepid water.

  4. Sophie August 4, 2016 at 4:46 am Reply

    Ps : any solution for the gut? Pain,bloating,gas…
    Thanks

    • Anne August 16, 2016 at 1:52 pm Reply

      For me, it helps to avoid wheat.

      • Sophie October 12, 2016 at 3:13 am Reply

        Thanks Ann. I am on a non gluten diet and don t seem to notice any difference after months…

    • Shelley Sharp September 25, 2016 at 5:04 pm Reply

      Sophie, thanks for your comments. I have Celiac and IBS, I also healed at the beginning of this year from SIBO (Small Intestinal Bacterial Overgrowth) using natural antibiotics, correcting a low stomach acid issue, and changing my diet to Paleo. Peppermint oil helps, as does peppermint tea (organic) to relieve pain, bloating and gas. You will need to treat SIBO if that is the problem, followed by digestive enzymes, probiotics and lax-fermented foods such as sauerkraut (made only with sea salt and water, never vinegar or wine).

  5. Sophie August 6, 2016 at 1:07 am Reply

    Dear Madge, I ve sent my email and phone number to Lisa! Let me know when you receive it! Have a nice day!

    • Madge hirsch October 31, 2016 at 10:24 am Reply

      Dear Sophie – I have just seen this! I never received your email from Lisa which is why you have not heard from me. Sorry to hear that you do not seem to be improving. I am very up and down. Some good days but then a crash for a few days. At the moment I have some abdominal pain that I suspect might be my liver or gall bladder. But then I pigged out on foie gras poêlé on a trip to Bergerac at the weekend. I ought to know better.
      Are you taking a probiotic? I think they have helped me especially as I have diverticular disease and need to avoid constipation. I also take aloe vera juice ( it tastes horrible but mixed with fruit juice disguises the taste) and curcumin capsules. My last floxing was about the same time as yours but my main problem of rib pain has not really improved at all.

  6. Shelley Sharp September 25, 2016 at 5:21 pm Reply

    Update- Last week, I got a menstrual period after one year absence. Is this proof of further healing? Not sure…but I will keep you updated. Recently, (one month ago) I had to go to the ER with abdominal pain. I was diagnosed with Diverticulitis and they discovered a Fibroid in my uterus, but didn’t say how big it is. I am seeing a Specialist in November to decide what to do about it. For the Diverticuitis, they prescribed Amoxicillin and gave me a shot of painkiller in the right leg (I am allergic to codiene, morphene) so I don’t know what they gave me. I experienced re-floxing symptoms that lasted weeks. But…I am happy to say, I am back on the healing track and my hip sciatica issue has healed! Perhaps I am not menopausal? Options- I can see if I can leave fibroid to shrink on its own, monitor it with ultrasound every six months? Or…opt for radio frequency ablasion which is supposed to shrink the fibroid within 3 month period. Or…have the fibroid removed. Or…the bigest decision…a Hysterectomy? I do not favor an operation, as all operations involve antibiotics and painkillers.

    • Cindy Jones November 3, 2016 at 1:20 pm Reply

      Shelly You may have been adversely affected by codeine. morphine in the past. Amoxycillin can cause pn.

    • Cindy Jones November 3, 2016 at 1:21 pm Reply

      Shelly You need to check out the return of the menstrual period with your dr.

  7. Sophie October 12, 2016 at 3:04 am Reply

    Dear Shelley,
    I m sorry to hear that you are having new issues to deal with… I hope you are still healing anyway. The arrival of your periods is a good sign! How are you now?
    For my stomach and my digestive problems, they always come when I have general malaises which seemed to be linked to the autonomic nerve system… during which my heart beats really fast and I have pains in my gut…and I sweat a lot… feelings of dying in these moments…. And after those malaises, I don t digest anything,… i know my gut is in a bad place and I don t know how to heal… I m taking probiotics but are they the right ones? How did you know you had SIBO? What digestive enzymes did you take? I m worried because I m skinny and I ve lost so much weight but I don t know what to eat because I don t digest anything raw… has your recovery and healing been constant? I m 14 months out and feeling so crap right now since a few months… please if you have any advice let me know…
    Thanks and take care.
    Sophie

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