Tag Archives: fluoroquinolone

First Do No Harm – By Barbara Arnold

The following was written by Barbara Arnold and published in a magazine aimed toward ex-pats living in Spain. When Barbara sent it to me she said, “If it saves one person from taking this poison, then I will be happy. I am trying to get it translated to Spanish so I can send it to the Spanish papers here.
I urge every floxie that is well enough to try and get articles published in any magazine local paper etc. It’s certainly helped me focus my anger in a positive way, and maybe eventually it will become better known about.”

I also encourage all of my floxie friends to write something like what Barbara wrote below. It is important to focus your anger in a positive way, and it is even healing. Writing, advocating, and helping others through this mess have been vital parts of my healing process. I suspect that those things can be healing for other people as well, and I encourage each of my floxie friends to write, advocate, and help others in whatever way you feel comfortable. 

Thank you, Barbara, for speaking out and passionately advocating for those in medicine to think about the Hippocratic Oath when they prescribe fluoroquinolones!

FIRST DO NO HARMWritten by Barbara Arnold.

Before Doctor can practice they have to take “The Hippocratic oath”, First do no harm. Unfortunately harm is being done to hundreds of thousands, maybe even millions of people across the world by Doctors prescribing antibiotics from a group called FLUOROQUINOLONES.

For me, it all started nearly 2 years ago when I went to the Doctor with bronchitis. I had no idea then that my life was about to change, in the most awful drastic way possible and that for the next two years to date I would still be  suffering from the debilitating side effects from ciprofloxacin an antibiotic from the group called FLUOROQUINOLONES. At the same time I was given cortisone injections the result of which was like a bomb going off in my body. It started with searing pain in my Achilles tendons, at the time I stupidly believed that it was caused by changing my high heeled shoes to low heels and then walking to far. I had no idea that my body was being POISONED by a treatment for a simple thing like Bronchitis. I had great difficulty walking but I believed it would soon get better. HOW WRONG I WAS. 

I had mentioned to the nurse who was administrating the cortisone injection that I was having trouble walking, and did he think it was anything to do with the injections. He told me it couldn’t be as cortisone is an anti-inflammatory. At this point I did not connect the dots. I later found out these drugs are contra indicated to anyone over 60yrs and even worse especially alongside cortisone injections. Fluoroquinolones leach magnesium from the cells and as you get older you have less magnesium to begin with. The pain got worse to the point I ruptured a tendon causing a bruise the size of “England” on the inside of my right leg and I could   barely walk a few yards. At the same time I started to get Chronoc Fatigue to the point where I could hardly keep my eyes open. I had dizziness and balance problems.

For the next three months and many visits to my Doctor, I eventually saw a Rheumatologist who diagnosed my condition as “side effects of ciprofloxacin”.

From that point onwards I started to do my own research on Fluoroquinolones. The results were MIND BLOWING I found out that these antibiotics were being used for simple bladder infections, bronchitis and sinus infections. This was the equivalent of using a sledge hammer to kill a fly. There are many other safer antibiotics that could be used without the devastating side effects that can be caused by Fluoroqinolones. I was told I was a RARE CASE and that my Doctor had never heard of this before. Unfortunately this is totally untrue, as the symptoms of fluoroquine poisoning are vast and in some people the reaction does not occur until months later. Therefore a lot of misdiagnosis is going on. Here are some of the symptoms that can occur but are not limited to, weeks or even months later.

MUSCULOSKELETAL DAMAGE WITH DEGENERATION OF CARTILAGE AND TENDONS. DAMAGE TO THE MITOCHONDRIA (the power cells that give us energy} DETATCHED RETINAS, NEURO PROBLEMS, ANXIETY, PANIC ATTACKS. PERIPHERAL NEUROPATHY IE, BURNING, DAMAGED NERVES,, PAIN, OXIDATIVE DAMAGE IN MAMMALIAN CELLS, CELL DEATH, INSOMNIA, DIFFICULTY BREATHING, PALPITATIONS, SKIN RASH, VOMITING, HIVES LOSS OF MUSCLE STRENGTH, BRAIN FOG. These are just a few of fluoroquinolone poisoning symptoms. There are many many more.

As things got worse I had to result to using  a wheelchair as it was extremely painful to walk. As well as the pain, my legs felt like I was dragging along lead weights. During the months that followed I had various blood tests which showed NOTHING apart from high ferritin levels. I was referred to another Rheumatologist who treated me more or less with contempt as no test she did showed anything wrong. I had  learned that there was a BLACK BOX WARNING in America about this group of antibiotics and when I told her about this, that the Black Box Warning is the highest warning you can get in America, she scoffed at me and declared “This is Spain not America.”  This kind of arrogance and ignorance is allowing others to suffer in the most devastating ways. Subsequently, some 18 months later, the Food and Drug Administration has just issued an advisory to ALL DOCTORS IN THE UNITED STATES, to cease using these dangerous drugs to all patients unless it is a life or death situation.

I have spent thousands of pounds in natural supplements trying to cure myself as Doctors do not have any answers. However there are some Doctors willing to listen now as they or some-one in their family have been effected. by this group of chemotherapy drugs. YES they are chemo drugs because they destroy good cells as well as bad. They do damage down to the very DNA and in some people they leave permanent nerve damage. I am presently seeing an integrative Doctor who is also a Medical Doctor. He is in Marbella and I have to travel 5 hours to see him. I have no choice if I want to recover. The medical health care system here poisoned me and now I have to heal myself with all the costs that, that incurs.

I fully understand that Doctors do the best they can and cannot be expected to know the side effects of every drug they prescribe, but this group of drugs are completely different as they are one of the most dangerous drugs on the market, It was the responsibility of the  health representatives to inform Doctors of this. They were negligent in their duty of care and because of that I, and many other’s have been sentenced to years of suffering. This has been known about since the 1970’s. The attitude of the pharmaceutical companies beggars belief. It is only now with the event of the world-wide web that this is becoming common knowledge   If you think you have been effected by any of these drugs go to http://www.floxiehope.com. There is a mine of information there from fellow sufferers and Doctors who are now beginning to take notice. I urge every-one that reads this to be very very careful that you are not prescribed any antibiotic from this group namely ….CIPROFLOXACIN, LEVAQUIN/LEVOFLOXACIN, AVELOX/MOXIFLOXACIN OR FLOXIN/OFLOXACIN.

To conclude, not everyone that takes these drugs suffers the side effects initially but eventually maybe years later this has been known to happen. There are likely genetic factors that make some people  more susceptible to suffer adverse reactions to fluoroquinolones than others. Human bodies are complex and how a drug reacts in a human body is difficult to predict. I just wish Doctors took their  “Hippocratic Oath” more seriously and FIRST DO NO HARM.

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Hyperparathyroidism

Several floxies have reported that they have been diagnosed with hyperparathyroidism.

Though I think that fluoroquinolones can cause hyperparathyroidism, I am not going to go into that right now – I hope to explore the connections in future posts.

For right now, I want to encourage all floxies to get tested for hyperparathyroidism.

The parathyroid gland controls the amount of calcium in the body. Calcium homeostasis (which helps set the stage for magnesium homeostasis as well) is so important, it has its own entire little endocrine system to control it – the parathyroid glands.

Hyperparathyroidism is caused by a non-cancerous tumor on one (or more) of the four parathyroid glands. This tumor causes the parathyroid glad to release too much parathyroid hormone (PTH), which causes high blood calcium. Though parathyroid tumors are not cancerous, they are dangerous because high blood calcium can cause “osteoporosis, chronic fatigue, kidney stones, stroke, high blood pressure and increased cancer risks (a partial list).” Additionally, hyperparathyroidism is linked to tendon ruptures and many of the other symptoms of fluoroquinolone toxicity.

In a recent article in The Atlantic, “Garry Shandling and the Disease You Didn’t Know About: The comedian suffered from hyperparathyroidism, a rare and under-publicized condition that can sometimes be fatal, James Fallows notes that his doctor stated:

“a parathyroid disorder was about as damaging as smoking a pack of cigarettes per day. It weakened the bones; it raised the risk of heart attacks and some cancers, and kidney stones too; it caused mood disorders; and—I’ll confess the most alarming—it led to memory lapses, attention failures, and dementia. The bone-weakening is because the hyperactive gland continually draws calcium out of the bones and into the blood serum. Most of the other problems are because of disturbances in calcium’s role as a neurotransmitter. My wife later told me that she thought I was getting dumber by the day in the year before the operation.”

The initial tests for hyperparathyroidism involve testing levels of calcium and PTH in the blood. Getting your calcium and PTH levels tested is relatively easy, non-invasive, and inexpensive. Your doctor should be able to test your levels of both calcium and PTH (note that calcium and PTH should be tested simultaneously). High, or even high-normal levels of calcium and PTH are red flags, and test results should be paid very close attention to.

It should be noted that PTH has a very short half-life (about five minutes), and that multiple tests may need to be run in order to get an accurate reading on your calcium/PTH levels. If both calcium and PTH are way out of range, you have your diagnosis of hyperparathyroidism. If both calcium and PTH are high normal – you test again – and maybe a third time – to see if this is consistent, getting worse, or if you just happened to “catch a high” one time.  If you are getting consistently higher results on both – that’s a problem.

Unfortunately, I’ve also heard from some floxie friends whose doctors weren’t concerned about very high calcium levels. Please be aware that excess calcium is a VERY big deal – it’s not bonus good calcium making your bones stronger – it’s calcium being stolen from your bones that is now circulating through your body. If your calcium tests come back high, or even high-normal, I encourage you to chat with your doctor about the possibility of you suffering from hyperparathyroidism. If your doctor isn’t concerned about this possibility, I suggest finding another doctor.

This video is an excellent overview of hyperparathyroidism:

The solution for hyperparathyroidism is surgical removal of the parathyroid gland that has the tumor (the tumor is called an adenoma). Luckily, we don’t need all four of our parathyroid glands to live a healthy and full life – people do just fine with as few as one parathyroid gland. I certainly don’t take surgery lightly, but it is a solid solution to the problem of hyperparathyroidism.

A lot of good information about hyperparathyroidism can be found on http://www.parathyroid.com/.

 

 

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Antibiotic Brain Fog – Some Possible Solutions

I experienced memory loss, disconnectedness, loss of reading comprehension, and slow-thinking while I was going through fluoroquinolone toxicity. Losing my ability to think, and feeling as if I had lost my ability to do my job (I held onto my job and my employer was kind and patient through the whole ordeal), were truly terrifying. I felt stupid. I was scared that I was stupid, or worse–that I had some sort of permanent brain damage.

Thankfully, those symptoms subsided, and my mind has recovered along with the rest of me. I describe the things I did to heal my brain after fluoroquinolone toxicity in the post, “Healing my Brain After Cipro.” The things that helped my brain to heal are:

  1. Time
  2. Meditation
  3. Sudoku Puzzles
  4. Reading
  5. Writing
  6. Researching

All of those things truly did help me. Each one is a process, not a quick-fix. Being patient and letting the healing hands of time do their magic helped my brain to heal. Meditating every day for a minimum of 20 minutes helped to calm my mind, increase my confidence, give me patience, increase my concentration, and enable me to feel more connected to the world and the people in it. Sudoku puzzles, reading, writing, and researching all helped in that using my brain seemed to make it stronger and more capable.

I wholeheartedly recommend each of those things to everyone who is struggling with brain-fog. They’re helpful, empowering, and they can’t hurt.

I want people to realize that their brains can heal without doing anything drastic, and that with time and use, your floxed mind can heal along with the rest of you.

However, many people look at that list and say, “Those things aren’t going to work for my SEVERE brain fog. I need something more drastic than sudoku puzzles.” Fair enough.

I am risk-averse and, frankly, I’m not a very good biohacker because I’m risk-averse. Therefore, I tend toward gentle, non-invasive, healing methods.

Many of you are willing to take more risks than I am though, and for you, I think that the advice of Dave Asprey (“the world’s most famous biohacker” according to Men’s Fitness Magazine) in his post, “13 Nootropics to Unlock Your True Brain” may be helpful. I highly recommend that each of you read the article because Dave has a lot of excellent insight in it. I’m going to go over some of his recommendations and how they relate to “floxies” in this post.

Dave’s nootropic recommendations:

  1. Modafinil (Provigil), armodafinil (Nuvigil), and adrafinil. I have heard of anyone suffering from antibiotic brain-fog trying these nootropics. If you have something to report about them, please let me know and I’ll add it to this post.
  2. Racetams. Look at the comments on the bottom of the post, “The Mitochondrial Link – Fearless Parent Podcast #81.” The person commenting as “Your Future” gives a lot of interesting information about racetams and mitochondria.
  3. Nicotine. Yes, seriously, nicotine. More information about nicotine can be found HERE. For floxies, it should be noted that fluoroquinolones inhibit CYP1A2 enzymes. Nicotine induces CYP1A2 enzymes. There are significantly safer ways to try nicotine than through smoking or chewing tobacco products and some of those options can be found in “Is Nicotine the Next Big Smart Drug?” It should also be noted that broccoli also induces CYP1A2 enzymes, and it has none of the drawbacks that nicotine has. However, this post is about things that can perk-up your brain, and nicotine can do that while broccoli, unfortunately, can’t.
  4. Amphetamine (Adderall). A floxie friend told me that Adderall helped him immensely. Be careful. Adderall, of course, is not without consequences. Here is the warning label for Adderall – http://www.accessdata.fda.gov/drugsatfda_docs/label/2007/021303s015lbl.pdf. Here are patient reviews of Adderall – http://www.askapatient.com/viewrating.asp?drug=11522&name=ADDERALL+10. I wouldn’t take it, but that’s just my extremely biased opinion.
  5. L-theanine. From Ruth’s recovery story on Floxie Hope, “L-Theanine helps my brain to be a less noisy place—it ‘cuts the chatter’ as Dr. Whitcomb says.” More information about Ruth’s experience with L-theanine can be found in the comments on her story.
  6. Bacopa monnieri. Here are some Floxie Hope comments that note how people dealing with FQ toxicity responded to bacopa monnieri. https://floxiehope.com/comment-page-30/#comment-27587https://floxiehope.com/comment-page-46/#comment-37325https://floxiehope.com/ruths-story-cipro-toxicity/comment-page-6/#comment-35332.
  7. LSD. I haven’t heard from anyone who has tried LSD post-flox. If anyone has anything that they’d like to share with me and/or the Floxie Hope audience, please contact me. I find the stories of healings that occur post hallucinogenic drug use to be interesting. As I said though, I’m risk-averse and not eager to try things like LSD.
  8. Unfair Advantage. Unfair Advantage is a Bulletproof product that contains Bio-identical ActivePQQ™ and CoQ10. It enhances mitochondrial function. There is evidence that fluoroquinolones damage mitochondria, and mitochondrial support supplements such as Unfair Advantage may help floxies in multiple ways. I tried Unfair Advantage just before I was on Bulletproof Radio discussing fluoroquinolone toxicity. I was fully healed at the time that I tried it, so my experience may not be as dramatic as the experience of someone who is recently floxed, but I did find that it improved my energy level and concentration.
  9. Bulletproof Upgraded Aging Formula. I don’t know of any floxies who have tried the Bulletproof Upgraded Aging Formula. If you have an experience with it, please contact me.
  10. Forskolin & artichoke extract. I haven’t heard from anyone who has tried Forskolin & artichoke extract. Please contact me if you have an experience with it. As with all of the things mentioned in this section of this post, more information about them can be found on 13 Nootropics to Unlock Your True Brain. “Forskolin” is a very fun word though. Say it ’til you giggle, ’cause laughter really is good medicine. :p

Please do plenty of independent research before you try any of these. They all have their pros and cons and informed consent really is important.

Things like a healthy diet, getting enough sleep, minimizing anxiety, and healing the gut can also be helpful for getting through fluoroquinolone-induced brain-fog. Those things have no negative side-effects, so concentrating on them is highly recommended.

I hope that the things mentioned in this post help you to get your mental capacity back! Please be patient and kind to yourself as you go through the healing process. Healing takes time, and it may take trying a variety of different things before you find things that heal your mind and body. Patience and kindness toward yourself as you go through the healing process certainly can’t hurt, and they will probably even help.

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Organofluorine Accumulation

I highly recommend that everyone read these two articles:

  1. The New York Times Magazine, “The Lawyer Who Became DuPont’s Worst Nightmare
  2. The Huffington Post, “Welcome to Beautiful Parkersburg, West Virginia: Home to one of the most brazen, deadly corporate gambits in U.S. history

They’re both brilliant exposés about DuPont’s dumping of perfluorooctanoic acid (PFOA) into the groundwater and land of Parkersburg, West Virginia. They reveal corporate malfeasance, regulator ineptitude, health risks, and environmental degradation that everyone should be aware of.

I also wrote an article that was published in Collective Evolution on the topic of organofluorine compounds like PFOA and how they affect our health – “Fluorine-Based Toxins Accumulate In The Body & Cause Multiple Health Problems.” You should read (and share) it too. 🙂

The articles listed above aren’t directly about fluoroquinolones. However, I suspect that they are connected to fluoroquinolones, and fluoroquinolone toxicity.

Both the chemical noted in the articles, perfluorooctanoic acid (PFOA, aka C8), and fluoroquinolones, are organofluorine compounds–meaning that they are composed of a carbon-fluorine bond. That fact alone does not mean that fluoroquinolones have the same consequences as perfluorooctanoic acid, but it does mean that similarities should be examined.

Organofluorine Bioaccumulation

The most worrisome aspect of perfluorinated compounds (PFCs) – man-made types of organofluorine compounds, like PFOA, that are used in many non-stick consumer products including cookwear and carpeting – is that they, essentially, never biodegrade. They stay in our bodies, and the environment, indefinitely, because there are no mechanisms in our bodies (or in the environment) to break them down.

Per the article, “Human detoxification of perfluorinated compounds:”

“it appears that most PFCs may be re-absorbed and returned to the liver through the enterohepatic circulation where the cycle of biliary excretion and re-absorption recommences repeatedly. In addition, there is increasing evidence in the literature that persistence in the body may also result from impaired renal excretion of some PFCs due to renal tubular re-absorption mediated through organic anion transporters.”

Additionally, PFCs accumulate in the environment and work their way up the food chain. They get absorbed into plants, then absorbed by the animals that eat the plants, then absorbed by the animals that eat those animals, until they are highly concentrated in the animals at the top of the food chain (us).

Do fluoroquinolones, or fluoroquinolone metabolites (specifically organofluorine metabolites), also stay in the body indefinitely–getting recycled and re-absorbed through enterohepatic circulation? Do they bioaccumulate indefinitely like PFCs?

Tolerance Thresholds for Fluoroquinolones

If fluoroquinolones (or their metabolites) bioaccumulate, it would make sense of some aspects of fluoroquinolone toxicity.

First, there appears to be a tolerance threshold for fluoroquinolones. People can tolerate fluoroquinolones well until they reach their personal tolerance threshold, at which time they get “floxed.” Some people are devastated by a single prescription of fluoroquinolones, while other people can tolerate several prescriptions before they get obliterated by fluoroquinolone toxicity. Personally, I was fine after my first exposure to ciprofloxacin in 2010–it was only after my second exposure in 2011 that I had an adverse reaction. (Of course, it should be noted that some people never reach their tolerance threshold and never experience getting “floxed.”)

Likewise, there appears to be a tolerance threshold for PFC exposure. People don’t get cancer, or colitis, or have children with birth-defects, after a single time cooking with a Teflon pan. Exposure to PFCs at high doses is necessary for their ill effects to become apparent. However, because of bioaccumulation, repeated small exposures (say, a decade of cooking in non-stick pans while living in a house with PFC-coated carpets) can lead to levels of PFCs in one’s body that are high, and can lead to negative health outcomes. That’s what makes the bioaccumulation situation so frightening–we all have PFCs in our blood* and every time we’re exposed to more, the toxic burden on our body increases.

Could our tolerance threshold for fluoroquinolones not only be a tolerance threshold for FQs, but also our tolerance threshold for all sources of organofluorine compounds (fluorinated pharmaceuticals, non-stick consumer goods, pesticides, etc.)?

Could the people who get “floxed” be the people with already high levels of PFCs who get pushed over the toxic edge by fluoroquinolones? Or, are the people who have adverse reactions to fluoroquinolones those who are particularly bad at metabolizing and eliminating organofluorine compounds / really good at holding onto and recirculating those toxins? Certainly, there must be some factors that differentiate those who suffer from adverse reactions to fluoroquinolones from those who don’t. There are any number of potential environmental and genetic factors, and maybe bioaccumulation of organofluorine compounds is a factor that should be considered (levels of PFCs and bioaccumulation may be due to a combination of both environmental and genetic factors).

The notion of a tolerance threshold for fluoroquinolones is reinforced by the cross-reactivity between fluoroquinolones. Once a person has an adverse reaction to a fluoroquinolone, all fluoroquinolones (not only the one they reacted badly to) are contraindicated for that person. This cross-reactivity may, or may not, have to do with an accumulation of organofluorine compounds or their metabolites (please keep in mind that there are other mechanisms for the cross-reactivity phenomenon).

Though bioaccumulation of toxins (including, but not limited to organofluorine compounds like fluoroquinolones and PFCs) is a problem that needs examination, I don’t think that the situation is hopeless for those who carry a high burden of toxins. Lifestyle changes may be necessary to avoid toxins and pollutants, and our natural cleansing organs may need to be supported a bit (through diet, supplements, etc.), but there is plenty of evidence that healing from fluoroquinolone toxicity is possible, and despite all the pollution in Parkersburg, WV, there are still some healthy people there. Bioaccumulation of toxins is frightening, for sure, but though our bodies are not well equipped to deal with organofluorine compounds, we do have detoxification and healing mechanisms that are helpful.

Years of Poisoning and Pollution

DuPont first started using PFOA in 1951. Internal documents reveal that they knew that PFOA was toxic at that time, yet they still used it in consumer products and disposed of it improperly. It wasn’t until 2011 that independent scientists, “began to release their findings: there was a ‘probable link’ between PFOA and kidney cancer, testicular cancer, thyroid disease, high cholesterol, pre-eclampsia and ulcerative colitis.” It wasn’t until 2016 that major news organizations like The New York Times and The Huffington Post began to publish articles about PFOA. Additionally, if you read “The Lawyer Who Became DuPont’s Worst Nightmare” you will note just how many things fell into place for the news of the toxicity of PFOA to reach the public.

How long will it take for fluoroquinolone-injury lawsuits to prevail, for studies examining whether or not fluoroquinolone-use is connected to the many diseases of modernity, and for major investigative journalism pieces to be completed? How long will it take for fluoroquinolone toxicity to reach public consciousness and for systems to change? As far as I know, no one is even looking at whether or not toxic fluorine metabolites are formed by fluoroquinolones, or whether or not they bioaccumulate like PFCs. Though there are hundreds of articles about the harm that fluoroquinolones do to cells (especially to mitochondria – BTW organofluorine metabolites like fluoroacetate and fluorocitrate wreak havoc on mitochondria. Unfluorinated quinolones may too though, so keep that in mind.), the only researcher who I know of who is even making steps toward connecting fluoroquinolone-use to the chronic, multi-symptom diseases of modernity is Dr. Golomb with The Fluoroquinolone Effects Study. I hope that more researchers study the many aspects of fluoroquinolone toxicity (mitochondria damage, mineral depletion, neurotransmitter dis-regulation, microbiome damage, thyroid damage, endocrine disruption, organofluorine metabolite accumulation, etc.) and that the questions raised in this post, and throughout this site, are answered.

Maybe we truly are canaries in the coalmine–warning everyone about the dangers, not only of fluoroquinolones, but of all fluorinated drugs, and also for the accumulated organofluorine compounds in our environment. It’s certainly a hypothesis that should be looked at. I would hate for 65 years of organofluorine compound metabolite accumulation to occur because of fluorinated drug use before an examination even takes place. After all, the toxicity of other organofluorine compounds is well-documented, so I’m not sure why fluorinated drugs are assumed to be safe. Fluoroquinolones certainly aren’t safe, and they need to be researched much more thoroughly.

Conclusions

I have neither the resources nor the expertise to know whether or not adverse reactions to fluorinated drugs, like fluoroquinolones, are related to the buildup of PFCs in our bodies and our environment. There are some aspects of fluoroquinolone toxicity that make more sense when it is noted that bioaccumulation is possible. Given that fluoroquinolones have a fluorine-carbon bond, and that other organofluorine compounds have been shown to bioaccumulate and wreak havoc on health, I think it’s something that should be explored.

Regardless of whether or not fluoroquinolones contribute to organofluorine load, we should all be concerned about PFCs in our bodies and our environment. Bioaccumulation of PFCs is going to make the problem worse and worse as time goes on. As chemical producing corporations like DuPont blatantly lie as they shift from one organofluorine pollutant to another, claiming that the current one is safer than the proven-toxic past ones–even though it’s not, more and more PFCs will accumulate. The potential detrimental effects of accumulated PFCs to our personal and collective health are yet to be determined. I suspect that health outcomes for humans, and all the other animals on the planet that are exposed to these compounds, will get worse and worse as time goes on and as they bioaccumulate. Perhaps I’m a pessimist though, and the consequences of organofluorine compounds in our environment won’t be as dire as I fear. We, or our children or grandchildren, shall see. Surely, future people will look back at this time and think that we are all fools for letting unregulated, greedy, corporate giants like DuPont release permanent, harmful pollutants into the world simply so they could make millions on non-stick pans and stain-resistant carpets. What a sad, sad, state of the world.

 

* “C8 was being detected everywhere—produce and beef in American grocery stores, polar bears in the Arctic, children in the remote Faeroe Islands. One analysis of blood banks from around the world showed that nearly all of the blood contained C8. The lone exception was a set of archived samples that had been collected from Korean War veterans before 1952.” (Source)

 

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Dear Epidemiologists – Please Take a Look at Fluoroquinolones

FQWallofPain

This paragraph, in a 2013 New Yorker article entitled The Big Sleep, caught my attention:

“In a recent paper in the online edition of the British Medical Journal, Daniel Kripke, a professor emeritus at the University of California San Diego School of Medicine, examined five years of electronic medical records collected by a health system in Pennsylvania. He compared more than ten thousand patients who had been prescribed a sleep medicine—most commonly Ambien—and more than twenty thousand patients who had not. After adjusting for age, gender, smoking habits, obesity, ethnicity, alcohol use, and a history of cancer, and after controlling, as much as possible, for other diseases and disorders, Kripke found that people who had taken sleeping pills were more than three times as likely to have died during the study period as those who had not. Those on higher doses of the drugs were more than five times as likely to have died.”

The drug featured in the article was a new sleeping pill called Suvorexant, and the quote is about Ambien, but it made me wonder–Can someone PLEASE do a similar epidemiological study for fluoroquinolones? I want to know how health outcomes are for those who take fluoroquinolones versus those who take other antibiotics.

The symptoms of fluoroquinolone toxicity are similar to the symptoms of autoimmune diseases like R.A., M.S., Lupus, scleroderma, and other autoimmune conditions–and several people have been diagnosed with those diseases after experiencing fluoroquinolone toxicity. Fluoroquinolone toxicity symptoms are also similar to those of fibromyalgia, M.E./C.F.S., P.O.T.S., and other “mysterious” diseases of modernity. Fluoroquinolone toxicity, like those diseases, features peripheral neuropathy and central nervous system disturbances (like brain-fog, intractable insomnia, etc.). Psychiatric disturbances have been commonly reported among those suffering from fluoroquinolone toxicity. Severe musculoskeletal problems among those taking fluoroquinolones have been reported (and actually studied). Frighteningly, some who have experienced fluoroquinolone toxicity have experienced symptoms of neurodegenerative diseases like A.L.S. and Parkinson’s.

The warning labels for fluoroquinolones are 43 pages long, and list many of the symptoms of fluoroquinolone toxicity. In the November 5, 2015 FDA meeting regarding fluoroquinolones, it was acknowledged that symptoms of fluoroquinolone toxicity are severe and that they resemble the symptoms of many diseases. Fluoroquinolones have also been noted as a source of permanent disability, and delayed adverse effects have been experience and documented. The FDA panel at the November 5th meeting noted that further studies of fluoroquinolones are needed.

YES, further studies are needed.

We need long-term studies that determine whether or not people who are given fluoroquinolones are more likely to be diagnosed with an autoimmune, neurodegenerative, psychiatric, or “mysterious” disease than those who don’t take fluoroquinolones.

I hope that someone takes a closer look at fluoroquinolones to see what the long-term health consequences of them are. Patients and physicians alike should know whether or not there are long-term consequences to taking a prescription drug–so they can adjust their actions accordingly.

Additional musings on this topic can be found in the December 14, 2015 post on Hormones Matter, “Dear Epidemiologists, Consider Fluoroquinolones.”

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FDA Hearing – Victory for Victims of Fluoroquinolones

FDA Hearing Fluoroquinolones

On November 5, 2015, a meeting was held at the FDA’s White Oak campus in Silver Spring, Maryland, for the Antimicrobial Drugs Advisory Committee to discuss, “the risks and benefits of the systemic fluoroquinolone antibacterial drugs for the treatment of acute bacterial sinusitis, acute bacterial exacerbation of chronic bronchitis in patients who have chronic obstructive pulmonary disease, and uncomplicated urinary tract infections in the context of available safety information and the treatment effect of antibacterial drugs in these clinical conditions.”

Hundreds of victims of fluoroquinolones from all over the U.S. and Canada came to the meeting to tell their stories of fluoroquinolone toxicity, and the pain and disability that fluoroquinolones brought to their lives. 35 victims and advocates had the opportunity to speak directly to the committee.

The stories of pain, disability, and death caused by Cipro/ciprofloxacin, Levaquin/levofloxacin, Avelox/moxifloxacin and Floxin/ofloxacin were heart-felt and poignant. The pain that these drugs have caused was noted by all those in attendance–including fellow victims, supporters of victims, the media, and the committee.

After deliberation and discussion, the FDA committee decided that the risk and benefits of systemic fluoroquinolone use for treatment of sinus infections, bronchitis in those with COPD, and uncomplicated urinary tract infections, are NOT sufficiently described in the warning labels for fluoroquinolones. The committee voted almost unanimously in favor of changing the warning labels. WE WERE HEARD! This is a HUGE step in the right direction!

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The committee is now going to recommend that the FDA update the warning labels to better address the risks and benefits associated with fluoroquinolones. You can read in past posts about how the briefing for this meeting acknowledged that fluoroquinolones are no better at treating the conditions in question than placebos (https://floxiehope.com/2015/10/20/the-fda-notes-that-fluoroquinolones-are-no-better-than-placebos/) and how fluoroquinolones cause a constellation of disabling symptoms (https://floxiehope.com/2015/10/25/an-official-name-fluoroquinolone-associated-disability-fqad/). The entire brief can be read HERE.

An almost unanimous vote by the committee is a HUGE step in the right direction and it is a huge VICTORY that should be celebrated!

THANK YOU to all who came to the meeting testify or to support! You are all appreciated!

In a few days (maybe weeks) the entire meeting will be available to be viewed online. I suggest checking in at the FDA’s web site in a couple of weeks – http://www.fda.gov/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/Anti-InfectiveDrugsAdvisoryCommittee/ucm424449.htm. (I’m not sure that that’s the correct link. If it’s not, I apologize.)

Here are a couple of videos of the testimony provided:

Nicole Delaine:

Michael Kaferly:

More information about Michael’s journey to tell his story can be found at – http://thencamemichael.com/2015/11/08/david-vs-golliath-michaels-fda-testimony/

Here is what I (Lisa Bloomquist) said:

My name is Lisa Bloomquist. I flew in from Denver in order to testify about the damage that ciprofloxacin did to me, and to encourage you to cut the approved uses for fluoroquinolones so that they are only used in life-or-death situations.

In 2011 I took ciprofloxacin to treat an uncomplicated urinary tract infection. I experienced the following symptoms after taking it:

1. Hives all over my body
2. Weakness in my legs to the point that I could barely walk
3. Tightness and pain in my tendons
4. Brain fog
5. Memory loss
6. Autonomic nervous system dysfunction
7. Fatigue
8. Anxiety, fear and other central nervous system symptoms

I was sick for 18 months of my life in my early 30s because of a drug I took to treat a simple urinary tract infection. I have gotten rid of subsequent uncomplicated UTIs with d-mannose and my immune system. It is NOT APPROPRIATE for drugs that are as dangerous and consequential as ciprofloxacin and the other fluoroquinolones to be prescribed to treat simple infections that can be cured with more benign methods.

You will hear the testimony of people who have had much worse reactions than I did. You will hear from people whose lives have been destroyed by fluoroquinolones. The adverse effects of these drugs are severe.

Janssen and Bayer lawyers claim that there is no mechanism for the constellation of symptoms described today. They are wrong.

Fluoroquinolones cause:

  1. Mitochondrial damage which starts a vicious cycle of oxidative stress and further mitochondrial damage. 
  2. Acute fluoride toxicity.
  3. Fluoroquinolones chelate vital minerals from cells, including magnesium and iron. These minerals are necessary for hundreds of enzymatic reactions. 
  4. Fluoroquinolones cause a downgrading of GABA receptors and essentially throw people into protracted benzodiazepine withdrawal.
  5. Fluoroquinolones cause a massive histamine release and mast cell activation. 
  6. They cause collagen synthesis disorders.
  7. They cause microbiome destruction.
  8. All topoisomerase interrupting drugs cause epigenetic damage. They are chemo drugs. Fluoroquinolones should be treated as chemo drugs. They should only be used in life-or-death situations. 

I know these effects, and I can refer you to the studies documenting them. Why don’t you?

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Sherry Reiver:

Good afternoon chair and committee people,

I am so angry after hearing the drug companies but I have my speech written already!

My name is Sherry Reiver and I am 64 years old. I have been sick from FQs in all forms since I was 43. I moved from NY to Charlotte 10 years ago and for 21 years it is difficult to find a dr that will validate that FQs has destroyed my health and life. Each year that goes by, it’s harder for Drs to believe that these affects last so long. Over two years ago during a surgery at Duke against my consent, Floxin soaked GELFOAM PLEDGETS and steroids were placed in my head and I am 200x worse. Lets not kid ourselves, TOPICALS are just as dangerous as any FQs and the Topicals need to be INCLUDED not EXCLUDED from that PN warning the FDA came out with in August of 13.


The perils of the topicals used on children for ear and eye infections should cause great concern and should be researched as well. What are these drugs doing to their little brains and bodies?


This is a bittersweet day for me. Four years ago today, my 93 year old dad died. He FELL at home and was taken to the hospital by a neighbor. By the time my husband and I arrived in Florida, my dad had no idea who we were. They THOUGHT he had pneumonia so they IV’d him with Levaquin. It turned out that he did NOT have pneumonia but he continued to hallucinate for 6 weeks and then died. He was sharp as a tack before Levaquin dripped into his body. He did have an aortic aneurysm for many years which was being watched but it ruptured on November 4th. I would have never connected the AA with FQs until I read this research paper dated October 5th 2015. So here is another RARE side effect that can occur, which it did in my dad’s case. How many others have died from AAs and had taken a FQ drug? It took 10 years for this report to come to light. Was the FDA aware of this research from Tawain?

Do you know that after each cystoscope, Urologists hand out the gift of one Cipro, thank you Bayer, for the “just in case ” scenario? I know this for a fact. Cipro is also given out FREE at pharmacy so therefore it is prescribed more.


Three minutes does not allow me time to talk about my own health issues but understand there are many but Dr. Boxwell’s slides just showed them. We have flares which come and go at the whim of these drugs. It’s the drug that keeps on giving even years later. It has no time constraints, it holds no barriers. Doctors are clueless. We get no warnings, doctors DO NOT report our concerns and they dint read the labels themselves!

NOW EVERYONE, THIS IS THE PART I WAS UNABLE TO READ AS I READ TOO SLOWLY AND MY 3 minutes were up!!!


We are all disabled in different degrees. Don’t judge a book by its cover. I miss my life, i miss reading , I miss being productive and I miss my salary. What I have is not the “aging process” as some Drs have told me, but FQ Toxicity.


Unfortunately there are millions of people who have not connected the dots because they don’t expect an antibiotic to do such harm. Some of these people have died and their families will never know that the FQs were the reason.


Drug reps are NOT the ones who should be educating the Drs on the uses of ANY drugs. The drug companies need to come forward with information they are hiding. Their studies are flawed. PLEASE STOP THE MADNESS of these drugs being handed out so indiscriminately.

Although I am not asking you to ban these drugs, I personally, if on my deathbed would rather die than experience any worsening of my life as it is now.
Thank you for your time. I waited 21 years to be heard!

Rachel Brummert (President of the Quinolone Vigilance Foundation):

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Note: Rachel’s slide presentation referenced is available HERE.

Good afternoon. My name is Rachel Brummert and I am the Executive Director of the Quinolone Vigilance Foundation. Neither the foundation, nor I, have any financial ties to this hearing.

[SLIDE ONE: Fire pictures/pictures of pills]

Fluoroquinolone antibiotics are incredibly powerful with the capability to save lives when used as a treatment of last resort for life-threatening bacterial infections like anthrax. These antibiotics have equal power to destroy lives when they are prescribed for routine infections like sinus infections and UTIs that don’t need their strength. Just as it is irresponsible to squelch a kitchen fire with the defenses we would mount against a wildfire, likewise, it is reckless to use a fluoroquinolone antibiotic to squelch a routine infection. There are safer, effective antibiotics for the treatment of routine infections in the event that an antibiotic is even necessary.

[SLIDE TWO- Pictures of my ruptures/scars]

I am living proof that the risks in using a fluoroquinolone to treat a routine infection far outweighs the benefits. In 2006, I was prescribed Levaquin for a sinus infection. Within weeks, my achilles tendon ruptured in a parking lot, the first of ten tendon ruptures I’ve suffered over nine years.

[SLIDE THREE- List of my adverse reactions with ICD9 codes]

A first-line of defense antibiotic like Amoxicillin, would have resolved my sinus infection, and I would not have been exposed to the relatively disproportionate risks of known fluoroquinolone-associated injury, which includes a progressive neurodegenerative disorder, from which I will never recover.

With just one prescription, a once-healthy wage-earner, parent, or grandparent – just like you, just like me – can no longer enjoy a reasonable quality of life and now lives with lifelong risks for the development of an illness that is life-threatening.

[SLIDE FOUR- HOW CAN THE FDA HELP?]

What can the FDA do to protect patients from profound, preventable harm? A preventable problem is a fixable problem. The FDA is responsible for protecting and promoting public health through the regulation and supervision of a wide variety of consumer products including prescription medications. Fluoroquinolone antibiotics are causing widespread disability and their overuse is also a contributing factor in the antibiotic resistance epidemic. Antibiotic resistance is such an important issue that there is a White House objective to do something about it. If fluoroquinolones are being prescribed for routine infections which don’t need their strength and they are disabling otherwise healthy patients, and their overuse is leading to an international epidemic, the answer is clear: The FDA must apply its highest level of scrutiny, regulation and surveillance of fluoroquinolones to achieve this shared goal.

Thank you for your time and consideration and for holding this very important meeting.

Linda Livingston:

I have 3 minutes to tell you about my side effects from Cipro, given to me for a simple UTI. I could take an hour trying to describe the two nightmarish months where my breathing was so suffocating I gasped for every single breath. Each night I had to take a pill to sleep and only got an hour if I was lucky. And each night before I took the pill I prayed I wouldn’t wake up. Words cannot describe the rage I feel for the torture I have endured.

I could tell you about the damage to the nerves around my neck that make it feel numb at times and like I am being choked at other times. I could tell you about the horrific olfactory nerve damage that made everything thing in the world asphyxiate me, making me a virtual shut in. I could tell you about my pericardial effusion, blurred vision, terrifying light show, excruciating back pain worse than when I had cracked ribs, or being bedridden for a month and having to have food and non-fluoridated water dropped off, and laundry picked up. I could tell you about my numb fingers and toes, constant bladder pressure, ravaged GI system and 32 pound weight loss in two months, with muscle waste and extreme weakness. There is the swelling over the ulnar nerve, the spasming uncontrollable fingers, the light sensitivity, sound sensitivity, newly acquired food sensitivities, electrical zaps in my knee and arm, popping in my spine and hip, extreme anxiety, depression, crying everyday for 8 months, and suicidal thoughts.

I could tell you about my fears —that my breathing will never again be normal; that my eyes will not improve or even get worse; that my DNA is permanently damaged or my fears surrounding the links to several eye diseases, ALS, Parkinsons and Altzheimers. No one deserves to have their life devastated for a simple UTI!

My life is so different from 9 months ago. I cannot work and worry about how I will pay rent, let along treatments which are not covered by insurance. I can’t meet friends for dinner or happy hour. I have not enjoyed a cup of coffee or glass of wine since January. I can’t exercise like I used to. (I was in incredible shape before this.) My diet is so restricted that there are few places I can go. I am tired all the time, and my anxiety prevents me from doing many things I used to do. My passion is theatre and I may never be able to perform again. There is little joy.

First we are poisoned, then we are left to fend for ourselves because doctors are mostly oblivious to any of the side effects. They are not reading labels or warnings. We are treated with ridicule and derision by the medical community, and then we are financially devastated as well.

If another country did this to us, they would be called war crimes. The pharmaceutical companies have known for decades about the hideous side effects. The FDA has allowed them to inappropriately market these drugs for simple infections. There was recently a GM car recall because of 78 deaths. These drugs may be responsible for up to 300,000 deaths (not to mention all the life altering side effects.) We are not just figures on a share-holders statement. We are people who have been tortured and have our lives decimated. So, why are you even still discussing it at this point?

Linda Landmon:

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My name is Linda Landmon. I’m here today with my husband David, we’re from Dallas Texas and I’m 58 years old.

In 2009 we bought our dream home that we planned to retire in. I had been self employed for 9 years working from home. I was an avid bicycle rider, I enjoyed swimming, entertaining , traveling, spoiling our 2 grandkids and I even had a personal trainer coming to my house twice a week.

Life was good !

But then things changed –

December of 2011 I was diagnosed with a kidney stone.

My Urologist gave me Levaquin “samples ” with no information on the medication or the side effects it may cause. My urine culture was negative for infection.

April of 2012 my Urologist gave me Cipro after a Lithotripsy , again I had no infection.

December of 2012 my Urologist surgically removed my kidney stone and again gave me Cipro. I had no infection this time either.

One week later, January 2013 I went to the ER with Kidney stone pain and I was given one IV of Levaquin and pain medication. My urine culture was negative for infection.

10 days later I went back to the ER with kidney stone pain and I was given 4 bags of Levaquin AND a prescription for Levaquin to take for 10 more days. My urine culture was negative for infection.

Since these medications I’ve been diagnosed with Peripheral Neuropathy, ringing in the ears, high anxiety , a torn rotator cuff, a torn meniscus , which has resulted in needing a total knee replacement , spinal stenosis and tendon damage in my foot. This has all led to depression and I’ve basically become a recluse. For me to speak here today is HUGE !

I’ve had numerous MRI’s , X-rays, steroid shots, I’ve been prescribed, Celebrex , Neurontin, Lyrica, Tramadol and Xanax.

I have a walker, crutches, a leg brace various boots and supports for my foot.

These drugs are prescribed way too often without any proof of infection. I know because it happen to me , FIVE TIMES.

Fluoroquinolones are the only antibiotics I’ve found that carry a Black Box warning and it hasn’t stopped doctors from passing them out like candy.

I didn’t have Anthrax, the Plague OR an infection. I had a kidney stone.

Christabelle Cruz Chajon:

Good afternoon Chair and Committee Members, my name is Christabelle
Chajon. I am 35 years old and live in Washington DC with my husband and
5 year old daughter.

Prior to February 2014, I was loving life. I was healthy and active, and on
no medications. I was a full-time mom with the ability to also work part-time
from home, and enjoyed exercising, hiking, reading, and playing music.

In February 2014, I went to the doctor for a lingering cough. I was
diagnosed with bronchitis and given a 5 day course of Levofloxacin. I
asked at the pharmacy if there were side effects, and was told they were
rare and that tendon damage was only a concern for elderly patients. After
the last pill, I woke in the middle of the night shaking, unable to speak, and
numb from head to toe with my heart racing, and my husband rushed me to
the ER. This happened 3 more times within 6 months after taking
Levofloxacin, and each time I was discharged with nothing more than heart
palpitations.

I also developed many other symptoms including insomnia, intense muscle
and joint pain and weakness, digestive issues, vertigo, fatigue, painful
neuropathy, cognitive impairment, and extreme chemical sensitivities. This
translated into changing my life completely – having to cancel planned
family trips, being unable to carry my daughter when she needed me,
falling asleep unexpectedly while caring for my daughter, being unable to
exercise and enjoy hobbies let alone walk and get out of bed some days.
Food that I ate with no problems before made me sick, and I also lost over
10% of my weight, which is attributed to my body no longer digesting fats
and proteins. Many of these symptoms I still struggle with today, and my
quality of life has declined tremendously. I do not work, and the proper
care and treatments I need are a financial burden on my family. It has
been a frightening struggle to say the least.

But what is most frightening is that most doctors fail to realize that
fluoroquinolones can cause this type of systemic damage. In my search for
help, I even encountered one doctor who was insulted that I considered
that my symptoms were caused by levofloxacin. How can that be when the
connection was obvious as I went from perfectly healthy to unable to get
out of bed and function normally most days?

I joined the Fluoroquinolone Toxicity Group online in the spring of 2014,
which at the time had around 2000 members, all who have suffered from a
constellation of symptoms. That number has more than doubled since
then. It is evident that Fluoroquinolone Associated Disability is not rare.

And per today’s meeting’s briefs, it’s been concluded that antibiotics don’t
make much of a difference on uncomplicated conditions such as sinusitis,
bronchitis, and UTIs; yet, potent fluoroquinolones are being prescribed for
them. The doctors who are inappropriately prescribing these drugs for
simple infections are either unaware of these warnings, or are not taking
them seriously. Limiting the indications to only include serious and lifethreatening
infections, full disclosure to patients about these drugs, and
adding FQAD to the warning labels of fluoroquinolones are absolutely
necessary to stop the countless number of lives damaged and even lost to
these drugs.

If you would like to share your testimony on this site (to archive it, for search engines to find it, or just because you want to) please send it to me through the Contact link above. I am happy to post any and all testimony in any form.

Thank you again to everyone who came to the meeting yesterday! It truly was a huge victory! Great job, everyone!!!

 

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Is Fluoroquinolone Toxicity “Real?”

What is required for fluoroquinolone toxicity to be “real?”

Most of the symptoms of fluoroquinolone toxicity are listed on the warning labels.

Tendinitis? Yup, listed on the warning label. Muscle weakness? Yup, that’s there too. Cardiovascular collapse, loss of consciousness, tingling, pharyngeal or facial edema, dyspnea, urticaria, and itching? They’re right there on the warning label. Liver failure is there too – that’s what “hepatic failure” means. “Convulsions, increased intracranial pressure (including pseudotumor cerebri), and toxic psychosis have been reported in patients receiving fluoroquinolones, including ciprofloxacin.” Serious central nervous system effects like, “dizziness, confusion, tremors, hallucinations, depression, and, rarely, psychotic reactions have progressed to suicidal ideations/thoughts and self-injurious behavior such as attempted or completed suicide” are also listed on the warning labels. Permanent peripheral neuropathy is listed too. So are musculoskeletal disorders—though the warning label only notes that those happen in pediatric patients—kids. Prolongation of the QT interval, renal impairment, phototoxicity and diarrhea are also listed.

Do the warning labels leave some symptoms of fluoroquinolone toxicity out? Sure. Even the FDA acknowledges that, “While most of the individual AEs (adverse effects) that exist within FQAD (fluoroquinolone associated disability) are currently described in fluoroquinolone labeling, the particular constellation of symptoms across organ systems is not.” The warning labels are a good place to start though.

If someone takes a drug, then develops side-effects that are listed on the drug warning label, it’s pretty reasonable to think that what they’re experiencing is an effect of the drug. It’s not only reasonable, it’s probable.

If thousands of people experience similar adverse effects after taking a drug, those adverse effects are likely caused by the drug.

Thousands of anecdotes certainly help to build a case, but they are still anecdotes, so scientific experimentation is needed to show that a drug is as damaging and dangerous as people claim it to be.

There are more than 200 peer-reviewed journal articles about fluoroquinolones in the Research section of the Links & Resources page on this site. There is PLENTY of evidence that fluoroquinolones do a massive amount of damage to the human body.

There is PLENTY of evidence that fluoroquinolones damage mitochondria, increase ROS, deplete antioxidants, deplete iron, deplete magnesium, damage the microbiome, downgrade GABA, are endocrine disrupters, cause lysosomal disorders, form poisonous metabolites in the liver, activate mast cells and release histamine, AND MORE.

Can any one of those things cause a multi-symptom illness? Yes, of course they can. And fluoroquinolones DO cause multi-symptom, often chronic, illness.

Despite all that, there is not a diagnostic code for fluoroquinolone toxicity, and fluoroquinolone toxicity is not taught in medical school. Many doctors do not recognize fluoroquinolone toxicity when they have a patient who is dealing with it. (Though that is changing—more and more doctors are recognizing fluoroquinolone toxicity, and that is a very good thing.) And, despite all the damage that fluoroquinolones do to cells, there is no test that shows fluoroquinolone toxicity.

A diagnostic code and a test will likely be required for some people to believe that fluoroquinolone toxicity is real. We should fight for those things, because they’re important in getting the problem recognized and the solution sought.

Even without the diagnostic code or adequate test, fluoroquinolone toxicity IS REAL. It is acknowledged in FDA documents and backed up by hundreds of peer-reviewed articles. If someone chooses to ignore that evidence, well, they’re operating on faith in their notions of infallible doctors, not the real, scientific evidence that shows the damage that fluoroquinolones do to cells.

Regardless of what anyone thinks, your pain and your experience are real. I know that it hurts when people assert that your pain isn’t real, or that you’re imagining what you know to be true. It sucks, to say the least. But you know your body, and you know what happened to you. Your truth, and your experience, matter. Other people’s beliefs about your condition don’t.

 

 

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