*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
Tamara’s Recovery Story – Cipro Toxicity
On February 4, 2014 I went to the hospital with pain in the flank of my back. Having had suspected kidney stones and a couple kidney infections in the past I knew to head to the doctor right away. When I got there, they did blood and urine tests but did not find anything. They gave me an iv with Ceftraxione (non FQ antibiotic) and sent me for an ultrasound the following morning.
The ultrasound showed nothing on either kidney or my bladder. When I went in to get these results the doctor was quite rude to me, and barely looked at me at all, but made a fateful decision to send me home with a prescription for Cipro. 500MG, 2 times a day for 5 days.
I went home and took the first pill that night and went to bed. In the morning I woke up and took the second pill. My right leg began to swell. I then began to look on the internet for adverse reaction symptoms. I had an allergic reaction to another antibiotic called Azythromycin a year and a half ago, so I wanted to find out what I was up against. What I found horrified me. I started hyperventilating, basically freaking out, big time. I called the hospital and told them I thought I was having a reaction to the Cipro and I had read on the internet what could happen and the nurse laughed at me…a lot of help that was. I stopped taking the Cipro after only those two pills.
Two days after this happened, I was to move to a different province of Canada, where I live. I had previously been a dancer since I was 3. I had danced professionally for 10 years at this point and had co-owned a performance artist agency for the last 4 years. 5 days before I was floxed I had signed over my co-ownership to my two partners and had intended to move and pursue a new passion of teaching a healing dance system called Wu Tao. I was to start my training for this right away. I went ahead with my move.
2 days after my move, so 4 days after being floxed, my leg began to swell so much I went to the local emergency room. They tested me for blood clots and nothing came back. I mentioned that I thought it was the antibiotic but was looked at like I was crazy.
I decided to do my own research and I implemented some things in the very beginning that I think may have to do with my fast recovery.
1) DETOX DETOX DETOX! I began to drink a whole pot of Dragon Herbs Longevity Tea everyday for the first couple weeks. As I understand it this tea has saponins which help essentially “wash” your system. I had many detox symptoms from this. I also used the Dragon Herbs brand Schizandra and Goji tincture to help protect my liver during this time.
2) DIET I had already eaten a mostly vegan diet but in the first few weeks I really cleaned up my diet. No processed foods, no sugar. As many fruits, vegetables that I could get into my system I did.
3) No excess supplements. I did at the beginning take many supplements and I had pain over the area of my liver which led me to believe that my liver was being overworked trying to process so many toxins. I pulled back and only took what was absolutely necessary until I felt I had detoxed enough.
By about 3 weeks in, my leg was in such excruciating pain and so tight that I could not straighten my leg. Devastating for a dancer.
I met a naturopath who was trained in Myofascial Release. He began to treat my leg in the 3rd week of floxing. Slowly, over the next few weeks my leg began to release it’s iron grip.
At 7 weeks, I suffered a setback. I developed new symptoms. My left arm all of a sudden swelled up. I developed severe insomnia and panic attacks. I developed tremors, which did not stop all day and night, adding to the insomnia. I would get burning and shooting and electrical shock pains through my body.
I do believe there is some truth to the idea that the FQ’s get stuck in our tissues and as my naturopath was doing Myofascial Release he was releasing it into my system and causing other systems and processes to become affected.
It was at this point I started to add in other supplements again and I also started getting Gluathione IV’s from the naturopath.
Supplements I took:
1) Probiotics
2) Greens Supplements (Vege Greens but Greens+ is also good)
3) Protein in the form of Vega shakes
4) Magnesium pills and transdermal
5) High high dose vitamin C 4000 mg a day
6) CoQ10 and Omega 3-6-9
7) B Complex Vitamins
Glutathione was my magic bullet though. After my first IV I began to be able to straighten my leg. After the second, all of my neurological symptoms such as tremors and insomnia and panic attacks went away COMPLETELY.
I did do some physio but it seemed to flare up my condition. I held off on the physiotherapy until just recently.
At 99 days into floxing, I started to WALK 🙂 I had been on crutches for the entire time, and I also was thankfully able to spend my entire floxing on bed rest. I think this made a big difference as well in how much my body was able to heal. If you can, take as much time to rest and let your body do it’s thing.
I am now at 106 days post floxing and I’d say I’m 97% better. I have been able to walk for a week. Physio measured my Achilles tendon last week and it was at an 85 degree extension while my good leg was at a 100 degree extension. I have a slight limp and I still need to build muscle.
However, I am able to drink alcohol, eat whatever food I want at this point, and my leg does not flare up in pain or swelling anymore.
I am not dancing quite yet, but I do believe I will be VERY soon. For now, I have taken to hula hooping!
I believe I will make a full 100% recovery at around the 4 month mark post floxing.
Do not give up, keep a positive attitude, imagine healing for yourself and trust that your body knows how to fix this. You CAN get better!
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
Mark, thank-you for the info. I will try very slowly incorporating these supplements.
I am 55 but could not consider going on HRT due to history of stroke in my family.
Unfortunately, I think its really too late for me to reverse the damage. It’s been roughly 23 yrs of torture.
I feel so sorry for young folks dealing with this.
thanks again- Carolann
Hi mark, would you mind emailing me so we can discuss supplements, reactions,etc, different magnesium a, ways to recover etc. and I began magnesium at about 2-3 months after. I had a reaction a month after I finished the fq’s.
Jimmy
I know I’ve been floxed, I was in the hospital just 1 week after taking a 4 day run of cipro. Chest pain, nausea, vomiting, burning, cramping, ripping muscles. Headaches, pressure in my head. Severe Panic attacks, insomnia ect. I need help horribly. I’ve been in such despair for 2 months now, no where to turn. Could you tell me where you went for your iv treatment? I live in Lincoln park, Michigan. Please! any help would be greatly appreciated.
rainbow, physio helped me a lot. stretching, massage, treadmill. also did glutathione and i feel it helped. i also did an iv of vitamins, magnesium, and amino acids on a weekly basis which i think helped, but i don’t think it’s wise to do super large amounts. i believe one of our issues is absorption, so iv’s can be helpful, at least for me. The glutathione helped mostly with pain for me.
I have to tell you all that my injuries came 2 years after my dosing of Cipro in 2012. After that first hit, I was left with residual, minimal neuropathy of my feet and ankles. Minimal, in that most of the time I did not even recognize it. Then, in 2014, while coming off the summit of Mt. Tebo in the Olympics (previously I was quite the active 59 year old), I simply stepped down and my left ankle’s ligament and tendon structure blew out, causing my fall and the break of the fibula. So, just because I was technically 2 years from the date of exposure, it did not confer immunity from ruptures. At least I am walking now. Still lots of difficult symptoms everywhere in my body though. Not sure if I will ever get back into the mountains again, but am still riding horses. At first I just wanted to die….truly. Have now moved into a more existential place.
Oh my gosh your story is a glimmer of hope! I go in for my first glutiathone iv tomorrow. Ive heard amazing things about it. Thank you for the positivity. I was floxed a month ago. Anxiety, depression, insomnia and muscle twitching with some neuropathy and short of breath. I have a small child I feel so nervous to be alone with because my body and mind are taken over by this anxious poison. I just want that feeling to go away! Best wishes hope you’re 100% now!
After being on iv cipro and iv ceftraxione for a month, I couldn’t walk across the room and then my entire body broke out in solid rash. So they stopped all antibiotics and I was left in pain and barely walking and with nothing to stop the infection they were afraid had entered my skull. An ent told me that my gut had been destroyed by the antibiotics and that I would need a high dose (very expensive) probiotic for at least two years. Ended up discovering kefir grains used to make my own kefir (very high in probiotics, certain vitamins, and readily used by the body). Drank 2 cups kefir daily and yogurt, along with taking 1000 magnesium citrate every night. With the kefir, skin conditions improved, pain in legs lessened, I could eat more things again. It has taken two years and I can hike limited again. If I don’t stay on the kefir (at least 1 cup) and the magnesium, I do have problems so I just try to stay consistent.
I just want to say thanks to everyone..I have learned so much from all of you…it is kind of Trial & Error…I feel so sorry for all of you…I just have heel tendon pain…but it is getting better..some what…We just have to keep the faith that someday we will get better…but I will never take FQ ever again…I was given Levaquin along with Steroids…it could have been a lot worst…Good Luck to every one…
Hi Tamara thanks for sharing your story. Do you remember getting heart palpitations with cipro? Im having strange fluttering in my chest. Im supposed to start the IV glutathione but scared.
I wish you 100% wellness soon x x :)’s Could you Please indicate which Brands of items you took/doses on ones not mentioned thanks p.s. u r very beautiful I hope you stay well :)’s best of Luck hugs Aidan :)’s
Hi, I just finished a 5 day dose of 750 Levaquin a week ago, and am having muscle weakness, sore joints, and neuropathy (burning pain) in hands and feet, as well as brain fog. Am taking Magnesium (800) and supplementing with NAC and turmeric to boost glutathione. Am I missing something specific to neuropathy? I understand MitoQ and PQQ to be good for mitochondria/fatigue but am wondering about the neuropathy.
I’m so glad you found a path of healing. At age 60 I’m listening to my body and allowing the medical profession to assist in its health.
Please tell me who treats this. We live in New Mexico and no doctor will diagnose this. We believe this is whzt is happening to my mom. Thank you!
Dearest Tamara, I am Dan Jervis, the last one on the long list. Would you please consider sharing your story to CBS 60 Minutes? 60m@cbs.news.com
WE NEED OUR STORIES TO BE HEARD, Dan
Hi Tamara – now that it’s been several years how are you doing? Still good? Still dancing? No problems running and jumping? Any flares?
I was Floxed about a month ago and have tinnitus. Did your tinnitus improve over time??
I’ve been living with FQAD since 1998, but didn’t understand that I was until late in 2016. Thus, I’ve lived many years of not using nutrition, supplements, and movement that would be supportive of my symptoms improving, so by autumn 2016, I was almost completely bedridden. Since discovering what fluoroquinolones do, and how to minimize negative symptoms, I have been slowly recovering. I had one huge setback, at the beginning of 2018 but now I’m on a recovery track again. As an older person who is still partially disabled, I’m grateful that you mentioned Wu Tao, because I’ve been looking for fluid movement techniques, especially dance-related ones, that will help me improve strength, proprioception, and flexibility, without too much risk of overwork or soft tissue injuries. Blessings to you, and thank you for sharing your story. I came to your entry via the Facebook FQ toxicity group. Thank you for your generous openness.
Hello I am doing well and have since had my daughter in 2015…I have pain in my right leg but very rarely. All things considered I am doing well. I even started performing (dance) again
Cipro for a suspected UTI, and now excruciating gut pain, insomnia, muscle loss, 20lb weight loss, breathing is off a lot, tendons twisting.. Thank you for your personal story and hope.
… [Trackback]
[…] Read More Information here on that Topic: floxiehope.com/tamaras-story-cipro-toxicity/ […]