Toni’s Story of Recovery from Cipro Toxicity

I was a 56 year old mother of two, athletic runner and busy massage therapist until February 5, 2016 when my life changed forever.

I went to a new dentist that fateful Friday afternoon and during a root canal was horribly injured and went straight from the maniacal dentist’s chair to ER to ICU for 4 days, where I received IV Decadron (a fluorine based steroid), IV Flagyl and Vancomycin. Upon discharge , I was handed a script for 2 weeks of Cipro and prednisone. Little did I know, how much worse my nightmare would become. I laid in bed from the dental trauma for nearly a month under heavy sedation. My pallet had split open from swelling and the pain was excruciating.

I did recover and went back to work in April of 2016. Upon my first massage, my elbows and wrists became inflamed. I chalked it up to being in bed for almost 2 months and powered through. By July 20th, I was toast. I gave my last massage that day due to severe tendon issues. I thought that my body was failing from all the steroids and never imagined it was from the antibiotic, Cipro. Fast Forward to month 9. I had every symptom you could fathom:

Frozen shoulder
Tendinitis in elbows and shoulders
6 herniated discs
Vision and hearing loss
Suicidal ideation
Severe peripheral neuropathy
Depression
Anxiety
Leaky Gut
Ringing ears
Systemic Candida
And more symptoms than I can list.

I had little use of my arms and walking was difficult as well.

One day I googled idiopathic , bilateral shoulder tendinitis and BOOM! Cipro/Levaquin Toxicity popped up. I read in horror . I felt I had been given my death sentence.

I took this information to my doctor who patted me on the head, told me to stay off the internet and shoved a prescription for Lyrica and Abilify in my hand. I immediately found Lisa’s Floxie Hope site (shout out to Lisa Bloomquist who, with this site has no doubt, saved my life and most likely, hundreds of others just like me).

The very first thing I did was find a good functional medicine doctor on this website: www.functionalmedicine.org

I started receiving weekly IVs of glutathione and a blend of nutrients known as the Myer’s cocktail. I received these IVs every week for 6 months. I was the first Floxie my functional medicine doc had treated, so, this was new to him. For the most part, I researched how to reduce inflammation, how to heal the gut, which in my opinion are most critical in the acute phase. These antibiotics create immense oxidative stress / inflammation and obliterate our intestinal flora and the lining of our digestive tract, creating an onslaught of symptoms that are beyond comprehension. I cut out ALL sugar, gluten, dairy, msg, soy, processed foods, fluoride in my water and toothpaste ( fluorine is the element in FQs that allow this poison to cross the blood brain barrier and its highly toxic and must be avoided at all costs). I purchased the Berkey water filter ( it’s one of the few that filter fluorine out of tap water).
https://www.berkeyfilters.com/ Fluorine is also in the herbicides and pesticides sprayed on produce, so eating ALL ORGANIC fruits and veggies is important. In addition to eating organic, it’s very important to avoid standard beef and poultry as they are commonly treated with FQs. Eat only free range, grass fed organic meats.

I added a boat load of supplements as well. My supplements are powders and come in bulk from Micro Ingredients. They are organic, soy free, msg free, no fillers and made in the USA. I put all of my powders in a smoothie with Pea Protein Powder 2x per day.

-Vitamin C in powder form by Micro Ingredients
-Collagen Powder by Dr. Axe or Bullet Proof
– NAC / Micro Ingredients
– ALCAR/ Micro Ingredients
– L Glutamine/ Micro Ingredients
-MSM/ Micro Ingredients
-Quceritin/ Micro Ingredients
– Colostrum / Sovereign Brand
-Multi Vitamin : powder by Innate brand
-Amazing Grass Superfood Alkalizing and Detox powder
-BCAAs: in powder from Micro Ingredients
-L Arginine : Micro Ingredients
-Hyaluronic Acid: Micro Ingredients
-MCT Oil: Sports Research

I place all my powders, MCT oil, filtered water, one banana and a few organic frozen strawberries in my blender 2x per day. Powders are pure and more easily absorbed.

I highly recommend investing in a food processor. I use mine every day and blended all my food before eating it the first 6 months because my guts were destroyed and I was not absorbing nutrients. I blended my salads, my chicken, everything!

Miscellaneous supplements:
-vitamin D/K in liquid form
-vitamin E in liquid form
-selenium
I use Pure Encapsulations and Thorne Research for my miscellaneous tablets that are not available in bulk.
– Topical Magnesium gel ( daily)

-Magnesium is CRITICAL!
I use Perque Plus Mg
-Omega 3 gel caps
-Organic Bone broth
-Boron for detoxification and bone health.
-Digestive Enzymes before every meal.
from Enzymedica are very good. I open one capsule in water and drink before every meal.
/ Pro and Pre-biotics to heal the gut.
I use RESTORE to heal my leaky gut. This can be found on Amazon and it is amazing! I also had systemic Candida and used Candacid Forte by Orthomolecular in conjunction with a strict diet to tame the Candida.
For pain: Wobenzyme in tablet form is the best thing for aches and pains I have ever used.
I also use Kratom from Coastline Kratom for pain.
Mitochondria and fatigue :
-Mito Cell PQQ
-NRF-2 Boost by Pure Therapeutics

Avoid: NSAIDs, Steroids, any drugs with a fluorine base (Diflucan, Flonase, Paxil, Lexapro, and a few others.) Please go research if you are currently taking any prescription or OTC meds, as these could unknowingly prevent you from healing.

Other meds that can worsen our situation is immune suppressant drugs for various auto immune issues created by FQs…Plaquenil is a quinolone and will take you down a road of no return. Enbrel and Humira, to name a few. The vast majority of these meds, vaccines, Tamiflu, Flonase, SSRIs, Lyrica, sleep meds, Benzos, all have safe alternatives . Always search for safe alternatives before running or reaching for a poisonous quick fix. The costs far outweigh the benefits.

The most important piece of advice I give to others who are injured by this antibiotic is to stay out of the doctor’s office! They do not understand FQT. They can only mask ( not heal) symptoms with more toxic poison that will damage us more, making recovery exponentially more difficult. I should know, because I was ruined further in those first 9 months with IV NSAIDs and steroids. We are far better staying at home, eating healthy and utilizing supplements.

Big Pharma and doctors put us here, so, why return to the scene of the crime for more punishment?
I also wanted to gain my muscle mass back, as I had lost over 25 pounds of muscle mass the first year. I was a skeleton with lots of excess skin. I looked horrid! I started eating, drinking and training like a body builder in hopes of filling that loose skin with muscle. I drink 10 organic egg whites every single day, bought a rebounder and resistance bands at Walmart and began the journey back to being healthy. I am happy beyond belief to be running 5 plus miles every day, lifting weights and living life again. I try and reach out to others as often as I can, as this has helped me make sense out of this nightmare.
I have some permanent damage such as vision loss in my left eye from an eye stroke in October of 2018, I sometimes struggle with flares due to weather, stress, etc… but it is manageable with a clean diet and Kratom.

I know to the core of my being that healing is absolutely possible. I pray my story gives others hope .
I must say that there was one very special person that I must thank from the bottom of my heart, because without Robin Bailey , her steadfast friendship love and support, I’m not sure I would have made it out alive. I love you Robin!

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

15 thoughts on “Toni’s Story of Recovery from Cipro Toxicity

  1. Jana Wiley March 10, 2018 at 10:58 am Reply

    This account is really inspirational. I am not sure all would work with me, as I calculated a total exposure to Cipro, both oral/IV with and without steroids, : (, at 13 weeks, over 10 years. Most for infections that i did not turn out to have. 6 weeks in patient for a botched surgery with internal bleeding and peritonitis from a contaminated laporscopic set up. I was found in shock the next morning, and came very close to losing it. My functional medicine pharmacist says I am toast. Need to start with a microbiome test. Certain foods like oxylates cannot be broken down. My PT states that despite being active for my age of 63, (own and work a horse ranch) my muscle/tendon structures do not feel viable. Mush muscles with really tight contracted tendons that break easily. Have a horror story about my left lower leg and ankle deconstructing when stepping down an incline in 2014. Despite all of this, I have moved way beyond the suicide ideation in 2014, and with a somewhat functional left ankle, I still ride and enjoy life.

  2. Rose Casanova March 10, 2018 at 4:03 pm Reply

    So happy for your recovery! Keep inspiring.

  3. Karon March 10, 2018 at 6:06 pm Reply

    Amazing and inspiring story, thank you for sharing 💕

  4. Sarah Sedgwick March 11, 2018 at 10:00 am Reply

    An amazing recovery, thank you Toni for your detailed account as well as the time you spent on the phone with me. You are a fierce force 😁. May you continue to fabulously forge ahead to the best life ever!! ❤️❤️

    • rusty18901 March 14, 2018 at 6:34 am Reply

      Thank you so very much Sarah! It’s been a long two years for sure! I pray you are continuing to heal and look forward to seeing your recovery story here as well! ❤

  5. Dee March 12, 2018 at 4:38 pm Reply

    Hi Toni!! That is an amazing and inspirational recovery story! All o can say is “you go girl!!” I am 9 months out and actually have made slot of improvement! Still struggling some with insomnia, anxiety and very annoying tinnuitis!!!! Did the ringing in your ears finally cease or get so mild you didn’t notice it??? Did you deal at all with insomnia?? If so is there anything that helped your ringing ears and or insomnia?? You give all of us recovering floxies great hope!!

    • rusty18901 March 14, 2018 at 6:39 am Reply

      Hi Dee, I did not even realize I was floxed until month 9, so my healing journey did not begin until then. You are still early in the healing process. I was very fortunate to not have insomnia and my heart goes out to you and the thousands of others whoo suffer this condition. My ears still ring non stop. I now wear two hearing aids since being floxed. I suppose I have just adapted to the ear ringing and use a white noise machine at night to drown the sound. Please feel free tomessage me on Face Book anytime!

      • Dee March 14, 2018 at 9:09 am Reply

        Hi Toni. Thanks for your response! I am sorry to hear you had to “start” your recovery at 9 months but happy that you feel mostly recovered now! I’m not sure how to personally message you on Floxie hope Facebook?? Two questions for you. Has your ear ringing calmed down and gotten a little quieter? Also I see you had a lot of gut issues. I have had leaky gut for years and I’m sure it is slowing down my recovery. There are so many probiotics and prebiotics on the market! Can you suggest a brand of both that really helped your gut? I know we are all different but it is overwhelming to wade through all of these supplements and brands! I figure you have healed your gut so have some good suggestions! I know about the Restore product and took that a year ago before being floxed but have not tried it since being floxed. Do you have any more pointers on healing leaky gut and what worked for you?? Also what tinctures did you use for D/k and anything else? If you would prefer to email my personal email that would be fine deegilmore75@yahoo.com. I am 61 and was a PE teacher losing 40 lbs of fat and muscle within 4 months of being floxed. I couldn’t finish my last semester of teaching because of my symptoms and retired after Xmas! I want to get back my muscles and fitness level also!! Thanks Toni!!

      • sarah sedgwick March 14, 2018 at 4:46 pm Reply

        I have posted a couple of times in the Flox group that on two separate occassions (tested) I’ve stopped the ringing in my ears by taking Soverign Labs colostrum powder (very pure). On it for less than 2 weeks each time and the ringing stopped. I was able to then only take it every 3 days and keep it at bay. At this time I’m not even on it because I’m supposed to not eat dairy right now – Have had ringing 3 times for 30 secs in last 3 weeks. It’s worth checking into….it contains growth factors.

  6. Tara March 15, 2018 at 12:40 pm Reply

    Hi Toni,

    Thanks for your story! I took a hiatus from this website, but check back periodically, mostly when I am having a downturn of symptoms. Like you, I was given steroids and umpteen antibiotics for sinus infections I didn’t even have! I went to the ER after having so many disruptions to my senses after taking prednisone and when I said I’m fairly certain it was the steroids- they gave me decadron (told me it wasn’t a steroid) and then more antibiotics and then decided to “kill the infection” with cipro and flagyl… Like you, the best way I could describe myself at that stage was “toast.” I still can’t believe I survived that first year when I was literally falling apart. I felt like something right out of a science fiction movie. Every protective factor in my body was pulled out from under me! Unlike most, I knew what was happening to me and was so disillusioned by the doctors and how I was treated when I told them I was poisoned by these medications. I can’t even comprehend how awful I was treated looking back when I was so poisoned that I was barely able to talk, breathe, or walk into the office and I forgot my name, my personal information, how to drive- I was so ill, neurologically. For me, the most heartbreaking side effects have been related to my vision. I had perfect, crystal clear vision before this happened and now I have to wear prism glasses full-time. I have huge floaters in my eyes and so many neurological issues with my eyes plus dry eyes, wavy vision, low vision, 3-D like vision, double vision. It’s hard to get out of bed some days. I do and I work full-time still, but I have good and bad days, ups and downs, highs and lows where I feel I can put this all behind me. Things cycle, as you know. The anger lingers when symptoms flare. I am having a bad few days with vision things rearing up again. I had a few weeks where things were relatively calm. The sensory things are the hardest things to heal, I think. Do you wear glasses? Did you have head pressure? What other sensory disturbances did you have?

    • Dee March 29, 2018 at 10:46 am Reply

      Toni. Did your eye and ear issues come on pretty early in your floxing?? You mentioned having an eye stroke in 2018? Did you have the stroke in 2016 or 2017? How much damage did it do to your vision?? I am dealing with some new eye issues at 10 months out and thought it seemed a little late in my recovery since I haven’t had too many problems with my eyes other then dry eye, some aching in the first 3-4 months and maybe a “little” more blurry. I am hoping this latest eye symptoms is hopefully a little setback or relapse. Just wondering when your eye/ear issues really started coming on strong????

  7. Dan Jervis April 5, 2018 at 9:16 am Reply

    Dear Toni, Having read your testimony and having been as diligent as you since I was floxxed in 1996 with 60,000mg of Cipro, I have been living on the edge for 1/3 of my life with unbearable headaches and nausea. I tried to end my life in 2010 and woke up in the hospital and began caring treatment by a Functional Medicine Practitioner. I am 68 and an avid cyclist which allows me a small amount of relief on aggressive rides. I had a sinus surgery which was fumbled and resulted in two more nasal septoplasties. I haven’t had more than a 3 hour sleep period for more than 15 years which I use xanax to knock me out upon awaking in tortuous pain. I dream about being at peace for just one day to see what life feels like.

    Thank you for reaching out to all of us and inspiring all of us who continue to hope for a breakthrough.

    Sincerely, Dan Jervis

  8. greendingy May 12, 2018 at 12:00 pm Reply

    It is not clear, but it seems from your story you did not have issues with walking on your feet…calves, all ankle tendons, etc. I had this for the first three months and it got better. Now, in month seven it has returned for no reason I can think of. Extreme fatigue was what I was working on, but now I have the issues with my legs and I was wondering how , when did you know it was safe to exercise? Especially at the level you are doing? At 8 months I read I am still in the healing stages…..when do you know you are not? My legs were really good for several months. I’m doing everything I can but am told..time. Patience.

  9. Joyce Gardner June 2, 2018 at 2:56 pm Reply

    Toni,
    I had heard a little of your story but did not get the full impact of your suffering until reading this. I did not realize what was happening to me until 5 years after I was floxed. It has taken me an additional 2 years to talk to friends & relatives about this. I know 3 people who totally believe me, the rest have serious doubts. It is very defeating to feel I can no longer trust any doctor & must be careful who I talk to about this. I will soon be 68 & still work full time. When I enter or leave a room I sometimes hear people talking about my inability to walk & move in a normal fashion. No one ever talks directly to me about it or asks if I am OK. Hiding what is going on has been difficult. I read your story & am so impressed by your resolve to take back your life. You are truly a FORCE OF NATURE! Please keep posting to give others hope.

  10. Marielen Hastings June 26, 2018 at 8:38 pm Reply

    Toni….
    I’m SO SO happy for!! And honestly…..thank you for posting EXACTLY what you did and why! I actually saved your link and am going to go over it and try to incorporate it into my healing. Xoxo!
    Blessings and light!

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