I was a 56 year old mother of two, athletic runner and busy massage therapist until February 5, 2016 when my life changed forever.
I went to a new dentist that fateful Friday afternoon and during a root canal was horribly injured and went straight from the maniacal dentist’s chair to ER to ICU for 4 days, where I received IV Decadron (a fluorine based steroid), IV Flagyl and Vancomycin. Upon discharge , I was handed a script for 2 weeks of Cipro and prednisone. Little did I know, how much worse my nightmare would become. I laid in bed from the dental trauma for nearly a month under heavy sedation. My pallet had split open from swelling and the pain was excruciating.
I did recover and went back to work in April of 2016. Upon my first massage, my elbows and wrists became inflamed. I chalked it up to being in bed for almost 2 months and powered through. By July 20th, I was toast. I gave my last massage that day due to severe tendon issues. I thought that my body was failing from all the steroids and never imagined it was from the antibiotic, Cipro. Fast Forward to month 9. I had every symptom you could fathom:
Frozen shoulder
Tendinitis in elbows and shoulders
6 herniated discs
Vision and hearing loss
Suicidal ideation
Severe peripheral neuropathy
Depression
Anxiety
Leaky Gut
Ringing ears
Systemic Candida
And more symptoms than I can list.
I had little use of my arms and walking was difficult as well.
One day I googled idiopathic , bilateral shoulder tendinitis and BOOM! Cipro/Levaquin Toxicity popped up. I read in horror . I felt I had been given my death sentence.
I took this information to my doctor who patted me on the head, told me to stay off the internet and shoved a prescription for Lyrica and Abilify in my hand. I immediately found Lisa’s Floxie Hope site (shout out to Lisa Bloomquist who, with this site has no doubt, saved my life and most likely, hundreds of others just like me).
The very first thing I did was find a good functional medicine doctor on this website: www.functionalmedicine.org
I started receiving weekly IVs of glutathione and a blend of nutrients known as the Myer’s cocktail. I received these IVs every week for 6 months. I was the first Floxie my functional medicine doc had treated, so, this was new to him. For the most part, I researched how to reduce inflammation, how to heal the gut, which in my opinion are most critical in the acute phase. These antibiotics create immense oxidative stress / inflammation and obliterate our intestinal flora and the lining of our digestive tract, creating an onslaught of symptoms that are beyond comprehension. I cut out ALL sugar, gluten, dairy, msg, soy, processed foods, fluoride in my water and toothpaste ( fluorine is the element in FQs that allow this poison to cross the blood brain barrier and its highly toxic and must be avoided at all costs). I purchased the Berkey water filter ( it’s one of the few that filter fluorine out of tap water).
https://www.berkeyfilters.com/ Fluorine is also in the herbicides and pesticides sprayed on produce, so eating ALL ORGANIC fruits and veggies is important. In addition to eating organic, it’s very important to avoid standard beef and poultry as they are commonly treated with FQs. Eat only free range, grass fed organic meats.
I added a boat load of supplements as well. My supplements are powders and come in bulk from Micro Ingredients. They are organic, soy free, msg free, no fillers and made in the USA. I put all of my powders in a smoothie with Pea Protein Powder 2x per day.
-Vitamin C in powder form by Micro Ingredients
-Collagen Powder by Dr. Axe or Bullet Proof
– NAC / Micro Ingredients
– ALCAR/ Micro Ingredients
– L Glutamine/ Micro Ingredients
-MSM/ Micro Ingredients
-Quceritin/ Micro Ingredients
– Colostrum / Sovereign Brand
-Multi Vitamin : powder by Innate brand
-Amazing Grass Superfood Alkalizing and Detox powder
-BCAAs: in powder from Micro Ingredients
-L Arginine : Micro Ingredients
-Hyaluronic Acid: Micro Ingredients
-MCT Oil: Sports Research
I place all my powders, MCT oil, filtered water, one banana and a few organic frozen strawberries in my blender 2x per day. Powders are pure and more easily absorbed.
I highly recommend investing in a food processor. I use mine every day and blended all my food before eating it the first 6 months because my guts were destroyed and I was not absorbing nutrients. I blended my salads, my chicken, everything!
Miscellaneous supplements:
-vitamin D/K in liquid form
-vitamin E in liquid form
-selenium
I use Pure Encapsulations and Thorne Research for my miscellaneous tablets that are not available in bulk.
– Topical Magnesium gel ( daily)
-Magnesium is CRITICAL!
I use Perque Plus Mg
-Omega 3 gel caps
-Organic Bone broth
-Boron for detoxification and bone health.
-Digestive Enzymes before every meal.
from Enzymedica are very good. I open one capsule in water and drink before every meal.
/ Pro and Pre-biotics to heal the gut.
I use RESTORE to heal my leaky gut. This can be found on Amazon and it is amazing! I also had systemic Candida and used Candacid Forte by Orthomolecular in conjunction with a strict diet to tame the Candida.
For pain: Wobenzyme in tablet form is the best thing for aches and pains I have ever used.
I also use Kratom from Coastline Kratom for pain.
Mitochondria and fatigue :
-Mito Cell PQQ
-NRF-2 Boost by Pure Therapeutics
Avoid: NSAIDs, Steroids, any drugs with a fluorine base (Diflucan, Flonase, Paxil, Lexapro, and a few others.) Please go research if you are currently taking any prescription or OTC meds, as these could unknowingly prevent you from healing.
Other meds that can worsen our situation is immune suppressant drugs for various auto immune issues created by FQs…Plaquenil is a quinolone and will take you down a road of no return. Enbrel and Humira, to name a few. The vast majority of these meds, vaccines, Tamiflu, Flonase, SSRIs, Lyrica, sleep meds, Benzos, all have safe alternatives . Always search for safe alternatives before running or reaching for a poisonous quick fix. The costs far outweigh the benefits.
The most important piece of advice I give to others who are injured by this antibiotic is to stay out of the doctor’s office! They do not understand FQT. They can only mask ( not heal) symptoms with more toxic poison that will damage us more, making recovery exponentially more difficult. I should know, because I was ruined further in those first 9 months with IV NSAIDs and steroids. We are far better staying at home, eating healthy and utilizing supplements.
Big Pharma and doctors put us here, so, why return to the scene of the crime for more punishment?
I also wanted to gain my muscle mass back, as I had lost over 25 pounds of muscle mass the first year. I was a skeleton with lots of excess skin. I looked horrid! I started eating, drinking and training like a body builder in hopes of filling that loose skin with muscle. I drink 10 organic egg whites every single day, bought a rebounder and resistance bands at Walmart and began the journey back to being healthy. I am happy beyond belief to be running 5 plus miles every day, lifting weights and living life again. I try and reach out to others as often as I can, as this has helped me make sense out of this nightmare.
I have some permanent damage such as vision loss in my left eye from an eye stroke in October of 2018, I sometimes struggle with flares due to weather, stress, etc… but it is manageable with a clean diet and Kratom.
I know to the core of my being that healing is absolutely possible. I pray my story gives others hope .
I must say that there was one very special person that I must thank from the bottom of my heart, because without Robin Bailey , her steadfast friendship love and support, I’m not sure I would have made it out alive. I love you Robin!
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
This account is really inspirational. I am not sure all would work with me, as I calculated a total exposure to Cipro, both oral/IV with and without steroids, : (, at 13 weeks, over 10 years. Most for infections that i did not turn out to have. 6 weeks in patient for a botched surgery with internal bleeding and peritonitis from a contaminated laporscopic set up. I was found in shock the next morning, and came very close to losing it. My functional medicine pharmacist says I am toast. Need to start with a microbiome test. Certain foods like oxylates cannot be broken down. My PT states that despite being active for my age of 63, (own and work a horse ranch) my muscle/tendon structures do not feel viable. Mush muscles with really tight contracted tendons that break easily. Have a horror story about my left lower leg and ankle deconstructing when stepping down an incline in 2014. Despite all of this, I have moved way beyond the suicide ideation in 2014, and with a somewhat functional left ankle, I still ride and enjoy life.
So happy for your recovery! Keep inspiring.
Amazing and inspiring story, thank you for sharing ????
An amazing recovery, thank you Toni for your detailed account as well as the time you spent on the phone with me. You are a fierce force ????. May you continue to fabulously forge ahead to the best life ever!! ❤️❤️
Hi Toni!! That is an amazing and inspirational recovery story! All o can say is “you go girl!!” I am 9 months out and actually have made slot of improvement! Still struggling some with insomnia, anxiety and very annoying tinnuitis!!!! Did the ringing in your ears finally cease or get so mild you didn’t notice it??? Did you deal at all with insomnia?? If so is there anything that helped your ringing ears and or insomnia?? You give all of us recovering floxies great hope!!
Hi Toni,
Thanks for your story! I took a hiatus from this website, but check back periodically, mostly when I am having a downturn of symptoms. Like you, I was given steroids and umpteen antibiotics for sinus infections I didn’t even have! I went to the ER after having so many disruptions to my senses after taking prednisone and when I said I’m fairly certain it was the steroids- they gave me decadron (told me it wasn’t a steroid) and then more antibiotics and then decided to “kill the infection” with cipro and flagyl… Like you, the best way I could describe myself at that stage was “toast.” I still can’t believe I survived that first year when I was literally falling apart. I felt like something right out of a science fiction movie. Every protective factor in my body was pulled out from under me! Unlike most, I knew what was happening to me and was so disillusioned by the doctors and how I was treated when I told them I was poisoned by these medications. I can’t even comprehend how awful I was treated looking back when I was so poisoned that I was barely able to talk, breathe, or walk into the office and I forgot my name, my personal information, how to drive- I was so ill, neurologically. For me, the most heartbreaking side effects have been related to my vision. I had perfect, crystal clear vision before this happened and now I have to wear prism glasses full-time. I have huge floaters in my eyes and so many neurological issues with my eyes plus dry eyes, wavy vision, low vision, 3-D like vision, double vision. It’s hard to get out of bed some days. I do and I work full-time still, but I have good and bad days, ups and downs, highs and lows where I feel I can put this all behind me. Things cycle, as you know. The anger lingers when symptoms flare. I am having a bad few days with vision things rearing up again. I had a few weeks where things were relatively calm. The sensory things are the hardest things to heal, I think. Do you wear glasses? Did you have head pressure? What other sensory disturbances did you have?
Dear Toni, Having read your testimony and having been as diligent as you since I was floxxed in 1996 with 60,000mg of Cipro, I have been living on the edge for 1/3 of my life with unbearable headaches and nausea. I tried to end my life in 2010 and woke up in the hospital and began caring treatment by a Functional Medicine Practitioner. I am 68 and an avid cyclist which allows me a small amount of relief on aggressive rides. I had a sinus surgery which was fumbled and resulted in two more nasal septoplasties. I haven’t had more than a 3 hour sleep period for more than 15 years which I use xanax to knock me out upon awaking in tortuous pain. I dream about being at peace for just one day to see what life feels like.
Thank you for reaching out to all of us and inspiring all of us who continue to hope for a breakthrough.
Sincerely, Dan Jervis
It is not clear, but it seems from your story you did not have issues with walking on your feet…calves, all ankle tendons, etc. I had this for the first three months and it got better. Now, in month seven it has returned for no reason I can think of. Extreme fatigue was what I was working on, but now I have the issues with my legs and I was wondering how , when did you know it was safe to exercise? Especially at the level you are doing? At 8 months I read I am still in the healing stages…..when do you know you are not? My legs were really good for several months. I’m doing everything I can but am told..time. Patience.
Toni,
I had heard a little of your story but did not get the full impact of your suffering until reading this. I did not realize what was happening to me until 5 years after I was floxed. It has taken me an additional 2 years to talk to friends & relatives about this. I know 3 people who totally believe me, the rest have serious doubts. It is very defeating to feel I can no longer trust any doctor & must be careful who I talk to about this. I will soon be 68 & still work full time. When I enter or leave a room I sometimes hear people talking about my inability to walk & move in a normal fashion. No one ever talks directly to me about it or asks if I am OK. Hiding what is going on has been difficult. I read your story & am so impressed by your resolve to take back your life. You are truly a FORCE OF NATURE! Please keep posting to give others hope.
Toni….
I’m SO SO happy for!! And honestly…..thank you for posting EXACTLY what you did and why! I actually saved your link and am going to go over it and try to incorporate it into my healing. Xoxo!
Blessings and light!
Thank you so much for being an Angel in my pathway of life. I really appreciate you sharing your story and in such details and references to the remedies.
I’m so happy on how you’ve recuperated and you will continue to.
Again thank you for being an Angel with large wings. (Your large muscles are also large wings)
Anyone here experience eye tightness or pain behind eyes, accompanied by light sensitivity? I had perfect eyes, no sinus issues, and 48 hours after taking Cipro I went to the ER with an eye emergency. An eye examination determined the eye was healthy, so the guess what that it was an immune response to the medicine, tightening tendons or maybe even sinuses being attacked. 2 months later, I have swelling under the eye and still some aching pressure in sinus areas. Any ideas what this crap does to the orbital area?
Hi Toni, rusty18901, I saw your profile on zoosk
I am not currently a member and have no intentions
of doing so. They still send “teasers” , curiosity got the better of me when I saw your image and read
your story. You are Truly Inspirational!! Hope You are
continuing to do Well. They just said you “messaged” me, which I am unable to retrieve. Again I am curious. Would like to speak with you
Not sure how to exchange contact info without making available for all to see.
Thanx LAR HaPPy fEEt marathonvision@aol.com
That’s great very happy for you, inspired too.
My only issue is I can’t afford all this. What’s the very least thing I should get right ?
Gut seems ok, just tendinitis feet and knees keeps flaring up.
Please help I’ve got to resume some sort of normal life, hold down a job.
Can afford one supplement or two.
Thank you,
Lorna
Hey Toni. Great healing story which ive read numerous times. How long did you take the digestive enzymes and restore for ? And how did you know your gut was healing or was alot better overall? Im doing meyers and glutathione ivs each week and taking restore and digestive enzymes…..so how do i know when i can stop them? Thanks.
Hi! So sorry to hear your horror story! And I am glad you are recovering.
I have a question. Do you feel the Flagyl has anything to do with your demise as well? I was what I call “poisoned” by Flagyl in April of 2018 and have many (not all) of the symptoms you do too!
But I also took Cipro in Jan 2018 (prior) and seemed “fine” but then really went downhill immediately with and after the Flagyl and I’m wondering how much they worked together to harm me perhaps? But I was still sick with infections from Jan to April so I’m not even sure how well or sick I was during that time since it’s all a blur! Perhaps the Cipro was when I started downhill a bit too. But the Flagyl made me extremely sick! Also, after the Flagyl adverse side effects incident (which was terrible!), I was given Prednisone to help “recover” in June and July – and again similar to you, feel it only made the matter worse in the long run. I am still not recovered. I suffer from terrible food sensitivity now and get horrible rashes. Plus more. Thank you for all the pointers.
What an ordeal! But I had some serious bladder infections and am not even sure what I could have done differently.
But, bottom line – I was poisoned. One evil for another!
Also, I live in fear I will need an antibiotic again one day!
All I know is I hope I never have to take Cipro or Flagyl ever again as long as I live.
I encourage people to report their adverse side effects to the FDA as well. I’m in Canada and Health Canada has a place to report adverse drug side effects or reactions on their website.
Best wishes to you and everyone else going through this,
Jay
Hello Toni. How did you get back into exercise/weight lifting? Did your tendon problems gradually get better and then you started up? I am a couple months in and can barely lift a coffee pot. I can feel the tendons in my hands, elbows, shoulders hurt and feel weak with any light weight. I used to be fit.????
I have tendon/muscle pain all over. Feet, knees, ankles as well. I would love if anyone who has recovered will describe what their tendon/muscle progress felt like and how they got back into fitness. I feel like a bowl of mush. I miss being able to do normal activities at ease and especially fitness. Anyone who would like to reach out, my email is kes48@live.com. Toni you look great and most of all, I’m glad you feel better. Could I contact you on Facebook?
Dear Toni, Please consider sending your story to 60 Minutes. 60m@cbs.news.com
Our stories need to be heard, Dan
I too was floxed around the same time as you. I was lucky to have already been seeing a ND for hormone therapy. After being floxed The pain you endured I too was having. I went to my ND and she put me on powders Like you talked about called Mediclear Ultra smoothie mix for the liver, as well as an experimental drug called LDN and many supplements. LDN took about 6 months to slowly work from .05mg to 4mg. After six months the terrible Perf Neurapathey went away, brain fog lifted at 6 weeks. One year I was as good as new. It’s been 3 years, I stopped taking LDN to see if I needed it anymore. The pains returned after5 days of being off it. The pain was deceased by 50% . Still more pain than I care to live with. My ND says Florine takes a very long time for the body to deal with. It will stay in your brain a very long time. LDN might be a lifetime drug for me since I was floxed at age 60. I resent Western Medicine,and Medical Drs. Since being floxed I’ve never been back to see a MD. My chances of living a healthy life will be seeing only a ND, never going to a dirty Hospital or Big Pharma pushing Drs.
Curious about Kratom – There are various varieties, and warning from Coastline that they are only for aromatherapy//soaps. Advice on on what and how, please?