My name is Tony and here is my story.
I have been “floxed” twice not knowing what “floxed” was until the second time. The first time was about 8 years ago. I was 20 years old and took Cipro for an infection. I had a bad reaction after finishing the prescription but never pin pointed or would have figured it was the Cipro. I had joint pain and severe insomnia for a while and ever since then I was never the same. l would get recurring throat and sinus infections , fatigue, memory problems and more for the next 8 years. Since then I have been taking antibiotics for the recurring infections. I believe what kept me going was my active lifestyle and age. Always going to the gym, working, school, and tried to eat as healthy as possible for physical goal purposes. What probably helped then was all the supplements I would take for the gym.
8 years later, December 2016. I was having sharp abdominal pains that would come and go. I couldn’t take it anymore so I went to a doctor that suspected ulcers and prescribed me Cipro for ten days. On the second day of taking it a flare of symptoms manifested at once. Extreme Joint pain, digestion problems, hallucinations, mood swings, mental state changes, strong heart palpitations, insomnia, and a strong sense of fear, anxiety. For a few months I had trouble walking as my legs felt as they were jelly. I looked up Cipro side effects and there it was. WARNING CIPRO. An article explaining how dangerous this type of antibiotic can be and should only be given in life threatening situations such as anthrax. Reading that did not help at all and added to the anxiety I was getting. I had to be hospitalized and they found nothing through blood work, endoscopy and colonoscopy. The doctors only said it was an allergic reaction to Cipro and symptoms would subside. I DIDN’T EVEN HAVE ULCERS!!! I had to drop out from college and was absent or late to work quite a bit. Thankfully my employer is flexible and worked with me during the hard times. I am extremely grateful for having loving parents as they let me move in with them since I couldn’t really take care of my self. I was going through all these symptoms for about 5 months until I found an acupuncture that started changing my life around. When he treated me Joint pain subsided and my digestion improved. I forgot to mention that I lost 35lbs in the first month after taking Cipro. So yes I am finally gaining some weight. I also found floxie hope that helped immensely with supplement suggestions from fellow floxies. Through floxie hope i was able to gain an understanding of what was really going on with my body.
I was getting blood work done occasionally and some things would come out abnormal such as liver enzymes, high bilirubin, low vitamin d levels, and thyroid. One doctor diagnosed me with Gilbert’s syndrome and that its something I shouldn’t worry about. Another doctor diagnosed me with hypothyroid and prescribed me a hormone medication which I did not take and healed my thyroid through diet change with some help of another naturopath doctor that I found here in my home town. I started to trust more the naturopath doctors than the MDs and decided to use them just for blood work. Now the only symptoms I get are brain fog, memory problems, extreme fatigue, fear that comes and goes, abdominal pains that come and go, and some anxiety but a very low level of anxiety. Also forgot to mention ringing of the years but that has subsided just recently with nourish essence supplement.
I have seen two acupuncture doctors and one naturopath doctor. They all diagnosed me with parasites, fungus, bacterial overgrowth, especially candida, and weak organs, especially my liver and gallbladder. Every time they would treat me for that I would get a sense of being normal again for a short time then the symptoms would come back. Fatigue, memory problems, abdominal pain, ect. So I believe I do suffer from what they diagnosed me with due to all the years of taking antibiotics. What is making it hard for me to recover from this is, I believe, the Cipro due to causing damage to many organs. Maybe it affected my mitochondria like some articles I found said. I am not sure exactly how the Cipro affected me unless I get tested for mitochondria dysfunction or other delicate test that I really don’t have the money for. All I know is that I am not the same after taking Cipro and it changed my life. So that’s why I am glad I found this website that lets me try what others did that helped. Hearing other people’s testimonials convinces me that Cipro does damage a whole lot more than just gut flora. Also a big thanks to Lisa for her extensive research.
So now let me get to what helped me in detail.
Diet: Right after being floxed the second time I was on a no sugar and plenty of healthy fats diet, also known as the ketogenic diet, for about 10 months. I believe that is what caused my hypothyroid apart from the Cipro. I read from a source that having no sugars in your diet can put a lot of stress to your adrenals. Apart from that my acupuncture said YOU NEED SUGARS! So he put me on a low glycemic diet. So now my diet is based off non starchy vegetables, proteins such as eggs, lean meats like chicken and beef, and 1 to 2 servings of low glycemic fruits a day. I try to go for organic as much as I can afford. He said this is his method of controlling candida. Usually he would put his clients on a no sugar diet for a while until the candida is controlled but in my case he said I need the sugars especially because I work out. so the best bet would be low glycemic. Compared to just veggies and proteins, my current diet works better for me. My latest blood work shows my thyroid levels are normal so I will take that my diet helped with that. Ginger and turmeric teas are also part of my diet. Yes once in a while I do “Pig out” but I do suffer afterwards lol. So I try to keep it at a minimal.
Exercise: This helps a great amount. Before I got floxed for the second time I used to hit the gym for 2 hours. I was a boxer so I had great stamina and could run 5 miles or more like nothing. Now my body cant handle stress like it used to so I keep it moderate. I am glad that I can go to the gym now. Il hit the gym 5 to 6 times a week for only 30 to 45 minutes. I balance it with cardio and weight lifting. Some days I focus on stretching yoga style. I believe this also helped my hypothyroid. Sometimes I will go to the gym in the mornings to do cardio for 20 minutes and then lift weights for about 30 minutes in the afternoon. This way I find it to be a big help for my fatigue. Some days my fatigue is horrible where I go in to work late because I cant get up. It feels like I had a crazy night and woke up with a hangover. But there is some days where I have small fatigue and I could shake it off with just brushing my teeth.
Supplements: Currently I am taking Floracor GI which contains probiotics, enzymes for digestions, and helps control candida. Nourish essence from Golden Flower Chinese herbs which helps me with energy and revive my liver and kidneys. I just started a supplement called clear mind and is said to help my brain fog and anxiety. I will give an update on this one later. All of these supplements were given to me by my acupuncture and they are helping a lot. These are Chinese herbs supplements and had my acupuncture look after me while taking these supps. I recommend people to have a doctor to look over them while taking these types of supplements. I am also taking Calm Magnesium at night to help me sleep. Vitamin D 5,000 I.U and Vitamin K.
Other supplements that I believe have helped are milk thistle for support and healing of the liver. Antifungals. Tissue salts. Vitamin B complex. I did take Iodine for a while but it made me feel ill at times. So I just passed on it.
Acupuncture: I get at least 2 sessions of acupuncture a month. It helps me relax and relieve stress. I believe a good acupuncture doctor can help with calming the nerves.
Its been a little over a year since the second time I got floxed and I have learned a lot. I am not the same as I was before but I am in a state where I can work, help out around the house, and be more active overall compared to a year ago. I believe in the power of prayer and I believe God has helped me. I hope my healing continues and hope I get to help others in the future. Not just the people who got floxed but others that are ill and MDs have no clue on what is going on with them.
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
Tony, so glad you found an acupuncturist and ND. After being thrown under the bus by a dozen allopaths, I finally started getting help from a naturopath. RE the mitochondria, there is something called mitoq…VERY expensive, but they offer a three month trial, and if you don’t feel it helped after that, they will refund all but around $20. You might want to look into that.
Hi Tony,
I too suffer from severe insomnia and ringing in the ears. Between the ringing and the neck and joint pain, sleep has become nearly impossible since November 2017.
I am hopeful, as I have recently begun acupuncture and am interested in the Chinese herb that you mentioned! I will try anything to rid myself of the the ringing,as it is nearly driving me insane.
Good luck on your journey.
Tony, what helped you the most with candida? Do you feel the Floracor GI was huge or antifungugals? What antifungugals did you take and/or what do you feel did the trick in healing your gut and candida?? Thanks!!
Tony, hi! Hope you are feeling better day by day!! You mentioned you were taking a new supplement “clear mind” for your brain fog? Are you having any noticeable results with it?? What antifunguals are you taking for your stomach? How do you know if you need them? My stomach seems to always be a mess. Especially with being loose in mornings and food seems to digest too fast and goes right through me. I am having a hard time figuring out what i need to get my stomach feeling good again. I am a year out and doing much better then I was but still have fatigue, tinnitus and stomach issues. I still get some brain fog too. Just wondering if all of that is still improving for you!!! Any suggestions??
Hey Dee. Sorry for the late reply. I don’t get notifications when someone replies. But yes feeling better by the month haha. Yes the clear mind… I was only able to tolerate it for about a week and then I started to feel funny so I stopped it. I am still seeing my acupuncturist since I am pretty much on the same boat as you. I can sleep, my anxiety is gone, joint pain is gone unless I work out too hard. But at times I do get loose stools, sometimes green, and discomfort in the liver area especially in the mid back. I can’t tolerate deep fried foods as much now. I am not taking antifungals anymore since my acupuncturist believes I have no problem with that now. He believes my liver is the problem. For some reason he said it is not functioning properly and he can’t really figure it out yet. He can only advise me to keep the low glycemic diet and he gives me supplements to aid digestion. He gives me enzymes and L glutamate. I am also still taking magnesium supplements. Ive been trying to follow something called the RCP (Root Cause Protocol). Which tries to re-balance your minerals especially magnesium. That has helped as well. I heard from fellow floxies about this that said this protocol has helped them too. If you have a facebook you will find them under magnesium advocacy group. It is an interesting group and their theory on how to fix many diseases.
Tony. Thanks for getting back to me! Glad you are still getting better as time goes on!!! All that counts is that you keep moving forward! I hope your stomach starts to improve. I did a gut cleanse and liver cleanse that has helped my stomach quite a bit! My tinnitus is more quiet but not gone yet. I am still hoping it disappears in more time! The hardest thing is trying to let go of this mentally and start engaging in life again. It is hard to start getting rid of the fear. Hopefully in time!!!! Keep the faith and keep moving forward!!
H how did you hallucination stop and what was your hallucination?
Hi Tony! I have chatted with you before and you always gave me hope and encouragement!! I really appreciate your helpful suggestions and support. I was just checking on you to see if you are still doing better and improving! Last time we chatted you were getting more and more better week by week! I hope that is continuing for you! I’m now 15 months out and have come a long ways. I am still battling with my stomach (loose in the mornings) and a very early wakeup with anxiety and tinnitus ramped up some. I think my adrenals are a little whacky which causes me to go into an early morning overdrive which seems to calm down during the day. Still a little foggy but again it has improved from day one. I was in pretty bad shape the first several months so everything is moving forward. I think it is mostly my nervous system still trying to heal!? I guess for many floxies it can take about 2 years to really feel mostly normal again? Did you have any issues with your nervous system or adrenals?? If so, is there anything that helped you? I hope you are doing better each and everyday Tony! Blessings…
Tony, also do you still take the Floracor GI and does that make a difference for you? And do you eat regular meat or antibiotic free meats? I eat antibiotic free but once in awhile if I go out I would like to try whatever the restaurant is serving. I’m thinking after 16 months that regular meat now and then would be ok????
Tony, sorry for all the questions. I decided to drink a cup of warm lemon juice when I wake up and I am adding the 1/4 tsp of Celtic salt, cream of tarter and a little Manuka honey. What do you think about that? I have read that warm lemon water in the morning helps your kidneys so I figure why not combine in your cocktail ingredients? How are you doing? I hope well and also still getting better day by day!!! Thanks for helping me out and caring. YOU make a difference in caring enough to give back.
Tony. I hope I didn’t scare you off with all my questions? I mainly wanted to know how you are doing and hope week by week you are still continuing to improve. I have now taken the lemon water cocktail for over a week in the morning using warm water. I haven’t noticed a lot of change but wasn’t sure how long it took and maybe take it twice a day??? Hope you are doing really well!!!!
Tony, it sounds like you feel mostly back to normal!!! That is great!! I’m sure that our immunity system is more compromised after getting floxed and with more and more passing time we will build up more immunity and resistance again!!! ????????Hopefully!!! You are really lucky to have a really good acupuncturist to help and guide you!! I live in a more rural area of CA so don’t have much access to good alternative Docs. I wish I did!!! I just do my best getting info from floxie hope and try to use common sense! Is there a certain brand of adrenal D pills you take and what dose do you take? How often are you drinking your lemon juice now?? I asked you before but was just curious when you drank a beer earlier in your floxing how did you react?? I sure would like a glass of wine again!!! I think my ears might be getting a little more quiet???? Just really hard to tell as it is happening so slowly! Hope your eyes are completely better now!!
L. Thanks for your info on drinking wine again. I actually took your advice before I bought the Spanish wine at Trader Joe!! I tried a half glass 2-3 months ago and did ok and then I tried a full glass a month ago and had a hyper reaction. Heart rate went way up and tinnitus and anxiety went crazy!! Soooo I decided my Gaba receptors were still damaged and I needed to wait longer hence I decided probably be best to wait about 2 years. I have read it can take gaba receptors about 2 years to heal?? I don’t know if you know much about that?? I sure hope my GABA repair fully and back to normal. I did read and I think Ruth mentioned that they usually will heal but of course takes time!! I’m glad you get to enjoy a glass of wine and even a drink!! I wish!! I miss my coffee and my wine!!!! For now I just feel I better play it safe!! My adrenals are a mess (early wakeup and sleep issues) so figure I am not ready for coffee either….????????
Dear Tony, Please consider sending your story to 60 Minutes. 60m@cbs.news.com
Our stories need to be heard, Dan
Tony, it has been awhile!!’ How are you? I hope you are feeling fully recovered and back to your healthy self!!! Dee
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