Daniel L’s Recovery Story

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*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

The Prescription

I took a 6 week course of Cipro 1000mg once/day in early 2015 to treat prostatitis.

First Signs of trouble

The first signs of anything unusual were a low B12 level about four weeks in.

A few weeks later, while on vacation, I started to notice unusual bruising near my joints, in the elbows and ankles after engaging in sports.

I also started to notice pain in my ankles, near where the achilles tendon wraps under the heel. It felt as if the tendon was tearing away.

Further complications

Symptoms began to worsen on my return to work. My ankles would ache if I had to stand for any length of time.

Navigating stairs became difficult because of pain in my Achilles tendons. I used to be able to hike all day, mountain bike and surf all day, but now I could hardly walk around the block.

Walking on hard floors caused stabbing pains in my heels.

My eyes started to give me problems, especially when transitioning from bright light to a darker interior.

A bit later I discovered that one of my front teeth was loose.

We had a very harsh winter this year, and I was extremely sensitive to the cold. It felt as if I could never warm up. I was so cold on the subway, I started to have to wear the warmest boots I could find and my toes would still turn white.

I also had ‘brain fog’ and difficulty thinking (and my job is very analytical, so I started having difficulty getting through my workday.)

Forums scared me to death

I went online and started reading the forums and after that I became very anxious about what I had done to myself.

This information also made me hyper vigilant about every little change in my body.

All of these symptoms I was experiencing were very stressful, and also after reading the forums, I now worried about all the other symptoms I might get.

I started to be very anxious. Every new symptom or worsening of an existing symptom caused pangs of anxiety that were difficult to control.

Doctor’s Responses

My own doctor is wonderful and felt very badly that the medication she prescribed caused this terrible reaction. The only problem was she didn’t know much about fluoroquinolone toxicity or how to treat it.

A urologist I consulted had heard about the reaction but only advised me not to worry, and that summer was around the corner and things would get better.

Treatment Programme

I mainly followed the programme in the The ‘Fluoroquinolone Toxicity Solution’  (affiliate link)(https://floxiehope.com/2014/11/25/the-fluoroquinolone-toxicity-solution-ebook/).

I also started seeing a naturopathic doctor who suggested taking contrast showers to help my body better deal with the cold, and who helped me consolidate all of the supplements I was taking into a more balanced and more manageable number of pills.

First signs of recovery

I felt that things started to improve about 10 weeks into my recovery.

I started to have good days.

The tendon problems in my upper body were the first symptom that substantially improved, then my Achilles tendon on the right went back almost to normal, my left Achilles was not symptom free, but started to improve.

Around this time, I quit my job which was a long commute by subway after a friend offered me a job where I could work from home.

I found a nature trail near my home and I started to ride my mountain bike on it gently, this improved my mood and also seemed to help my joints and tendons recover. On days where I didn’t exercise, everything seemed to tighten up and become more painful.

My List of supplements

Epsom salt baths, Mg Glycinante/ Mg Threonate

COQ10

Vitamin E

A good multivitamin (Ortho Core: http://www.aor.ca/products-page/advanced/ortho-core/)

My message to you

This is the part I’m excited to tell you about.

All the text above is just for context, and honestly if you are on this forum, the story will perhaps seem very familiar already.

What I really want to tell you is that despite what has happened, some of the happiest days of my life have been during this difficult recovery.

It is possible to be be in pain and be happy at the same time, it is possible to be uncertain about the future and be happy at the same time, it is possible to be scared and be happy at the same time.

I have been practicing meditation for about 10 years before this happened. Maybe that’s has something to do with my outlook. If you haven’t started already, it’s not too late to start now. (https://floxiehope.com/2015/05/15/meditation-and-mindfulness-to-get-through-fq-toxicity/) Don’t worry, meditation is a secular practice that anyone can try.

I aslo noticed that during some of my most difficult days, when I just couldn’t take it anymore, I got what I call little signs.

One of those signs was this little flower graffiti I kept seeing on the subway. Sometimes the sign would be a song in a passing car. And one time a usually elusive squirrel in the woods behind the office seemed lead me on a chase through the woods, chattering at me to follow it like a playful child.

I am a very rational thinker and am skeptical of new age Woo, but these experiences made me question those certainties.

My grandmother, who was the strongest person I ever knew, always told us that if it was possible after her death to come and visit us that she would. I never saw a sign of her after she passed away, or did I?

Thoughts and advice

-Don’t call yourself a ‘Floxie’. This happened to you, but don’t make an identity out of it, you are much much larger, more beautiful, stronger and more magnificent than that.

-Drop every onerous or stressful thing in your life that you can. This is your year. Tell everyone you love that you are concentrating on you this year, and that you need their help. Those that love you will understand. Bonus: you will learn who really loves you!

-Trust in your ability to recover.

-Don’t over-think. My rule: thoughts should inform action. If thoughts are leading you in circles and are not helping you decide what action to take right now, drop them.

-Stay away from most internet forums. Follow a good plan, like the ‘The Fluoroquinolone Toxicity Solution Ebook‘ (affiliate link) and stick to it. If you have online discussions about FQ toxicity, keep them focused on problems and specific solutions. Don’t seek commiseration and other psychological support.

-Find an affordable source of joy. For me it has been Hawaiian Reggae music (https://www.youtube.com/watch?v=LGl_d4QWors), for you it may be something else. Find something that brings out your joy and drink it in.

-Stay as active as you can. Find an enjoyable physical activity you can tolerate. For me this was swimming and cycling, both of which are not too hard on the joints. By trial and error, find out how much exercise you can tolerate. I found that no exercise was worse than a bit too much exercise. You need to get the blood flowing to promote healing.

-You will get better. Give yourself a year. You won’t believe the difference 10-12 weeks will make even. What doesn’t get better after a year, you can live with!

-Let go of anger and resentment: those are truly toxic.

Conclusion

I believe that Cipro has and the adverse reaction I had to it has given me a great gift.

My life after Cipro and my life before Cipro really aren’t that different. Cipro just brought it into sharper view.

It reminded me that life is precious fleeting and fragile, and that every day, good or bad, is a gift.

I am now determined to not waste a single day more being angry, not to miss one more opportunity to hug my wife and tell her that I love her, not to waste one more sunny day preoccupied about nonsense.

May you all be happy and well!

On 2/29/16 I got the following message from Daniel:

I took a monthlong trip to Victoria BC to avoid a big chunk of the winter.

I walked all over, sometimes all day, and climbed a small mountain.

Here are some pictures from that trip:

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The park across the street from where I was staying was all in bloom.

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Mt. Douglas Park, where I climbed the first ‘mountain’ since my FQ reaction.

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A chalk mural by the beach seemed to speak directly to me.

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Another chalk mural by the beach seemed to speak directly to me.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

148 thoughts on “Daniel L’s Recovery Story

  1. Nicole July 19, 2016 at 5:08 pm Reply

    Congrats on your ride Daniel! What a great feeling that must have been!
    I have a room for you & your wife when you are ready for those North
    Vancouver trails!!!!
    🚵

    • Daniel L July 19, 2016 at 5:18 pm Reply

      That’s very kind of you. And yes it did feel great.

      It’s like riding a bike, you never forget I guess. 🙂

      Hope you are doing better.

  2. Sarah July 20, 2016 at 3:22 am Reply

    Wow, some of those trails look pretty hard-core!! It’s so good to hear that you’re able to bike again, even if you’re not up to the harder trails yet 🙂

    The cyclical nature of recovering from cipro toxicity is really difficult to deal with, it feels like two steps forward and one step back, but I know I need to take encouragement from any small improvements. Would you suggest resting a tendon when it’s swollen and painful, or should I continue to try and stay mobile?

    Is there any reason why recovery is so cyclical? Does the cipro stay in the body for months, years, or maybe even the rest of our lives? Is it stored somewhere? Maybe in the fat cells, or is it that the cipro has mutated the DNA within the cells of collegen and bone, so when the cells of these tissues are replaced they are already damaged? It’s very unclear as to what the actual damaging mechanism of cipro is.

    Anyway, I’ll try to stay hopeful and keep reading your positive posts which are very inspiring 🙂

    • Daniel L July 20, 2016 at 5:27 am Reply

      >”Would you suggest resting a tendon when it’s swollen and painful, or should I continue to try and stay mobile?

      If it’s swollen I’d rest it, if not swollen but tender I’d walk on it. However it really depends on how your activities make you feel the next day.

      What I mean for rest isn’t exactly crutches or bed rest, just minimal walking, minimal stairs. If very swollen then I guess total rest might be needed.

      I personally don’t think cipro stays around for years, although it is lipophilic, and does get stored in fat cells. However it can be inactivated easily by taking Magnesium anyway.

      It has been shown to alter gene expression in tenocytes.

      You might consider taking Biosil, available in drop form because Biosil also alters gene expression, except in favour of collagen regeneration.

      I personally don’t think cipro alters our DNA directly, but it does alter gene expression. How long that effect lasts for. ¯\_(ツ)_/¯

      But the main point I want to make is you recovery sounds a lot like mine, if you got to a point of feeling good in 3 months, then it’s a very encouraging sign.

      Recovery from each cycle got shorter for me, and should for you too.

      Also make sure to take a really good probiotic, and to be on the lookout for signs of malabsorption. (look up symptoms on google). If you have that then consider taking Betaine HCL + Enzymes. THis will ensure you get the nutrient you need to recover.

      I recovered almost fully until this problem came up (due to a pre-existing condition, non cipro related) and it set me back a bit.

  3. Sarah July 20, 2016 at 7:07 am Reply

    Thanks for the supplement tips, I’ll look into the Biosil, I’m currently taking Great Lakes collegen powder or chicken bone broth, not sure if they help, but they can’t hurt.

    When you cycle through symptoms, have you ever found that initially it’s one tendon that is affected, then next time it may be another? I think the fact that I was having achilles swelling and pain and now it’s the posterior tibial (did a bit of googling and this seems to be the most likely culprit) has me a little worried.

    I have a doctors appointment next week to have this tendon looked at, I don’t think she’ll be able to advise me to do much more that RICE it, but apparently damage to this tendon can cause a fallen arch and eventually foot deformity and permanent difficulties with walking, so I just want to make sure there’s nothing else I can do to help heal (sometimes a cast is advised for this sort of tendon problem).

    I’m just really hoping that this is just a down cycle in my recovery and I’ll bounce back from it eventually. I’m staying positive and believing it’s just another part of my healing.

    • Daniel L July 20, 2016 at 7:30 am Reply

      Cycles definitely migrated to other areas.

      My upper body has been mostly spared, but I did get tendonitis in my arms and upper body even my sternum, but they usually went away in a week or two.

      The trouble sport has always been the left achilles. This is the tendon that is under the greatest strain in the entire human body.

      I read somewhere that it can experience stresses under dynamic load that re 17x your body weight.

      Makes sure you are digesting well. I thought I was digesting fine and I wasn’t.

      I take NuLife Veggie Zyme. It can’t hurt to try it even if you think you digestion is ok. If you notice an improvement with that it may speed your recovery.

      There is Betaine HCL in there, so if you experience burning in your stomach when you take it, then it means you are making enough stomach acid yourself.

      If the burning pain bothers you just take 1 tbsp baking powder diluted in water to neutralize it.

      This is just an optional supplement, but it helped me a lot.

    • Danie L July 22, 2016 at 9:20 am Reply

      I thought it over and if you have Plantar fasciitis, then consider taking vitamin D and vitamin K and Magnesium.

      This will help keep calcium from settling in your tissues, and direct it to your bones instead.

      • Sarah July 25, 2016 at 7:21 am Reply

        I’m definitely not digesting food properly as I have SIBO and have had stomach issues for years (all started after a course of antibiotics when I was a teen). I’ve tried digestive enzymes in the past, but the HCL has always caused too much burning, even when taking only a quarter of a capsule. I’ll try taking them with some bicarb to see if that helps as I really want to get my digestion sorted out.

        I saw my GP today, she wasn’t very helpful, but she a least admitted that the cipro may have caused my tendon issues, although she said she’s never come across it happening before and that it should only take me 4 months to recover from it (!!!!). She’s going to send me to get some specially fitted orthopedic lifts which will be useful, as I’m only wearing shop bought lifts at the moment. But besides this, she couldn’t offer me any other help (which is what I was expecting to be honest). Seems like the medical community either don’t know about cipro toxicity or just don’t want to admit that it’s a problem.

        On the plus side, I rested as much as I could over the weekend and the pain and swelling has decreased. I also cut out oxalate containing foods and this seems to have had an almost immediate effect on the intensity of my pain. Is this something you’ve come across before? Oxalates are quite toxic to mitochondria and, as I have a mito disease, this is something that could be hindering my recovery. Might be a problem for other people effected by cipro toxicity too, even without a mito disease.

        • Daniel L July 25, 2016 at 7:28 am

          Ok then if the betaine gives you burning, then you don’t need it. But digestive enzymes could be of help.

          If you have malabsroption consider taking a mineral and amino acid supplement.

          As for Oxalates, cipro my kill some of the bacteria in the gut that help break down oxalates. Some nay sayers say they never come back, but I think they do, it just takes a long time.

          I take Remyte and “Truehope Freeminos”.

          Googling either should show you where you can buy those products.

          I also take supplemental glutamine, which helped heal my gut. (my abdomen used to be sore on palpation, but it went away after 4 weeks of gluamine)

          Sorry you are still having so much trouble, but hang in there, and make sure you are getting those nutrients!

  4. Daniel L July 20, 2016 at 10:32 am Reply

    Getting ready for a surfing trip to Tofino in September.

    So excited.

  5. Nicole Reedy July 22, 2016 at 10:06 am Reply

    Hey Daniel,

    I understood what you meant & know that is so true!

    I had been letting a fear from a return of my diverticulitis pain put me in a dark place for worry of going down the antibotic trail again! My WBC is fine so far so no infection so like you & your scare of your illness returning I am hoping it just heals itself, but if not I am not going to live in fear because I know there will be times we all have to face having to take a drug again or even have a surgery. Time to let that part go!

    My new burning symptom is getting much better & has been around 6 weeks so you are right on about the time we kind of get through things.

    Had a good talk with my doc about my shoulder tear and he told me that my tendon would not be healthy enough for surgery & shoulder surgery often makes things worse anyway. Since I have full range of motion to not worry about it. He did check my feet again and knows most of my tendons are in pain but just like the rest of you he tells me to give it time. He actually knows a lot about FQ’s from his time working in the States. He told me that many mistakes were made with me in the ER but most Canadian doctors do not know the dangers of these drugs at all & what was done to me was just without knowledge! Still mad about it but it’s done so need to move on.

    I know we all will have fall back days but you are right there are at least go forward days!

    My brain has really cleared a lot but my body has not caught up, darn it!!! LOL

    Wishing you a great weekend!

    Sunny & nice here on the west coast! (: August is looking good weather wise for you!

    Hugs,
    Nicole

  6. Nicole Reedy July 22, 2016 at 1:59 pm Reply

    Just read your post on the day after your ride & know in my heart you are ready to give it a little more. Let the FQ Daniel go & ride the trails & the waves! (:

  7. Martin July 25, 2016 at 2:03 am Reply

    Hi Daniel, it’s a great story and even greater that you have recovered. I was given cipro in Jan this year for prostatitis. I took it for 1 month but I’ve had chronic fatigue and gritty eyes since then and wondered what’s wrong with me? I started cycling again and felt better doing longer and more intense rides as the weeks progressed. That was until the past 2 weeks when I took ibroprufen following a hip Arthorgram (where they inject contrast dye). Since then I’ve started with burning hands and feet, crawling tingling feelings in my lower legs and tendinopathy throughout my body. I’ve also recently been getting dizzy and having cognitive problems at work. I’ve just got some Epsom Salts and ordered some magnesium to help me heal, but
    I also take vitamin D, probiotic, turmeric and omega 3 tablets. What’s the thing that made the biggest difference to you? I’m off to see a natural doctor in September hoping she will help me recovery. Thanks Martin

    • Daniel L July 25, 2016 at 7:12 am Reply

      It’s hard to tell from your post, but I would get checked out for Adrenal fatigue and also run some thyroid tests just to rule that out.

      The best way to check out adrenal function is a saliva cortisol test (rocky mountain labs or similar, with 4 tubes).

      For thyroid (dry eyes is a symptom, fatigue and cognitive problems also ) get at least these labs: Free T3, Free T4, RT3, TSH.

      Consensus on the TSH reference ranges is changing, and many think that the typical range leaves some hypothyroid patients untreated. Some say TSH > 1.5 is bad, even though the range in Canada considers people normal up to as high as 5.5.

      Athletic training (and worrying about things such as Cipro toxicity) can put a great strain on the adrenals, which can put a strain on the thyroid. Some say Cipro has a direct toxic effect on the Thyroid.

      I would have these things checked out, to possibly rule them out.

      And what is the solution to all this if you do have adrenal fatigue? You might not like the answer but it will require taking a break from strenuous exercise for at least 2-4 weeks.

      This is just IF you have any of that.

      Definitely take Magnesium, Vitamin E and Vitamin C at a minimum (see the ebook in the links below).

      Also consider taking Elixa probiotic. See links below.

      Do not neglect your gut, I thought mine was fine but it wasn’t!

      And to answer your question, the thing that helped me the most was joy. More specifically happy music, but it could be something different for you. Try to find something that brings you joy, preferably something affordable, and try to feel joy and gratitude every day.

      I know all this can be overwhelming and confusing. Take it one step at a time, one day at a time.

      If you feel like talking on skype, write me back a message and we can schedule a time.

      Links:

      http://www.elixa-probiotic.com/
      https://floxiehope.com/2014/11/25/the-fluoroquinolone-toxicity-solution-ebook/
      https://adrenalfatigue.org/adrenal-fatigue-questionnaire/
      http://adrenalfatiguesolution.com/testing-for-adrenal-fatigue/

    • Daniel L July 25, 2016 at 7:50 am Reply

      Hi Martin,

      I replied at length with resources and links. I think because my reply contained links that it’s now sitting in a moderation queue waiting for Lisa to approve.

      I’ll check back later and make sure the longer comment shows up.

  8. Daniel L August 7, 2016 at 1:35 pm Reply

    I discovered a link between vitamin D and my tendon pain. I started taking vitamin D even in summer, and even despite my levels being within range on the lab tests.

    It could be a coincidence but my tendons are 100% clear right now.

    It may be due to calcium ending up in the tissues, so that when you take vitamin D it puts them in your bones where it belongs.

    My joints are holding up fine. I’ve even started cross training for surfing on a carver skateboard, which puts enormous strain on the knees and lower legs.

    A video of the Carver surf style skateboard in action. They turn like a surfboard!

  9. Nicole Reedy August 7, 2016 at 1:52 pm Reply

    That is great Daniel! How much D a day are you taking & how much calcium?
    So when are you & your surf board heading out?!

    • Daniel L August 7, 2016 at 4:49 pm Reply

      I pop a few D3 pills, maybe up to 3000-4000 IU per day.

      Calcium, I just take 350mg Calcium Citrate and pair it with a 400mg Mg Glycinate to balance things out.

  10. Nicole Reedy August 8, 2016 at 11:30 am Reply

    Thanks Daniel, I have been taking the D3 but not any calcium because I thought it absorbed the mag. up. I will get some & add a bit more mag.

  11. Daniel L August 22, 2016 at 5:41 am Reply

    Hey everyone.

    I think this is going to be my last message for a while.

    After 18 months, all my Cipro induced symptoms are gone.

    All my remaining symptoms actually are caused by slight hypothyroidism that my medical records show I have had for years. It looks like both my doctor and myself missed that one.

    It has been great getting to know you guys on this site, and I wish you a speedy recovery.

    I am headed to Tofino in september to surf. I am also starting to train to get back on the North Shore trails in BC.

    I am also starting a new job in september, which I am excited about.

    I’ll leave you guys with two funny stories.

    My brother spontaneously ruptured his achilles tendon just a few weeks ago. He never took Cipro or any FQs in his life. My friend who is my age has been complaining about his achilles tendon, saying it felt too short and that it gets inflamed. He has never taken Cipro in his life either.

    My brother my friend and myself are all getting older, and these anecdotes taught me that you can’t blame everything on Cipro.

    I wish you all health and happiness. You will get better. When you have a good day write it down on the calendar. Then when you have a bad day tell yourself you can get back to feeling like that.

    I will respond to direct messages to this page, but I can’t promise anymore updates since I don’t want to think in terms of floxing anymore.

    I also have plans to spend a year in Hawaii!

  12. Daniel L August 22, 2016 at 5:56 am Reply

    Ok couldn’t resist.

    In Canada we have a beloved band called the Tragically Hip. Sometimes they are referred to as Canada’s house band.

    The lead singer Gord Downie was diagnosed with terminal brain cancer at the age of fifty two.

    They had planned a tour for their latest album before the diagnosis. Bravely they decided to go on tour anyway.

    This is expected to be goodbye.

    The last show of the tour on August 20 was watched live by millions of Canadians. Our prime minister was at the show.

    Here is the last song from the last encore.

    Life is short people.

    I try not to waste a single moment being angry and thank god for each and every single day of my stupid little life! Maybe that could work for you too.

    (Sorry for the sound quality, it’s not great, but I believe it captures the moment.)

  13. Nicole Reedy August 22, 2016 at 12:49 pm Reply

    This was the most exciting update I have seen!!!! If I could jump up & down I would!!!

    I have a prayer I say for all the people who have been hurt on here every morning & at bedtime but always name you & Ruth. Ruth is also starting a new job & just had a wonderful post on her facebook page playing in the surf. You two have made me so happy!!!!

    I had been on your page because I just had the worst setback with new symptoms at 6 months now & thought I had remembered the same happening to you. There is was and gave me back my hope as you always have with a song!

    Must tell you though that my son went into a walk in clinic last week & the Dr. gave him a scrip for cipro & he told her he would not take it because of the effect it had on me. She ask what that was and he told her about my tendons & nerve burning and she said she had never heard of anything like that! Gave him another scrip & he had taking it for two days before he clued in it was just another FQ, levaquin!!!! Of course he googled and saw all of the USA warnings & called me yelling about what is wrong with these Canadian doctors!!! I told him to start some mag. right away & the next morning I sent him a text that I was going to my NP for my myers, mag. & glut. IV & would have her give him one if he would like one. I was sure he would just blow me off but he got right over there & did it! She gave him some supplements and told him why he should not take any Advil which he takes a lot.

    I did try to get him to stay off of the bike trails for a few weeks but did not work. Will just pray he does not get hit, that’s all I can do.

    You are so right about the fact we can not blame everything on FQ”S. I had problems before & will continue to as things happen. My daughter in law has a shoulder tendon rupture & did not even know it until a MRI and like me is just letting it go. No FQ’s there as well. So there you go!!!

    I do believe we at least should have more understanding about FQ”S in Canada & even though I do not want to live the rest of my life in Floxiville I will do everything I can to get to the doctors & druggists here when my health is better. I just can not live with letting people get hurt because the education is just not out there or believed!

    My home is still open to you when you are ready to hit the northshore trails.

    I just can’t tell you again how happy you have made me today.

    Hawaii dreaming my young friend!!!

    Courage was seen in watching the Tragically Hip! Went to Earl’s and watched in the bar.
    It was my first trip to a restaurant in 6 months! They have antibiotic free meat now. LOL

    Thank you for everything you have done for so many people on Floxie Hope!

    Hugs to you always,

    Nicole

    • Daniel L August 24, 2016 at 6:17 am Reply

      Thanks Nicole for the kind words.

      We will be driving past you on the way to the ferries soon. I’ll try and send good energy your way as I pass.

      Feel free to comment here anytime and I’ll reply as soon as I can.

      Good on your son for not taking those FQs. I think you definitely helped him dodge that one.

      Maybe I’ll meet him on the trails one day. May favourite one is ‘Upper Oilcan’ and I ride it with all the toughest double black lines too. 🙂

      Also just a final comment for anyone who reads this page and thinks: “well, he’s just a positive person, I’m not like that”.

      When teaching math to kids the number one gift you can give them is to tell them that we all find math hard, and that no one is born good at math. If you don’t tell them this and they struggle, they may give up thinking they are not a ‘math person’ and that they’ll never get it.

      There are not positive people or negative people. Just people.

      If you are finding it hard to stay positive in the face of FQ problems, you are in good company because we all do.

      The best way I know to work on it is to: 1) be grateful for what is good about your life today, 2) don’t assume pain equals damage all the time 3) don’t worry about future symptoms, cross that bridge if you get there 4) trust your body to heal, because it is doing so already 5) cultivate good feelings every day

      Also I wanted to say that I sometimes don’t feel qualified to give advice to people who are either worse off than me or older than me. I am humbled by what our older members are dealing with.

      I’m in my mid forties and I’m already creaking, so props to every one of our elders who are bravely dealing with this too.

  14. Sarah August 23, 2016 at 3:49 am Reply

    So nice to hear how well things are going for you, good luck with your new job and your time in Hawaii, you’ve been such an inspiration 😀

    • Daniel L August 24, 2016 at 6:19 am Reply

      Thanks.

      The job is real, and Hawaii is just in the ‘dream’ phase right now.

      Hope you are doing well.

  15. Nicole Reedy September 1, 2016 at 6:43 pm Reply

    Hey Daniel,

    I hope you have a great time on Vancouver Island. When you pass the Cypress exit on the way to the Ferry you will see 3 highrise condos on your right that look just alike, I will be in the 1st one watching for you!!!

    Thank you for thinking about us oldies!
    I had figured you were in your early 40’s, that was when my body started changing as well! 😄😀😃

    It is very hard to fight all of these setbacks, the pain & craziness of this toxicity when you are older for sure. I just sometimes feel I am so weak I am just going to die! 😄😀😃 But on the other hand we just want to go for a walk, do our own shopping, clean our home & play with our grandchildren.
    Do not have to get back to the place you young ones do. I have no plans to mountain bike or surf!!! Thank goodness! So we just have to get back to making it through a normal day.

    I know you have had depression over this, how could you or any of us not?!
    But you have found the happiness in the moment which has been your secret!

    I have thought so much lately about the most wonderful thing that has come out of this & it has been the wonderful & caring people I have met on Floxie Hope & Kerri’s site. Everyone cares & try’s so hard to help each other!!! Wouldn’t it be wonderful if the whole world could be like Floxies?!

    So anyway let us hear about your trip out here in beautiful BC my friend!

    Hugs,
    Nicole

    • Daniel L September 19, 2016 at 5:40 pm Reply

      I had a great time.

      I surfed 3-4 times, each time a 2-3 hour session, which if you’ve surfed, you’d know is a LOT of exercise.

      I handled this all pretty well. I ate at Westside Grill afterwards as if my life depended on it though.

      It rained 5 days straight, but you are already wet in the ocean, so who cares. If anything the surf break is less crowded that way. Eagles flew overhead as we surfed in the rain.

      I also went on long hikes, no problems from the tendons.

      The wilderness is amazing over there. We saw a bear and cougar prints. They say that in cougar country you hardly ever see a cougar, but you can bet that a cougar has seen you!

      I’m putting on muscle so much that the chest portion of my wetsuit is too tight now. 🙂

      • Daniel L September 19, 2016 at 5:42 pm Reply

        Every time I caught a wave it made me say “Hana Hou” (“Let’s do that again!”)

  16. Nicole Reedy September 19, 2016 at 7:49 pm Reply

    So happy you had a great time on the Island! 🐆🌊🏄🏻
    I am even happier with your non Floxie life now! Time for a new wetsuit!!!
    I expect to see you on the north shore trails on your next trip out! 🚵🏽🚵🏽‍♀️🏔
    I am thinking positive thoughts of you everyday.
    Enjoy the new job & update us every once in a while. 😀

    • Daniel L September 23, 2016 at 5:26 pm Reply

      More good signs, I’m putting on wight like crazy and no it aint fat (well maybe a bit, but I needed it…)

      I’ve been gaining 1/2 lb every 2-3 days over the last two weeks.

      I’ve been exercising a lot more and the muscle has been packing on.

  17. Nicole Reedy September 23, 2016 at 5:56 pm Reply

    That is great, Daniel!
    I have another friend like myself who has had low weight so there is hope!!! Maybe not for the muscle for me though! LOL

  18. Ryan L October 31, 2016 at 2:38 pm Reply

    Daniel L,

    Thank you for letting us follow you in your recovery story. Hearing that your tendons have gotten stronger over time is very encouraging to all of us who are struggling with that symptom. I recently ordered a 6 day pack of Elixa based on your recommendation. Just curious, did you only take it for 6 days, or did you continue taking it longer than that?

    • Daniel L November 1, 2016 at 5:00 pm Reply

      Hi, I have taken Elixa on and off for about a year and a half. I never really took as directed, because as you know our systems can be delicate.

      It took at most three at a time, over a period of a week.

      I found Elixa really helped rebalance my gut flora.

      Another little know probiotic I would recommend is General Biotics (www.generalbiotics.com), I like that one as well because it has _lot_ of different strains. 115 if I recall correctly.

      On a personal note, I have been commuting to a new job by bike, for a total of about 20k a day and it’s made me put on muscle in my legs. The joins are pretty good. I can do this pullup rock climbing exercise routine which is brutal on the tendons of the forearms. SO far so good.

      I think for most, there really is hope after FQs, but we do have to wait for it, so for those of you still in the thick of it, hang in there! (http://www.fitmomofnine.com/wp-content/uploads/2014/07/tumblr_mgaa646asU1rgol3no1_500.png)

      Hope you are doing well.

      • Ryan L November 21, 2016 at 4:02 pm Reply

        Thanks Daniel for the super fast response. You are the man! I have the general biotics probiotics as well per your previous recommendations. I have digestive problems taking an entire capsule of any probiotic, but I find I can sprinkle a little bit into my morning yogurt each day without any major problems. Glad to hear you’re continuing to improve.

  19. Nicole Reedy November 1, 2016 at 7:24 pm Reply

    Wonderful to see you doing well, Daniel.
    I keep you always in my prayers.
    And thank you so much for the kitty tonight. I really needed it!!!!!
    I hope you are enjoying the new job.
    See you on the north shore next year!
    Nicole

  20. Daniel L November 15, 2016 at 6:20 pm Reply

    Another update, though I’ve said I wouldn’t. 🙂

    I’m doing well at my new job, working with very very smart people. It’s humbling to be there actually. We have seminars on Fridays where we cover the whiteboard with equations.

    I was very lucky that this job landed in my lap just when I needed it, and the previous job where I got to work from home while I recovered, landed in my lap just when I needed it.

    Isn’t that funny?

    At difficult times, I often encounter a red squirrel. It’s becoming odd, I call it my power animal.

    Look for those things in your own lives. Be open to it. It may sound silly, but I’m becoming convinced. You can be the kind of person that works with equations, and believes in power animals.

    I’ve been surfing in BC and in the lake nearer to my home. The waves don’t break that often in the lake, but I’ll take what I can. I can skateboard, do pullups, I bike to and from work every day in all kinds of weather. I’m packing on muscle.

    One thing I’d like to point out is to look for signs of adrenal fatigue, and treat it if you can. (https://adrenalfatigue.org/adrenal-fatigue-questionnaire/)

    It was a big part of my problem.

    I’ve found I needed a tiny dose of Thyroid meds, which I now believe I will be able to go off of eventually (because weak adrenals put pressure on the thyroid.)

    I have found Pregnenolone to be of great help in resolving my adrenal fatigue. Be careful with this stuff though, it is a hormone so take tiny doses. It’s probably best to work with a practitioner with this one.

    It helped me a lot. I was so fatigued just a month before taking that job, it was like a leap of faith that if I landed the job that I could actually do it. Success was not assured. I had to believe that I could go from needing naps at 11:00 and 2:00pm every day to being able to keep up with geniuses, and I somehow pulled it off.

    I am overflowing with gratitude for that.

    I wish you all the best.

    A mellow one and a rowdy one:

  21. Daniel L November 15, 2016 at 6:27 pm Reply

    And two more:

    J Boog covers Junior Murvin, not sure which version is better!

    and an oldie

    Featuring Ernie Cruz who died recently, body surfing. Life is short, make the best of it!

    http://www.hawaiinewsnow.com/story/33144302/popular-hawaii-musician-ernie-cruz-jr-guitarist-for-kaau-crater-boys-dies

  22. Daniel L November 15, 2016 at 6:57 pm Reply

    Also, from the only Rock’ ‘N Roll band that matters, the Clash.

  23. Daniel L November 22, 2016 at 6:47 pm Reply

    Ava Root – A kava Ceremony I believe?

  24. Nicole Reedy December 20, 2016 at 6:56 pm Reply

    Hello Daniel,

    I think about you all the time & keep you in my daily prayers.

    I hope the work is still going well & you are getting stronger everyday.

    A very happy Holiday to you & your wife.

    Peace & Love,

    Nicole

    • Daniel L December 23, 2016 at 3:58 pm Reply

      Thanks for you kind wishes. I think of you often as well.

      I hope things are going well for you.

      Merry Christmas, to you and your husband.

  25. Daniel L December 23, 2016 at 4:01 pm Reply

    It doesn’t get any darker than this.

    Literally, for those of us in the northern hemisphere, these are the darkest days of the year, but from here on it gets a bit brighter every day.

    Maybe this is a metaphor we can live by. Accept the cycles, but also know, that when things seem like they can’t get any darker, often the recovery is just around the corner.

    I wish you all a wonderful holiday season, and a full recovery.

  26. Nicole Reedy December 23, 2016 at 4:45 pm Reply

    I pray many Floxies see this, Daniel.

    So well said, hope & faith is so important to healing!

    To just around the corner! (:

    Thank You!

  27. Claw January 5, 2017 at 3:04 pm Reply

    Great advice! Glad you made such s great recovery!

    • Daniel Lavoie January 7, 2017 at 3:48 pm Reply

      I’m glad when people tell me my story helps.

      Hope you are doing OK.

  28. Daniel Lavoie January 7, 2017 at 3:51 pm Reply

    BTW, if any of you like the music posted here, you can stream good tunes from here:

    http://native925.com/ (Click on ‘Listen Live’ Button at the top of the page.

    It’s available in the US and Canada.

  29. Daniel Lavoie January 16, 2017 at 5:50 am Reply

  30. Daniel L February 25, 2017 at 7:36 am Reply

    It’s been two years on the 18th of February.

    Honestly I forgot, till someone reminded me.

    I’m still putting on muscle like no tomorrow, rock climbing, riding to work 20km per day.

    Headed to Hawaii soon to do some surfing.

    Wishing you all a quick recovery.

  31. Nicole Reedy February 25, 2017 at 9:13 am Reply

    This is the most wonderful news I have heard in a long time!!!! So…..happy for you Daniel.
    I still keep you in my prayers everyday and you were my 1st floxie friend.
    Happy surfing! 🏄🏄🏄🏄
    a hui hou,
    Nicole

  32. Daniel L March 18, 2017 at 4:11 pm Reply

    Just got back from Maui where I surfed 2 to 3 hour sessions almost every day for two weeks. My surfing improved a bit every day. Got reef cuts all over though 🙂

    I had adrenal fatigue that persisted for a long time sometime after being floxed. I guess I don’t have it now, cos when you have adrenal fatigue, you can’t do that! 🙂

    I also noticed not even a tingle in my tendons the whole time i was away, but on return, especially when stressed, I could feel little tingles.

    There is no damage, it’s all psychosomatic at this point. (see Dr Sarno’s book “Healing Back Pain” for more info on that.)

    Full and complete recovery is possible, hang in there and don’t give up!

  33. Daniel L March 18, 2017 at 5:03 pm Reply

    Go to the website below and click on play next to the song “Not Tday”.

    https://www.busybisi.com/

  34. Sarah Banno March 19, 2017 at 1:53 am Reply

    That’s so great to hear Daniel 🙂 How long has it been now since you initially took cipro? It’s almost a year for me and I’m doing really well, I plan on writing my story when I return to snowboarding and ballet, which I’m going to give a go next month. Fingers crossed I’ll be up for it! Your story of recovery helped me so much in my darkest hours, just want to say thanks for the support and encouragement. X

    • Daniel L March 19, 2017 at 4:48 pm Reply

      It’s been about two years.

      A good sign is when you start missing ‘anniversaries’. I forgot all about it until someone reminded me.

      Good luck with your snowboarding and ballet. And remember to not get discouraged if you have some trouble getting started, stick with it and be patient. You will get there.

      Take it from Iakopo, the “White Samoan”, don’t be practical and tell yourself it’s safer if you don’t go for it, cos “Dreams will fill your soul”

  35. JAMES April 11, 2017 at 4:39 pm Reply

    this is a great website for hope but if you dwell on each one of these stories you will delay your recovery. by all means read up and study on your illness, get a holistic treatment plan, then try to move on with your life. positive vibes help….RECOVERY IS POSSIBLE… I PROMISE…..

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