Diego’s Story – Levaquin Side-Effects

Diego

*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

I was first given LEVAQUIN at age 26 when I had endoscopic surgery of my sinus. After that, my ENT doctor would prescribe me LEVAQUIN every time I had a sinus infection for the next six and half years.  Everything went hay wire the last time I took it at age 32.  During the six and a half years I took it, it had not affected me like it did when I took it at age 32, in March of 2011.  At age 32 I came down with a very strong sinus infection and would not go away so I took LEVAQUIN and I became very ill.  I woke up one morning and the back of my head felt numb.  I panicked and as I proceeded to my living room I felt tingling all over my head as if someone were pouring water inside my brain. I was blacking out and so I called EMS with my cell phone and my family with my house phone and sat on the couch.  I immediately thought I could possibly be having an aneurism.  Once EMS arrived my blood pressure was elevated and I was shaking.  Once I got to the hospital they ran many tests and did not find anything.  The only concern was that my liver count was a little elevated and was advised to continue to taking LEVAQUIN. (In the past I had read on the possible tendon tears and told myself not to use again, but I did because I trusted my doctor),  so I continued taking it despite the fact that from my knees down it was very difficult to walk and felt very heavy.  I began to have a lot of anxiety and my doctor prescribed Xanax to me.  So many strange things were happening and EMS took me again to the hospital weeks later. Again, they did not find anything and sent me home.  I woke up one morning and my entire body – from head to toe – felt very numb.  I could walk but it was very difficult.  I could barely shower so I went to my doctor and immediately they took me to a Neurologist and ran an MRI of my brain. For the next two weeks they ran many tests and I had to go on Medical Leave.  All of my tests came back normal.  The neurologist said my brain was/is perfectly intact.  The only deficiency I had was in vitamin D (count was 19).  So basically the neurologist told me I had experienced some toxicity in my body and there was nothing to do about that but that the body would resolve itself.  My family at this time feared I might have MS or a very serious condition but that was not the case.  All of this was very difficult because I felt like I was jumping out of my own skin, it was a very horrible feeling.  Everything seemed different.  My general doctor told me no medicine what so ever for a while.  I only took B12, Vitamin D, and melatonin to try and sleep a little bit.  I had a constant feeling as if I were dying.

After six weeks I began to make small progress and returned to work and was off for the summer. During the summer of 2011 I attended physical therapy but it was very hard for me to do much. My body was very stiff.  For an entire year I took Vitamin D and some B12.  I began to eat very healthy and live life very simply.  I was not able to sing any more or be as active as I was before.

Then, my second year of recovery I did not take any more supplements. I reacted to everything.  My stomach kept getting worse with vitamin D. At exactly two years, I had a very bad relapse but came out faster than the first time. My vitamin D level was low again (17).  I had another MRI of brain, neck, and spinal cord.  Everything came back normal.  Again I had to go on medical leave and in six weeks I returned to work and then I had the summer again to keep getting better.  I was put on vitamin D supplements again for another year and after a full year I began hurting so much.  So I stopped. All this time I kept thinking it was just perhaps stress and low vitamin D.

Then I finally researched what my gut was telling me and I went back to the basics of LEVAQUIN went to my ENT and told her, I know what happened to me, I had an adverse reaction to LEVAQUIN!!! She said, yes I always had a suspicion that is what happened to you and it is just going to take time to recover. I told her I just want to get better.  She cried and hugged me and told me she was sorry.  I told her, just help me get better.  By this time I had come across FloxieHope.com and was communicating with Lisa. I presented my doctor with all kinds of research and she seemed very nervous. I told her I’m not mad, I told her she was human just like everyone else. So ever since this moment I realized LEVAQUIN is what went wrong in my body.  I must have taken over 60+ pills. So I can imagine that my recovery will be longer than most. This all happened in October of 2013 -This is when I realized that LEVAQUIN went wrong in my body and not a result of vitamin D deficiency. This is when I began to be very aggressive with my recovery. I began acupuncture and improved my diet. My job as a teacher helps me so much!!! It has been very hard to work these past 3 years but I have been able to! I praise God for His strength and I’m blessed to have my parents help me very much. I have been one of the best teachers in these past three years. We are now in March of 2014 and I have begun to use Doterra oils and I have seen some results but it is still early to tell their full benefits. (One thing I forgot to mention before is that during my first year of recovery, I had to get tubes in my ears since I couldn’t take medication for ear infection).

Symptoms I Had:

  • Abdominal and stomach pain which started at two years of use but didn’t see the connection
  • Agitation
  • Feeling that others can hear my thoughts
  • Fever
  • Pain, Inflammation, Legs hurt a lot, Calves hurt, Feet hurt
  • Redness around neck area and swelling for about 3 years—now I know why
  • Sensation of burning on the skin
  • Itching
  • Blurred Vision
  • Tired and burning eyes, as well as red
  • Difficulty chewing, talking, and swallowing
  • Drooping eyes
  • Fast heartbeat
  • Hoarseness
  • Joint and Muscle Pain
  • Muscle Spasms, Pain, and stiffness—Weak hands could barely lift anything
  • Dizzy
  • Tired
  • Exhausted all the time
  • Tightness in chest
  • Unsteadiness or awkwardness feeling
  • Feeling faint
  • Loss of the ability to sweat
  • Peripheral Neuropathy
  • Numbness
  • Nausea
  • Lightheadedness
  • A little elevated BP
  • Insomnia—Worse the first year, with little improvement the second year
  • Feel very heavy from knee down
  • Brainfog- Hard to read the first year
  • Weak voice
  • Anxiety
  • Loss of sensation in eyes—freaked me out at first

Symptoms still present

  • Peripheral Neuropathy
  • Pressure in Head and Numbness
  • Tightness in head and calves
  • Shoulders, legs, neck, and feet hurt or bothersome
  • My neck is weak
  • Can’t tolerate medicine or supplements
  • Trouble Sleeping but not as much as before
  • Weak Muscles—I walk normal but I feel I walk strange inside
  • Some stiffness
  • Very little twitching

Things that have helped

  1. Healthy eating. I have eliminated caffeine, excess sugar, chocolate L only eat it once in a while, treat myself to dessert sometimes.  I only drink water all the time.
  2. My faith in God.
  3. My career
  4. My family
  5. Sunshine
  6. Shopping Therapy :p
  7. Cherry Tart Juice
  8. Lots of herbs—Ginger and Lemon, Peppermint, Arnica, Chamomile
  9. Lavender oils—Doterra, DZ
  10. Acupuncture
  11. FloxieHope.com
  12. My doctors validating that LEVAQUIN did this to me
  13. MUSIC—I am a singer—lots of music
  14. Daydreaming that I will sing again and pursue a promotion as a school principal one day!
  15. Believe with all my heart all this will pass and I will be whole again! When? I don’t know but it will happen!!!
  16. Stay calm and not stress
  17. Simple living
  18. Walks to the mailbox
  19. Walks around the neighborhood and treadmill
  20. Watch lots of chick flicks because I know God will bless me with a beautiful wife and kids one day!
  21. Watch all the music shows! The Voice, American Idol, America’s Got Talent, The X Factor.
  22. Be as social as I possibly clan
  23. Get Up, Dress Up, and Show Up no matter how I feel
  24. REST, REST, REST as much as I can
  25. Read inspirational books
  26. Wrote grants for my classroom which I got and made me feel good
  27. Baking when I have good days
  28. Stay FOCUSED on my recovery!!!

Life Now:

Well it has been three years since I became ill with the LEVAQUIN blues! I can do a lot of things, but I still can’t do a lot of things. I am much better than before. I feel about 65-70% recovered. I have much more power in my voice and can sing a little bit. The first two years my parents would stay with me a lot but now I stay by myself and do all my house chores and work successfully as a first grade bilingual teacher. I eat a very healthy diet and try to eat a little bit of everything.  I eat dessert sometimes and chocolate very little. I’m not afraid of dying anymore and I get in my car and go shopping.  I go to the grocery store and buy lots of organic food. I still have very bothersome symptoms and don’t quite feel like my old self, but I can laugh and smile more. I now believe I can reach 100% recovery!

Before being floxed I was in a hurry to live life.  I was always over-committed, an overachiever, in a hurry, did not take time to just sit and relax. (I was on my way to getting my Doctrate degree— I don’t want one any more)!  My mission was to become a school principal and keep moving up the ladder. Now I am so grateful to just teach, I know I will become a school principal one day, but I am not in a rush to get there right now.  I know it will happen when it needs to happen. No matter what I get up, get dressed, and show up! I still have a ways but I will get there, I know I will.

I am most concerned about being able to sing strong tenor notes again and be a part of my church choir and music ministry.  For a time a felt like I was going to end up in a wheel chair but I know now my legs need more time to heal.  I don’t stress about comparing my recovery to other floxies.  My recovery is mine and mine only and it will take me as long as it will take me.  My neurologist who at first thought I was crazy is on my side now and helps me every way he can and told me it would potentially take me 5-6 years to fully recover and told me that a day would come where all the symptoms would just go away.  CNS, tissue, tendons, ligaments, etc… are extremely slow to heal. He said I’m healthy and young enough to recover. I do a lot of nice things for people, makes me feel good! I’m very positive and an encourager. I live life as best as I can and try to do as much as I can. My suggestion to you all is to keep on keeping on. One day everything will pass! When? I don’t know, but it will.  I’m right here with ya!!! It’s a process, it’s a journey!  I know I will never take things for granted anymore! I know God has a very special plan for me and He has a special plan for you too!  I always wake up every day saying, “one day closer to my full recovery!”

 

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

73 thoughts on “Diego’s Story – Levaquin Side-Effects

  1. Eleni February 27, 2019 at 3:03 pm Reply

    Hey Diego our reactions are similar did you have muscle weakness and feeling something is pulling on your spine how long did it take the insomnia to go

    • Randal March 29, 2019 at 5:06 pm Reply

      Hi Elena I have severe and I mean severe dying muscle weakness all over my body . I have that symptom yes. I did some research and it definitely leaves ! How long have you had it ?

      • Eleni Matheou April 3, 2019 at 3:36 am Reply

        14 months

  2. Dan Jervis March 2, 2019 at 3:55 pm Reply

    Dear Diego, I am Dan Jervis, the last one on the long list. Would you please consider sharing your story to CBS 60 Minutes? 60m@cbs.news.com
    OUR SORIES NEED TO BE HEARD, Dan

    • Diego March 2, 2019 at 5:19 pm Reply

      Sure !

      • Diego March 2, 2019 at 5:21 pm Reply

        Dan Jervis I would like that!

  3. Rajiv Thamman March 13, 2019 at 8:04 pm Reply

    Hey Diego,
    Can you tell me about your peripheral neuropathy symptoms and how long it took to heal them? Thanks

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