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my sweet lord
9 years ago
Hi folks i´m currently battling myralgia parestetica, i´m bedridden. But i wanted to check in and tell everyone the news on b12 methycobalamin, investigate it, it is very promising in many ways related to neurological damage and recovery. The brain fog lasts about three month depending on the damage but methycobalamin would help a lot in that area as well as many other areas. noone is exempt from damage once the get an adverse reaction. if they have a lot of money they can get better treat ment options. The point to remember is this, quins destroy the capillary system and from their the entire body begins to atrophy, since your stomach is destroyed you can not absorb foods as well as before, that is why recover takes a long time, but everything you can do to help yourself is a big plus.
Lucero Rojas
9 years ago
Hi Linda
I am here in texas my doctor is in Austin. He is a holistic doctor.he knows about the gene mutation but said myers would help me but I didn’t know that is kind of contradicted having vitamins b when having that gene mutations. I am confused now!!!
Lucero Rojas
9 years ago
Linda i forgot to mention be isn’t putting all the vitamin b just some. Don’t know if that makes a difference of how my body is going to break them down. He gave me a cream to methylate but couldn’t tolerate it yet I got sick after I tried it this was before doing the Myers ivs. He said to start doing it later after mg body was stronger same thing with the candida pills because he said I was going to have the dieoff effect and was going to feel sick afterwards. So he said let’s do myers first then we will address the other issues. Does that make a difference in what am doing or taking? He said so we don’t overwhelm the body w toxins. He isn’t doing the high dose of vitamin c he hasn’t mentioned it yet. Don’t know what else he wants to do. For the Myers he is doing half the bag since the dripping has to be really slow because I got dizzy when they tied to speed it up. Did half the bag last week w the same amount of magnesium, vitamin c and vitamin b.
This is the clinic am going to and my doctor is a toxicologist. He said be has 3 more floxies besides myself and has treated at least 3 or 4 more
Jason
9 years ago
As far as B vitamins, types, MTHFR and other Mutations, who should do what, etc Rene and I have a very in depth and long conversation about all this about 2 pages back here:
Start at the 3rd post, then read every post down to about Rene’s post July 24, 2015 at 12:25 pm about 20% down the page. There is a lot of info there about all this stuff.
There have been many past posts too about Brain Fog, Anxiety, Glutmate issues etc which are all tied together much of the time for Floxies, please see past pages including the one I just linked, lots of good and important info.
my sweet lord
9 years ago
Regenerating Nerves
Few substances have been shown to regenerate nerves in humans with peripheral neuropathies. However, a study in the Journal of Neurological Science postulated that methylcobalamin could increase protein synthesis and help regenerate nerves. The scientists showed that very high doses of methylcobalamin produce nerve regeneration in laboratory rats. http://www.prohealth.com/library/showarticle.cfm?libid=481
my sweet lord
9 years ago
Methylcobalamin is the most active form of vitamin B-12, and it is extremely important in folate chemistry and methylation processes. There are other forms of vitamin B-12; however, only methylcobalamin can be utilized in the central nervous system.
my sweet lord
9 years ago
Cyanocobalamin is the most common form of vitamin B-12 and is the form used in most vitamin supplements. The reason for cyano-cobalamin’s (cyanide molecule) presence in multivitamin supplements is its superb long-term stability and its relatively low cost. Cyanocobalamin is converted to methylcobalamin in the liver, but not in amounts that are considered significant. For this reason, many physicians are using very high doses of methylcobalamin. It is usually given subcutaneously, though some physicians are trying other routes of administration including oral administration.
I came across a site that might be of interest to those who were dealing with mthfr mutations. It says “Vitamin C can boost your folate by 50%.” Anyhow here is the site http://alisonvickery.com.au/
Mark
9 years ago
I’m going to my GP tonight because I’m still having pain on my right side that radiates to my back. As well as yellowish bowel movements. Really hoping it’s not anything serious that would require surgery (and possibly more antibiotics). I’m scared, guys 🙁
tammyrenzi
9 years ago
Hello everyone! If you have a chance to tune into Dr Rick Hanson’s talk on The Mindfulness Summit today (October 7th), he talks about the benefits of meditation in healing. I know Lisa has practiced meditation, and I have found it helps me too – even a short amount of time per day. It is free, so if you have a chance to listen in, it might be helpful in your healing!
Hi all…really looking for some hope here, I’m not sure if this is the best place to post this or not…but here goes:
My story is long and complicated. The gist is that I took Cipro + Levaquin six years ago, had an adverse reaction that included a long list of symptoms, the main ones being intense head pressure and tendon problems in legs. I could barely walk for a stretch of time, taking little baby steps everywhere I went. My legs healed completely about 8-12 months later. My head pressure never went away, but I’ve learned to live with it and considered myself better. I didn’t invest in a lot of supplements. Ultimately it was time + diet.
Since my legs healed I have become an avid runner, biker, weight lifter and all around fitness enthusiast. So, maybe that will give hope to some people dealing with their first reaction. My tendons healed, completely, and I was able to be extremely active with no issue whatsoever.
However, I was stupid and took a corticosteroid three months ago. All of my original floxing symptoms came back almost immediately, once again the primary ones being head pressure (which is now worse than it ever was) and more leg problems, which are also worse. I can handle the head pressure. What is scaring me is the leg issue, because it does seem much worse this time and I’m worried that I won’t be able to recover again.
Some points/questions:
– Is there anyone out there who, like me, took a cortricosteroid years after a reaction and had all their symptoms return? I am frantically searching for a similar story, ideally a hopeful one that ends in their second recovery, but I can’t find anything. I am so scared that I’ve permanently screwed myself over.
– I am doing all the necessary things (tons of magnesium, acupuncture, rest, clean diet, supplements, etc. I’m unfortunately a pro at this…)
– BUT…I’m getting very nervous about my legs. I am three months out and they feel WORSE every day. With my first reaction my legs had steady progressive improvement, so something is different this time. I’m wondering if it’s actually true that athletes are hit harder, because I am much more physically fit now than I was during my initial floxing. six year ago. My calves and hamstrings feel extremely tight and sore, sharp pains in both Achilles, knees feel totally devoid of all cartilage and a weakness throughout my entire legs. I can’t stand for more than a few minutes at a time.
– I’m ultimately looking for some insight as to whether or not I should be pushing myself on my legs? It’s my natural inclination to work them, but I’m not sure I should. If I have the choice between taking the stairs or the elevator, should I take the stairs because it would get blood flowing and promote healing? Or should I be resting them as much as possible to allow for healing?
Please, anyone who has had the extreme soreness/tightness/weakness in legs, I would appreciate all and any input, ideally on the hopeful side. Yes, my legs did heal the first time and logic would say they will again….but there is nothing logical about any of this and I’m afraid my body won’t be able to do it a second time…
-Mike
Joe O
9 years ago
Hi All,
Has anyone experienced spinal bone spurs among the many side effects of cipro? About 4 or 5 weeks after taking a 3-day course of cipro I had an xray of the back in connection with another medical problem and the doctor reviewing the xray results expressed surprise at the large number of bone spurs all along my spinal column. So I was left wondering whether these spurs were pre-existing or were triggered by cipro. And by the way, spurs can potentially cause or contribute to back or leg or neck pains, etc. if they happen to press on associated nerves.
Thanks
Joe
Missy
9 years ago
I took 2 rounds of Cipro and 1 round of doxycycline in a 2 month period and have been battling all kinds of problems since then. I have been to numerous doctors and they can’t find anything wrong. When I mention a reaction to Cipro they said it is not possible. I have ringing in the ears, sharp pain in my head, brain fog and gastro issues so bad I don’t know where to start. I have lost 22 lbs in 6 weeks. I don’t what to do.
my sweet lord
9 years ago
Everyone will recover, but it is slow and the more you read about others stories and things they tried will help you establish your personal recovery program. The key is to take it easy at the beginning, everything should be done on a slow and gentle basis, the body has an amazing ability to recover, may god bless you all. I personally suggest to investigate methycobalamin natural b12, it has been proven to regenerate nerve tissue, but the dosage should be tailored to your own needs.
my sweet lord
9 years ago
Mike you will recover, but i suggest to not push yourself too much. Do gentle stretching exercises lying down and lots of deep breathing.
Joe, magnesium citrate helps dissolve bone spurs.
But remember folks, healing for floxies is a bit longer than it is for normal people.
Everyone will recover, your body has an amazing ability to recover, eating the right foods and studying supplements and how they work, always take supplements in pure form, I buy capsules and open them up to take the powder. Coatings on pills and caplets are toxic.
sian
9 years ago
Hello everybody!
I just wanted to ask if anybody knows if I can go straight to a post without having to read all the other posts as this causes me a lot of anxiety…
For example, if I want to know which antibiotics people have used safely post-floxing…
Thanks for your help x
It seems like it’s totally cured him, I’m surprised I haven’t seen more stories of people who have tried it. Has anyone else tried it with positive results….or have other people tried it with no improvement whatsoever? Interested especially to know if it’s helped anyone with tendon issues.
Hi folks i´m currently battling myralgia parestetica, i´m bedridden. But i wanted to check in and tell everyone the news on b12 methycobalamin, investigate it, it is very promising in many ways related to neurological damage and recovery. The brain fog lasts about three month depending on the damage but methycobalamin would help a lot in that area as well as many other areas. noone is exempt from damage once the get an adverse reaction. if they have a lot of money they can get better treat ment options. The point to remember is this, quins destroy the capillary system and from their the entire body begins to atrophy, since your stomach is destroyed you can not absorb foods as well as before, that is why recover takes a long time, but everything you can do to help yourself is a big plus.
Hi Linda
I am here in texas my doctor is in Austin. He is a holistic doctor.he knows about the gene mutation but said myers would help me but I didn’t know that is kind of contradicted having vitamins b when having that gene mutations. I am confused now!!!
Linda i forgot to mention be isn’t putting all the vitamin b just some. Don’t know if that makes a difference of how my body is going to break them down. He gave me a cream to methylate but couldn’t tolerate it yet I got sick after I tried it this was before doing the Myers ivs. He said to start doing it later after mg body was stronger same thing with the candida pills because he said I was going to have the dieoff effect and was going to feel sick afterwards. So he said let’s do myers first then we will address the other issues. Does that make a difference in what am doing or taking? He said so we don’t overwhelm the body w toxins. He isn’t doing the high dose of vitamin c he hasn’t mentioned it yet. Don’t know what else he wants to do. For the Myers he is doing half the bag since the dripping has to be really slow because I got dizzy when they tied to speed it up. Did half the bag last week w the same amount of magnesium, vitamin c and vitamin b.
http://www.centerforhealthandhealing.org/
This is the clinic am going to and my doctor is a toxicologist. He said be has 3 more floxies besides myself and has treated at least 3 or 4 more
As far as B vitamins, types, MTHFR and other Mutations, who should do what, etc Rene and I have a very in depth and long conversation about all this about 2 pages back here:
https://floxiehope.com/comment-page-32/#comments
Start at the 3rd post, then read every post down to about Rene’s post July 24, 2015 at 12:25 pm about 20% down the page. There is a lot of info there about all this stuff.
There have been many past posts too about Brain Fog, Anxiety, Glutmate issues etc which are all tied together much of the time for Floxies, please see past pages including the one I just linked, lots of good and important info.
Regenerating Nerves
Few substances have been shown to regenerate nerves in humans with peripheral neuropathies. However, a study in the Journal of Neurological Science postulated that methylcobalamin could increase protein synthesis and help regenerate nerves. The scientists showed that very high doses of methylcobalamin produce nerve regeneration in laboratory rats.
http://www.prohealth.com/library/showarticle.cfm?libid=481
Methylcobalamin is the most active form of vitamin B-12, and it is extremely important in folate chemistry and methylation processes. There are other forms of vitamin B-12; however, only methylcobalamin can be utilized in the central nervous system.
Cyanocobalamin is the most common form of vitamin B-12 and is the form used in most vitamin supplements. The reason for cyano-cobalamin’s (cyanide molecule) presence in multivitamin supplements is its superb long-term stability and its relatively low cost. Cyanocobalamin is converted to methylcobalamin in the liver, but not in amounts that are considered significant. For this reason, many physicians are using very high doses of methylcobalamin. It is usually given subcutaneously, though some physicians are trying other routes of administration including oral administration.
pure powder would be the best way to go, no other ingredients to tolerate with.
https://www.prohealth.com/shop/product.cfm/Product__Code/N1048
I came across a site that might be of interest to those who were dealing with mthfr mutations. It says “Vitamin C can boost your folate by 50%.” Anyhow here is the site http://alisonvickery.com.au/
I’m going to my GP tonight because I’m still having pain on my right side that radiates to my back. As well as yellowish bowel movements. Really hoping it’s not anything serious that would require surgery (and possibly more antibiotics). I’m scared, guys 🙁
Hello everyone! If you have a chance to tune into Dr Rick Hanson’s talk on The Mindfulness Summit today (October 7th), he talks about the benefits of meditation in healing. I know Lisa has practiced meditation, and I have found it helps me too – even a short amount of time per day. It is free, so if you have a chance to listen in, it might be helpful in your healing!
Tammy
http://themindfulnesssummit.com/sessions/rick-hanson/?pop=login&email=tamrenzi%40gmail.com&fullname=
Which of these 10 brands will you all recommend? Need to change my toothpaste
http://eluxemagazine.com/beauty/top-10-natural-toothpastes/
Hi all…really looking for some hope here, I’m not sure if this is the best place to post this or not…but here goes:
My story is long and complicated. The gist is that I took Cipro + Levaquin six years ago, had an adverse reaction that included a long list of symptoms, the main ones being intense head pressure and tendon problems in legs. I could barely walk for a stretch of time, taking little baby steps everywhere I went. My legs healed completely about 8-12 months later. My head pressure never went away, but I’ve learned to live with it and considered myself better. I didn’t invest in a lot of supplements. Ultimately it was time + diet.
Since my legs healed I have become an avid runner, biker, weight lifter and all around fitness enthusiast. So, maybe that will give hope to some people dealing with their first reaction. My tendons healed, completely, and I was able to be extremely active with no issue whatsoever.
However, I was stupid and took a corticosteroid three months ago. All of my original floxing symptoms came back almost immediately, once again the primary ones being head pressure (which is now worse than it ever was) and more leg problems, which are also worse. I can handle the head pressure. What is scaring me is the leg issue, because it does seem much worse this time and I’m worried that I won’t be able to recover again.
Some points/questions:
– Is there anyone out there who, like me, took a cortricosteroid years after a reaction and had all their symptoms return? I am frantically searching for a similar story, ideally a hopeful one that ends in their second recovery, but I can’t find anything. I am so scared that I’ve permanently screwed myself over.
– I am doing all the necessary things (tons of magnesium, acupuncture, rest, clean diet, supplements, etc. I’m unfortunately a pro at this…)
– BUT…I’m getting very nervous about my legs. I am three months out and they feel WORSE every day. With my first reaction my legs had steady progressive improvement, so something is different this time. I’m wondering if it’s actually true that athletes are hit harder, because I am much more physically fit now than I was during my initial floxing. six year ago. My calves and hamstrings feel extremely tight and sore, sharp pains in both Achilles, knees feel totally devoid of all cartilage and a weakness throughout my entire legs. I can’t stand for more than a few minutes at a time.
– I’m ultimately looking for some insight as to whether or not I should be pushing myself on my legs? It’s my natural inclination to work them, but I’m not sure I should. If I have the choice between taking the stairs or the elevator, should I take the stairs because it would get blood flowing and promote healing? Or should I be resting them as much as possible to allow for healing?
Please, anyone who has had the extreme soreness/tightness/weakness in legs, I would appreciate all and any input, ideally on the hopeful side. Yes, my legs did heal the first time and logic would say they will again….but there is nothing logical about any of this and I’m afraid my body won’t be able to do it a second time…
-Mike
Hi All,
Has anyone experienced spinal bone spurs among the many side effects of cipro? About 4 or 5 weeks after taking a 3-day course of cipro I had an xray of the back in connection with another medical problem and the doctor reviewing the xray results expressed surprise at the large number of bone spurs all along my spinal column. So I was left wondering whether these spurs were pre-existing or were triggered by cipro. And by the way, spurs can potentially cause or contribute to back or leg or neck pains, etc. if they happen to press on associated nerves.
Thanks
Joe
I took 2 rounds of Cipro and 1 round of doxycycline in a 2 month period and have been battling all kinds of problems since then. I have been to numerous doctors and they can’t find anything wrong. When I mention a reaction to Cipro they said it is not possible. I have ringing in the ears, sharp pain in my head, brain fog and gastro issues so bad I don’t know where to start. I have lost 22 lbs in 6 weeks. I don’t what to do.
Everyone will recover, but it is slow and the more you read about others stories and things they tried will help you establish your personal recovery program. The key is to take it easy at the beginning, everything should be done on a slow and gentle basis, the body has an amazing ability to recover, may god bless you all. I personally suggest to investigate methycobalamin natural b12, it has been proven to regenerate nerve tissue, but the dosage should be tailored to your own needs.
Mike you will recover, but i suggest to not push yourself too much. Do gentle stretching exercises lying down and lots of deep breathing.
Joe, magnesium citrate helps dissolve bone spurs.
But remember folks, healing for floxies is a bit longer than it is for normal people.
Everyone will recover, your body has an amazing ability to recover, eating the right foods and studying supplements and how they work, always take supplements in pure form, I buy capsules and open them up to take the powder. Coatings on pills and caplets are toxic.
Hello everybody!
I just wanted to ask if anybody knows if I can go straight to a post without having to read all the other posts as this causes me a lot of anxiety…
For example, if I want to know which antibiotics people have used safely post-floxing…
Thanks for your help x
Hi again all,
I’m wondering if anyone else here has had success with MitoQ, as mentioned in Brett’s story: https://floxiehope.com/bretts-story-levofloxacin-toxicity-and-recovery/
It seems like it’s totally cured him, I’m surprised I haven’t seen more stories of people who have tried it. Has anyone else tried it with positive results….or have other people tried it with no improvement whatsoever? Interested especially to know if it’s helped anyone with tendon issues.
Thanks,
Mike