*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
Lisa’s Story
In the middle of November, 2011, I took Cipro to treat a urinary tract infection. I took 2 pills (500 mg each, I believe) a day for three days. I didn’t feel like the infection was gone, so I went back to the doctor and requested more antibiotics. He gave me macrobid and the infection subsided within a couple of days. Life went on as normal for the next couple of weeks, until December 2, 2011, at which time I got my period and started taking ibuprofen to help me to deal with the cramps.
Before I continue with my story, I would like to note that I had taken Cipro to treat a urinary tract infection approximately a year earlier. I had no notable side effects at that time. Though, looking back on things, I did develop an eyelid twitch at that time and some strange stomach cramping that came and went started then. I didn’t think anything of the eyelid twitching or the stomach cramps. I certainly didn’t think that they were tied to the Cipro. I took ibuprofen regularly after taking Cipro with no adverse effects.
On December 2, 2011 my legs started to itch. On December 4th I broke out in hives all over my body. I went to the doctor and was told to take Benadryl. I took more Benadryl than the box recommends and my hives got progressively worse. On December 5th my feet and hands swelled to the point that I couldn’t use them anymore. It was painful to walk, or even to just stand. I went back to the doctor and was put on prednisone. The prednisone suppressed the swelling and calmed the hives a bit. On December 7th my left leg went weak. For the next few weeks the following symptoms got worse and worse:
- Weakness in my legs. I could barely walk. The steps that I could take took a tremendous amount of effort and energy. I couldn’t stand for more than a minute. I had to drag a chair into the kitchen in order to cook rice because I couldn’t stand to stir the pot.
- Tightness of the tendons in my legs. I had inflammation, and possibly tears, in most of the tendons in my legs and feet. My hips, knees and ankles, to simplify things, didn’t work right.
- Loss of use of muscles / loss of strength. My muscles, especially the muscles in my legs, wouldn’t move like they used to. All of my movements were slow and deliberate.
- Brain fog. I couldn’t think straight. I felt stupid. I couldn’t concentrate. It was a struggle to do my job.
- Loss of memory. My short-term memory decreased significantly.
- Loss of peripheral vision. Large, black floaters entered my peripheral vision.
- Loss of appetite and weight.
- Loss of flexibility. I went from being able to do yoga several times a week to being unable to sit with my legs curled up under me.
- Loss of balance.
- Severe loss of energy. I felt like the plug had been pulled from my energy source. I wasn’t necessarily sleepy, I was just drained. The feeling was similar to the feeling that I have when I have a cold – weak and like I just want to collapse. Just slight exertion would drain me of my energy. Walking would make me tired for a whole day afterward.
- Dry mouth.
- Anxiety. I had an ongoing anxiety attack for the first couple of months after being floxed.
- Pain in my feet. I felt like I was walking on hot coals with every step I took.
- Loss of reading comprehension. I would read a page and have no idea what I had just read.
- Loss of social skills / connectedness. I felt anxious and scared in social situations. I lost confidence in both my physical and mental abilities. I felt very alone despite having a wonderfully supportive family.
I felt as if I had aged 20 years in just a week or two. I couldn’t move, think or eat. My body and mind were falling apart and I had no idea why. I didn’t think that the sudden decline in my health had anything to do with the Cipro. After all, I had stopped taking it a couple of weeks before my body started to fall apart. I thought that I had an autoimmune disease. My symptoms seemed similar to those of rheumatoid arthritis. I went back to the doctor and they ran every test imaginable on me. I was relieved to find out that I didn’t have an autoimmune disease, but it was somewhat frustrating to hear that all of the tests were showing that I was normal and healthy when, clearly, I was neither normal nor healthy. The doctors did not provide me with a diagnosis or a prognosis. Though I was desperately seeking a diagnosis and prognosis, I am thankful, in retrospect, that they didn’t misdiagnose me. If I had been mistakenly diagnosed as having an autoimmune disease, I may have treated it with pharmaceuticals that could have made me feel even worse.
I was desperate for some treatment, something to stop the downward spiral that my body, mind and spirit were in. The traditional medical doctors I saw provided no relief, treatment or healing. I started seeing an acupuncturist. He was able to stabilize my condition, calm my nerves and keep me from spiraling physically or mentally. After a few weeks feeling stable physically, I started to have days where I felt better than I had the day before. Mentally, I kept going downhill for a while, but, eventually my mental health stabilized and started to improve as well.
Eventually, with the help of my acupuncturist, I connected my symptoms to Cipro. Once the connection was made, I realized that all of my symptoms were consistent with those of others who have been poisoned by Cipro and other fluoroquinolone antibiotics. I entered the scary world of being a floxie.
For about a year, I considered myself to be sick. Though the symptoms listed above were improving, slowly but steadily, I was still sick, and a long ways from the healthy, active, energetic woman that I was before I took Cipro. After a year, I started to put “sick” in the past tense. Though I wasn’t back to the level of health that I was prior to being floxed, I was getting better and, as far as most people could tell, I was well.
Following is a list of things that I did to help me to get well, to heal. I am not a doctor. This is a description of my experience and what helped me. I hope that what helped me helps you. Everyone is different though. What helped me may not help you. One thing that I know helped me and that I know will help you is hope. I hope that the fact that I have largely recovered helps you to have hope. I hope that the other steps that I took to get well also help you to gain hope and healing.
Please feel free to contact me with any questions, comments or concerns, or to share your story.
Lisa’s Healing Tips
One of the many frustrating things about fluoroquinolne toxicity is that everyone’s body is different. Everyone’s symptoms are different and everyone’s body reacts differently to treatments. Following is a list of things that helped me. I hope that what helped me will help you, but it may not. I am including other people’s healing tips as well, in case their tips can help. Of course, please read these tips with the typical disclaimer in mind – I am not a doctor or medical professional of any kind. I am sharing my experience with the hope that others may find it to be useful. Please ask your doctor, or other trusted medical professional, for medical advice, and before taking any of my advice.
In no particular order, here are the things that helped me to heal.
- Time. With time, I have healed. Each day is better than the day before. Time will heal your wounds too. Eventually, you will get better. The poisonous reaction affecting every part of your body will eventually stop and you will begin to recover. I have heard several stories of fellow floxies having a timeline similar to mine – slow, steady recovery for about 2 years. Other people take more, or less, time to recover. Time does help though, and most people do end up getting better as time goes on. Very few people get worse and worse indefinitely. There may be bumps in the road, but time is your friend. Time will help you to return to a state of health.
Try to be patient with yourself. It will take time for your body and mind to heal. I see this whole ordeal of getting sick as a lesson in patience (and compassion, gratitude and health). Pushing yourself too hard too soon can lead to pain, frustration and injury. Try to give yourself the time necessary to heal, and, with time, your body and mind will, indeed, heal.
- Avoid NSAIDs and steroids like the plague. Both NSAIDs and steroids are contraindicated with fluoroquinolone toxicity. They will make your reactions and symptoms worse. There are some published medical articles on PubMed about the contraindication between NSAIDs/steroids and fluoroquinolones. Searching at the library or on Google will give you more detailed information than I can provide. Anecdotally, I know that my reaction was triggered by taking NSAIDs (ibuprofen that I took to help me to deal with menstrual cramps) and it was exacerbated by taking prednisone (a steroid). Please note that I did NOT take NSAIDs or steroids at the same time as Cipro. I took ibuprofen 2 weeks after I finished taking Cipro and it triggered my toxic reaction and I took prednisone 3 weeks after I had finished taking Cipro, after my reaction had started. I will never take another NSAID or steroid again.
Unfortunately, NSAIDs and steroids are the drugs that are the most commonly prescribed drugs used to “treat” fluoroquinolone toxicity. This is because the combination of NSAIDs/steroids and fluoroquinolones does not always cause a toxic reaction, the toxic reaction of combining fluoroquinolones and NSAIDs/steroids can occur even when the drugs are taken weeks or months apart, doctors and other medical professionals don’t acknowledge fluoroquinolone toxicity and so they don’t look for the contraindications and because many of the symptoms of fluoroquinolone toxicity are treated with NSAIDs and steroids. The pain killing qualities of NSAIDs and the swelling reduction qualities of steroids make them the drugs of choice for treating many of the symptoms of fluoroquinolone toxicity. Don’t take them though! In my nonmedical opinion, I suggest taking non-NSAID over-the-counter pain medicine like acetaminophen (Tylenol) for pain (or marijuana – which is probably better for your liver), and antihistamines for the swelling.
Often, fluoroquinolne toxicity is misdiagnosed as an autoimmune disease. In particular, it is often misdiagnosed as rheumatoid arthritis. Many of the drugs that are used to treat rheumatoid arthritis are NSAIDs. Don’t take them.
- Acupuncture. I credit my acupuncturist with saving my life. I can only guess how I would have fared without my acupuncturist, but I imagine that I would have ended up in the emergency room, pumped full of steroids and antidepressants, having a massive anxiety attack and unable to walk. That didn’t happen though and there really isn’t any point in surmising about what could have been. I do know that acupuncture stopped my downward spiral and got me on the road to recovery. Both the acupuncture needles and the herbs that he provided gave me immense relief. I don’t know why or how acupuncture works, but I do know that it worked wonders for me.
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Supplements. I have taken more supplements than I can remember. 90% of them had no noticeable effect on my health. Here is a list of supplements that I think helped me.
Iron. I take a low dose iron supplement – only 5 mg. – daily. The brand of iron supplement that I use is Pur Absorb, but I’m guessing that other low-dose iron supplements will work equally well. Within just a couple days of starting taking the iron supplement, my energy levels increased dramatically. I could walk a mile without being exhausted afterward. In addition to improving my energy level, the iron supplement seems to make my muscles and tendons more supple and malleable. When my tendons are feeling tight, a dose of iron helps to loosen them up – within just a couple hours. Too much iron is really bad for you, so please be careful with supplementing it (ask your doctor, yada yada), but it helps me immensely.
Magnesium. I take 250 mg of chelated magnesium daily. I don’t necessarily notice that it makes me feel better, but I do notice that I feel worse when I don’t take it. My muscles twitch if I don’t take my mag.
Zinc. I take zinc when I get around to it. I remember feeling mildly better when I started taking it. It doesn’t seem to affect my health dramatically though.
Chlorophyll. I take chlorophyll about every other day. It seems to help with my energy level and mental functioning.
I also take fish oils, resveratrol, a probiotic, a joint supplement, CoEnzyme Q10, vitamin B12, chlorella, glucosamine, brewer’s yeast and some other supplements. They may help. I can’t say that I feel a difference using any of them.
- Meditate. Meditating has so many amazing, positive benefits for your brain, your life, your spirit, etc. that I can go on about it ad nauseam. Meditation helped relieve a lot of the mental symptoms of my fluoroquinolone toxicity. My anxiety, inability to concentrate, inability to connect with others, depression, loss of reading comprehension, decreased mental acuity, etc. were greatly reduced (or improved) through meditating. I meditate about 10 minutes each day. I should meditate more like 20-30 minutes a day.
Meditating helped me to gain compassion for myself and my situation. It also helped me to let go of the anger that I felt toward the pharmaceutical companies and the medical culture that allows fluoroquinolones to be on the market. The pharmaceutical companies and the medical culture are both messed up and blame of them is justified, but anger and blame were not serving me mentally, emotionally, spiritually or physically. I needed to let go of my anger and blame in order to move on with my life. Meditating helped with that.
I learned to meditate through taking a class called Mindfulness Based Stress Reduction that was offered by my health insurer. It was an excellent class based on the work of Jon Kabat-Zinn. Many Buddhism centers offer Mindfulness Based Stress Reduction or Meditation 101 classes.
- Get off the internet. Most of the information available on the internet about fluoroquinolone toxicity is horrifying. Fluoroquinolone toxicity is horrifying. It is scary. It is completely unacknowledged by the medical community – the doctors, nurses, etc. who we go to in order to make sense of things when our body goes hay-wire – so we seek answers on the internet. Unfortunately, most internet sites devoted to fluoroquinolone toxicity do not provide a balanced picture. They show the harm and the horror of fluoroquinolone poisoning, but they don’t show the healing and hope that most people eventually experience. I am writing and distributing this in order to provide the perspective of hope and healing. Some people are permanently disabled from fluoroquinolones. My heart goes out to those people and they have every right to scream their story on the internet. However, their story is not your story. My story is not your story either. But if you’re going to look to the internet for a prognosis, it’s better to find a hopeful prognosis than one that is full of doom and gloom.
When I participated in the online forums for Floxies, I noticed that my anxiety levels increased significantly. Even after I was 90% recovered and I thought I could handle it, my anxiety levels would go up simply by reading about people being floxed. Inducing anxiety is one of the worst things that someone suffering from fluoroquinolone toxicity should do. Anxiety makes all symptoms worse. I would slowly relapse and my symptoms would get worse every time I participated in the online forums.
Of course, the people participating in the online forums are seeking to help fellow Floxies, to commiserate and to participate in a support group. It is not their fault that my anxiety levels increased when viewing their sites and/or support groups. After all, most people on those sites are trying to be helpful and supportive. However, the net result of participating in the forums for Floxies is that my anxiety levels increased and my health declined while I was on those sites. I am healthier and happier not participating in the online “support groups” than I was while I did participate in those groups. Of course, this is my experience only. Many people find solace in the Floxie community and if it helps you, great!
The people who have worked hard to create a community of Floxies to support one another should be commended. It is because of their hard work that thousands of people have realized what is going on with their bodies and that they are not alone. The community of Floxies is full of wonderful people. However, you need to do what you need to do to take care of your health and if you find that hearing other people’s stories increases your anxiety levels, get off the internet. For you.
- Diet. I lost 11 pounds in 18 days when I first got floxed. My body was going hay-wire and it seemed like an allergic reaction. I had no idea what I could possibly be allergic to so I stopped eating almost everything. I didn’t eat sugar (including fruit), gluten, dairy, soy, anything non-kosher or anything spicy, or drink any alcohol or caffeine, for a month. I only ate vegetables and organic meat. It’s a highly effective way to lose weight, but I don’t think that restricting my diet severely helped me to heal. Restricting my diet gave me a sense of control, and that’s not a bad thing when your body is self-destructing, but I don’t think that it made me feel any better physically. After a month of only eating veggies and organic meat, I started to add normal foods into my diet. As soon as I started eating an appropriate number of calories, I started to feel better. Not only was I Floxed, I was also wasting away when I wasn’t eating normally. Getting enough food is an important part of healing. Of course, it’s generally good to be on the “don’t eat junk” diet, but I didn’t find that cutting my food intake significantly helped me to feel better.
Many Floxies develop GI problems. I was lucky in that I didn’t have many GI problems. Many people seem to be helped by cutting gluten, sugar and/or junk food out of their diet.
I notice that I feel slightly worse than normal when I consume sugar and/or caffeine. I think that most people do, I am just now accustomed to paying closer attention to my body.
The only food that makes me feel noticeably better is beets. For some reason, beets make me feel great. I just boil them and eat them.
I’ve heard good things about the benefits for Floxies of eating broccoli and other cruciferous vegetables. I love broccoli so I try to eat a lot of it. Unfortunately, I can’t say that I’ve noticed that it makes me feel better.
- Swim. My tendons and muscles feel significantly better when I’m in the water, and for several hours after I finish swimming. Swimming in the ocean feels especially therapeutic. There are so many minerals and trace nutrients in the ocean, I surmise that they’re helpful for healing. Unfortunately, I don’t live near the sea, so I swim in a pool. I feel better when I do so.
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Pilates. I started doing Pilates about 7 months post-floxing. Pilates strengthens the core, something that is generally important, and gently stretches muscles, tendons and ligaments, something that is particularly important for Floxies. I started slowly and gently and didn’t push my tendons, muscles or ligaments too much. I feel that gently stretching helped my tendons, muscles and ligaments to heal and return to (close to) their pre-floxing capacity. Take it easy though.
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Healing arts. I love to dance. I’m not a good dancer, but I love to do it. About 16 months post-floxing I started to dance again. Dance has been healing for me. I feel spiritual, strong and joyful when I dance. I’m not sure if it’s the dancing itself that I find to be healing, of if it’s the joy that I feel when I dance that is healing. Either way, it helps. I surmise that other forms of expression would have similar healing qualities. If you love to sing, sing. If you love to paint, paint. If you love to write, write.
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Attitude tips.
Try not to compare yourself to how you used to be. I used to hike 20 miles in a day. I can’t do that anymore, but I can hike 3 miles today and I couldn’t do that when I first got floxed. Compare yourself to how you were yesterday, not to how you were before you got floxed.
Do something – anything – to work toward healing, every day. Walk a little further than you did yesterday. Meditate. Take an Epsom Salt bath. Get an acupuncture treatment. Do a puzzle. Whatever makes you feel good – do it. Every little step helps.
Don’t kill yourself. Have hope. You will get better.
You’re not crazy. You’re sick. Have hope. You will get better.
You’re not stupid. You’re sick. Have hope. You will get better.
Try not to identify yourself as sick. The mind is a powerful thing so try to stay positive. It’s hard, I know. But try, because it’s worth it.
You will have bad days. They will pass. This all will pass. It is not permanent. You are strong – present tense. You were knocked down, but you weren’t killed. You will get better.
Don’t quit your job. Try to maintain as much normalcy in your life as you can.
It is not your fault. Even if you knew better, even if you demanded the most powerful drug possible from your doctor, even if you self-medicated, even if you coerced your doctor into giving you the fluoroquinolone antibiotic, even if the infection that you were treating was something that you got because of doing something stupid, or from sex, even if you continued to take it after you started to get sick, even if you floxed your child/parent or other loved one – IT IS NOT YOUR FAULT. You are sick. You are poisoned. You are not to blame for your sickness or for the fact that you are poisoned. Who to blame is a discussion that I don’t want to get into because I want this to be positive, but it is not you. You are not to blame. You are a victim. It is not your fault.
Lisa’s Life now
Life is good. I don’t consider myself to be sick any more. I’m not quite up to my pre-floxing capacity in a couple of areas. I don’t have the endurance, energy, strength or flexibility that I used to. However, I’m pretty close to my pre-floxing capacity in those, and other, areas. I’m about 99% better. Not being capable of intense exercise since December, 2011 has left me a bit out of shape, but I’m working toward being able to exercise intensely again and my stamina, strength, energy, etc. are increasing. I can’t hike 15 miles with a backpack on quite yet (something I could do before I was floxed), but I am capable of most physical and mental activities that would put me in the “normal” or “not sick” categories.
I can work full-time. I am grateful for the fact that I have a job that is not too demanding physically or mentally because I was able to hold onto it through my worst times. My boss and coworkers were wonderfully understanding and they claim not to have noticed that I couldn’t think straight for about a year. I even got a promotion about a year post-floxing!
I can do Pilates 4 times a week, swim 2 times a week, dance once a week and walk daily.
When I was unable to walk a block I told myself that I would consider myself to be “better” when I could dance all night in heels (my feet hurt like hell when I was sick), I can do that now. I never liked high heels, but I can wear them now.
My memory isn’t quite what it used to be, but it’s good enough to do well at my job and to maintain my relationships.
In many ways, I’m a different person than I was before I got floxed. This has been perplexing for me and my loved ones, but it’s not an altogether negative thing. I’m a much more spiritual person than I was before I got sick. I was a pretty firm Atheist before I was floxed. Now, through meditation, dancing, believing in alternative therapies that focus on energy, etc., I’m finding some spiritual outlets that I didn’t have, need or want in the past.
I have become a more compassionate and patient person. I now empathize with people who have mystery diseases. I used to have the attitude that I now find so frustrating in medical professionals – that if there isn’t a way to diagnose or treat an ailment, it doesn’t exist. Now I know that people are genuinely suffering and that there is a real cause for their pain – regardless of whether or not it is acknowledged by the medical community. My heart goes out to those in pain.
I had to become more compassionate and patient with myself as well.
I like some things that I didn’t like before I was floxed and I don’t like some things that I used to like a lot. I hated swimming for the first 32 years of my life. Now I love it and consider it to be an important aspect of my healing. I used to like working out in an intense way that got me dripping with sweat. Now I like to do exercises like Pilates that are focused, slow and deliberate. I used to love hiking, camping and backpacking. I miss loving those things so I’m going to try to get back into them, but I’m not sure that they’re my passions any more. Drinking used to be one of my favorite pastimes. My tolerance for alcohol is shot now and I don’t really enjoy it any more. I missed it for a while even though I knew that it was for the best that I wasn’t drinking like a fish. My appetite has changed as well. I used to be able to eat a lot of food and I loved to eat. I still eat, of course, but I don’t eat as much as I used to and I don’t eat with as much gusto. This is probably a good thing seeing as I’m not into exercising intensely any longer.
Even though I would do just about anything to turn back time and not take Cipro, the place that I am in life isn’t bad, and I probably would be someplace different if I hadn’t gotten sick. It sucks that I had to gain empathy for people who suffer from pain, mystery ailments and debilitating fatigue, but it’s probably a good thing that I now have more empathy. I would like to think that I’m a better person from going through this. I’m not a stronger person, but maybe I am a better person.
I hope that my tips and words of advice are welcome and helpful. Please feel free to contact me if you have any questions or concerns.
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
Ruth, where do you get this Idebenone? How many milligrams do you take? Kris
Tyson, I would try diluting the Naked Juice with water or trying a different brand altogether. Ruth and Lisa, what are your thoughts on this? Kris
Yes, where and what brand of Idebenone and MitoQ do you use? I just ordered the CalmPRT from NeuroScience. Its amazing how much money I have spent on all of this stuff plus all the doctor fees. Oh well, I’ll pay anything for my health and happiness.
Hi Tyson,
If my recovery is any indication of what is possible, I went from being in near-constant pain and barely getting around (as a 34 year old) to being able to share a beer (or few) with my husband and friends. Though I am much less able to tolerate alcohol and caffeine, I do enjoy them in smaller doses. My body and bank account really responded well to that!
I hope you’re finding your way to heal.
If you ever want to email, I’d be happy to correspond that way.
tamrenzi@gmail.com
I’m so glad your girlfriend is so supportive! Having a few people I trusted was very helpful to me. I could email them and they wouldn’t think I had gone crazy!
Hope today is a good one!
Tammy
I get Idebenone from HBC Protocols online. They are not the only place that sells it though. I take 50 mg. 3x a day. It’s been used at nearly twice that dose in studies on Alzheimer Disease, so it’s safe at that amount. Other studies have proven it safe for long term use. I would try one dose per day and see how it goes. Some people don’t need that much. It might increase your anxiety. Or it might help a lot. You’ll just have to try it.
MitoQ is the brand name. It is a targeted CoQ10. (Idebenone is CoQ1.) The problem with MitoQ, and I only learned this recently, is that if your liver is not working well it can become an oxidant. The same liver enzyme that FQ’s are notorious for depleting is the one that if you don’t have enough of it, MitoQ will actually harm your cells.
My liver must have been fine. I tolerated a calcium channel blocker with no side effects right after I got floxed, so obviously I was ok, because the same enzyme that breaks down Verapamil is the one that you need to take MitoQ. Can’t remember which one it is at the moment. Long day at work today.
But anyway, for me MitoQ was awesome. While I was taking it I could hike up bluffs without even getting winded, and this was just a few months after I was floxed. It definitely did some awesome things for me, and my tendon healed! But other floxies who have taken it have ended up bed ridden for months after just a couple of pills. So unless you are sure your liver is working it might not be worth it to roll the dice on the MitoQ. When it works like it is designed to it works really, really well. When it doesn’t, it can set you back by a lot.
Idebenone was also shown in studies to prevent tendon damage from FQ’s. So if it works for you I’m not sure that you need MitoQ. Idebenone is also targeted to the mitochondria– it has to be, because they’ve been testing it for use against diseases of the mitochondria, and for some of them it has worked, but not all.
I recently started putting micronized purple rice into my water bottle. It’s a powder, I just it up whenever I take a drink, so it’s easy to take, and has really no flavor. It’s highly nutritious, packed with amino acids and antioxidants, grown in very fertile soil in Thailand, away from pesticides, GMO’s and all that nonsense. They just mill it down very small, getting rid of all the starch and carbs and anything that isn’t nutrition, so that it takes sixty pounds of rice to make one pound of this product. It is supposed to be able to get into even damaged cells and nourish the mitochondria. It lowered my blood pressure in two weeks, I dropped a few pounds and my blood sugar went down from pre-diabetic to high normal. So it did something that even MitoQ couldn’t do. I have dropped the MitoQ. I’m hoping the purple rice gives me that improved athletic performance I was getting from the MitoQ.
I don’t like the fillers MitoQ uses, so to take it long term really is a concern. The purple rice is just food so it is all natural. I buy it from Kare Possick. Her number is 727-798-8764 if you want more information. If you buy and go on autoship I get a free bottle. I’m not telling you to do that, I am just disclosing that. But you could even just get one bottle and try it. Some floxies are trying a brown rice product instead because the high antioxidant content of the purple rice was causing them a rapid detox which was uncomfortable. The rice is an anti aging product, as is MitoQ. For me, I’ll probably stay with the rice long term, as I am old and could use some anti aging benefits. For younger floxies it might just be something you want to try short term. FQ’s strip so much out of our bodies– this micronized rice seems to be a way to put some of it back.
I am sleeping a bit better and feel calmer most of the time. But I have also had two pretty intense relapses since being on the purple rice. It may be that it is stimulating my nervous system to heal and I’m feeling that, or maybe I would have relapsed anyway. I’m just saying that it’s not a magic bullet. Healing downgraded GABA-a receptors is a long, painful and difficult process and there is probably nothing that can make it happen overnight. But I’ve also had some really wonderful normal windows since starting the purple rice– much more normal than before, if that makes any sense. So I seem to be making progress, but I do so many things for my health it is hard to say exactly what is helping the most.
I read online that the idebenone could cause strokes. But anything could cause problems I guess. Its very expensive, also, saw on one webpage, $90 per bottle. I am so glad you can work, I can’t work right now. My stamina is getting better, but I am in so much pain in my back and shoulder. I have to use a heating pad intermitedendly during the day. Also what do you feel about physical therapy and massages? Since mine is an injury, I felt PT was the way to go. But sometimes I feel I am furthering damaging my muscles. How old are you, I will be 60 this year. I thought I was the oldest floxie on here!! Kris
Also, this Phillipe, one of the Floxie stories has helped me quite a bit with nutritious advice but he told me to get this beet juice from Whole Foods, among other juices. One sip and it was in the trash. Let alone, I have this dry mouth and it just dried it up worse. Any thoughts on the juices. I guess I need to go back and read your story, Ruth. As far as my liver, I am not sure. I had a catscan done recently and it did show that I have a huge cyst on my liver, but they are not going to do anything about it at his point. Kris
Kris,
I could not find anything saying Idebenone causes strokes. In fact, if a person has an ischemic stroke while on Idebenone it will improve the outcome. It protects tissues when there is low or no oxygen. MitoQ becomes an oxidant in that situation, as do most other antioxidants. They even are studying Idebenone for use in people prone to strokes to help prevent them. So I’m sure people in those studies are having strokes, but that does not mean Idebenone caused the stroke. Aside from anxiety and insomnia the only side effect I found was muscle breakdown in women age 60 and over. This was a very common side effect in older women– sudden and severe weakness. I did not find at what dose this was happening. I’m in my late forties and hoping I continue to tolerate Idebenone because it’s better than Prozac for my depression, will protect me in case of an ischemic heart attack or stroke or even just exercising too hard causing some of my tissues to be low on oxygen. It also helps with communication between the two hemispheres of your brain and raises levels of some other neurotransmitters in addition to serotonin. It’s not expensive from HBC Protocols. Last time I ordered I bought three bottles and they sent me one for free.
I am a licensed physical therapist assistant, so I’m all for PT, but I think most PT’s don’t understand floxed bodies and can do more harm than good. I did get a lot of relief from ultrasound though. If you can get them to give you ultrasound (very low, no heat) that would be great. I have a home machine. I need to use it more. When I was first floxed I used it every day, but now that I’m not in terrible pain I don’t keep up with it.
Most juices have too much sugar. Unless you are juicing, making your own, they probably aren’t the best thing. I do sometimes have juice– but I dilute it with water and put a little Great Lakes Gelatin in there. I get the green can. That stuff is awesome and dissovles in hot or cold beverages.
I think you’d be better off with the purple rice I mentioned earlier than MitoQ, especially if something is going on with your liver. Maybe you want to just try that and not even the Idebenone, because it’s natural– it’s just food. But it’s a food our bodies can use easily. I wish I had known about it a lot sooner.
I also like the magnesium threonate. It seems like my body is able to utilize it better and I don’t have to take so much. But I take it only in the morning or for some reason it can keep me up at night.
It really sucks that we are stuck experimenting on ourselves as to what will cure us. It costs a lot of money and sometimes we don’t even know if something is hurting or helping. But I’m doing pretty good, so I guess the things I tried have worked. I just think sometimes that the drug companies could reimburse me, even half the cost, of all the stuff I’ve tried that I never would have tried had their drug not essentially disabled me overnight.
Ruth
Thanks Ruth for your quick reply. You said you also play the organ in church? I guess your faith got you through this as well? I won’t say too much here since this is an open forum. Tell me again where to find the purple rice. Will Whole Foods have it? Kris Ps You are right about physical therapists not knowing about floxies and all that, he looked at me like I was crazy the other day when I was there.
Hi Lisa, hi all,
I took cipro about 4 months ago, not a big dose (2.5 g). Now I am still struggling with inflammation in the knees. Even if they have never been swollen, there is some inflammation (seen on the MRI). The rheumatologist told me I have either reactive arthritis or the adverse effects of cipro. So I am asking myself if there is a way to distinguish the one from the other. They have similar symptoms, at least for the musculoskeletal part…
I am not a doctor, but many stories on this website can probably be interpreted as reactive arthritis too. We all took FQ antibiotics because of a bacterial infection (or suspected one) so the reactive arthritis scenario can be applicable to many of us.
Has any of you already put some thought on this question: how to distinguish cipro toxicity from reactive arthritis? Thanks and hope we all get well soon.
Low GABA levels are associated with tinnitus. Damaged GABA receptors will yield the same result. CalmPRT has precursors to GABA in it and that will ensure you have enough GABA without overwhelming those receptors with too much of it. Only time will heal the tinnitus from downgraded GABA receptors. The supplements only helped my underlying, pre-existing tinnitus. In a flare up, my tinnitus comes back. While in a normal window I can get to zero tinnitus taking benfotiamine and ALA. However, both of those are very good for nerves. They just won’t get rid of tinnitus from downgraded GABA receptors.
Franco, it is very difficult to pinpoint Cipro floxing if you don’t have more than one symptom, and there is no test for it. I got peripheral neuropathy as well as tendonitis on the third day of taking it, and it significantly worsened within a half hour of taking the last pill I took. Many people wind up with multiple symptoms after taking a fluoroquinolone, so it is usually pretty clear that they were floxed. I know for a fact that those symptoms came directly from my cipro use. There’s not really any way for you to know for sure, but to be safe I’d stay away from any fluoroquinolones in the future.
Tyson, Let us know on this forum how you do with the Idebenone, I am interested to hear as I am going through some of your same issues. Kris
Lisa, do you know if you can take estrogen while you are floxing? Kris
Estrogen is stimulatory. Progesterone calms things down. HRT of only one it only the other is safe with bio identical hormones. Supplementing both is not safe even with bio identical hormones.
Ruth, I used this cream that you do not take orally. (since this is an open forum, don’t want to get too specific, hopefully you will get the idea) Anyway, I am having all kinds of problems today, let alone it burned like hell. But I need to take something for the dryness. Any suggestions? My friend uses a hormonal cream that she rubs on her body, but I have this chronic hive problem called dermagraphism and I am afraid that could be affected by that. kris
I have been taking estrogen since I was 37 and had a hysterectomy. I am 73, only take a low dose now. I do not have a gallbladder either, or a family history of breast cancer.
Ellen, were you taking it when you were de-floxing, or after taking Cipro? Kris
Kris,
I never did the cream for HRT. I just take pills. So I don’t know what to tell you. I used coconut oil on my skin for dryness when it was really bad.
Ruth
Kris t,
I will definitely let you how the Idebenone works for me, I really hope its safe. I cant find much information on it. I did get the Purple Rice and it seemed to help my anxiety right away. It really calmed me down. I don’t know if I was just coming around on a good “window” or if it was the rice. Seems really weird but its helping. I feel tired and sluggish after taking the rice but I’m not going crazy like I usually am. I’ll continue the rice and see how it works, sucks that its so expensive.