*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
Lisa’s Story
In the middle of November, 2011, I took Cipro to treat a urinary tract infection. I took 2 pills (500 mg each, I believe) a day for three days. I didn’t feel like the infection was gone, so I went back to the doctor and requested more antibiotics. He gave me macrobid and the infection subsided within a couple of days. Life went on as normal for the next couple of weeks, until December 2, 2011, at which time I got my period and started taking ibuprofen to help me to deal with the cramps.
Before I continue with my story, I would like to note that I had taken Cipro to treat a urinary tract infection approximately a year earlier. I had no notable side effects at that time. Though, looking back on things, I did develop an eyelid twitch at that time and some strange stomach cramping that came and went started then. I didn’t think anything of the eyelid twitching or the stomach cramps. I certainly didn’t think that they were tied to the Cipro. I took ibuprofen regularly after taking Cipro with no adverse effects.
On December 2, 2011 my legs started to itch. On December 4th I broke out in hives all over my body. I went to the doctor and was told to take Benadryl. I took more Benadryl than the box recommends and my hives got progressively worse. On December 5th my feet and hands swelled to the point that I couldn’t use them anymore. It was painful to walk, or even to just stand. I went back to the doctor and was put on prednisone. The prednisone suppressed the swelling and calmed the hives a bit. On December 7th my left leg went weak. For the next few weeks the following symptoms got worse and worse:
- Weakness in my legs. I could barely walk. The steps that I could take took a tremendous amount of effort and energy. I couldn’t stand for more than a minute. I had to drag a chair into the kitchen in order to cook rice because I couldn’t stand to stir the pot.
- Tightness of the tendons in my legs. I had inflammation, and possibly tears, in most of the tendons in my legs and feet. My hips, knees and ankles, to simplify things, didn’t work right.
- Loss of use of muscles / loss of strength. My muscles, especially the muscles in my legs, wouldn’t move like they used to. All of my movements were slow and deliberate.
- Brain fog. I couldn’t think straight. I felt stupid. I couldn’t concentrate. It was a struggle to do my job.
- Loss of memory. My short-term memory decreased significantly.
- Loss of peripheral vision. Large, black floaters entered my peripheral vision.
- Loss of appetite and weight.
- Loss of flexibility. I went from being able to do yoga several times a week to being unable to sit with my legs curled up under me.
- Loss of balance.
- Severe loss of energy. I felt like the plug had been pulled from my energy source. I wasn’t necessarily sleepy, I was just drained. The feeling was similar to the feeling that I have when I have a cold – weak and like I just want to collapse. Just slight exertion would drain me of my energy. Walking would make me tired for a whole day afterward.
- Dry mouth.
- Anxiety. I had an ongoing anxiety attack for the first couple of months after being floxed.
- Pain in my feet. I felt like I was walking on hot coals with every step I took.
- Loss of reading comprehension. I would read a page and have no idea what I had just read.
- Loss of social skills / connectedness. I felt anxious and scared in social situations. I lost confidence in both my physical and mental abilities. I felt very alone despite having a wonderfully supportive family.
I felt as if I had aged 20 years in just a week or two. I couldn’t move, think or eat. My body and mind were falling apart and I had no idea why. I didn’t think that the sudden decline in my health had anything to do with the Cipro. After all, I had stopped taking it a couple of weeks before my body started to fall apart. I thought that I had an autoimmune disease. My symptoms seemed similar to those of rheumatoid arthritis. I went back to the doctor and they ran every test imaginable on me. I was relieved to find out that I didn’t have an autoimmune disease, but it was somewhat frustrating to hear that all of the tests were showing that I was normal and healthy when, clearly, I was neither normal nor healthy. The doctors did not provide me with a diagnosis or a prognosis. Though I was desperately seeking a diagnosis and prognosis, I am thankful, in retrospect, that they didn’t misdiagnose me. If I had been mistakenly diagnosed as having an autoimmune disease, I may have treated it with pharmaceuticals that could have made me feel even worse.
I was desperate for some treatment, something to stop the downward spiral that my body, mind and spirit were in. The traditional medical doctors I saw provided no relief, treatment or healing. I started seeing an acupuncturist. He was able to stabilize my condition, calm my nerves and keep me from spiraling physically or mentally. After a few weeks feeling stable physically, I started to have days where I felt better than I had the day before. Mentally, I kept going downhill for a while, but, eventually my mental health stabilized and started to improve as well.
Eventually, with the help of my acupuncturist, I connected my symptoms to Cipro. Once the connection was made, I realized that all of my symptoms were consistent with those of others who have been poisoned by Cipro and other fluoroquinolone antibiotics. I entered the scary world of being a floxie.
For about a year, I considered myself to be sick. Though the symptoms listed above were improving, slowly but steadily, I was still sick, and a long ways from the healthy, active, energetic woman that I was before I took Cipro. After a year, I started to put “sick” in the past tense. Though I wasn’t back to the level of health that I was prior to being floxed, I was getting better and, as far as most people could tell, I was well.
Following is a list of things that I did to help me to get well, to heal. I am not a doctor. This is a description of my experience and what helped me. I hope that what helped me helps you. Everyone is different though. What helped me may not help you. One thing that I know helped me and that I know will help you is hope. I hope that the fact that I have largely recovered helps you to have hope. I hope that the other steps that I took to get well also help you to gain hope and healing.
Please feel free to contact me with any questions, comments or concerns, or to share your story.
Lisa’s Healing Tips
One of the many frustrating things about fluoroquinolne toxicity is that everyone’s body is different. Everyone’s symptoms are different and everyone’s body reacts differently to treatments. Following is a list of things that helped me. I hope that what helped me will help you, but it may not. I am including other people’s healing tips as well, in case their tips can help. Of course, please read these tips with the typical disclaimer in mind – I am not a doctor or medical professional of any kind. I am sharing my experience with the hope that others may find it to be useful. Please ask your doctor, or other trusted medical professional, for medical advice, and before taking any of my advice.
In no particular order, here are the things that helped me to heal.
- Time. With time, I have healed. Each day is better than the day before. Time will heal your wounds too. Eventually, you will get better. The poisonous reaction affecting every part of your body will eventually stop and you will begin to recover. I have heard several stories of fellow floxies having a timeline similar to mine – slow, steady recovery for about 2 years. Other people take more, or less, time to recover. Time does help though, and most people do end up getting better as time goes on. Very few people get worse and worse indefinitely. There may be bumps in the road, but time is your friend. Time will help you to return to a state of health.
Try to be patient with yourself. It will take time for your body and mind to heal. I see this whole ordeal of getting sick as a lesson in patience (and compassion, gratitude and health). Pushing yourself too hard too soon can lead to pain, frustration and injury. Try to give yourself the time necessary to heal, and, with time, your body and mind will, indeed, heal.
- Avoid NSAIDs and steroids like the plague. Both NSAIDs and steroids are contraindicated with fluoroquinolone toxicity. They will make your reactions and symptoms worse. There are some published medical articles on PubMed about the contraindication between NSAIDs/steroids and fluoroquinolones. Searching at the library or on Google will give you more detailed information than I can provide. Anecdotally, I know that my reaction was triggered by taking NSAIDs (ibuprofen that I took to help me to deal with menstrual cramps) and it was exacerbated by taking prednisone (a steroid). Please note that I did NOT take NSAIDs or steroids at the same time as Cipro. I took ibuprofen 2 weeks after I finished taking Cipro and it triggered my toxic reaction and I took prednisone 3 weeks after I had finished taking Cipro, after my reaction had started. I will never take another NSAID or steroid again.
Unfortunately, NSAIDs and steroids are the drugs that are the most commonly prescribed drugs used to “treat” fluoroquinolone toxicity. This is because the combination of NSAIDs/steroids and fluoroquinolones does not always cause a toxic reaction, the toxic reaction of combining fluoroquinolones and NSAIDs/steroids can occur even when the drugs are taken weeks or months apart, doctors and other medical professionals don’t acknowledge fluoroquinolone toxicity and so they don’t look for the contraindications and because many of the symptoms of fluoroquinolone toxicity are treated with NSAIDs and steroids. The pain killing qualities of NSAIDs and the swelling reduction qualities of steroids make them the drugs of choice for treating many of the symptoms of fluoroquinolone toxicity. Don’t take them though! In my nonmedical opinion, I suggest taking non-NSAID over-the-counter pain medicine like acetaminophen (Tylenol) for pain (or marijuana – which is probably better for your liver), and antihistamines for the swelling.
Often, fluoroquinolne toxicity is misdiagnosed as an autoimmune disease. In particular, it is often misdiagnosed as rheumatoid arthritis. Many of the drugs that are used to treat rheumatoid arthritis are NSAIDs. Don’t take them.
- Acupuncture. I credit my acupuncturist with saving my life. I can only guess how I would have fared without my acupuncturist, but I imagine that I would have ended up in the emergency room, pumped full of steroids and antidepressants, having a massive anxiety attack and unable to walk. That didn’t happen though and there really isn’t any point in surmising about what could have been. I do know that acupuncture stopped my downward spiral and got me on the road to recovery. Both the acupuncture needles and the herbs that he provided gave me immense relief. I don’t know why or how acupuncture works, but I do know that it worked wonders for me.
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Supplements. I have taken more supplements than I can remember. 90% of them had no noticeable effect on my health. Here is a list of supplements that I think helped me.
Iron. I take a low dose iron supplement – only 5 mg. – daily. The brand of iron supplement that I use is Pur Absorb, but I’m guessing that other low-dose iron supplements will work equally well. Within just a couple days of starting taking the iron supplement, my energy levels increased dramatically. I could walk a mile without being exhausted afterward. In addition to improving my energy level, the iron supplement seems to make my muscles and tendons more supple and malleable. When my tendons are feeling tight, a dose of iron helps to loosen them up – within just a couple hours. Too much iron is really bad for you, so please be careful with supplementing it (ask your doctor, yada yada), but it helps me immensely.
Magnesium. I take 250 mg of chelated magnesium daily. I don’t necessarily notice that it makes me feel better, but I do notice that I feel worse when I don’t take it. My muscles twitch if I don’t take my mag.
Zinc. I take zinc when I get around to it. I remember feeling mildly better when I started taking it. It doesn’t seem to affect my health dramatically though.
Chlorophyll. I take chlorophyll about every other day. It seems to help with my energy level and mental functioning.
I also take fish oils, resveratrol, a probiotic, a joint supplement, CoEnzyme Q10, vitamin B12, chlorella, glucosamine, brewer’s yeast and some other supplements. They may help. I can’t say that I feel a difference using any of them.
- Meditate. Meditating has so many amazing, positive benefits for your brain, your life, your spirit, etc. that I can go on about it ad nauseam. Meditation helped relieve a lot of the mental symptoms of my fluoroquinolone toxicity. My anxiety, inability to concentrate, inability to connect with others, depression, loss of reading comprehension, decreased mental acuity, etc. were greatly reduced (or improved) through meditating. I meditate about 10 minutes each day. I should meditate more like 20-30 minutes a day.
Meditating helped me to gain compassion for myself and my situation. It also helped me to let go of the anger that I felt toward the pharmaceutical companies and the medical culture that allows fluoroquinolones to be on the market. The pharmaceutical companies and the medical culture are both messed up and blame of them is justified, but anger and blame were not serving me mentally, emotionally, spiritually or physically. I needed to let go of my anger and blame in order to move on with my life. Meditating helped with that.
I learned to meditate through taking a class called Mindfulness Based Stress Reduction that was offered by my health insurer. It was an excellent class based on the work of Jon Kabat-Zinn. Many Buddhism centers offer Mindfulness Based Stress Reduction or Meditation 101 classes.
- Get off the internet. Most of the information available on the internet about fluoroquinolone toxicity is horrifying. Fluoroquinolone toxicity is horrifying. It is scary. It is completely unacknowledged by the medical community – the doctors, nurses, etc. who we go to in order to make sense of things when our body goes hay-wire – so we seek answers on the internet. Unfortunately, most internet sites devoted to fluoroquinolone toxicity do not provide a balanced picture. They show the harm and the horror of fluoroquinolone poisoning, but they don’t show the healing and hope that most people eventually experience. I am writing and distributing this in order to provide the perspective of hope and healing. Some people are permanently disabled from fluoroquinolones. My heart goes out to those people and they have every right to scream their story on the internet. However, their story is not your story. My story is not your story either. But if you’re going to look to the internet for a prognosis, it’s better to find a hopeful prognosis than one that is full of doom and gloom.
When I participated in the online forums for Floxies, I noticed that my anxiety levels increased significantly. Even after I was 90% recovered and I thought I could handle it, my anxiety levels would go up simply by reading about people being floxed. Inducing anxiety is one of the worst things that someone suffering from fluoroquinolone toxicity should do. Anxiety makes all symptoms worse. I would slowly relapse and my symptoms would get worse every time I participated in the online forums.
Of course, the people participating in the online forums are seeking to help fellow Floxies, to commiserate and to participate in a support group. It is not their fault that my anxiety levels increased when viewing their sites and/or support groups. After all, most people on those sites are trying to be helpful and supportive. However, the net result of participating in the forums for Floxies is that my anxiety levels increased and my health declined while I was on those sites. I am healthier and happier not participating in the online “support groups” than I was while I did participate in those groups. Of course, this is my experience only. Many people find solace in the Floxie community and if it helps you, great!
The people who have worked hard to create a community of Floxies to support one another should be commended. It is because of their hard work that thousands of people have realized what is going on with their bodies and that they are not alone. The community of Floxies is full of wonderful people. However, you need to do what you need to do to take care of your health and if you find that hearing other people’s stories increases your anxiety levels, get off the internet. For you.
- Diet. I lost 11 pounds in 18 days when I first got floxed. My body was going hay-wire and it seemed like an allergic reaction. I had no idea what I could possibly be allergic to so I stopped eating almost everything. I didn’t eat sugar (including fruit), gluten, dairy, soy, anything non-kosher or anything spicy, or drink any alcohol or caffeine, for a month. I only ate vegetables and organic meat. It’s a highly effective way to lose weight, but I don’t think that restricting my diet severely helped me to heal. Restricting my diet gave me a sense of control, and that’s not a bad thing when your body is self-destructing, but I don’t think that it made me feel any better physically. After a month of only eating veggies and organic meat, I started to add normal foods into my diet. As soon as I started eating an appropriate number of calories, I started to feel better. Not only was I Floxed, I was also wasting away when I wasn’t eating normally. Getting enough food is an important part of healing. Of course, it’s generally good to be on the “don’t eat junk” diet, but I didn’t find that cutting my food intake significantly helped me to feel better.
Many Floxies develop GI problems. I was lucky in that I didn’t have many GI problems. Many people seem to be helped by cutting gluten, sugar and/or junk food out of their diet.
I notice that I feel slightly worse than normal when I consume sugar and/or caffeine. I think that most people do, I am just now accustomed to paying closer attention to my body.
The only food that makes me feel noticeably better is beets. For some reason, beets make me feel great. I just boil them and eat them.
I’ve heard good things about the benefits for Floxies of eating broccoli and other cruciferous vegetables. I love broccoli so I try to eat a lot of it. Unfortunately, I can’t say that I’ve noticed that it makes me feel better.
- Swim. My tendons and muscles feel significantly better when I’m in the water, and for several hours after I finish swimming. Swimming in the ocean feels especially therapeutic. There are so many minerals and trace nutrients in the ocean, I surmise that they’re helpful for healing. Unfortunately, I don’t live near the sea, so I swim in a pool. I feel better when I do so.
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Pilates. I started doing Pilates about 7 months post-floxing. Pilates strengthens the core, something that is generally important, and gently stretches muscles, tendons and ligaments, something that is particularly important for Floxies. I started slowly and gently and didn’t push my tendons, muscles or ligaments too much. I feel that gently stretching helped my tendons, muscles and ligaments to heal and return to (close to) their pre-floxing capacity. Take it easy though.
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Healing arts. I love to dance. I’m not a good dancer, but I love to do it. About 16 months post-floxing I started to dance again. Dance has been healing for me. I feel spiritual, strong and joyful when I dance. I’m not sure if it’s the dancing itself that I find to be healing, of if it’s the joy that I feel when I dance that is healing. Either way, it helps. I surmise that other forms of expression would have similar healing qualities. If you love to sing, sing. If you love to paint, paint. If you love to write, write.
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Attitude tips.
Try not to compare yourself to how you used to be. I used to hike 20 miles in a day. I can’t do that anymore, but I can hike 3 miles today and I couldn’t do that when I first got floxed. Compare yourself to how you were yesterday, not to how you were before you got floxed.
Do something – anything – to work toward healing, every day. Walk a little further than you did yesterday. Meditate. Take an Epsom Salt bath. Get an acupuncture treatment. Do a puzzle. Whatever makes you feel good – do it. Every little step helps.
Don’t kill yourself. Have hope. You will get better.
You’re not crazy. You’re sick. Have hope. You will get better.
You’re not stupid. You’re sick. Have hope. You will get better.
Try not to identify yourself as sick. The mind is a powerful thing so try to stay positive. It’s hard, I know. But try, because it’s worth it.
You will have bad days. They will pass. This all will pass. It is not permanent. You are strong – present tense. You were knocked down, but you weren’t killed. You will get better.
Don’t quit your job. Try to maintain as much normalcy in your life as you can.
It is not your fault. Even if you knew better, even if you demanded the most powerful drug possible from your doctor, even if you self-medicated, even if you coerced your doctor into giving you the fluoroquinolone antibiotic, even if the infection that you were treating was something that you got because of doing something stupid, or from sex, even if you continued to take it after you started to get sick, even if you floxed your child/parent or other loved one – IT IS NOT YOUR FAULT. You are sick. You are poisoned. You are not to blame for your sickness or for the fact that you are poisoned. Who to blame is a discussion that I don’t want to get into because I want this to be positive, but it is not you. You are not to blame. You are a victim. It is not your fault.
Lisa’s Life now
Life is good. I don’t consider myself to be sick any more. I’m not quite up to my pre-floxing capacity in a couple of areas. I don’t have the endurance, energy, strength or flexibility that I used to. However, I’m pretty close to my pre-floxing capacity in those, and other, areas. I’m about 99% better. Not being capable of intense exercise since December, 2011 has left me a bit out of shape, but I’m working toward being able to exercise intensely again and my stamina, strength, energy, etc. are increasing. I can’t hike 15 miles with a backpack on quite yet (something I could do before I was floxed), but I am capable of most physical and mental activities that would put me in the “normal” or “not sick” categories.
I can work full-time. I am grateful for the fact that I have a job that is not too demanding physically or mentally because I was able to hold onto it through my worst times. My boss and coworkers were wonderfully understanding and they claim not to have noticed that I couldn’t think straight for about a year. I even got a promotion about a year post-floxing!
I can do Pilates 4 times a week, swim 2 times a week, dance once a week and walk daily.
When I was unable to walk a block I told myself that I would consider myself to be “better” when I could dance all night in heels (my feet hurt like hell when I was sick), I can do that now. I never liked high heels, but I can wear them now.
My memory isn’t quite what it used to be, but it’s good enough to do well at my job and to maintain my relationships.
In many ways, I’m a different person than I was before I got floxed. This has been perplexing for me and my loved ones, but it’s not an altogether negative thing. I’m a much more spiritual person than I was before I got sick. I was a pretty firm Atheist before I was floxed. Now, through meditation, dancing, believing in alternative therapies that focus on energy, etc., I’m finding some spiritual outlets that I didn’t have, need or want in the past.
I have become a more compassionate and patient person. I now empathize with people who have mystery diseases. I used to have the attitude that I now find so frustrating in medical professionals – that if there isn’t a way to diagnose or treat an ailment, it doesn’t exist. Now I know that people are genuinely suffering and that there is a real cause for their pain – regardless of whether or not it is acknowledged by the medical community. My heart goes out to those in pain.
I had to become more compassionate and patient with myself as well.
I like some things that I didn’t like before I was floxed and I don’t like some things that I used to like a lot. I hated swimming for the first 32 years of my life. Now I love it and consider it to be an important aspect of my healing. I used to like working out in an intense way that got me dripping with sweat. Now I like to do exercises like Pilates that are focused, slow and deliberate. I used to love hiking, camping and backpacking. I miss loving those things so I’m going to try to get back into them, but I’m not sure that they’re my passions any more. Drinking used to be one of my favorite pastimes. My tolerance for alcohol is shot now and I don’t really enjoy it any more. I missed it for a while even though I knew that it was for the best that I wasn’t drinking like a fish. My appetite has changed as well. I used to be able to eat a lot of food and I loved to eat. I still eat, of course, but I don’t eat as much as I used to and I don’t eat with as much gusto. This is probably a good thing seeing as I’m not into exercising intensely any longer.
Even though I would do just about anything to turn back time and not take Cipro, the place that I am in life isn’t bad, and I probably would be someplace different if I hadn’t gotten sick. It sucks that I had to gain empathy for people who suffer from pain, mystery ailments and debilitating fatigue, but it’s probably a good thing that I now have more empathy. I would like to think that I’m a better person from going through this. I’m not a stronger person, but maybe I am a better person.
I hope that my tips and words of advice are welcome and helpful. Please feel free to contact me if you have any questions or concerns.
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
All the comments are helpful except hearing it could take years! I bent my left knee hard and saw stars, now when I try to walk it wants to give out? How can an antibiotic make me crippled. My neighbor wants me to go to the hospital! Yikes if I do that they will treat this as a form of arthritis and pump me full of steroids. If I had a form of arthritis it would have come on gradually not BAM in ine day after the pills. And I had an autoimmune test weeks ago that came back negative. Feel so lost and along.
Bless you all
Janea
Hi Janea,
Yes, for me going to the ER didn’t help at all. My boss had talked me into it, and they didn’t do a thing for me and really didn’t seem to even take the “It was Levaquin” seriously. So, even though I was a little mad that they didn’t do anything, in hindsight I am glad they didn’t. They could have made things worse!
During the first few months, I had MRIs and a spinal tap. None of the tests showed anything. My neurologist had me try steroids (I wasn’t aware how bad that could have turned out). It didn’t help.
What really helped was time. That’s so hard to hear because we want the pain to go away NOW, but hopefully it’s comforting at the same time.
I have healed and it did take time. I read all the positive, self-help books I could and surrounded myself with a few positive people who believed me that it was Levaquin that caused it. Once my pain decreased, I started walking short distances for exercise and eventually worked up to five miles a day and started lifting some light arm weights.
I healed and you can too. Keep positive!
All my best to you!
Tammy
Janea, are you getting enough potassium? I found by eating a bananna a day, helped my leg cramps. I also eat yogurt and sweet potatoes. Kris T
I’d agree about the banana and yogurt. I ate a lot of plain Greek yogurt since I was floxed and it always seemed to help a lot.
I was at a Lutheran camp all weekend riding my bike a lot and they had a bunch of bananas left over from this run– I guess they had them for the runners. I saw them and it was like I had never seen anything so beautiful in my life and I just craved one so bad. I ate it and the mild cramps I was having in my calves stopped. I thought I was dehydrated or low on magnesium. I guess I was low on potassium.
I think getting floxed throws a lot of our electrolytes off and it certainly creates deficiencies in many things. It’s like your body has just run a marathon. I remember right after I was floxed trying to do a little housework and after running the vacuum in the living room I felt like I had just finished a day of hiking the Baraboo bluffs. My level of exhaustion and muscle fatigue and pain was exactly the same.
But now I really can hike again. I actually hiked (a short hike but a pretty vertical one) at 3 1/2 months out. I got really sore from it. I hiked again a few months later and it felt quite a bit more normal, although I could hike about half as far as I usually can. Now, at eighteen months out, I don’t have any limitations on physical activities due to floxing. I’m still 47 years old and pretty fat with flat feet and laterally tracking patellae, so that is going to slow a person down a bit and I have to be careful to protect my knees– but I am able to be physically active and enjoy it. I build muscle easily and can tell that I am adding strength every day. So even though floxing knocks you down quite a bit it is possible with time and taking good care of yourself to reverse it.
Janea,
You are right– arthritis comes on gradually. Your pain is definitely being caused by the fluoroquinolone. That doctors won’t acknowledge that is a crime.
FQ’s cause arthritis through a variety of ways. One is actually through downgrading of GABA receptors. GABA relaxes us. We have receptors for GABA (gamma aminobutryic acid) all over our bodies. When they don’t respond correctly to GABA our muscles can cramp and tighten. That could be part of the cause of your pain.
Another thing FQ’s do is deplete functional minerals like magnesium and calcium. Our bodies need these in the proper ratios for muscle contractions to happen normally. We need them both in order to both begin a contraction and stop the contraction. I had both severe muscle wasting and atrophy literally overnight in most of my body but at the same time my calves and ankles were tight all the time.
One thing that helped was to put a pillow between my ankles, so that there was some contact on my calves and my ankles. The gentle pressure of the pillow being there seemed to help normalize muscle tone.
Another thing that helped was non weight bearing range of motion. I play church organ and the absolutely best therapy I had for my tight ankles was playing the pedals. Within about fifteen minutes of playing the muscle tone in my ankles would normalize and stay that was for sometimes a few hours afterwards.
So you could try sitting in a chair and just walking your feet side to side and forward and back– moving the ankle joint but having very little weight on your feet. I think that if you kind of mimic what I was doing on the organ it might help. But you have to do it for awhile– at least 15 minutes or even a half an hour. Maybe while watching a tv program, just be sitting there playing that imaginary pedal board. Remember that I was playing notes with both my toes and my heels, so try to mimic doing that to repeat the same motions that helped me.
FQ’s also cause a huge increase in oxidative stress. Antioxidants are vital for floxies to stop this cycle of damage, because the oxidative stress can cause degradation of cartilage, tendons and ligaments. Vitamin C and E are good. N-Aceytl Cystein or NAC is very good. That micronized purple rice Kris mentioned has a lot of antioxidants in it and it’s milled really small so it can get into even damaged cells and nourish the mitochondria.
I used to recommend MitoQ a lot and it is very, very effective when it works for someone. But some floxies have trouble processing it, and for them it becomes an oxidant and can harm their cells. Supplements that work really well for some floxies are often not an option for others. The rice is just food so it is safer. I have switched to it opting for the more natural solution long term. I miss the MitoQ though because while taking it I could climb an almost unlimited number of stairs without becoming breathless. The effects it had on my cardiovascular system were miraculous, probably because it is a targeted CoQ10. But if it’s just a matter of preserving connective tissue with a protective antioxidant, the purple rice would work. I order the rice from Kare Possick. Her number is 727-798-8764.
An alternative to the rice, that is cheaper but still helpful for joints is Great Lakes Gelatin in the green can. It dissolves in hot or cold beverages. My knees really have been great since I started that, and I had knee problems before being floxed.
Idebenone is also a targeted antioxidant, like MitoQ, meaning it really benefits your mitochondria. It also has been shown to prevent tendon damage from FQ’s, like MitoQ. I get it from HBC Protocols online and take 50 mg 3x a day with food. It has some benefits for healthy brain chemistry that are kind of amazing too. It is probably more easily tolerated by floxies, but some find it increases their anxiety. For me it did the opposite.
So that gives you a few things to try and some understanding of how FQ’s do what they do to our bodies. Why they are still on the market at all is what I will never understand.
Ruth
Janea,
I know it’s easy to start to go down the road of depression and anxiety with this, but please know that it is possible and likely that you will heal. First of all, good for you for doing yoga at 79. Many 30 year olds don’t even walk around the block with perfectly healthy bodies!
I don’t eat dairy and get my potassium through my daily foods: bananas, broccoli, avocado, spinach. There are many more, but this is what I eat every day that has potassium.
I also eat many foods with magnesium: almonds, peanut butter, raw pumpkin and sunflower seeds, beets, and avocado.
I found that doing this body scan is helpful: http://www.mindfulnesscds.com/collections/mp3s/products/series-4
The MP3s can be downloaded onto your computer and can be done in the middle of the night or whenever you feel like it. I wish I’d had it back in 2006 when I first took Levaquin.
Hugs and healing!!!
Tammy
I agree with Tammy. There is no reason to believe that you will not heal! I read recently of a 106 year old floxie who healed. Not to 100%, but she is doing a lot better. If she can heal, you can too!
I have another idea for the cramps. Put a partially filled plastic water bottle in the freezer. Use that frozen water bottle to massage tight area in your calves and around your knees. Really dig in there, as much as you can tolerate it, and you can make progress in loosening up those tight muscles. I had forgotten that I did that a lot when I was having a lot of intense lower leg pain. You see? I have healed so completely that I have to actually think back to remember what it was like! You will reach that point too! Don’t give up. It does get better. And when we say it takes years, that means years to get back to 100%. You can be feeling much, much better in a lot less time than that.
There is an acute stage that is really tough, but most people pass through it relatively quickly. It can be a slow climb back to exactly where you were, and maybe you won’t get exactly to where you were, but you can get close enough that your quality of life can be pretty much what it was. That being said, I think it is nothing short of a crime that you were ever given an FQ at your age. They aren’t supposed to be given to people over 60! But it sounds like you were a very youthful 79 year old and there is no reason to assume you won’t be again.
A lot of the things that help foxies are actually anti-aging products: the purple rice I mentioned, the MitoQ and Idebenone and even the Great Lakes Gelatin. If you start using anti aging products to help your recovery from floxing you may find that in the end you will recover and then start getting better than you were before. I feel I am on that road now. I’m younger than you, I know, but I’m certainly not feeling middle aged at all these days. I have lots of energy and stamina and no joint pain. I used to have pain in my right thumb that I’d notice when I was playing the organ and my knees hurt a lot, long before I took the Cipro. Now I have no joint pain. Ever.
Hang in there!
Ruth
Feeling that I’m actually going down hill, particularly mentally, constant head pressure, tinnitus, lightheaded, night mares, can’t do this for much longer. So wish I had an off button.
Gayle, I am going through the same thing you are! And I have extreme back shoulder muscle spasms which I think might be caused because I hurt my neck and I think the Cipro made everything worse! I just keep going every day and saying to myself, it has got to get better. Plus double vision which started after my surgery. Kris T
Yes, I take Tylenol every day almost. Kris T
Gayle and Kris t
I think the lightheadednees and tinitus are due to weak muscles and ligaments of the neck. I have them too and increase when change fast my neck position. Hope they go away.
Thankyou for replying Enkel, you could be right, my neck as with all my joints does crack but at the moment is not painful, however i do now have a big problem with my tmj joints and blocked but not infected ears and pressure in my head. My knees are the most debilitating joints, very very stiff, crunchy and painful however an MRI scan didn’t show anything, not sure if that’s good or bad as they are not like this for no reason. Have you found anything that helps with the lightheaded or tinnitus?
Hi Gayle
no I have not found. I think just time heals and eating organic. I have 6 month out. The process is cycles, becoming better some days and then worse. How months you are out of quinolone? And how much did you take?
From flox report i have understood if right that dossage and time of taking quinolone relates to the duration of sumptoms. Quinolone do not clear after stopping taking them. They are hidden in tissue.
My pain is worse at night also. I do not think it is caused by bread. Its because you are not active. I find when I sit down after moving around, everything stiffens up and becomes painful. So I get out the ice packs and use those. Kris T
Enkel, did you do those neck exercises at all?
No neck exercises are not good at this time i believe. The ligaments and muscles are not in shape to guarantee natural smooth movement.
Hi Enkel, I took cipro 500 twice a day for a bladder infection that I never even had!! I had a 5 day course and went back as still had discomfort and was given another 7 days. I am so upset. I had them in April this year, my reaction started the day after I finished them with an anaphylactic reaction that I ended up in accident and emergency with, they thought I had a nut allergy! It took me 6 weeks to work out what it was. The first few weeks my mind was ok then it was like a bomb went off in my head. Today my mind has been somewhat clearer and the pressure not so bad, I can only hope this is a good sign.
I have to do the exercises because I injured my neck, lifting something heavy at work, and then re-injured it, lifting something heavy at home. The only problem, I don’t think they are working. I mean they work for awhile and then go back to where I cannot move my head very far and I have a terrible pain in my back right next to the shoulder. I may do acupunture over the chiropractor. Although all he does is stretch my neck and move it from side to side. But I also have trouble swallowing after these visits.
Hi gayle,
We are the same dossage and time. For 5 days i have taken norfloxacin and avelox and then 5 days i have taken anly avelox. 21 pills 400 ml in total. It is a considerable amount. From flox report i hope i need two years at least to heal. By the way How old are you? And when your cracking joints and neck started?
Hi Kris,
I have done some chiropractic adjusment but after reading some reports neck manipulation from chiro or osteopaths is danger even for normal people. I quit the chiro.