*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
Lisa’s Story
In the middle of November, 2011, I took Cipro to treat a urinary tract infection. I took 2 pills (500 mg each, I believe) a day for three days. I didn’t feel like the infection was gone, so I went back to the doctor and requested more antibiotics. He gave me macrobid and the infection subsided within a couple of days. Life went on as normal for the next couple of weeks, until December 2, 2011, at which time I got my period and started taking ibuprofen to help me to deal with the cramps.
Before I continue with my story, I would like to note that I had taken Cipro to treat a urinary tract infection approximately a year earlier. I had no notable side effects at that time. Though, looking back on things, I did develop an eyelid twitch at that time and some strange stomach cramping that came and went started then. I didn’t think anything of the eyelid twitching or the stomach cramps. I certainly didn’t think that they were tied to the Cipro. I took ibuprofen regularly after taking Cipro with no adverse effects.
On December 2, 2011 my legs started to itch. On December 4th I broke out in hives all over my body. I went to the doctor and was told to take Benadryl. I took more Benadryl than the box recommends and my hives got progressively worse. On December 5th my feet and hands swelled to the point that I couldn’t use them anymore. It was painful to walk, or even to just stand. I went back to the doctor and was put on prednisone. The prednisone suppressed the swelling and calmed the hives a bit. On December 7th my left leg went weak. For the next few weeks the following symptoms got worse and worse:
- Weakness in my legs. I could barely walk. The steps that I could take took a tremendous amount of effort and energy. I couldn’t stand for more than a minute. I had to drag a chair into the kitchen in order to cook rice because I couldn’t stand to stir the pot.
- Tightness of the tendons in my legs. I had inflammation, and possibly tears, in most of the tendons in my legs and feet. My hips, knees and ankles, to simplify things, didn’t work right.
- Loss of use of muscles / loss of strength. My muscles, especially the muscles in my legs, wouldn’t move like they used to. All of my movements were slow and deliberate.
- Brain fog. I couldn’t think straight. I felt stupid. I couldn’t concentrate. It was a struggle to do my job.
- Loss of memory. My short-term memory decreased significantly.
- Loss of peripheral vision. Large, black floaters entered my peripheral vision.
- Loss of appetite and weight.
- Loss of flexibility. I went from being able to do yoga several times a week to being unable to sit with my legs curled up under me.
- Loss of balance.
- Severe loss of energy. I felt like the plug had been pulled from my energy source. I wasn’t necessarily sleepy, I was just drained. The feeling was similar to the feeling that I have when I have a cold – weak and like I just want to collapse. Just slight exertion would drain me of my energy. Walking would make me tired for a whole day afterward.
- Dry mouth.
- Anxiety. I had an ongoing anxiety attack for the first couple of months after being floxed.
- Pain in my feet. I felt like I was walking on hot coals with every step I took.
- Loss of reading comprehension. I would read a page and have no idea what I had just read.
- Loss of social skills / connectedness. I felt anxious and scared in social situations. I lost confidence in both my physical and mental abilities. I felt very alone despite having a wonderfully supportive family.
I felt as if I had aged 20 years in just a week or two. I couldn’t move, think or eat. My body and mind were falling apart and I had no idea why. I didn’t think that the sudden decline in my health had anything to do with the Cipro. After all, I had stopped taking it a couple of weeks before my body started to fall apart. I thought that I had an autoimmune disease. My symptoms seemed similar to those of rheumatoid arthritis. I went back to the doctor and they ran every test imaginable on me. I was relieved to find out that I didn’t have an autoimmune disease, but it was somewhat frustrating to hear that all of the tests were showing that I was normal and healthy when, clearly, I was neither normal nor healthy. The doctors did not provide me with a diagnosis or a prognosis. Though I was desperately seeking a diagnosis and prognosis, I am thankful, in retrospect, that they didn’t misdiagnose me. If I had been mistakenly diagnosed as having an autoimmune disease, I may have treated it with pharmaceuticals that could have made me feel even worse.
I was desperate for some treatment, something to stop the downward spiral that my body, mind and spirit were in. The traditional medical doctors I saw provided no relief, treatment or healing. I started seeing an acupuncturist. He was able to stabilize my condition, calm my nerves and keep me from spiraling physically or mentally. After a few weeks feeling stable physically, I started to have days where I felt better than I had the day before. Mentally, I kept going downhill for a while, but, eventually my mental health stabilized and started to improve as well.
Eventually, with the help of my acupuncturist, I connected my symptoms to Cipro. Once the connection was made, I realized that all of my symptoms were consistent with those of others who have been poisoned by Cipro and other fluoroquinolone antibiotics. I entered the scary world of being a floxie.
For about a year, I considered myself to be sick. Though the symptoms listed above were improving, slowly but steadily, I was still sick, and a long ways from the healthy, active, energetic woman that I was before I took Cipro. After a year, I started to put “sick” in the past tense. Though I wasn’t back to the level of health that I was prior to being floxed, I was getting better and, as far as most people could tell, I was well.
Following is a list of things that I did to help me to get well, to heal. I am not a doctor. This is a description of my experience and what helped me. I hope that what helped me helps you. Everyone is different though. What helped me may not help you. One thing that I know helped me and that I know will help you is hope. I hope that the fact that I have largely recovered helps you to have hope. I hope that the other steps that I took to get well also help you to gain hope and healing.
Please feel free to contact me with any questions, comments or concerns, or to share your story.
Lisa’s Healing Tips
One of the many frustrating things about fluoroquinolne toxicity is that everyone’s body is different. Everyone’s symptoms are different and everyone’s body reacts differently to treatments. Following is a list of things that helped me. I hope that what helped me will help you, but it may not. I am including other people’s healing tips as well, in case their tips can help. Of course, please read these tips with the typical disclaimer in mind – I am not a doctor or medical professional of any kind. I am sharing my experience with the hope that others may find it to be useful. Please ask your doctor, or other trusted medical professional, for medical advice, and before taking any of my advice.
In no particular order, here are the things that helped me to heal.
- Time. With time, I have healed. Each day is better than the day before. Time will heal your wounds too. Eventually, you will get better. The poisonous reaction affecting every part of your body will eventually stop and you will begin to recover. I have heard several stories of fellow floxies having a timeline similar to mine – slow, steady recovery for about 2 years. Other people take more, or less, time to recover. Time does help though, and most people do end up getting better as time goes on. Very few people get worse and worse indefinitely. There may be bumps in the road, but time is your friend. Time will help you to return to a state of health.
Try to be patient with yourself. It will take time for your body and mind to heal. I see this whole ordeal of getting sick as a lesson in patience (and compassion, gratitude and health). Pushing yourself too hard too soon can lead to pain, frustration and injury. Try to give yourself the time necessary to heal, and, with time, your body and mind will, indeed, heal.
- Avoid NSAIDs and steroids like the plague. Both NSAIDs and steroids are contraindicated with fluoroquinolone toxicity. They will make your reactions and symptoms worse. There are some published medical articles on PubMed about the contraindication between NSAIDs/steroids and fluoroquinolones. Searching at the library or on Google will give you more detailed information than I can provide. Anecdotally, I know that my reaction was triggered by taking NSAIDs (ibuprofen that I took to help me to deal with menstrual cramps) and it was exacerbated by taking prednisone (a steroid). Please note that I did NOT take NSAIDs or steroids at the same time as Cipro. I took ibuprofen 2 weeks after I finished taking Cipro and it triggered my toxic reaction and I took prednisone 3 weeks after I had finished taking Cipro, after my reaction had started. I will never take another NSAID or steroid again.
Unfortunately, NSAIDs and steroids are the drugs that are the most commonly prescribed drugs used to “treat” fluoroquinolone toxicity. This is because the combination of NSAIDs/steroids and fluoroquinolones does not always cause a toxic reaction, the toxic reaction of combining fluoroquinolones and NSAIDs/steroids can occur even when the drugs are taken weeks or months apart, doctors and other medical professionals don’t acknowledge fluoroquinolone toxicity and so they don’t look for the contraindications and because many of the symptoms of fluoroquinolone toxicity are treated with NSAIDs and steroids. The pain killing qualities of NSAIDs and the swelling reduction qualities of steroids make them the drugs of choice for treating many of the symptoms of fluoroquinolone toxicity. Don’t take them though! In my nonmedical opinion, I suggest taking non-NSAID over-the-counter pain medicine like acetaminophen (Tylenol) for pain (or marijuana – which is probably better for your liver), and antihistamines for the swelling.
Often, fluoroquinolne toxicity is misdiagnosed as an autoimmune disease. In particular, it is often misdiagnosed as rheumatoid arthritis. Many of the drugs that are used to treat rheumatoid arthritis are NSAIDs. Don’t take them.
- Acupuncture. I credit my acupuncturist with saving my life. I can only guess how I would have fared without my acupuncturist, but I imagine that I would have ended up in the emergency room, pumped full of steroids and antidepressants, having a massive anxiety attack and unable to walk. That didn’t happen though and there really isn’t any point in surmising about what could have been. I do know that acupuncture stopped my downward spiral and got me on the road to recovery. Both the acupuncture needles and the herbs that he provided gave me immense relief. I don’t know why or how acupuncture works, but I do know that it worked wonders for me.
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Supplements. I have taken more supplements than I can remember. 90% of them had no noticeable effect on my health. Here is a list of supplements that I think helped me.
Iron. I take a low dose iron supplement – only 5 mg. – daily. The brand of iron supplement that I use is Pur Absorb, but I’m guessing that other low-dose iron supplements will work equally well. Within just a couple days of starting taking the iron supplement, my energy levels increased dramatically. I could walk a mile without being exhausted afterward. In addition to improving my energy level, the iron supplement seems to make my muscles and tendons more supple and malleable. When my tendons are feeling tight, a dose of iron helps to loosen them up – within just a couple hours. Too much iron is really bad for you, so please be careful with supplementing it (ask your doctor, yada yada), but it helps me immensely.
Magnesium. I take 250 mg of chelated magnesium daily. I don’t necessarily notice that it makes me feel better, but I do notice that I feel worse when I don’t take it. My muscles twitch if I don’t take my mag.
Zinc. I take zinc when I get around to it. I remember feeling mildly better when I started taking it. It doesn’t seem to affect my health dramatically though.
Chlorophyll. I take chlorophyll about every other day. It seems to help with my energy level and mental functioning.
I also take fish oils, resveratrol, a probiotic, a joint supplement, CoEnzyme Q10, vitamin B12, chlorella, glucosamine, brewer’s yeast and some other supplements. They may help. I can’t say that I feel a difference using any of them.
- Meditate. Meditating has so many amazing, positive benefits for your brain, your life, your spirit, etc. that I can go on about it ad nauseam. Meditation helped relieve a lot of the mental symptoms of my fluoroquinolone toxicity. My anxiety, inability to concentrate, inability to connect with others, depression, loss of reading comprehension, decreased mental acuity, etc. were greatly reduced (or improved) through meditating. I meditate about 10 minutes each day. I should meditate more like 20-30 minutes a day.
Meditating helped me to gain compassion for myself and my situation. It also helped me to let go of the anger that I felt toward the pharmaceutical companies and the medical culture that allows fluoroquinolones to be on the market. The pharmaceutical companies and the medical culture are both messed up and blame of them is justified, but anger and blame were not serving me mentally, emotionally, spiritually or physically. I needed to let go of my anger and blame in order to move on with my life. Meditating helped with that.
I learned to meditate through taking a class called Mindfulness Based Stress Reduction that was offered by my health insurer. It was an excellent class based on the work of Jon Kabat-Zinn. Many Buddhism centers offer Mindfulness Based Stress Reduction or Meditation 101 classes.
- Get off the internet. Most of the information available on the internet about fluoroquinolone toxicity is horrifying. Fluoroquinolone toxicity is horrifying. It is scary. It is completely unacknowledged by the medical community – the doctors, nurses, etc. who we go to in order to make sense of things when our body goes hay-wire – so we seek answers on the internet. Unfortunately, most internet sites devoted to fluoroquinolone toxicity do not provide a balanced picture. They show the harm and the horror of fluoroquinolone poisoning, but they don’t show the healing and hope that most people eventually experience. I am writing and distributing this in order to provide the perspective of hope and healing. Some people are permanently disabled from fluoroquinolones. My heart goes out to those people and they have every right to scream their story on the internet. However, their story is not your story. My story is not your story either. But if you’re going to look to the internet for a prognosis, it’s better to find a hopeful prognosis than one that is full of doom and gloom.
When I participated in the online forums for Floxies, I noticed that my anxiety levels increased significantly. Even after I was 90% recovered and I thought I could handle it, my anxiety levels would go up simply by reading about people being floxed. Inducing anxiety is one of the worst things that someone suffering from fluoroquinolone toxicity should do. Anxiety makes all symptoms worse. I would slowly relapse and my symptoms would get worse every time I participated in the online forums.
Of course, the people participating in the online forums are seeking to help fellow Floxies, to commiserate and to participate in a support group. It is not their fault that my anxiety levels increased when viewing their sites and/or support groups. After all, most people on those sites are trying to be helpful and supportive. However, the net result of participating in the forums for Floxies is that my anxiety levels increased and my health declined while I was on those sites. I am healthier and happier not participating in the online “support groups” than I was while I did participate in those groups. Of course, this is my experience only. Many people find solace in the Floxie community and if it helps you, great!
The people who have worked hard to create a community of Floxies to support one another should be commended. It is because of their hard work that thousands of people have realized what is going on with their bodies and that they are not alone. The community of Floxies is full of wonderful people. However, you need to do what you need to do to take care of your health and if you find that hearing other people’s stories increases your anxiety levels, get off the internet. For you.
- Diet. I lost 11 pounds in 18 days when I first got floxed. My body was going hay-wire and it seemed like an allergic reaction. I had no idea what I could possibly be allergic to so I stopped eating almost everything. I didn’t eat sugar (including fruit), gluten, dairy, soy, anything non-kosher or anything spicy, or drink any alcohol or caffeine, for a month. I only ate vegetables and organic meat. It’s a highly effective way to lose weight, but I don’t think that restricting my diet severely helped me to heal. Restricting my diet gave me a sense of control, and that’s not a bad thing when your body is self-destructing, but I don’t think that it made me feel any better physically. After a month of only eating veggies and organic meat, I started to add normal foods into my diet. As soon as I started eating an appropriate number of calories, I started to feel better. Not only was I Floxed, I was also wasting away when I wasn’t eating normally. Getting enough food is an important part of healing. Of course, it’s generally good to be on the “don’t eat junk” diet, but I didn’t find that cutting my food intake significantly helped me to feel better.
Many Floxies develop GI problems. I was lucky in that I didn’t have many GI problems. Many people seem to be helped by cutting gluten, sugar and/or junk food out of their diet.
I notice that I feel slightly worse than normal when I consume sugar and/or caffeine. I think that most people do, I am just now accustomed to paying closer attention to my body.
The only food that makes me feel noticeably better is beets. For some reason, beets make me feel great. I just boil them and eat them.
I’ve heard good things about the benefits for Floxies of eating broccoli and other cruciferous vegetables. I love broccoli so I try to eat a lot of it. Unfortunately, I can’t say that I’ve noticed that it makes me feel better.
- Swim. My tendons and muscles feel significantly better when I’m in the water, and for several hours after I finish swimming. Swimming in the ocean feels especially therapeutic. There are so many minerals and trace nutrients in the ocean, I surmise that they’re helpful for healing. Unfortunately, I don’t live near the sea, so I swim in a pool. I feel better when I do so.
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Pilates. I started doing Pilates about 7 months post-floxing. Pilates strengthens the core, something that is generally important, and gently stretches muscles, tendons and ligaments, something that is particularly important for Floxies. I started slowly and gently and didn’t push my tendons, muscles or ligaments too much. I feel that gently stretching helped my tendons, muscles and ligaments to heal and return to (close to) their pre-floxing capacity. Take it easy though.
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Healing arts. I love to dance. I’m not a good dancer, but I love to do it. About 16 months post-floxing I started to dance again. Dance has been healing for me. I feel spiritual, strong and joyful when I dance. I’m not sure if it’s the dancing itself that I find to be healing, of if it’s the joy that I feel when I dance that is healing. Either way, it helps. I surmise that other forms of expression would have similar healing qualities. If you love to sing, sing. If you love to paint, paint. If you love to write, write.
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Attitude tips.
Try not to compare yourself to how you used to be. I used to hike 20 miles in a day. I can’t do that anymore, but I can hike 3 miles today and I couldn’t do that when I first got floxed. Compare yourself to how you were yesterday, not to how you were before you got floxed.
Do something – anything – to work toward healing, every day. Walk a little further than you did yesterday. Meditate. Take an Epsom Salt bath. Get an acupuncture treatment. Do a puzzle. Whatever makes you feel good – do it. Every little step helps.
Don’t kill yourself. Have hope. You will get better.
You’re not crazy. You’re sick. Have hope. You will get better.
You’re not stupid. You’re sick. Have hope. You will get better.
Try not to identify yourself as sick. The mind is a powerful thing so try to stay positive. It’s hard, I know. But try, because it’s worth it.
You will have bad days. They will pass. This all will pass. It is not permanent. You are strong – present tense. You were knocked down, but you weren’t killed. You will get better.
Don’t quit your job. Try to maintain as much normalcy in your life as you can.
It is not your fault. Even if you knew better, even if you demanded the most powerful drug possible from your doctor, even if you self-medicated, even if you coerced your doctor into giving you the fluoroquinolone antibiotic, even if the infection that you were treating was something that you got because of doing something stupid, or from sex, even if you continued to take it after you started to get sick, even if you floxed your child/parent or other loved one – IT IS NOT YOUR FAULT. You are sick. You are poisoned. You are not to blame for your sickness or for the fact that you are poisoned. Who to blame is a discussion that I don’t want to get into because I want this to be positive, but it is not you. You are not to blame. You are a victim. It is not your fault.
Lisa’s Life now
Life is good. I don’t consider myself to be sick any more. I’m not quite up to my pre-floxing capacity in a couple of areas. I don’t have the endurance, energy, strength or flexibility that I used to. However, I’m pretty close to my pre-floxing capacity in those, and other, areas. I’m about 99% better. Not being capable of intense exercise since December, 2011 has left me a bit out of shape, but I’m working toward being able to exercise intensely again and my stamina, strength, energy, etc. are increasing. I can’t hike 15 miles with a backpack on quite yet (something I could do before I was floxed), but I am capable of most physical and mental activities that would put me in the “normal” or “not sick” categories.
I can work full-time. I am grateful for the fact that I have a job that is not too demanding physically or mentally because I was able to hold onto it through my worst times. My boss and coworkers were wonderfully understanding and they claim not to have noticed that I couldn’t think straight for about a year. I even got a promotion about a year post-floxing!
I can do Pilates 4 times a week, swim 2 times a week, dance once a week and walk daily.
When I was unable to walk a block I told myself that I would consider myself to be “better” when I could dance all night in heels (my feet hurt like hell when I was sick), I can do that now. I never liked high heels, but I can wear them now.
My memory isn’t quite what it used to be, but it’s good enough to do well at my job and to maintain my relationships.
In many ways, I’m a different person than I was before I got floxed. This has been perplexing for me and my loved ones, but it’s not an altogether negative thing. I’m a much more spiritual person than I was before I got sick. I was a pretty firm Atheist before I was floxed. Now, through meditation, dancing, believing in alternative therapies that focus on energy, etc., I’m finding some spiritual outlets that I didn’t have, need or want in the past.
I have become a more compassionate and patient person. I now empathize with people who have mystery diseases. I used to have the attitude that I now find so frustrating in medical professionals – that if there isn’t a way to diagnose or treat an ailment, it doesn’t exist. Now I know that people are genuinely suffering and that there is a real cause for their pain – regardless of whether or not it is acknowledged by the medical community. My heart goes out to those in pain.
I had to become more compassionate and patient with myself as well.
I like some things that I didn’t like before I was floxed and I don’t like some things that I used to like a lot. I hated swimming for the first 32 years of my life. Now I love it and consider it to be an important aspect of my healing. I used to like working out in an intense way that got me dripping with sweat. Now I like to do exercises like Pilates that are focused, slow and deliberate. I used to love hiking, camping and backpacking. I miss loving those things so I’m going to try to get back into them, but I’m not sure that they’re my passions any more. Drinking used to be one of my favorite pastimes. My tolerance for alcohol is shot now and I don’t really enjoy it any more. I missed it for a while even though I knew that it was for the best that I wasn’t drinking like a fish. My appetite has changed as well. I used to be able to eat a lot of food and I loved to eat. I still eat, of course, but I don’t eat as much as I used to and I don’t eat with as much gusto. This is probably a good thing seeing as I’m not into exercising intensely any longer.
Even though I would do just about anything to turn back time and not take Cipro, the place that I am in life isn’t bad, and I probably would be someplace different if I hadn’t gotten sick. It sucks that I had to gain empathy for people who suffer from pain, mystery ailments and debilitating fatigue, but it’s probably a good thing that I now have more empathy. I would like to think that I’m a better person from going through this. I’m not a stronger person, but maybe I am a better person.
I hope that my tips and words of advice are welcome and helpful. Please feel free to contact me if you have any questions or concerns.
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
Kris thanks for suggestion of butterber.
I will give it a try. Just got over a 48 he migraine and now my knee pain and neck pain has kicked back in worse from being floxed. I continue to feel like I’m being attacked on too many fronts.
I do try to keep my sence of humor up. I just need a new weapon to fire at all the hurting areas. I might as well laugh as cry.
Lisa. Thank you for taking the time to reply. I will look up the book on migraines. I have had all the odd things just from them. Seizures, hallucinations,
Weird auras, tingling numbness, ringing in the ears., I recently had a complex migraine that left me unable to speak for about 15 min. Migraine can do that. Of course I had to have all the tests to rule out a stroke or a clot from my heart. Right after that I got the kidney infection and floxed from levaquin. It’s been a bad summer. I do try to keep my humor about all this and life. I just can’t believe this all happened to me.
It’s hard to believe so many people are affected. I still think I had symptoms of being floxed for several years and just didn’t know it. That’s the sad part. But we all have to look to the future and think positive. It will get better!! Again thank you for your kind words. ????
Thank you, Lisa, for all your helpful hints and hope. I too was floxed several years ago. Not as bad as some, fortunately. I always take a probiotic with the antibiotic, and I believe that helped. I also was already taking glucosamine and that probably helped as well. I am still not able to run – I was an avid runner – but I am able to walk/hike. I do find that applying olive oil directly to my muscles is very helpful, as is heat therapy and the epsom salts. I have heard that coconut oil is helpful too, though I haven’t tried it. I take calcium/magnesiym/vit D. One does have to be cautious with Vit D as too much will actually cause muscle ache –so I use that sparingly. Thank you for this forum for people to share “what works.”
A tub in the shower, cool idea. Right now too difficult. I can hardly get up from sitting. I am taking Tylanol….will I survive this? My life is so nothing right now and my best friend has dementia and I am loosing her…..The doctors want to say I have R. arthritis and want to give me steroids! HELP
Hi,
Could anyone help me?
It’s been almost two months since I started using ALA (Thioctacid 600mg) once daily for nerve pain and as an antioxidant. I noticed improved a lot after I started using. Only my mental symptoms and fog began after him. I searching found that:
“Side effects of lipoic acid are odd smelling urine, paresthesia, skin rashes, systemic allergic reaction, and muscle cramps. These side effects are more commonly witnessed when taking the less expensive synthetic alpha lipoic acid instead of R-lipoic acid. Lipoic acid is also a powerful chelator so do not take it at the same time with mineral supplements. If you are mercury toxic, it can cause side effects like tingling, brain fog, and changes in mood. These extra side effects are caused by excess mercury being released and excreted out of the body.”
I have metal amalgam teeth placed many years ago. Probably two decades. It could be some mercury poisoning that ALA is putting out for? I stop the ALA or continue with it? I feel much more prepared physically after I started using. I’m thinking of removing this tooth fillings. Any special care needed after being floxed? I stop the ALA meantime?
Infinitely grateful to anyone who can help me!
Hello everyone, I was at my orthopaedic dr yesterday and he said that you only get Cipro side effects after taking the drug for more than a week! What is wrong with these doctors? I just don’t understand why they don’t get it!! I was going to tell him about this website, but what is the point? He really won’t believe it. I would think they would get updated flyers in their mailbox on the dangers of this drug, especially in his field with ruptured tendons and all. Did get a steroid shot in one on the muscles in my back which has been so painful, so will let you know if my floxing gets worse. Kris T
Another thought: I am truly saddened that cipro and related antibiotics continue to be prescribed. It was my understanding that with the latest black box warning — yes there is more than one on these drugs — that they would be prescribed ONLY when there was a confirmed bacterial infection and only as a last resort when other antibiotics were ineffective. If you were prescribed cipro within the last year, I suggest that you file FDA form 3500 from the FDA website – fda dot gov.
Hi
Researching the effects of candida in the body after use of antibiotics found information that make me believe that many of our symptoms mainly mental comes from it. These are examples:
“How are you feeling. Inability to concentrate, poor memory, mental confusion, irritability, anger, dizziness, depression, crying spells, panic attacks, low libido, extreme and persistent fatigue, hyperactivity, appetites for sugar and alcohol, insomnia, poor digestive coordenação.Sistema . Acid reflux, bloating, flatulence, nausea, diarrhea, constipation, constipation, stomach cramps, indigestion, belching after meals, mucus in the stool, hemorrhoids, itching in ânus.Na your skin. Acne, cysts, urticaria, night sweats, psoriasis, eczema, dermatitis, fungal infections of the nails and skin, athlete’s foot, odor corporal.Na mouth. Thrush (white coating on the tongue), swollen lower lip, halitosis, metallic taste in mouth, bad breath, canker sores, bleeding gums, respiratory rachada.Sistema language. Persistent cough, mucus in the throat, sore throat, nasal congestion, chronic nasal drip, flu-like symptoms, hay fever symptoms, sinusitis, asma.Olhos and ears. Eye pain, itchy eyes, light sensitivity, blurred vision, bags under the eyes, ringing in the ears, urinary and genital infections ouvido.Sistema. Recurring yeast infections, recurrent urinary tract infections, cystitis (bladder inflammation), menstrual irregularities, skin rashes immune fúngicas.Sistema. Common colds and flu, allergy, food sensitivity, fragrances and chemicals. Body weight. Inability to lose weight, water retention, loss peso.Outros symptoms. Headaches, heart palpitations, chronic body aches and joint pain, pain and stiffness.”
Someone tell whether nystatin or fluconazole are contraindicated for floxed people? They would be good options against candida.
This link has more information:
http://www.alternativementalhealth.com/the-effects-of-candida-on-mental-health-by-william-crook-m-d/
Hi Thaigo,
I took cipro for UTI 4 months back and then I started getting some of the symptoms like burning sensation and tingling in my finger joints, dry mouth due to candida. I had white patch on my toung and thus I was having thrust as well. I went to GP and they gave me clotrimazol but with that I didn’t get much benefit and post that they gave me clotrimazol and fluconzol and I am out of dry mouth but still I have redness on back of my tounge which I don’t know why still there. i hope it should go. i am having lot of indigestion issues and acid reflux issues and thus i have shortness of breath. i went to GP and did ECG and XRay but everything comes back to normal. so not sure what is going on but yes we can take fluconzol for fungi infection in mouth.
Only good thing is i came out of dry mouth issues which was harassing me like anything.
Thanks,
MR
I have been reading every body’s comments on ciprofloxacin well my stupid doctor prescribed both ciprofloxacin and prednisolone together so I have had every side affect that people are describing and more ending in Burkitt,s Lumphonea has any body else. Heard of the connection between ciprofloxacin and cancer
Janea, I think it is just a coincidence. I am eating gluten free bread and even though I still have the muscle jerks, I don’t feel its from the bread. I will see what Ruth has to say about this. I am thinking you are just not over the side effects yet and will need more time. Kris
Yes Janea this is Cipro. Don’t trust all doctors most of them talk out of their asses and know shit about fluoroquinolones.
Mark
Hi Lisa. Thank you so much for sharing your story. I am so happy to hear that you are doing better and thank you for giving us hope. I was floxed on June 24th after taking cipro for 6 days. Noone was able to help me out until I started searching for answer to my pains and confusion. I am still battling some of the flare ups. I am better of how I used to be but not how I was before I got floxed. I am experiencing shortness of breath and heart palpitations and my energy levels are still low. My headaches and backaches still there almost everyday. Can you please help me and give me some tips of what to take and what doctors to go. I have started to eat very clean and am about to start taking probiotics. I am waiting on my tests but won’t be ready until September 20th. I started going to progressive medical center to see if they can help me. Thank you so much-Lucero
Hi Lucero, for dry mouth please check if you have not developed candida, white patch on tounge. if you have ask your GP to give you fungal medication. I was taking B12 medication but as I said due to indigestion issues I had to stop it for a while. So now a days I am taking 1000 MG alternate day. I am avoiding medication and going more towards natural remedies like yogurt and probiotics but you also have to make sure that if it is required daily then you should take it alternate day to avoid more indigestion issues. I am doing that and I am coming out of burning sensation. I had below issues post CIPRO
1) Burning sensation all over the body – it is 90% okay now post 4 months.
2) Pain in finger joints and numbness – it is 90% okay now post 4 months
3) cold feet – it is 95% okay
4) Dry Mouth with candida infection in mouth – was on medication ( fluconzol and clotrimazol) for 20 days and then it went off now 95% it is back to normal only in very rare case I am feeling it.
5) Chest congestion and shortness of breath – This has started post 3 months of taking CIPRO and its been 20 days now I am facing this issues and no clue when it will go off. I am hoping It should go away as other things. I have very strong mindset thus I hope I will defeat this as well. I did X-Ray and ECG twice and came normal and I know this is CIPRO effect but doctor will never accept that this is CIPRO effect.
what I took so far
1) Vitamin B12
2) Probiotics
3) Yogurt for dry mouth
4) Harde ( Indian fruit which you can find out in indian store which you have to crush in mixture and need to take daily night 1 tea spoon in hot water ) if you do this for 100 days your lungs will be crystal clear and you will be out of many above things.
5) stopped taking all soft drinks for time being.
6) pure household food and keeping curbs away to come back to normal digestion.
I hope this will help,
Please let me know if anyone had shortness of breath and came out of it and how much time it took to come out of it.
Thanks,
MR
Exactly right, Thiago! I was going to say the same things. You not only know what to do to help yourself get well, you are helping others. Magnesium, antioxidants and probiotics do seem to help most people. Initially, calcium and zinc were also helpful for me. Some people are helped by iron supplements, but get your iron levels checked as taking too much is bad for you.
Go Thiago! I second what Ruth said and am so impressed with what you, MR, and Lucero are doing. You’re sharing information so that each of you can figure out what works best for you in your healing.
My symptoms were mostly neurological (numbness, vibrating, tingling, “nerve-like” pain, anxiety) but I also had pretty extreme brain fog, pain in my spine and neck, joint pain, and fatigue. What helped me most was time, rest, and keeping company with positive people. Back in 2006, Floxie Hope didn’t exist, so I had to rely on a few people in my “real” life. Now we have a great group here, and we try our best to support each other. Listen to your body and don’t let the bad days be your guide. Even though it may not seem like it at the moment, hold on and things will improve!! The storm will pass and you will discover new things about yourself in your healing journey. Boy, I sure sound like a Pollyanna, but I’m proof things do get better!
All my best wishes! I have recovered and look forward to hearing about how you’re healing too!
I too have the tingling and anxiety. That’s mostly it now since I was Floxed in June. Sometimes the anxiety is overwhelming but it comes in waves. It’s hard to get over though. I take magnesium and l theanine as well as go to acupuncture which I think it helps.
Hi Thiago,
I felt that they mental issues were the worst too. I’m not sure what 100% recovered is because today my body is better than it was before Levaquin in many ways. While I was a 34 year old in fairly good health (as in, not having anything more going on than the annual sinus infection that caused me to take Levaquin), I was not exercising very much and eating the Standard American Diet. As I healed (which was a gradual process from 2006 – 2008), I increased my exercise and totally cleaned up my diet. By 2012, I was walking five miles daily and lifting 15 pound arm weights with no problems.
I did have a relapse last fall (Sept 2014) because I tried running. My body did not respond well and I experienced a return of mental fog, neurological issues, and fatigue. It was not anything like my first experience, and I was able to work myself back up to walking 3 miles per day and lifting 10 pound weights. My anxiety was up again, but I have started a gentle yoga practice with meditation that is very, very, very helpful!
I am highly in tune with my body now and am careful not to have too much (if any) caffeine. I do have a few beers once per week which I wasn’t able to do before. My diet is all plant-based, and I take a B12 spray every day (My Kind brand).
It’s a much better life – not because of Levaquin but in spite of it. I took that experience and made a better life for myself that includes living very simply and noticing the beauty in every day. I didn’t give in to the anxiety and let it rule my life, though at times it was very hard! Now I am able to keep anxiety away most of the time and am now enjoying pain-free days.
I’m hoping to live to 100 years old!
I didn’t have candida or the gut problems many people face, so I love that you have other people who are sharing their remedies!
Please let me know if I didn’t answer any of your questions!
Tammy
Hi Lucera,
Yes can you please share the candida diet which you get, I had candida and still I am having redness in back of my tounge which is not going so I still suspect that infection is still there and it might cause this Acidity and gastrological issues. I will try to follow diet and see if it helps.
I am very strong guy but this shortness of breath is not easy to handle.
I hope it should go away soon else it is tuff to handle this.
Best Regards,
MR
Hi Thiago, I don’t use nsaids because I don’t need them and because of what others have said. I am currently not using any pain medications.
I had three MRIs of my spine and one of my brain but they all came back normal.
I do understand you asking for one just to make sure.