Romain’s Story – Tavanic (levofloxacin) Poisoning and Recovery

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*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

Hi friends,

I am a 32 years old man who was poisoned 2 years ago and now everything is alright, so today I want to share my story with you.

I can tell it has been a terrible experience and for those who are in the middle of it, I understand you so much. Hard experience, right? Probably the hardest in your life so far, but hey don’t worry, you will get through it. I did go through it and I am just a normal person. If I did it, everyone can.

On the 20th of December 2013, I was (wrongly) diagnosed with chronic prostatitis, although no bacteria was even searched, just based on an echo-doppler showing “inflammation.” I would figure out later that my problems were only the result of fatigue and stress. It finally went away just by practicing yoga and relaxation techniques.

I was prescribed a fluoroquinolone antibiotic called TAVANIC, and the pharmacy gave me its generic, LEVOFLOXACINE, 500 mg / day for 6 weeks + a strong NSAID to be taken together, “so it gets better deeply into the body” (!!) Well at least that very last thing worked very well, thank you, doc.

On the 10th day, 30th of December, my whole body just exploded by the inside. Nothing was going right anymore. I immediately stopped the treatment.

Most spectacular things were :

– I couldn’t stand on my legs anymore, they were just feeling incredibly weak and couldn’t even carry me out of bed the first 2 days. Then I remember trying to walk outside my apartment, and the pain behind my knees and in my achilles was so intense that I had to take breaks every 20 meters and couldn’t go more than a block away.

– I experienced cracking noises in EVERY joint of my body, happening with every little movement I would try to do. Fingers, wrists, elbows, shoulders, neck, ribs, hips, knees, feet. EVERYWHERE. That was impressive.

– I experienced the same sensation behind the eyes, as if when i moved them i could hear some cartilage cracking behind. Scaring.

– I had big skin rashes on my face and chest.

And the longer list: tinnitus, painful teeth, vision troubles, headaches, nervous pain through my whole body, and maybe the worst: extreme sadness–it was very difficult to go through it and not fall into a depressive state, as if my brain was controlled by something else.

It has been 2 years now and things came back in order progressively. Today I can tell I am 100% healed, and in a way I am even healthier than i was before, since it taught me a lot about how to eat properly and how to listen to my body. I can even confess something: if it had to be done again, I would do it all the same. And believe me, it has been terrible. Still 6 months ago I wouldn’t have thought I could say that one day. No regrets.

Well, here are the things that – i believe – helped me going through this journey.

– stay away from all the internet information. They are depressing and your brain is in such a state that it would only focus on bad news articles. By the end I avoided EVERYTHING (forums, FB pages, scientific articles…) except recovery stories on floxie hope. Those were the real starting point of my mental work. I have read each story at least 10 times, just like if i needed to convince myself that it was really possible. Because tight now, your brain is not in its normal state. Its clarity was lowered by the effects of this chemistry. Go over it and start thinking positive.

Other exception : Willow’s video on youtube somehow gave me hope too :

– Think about it: people complain a lot on the internet. When they are in the middle of being floxed, they tell the world “please help, my body is falling apart, i am going to die soon.” And once they heal, they just forget to tell the world “thank you all, this is behind me, that is possible.” And I understand them. When people manage to win this big battle, they don’t want to think about it again. I am sure there are hundreds of them who are cured but never tell anyone. Thousands of people are touched and only 50 recovery stories so far? Come on, please don’t think the internet shows a representative and reliable proportion of it. Most of them recovered but jost forgot to come and tell us. Read the story 10 times and that will make 500. Read them 100 times and that will make 5000.

– Food is important. I am not going to repeat all the information already available here or on other pages. But in a general way, with my (new) homeopath doctor, we set up a kind of acid-alkaline diet, in order to lower as much as possible the inflamation in my body and help digestion. You can easily find pH charts on the internet. My diet was mostly :

GOOD FOOD:
Organic fruits and vegetables, ALL OF THEM, ALL THE TIME
Ocean wild fish (the river ones are full of antibiotics)
Rice, nuts, berries, a little piece of meat when i am 100% sure of its origin, same with eggs
I am a cheese lover so i kept it in my diet, just replacing cow-cheese by goat and sheep cheese which are easier to digest.
Broccoli and cabbage have amazing properties.

BAD FOOD: meat, bread, wheat, coffee, beer, sugar, milk… depending on each one’s sensibility

I keep eating like this today and i feel great, I really feel like I’m helping my body. Well of course now I’m doing good so i’m less restrictive, I love wine too much to leave it out my kitchen 😀

– I didn’t really take any supplement on long-term. I shortly tried a bit of magnesium, vitamins, antioxydants, cod liver oïl and digestive enzymes. I think they didn’t help me and preferred to let my body do the job naturally, without overloading with extra things. Exception with probiotics, they can help.

To me, there is no magic pill. Just like there was no magic pill when I was told my magic pill of the day was a fluoroquinolone. So at some point I just cut off every supplement and just trust my body, trying to helping him with a good diet. Obviously it found all vitamins needed in the fruits and vegetables i ate…

– I massaged myself a lot, especially legs and arms. At the worst points, 2 times a day. It was helping a lot with pain-relief.

– Transdermal magnesium was very efficient. There are expensive “magnesium oils” on the market, but you can make it yourself very cheap, buying magnesium chloride in powder and mix it with water. Massage your pained zones with it. At the beginning it can feel a bit uncomfortable but we get used to it. I was generally having a shower 1 hour later, when it was starting to scratch too much. In the same kind of tips, epsom salt baths for the feet. I mixed it with relaxing essential oils sometimes.

– Force yourself to do things. Even if you have only a little bit of strenght to go for a very little walk, get up, get dressed, and go for it.I always felt much better after a walk than after 2 days doing nothing at home. And days after days, the short walks become bigger and bigger.

– Mentally, don’t compare yourself to yesterday or last week. It is not a constant recovery. Some days it goes down. This scale of reference is too short. Be patient and compare yourself to 2-3 months ago. There you will see improvement and start to put your brain on a positive road. Be tolerant with your body, it is an incredible machine and is already working on your recovery. Time is your best friend.

– Reading and writing down sentences that can be related to your own experience. If you don’t know what to read, I recommend starting with Hemingway’s The Old Man and The Sea. That one inspired me a lot about patience and resistance.

– Love is good. First, my mum faced that situation like a hero. Then my girlfriend did. Before that, I was facing people’s incomprehension about what was happening to me. Doctors, friends, even some family, would not understand me. I was quite fine with that, I mean, after all, how could they understand? I forgave them. This was my journey, not their. But having someone around with real empathy and without judgement, is useful. Someone who accepts to understand you without any scientific understanding of the situation. Loving her and being loved were precious.

– Keep doing an activity you like. My passion is flying in paragliders. I forced myself to keep doing this every single day my body would allow me to. And I can assure that some days, it was very hard to. But the mental side was motivated for one thing, somehow the body gave enough energy. If you wish, you can have a look at some short videos I made, it might give you hope, here are the youtube links. I swear i made them post-floxing 🙂 :

August 2014, 8 months post-flox :

October 2014, 10 months post-flox :

July 2015, 18 months post-flox :

And same week broadcasted by my friend :

Some of those days, I only had energy to take off and land. Happily, once Im flying, that activity doesn’t require too much and i was just going to land when tired.

I think it is important to act as before. Don’t put yourself in another category. You are the one you were before, just temporarily experiencing a hard life test, which will eventually make you a better person.

To tell you about how much I feel better now, here are a few things I achieved lately :

– a 3 months road trip in a van across Europe, visiting, hiking, flying and volunteering in organic farms

– just back from a trip to Mexico, which i did without big difficulties, which was quite challenging since i had to adapt to food very different from my floxie diet.

– hiking a lot in the mountains where i live, now i can easily walk for 5-6 hours, 900 – 1000 meters, carrying backpack etc…

– dancing, partying

– doing renewing works in my apartment

All right, one last thing, please don’t ask too much about my recovery details, like schedule, techniques etc.. I think i will not answer. We are all different and it is not useful to compare to others. I wrote my story for you my friends, that is the most I can do for now and I’ve put in it all the useful things I found.

Guys, I am sure you will find your own way. Trust yourself and when it will be done, come tell us you succeeded!

Cheers!

 

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

53 thoughts on “Romain’s Story – Tavanic (levofloxacin) Poisoning and Recovery

  1. madge hirsch February 16, 2016 at 11:26 am Reply

    Are you French Romain? If so perhaps you could visit the website atoute.org where one of the forums is for floxies. I have been exchanging emails with a recently floxed person who posts under the name of Jean (I live in France and speak French) and I am sure he would be very encouraged by your story but I am not sure whether he reads English that well. He is a very sporty person and is depressed by the huge damper being floxed has put on his physical abilities. Thank you for your hopeful story.

    • Romain February 16, 2016 at 6:45 pm Reply

      Hi Madge, yes i am French. The “atoute.org” forum is one of the websites i was reading at the beginning and as i said in my story, i found it very sad. Only people complaining and no signs of hope, 2 years ago. I don’t know how it is now but i wouldn’t define it as a key to succeed. I am aware that being able to understand English was precious for me, since no equivalent to floxiehope exists in French. If Lisa agrees, i might open it one day hahaha ! no let’s hope that FQ will be forbidden before. If Jean wants to, tell him he can ask my email contact to Lisa. Cheers.

      • madge hirsch February 18, 2016 at 8:27 am Reply

        Bonjour! It is true that there seems to be very little in the way of hopeful stories on atoute. I think on the whole here in France people expect way too much from doctors in terms of health solutions. I live in the Limousin and have given a summary of my experience with FQ toxicity in the replies to Bronwen’s story here as she was the only person to mention costochondritis which is one of my major problems. My most recent floxings here have led me to believe that I was floxed without knowing it having mainly delayed onset symptoms when I lived in England.
        I do not think that my doctor here can offer me anything in the way of a “cure” but he does recognize that I have had a bad reaction and should not have this class of drugs again. At 63 years old I think it is less likely that I will recover completely but am thankful that my symptoms are not nearly as bad as many of the people who have posted their stories here.
        Is that Lake Embrun in one of the pics?

  2. Mark S February 16, 2016 at 1:54 pm Reply

    Good stuff, man. Seven months down. Slowly getting better.

    • Romain February 16, 2016 at 6:47 pm Reply

      You”ll go through it Mark, be patient. Cheers.

  3. Carolina Luce February 16, 2016 at 2:35 pm Reply

    I´m very happy for you Romain, that you were able to heal so quickly (2 years seems quite short to me, compared to many of us). I understand your point about staying off the internet forums as they can bring you down, and can be depressing, however it would have been nice to meet you when you came to Haute Savoie last summer – I live in Annecy 🙂 I still haven´t got around to paragliding, as my knees and ankles are still rather problematic and I´m afraid that landing would be dangerous for me, but at least I am now able to do some hiking in the area, and biking on the paths around the lake, and of course swimming all summer long. I do love watching the paragliders hover above la Tournette and Roc du Chèr – perhaps I saw you when you were flying here last summer 🙂

    • Romain February 16, 2016 at 7:05 pm Reply

      So glad to hear you can hike and ride your bike. Well done Carolina. On the video “trip haute Savoie juin 2015” at 01:09 we can see i am landing quite strong… I really thought i broke something in my foot, but finally a few hours later everything was fine. Last month in Mexico i had a worse accident, leaving me with 2 small compression fractures of vertebras, and i recovered very well too ! I am going to Annecy as often as possible, you live in such a nice place, it is my dream to live there ! I am actually looking for a job in this area :-). Cheers.

  4. Shannon Courtney February 16, 2016 at 5:32 pm Reply

    I initially had the same cracking sensation and noise in my chest when I would breathe in and out and when I would try to describe it to doctors they would listen to my chest and say well your lungs sound clear so there is nothing there. I would say it’s not a normal bronchitis, phlegm cracking it’s something else and they thought I was crazy. Some of the symptoms are so weird and random people never believed me. It’s very comforting to read that someone else had this same thing. Thank you for sharing your story.

    • Romain February 16, 2016 at 7:16 pm Reply

      Yes those cracking noises are very impresive at the beginning, mine disappeared with time. Well some random days it happens again but much less than before. Lately i’ve been adding bone broth to my diet, to see if it helps. And if it doesn’t, i don’t mind, at least that made me discover this very good tasting receipe ! You will go through it, be patient. Cheers.

  5. Daniel L February 16, 2016 at 8:32 pm Reply

    Ravi pour toi Romain!

    Des fois je pense que c’est seulement les «floxies» qui peuvent comprendre ce que ça représente.

    Je reviens justement d’une de mes premières randonnées dans les montagnes depuis un an.

    Je crois que tu as raison qu’il faut se pousser, et ne pas perdre vue de qui nous sommes.

    Moi ça fait environ un an depuis mon «empoisonnement».

    Avant je faisais du VTT dans les montagnes, sur les célèbres pistes du «North Shore» à Vancouver, des pistes vraiment extrêmes.

    Je n’étais pas certain si je pourrais en refaire après le Cipro, mais maintenant je vois que je vais y arriver.

    Il y a aussi le surf en Martinique. Ça aussi je vais y arriver, c’est prévu pour février 2017.

    Je me crois plus fort mentalement qu’avant. Du côté physique j’ai encore du chemin a faire, mais je ne crains plus rien!

    Nous sommes tellement contents pour toi.

    «Lâche pas la patate» comme on dit au Québec!

    • Romain February 17, 2016 at 11:58 am Reply

      C’est la bonne attitude Daniel ! Tu vas retrouver la frite 🙂

    • F February 17, 2016 at 4:53 pm Reply

      Bonjour, Daniel L!
      Do you live in Vancouver? This is my home. Good luck to both of us!

  6. Pete February 17, 2016 at 1:32 am Reply

    Hi Romain – well done – I wonder how you managed to travel and still stick to a good (organic) diet?

    • Romain February 17, 2016 at 12:06 pm Reply

      I don’t eat 100% organic when i’m travelling. It is more a “be very careful diet”. Absolutely no meat, eggs or fish since i can’t check the origin. Mostly rice and vegetables. Mexico is a great destination for vegetarians, you find fruits and potato / bean tacos in every corner. (Tacos al vapor, de papas o de frijoles ;-)). Also a lot of avocados, and something good for the gluten-free diet is that they almost don’t use wheat, but mostly corn flour.

  7. F February 17, 2016 at 2:01 am Reply

    Hello Romain! I am 10 months out and still have Neuropathy. Very Scary. I too am a Paraglider pilot. I pray I can do it again!

    • Romain February 17, 2016 at 12:06 pm Reply

      Be patient. You will fly again. Cheers.

      • F February 17, 2016 at 5:01 pm Reply

        Romain, I flew in Annecy way back in 1992. Beautiful! If I recover I hope to fly there again!

  8. Matthias Winkler February 17, 2016 at 2:28 am Reply

    I am floxed exactly one year now. The legs got better but my back is always terribly cramped no matter what I do. Just started eating all carbs again because my disgestion improved recently. But now I think that the wheat in noodles and bread makes my back cramp even more. You write that you mainly cosumed rice as carbs. Did you also eat potato? Would be nice if you write a bit more about your diet.

    best regards from Germany

    Matthias

    • romain February 19, 2016 at 6:51 am Reply

      I eat a lot of organic potatoes. Rice and potatoes are good and cheap 🙂
      Generally speaking, my diet is following what is described in Lisa’s e-book.
      Cheers

    • kelhatesfq April 17, 2016 at 10:32 am Reply

      Interesting article. You’re a very fortunate human being. That’s a massive smack of pills. I took about the same amount and I was sick before on and off. May take 3 or 4 times longer but I will guess I will sort this out. I have the opinion people under report getting better also. I think a lot of people also get sort of healed. like 65% or 75% and just don’t want to ever talk about it again. The experience is real real negative and depressing. Even if you talk about people who walk away 50% better it’s definitely less grim than most resources. I also think that like me, many of these people have coexisting health conditions and the FQs and their damage merely act like a catalyst …

      I have found little help with any supplement, dietary change, exercise, medical advice, etc… I have tried a bit not nearly as much as most. I think my Psychiatrist told me these type of things do make you stronger.

      Being out of the house, even on crutches and in a wheelchair. Seeing something new. Working. Reading, doing anything aside thinking about your health condition I think is like the Ultimate Super Supplement Pill of the century and I am glad you shared. I read every word.

  9. Andrea February 17, 2016 at 6:55 am Reply

    I am just coming on a two year mark and definitely healing. so glad to hear your story of recovery and determination. I just went to the Banff Mountain Film Festival and was inspired once again to keep pushing for a return to the mountains. The thing I am struggling with is the need for awareness within the medical world to protect others. I just can’t stop fighting for change even though this may not be the best for my personal health. Too many people at risk. Thanks again for sharing! Best to you.

  10. Chris February 17, 2016 at 9:42 am Reply

    Salut Romain,
    Bravo pour ton message et ton courage ! Je suis heureux pour toi que ces effets secondaires soit enfin terminé ! Je suis suisse romand, j ai 25 ans et suis agriculteur. J’ai pris cipro en mai 2015 pour une prostatite du au stress comme toi et après 15 jours j’ai du arrêter à cause de trouble de la vision, maux de tête, sensation d’ebriété, vertige, neuropathie etc. J’ai toujours réussi à marcher mais je me sentais mal et fatigué. J’ai commencé a récupérer mais c’est long et j’ai du passer par des batteries de test (Irm cébral, prise de sang, etc. ) et tout est normal comme avant. Enfin on a tous vécu la même chose et il faut regarder devant. Ca m’aurait interessé d’avoir un contact mail ou téléphone avec toi si c’est possible, redis moi. Bonne suite et profite de la vie ! Magnifique tes vidéos !

    • romain February 19, 2016 at 6:54 am Reply

      Ok pour mon mail, par contre je ne préfère pas le mettre public ici, alors soit tu le demandes à Lisa ou tu me mets le tien ici ? Sinon donne moi ton FB… A+

    • Kevin.D August 6, 2016 at 2:14 am Reply

      Salut Chris, avait tu une sensation de pression dans la tete?Une pression qui se ressent a la base du crane dans la nuque et aussi dans le front avec légère sensation ébriété ??Je suis déterminé a guérir ce symptôme qui s’appelle hypertension intracrânienne.Je te pose la question car je recherche des gens qui s’en serait remis de ça spontanément.

  11. Marc Thavenot February 17, 2016 at 9:32 pm Reply

    Hi Romain
    I’m so inspired by your story. I’m 5 months out of my floxing. I am a sound engineer and having tinnitus and sound sensitivity. You said you recovered 100% so was wondering did the tinnitus also go away? I’m curious as it’s such an important aspect to my career.
    Wishing you well !
    Take care

    Marc

    • Jeremy March 13, 2017 at 10:33 am Reply

      I can recommend white noise generator to maks tinnitus while asleep. For example Marpac brand.

  12. romain February 19, 2016 at 7:02 am Reply

    Hi Marc,
    Tinnitus was probably the last thing to go away, but it finally did. I would say it stayed for one and a half year. As far as i know (i,ve read a lot about it on web blogs, made by people touched by it without necessarily being floxed), the best thing to do is try not to pay attention too much about it, just accept it, instead of thinking “what’s wrong Inside my ears”. The more i was focusing on it, the more it was. At night, to fall asleep easier, i put low music, just enough to “cover” the noise in my ears. Also, i noticed that the tinnitus was directly related to the time i would spend on screens (computer, tv, smartphone). When i kept myself away from them for a few days, the noise was lowering. But this is only personal observation, not a scientific theory (even if i’m an engineer too 🙂
    Cheers.

  13. Josh February 19, 2016 at 4:59 pm Reply

    Hi Romain,
    Wondering how long your nervous problems lasted. Did u have nervous problems in feet?

    • F February 24, 2016 at 7:04 pm Reply

      Josh, I am wondering the same.

      • Josh February 24, 2016 at 10:03 pm Reply

        F,
        What symptoms are you expiriencing?

  14. F February 25, 2016 at 7:23 pm Reply

    Hi Josh, Tingling burning in the feet and ankles made worse by wearing shoes, Skin sensitivity pretty much from the chest down such that stroking the skin causes my feet to tingle. Bizarre! Some tinnitus, Severe anxiety and depression. tingling in one of the intercostal nerves in my chest wall. Had a little bit of Achilles pain early on , but not much. Mine is mostly neuropathy. I am 10 months out from Cipro.

    • F February 25, 2016 at 7:28 pm Reply

      What about you Josh?

      • Josh February 25, 2016 at 8:52 pm Reply

        Almost identical to you. Mine has always been Mainly neuropathy.. mine is also made worse from wearing shoes especially when sitting. Also made worse from driving. I have had some tinnitus brain fog and other minor symptoms. I’m 12 months out

  15. F February 25, 2016 at 9:12 pm Reply

    Josh, I am in Vancouver Canada, Were are you? Have you noticed any improvement?

    • Josh February 25, 2016 at 9:27 pm Reply

      South Carolina. It’s improve slightly it used to creep up my legs and now it mainly around my left ankle and bottom of both feet. Has yours ?

  16. F February 25, 2016 at 9:55 pm Reply

    Josh,here’s my email if you want to talk further: fwten7@telus.net. You are the first floxie I have run across that has had mostly PN symptoms. Mine seems to have plateaued but I haven’t seen any improvement.

  17. Mark S February 29, 2016 at 11:43 am Reply

    Romain,

    How long did it take for the cracking joints to go away? Both my knees seem to crack terribly when doing a squat or going up the stairs.

    • JK March 8, 2016 at 1:40 pm Reply

      Mark S, are you back in the gym now??

      • Mark S March 8, 2016 at 8:18 pm Reply

        I can lift weights for upper body no problem. Legs are another story all together.

  18. tempo511 March 7, 2016 at 1:54 pm Reply

    I’m 10 months out and my brain simply doesn’t work like it used to. Constant brain fog and headaches make it feel like I’ll never be the same again. How long until your cognitive issues started to clear up?

  19. John Wheland March 10, 2016 at 10:34 am Reply

    Thanks for your story. I am 14 months into this journey. I took one Levofloxacin on 12-31-2014 and my left Achilles tendon split. I took three more pills before I figured it out. I have had and continue to have a myriad of problems. The various symptoms come and go but have seemed to diminish over time. Fatigue and stamina are still problems but I keep getting better and can do more and more. I am pretty much fully functional just not as good as pre-Levaquin. I am very thankful that most of this seems to be over. There is a light at the end of the tunnel!

    • Mark S March 10, 2016 at 1:44 pm Reply

      John,

      It seems as this is where I am getting to as well. My first six months were pretty terrible. What month did you start to notice marked improvement? I’ve recently at least seen a little progress to where as I’m not limited in everyday activities. Standing for long periods of time is tough, my left achilles still isn’t strong, and my knees crack like crazy, but I think I’m on the road to getting better. Hopefully the progress continues 🙂

  20. sophie March 13, 2016 at 5:36 am Reply

    Salut Romain… je suis Française et suis dans tout ça depuis 7 mois. C est tres difficile, lire ton histoire m a fait du bien… j aimerais vraiment te contacter si tu le voulais bien pour parler nourriture et aussi pour parler avec quelqu un qui a déjà traversé cette epreuve, et qui s en est sorti. J ignore si tu voudras reparler de ça avec moi…
    Merci pour ta publication et j espère à bientôt.
    Sophie

    • Sabrina December 23, 2016 at 6:05 am Reply

      Bonjour Sophie
      Je viens de mettre un petit commentaire sur mon histoire. Je suis française aussi.
      Au plaisir de vous lire.

  21. sophie March 15, 2016 at 3:09 am Reply

    Re… coucou,
    je voulais juste rajouter que si tu me contactes, je m engage à ne pas t embeter. J imagine fort que tu as envie de tourner la page et tu le mérites sincèrement.
    J ai juste deux ou trois petites questions… j ai envoyé un mail à Lisa afin qu elle te passe mon mail. Et surtout si tu n en as pas envie, sache que je comprendrais vraiment et ne t en voudrais pas. Au cas où, bon vent… 🙂 et merci pour ton témoignage. Ça fait chaud au coeur…

  22. Stefan August 13, 2016 at 2:44 am Reply

    Hello Romain,
    you talked about vision troubles. Do you had floaters (black dots, black clouds`s) who subside with time?
    Beste wishes
    Stefan

  23. Jackie DiNardo September 14, 2016 at 12:07 pm Reply

    Thank you so much for sharing your story. It is truly inspiring. I am at the one year mark and although not fully recovered, I am grateful for each day.
    Jackie

  24. Sabrina December 23, 2016 at 5:59 am Reply

    Merci Romain pour votre histoire et l’espoir qu’elle me donne !
    Je m appelle Sabrina, comme vous je suis française, je vis près de Rouen et floxée depuis février 2016. Bientôt un an… J arrive à marcher correctement maintenant, sans béquille et pendant environ 4h avant d avoir des douleurs dans les pieds.
    J’ai de gros soucis digestifs depuis septembre… J’ai l impression d’être acide de la tête aux pieds et j’ai beaucoup de vertiges…
    J essaie de ne pas y prêter attention mais ce n’est pas facile.
    Comme vous je fuis maintenant les forums et les pages FB qui m’ont ruiné le moral il y a qq mois…
    L’amour de mon conjoint est une vraie force dans ce combat que peu de gens comprennent. Il sait avoir les mots qu’il faut, les câlins réconfortants quand ça ne va pas.
    J’ai demandé un congé longue maladie, je suis enseignante et les vertiges sont trop lourds parfois et m empêchent de prendre la voiture pour me déplacer… C’est bizarre car j’ai eu plusieurs périodes différentes depuis février :
    – février à avril : difficulté à me déplacer, douleurs aux Achilles, mâchoires, poignets et arrêt de travail
    – avril à juillet : de mieux en mieux
    – rechute en juillet après une randonnée
    – juillet à août : amplification du phénomène à tous les tendons du corps, immense fatigué
    – septembre à novembre : problèmes digestifs horribles, douleurs estomac et foie, vertiges +++, du mieux au niveau des tendons, grosse dépression
    – novembre à maintenant : un peu mieux pour la digestion (transit perturbé mais plus de douleurs au foie, encore des brûlures d’estomac) mais intolérance au café, alcool, du mieux dans les tendons (plus de bequilles, longue balade, travaux de peinture, papier peint dans ma maison,je porte un pack d eau sans souci). Demande de congé longue maladie en attente.
    Tout n’est pas parfait mais j’espère tenir le bon bout. Je sens parfois que mon corps a réellement envie de bouger,j’ai envie de courir mais je ne le peux toujours pas… Si l envie est là c’est que je suis en bonne voie vers la guérison !! Je l’espère très fort en tout cas !!!

    Merci pour l’espoir que vous me donner !!!
    Sabrina

    • sophie January 6, 2017 at 6:43 am Reply

      Bonjour Sabrina,
      Je suis Sophie, enseignante également en France et en arrêt depuis que j ai été floxed en aout 2015. C est très long et difficile. J ai entre autres choses, de gros problèmes digestifs comme vous. Si vous voulez que l on se contacte, vous pouvez demander mon mail à Lisa. Courage et à bientôt !

  25. Mauro February 20, 2017 at 3:56 pm Reply

    Hi Romain, I have big disgusting and frustating crack and popping in every joints of my body even fingers. I’d like to know if they suddenly disappear in your case or you did something to fix that? That crack is due to cartilage erosion , and I think that it’s almost impossible that it fixed by itself because cartilage can’t have the capacity to heal and restore by itself. Thanks

    • Jeremy March 13, 2017 at 10:36 am Reply

      I’m not a doctor, but in my opinion it can heal. I had a lots of popping in my arms… now I have zero. I was floxed around 15 months ago.

      • Mauro April 2, 2017 at 3:14 am Reply

        What you used for that?

  26. Lenny April 11, 2017 at 1:12 pm Reply

    Hi Romain, i love your story! How are you today?

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