Tara’s Story – Healing from Levaquin Effects

Taraheadshot2015

*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

Healing from Fluoroquinolone Toxicity

In August 2015, I took Levaquin for a sinus infection. School had just started and my oldest went into 6th grade and I was about to homeschool my youngest in 2nd grade. 11 days into the 14 day prescription, I unfortunately found out what FQ toxicity is – I wasn’t able to walk and my Achilles tendons both swelled and I had muscle weakness in my legs – then it felt like my head started to “lift” off, I began hallucinating, my heart started beating oddly (I believe it was prolonged QT intervals), I became nauseous, and I either passed out or went to sleep. Thank God, I woke up the next morning…I didn’t know if I would and remember thinking, “I don’t want to die and leave my kids”.

I did a lot of research the next day and found out that it was called FQ toxicity and like many of you, read the horror stories and prepared myself. I prayed that God would help me through it. Three days later, a rush went over my head and through my face and symptoms began. I called the doctor the next morning and was barely able to use a phone. I couldn’t get words out that I wanted to say and felt like I was walking in a fog. I had panic attacks and anxiety out of the blue – which I knew from my training in clinical psych to breathe calmly and think positive thoughts such as “there is no real danger, the antibiotic is tricking my brain, but I’m fine” – eventually this stopped happening – it breaks the cycle of panic attacks. My neck wouldn’t hold up my head (later, my chiropractor told me I was experiencing neurotoxicity) and over the next month or two, I got better from some symptoms, while others emerged like short term/long term memory loss, trouble processing info, couldn’t read or focus, had an asthma attack, apparently due to lots of toxins in the lungs, developed TMJ as a result of the nerve and CNS damage.

My doctor said he couldn’t help me. A naturopath said she couldn’t help me and some symptoms might be permanent. Another doctor gave me corticosteroids, which I took and yes, it made symptoms worse. I later read absolutely don’t do that. I agree. I also tried a steroid inhaler when I developed asthma symptoms and it made symptoms worse also. I gave up on doctors for the moment.

Yes, it was scary and crazy to me that during the worst time of my life- emotionally, mentally, and physically-  there was not a doctor to turn to for info and help on how to treat FQ toxicity.

However, I did find a wonderful chiropractic office that incorporated nutrition, detox, physical therapy, and chiropractic care. The chiropractor had a specialty in functional neurology and was able to explain the symptoms to me and what was happening, which was incredibly helpful.

Another chiropractor at the office specialized in nutrition and was able to help me get on the right supplements to detox and heal the gut and introduced me to fasting – which was the most useful tool I found for healing the brain. I was able to think better after each fast – I’m doing one every 20 days. After my last 5-day fast, I was able to read and focus again. Proper diet and fasting does amazing things for the body and brain. There are great articles on why and neurologists are now saying “if you want to heal the brain, heal the gut”. I had leaky gut as well as neurological symptoms, so for me, this was a crucial and must needed step to heal from FQ toxicity symptoms. Note: In my fasting program, I drank lemon juice and real maple syrup with spring water during the fast as well as spring water by itself to keep minerals and nutrients high even while fasting. I also still had bone broth.

Most of all, being surrounded by people telling me I could and would heal and caring for me in the process, was just as important as anything they actually did to help me. Support is healing.

Lots of symptoms and lots of losses occurred in those couple of months. I love to run, read, drink coffee and wine, be social, play with my kids, and volunteer – but this all needed put on hold to heal. I kept hearing the phrase, “my people are destroyed for lack of knowledge” so I dove into all the research I could read and books I could find.

After many hours, days, and months of research and reading the books, articles, blog posts, etc available on FQ toxicity, below is the regimen I finally ended up on to heal from FQ toxicity.

Of all the books, articles, etc, I would recommend reading The Fluoroquinolone Toxicity Solution by Kerri Knox. It can be found at http://www.fqtoxicity.com/.

Supplements I take (I order most from pureformulas.com):

B12 Methyl –  5,000 mg daily (for energy and neurological symptoms)

NAC – 500mg morning and night (increases antioxidant glutathione)

Alpha Liporic Acid (ALA)– 600mg daily (helps heal nerve damage)

(Dr. David Perlmutter, neurologist, addresses FQ toxicity and says he uses the above 3, B12 methyl, NAC, and ALA to stop the progression of nerve damage and heal)

MitoQ – 5mg daily (it’s a 3rd generation of CoQ10, but supposed to be 872x more potent at getting into your cells and healing mitochondria – FQ toxicity causes oxidative stress to mitochondria, so taking either this or CoQ10 is needed if at all possible). I order it from http://www.mitoq.com/ – it ships from New Zealand.

Neuro-mag – 144mg daily (this is the only form of magnesium that crosses the blood brain barrier to deliver magnesium to the brain – some issues with FQs is that the brain calcifies and prevents sleep, etc)

Multivitamin – I made sure it had calcium, magnesium, Vitamin D3, Vitamin E (d-alpha kind), selenium, zinc (those 3 supplements– vitamin E, selenium, and zinc were shown to reverse tendiopathy in mice), iodine, B12 methly, vitamin A, vitamin K, vitamin B6 (I use Thorne Research brand, Nutri-Fem)

Extra Magnesium- until I get 700-800mg daily

Kelp drops (I bought these at whole foods) – to get enough iodine to equal 1600mcg, even though my multi vitamin has 225mcg, I still do extra because FQs are fluoride and fluoride robs the thyroid of iodine – which causes thyroid problems.

Homeopathic supplement from Dr Recommends called Fem Liquitrophic – which my chiropractor ordered for me to help with my hormones going crazy (menstrual cycles was starting and stopping all the time after FQ toxicity)

Probiotics – at least 20 billion. I order ortho biotic powder by Ortho Molecular Products from pureformulas.com. This one has the strain Saccharomyces boulardii that the book the Fluoroquinolone Solution recommends because it helps combat C-dif infection– a risk after taking FQs.

Collagen Protein – FQs attack ligaments, collagen, etc. and although bone broth is the best way, I believe I have seen benefits by also adding in this powder. I get it from https://store.draxe.com/collections/supplements/products/collagen-protein.

(I make a smoothie everyday and add to it the collagen protein, probiotics, a spoonful of coconut oil, calcium, avocado, kale or other dark greens, and frozen cherries or other berries, with protein powder from https://www.thorne.com/products/dp/medipro-vegan-all-in-one-shake-chai. I found it an easy way to be able to get in all the recommended nutrients and supplements.)

 Other Important things I do:

Switched to Spring water only – this was huge in my healing. Tap water has fluoride and turned out to be the reason for the bladder conditions I’ve had for years including overactive bladder and interstitial cystitis. I highly recommend doing this step immediately!

Dry saunas, as often as possible 4-6 times a week – they also detox fluoride.

Infared sauna weekly for 12 weeks– detoxes metals and other toxins – this was a part of my detox program.

Niacin body wrap weekly for 12 weeks – also part of the detox program.

The supplements I use for the 3 month detox program is from Solutions 4 and is a candida diet program.  http://www.solutions4.com/products/programs/12-week-candida-2/. Candida was high on blood tests for me.

Take Epsom salt baths – Epsom salt is magnesium and it pulls out toxins from organs, plus nourishes your body with needed magnesium. I read a clinical study that said your body only takes in as much magnesium as you need from Epsom salt baths, so this reduces the likelihood of toxicity when you get magnesium this way.

Magnesium oil – For the sore spots on my legs and feet and Achilles heel, I rub this oil into them and it really does help. I got this at http://www.ancient-minerals.com/products/magnesium-oil/.

I cut out any meat with antibiotics.

Eat a paleo diet. No sugar, no alcohol, had to cut out coffee – hoping to be able to add in coffee someday, but my CNS system cannot handle it after FQ toxicity. I was already following The Wahls Protocol by Dr. Wahls, which is now recommended as a diet for FQ toxicity.

If you are able, I highly recommend finding a chiropractor or some other health care professional on your team who is able to help and is saying “you can heal”. Chemical drugs hurt and do not help with these symptoms so I’d recommend finding someone who knows about supplements and nutrition instead.

I originally took Levaquin for a sinus infection: I now use a netti pot, with the saline packets and up to ½ tsp of Johnsons baby shampoo a few times a week for maintenance and 2x daily if I think I’m getting an infection. My ENT recommended the baby shampoo as it has been shown in clinical studies to be highly effective against mucus. This has been huge for me.

Did food allergy testing – so further inflammation wouldn’t be caused adding to the stress of my body.

I order Manuka honey UMF 15+ from http://www.happyvalley.co.nz/umf-manuka/ – it’s supposed to be as effective as antibiotics or more. We used it for the last round of sickness that would usually have ended us up on antibiotics and we did not have to go to the doctor!

I eat bone broth daily – adding in chicken feet seems to be helping my Achilles tendons and legs more than anything I’ve tried! I can walk 30 minutes now, but did earlier make the mistake of trying to do too much and hurt my tendons again. Since, I’ve read not to do anything for months even if they look and feel fine. I still walk, but that’s it for right now. Looking forward to jogging again.

Read the book “Letting Go” by David Hawkins

Tried to stay positive and truly believe for healing. Prayer and talking to God helped me tremendously. He was telling me I would heal back to total health and I believed him and still do! I recommend daily readings of supportive promises from God and holding onto the message of love and hope. Stress makes symptoms much worse and positive emotions make symptoms better.

I’m 4 months out and still healing but truly every week is better than the one before and that’s what I hold onto- the hope of a better, healthier life. I’m so much more informed about the true consequences of taking drugs and how to actually live a healthy life from now on.

You can heal and things can get better! Believe it!

I’m praying for all those with FQ toxicity.

Tara

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

 

 

70 thoughts on “Tara’s Story – Healing from Levaquin Effects

  1. Susan Kanen January 5, 2016 at 9:33 am Reply

    Tara, your symptoms are much like mine. I didn’t take fluoridated drugs, but was overexposed to fluoridated water, food, etc and from on the job at a water treatment plant. Your emphasis on avoiding fluoride is excellent. Thanks for sharing.

    • Wellness Coach February 25, 2016 at 7:58 pm Reply

      That’s interesting – I did find out that cutting out all fluoride – cooking, bathing, etc. healed many symptoms.

  2. Linda January 5, 2016 at 12:49 pm Reply

    Good info. Just want to mention that sometimes the breathing problems have nothing to do with the lungs, but perhaps damage to autonomic nervous system and/or mitochondrial damage to the heart muscle. I know because I have asthma and had to wean off my prophylactic steroid inhalers, while getting H2O2 Ivs. The breathing problem has gotten better but it is still there—but remarkably when I test my peak flow, my “asthma” is now better controlled than when I was on pharmaceuticals!

  3. dan January 7, 2016 at 10:34 am Reply

    dear tara, what were all your neurological symptoms did you miss any? any numbness spams, twitching etc.. thanks.

    • Wellness Coach February 25, 2016 at 8:04 pm Reply

      I did have numbness, tingling, stabbing pains in my head and face – felt like I was wearing a helmet – it’s hard to remember all of them now b/c brain fog and memory problems were a huge problem for me. I also was not able to read and write for awhile and my short term and long term memory were affected.

    • Tara April 20, 2018 at 5:38 am Reply

      I had many CNS systems due to nerve damage. Really what has helped nerve damage the most for me is the SCIO and a homeopath called black mamba.

  4. Pete January 17, 2016 at 5:16 am Reply

    Hi Tara, I wonder if you can say how you are getting along now, and if you have any further advice on what you thought specifically was the most useful supplement, it seems there are lots in there and it would be best to build up?

    • Wellness Coach February 25, 2016 at 8:09 pm Reply

      I wish I knew which ones are actually helped me heal – but I do know B12 Methyl continues to be needed. I backed off of the supplement and was incredibly dizzy and not functioning well – my memory was affected also. I believe (though I can’t be sure) that NAC, ALA, and MitoQ along with magnesium, a multi-vitamin, and iodine were all needed based on the research out there.

  5. Rose Casanova March 3, 2016 at 3:52 pm Reply

    Hi Tara,
    I got the Hawkin’s book you mentioned. Maybe it’s the “right time right place” kind of thing, but reading it so far has been very powerful. Thanks for mentioning it.

    • Tara March 13, 2016 at 6:12 pm Reply

      Glad you are liking it!

  6. Amy R March 13, 2016 at 10:33 am Reply

    Tara,

    When you did the dry saunas to detox the fluoride, did symptoms ramp up for you? I’d like to try this approach to heal quicker, but I’m nervous about a possible downcycle of symptoms. Also, did you have insomnia? Do you have metal filings in your mouth? I also heard ALA can draw the mercury out from the teeth and into the brain.

    Amy

    • Tara March 13, 2016 at 6:25 pm Reply

      Hi Amy, I replied to your comment below.

  7. Tara March 13, 2016 at 6:25 pm Reply

    I started doing dry saunas right away.This link is a very good one from Fluoride Toxicity Research Collaborative that describes the role fluoride plays in people with FQ toxicity: http://www.slweb.org/ftrcfluoroquinolone.html. It describes what fluoride poisoning is and what to do about it – specifically for fluoroquinlones. I discovered this info and have since followed the advice to take out all fluoride to recover. I stopped exposing myself in any way to fluroide including bathing, washing, cooking, etc. They were right – within a few weeks, many of my symptoms were gone (not all – as some of my symptoms are from the drug itself apparently). I also started using Detoxodine which is Nascent Iodine I ordered from Global Healing Centers – it’s supposed to be a very good form of iodine and excellent at detoxing fluoride. I use the recommended amount on the bottle. Also, my doctor gave me a homeopathic med called Halogens from Dr. Recommends that detoxes fluoride – but WARNING – it detoxed it so well, I ended up re-poisoned by fluoride and it took weeks to recover. So, I now only use 1 drop a week of the Halogens. The Fluoride Toxicity Research Collaborative warns to detox slowly from fluoride.
    I do not have metal fillings – I didn’t know that information though – thanks for sharing!

    • heyyoshimi March 13, 2016 at 6:53 pm Reply

      I’m about one month out from two doses of Levaquin for a sinus infection. I did take Cipro back in November for a UTI, about a week-long treatment. I’ve switched to only drinking and cooking with spring water but I don’t see how it’s practical for bathing to completely avoid fluoride. It’s in my city’s water. How did you manage this?

      Did you exercise before doing the dry saunas? I know you said you did them 4-6 times a week. How long did you keep that up for?

      Amy

  8. SP April 12, 2016 at 10:43 am Reply

    Hi, I took LQ for 14 days (also in 8/15 for a sinus infection). The only noticed side effect at the time was terrible joint pain…even my fingers, but that resolved a few days after stopping LQ. However…. Sept menses was late and since Oct I get awful sinus pressure during day 1-3 of menstrual cycle. It’s as painful as the original sinus infection. I’ve tried Florjen3 probiotic for the past 45 days….no change on sinus pressure during periods. I take coq10 and lots of fish oil as well as many other vitamins (have been taking for years).
    Before and after my period I feel fine. ..no sinus pressure at all or other issues. I am not certain if this is from LQ or what but it’s awful.
    Has anyone else had this effect? Or any advice or suggestions for resolution of this monthly sinus pressure?

    • Tara May 3, 2016 at 7:49 pm Reply

      Im sorry – that sounds awful for you. I dont have those symptoms – maybe a naturopath would be able to help?

  9. Alexandra April 24, 2016 at 7:57 pm Reply

    Thanks for sharing your story, Tara. I’m 21 and I was recently floxed in January and the brain fog has been the worst symptom for me by far. Do you mind explaining the brain fog that you had in further detail? And how many months did it take for the fog to recede and for you to be able to focus again? I’m currently taking many of the supplements you mentioned, but any additional information would help.

    • Tara May 3, 2016 at 7:47 pm Reply

      Hi Alexandra, I had brain fog and had trouble processing info, reading, and memory. I also had trouble understanding what others were saying. Fasting helped immensely for me and also, the final puzzle piece for me was that I not only had fq toxicity but that levaquin had caused me to have fluoride poisioning. Cutting out all fluoride of any kind made the brain fog completely disappear- it unfortunately took me 6 months to realize every time I took a bath I was re-poisoning myself – or anytime I cooked with tap water. I would definitely look into that – google fluoride poisioning symptoms and see if any of those match with what Youre experiencing!

      • Erin May 23, 2016 at 8:49 am Reply

        How did you avoid bathing in flouride?

  10. B November 30, 2016 at 5:37 am Reply

    Dear Tara,

    Thank you for sharing, your information is extremely valuable and brings so much hope for us. I just got poisoned a week ago 11/22/2016. I am a 41, engineer, very healthy mom and I never took before this medication. I live in Atlanta, GA, so please if you guys know of a good practitioner in this area please let me know.

    I have the same situation as yours. I had a sinus infection, Dr prescribed Levofloxacin 75 my for 7 days, after day 2 I had a severe reaction including a panick attack, feeling unable to breathe and swallow, like having a balloon on my face ready to explode, blood pressure went up to 160, heart went up too, blurry vision and auditory issues. Went to ER and they asked me to stop Levo.
    As the days passed by I am getting worst, fatigue, panick attacks, memory issues, slow speech, dizziness, severe tendinitis in Achilles and rotators, all body really. Voice getting hoarse, auditory issues persist

    I started a detox program, all raw for now, juicing, wheat grass 4oz daily, hyperthermia baths daily too, NAC, Mg, methyl B, turmeric, omega 3, collagen, glucosamine and IVs with vitamin B and C

    I will start taping Achilles and rotators tomorrow, they hurt so much. Ultrasound is just showing tendinitis.

    I wonder if gluthatione IVs would help? I am also researching about PRP and ozone therapy for extra oxygenation

    I have my precious 5 years old for whom I will not let this event to steal our day by day memories and happiness.

    I have taken PTO from work and I am expecting to come back in 2 weeks, I pray for no short term disability, my work is in the engineering field and it is demanding, I will do my best to take it easy and heal, we will see…

    I am wondering what we’re you able to do during 1st month of toxicity? Where you able to drive? Cook? Groceries? Take care of your kids? What strategies would you recommend?

    Blessings,

    B

    • Lisa November 30, 2016 at 7:05 am Reply

      Hi B,

      There is a medical center in Atlanta that has treated several “floxies.” Both Bill and Richard used it. It’s called Progressive Medical Center – http://www.progressivemedicalcenter.com/. Several of the doctors there are familiar with fluoroquinolone toxicity.

      Regards,
      Lisa

    • Deb November 12, 2017 at 2:46 pm Reply

      Hi B,
      Did you go to Progressive, and if so how did you like it? Thanks.

      • B November 12, 2017 at 4:57 pm Reply

        Hey Deb, I didn’t go to Progressive, I went to Centre Spring MD, Emory Rehabilitation Hospital and to my home country for extra treatments, close to my 1 year, I have recovered a lot, still I have a long road ahead. My musculoskeletal system is still slowly recovering. I have my faith high believing I will achieve a full recovery one day. Our Lord is my rock. Are you in Atlanta?

        • Deb November 14, 2017 at 11:12 am

          Yes I am in Atlanta and think Progressive may be too aggressive for me. I am reacting to several supplements. Did you like Centre Spring at Emory? What kind of treatment do they have? Did you do the IVs at Centre Spring? So happy to hear you are recovering! Thanks.

        • Mimi June 15, 2018 at 7:03 am

          @B –

          I’d also like to know your treatment. I’m in ATL as well.

  11. Elise January 30, 2017 at 5:25 pm Reply

    What supplements did you take for the candida?

    • Tara G. November 1, 2017 at 8:13 am Reply

      Sorry, I hadnt checked the site for awhile to update – I took solutions 4 supplements from my chiropractors office for candida. It was a whole program – it did work. I also found coffee enemas to be helpful.

  12. B February 25, 2017 at 12:46 pm Reply

    Tara how are you doing now? It will be really helpful to know the evolution of your symptoms and your best practices. Your story has helped and inspired so many of us. Thank you in advance for your generosity in sharing.

    • Tara G. November 1, 2017 at 8:18 am Reply

      Hello, I did a floxiehope hope podcast to update my story – Im still slowly getting better (was worse off than originally thought but have found many helpful things to heal). Will update again when Im healed! I have recently discovered how much ozone helps as well –
      The new study from Poland said to try ozone since a theory is that some of the medicine (which I believe is a form a fluoride) gets stuck in the cells. If you read up on ozone, I bought my own from Longevity Process and do ear and rectal insufflations. I joined a fb group called ozone to health for more info – check them out.

  13. Jeremi March 11, 2017 at 12:30 pm Reply

    Dear Tara, thanks for your writing. I also do wonder, how are you now?

    Just in case: one note to the supplement amount:
    You wrote “B12 Methyl – 5,000 mg daily “.

    Shouldn’t be B12 Methyl – 5,000 mcg daily ? (micrograms rather miligrams).

    • joanne. ebbitt July 15, 2017 at 7:08 pm Reply

      where do you get all vitamins? joannne armenia

    • Tara G. November 1, 2017 at 8:19 am Reply

      Hello –
      I responded with an update to the comment above if you get a chance to read.

  14. […] Tara’s Story – Healing from Levaquin Effects […]

  15. Susan Richards September 2, 2017 at 8:27 am Reply

    Hi Tara – I believe I read somewhere that you’re in the KC area. I live here too. Did you go to True Health? My symptoms so far are severe anxiety, panic, severe insomnia, and brain fog. I have a pre-existing neuro condition (essential tremor) that I’ve had since my 20s (I’m 58 now). So I’m looking for someone knowledgeable about neurology. Thanks.

    • Tara G. November 1, 2017 at 8:23 am Reply

      Hi Susan, I just saw your comment – are you who I met at truehealth the other day? Im thinking so! Glad we got to meet and hang in there! It does get better. Much much better.

      • Susan Richards November 1, 2017 at 8:41 am Reply

        Yes, I’m the one! Glad I got to meet you too. It gives me hope to learn about how far you’ve come. Sometimes I don’t ever think I’ll get back to “normal” or even get better. The doctors there are great too, and very encouraging. I think they have more hope for me than I do!

  16. Deb November 8, 2017 at 5:25 am Reply

    Tara,
    What helped you most in your recovery? I am having trouble with a lot of supplements. Thanks.

  17. Dee November 14, 2017 at 7:45 am Reply

    Tara. I am currently 5 months out in recovering and dealing with a lot of brain fog anxiety and sleep issues. I have been advised to take “Iodoral” which has 5 mg of iodine in a pill. I am only taking half a pill 2.5 mg as I have read on your post to flush fluoride out very slowly. I also see that you recommend a different iodine supplement Detoxadone. I am looking for guidance on detoxing fluoride in a safe way. Please do you have any suggestions or is it possible to talk with you privately? Trying to recover and heal as you know all too well!! Hope to hear back from you! Dee

    • Alexandra November 27, 2017 at 10:12 pm Reply

      I have the same symtoms but im loosing lots of weight everyday N the supplemtes ive taken dont seem to work

    • Tara April 20, 2018 at 5:40 am Reply

      Hi, you can email me taragodard@gmail.com

  18. Alexandra November 14, 2017 at 2:53 pm Reply

    Hey i was reading your floxed story im know sufferiny from pain in my back and alot of light headedness from taking lavaquin i saw that you took suppliments to help. Im also having neorotoxtic cuz my enxiety gets really bad i feel buring sensations in my head like if i still have the medecine in me i boughy Nac i stared taking it and also a priobatic and vitamin c and b12 and coq10 i wonder id that will help to detox and feel better?? I dont now what to do sence doctors dont think its because of lavaquin and i started feeling sick fron taking that 2 weeks ago

    • Alexandra November 27, 2017 at 10:17 pm Reply

      Tara can u please call me wen u see my message i really need help recovering from Lavaquin toxicity.n i really need ur help my number is 650 334-9057

  19. Ron delgado March 10, 2018 at 10:42 pm Reply

    I took the exact same costicorisone and Leviquin and I have full blown Tendonitis and dr wants to take tendon out of big toe but I have diabetes and do not think I’m healthy enough at this time but I am going to get on this regimen as best as possible and try to do it all if I make it that long . I’ll work hard at this , please call me I have a few questions for you if you do not mind , how long ago did this happen and how is your progress , (402) 853-0459

  20. Janet March 20, 2018 at 5:42 am Reply

    Thank you for sharing this info.
    Can you clarify infrared sauna vs dry sauna? I thought they were the same.
    Thanks much!

  21. Sambo Luon March 21, 2018 at 3:14 am Reply

    Hi Tara,

    Just wondering how many tablets of levofloxacin did you take ?

    My symptoms are severe depression, anxiety, digestive distress and sore throat

    Do you think the supplements are safe?
    Does the iodine help u a lot ?

  22. April Piccirillo March 21, 2018 at 7:06 pm Reply

    Thank you for this article! I am where you first began and have incorporated many of these helps into daily life. I look like I have the measles but the itching is not burning anymore but no quality of life restored YET!!! 10% better everyday since the 2 month marker. I have not been physically ill in 26 yrs so I knew immed that it was the Levaquin.

  23. Nicole March 24, 2018 at 5:47 am Reply

    I’m 2 weeks out from being floxed. Does the anxiety depression get better? Everyone I spoke to said the head stuff is definitely not permanent.

  24. Marie Desilets May 7, 2018 at 8:39 pm Reply

    Thanks for a story that gives me hope. I had been given cipro and levequin about ten times in ten years, never understanding the source of my crazy illnesses..for me the final straw that really threw me into pain..brain dead feeling..no feeling of emotion..and burning skin w muscle ed spasms and twitches..oh and yes.vision disturbances with lovely dark circles..the final straw was when the doc prescribed me levequin in September and once again in October. All hell broke loose and shortly after I read an article by Dr. Mercola warning about the horrible and devastating effects of this drug from hell!!! It took TEN YEARS for me to read this! I feel like I am just existing lately. I have lost friends..it is a painful, frustrating, and lonely affliction. Shame on the FDA and Docs who know what they’re prescribing. But you info gives me HOPE. I just want my life back..

  25. TAV May 8, 2018 at 1:35 am Reply

    Hi,

    I hope you heal quickly.

    I want to say that the shame you mention should only be to your single doc. We, as adults, are responsible for what we put in our body. If we can trust our doctor then we are good but if we hire a bad doctor then we get bad care. This drug messed with me pretty good but fortunately I healed in about 6 months. With that said…the drug did its job. I have a good doc and he had tried a ton of other options but a nasty bug had taken up residence in my body. The levequin got rid of the nasty bug – at a cost but if the bugs had been left alone I assume I would be dead by now. I felt awful after being poisoned by this drug but I also felt a whole lot better after this drug killed the bacteria. Perhaps you hired a bad doctor and your story is different than mine but that doesn’t mean the drug doesn’t have a good purpose. It sounds like your doc may have misused the drug but even water van be misused…it doesn’t mean we should ban water. Also there are millions of people who don’t have after effects of levequin.The FDA is not to blame – your doc is. As adults we shouldn’t depend on the government to protect us…in the history of the world every government has at one point attacked its own citizens (thus the 2nd amendment). Look at the terrible genocide done by governments overseas in recent times. I doubt The US gov is trying to kill off its citizens but to be dependent on any government is not a good idea. Educate yourself and make an informed decision so that you don’t get poisoned again, but don’t blindly trust much of anything, especially something you ingest, and especially if you don’t trust your doctor. The FDA is only a group of very foulable humans. Maybe some are dishonest maybe some are incompetent or maybe the humans at the FDA just make mistakes. Also remember chemotherapy is a poison that has saved many lives, and all of us here are better off than those in the cancer treatment center.

    I do wish you well but I don’t think your misfortune can be blamed on anyone but the doctor you hired. I hope you have found a new doctor who you can trust.

    • Mina May 19, 2018 at 7:23 am Reply

      @TAV. It is the absolute fault of the greedy drug company knowing Levaquin has very very high incidents of severe irreversible debilitating side effects, yet it downplayed the scale of these adverse reactions trying to make the public and medical professionals believe those are just possible side effects just like any other. Well, these reactions are NOT like most others. Most commonly used medications on the market have side effects also but most are reversible once you stop taking the med. Levaquin however, can cause irreversible neurological , tendons, central nervous system, nutrient toxicities through out your entire body after only 3 days of use by many people. The food and drug administration is fighting to put a black box warning and to make levaquin should not be used unless no other options. But the maker of the levaquin refused and continued to downplay the toxicity of this drug and label it as first choice for simple sinus infection when there are other options available. THIS DRUG NEED TO BE PUT UNDER CONTROL JUST LIKE HOW THEY PUT CLOZARIL with close monitoring on the patient by doctors when use. Levaquin has destroyed the life of many people. These people are now experience painful burning sensation in their nerves their whole body, tendons damages and ruptures, central nervous systems issues. The high incidents of sufferers is not acceptable. Fluoroquinonones especially Levaquin are poisons.

      • TAV May 19, 2018 at 10:51 am Reply

        If you have to blame some one then you will find some one to blame. These bad feelings and blame you hold on to will only hinder your healing. I encourage you to talk to a counselor to heal emotionally so you may also heal physically.

        We are all responsible for what we put in our body. We know the world has bad people in it and bad things in countless forms. We, as adults, are responsible for who we trust. No one forced anyone here to take this. We all willingly swallowed the pill and for some the troubles it caused were worth it…for others it was not. Are the side effects of chemo worth it?

        I was well aware of the potential side effects because I had a good doctor, so the potential side effect information may have been hidden or downplayed to you….but how is there a conspiracy here if me and my doctor were well informed?

        Asking for the government to control a product of any kind takes away the rights of adult Americans to use that product. If you do not want your bad doctor telling you what drug to take then why do you want your government telling you what drugs you can’t take, and then they’ll tell you what food you’re allowed to eat, and then which clothed you’re allowed to wear…and how you’re allowed to live….do you really want to give up your freedom?

        You are by no means an expert and because you were hurt you point to others who were hurt and now…you want to hurt others! Revenge is never positive. Many people have found benefit from this drug. You are willing to hurt others who benefit from the drug to get your selfish revenge… How are you any better than those you criticize for acting on their own self interest….Shame on you.

        All drugs have side effects and all humans will experience those side effects differently from each other – physically and emotionally. Your bad experience is yours…not everyone’s.

        Do we outlaw peanuts because they can kill some people? Do we outlaw strawberries because they can kill some people? Who decides where it stops?

        How do you know you are not better off for taking the Levequin…would you have died if not for the Levequin killing the bacteria? Maybe you should be grateful.

        Frankly anyone who took an antibiotic, or any drug so often with out educating themselves is culpable for the outcome. The pharmacy offers free counsel on the medication and gives an information packet. You were informed but you chose not to read the packet given to you….by law the pharmacy gives you paperwork about every drug you pick up. Did you read it every time you filled the prescription? If you believe the government should dictate to you and others what you can or can not do with your body…welll…that is a slippery slope. In other countries the government controls what people do with their own body. If you have no right to have control over your own body….what do you really have? Soon the government will tell you how to dress….

        Look up a story about a couple who wanted to take their sick child out of the UK hospital and to an Italian hospital. Italy even gave the baby temporary citizenship. The parents were forced by the government to let their child die in a UK hospital.

        You do realize that some people can have a deadly reaction to most any drug? Tylenol and Advil have taken countless lives since inception? No drug is absolutely safe. With every drug the question is…will the benefits outweigh the costs, the potential side effects?

        Levequin has saved many lives and countless people have terrible side effects.Why do you want to hurt those people who benefit from this drug?

        Asking the government to be responsible for the choices we make as adults takes away our right as adults to live our life the way we choose. Give them an inch and they’ll take a mile. Do you really want the very foulable government telling you how to live your life or do you want to accept responsibility for both the good and bad choice you make in your life.

        Work on healing …. not blaming.

        Stop looking for someone to blame because you willingly swallowed the pill without reading the pharmacy paperwork or education yourself.

        • Typenu May 22, 2018 at 1:37 am

          TAV, because of cowards like you the circle will continue and many thousands of humans will suffer and get crippled from FQ’s. It’s the responsibility of everyone to blame and shame those companies and institutions who spread FQ’s like candy.

          The “single doc” is the lesser culprit in this game as he also got fooled by big pharma (who downplays FQ toxicity to sell it) and can’t know in detail every drug available.

          Big pharma poisens us slowly, FQ’s are just their nukes. Nobody benefits from FQ’s as it always kills mitochondria by chelating the magnesium kations which moderate their topoisomerase II. In best case it kills the bacteria too.

          Now grow some balls and blame and shame the ones who deserve it or are you on bayer’s pay roll?

        • TAV May 22, 2018 at 10:50 am

          Your body will never heal with so much hate in your heart.

          If you want me to ‘grow a pair’ (show a little class…) and blame someone then I will state the obvious. You are to blame. It is your fault this happened to you. You willingly swallowed the pill. You kept going back to the same doctor despite continuous bouts of the same illness. You didn’t seek a second opinion. You didn’t educate yourself before taking the drug. You didn’t accept the always offered pharmacist counseling. You didn’t read the paper insert the pharmacy puts with the drug. You didn’t do a simple internet search after the first prescription. You failed yourself. You are an adult therefore you are responsible for your own fate. You are to blame.

          You want me to ‘grow a pair’ — perhaps you should take your own advice. Accept responsibility for your own actions. It’s hard to accept fault, blaming someone else is the “cowards” way. Call me names if you like – I don’t care – but the definition of coward doesn’t apply here. I simply do not agree with your idea that the government or a company it at fault. You say the number of negative impacts of this drug are unacceptable…who put you in charge? I feel they are acceptable and I took that gamble when I took the drug. I don’t have anyone to blame because the good MD I hired informed me (I researched my MD before my first apt to make sure he was good), I spoke to the pharmacist, I read the paperwork and I swallowed the first pill very well informed of my choices. Yes, I was poisoned….what do you think most drugs are….and then I recovered. I won’t join your fight because I think you are wrong ethically and logically. I think blaming someone instead of taking responsibility is truly the cowards way. I think you are being a coward by not accepting blame. Just because you think something to be true doesn’t make it true, or accurate or right…. I believe you are simply wrong.

          Take responsibility for your own actions. Stop looking to the government to solve your problems.

          Feel free to bark up that ‘blame’ tree – if regulations on hydrocodone are as such, given the circumstances that are as such… Well, you’re welcome to try. It is still a free country….although people like you are trying to make it less free by demanding the government tell us what is and is not allowed to ingest …. Do you want the government to also tell you what you’re allowed to wear….where does it stop? Do we need a ban on water because too drinking much water can cause death…..
          In fact, I encourage your pathetic war. You may as well focus your hate on something. It’s too bad you feel sorry for yourself rather than just be greatful for what you have. It could be worse…it could have killed you. It is too bad you don’t take your new found “fire” and use it to actually help people – like volunteering at a long term care home or homeless shelter or with foster kids….someone who could use a little help (and maybe you will stop feeling sorry for yourself).

          Your time in this life is limited. I’d recommend you thank God for the good things in your life and pray that you don’t waste this life he gave you filled with hate…but God gave us free will so it’s your choice. You made the bad choice to take Levoquin, many times. Are you going to make another bad choice to live the rest of your life trying to get revenge? Feel free – it doesn’t impact me…. you’ll waste your time, not mine. I couldn’t care less and based on the trashy things you say in your post – maybe you deserve the life you have…you present yourself as an awful person.

          I won’t be reading any more hate filled posts from you.

        • Typenu May 23, 2018 at 2:25 am

          Good for you and now bug somebody else. With cowards like you who are afraid to confront doctors and companies, but instead blame themself nothing would ever change.

          Hate and anger are normal human emotions and strong motivators, if one who got poisened and harmed doesn’t feel anger towards the ones who harmed him that one has some kind of masochist tendency.

        • greendingy June 6, 2018 at 7:36 pm

          Tav, how long did it take you to heal? And, did you have a severe reaction, or what kind in your opinion? i agree that it is better to be stress free in order to heal, but you did go on quite a bit with negative comments as well, so it seemed like you were very much bothered. That happens when someone attacks you. Hope you can answer my questions as to how quick you healed and what your symptoms were. Thank you.

    • mieshalynn June 15, 2018 at 6:53 am Reply

      @Tav –

      Hi Tav. You mentioned you healed. How did you heal & what did you do? What symptoms did you have?

      Thank you!

      • Tav June 15, 2018 at 8:36 am Reply

        Where do I begin…My symptoms felt like I was falling apart… brain fog, pain, muscle weakness, fatigue…pretty much everything stopped working.

        (Please excuse typos)

        My immune system basically went “hay-wire”. Suddenly I had allergies to what felt like everything and even now I still continue with monthly immunotherapy (allergy shots) – which have helped a lot. Also a netipot is very helpful. Sometimes still my sinus pressure is awful and I found using ice cold netipot water is like an ice pack. It doesn’t hurt or give the brain freeze. I only do it occasionally but it’s harmless to use cold water but make sure not to use tap water.
        I developed multiple chemical sensitivities and even now must use fragrance free products (but maybe it’s a blessing I can’t use all those chemicals in my beauty routine – I never even looked at a cosmetic label before my sensitivities began). I use vinegar in my laundry instread of fabric softeners.
        Thinking was very difficult and following a conversation was stressful… It was like my IQ dropped “over night”. That was emotional for me. Headaches were pretty bad too but infrequent, so that was a blessing. The muscle weakness was odd and made life harder. I’ve always been thin – mostly about 105lbs since high school – but I suddenly went to 125…which was hard emotionally but worse because no one took my concern seriously since I wasn’t obese. Turns out it was water weight on about 3 months later I dropped 8 pounds in 3 days (obviously water weight) and in a couple weeks after that I was at 102lbs. It was if my inflammation was finally reduced and the edema could heal…just a guess though.
        I developed confirmed Celiac disease and gastroparesis both of which will always stay with me. Also my thyroid stopped working and that too can’t be cured. I’ve always had asthma but it was nearly impossible to breath for a few months but that seemed to improve quickly but it could be I was just used to it since the other symptoms were more pressing.
        Well I am sure I am missing a few symptoms but as for what helped…. living very healthy was a a big one…daily exercise even when I was miserable. My amazingly husband held my hand every day through this and he’d even carry me sometimes:). When I wanted to be lazy he pulled me up and we at least went on a short walk…every day some exercise. Only healthy food…I cheated a few times but noticed immediately. This was hard since I like my sweets. Epsom salt baths, lots of Vitamin C and other supplements (you need to find what works for you but avoid fat soluble ones). A very high protein diet seemed to be good for me foe a while- even fruit has sugar. Positive thinking- studied prove mind over matter, even the internet is filled with example of how powerful will power is. If you want to get better you will but if you always want what you don’t have…. You can’t be happy. You may never be like you were but you can be healthy and happy. Bodies change with age so at some point we will all wish for what we had but the key is to be happy with what we have….someone always has something better. Keeping a spotless house helped my allergies and still does. It took me about 18 months maybe to get to where life wasn’t hard…or maybe I just got used to it. I feel mostly normal today but I am not sure if I am like I was…I still have some life long effects. All that matters though is that today I feel good most days and I am happy with my life. Maybe God gives us these bad times to help remind us of the good times, maybe I am so happy today because I was poisoned and gained perspective. Maybe the reason I live such a healthy life today is because I was poisoned, maybe the changes in lifestyle I was forced to make will add years to my life and my family. Only God knows but today I am grateful for the life I have, even the bad parts 🙂

        • Dee Gilmore June 15, 2018 at 9:46 am

          Tav. Can you tell me more about your gastroparesis? When did it develop after you got floxed? What were your symptoms and how do you deal with it now?? I have a lot of GI issues and was just wondering what the symptoms are of that condition?

          Sent from my iPhone

          >

        • Tav June 15, 2018 at 11:00 pm

          Hi Dee,
          Gastroparesis is basically a partially (or fully) paralyzed stomach. If you google the word you’ll see the symptoms in full – the symptoms can be different for everyone. A slower than normal gastric empting is something that many people live with for years and don’t realize – usually those people are the ones who prefer soups over steak because a steak makes them feel ‘heavy’. Gastroparesis is by no means a life sentence – don’t get me wrong, it sucks…a lot, but it is more than manageable. There is always someone who has it worse than we do….at least we’re a live, at least we know God and at least we have the choice to put on a smile  Someone else is always more deserving of our pity … with that said…Gastroparesis is not fun. On the bright side, most patients experience transient symptoms, meaning you’ll have a really crappy few weeks and then the next 6 months will be so good you declare yourself ‘cured’…. Just in time for another really crappy few weeks to remind you there is no cure 🙂 . Gastroparesis thinks she’s a comedian 🙂 . The treatment is a lifestyle change – soft foods. There are people out there who use Gastroparesis as a reason to claim they can’t work and file for disability. Now you may need to find a new career or job but Gastroparesis is by no means a reason not to work. Some patients do need a feeding tube – but honestly that just means you’re not trying hard enough. There are days when it sucks to eat…really sucks. That feeling you get when you are sure you ate the entre turkey at Thanksgiving ….that feeling can come after 8oz of food and last for hours – yes, it sucks (in case I haven’t used the word enough… Gastroparesis sucks 🙂 ). When eating becomes tortuous that is when you double down and realize you are lucky to be able to eat – some people don’t have food. That is when you remind yourself food isn’t fun, food is a life necessity. So….you ask your wonderful husband (by ‘you’, of course I mean ‘me’) to blend your food…yep….nasty, but food is medicine and sometimes as grown up we have to do what sucks….so we find a way. Gastroparesis can make it easy to take in less than 500 calories a day – next thing you know your pants are falling down (your boobs are smaller 🙂 ) and your doctor is throwing out words like “underweight” and “feeding tube”. That is when you go home and realize your life is not your own but you share your life with your friends and family so even though you’d rather wither away than eat….you realize it is selfish to feel sorry for yourself. So, you go home and stuff in liquid calories every day until you get at least 800 calories a day, then you follow that with some vitamins and in a couple of weeks you gained 5 pounds and are back to a healthy weight (I’m little so 5 pounds added or taken from my little frame goes a long way). So….feeding tubes are possible because with Gastroparesis you literally starve so you drop pounds in a blink. I went from healthy to underweight in less than 2 weeks – and back again. It was a rough 4 weeks but I won’t let that happen again – how?….I just stuff in the food. Being a grown up doesn’t mean we always get to do what we want or what is easy and sometimes we are required to do things that suck….just because eating doesn’t suck for the rest of the world doesn’t matter. What matters is we do what we need to do for those who we love – it may sound weird to say that means I force down food but if I were 500 pound no one would question eating less food is my responsibility. In this world where everyone is fat it is very hard to have anyone take my disease seriously. Everyone assumes Gastroparesis is a miracle diet…I’ve always been thin so I needed need a diet…. Gastroparesis is not a miracle and it sucks. Over time I learned what I can eat that is normal foods – yogurt, oatmeal…soft foods. I had a steak recently for the first time in a very long time…my amazing husband helped me cut it up in to pieces that were about the a single Cheeri-o. Yes….an infant could have ingested these pieces but that is my life…tiny pieces are more easily digested. I still felt a little queasy after that meal but at least I could eat it – ground meat is best. Oh did I mention the nausea yet…you learn nausea has levels….many. You are always nauseated…always. Eventually you find ways to deal and after perfecting your ‘safe foods’ life the nausea will usually go away and then you’ll have more good days than bad…but it’ll always be there, just waiting for you to eat the peel of an apple or some other food with a lot of fiber. Fiber is the enemy of Gastroparesis but since fiber is good for you, you have to find ways to get fiber in. I have found grinding walnuts and other nuts in a flour (BlendTec) and adding them to my oatmeal or other foods has really helped. Also, fish oil is a great source of free calories and good nutrients. If I eat something ‘wrong’ it will ruin my entire day – my husband says “it just takes one bite”. When someone says “taste this” I literally always refuse. My husband will taste all new foods for me and help me ward off ones that may be bad. If I do try a new food it must be when I will be home for at least 24 hours. Diarrhea and constipation are not shy words around my house – I have literally prayed to poop 🙂 . Magnesium helps a lot – with healing, constipation and Gastroparesis and just about everything. Lots of water…avoid sugar (fruit is still sugar). Since I also have Celiac my diet is incredibly limited but at least I have food. Going out to eat is not a treat in my house – it’s a rare necessity that is filled with fear. I literally bring food with me everywhere. I recently had a long flight with two connections, I was flying alone. I literally brought a suitcase of food with me – sandwich ingredients bread and tuna, mayo took up room in my toiletries. Oatmeal was my breakfast and sandwiches were lunch and dinner for this 3 day trip. I had a rental car, stopped at a gas station store for a gallon of milk and 2 gallons of water. Everything I ate was something that came from my home because I didn’t know what was going to available to me and I learned it is easier to just be prepared. I basically eat like a toddler – small pieces, not due to choking concern but they are easier for my tummy to manage. Soft foods or liquids – chocolate milk is a life saver. A single serve bottle of chocolate milk and string cheese can be found at most any store and is easy to digest. The bloating can be amazing – I have literally gained 3 inches on my waist in less than an hour. Those are the bad days though. I’ve found warm lemon water is very helpful for my nausea. The test for Gastroparesis is a ‘gastric emptying study’ – you eat scrambled eggs laced with a radio opaque dye and then they scan your tummy every hour for four hours. It takes about 4-6 hours to complete the test. If you have the time, effort and money to get tested, it can’t hurt but nuclear medicine studies are very costly and time consuming. Also, the gastric emptying time does not directly correlate to symptoms – some people have really slow/bad rates and very few symptoms, some people barely meet the criteria for the disease but have terrible symptoms, so the results don’t tell you much.

          Since Gastroparesis has no cure, my advice, if you don’t want the test, is to just eat as if you have Gastroparesis and see if it helps. It can’t hurt to have soft foods for a couple of weeks. I’d recommend a pure liquid diet for a week or two – this would be things like smoothies with almost no sugar or fruit, vegetable juices (v8 has a lot of sugar but juicers are expensive for a trial so V8 is good enough for a trial) raw vegies are a no-no but mashed are okay – mashed carrots, mashed potatoes, mashed cauliflower, etc. You still need to get 800-1200 calories based on your height – if you’re 6feet tall you’ll need about 1200. Yogurt, soft cheese in small bites, milk 2% (fat free is okay but you’ll be going for the most calories for your efforts if you do a trial) Collagen pills from the beauty section are a great source of free protein since protein is usually harder to find in soft or liquid forms. Fish oil pills – I take 10 a day, 350 calories and really good for healing in general. If you take them with warm water that really helps for me. A multivitamin is important since it’s hard to get enough nutrients on such a limited diet. If you must have sweets – apple sauce or mashed bananas are easy though they have a lot of sugar and promote bloat even in healthy guts. Ground nuts – whole nuts are usually hard to digest but fiber prevent constipation so if you try it for a week you’ll need to find a source of easy fiber – I use ground nuts. You must stay hydrated because constipation will sneak up on you and if that makes everything worse. Probiotics seem to help but that are hit/miss. A good one is Florjen3 – must be refrigerated. A tip my GI gave me, take them every day for 60 days, then just one week a month. I take it the week of my period so it’s easy to remember. Not sure if it helps but for healing in general I’d say everyone on this site should take a probiotic for at least 60 days. Levaquin is made to kill all bugs – like an atom bomb for your body – this means all those good bugs were taken out too and probiotics really helped me at first. Exercise is critical – seems like it always is, but here is really is. You know how you can’t leave the hospital after a surgery or baby before you poop….there is a reason they get you up walking around. Walking helps the GI tract, it promotes digestion. Yoga does too…not because of stress or anything like that, though stress makes Gastroparesis worse for a lot of people – but yoga moves help massage all the internal organs, including the stomach. If the stomach has lost isn’t peristaltic movements you can mimic them with yoga moves and that helps a lot of people. For me just any exercise helps but swimming really helps. Anyway, I am sure you got my point that Gastroparesis sucks, and I am not going to tell you that it “isn’t that bad”…it really is that bad…but it is nothing we can’t live with. Yes, it sucks, a lot, but so do so many other things. It is worse to have Gastroparesis or constant pain when walking from plantar fasciitis – who are we to judge that Gastroparesis is somehow “worse” than someone else’s plight. It doesn’t matter the ‘cross’ you carry, all that matters is that you get up in the morning, grateful God gave you another day on earth with your loved ones because you may be suffering but wouldn’t you take that burden of suffering over leaving your family to suffer losing you – I would. Every day of suffering means that I am alive, here and I have ‘lived to fight another day”. As long as we don’t feel sorry for ourselves (at least not for more than a day or two – a little self pity tends to creep in every now and then) then we will realize that there is someone else who is suffering more than we are. The old saying that helping others helps you – that really helped my overall healing. Feeling sorry for myself didn’t help anything. I stumbled upon this teenager one day, she was having a bad day…my day was much worse, but as an adult I asked her why she was crying (I knew her name but didn’t really know her). I listed to how her “life was over” because of her parents…yea, it was silly teenager stuff, but when I was done I realized I had forgotten about how bad I felt, and it was a particularly bad day. This also happened one day when I was at the grocery store and ran in to an old neighbor I hadn’t seen in a very long time. I was all prepared to tell her my story of self pity but I am so grateful God glued my lips together. This woman had it so much worse than me – death and disease were only the start. All three of her teenage boys and their father died in an accident. She normally joined them on this annual weekend trip but had stayed home because she was in a battle with cancer. She insisted they go and felt it was all her fault. Yea…she deserved my pity more than I did. I thanked God I didn’t speak first because I would have felt like a selfish fool. I learned early on in my healing that focusing on my healing was important but feeling sorry for myself was harmful. Listening to the problems of others, or just being in a spot where telling people about my problems was not appropriate gave me a ‘break’ from focusing on how bad I felt and I found I felt better. Support is one thing but there is a fine line between support and crutch. Focusing how much ‘better” I have it, how much worse it could be really helped my overall healing and with the life long impacts I’ll always have – though Gastroparesis can also have been from the original illness or a random virus. Gastroparesis is often caused by nerve damage to the Vagus nerve and that can be caused by countless things – even too much stress. So I can’t say what life would be like if I hadn’t taken Levaquin – who knows maybe none of these are directly related to the drug and they were all going to happen to me anyway. I am not sure why God have given me the struggles I have been given, but I know that some good things have come from every trial I’ve ever experienced – I think 🙂 . I try to trust God has a plan for me and sometimes that plan is hard for me to understand but usually, when I look back on things I am grateful for the struggles. I mean, there is even a movie called “thank God for unanswered prayers”… Gastroparesis losing you – I would. Every day of suffering means that I am alive, here and I have ‘lived to fight another day”. As long as we don’t feel sorry for ourselves (at least not for more than a day or two – a little self pity tends to creep in every now and then) then we will realize that there is someone else who is suffering more than we are. The old saying that helping others helps you – that really helped my overall healing. Feeling sorry for myself didn’t help anything. I stumbled upon this teenager one day, she was having a bad day…my day was much worse, but as an adult I asked her why she was crying (I knew her name but didn’t really know her). I listed to how her “life was over” because of her parents…yea, it was silly teenager stuff, but when I was done I realized I had forgotten about how bad I felt, and it was a particularly bad day. This also happened one day when I was at the grocery store and ran in to an old neighbor I hadn’t seen in a very long time. I was all prepared to tell her my story of self pity but I am so grateful God glued my lips together. This woman had it so much worse than me – death and disease were only the start. All three of her teenage boys and their father died in an accident. She normally joined them on this annual weekend trip but had stayed home because she was in a battle with cancer. She insisted they go and felt it was all her fault. Yea…she deserved my pity more than I did. I thanked God I didn’t speak first because I would have felt like a selfish fool. I learned early on in my healing that focusing on my healing was important but feeling sorry for myself was harmful. Listening to the problems of others, or just being in a spot where telling people about my problems was not appropriate gave me a ‘break’ from focusing on how bad I felt and I found I felt better. Support is one thing but there is a fine line between support and crutch. Focusing how much ‘good’ I have it, how much worse it could be really helped my overall healing and with the life long impacts I’ll always have – though Gastroparesis can also have been from the original illness or a random virus. Gastroparesis is usually caused by nerve damage to the Vagus nerve and that can be caused by countless things – even too much stress. So I can’t say what life would be like if I hadn’t taken Levaquin – who knows maybe none of these are directly related to the drug and they were all going to happen to me anyway. I don’t claim to understand God’s plan or why we are given any struggles, though I do know that often, when I look back on my life events I realize that this or that struggle led me to this or that blessing. So, I am not sure why this happened but it did and making someone pay won’t change what happened to me and even making them pay saves the next guy, it may also hurt the next guy who actually needs it so who knows, but what I do know is that life is what we make of it and I today I am happy. I have a good life, yes I have struggles, but so does everyone else. This happens to be mine and I choose to be happy with my life instead of complaining about it (I give myself a day or two of self pity and whining every now and then 🙂 Trust me … a life without chocolate cake is still an amazing life 🙂

          Hope this helps.

    • Mimi June 15, 2018 at 6:58 am Reply

      @Tav –

      Hi Tav. You mentioned you healed. Can you share your symptoms, length it took to heal & what you did & didn’t do? It seems you recovered very quickly. Thank you!

      • Tav June 15, 2018 at 11:10 pm Reply

        Hi Mimi,

        I am not sure what “healing quickly” really is or how you got that impression but I honestly am not sure how to define “healing quickly”. I have shared as personal information as I feel okay with, in the other posts above, so you can read those. As you’ll see from my posts, I mainly walked the line of living a healthy life style – with almost never cheating and I limited the amount of self pity I allowed myself not only because it hurts my healing but it hurt those around me. Feeling sorry for myself caused those around me to suffer with me, pick up my slack and put up with me. I gave myself a day or two every so often but self pity is selfish and hurts those we love. I didn’t want to hurt people I love so I may take a day or so for myself but otherwise, I get my butt out of bed, take a shower and even make myself look nice – looking nice helps us feel nice. Don’t you feel more lazy when you’re in sweats all day? I know I do. I prayed a lot and realized that I it could be a lot worse. I also used a lot of other things you’ll read about – but exercise was a big one. Exercise burns cortisol, if you have too much cortisol nothing feels goods. Healthy living, exercise and focusing on how lucky I am really helped – and all those other things you’ll read about.

        • Mimi June 16, 2018 at 1:57 pm

          @ Tav. Thank you so much. You’re generous and awesome. I love God so much and am very grateful for where i am today. I keep telling myself that. And the feeling sorry for myself thing…been there. A struggle but i noticed that after a while folks started to go away bcz no one can take so much grief and lack of gratitude so i consciously “feel good” and choose happiness EVERY DAY. Literally i choose it. And sometimes i fail but mostly I win and continue to heal.
          1. Have you ever checked yourself for SIBO (small intestinal bacterial overgrowth)? That can come from certain antibiotic and probiotic use and hurt the body causing more nerve issues. Also have you checked for H. Pylori bacteria in the stomach?
          2. Have you tried vagal nerve stimulation or a chiropractor?
          3. How long were you on Leviquin/days?

        • Tav June 16, 2018 at 3:29 pm

          Hi Mimi, Thank you for the suggestions, though I have already run the gamut and been checked for that, and more. I’ve looked in to a stimulator but the success rate isn’t worth the complication rate, in my case. I have more good days than bad now. I’ve seen a chiropractor since childhood – my uncle is a chiropractor and so is his son, my cousin. So, just about everyone in my family, and most friends, have been adjusted up and down. I’ve even had my ankle adjusted after a period of multiple sprains in a few years, after he started adjusting my ankle ‘suddenly’ the sprains stopped – go figure 🙂 Obviously, it wasn’t healing properly before it was adjusted. Even children can benefit – my cousin was 3 when she took a terrible tumble. She was perfectly fine but my aunt noticed she wasn’t quite right after a few days but didn’t know what it was. As a matter of coincidence – or divine intervention – my Aunt had an appointment to be adjusted and took my cousin with her (since it’s family kids were always allowed – he even had a play room for us). Well, she was just basically complaining to my uncle that my cousin always wanted to be carried lately and refused to walk – she assumed this part was just her being a toddler rebel. My uncle was aware of the recent tumble and checked her out – and adjusted her. Apparently my cousin was a normal toddler by the end of the day. Necks are something I get nervous about, but a chiropractor has to be pretty bad to hurt you – almost deliberate. I’ve been to some of his friends over the years but still wouldn’t let anyone but my uncle touch my neck…still not even sure if I’d let my cousin 🙂 Necks are still hard to hurt you but NEVER allow anyone other than a chiro adjust your neck, never a PT, coach etc….they can actually hurt, but nearly all chiro’s are safe I am just extra picky since I have my uncle. Also, lay there for about a full minute after the adjustment to see if you get any ‘new’ pain. I often will have my back fixed, which causes a rib to move. If I lay there about a min or two the rib starts to hurt and he takes care of it. Though that doen’t happen as often anymore. Also, take an ice pack with you in a cooler and drive home with an ice pack on the painful area. It’ll help keep the muscle from pulling the bones. The big key again here is exercise. If you keep those muscles strong it’ll be easier for the bones to stay in place, and don’t adjust too much. Some people adjust their back every day – that is too much. If can move the bones that often then that is because the muscles are not strong enough. If your low back hurts a plank for 30 seconds a day – done properly – can often help. Or Superman leg lifts – lay on the floor and ‘fly’ like superman lifting your legs and arms off the floor. These help hold those pelvic bones in place. Orthotics can help too with leg, knee and back pain. Headaches are often resolved by chiro visits. Here is another place yoga can help with strength and flexibility – which can make a big difference in pain overall an headaches. If your knee hurts, sometimes it is because your back is out or butt muscles are weak. If your feet hurt, often it is because your leg muscles are tight – an the leg bone is connected to the back bone 🙂 . Chiropractic care is a very good option. For those people who always worry a chiropractor will ‘screw’ you….some do, but after 6 visits you should be 90% improved. If you are not 100% by 10 visits then you probably have more than one issues causing your problem such as muscle weakness, etc. After you are 100% better you should only need to go 1-2 times a month, at most once a week. My uncle recommends going until the pain is gone, then a little longer – after that he says, you can come back once a month or figure out how long you can go between apt’s before it hurts. If the pain comes back 3 weeks after your last apt, come back every 2 weeks for a while, then try again. He feels like if he is seeing people every week it is because they are likely not taking preventative measures such as exercise and good posture etc. Though chiro care is another very good thing for people on this site to try. Acupuncture is another. I went for my knee pain after an injury and it helped a LOT. I don’t go any more and didn’t for healing but I did go during my healing process and I am sure it probably helped. My orthopedic doctor suggested the acupuncture and I loved it. If someone is struggling on this site, acupuncture can be costly, – expect $100-$200 per visit and in my limited knowledge, I’d expect to go for 6 visits – so you could be looking at $1200 but it may be worth it. I guess I never though about it before, I wonder if the acupuncture did help me. It was for a knee injury that happened before my illness so my knee pain wasn’t related to Levaquin at all so I never really put much thought in to it – now I am wondering if the acupuncture helped my overall healing. Maybe God ‘gave’ me the knee injury so I’d go to acupuncture and heal 🙂 Not sure but I know I likely wouldn’t have gone to acupuncture otherwise. It always seemed a little weird but now that I’ve done it, I’d recommend it.

        • Tav June 16, 2018 at 3:31 pm

          I believe I was on Levaquin for about +/- 2weeks.

  26. greendingy June 6, 2018 at 7:44 pm Reply

    Typenu, most people feel angry because they were given this antibiotic without warning of the severe consequences that could and did happen to us. In my case , twice. I wish I had not trusted doctors, in general, and always took what they gave me. I learned that they are also hounded by Johnson and Johnson, or Bayer, if they speak up too much. Given over 20 million scripts go out every year and 10,00 of those end up ill or disabled; they think it is “rare”. I agree with you that it is not fair or professional practice, if it were a fair world. You are not to blame, but I do see the point of how anger could create more stress. I think it helps when healing to avoid stress as much as possible, but that doesn’t mean you can’t have feelings. Its very hard, especially when most of us were not prescribed this antibiotic for lifesaving conditions, as Tavs, in fact many of us such as myself were given high doses for very slight infections. I will definitely question more what drugs are given to me in the future. The FDA needs to hear reports of this, and any other medications in order for them to change.

    • Typenu June 8, 2018 at 10:24 am Reply

      Compared to many others it seems I have a rather mild reaction, was floxed 3 month ago and already almost back in daily routine. Lost 8 kg and still do supplements, interval fasting and low card to avoid relapses. Biggest problem is swollen left foot and stiff knees, but no pain at all. Getting better in waves since day 7 after last tablet. I went all in on magnesium from day 2 and over 2 weeks i added all supplements you can imagine. I am sure without these measure it would have crippled me much worse.

      The more clear my head becomes the more angry I get and feels good to feel lively and it must have consequences. I do lot’s of social network and press work to reach as many people as possible. Even I don’t see a cent it gives me ease to piss Bayers & Co’s leg.

      I am from Europe btw.

  27. Kim August 7, 2018 at 5:53 pm Reply

    Hi ! I’m 23 years old, healthy Female I only took 1 pill of 500mg levaquin because after I took it I read up on it and saw all the damages it has caused other people which I pray to god everyone that has been affected by this drug can heal or something can be done for them to get better :/, I took only 1 pill and then decided I didn’t want to chance it but I’ve had a uti for over 2 months ! So after I took it Monday 7pm July30th 18 I felt normal the next day Tuesday I felt normal as well . Wednesday 10am my doctor gave me a shot of Rocephin. Wednesday night about 8pm I started to feel like twitch/tingling sensation on my leg then my arm then my other leg that comes and goes just . I had the twitches/tingling here and there from Wednesday night until Sunday on Saturday night August 4th my legs started to hurt really bad . I thought it was because I walked more then usual. It is now Tuesday August 7th 2018 , and my legs still hurt and I have a little like tingling sensations that come and go . Any suggestions on what I should do ? And is this FQ toxicity? Now I’m just really scared and worried now :/, well may god bless you all ! Any suggestions would be helpful thank you .

  28. Lisa August 7, 2018 at 7:57 pm Reply

    Hi Kim,

    I’m so sorry for all that you’re going through! Unfortunately, it sounds like you are likely going through fluoroquinolone toxicity. The tingling may be peripheral neuropathy, and it is common among “floxies,” as are the other symptoms you mentioned.

    Here are some tips for you – https://floxiehope.com/2015/10/12/im-floxed-now-what/, and here is a post with some supplements that may help to mitigate the damage – https://floxiehope.com/2016/02/25/mitigating-fluoroquinolone-damage/. I hope they help!

    Regards,
    Lisa

  29. Anna November 4, 2018 at 3:52 pm Reply

    Can anyone here suggest Iodine dosage / kelp dosage. I’ve read that over doing it can create thyroid issues and or re-flox some.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

%d bloggers like this: