Almost every time I mention how Cipro messed me up, I get the response, “Oh yeah, I’ve taken that – it doesn’t affect me.” To which I respond, “I took it several times before I reacted to it too. My body went completely hay-wire the second time I took Cipro. Don’t take it again.”
Adverse reactions to fluoroquinolones aren’t allergic reactions, they’re something else. The pathology of adverse reactions to fluoroquinolones is unknown – to anyone (or, if someone knows, they’re not publishing research papers about it). My guesses to the pathology can be found at https://floxiehope.com/2013/06/20/what-is-fluoroquinolone-toxicity/.
Unlike allergic reactions, adverse reactions to fluoroquinolones often occur long after the fluoroquinolone use has stopped. Antihistamines do nothing to stop an adverse reaction to a fluoroquinolone (though they may be able to help with some of the inflammation symptoms and they don’t seem to hurt most Floxies).
Though some people react to their first dose of a fluoroquinolone, many don’t, which leads them to falsely believe that these drugs are safe and that they won’t react to them in the future. Unfortunately, an adverse reaction to a fluoroquinolone can occur even if (maybe especially if – because there is (anecdotal) evidence that fluoroquinolones accumulate in the body and that there is a “tipping point” at which the body overloads) they have been taken with no adverse reaction in the past.
Looking back, I had some of these warning signs after I took Cipro the first time, in 2010. My eyelid twitched and I developed strange, but passing, abdominal cramping. I experienced a “weak bladder” that I attributed to genetics and age. I had itchy legs at times and just thought it was dry skin. I didn’t connect any of these things to the prescription antibiotics that I took to treat a urinary tract infection.
If I had connected those symptoms to the fluoroquinolones, I may have been able to avoid taking Cipro again, and I may have avoided the pain and suffering that I went through starting in December, 2011. (https://floxiehope.com/lisas-story/). I hope that this list of minor symptoms serves as a warning to you. Please don’t take any fluoroquinolone antibiotics no matter what, but especially if you are experiencing any of the following, heed your body’s warnings and stay away from these drugs!
What FQ can do (HINTS AND CLUES THAT MIGHT SAVE YOUR LIFE)
Perhaps you have taken quinolones in the past and you think that they worked well and that you did not react negatively to them. Check the following subtle symptoms of the beginning stages of a quinolone intoxication from an earlier treatment and the normal interpretations that people make of them.
* You had a strange bout of tendinitis, for instance in the outer tip of the hip, normally diagnosed as trochanteric bursitis caused by tight belts or resting on you side at night. The same applies to other areas of the body, like the elbow (epicondylitis) diagnosed as an overuse of your tennis racquet or gardening practices, but you remember that you had never had it before.
* It takes you longer to recover after exercise. It is not alarming and you have not paid much attention to it.
* You sleep worse than before; it seems normal as you have a lot of pressure at work.
* From time to time you have some small throbbing pains in different parts of the body. They last only for a few seconds, so there is nothing to worry about it.
* It is strange- but you have occasional twitching in an eyelid, or any other part of the body. It is not painful.
* Some nights you feel some mild itching migrating along your body. One brief itch here, and another there. It is more intense in the scrotum or groin. Instead of identifying it as a peripheral neuropathy, you conclude that your clothes, your perspiration or the new brand of soap that is more irritating must be causing it.
* You feel some stiffness, and your range of movement is not as full as before, especially in one or both legs, but it is normal because you are getting older.
* You do not tolerate coffee as well as before. Now you have to reduce the amount of coffee that you used to drink.
* Your memory is not as good as it used to be. The cause may be too many things to think about and too much stress. And you are no longer a young person.
* There is an urge to urinate when the bladder is partially full. When you feel the need to urinate you have to rush for the toilet. Most urologists think that it is due to a dysfunction associated with a benign enlarged prostate but in reality it is a neurological deficit caused by the prescriptions of quinolones that they gave you.
* You cannot flex fully, or strongly, your big toe (one or both), or sustain the flexion for more than a few seconds. This is an indication that your large nerves (anterior tibialis) have started to fail due to the toxicity. This sign is a strong warning that your body will not tolerate more quinolones.
* Sometimes, you have nightmares while falling asleep that scare you. How strange you think. They are toxic panic attacks that reflect toxic damage to your brain.
If you have experienced some of these symptoms since you took your first quinolone, perhaps you have reached your first threshold of tolerance, that -once surpassed- can result in the destruction of your life soon thereafter if you take more quinolones.
I have FINALLY found a doctor who knows all about fluoroquinolone poisoning, he had it himself: Look on Youtube for Dr. Gahlili, or ROXBURY INSTITUTE. He is in Los Angeles. Knows what to do to get better, has all the IVs necessary. He changed his practice after taking Cipro and being in a wheelchair for half a year and thinking he was going to die.
I won’t go into my own story…..as it mimics some of the others. I just want to give helpful info to those who want a doctor who actually treats this specifically. Whats the point of making comments on how you healed without sharing the who and hows. Hope this helps others.Even if you don’t live in Los Angeles, call them. They might have referrals.
Also, I believe that fibromyalgia started popping up in the nineties, around the same time these drugs were first introduced. It’s not a coincidence.
I truly believe that fibromyalgia was created as a reaction to this toxicity and why so many people always thought it was “all in your head”.
Because we never put the antibiotic with the symptoms: it never occurred to us, nor were we warned of the side effects, coupled with the fact that reactions don’t always happen right away but often weeks and months after taking the antibiotic.
I once took Cipro, six years ago, and also had a bad ankle soon after…did not know why. It didn’t rupture until seven months later. This time, both of my legs and feet are affected and I went online and saw Tendon Rupture and realized that my rupture was caused by the Cipro.
It’s a very frightening thing to go online and learn on your own why you are in so much unexpected pain, going crazy, and there is no answer…only to learn why via the internet, and then, even though the info is all there, most doctors haven’t a clue how to treat it.
Why doesn’t someone compile a list of things that help to eliminate the symptoms of this insidious toxicity? Do it with the understanding and warning that “IT IS NOT MEDICAL ADVICE”. All through the postings I see snippets of things that “MAY” help. Please, someone put them all together in one l place so the interested can try them.
CONCUR!
Took Cipro from 1989 to March of 1992, 1500 msg daily. I
Had the top of my kidney removed, suffered torn rotator cuffs both arms, weakness in legs, extreme fatigue and shooting pains through my body………anyone else with similar problems? I have been diagnosed at Cipro Toxcity…..
I so hear you on all of this. FQ poisoning sucks!
Given up in getting ‘fixed’ and just rolling with it for now. Life goes on too quickly, sadly. I so miss the old me. 🙁
I’ve been dealing with this mystery illness, seemed like it was MS. I’ve taken cipro a couple of times and I’m starting to think that’s the issue as it matches all of my symptoms. :/
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