*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
I wanted to give an update here (10 1/2 weeks post Rx) to give other people hope – as I check in often to see if there have been any new stories posted.
To let you know where I was just weeks after my prescription: I had what I can only describe as peripheral neuropathy, pains in my arms and legs that would crop up and disappear many times throughout the days. I had pain in the tendons of both forearms, and in my pointer finger after “exerting” it. I had pain in the top of my foot when I walked and in my calf, as well as achilles. Even while sitting, I could feel the tendons in my thighs hurting. They would ache at times when I walked. Lots of anxiety, and I cried easily every single day and very foggy minded. The insomnia- I could only sleep about 4 hours a night (with night sweats and nightmares). There were two occasions where when doing simple movement of my legs, I felt something ‘pulling/tearing’ inside, a sensation I had never felt in my life. It was not painful, but the next day I would feel the pain or on and off for the next few weeks. One was the side of my knee, the other was the back of my thigh. One of my saggital bands (top of the knuckle where the finger meets the hand) suddenly started to slide off my knuckle and to the side. It was not painful. My appetite was gone, and I lost 13lbs in one months because I didn’t want to eat, and I didn’t have 13lbs to lose, so this was disconcerting.
I am a college student in my final year and had to dropped two courses due to the pain in my forearms and I did not want to make them worse. I’m a fine arts major, a lot of hands on work. Luckily, I’m still full-time and I will still graduate on time, though next semester will just be much more work than I anticipated.
The good news: I have not had any pulling or tearing sensations in any part of my body for over 8 weeks. It seems that my body, at least, was most frail in the following couple weeks after taking my Rx. The saggital band is still the same, but has not worsened nor do I feel pain here. The neuropathy has mostly subsided, with only occasional fleeting pain. This is usually when I am very, very tired. The insomnia has also subsided, with only one night in the past 4 weeks where I awoke and could not fall back asleep (and no more night sweats!). I no longer feel very anxious nor depressed, but I do have days where I have that fogginess. I hear this eventually passes, so looking forward to that! The pain in my calf and foot have subsided with hints of an ache on occasion. Some days the achilles acts up, but it is very manageable. No more tendon pain in my legs from just sitting. My forearms ache at times, but not near to the point they did initially. It is passing and very tolerable. I also have my appetite back! And the weight! I know that my body is healing, just comparing myself to where I was only 8 weeks ago.
When I was most desperate for sleep, I never took anything to help me fall back asleep. No anti-histamines, melatonin, prescriptions, etc. Nothing. I wanted my brain to eventually work it out on its own (though every site you may find will tell you insomnia doesn’t go away on its own, I refused to believe this). Instead, I walked some everyday (always outdoors) and made sure I was in bed at the same time every night. Eventually, it regulated.
I stretch every single day, every part of my body. It is worth the extra time it takes me every morning. It has been so helpful, even if I have pain in an area, I stretch it, though gently.
I don’t take anything for pain, not even tylenol. I have also cut out caffeine, but have coffee as a treat sometimes. I don’t drink much alcohol now. One night, I had a bit too much fun with friends, and let’s just say I was paying for it the next week instead of just the next day! Mostly mental fogginess, but I did notice neuropathic pain reappeared as well as some tendon pain.
Starting the semester being recently floxed was very hard. There were times where I wanted to give up, or not get out of bed or get dressed, or just not continue with life. That was not me. What added to this hopelessness was reading stories about worst-case-scenarios in which the author declared to me that my life was officially over.
No matter what, I always got out of bed, got dressed, put on my makeup, and went where I needed to be, again, no matter what. Continue with life. Do something that counts and makes you feel good. Your life is not over. I thought mine was just weeks ago, and now I am very excited for my future again. I’m walking three miles everyday, easily, and have three art exhibitions coming up, have completed many paintings, started an internship, am in school full-time and work part-time. Every day is not perfect, but before being floxed, every day wasn’t either. Life is good, and we will be okay.
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
Hey all,
It’s been over a year now for me and I’m mostly pretty good. I mean, I’m way better than I imagined I’d be when I first finished my script. My neuropathy acts up from time to time, very minor and manageable. I recently learned that this ‘itching’ I’ve had on the bottom of my left foot for over a year is actually neuro – just glad everything else usually feels like rain drops otherwise I’d go insane.
Though pain is virtually non-existent at this point comparatively, I still have the popping and cracking all over. I can feel my vertebrae sliding against one another while in bed, both in my neck and mid-back. I have slight ridges in only my thumbnails (they were never there before cipro)
I’m a bit bummed because I’m feeling some new weakness in my left leg, and still have occasional pain in that achilles as well -after doing a goofy little dance with my husband the other night.
All-in-all, I’m happy to still function much like I did before, but what has changed is that I have to be aware of how I treat my body. Before it was always about pushing it to its limits and beyond, and now is knowing when to stop before I come close to hitting it. I am glad I have prevented a few other friends and relatives from taking this crap medication, but some days I am still sad that I wasn’t saved from it. It’s hard to see my brother compete in the Tough Mudder competitions, knowing that I could have been there right beside him had my body not been so physically altered by 6 small pills.
A very inspiring story I just shared on Facebook! Thank you for sharing! Angela
Hey everyone! Checking in for a 1.5 year update – I’m proud to say that I feel 100% again, yeah things pop and slide here and there but there’s no pain. I have no more nerve pain, no buzzing sensations, no weakness, no nothing. I feel great, so great that I no longer think about being a floxie, and it’s nice to start to forget how I had felt horrible for so long. There is hope, you guys, there is. It takes time, but it will get better.
btw, I stopped taking any supplements about 6 months into my floxing – I don’t know if any really helped, but they cost a lot of money and I felt like a sick person taking so many supplements everyday. By not taking them, it allowed me to start feeling ‘normal’ again. That was just my experience, but at the beginning it made me feel better to take them! So no matter what you do, just know that your body wants to heal, and it’s doing all it can to do just that. Take care.
good stuff
Just finished a round of Cipro and I can’t stop crying I’ve been stressing every since learning of the side effects of Cipro. Since stopping I have burning sensations in my thighs down to my toes, my bones won’t stop popping, my muscles feel tight and I’m very foggy minded. So far it’s only been one day off Cipro, and I took 6 tablets 500 mg 2x a day. In my courses of research I found a lot of people used activated charcoal it supposedly has many uses and pulls toxin out of the body. Has anyone used it before??? Thanks in advance I’m desperate
Crystal….
Did you have neurological stuff too…Central nervous system. Anxiety, panic, hard to think, anger? Are you 100% recovered. I’m struggling dealing with this. Took cipro beginning of Jan and my life has been turned upside down. Any tips would greatly appreciated!! I appreciated your post so much. It was positive and hopeful. Most of the posts filled me with fear. Thanks for being upbeat and helping…
Crystal…
Thanks for the reply means a lot. Do you an email I could send you some questions. I am so happy you well and recovered!!!! Please let me know if I could email you!! Thanks so much!!!
Hi Crystal,
Did you have back cracking (maybe SI joints) and neck clicking or cracking. If yes, How long did it take for them to subside?
To Lisa Bloomquist: I have been floxed from using simultaneously two fluoroquinolones Avelox + Noroxin for 10 days given from a lazy doctor. I wish this doctor be dead because he is going to flox many innocent people. I have been two months out. My symptoms are joint cracking without pain except back pain when i sit too long , brain fog, fatigue.
What causes the neck clicking? Tendons or cartilages?
I was just wondering where my post has gone that I posted last night. There were a few others that posted last night too. Is the thread closed or something…
Does anyone know if muscle relaxers help? I was on Cipro for a UTI about two months ago. Stopped taking it and then was on several other antibiotics and finally got over my infection but am just now experiencing all the awful side effects you all describe. To top it off, I think my muscles became weakened, because I was lifting something heavy at work and wham! Got severe back pain and now my shoulder and neck hurt. I started PT this past week, but when I use those elastic straps, the muscles in my hand and elbow start to hurt. Lisa was right about the Advil, can’t take it, it makes all my symptoms so much worse the next day even with one pill! I just wonder if a muscle relaxer would be OK. And did anyone get the dry mouth problem? I think its because I was on five different antibiotics and could never get rid of that UTI! Finally worked with two weeks of Ceftin, but that is another truly horrible drug and would never recommend it. Kris
Not sure if people still come here but I took cipro 500 mg twice a day for 3 days for a UTI. Third day I could not keep anything down this went on for two more days. I became overwhelming anxious I couldn’t be in public. My arms and legs were tingling and burning. Extreme brain fog felt like I was in a dream. My face felt as though it was sunburnt. Could not sleep had nightmares and strange scary dark thoughts (so not like me). dr ran blood tests everything was perfect he said maybe I am suffering from aniexty. He wrote me a prescription for Xanax. Over the next week symptoms got worse, crying all the time. Shortness of breath, I’ve had to call out of work. Been to the ER twice and now I’ve been perscriped anti depressant Zoloft. Feeling very hopeless and confused.
Danielle-
First I want to say I am so sorry this happened to you. But most importantly…DON’T let yourself think you are doomed! And don’t let yourself think you have a long road in front of you. No one knows that. Some people heal in a month. Some a few. And yea, some it takes awhile. But DON’T hold on to the worst case scenarios. That’s not your story. And if you hold on to that fear of it being a horrible long journey that will only make things more difficult for you. TRUST me!! I know this from experience. Your best bet on getting well is supplements(don’t over do it) sleep, eat right, exercise, get off the internet(reading scary stories will do you NO good) pray and most importantly be POSTIVE!! You are bigger and stronger than Cipro. You need to BELIEVE you WILL heal!! Bodies are designed to heal..have faith!!! Tell yourself, “I will be ok, I can do this, I WILL HEAL!!” Rememeber to pray often, God is alway listening and willing to help…..
I remember that feeling that time was passing too slowly and thinking that people were saying it gets better but I was not feeling it. But they were right and it did get better. The beginning is rough. Just keep trying to eat as much as you can. I like to put some strawberry flavored whey protein powder into my kefir and stir it really good with a whisk until it’s like a shake. There is so much nutrition in that I often just have that for supper in the evenings. If you can find some kefir at the grocery store you could try that. I get the organic kind made with whole milk. Fat with a food high in calcium is actually beneficial and helps your body utilize the calcium. It’s something you could try. The kefir alone tastes kind of icky, but a little flavored protein powder and it’s actually tasty. Makes me feel good, even if I’m having not the best day.
Hi Crystal,
Do you have joint cracking or neck cracking anymore. Do you still feel your vertebrae sliding against one another? I have the same symptoms and I am interested to know if they go away.
Have your popping improved?
Thank you
Crystal,
I just want to thank you for publishing your story.It pulled me through the darkest time in my life for I experienced very similar things after taking Cipro in March this year.Thank you,thank you,thank you!
Much love and Blessings,Zuzanna 🙂
Hi Zuzanna, Ruth and other encouragers,
looking for some hope here. I’m in my 30s, one week out from my last cipro pill (and I’ve been reading stories on this site to stay positive). I’ve had foot pain primarily, but also some in other places as well neck, hands, thighs and knees. A few 1 second episodes of tinnitus (not the first time in my life) and what I can only describe as skin burning around some joints. I have some previous anxiety, so some of what I’m experiencing is from that coming back. I’ve started a supplement regimen right away of mg, acetyl carnitine, omega 3, coq10, probiotics (which I was actually taking during the cipro anyway), vit c and quality whey. I’m grateful that it’s managible right now, even if it changes. Any encouraging words out there?
Nita Jain,
I got an email of your comment, but I’m not seeing it here, so I hope you find this. I don’t remember what brand of L-theanine I used and I haven’t had any on hand for a long time. I did take 200 mg 3x day without food. Make sure it is L-theanine, not D. The L type was proven safe at high doses, the D was not. It might be ok, we just don’t know. Some people say the effect of theanine is subtle. I definitely could notice it. I hope it works for you.
Ruth
Hello everyone…
I believe I’ve been floxed from just 4 pills of Cipro. Since then I’ve been having tinnitus in my both ears for 2.5 months now. As far as I understand this happens due to GABA receptors downgrade. Anyone knows if this is a permanent damage or GABA receptors can be recovered somehow?
Many thanks.
I took 14 levofloxacin for a resistant bacterial infection in a surgical wound. I had no choice as the wound was not healing on other antibiotic and was a deep ulcer in my foot. I have tendon issues in shoulders and possibly neck, knees, and hands as well. I read about a compound that is in the roots of mushrooms as well as some other sources but I cannot find the info again. I watched a youtube interview with 3 doctors who are at highly respected research hospitals and I even googled their names to verify they are on staff at the respective institutions. They talked about how this compound can clear the flouroquinolone out of the cells in the body. I can’t find the info now. Does anyone else know what compound this is so I can get some?
Good day.. I m currently in the 5th day of my withdrawal from tramadol. I went cold turkey and the insomnia got unbearable to the extent that two days ago I went to the pharmacist and he prescribed Lexotan, G-Glutamine and Amitriptyline as sleep aids. They helped alright but I m thinking of quitting them and taking Care and Mg supplements instead in order to avoid withdrawal from the Lexotan.. Please what are your thoughts on this?