Welcome to Floxie Hope

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This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics - http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 - more news stories, research papers and other resources can be found on the “Links and Resources” page.

An excellent support group for those suffering from Fluoroquinolone Toxicity can be found on facebook.  Here’s the link to the group - https://www.facebook.com/groups/floxies/

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

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Thank you!  More info about supporting this site can be found HERE

Heal With Friends is a community of people sharing ideas, experiences and advice about many health issues – including fluoroquinolone toxicity.  Please join!  (Note – HWF is affiliated with www.hormonesmatter.com and that this is an affiliate link.)

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3,498 thoughts on “Welcome to Floxie Hope

  1. Melanie Kemp November 19, 2014 at 4:25 pm Reply

    Hi gang
    I hope everyone is doing well .
    So for the past 3 days ive been up and mobile. Staying up all day and evening.
    Its nit that I feel great but obviously better than I had been doing..I was pretty much bedbound.
    A few positives ive noticed.
    1.Up and mobile
    2. Can blow my nose (its been dry for months)
    3.I ate popcorn last night with no ill effects (huge)
    4.Eyes not as blurry or dry
    5. More BMs (not so constipated)
    6. Nowhere near as weak
    Now if the big stuff would go away :)
    But like my friend Tammy pointed out.
    The small stuff is the pre cursor to the big stuff.Its letting you know youre healing

    • SM November 19, 2014 at 6:28 pm Reply

      Good stuff, Mel! Small steps first.

      • Melanie Kemp November 19, 2014 at 6:30 pm Reply

        Yes SM
        baby steps. Least I know now what im up against and can takebetter care

  2. Jane November 20, 2014 at 1:24 am Reply

    I just had a good 2 months. I was floxed 20 months ago with Achilles tendon problems that didn’t seem to want to resolve. The last 6 to 8 weeks my Achilles have felt much better, enabling me to walk without pain.

    My left rotator cuff flared up as soon as my Achilles improved, but it wasn’t that big of a deal. I could still function and was so happy to be walking that I just sort of thumbed my nose at my shoulder and kept going.

    Now my shoulder is calming down and Achilles feeling slightly sore again, like they’re working shifts or something, one clocks out and the other clocks in to make sure that something is always a bit sore. Even then, it not as bad. I am healing.

    I am curious to know why the tendon issues seem to travel. As one tendon improves, another one flares up, and it keeps bouncing back and forth. All around, it is getting better, but it’s just so weird.

    • SM November 20, 2014 at 7:04 pm Reply

      Jane,
      I have noticed that since the beginning. I feel this symptom or that one but never both. My feet burn or ache, never both. It’s awfully strange.

    • Lisa Bloomquist November 23, 2014 at 5:51 pm Reply

      The traveling pain in various tendons is common. Honestly, I haven’t heard a very good explanation as to why the pain travels. Maybe it means that it’s nerve flares, and not tendon tears? Maybe it’s inflammation from use? I’m not sure, to tell you the truth. My left knee would hurt one day, then the next day my right ankle would hurt, and so on. I had to tell myself that the pain in the left knee went away, so the pain in the right ankle would too. Telling myself that helped me to get through it. It happened to be true too.

      Ruth has said in comments that pain can be a sign of the body healing. It’s a good way of thinking about pain. Re-frame it – this is what healing feels like. It may help.

      Tart cherry juice has helped a lot of people with pain. It’s tasty too.

      Regards,
      Lisa

  3. rich November 21, 2014 at 7:52 am Reply

    keep going mel.. so strange that vision goes blurry

  4. Melanie Kemp November 23, 2014 at 1:29 pm Reply

    So things got bad again. Honestly I dont see any hope in sight.
    I feel like im dying a slow painful death.
    Things just go from bad to worse. Unbelievable! !

    • Jimmy November 23, 2014 at 2:25 pm Reply

      Hi Melanie, sorry to hear you are not doing well again. Do you have my email? I think you sent me a message some time ago but can’t find it. Maybe I’m wrong. Pls write me again so we can communicate there. Jim

    • Lisa Bloomquist November 23, 2014 at 5:44 pm Reply

      I’m so, so sorry, Melanie! Gentle hugs to you! It would be nice if the good days would continue, wouldn’t it?

      • Melanie Kemp November 23, 2014 at 6:01 pm Reply

        Ive come to the realization that I wont heal again. I had one shot at it. I guess I zhould be grateful I had a few good years. I cant do this anymore.

        • t bryan November 23, 2014 at 7:40 pm

          U are getting good days Mels!!! That is an improvement from before. Just hold on to the excitement of 2 days ago. (Hugs)

        • Melanie Kemp November 23, 2014 at 8:51 pm

          How are you doing traci

        • SM November 23, 2014 at 11:14 pm

          I hate to hear you say that, Melanie. I understand it though. It is so hard when one is in pain and experiencing this toxicity to think that it is possible to escape. I don’t know how many do escape this hell. There are no official or even unofficial stats on recovery rates. For me, and I’m not suggesting that anyone else should do this, I owe it to my wife to fight this. I don’t think I’ll do so forever and I think it would be unfair for anyone to expect another person to live like we are right now for 40 or more years. But I owe it to her to fight like hell for a few years. People recover. Most? I’m not sure. But some do. I need to see if I’m one of the some.

        • Catherine November 24, 2014 at 1:51 am

          I understand how you feel Melanie. I had about 10 days recently when I felt a bit better. For the first time in 20 months I could get washed and dressed by myself. It took all day, but it was still progress. And my sense of humour came back, which was wonderful. And then I crashed back down, and now I’m buried alive again, feeling like death, trapped in bed and totally helpless. I wish I hadn’t had those better days. They gave me false hope, and now it’s even harder to cope now.

  5. Heather Rayne November 23, 2014 at 10:40 pm Reply

    Wondering if anyone has had joint issues since toxicity? I have never had so many issues (none really) as I do know with joints. Also have disc issues in back. So I have to wonder because you hear so much about tendons – it would make sense I all connective tissue were affected.

    On another note, I have found a small dose of muscle relaxer to really really help a lot of my pain!!

    • SM November 23, 2014 at 11:07 pm Reply

      Heather,
      Joint pain is absolutely normal. I had very sore joints, almost like arthritis. Most of that is much improved now. I have nerve issues still but most of the joint and tendon issues are very minor. I’d say knees seem to be hit pretty hard.

  6. Jolea Jensen November 24, 2014 at 4:27 am Reply

    Hello again, everyone,

    It was a long time ago that I posted about being floxed. I guess mine was rather minimal, as I don’t seem to have symptoms anymore. (Sharp pain behind left shoulder blade, pain in arches of feet/legs, pain in left ear, scary dreams). I took Cipro 500 / 2x day back in August, but stopped after the fourth dose.

    I am, however, still dealing with illness. I’ve been sick since mid-July, have been on antibiotics 6x, and an afunginal once and am now awaiting results of yet another urine culture/sensitivity and hoping the bacteria doesn’t travel up to my kidneys again. I think sometimes that if I’d been able to manage the Cipro back at the beginning, that i”d have gotten better and wouldn’t still be dealing with illness, however, the thought of floxing for life seems much worse.

    I run fevers daily, have seen 9 doctors as well as consulted with 3 dr friends at my church, have had millions of tests run (OK, NOT MILLIONS, but it seems like it), was positive for C Diff as a result of all the antibiotics, had pelvic abscess, OB Gyn issues, candidiasis, etc. etc. The frustration lies in the fact that drs. have not yet been able to pin-point the exact cause of my fevers. At least the energy is returning, and I”m able to teach again. I couldn’t do my normal teaching duties (I teach music at a college) for 8 weeks last sem due to extreme fatigue, shakiness, fever, etc.

    I sincerely sympathize with each one of you who are continuing to deal with illness as a result of floxing and other long-term illnesses. It’s frustrating when dr’s don’t know what to do or don’t believe you. I had one dr. essentially give up on me. I had to ask her for a referral to another Infectious Disease dr, because she was not offering any more advice. My plan is to go back to her and tell her what they find is wrong with me–in great faith that my new dr’s workup will give results. :) I’m NOT imagining my fevers–I typically don’t run fevers. :)

    Nehemiah 8:10, “The Joy of the LORD is my strength.”

    Jolea

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