Welcome to Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

An excellent support group for those suffering from Fluoroquinolone Toxicity can be found on facebook.  Here’s the link to the group – https://www.facebook.com/groups/floxies/

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

Please support Floxie Hope -

Thank you!  More info about supporting this site can be found HERE

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including Cindy and Ruth.  Affiliate link -

levaquin-tendonitis-cover-350x500

 

4,021 thoughts on “Welcome to Floxie Hope

  1. Daniela December 8, 2014 at 11:45 am Reply

    Any advice about helping children who have been exposed?

    • Lisa Bloomquist December 8, 2014 at 12:19 pm Reply

      Even the thought of a child going through this makes my heart ache. I think that the advice is the same for children as it is for adults. I also think that children should be given some talk therapy as they’re going through a mysterious illness. It was hard enough to deal with FQ toxicity as a full grown woman. I can only imagine how difficult it would be to deal with it as a child. A therapist can help a kiddo to gain coping skills.

      • Melanie kemp December 8, 2014 at 12:29 pm Reply

        It would be a horrendous crime if a child had to go through the floxing im going through.
        I just cant imagine.

        • Destruida los Restos December 8, 2014 at 1:05 pm

          Well, they do. There’ve been quite a few parenbs and garndparents who’ve written in forums. There are many child victims of other drugs and vaccines, too.

        • Daniela December 8, 2014 at 1:12 pm

          How to help a child resist junk food or do yoga or take magnesium. They give the kids poptarts for a meal at the school! You really have to confront a lot of opposition.

          It does make you wonder about the soaring rates of autism, for example. When we speak about depersonalisation, we adults can remember and sort ourselves out (even if with some difficulty!) But if you never knew, you wouldn’t have a chance.

      • rene December 9, 2014 at 11:23 am Reply

        Yes children absolutely respond to the same things…..a woman who manages a restaurant near me were talking and I came to learn that her son was very ill, and asking a few questions led to the discovery that he son at age 7 had been given Cipro repeatedly over the course of a year! I tried to conceal my horror becuase I did not want to add terror to her already worried and scared state. I told her to give her son epsom salt baths…if he responded favorably then continue to do so nightly…..Honestly, I just sobbed in my car knowing this young boy was hurting like that. I returned the next day to give a weeks worth of Lifewave patches (y-age glutathione) and share all that I could. The good news is that he did respond great to the Epsom salt bath, and asked “Mommy I need my patch” “get more from that lady”. He is better now……and was given Cipro for some kind of surgery that he had which I cannot remember what that was. I do know that repeated use for a minor is absolutely insane. For the better part of a year! This barbaric medical system is inhumane.

        • traci December 14, 2014 at 2:16 pm

          I wake up in adrenaline surges every night at 3am. Last night at 5 am also. That was after taking 3 benadryls. Today has been pure torment. I bought some inositol but I didn’t realize it took so much to touch anxiety. I am desperate to feel calm.

        • traci December 14, 2014 at 2:17 pm

          What do these patches help?

    • rene December 9, 2014 at 11:25 am Reply

      Yes children absolutely respond to the same things…..a woman who manages a restaurant near me were talking and I came to learn that her son was very ill, and asking a few questions led to the discovery that he son at age 7 had been given Cipro repeatedly over the course of a year! I tried to conceal my horror becuase I did not want to add terror to her already worried and scared state. I told her to give her son epsom salt baths…if he responded favorably then continue to do so nightly…..Honestly, I just sobbed in my car knowing this young boy was hurting like that. I returned the next day to give a weeks worth of Lifewave patches (y-age glutathione) and share all that I could. The good news is that he did respond great to the Epsom salt bath, and asked “Mommy I need my patch” “get more from that lady”. He is better now……and was given Cipro for some kind of surgery that he had which I cannot remember what that was. I do know that repeated use for a minor is absolutely insane. For the better part of a year! This barbaric medical system is inhumane.

      • D December 9, 2014 at 12:45 pm Reply

        The baby reacted badly to each vaccination, screaming throughout the night each time, and the doctor prescribed her cipro drops after each one. She can’t taste, and has many delays in speech, reading, learning, and physical development, even though she started off being very advanced in certain ways.

  2. Daniela December 8, 2014 at 1:20 pm Reply

    On a positive note, I think I have become BETTER intellectually than I was before floxing. I’ve learned a new language, I’ve been published. It’s funny because using the computer makes me very dizzy, and my vision is a mess, but I’ve also suddenly become a very good writer.

    So to any of you specifically asking about brain fog, loss for words, etc., it does get better! In my case, better than before.

    Something has become more focused. Maybe it’s just because I lost some brain cells, lol, and the extraneous chatter has died down. Or maybe it’s just that “what doesn’t kill you makes you stronger.” I’ll try to apply whatever is happening to me brain-wise to my body! I really hope my body catches up.

    • Destruida los Restos December 9, 2014 at 1:39 am Reply

      I wrote you a long reply, congratulating you nd aboyut homeopathy, didn’t copy it, clciked on Post, inbtyernet had cut out, post is lost.

      • Daniela December 9, 2014 at 9:29 am Reply

        Oh, that’s too bad, but thank you so much! I really appreciate your posts and would like to learn more about homeopathy from you. You’re always so open and honest and very generous with your information. I think I remember you had a website or page, what is it again?

    • Lisa Bloomquist December 9, 2014 at 2:07 pm Reply

      Daniela, have you read this post and the comments below it? I love the comments – they’re beautiful and haunting – http://floxiehope.com/2014/05/09/losing-my-reading-comprehension/ I too became a better writer after getting floxed. I found something to scream about and I found my voice.

      • Daniela December 9, 2014 at 2:14 pm Reply

        Wow, that’s interesting. It’s like suddenly being able to sing. You really know you have found the truth or some kind of life force when you can express yourself clearly.

  3. Dave December 8, 2014 at 4:19 pm Reply

    I have been worse today after taking this weight gainer powder. I meant to buy whey protein but the salesperson advised me to get this other stuff…. Any recommendations on specific whey protein and has it been helpful to people?

    • Daniela December 8, 2014 at 7:21 pm Reply

      If you make yogurt, the liquid that forms at the top is whey. Cipro messed up my digestion, so maybe you’ve become sensitive to dairy? Otherwise, who knows what they put. A lot of powders, even kitchen spices, are filled out with flour, sawdust. My advice would be to make your own nourihment from real ingredients.

      Maybe the way they processed the whey concentrated the antibiotics from the milk?

      It’s hard to say one day after, but I too notice effects very soon nowadays so it is something to note.

      I’m paying the price after I told everyone to stay off grains and dairy, and then went ahead and baked with rice flour and butter and ate it all up. It took a couple of days and I thought I had gotten away with it, but I got really really dizzy today.

      It’s good to keep a diary of these symptoms. You can see patterns over time and it will give you some perspective on what’s good for you.

    • Michael Teeter December 9, 2014 at 10:58 am Reply

      Hey Dave,
      A lot of them have processed soy in them and some have Gluten. I would rather make my own.
      Here check this site out.

      http://forum.bodybuilding.com/showthread.php?t=117798751

    • Destruida los Restos December 9, 2014 at 2:05 pm Reply

      Why d’you want whey? Save your money – you may need it one day – or give it to a charity. Don’t waste it on stuff that won’t make any difference.

  4. Michael Teeter December 9, 2014 at 10:55 am Reply

    Well Gang,
    Just had my tooth pulled. Setting at home with ice on my jaw. I took 1000 mg of ester C before and after. I am going to run the Rife machine on the after extraction setting. I hope and pray this doesn’t cause a relapse.

    Mike Out

    • melanie December 9, 2014 at 6:04 pm Reply

      Glad youre doing ok Michael. Good to hear

  5. Jen December 9, 2014 at 1:50 pm Reply

    Carrie, thank you for your feedback. I’m sorry that you’re unable to find relief for your burning feet. :( Have you found anything to be of help in relieving your burning pain? Does it feel worse towards later in the day and at night?

  6. Dave December 9, 2014 at 2:17 pm Reply

    Anyone else having extreme pain sitting? I have been sitting on a pillow for over 2 months…. My neurologist says I have a slightly herniated disk . Can explain tingly burning in legs feet Just doesn’t explain some random electricle shots mild tingling in hands and arms and skin sensativity feels like alergy behind triceps.

    • Carrie December 9, 2014 at 2:33 pm Reply

      Dave, yes, that was my first symptom actually. I had terrible on fire burning pain in my upper hamstring – where the tendons connect to your “sitz” bones.(butt cheek fold area) There were days were I wasn’t sure how I was going to sit down at work – I am a litigation assistant and do a lot of work on a computer. At the time, I wasn’t sure what it was. Then pain was so bad. I saw a neurologist who had me get an MRI, but it didn’t show much and he wasn’t sure why I was feeling so much pain. He prescribed Gabapentin, Cymbalta and even Lidocaine patches – nothing helped. The pain then spread to both sides and have progressed all the way down to my feet on both legs – both the back side and the front side of my legs. At that particular time, I didn’t know about floxing. My neuro referred me to a pain doctor who performed some epidural steroid injections – they didn’t help at all. What a waste of money they were and that particular doctor- but I was desperate for some relief. But again, at that time, I didn’t know that I had been floxed. Have you had an MRI done to confirm that it is a slightly herniated disk? I have had random tingly in my arms, but that comes and goes… the pain in the legs is constant.

      • Dave December 9, 2014 at 2:59 pm Reply

        Carrie, yes I had an mri last week and he said it shows a mild herniation at L5-S1. He said it may be pinching on the S1 nerves that are passing by. But it doesn’t explain syttoms in upper extremities that started week and a half ago. And these wierd what seems like alergy feelings in back of arms and tounge

      • Dave December 9, 2014 at 3:17 pm Reply

        Carie how far along are you? You’re able to sit now? Mine’s gotten to where I can’t

        • Carrie December 10, 2014 at 12:48 pm

          Dave.. I am a year out from my last floxing. My toosh tendon pain started about 5 yrs ago. YET, during those past 5 yrs I have been given Cipro 12x for either UTI’s or sinus infections. If I compare myself to last year at this time, my toosh pain has slightly improved. I do have days though when I can barely sit down, as the pain and burning is so bad. Prior to last year, I was actually able to bend over and touch my toes.. I could stretch. Now I cant stretch at all. I am so stiff and my muscles are always fatigued. Yet that last time I took Cipro I met my threshold and BAM my body felt like it exploded. I learned about FQ this past March when my mom read an article about FQ and called me immediately.. she told me that she found what was wrong with me all these years. I couldn’t believe it and was completely shocked. It makes me angry to think that during the five years I had weird pains, fatigue, dry eyes, insomnia, heart palps, YET I never put two and two together. I have moments of anxiety over all of this – and hope that I see more improvement in the months to come.. as it has been hell for me this past year.

  7. Daniela December 9, 2014 at 2:27 pm Reply

    Just found this on boosting glutathione through food

    http://www.rheumatoid-arthritis-decisions.com/Foods-that-boost-glutathione.html

    I do eat real turmeric root, even though I don’t have whey, and just had a big asparagus soup, so I’m good. Unfortunately the vertigo has gone completely whacko. Aaargh! It’s like carrying a full pot of water over burning coals, slosh ouch slosh ouch :(

    • Destruida los Restos December 9, 2014 at 3:42 pm Reply

      You are funny! Feverfew (fresh or dried leaves or herbal extract/tincture) might help – or it might not, depending on lots of things. It’s great to treat migraine and can help with dizziness. Nux vom 30c should ecrtainky (oops – certainly) help. If you lived near to Ainsworths, or even in the U.K., you could get their homeopathic butter remedy – that’d sort it out, too, but nux vom should do it and is easily available. It’s one of teh remedies you should have in your medicine chest. But you cd use nux vom to help your tummy to get rid of the greasy, yellow butter (feel sick just thinking about it) and then, if you’re still dizzy, you cd try feverfew – 15-20 drops in some water, or chew five large leaves. I grow it and it’s very pretty and self-seeds. It’s called the yerba de Santa Maria here, or matricaria. Your little girl could perhaps have a window-box?
      There’s a homeopathic remedy called cocculus indicus that might suit you. It’s for dizziness related to motion sickness (I know yours is sort of the opposite, but I don’t think that amtters) and is often related to digestive problems. I’m only now learning about it, though – it may not suit you at all.
      Oh – my blog is the one on Lisa’s Links and Resources page, under blogs and it’s written as Destruida! (but really it has the ¡ before it, too.) It’s not a useful or interesting or organised blog, though, and isn’t at at all up-to-date, doesn’t tell about the helaer or give helpful suggestions or anything – it’s mainly just me howling! Its ha da lot of views, though, and has been seen in 64 countires and by some senators in Washington and some journalists somewhere, so not wasted.
      I’ll come back when I’ve done the things I’ve been neglecting and the new ones and then I’ll answer all the posts and people I haven’t answered.

      • Daniela December 9, 2014 at 8:17 pm Reply

        Thanks again! They sell a Mexican “manzanilla” (chamomile) here, that looks a little different than the regular dried flowers because it’s dried with the long stems. I think that might be your feverfew. I’m going to try a tisane now.
        They do have Boiron prepackaged pellets here. They look and taste like sugar pills and they are a little costly considering the small amount they give.

        This vertigo varies with the amount of driving I do, and I drove less than a 1/2 hour each way every day last week. Sort of impacts having a regular job, as you can see :(

        • Destruida los Restos December 10, 2014 at 12:38 am

          No! Never do that – I gav ethe botanical name in a orevious comment (or several) but if someone recommends a herb, always look upothe botanical name – in this case tanacetum parthenium – and make sure you get that.There are over plants in the astericeae family – formerly known as compositae – and you have to choose the one, not one that just might be it! (Aster – star; comnpositae – composed of man y flowers – look closelyt and you’ll see that a daity is really a group of flowers, a little family of brotehrs and sisters.) Feverfew is one of the bitter herbs and you people need to eat or drink plenty of bitterness, as it stimulates the appetite and digestive juices and of course, your stomach has what’s soemtimes called a second brain. The modern diet, especially in the US, is as bland as a devil in disguise, which is exactly what it is.
          However, each bitter herb also has its own magcial properties. Apéritifs are made from bitter aperitive herbs; digestifs from different, carminative (and usually less bitter) ones.

          Feverfew is tanacetum parthenium.

          They are sugar pills, that’s why. Boiron also make remnedies in finer granules, Ithink. I prefer soft tablets or powders – the remedy’s sprayed onto the pill and is all through the tablets – but it doesn’t matter, unless you’re violently lactose-intolerant, then you need granules or pills. No, I’ve looked at the rpice on Amazon and they’re not expensive, considering that there are 80 doses in a vial for $5-9 and you shouldn’t need more than a very few. Or if you needed one a day, it’d still be two months’ worth. Taken occasionally, could last you 5 years (then they’d stop working.) You can give hom rems to your child – my children always aske dfor nux vom if they had a tummy-ache.
          I prefer Ainsworths because I know they haven’t been stored in unsuitable condityions or for long; also, you can get a quick bit of advice and you can order com bination remedies. There’d be postage costs, but I know they have lots and lots of American customers, but I’m sure Boiron nux vom would be fine, especially as I bet they sell a lot. (Oh, and i don’t like the dispenser tubes – I cna never mke them work. Ainsworths use glass vials. I’m just prejudiced – ignore me. .) Ifd I were you, I’d read and learn and prepare a list, th en make one order from Amazon. You want to get the right potency and Borion is amore commercial company and doesn’t give you a choice, or not so readily, but for a common remedy such as nux vom 30 – buy what’s easy, which is Boiron. They also make oscillococcinum.

        • Destruida los Restos December 10, 2014 at 12:54 am

          Look up Eau de Mélisse des Carmes Boyer. It’s 80 degrees proof alcohol, so I don’t use it (can’t tolerate a drop of alcohol since ages before FQ) but you only use a few drops. Anyway, the list of ingredients will give you some ideas of which pkants to use for what. It’s been used for 400 years in France and is now popular everywhere.

          Here’s nice introductory site about herbs: http://www.anniesremedy.com/index.php

          Now I’m off, shan’t read again until have caught up with other stuff (never!)

      • Daniela December 10, 2014 at 2:25 pm Reply

        Thanks again and again and again. I must make sure to copy all of this!

    • Michael Teeter December 9, 2014 at 3:58 pm Reply
      • Daniela December 9, 2014 at 8:22 pm Reply

        Thanks Michael. My type is a little different because it gets better in the car. Other people get it after a cruise. It was kind of ridiculous when it first started because I kept feeling like I was having a stroke, but it would go away as soon as I was off to hospital. So I would turn round and go home, and then it would be back!

  8. Michael Teeter December 9, 2014 at 4:00 pm Reply
    • Jen December 10, 2014 at 1:28 pm Reply

      Thanks Michael for the informative link. Hope you’re recovering smoothly post dental visit.

    • Daniela December 10, 2014 at 2:26 pm Reply

      Thanks Michael!

  9. impossibleadversity December 10, 2014 at 5:16 pm Reply

    I had a bad increase in achilles tendon pain out of the blue and I think I know exactly what caused it: acetylcholine. I took too many choline precursors from food & supps over a day or two in addition to DMAE, also said to be a choline precursor. Not smart, DMAE is also known to inhibit acetylcholine transport, and along with too high acetylcholine, messing with it affects tendons and junctions. I also had a large amount of calcium the days before which may have worsened things since the two interact (but I didn’t have problems with calcium alone, and was still taking magnesium). Tend to forget the neurotransmitters have uses outside the brain.

    • Daniela December 11, 2014 at 8:48 am Reply

      http://bosscherstichting.org/en/information/the-articaine-problem—professionals.html

      Ultracain may not be administered to patients with cholinesterase deficiency

      since 12th July 1995 articaine carries a contraindication for this complication.

      “Ultracain may not be administered to patients with cholinesterase deficiency, unless there are strict indications for its use. This is due to a possible prolonged working effect of Ultracain in these patients and in some cases extremely strong effects”.

  10. Mark December 11, 2014 at 7:30 am Reply

    Did anyone here had problems with beef?

    Mark

    • Daniela December 11, 2014 at 8:53 am Reply

      May be the antibiotics in the beef. Also, some recommend vegan diet for rheumatoid arthritis, so you can look into that.

      Personally I’m going through a bad setback now after trying to reintroduce lentils and legumes. I have every symptom all at once today, popping, diarrhea, even the old tinnitus is ringing loud and clear.

      So in my case, it’s pretty much vegetables

      • Mark December 11, 2014 at 9:45 am Reply

        Daniela, you do need your collagen, amino acids and protein though to being able to build that damaged tissue back up so be sure to get it in a dorm which you can tolerate.

        I had no problems with beef. Ate some organic beef today after 7 months of only chicken and eggs as protein sources and wanted to check before. So I can say now: organic beef seems to be OK. :)

        Mark

        • Michael Teeter December 11, 2014 at 9:57 am

          You are right Mark. We want to stick to organic beef as much as we can.
          I must ask are either of you MTFHR positive? I am and I am finding that many other floxies are too.

  11. Jen December 11, 2014 at 3:51 pm Reply

    Has anyone who has/had neuropathy symptoms have their vitamin B12 level checked?

    • Carrie December 11, 2014 at 4:14 pm Reply

      yes, and mine were within normal levels… I still supplement B12 daily – sublingually

    • Melanie kemp December 11, 2014 at 4:23 pm Reply

      Mine was low. 247. Supplementing didnt make a difference to the PN though.
      Thats just an FQ symptom and has to be worked through…for me anyway

  12. Jen December 11, 2014 at 4:29 pm Reply

    Thank you ladies.

    • Carrie December 11, 2014 at 4:31 pm Reply

      I dont know if it makes a difference, but I felt that I will continue taking it for the time being. I believe, since the doctors can’t find anything wrong with me, that the nerve pain is from the FQs

    • SM December 11, 2014 at 6:19 pm Reply

      Same as Mel. My b12 was around 350 only weeks after floxing. It had been 900 12 months before that. Supplementing caused me rashes and didn’t help neuropathy or any other symptoms. It’s now almost 500 with once per week low dose b12. Just making sure it doesn’t go too low.

      • Jen December 11, 2014 at 7:26 pm Reply

        SM, do you take the oral weekly B12? Do you notice any difference now that your level is a little bit higher?

        • Melanie kemp December 11, 2014 at 8:06 pm

          Jen
          I take the sublingual liquid Bs. I couldn’t tolerate the pill form. The niacin in it ade me burn all over.
          The liquid bought my numbers up pretty quickly. Within 4 weeks it went from 245 to 570. I just take it a few times a week now
          How are you doing anyways

  13. Jen December 11, 2014 at 4:38 pm Reply

    Carrie, did you take a look at the Dr. Weil link that Michael posted?

    • Carrie December 11, 2014 at 5:26 pm Reply

      no, I haven’t.. what did it pertain to?

      • Jen December 11, 2014 at 5:47 pm Reply

        It has a list of medical conditions and recommendations on how to help your body to heal with supplements etc. There is one for neuropathy.

  14. Jen December 11, 2014 at 8:36 pm Reply

    Hi Melanie, I’m doing ok. Just had a follow up with rheumatologist and he is testing my B12 level as I had never had that done. He diagnosed me with peripheral neuropathy and prescribed gabapentin. Had a good night’s sleep last night so woke up feeling better than usual today…took benadryl for some allergic bumps on skin so it knocked me out. lol I do believe the electro acupuncture irritated my nerves more than it already was. But I’m trying to stay focused on getting better and taking supplements as fit etc.

    How have you been doing lately? Hope still improving.

  15. Jen December 11, 2014 at 8:37 pm Reply

    Melanie, do you notice any difference/improvements since your B12 level increased?

    • Melanie kemp December 11, 2014 at 8:45 pm Reply

      Honestly Jen no. Obviously I needed it though but I didnt notice a difference
      Because I believe its not a true neuropathy. I think its FQ induced. I say that because it went completely away last time once I recovered. If it was a true neuropathy it wouldn’t have gone.
      Well thats how I see it.
      Where is youre neuropathy

      • Jen December 11, 2014 at 8:54 pm Reply

        It’s in my hands/arms/elbows/feet/ankles/knees/hips mostly but I’ve been noticing short bursts of muscle twitch in various areas…sometimes arms, sometimes legs, and just today on my face. But at night time my feet burns mostly and that’s what keeps me from getting a good night sleep. It’s so bad at night…during the day it’s tolerable. I do believe you that it’s FQ related neuropathy…I guess the good thing about that is that it will go away. Part of me is scared that it won’t. But I’m trying to stay focused on getting better. :) What’s really scary is that the areas where the acupuncturist inserted the needles are the most symptomatic…

        But how have you been doing??

        • Melanie kemp December 11, 2014 at 9:05 pm

          Trying to take it day by day. Its a tough thing for sure when youre in pain.
          I guess for me its being housebound that really gets me down and I look so bad having lost so much weight.I guess I could get out if I pushed myself but I look aweful and it bothers me. I know it shouldn’t but it does. I did dye my hair tonight. I had 3″ of silver. Probably shouldn’t be putting chemicals on myself but at this point I dont really care.
          Get yourself a cooling pad Jen. Its what I used for my feet at night and it worked great. Didnt feel it half as badly.

        • Patty Alexander Sr. December 14, 2014 at 2:48 am

          Jenn, Read up on Serrapeptase. I take 250,000 IU of Serrapeptase a day for the nerve pain that I get in my legs and feet, especially when I lay down at night. I also take 1,000 mg of magnesium earlier in the evening if I am hurting. The Serrapeptase must be taken on an empty stomach or it will be used to diigest your food instead of doing what you need it to do. It eats up the bad stuff in our bodies that are causing pain. The magnesium will calm your muscles. I just recently learned from Suzy Cohen that taking Aztathanthin, (4mg) is also good for pain. I tried the Aztathanthin until I ran out and I was walking about, almost like a normal person again, until about a week of not having any.
          I wish you all well!

  16. Jen December 11, 2014 at 9:26 pm Reply

    Melanie, being housebound is a very difficult thing. When I first got sick I didn’t leave the house for about 6wks…only time I left the house was to go to doctor’s appts. We women are always extra critical of our appearance. It’s worse when we don’t feel well physically. I’m sure it’s not that bad Melanie. If you’re able then get out and get some fresh air/sun. It will do you some good. You dyed your hair so that should make you feel a little better. I’ve been due for a root touch up myself but I was thinking about the chemical factor as well. But I’m getting tired of spots of gray that’s been growing out. I will try the cooling pad…thank you for the suggestion.:)

    And thank you for connecting me with Tammy. I have corresponded with her and she has been very informative and nice. I probably bugged her too much! lol

    Be kind to yourself like you have been to me. :) Thank you.

    • Melanie kemp December 11, 2014 at 9:46 pm Reply

      Tammy is great.!
      E mail me anytime to
      melglove@hotmail.com
      It helps to have people who understand the situation first hand.
      yes..I was holding out on the dye job but im totally silver..have been since my early 40s so it just got to be to much coming through so I decided oh well…. im still alive.
      Honestly I didn’t know I was floxed in 2010 so did everything wrong but still recovered so I went ahead. Makes me feel better.
      im so thin Jen. Down to 120. Hate that but not much I can do. If I could gain even 15-20 pounds id be happy :-)

      • Jen December 11, 2014 at 10:14 pm Reply

        Yes it does help to talk to people who understand what you’re going through and not look at you like you’re nuts! You’ve inspired me to go ahead with my root touch up this weekend! lol It made you feel better so it was worth it.

        Most women would hate you saying that you’d like to gain weight! lol By the way, Tricia hasn’t been on lately…I hope she’s doing well.

        Keep doing the bone broth.

        • Melanie kemp December 11, 2014 at 10:50 pm

          She may be doing good. I find people dont get on so much when thier doing well. Lets hope thats the reason.
          The reason I got into this mess of a relapse was because of trying to lose weight.
          Its like being in the twilight zone. Now I want it back. Jeez!!!!! :-)
          Ahhh well. Only time will tell.
          Yea..I looked at my hair and just couldn’t leave it any more… way to much grey!!!! Even if nobody sees me I see myself..lol

        • tricia December 11, 2014 at 11:17 pm

          Hi Jen, I thought I posted a comment two days ago but maybe it didn’t go thru. Anyhow, I’m glad your finally able to get some sleep…that’s so important. I also need a root touch up as well! I think we all need to be healthy and cautious, but for me, and maybe lots of other women too, giving up hair color and make up are some of the things I’m not willing to do quite yet. I’m hanging in there ..my feet and ankle pain subsided only to move up to my thigh muscles. i definitely feel muscle weakness there and hope it doesn’t get worse! On Tuesday I had a phone consult w Dr Jess Armine…. He recommended getting a neurotransmitter test and the 23and me DNA test. He put me on 10,000 mg of liposomal vitamin C, slippery elm, and digestive enzymes. For now, he is only trying to heal my gut first and foremost. He’s worked w many flox victims before, so I trust that he knows what he’s doing. At the end of our conversation though, I asked him if he thought I’d recover from this or not, and he said he can’t answer that!! I just wanted him to say “yes, this might take a while but you’ll survive this no problem.” So, I hung up feeling I’m on the right track w him, but w a little less hope:(

        • Melanie kemp December 11, 2014 at 11:21 pm

          Thats the hard part Tricia. Nobody can tell us that we will recover. I think thats just the worst part because even if we knew it might be a long time but would heal it would be so much easier to get through.

        • tricia December 11, 2014 at 11:28 pm

          You’re right Melanie. Sometimes I even wonder if it’s worth spending money on all these doctors and tests….I guess if we are meant to recover, we will recover regardless. In so many forums I’ve read before, it always says the vast majority of people recover eventually. I hope that’s true….and I hope everyone on this site is part of the vast majority, and recovers!

        • Melanie kemp December 11, 2014 at 11:46 pm

          I think youre chances are extremely good.
          I recovered from a severe floxing with no help from doctors and no supplements so its entirely possible to get well.

        • Catherine December 12, 2014 at 1:48 am

          Hi Tricia
          I’m also trying slippery elm, liposomal vit C and digestive enzymes. Did Jess Armine say how much slippery elm you need to have every day?

        • tricia December 12, 2014 at 2:41 am

          Hi Catherine. I am taking 2 tsp of the slippery elm powder mixed w half cup boiling water….so its like a gruel, or oatmeal consistency. I’m also taking cats claw, not prescribed by Dr jess Armine though. I just read its supposed to help w lots of FQ symptoms :)

        • Catherine December 12, 2014 at 3:04 am

          Maybe I’m taking too much! I’ve been having 2 tablespoons, mixed into yucky gloop. Have you found it helpful at all? I’ve only been doing it for a week, so too early to notice much yet. I tried taking HCl as well, but have stopped because it caused severe stomach pain and bloating.

        • tricia December 12, 2014 at 7:05 am

          Catherine…I am noticing a slight difference from slippery elm,but I’ve only been on it two days. How are u tolerating the vitamin. C??? Also…..what is HCI?

        • Catherine December 12, 2014 at 8:00 am

          Tricia
          HCl is hydrochloric acid.
          What sort of changes have you felt from the slippery elm? If anything, my stomach feels even more uncomfortable since I started it.

        • tricia December 12, 2014 at 8:10 am

          I’ve heard some good things about hydrochloric acid…..I’m sorry that didn’t agree w you. Slippery elm seemed to improve my digestion quite a bit though. Dr Jess said antioxidants won’t help me at this point, he thinks I have leaky gut and leaky blood brain barrier from the levaquin, and since it caused so much immune upregulation, the pathways from the gut to the brain have been cut off (hopefully temporarily) ! I’m still taking antioxidants though. I don’t want to believe my body has been this damaged :/

      • Daniela December 12, 2014 at 3:35 pm Reply

        Henna? Sage and marigold also darken/yellow grey hair.
        I think you can get colourless henna and add sage for dark or marigold for yellow colouring. I just buy it from the Indian market

  17. b December 12, 2014 at 2:14 am Reply

    Guys, keep happy and positive as much as possible. I know it is so difficult (for what reason we do not have to discuss here). But it is really good to the recovery.

    I just talked to another guy on Facebook group, and he told me he had already recovered 100%, but then relapsed from a severe emotional stress.
    Another floxie friend also got worse after a big family issue.
    I myself, got my worse reaction 20 hours after a severe stress.

    How come ?
    There is this hypothesis : stress generates steroid like things in our body. We know we cannot handle steroid things after being floxed.
    Imagine you ran into a bear or a tiger in the jungle, you body has to generate a lot of hormones or steroid something like that, to help you gather your courage and your muscles, to fight or to run away.

    Try not be very upset, hopeless, or too upset. It is good to your recovery, not just psychologically, also physically.

    • Daniela December 12, 2014 at 3:37 pm Reply

      Good idea. I also think the upsetness is the major thing to tackle. If you have anxiety, everything is bad. If you have pain, it’s easier to handle if you don’t have the anxiety on top.

  18. Jen December 12, 2014 at 9:16 am Reply

    Tricia, for awhile my feet/ankle pain travelled up to my thighs as well and I wasn’t sure if it was caused by physical therapy but it did subside after awhile. So hopefully that will be the case with you. Keep doing what you’re doing and be focused on getting better.

    Melanie, you are absolutely right. Sometimes when I’m down all I want to hear is for someone to say this will all be over soon…maybe not even soon…just a confirmation it will get better. My husband swears that he knows for sure that I will get through this and will be fine again…to be patient.

    As if going through this isn’t scary enough the first time around it seems like many people relapse for various reasons. Will we have to walk on eggshells forever if/when we recover?

    • tricia December 12, 2014 at 5:36 pm Reply

      Jen, I think you’re husband is absolutely right when he says you’ll recover. I definitely think you will! I think all of us will, eventually. Some days it’s hard to believe…but then I always read the recovery stories and know that healing is very likely. One FQ survivor had said that no matter how bad things got…they never stopped believing they would get better. Today I walked a half mile on the tread mill and my feet and legs were burning sooo bad afterwards. I prbly could’ve walked a mile but I didn’t want to push or strain anything. I hope you’re having a good day ;)

      • Jen December 12, 2014 at 5:53 pm Reply

        Thanks Tricia! I love your positive outlook on things. I’ll have some of what you’re having. :) I have a strong feeling that you’re going to recover sooner than later. :) Your disposition will help you along. Mind is a very powerful thing…Take it easy on the treadmill. lol My only form of exercise is the physical therapy stuff I have to do at home everyday. I’m so out of shape that I break a sweat at the end of my routine. lol

  19. Daniela December 12, 2014 at 3:46 pm Reply

    Some people don’t have to walk on eggshells and have bounced back, but some of us do. Me, absolutely. Think of yourself as a ballerina!

    We’re really just talking about not eating junk food anymore, getting exercise, rest, and refusing to put noxious chemicals in our bodies. That should be the absolute minimum anyone in a civilised society should expect. It is truly strange that it is hard for us to do this, good food is so hard to find, rest is impossible, and we can’t trust our doctors. But we just have to be strong about our rights to live a healthy life!

    • Jen December 12, 2014 at 6:51 pm Reply

      Daniela, you’re right. It seems like such an easy and obvious thing to do but yet why is it so hard at the same time?

      • Daniela December 12, 2014 at 8:26 pm Reply

        Jen, Good food has become very expensive. And the pressure of advertising.

        It’s very scary at first, but I am learning I can eat just fine very simply and I don’t need to see the doctor. I wish I had known that just a few years ago, I wouldn’t be in this position. Hopefully it’s not too late. I’ve made big big changes recently. But if not for me, at least I hope someone else can benefit from what I’ve learned.

        • tricia December 12, 2014 at 8:31 pm

          Daniela…. I spoke w bio medicine doctor who has worked w a thousands of floxies before. One thing he did tell me, was that if I ate well and took care of myself….average recovery time is 5 years he said! I was a little discouraged, but if you got re floxed then I’m sure you will recover or get better too with time :)/

        • Daniela December 12, 2014 at 9:24 pm

          Tricia, I’m at five years, but I was given a lot and then had a bad reflox. I’m sure you’ll be fine much sooner. That would be really weird and wonderful if I suddenly got better now that I’ve hit that mark!

  20. Catherine December 12, 2014 at 4:21 pm Reply

    Tricia, how are you doing with the liposomal vitamin c? I had my first teaspoon of it just now, and I feel really nauseous and headachy suddenly.

    • tricia December 12, 2014 at 5:27 pm Reply

      Hi Catherine….I had my first teaspoon last night, and then several today so I’m prbly way past my 10,000mg limit. I didn’t think it tasted good at all, but I didn’t feel any worse when I tried it. I think I’m taking too many supplements too soon, so it’s difficult to tell what’s working or not. Did you try ingesting it with food?

      • Catherine December 13, 2014 at 1:25 am Reply

        10,000 mg per day!!?? That would cost me nearly $500 per month – just for the vitamin c! That’s not going to be possible, so I will have to take 1000 mg per day and hope for the best.

        • tricia December 13, 2014 at 1:53 am

          Dr Armine did say its expensive, and I hope I ordered the right stuff thru Amazon . i paid $28 for three bottles….. There is a way to make it yourself, its quite a bit cheaper but seems like a lot of work :/

        • Mark December 13, 2014 at 2:51 am

          Trivia, it isn’t really. It’s quite easy.

          Simplified:
          Mix water with lecithin for 5 minutes
          Mix water with ascorbic acid until dissolved
          Put both together and mix for 1 min
          Put everything in the ultrasonic, leave for 30 minutes
          Add baking soda
          Finished

          Now it’s not 100% the same as “real” lipo but close enough for the cheap price.

          Mark

        • Catherine December 13, 2014 at 4:05 am

          That’s cheaper than mine. I paid £33 for one bottle. Will look on amazon!

        • Mark December 13, 2014 at 2:47 am

          Not if you make it yourself Catherine. Just invest once in an ultrasonic cleaner, ascorbic acid, sunflower lecithin and baking soda. After the initial investment it’s pretty cheap to make.

          Mark

  21. b December 13, 2014 at 2:20 am Reply

    Regular glutathione is absorbed at approximately 3 – 5%, some emulsified forms around 10 – 20%, the balance remains in the gastrointestinal tract and is lost. Liposomalized glutathione is absorbed at substaintially higher rate.

    Similar condition is on Vitamins. It is true that Liposomal Vitamin is easier to be absorbed than regular Vitamin.
    “You might have heard of a new technology called liposomal technology that has been used to increase absorption of nutrients. This occurs naturally in krill oil. The omega-3 fats are bound to phospholipids that radically increase absorption relative to fish oil.
    Similarly, this type of binding can now be done artificially to improve not only nutrient absorption but its penetration into your cells and tissue….” — http://products.mercola.com/vitamin-c/

  22. Daniela December 13, 2014 at 6:55 am Reply

    The genetic testing gives them an excuse to say it’s your fault and not the FQs. Spend your money on organic ingredients and good cookware. We don’t even know if supplements are absorbable. And organic does not mean “gluten-free cookies” but real vegetables, etc.

    Colour your hair with henna, mixed with indigo and amla for less red. It looks really pretty. There are some false hennas that use the same chemicals as commercial dyes, so avoid those. Jamila, which is just henna, and Ayur Rajasthani, which is mixed with amla and more brown. They are both less than $2 (for some reason very expensive on Amazon but only $2 at the store). Marigold and camomile colour blonde hair and can be mixed into colourless henna.

  23. Daniela December 13, 2014 at 7:47 am Reply

    And don’t forget exercise! Here’s some more for plantar fascitis heel burning:

    https://www.athletico.com/2012/05/09/plantar-fasciitis-solutions/

  24. Diego December 13, 2014 at 7:53 am Reply

    A gluten free cookie or muffin has been part of my recovery… :-}

    • tricia December 13, 2014 at 8:05 am Reply

      Diego, I finally had a glass of wine for the first time since I’ve been floxed (I’m 6 weeks out) and although I felt horrible the next day, it made me feel almost normal again, and to me that was well worth it. I don’t plan on having any wine again for a long, long time though! :)

      • Jen December 13, 2014 at 9:49 am Reply

        Tricia, did the wine make your symptoms worse??

        • tricia December 13, 2014 at 10:04 am

          Hi Jen, yes I did feel worse the next day as far as symptoms. But then again I have been having a really challenging week as far as muscle aches and pains, the worst ever since I became floxed:(

  25. Jen December 13, 2014 at 10:12 am Reply

    Tricia, sorry to hear that you had a bad week…hopefully it’s one of those things that gets worse before it gets better.

    • tricia December 13, 2014 at 10:25 am Reply

      Thanks Jen, I hope so!! At least my energy level is a little better. A few days ago I had debilitating fatigue, I could hardly take care of my four year old. Last night I had a burning sensation all over my arms and legs, I haven’t had that feeling since I first got floxed. My leg muscles are so sore from walking a half mile and then doing Pilate’s after that ;(

      • Jen December 13, 2014 at 10:34 am Reply

        Tricia, it’s got to be even tougher trying to keep up with the little one while you’re going through all this. :( I remember when mine were little it was exercise in itself keeping up with them. Do you think maybe you exerted yourself too much and that contributed to the extra pain/burning? My PT gave the green light to go back to the gym and start with 10-15 mins and moving up from there but I must tell you I am a little scared that it might aggrevate my symptoms. So much fear I’ve never had before. I was always pushing myself at the gym to add more weights or to do more classes etc. My mom used to say that I was addicted to the gym. lol She used to call me the gym addict…I always told her it was better than drugs or alcohol. lol

      • Melanie kemp December 13, 2014 at 10:36 am Reply

        Tricia
        I woild stop over exerting yourself with Pilates etc. My relapse was caused by excersise and you are to early in youre floxing to be doing that. I think it could make things worse

        • tricia December 13, 2014 at 11:51 am

          Melanie, your probably right. I think even daily chores are enough exercise for my tendons. I did jumping jacks w my daughter on Tuesday of this week, and I’ll just say that was not a good idea ! I know Lisa had mentioned that she didn’t start doing Pilate’s til she was at least 7 months out…. so I’ll prbly have to really start taking it easy

  26. Daniela December 13, 2014 at 10:32 am Reply

    Gentle stretching and exercise is the best thing I’ve found for the physical pain.

    Focus on the symptoms that are bothering you the most at the moment. I think you can do anti anxiety exercises at the same time as foot/knee/shoulder, whichever is hurting the most. Two birds!

    Anti inflammatory diet at the same time.

    It’s doable. We were hit by a bomb, it’s going to take time, but we’re not broken. Take care, everybody.

    • Jen December 13, 2014 at 10:44 am Reply

      Daniela, thank you for all your helpful info you share with us. I made a list of the glutathione boosting foods and luckily I love most of the foods on that list. :)

  27. Jen December 13, 2014 at 12:03 pm Reply

    My vitamin B12 results came back normal…mid 500 range. I was hoping it would be on the low side so I could attribute my neuropathy to it and fix it with vit B12 supplements… sigh…

  28. Dave December 13, 2014 at 2:29 pm Reply

    Anyone have advice bad tendon pain behind your thighs? Mine is so bad where I can’t sit anymore. I have a desk job and I think I have to go on leave… Driving is excruciating and standing more than 5 or 10 min is very difficult. Causes little muscle spasms back of my legs. At least the burning and tingling has not been there this last 5 days. But if I sit at my desk it’s brutal. I’m almost 3 months in.

    • Lisa Bloomquist December 13, 2014 at 8:18 pm Reply

      I suggest very hot epsom salt baths and gentle self-massages afterward on your lower back, butt and legs.

      Dave, have you seen someone (a doctor, chiropractor or even acupuncturist) about your herniated disk? I wonder if fixing it would help you. I certainly don’t suggest anything invasive unless it’s absolutely necessary, but gathering your options from pros is a good thing to do. Do you think that the pain that you’re experiencing when sitting has to do with the herniated disk? It’s certainly possible that it’s purely from the floxing, but pain while sitting is unusual for floxies and I wonder if the spine issues (that very well could have been caused by the FQ) are at the root of some of your pain.

      Meditation isn’t a big gun, but it has proven to be very helpful for pain management for many people. I suggest it to everyone. I’m actually going to meditate right now. :)

      Regards,
      Lisa

      • tricia December 13, 2014 at 8:51 pm Reply

        Hi Lisa, or anyone who has some knowledge of cat’s claw . I started recently taking cats claw two days ago.. .and since then, I’ve had lots of my initial FQ symptoms return. I heard that its beneficial and also speculated as can anectode to flouroquinolines. I have no idea if I’m going through some setbacks or if this is related to taking the cats claw? It’s so hard to know :/

        • Melanie kemp December 13, 2014 at 9:02 pm

          Tricia
          id say it probably may be the cats claw

        • Lisa Bloomquist December 13, 2014 at 9:25 pm

          It’s always hard to know. I have heard of other people reacting negatively to cat’s claw. It’s worth seeing how you feel stopping it. Not everyone seems to react badly to it, but if it doesn’t seem to be sitting right with you, stop it – for sure.

        • Catherine December 13, 2014 at 11:26 pm

          Hi Tricia, do you know if you have lyme or other co infections? Cats claw is used to treat Lyme disease- so you could be having some kind of herx effect?

        • tricia December 14, 2014 at 6:58 am

          Hi Catherine, I don’t think I have Lyme, but then again I’ve never been tested for that either. I’m not going to take cats claw today or tmrw, so I’ll see if that helps. Since I’m only 6 weeks in, I have no idea what to expect and I’m sure will probably develop new symptoms or get worse before I get better. I hope not, but it seems to work that way. Have u noticed any improvements w the slippery elm?:)

        • Catherine December 14, 2014 at 7:19 am

          Not really, but I’m not expecting instant results. After 10 years of antibiotics and PPIs, I’m surprised I have any digestive system left! It’s going to take me a long time to heal, and at least the slippery elm isn’t harmful, so I can take that every day for a long time. I’m getting used to the taste.
          I can’t be sure, but I think someone made a comment a while ago that cats claw has an action similar to FQs, and can cause flare ups in some people. As I said, I don’t know how accurate that is, but it might be a good idea to look into that before taking it again? I find it so difficult and stressful, not knowing I’ll now be harmed by things I was fine with before floxing. Everything is a worry now.

      • Dave December 14, 2014 at 9:05 am Reply

        Yes Lisa I had the follow up with the neurologist last week and it’s a mild herniated disk he said it wouldn’t be the cause of it. He was to next have an mri of my spine. I has a few sestions with a chiropractor and that didn’t help. The acupuncturist said he could help. I’ve done the epson salt baths. My back is fine it’s this real bad pain tightness in my ligaments behind my thighs

    • Lisa Bloomquist December 13, 2014 at 9:20 pm Reply

      Also, many floxies have felt relief from pain by taking kratom. It’s certainly worth looking into.

    • Patty Alexander Sr. December 14, 2014 at 2:12 am Reply

      Dave, I get a real bad burning pain at the back on my one thigh. Feels like two burning lumps of hot coal when it flares up, but it’s in the muscle on me, not the tendon. Sitting irritates it on me and when it gets bad I just have to go lay down…and pray that it get’s better! I do take magnesium when I’m hurting. I don’t know if it helps but in my mind I sometimes think it does.

  29. Patty Alexander Sr. December 14, 2014 at 2:03 am Reply

    Hello everyone! I am new to this site. Trying to find out what ailes me. I read a few reviews on here to get started. I get a lot of nerve pain from herniated disks but something is werid lately. Has anyone on here ever tried Serrapeptase? For me I take a dose of 250,000 IU once a day when it is bad and that helps me with the stiffness in my feet and legs..and I believe it helps with some of the pain too. I also must go with all anti inflamatory foods before anything else and that helps if I stick to it. The Serrapeptase has been a miracle pill for me! I have been out on disability a few years before I came across the Serrapeptase and I hurt so bad just trying to get out of my bed or trying to turn over in my bed…before I learned about iSrrapeptase. I was trying to only eat anti inflamatory foods but there was so much more to it. I definitely have nerve damage all dowm my spine from herniated disks, and I’ve had radio frequencies which helped qell severe muscle cramps all down my legs, but the stillness in my legs and feet from lack of stretching is so much better when I take the Serrapeptase. Like I said, I take 250,000IU of Serrapeptase, usually once a day. I hope this is of help to someone one here.
    Also, one very important person to read up on is: Suzy Cohen, for advice.

    • Patty Alexander Sr. December 14, 2014 at 2:22 am Reply

      Peoples…Also aztathanthin….4 mg for pain. Suzy Cohen had recommended this over on her site and it helped me a great deal with pain and with my walking. I was actually walking like a normal person again until I ran out of it last week. So I’ll see how I am once I get back on it. God Bless all of you!

      • Catherine December 14, 2014 at 7:21 am Reply

        Hi Patty
        Which brand do you take please?

        • Patty Alexander Sr. December 14, 2014 at 7:22 pm

          Hi Catherine! I was taking Nature Made, 4 mg once a day till it ran out. ” Astaxanthin”. I spelled it wrong before. I hope this helps .

    • Lisa Bloomquist December 14, 2014 at 8:43 am Reply

      Welcome, Patty, and thanks for the advice on serrapeptase! I like Suzy Cohen a lot too! Here is a video of hers on Serrapeptase:

  30. Lisa Bloomquist December 14, 2014 at 8:46 am Reply

    Suzy Cohen has been doing a great job spreading the word about how dangerous fluoroquinolones are. Here’s a post of hers in which she says, “Antibiotics- A few popular antibiotics affect DNA similar to some chemotherapy agents. If you’re sensitive to them, you could pay a neurological price that causes sudden and serious neuropathy and degrees of brain damage. The drugs that the FDA is concerned about belong to the fluoroquinolone class, and already have a black box warning for increasing the risk of tendon ruptures. But I’m telling you that more reports have come in with accusations of neurological damage. Personally, I would only use these for life-threatening infections that were unresponsive to older regular antibiotics. I wouldn’t take them if I had a regular old urinary tract or sinus infection.” Thanks, Suzy!!!

    http://suzycohen.com/articles/im-going-to-ruffle-feathers-but-ill-tell-you-anyway/

  31. Jen December 14, 2014 at 9:19 am Reply

    Tricia, how are your teeth feeling lately?

    • tricia December 14, 2014 at 9:25 am Reply

      Thanks for asking Jen:) my teeth are okay, not very painful anymore but more sensitive than usual. My biggest issue is with my tendons in my arms, legs and feet. The good thing is my joints aren’t popping as much as they were before and my arthritis like pain in my fingers and toes have left. I know tendon pain can take a long time to heal. How are you doing?

      • Jen December 14, 2014 at 9:57 am Reply

        I’m doing ok. Not worse…maybe a bit better? It’s hard to say…everyday is different but overall it’s not worse so that’s good. Are you stretching and massaging your tendons at all? Do you still have the burning sensations?

        • tricia December 14, 2014 at 10:07 am

          Yes everyday is different! Massaging and stretching does help a little, and yes the burning sensation comes and goes and that’s the worst. I’m glad you’re doing the same at least. Does it hurt to walk or stand anymore? Some days are more manageable than others….when I’m tired symptoms seem a bit worse

      • Patty Alexander Sr. December 14, 2014 at 8:35 pm Reply

        Anna, I hear ya. The Doctors are useless to help with this. Melanie gave excellent advice! Also, when you have time read up on Serrapeptase, and Suzy Cohen. The serrapeptase was a miracle pill for me! I was to the point that I could not even get out of bed (without excrutiating pain) before I learned about it.Be well!

  32. Jen December 14, 2014 at 10:28 am Reply

    Yes you’re right that when you’re tired symptoms are a bit worse…it’s the same with me. I try to take it easy whenever I can. I can stand without pain most of the day and walking has improved as well. Thank you for asking. I am extremely stiff when I wake up so I take a little time to stretch my feet/ankles/legs. But once I get going it gets better. The electric shocks are still prominent throughout the day but tolerable but evening/night time it gets worse along with the burning. I hope you see much improvement soon with the new regiment you are on per the doctor you’re consulting with.

    • tricia December 14, 2014 at 10:34 am Reply

      Thanks Jen I hope so, too! :)

  33. traci December 14, 2014 at 10:57 am Reply

    Hi, does anyone know a way to cope with extreme anxiety and insomnia? Did it become a permanent side effect? Please, i feel like I am going to explode.
    Traci

    • Catherine December 14, 2014 at 11:05 am Reply

      Hi Traci, it got better for me. Anxiety and insomnia, along with depersonalisation, suicidal thoughts, panic and horror attacks, and uncontrollable sobbing were awful at first, but I’m now 15 months out and they’re a lot better. Still bedbound with physical symptoms, but the emotional ones have subsided a lot. They will for you too. I’m sorry I don’t have much advice on how to deal with them, other than hang in there and know that they will get better. x

    • Daniela December 14, 2014 at 11:06 am Reply

      Traci, for me that’s the worst side effect, but remember it is a side effect and you are not going crazy. Can you find the mental exercises I described in my earlier posts? Think a happy thought and notice how your whole body changed. Then keep doing that in the same way you exercise your muscles — or kind of like a Kegel exercise (haha). But seriously, you can exercise and strengthen your innate ability to reverse the anxiety and help the insomnia.
      Also try to get some essential oil of lavender and put it on your pillow at night. Really really helps if you can find the real stuff.
      I wrote before about how the anxiety one day just dissolved from a point right in the middle of my chest. It was unreal, I actually felt it leave me. You’ll get there, too!

      • Catherine December 14, 2014 at 11:10 am Reply

        Some people find magnesium supplements and Epsom salts baths help them to relax too.

        • tricia December 14, 2014 at 12:07 pm

          Catherine, I’m sorry to ask…but were you bed bound the entire time?? My anxiety and panic got much better, but is now replaced by fatigue and an eerie sense of calmness. At least, like you, the suicidal thoughts are gone too

        • Catherine December 14, 2014 at 12:16 pm

          Yes, bedbound all that time. But I was in a wheelchair before that with lyme. Still had a nice life however, until I was floxed. Now it’s horrible. I still have episodes of panic and crying, but they’re rarer and very short lived now. I think that now I’m just depressed. But I belive that will pass too.

        • tricia December 14, 2014 at 12:34 pm

          I know, I hope this all passes! I’ve been drinking the slippery elm twice a day now. It definitely can’t hurt and I’m not minding the taste anymore either. I mix it with salt and cinnamon , not bad. …..

    • rene December 17, 2014 at 2:33 pm Reply

      Hi Traci,

      BRAIN /Anxiety/ Jumpy Thoughts/ Twitching

      Being that you are newly injured, the learning curve is steep, but important details about avoiding specific substances & supplementing with others is required. The Gabba receptors which are “Calming” have been affected. So sounds, and stimulation from certain specific biochemicals can be too much for us, particularly the first 24 months.

      Safe ways to address this are to add supports that will help balance this excitory state & eliminate others.

      1) Veg capsules for all supplements
      2) “Gelatin” Capsules are a source of “glutamate” which is not properly being balanced by GABBA therefore eliminate that source.

      AVOID these ingredients from any and all beverages & packaged foods they are also raising “glutamate” levels which is counter to what is best whether you are floxed or not. ie: we are not designed to be bombarded with manipulated food/beverages exposing the population to these “excitory” sources of glutamate. EXCESS is not a good thing for us. So eliminate those hidden sources.
      Artificial sweetners- horrific
      Autolysed Yeast or Protein
      Hydrolyzed Yeast or Protein
      Natural Flavors – (code name for glutamate)
      MSG
      Glutamine -converts inside the neuron to glutamate -risk for those with neurological problems
      Whey products
      Calcium – not your friend /will over stimulate neurons – this is in the context of Floxed people who are having the anxiousness/sound sensitivity/ sleeplessness/nerve pain/twitching. Magnesium supplements that are combined with calcium are not worth the risk.

      These biochemicals can really contribute to making a person feeling worse. Are there exceptions? Yes…..but these are the bad boys that need to be considered in the overview of how to lay down the best possible foundation.
      ———————————————————————

      Supportive options:
      Thorne Research – high quality brand – veg caps too
      Vitamin D3- levels are crucial!
      Phosphatidylserine – keeps cell membrane fluid

      5htp – Supports serotonin
      L-Theanine- calming amino acid
      Magnesium Citrate “MAG Calm” is the brand/ionic form -very well absorbed
      Melatonin – Bedtime
      Gabba – calming
      Omega 3 – Fish oil – no mercury brands like Nordic Naturals

      DO find yourself a Naturopath that does IV therapies such as Vitamin C, Magnesium, Glutathione. They are your safest bet as far a physicians go, other than functional medicine doctors. If you need help finding someone, I can help you with that.

      IF you tolerate Epsom Salt Baths…those are very helpful to get the magnesium you need into the cells. There is only so much that can be absorbed orally. intracellular magnesium levels are not easy to raise.

      Read the labels of any supplements that you are taking. You have to pay attention to the details. These are the things you can do….
      God Bless,
      Rene

      • tricia December 17, 2014 at 3:16 pm Reply

        How does someone know if they are suffering from a mild, moderate, intermediate, or severe flox?

        • Melanie kemp December 17, 2014 at 3:23 pm

          Id say im severe…both times

        • tricia December 18, 2014 at 10:22 am

          Melanie, I hope you’re seeing some improvement. Did you suffer from peripheral neuropathy when you were floxed and then relapsed?

        • rene December 18, 2014 at 2:47 pm

          You will find out as the weeks and months pass. The earliest manifestations for the individual whatever they may be, are often not all that will surface. Therefore being that the experiences have been so devastating and unfathomable that these occurrences would be possible……I strongly believe, and from my experience is to: do all that you can at the earliest point of ones adverse reactions to these drugs and for several months. New things surface several months out without fair warning….and then it is clear this is so much more profound than what one’s understanding is the first 6 months.

          Your job is to fend off the oxidative stress, and support the body by providing the best raw material possible to facilitate healing. Just like the soil in a garden, the terrain is everything. The body is alive, and will do all it can to to live, thrive, function, but by eliminating the junk, and providing the nutrients that it needs to support the functions that it does is the wisest approach.

          The issue for many is a greater sensitivity to the environment. Therefore gentle steady and meaningful measures are crucial. The cytochrome P450 enzymes of the liver and that also exist through out the body have been messed with by these drugs. So how you process and detoxify is not the same necessarily. You are wanting to support and facilitate a dialogue in the body that is optimal to get well.

          You do not need to assume the worst for yourself, that is just claiming the wrong the things. However recognizing that this does require help today, and not months from now. Knowing what I know now, the first thing I would have done is get a magnesium IV & vitamin C IV the next day and continued that for the weeks that followed. Is it a guarantee? No, but it would have been a swift and safe measure to take, considering the cellular death that was instigated by chemotherapeutic drug. I had been poisoned, so would have been a good thing to get IV therapies that could support intracellular detoxification and give the cells a different signal than what they received from Cipro.

          Lastly, my faith is unwavering and kept me throughout. The data and information you learn is to be used to your benefit. Do not entertain ideas, or language that has grim finality to it. Pay no mind. You find out for yourself what is true and live that. Too much fear and nonsense is fed into us daily from the media, web, friends, family,…doctors .etc. Keep your attention on all things that affirm life. God made us to heal. Big pharma & the FDA are i the drug business not the healing business.

      • Lisa Bloomquist December 17, 2014 at 3:24 pm Reply

        As always, Rene, you are wonderfully informative and supportive. Thank you!

        Additionally, here is an article about the benefits of cannabis oil. Some benefits for GABA receptors are noted – http://www.karger.com/Article/Abstract/57153 “Furthermore, there is evidence that endogenous cannabinoid transmission plays a role in the manipulation of other transmitter systems within the basal ganglia by increasing GABAergic transmission, inhibiting glutamate release and affecting dopaminergic uptake….. It can be speculated that cannabinoid antagonists might be useful in the treatment of chorea in Huntington”s disease and hypokinetic parkinsonian syndromes.”

        Note that cannabis oil derived from hemp is legal in most, if not all, States and it is available on Amazon. It will not get you high.

        I benefited greatly from uridine. I took straight uridine supplements for a while, then switched to getting my uridine from brewer’s / nutritional yeast. There have been studies that have shown that uridine has positive affects on patients with psychiatric illnesses. It may help.

        Regards,
        Lisa

      • tricia December 17, 2014 at 4:41 pm Reply

        Rene thanks for all the info. Would u say that floxies (esp newly floxed) should avoid all calcium and calcium supplements?

        • rene December 18, 2014 at 1:15 pm

          Yes, “No” Calcium supplementation within the context of those with neurological issues, evidenced by ADD, twitching, Anxiousness, overly excited mental state, lack of calm, wired and tired, cognitive issues of racing thoughts….However becuase these issues to always surface within the first months for everybody it can be deceiving….so best to take the most conservative approach which is to NOT supplement calcium.

          Also a correction the name of the brand is Natural Calm – for the ionic magnesium citrate supplement.

  34. Daniela December 14, 2014 at 11:00 am Reply

    From Leo Galland: “Avoidance of enterotoxic drugs, treatment of intestinal infection or dysbiosis, and an allergy elimination diet of high nutrient density that is appropriate for the individual patient are the PRIMARY TREATMENT STRATEGIES for the Leaky Gut Syndromes.” (emphasis mine)

    In other words, the supplements alone won’t get you there; concentrate on helping the body heal itself by being careful of what you put in it (ie eat).

    I would add massaging and increasing blood flow throughout the body through yoga/tai chi/stretching/movement.

    • Anna December 18, 2014 at 3:45 pm Reply

      Daniela, Ive been going some researching on the leaky gut and I’m convinced it’s contributed to many of my health ailments. Do you know of a good protocol? I’ve seen people use different combinations of supplements and I’m feeling lost. Currently starting an elimination diet and practice yoga, although I’ve been unable to- thanks to levaquin messing up my knees.

      • Lisa Bloomquist December 18, 2014 at 4:05 pm Reply

        Many people have felt improvements in their leaky gut by consuming bone broth. I learned quite a bit about bone broth from reading Jordan Rubin’s “The Maker’s Diet” and Sally Fallon’s “Nourishing Traditions.” Sally Fallon has a new book out called “Nourishing Broth: An Old-Fashioned Remedy for the Modern World.” I haven’t read it yet but I would assume that it has a lot of good information about bone broth in it.

        If you can tolerate probiotic foods, they can also help to re-populate your gut with “good” bacteria. Some people can’t tolerate fermented foods. I can and I think that sauerkraut is excellent. I also drink kombucha and kefir, and eat yogurts and cheeses.

        Several Floxies have benefited from following the protocol outlined in the Specific Carbohydrate Diet.

        Eliminate processed foods from your diet and avoid sugar. They’re inflammatory.

        Don’t restrict your diet too much though. You need to have enough calorie intake to give your body the energy that it needs.

        I would start with bone broth though. It’s most palatable if you make it into a soup.

        • Debs December 18, 2014 at 7:15 pm

          Just a quick note regarding Bone broth
          Please make sure if possible that the animal the bones are sourced from to make this broth has NOT been consuming fluoridated water. Fluoride is stored in the bones, & some of these animals drink a LOT of water

          http://fluoridedetective.com/fluoride-soup-broth-and-gelatin/

        • Anna December 18, 2014 at 8:10 pm

          Thank you. I actually made a big batch of bone broth earlier this week.

          I’m also wondering, in your experience could Levaquin cause osteoarthritis or completely destroy cartilage? I am 26– this mess has only started a week ago. I began supplementing with magnesuim, b12, d3… That took care of most of my neurppathy and muscle pain– but the extreme pain in my knee has left me pretty much bedridden– it’s like the actual cartilage is damaged. Do you think this can be healed? I’m wondering what (besides rest, heat/ice & Epsom baths) could help this? So lost!! :(

        • Anna December 18, 2014 at 8:13 pm

          Also– would doing an iodine protocol help at all? Assuming that would get at the fluoride?

  35. traci December 14, 2014 at 1:26 pm Reply

    I wake up in adrenaline surges every night at 3am. Last night at 5 am also. That was after taking 3 benadryls. Today has been pure torment. I bought some inositol but I didn’t realize it took so much to touch anxiety. I am desperate to feel calm.

    • Catherine December 14, 2014 at 1:44 pm Reply

      I had the nighttime adrenaline surges too. Still do sometimes, although much milder than before. I do feel for you Traci – I know how horrific it is. I used to cling tightly to my pillow and just will myself to keep breathing through it. Now I just read for a while and wait for it to pass. And it’s happening less and less often. Now it’s like I still get all the physical symptoms of anxiety, but my mind is calm about it.

      • Catherine December 14, 2014 at 2:01 pm Reply

        Essential oils have helped a bit – ylang ylang and lavender especially. I rub them on my feet before I go to bed.

    • Melanie kemp December 14, 2014 at 1:47 pm Reply

      Hi Traci
      ive been wondering how you where doing.
      I kinda thought and hoped you where feeling better.
      E mail me anytime
      melglove@hotmail.com

    • Debs December 14, 2014 at 6:28 pm Reply

      Hi tracy

      The type of anxiety we experience is both from the fear of what is happening to us , & also another type of anxiety. This is chemical literally caused by the toxicity. This is far harder to get treat & is harder to control The adrenaline surges you describe which come out of the blue like this sound more like the chemical cause . This type of anxiety in the majority of people will eventually improve & dissipate although it can take a long while. I used to wake up each morning with it every day for 18 months It literally felt like the feeling you get when you I have just missed getting run over it was awful . The good news is It has now gone completely.

  36. Jen December 14, 2014 at 1:31 pm Reply

    Thank you Patty. I will look up those 2 supplements.

  37. traci December 14, 2014 at 1:51 pm Reply

    When did your physical pain start? So far mine is mental and hearing loss. Did the physical progress from 3 months on ? I just got hit with a bad case of agraphobia this month on top of it all. I don’t feel very strong at the moment. Don’t know how much more I can take.

    • Daniela December 14, 2014 at 2:45 pm Reply

      I didn’t get the tendonitis until I was refloxed. So you might never develop it. Hopefully enough people have complained in the interim and they are thinking twice about a lot of these drugs and dosages.
      Did you try a Youtube meditation? Absolutely no caffeine ever. I couldn’t sleep if I had even a sip of black tea or bite of chocolate.
      I think what you have is the worst symptom, but it will pass. I don’t feel it at all anymore, even though I just had a car accident and some other bad things happen. Keep warm and swaddled, baby yourself.

      • tricia December 14, 2014 at 4:03 pm Reply

        Daniela, has your tendonitis gotten any better since you were floxed the second time?

        • Daniela December 15, 2014 at 11:57 am

          Yes! Rubbing along the sides of one knee fixed that right away, powdered turmeric worked on my hands and arnica-infused olive oil worked on my heels and achilles tendons. I use and do a lot of each. Still stiff in the morning, but it’s over pretty fast and I can do a lot more yoga and tai chi. Whatever happened in my shoulder is also much much better — can’t rub it myself but do my best.

        • tricia December 16, 2014 at 10:22 am

          Has anyone got tendonitis and then recovered?

  38. Anna December 14, 2014 at 7:26 pm Reply

    Help! I believe I’ve been floxed. I stopped taking a course of levaquin last Sunday when I felt some very mild leg soreness (5 pills). A week later I’ve been practically bedridden – every muscle in my body aches, some tingly-ness in my hand and my joints are cracking. No other side effects thus far. I don’t even know who to go to for help! Neurology? My pcp? Are there any nauropath or holistic type treatment centers that have had success treating people like this? I can’t stop crying, I have no idea what to do.

    • Melanie kemp December 14, 2014 at 7:37 pm Reply

      Hi Anna
      firstly start with magnesium. Citrate I believe is absorbed well. Epsom salt baths also.
      Lots of us are deficient in vit D and B 12 so go with those to.Or at least get some blood work done for those.
      Clean diet. Organic meats. Fresh vegetables. Clean water. Meats have FQs in them so go organic.
      Some people are really helped with acupuncture. I know Lisa was.

      • Anna December 14, 2014 at 7:58 pm Reply

        Thank you for the tips. I actually went to the er and told the physician I believed my symptoms were due to levaquin, he laughed at me and said well muscular pain is a side effect of almost every drug! The nerve! Has anyone had luck with ozone treatments, or stem cell therapy to help with muscular / tendon pain? Does anyone have luck with lawsuits against these evil people? I’m in shock.

        • Melanie kemp December 14, 2014 at 8:12 pm

          Its honestly a waste of time trying to get doctors to believe it. Plus many many tests come back normal. Ive had all kinds done..even nerve conduction with nuerologist.
          We are here battling on our own and most floxies know more than any doctors. I found it to be a waste of time.

        • Jen December 14, 2014 at 8:44 pm

          Anna, Melanie is right. Finding a doctor who will believe you is like finding a needle in a haystack…very difficult. I think most of us get bounced around from one specialist to another and get numerous tests done all with normal results. I’ve found more helpful information on this website than from any of my doctors.

        • Lisa Bloomquist December 14, 2014 at 9:43 pm

          He laughed then justified hurting you – that’s just great. Doctors don’t even realize what a horrible job they’re doing. It’s NOT OKAY for a drug to induce muscle damage. In severe cases, muscle damage can lead to rhabdomyolysis – it’s not exactly a laughing matter. Please feel free to send your doc this too – http://researchonline.jcu.edu.au/9250/1/13_clinical_udpate_Drug_induced_muscle_disorders_published.pdf and here are some articles about FQ toxicity that I recommend – http://floxiehope.com/2014/05/20/articles-about-fluoroquinolone-toxicity-to-give-to-your-doctor/.

          You probably don’t have rhabdomyolysis or even drug induced muscle disorder, so please don’t let those articles scare you. I’m appalled by the ignorance of doctors about these adverse effects though, and I just want to say, “SEE, I’M RIGHT – LOOK AT THE RESEARCH.” But that doesn’t help you much, so, sorry.

          I think that Melanie’s advice is good. I suggest reading through the stories on this site. There is good information in each one. Hang in there. Take some deep breaths and tell yourself that you’ll be okay.

          Hugs,
          Lisa

        • tricia December 14, 2014 at 10:23 pm

          I’ve had doctors laugh at me too, thinking I was crazy for suspecting levaquin could cause my symptoms. This is the hardest part on dealing with all this, that hardly anybody understands or even believes FQ toxicity exists. The doctor I spoke to last week said the average recovery time for a floxie ( given they eat a good diet, take care of themselves) is 5 years!! I know everyone’s symptoms and timelines are different, but do you think the vast majority of floxies recover ?? Even if not 100%….enough to lead a normal life??

        • Melanie kemp December 14, 2014 at 11:33 pm

          Tricia. I was ip and functional at 6-7 months. Pretty fully recovered at 18 months.
          Hoping ive got another shot at health. Many many recover enough to get back to life

  39. Patty Alexander Sr. December 14, 2014 at 7:29 pm Reply

    Lisa, Thank you so much for posting the video with Suzy Cohen and spreading the word.

  40. Debs December 15, 2014 at 3:06 am Reply

    I have been floxed multiple times & In my experience of being around a long time & observing others, It is my belief that a great number of us eventually get to a place where we do FEEL recovered, & even a greater number WILL get to a place where we are VERY much improved, & although our lives may not be exactly the same as before this atrocity happened to us, in fact a great majority eventually do reach a place where this does not consume such a large part of our lives & it is not on our minds much, receding into the background a memory of another bad experience.
    A smaller number WILL have some long lasting issues, & an even smaller number will have some permanent damage. ( for instance I have FQ induced Chronic kidney disease, & specific cognitive issues,compounded by being given 12 years of cognitively damaging psychotropic drugs which are not going away anytime soon if ever ), however this is NOT surprising, also given the amount of times I have been hit & severity of my floxings )

    in my opinion one of the hardest things with FQ toxicity is that we need to adjust our way of seeing things in regard to this. We are in fact indoctrinated to believe from childhood that in the course of a ‘ normal ‘ illness , you get ill, for bit in a specific way, & then you recover completely, most often in a short space of time, this is NOT the way that floxing works , I in fact tend to have a habit of calling floxing a completely different animal.
    This is because fluoroquinolone toxicity works in insidious ways, It seems to have tolerance levels, it very often has delayed symptoms which can occur many many months after you are first hit, & for each of us It is also unique, insofar as each persons floxing is completely different in every respect when it comes to timelines of deterioration, improvement, relapse/ flares, right through to possibly getting to a place where we may feel recovered, & this also goes for subsequent floxings in the same person, every one of my floxings was different.

    So as far as the answer to the million dollar question is concerned ” Do we get recovered enough to lead a normal life ? ” my opinion on this, at least for those of us who greatly improve is YES with a few reservations. This is because our bodies physically are just not the same in respect to the connective tissues , connective tissue degenerative damage is a class effect ADR of the fluoroquinolones, & therefore every single person who takes a FQ floxed or not ( yet ) floxed, in fact WILL have damage to these tissues, to the tendons, to the cartilage, in fact ALL cartilaginous tissues of the body, & this damage can range from a slight softening of these tissues , not noticeable / visible on your usual scans,( often in those who have not YET been visibly / noticeably floxed,) right through to destruction of these tissues. I personally feel strongly that we must always take care of our bodies in this respect & be careful to try to avoid further injury, This is very important to keep in mind at all times, as many many people when first floxed just do not understand the mechanism of action of the FQs on these tissues, so therefore do not make allowances for this, seeing floxing tendon injury as your usual tendonITIS etc, & not realising it IS a completely different animal, in fact this damage is almost universally TendonOSIS ( although of course both can be present ), & this is why imo, it is so very important not to try to go too fast too soon in respect to exercise, it can often cause relapse due to the mitochondrial issues, & in fact be detrimental to the connective tissues, setting potential healing back further causing further damage, as can the wrong kind of physical therapy if the therapist is not made aware of this fact. I have in fact seen this happen to far too many people. In my experience, one of the limitations a lot of us end up having to deal with, is that for a large number of us we find that we no longer have the energy & ability to do certain things we could do easily before, & now need to pace ourselves, we find out usually eventually by trial & error that we need to adjust to a new ‘ normal ‘.

    • Daniela December 15, 2014 at 12:01 pm Reply

      Yes, and don’t be scared, the beginning is the worst! It’s not going to stay that way for long.

      Hopefully all this knowledge will prevent you from being refloxed. Happy recovery!

    • SM December 18, 2014 at 6:37 pm Reply

      Debs- I so wish I didn’t agree with you, but I think you’re probably right. There is a difference between feeling recovered and being recovered. Being in my early 40s now, I don’t plan to ever challenge my body in the same way I used to. Yoga and biking and walking and swimming are all gentle. I will never sprint my fifth graders as I did only two years ago. It isn’t worth it and I no longer trust my body. It’s not worth the risk to my joints.

      In terms of us all being unique in our experiences, I tend to think you’re right there too, though I wish you weren’t. I do think there are patterns in people. I do believe that those who are most severe tend to have certain similar experiences- repeated exposure to FQs, body-wide symptoms and disruptions, a lot of food and chemical sensitivities. I realize that this doesn’t describe all severe cases but there are some trends.

      Likewise, I think there are trends in more moderate reactions too- limited and more isolated injuries, a lack of extreme sensitivities, nagging and annoying symptoms rather than wheelchair and bedridden-like symptoms. So, I do believe that reactions can be categorized. That said, I don’t necessarily believe that severity translates into time frame of recovery. I used to, but I’ve met too many who seem very moderate but have reactions that exceed 2 years. And I’ve seen some people who seemed severe yet bounced back within 2-3 years.

  41. Peter December 15, 2014 at 7:13 pm Reply

    Its’ been awhile since I’ve posted on here and unfortunately I don’t have any good news. I tried an altered version of the “O2″ diet which focuses on eating high antioxidant foods (ORAC). I was taking in multiple containers of berries, tons of nuts, tons of vegetables, etc a day over a month long trial period. I didn’t notice any changes besides the obvious one of keeping me regular. I kind of put my last bit of hope into this diet and it failed me. Since then (Oct), I have developed black floaters in both eyes and all lights seem blinding. My purple finger nails still have not corrected themselves and my ankle pains are back in full force. It’s also been just short of a year of having a nose ulcer which prevents any kind of nose breathing. One and a half years into the medicine, I’m still not beating it or even slowing it.

    I read your stories and see people saying time heals it time and time again, but I’m not getting any of that luck. I’ve been dizzier, had more headaches, had my face burn more, etc, etc. There are too many symptoms to even begin to explain. While I can’t understand how to cure or slow this illness, I’m beginning to think this medicine speeds up your aging process.

    As with the last time I posted, I wonder. Has anyone found anything that is helping/curing you? I need a bit more than hope to enjoy my life. There are far too many days where this illness is making walking from my bed to the bathroom a burden. I’m functioning and working, but it’s an awful experience with a lot of pain, stress, and frustration.

    • Melanie kemp December 15, 2014 at 7:53 pm Reply

      Peter. I did recover pretty fully once and didnt do anything..just got better.
      unfortunately im now in a relapse and going down fast. Every day that goes by is worse than the day before. So I understand vthe frustration. I dont see an end in sight either and truth be told sometimes not even time heals

  42. Lucia December 15, 2014 at 7:24 pm Reply

    Every weekend i used to pay a visit this web page, for the reason that i want enjoyment, for the reason that
    this this web site conations truly nice funny stuff too.

  43. Patricia Marquez December 16, 2014 at 11:41 am Reply

    Short and sweet,
    If you’ve been fox by any of the floraquinolone drugs, you must treat it like a poison in your body that you have to get out. Immediately start detoxing drink tons of lemon water constantly untll your side effects go away, wash it out of your body as soon as possible!!!
    That’s what I did, when I first discovered that people were suffering, it scared me to see that people suffered for so many years, I told myself I can’t deal with that I’m watching this crap out of my body I mean it we started detoxing. Lemon water green tea lots of water tons of water tons of diuretic natural things asparagus etc.
    It felt like I had climbed 3 flights of stairs just getting up out of my chair made my muscles burn, and my tendons or so tight I had to be really careful especially in the morning.
    Luckily I was able to wash it out of my body, before I did any major long-term damage. I only suffered for three months. I feel really bad for everyone else that I read about that suffered for years and they’re still suffering.
    I stopped taking it on day 3.5, and started flashing on day 4, once I found out I basically had been poisoned,
    My best advice is to detox ASAP!!!

  44. Michael Teeter December 16, 2014 at 2:39 pm Reply

    Hello Gang,
    Mike here. Sorry it has been awhile since I posted anything. I just had my tooth pulled and on top of that I caught an intestinal flu so this is a sucky week! Anyway I am still alive and kicking.
    Mike

  45. Michael Teeter December 16, 2014 at 2:40 pm Reply

    I got these from the book “The Green Pharmacy.” byJames A. Duke, PH.D.

    Foods and herbs containing glutathione.
    Broccoli, asparagus, cabbage, cauliflower, potatoes, tomatoes, and purselane.
    Fruits with healthy amounts include avocados, grapefruit, oranges, peaches and watermelon.

    Horsetail (Equisetum arvense). This herb is one of Nature’s richest sources of the element silicon, and some say that it is in a form that is especially easy for your body to use. A number of studies show that silicon plays an important role in the health and resilience of both cartilage and connective tissues such as tendons. This herb can come in a tea form.

    Other plants high silicon include barely, chickweed, cucumbers, parsley, stinging nettles, walnuts, Brazil nuts, cashews, pistachios, string beans and turnips.

    Purslane (Portulaca oleracea) and other foods containing magnesium. Magnesium is an important mineral for muscles, bones an connective tissues. And since leafy green vegetables are a good source of magnesium. Fresh purslane, green beans, spinach and lettuce and poppy seeds.

    A good start to a floxie diet.

  46. Peter December 17, 2014 at 1:12 am Reply

    I can’t say this is a health fix, but I just saw a commercial on tv today about levaquin poisoning. I was a bit shocked. I found out that they changed their warning label back in Aug 2013, months after I took the medicine. Peripheral Neuropathy went from rare to common with months to years to never of damage to your body. Glad they are slowly fixing it I suppose. Money is no substitute for being healthy. This medicine has taught me that, but some money would help with medical bills and maybe if any is left, suffering. Something for you guys to consider if you haven’t yet.

    I’ll continue to stop in and see if anyone finds something helpful, but my O2 diet of pure health food and massive amounts of vitamin rich foods left me feeling hopeless. I was eating 2 cartons of raspberries for breakfast (to name some of it), 4-5 servings of nuts a day, 4-5 cups of spinach a day, 2 cups of green tea. Just ridiculous amounts of healthy food and didn’t see any changes. It’s so frustrating and disappointing. Forcing myself to eat more food (all healthy) than I could really stomach. The only thing I noticed was being overly regular.

    • Daniela December 17, 2014 at 11:16 am Reply

      Peter, not only are you regular, but you are up and working! Do Not Stop Whatever You Are Doing! Sounds like that healthy diet has given you enormous benefits.

  47. b December 17, 2014 at 6:09 am Reply

    Lemon may should be used carefully at the first beginning of being floxed, if we want to detoxify.

    http://www.consumer-health.com/services/cons_take14.php

    It is highly possible that lemons and limes could be related to the pummelo and could cause the same type of food-drug interactions ….

    There is no sound proof yet, but do not take lemon or citrus “too much everyday”.

  48. Daniela December 18, 2014 at 8:20 am Reply

    It’s been a long time since I’ve had night sweats or adrenaline surges in the night. I do sleep lightly and wake up at the crack of dawn, which is a huge change from before, but I do not wake up groggy or with difficulty.
    Also my “arthritis” is limited to popping early in the day and after sitting or not moving for a while. It’s been months since I’ve used turmeric powder on my tendons/joints. My heels are recovering faster in the morning, too. My shoulder is almost etter. My knee that went out right at the beginning suddenly got better from vigorous rubbing (after 2+ years!) and I don’t have to do anything with it.
    Still working on the vertigo but I think the brain fog is much better, too. High whining tinnitus is back at night, but the rumbling kind is gone.

    Everybody, try to think of this as being hit by a train — because that’s what it was, but from the inside. That’s hard with our own doctors denying what happened, but we need to know it ourselves. Thanks to Lisa!!!!!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Follow

Get every new post delivered to your Inbox.

Join 204 other followers

%d bloggers like this: