Welcome to Floxie Hope

Hope Clouds

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

An excellent support group for those suffering from Fluoroquinolone Toxicity can be found on facebook.  Here’s the link to the group – https://www.facebook.com/groups/floxies/

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

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2,296 thoughts on “Welcome to Floxie Hope

  1. Peter August 26, 2014 at 3:41 pm Reply

    So more bad news. I just started my job again and after 2 days of standing and teaching, both of my ankles are hurting terribly again. This is the first time for them since the June 2013 -January 2014 episode. I’m not having any luck in getting better. I thought I beat this ankle thing too, guess not.

    The other newest symptom I’m noticing more and more and can’t really say when it started is in my right wrist. In suddenly feels like someone stabbed me with a needle. The pain is intense and goes away instantly though. I had it happen today about 30 minutes ago. It was so bad that I ended up yelling loudly and jumping, scared the crap out of my girlfriend. Has anyone had these weird feelings?

    • rene August 27, 2014 at 4:43 am Reply

      Hi Peter,
      The first 2 years were the most challenging for me, and I too was very surprised and alarmed that new symptoms cropped up or suddenly manifested. The overall impression was that the more I was able to become active even in minor ways would reveal areas that were unknown to me. However it was still many upon many baby steps over the course of 3 years that I made the progress forward to be able to stand and walk, and eventually for longer periods of time,, and longer periods of time on cement as well.

      The best thing for you at this moment is to soak in Epsom Salt, or at the very least your feet/ankles. The other is to wear very comfortable shoes and apply mineral oil from Anciet Minerals in the mornings and again during the day on your feet and ankles. Whenever possible of course sit, and get off your feet.

      • Josie August 27, 2014 at 7:53 am Reply

        Hey you guys I have a question. :) when your eyes are slightly dry or just dry do you Get a ghosting effect from things? Like not double vision exactly but kinda like a ghosting effect around things?

      • jimmy August 28, 2014 at 9:34 am Reply

        hi rene, I am 15 mos out and have been doing pretty good. minor neuropathy in my feet, but tendonosis in my gluteus minimus and medius which is making walking difficult. So I’m trying to stay put so I don’t make things worse. Then last night, I had what can only be described as a burning in my arms and legs, a terrible night sweat, and i would wake up every hour or so as the pain was pretty much unbearable. I did forget to take my magnesium yesterday, and in the evening, took zinc just before bed, and also ate a small slice of melon after dinner which was very sweet –these were the only ways I strayed from my normal routine/supplements. I assume this was some kind of neuropathy and this morning, i hear a little more “popping” than usual. was i just going through heavy oxidative stress/ROS and or neuropathy? and any ideas if i Caused it with the melon or supp? and is there anything i can take to calm it if it comes back? is it gabba related? i do have some d ribose and kavanase my NP just prescribed and one of which is supposed to support gabba. should i do this? any thoughts/explanations/suggestions would be much appreciated. ps..even a little carpel tunnel feeling in both forearms this morning so must be nerve related?

        • Melanie Kemp August 28, 2014 at 9:47 am

          funnily enough I had some cantaloupe a few nights back and the next day. (Yesterday) was horrible. Stinging all over.Today not good either but mildly better.

        • rene August 28, 2014 at 3:07 pm

          Hi Jimmy,
          I am sorry you are hurting and this is kicking up…..You are always going through oxidative stress, this continues, and because it is chronic it depletes your glutathione. The strange occurrences you describe are just more of what you have already experienced. 1.5 months for floxed folk is considered the beginning give or take 8 months or so. Besides the magnesium baths, trans-dermal magnesium oil applied to local areas…the only thing I can think of is to do a vitamin C drip. That worked well for me…but not an absolute thing as far as relief. It did provide me relief…..you have to try to find out. Stay well hydrated….not forced but keep drinking water throughout the day. Rest, and dont fight it or stress about it. You kinda have to surrender during these episodes, which is what I did, and spent that time is as pleasantly as possible…resting watching happy movies, or sitting outside in the park when cool…..not be closed in by myself.

          FYI: read labels of all supplements if there is more than (1) ingredient. If you are taking anything to increase circulation & nitric oxide and it has the ingredient Theophylline – stop taking it. Will make you very much worse. However will subside after about a week to a month. Theophylline is a “methylxanthine. Methylxanthines are metabolized by cytochrome P450 in the liver.

          My overall sense is that detoxification is an issue…and cycles of mini crisis are the outcome. this is not a straight line upward in improvements its a jagged line with deep valleys and slow upward momentum.

        • jimmy August 28, 2014 at 3:33 pm

          hi rene, thanks so much for your message. i’m actually 15 months out, not 1.5 :(
          my story is that I had a very rough first 6 months, then at about 7 or 8 began to recover. by 8 months out I felt 85% recovered. most pain and neuro went away for many weeks, then at month 9 or 10 i over did it with exercise as I was pushing really hard (wanted my old self back) and i caused a relapse. and this time, i went downhill fast and had more muscleoskeletal issues than before. the neuropathy stuff is just starting but i am definitely on a bit of a downward spiral as new symptoms keep popping up, but they usually seem to come and go. the only thing that is taking some time to go is the tendonosis. which I understand can take months or years. anyway, i appreciate all your suggestions. would you mind emailing me at jimmybruhl@gmail.com and i could ask you just a couple other questions. it would mean a great deal to me. thank you.

  2. Michael Teeter August 27, 2014 at 2:02 pm Reply

    Well I went to the neurologist and she said that It is not neurological. She referred me to a rheumatologist. Huh that is exactly what I wanted in the first place. I was prescribed a low dose of Neurontin for pain. Anyway another day another experience.

  3. Mark August 28, 2014 at 5:01 am Reply

    Using an ad-bot on THIS site?

  4. Josie August 28, 2014 at 7:24 am Reply

    Hey you guys! So I have a symptom that’s always been there lately, it’s kinda weird to explain I guess! So like, if I go in my bathroom at night (only at night I see this which is strange maybe it’s more pronounced cause I’m tired and what not) but when I look left to right, or whatever I get two big huge black lines in my vision that are just huge. and they kinda flicker I guess? And what else I have always had (always thought it was due to the static) is during the day if I look at something It looks like it’s vibrating slightly and my bottom vision and side vision have a noncolorless flash in it, it’s not a flash but it makes everything look like it’s vibrating/flashing in my vision. and I have been REALLY REALLY REALLY stressed out this past week and a half.. and last night I went into the bathroom and obviously I test it out to see if it’s still there or whatever, and I looked and there was a lot more lines than usual and it stood there in my vision for maybe 20 seconds or less.. and I don’t know if my visuals are getting worse or if my anxiety is creating all of this and making it worse? Can someone please shed some light on over here? I was up all night walking around testing my vision and freaking out. I was doing so well and I can’t help it! I don’t think it’s got anything to do with my birth control considering I’ve only been on it for like two days.. :P I’m so scared things will get bad that eventually things will look like theyre shaking badly like words and stuff (though that’s not happening… hopefully it doesn’t) I have to graduate this year and I plan on moving away from my family and I’m absolutely terrified of things getting worse… :( Can someone shed some light over here? Do you think my anxiety could be making me freak out more about it? I’m gonna try that aplha lipioc acid thing that Sheryl suggested but I’m kinda scared about it… I don’t wnat this to get bad where I can’t drive. :( So scary..

  5. Heather Rayne August 28, 2014 at 9:34 am Reply

    Got a call from the GI RN. My liver enzymes are within normal range!! Horray! She said that the Dr is sure it was all from the antibiotic. She said tho that I could go to an allergist and be tested. I had no idea they could do this. I doubt I will because I am not sure what that would entail but it sounds shady to me. She said they won’t need to see me again until I am 50 and need a colonoscopy. I told her would await anxiously lol.

    Chiro said he notices significant improvement in my joints and muscles. Just need to keep up with therapy and hopefully I will one day be back to normal…or maybe if I am lucky – even better now that I won’t be losing so much blood each month.

    Worst 6 months EVER!!! I can’t want for more positive changes.

    • Angie August 28, 2014 at 10:08 am Reply

      Heather that is great! I went to PT yesterday and it went well. We did light stretches. Are you seeing a regular chiropractor? The ones I’ve been calling only deal with car accident related injuries.

      • mark August 28, 2014 at 11:02 am Reply

        Angie how far out are you?


        • Angie August 28, 2014 at 1:00 pm

          Mark I am 10 months out. Unfortunately in the very beginning my doctor wouldn’t acknowledge that my symptoms could have been cipro related. Although I’ve never had joint problems prior to taking cipro. So I’m getting a late start with supplementing and everything else.

  6. Melanie Kemp August 28, 2014 at 9:55 am Reply

    could you possibly E mail me if you get time.
    I feel like im going down fast.Its a repeat of 2010 and im really lost here
    Thank you

    • Josie August 28, 2014 at 1:27 pm Reply

      Hello you guys. I went to a stir where they sell supplements and bought this supplement called ocu support it’s suppose to help with visual things lol and also liver detoxifier and regenerator lol.. Anyone ever hear of these or try them?

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