Welcome to Floxie Hope

Hope Clouds

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics - http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 - more news stories, research papers and other resources can be found on the “Links and Resources” page.

An excellent support group for those suffering from Fluoroquinolone Toxicity can be found on facebook.  Here’s the link to the group - https://www.facebook.com/groups/floxies/

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

1,695 thoughts on “Welcome to Floxie Hope

  1. Josie July 20, 2014 at 1:18 pm Reply

    Another thing Ihave burning in between my shoulder blades.. what did you guys find that helped you to relieve that? a cold shower/hot?

    • rene July 20, 2014 at 4:19 pm Reply

      All the pains you are experiencing due well with warm/ moist heat:

      Epsom salt bath!!! Your “cells” need the Magnesium”
      Ancient Minerals – Spray- (0il) you spray on your palm then rub into areas. Let absorb then wipe down excess dried film with warm cloth. After it has fully absorbed 15- 20 minutes later.

      What is absorbed through the Skin is more profound to get to areas of need. When Oral magnesium is taken it is important but will not get “into the Cells” like is needed for this unusual injury.

      You can also use a Heating Pad / that offers option of moist heat. Inside the pouch is a thin square sheet of a sponge. That is made wet w/water…then squeeze out excess water and place sponge flat inside the heated pad. Then place on your area of your back between shoulder blades.

      Maybe your grandparents or aunt can help you too….with getting supplements and support. Just a thought….

      You can also have your parents look at the video of the news story done on PBS NEWSHOUR about the injuries these drugs cause. That will get their attention. They will understand that this is not in your head…..this is real for all.

      Certain Antibiotics Spur Widening Reports of Severe Side Effects..

      • rene July 20, 2014 at 4:21 pm

        PBS NEWSHOUR about the injuries these drugs cause.

        Google this with your parents:
        Certain Antibiotics Spur Widening Reports of Severe Side Effects..

  2. rene July 20, 2014 at 3:57 pm Reply

    Hi Josie,
    This is a whole body, systemic injury. The tendons & muscles & the peripheral nervous system & the Central Nervous System are effected. Therefore, the anxiety you have is understandable because many experience mental anxiousness, sleeplessness, Sensitivity to sounds, or speedy thinking that feels jumpy. The list of supplements do address all of these issues…in a whole body way. Think of supplements as food for a garden that has been poisoned. By adding nutrients to help reestablish a more “hospitable” environment to better handle the burden on the garden from toxins. Allowing assistance to the many processes that occur every second of the day.

    The Magnesium Sulfate -Epsom Salt Baths will help with the inflammation in your body, including your swollen knees.

    Magnesium Citrate – is well absorbed and yes the form is important. I will explain another post. These differences are as you have already experienced can be very important.

    The Omega 3 – Nordic Naturals are significant for your BRAIN too. If you have any twitching sensations under the skin, in your arms or legs, that is the peripheral nervous system and central….you may benefit from: 5HTP tryptophan which will help with your BRAIN and mental state. This can be found online or at health food store, Vitamin Shoppe or whole foods if local to you.

    The antidepressant medication has been used by some, and helped some folk. I did not need or want them. Why do you think you do? Tears, worry, anxiousness, feeling down are all normal for any illness or hardship. If you have some relief of Body pains, inflammation, then your overall sense of well being will lift hand in hand.

    Non pharmacuetical options
    Lavender Oil –
    St. John Wort-
    Omega 3 – Nordic Naturals

    I say this because avoiding Pharmaceutical Drugs is preferable.

    Here are (2) Naturopath Clinics that are close to your area. I did a search that I hope will provide an option for you to get care. There are very few doctors in the country who have any knowledge or experience with our injuries fro these drugs. However they are Naturopath ND who are willing to research and work with you!

    Michele Nickels ND

    16535 W. Bluemound Rd. Suite 222
    Brookfield, WI 53005
    United States

    Phone: 262-754-4910
    Email: mnickels@standardprocess.com
    Website: http://www.drnickels.com

    Cedarburg Women’s Health Center
    W62 N225 Washington Ave
    Cedarburg, WI 53012
    USA

    Phone: 262-376-1150
    Email: mnickels@standardprocess.com

    I can email a letter that was written by an MD to you which you can submit to any physicians that you see. It is helpful for the initial start of a conversation with doctor. You will be educating them too.

    God Bless You Josie,
    Do get those supplements when you can!

  3. Josie July 20, 2014 at 4:37 pm Reply

    Thank you. Really nervous right now. Trying to take deep breaths.. Legs hurt really bad..
    Please pray for me..

  4. Josie July 20, 2014 at 4:38 pm Reply

    Oh I showed them that already.
    My mom is starting to believe me but she still wants to rule out other possibilities..

  5. Josie July 20, 2014 at 6:05 pm Reply

    My archillis is sore in my ankles. Any suggestions?

  6. rene July 20, 2014 at 11:18 pm Reply

    Dear Josie, Yes you are in my prayers! Show your Mom more articles from the New York times, Forbes,…etc. There is a lot of information so keep presenting it to her. She will be your greatest advocate! Have your Mom get the Epsom Salt tomorrow! Do not put this off! very important. ASAP. This will help with all the area you are hurting and start you getting what your body needs. Your whole body, you will treat your whole body.
    Google the link below.

    http://www.medicationsense.com/articles/jan_mar_04/congress_ltr.html

    • rene July 20, 2014 at 11:20 pm Reply

      Forbes article by Melanie Haiken, “Antibiotic Alert: The Drug the Doctor Ordered Could Cause Deadly Side Effects”

    • Josie July 20, 2014 at 11:21 pm Reply

      Thank you. In nervous cuz my arms going numb but I’m trying to keep a positive thought…. I will buy those tomorrow. Also, some magnesium. What kind should I buy? :) and I have vitamin C also..

    • Michael Teeter July 21, 2014 at 10:19 am Reply

      Josie,
      Give you Achilles tendons a rest. Don’t over do. Just out of curiosity what medicine were you floxed with? I used what is called DMSO on mine it really helped me sleep at night because it relieved the pain. It does have a weird smell though just FYI. I would also take a
      liquid glutathione and vitamin C and Magnesium.

      I hope everything works out well for you.

  7. Debs July 21, 2014 at 4:40 am Reply

    Hi Josie

    Speaking as someone who unfortunately has had a lot of experience of these drugs & the psychiatric system & thus has done over 14 years of research on the Drugs & the science IMO, if you can avoid doing this I would do so , these drugs can cause a lot of problems for many people, not least that they are hard to get off of them once you start taking them let alone the physical changes they cause in the brain . these can cause chemical imbalances that are not there before you start taking the drug. Believe me, .The ‘ science’ of psychiatry has a lot to answer for. It has been shown that therapy is just as effective as antidepressants in many people, so if you can access this first I would strongly suggest doing so BEFORE going down the psychotropic drug route
    If however you DO decide to go down this route PLEASE try to also get therapy alongside it, as this has shown to be far more effective,take it at as low as a dose to be effective for as short a time as possible , & then IMO this is VERY important get yourself OFF of it if humanely possible, Psychotropic drugs by the way have never been tested in clinical trials for long term use believe it or not.

    I am someone who feels that we should all get our own informed consent on any drug we are prescribed as of course this is how so many of us ended up floxed. One VERY important thing to keep in mind re antidepressants / antipsychotics benzos etc is this : Do NOT expect ANY psychiatrist to give you informed consent on psychotropic drugs, there are HUGE conflicts of interest in this profession, them being paid handsomely for every drug they prescribe, & at least. 69 % of the task force involved in voting in the new ‘diagnoses’ included in the latest DSM IV have ties to the pharmaceutical industry. This is why you must always do your OWN research on these drugs PLEASE Josie & everyone here, make sure you research any psychotropic drug you are given, in DEPTH, BEFORE you decide to take it. I can recommend Drugs.com as a good place to start.

    • Josie July 21, 2014 at 5:35 am Reply

      Thank you. I’m going to the store today to buy some things. What kind of magnesium should I pick up? Normal kind? Citrate? Any other kind of mineral or supplement do you guys recommend I get?

    • rene July 21, 2014 at 5:49 pm Reply

      Hi Deb,
      Thank you so very much for your post regarding Psych drugs……they too are given out way way, way to casually, and the idea that has bombarded the public for several years is that these Drugs or others some how “heal” people from whatever the things is. When in truth they are all so so dangerous…….. only in extreme circumstances after all other non risk healthy means have been exhausted. It is normal to cry, feel lousy depressed when you hurt or lose a friend,….but as long as you have the ability to smile, laugh, enjoy through out the hardship….then altering the chemicals in our brains with synthetic toxic chemicals is not good medicine. This is in no way meant disrespectful to those individuals that are truly psychotic. But people need love, and others caring about them. Always will be the medicine for all.

      Long before this Cipro journey, years ago so many people I knew whose family member were given these psych drugs just to elevate their mood and they all got addicted, and worse….lost their jobs from erratic and outrages behavior. Our Brains have not finished developing till 23 years of age!

      Anyhow, Thank you
      God Bless

      • Debs July 22, 2014 at 12:33 am

        Hi Rene,

        Thank you for your reply, There is a very good reason I have spent so many years looking into the ‘ science’ of psychiatry & the drugs, I unfortunately have a horror story all of my own,( which echoes to a great extent Stephen Frieds ( author of the very good book ‘ BITTER PILLS ‘ wife Diane, who also had a severe neuropsychiatric ADR from a FQ, & ended up with a diagnosis of bipolar disorder.) The first time I was floxed I was given FQs for a UTI, took 2 pills & literally within a few hours of starting them I went into acute toxic psychosis, I do not remember anything much about this . but when I eventually woke up, I was in hospital attached to an IV many days later. This acute toxic psychosis then triggered a neuropsychiatric ADR which mimicked, unfortunately was then mistaken for, & was eventually misdiagnosed as bipolar disorder.

        I ended up losing the next 12 YEARS of my life.

        In the space of those 12 years, I was force fed so many of these horrendously neurotoxic drugs I ended up a walking pharmacy, NOTHING worked, & over time I became SO very seriously ill they did not know what to do with me,& I had to be referred to a neuropsychiatrist, unfortunately this too was to no avail.
        Eventually I made the decision that if none of these drugs were working for me, there was absolutely no point in continuing down this road. I decided I wanted to stop them, & actually managed to eventually find a psychiatrist who who was prepared to work WITH me on this.

        To my absolute horror, when these drugs were eventually stopped It turned out that my neuropsychiatric ADR, triggered by the FQs had gone a long time before, & these psychotropic drugs were actually CAUSING the VERY symptoms they are ( so we are led to believe ) meant to treat. The chemical changes in my brain induced by these drugs had actually triggered false mood swings in me, the antidepressants artificially lifting my mood to the point it precipitated mania, I was then being prescribed the an antipsychotic to ‘ treat ‘ this mania ), which then pushed my mood down to deep psychotic depression.

        After many years of deep research into the above, following the discipline & science back to the source, via the history of psychiatry itself, studies done, peer review, withheld studies / clinical trial results, I myself consider the evidence is damning & overwhelming, therefore I have but one thing to say & it is this : That in my informed opinion ( & you will find this is the opinion also, of others who have done this deep research, ) I am in no doubt whatsoever that the so called ‘ science’ of psychiatry , the biological model of psychiatric illness, which claims that mental illness is CAUSED by a chemical imbalance in the brain is FALSE, the ‘ science’ of psychiatry is based on a VERY unstable house of cards indeed, & just does NOT exist.

        If anyone wants to look into this subject further, please do not hesitate to let me know, & I will be more than pleased to post some links.

  8. rene July 21, 2014 at 10:51 am Reply

    Besides the supplements I already urged you to get…..These are also very important.
    Zinc citrate 50 mg –
    Vitamin D3- 1000 IU or higher

    • Josie July 21, 2014 at 12:15 pm Reply

      My doctor was very understanding. She said she thinks this is coming from the cipro and she urged me to try and stay calm. I bought Epsom salt and magnesium for now. Things feel a bit better today. Was running a high fever though at the doctors. Did some driving today as well. –going to the beach with a friend in a bit! This website is great! Will be doing further testing too because I was a premie baby and was only one pound and thirteen ounces. So, we want to rule out other things and go from there… :)

      • Josie July 21, 2014 at 12:55 pm

        Michael, it was cipro! 250 mg twice a day for ten days. Only took it for seven days!

  9. rene July 21, 2014 at 1:00 pm Reply

    Dear Josie, I am so glad to hear that everybody is coming on board with understanding that Cipro is responsible for all that you are going through. I fully understand & respect that your family wants to be sure that there are not additional issues behind the symptoms you are experiencing.

    I also had numbness in my arms, and the other things you mentioned. I do not have most of them anymore. Please be cautious about activities that cause impact on tendons, and joints, which includes your Achilles tendon, elbows, wrists, shoulders, hips, knees…..take it easy with fast sudden movements, like going up or down steps, or a curb.

    Stay hydrated!

    • Josie July 21, 2014 at 1:04 pm Reply

      Thank you Michael! I know when I walk up the stairs and down them I do it very slowly. I’m also doing very very light stretching. Making sure to walk around a bit too! :). Was very happy I was able to drive today. I cried.. :) first time sense getting my license…. :)

      • Josie July 21, 2014 at 1:05 pm

        Rene, you’re a sweet heart my love! :)

      • Josie July 21, 2014 at 2:53 pm

        So the doctor called and said my vitamin levels and blood work came back good. I’ll be seeing a rhuemo and a neuro (sorry I don’t know how to spell them) I also have static in my vision, tinnitus, loss of appetite, and floaters. All that fun stuff were usually exposed to I’m sure… ;) got my Epsom salt too today can’t wait to relax in te bathtub with that!!! :) I can’t wait to drawl in my bed and watch some friends though… It’s been a while since ive felt OK… I feel OK today.. Minor aches and pains but nothing like yesterday. I think the positive attitude has something to do with it!

      • rene July 21, 2014 at 4:15 pm

        Hi Josie, All of us have had eye issues,floaters, vision going fuzzy, or blurry….tinnitus, and weight loss, regardless of appetite. I myself am petite. Though i am an 5.5 adult weighing 115 pounds, I lost weight….my clothes were loose. This is normal for this Cipro injury.

        Thrilled that your blood work looks good! However you still need those supplements. it is a cost out of pocket that is a investment in your healing. There are thousands of us, all over the country…and this is what has made the difference in our recovery. Think about how easily a drug is prescribed….but the minerals, vitamins, fatty acids Omega 3..etc somehow are pushed in the background. Dear Josie, do follow through with these basic recommendations, they are food for the garden which is you. The burden on your systems is great and therefore need support will contribute to take on all the inflammation/pain that is occurring. Every day is a baby step, lots of little bitty baby steps.

        Would be helpful if you keep a medical journal..that you can write out what you are taking, and how you are feeling. if you change something or add something write it down in your journal…and what the dosage is. If you walk to the driveway and back 4 times it’s ok…but if you did that and walked down the block it was too much. So you can see your progress over the months. i did this and it was wonderful t have it all written out for to check and see what i did…

        One detail I want to stress….read the ingredients on “everything that you eat or drink” or take as a supplement. For Instance, just because you buy a bottle of Zinc Citrate…read the label to be sure there is nothing else in it. You do not want or need anything added like (magnesium (stearate)- which is junk. Buying Epsom Salt – Do not buy if it has anything “But” Magnesium sulfate.

        Do NOT ever use it if it has Aspartate or some other cockamamie thing in it. Aspartate is an “excito-toxin” to the Brain & Central Nervous System- (its in sugar free stuff like gum, beverages, Gatorade…packaged foods etc). Aggravating the CNS /Brain is to be avoided, as it also can kick up pain. MSG, Hydrolysed or Autolysed yeast, protein, or anything do not eat. I know you must be stunned that there is so much garbage in everything that is produced/packaged…..but we all do our best to avoid it because each of us have experienced the great benefit of do just that. Eating food that has not been messed with, or is pretending to be a food. Our bodies are designed to heal…which we can give thanks and praise to God for! He have given us everything we need…we are made up of all these wonderful things like minerals, and proteins, and fatty acids, they really are the raw material that is of life.

        You are getting quite an education in all this, but it is necessary. Thrilled to hear that you had time enjoying Life! That is so so important, and yes a positive faithful attitude and decision that your healing is and will be.

        Be Strong and of good courage, fear not, nor be afraid for the Lord thy God, he it is that doth go with thee: he will not fail thee, nor forsake thee. Deuteronomy 31:6

      • Josie July 21, 2014 at 4:29 pm

        Thank you rene! So far I’m starting out with 500 mg of magnesium. Should I increase it?

      • rene July 21, 2014 at 5:29 pm

        Wow, Josie 20 minutes is considered very long for those of us injured by Cipro.. Ok, here is what you need to know… if you hurt a whole bunch tomorrow that is your reference to know that you can walk but for “shorter period” of time. Also walking on cement is harder than say grass or a dirt path/road.

        500 mg of Magnesium Citrate is good. ORAL Magnesium can give you a “loose bowel” at 600 mg.

        ORAL Magnesium the dosage is 400 – 600 mg maximum. Not more than that.

        You do not have to wait till the evening for the Epsom Salt….why hold off, when you body is needing help ASAP. Don’t delay if possible. You do not have to have the water piping hot. Just so that it is comfortable for you to soak till your finger pads get a lil wrinkled like or you had enough. When you get the Transdermal Magesium Spray you can apply that directly to your Achilles heel & arms….at bed time. And in the morning when you get up. 1x am 1xpm.

      • Josie July 21, 2014 at 4:29 pm

        Thank you rene! So far I’m starting out with 500 mg of magnesium. Should I increase it?

      • Josie July 21, 2014 at 4:36 pm

        Just walked a 20 minute walk with my dog. Relaxing now…

      • Josie July 21, 2014 at 5:44 pm

        Thank you! I just did it. ;) how many cups should I put in there though? 2-3?

      • Josie July 21, 2014 at 5:54 pm

        Taking a bath is the most relaxing thing. Don’t you agree? The only thing that is bothersome to me the most — is the weakness feeling and just the slight minor aches and pains.. The eye symptoms and ear things I can live with fine! I don’t think I’m as severe as some seeing I can walk 30-to an hour without any pain in my legs… Which is weird! Last week I was running up and down stairs for two hours straight! I’m a huge work out fantastic. I do lots of crunches, butt work outs you name it.. Gotta look good for the next man I have you know? ;) lol. You know Rene, jus to throw this out there.. I keep getting a little bit nervous like.. I’m never gonna be able to go to college or date again… Like Ifeel like.. Scared… I’m not sure why? I mean I am sure I will be able to graduate with my class and what not.. But yeah.. I needed to throw that out there. I want to thank everyone for giving me advice and I’m sorry that right now I cannot buy all of the supplements you suggest but— I’m trying my hardest to be positive… :)

      • Josie July 22, 2014 at 7:29 am

        Also I was on Ativan and xanax for a month after gettig cipro. I was on them for a month off and on. I took two xanax last week and after that that’s when my symptoms spured up!

  10. Lisa Bloomquist July 22, 2014 at 7:49 am Reply

    An excellent web site with information about the dangers of psychotropic drugs is http://www.madinamerica.com/. Drugs are thrown at people with mental health problems way too cavalierly. I think that Mad In America provides a necessary counter-balance to our pill-popping culture.

    Informed consent is very important. Please make sure that you have the information that you need before consenting to any drug treatment.

  11. Josie July 22, 2014 at 9:56 am Reply

    i just want to say that today i feel awesome! I can walk perfectly fine and i have no pain any where but besides my back which is from scoliosis!!

    • Liz July 22, 2014 at 11:53 am Reply

      I would be very cautious about feeling “ok.” I felt “ok” for months after taking Cipro before the bomb went off

      • Liz July 22, 2014 at 11:54 am

        Not to be a Negative Nancy, but I’m just saying to be careful!

      • Tim Featherstone July 22, 2014 at 1:10 pm

        Seconded, not being negative either, just realistic, you most likely will recover fully and permanently especially at your age, your healing capacity is great when your young but this Floxing thing has a nasty habit of going in cycles

  12. rene July 22, 2014 at 12:02 pm Reply

    Praise God Josie! Wonderful news.

    All of would probably agree that you may not want to go full throttle with impaction/ exercises….The injury manifest slowly over several months. Which is completely the opposite of what any of us would have thought possible…..This is only meant to be advance notice and caution so that you understand what is going on if you experience it.

    The weakness you are feeling has t do with the injury from Cipro on a cellular level. Meaning that the energy within the cell is low because it is dealing with massive amounts of “oxidative” stress. Vitamin C would be very good for you. You can take buffered Vitamin C up to 6000 mg. Spread out throughout the day.

    • Josie July 22, 2014 at 1:00 pm Reply

      I know! :) I’m happy. :) I will expect minor set backs! Even did some school work on the computer today:) got a call from my teacher and I’ll be able to graduate early!!!!!!! :)

      • Josie July 22, 2014 at 1:47 pm

        I know about the cycles thing! This is my second one.

  13. Josie July 22, 2014 at 5:38 pm Reply

    I swaer this day keeps getting better you guys… My favorite movie is On CMT (Country Strong) My lord.

    Hey, you guys the part from my wrist to my elbow hurts, whyy? Is that tendinitis? Or somethin I should worry about?

  14. Karen Haines July 22, 2014 at 6:43 pm Reply

    Lisa,
    I have been wanting to contact you and thank you for your posts about cipro toxicity. Without those posts I don’t know what I would have done. I was floxed by Cipro at the beginning of February for a suspected UTI, and I had taken it twice before and was fine. This time however,it hit me with a horrible reaction in the middle of the night with stomach cramps, muscle zaps, headache, and many other symptoms….I thought I was dying. Went to ER few days later when I had numbness in my face and arm. They tested me for a stroke, did MRIs, CT scans, etc, and all came back good, thank God. I was so desperate to find out what was wrong with me I googled and made many doctor visits, which was so not like me. I am 41 years old and did not have a primary care doctor until this happened. I saw many scary things on google I thought I may have, but when I found your site it was like you were speaking to me. I showed my husband the site, and he actually believed that this was what I had. It felt so good to know I wasn’t alone. It is now 5 months later, and I am improving alot! I only have some burning pain in legs and spine, but that is so much better than in the beginning when I was having pain and panic attacks (which I never had before), nightmares, and couldn’t sleep or do anything well. I just wanted to tell you thank you, for giving me hope when I so desperately needed it. I believe in prayer and I believe that God brought me to your site. I appreciate all you do for those of us desperately looking for answers and scared to death of what happened to us. Thank you again for your hard work for all of us out there affected by these horrible drugs! Karen Haines

    • Lisa Bloomquist July 23, 2014 at 9:01 am Reply

      Thank you so much for your lovely message, Karen! I appreciate it so much! I’m sorry that you are going through being floxed. It’s horrible, isn’t it? But I’m glad that you are improving, that you know what happened to you and that Floxie Hope has helped you!

      Hope, faith and knowledge are incredibly powerful tools. I’m glad that you have all of them. :)

      I’m back to having no primary care physician. This is in part because I’m now wary of doctors, but it’s also because I’ve always been someone (like you) who doesn’t have a PCP because, well, why have one when you’re healthy as a horse? I hope that you too return to your previously healthy state! It sounds like you’re on the road to it.

      Best regards,
      Lisa

  15. rene July 23, 2014 at 1:57 am Reply

    Dear Deb, Bravo to you! I have the greatest respect for you, knowing that during the midst of your health crisis you researched and educated yourself instead of relying on what the “experts” were selling. I can only imagine what that was like, navigating your symptoms while learning, and discovering the truth for yourself. It is so disappointing how crooked everything is….But now we know….and so we do the work and educate ourselves and keep our hands on the wheel…and drive the car.

    My own similar story was 16 years ago I was quite ill, and without diagnosis though many lab test…I began my research into all things pertaining to holistic health and after a gazillion hours, months, years, of studying viruses and bacterial infections zeroed in on Gulf War illness, & Lyme. Researched both extensively and utilized a specialty lab and bingo Lyme disease. Long story short, the same disbelief and rejection from medical experts, & sometimes family about my condition was really mind boggling and lonely. Cipro same deal. I was offered Pysch drugs, and hugs from bozo md’s who thought that was showing compassion?
    Over time, I became quite proficient in taking care of myself and finding people who helped me through with holistic modalities. I led mostly a normal life until the (3) Cipro tablets. But by then, I had a developed such a strong foundation of my faith in God and how beautifully we are designed…that I became a warrior for my life. Really is such a marvel..that regardless of the medical community that had nothing to offer but more harmful drugs that would complicate things and worsen my condition…. I got busy with getting well and forgave everybody for not being able to help…and researched till i felt I had enough understanding to embrace the idea that I had absolutely had a chance of recovery. 2 years I was in a wheelchair, and knee pads (for the floor- to drag groceries through the building) and all the rest that people experience from “fluoroquinolones”…..Now I stand and walk, and am nimble on my feet but cannot run. It took about 3.5 years.

    Let me just say, that I am just so very very happy that you made it through all of that and you followed your God given ability to seek out the truth, about the whole world of psychiatry and psych drugs…..Tom Cruise spoke out about it and was scorned for doing so. Confusing to me, because his message was very clear. Street drugs are safer which is very telling.

    • ursula July 23, 2014 at 4:45 am Reply

      hi rene i am n 10 months mefloquine sufferer, we have the same symptoms than the floxies. i cant be part of this group because its not a floraquinolone. Can i have your private email adress please. Mine ursulamardon@mweb.co.za
      Thanks Ursula from RSA

      • Josie July 23, 2014 at 8:16 am

        Rene, how long after you took cipro did you end up in a wheelchair?

      • Lisa Bloomquist July 23, 2014 at 9:12 am

        Hi Ursula,

        You are more than welcome to be part of this group and your insight is greatly appreciated! Quinolines are cousins of quinolones and melfloquine is a nasty, nasty, nasty drug. I’m so sorry for all that you are going through because of it! I think that healing from quinoline toxicity is probably similar to healing from quinolone toxicity and I hope that the stories on here help you!

        Regards,
        Lisa

      • rene July 23, 2014 at 11:15 am

        Hi Ursula,
        I agree that the same issues and means to address those issues that you have ,would be the same interchangeably…Cipro, Levaquin, Avelox, all have slightly different molecules but they are of the same class….Mefloquine is not in the same class however, brain/ CNS injuries from toxins need the same food/nutrients as everybody else.

        Omega 3- Fatty Acids from Fish Oil (Nordic Naturals) are super important for me….2500 -3000mg daily split am & pm. When I run out, within a week, I decline neurologically…..nobody would notice but me & the Chiropractor- Neuro -Kinesiologist I see. He muscles tests and my body never fails to tell the story of what it needs biochemically if something is lacking.

        The other is 5- Hydroxy- Tryptophan which gives me safe Serotonin support…again ties into neurological support that I need.

        I also take Lithium Orotate: 5mg tablet cut in 1/4 pieces…..then mash a 1/4 with pestle into powder and dab a (1/2) of that powder (only) on to my tongue…1x day. This is Lithium Orotate the trace mineral, NOT the synthetic pharmaceutical form.

        The benefit of taking this trace mineral, in this specific way is because I have issues with my “methylation pathway.”….which amongst many crucial biochemical processes of detoxification, inflammation, mood, immune function..also relate to how B12 is utilized in that pathway.

        I have a great need for Vitamin B12- but due to genetic vulnerabilities, that were overly challenged by Lyme and the a bigger whammy for me Cipro ……the safest way for me to supplement with B12 and not ramp up unwanted issues w/my specific underling vulnerabilities is to take these very small amounts of “Lithium Orotate” which transports B12 (that is laying around) into the CELL. My genetic mutation regarding how I process B12 leaves me with an issue in just supplementing the usual route.

        Some of us have issue with B vitamins, and worsen when we take them….however we still need them for our gut, digestion and a gazillion other good things. This allows me address in a safe way one small part of a pathway that still needs much careful support.

        This tiny dose of Lithium OROTATE helped my neuropathy’s improved in my limbs, most markedly in one leg that was severe.

    • Lisa Bloomquist July 23, 2014 at 9:09 am Reply

      Hi Rene,

      The human body is truly amazing, isn’t it? The more research I do, the more I marvel at how intricate and complex we are. And I’m astounded at how little we, collectively, know about our own biology. Yet, we (collectively) consume chemicals masquerading as “medicine” to heal and fix ourselves, not knowing that we are actually doing more harm than good.

      I often wish that I hadn’t learned that lesson. Maybe it’s a blessing to know it though.

      I’ve started (but gotten stalled out) a post about feedback loops within our bodies and how each system works together. When floxed, we get into a lot of negative feedback loops and everything goes downhill for a while. I thoroughly believe though, that our positive feedback loops that keep us alive and strong, are more powerful than the negative feedback loops that happen when we get poisoned. The human body has amazing healing powers. I’m so glad that you know how to harness yours!

      And thank you very much for all of your input on here! Your insight and support of fellow floxies is greatly appreciated!

      Regards,
      Lisa

    • impossibleadversity July 23, 2014 at 11:53 am Reply

      I wanted to try lithium orotate but I was too scared of the reports that it can ruin thyroid function.

      • Lisa Bloomquist July 23, 2014 at 1:55 pm

        Be careful, for sure.

        Brewer’s yeast has trace amounts of lithium in it. So far, I am a big fan of Brewer’s yeast. The only bad thing that I’ve heard about it is that you shouldn’t take it if you have a history of kidney stones.

      • Mark July 23, 2014 at 1:59 pm

        Hi Lisa,

        Isn’t brewer’s yeast supposed to be bad in regards to candida overpopulation?

        Candida binds fluoride molecules and other poisons right?
        Did you try an anti candida supplement and diet regime since recovering?
        I’m wondering if the candida could’ve bound to the fluoride and if there’s a danger that it could release it again later on?
        Just wild imagination I guess…

        Mark

      • Lisa Bloomquist July 23, 2014 at 2:39 pm

        I have heard that, Mark.

        I have largely felt better after supplementing brewer’s yeast. As with all floxing remedies, what helps one person may not help another. Brewer’s yeast helped me (I think), but that doesn’t mean that it will necessarily help anyone else. It may even make some people feel worse. I’m sure that there is plenty of science behind our different reactions, but since this whole issue is so under-studied, we are, unfortunately, left to figure stuff out on our own. I like brewer’s yeast because, a) I think it makes me feel better, b) it has lots of trace minerals and nutrients that aren’t found in many other foods, c) it’s a food. For me, it was worth a try and I’m glad that I did try it. I completely understand that there are reasons to avoid it too though. I advise listening to your body and doing research more than I advise anything that I did or took. It would be really nice if there were a treatment protocol that helped all of us.

      • rene July 23, 2014 at 6:42 pm

        Lithium OROTATE is – NOT – the same thing as Lithium chloride or Lithium carbonate.

        Very big distinction. Orotate is Oratic Acid….Again We have an example of a trace mineral that has been demonized because of the form that the Medical Establishment uses for Psychiatric issues that caused AR – Adverse reactions because they are using Chloride or Carbonate which are not well absorbed at super high doses of 350 mg.

        The dose I am taking is (1/8) of 5mg of Lithium Orotate which is that my body needs. Others safely take 2.5 mg – or – 5mg. Some more than that. Depending on their deficiency.

        For the chronically ill, with Neurological diseases, Lyme, MS…etc. this mineral has found to be extremely low. Therefore introducing tiny amounts as I have, for a week or longer to determine how I feel before increasing dosage is the way to find out.

        I was pleasantly surprised that 0.625 was all I needed to have a positive response with my Peripheral neuropathies. Within 48 hrs. When increased to 1/4 of 5mg it was still good. More than that it made me feel a bit stupid for an hour….I resumed using the lower dose of 0.625 mg or 1/8th of (5mg). I have been at that dose for a couple years. No need to change it.

        However, this will not apply to those that do not need to supplement Lithium. Urine test for minerals takes the mystery out of the individuals mind. I did the at home trial & error. One bottle last over a year because it is just a tiny amount of powder on my finger pad placed onto my tongue.

        Hope this helps clarify this better.

  16. Mike July 23, 2014 at 10:30 am Reply

    Rene, I’m 2.5 years out with increasing pain and dysfunction. Many problems from Cipro…. I’ve been running out of hope. Thank you for sharing. Reading your posts gives me hope! What helped you the most? You can respond on here or send me an email mab2006@msn.com

    God bless….

    • rene July 23, 2014 at 12:17 pm Reply

      Hi Mike,
      I am sorry to hear that you are hurting, i dot know what you have done of know so It was a comprehensive approach, in that one with out the other would not be sufficient.

      A) I had all my hormones levels checked: Estrogen, Progesterone, Testosterone, Thyroid T3 T4, DHEAS, Pregnenolone. I was low in everything. Supplementation was only with bio-incidentals. NO synthetic pharmaceuticals. These supports were deployed by trans-dermal cream or tablet. Hormones have a huge say in many processes in the immune system and Brain and everything else…..The idea is how to treat yourself holistically. Whole body….not symptoms. Symptoms indicate issues with systems. Endocrine effects all the other systems.

      B) Vitamin D levels……Crucial! Vitamin( D3) supplementation is profound if your levels are low.
      Mine were low. I take 10,000 IU daily from Thorne Research (excellent quality brand) and just one small Vegetarian capsule! Vitamin D3 is a hormone…..very profound need by all. The United States is deficient.

      C) Get Vitamin C Drips! This will wash the cells with anti-oxidants which is needed for such a great burden of Oxidative stress on the body….hence the pain. Cannot be achieved by oral Vitamin C, (1.5 hours or longer for an IV but well worth it, no joke) Your Cells will love it.

      D) Take ZINC Citrate – USA everybody is deficient.

      E) Avoid MSG, Natural Flavors, Hydrolyzed or Autolyzed anything! Do not use artificial sweeteners!! they are very toxic to the brain. Nothing with Glutamate….makes pain worse. No to chewing gum, and fluoride toothpaste.

      F) purchase from LIFEWAVE on line the ” Y-AGE Glutathione Patch”.
      Helped me tremendously, with fatigue, some kinds of pain, brain alertness, and sense of well being! This is non-trans dermal patch worn on meridian points. Nano- technology raises the glutathione levels within the body. The body will make more of it’s own. Nothing goes into the body. Instructions will come with it where to place it on your leg or foot or abdomen. They ship all over the world. The guy behind it came out of Nassau. Will be worth you purchasing for approx: $80 US dollars for 30 day supply.

      If you become a member the price drops. (You do not have to buy monthly) You can rotate patches. Take off at bedtime or may not fall asleep. The fatigue is because of the high Oxidative stress happening……counter by doing the mentioned above.

      G) Trans-dermal Magnesium Oil… after 20 min…wipe off excess lightly with wash cloth. keeps skin from drying out. Very helpful. I bought on line from Ancient Minerals. The spray – sprayed into my palm and applied to hips, legs arms as needed.

      H) Epsom Salt Baths – Magnesium can be absorbed into the cells far better than just oral Magnesium. Helps alleviate the pain to various degrees. Do not underestimate the benefit.

      I) Avoid packaged food –

      J) Drink water through out the day!!!! Everyday….you don’t have to guzzle, but drink through out the day…Hydration very important.

  17. rene July 23, 2014 at 12:32 pm Reply

    Josie, I needed crutches the first week because my foot began flopping, and I was very alarmed that I might injure myself, tear or rupture a tendon. The wheel chair came 3 months later I I believe….I was exhausted from trying to do get around with crutches..the 7th month new issues started with my arms becoming very painful. I also needed to be out and about so I could keep my spirits up. Living alone was not easy, and then 1.5 years later I moved in with family. The wheelchair gave me some independence and speed which was a great lift to my spirits and sense of freedom.

    • Josie July 23, 2014 at 1:12 pm Reply

      Oh my! I hope once I recover that It doesn’t come back! :(

      • rene July 23, 2014 at 1:50 pm

        Hi Josie, to be clear,

        My Adverse Reaction started rapidly with the (1st) tablet out of (3) total. Within the first 20 minutes I felt woozy….the next day very very very woozy and weak…..that night burning forearms, wrists, shoulder, Lower legs foot…..It also set off an Autoimmune response. for Sjrogens…which is no longer evident by the way.

        The Peripheral Nerve pain came on stronger after a week and developed into severe. That is some of inflammation that hurts so much in the small fiber nerves…Things that help quiet, and counter the inflammation are important…But .sugar, junk food/chemicals/ caffeine/ gluten/ MSG/ can all exacerbate the inflammation more.

        From what you have described it sounds like your tendons are the issue. You have not manifested the Peripheral Neuropathies….not everybody does. Many do. We are all cautious to emphasize that your cells need that Magnesium / Epsom Salt baths….this is a cellular injury. So even when you are feeling good….continue doing things that will aid your healing… The time is now, not 6 months from now. Always to keep things stacked in your favor for the best possible outcome and journey. The body needs that over the course of your life. In a nutshell you are the Mommy – your body is your child…lots of LOVE….lots of guidance, thoughtfulness. That relationship is forever and God is always with us. He is the Alpha & the Omega, The great Physician.

      • Josie July 23, 2014 at 2:13 pm

        Yes! MY arms feel very heavy today. My shoulder blades are burning but I think that’s because it’s so tense up there! My wrist also hurt when I type gr and my arm hurts also. Going get adjusted at the chrio tomorrow. :). Rene, when people have those visual issues, I have something that I find very odd.. Every single light to me looks like it’s flickering. But it’s really not…

      • Josie July 23, 2014 at 2:16 pm

        Also, it’s like my forearms hurt the weakness I guess I feel is like you know how after you work out? Like that. It’s not that I literally can’t hold anything but holdin my phone hurts my arms just a bit. Hah. Oh! Hey is it ok to take muscle relaxers?

      • Josie July 23, 2014 at 2:20 pm

        Very upsetting cuz I am a good guitar player! Oh the doctors called and said my ANA test came back negative. Whatever that means..

  18. rene July 23, 2014 at 4:30 pm Reply

    Josie,

    No to muscle relaxers: Why because they do not “just” effect the muscles…they are toxic and the toxic burden is so heavy in your body….hence all the pain. You want to utilize things that will cause no harm.

    You might want to get some ARNICA cream at the health food store. It is excellent for bruising, sports, injuries, post surgery swelling. It costs about $8.00…..been around for 100 years. Apply to muscles that hurt….you do not have to put in on heavily…but it is applied frequently….2-3x’s per day or more. It is made from the plant Arnica which has medicinal properties. But is not made into a synthetic form by pharmaceutical companies. Therefore the danger & risk of worsening is nil.

    A Negative ANA test is a very good thing. Why? Because it stands for Anti Nuclear Antibodies……when positive & elevated high that is an indication of a Auto Immune Response….which is not good. This can be “positive” if there is an existing flu or infection, but if the number is also elevated it means that the body is responding to itself as if it was a foreign body and attacks itself……I did have a positive ANA that was very high…But it did after several months it did reverse back to normal. Again an indication of how the body is designed to protect itself and heal
    .
    The tension and burning you feel may also be peripheral neuropathy… the Epsom Salt bath…..I know it is annoying to repetitively suggest this over & over…but I remember how my early days, I sometimes procrastinated because somehow I thought there might be something else other than me getting my but in and out of the tub…. So the convenient option is Trans Dermal (Ancient Minerals) Magnesium Spray bought on line & Arnica useful too sometimes.
    I

    • Josie July 23, 2014 at 4:34 pm Reply

      This pain I’m feeling in my shoulder and wrists gets better right? :( I have to do online school work and need to type… :(

      • Josie July 23, 2014 at 4:36 pm

        Also is it ok if I go on birth control? I am sexually active but allergic to all condoms… I ended up here because of a condom lmfao.. I was given cipro for an infection I never even had… I’m really down tonight… Feel like a big failure…. It’s hard to look at all these girls going out and I’m so restricted…. :(

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