Welcome to Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

Please support Floxie Hope –

Thank you!  More info about supporting this site can be found HERE

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including Cindy and Ruth.  Affiliate link –

levaquin-tendonitis-cover-350x500

 

5,200 thoughts on “Welcome to Floxie Hope

  1. Peter March 25, 2015 at 10:00 pm Reply

    Well….I’m back. I hope everyone is well.

    It’s been four months since i got sick from a student and I’m still not healthy from it. I’m thinking the floxing is preventing me from healing. I still have white chalky stuff on my tonsils and throat and now just noticed i have white pus on them again (which i haven’t seen in a month or so). There had been off and on heavy mucus and none of the cures listed on here have helped. I can’t beat this at all. I’ve also noticed my nose functions at an even lower rate than pre sickness. So I’m lost again.

    I can’t get better from this illness, my throat, my nose, my breathing. On top of all my floxing symptoms and issues that are still continuing. Any suggestions on this or cures in general that anyone has found recently?

  2. claire March 26, 2015 at 2:03 am Reply

    hi im also smoker .. a drinker coz im a guitarist . but i have to quit before coz i cant make it to the sound impact of my band , i lost friends, my long term relationship , i lost the single things that make me happy before , i like to dye my hair i like to many lotions and so etc but i need to change that for good , its hard to quit smoke but i did. a year and i dont have plan now to smoke it goes directly to the bloodstream . make and i eat a lot of healthy foods i can now sleep 8 to 10 hrs everyday it works my body repairing itself we dont know exactly when but if we are in the right process we will get the right result. as lisa said all things will change.nothing is permanent in the world.maybe it will be a scar but someday scar will just there … it will no longer control our lives .it will be just a scar .. it will change hormones , dna etc it will worst or it will heal .our body will say it .just help it .my anxiety makes me want escape from it , im afraid and worry all the time but thats change i can now work and have a normal life i dont take many supplements a year before i decide the 4 life products and im also a distributor there. coz i wanna earn money and restore my health but i chose only the pure colostrum for my immune system and the yolk of eggs im careful for my supplements i lose weight coz i only care about detoxing detoxing i loose 5 kilo .. i was 48 and i become 43 and thats not right .. we need to restore healthy foods to our body coz its like a fuel in our body .. smoke doesent help me now it makes me palpitate .. you can smoke if you are a normal person and you was not poison .. i accept everything that i have issue and condition but its not the reason to give up.. sometimes i look at the people when im on the train i feel envy they didnt see whats going on .. on my mind but who cares. im the one responsible for my health now . i treasure all the hours days and minute .. do your best .. whats makes you happy and the things that you know, right for yourself .. i can now do yoga . exercise swim all those things .. you have to trust yourself :) have a nice day for evryone

  3. Destruida los Restos March 26, 2015 at 8:24 am Reply

    I just want to remind people that, although the cells of the lining of your mouth, for instance, are renewed approximately every five days, there are some cells in your body that are only renewed every 7-10years, so it behoves us to be patient.

  4. Michael Teeter March 27, 2015 at 9:48 pm Reply

    Hello everyone. I just wanted to let everyone know I am recovering quite well I think. Also after my second Crohn’s flare up my ND turned me to the SCD diet. I really think it is helping me. It may be worth checking out. I wish you all the best.

    Mike out.

    • Destruida los Restos March 29, 2015 at 3:12 am Reply

      Hi Michael, pleased to hear you’re getting better. The SCD is roughly the same thing that Daniela and I and many others follow, only we hadn’t given it a name or formailsed it. Good wishes for your continued recovery.

  5. Mark March 28, 2015 at 6:30 pm Reply

    Hey@all,

    Has anyone tried out prescript assist yet?
    http://www.amazon.com/gp/aw/d/B00JB2GOFI/ref=mp_s_a_1_1?qid=1427592383&sr=8-1&keywords=prescript+assist&pi=AC_SY200_QL40&dpPl=1&dpID=41x0DuA3z3L&ref=plSrch

    I’m on the fence for some time now but am still too worried about the potential dangerous SBO in it. Would be great if you share your experience if you tried it.

    Mark

    • Jason March 28, 2015 at 11:53 pm Reply

      Hey Mark. Seems to have good reviews, have not tried that one myself but have tried many different ones. 29 strains is a crazy amount, highest I seen so far, but they don’t tell you how many billion per capsule which concerns me (don’t see it on amazon anyway), also not familar with that company at all.

      The most recent one I like is the one Mercola is selling, also stable outside the fridge, 10 strains (10 – 14 is the norm) and 2 caps give you 70 billion. One of the strains is the Lactobacillus acidophilus DDS-1 which is a known good Candida killer.

  6. SM March 29, 2015 at 6:18 pm Reply

    Rene or Others- I’ve been supplementing with 400 mg of mag glycinate daily for a while now. No issues. But I just started using some mag oil on my skin too and have noticed my stomach bothering me. I guess i figured that transdermally it wouldn’t affect me that way. Anyone else have this experience? Thank you!

    • Jason March 29, 2015 at 9:21 pm Reply

      The only things I noticed with the oil was muscle and tendon pain relief, and waking up more tired, even light headed if I use too much. Also will dry out your skin if left on.

      I’m drinking the Magnesium bicarbonate Water for the last 2 weeks or so now (see last page or two) and with this “I think” I am having looser stools and a tad of tummy upset. I did get a bit of a bug from some wings I took, so I’m not totally sure it was the water or not, need to give it more time to see (Of course the Milk of Mag used to make the water is sold especially for “making you go” so wouldn’t be too surprising if it had that effect)

      • Jason March 29, 2015 at 9:22 pm Reply

        should have said, “wings I ate”, not took. Bar food….

  7. Jane March 29, 2015 at 7:59 pm Reply

    It’s my two year anniversary of being floxed. My condition has improved a lot, especially over the last few months. I can walk around the house like I used to, slowly but fairly normally, without needing crutches or a cane anymore. I can stand for long periods of time, as long as I’m wearing shoes that offer good support. My next hurdles are being able to walk up and down steps again and being able to walk or stand barefoot long enough to take a shower without having to sit on a plastic chair. Still, it’s a huge improvement from where I was even 6 months ago, let alone 2 years ago when I could not walk or stand at all.

    Flare-ups are rare. I had a brief and mild flare-up of peripheral neuropathy in my left lower leg a couple of days ago that lasted about 36 hours then went away. It had been several months since I’d experienced anything like that, though in the beginning it was constant. I have not had any tics, muscle spasms, or fasciculations in a long time, though in the beginning that was constant as well. It’s also been months since I’ve felt any bee sting-like sensations.

    I’m doing much, much better and starting to feel like I’ll be able to live life again like I used to, only with much more appreciation for it.

    One thing I added to my routine a few months ago that I believe has made a big difference in my rate of improvement is juicing. I bought a juicer and gradually worked my way up to drinking 3 to 4 twelve oz. glasses of vegetable and green juices every day, a glass or two about 20 minutes before meals. Juicing is a great way to get lots of nutrition and live enzymes into your system that you would not be able to get from eating, because there’s just no way you could fit that much food in your stomach, but drinking the juice of a mountain of produce is easy. My rate of improvement increased exponentially once I started juicing.

    My big issue right now is problems with my teeth and gums. I went to a dentist 6 months ago and had to undergo a few sessions of scaling and planing due to periodontal disease that came out of nowhere. At a follow-up visit, he found a lesion in my mouth that freaked him out enough that he was talking about doing a biopsy on it if it didn’t go away, which naturally freaked me out. It took longer than the time limit he gave for it to go away, but it finally did.

    During that time, I was flipping out, worried that I had oral cancer and googling natural remedies like crazy, which is what led me to start juicing among other super health nut activities. Interestingly enough, aggressively implementing natural anti-cancer remedies ended up putting my healing from being floxed on the fast track. I found that there is a lot of cross-over between the things that help floxies and what helps cancer patients. I guess it makes sense. In each case the body has been dealt a devastating blow and needs extreme support to heal itself. I’m still working on trying to pin down the exact connections. So far, I have come up with poor gut flora, liver toxicity, and pancreatic insufficiency.

    Friday evening, I noticed that some new lesions popped up in my mouth overnight, and it looks like they quickly ate away at some tissue. I’ll probably have to see the dentist again. Now I’m thinking that what’s actually going on is that I’m having bouts of trench mouth. I’m noticing that it improves with oil pulling, salt water rinses, religious brushing and flossing, applications of baking soda, and increasing the amount of garlic I consume.

    I didn’t have any tooth and gum issues prior to being floxed. I’m not going to chalk this one up to aging, since I’d already done that with other symptoms that turned out to be the result of FQ toxicity. I’m pretty sure I have Levaquin to thank for this too.

    • Kel March 29, 2015 at 8:49 pm Reply

      Jane,

      Interesting you draw a line between cancer and FQS. My ex had severe Cancer(so she told me) and severe Chemo treatment. The end result was very similar to the condition I face now. Bone/joint/hair/teeth/skin/GI/etc… issues… Psychological issues as well but I cannot put them all up to Chemo 100%. Her hair was solid gray at 20 years of age and her joints as I felt them resembled that of a 70 or 80 year old frail elderly person. It was so bad even then many years ago I told her, don’t do the Chemo. She would not listen to me. I heard of people making mild cancers go into remission by lifestyle changes but that was not for aggressive Cancers.

      I have had issues with my teeth for decades. I have had dentists and Hygienists blame me for a lack of vigilance, though I’ve flossed and brushed 2 Xs a day since I was 15. Plus always filled and had prompt cleanings. Fortunately I am psychotic and vigilant about my teeth and I’ve escaped losing much of the bone I could have. I have had dental fillers at the root in 4 teeth. Though otherwise escaped fairly good. I wonder if it’s the amount of tea I drink that has saved them? That or some other measure. I will never know why some people in my family have had such gum decay and others virtually none who treat themselves atrociously. I imagine it autoimmune or stress related. “only the good die young?” cause they stress too much…:P

      I have heard of juicing for over 16 years. I imagine this would be a good way to pack a lot of goodness into a small spot. It’s so hard to devour that much goodness. Virtually all supplements for me just end up putting my stomach off so I have to eat veggies/fruits and or other items to come up with the nutrients I need. I will have to look back into juicing. Eating veggies on the level one needs to requires too much food. You will sicken yourself…

      I have had similar progress, though I have been standing in the shower and walking around my house fortunately. After approaching 2 years, I attacked this very early with lots of bedrest feeling the weakness in my joints/connective tissues/muscles/etc… I have always been a sensitive person and I wonder if a person can ignore their own sensitivity and push a weakened joint or connective tissue into snapping or otherwise being inflamed/angry. Taking months/or many months to sort of recover. : )

      (you may try a floormat rug for your shower when you decide to stand in the shower) I found this quite useful in taking off the stinging and neuropathy and am finding shoes that offer support tend to choke the nerves a bit.(so I use very cushiony slippers that I’ve beaten down by standing in them) Just going to be hard to find supportive yes soft enough shoes that don’t choke the ankles. I have heard clogs or something of the sort… We shall see by betatesting if I get to that.

      I am very happy to read your post and progress. Mine was faster, but has halted. It seems I have an upward ceiling of healing capability. I am eager to push past that. My hands have been giving me issues lately due to typing and browsing. Plus eyes and skin. Though I attack it quickly with moisturizer, rest, and things generally quiet back down.

      Worst part of FQS is the boredom, time, boredom, time, boredom, time. I think so far… For me at least! I hope we are all walking and running soon : )

      • Chance March 30, 2015 at 6:59 am Reply

        Jane, your post gives me hope -thank you! I have never had stomach issues with this reaction and my stool tests were normal although I had numerous food sensitivities prior. I am wondering if SCD diet is more for people with digestive issues? Could you share what you juice each day? I buy Suja cold pressed juice but it’s quite expensive I recently visited a Chinese dr. In nyc who gave me about 20 pounds of herbs to boil for tea each day. My main issue is nerve pain and twitching. Had anyone had success with real herbs (not store bought capsules)? These look like twigs and branches from the yard! Thank you!

    • Heather March 29, 2015 at 9:34 pm Reply

      Hey Jane, so glad your improving. I’m 2.5 years out and improving too. I give a lot of credit for my healing to juicing. The first 6 months I pretty much lived on green drinks(kale,cucumber, celery) and organic vegan soups made from scratch. I think we get a lot of nutrients from it and it is easy on the digestive system. Lately I haven’t been as adamant about it but I need to be. Diet plays a Huge part in how we function.

  8. Jen March 29, 2015 at 10:08 pm Reply

    Does the magnesium oil help with the peripheral neuropathy symptoms?

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