Welcome to Floxie Hope

Hope Clouds

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

An excellent support group for those suffering from Fluoroquinolone Toxicity can be found on facebook.  Here’s the link to the group – https://www.facebook.com/groups/floxies/

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

1,851 thoughts on “Welcome to Floxie Hope

  1. Josie July 20, 2014 at 1:18 pm Reply

    Another thing Ihave burning in between my shoulder blades.. what did you guys find that helped you to relieve that? a cold shower/hot?

    • rene July 20, 2014 at 4:19 pm Reply

      All the pains you are experiencing due well with warm/ moist heat:

      Epsom salt bath!!! Your “cells” need the Magnesium”
      Ancient Minerals – Spray- (0il) you spray on your palm then rub into areas. Let absorb then wipe down excess dried film with warm cloth. After it has fully absorbed 15- 20 minutes later.

      What is absorbed through the Skin is more profound to get to areas of need. When Oral magnesium is taken it is important but will not get “into the Cells” like is needed for this unusual injury.

      You can also use a Heating Pad / that offers option of moist heat. Inside the pouch is a thin square sheet of a sponge. That is made wet w/water…then squeeze out excess water and place sponge flat inside the heated pad. Then place on your area of your back between shoulder blades.

      Maybe your grandparents or aunt can help you too….with getting supplements and support. Just a thought….

      You can also have your parents look at the video of the news story done on PBS NEWSHOUR about the injuries these drugs cause. That will get their attention. They will understand that this is not in your head…..this is real for all.

      Certain Antibiotics Spur Widening Reports of Severe Side Effects..

      • rene July 20, 2014 at 4:21 pm

        PBS NEWSHOUR about the injuries these drugs cause.

        Google this with your parents:
        Certain Antibiotics Spur Widening Reports of Severe Side Effects..

  2. rene July 20, 2014 at 3:57 pm Reply

    Hi Josie,
    This is a whole body, systemic injury. The tendons & muscles & the peripheral nervous system & the Central Nervous System are effected. Therefore, the anxiety you have is understandable because many experience mental anxiousness, sleeplessness, Sensitivity to sounds, or speedy thinking that feels jumpy. The list of supplements do address all of these issues…in a whole body way. Think of supplements as food for a garden that has been poisoned. By adding nutrients to help reestablish a more “hospitable” environment to better handle the burden on the garden from toxins. Allowing assistance to the many processes that occur every second of the day.

    The Magnesium Sulfate -Epsom Salt Baths will help with the inflammation in your body, including your swollen knees.

    Magnesium Citrate – is well absorbed and yes the form is important. I will explain another post. These differences are as you have already experienced can be very important.

    The Omega 3 – Nordic Naturals are significant for your BRAIN too. If you have any twitching sensations under the skin, in your arms or legs, that is the peripheral nervous system and central….you may benefit from: 5HTP tryptophan which will help with your BRAIN and mental state. This can be found online or at health food store, Vitamin Shoppe or whole foods if local to you.

    The antidepressant medication has been used by some, and helped some folk. I did not need or want them. Why do you think you do? Tears, worry, anxiousness, feeling down are all normal for any illness or hardship. If you have some relief of Body pains, inflammation, then your overall sense of well being will lift hand in hand.

    Non pharmacuetical options
    Lavender Oil –
    St. John Wort-
    Omega 3 – Nordic Naturals

    I say this because avoiding Pharmaceutical Drugs is preferable.

    Here are (2) Naturopath Clinics that are close to your area. I did a search that I hope will provide an option for you to get care. There are very few doctors in the country who have any knowledge or experience with our injuries fro these drugs. However they are Naturopath ND who are willing to research and work with you!

    Michele Nickels ND

    16535 W. Bluemound Rd. Suite 222
    Brookfield, WI 53005
    United States

    Phone: 262-754-4910
    Email: mnickels@standardprocess.com
    Website: http://www.drnickels.com

    Cedarburg Women’s Health Center
    W62 N225 Washington Ave
    Cedarburg, WI 53012
    USA

    Phone: 262-376-1150
    Email: mnickels@standardprocess.com

    I can email a letter that was written by an MD to you which you can submit to any physicians that you see. It is helpful for the initial start of a conversation with doctor. You will be educating them too.

    God Bless You Josie,
    Do get those supplements when you can!

  3. Josie July 20, 2014 at 4:37 pm Reply

    Thank you. Really nervous right now. Trying to take deep breaths.. Legs hurt really bad..
    Please pray for me..

  4. Josie July 20, 2014 at 4:38 pm Reply

    Oh I showed them that already.
    My mom is starting to believe me but she still wants to rule out other possibilities..

  5. Josie July 20, 2014 at 6:05 pm Reply

    My archillis is sore in my ankles. Any suggestions?

  6. rene July 20, 2014 at 11:18 pm Reply

    Dear Josie, Yes you are in my prayers! Show your Mom more articles from the New York times, Forbes,…etc. There is a lot of information so keep presenting it to her. She will be your greatest advocate! Have your Mom get the Epsom Salt tomorrow! Do not put this off! very important. ASAP. This will help with all the area you are hurting and start you getting what your body needs. Your whole body, you will treat your whole body.
    Google the link below.

    http://www.medicationsense.com/articles/jan_mar_04/congress_ltr.html

    • rene July 20, 2014 at 11:20 pm Reply

      Forbes article by Melanie Haiken, “Antibiotic Alert: The Drug the Doctor Ordered Could Cause Deadly Side Effects”

    • Josie July 20, 2014 at 11:21 pm Reply

      Thank you. In nervous cuz my arms going numb but I’m trying to keep a positive thought…. I will buy those tomorrow. Also, some magnesium. What kind should I buy? :) and I have vitamin C also..

      • Sheryl July 24, 2014 at 11:11 am

        Getting your body more alkaline helps alot. I do two green smoothies a day Digestion issues I am doing allkaline drops it feels so cool in my body. Not sure if I am having the same issues but it seems all related. Still taking alpha lipoic acid to protect the brain and nerve burning if I have it. I dont have that anymore. joint pain very rare but when I do I spray magnesuim on it. I put oxicell on my body at night/spine and other areas when they burn. Been going through this for over 7 months. I did get better but got worse because of pre-acid reflux symtoms. The more alkaline my body is the less pain I feel. Trying to get my legs to functions better. Daily exercices. (Alkaline water contain potassium,sodium barcarbonate ) when I didnt have it i used lemon juice and baking soda. Hope we all get our life back. I took 2 pills of cipro and I am thinking I took levaquin in the past. So I think I took a total of 10 pills the last time hit me harder than I have ever been hit so here I am. Getting a flouride test just in case also no flourida toothpaste.

    • Michael Teeter July 21, 2014 at 10:19 am Reply

      Josie,
      Give you Achilles tendons a rest. Don’t over do. Just out of curiosity what medicine were you floxed with? I used what is called DMSO on mine it really helped me sleep at night because it relieved the pain. It does have a weird smell though just FYI. I would also take a
      liquid glutathione and vitamin C and Magnesium.

      I hope everything works out well for you.

  7. Debs July 21, 2014 at 4:40 am Reply

    Hi Josie

    Speaking as someone who unfortunately has had a lot of experience of these drugs & the psychiatric system & thus has done over 14 years of research on the Drugs & the science IMO, if you can avoid doing this I would do so , these drugs can cause a lot of problems for many people, not least that they are hard to get off of them once you start taking them let alone the physical changes they cause in the brain . these can cause chemical imbalances that are not there before you start taking the drug. Believe me, .The ‘ science’ of psychiatry has a lot to answer for. It has been shown that therapy is just as effective as antidepressants in many people, so if you can access this first I would strongly suggest doing so BEFORE going down the psychotropic drug route
    If however you DO decide to go down this route PLEASE try to also get therapy alongside it, as this has shown to be far more effective,take it at as low as a dose to be effective for as short a time as possible , & then IMO this is VERY important get yourself OFF of it if humanely possible, Psychotropic drugs by the way have never been tested in clinical trials for long term use believe it or not.

    I am someone who feels that we should all get our own informed consent on any drug we are prescribed as of course this is how so many of us ended up floxed. One VERY important thing to keep in mind re antidepressants / antipsychotics benzos etc is this : Do NOT expect ANY psychiatrist to give you informed consent on psychotropic drugs, there are HUGE conflicts of interest in this profession, them being paid handsomely for every drug they prescribe, & at least. 69 % of the task force involved in voting in the new ‘diagnoses’ included in the latest DSM IV have ties to the pharmaceutical industry. This is why you must always do your OWN research on these drugs PLEASE Josie & everyone here, make sure you research any psychotropic drug you are given, in DEPTH, BEFORE you decide to take it. I can recommend Drugs.com as a good place to start.

    • Josie July 21, 2014 at 5:35 am Reply

      Thank you. I’m going to the store today to buy some things. What kind of magnesium should I pick up? Normal kind? Citrate? Any other kind of mineral or supplement do you guys recommend I get?

    • rene July 21, 2014 at 5:49 pm Reply

      Hi Deb,
      Thank you so very much for your post regarding Psych drugs……they too are given out way way, way to casually, and the idea that has bombarded the public for several years is that these Drugs or others some how “heal” people from whatever the things is. When in truth they are all so so dangerous…….. only in extreme circumstances after all other non risk healthy means have been exhausted. It is normal to cry, feel lousy depressed when you hurt or lose a friend,….but as long as you have the ability to smile, laugh, enjoy through out the hardship….then altering the chemicals in our brains with synthetic toxic chemicals is not good medicine. This is in no way meant disrespectful to those individuals that are truly psychotic. But people need love, and others caring about them. Always will be the medicine for all.

      Long before this Cipro journey, years ago so many people I knew whose family member were given these psych drugs just to elevate their mood and they all got addicted, and worse….lost their jobs from erratic and outrages behavior. Our Brains have not finished developing till 23 years of age!

      Anyhow, Thank you
      God Bless

      • Debs July 22, 2014 at 12:33 am

        Hi Rene,

        Thank you for your reply, There is a very good reason I have spent so many years looking into the ‘ science’ of psychiatry & the drugs, I unfortunately have a horror story all of my own,( which echoes to a great extent Stephen Frieds ( author of the very good book ‘ BITTER PILLS ‘ wife Diane, who also had a severe neuropsychiatric ADR from a FQ, & ended up with a diagnosis of bipolar disorder.) The first time I was floxed I was given FQs for a UTI, took 2 pills & literally within a few hours of starting them I went into acute toxic psychosis, I do not remember anything much about this . but when I eventually woke up, I was in hospital attached to an IV many days later. This acute toxic psychosis then triggered a neuropsychiatric ADR which mimicked, unfortunately was then mistaken for, & was eventually misdiagnosed as bipolar disorder.

        I ended up losing the next 12 YEARS of my life.

        In the space of those 12 years, I was force fed so many of these horrendously neurotoxic drugs I ended up a walking pharmacy, NOTHING worked, & over time I became SO very seriously ill they did not know what to do with me,& I had to be referred to a neuropsychiatrist, unfortunately this too was to no avail.
        Eventually I made the decision that if none of these drugs were working for me, there was absolutely no point in continuing down this road. I decided I wanted to stop them, & actually managed to eventually find a psychiatrist who who was prepared to work WITH me on this.

        To my absolute horror, when these drugs were eventually stopped It turned out that my neuropsychiatric ADR, triggered by the FQs had gone a long time before, & these psychotropic drugs were actually CAUSING the VERY symptoms they are ( so we are led to believe ) meant to treat. The chemical changes in my brain induced by these drugs had actually triggered false mood swings in me, the antidepressants artificially lifting my mood to the point it precipitated mania, I was then being prescribed the an antipsychotic to ‘ treat ‘ this mania ), which then pushed my mood down to deep psychotic depression.

        After many years of deep research into the above, following the discipline & science back to the source, via the history of psychiatry itself, studies done, peer review, withheld studies / clinical trial results, I myself consider the evidence is damning & overwhelming, therefore I have but one thing to say & it is this : That in my informed opinion ( & you will find this is the opinion also, of others who have done this deep research, ) I am in no doubt whatsoever that the so called ‘ science’ of psychiatry , the biological model of psychiatric illness, which claims that mental illness is CAUSED by a chemical imbalance in the brain is FALSE, the ‘ science’ of psychiatry is based on a VERY unstable house of cards indeed, & just does NOT exist.

        If anyone wants to look into this subject further, please do not hesitate to let me know, & I will be more than pleased to post some links.

  8. rene July 21, 2014 at 10:51 am Reply

    Besides the supplements I already urged you to get…..These are also very important.
    Zinc citrate 50 mg –
    Vitamin D3- 1000 IU or higher

    • Josie July 21, 2014 at 12:15 pm Reply

      My doctor was very understanding. She said she thinks this is coming from the cipro and she urged me to try and stay calm. I bought Epsom salt and magnesium for now. Things feel a bit better today. Was running a high fever though at the doctors. Did some driving today as well. –going to the beach with a friend in a bit! This website is great! Will be doing further testing too because I was a premie baby and was only one pound and thirteen ounces. So, we want to rule out other things and go from there… :)

      • Josie July 21, 2014 at 12:55 pm

        Michael, it was cipro! 250 mg twice a day for ten days. Only took it for seven days!

  9. rene July 21, 2014 at 1:00 pm Reply

    Dear Josie, I am so glad to hear that everybody is coming on board with understanding that Cipro is responsible for all that you are going through. I fully understand & respect that your family wants to be sure that there are not additional issues behind the symptoms you are experiencing.

    I also had numbness in my arms, and the other things you mentioned. I do not have most of them anymore. Please be cautious about activities that cause impact on tendons, and joints, which includes your Achilles tendon, elbows, wrists, shoulders, hips, knees…..take it easy with fast sudden movements, like going up or down steps, or a curb.

    Stay hydrated!

    • Josie July 21, 2014 at 1:04 pm Reply

      Thank you Michael! I know when I walk up the stairs and down them I do it very slowly. I’m also doing very very light stretching. Making sure to walk around a bit too! :). Was very happy I was able to drive today. I cried.. :) first time sense getting my license…. :)

      • Josie July 21, 2014 at 1:05 pm

        Rene, you’re a sweet heart my love! :)

      • Josie July 21, 2014 at 2:53 pm

        So the doctor called and said my vitamin levels and blood work came back good. I’ll be seeing a rhuemo and a neuro (sorry I don’t know how to spell them) I also have static in my vision, tinnitus, loss of appetite, and floaters. All that fun stuff were usually exposed to I’m sure… ;) got my Epsom salt too today can’t wait to relax in te bathtub with that!!! :) I can’t wait to drawl in my bed and watch some friends though… It’s been a while since ive felt OK… I feel OK today.. Minor aches and pains but nothing like yesterday. I think the positive attitude has something to do with it!

      • rene July 21, 2014 at 4:15 pm

        Hi Josie, All of us have had eye issues,floaters, vision going fuzzy, or blurry….tinnitus, and weight loss, regardless of appetite. I myself am petite. Though i am an 5.5 adult weighing 115 pounds, I lost weight….my clothes were loose. This is normal for this Cipro injury.

        Thrilled that your blood work looks good! However you still need those supplements. it is a cost out of pocket that is a investment in your healing. There are thousands of us, all over the country…and this is what has made the difference in our recovery. Think about how easily a drug is prescribed….but the minerals, vitamins, fatty acids Omega 3..etc somehow are pushed in the background. Dear Josie, do follow through with these basic recommendations, they are food for the garden which is you. The burden on your systems is great and therefore need support will contribute to take on all the inflammation/pain that is occurring. Every day is a baby step, lots of little bitty baby steps.

        Would be helpful if you keep a medical journal..that you can write out what you are taking, and how you are feeling. if you change something or add something write it down in your journal…and what the dosage is. If you walk to the driveway and back 4 times it’s ok…but if you did that and walked down the block it was too much. So you can see your progress over the months. i did this and it was wonderful t have it all written out for to check and see what i did…

        One detail I want to stress….read the ingredients on “everything that you eat or drink” or take as a supplement. For Instance, just because you buy a bottle of Zinc Citrate…read the label to be sure there is nothing else in it. You do not want or need anything added like (magnesium (stearate)- which is junk. Buying Epsom Salt – Do not buy if it has anything “But” Magnesium sulfate.

        Do NOT ever use it if it has Aspartate or some other cockamamie thing in it. Aspartate is an “excito-toxin” to the Brain & Central Nervous System- (its in sugar free stuff like gum, beverages, Gatorade…packaged foods etc). Aggravating the CNS /Brain is to be avoided, as it also can kick up pain. MSG, Hydrolysed or Autolysed yeast, protein, or anything do not eat. I know you must be stunned that there is so much garbage in everything that is produced/packaged…..but we all do our best to avoid it because each of us have experienced the great benefit of do just that. Eating food that has not been messed with, or is pretending to be a food. Our bodies are designed to heal…which we can give thanks and praise to God for! He have given us everything we need…we are made up of all these wonderful things like minerals, and proteins, and fatty acids, they really are the raw material that is of life.

        You are getting quite an education in all this, but it is necessary. Thrilled to hear that you had time enjoying Life! That is so so important, and yes a positive faithful attitude and decision that your healing is and will be.

        Be Strong and of good courage, fear not, nor be afraid for the Lord thy God, he it is that doth go with thee: he will not fail thee, nor forsake thee. Deuteronomy 31:6

      • Josie July 21, 2014 at 4:29 pm

        Thank you rene! So far I’m starting out with 500 mg of magnesium. Should I increase it?

      • rene July 21, 2014 at 5:29 pm

        Wow, Josie 20 minutes is considered very long for those of us injured by Cipro.. Ok, here is what you need to know… if you hurt a whole bunch tomorrow that is your reference to know that you can walk but for “shorter period” of time. Also walking on cement is harder than say grass or a dirt path/road.

        500 mg of Magnesium Citrate is good. ORAL Magnesium can give you a “loose bowel” at 600 mg.

        ORAL Magnesium the dosage is 400 – 600 mg maximum. Not more than that.

        You do not have to wait till the evening for the Epsom Salt….why hold off, when you body is needing help ASAP. Don’t delay if possible. You do not have to have the water piping hot. Just so that it is comfortable for you to soak till your finger pads get a lil wrinkled like or you had enough. When you get the Transdermal Magesium Spray you can apply that directly to your Achilles heel & arms….at bed time. And in the morning when you get up. 1x am 1xpm.

      • Josie July 21, 2014 at 4:29 pm

        Thank you rene! So far I’m starting out with 500 mg of magnesium. Should I increase it?

      • Josie July 21, 2014 at 4:36 pm

        Just walked a 20 minute walk with my dog. Relaxing now…

      • Josie July 21, 2014 at 5:44 pm

        Thank you! I just did it. ;) how many cups should I put in there though? 2-3?

      • Josie July 21, 2014 at 5:54 pm

        Taking a bath is the most relaxing thing. Don’t you agree? The only thing that is bothersome to me the most — is the weakness feeling and just the slight minor aches and pains.. The eye symptoms and ear things I can live with fine! I don’t think I’m as severe as some seeing I can walk 30-to an hour without any pain in my legs… Which is weird! Last week I was running up and down stairs for two hours straight! I’m a huge work out fantastic. I do lots of crunches, butt work outs you name it.. Gotta look good for the next man I have you know? ;) lol. You know Rene, jus to throw this out there.. I keep getting a little bit nervous like.. I’m never gonna be able to go to college or date again… Like Ifeel like.. Scared… I’m not sure why? I mean I am sure I will be able to graduate with my class and what not.. But yeah.. I needed to throw that out there. I want to thank everyone for giving me advice and I’m sorry that right now I cannot buy all of the supplements you suggest but— I’m trying my hardest to be positive… :)

      • Josie July 22, 2014 at 7:29 am

        Also I was on Ativan and xanax for a month after gettig cipro. I was on them for a month off and on. I took two xanax last week and after that that’s when my symptoms spured up!

  10. Lisa Bloomquist July 22, 2014 at 7:49 am Reply

    An excellent web site with information about the dangers of psychotropic drugs is http://www.madinamerica.com/. Drugs are thrown at people with mental health problems way too cavalierly. I think that Mad In America provides a necessary counter-balance to our pill-popping culture.

    Informed consent is very important. Please make sure that you have the information that you need before consenting to any drug treatment.

  11. Josie July 22, 2014 at 9:56 am Reply

    i just want to say that today i feel awesome! I can walk perfectly fine and i have no pain any where but besides my back which is from scoliosis!!

    • Liz July 22, 2014 at 11:53 am Reply

      I would be very cautious about feeling “ok.” I felt “ok” for months after taking Cipro before the bomb went off

      • Liz July 22, 2014 at 11:54 am

        Not to be a Negative Nancy, but I’m just saying to be careful!

      • Tim Featherstone July 22, 2014 at 1:10 pm

        Seconded, not being negative either, just realistic, you most likely will recover fully and permanently especially at your age, your healing capacity is great when your young but this Floxing thing has a nasty habit of going in cycles

    • Chris July 24, 2014 at 10:15 am Reply

      How wonderful that you are feeling so much better. Congratulations!

  12. rene July 22, 2014 at 12:02 pm Reply

    Praise God Josie! Wonderful news.

    All of would probably agree that you may not want to go full throttle with impaction/ exercises….The injury manifest slowly over several months. Which is completely the opposite of what any of us would have thought possible…..This is only meant to be advance notice and caution so that you understand what is going on if you experience it.

    The weakness you are feeling has t do with the injury from Cipro on a cellular level. Meaning that the energy within the cell is low because it is dealing with massive amounts of “oxidative” stress. Vitamin C would be very good for you. You can take buffered Vitamin C up to 6000 mg. Spread out throughout the day.

    • Josie July 22, 2014 at 1:00 pm Reply

      I know! :) I’m happy. :) I will expect minor set backs! Even did some school work on the computer today:) got a call from my teacher and I’ll be able to graduate early!!!!!!! :)

      • Josie July 22, 2014 at 1:47 pm

        I know about the cycles thing! This is my second one.

  13. Josie July 22, 2014 at 5:38 pm Reply

    I swaer this day keeps getting better you guys… My favorite movie is On CMT (Country Strong) My lord.

    Hey, you guys the part from my wrist to my elbow hurts, whyy? Is that tendinitis? Or somethin I should worry about?

  14. Karen Haines July 22, 2014 at 6:43 pm Reply

    Lisa,
    I have been wanting to contact you and thank you for your posts about cipro toxicity. Without those posts I don’t know what I would have done. I was floxed by Cipro at the beginning of February for a suspected UTI, and I had taken it twice before and was fine. This time however,it hit me with a horrible reaction in the middle of the night with stomach cramps, muscle zaps, headache, and many other symptoms….I thought I was dying. Went to ER few days later when I had numbness in my face and arm. They tested me for a stroke, did MRIs, CT scans, etc, and all came back good, thank God. I was so desperate to find out what was wrong with me I googled and made many doctor visits, which was so not like me. I am 41 years old and did not have a primary care doctor until this happened. I saw many scary things on google I thought I may have, but when I found your site it was like you were speaking to me. I showed my husband the site, and he actually believed that this was what I had. It felt so good to know I wasn’t alone. It is now 5 months later, and I am improving alot! I only have some burning pain in legs and spine, but that is so much better than in the beginning when I was having pain and panic attacks (which I never had before), nightmares, and couldn’t sleep or do anything well. I just wanted to tell you thank you, for giving me hope when I so desperately needed it. I believe in prayer and I believe that God brought me to your site. I appreciate all you do for those of us desperately looking for answers and scared to death of what happened to us. Thank you again for your hard work for all of us out there affected by these horrible drugs! Karen Haines

    • Lisa Bloomquist July 23, 2014 at 9:01 am Reply

      Thank you so much for your lovely message, Karen! I appreciate it so much! I’m sorry that you are going through being floxed. It’s horrible, isn’t it? But I’m glad that you are improving, that you know what happened to you and that Floxie Hope has helped you!

      Hope, faith and knowledge are incredibly powerful tools. I’m glad that you have all of them. :)

      I’m back to having no primary care physician. This is in part because I’m now wary of doctors, but it’s also because I’ve always been someone (like you) who doesn’t have a PCP because, well, why have one when you’re healthy as a horse? I hope that you too return to your previously healthy state! It sounds like you’re on the road to it.

      Best regards,
      Lisa

      • Karen Haines July 23, 2014 at 7:37 pm

        Thank you and keep up the great work! As long as these horrible drugs are out there, many people will need help and you are doing an excellent job!!

  15. rene July 23, 2014 at 1:57 am Reply

    Dear Deb, Bravo to you! I have the greatest respect for you, knowing that during the midst of your health crisis you researched and educated yourself instead of relying on what the “experts” were selling. I can only imagine what that was like, navigating your symptoms while learning, and discovering the truth for yourself. It is so disappointing how crooked everything is….But now we know….and so we do the work and educate ourselves and keep our hands on the wheel…and drive the car.

    My own similar story was 16 years ago I was quite ill, and without diagnosis though many lab test…I began my research into all things pertaining to holistic health and after a gazillion hours, months, years, of studying viruses and bacterial infections zeroed in on Gulf War illness, & Lyme. Researched both extensively and utilized a specialty lab and bingo Lyme disease. Long story short, the same disbelief and rejection from medical experts, & sometimes family about my condition was really mind boggling and lonely. Cipro same deal. I was offered Pysch drugs, and hugs from bozo md’s who thought that was showing compassion?
    Over time, I became quite proficient in taking care of myself and finding people who helped me through with holistic modalities. I led mostly a normal life until the (3) Cipro tablets. But by then, I had a developed such a strong foundation of my faith in God and how beautifully we are designed…that I became a warrior for my life. Really is such a marvel..that regardless of the medical community that had nothing to offer but more harmful drugs that would complicate things and worsen my condition…. I got busy with getting well and forgave everybody for not being able to help…and researched till i felt I had enough understanding to embrace the idea that I had absolutely had a chance of recovery. 2 years I was in a wheelchair, and knee pads (for the floor- to drag groceries through the building) and all the rest that people experience from “fluoroquinolones”…..Now I stand and walk, and am nimble on my feet but cannot run. It took about 3.5 years.

    Let me just say, that I am just so very very happy that you made it through all of that and you followed your God given ability to seek out the truth, about the whole world of psychiatry and psych drugs…..Tom Cruise spoke out about it and was scorned for doing so. Confusing to me, because his message was very clear. Street drugs are safer which is very telling.

    • ursula July 23, 2014 at 4:45 am Reply

      hi rene i am n 10 months mefloquine sufferer, we have the same symptoms than the floxies. i cant be part of this group because its not a floraquinolone. Can i have your private email adress please. Mine ursulamardon@mweb.co.za
      Thanks Ursula from RSA

      • Josie July 23, 2014 at 8:16 am

        Rene, how long after you took cipro did you end up in a wheelchair?

      • Lisa Bloomquist July 23, 2014 at 9:12 am

        Hi Ursula,

        You are more than welcome to be part of this group and your insight is greatly appreciated! Quinolines are cousins of quinolones and melfloquine is a nasty, nasty, nasty drug. I’m so sorry for all that you are going through because of it! I think that healing from quinoline toxicity is probably similar to healing from quinolone toxicity and I hope that the stories on here help you!

        Regards,
        Lisa

      • rene July 23, 2014 at 11:15 am

        Hi Ursula,
        I agree that the same issues and means to address those issues that you have ,would be the same interchangeably…Cipro, Levaquin, Avelox, all have slightly different molecules but they are of the same class….Mefloquine is not in the same class however, brain/ CNS injuries from toxins need the same food/nutrients as everybody else.

        Omega 3- Fatty Acids from Fish Oil (Nordic Naturals) are super important for me….2500 -3000mg daily split am & pm. When I run out, within a week, I decline neurologically…..nobody would notice but me & the Chiropractor- Neuro -Kinesiologist I see. He muscles tests and my body never fails to tell the story of what it needs biochemically if something is lacking.

        The other is 5- Hydroxy- Tryptophan which gives me safe Serotonin support…again ties into neurological support that I need.

        I also take Lithium Orotate: 5mg tablet cut in 1/4 pieces…..then mash a 1/4 with pestle into powder and dab a (1/2) of that powder (only) on to my tongue…1x day. This is Lithium Orotate the trace mineral, NOT the synthetic pharmaceutical form.

        The benefit of taking this trace mineral, in this specific way is because I have issues with my “methylation pathway.”….which amongst many crucial biochemical processes of detoxification, inflammation, mood, immune function..also relate to how B12 is utilized in that pathway.

        I have a great need for Vitamin B12- but due to genetic vulnerabilities, that were overly challenged by Lyme and the a bigger whammy for me Cipro ……the safest way for me to supplement with B12 and not ramp up unwanted issues w/my specific underling vulnerabilities is to take these very small amounts of “Lithium Orotate” which transports B12 (that is laying around) into the CELL. My genetic mutation regarding how I process B12 leaves me with an issue in just supplementing the usual route.

        Some of us have issue with B vitamins, and worsen when we take them….however we still need them for our gut, digestion and a gazillion other good things. This allows me address in a safe way one small part of a pathway that still needs much careful support.

        This tiny dose of Lithium OROTATE helped my neuropathy’s improved in my limbs, most markedly in one leg that was severe.

    • Lisa Bloomquist July 23, 2014 at 9:09 am Reply

      Hi Rene,

      The human body is truly amazing, isn’t it? The more research I do, the more I marvel at how intricate and complex we are. And I’m astounded at how little we, collectively, know about our own biology. Yet, we (collectively) consume chemicals masquerading as “medicine” to heal and fix ourselves, not knowing that we are actually doing more harm than good.

      I often wish that I hadn’t learned that lesson. Maybe it’s a blessing to know it though.

      I’ve started (but gotten stalled out) a post about feedback loops within our bodies and how each system works together. When floxed, we get into a lot of negative feedback loops and everything goes downhill for a while. I thoroughly believe though, that our positive feedback loops that keep us alive and strong, are more powerful than the negative feedback loops that happen when we get poisoned. The human body has amazing healing powers. I’m so glad that you know how to harness yours!

      And thank you very much for all of your input on here! Your insight and support of fellow floxies is greatly appreciated!

      Regards,
      Lisa

    • impossibleadversity July 23, 2014 at 11:53 am Reply

      I wanted to try lithium orotate but I was too scared of the reports that it can ruin thyroid function.

      • Lisa Bloomquist July 23, 2014 at 1:55 pm

        Be careful, for sure.

        Brewer’s yeast has trace amounts of lithium in it. So far, I am a big fan of Brewer’s yeast. The only bad thing that I’ve heard about it is that you shouldn’t take it if you have a history of kidney stones.

      • Mark July 23, 2014 at 1:59 pm

        Hi Lisa,

        Isn’t brewer’s yeast supposed to be bad in regards to candida overpopulation?

        Candida binds fluoride molecules and other poisons right?
        Did you try an anti candida supplement and diet regime since recovering?
        I’m wondering if the candida could’ve bound to the fluoride and if there’s a danger that it could release it again later on?
        Just wild imagination I guess…

        Mark

      • Lisa Bloomquist July 23, 2014 at 2:39 pm

        I have heard that, Mark.

        I have largely felt better after supplementing brewer’s yeast. As with all floxing remedies, what helps one person may not help another. Brewer’s yeast helped me (I think), but that doesn’t mean that it will necessarily help anyone else. It may even make some people feel worse. I’m sure that there is plenty of science behind our different reactions, but since this whole issue is so under-studied, we are, unfortunately, left to figure stuff out on our own. I like brewer’s yeast because, a) I think it makes me feel better, b) it has lots of trace minerals and nutrients that aren’t found in many other foods, c) it’s a food. For me, it was worth a try and I’m glad that I did try it. I completely understand that there are reasons to avoid it too though. I advise listening to your body and doing research more than I advise anything that I did or took. It would be really nice if there were a treatment protocol that helped all of us.

      • rene July 23, 2014 at 6:42 pm

        Lithium OROTATE is – NOT – the same thing as Lithium chloride or Lithium carbonate.

        Very big distinction. Orotate is Oratic Acid….Again We have an example of a trace mineral that has been demonized because of the form that the Medical Establishment uses for Psychiatric issues that caused AR – Adverse reactions because they are using Chloride or Carbonate which are not well absorbed at super high doses of 350 mg.

        The dose I am taking is (1/8) of 5mg of Lithium Orotate which is that my body needs. Others safely take 2.5 mg – or – 5mg. Some more than that. Depending on their deficiency.

        For the chronically ill, with Neurological diseases, Lyme, MS…etc. this mineral has found to be extremely low. Therefore introducing tiny amounts as I have, for a week or longer to determine how I feel before increasing dosage is the way to find out.

        I was pleasantly surprised that 0.625 was all I needed to have a positive response with my Peripheral neuropathies. Within 48 hrs. When increased to 1/4 of 5mg it was still good. More than that it made me feel a bit stupid for an hour….I resumed using the lower dose of 0.625 mg or 1/8th of (5mg). I have been at that dose for a couple years. No need to change it.

        However, this will not apply to those that do not need to supplement Lithium. Urine test for minerals takes the mystery out of the individuals mind. I did the at home trial & error. One bottle last over a year because it is just a tiny amount of powder on my finger pad placed onto my tongue.

        Hope this helps clarify this better.

      • jimmy July 23, 2014 at 7:30 pm

        I began taking brewer’s yeast at your recommendation, Lisa, and it has helped me tremendously. in fact, my b vitamin levels were low a few months ago, even after months of b supplements (which I think I would just pee out), but I just had blood work done and the brewers yeast has brought them back up to normal.

  16. Mike July 23, 2014 at 10:30 am Reply

    Rene, I’m 2.5 years out with increasing pain and dysfunction. Many problems from Cipro…. I’ve been running out of hope. Thank you for sharing. Reading your posts gives me hope! What helped you the most? You can respond on here or send me an email mab2006@msn.com

    God bless….

    • rene July 23, 2014 at 12:17 pm Reply

      Hi Mike,
      I am sorry to hear that you are hurting, i dot know what you have done of know so It was a comprehensive approach, in that one with out the other would not be sufficient.

      A) I had all my hormones levels checked: Estrogen, Progesterone, Testosterone, Thyroid T3 T4, DHEAS, Pregnenolone. I was low in everything. Supplementation was only with bio-incidentals. NO synthetic pharmaceuticals. These supports were deployed by trans-dermal cream or tablet. Hormones have a huge say in many processes in the immune system and Brain and everything else…..The idea is how to treat yourself holistically. Whole body….not symptoms. Symptoms indicate issues with systems. Endocrine effects all the other systems.

      B) Vitamin D levels……Crucial! Vitamin( D3) supplementation is profound if your levels are low.
      Mine were low. I take 10,000 IU daily from Thorne Research (excellent quality brand) and just one small Vegetarian capsule! Vitamin D3 is a hormone…..very profound need by all. The United States is deficient.

      C) Get Vitamin C Drips! This will wash the cells with anti-oxidants which is needed for such a great burden of Oxidative stress on the body….hence the pain. Cannot be achieved by oral Vitamin C, (1.5 hours or longer for an IV but well worth it, no joke) Your Cells will love it.

      D) Take ZINC Citrate – USA everybody is deficient.

      E) Avoid MSG, Natural Flavors, Hydrolyzed or Autolyzed anything! Do not use artificial sweeteners!! they are very toxic to the brain. Nothing with Glutamate….makes pain worse. No to chewing gum, and fluoride toothpaste.

      F) purchase from LIFEWAVE on line the ” Y-AGE Glutathione Patch”.
      Helped me tremendously, with fatigue, some kinds of pain, brain alertness, and sense of well being! This is non-trans dermal patch worn on meridian points. Nano- technology raises the glutathione levels within the body. The body will make more of it’s own. Nothing goes into the body. Instructions will come with it where to place it on your leg or foot or abdomen. They ship all over the world. The guy behind it came out of Nassau. Will be worth you purchasing for approx: $80 US dollars for 30 day supply.

      If you become a member the price drops. (You do not have to buy monthly) You can rotate patches. Take off at bedtime or may not fall asleep. The fatigue is because of the high Oxidative stress happening……counter by doing the mentioned above.

      G) Trans-dermal Magnesium Oil… after 20 min…wipe off excess lightly with wash cloth. keeps skin from drying out. Very helpful. I bought on line from Ancient Minerals. The spray – sprayed into my palm and applied to hips, legs arms as needed.

      H) Epsom Salt Baths – Magnesium can be absorbed into the cells far better than just oral Magnesium. Helps alleviate the pain to various degrees. Do not underestimate the benefit.

      I) Avoid packaged food –

      J) Drink water through out the day!!!! Everyday….you don’t have to guzzle, but drink through out the day…Hydration very important.

  17. rene July 23, 2014 at 12:32 pm Reply

    Josie, I needed crutches the first week because my foot began flopping, and I was very alarmed that I might injure myself, tear or rupture a tendon. The wheel chair came 3 months later I I believe….I was exhausted from trying to do get around with crutches..the 7th month new issues started with my arms becoming very painful. I also needed to be out and about so I could keep my spirits up. Living alone was not easy, and then 1.5 years later I moved in with family. The wheelchair gave me some independence and speed which was a great lift to my spirits and sense of freedom.

    • Josie July 23, 2014 at 1:12 pm Reply

      Oh my! I hope once I recover that It doesn’t come back! :(

      • rene July 23, 2014 at 1:50 pm

        Hi Josie, to be clear,

        My Adverse Reaction started rapidly with the (1st) tablet out of (3) total. Within the first 20 minutes I felt woozy….the next day very very very woozy and weak…..that night burning forearms, wrists, shoulder, Lower legs foot…..It also set off an Autoimmune response. for Sjrogens…which is no longer evident by the way.

        The Peripheral Nerve pain came on stronger after a week and developed into severe. That is some of inflammation that hurts so much in the small fiber nerves…Things that help quiet, and counter the inflammation are important…But .sugar, junk food/chemicals/ caffeine/ gluten/ MSG/ can all exacerbate the inflammation more.

        From what you have described it sounds like your tendons are the issue. You have not manifested the Peripheral Neuropathies….not everybody does. Many do. We are all cautious to emphasize that your cells need that Magnesium / Epsom Salt baths….this is a cellular injury. So even when you are feeling good….continue doing things that will aid your healing… The time is now, not 6 months from now. Always to keep things stacked in your favor for the best possible outcome and journey. The body needs that over the course of your life. In a nutshell you are the Mommy – your body is your child…lots of LOVE….lots of guidance, thoughtfulness. That relationship is forever and God is always with us. He is the Alpha & the Omega, The great Physician.

      • Josie July 23, 2014 at 2:13 pm

        Yes! MY arms feel very heavy today. My shoulder blades are burning but I think that’s because it’s so tense up there! My wrist also hurt when I type gr and my arm hurts also. Going get adjusted at the chrio tomorrow. :). Rene, when people have those visual issues, I have something that I find very odd.. Every single light to me looks like it’s flickering. But it’s really not…

      • Josie July 23, 2014 at 2:16 pm

        Also, it’s like my forearms hurt the weakness I guess I feel is like you know how after you work out? Like that. It’s not that I literally can’t hold anything but holdin my phone hurts my arms just a bit. Hah. Oh! Hey is it ok to take muscle relaxers?

      • Josie July 23, 2014 at 2:20 pm

        Very upsetting cuz I am a good guitar player! Oh the doctors called and said my ANA test came back negative. Whatever that means..

  18. rene July 23, 2014 at 4:30 pm Reply

    Josie,

    No to muscle relaxers: Why because they do not “just” effect the muscles…they are toxic and the toxic burden is so heavy in your body….hence all the pain. You want to utilize things that will cause no harm.

    You might want to get some ARNICA cream at the health food store. It is excellent for bruising, sports, injuries, post surgery swelling. It costs about $8.00…..been around for 100 years. Apply to muscles that hurt….you do not have to put in on heavily…but it is applied frequently….2-3x’s per day or more. It is made from the plant Arnica which has medicinal properties. But is not made into a synthetic form by pharmaceutical companies. Therefore the danger & risk of worsening is nil.

    A Negative ANA test is a very good thing. Why? Because it stands for Anti Nuclear Antibodies……when positive & elevated high that is an indication of a Auto Immune Response….which is not good. This can be “positive” if there is an existing flu or infection, but if the number is also elevated it means that the body is responding to itself as if it was a foreign body and attacks itself……I did have a positive ANA that was very high…But it did after several months it did reverse back to normal. Again an indication of how the body is designed to protect itself and heal
    .
    The tension and burning you feel may also be peripheral neuropathy… the Epsom Salt bath…..I know it is annoying to repetitively suggest this over & over…but I remember how my early days, I sometimes procrastinated because somehow I thought there might be something else other than me getting my but in and out of the tub…. So the convenient option is Trans Dermal (Ancient Minerals) Magnesium Spray bought on line & Arnica useful too sometimes.
    I

    • Josie July 23, 2014 at 4:34 pm Reply

      This pain I’m feeling in my shoulder and wrists gets better right? :( I have to do online school work and need to type… :(

      • Josie July 23, 2014 at 4:36 pm

        Also is it ok if I go on birth control? I am sexually active but allergic to all condoms… I ended up here because of a condom lmfao.. I was given cipro for an infection I never even had… I’m really down tonight… Feel like a big failure…. It’s hard to look at all these girls going out and I’m so restricted…. :(

      • Melanie Kemp July 24, 2014 at 12:34 pm

        Hi Josie.
        If I was you I wouldn’t take anything thats not absolutely needed at this time.I would not take birth control pills. Maybe hard to do but I would refrain from sex until you are in better health.Thats the main concern at the moment.
        Maybe somebody else has a view on the pill.Im just in the mind right now to not take any kind if pill that I dont have to take.It may cause more issues.I dont know

      • Sheryl July 24, 2014 at 12:47 pm

        I second that other stuff cause your symptoms to be worse.

  19. Sheryl July 24, 2014 at 12:10 pm Reply

    Josie it will get better if you do the things rene is suggesting. I took magnesium oil everywhere I went. Church everytime I hurt I was spraying. I went through depression couldnt type couldnt walk now I have dehydration cant drink plan water as it make me feel dehydrated so I do alkaline. I was better but relapsed and I take magnesuim bath as well. It will get better trust us. We all been through it all. I had this pressure in my head all the test came back normally I ended up putting olive oil on my back which made my shoulder and pain go away. The church member also put olive oil on my feet and hands and I got better. Hang in there it is rough and I have cried so much and prayed the light to the end of my tunnel is approaching just dealing with stomach issues. I have had poor blurry vision and feels like dirt is in my eyes the alpha lipioc acide helped with that also with my shoulder. I remember I had a colonoscopy cleaned me out with magnesuim citrate after I did that I felt so much better. The only problem I did not want to continue to have diarehha. I also use my son’s calm powder(Magnesium citrate) when taking the citrate make sure you drink plenty of water because it is dehydrating. My problem. I am getting over that with alkaline drops. Keep your head up. I know easily said than done. I feel like a baby sometimes wanting my mom from crying so much.

    • Josie July 24, 2014 at 12:34 pm Reply

      I have no stomach problems from cipro. Just my arms hurt and shoulders with my wriss. Slight pain in my legs as well.

      • Sheryl July 24, 2014 at 12:41 pm

        Its all related. but starting off the magnesuim will help. The more posts you read the more you will see how your gut is the beginning of all diseases. I have read countless sites and I hope you do not have anymore pain besides what you are experiences because I started with only arms, wrist, legs (burning) then it progressed to joint pain then head pressure then eyes and so forth. It wasnt all at once. I will keep an eye on the post and will try to offer help when needed. I dont wish any of this on my worse enemy.

  20. cleanse catalyst supplement July 24, 2014 at 1:05 pm Reply

    WOW just what I was looking for. Came here by searching for detox for weight loss

    • Josie July 24, 2014 at 1:06 pm Reply

      I had the head pressure and bad headaches a weak after I stopped cipro oh it was terrible!! :/

      • Josie July 24, 2014 at 1:07 pm

        Just got back from my chiro my back feels amazing now also he recommended a massage for my right shoulders and neck lol

      • Sheryl July 24, 2014 at 1:32 pm

        I am glad you are feeling better maybe I need a chiropractor also. tried physical therapist but it was too soon. Since I dont have so much pain it may help now. I do have a natural path doctor. Go in twice a week for nutritional lactac ringer and glutatione. I walk at least 30 min a day. Lots of tests… found out I have high levels of lead wonder what I go that from medium mercury…. waiting on flouride test if it is high I rather do that first it will take 3 weeks for results ugg.

      • Josie July 24, 2014 at 1:59 pm

        My legs hurt grr. :( eposm salt bath for me

      • Sheryl July 24, 2014 at 2:13 pm

        :(

      • Tim Featherstone July 24, 2014 at 2:21 pm

        4 months out, just got the head pressure back again, i did try and take some Prevacid (lansoprazole) though for my acid reflux after all natural methods failed, which seemed to cause it to come back, hence my advice of

        no meds no meds no meds.

        The acid reflux was crazy bad and i feared long term damage, i could literally be lying down for a few mins and feel the moment my LES just opened up and let the acid free from my stomach into my esophagus, definately some Cipro induced short circuit somewhere! i think it might be a nerve trapped in my neck or back, because, no joke, if i put my arms straight up above my head it would usually stop, bit difficult to sleep like that though, both my back and neck are very poppy and loose these days.

        I am also one of those people that a little acid reflux into my esophagus stimulates my vagus nerve that runs along side and makes my heart race!

      • Josie July 24, 2014 at 2:48 pm

        I’m sorry for al that your going through Tim! I’ll pray for you. I’m really sore today and hurting. Taking some magnesium and doing my eposm salt bath :)

  21. Sheryl July 24, 2014 at 2:47 pm Reply

    been there. When I have acid reflux I take baking soda and lemon juice there seems to be a inbalance between your potassium and sodium in your stomach. Anytime I have the pain/inflammation i reach for baking soda it seems to calm it supplementing with potassium drops in the am. also if you have burning pain thats the acid in your system from your food. Drink some baking soda. Lemon juice is ok because it should alkaline your body. Mastic gum seems to work well but I only take two a day out the capsule it doesnt seem to make me burn…. DGL is a no no it cause you to have leg pain although they say they took out the “G” for you to keep potassium. I try to stop my acid before it get too far up to my chest. It is horrible. “Slippery Elm Bark” good for your throat and intestines. I cant believe how bad all of this is but we will get through it some how.

    • Josie July 24, 2014 at 2:49 pm Reply

      Does the arm pain and wrist pain get worse? I have to drive 5 hours soon. :(

      • Sheryl July 24, 2014 at 2:58 pm

        For me it got worst but one day I actually was able to type when it came back I put gluthathione cream on it an no more pain. It comes and goes. I didnt drive for months. if you cant get the glutathione you need magnesuim oil and spray it on you everytime you feel pain. I couldnt put magnesium on my shoulder because it relaxes it I need that tight lol. (alpha lipoic acid) helped with that. everywhere else magnesuim seems to work. I would like to for warn anyone about gluthathione it makes you very hyper. I overused it one day and was not pretty….

      • Josie July 24, 2014 at 3:08 pm

        Unfortunetely I cannot order things online right now… Probably can’t for a while. :(

      • Josie July 24, 2014 at 3:08 pm

        It’s lot like omg omg pain like I need to cry it’s just bothersome I guess? Haha.

      • Sheryl July 24, 2014 at 3:18 pm

        Yeah hang in there. (Baking soda) alkaline the blood… Baking soda and lemon juice can help with if it burning like neuropathy without supplements
        I think I am detoxing which is another set of issues.
        The reason ppl keep saying magnesuim is because it pull the flouride out your body which goes to your bones. When you detox you stink also you start to smell your self not pleasant
        It’s seems as though if you don’t get it out it just keep recycling :(

    • Tim Featherstone July 24, 2014 at 3:16 pm Reply

      Oooooh Sheryl, Interesting! i tried baking soda, i burped in seconds so plenty of acid, made me feel strange though, like some impending sense of doom, i know that sounds weird, not tried it with potassium, and i would of thought lemon would make it worse, more acid?

      I tried Betaine HCL 1st as everybody mentions acid could be too low, that was a painful mistake.

      DGL? i have been popping loads of those, leg pain whatttttttttt?

      So Sheryl what’s the 1st thing you do when it starts?

      In the day i just eat something and it tends to churn on that and go away but nighttime is hell, bed propped up and all, no eating gonna help then.

      • Melanie Kemp July 24, 2014 at 3:58 pm

        Any udeas for fatigue. I sleep pretty well but im just tired all the time.

      • Sheryl July 24, 2014 at 4:05 pm

        Alpha lipioc acid but please take magnesuim with it make you hyper it is a precursor to glutathoine actually they both are but alpha lipioc acid make you hyper and magnesuim calm
        You down
        When you are tired your body is working to heal you. But you need a balance.

    • Josie July 24, 2014 at 3:27 pm Reply

      Thank you! I’m just nervous. I’ll be graduating high school soon and I need to walk across that stage…

      • Sheryl July 24, 2014 at 3:32 pm

        You will hang in there. We can all help you get through this.

  22. Sheryl July 24, 2014 at 3:28 pm Reply

    I don’t eat past 6 pm baking soda and lemon juice it’s neutral like a science experiment
    At night your ph is lower why you feel horrible. I also take the baking soda and lemon juice before bed to help with detoxing
    Hcl is a no no you have a imbalance you don’t need acid.
    I am not sure which type of Prevacid you have I had the kind with sodium bocarbonate
    But with baking soda and lemon juice you are covering sodium and potassium you can add some sea salt and a spoon full of honey as this is a electrolyte drink you are creating to help your stomach heal. Slippery elm bark heal the esphohagus and stomach lining mastic gum same… Like I said dgl might not cause you the same symptoms but it your shin hurts you know why.
    Hcl… Hydrochloric acid in your stomach you don’t need that it’s an imbalance

    • Josie July 24, 2014 at 3:35 pm Reply

      Thank you Sheryl. How do you know of you have tendonitis? :/

      • Josie July 24, 2014 at 3:38 pm

        No where in my body is swollen. :/ lol so does that mean I don have tendinitis?

      • Sheryl July 24, 2014 at 3:47 pm

        I never had swelling my ankles and wrist were hurting I sprayed magnesuim on it everyday. I stopped asking the doctors cause they never found anything. Don’t take NSAID it make it worse and don’t take curcumin it make your joints hurt. Good for woman cramps but keep in mind your will have side effects. I did notice something interesting when I acid reflux and put glutathoine(oxicell) on the back of my neck I burp strange. But I only use at night to get me through the night after 6 pm. Not hyper then. Do you know gluthatione is the most powerful antioxidants it helps with detoxing. The toxins need to come out that is the problem.

  23. Sheryl July 24, 2014 at 3:33 pm Reply

    When I feel something I reach for my mastic gum if not baking soda and lemon juice which ever is closest

    • Josie July 24, 2014 at 3:50 pm Reply

      Where do I buy glutathione? Or whatever xD

      • Sheryl July 24, 2014 at 3:56 pm

        It’s expensive I get my from my alternative medicine doctor it’s called oxicell but I am sure there are other versions google oxicell or gluthatione

      • Josie July 24, 2014 at 3:59 pm

        I can’t order online. :(

      • Sheryl July 24, 2014 at 4:11 pm

        Try healthfood store ask for glutathione
        If not alpha lipioc acid ….but glutathoine is for all that is hurting
        Before glutathione I did alpha lipioc acid and magnesuim
        I still do magnesuim everyday and alpha lipioc acid and gluthathione when needed I don’t want anything to come back

  24. Sheryl July 24, 2014 at 3:59 pm Reply

    http://www.vitaliving.com/OxiCell-by-Apex_Energetics?gdftrk=gdfV25532_a_7c1943_a_7c7302_a_7c5270&gclid=CJSx8ZGG378CFU4F7AodMy0AbQ
    It cost $40 dollars. If you get it don’t go overboard cause you will be running 200 miles per hour.

    • Josie July 24, 2014 at 4:12 pm Reply

      What does the eposm salt do?

      • Sheryl July 24, 2014 at 4:16 pm

        It help you getting the toxins out your system

  25. Melanie Kemp July 24, 2014 at 4:02 pm Reply

    Anybody have ideas on relieving fatigue.
    I sleep pretty well but still feel drained

    • Josie July 24, 2014 at 4:44 pm Reply

      Oh thanks guys. :)

  26. Brandon July 25, 2014 at 12:40 am Reply

    Has anyone used Lunesta or Zolpiclone (its European equivalent) for sleep. I was prescribed some, and slept well for the first time in ages last night, but have woken with some muscle aches. Has anyone else experienced similar?

  27. Lane July 25, 2014 at 4:20 am Reply

    Good day all,
    Does anyone have a recommendation for reducing heart palpitations (extra/skipped beats)? I’m really having a rash of them right now and need some relief (definently not helping with the anxiety at this point).
    Thank you,

    • Sheryl July 25, 2014 at 5:04 am Reply

      I haven’t got that one done to the right thing yet but working on it. In the am I seem to have rapid heart beat. Seems like a electrolyte imbalance with your body working so hard at night
      I do baking soda lemon juice sea salt followed by a green smoothie with a little garlic for the congestion I feel
      I think yogi green tea with digestion support helped but I was scared away with my detox symptoms of my ear hurting which I know it’s not a infection cause when I went to the emergency room for heart papitations they said I was low on potassium try a banana and see it that helps if you can’t do all I described above I have noticed my system is all out of wack and seems some things work and others don’t. But I try to do all natural … Besides the few supplements mentioned get me through the day have good days and some bad days
      But all is manageable

  28. Catherine July 25, 2014 at 4:28 am Reply

    I had to use suncream yesterday, and today all my floxing symptoms are much worse. I don’t know if the suncream has caused it. Has anyone else had this?

    • Josie July 25, 2014 at 6:47 am Reply

      Can someone send me the link to where I get that magnesium oil? :) thank you very very much. :). Also my left hand is my dominant hand. (Which is the one that has the hurting wrist and what not) more than the right by the way. Well, anyway I realized it’s getting tired real real real quick… :( is that bad..? Haha!

    • Debs July 25, 2014 at 11:44 am Reply

      Hi Catherine ,

      Many of us have issues with many things that before we were floxed would not give us any problems at all, this often involves chemicals of all sorts. We find we are now allergic to many drugs we have tolerated well in the past & many new ones we will be prescribed in the future although of course this varies from person to person.I do know that questions re sun cream making symptoms flare is something that pops up a hell of a lot in the groups. The other thing to maybe think of in regards to the flaring of your symptoms, is that the FQs themselves of course are photo toxic, has being in the sun bought you out in any skin rashes etc at all ? , what symptoms have actually intensified, any more than others ?

      • Catherine July 25, 2014 at 11:58 am

        Hi Debs, I haven’t noticed any skin rashes. I am itching all over, but that’s nothing new. The symptoms which are worse are muscle jerks, electrical buzzing feeling, pain, dizziness, agitation and misery, and general feeling of malaise which had lessened a bit, which was why I thought I might be well enough to go outside. So tired of lying in bed, watching the rest of the world enjoy the summer. Numbness etc began to flare up shortly after applying suncream. Will I pick up again, do you think?

      • Debs July 25, 2014 at 2:49 pm

        Hopefully you will be OK , I have not heard of anyone reporting back that the actual sun cream has caused any long term problems myself, I just notice that it pops up quite a bit people saying the same thing. I think that many of us are just so very oversensitive to chemicals etc now, that the slightest thing sets us off. Did you actually get outside ?

      • Catherine July 26, 2014 at 11:38 am

        Hi Debs
        I did get outside thanks. Lay by the lake while my hubby and kids went sailing. It was great to be out in the world again, but I’m scared to do it again because it led to such a massive flare up. I won’t use suncream again, but I can’t be totally sure what has caused the flare up.

  29. Sheryl July 25, 2014 at 7:26 am Reply

    I thought that was weird with the hand where my right hand hurt more that was dominant then I switch to my left then I starting having problems with that one I remember saying to my husband is this what it feels like when I get older :( I was cracking all over it was horrible a woman at the bank shook my hand and she cracked my fingers I felt so fragile. I was afraid to walk without the uncertainty of breaking something after all the doctor visits they never found anything wrong thank goodness.

  30. carol July 25, 2014 at 7:50 am Reply

    I don’t think I’ve read one quinolone survivor story in which these types of CNS issues–inability to filter/overstimulation of lights, sounds, etc.–were fully recovered from. I also feel emotionally detached and from reading the descriptions, it sounds like autism. There’s no cure for autism. Every brain/nerve support supplement I’ve tried makes my anxiety exponentially worse. So I’m all out of hope. Has anyone recovered from these specific filtering-type CNS problems?

    • Josie July 25, 2014 at 8:13 am Reply

      Carol I have te sound sensitivity and the light sensitvity as well. I’ve noticed the more I focus on them the more prominent they are! I know it hard. :( trust me. I’m scared as hell right now but for some reason I have a good feeling that I’ll be ok. You will too. :)

      • Josie July 25, 2014 at 8:16 am

        Sheryl oh my gosh the fear of breakin something? Oh lord I know exactly of the feeling! When I’m moving something and my shoulder hurts yes oh my god I freaks out but I figure of it hasn’t happens yet it won’t. :) trust me I’ll get pain in my archillis and I’ll freak out like no other lmfao xD I never thought a year ago I would be going through this. It definitely sucks but you know what… You got to make the most of everything and the best of it… Try too. I woke up today and said I’m thankful I’m able to walk, see, use my hands and speak. I’m thankful I’m feeling somewhat better. I realize if you focus on things you can’t do the more things hurt but if you look at the things you so do, it helps. Like I’m happy I’m able to do light exercise and stuff.. I feel content that I’m able tondo things some people can’t… And I appreciate that. We take so many things for granted that we don’t realize that some people have things so much more worse….

      • Sheryl July 25, 2014 at 8:38 am

        I have countless number of times I wish I was “normal” again but know I will be soon. I took things for granted as well but when I get better i am going to celebrate my victory. I was so happy to see my birthday (a very relaxing day) sometimes I cried because I thought I was dying but I’m not and neither is anyone on these post. It is hard but it will be ok There are recover stories but some people have to go through a year or so before reaching it and some don’t. Depression is also a side affect that goodness that is over now. Hang in there all we are in this together. You are not alone. I am glad I found this website hopefully I can help a few ppl along our way to recovery

    • Sheryl July 25, 2014 at 8:22 am Reply

      Don’t lose hope I haven’t. I didn’t think some of my symptoms would ever go away but they are. I am determined to find a cure for this as well as my sons autism. Matter of fact my son is doing the same thing as I am. As he is severely autistic and I have found some success with diet change and when I feel over stimulated I take magnesuim citrate and the same for him. The ugly truth is you have to change the way you eat to detox. I just started glitathione cream mag and alpha lipioc acid at night we both take veg now supplement which has emzymes probiotics minerals and vitamins in. I know what alpha lipioc acid does for me I think I still have my vision because of it mag relax you do your body can heal but so many ppl give up. Yes my son is still autistic but he has come doing way. One other thing my son was on antibiotics and now bus white blood cells were down after putting him on more veg the doc said they drastically went back up come back in two weeks. He sleeps better now and his caregiver says he is more alert don’t give up . Parents of autistic children say heal the gut heal the child and that’s what I am doing.

      • Josie July 25, 2014 at 8:50 am

        Good for you Sheryl. Donyou drive? I’m currently driving right now. :)

      • Sheryl July 25, 2014 at 8:58 am

        Only when my hubby tick me off lol but yes I can drive I can walk down the stairs I can go for walk. Go to my parents and sit on the gazebo very relaxing. In the morning my legs feel funny but when that happens I put glutathoine which perk them up lol it feel feels to feel my muscles pumping up lol but it get me going. I can a lot of things now feed my self bath myself etc. pain free :) the only problem I have is the leg thing lol and occasional acid reflux which is getting under control now. Green tea tonight to help my digestion :) besides that I am so much better no l depression anymore.

      • Josie July 25, 2014 at 8:50 am

        Sheryl want to add me on Facebook? Search up Josie Lynn Klemett. :)

      • Sheryl July 25, 2014 at 8:59 am

        Ok I will :)

      • Josie July 25, 2014 at 9:24 am

        :)

      • Lisa Bloomquist July 25, 2014 at 12:11 pm

        Both Sheryl and Carol,

        There is a group called TACA (Talk About Curing Autism) – http://www.tacanow.org/ – that has a lot of interesting information. A lot of the things that I’ve seen them recommend for treating autism are things that are recommended for helping floxies. There is a lot of evidence that both autism and FQ toxicity are related to mitochondrial dysfunction. Healing the mitochondria, and thus having them stop the vicious cycle of damage and oxidative stress, seems to be key for both disorders. I believe that TACA also has some behavioral therapies that have helped kids’ brains to heal. Meditating helped me immensely and I recommend it to everyone. Also, Dr. Derrick Lonsdale has written some really interesting stuff about the role of thiamine deficiency in autism. A lot of what he has written about thiamine deficiency rings really true for FQ toxicity as well. Some of his articles can be found here – http://www.hormonesmatter.com/author/derrick-lonsdale/. He has other work that can be found through Googling him.

        Putting our cells back together is difficult – there is no denying that. But it has happened for people. I hope that it happens for you!

        Regards,
        Lisa

    • Melanie Kemp July 25, 2014 at 10:47 am Reply

      Carol.
      it goes away.I had terrible visual and audio issues.My doorbell sounded like a church bell.I would jump and react to any little noise.I had very dry eyes and they felt like there was a lot of pressure behind them.I would have times of them being blurry and times of what I call high def vision.Everything was to vivid.
      Time is the factor.Eventually we heal. Maybe not to 100% but close.Symptoms start disappearing. How long ago was you floxed?

  31. carol July 25, 2014 at 11:24 am Reply

    Melanie–
    Thanks, you help so much in keeping a little hope alive. I took a total of two 500 mg Levaquin March 18 and 19. It doesn’t help that I moved to a new city Fall 2012 to go to back to school and don’t know anyone (at age 41 I’m older than all the other law students). I live with my bf–quite the hermit himself–in a very isolated part of town. I took the summer off school because of this whole ordeal and now I have too much anxiety to make the journey out to public places. I feel like my brain won’t heal/adjust to being a part of society again if I keep being so isolated. Can’t even try to catch up with school stuff: reading is hard because of the horrible visual issues and I feel like I have ADD. The only improvements I’ve seen (my symptoms are mainly CNS issues) are that the insane head pressure and dizziness have improved about 50% from when they were at their worst, maybe because I started taking sunflower lecithin, Vit C, Mag, N-AC, or maybe because I don’t eat sugar or soy anymore (was always vegetarian). In fact, I don’t eat much of anything any more and can’t afford to lose any more weight (30 lbs already). Also, brain/nerve support supplements (GABA, Benfotiamine, Lion’s Mane, Ginkgo Bacopa, Magtein) exacerbate my anxiety to the extreme. What do you think? Am I hurting my brain recovery by avoiding public places and talking to people?

    • Melanie Kemp July 25, 2014 at 11:34 am Reply

      Carol.I went down pretty fast.Right after taking 1 Levaquin I had sinus surgery.10 days later I was bed ridden for 4 months and housebound for a year.It took 18 months to feel my new nirmal and get back to work.
      I didnt know what it was..kept thinking the anesthesia because it did feel like I was poisoned but I didnt put two and two together until a month ago. (4 yrs later) I saw a post in facebook about Cipro and Levaquin. .oh my goodness. Light bulb moment.
      I just got through it somehow..no supplements ect..I didnt know what I was dealing with.
      I lost 40 pounds so was just about 98 pounds at the endMine was all CNS and nuerological.Some aching..well…sometimes a lot of aching but I could deal with that opposed to the stinging burning and other crazy sensations. My head was litrally mush for 4 months.
      I got better with time.I didnt socialize so that wont effect you.The only time I left the house was to see doctors of which was a total waste of time.I stopped going.
      you will get better.It does take time but I do believe positivity is key

    • rene July 25, 2014 at 11:52 am Reply

      Hi Carol,
      You may try L-theanine…….it can help balance some of the anxiety you are experiencing from lack of Gabba…..leaving you with too much Glutamate unopposed.

      Do Not take any “supplemental” Calcium….this will make things worse regarding Brain Health – for those of us with Anxiety, feeling tired and wired, lack of calm in our thinking and mood. This also applies to autistic children. What we share in common is an issue with balance between Glutamate & Gabba in the Brain.

      Hence the need to avoid!: MSG, Hydrolysed or Autolysed Yeast, Natural Flavors….And high glutamate foods like BEETS, Legumes, which will “ramp up” the Glutamate in the Brain without Gabba to oppose it and keep things in check/balance. Stimulating/Calming balance between the two.

      Purchase L- Theanine Brand that only L-Theanine and nothing else…some brands add Calcium. No supplemental Calcium should be used.

      • carol July 25, 2014 at 12:21 pm

        Thanks Rene. I am doing all of this already, except for the L-Theanine. It’s one of the many flox-recommended supplements I tried that made the anxiety worse. How are doing since the stem cell therapy? Did your symptoms improve?

    • Sheryl July 25, 2014 at 12:35 pm Reply

      Thank you.

      • Sheryl July 26, 2014 at 1:14 pm

        Carol if the l theanine is causing problems have you tried it with magnesuim anytime I take a excitory I take magnesuim alpha lipioc acid help with vision problems only of you take magnesuim with it. Same with l-glutamine here is the logic when you take l glutamine you need magnesuim with it because it is an excitory which raises glutamate I believe they both raise GABA but you need a balance to not raise glutamate. L theanine and taurine or l theanine with mAgnesuim anytime I feel Anxiety I take magnesuim with my glutamine for my stomach yes it does seem that what we have autistic children are going through.
        I hope this help someone

  32. Jimmy July 25, 2014 at 11:44 am Reply

    Hi everyone, did anyone actually have tendonosis that went away or they recovered from?

  33. Melanie Kemp July 25, 2014 at 11:44 am Reply

    I have to just say.Im very sensitive to meds and over the counter products so I wont take anything at all now.Its just not worth it to me to keep trying different products. Thats what got me here in the first place.
    Im just very nervous of anything at this point.
    my mum hasn’t taken not even a headache pill in 40 yrs and is as healthy as a horse.Im following suite regardless of what happens to me.

  34. Melanie Kemp July 25, 2014 at 11:48 am Reply

    Jimmy.I took maybe 7 Levaquin way back..maybe 12 yrs ago and syffered terrible pain. I shortly after that had two frozen shoulders. Again didnt put two and two together. .duh!!! I recovered with PT.Took about a year.
    its why I took 1 more yrs later because I wasnt thinking.
    im a groomer..just thought id been working to hard..

    • jimmy July 25, 2014 at 12:36 pm Reply

      hi melanie, thanks for your kind response. i’m in need of a little hope today :) so were you actually diagnosed with tendonosis that healed? and you are a groomer? of horses or other animals? that sounds nice. anyway, if you’d like to email me you can at jimmybruhl@gmail.com, or we can speak on here. I’d like to know more about your PT regimine, if you wouldn’t mind. i did get some stretches from my doctor but i’m terrified that he doesn’t really understand how our tendons are damaged, by inadequate collagen production, and that by stretching I will damage something more. :/

      • Melanie Kemp July 25, 2014 at 1:11 pm

        Hi Jimmy.
        Umm im not sure.It was just referred to as a frozen shoulder.First my right then ince that resolved my left.It took a year each with some therapy.Stretch bands etc.
        in my left I also had a cyst so it was muchnmore painful but now I think about it it was around the time I took Levaquin so im sure that was the result.
        I know what you mean about not wanting to aggravate the situation. I just didnt know what the situation was at the time.
        im a dog groomer.I just stopped doing big dogs because im sure that contributed to the situation.
        it was extremely painful as I remember and I lost at lwast 50% of use at the time.
        I get twinges now and then still but not very often and so I dont think about it anymore.
        what is the extent of youre injuries

  35. jimmy July 25, 2014 at 2:06 pm Reply

    hi melanie,
    thanks for the info. i’m 14 mos out and have had lots of issues. most come and go and i can deal with most all except the pain in my right hip. which is diagnosed as tendonosis of the gluteus minimus and medius. after 8 mos i was 85% recovered. then i had a relapse after taking some supplements and shortly after I saw the tendonosis in my hip. so i must have released some of the levaquin from the tissue and it hit new places. i asked on fb support group (which i just joined) if the tendonosis would heal and got some pretty hopeless answers. but i don’t believe that. i believe it can heal since one year ago i could barely walk and and had neuropathy and achilles pain and all that went away within 8 months.

  36. Melanie Kemp July 25, 2014 at 3:00 pm Reply

    Hi Jimmy.
    I was on a Facebook forum but decided to come off if it.They are pretty scary.
    I relapsed after 3 great years.I started working out and I think it released it back into my system also.Its been going on now for 6 weeks or so and un nerving so I dont like to read hopeless stories .I like to try and stay positive even though its hard sometimes.
    you can E mail me if you like
    melglove@hotmail.com

  37. carol July 25, 2014 at 5:55 pm Reply

    Josie, the first thing I noticed was that they were itchy and watering a lot. Shortly thereafter I noticed trouble focusing. Then the white part got swollen. Went to optometrist who found peripheral vision loss and that one of my eyes was focusing higher than the other–basically vertical double vision. It wasn’t as obvious to me that it was vertical double vision (it’s not like I could see two of everything, like when you go cross-eyed), I just knew I couldn’t focus very well. Doc said no big deal, I’ll give you prism glasses (they force your eyes to focus together). Didn’t get them right away because of money issues. Then my right eye started twitching quite a bit throughout the day for a few days. Got the glasses like a month later and wore them for about a month, but my brain hates them and they didn’t help me see. Four months later the twitching (which the magnesium probably helped) and wateriness is gone. Now they just feel dry all the time and the white part is still swollen (I later learned that watering and swollen sclera are both actually a symptom of dry eye. I still have the focusing problem (especially when reading close-up and when trying to scan back and forth quickly) but think maybe I’m getting used to it.

  38. carol July 25, 2014 at 5:57 pm Reply

    Oh, I also have trouble seeing in low light and in very contrasty situations. My pupils don’t seem to dilate much.

    • Melanie July 25, 2014 at 6:20 pm Reply

      I also had extreme dry eye. I went to the Eye doc because I felt a great pressure behind my eyes and was getting ready to have sinus surgery and the ENT doc wanted my eyes checked first. After a thorough exam she said I had very dry eyes and gave me some gel drops but I didn’t really use them because they caused blurriness. I know now it was from the floxing. I had vision issues whereby I would either have blurry vision or what I call Hi Def vision where everything was to bright and vivid. I would also see things out of the corner of my eye when nothing was there. My pupils stayed very small no matter what light I was in and sometimes they would flicker back and forth. I cant remember how long it lasted. Perhaps a year.

  39. Linda July 25, 2014 at 7:08 pm Reply

    I seem to be having the same symptoms with sinus issues and dry eye. How long does this last. I am newly floxed.

    • Josie July 25, 2014 at 7:37 pm Reply

      Stomach really hurts tonight so I only took one magnesium today. :(

      • rene July 25, 2014 at 8:52 pm

        All newly Floxed – (meaning the first months – year)
        Please keep a vigilant oral hygiene…..This injury can effect the gums, and teeth. I had rapid gum loss behind my front lower teeth (3) teeth total. I was unaware of it till went in for my cleaning…and the hygienist remarked that something was going on and send me to a periodontist to make sure it would not continue.

        it did not continue in my case, i did not have periodontal disease but again an indication that glands are effected as well as all systems in the body….everything is related. The dryness i the eyes does improve eventually,….which is also why an ANA anti-nuclear bodies test that is negative or positive only a little bit elevated is Good. When positive & High that could be sjogrens….I was postive for induced auto-immune response which reversed several months later. I had dry eyes…etc. dry mouth which caused the gum loss.

      • Sheryl July 26, 2014 at 3:06 am

        My stomach hurt as well keeping up with this with a green smoothie at night and fiber in the am. Gluthatione on my back and stomach to stop the pain. As far as sinuses I make sure I have garlic in my smoothie to break this up. Dry throat I use ph drops with sodium bicarbonate and potassium it seems like it is helping. Treatment on Monday with nutrientional lactac ringer(potassium and sodium bicarbonate) and glitathional at alternative medicine doctor.

      • Melanie Kemp July 26, 2014 at 6:04 am

        Can I get some words if encouragement.
        I was floxed in 2010 and had a horrific 1st yr and in total taking me about 18 months or more to get back to life.I was doing extremely well with 2 very minor flare ups only lasting a day or so.This year I started a workout program because id gained a lot of weight abd was just uncomfortable. Im not sure if that started this flare up but I tend to believe it did.Its now going on 6-7 weeks and many of the old symptoms are returning. Burning and stinging skin.Brain fog.Very loud tinnitus. Cant sleep because of the eacing mind feeling.Dry eyes.Cant wat without making things worse.etc etc.
        im just really scared its not going to resolve this time.

      • Josie July 26, 2014 at 7:31 am

        Does it matter what kind of magnesium oil I buy?

      • Sheryl July 26, 2014 at 7:57 am

        I don’t think it really matters i get mine from our health food store by life flo. On a positive note my son said ok to his care giver today :) he is none verbal so something is working and he shook his head yes to me “of course he is imitating me” as far as thamine he get it in his diet and supplements to heal both of our guts. I did have constipation issues they are none existing now :) I woke up no baking soda and Lemon juice but instead green smoothie organic eggs and grits and ph water got rid of the soreness now for my morning excercise gluthatione on hips and legs pump these suckers up lol

  40. Mark July 26, 2014 at 3:28 am Reply

    Does anyone have experience with Doxycycline?

    I’m asking because my girlfriend and mother seem to have similar tendon pain (beginning) without getting Cipro, and since we’ve all been to Iceland this year (highest Chlamydia cases in Europe) I suspect that with a lot of luck Chlamydia might be the cause (both have Chlamydia Pneunomiae, my test results are coming next week).

    So what’s the case with Doxycycline?
    I heard it helped some Cipro patients?
    Maybe because of Chlamydia being triggered by Cipro?

    Theories theories theories…

    Mark

  41. Melanie Kemp July 26, 2014 at 6:05 am Reply

    Sorry.That was cant eat

    • Sheryl July 26, 2014 at 1:27 pm Reply

      Hey Melanie
      A lot of this is what is being consumed and what is being released in your body. I know I have said this a lot but the acid in out bodies is causing all of this besides being poisoning by the substance on cipro levaquin etc. do you know that your body releases lactic acid when you exercise and your kidneys and liver is trying to detox this stuff. I know no one wants to hear about alkalining your body but some of the pain will subside if you do. When your symtoms flare up you have to get the acid out. Your body is producing all of it it’s called hcl your stomach has potassuim and sodium bicarbonate in it and any imbalance cause it to leak out your stomach into your body also when you have acid in your body by way of acidic things you feel horrible but did you also know that your body can heal itself but you also have to help. I had bad kidney like pain do you know what I took baking soda it’s alkaline and lemon juice it’s acidic but alkalining to your body you can do this we all can don’t give up we have come along ways I know when I get better I will never take another antibiotic I also read somewhere that cipro causes your potassuim to be too high it also causes a lot of things but I am not saying that the problem. It’s a metabolically problem we need to get in balance but they say before you start any detox program your stomach should be healed so if you have any problems such as acid reflux that’s a start it’s all related

      • Mark July 26, 2014 at 1:45 pm

        Did any of you have pain in your back muscle?
        Today it started for me where the back muscle connects with the back of the hip.
        It feels as if there’s a little hole as well but I’m not sure.

        Further I developed a small hole in my right Achilles tendon.
        Did anyone have this as well?
        Does this mean that it’ll snap?

        Right now I’m only taking magnesium citrate and applying magnesium oil.
        I don’t know what to take and what not to take at this point to be honest.

        There’s the whole fix the gut side of things.
        With Ghee, slippery elm, prescript assist, liposomal vitamin c with ethanol, now super enzymes, etc…plus the saltwater colon cleaning.

        Then there’s the mitoQ and PQQ fix your cells side.

        Not to forget the candida (I have it in my blood) and chlamydia (waiting for result) options.

        And the IV’s of gluthatione alpha lipoic acid and vitamin c.

        Last but not least the Remag, Relyte, Realine, magnesium oil plus magnesium magnesium and more magnesium side.

        My test results for ANA and other autoimmune diseases came back negative.
        My thyroid levels where still normal.
        Rheumatic factors normal.
        Brain MRI normal.

        What I did have:
        -slightly elevated kreatinin
        -low ldh (had normal levels before Cipro)
        -high lipase
        -low folic acid
        -candida antibodies
        -slight tendonitis Achilles MRI
        -bone oedema in my feet

        What to do?
        I got no plan anymore.
        2 months ago I was a strong fighter lifting 350lbs, sprinting, studying and loving my girlfriend.
        I made all my decisions myself, I cleaned my own house, I fixed my problems, I fixed other people’s problems.

        Now I’m not even a shadow of my former self.
        I feel like a loser for not googling the side effects before taking it.
        I normally always do that even for milk, fruits, etc…I questioned everything in the past.

        Whatever.
        Long story short.
        Guys, new friends, fellow sufferers, please point this hopeless fool in the right direction.
        Which way to go?
        All at once?
        Tell me please.

        Mark

      • Sheryl July 26, 2014 at 2:04 pm

        For the pain in my back I put oxicell cream on my spine and everywhere it hurts. I am uncertain where your pain is sometimes I feel something it my back not necessary pain but something stuck after I take slippery elm bark it’s like your food sits there for a while to absorb all the nutrients. Any pain besides the glutaione was alleviated with baking soda and lemon juice but be careful you at need to supplement with potassium. I also notice when I take ph drops in my water I burp cause there is a imbalance in my gut. Also with magnesuim if you don’t have enough potassuim you will need to replemish magnesuim takes potassium where it needs to be I hope with all these issues. Also make sure to take vitamin d supplements but then again your levels might be ok mine is not only 39
        I soak up the vitamin d in the am outside :) our bodies are all out of wack it’s sad. My back hurts in the morning so I know what to do with the potassuim and barcarbonate. Not to be personal but you are not constipated are you. I go once or twice a day I do take supplements it’s has boron in it which is good for detoxing flouride. I hope this answered your question if not let me know just sitting here sipping on a green smoothie….last meal of the night

      • Mark July 26, 2014 at 2:09 pm

        Hey Sheryl,

        thanks for the reply.

        Tbh honest your answer was a little hard to follow, maybe it’s because of the Cipro. :/

        Can you maybe list all the things you’re taking?

        Mark

      • Sheryl July 26, 2014 at 2:33 pm

        Sorry I get to typing and don’t know how to stop lol
        I am taking … Vitamin code raw calcuim …
        It has calcuim magnesuim vitamins d3 k2 mk-7 boron etc
        I know ppl say don’t take calcuim but I am getting the same thing from vegetables as these supplements which includes probiotics and enzymes

        I also take extra magnesuim citrate in the form of calm powder

        For digestion:
        Peptic soothie … L glutamine extra magnesuim help your eyes and focus
        It has zinc and other things on it for stomach support

        If you decide to take alpha lipioc acid take it with magnesuim for your brain and bad shoulder

        I use young phorever puriphy ph drops for dry throat
        When I feel I need something for my eshopagus I take slipper elm bark

        I take epsom salt and himalysia salt bath 3x a week maybe less now

        If my ear hurts from detoxing too much I put hydrogen perioxide on the
        And it stop the pain

        I brush my teeth with flouride-free toothpaste from
        Toms of main. It’s baking soda

        I couldn’t eat maybe a month ago because I felt food in my back so I went on two green smoothie a day and not eating after 6 pm

        So it’s like I am getting a double dose of my supplements

      • Sheryl July 26, 2014 at 2:38 pm

        Btw I only do organic vegetables

      • mark July 26, 2014 at 1:52 pm

        Glutathione did nothing for me. and i’ve heard negative things about mitoq and even pqq since it’s a vasodilator.

      • Sheryl July 26, 2014 at 2:20 pm

        As far as gluthatione if you do it by iv it last only 24 hours
        I have did all kinds of treatments before and after cipro poisoning I notice something was wrong when my uvbi didn’t work no longer. I have had 10 treatments post cipro. As well as ozone 10 or so treatments. I honestly think we are flouride poisoned. I know I have lead and med mercury but not going to get the chelation until my flouride test come back.aybe everyone has other kids of poisoning in them as well. The test for the lead and mercury I was injected with iv then they checked my urine at an independent lab. Flouride they had my take an iodine pill and that take a 24 hour urine sample. Another test you can do I home which I found out if you can’t drink distilled water for 2 weeks you are poisoned. Guess what I can’t drink distilled water although I put ph drops in them. I can’t drink regular water without feeling dehydrated at all. I also read that doc don’t know your kidneys are falling until it is 80 percent gone. I think I want my kidneys liver gall blader we etc. the radon ppl feel things are not working is because there body is trying so hard to get rid of the toxins. I was at the alternative med doc and I spoke to the check out girl and told her I think I’m detoxing I stink she said cool I know I am still detoxing as the spell is getting better and I am feeling better now. Ppl feel treatment don’t work because they don’t feel good instancely but oxicell is working for me as it says put morning noon and night I slack down to only night and little in the day cUse it’s too powerful. While I creamed up at night andahnesu oiled down I am sleeping peacefully knowing my body is working to heal. Don’t give up ppl.
        This stuff does work…

      • mark July 26, 2014 at 2:37 pm

        Thanks Sheryl, I think everyone is different and what works for one does not work for all. I took iv glutathione a few times and it began to make me feel much worse. I have taken so many supplements and types of magnesium. now i only take lipo vita c and chelated magnesium and some vegan protein powder and i feel better than i did when i was trying lots of things. Our bodies will heal if we don’t overburden them. NAC made me dizzy for days and started a massive headache. NAD gave massive headaches. I think we need to get magnesium in with a chelated form so our bodies recognize it and accept it, and some good vitamin c. and be careful of overtaxing our livers with multiple treatments/supplements. This is only what is working for me.

      • Sheryl July 26, 2014 at 2:41 pm

        You are correct. We are all different what works for me doesn’t work for others. To help your liver and kidneys you might want to research natural minerals that your body already produce. I feel better as well so something is working :)

      • Mark July 26, 2014 at 2:50 pm

        Mark, what brand of liposomal vit c do you take?

        And further I’d like to ask everybody about their probiotic.

        This is my probiotic:
        Bifidobacterium bifidum W23
        Bifidobacterium lactis W18
        Bifidobacterium longum W51
        Enterococcus faecium W54
        Lactobacillus acidophilus W37
        Lactobacillus acidophilus W55
        Lactobacillus paracasei W72
        Lactobacillus plantarum W62
        Lactobacillus rhamnosus W71
        Lactobacillus salivarius W24

        maize starch, Maltodextrin, Inulin, potassiumchloride, Magnesiumsulfate, Fructooliosaccharids, Enzymes, Vanilla as natural aroma, Manganese sulfate

        Today I took more of it and I’m thinking that my reaction today is because of that.
        Anything wrong with the ingredients?

        Mark

      • mark July 26, 2014 at 3:29 pm

        I take the Mercola vitamin c. 1000mg. works great. take it 2x per day. also take Mercola Complete Probiotic and Ultimate Flora, switching off.

      • Mark July 26, 2014 at 3:57 pm

        Thanks for the tip Mark I’ll try it.

        Did you try lipo vit c with ethanol in it?
        I reacted badly to it and wonder if it was the c or the alcohol…

        Mark

      • Mark July 26, 2014 at 4:05 pm

        Mark did you read this:
        http://www.amazon.co.uk/gp/aw/cr/B00BCJSHJY/s=sd/ref=mw_dp_cr/276-6792343-8680811

        “This product is fake, it is being sold as a liposomal product however it is not liposomal. The product does contain vitamin c and lecithin however it does not have any aqueous liquid so cannot form liposomes. You might as well buy the two ingredients separately as it would be cheaper. If you call their customer services and ask them they will admit it is not liposomal but has the ingredients of liposomal vitamin c. That is a long way from being a liposomal product as it requires a manufacturing process. This is a fake product see the reviews of the product…”
        Mark

      • Mark July 26, 2014 at 4:20 pm

        Did anyone try those products?

        http://www.abundanceandhealth.co.uk/default.aspx

        Mark

      • mark July 26, 2014 at 6:00 pm

        Hey Mark,
        Yes, I had seen that in the past about Mercola. I don’t buy it. Mercola is a trusted name here in the USA and in fact, I had seen his warnings about Cipro and Levaquin and had forgotten about it when i took them. I am a seasoned cyclist and have used Mercola sups for years. Once floxed, I noticed that if I tried other Liposomal c i’d have a reaction. I don’t care what it says, I have my vitamin levels checked regularly and i was low and now it’s getting where it’s supposed to be. The product is fine, and I have no problems with it. Re: Probiotics…i too had problems with several brands once floxed. The two I mentioned I did not. Re: your questions about products page. I don’t know which ones you are asking about. but if it’s glutathione, I feel it’s wasting money. Didn’t help me. I think you have to keep supps basic for a while till your body adjusts. Even then, most things didn’t help me. Read the recovery stories. It’s all about chelated magnesium and Vitamin c. How far out are you? You can buy mercola supplements on amazon.com or iherb.com if you live in US, Europe or the UK. I feel some supplements do more harm than good. Just my 2 cents…

      • Mark July 27, 2014 at 12:19 am

        Hey Mark,

        Are you in the recovery story where you won a bike race after recovering?
        If so I’d love to get in contact via email of you’re down.
        I’m an athlete as well, trained 5 hours a day 5 days a week, and am searching for people in similar situations.

        Lisa can you maybe send my email adress to Mark’s?

        Mark

      • mark July 27, 2014 at 10:22 am

        unfortunately, that is not my recovery story. different mark. I’m still trying to take this tiger by the tail. been at it 12 months, now. you? how much did you take?
        markccalifornia@gmail.com

      • Mark July 27, 2014 at 10:40 am

        Mark,

        I’m at 2.5 months out and so far it gets more week by week.
        I got 2x500mg Ciprofloxacin a day for 10 days just to treat a minor ear infection (no fever, hardly any pain).

        How was your monthly progression thus far and what did you do to fight it?

        Mark

    • SM July 26, 2014 at 4:24 pm Reply

      Melanie! I’m sorry to see you left the FB group but I certainly know why you did. I was new myself even though I’m 13 months out. I’ve only been on for 2 weeks. My wife has been on for months and she can get lots of good information without me seeing stuff that will depress me. I may be following in your footsteps. Not sure it’s the best place for mental support. I feel the vast majority of active people are long term floxies and people who have been struggling for a year or less. That’s a tough combination. People have have been floxed for 4 years and are still struggling are in a different place than the relative newbies.

      You said you were looking for hope. Reread Bill’s story and the comments below as he suffered setbacks months and years later like you. You could even message him on FB. He’s very kind and positive.

      Shawn

      • Melanie Kemp July 26, 2014 at 4:27 pm

        Thank you shawn.I will :)

      • Chris July 26, 2014 at 8:48 pm

        Shawn, I’m so sorry that you and others on the site are experiencing sooo many problems as well. You had mentioned that some people on Facebook said they had been Floxed for over 4 years! I’m not on Facebook and I am wondering if there are many people who have suffered for so long? I’m just about 28 months out. Thank you, and best wishes.

      • SM July 27, 2014 at 1:24 pm

        Chris,

        First off, I’m so sorry that you’ve been struggling for 28 months. That’s a long battle. I don’t think anyone in the FB group is trying to be negative, and I don’t think they really are. It is just tough, especially when you’re a relative newbie to this world. I’d rather keep this site as it is intended- positive and hopeful. But yes, let’s just say there’s a big range of timelines out there.

        I hope you’re making some progress after 28 months.

        =)

      • Chris July 27, 2014 at 6:16 pm

        Thank you. I don’t know why it is taking so long to resolve. If I would guess, I would say it might be because of my age (60+) and/or that I took non-Ester Vitamin C (acidic). Or, it may have nothing to do with these at all.

        I wish I had known that Levaquin had a Black Box warning (I didn’t receive the drug sheet, and didn’t realize it until after I had already taken the pills (4).

        Best wishes to you all! Chris

  42. carol July 26, 2014 at 4:49 pm Reply

    Melanie, I wish I had advice. But it seems like if your body healed before, it definitely will heal again. I know a lot of things about our reactions don’t make sense, but maybe your immune system will get over it more quickly this time since it couldn’t have forgotten the last time it happened.

    • Melanie Kemp July 26, 2014 at 5:06 pm Reply

      I hope so carol
      its tough to go backwards.
      its nowhere near as intense but still very uncomfortable and just mentally frightening
      thank you for youre answer :)

  43. carol July 26, 2014 at 5:22 pm Reply

    Mark, Maltodextrin makes my head hurt.

  44. Kate July 26, 2014 at 6:39 pm Reply

    Melanie,

    I tend to think that exercise is good, as long as your tendons are ok. I took 2 pills of Cipro in both March 2013 and November 2013 and spent November through April of this year exercising, not anything really high impact, just the elliptical and low impact classes. I don’t think that you can beat yourself up about doing that. I think that when I was sweating and working out I was better off than I am now. I’m having a reaction now, I believe because of NSAIDs I took in April, but Lisa says too, that if you can move, you should. :-) I am on the fb page as well and feel I also will be leaving it shortly due to the negativity. I would love if there were a facebook page dedicated to recovery stories like Lisa’s Floxie Hope page.

    • Melanie Kemp July 27, 2014 at 6:46 am Reply

      Hi kate
      I know the Facebook forums sre helpful for some but just not for me.I need positivity and even though I believe some people are tears into this with little change I trily believe positivity is a key player in this game that nobody wants to play.So im just trying to surround myself with the good news :).
      I did love to workout.Its actually the first time id done it in my whole life and im 55 .lol. but really enjoyed it but did notice that familiar Levaquin ache in my shoilders and back maybe 3 weeks in.I just hsd forgotten how that felt and paid it no mind.
      I cant say for sure that it was what started my flare because honestly there is no ryme or reason to this stuff.I should try some lower level excersise for sure.
      thanks so much for you’re reply and taking time to write me :)

      • Mark July 27, 2014 at 6:54 am

        Melanie,

        please get your ldh levels checked if possible.
        I had still normal levels 3 weeks after Cipro but now 2.5 months in I got low levels and I think that the Cipro causes this…
        http://ghr.nlm.nih.gov/condition/lactate-dehydrogenase-deficiency

        Mark

      • Melanie Kemp July 27, 2014 at 7:11 am

        Mark.
        thank you I will :)
        Im feeling slightly better today.Head isnt so foggy.I started taking some magnesium last night and it lifted a bit.Now I do know this means absolutely nothing on this ride but im thankful for any days or hours of feeling ok.My hope of course is that this flare up is running out of steam.

  45. Mark July 28, 2014 at 1:50 am Reply

    Hi at all,

    As expected I got Chlamydia Pneumoniae (not the type you get from sex lol) and Candida in my blood.
    I suspect my Iceland holiday to be the reason for my infection.
    http://icelandreview.com/news/2013/07/24/record-levels-chlamydia-iceland

    Anyways, I have heard often from Cipro patients having to deal with additional Chlamydia and/or Candida, but can’t this be the reason for some people getting side effects and others don’t?
    Both Chlamydia and Candida can cause Tendon, Muscle and Joint pain as well as mental problems.
    Cipro is active against one form of Chlamydia and can potentially “trigger” an outbreak of symptoms with increased intensity.
    And taking a strong antibiotic increases the risk of getting systemic candida as well.

    Now I’m not saying that every Cipro patient has their physical side effects from Chlamydia or Candida, but not all sufferers have the same side effects or the same progression of side effects.

    I’d like to see who here did test for Chlamydia and Candida, who where positive and who felt better after taking Doxycycline.
    Does anyone know where I can get answers to these questions?
    If possible please test for it.

    The question now is: do I risk taking Doxycycline or not, and should I get on a anticandida diet with herbs and fluconazol?
    Both Doxycycline and Fluconazol have made Cipro patients feel better in the past right?

    Can someone with experience give me some guidance?

    Mark

    • impossibleadversity July 28, 2014 at 11:18 am Reply

      I don’t think they tested me for candida. But I had furry tongue and a long history that would promote candida, so I tried many herbs for a few months. They just increased brain fog and possibly lowered thyroid function. Earlier on I tried one pill of fluconazole but it didn’t seem to do much, but I did notice a pain where my liver was that day (never had pain there before). I also wanted to take herbs because supplementing with B vitamins and others has possibility of feeding infections, but in the end it just didn’t work for me.

      At some point I got rid of furry tongue (still gone) and had slightly less brainfog. I’m not sure what did it, but I was taking Candizyme enzymes before bed, resistant starch, eating blueberries and raspberries, and taking probiotics mostly consisting of rhamnosus, casei and acidophilus (with the berries and starch, or after).

      Related to your earlier comment, I tried one probiotic with high bifidus but it seemed to increase joint pain (there is also a youtube video where one lady with our problem noticed that acidophilus was good and bifidus was bad for her). I know it’s not the brand because I switched to another formula of same brand (ultimate flora vaginal support – no really) and it works well 2 hours after meals.

    • jimmy July 28, 2014 at 12:12 pm Reply

      Mark,
      i was prescribed 30 days of doxycycline after being floxed and I had no problems with it. in fact, from what i’ve read about z packs and other antibiotics, i will never take another antibiotic except doxy if it becomes necessary. Interestingly, I too had the chlamydia theory after a former partner tested positive for it, so I was tested. It was negative, but this was after I had finished the doxy, so it should have been done before. I took the doxy early on and always felt my reaction didn’t seem as bad as most. Then, after 8 months, when i felt 85 percent recovered, I took a couple new supplements and then I had a major relapse where everything was much worse than ever before. So i’m a big believer in the mitochondria theory. I feel i was not ready to work out again or put strain on my mito and consequently, i pushed it below the threshold again and my reaction let me know that. And personally, I am one of those who don’t really buy the whole Candida thing as being the cause of our problems. I certainly understand how antibiotics induce this, but i’ve also read enough peer reviewed studies to have my own ideas on how the antibiotics damage our tissue and joints, nerve sheath, etc, and floride and cellular/mito damage is again a big culprit. So i just don’t buy that. Everyone has their own ideas and theories so these are just mine. i’ve taken Fluconazol as well and that seemed to cause me terrible nerve pain and brain fog, so i stopped it quickly. not sure, but i believe this also has floride in it’s chemical structure. i can’t really give you guidance, but can only share my experience. no problem with doxy for me. Did it help me? I don’t know, but my reaction wasn’t so severe the first 7 months. maybe it had something to do with that. and maybe I still had metabolites from levaquin in my tissue. who knows. If you have chlymydia that could turn into pneumonia, you should probably deal with that with a doctor. I have done anticandida diet, with no noticeable difference. So now, I eat what i want, but mostly organic fruits and vegetables. I do not eat meat for a variety of reasons including antibiotics or traces of antibiotics that can be there, and also a believe that certain amino acids and other things in meat can exacerbate my symptoms. i’m 14 months out and right now, my symptoms are mild hip pain, some very slight headaches from time to time, and joint popping-which seems to be getting less and less.

      • jimmy July 28, 2014 at 12:21 pm

        was prescribed 30 days but stopped around half. i have wondered if I would have even been less impacted if i’d finished, but will never know. i have heard the theory about doxy but I really can’t say one way or the other.

      • Mark July 28, 2014 at 12:48 pm

        Jimmy,

        Do you have the option to test chlamydia again?

        As far as I researched Doxy alone only kills the Chlamydia inside the cells and not the hard shell egg form that always coexists.
        That could explain you getting your symptoms back after 8 months…just a wild guess.

        Mark

      • Sheryl July 29, 2014 at 5:01 am

        For anyone wants to read this. Jimmy my joints have been hurting a lot but I put magnesuim oil them it help a lot. Apparently calcuim get the flouride out your bones and magnesuim transport it out your body. Flouride also intensify the effect of existing heavy metals in your body.
        http://draxe.com/avoiding-fluoride-and-how-to-detox-it-from-your-body/

        I won’t be writing anything else on here as I feel my words are not work anyone time. Working in getting better and maybe help some others down the line.

        Have a great day everyone

      • jimmy July 29, 2014 at 11:06 am

        Hi Sheryl,
        Yes, thank you for the info on detoxing floride and for all your kindness here. Your suggestions and thoughts are welcomed and appreciated. I hope you’ll stay around but understand if you have to focus on yourself to get better. thank you for helping others now and later, I like hearing how you are doing and what you are doing to heal. If you want to email me you can at jimmybruhl@gmail.com

      • Sheryl July 29, 2014 at 3:05 pm

        I will keep everyone in the know of the treatments. I took down your email address as well :)
        I asked the doctor about the high level off calcuim he thinks I may be over doing it by taking supplements it was over by .4 not much so no more supplements for me ha
        I am getting all of this through diet now.
        Still concerned about not getting my sodium bicarb in the treatment formula but he gave the ok for me to continue the lemon juice and baking soda same day of treatment
        The treatment (chelation) will consist of calcuim(he said I should be fine not that much) b12. Magnesuim potassium b complex vitamin c, thamine. I made sure I had blood work prior to all of this just in case so I’m good to go

  46. melanie kemp July 29, 2014 at 9:06 am Reply

    Hi everybody
    Just wanted to tell everyone to hang in there. It will get better. I got through an absolute horrendous year in 2010. Didn’t know what hit me .Just bed ridden and housebound and because I didn’t have a clue I didn’t know what remedies to try. I just kinda got through it with shear will power I guess. There where times I didn’t want to wake up. I was so sick and in so much pain.
    But then I turned a corner at about 18 months. Lived kind of a low level life but it was living. Then several great years.. Ive had a few flares but they lasted only a day or so. Until this year. Its about 6 weeks at this point but I can tell that its slowly getting better. Im pushing myself to just work through all the crazy feelings.. the twitches and stinging. The weird brain feeling. Some of which are not nice at all. I cant stand the kinda racing brain feeling… like I,m high on Benadryl. But slowly its getting to where I can still live life. Of course there are times of utter panic..it hits me for a few seconds…about how unfair this it. But other people have it worse. I had it worse back then… I litrally could have dug my own grave and jumped in.
    I don’t do anything special. I take a little magnesium now and again. I,m not one for taking “stuff” and I vow to never ever take another antibiotic ever ever ever. I really don’t care what happens
    .Even in our darkest moments we have others around us that know what we are going through.
    Tak care everyone and keep positive. I really feel it helps a lot.

    • Sheryl July 29, 2014 at 9:16 am Reply

      thanks melanie… needed that pick me up :) I have had a feeling of jumping into a grave as well and why I am going through this. But as they say god will not put more on you then you can handle. I truely believe I am going through this to help other people. (Mainly my autistic son). At least the depression is gone that was a big obstacle for me everyday between the hours of 10-12pm. We are all in this together and when you guys feel down please know you are not in this alone. Just ask questions and others will help. Me floxed… 8 months out from cipro (3 months was feeling great) then the bombshell. Levaquin not sure how long just put two and two together. Getting better everyday Btw I lost 20 pounds and was really depressed over that but I am living and i guess I dont look too bad I hope ;). 5’2 110lbs.

  47. Mark July 30, 2014 at 2:56 am Reply

    How do I know when the time is right to push it again?
    I mean light stretching, training, massages, etc…

    Is there a general timeline as to at what point it is 100% that the tendons won’t snap?
    6 months?
    9 months?
    I’m not talking about the pain being gone but just no risk of rupturing.

    Mark

  48. Catherine July 30, 2014 at 4:43 am Reply

    Are there any UK floxies in this group who have heard of Dr Alice Sykes in London? She is a practitioner of functional medicine, who tells me she has treated about 20 people in the UK with FQ toxicity syndrome. Does anyone know anything about her?

  49. Josie July 25, 2014 at 4:28 pm Reply

    Carol what visual things do you have?

  50. Josie July 26, 2014 at 9:49 am Reply

    Does anyone know any supplements I can buy for my visual disturbances that could help?

  51. Josie July 26, 2014 at 10:11 am Reply

    Hey guys! Your never gonna guess what I did! :) I ran up and down 100 stairs for 2 hours straight! And did 200 crunches and weights! Now I’m off to yoga!!! XD

  52. Mark July 26, 2014 at 10:22 am Reply

    Josie,

    I’m happy for you, just hope that you’re not joking around as this is serious (comes across like it in some of your posts, that’s why I asked you if you’re trolling.).

    Mark

  53. Sheryl July 26, 2014 at 10:22 am Reply

    Yeah!!!!

  54. Josie July 26, 2014 at 10:34 am Reply

    Aw no mark I’m not trying to make it sound that way. :( if you really knew me I’m a real sweet hearted person.

  55. Mark July 26, 2014 at 10:47 am Reply

    Then it’s all good. ;)

    Mark

  56. Michael Teeter July 28, 2014 at 11:42 am Reply

    Don’t worry Josie some of us cope with the pain through humor. I know I tend to do it. But we also need to remember that not everyone does that. We all deal or cope in our own way. I am now on my 6 month of being floxed. I use a wheel chair now because I can only walk 10 feet. I just got back from a religious convention for 4 days. Was glad I went but it is kind of strange having to receive help. When last year I was helping people with special needs. I look at it as a training experience I have more empathy for people now.
    Well everyone I hope and pray for your speedy recoveries! I will be posting some questions here soon.

  57. Sheryl July 28, 2014 at 12:01 pm Reply

    Well all I had my nutritional lactac ringer and glutatione today fell asleep when I go home. Thursday I get my first chelation. Have some good days and some bad but pressing on. Looking out the chelation formula put My mind at ease when I saw magnesuim chlorida 200 mg it consist of multiple vitamins some I had to look up because I didn’t know the iv name for it. Shouldn’t be any worse then what I have been through the last couple of months :) I was doing better a few months ago off of mag supplements but sure what happened but I hope to get all this out. Have yourself a great day and you will get through this. All blood work came back normal except elevated calcuim. Seems like blood work change everytime I get it. My d3 went up 3 points as well as other stuff now at 42. Going for a walk.

  58. Josie July 28, 2014 at 3:31 pm Reply

    Hey you guys! Figured I’d let you know I’m doing good! Went out with friends! I put some banana boat tanning oil on the other day and the next day I was hurting. But that went away!

  59. Melanie Kemp July 29, 2014 at 6:34 am Reply

    Thank you Sheryl for the link to detox flouride.
    very helpful

  60. Melanie Kemp July 28, 2014 at 5:14 pm Reply

    Thats great Josie. Just take it easy ok..:)
    Glad youre feeling better.

  61. melanie kemp July 29, 2014 at 9:09 am Reply

    Hi everybody
    Just wanted to tell everyone to hang in there. It will get better. I got through an absolute horrendous year in 2010. Didn’t know what hit me .Just bed ridden and housebound and because I didn’t have a clue I didn’t know what remedies to try. I just kinda got through it with shear will power I guess. There where times I didn’t want to wake up. I was so sick and in so much pain.
    But then I turned a corner at about 18 months. Lived kind of a low level life but it was living. Then several great years.. Ive had a few flares but they lasted only a day or so. Until this year. Its about 6 weeks at this point but I can tell that its slowly getting better. Im pushing myself to just work through all the crazy feelings.. the twitches and stinging. The weird brain feeling. Some of which are not nice at all. I cant stand the kinda racing brain feeling… like I,m high on Benadryl. But slowly its getting to where I can still live life. Of course there are times of utter panic..it hits me for a few seconds…about how unfair this it. But other people have it worse. I had it worse back then… I litrally could have dug my own grave and jumped in.
    I don’t do anything special. I take a little magnesium now and again. I,m not one for taking “stuff” and I vow to never ever take another antibiotic ever ever ever. I really don’t care what happens
    .Even in our darkest moments we have others around us that know what we are going through.
    Tak care everyone and keep positive. I really feel it helps a lot.

  62. Melanie Kemp July 29, 2014 at 10:06 am Reply

    Sheryl
    I lost over 30 pounds.Think I ended up at about 100 pounds.Im 5’5″.
    Looked really bad.
    But once I got through it all I went up to 170..Never been more than 140 my whole life.Actually in my younger years I was to thin.
    But I was going through menopause when I got floxed so after the initial weighloss in the first year I ballooned.
    I think its why this flair up started because I was working out and dieting…not sure really.

  63. Lisa Bloomquist July 29, 2014 at 12:26 pm Reply

    Thank you, Melanie! Back at ya – hang in there through this relapse. Being positive helps – it absolutely does.

    Your support and words of encouragement are greatly appreciated!

  64. Dustin B July 30, 2014 at 5:42 am Reply

    Melanie…sorry to see you leave the FB support group. I was wondering how you were doing. I’m so glad to see that you’re slowly getting better from this relapse. Hang in there :)

  65. Sheryl July 29, 2014 at 10:18 am Reply

    Oh wow. I sometimes want my weight back but good muscle :)
    I think I am going through menopause also interesting. Odd how that’s related.

  66. Lisa Bloomquist July 29, 2014 at 12:31 pm Reply

    I think that hormones are quite connected to our floxing reaction – but I’m not entirely sure how. I generally think that the direction of the damage is that the FQs damaged cells, and some of the downstream reactions damaged the hormonal balance – then there are all sorts of feedback loops between all the systems, and, well, it’s all complicated. Here is an interesting article about how hormones relate to mitochondria – http://www.hormonesmatter.com/thyroid-hormones-mitochondrial-functioning-hair-loss-new-clues-hair-follicles/ Mitochondria are definitely damaged by FQs. It’s interesting and frustrating how everything is related. I firmly believe that our positive feedback loops and healing mechanisms are stronger than the negative ones though. Our bodies are meant to be resilient and strong.

  67. Sheryl July 29, 2014 at 2:55 pm Reply

    Thank you for the link. I can say my hair hasn’t fallen out I think always up. It’s getting longer. I do notice everytime I overdue my walk and the sweat comes I need to get in the bathtub which help the burn in my back only thing I have to replenish my electrolytes. When I was alkaline I didn’t hurt at all. On another note I did feel good yesterday after my nutritional and my knees were not stiff. Everytime my son got hyper I would give him d lactate free probiotics and the next day he would be calm so I started taking his probiotics as well. I know I have too much acid in my body so that is my approach for being pain free.

  68. Melanie Kemp July 30, 2014 at 7:21 am Reply

    Hi Dustin.
    Thanks.
    I guess it just makes me nervous reading so much about this stuff so it was better I didnt get so pre occupied.
    Well..as we all know theres no ryme to this stuff

    Didnt have a great night after an ok day

    I just really want to get better.
    im finding I cant eat many foods.My head gets extremely foggy and I just feel ill.
    leaky gut?????? Anyone get this to.

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