Welcome to Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – Why NSAIDs Suck for Floxies (and Probably Everyone Else Too)

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

Please support Floxie Hope –

Thank you!  More info about supporting this site can be found HERE

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  Affiliate link –

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6,621 thoughts on “Welcome to Floxie Hope

  1. Diego August 19, 2015 at 4:53 pm Reply

    J I have improvement a lot. It seems though as I was stagnant in my recovery due to the mercury fillings. Once of the fillings was cracked and it had been for years. Things do seem to be getting better faster, but it does take time to detox the mercury. My hands have been getting stronger after I removed the fillings.

    • Daniela August 19, 2015 at 5:45 pm Reply

      Hola Diego, My hands are better if I don’t have any milk, cheese, dairy. I hope this works for you, too :)

    • J August 19, 2015 at 6:01 pm Reply

      Thanks Diego! How long until you saw good improvements ? I am 20 months out and much improved crept pain in legs (prickling so nerve , twitching and just pain and tightness ). It’s my last thing.

  2. KX August 19, 2015 at 6:16 pm Reply

    Hello all,

    In the last 8 months I have been having really bad chronic cough and shortness of breath after a bad cold during the winter. It is made worse due to the chronic reflux and SIBO issues I have been having since being floxed. My doctor has suggested taking inhaled steroids for a short period of time (2 weeks or so) so the inflammation is knocked off for good and it doesn’t develop into some permanent asthma issue. I have tried multiple home remedies but nothing makes it go away completely. My airways are very sensitive to cold, heat, dust etc.

    I read somewhere that inhaled steroids are less dangerous for floxed people. Has anyone had to continue with inhaled steroids for asthma issues? Does it make the pain (tendons etc) worse? I am seriously very concerned and don’t want to mess up my lungs but the fear of what I have experienced with only two pills of cipro is honestly paralyzing me.

    • Rene August 19, 2015 at 9:54 pm Reply

      Hi KK,
      That sounds exhausting, and a factor that in my experience would not best be served by inhaled steroids. I used to have chronic bronchitis that would go on for 6 weeks, and sound just awful. Very draining the cough and losing weight.

      I highly recommend that you do not take supressive drugs. BUT I highly recommend you see a Chinese Herbalist/acupuncturist. The formulated combination of hrbs that will be prescribed for you will treat the whole of you. I cannot emphasize enough how much that helped me to regain my constitution, and clear up my chronic condition. Typically you will take the herbs for a period of 2 weeks. Then follow up especially with such a long standing condition. This is a safe effective way to get help that is real medicine, vs suppression of symptoms and forcing the body to behave a certain way with repercussions.

      Chinatown, or google Chinese Herbalist / Acupuncturist for your area…..go to websites and see that they in fact prescribe the herbs.. Not bottled but formulated for you, either in powder or tea form. It is by far more affordable and a great asset with helping you with Respiratory, Immune, stomach, liver, kidney issues. It is a very personal and detailed form of medicine. Nothing to do with drugs, surgery, suppression, or toxic chemicals that are foreign to the body. The body has an intelligence and is a great lie detector…..it knows and can easily recognize medicinal supports vs pharmaceuticals that do not bring healing and restoration.

      God Bless

    • Linda Livingston August 19, 2015 at 10:06 pm Reply

      KX…I have had horrible breathing problems following taking the Cipro. There was in fact one 8 weeks period where I literally felt like I was suffocating. Truly nightmarish. I continue to have breathing problems but no where near as bad. This is what helped me.

      First, I too had had a short flu, just a few days, but my asthma lingered. Unfortunately, the doctor gave me prednisone for the asthma flare at the same time he gave me Cipro for a UTI. That is what made my floxing so bad (literally head to toe nerve damage affecting my breathing, my sense of smell (grotesquely exaggerated), peripheral neuropathy, ravaged GI system, blurred vision and more. Well, I was already on an inhaled steroid for my asthma and the doctor gave me a second one, so I was actually on THREE steroids when I got the cipro. My naturopath, the first and only person who was able to help, was concerned about my staying on the steroids, since steroids exacerbate the FLQ toxicity. He started giving me H2O2 IVs for that (in addition to other IVs I was getting for nerve damage, collagen repair, etc.) After I had several IVs I started to wean myself off of the inhaled steroids. I was scared, because my breathing problems, which I believe to be related to damage to the autonomic nervous system, and/or mitochondrial damage to the heart muscle, were already so scary—I couldn’t imagine having an asthma attack on top of that! Anyhow, I slowly cut down, and after about the 6th IV, I stopped completely. I have not had any problems with my asthma (I still check my peak flow and it is in a normal range). This is pretty astounding, considering I have been on inhaled asthma meds for decades!

      If you can find a good ND that does H2o2 IVs that would be my suggestion. I would steer clear of the steroids of any kind.

  3. Daniela August 20, 2015 at 8:04 am Reply

    I had bad asthma early in my floxing. I bought a steel thermos and sipped herbal infusions constantly, boiled oregano, star anise, etc. But I also pinpointed my triggers and took the basic homeopathic remedies for each. For me it was cat dander and ragweed. The ones from Bioallers really helped and it has been two years without asthma. And I still have the cat !!

    • KX August 20, 2015 at 5:32 pm Reply

      Thank you Linda and Rene. I know this is airway inflammation and not nerve related. I have tried herbs but have had no success so far. I will look into the IVs…sounds promising.

      • Linda Livingston August 20, 2015 at 6:01 pm Reply

        good. It truly is. In fact ,they are now using it for lung cancer and other lungs problems. I just can’t believe I have spent so many years on inhaled steroids *two puffs twice a day” and I got the same relief, only in a nontoxic way, from h202. If you want to tell me what area you are in, I can ask my ND if he can recommend anyone—they go to regular conferences, so He may know some in other areas of the country, Good luck!

      • Rene August 20, 2015 at 8:43 pm Reply

        Chinese Dr. do not use herbs the way that westerners do by buying for a specific condition at thee health food store either in singular of complexed formulas. Their education is entirely different in that they are treating the various systems and how they are inter working with each other. They would prescribe a formula that would have dozen of various herbs, bark, berries, stem, leaves, roots, etc, that address the systems. Your lungs are not independent from other organ systems…….those relationships are diagnosed and then treated to move energy where there is stagnation, or dry where there is dampness, or warm where there is cold, or cool where there is heat. Their principles are “whole body”. It would be misguided to dismiss what Chinese Herbalist Medical doctors can do. They can shrink brain tumours, address neuropathies, Vagus nerve, stomach, spleen issues, liver damage, hypo tension, but by treating the whole. This is the opposite of allopathic medicine which does not address origin of the problem. This is not to say that your decision is wrong, I only want to clarify that the difference between taking herbs with the standard allopathic approach is not remotely anything to do with the science of Chinese Medicine.

        God Bless

        • Mark August 21, 2015 at 6:01 am

          Rene,

          What do you think about taking growth hormone? Or GHB?
          Have you tried it? I’m starting to consider it…

        • Rene August 21, 2015 at 10:31 pm

          Hi Mark,
          My view is that whenever addressing hormonal issues it is best and wise to have a panel run to see the levels…..everything is interrelated just as minerals are. Ratios count and to just try to treat ad hoc is a bit light looking for a corner in a round room… Relationships between these biochemicals are important Thyroid, THS T3 T4, Testosterone, Cortisol. There are players in the game. Human Growth Hormone can be used in a trendy fashion as the new wonder kid on the block and toy to play with…..But if you are getting your levels checked and working with a seasoned professional who work specifically with hormonal – bio identical supplementation than it may be appropriate for you.

        • Lisa Bloomquist August 22, 2015 at 5:33 am

          This is an interesting article about the interplay between mitochondria and hormones – https://www.cpmedical.net/newsletter/mitochondria-the-missing-link-in-hormone-therapy

    • KX August 20, 2015 at 5:35 pm Reply

      Daniela, the fact you had the same issues and recovered gives me hope. Just about anything sets me off. Pollen, dust, dog dander, cold air, hot air, acid reflux, stress. It’s gotten ridiculous. Sometimes I feel like crying because I am so helpless to fix all these issues.

      • Daniela August 21, 2015 at 4:28 pm Reply

        I became sensitive to everything I inhale, smell, eat, feel — I wish I could cry but my eyes are too dry! But I was just looking into my cupboard and saw many leftover homeopathic allergy and asthma remedies that I did not use at all for 1-2 years ! So try it and see if it helps. It took me a 2-3 boxes of each, but then suddenly the problem was gone. I don’t like to recommend things to buy, but for ragweed, dander and general asthma, they worked for me. Don’t forget lots and lots of water. Good luck !

  4. Mike August 20, 2015 at 10:04 am Reply

    I have thought about getting my mercury fillings removed. I have quite a few of them unfortunately. For those with experience in this: Should I get tested for mercury levels before I consider this and if so what test and with who? I REALLY don’t want to have this done but if it can help my health then I’d do it. Also if anyone has seen a good ND in Colorado let me know!

    • Jason August 21, 2015 at 4:19 am Reply

      Hi Mike. Toxic Metals and other Toxic substances (like Cipro…) are a HUGE issue, and as I guess you have gathered a mouth full of Mercury is bad situation to be in, and a major potential cause of Brain Fog and many many more issues for someone. This can be grossly exaggerated with someone with a MTHFR Gene issue, since they will NOT be able to detox Metals, Fluorides, Chlorine’s, and all the other Toxic Waste/Toxic Metals/Chemicals that we are subjected to on a daily basis properly, thus they will build up in the body and make the person more and more unwell. Since you are in the USA, for $99 the 23andme test is definitely a “no-brainer” in my opinion if you have not done it already, to find out if you do have these issues or not, on top of potentially being toxic in Mercury and other Metals.

      Pretty much every living person has a toxic burden, Metals, Halides, and more; many people are able to keep it low enough to be healthy because their Methylation pathway works properly, actively detox, etc but others are not so lucky, and are even more unlucky if they do not realize this is the cause of most/all their issues. There was a whole bunch of discussion on Genes and the 23andme test last page starting from post 2 if you are interested in finding out more about this important part of someone’s health.

      I would suggest to find a good ND, but be very careful with “Challenge Tests”. Many of them will want to give you a dose of DMSA or something else like DMPS, EDTA, etc and often the doses are VERY big, and quite dangerous (a big dose will ensure high levels show up on test, ensuring more money for them since you will “need” treatment = dangerous greed tactic). DMSA will mobilize several toxins in the body all at once, and if a person’s toxic load is large enough the body will not be able to handle all the poison being in the system at one time, and terrible damage can result. If you google Andy Cutler you will see he recommends not doing a challenge test at all, many people are following his advice and his Protocol for detoxing the body of Metals, he believes it needs to be done is slow safe fashion, which makes sense to me.

      I myself am a little torn on the “testing issue”. I had a hair test done for Metals and Minerals which is what many people recommend you do to find out your toxic load. The things is it does NOT give you the whole picture, it is really telling you what the body is “expelling”, it is NOT telling you what your body is potentially harboring, since many of the Metals are hidden/stored in the body in Fat Cells, like the Brain, and if not mobilized they just sit there and screw you over, and will not come out in the hair, thus your hair test could say you are “low” in Uranium, or Nickel, but in fact you are not low, you are just not efficiently expelling/detoxing it at the time of the test. However, if the test shows you are high in something, there is a good chance you are actually too high and your body is trying to detox the excess of which some of it ends up in the hair. So these levels that show up, are somewhat dependent on if someone has a Methylation issue also, since poor Methylators are poor detoxer’s potentially skewing the results.

      Having said all that, it is one of the best tests to do for this, and highly recommended to do regardless to find out what your Mineral profile looks like, though I still think there might be some viability of a “safe challenge test”, which would be as described above only with a smaller safer amount of a Chelator given right before a Urine test. Yet the reliability of the Hair test for Minerals is too somewhat questionable, out of the 100 or so labs around the USA that do these tests, 98 of them WASH the hair before doing the test. The trouble with this is many of the Minerals are water soluble, so washing the hair with a mild detergent and acetate like most do can skew the results of many of the Minerals. Google “Dr. Wilson Hair Test” and you will see more of what I am talking about. You will also find recommended ND’s on his site that use the one good lab in the USA that do not wash the hair.

      This is all my opinion, one that is shared but none-the-less where I stand on the whole thing. I apologize for not giving a “Clear” solution, but this is frankly because in my opinion there isn’t one. As a result, for many years I did “nothing”, I now regret this and don’t recommend that course of action either. For yourself, my unprofessional recommendation is to “not” have a challenge test done, especially with Mercury still in your mouth, also do NOT take any chelators, and avoid Cilantro too, as this crosses the Blood Brain Barrier and taking this can bring Metal from the Mouth/Body right into the Brain. Doing the Hair test is a good idea, it will give you at least some idea on what is going on in your body, and if we are to believe Dr. Wilson, a VERY good idea, he has written a very long book on Hair Tests (his Mentor invented the idea) and how to interpret them, one I wish I had, but there is a lot of info on his website and ARL Labs website (the one he recommends) about how to interpret the results, and a good ND will hopefully be educated on these methodologies. Regardless of the results, if you can afford it if I was you I would find a good Huggins Dentist (trained in removing Mercury fillings safely) asap and start getting those removed. I had one that was “cracked”, and have no doubt it has caused me issues. Good luck, if you do have a heavy toxic load please be patient in it’s removal.

      • Jason August 21, 2015 at 6:01 am Reply

        I just got an email from someone asking about “alternative therapies” to remove Metals and other Toxins from the body, and I am going to copy and paste the reply here since it adds on my post right above:

        I think the most popular is the Andy Cutler Protocol, which is a very slow/safe but PITA method, and uses synthetic Amino Acid Chelators DMSA, DMPS and also ALA all in small doses on a very strict time schedule due to their half lives. Lots of info on net about this you will see, chelators are bought from company out of Africa IIRC, there is a good Yahoo support group/forum where people answer questions etc (poorly organized unfortunately)

        There are some others of note, and some are opposed to Cutler method such as Dr. Lawrence Wilson http://drlwilson.com/articles/chelation.htm (very good website with a TON of info on everything health). EDTA can be used, Dr. Mercola has made some suggestions like using Cilantro and others, funny enough Cutler warns against using EDTA and Cilantro, for potentially valid reasons, confusing the issue further. :(

        I think the best course of action for someone depends on many things. Do they still have Mercury fillings? Do they have the MTHFR & other mutations in their Genes? (found out with 23andme test) How big is their toxic load?

        The first course of action is always to get fillings removed safely, and then getting a Hair metal/mineral test done. To me getting the 23andme test for $99 should be done too, for reasons I noted on FH. Then with that done, and with that information a suitable course of action can be recommended (I sound like a bluddy Naturopath here….) If someone has a huge toxin burden, I think the Cutler method makes sense, but the MTHFR could complicate this. If someone is moderately toxic, Cutler method might still be good, or a combination of ideas might be good enough, again depending on the MTHFR issue. If someone is only mildly toxic, they should for sure address the MTHFR issues first and foremost, which would help the body alleviate the burden on it’s own (of course with a MTHFR issue someone is likely NOT going to have small burden, depending on their age and exposures of course). Also with smaller toxic burden, things like Cilantro, Wheat Grass and regular exercise and Saunas should be enough to bring the burden down, assuming they limit their future exposures.

        I hope that helps, unfortunately the waters are a little muddy on this, not unlike Cipro poisoning.

        Just a final note that these are only my “untrained” opinions. Toxic load is a serious wide-spread issue, causes very serious health issues, and removal has to be taken very seriously and not “toyed” with, someone needs to put their trust in a professional or do a whole lot of research. There are many complicating factors, such as Candida overgrowth (something DMSA potentially stimulates), MTHFR & other Genes, current past/health problems of the person and things like condition of Liver/Kidney’s, Cancer, FQ toxicity, etc

        I also forgot to mention Spirulina & Chlorella, although I did mention Dr. Mercola, and this is 2 things he advocates. They are also something Dr. Sircus recommends (along with a few others, see link), here is a good article on the whole topic here: http://drsircus.com/medicine/essentials-natural-chelation

        He actually gives a LOT of accurate advice in this article in my opinion, like his notes on ALA which are important, and note what he says about Magnesium too, which applies 10 fold to a Floxie with Heavy Metals. He notes that some studies found Chlorella on its own, did not seem to chelate anything effectively. However when used with Cilantro, it does, and this makes perfect sense to me because Cilantro is a “mobilizer”, it irritates the Metals stored and Chlorella is a “binder”, it is extremely absorbent and will bind to Metals to help them exit the body and not be “re-absorbed” once they are mobile, which is critical. Done wrong, the Metals from one area can mobilize and then be re-absorbed in other areas causing great oxidative damage like to the Brain.

        • Jason August 21, 2015 at 7:04 am

          Concerning Metal Detox and FQ Toxicity directly, I think this is a VERY delicate matter indeed. The body is already overwhelmed with Chemical & Fluoride poisons from the FQ pills taken, and damaged from them as well. It is my opinion that adding a Metal Detoxification protocol to this burden is not a good idea at all.

          Many variables here of course, like how far along someone is, but my unprofessional opinion is someone should try to detox the body first from the FQ Toxicity, with Iodine in particular and even Borax/Boron, also exercise, Saunas and massage, using Antioxidants and things like Activated Charcoal and Chorella, Magnesium and much more to soak up the mobilized toxins to help them exit and support the body. (and how and when this is done largely depends on where someone is in their FQ recovery, and how bad off they are. I’ve posted more details about this in past posts). Once a person has removed these toxins, either through sheer time, or more assertively through methods mentioned, and is 85-90% healed or more from FQ Toxcitity, and is sure their Liver and Kidney’s are in good condition, only then would I attempt a Metal Detox. Done too soon, the added burden to a Floxie’s body could be just too much to bear.

          As for just removing Metal Fillings, if it were me, I think what I would do as a Floxie is wait until either: I am 75% healed OR until at least one year has passed from taking the FQ pills and not currently having a relapse, whichever comes first.

      • Linda Livingston August 21, 2015 at 9:50 am Reply

        Yes on the Huggins trained dds! I found a great one and after years of dreading going to the dentist I no longer do. My look into removing mercury at some point in the future when things are better.

    • Rene August 21, 2015 at 7:26 pm Reply

      Where in Colorado?
      Yes it is a good idea to have the mercury fillings removed which also contain nickel….
      However, unless they are terribly old…..like 20 years or more, than hold off for the moment if you are very sensitive or frail…..the number of fillings, how many quadrants? All considerations after selecting Holistic Biological Dentist.

      I would not use Chelation methods that are using DMPS or EDTA, as it is so harsh and risky of making you worsen. Removing you fillings will also require replacing with non-toxic material…which is a bonus for your health.

  5. Jason August 21, 2015 at 4:33 am Reply

    Hi SM & Rene. I have a couple questions for you both. First SM.

    SM – What was your reaction to B12 like, and what did you find out about it from Yasko? I know there are 3 different types of B12, and some people react better to some types, and others to other types.

    I also know one of them has a Cyanide molecule in it, which is frankly ridiculous and wouldn’t you know the most common one in the marketplace :( Yes folks, check your vitamins, the very thing you are taking for health could be poisoning you, this is what happens if you buy the cheapest vitamins, especially from Walmart, etc.

    RENE – 2 things. First, you have spoken of the “Honey Moon” of taking Folate and/or B12 and/or anything sulfur related I think when you have a MTHFR issue, and how sweet it is but then could pay a huge price after (since it will open up the Methylation pathway and thus dump a huge amount of stored up toxins all at once). What does the “Honeymoon” actually “look” and “feel” like here?

    2nd, you have said you can not handle sulfur, or could not in past. What happened exactly when you took it?

    —-

    Thanks in advance you two. I have not done the 23andme test yet (funds) but have done some testing of my own with various things, and think it is very likely I am MTHFR +/- (which would explain an awful lot for me) and your answers can hopefully help me try and confirm this until I can afford to do the test. There is another issue in Canada for the test as well involving privacy, Insurance companies could potentially get hold of the results, and we are NOT protected up here, there is a “bill” being talked about for this, but it is only that for now, and not passed as law yet.

    • Rene August 21, 2015 at 7:42 pm Reply

      Folates are essentially chains of glutamate. If a form of folate is used that the body cannot process it can be broken down into glutamate molecules. For this reason high doses of folate supplements that do not take nutrigenomics into consideration may cause increases in glutamate. This is just one example of why it is important to supplement this cycle properly based on knowledge of methylation cycle nutrigenomics.

      I took FolaPro at a dosage that was exceeding my capacity to use…..I should only of had 100 mcg – 200 mcg (ONLY after I had laid down the ground work /foundation). Instead I, did something very bizarre, and took something like 800mcg!!! After my first 5 days of feeling really good and I derailed hard, and for a very long time. One tablet was 800 mcg…..which I had cut down into 1/4’s……and I was rushing and busy and lost track of what I was taking and in that confusion increased my dosage and Kaboom….Glutamate raised up high and I was feeling CUKOO w/ crying spells and over emotionalism, and tired wired feelings…..Up til 4 am. I felt like a 3 dollar bill, in the worst way. Didn’t look it, but I got a taste of what it is like to have a real mental health problem with highs and lows of temperament. High, and stoned like, and feeling very desperate at times……It was my faith that steadied me and led me through that valley. SO the point of that story is: SLOW down cowboy, and ditch any notion about “more is better” . Easy does, it. LOW Dosage, and stay there….things can change fast by increasing Too Much….TOO FAST.

      Get you urine analysis….after your DNA MEthylation results are in…..set your foundation and the and only then add your methyl donors like B12 & Folate in it’s active form….

      Methyl B12 can be used in the body, though it cannot be tolerated by everyone. Those who get jittery from caffeine, coke, and tea may not react as well to methyl B12. Many adults don’t do as well with methyl B12 in spite of their nutrigenomics and so it is fine to choice an alternative form.

      Adenosyl B12 is a special form of B12 that is important in the energy cycle in the cells of your body. It is important to have adenosyl B12 but it is not as versatile as other forms of B12 so it can be used in lower doses.

      Hydroxycobalamin B12, or hydroxyl B12 is a unique form of vitamin B12, which is more easily converted to the form that is actually used for reactions in the body. This might cause you to ask, why doesn’t everyone use high dose hydroxylB12 in their formulations? Well, Hydroxycobalamin (Hydroxy B12) is more difficult to work with, harder to keep in an active form and more expensive than some other forms of B12, such as cyano B12. For this reason, many other products do not contain hydroxyl B12 and instead use cyanoB12.

    • SM August 21, 2015 at 10:27 pm Reply

      Jason- I had 23 and Me testing done a while back. Yasko has a chart that shows various gene mutations and the recommended forms of B12. My reaction was giant pimples and redness on the backs of my legs, from hamstrings to calves. Weird, I know. And I was diagnosed as having folliculitis and even swabbed for gram negative bacteria. But I just didn’t trust the diagnosis and believed it was flox related. These were large red welts on the backs of my legs- this lasted for 3 months! Eventually I read an article that said that B12 could cause folliculitis in rare situations when injected. I stopped and the spots went away. I reintroduced and they returned. I stayed off B12 for another year even though my levels were around 500 and I think I needed it. This happened with methyl B12 and cyano as well. I was baffled because everything I read said that methly B12 was the thing to take. My ND recommended hydroxy B12. I took it and had no issues. None. I’ve since tried adeno and it’s fine too. It’s only after the fact that I found Yasko’s chart and it helped explain my issue. Here’s the chart:
      http://mthfrliving.com/health-tips/supplementing-for-mthfr-b12/

      I fit into the second from the bottom category from my 23 and Me results. Wish I had realized this 18 months ago!

      I am using Seeking Health Hydroxy and Adeno B12, available on Amazon. Not trying to sell anyone on this- but I’ve tolerated it well.

      • Jason August 24, 2015 at 10:01 pm Reply

        Thanks for your reply SM and the link, that chart is from the “Simplified Yasko protocol”, google this and you will find a free helpful PDF with lots of good info

        SM, you mentioned problems with elevated B6, do you have any of the CBS Genes?

        http://metabolichealing.com/metabolic-gateways-cbs-gene-mutations-glutathione/

        Elevated B6 on an OAT test – B6 may also be elevated during CBS up-regulations

        Apparently Yasko warns about taking B6 if you have CBS issues.

        Do you tolerate Sulfur like MSM, raw Garlic?

        I had taken MSM before but I now wonder if it was a weak supplement. I took MSM last week, after exercise, while eating eggs and I had a horrible reaction, but wasn’t sure why until later. Before I realized what happened (thought it was a food intolerance reaction) I took MSM right before exercising and Sauna, BIG mistake. First off I could not jog more than 10 minutes on tread mill, my heart was pounding out of my chest. Then in the Sauna I got very light headed and weak, and the entire next WEEK it literally felt like all the METAL in my head was dislodged and moving around, creating terrible pains in my head. I am pretty sure this was all MSM related now, and I know I am toxic in Metals (which store in fat, the Brain is the largest organ that is high % fat) with Copper being one of the worst, Copper is a stimulant and would explain my reaction. This was painful lesson, but I had no idea I had aversion to Sulfur, though I recently realized something is my guacamole was making me tired (either raw garlic, raw onions, avocado or a combo of these).

    • SM August 21, 2015 at 10:31 pm Reply

      Oh, and I know of at least 4 B12 forms: methyl, cyano, hydroxy, adeno

  6. Rene August 21, 2015 at 7:48 pm Reply

    Have to emphasize that event was not abated in a few days or weeks…..took the better part of a year….no joke. MTHFR is not just taking folate and B12……WHEN….THE FORM….and DOSAGE…..are crucial. AFTER foundation has been laid out.

    For individuals with methylation cycle mutations the revolving door is not working properly; toxins come in but they don’t go out. Instead they accumulate. When you use a chelating agent, you are taking the toxins out the side door of the building. However the revolving door is still broken. Although the use of chelation can enhance the removal of toxins from the body, it cannot repair the revolving door. As a result toxins can still continue to accumulate in spite of chelation. Over time, especially if you stop chelating, you run the risk of toxins building up again unless you fix the broken door. Running nutrigenomic tests help you to know.

    Lithium plays a role in B12 transport into the cell. B12 functions at a very critical juncture in the process of making methyl groups, as well as a range of other functions in your body. You want to be certain that you have adequate lithium in your body prior to adding high doses of B12 because of the interaction of lithium with B12 transport. If you add B12 and other supplements that activate the long route around the methylation cycle, the route that uses Methionine Synthase (MTR) and Methionine Synthase Reductase (MTRR), prior to being sure that you have enough lithium in your body, then you run the risk of further depleting your lithium levels, which can cause symptoms and consequences. Lithium not only plays a role in mood, glutamate control and limiting aggression, but also has been shown to be involved in B12 transport. Many adults as well as individuals who are MTR A2756C+ tend to have lower levels of lithium as judged by hair metal analysis (HMT) I am one of those individuals. This is not a guessing game….get your tests.

  7. Rene August 21, 2015 at 7:52 pm Reply

    It is also important to be sure that potassium is in balance and well supported when adding lithium. Addressing both minerals at the same time is useful, as low levels of both lithium and potassium can induce aggressive and anti-social behavior. Energy supplements can also impact lithium levels, as well as a number of other minerals, including potassium. If there is not sufficient energy being generated by the mitochondria in your cells, this can cause low lithium, low potassium, and problems maintaining adequate levels of other minerals. Mitochondrial support can be a help in these cases, such as Coq10, Ubiquinol, L-Carnitine.

    The HMT (HAIR MINERAL TEST) also gives you a sense of the balance between calcium and magnesium, as well as zinc and copper. Ideally magnesium should be higher than calcium, because calcium works with glutamate to cause over excitation of nerves. Excess copper relative to zinc can be a factor in attention problems. Correct copper and zinc levels are also important for neurotransmitter balance, since copper is a cofactor for the enzymes that break down dopamine and serotonin.

    The HMT is also useful in determining molybdenum balance. Molybdenum and B12 work together with the enzyme sulfite oxidase to detoxify sulfate from your body. Sulfur levels on the HMT can be seen as a secondary measure of your need for molybdenum and B12 support. If the sulfur on your HMT is high, you want to be sure that your body has adequate levels of molybdenum and B12.

    • Jason August 21, 2015 at 10:14 pm Reply

      Thanks for all that Rene. So the “honeymoon” of taking too much Folate before ready with MTHFR can feel like being “Stoned” then, you get more energy too, etc?

      I don’t think you mentioned what happens when you take Sulfur, does this aggressively activate your Methylation, and this is why you have said before “you can’t handle Sulfur”? What did happen when you took the Sulfur?

      I ask this specifically because I think I had a very bad reaction to Sulfur this week, even though I had taken it in the past but in a different supplement.

  8. Imogene August 22, 2015 at 10:24 pm Reply

    Do you have any video of that? I’d like to find out some additional information.

  9. Jenny August 23, 2015 at 6:11 pm Reply

    I can’t believe it’s been over a year since I was floxed. and I look back at my comments, so much has changed since. I look back to those nights and I feel sick because I remember the misery. I am recovered. There was a point I never thought it would happen and it did and I am thankful. Thanks to everyone who replied to my misery. You were right and I have a healthy baby girl since!

    • Linda Livingston August 23, 2015 at 7:24 pm Reply

      So good to hear! And congrats on the baby girl. :)

    • Lisa Bloomquist August 23, 2015 at 7:24 pm Reply

      Congratulations, Jenny! I’m so glad to hear that you’re doing well now! Thank you for stopping by to tell us! And congratulations on the birth of your baby girl too! Wonderful news all around!!!

      If you’re interested in writing up a recovery story for this site, please let me know. You can reach me through the “contact” link on this site. Thank you!

    • SM August 23, 2015 at 8:34 pm Reply

      Good for you, Jenny. Take good care of yourself!

    • J August 24, 2015 at 12:23 pm Reply

      Jenny, thanks for checking back in and congratulations!! My day is better each time I read a recovery testimony :) I’m 20 months out tho and stick wondering why I’m not fully recovered . Did you have nerve issues (like tingling , twitching etc?) did you do anything specific ? Thx again!

  10. mike August 24, 2015 at 9:56 am Reply

    Thanks for responding to my questions regarding mercury fillings. I am also a teeth grinder. I guess I do this at night although sometimes I catch myself doing it in the daytime. I know this can cause the release of mercury to be much higher than the normal person.

    I used to trust in conventional medicine until I got floxed. Then it opened my eyes to a corrupt system run by greed. Now I don’t know who to believe. Where there is money to be made there will always be corruption, whether conventional medicine or naturopathic etc etc… I guess that’s why I don’t really research this stuff like some of you guys do. My question when I read (for example Dr. Sircus, not to point him out specifically but only to give an example) is always: “Is this source reliable?”

    The makers of Cipro say it’s shown to be safe and effective. I used to believe what I would read especially if it came from a reputable drug company or the FDA. I used to believe conventional medicine was the most advanced way to treat people and that other philosophies of treatment were for the most part quackery. I’m a pharmacist, I have spent many years of my life studying this stuff. How ironic that a medicine that I trusted to treat an infection I had that failed other antibiotics would be the worst regret of my life. I have different views on western medicine now. I would guess we all do. We wouldn’t be in this position if we didn’t trust conventional medicine.

    I look back at myself and think how gullable I was to just believe big Pharma and its corrupt system now that I know big Pharma lies for profit (or at least hides the truth which is the same thing to me). Some of the drugs are helpful but some of the drugs, as we well know cause devastating irreversible effects.

    I am getting to the point where I feel that many of my ADR’s are irreversible. The injustice, the anger I feel about this is overwhelming. The medicine that was supposed to help my health has wrecked it. It’s gotten to be for me too much to handle so I generally try to block it out. I am learning to live life impaired. Well more impaired than before considering I already had autonomic nervous system dysfunction.

    It’s all I can do most of the time to get on here looking for what has actually helped other floxies. I’m a bit jaded. At this point I could care less about reading research. I just care about what has made others improve. I get on here looking for real people paddling the same unfortunate boat I’m in, with real stories of real improvement. I want to read about results. I feel like reading all of this research and chasing unproven remedies is a waste of time and maybe most of all it gives me false hope for recovery and causes me to focus on my problems.

    I admire you guys that keep your nose in the books so to speak in order to find some way out of this mess. Keep reading and sharing. I feel like nobody else out there aside from Dr. Golumb etc will help our community of floxies.

    • Daniela August 24, 2015 at 12:16 pm Reply

      Mike, That was so well written, as it was from the heart. But I have to say don’t despair because many of my ADR’s have REVERSED. Today I have walked up stairs two at a time and I did an unsupported headstand this morning. I never thought i would ever be able to do those things again in my life especially after six years ! The most poignant thing to have happened of late was last night when I was reading something sad and felt a tear well up in my eye. Six years of eye dryness and/or inability to feel past my own discomfort — was it truly gone ?

      Healing is very slow and that is the gist of what is wrong with pharmaceuticals. Setting aside the profit motive of the pharma companies, the search for a magic bullet, a pill that will immediately cure, is the incorrect path to take. There was a big change in medicine after 1928 towards antibiotics, and we are losing all the historical medical knowledge that preceded penicillin. With your pharmacy background, maybe you can look into homeopathy or herbs or healing foods. and help us preserve our thousands of years of healthcare history.

      For me:
      SCD diet but no dairy, mostly vegetables with some nuts and seeds
      hatha yoga turning and moving all the body, circulating the blood, bringing oxygen to all the parts that need it
      breathing exercises also to increase oxygen
      meditation for calm
      I was drinking magnesium water and taking epsom salt baths just because I like them, but I haven’t recently so I don’t know if they are essential
      Lavender used to be my best remedy but all the bottles I buy nowadays are bad :( I guess no one is growing it anymore like they used to.

      All of this is free and easy, and does not involve buying or doing anything coming from someone who is trying to sell something.

      • J August 24, 2015 at 12:29 pm Reply

        Daniela, thank you for the positive energy:) much like Mike I have days that I wonder after 20 months if what I’m left with is what I’m left with since my residual issues are very specific and every other ADR has resolved . Unfortunately the residual pain is in my legs (mainly quads) with tingling in my feet and calves and so it’s quite debilitating and frustrating . Did you have pain like this ? Nerve issues (tingling, twtiching etc? ) I am currently on an autoimmune paleo diet and have seen no difference and am undet the care of a great ND.ive tried everything and am hoping time is my magic bullet (with some effort and healthy living mixed in)

        • Daniela August 24, 2015 at 4:52 pm

          J, for pain you have to do the yoga, slowly. It’s going to take time. I was completely bedridden, it took five years to stop wincing, but it got much better. Dairy is a killer for me, the twinges start right away. If that’s not a trigger for you, you have to figure out what it is.
          But it does take months or years. It’s wrong what happened us, but don’t make it worse by looking for another magic bullet !!!!!

        • Daniela August 24, 2015 at 5:13 pm

          Re Paleo diet — some people are sensitive to meat and find relief with vegan. And there could be residual antibiotics in even organic meat. I have to eat mostly vegetable.
          Are you gently stretching?

    • F August 24, 2015 at 1:43 pm Reply

      My sentiments, exactly, Mike. I was a paramedic for 33 years, retired before being floxed, and I still believe that allopathic medicine is it when it comes to Emergency medicine. I have worked with many fine dedicated doctors and nurses and witnessed many lives saved and much suffering relieved. But it is a bitter pill indeed to get PN from Cipro. What a shock!!! I was going to travel the world in my retirement, climb mountains as I was still in good athletic shape…now? I am 4 1/2 months out after 6 weeks of Cipro. I am still hoping time will be on my side.

    • Linda Livingston August 24, 2015 at 3:06 pm Reply

      Mike, I feel your same anger. A few months ago I was barely able to walk from my bed to the bathroom. Now that I am getting strength back, I am on the warpath. I have sent letters to congress, the white house, senate subcommittes, atty general loretta lynch and others. at some point, SOMEONE who is not “bought” will help right this. This is criminal, since the FDA and the mfrs have known for DECADES about how devastating these drugs are. It disgusts me.

      I don’t know what you have tried so far, but I have now gotten about 40 IVs and have seen signifcant improvement. Unfortunately, I still have breathing problems, I believe linked to autonomic nervous system damage and blurred vision and a macabre pressing in of the nerves around my neck that make it feel like I am being choked. It is disgusting that people can be tortured like this just so someone can make money. And you are so right about the FDA. You’ve got the head food guy who is an ex Monsanto employee and even someone who used to be a commissioner with the FDA has stated that their “client” is big pharma—not us. Thanks to Lisa and others (yes, Dr Golumb!!), Dr Jay Cohen, Dr Bennett and others, there is going to be a shift soon.

      What side effects are you currently having and what have you done for them?

      • Daniela August 24, 2015 at 4:58 pm Reply

        Linda, It sounds like you are using your anger constructively. I wish you fast healing and energy for your fight!!!

        • Linda Livingston August 24, 2015 at 5:39 pm

          Thanks Daniela. I just finished a snail mail letter with attachments to go out tomorrow to Senator Elizabeth Warren, one of the last few honest people in Washington. I try not to get stressed, because I know it exacerbates the whole breathing problems…but damn, I’m pissed! ;) And that’s for the healing wish. I’ll take it!

    • Lisa Bloomquist August 24, 2015 at 7:47 pm Reply

      The shift in perspective after getting floxed is difficult for all of us. In speaking for myself and many others, though certainly not all floxies – We thought we could trust the medical system in its entirety. We knew on some level that there was some corruption, but we assumed that the safety measures in place were adequate. It was a rude shock when we realized that an antibiotic (seriously – an antibiotic??) could bring us to our knees, and that no one in the medical system wanted to acknowledge the pain, much less put us back together again. That perspective shift is difficult for everyone. I can only imagine how devastating it must be for those who work in the medical field. I imagine that it can shatter truths that were held tightly. It really, really, really sucks to have your world shattered. I am truly sorry not only for the physical pain that this experience has brought you, but for the emotional pain as well, Mike. Your comment is raw and it is real and it hurts my heart and soul.

      If you ever want to get together for a cup of tea and a hug, I’m in Denver. Virtual hugs going your way no matter what.

      • F August 24, 2015 at 8:16 pm Reply

        It sure was a kick in the head all right!

    • Jason August 25, 2015 at 6:30 pm Reply

      The “red” pill, is a bitter pill to swallow indeed. We are living in something not unlike “The Matrix” at all, where most of the World is still living under the LIE that the Government & Medicine etc “have our backs”, including my own naive family who refuse to come out of the “dream” or false World. As you, and everywhere here has found out, nothing could be further from the truth.

      The liberating part about taking the “red pill” vs the blue pill however, is now your eyes are open, and now you will seek and find the real truth as to where 90% of the health problems are really coming from, why the information is suppressed, and what collectively we can do about it to make sure our own health is protected going forward. No one should believe it’s too late, it isn’t, it is a shame that taking the red pill is so damaging, and it is extremely disappointing and frustrating for sure but comfort should be taken in the fact that YOU are no longer fooled by, nor a part of, their greedy facade.

      • Linda Livingston August 25, 2015 at 6:40 pm Reply

        yep.

  11. F August 24, 2015 at 2:10 pm Reply

    It is taking every thing I have to hope and not give in to despair.

    • Linda Livingston August 24, 2015 at 3:10 pm Reply

      F I went through several months where I had NO hope. Suffocating like breathing, could barely walk, ravaged GI system, peripheral neuropathy, excruciating pain, insomnia depresseion, and more —and a so out of whack olfactory nerve that I could be around no one —every scent, even just soap was asphyxiating. Truly nightmarish. Now, as I mentioned above to Mike I still have issues, esp with the breathing, but I am so much stronger now. I don’t know how I am still standing here today, but I am. Please don’t lose hope. Let us know what you have tried, so we can offer suggestions.

      • J August 24, 2015 at 5:55 pm Reply

        Daniela, yes I have been gently stretching and walking in pain. I think it’s nerve pain but not sure. It moves from one day to other- like clockwork. It’s very painful . It prickles to sit and hurts to stand or walk. My knees have improved . My arms are back to 95 percent healed. I cannot imagine being vegan honestly. I lose weight very easily and cannot afford to lose anymore. I am very strict with my meat and have never seen a difference with foods/ I have tried numerous diets. I do not have apparent digestive issues so it’s hard to gauge which foods affect me . My iron is very low as is b12 and folate so we are working on that. Dr. Also suspects autoimmune hadimotjs- great! Did you experience severe pain like this ? Nerve pain?

        • Linda Livingston August 24, 2015 at 6:16 pm

          IN one of the letters written by a floxed doctor, she says ” Fluoroquinolones appear to be able to either induce or worsen an existing autoimmune diseases as well as give rise to an immune-allergic mediated reaction.” Gotta say, of all my twenty plus side effects, the IVs got rid of the pain first. And it was excruciating.Also, there is something called PEMF (pulsed electromagnetic therapy) which you can google. That has also been shown to help with pain, if you can find a practitioner who has a machine. I am using that now in conjunction with the IVs.

        • J August 24, 2015 at 6:27 pm

          Thanks Linda. I did PEMF and saw no change in my legs- only my arms. I truly do t know why my legs have not healed as the rest of me has…Although I had a lot of atrophy in my legs . I have done IVs but may need to return to them. However – my current Dr. Does not do them and honestly not sure which ones I would request at this point . I keep thinking I’m in that window where many see good changes so I’m really hoping . Was there one IV you thought made the most difference. I wonder if I hadn’t waited six months for IV therapy if I would have not been as bad ?? Who knows-

        • Linda Livingston August 24, 2015 at 8:02 pm

          Well I am thinking it was likely the Phosphatidylcholine, which is known to help with nerve damage as well as mitochondrial damage (with glutathione. I always get that as a push at the end.) If you look it up you will find a LOT of other benefits from it too. It is usually suggested that you get 20 of them, so maybe you just did not do enough. I also get high dose vitamin C, which helps rebuild collagen. I get that too with glutathione–so important for detox. So, I would try to aim for getting 20 IVs of the PC (with glutathione) and see if that doesn’t do the trick. You know, I was telling my ND that even though I have come SO far (Iiterally needed help walking when I came in the first time–and I looked like Gollum. I was in so much pain, I cried constantly. Now I look almost normal and am walking 1 1/2 miles a day. This is only 4 months after my first visit) I am frustrated that I still have breathing issues and vision issues and fatigue. He said in his experience (and he has treated a several floxies) the worst side effects seem to be the last to go.

          I have had 2 or 3 Myer’s cocktails, which in addition to immune support also helps muscle spasms. So—definitely the PC with glutathione.

          As for whether it would have been better if you had gone in sooner—maybe. But again, my ND had a woman who didn’t seem him until 1 1/2 yrs post-floxing. Today she’s doing well, with some mild reminders, but almost back to her normal life.

  12. F August 24, 2015 at 8:22 pm Reply

    Hi Linda, My ND had not heard of Phosphatidylcholine for nerve issues and doesn’t give it IV. She said it was a potent anti inflammatory. I am starting a course of IV Alpha Lipoic acid this week.

    • CAWS August 30, 2015 at 4:08 am Reply

      Please be VERY careful with alpha lipoic.It will move metals from the brain & redistribute unless you have a binder like DMPS to carry it out. IVs of DMPS or AL are usually contraindicated if metal or FQ toxic. Once it is administered you can’t take it back and side effects can be devastating..
      Cutler says you should test for body burden & chelate orally [start with LOW dose for safety] with quantifying tests [I prefer the Doctors Data Toxic Metals & Essential Elements 24 hr Urinalysis; go to http://www.directlabs.com to follow until metals [esp Hg] start to abate before you add the Alpha lipoic. If you dislodge metals from the brain when body tissues are still overloaded there is no place for it to go. http://www.noamlagam.com.
      I have 11 heavy metals, removed 16 huge amalgams 25 years ago, and was floxed 8 times by cipro,levaquin & factive before I imploded. I was an equestrian triathlete for 35 years. Can no longer go near a horse. I have tried dozens of detox protocols [many of which made me worse] & since I am hetero mthfr, mtr and have methylization issues I must go VERY slowly. If you have sulfur problems; molybdenum & yucca along with low sulfur diet have been lifesaving for me. I was being treated for ACID reflux when in reality I was turning sulfur into AMMONIA & had ALKALINE reflux so PPIs just made it worse!
      Www. 23and me.com was worth every penny though you now have to run your own analysis online. I used http://www.mthfrsupport.com & Sterling Hills app for $20. She is also floxie and absolutely brilliant.
      Dr. Cutlers method has been the safest, cheapest & most effective for me. That said you MUST follow the dosing & timing EXACTLY or you will be sorry. Did much oral DMSA & many surprising metals [high lead,arsenic,barium & cesium] came out, but no Hg as I hold on to it. I finally sourced some oral DMPS and the Hg started to move [according to urine tests] but I still have to take baby doses. My PN goes away during chelation but comes back when I quit. Also DO NOT try to chelate unless you have removed your amalgams or if you are fighting any kind of infection. Minerals are always deranged in metal toxic people so pay attention to the tests for replacement protocols. EDTA is not very good for mercury & chelates many minerals so I avoid it.
      For a biological dentist in your area go to http://www.iaomt.org and check out http://www.slweb.org ; click on FTRC link for a list of 300+ pharmaceuticals that have been “enhanced” with fluoride to avoid. Anesthesa is especially dangerous for floxies. I only allow propofol/fentanyl/valium/xanax/ & carbocaine period. Versed/ midazolam [given for everything these days] is 91ppm of fluoride and will mess you up. MDs & dentists have no idea. If you have B-12 issues avoid nitrous oxide as it can kill you as it flushes B-12 .
      Never give up & educate anyone who will listen.

      • Rene August 30, 2015 at 1:32 pm Reply

        CAWS, Thank you for the information. Very helpful.
        God Bless

      • Jason September 2, 2015 at 7:06 pm Reply

        Indeed some good info there and I will agree 100% on the ALA, one must be very careful, ALA crosses the Blood Brain Barrier and will carry metals INTO the Brain if you do take this at the wrong time, even Cilantro can apparently do this. ALA is an important supplement but one should be educated on it before using it

    • Linda Livingston August 30, 2015 at 10:21 am Reply

      I am also concerned that your ND is not familiar with ptc for nerve issues. If you google Phosphatidylcholine and IV you will find almost 50,000 hits on this. Here is a typical one from Northampton Wellness: “Phosphatidylcholine (PC) is a fat found in each of the body’s cell membranes. It is responsible for maintaining the cell’s shape and allowing each cell to communicate with other cells. As cells age, the proportion of membrane fat composed of PC tends to decline in favor of other fats, including sphingomyelin and cholesterol, that don’t work nearly as well as PC. Cells are more likely to die as the amount of PC declines.
      Studies have shown using PC in an intravenous form can be effective for treating toxicity of the nervous system, or neurotoxicity.”

      Interestingly, when I mentioned this to a medical doctor, she was not familiar with it. BUT when I was calling around to different naturopaths, every one of the 4 or 5 uses it.

      Honestly, if it were me, I would seek out another ND.

      • F August 30, 2015 at 12:19 pm Reply

        Thanks Linda and CAWS. Now I don’t know what to do. I am overwhelmed by all this.

        • Linda Livingston August 30, 2015 at 1:51 pm

          It can be overwhelming. Think of it like getting a second opinion from a doctor. Ask around and see if anyone you know recommends an ND (or an integrative doctor that does IVs.) Then call a few, and explain your situation and ask what they would offer. Especially ask if they use Phosphatidylcholine (PC) IV therapy. If you post what state/area you live in, there may even be someone on this site who can refer you to an ND. Also just google your city + integrative physician and see what comes up. They’re out there!

        • F August 30, 2015 at 3:52 pm

          Hi Linda, Thanks. I did ask my ND again and she said she usually uses it (PC) for issues like angina. I checked many other websites of local ND’s and it seems to be the same. I have found the references for it’s us in neurotoxicity. BTW I live in Vancouver, Canada. We did check my metal load and I have slight elevation in lead and chelation is on the agenda. Caws suggestion that ALA is contraindidcated has me a bit stunned. My ND has not run into FQT before but has used ALA to good effect on Cancer Chemo induced Neuropathy. IV ALA is widely used in Germany for Diabetic Neuropathy. I will phone around.

        • Linda Livingston August 30, 2015 at 4:29 pm

          Here’s one in your neck of the woods (I realize it’s likely a big “neck”) that offers PC http://www.caremedhealth.com/north_vancouver_intravenous_vitamin_therapy.html

          Also high dose C (can’t recall if I mentioned) is great for rebuilding collagen.

        • CAWS August 30, 2015 at 5:36 pm

          F
          What method did you use to check your metals? I prefer to use more than one [hair, urine, feces, sweat etc] blood& spit not so much. You could try some oral Alpha lipoic to see if you can tolerate it but again low doses more often are the way to go so as not to repoison yourself. Have you done 23andme yet to check for sulfur issues? Most chelators, including AL are sulfur so it helps to balance yourself before dumping a load in your veins.
          Just an example: I did a iodine challenge test [oral] where you take 150mcg of Iodoral and follow with a 24 hr urine test. If you pee out 95% of the iodine you are not deficient. Some fluorine & bromine also came out but contrary to popular opinion iodine is not a chelator. Fluorine displaces bromine which displaces chlorine & they all displace iodine. I was at 75% so I was deficient, but the price I paid to find that out was dear. I felt like I was floxed all over again. Challenge tests are not for me; but I insist on documenting what is coming out periodically with safe tracking tests.
          Doctors base chelation protocols on the Merck manual for acutely poisoned persons [or the latest fad]. If they save your life & you lose a kidney oh well at least we saved your life. If you are chronically poisoned though much caution should be taken. I have done IV C,Mg several times & glutathione once. Every Myers cocktail is also different depending on the doctor. Three out of four I have been to will try to run the IV too fast. MINIMUM time frame is 2.5-3 hours.
          Don’t believe that you must do IVs to chelate. I can do 5 rounds of DMPS [oral] for the price of one IV and have test results to prove it works. The sicker you are the more you should read Cutler’s book. He is a scientist [chemist] who used it on himself & helps kids w/autism too.
          Oral lipospheric Vitamin C & glutathione are also available online or can be made at home. I can’t tolerate the G because of my sulfur issues though.

        • F August 30, 2015 at 8:24 pm

          Thanks Linda, Another opinion is always a good idea. I wish I could find one with experience with FQL. CAWS, thank you, who is Cutler?

        • Linda Livingston August 30, 2015 at 8:58 pm

          well, I lucked out, but he had to start with his first floxie before me. I think if you can go armed with a lot of information, like the fact it damages collagen and mitochondria, and that it attacks all nervous systems, they will know how to take it from there. (Several of the treatments are similar to the ones they give to Lyme patients.) Good luck!

        • Linda Livingston August 31, 2015 at 2:58 pm

          Hey F—when I had my IV today I asked my ND about ALA IV for FLQ toxicity and he seemed to think it was a good idea. he said the reason he doesn’t use it has to do with storage (something about it having to be kept in amber, or something like that.) Anyhow, I know you were feeling conflicted and overwhelmed, so wanted to pass that along. I have great faith in my doctor.

        • F August 31, 2015 at 3:21 pm

          Thank you Linda! That is so kind of you to think to ask. You are a generous soul! I have been taking ALA orally for about 2 months now with no ill effects. Had one IV on Friday last and was okay. Still need to look into PC. This PN sucks. I have it in my feet and I sure don’t want to live like this forever. Pretty soul destroying business! Thank you again!!!!

        • Linda Livingston August 31, 2015 at 3:49 pm

          You’re welcome. (I think his exact words were “awesome.”) But yes I believe the PC is what has helped me the most as far as peripheral neuropathy…now if I could just find something for this breathing problem. argh.

      • Rene August 30, 2015 at 1:34 pm Reply

        Thank you Linda,
        For those that cannot afford or do not have access to IV therapy…..an excellent supplement to address the membrane of cells can be found at Holistic Heal….Phosphatidyl Serine Complex.

  13. Daniela August 25, 2015 at 12:11 pm Reply

    I just got a tincture of valerian, which has always helped me in the past to relax and to sleep. But I recognise the effects this time, it was really benadryl ! I could barely keep my eyes open after taking it, fell asleep like a log and woke up with blurry vision and groggy. It’s the afternoon and the effects are finally wearing off, but that was a horrible morning.

    It’s the Wild West out there . Be careful with the supplements . If it’s herbal, try to get the real thing. If it’s a vitamin, try to find the real food source . Watch out for added caffeine, as Jason mentioned bleach in the milk of magnesia, wheat in the turmeric powder to make it pour, all kinds of things that may not be even marked . Take care everyone :) :)

  14. Michael August 26, 2015 at 4:59 am Reply

    Hi Linda,
    Could you please provide us with your ND’s contact information? Some of us need to find someone experienced in treating floxies with actual success.
    Thank you,

    • J August 26, 2015 at 6:22 am Reply

      Linda, I have found my old ND does the Phosphatidylcholine Iv – although he was not as skilled as my current Dr. With supplements etc. however , if you really feel this made a difference for you I think I might try it. Like Michael, I’m wondering if your ND might be willing to do a phone consult one time since he has seen this before just to see if I am a n right track . I am starting to think my ferritin/anemia and B12 are my main residual issues prolonging done pain but who knows. I tried a good number of ozone treatments and those did not seem to help . Thanks again!!

      • Linda Livingston August 26, 2015 at 8:53 am Reply

        This guy is so busy I never see him stop for lunch, and I even see people waiting when I have been there after his office was “closed.” I have already asked him to do a phone consult for someone else, and I really don’t want to overwhelm him. As for supplements, I really haven’t gotten anything from him aside from the Betaine HCL for the digestion issues. Again, I believe the number one IV that has helped me the most for pain, and other PN side effects is the Phosphatidylcholine with glutathione push. As I mentioned before, it is suggested that you get at least TWENTY of them. This was not just from one of my two NDs but I have also seen this on other naturopath’s sites as well. Something else—we are all different, and what works for one may not necessarily work for another, but again, the PTC I believe to be what helped me most with the peripheral neuropathy stuff because it is supposed to help with nerve damage as well as mitochondrial damage. The high dose vitamin C helps (among other things) to rebuild the damaged collagen. I wouldn’t expect changes quickly. I am now somewhere around 50 IVs. I think the pain subsided after I had been going for about two months, twice a week. Not having seen you or any of your tests, I doubt he could give you any more info than I have given here anyway. Hope this helps.

    • Linda Livingston August 26, 2015 at 8:43 am Reply

      michael-He is in the Ventura County area, in CA. If you are anywhere close, please get my contact info from Lisa and contact me. Otherwise I can tell you exactly what he has used with me (IVs) which you can get from any integrative doctor or naturopath who uses IVs: Phosphatidylcholine (with glutathione push); high dose vitamin C (with glutathione push)–and you will need a blood test first for this one; myer’s cocktail (less often also with a push). He also used hydrogen peroxide IVs primarily because of my asthma, but it hs other benefits. He sometimes uses (not me me, but others) ozone. Again, anyone who does IVs can do these. In fact, I get half of them from another naturopath who is a bit closer to where I live.

      • J August 26, 2015 at 4:28 pm Reply

        Thanks Linda. Going to talk to the iv dr Monday. We’ll see. I wish I knew if your dr treated the woman he saw at 18 months any differently . By the way, – I believe correcting my stomach acid saved me and started some healing. I had no idea but apparently I was very low and once I started on a supplement my energy and other things came back. I think very important for new people. Took 5 months for a Dr to mention it to me …and I was getting worse instead of better . Glad you are seeing good changes Linda.

        • Linda Livingston August 26, 2015 at 4:43 pm

          one more thing I have done is stem cell therapy. very expensive. started that after I was relieved of the pain though. good luck! (and no, I don’t think he treated the other woman any differently)

  15. Rene August 26, 2015 at 11:56 am Reply

    For all concerned about Monsanto: Please sign action alert! God Bless us all, Amen.

    http://www.anh-usa.org/most-prestigious-medical-journal-in-america-calls-for-gmo-labe

  16. joyce rodriguez August 26, 2015 at 12:59 pm Reply

    PLEASE DO THIS SURVEY….THEY NEED 10,000….THEY HAVE SET IT UP SO YOU CAN LEAVE AND GO BACK.THIS IS HELPFULL BECAUSE OF YOUR FATIGUE, BRAIN FOG, AND PAIN.
    THIS IS DONE BY A UNIVERSITY THAT HAS DONE GOOD RESEARCH. UNIVERSITY OF CALIFORNIA AT SANDIEGO….DO NOT LET YOURSELF AND OTHERS DOWN. PLEASE!!!!
    http://www.fqstudy.info/Fluoroquinolone_Effects_Study/Welcome.html

    • Linda Livingston August 26, 2015 at 4:45 pm Reply

      yes, couldn’t agree more! did a couple months ago. have you posted this on the fluoroquinolone wall of pain on facebook? (I counted TWELVE different FB pages devoted to either cipro toxicity, levaquin toxicity, or fluoroquinolone toxicity.)

      • kelhatesfq August 27, 2015 at 6:43 pm Reply

        There are likely more than 12 support groups. I found this site through my quinstory…

        When I got floxed in ’13, I went pecking around. I got lead to FQ Wall of Pain FB Page pretty sure and lead me to several others. The best part is you can post something and get feedback directly from up to a dozen sources.

        There are people’s opinions … but it’s really nice to see actual photos and stuff. Good stuff too… Some of the early webpages and youtubes I found were downright depressing or way too old. Nobody is answering

        • Linda Livingston August 27, 2015 at 8:02 pm

          It is astounding to me that EVERY week now I am seeing a link to a new news report. And the FDA saying it is “reviewing the info” regarding Dr Bennett’s request for labeling about mitochondrial toxicity just make me want to scream. They don’t seem to care how many lives are devastated while delay, delay, delay, so their big pharma clients can rake in more money. Nauseating. The ALL should be behind bars. I sent letters to Elizabeth Warren and another member of congress and my second to Loretta Lynch. It is truly unfathomable that something like this can go on for decades.

  17. Rene August 27, 2015 at 1:18 pm Reply

    ACTION ALERT
    Wake Up & Smell the Poison

    In January, you helped us induct the world’s leading bee-killer, Bayer CropScience, into the Corporate Accountability International Hall of Shame. Bayer is the leading manufacturer of neonicotinoid pesticides, identified by scientists as the primary culprit in Colony Collapse Disorder (CCD).

    Since January, the plight of U.S. honeybees has grown even worse. Forty-two percent of the nation’s honeybee colonies died off between April 2014 and April 2015.

    What is Bayer’s reaction to these alarming statistics? A litany of excuses and a host of tobacco industry-style public relations campaigns, including establishing its own “Bee Care” Center.

    It’s time for Bayer CEO Marijn Dekkers to wake up and smell the poison.

    TAKE ACTION: Tell Bayer to stop manufacturing bee-killing pesticides!
    http://salsa3.salsalabs.com/o/50865/p/dia/action3/common/public/?action_KEY=17378

    • Linda Livingston August 27, 2015 at 1:29 pm Reply

      All the powers that be at Bayer should be behind bars for this and for KNOWINGLY destroying so many lives with their cipro!

      • F August 27, 2015 at 9:14 pm Reply

        You said it, Linda.

  18. Rene August 27, 2015 at 1:42 pm Reply

    I believe whole heartedly that if all us keep the pressure on and increase it Bayer, Johnson and Johnson, and Monsanto….will be forced into submission. Only with US, meaning the public who has a might, and will that is more powerful than these evil entities. In Jesus name, AMEN.

    Unique Roundup Study Shows Massive Kidney and Liver Gene Function Alterations:

    A new ground-breaking peer-reviewed study has been published in Environmental Health Journal that shows the levels of glyphosate-based herbicides which the general public are commonly exposed to in drinking water, altered the gene function of over 4000 genes in the livers and kidneys of rats.

    The study results suggest that long-term exposure to an ultra-low, environmental dose of Roundup at an glyphosate-equivalent concentration of only 50 ppt (parts per trillion), in an established laboratory animal toxicity model system, can result in liver and kidney damage, with potential significant health implications for humans as well as domesticated animal and wildlife populations.

    The new study by Dr. Antoniou’s team investigated whether heightened liver and kidney pathology observed at an anatomical and biochemical level was reflected in the gene expression pattern. Therefore the pattern of gene function (“transcriptome”) was analysed, by comparing liver and kidney tissues from the Roundup treatment group with those of the control animals.

    Dr. Antoniou stated; “The findings of our study are very worrying as they confirm that a very low level of consumption of Roundup weedkiller over the long term can result in liver and kidney damage. Our results also suggest that regulators should re-consider the safety evaluation of glyphosate-based herbicides.”animal and wildlife populations.

  19. Rene August 27, 2015 at 1:44 pm Reply

    In an article published August 20, in the New England Journal of Medicine, Philip J. Landrigan, M.D., and Charles Benbrook, Ph.D., present rational and reasoned, science-based evidence supporting their recommendations that 1), the U.S. Environmental Protection Agency (EPA) not allow the use of Dow’s Enlist Duo, a toxic combo of glyphosate and 2-4,D until further study, and 2), that GMOs be labeled.

    On the issue of 2,4-D, Dr. Landigran and Dr. Benbrook write:

    In our view, the science and the risk assessment supporting the Enlist Duo decision are flawed. The science consisted solely of toxicologic studies commissioned by the herbicide manufacturers in the 1980s and 1990s and never published, not an uncommon practice in U.S. pesticide regulation. These studies predated current knowledge of low-dose, endocrine-mediated, and epigenetic effects and were not designed to detect them. The risk assessment gave little consideration to potential health effects in infants and children, thus contravening federal pesticide law. It failed to consider ecologic impact, such as effects on the monarch butterfly and other pollinators. It considered only pure glyphosate, despite studies showing that formulated glyphosate that contains surfactants and adjuvants is more toxic than the pure compound.

    • Jason August 27, 2015 at 2:22 pm Reply

      Glyphosate causes cancer, and has known to do so since the 80’s, but of course those studies were falsified and then buried.

      The Bees dying is a MASSIVE issue of epic proportions, it could f*ck up the food chain in very big ways, even more than it already is thanks to b*sturds like them

  20. Jason August 27, 2015 at 2:20 pm Reply

    Hi Rene. I think you missed my reply in the above exchanges, hoping you can quell my curiosity here:

    “So the “honeymoon” of taking too much Folate, before ready, with MTHFR can feel like being “Stoned” then, you get more energy too, generally feel great, etc before the crash?

    I don’t think you mentioned what happens when you take Sulfur, does this aggressively activate your Methylation, and this is why you have said before “you can’t handle Sulfur”? What did happen when you took Sulfur?

    I ask this specifically because I think I had a very bad reaction to Sulfur this week, even though I had taken it in the past but in a different supplement.”

    • Rene August 27, 2015 at 3:27 pm Reply

      Hi Jason,
      MTHFR is a Key player but should not be addressed without all the other players being understood and addressed first to circumvent potential big problems.

      Example: CBS

      Ultimately individuals with the CBS C699T up regulation of the CBS enzyme can generate more sulfur breakdown products with potential sulfur toxicity issues, enhanced ammonia production, and a lack of glutathione. Molybdenum (helps the body to process neurotoxic sulfite to sulfate via the enzyme sulfite oxidase. This reaction will be heavily taxed in individuals with CBS C699T upregulations and you will often see low levels of molybdenum in the body in spite of constant supplementation. If molybdenum is too low then the more toxic sulfite will not convert to the sulfate form.

      CBS (cystathionine-beta-synthase): regulates the enzymes that help to convert homocysteine into glutathione, a major antioxidant. Specifically, certain types of mutations in the CBS genes will produce more sulfur end products from the methylation cycle. In particular, individuals who have the CBS (+/+, or +/-) the homozygous or heterozygous variants may want to limit intake of sulfur-containing foods (like crucifers, garlic, and supplements, such as MSM as well as medications like DMPS.) Both the CBS homozygous and heterozygous mutations also have a higher risk for ammonia detoxification issues.

      BECAUSE I have this mutation…..it explained why I cannot tolerate MSM……makes me so sick. I do eat garlic, and sulfur foods like broccoli etc…..others may need to restrict them initially by eating less frequently….but the supplements like MSM for me are impossible.

      You likely need to restrict the overall sulfur foods to a degree, but not excluding them all together.

      • Jason August 27, 2015 at 7:36 pm Reply

        Thanks Rene its looking a lot like I have the CBS issue, I noticed a few months ago that something in my Guacamole was making me tired, Avocado, Raw Garlic or Raw Onions, my bet was on the raw garlic due to sulfur but I have not finished testing this theory yet, but I did try Guac with just Onion and no Garlic and just Onion and still got tired (of course there is sulfur in Onions too, and both raw Garlic and Onions have a LOT more sulfur than when cooked).

        There are two more twists to this picture. I am VERY toxic in Copper, and Sulfur is one of the main antagonists of Copper, and will displace it (mobilize it) and cause your body to hopefully dispel it (but might not for many reasons, MTHFR being one of them). Well let me tell you that THAT is exactly what happened in my estimation, I took MSM right before exercising and Sauna, BIG mistake. First off I could not jog more than 10 minutes on tread mill, my heart was pounding out of my chest (coming from someone who can play Tennis for 4 hours). Then in the Sauna I got very light headed and weak, and for the entire next WEEK it literally felt like all the METAL in my head was dislodged and moving around, creating terrible pains in my head. I am pretty sure this was all MSM related now, and I know I am toxic in other Metals too (which store in fat, and the Brain is the largest organ that is high % fat) with Copper being one of the worst. Copper is a huge stimulant and would explain my reaction, it is also a big oxidizer and irritant to things like the nerves and let me tell you my nerves were rattled for a good couple days.

        The other interesting thing is I am quite sure Molybdenum helps me alleviate Brain Fog, I just never realized it until 4 weeks ago. I was taking this 2 years ago when I was on an aggressive Candida killing agenda/diet, and after 2 to 3 weeks or so I was starting to feel really good, clear headed, more energy etc. Then after a few months I started regressing but never realized why, well one of the things I did was stop Moly, there are other reasons I believe I regressed but I think that might be the biggest.

        The thing is Moly does 3 important things (well more but 3 big ones for me) for me which again I only realized one of them until 3 weeks ago. I started it again about 4 weeks ago because it is yet another antagonist of Copper, so it helps brings my Toxicity down, and sure enough after a couple of weeks I started feeling better, and I am sure now this helped me 2 years ago I just didn’t know. Moly also helps get rid of Ammonia, and this is why I took it 2 years ago as Ammonia is a toxin that Candida emits especially when you are killing it, so taking Moly helps avoid nasty detox symptoms. Also as you point out Moly also helps process toxic Sulfite into Sulfate, so yet another benefit.

        So as the complex picture here gets clearer, I am still left wondering a few things like: Exactly why Moly helps me the way it does (hair test showed I was excreting a “normal” amount when not supplementing), do I have Ammonia excesses (Colonoscopy and Live Blood test would indicate yes), Sulfite/Sulfate issues due to CBS, or is it mainly because of my toxic Copper problem, or a combo of all? Is Sulfur an issue for me because it is a very strong chelator of Copper, because I have the CBS Gene, or both? Am I toxic in Metals and Copper due to Adrenal Fatigue, low Zinc, MTHFR issues, or a combo of the 2 or 3 of these?

        Yes, I will be doing the 23andme test one way or another soon, really really soon, I am getting oh so very close to getting to the bottom of the 30 year Brain Fog issue, there are confirmed multiple issues as of now, like Food, Gut & Copper and more, and the 23andme will likely give me the last pieces to the puzzle.

        • Rene August 27, 2015 at 8:41 pm

          Once a week, at bedtime take Natural Calm w/ (2) Capsules of Activated Charcoal. Do not take other supplements at bed time as they will be wasted…..This is called a magnesium flush…..it will mop up the excess ammonia laying around. This is a widely used method in the Yasko population of families and adults and children alike.

          Also, eventually when you do get your test results from 23andme….and your methylation pathway SNP’s…….and then have set i place your foundational supports before adding methyl donors…..there will come a time when you will start dumping stuff…..and you will see the CBS in actions in full play….meaning how it is lowering molybdenum, and B12 is being dumped….metals will be excreted….changes in frequency of urination, and sometimes odor of urine. I detoxed for months and months just doing the short cut route and laying my foundational supports…..peed a lot…and every few days, had a weird odor to urine….I think it may have been sulfites? Not sure.

          I did do darkfield live blood analysis….and low white count, and some very weird and ugly black cloud hanging out in my blood? Toxic junk…so….I am hoping to do my own urine and hair test soon and push along where I need to.

        • Rene August 27, 2015 at 9:47 pm

          CBS:
          The increased activity often leads to toxic waste build-up and poor glutathione production in addition to challenges processing sulfur/sulfates. While this may be contingent upon other defects, there may be an elevation in taurine, ammonia, sulfites and hydrogen sulfide. (Taurine is an amino acid while the latter three substances are toxic).

          Therefore, it is often vital to support this enzyme prior to initiating other methylation treatments. Otherwise, any efforts to support the cycle may only result in increased toxic burden. This may explain the reason some patients cannot tolerate efforts to raise glutathione, particularly since they are sulfur-containing substances, while others derive great benefit without debilitating side effects.

          I could not handle glutathione intravenous pushes….
          But can tolerate the Lifewave patch very well….and helps me enormously.

          Even a partial defect often leads to dumping everything out at 10x the normal rate, hence, the “Hole in the bucket.” This tends to drain the entire pathway of nutrients, homocysteine, and toxins. Think of the CBS as an open barn door or a leaky bucket . This means that everything that does & doesn’t belong within the whole pathway are just dumping right on out into the liver & kidneys to be filtered out, much like a hole in the bucket.

          This means that as fast as you try to fill your leaky bucket, much of it simply dumps right out. This leads to significant deficiencies within P5P, B6, B-12, minerals, antioxidants, etc. These compounds often drain out, leaving you without critical methylation support to maintain and police the entire system.

          This is revealed as you work the program (Yasko). Dr. Yasko recommends that one supports their CBS enzyme for at least 6 weeks before starting methylation supplements. When one tries to take nutrients to support their methylation cycle before addressing the CBS up-regulation, all the nutrients basically lead to nowhere. Instead of generating glutathione, the supplements may deplete the rest of the cycle.

          So CBS ++ OR +- let you know that their is another BIG player to address before addressing MTHFR ! & Knowing which form of Cobalamin is best suited for your genetics: Hydroxy, Adeno, Methyl…and needing a blend or ratio of each is possible. COMT & VDR genes will let you know where you stand with that…. So while you are waiting for your DNA results take your UTA UTM & UTE urine tests….and work on what you can with your mineral and amino acid balance:

          Glutamate & Gabba/ balance
          Copper & Zinc ratio/
          Molybdenum
          Manganese
          Lithium
          Potassium
          Magnesium & Calcium ratio

          How you proceed with supplementation and which of these are best for your program will depend on the individual, but the idea is to lay the nutritional groundwork, remove excitotoxin triggers and add supports to help with inflammation before embarking on any form of detoxification.
          Although the ultimate goal is to get the long route around the cycle working, this can cause excretion of toxins from the body. While detoxification is a good thing, it can also allow for symptoms during the detoxification process. For that reason, getting the cycle moving by supporting the short cut helps to restore methylation function while limiting detox reactions. Once the short cut is working, and lithium is in balance then B12 can be gradually increased.

          (Phosphatidyl Serine Complex) Keeps cell membranes fluid, flexible so nutrients can flow in and out.

          Membrane Fluidity
          Why do we need our cell membranes to be permeable? The cell membrane surrounds your cells like a protective skin and selectively regulates what enters and exits. Certain proteins embedded in your cell membranes also act as signals be¬tween cells, coordinating cell actions like growth, tissue repair, and immune response. The methylation of phospholipids in the cell membranes is critical for membrane fluidity. Without proper methylation, due to mutations in the methylation pathway, there may be insufficient methyl groups necessary for this task. As a result, membrane fluidity is directly affected by improper methylation, and signaling between cells may be impaired.

        • Jason August 28, 2015 at 8:09 am

          Thanks for all that Rene. You better believe after that MSM “episode” I went into the Yasko book and re-read everything on CBS.

          I just recently added activated charcoal to my “mop-up” inventory, and used it the other day after exercise and Sauna to great benefit, the next day I noticed less after effects than usual, it doesn’t necessarily bind to Metals all that well which is why I combined it with a couple other mopper uppers.

          I bought some Mag Citrate too add to the 7 other forms of Mag I have, and holy crap does that stuff taste awful. I haven’t been using it due to this, and just use AM Mag and other forms.

          I notice the Life Wave patches are a type of Homeopathy, which one do you use? The Glutathione one has Calcarea fluorica in it, a type of Fluoride, what a shame I won’t be using that one and will be emailing them about this poor choice of ingredient. Its probably not the worst form of Fluoride but to me there is no good one

  21. Rene August 27, 2015 at 3:29 pm Reply

    Have someone in the US send you the 23andme kit….and then send it back to them and have them send it back to 23andme. You need your SNP’s.

  22. Linda Livingston August 28, 2015 at 3:59 pm Reply

    For those of you who have not yet seen this great video, put together by a fellow floxie, and featuring our own amazing LISA Bloomquist, he has done a terrific job —(only wish people would stop talking about “more labels” and talk about removing or restricting the use of these toxins.) This is a great piece to share with everyone you know on face book. Let’s keep the tide going. https://www.youtube.com/watch?v=XgTiGhFrBgc&feature=youtu.be

    • Jason August 28, 2015 at 5:53 pm Reply

      Very heart breaking and maddening, “bombs” should be sent directly to Bayer and the FDA, to make up for the hundreds of thousands of bombs they set off and are responsible for. Its seem nothing short of mass protests at the White House for months will bring this poison off the market, obviously Bayer is paying someone at FDA handsomely year in and year out, without significant pressure that just won’t be overcome, and 300,000 “complaints” sent in directly to FDA won’t cut it. It needs to be BIG, and big enough to get considerable News coverage

      • Linda Livingston August 28, 2015 at 9:55 pm Reply

        Well I was reading an article the other day where the outgoing director of the FDA actually said that their client was the pharmaceutical companies. The revulsion of this is beyond words. This agency was created to protect us, and it is doing anything but. Disgusting. The article also said it is because the people don’t make enough there so they have to pad their income. Really? They probably make way more than the average person. But there should be no price put on the health of the people they are supposed to be protecting. Hopefully the growing coverage will have an impact. Again, I urge EVERYONE to send a letter to Attoreny General Loretta Lynch talking about how we are NOT being protected and how both the manufactureres AND the FDA have known for decades and still market these products inappropriately. A letter from me may not have an impact. LOTS of letters may. She is ,of the few people in a position where she could investigate and file criminal charges if she believes they are warranted. This IS criminal. If Bayer and J/J hadn’t gotten so greedy, and had just left Cipro, etc as a drug of last defense, as it was originally supposed to be, hundreds of thousands of people wouldn’t have had their lives needlessly destroyed. This is so inappropriate to be marketing a chemo drug with possible debilitating permanent side effects for simple infections and they need to be held accoutable for this misuse of the public’s trust, as does the FDA.

        • Rene August 30, 2015 at 1:28 pm

          Agree from here to the end of time.

    • Rene August 30, 2015 at 1:26 pm Reply

      I agree the labeling is NOT the answer….after I was injured 2 more BLACK BOX warnings were added…..and the one for Tendon damage is useless……I asked the pharmacist to show me what a black box warning looks like……well it is tantamount to looking at a shrunken White Pages……A JOKE, and a DISGRACE.

      • Linda Livingston August 30, 2015 at 1:56 pm Reply

        Plus—Drs are not READING them. Mine gave me cipro and prednisone at the same time! Neither he nor the pharmacy mentioned the black box. And you’re right Rene re the shrunken white pages…but then they have to squeeze it into 47 pages!! Imagine if they used regular font. The thing would be a 100 pages long. (It’s the equivalent of the rushed warnings, spoken so fast after a radio ad that you have no idea what they are saying.)

  23. ursula August 30, 2015 at 7:12 am Reply
  24. Rene August 30, 2015 at 2:33 pm Reply

    Jason,
    Homeopathic remedies are NOT the same thing as the substance itself….and you do not need to fear the ingredients in the patch. They are very safe. The homeopathic form of the substance you mentioned is no different than any other Homeopathic remedy derived from the mineral kingdom, or plant kingdom, or animal kingdom. I have done years of Homeopathy for Lyme and immune and toxicity issues….I have taken snake venom, and bee venom, and nosodes of pathogens to induce immune responses…and ONLY becuase it was homeopathic was it safe to so. It is a deep subject, and one that I have researched extensively which I learned so much from. I wont have time to go into it, but it is not allopathic or remotely anything to do with taking a substance like a supplement or food. It is entirely on energetic fields and signatures. Homeopathy used to be the priority in America in the hospitals but the formation of the AMA changed the course of medicine and where we are today is still suffering from that direction.

  25. Lina August 30, 2015 at 4:44 pm Reply

    What article?

    • Josie September 1, 2015 at 5:09 pm Reply

      Please :(
      Can someone help me :(
      This on a boat/swimmy headed/off balance dizziness all day everyday is terrible. I have a terrible diet. I eat fast good almost everyday. I need help :(

      Can someone recommend some diet changes that will help? Please. I’m desperate to try anything. Please. :(

      What diet has helped you?!

      • Lisa Bloomquist September 1, 2015 at 5:39 pm Reply

        I’m writing a floxie diet book but I’m not even close to done with it. The Wahls Protocol has helped several floxies. I’m a big fan of the JERF diet – Just Eat Real Food. Processed food and fast food aren’t real food. :p Eat good foods for Charlotte too.

        The dizziness may have something to do with Charlotte being inside of you too. Have you asked other pregnant women about it?

        • Linda Livingston September 1, 2015 at 6:38 pm

          JERF—I like that! Tried the Wahls, but I don’t even have room in my frig (mini) for the number of servings of veges she proposes you eat each day (3 cups kale/spinach/greens, 3 cups sulphur-like veges, 3 cups colors….eke)

        • Josie September 1, 2015 at 7:34 pm

          Yes I have. And they don’t experience the type of dizziness that I have… ): I started getting dizzy around December but since being pregnant it’s been worse..

      • Linda Livingston September 1, 2015 at 8:51 pm Reply

        like Lisa said—real food. and organic when you can. I would cut dairy and wheat, and gluten if you can. Just those two things alone should help. Lots of veges and fruit, and wildcaught salmon. If you eat chicken or beef be sure it is antibiotic free. You want fast? This is good for you and delicious. Make a smoothie with fresh spinach, a banana and a frozen berry of any kind, and add organic protein powder and/or some peanut butter or almond butter. Throw in half an avocado too. good fat. (If you are going to try to stay away from dairy, then watch out for powders that are made from whey.) Eggs are good (better hardboiled) but if you cook them, use coconut oil. (And again, buy organic so they don’t have more junk in them you don’t need now.) And LOTS of fluoride free water. Don’t know if you have a Sharkey’s near you but they are GMO free and now so is Chipotle.

        • Josie September 2, 2015 at 5:48 am

          Is almond milk safe to drink?

        • Linda Livingston September 2, 2015 at 8:50 am

          I’ve read to stay away from the additive carrageenan (think I misspelled that) but you can find some brands that don’t have it, like the refrigerated almond milk at trader joes. Also whole foods carries one. To be honest, in a pinch I still whatever brand is at my local store. (Although even now Vons/Safeway has a new line which I think doesn’t have it either.)

  26. F September 1, 2015 at 5:06 pm Reply

    Has anyone ever considered Hyperbaric Oxygen Therapy?

    • Linda Livingston September 1, 2015 at 5:26 pm Reply

      That has been suggested to me by several different people. I am too claustrophobic to consider it, but it sounds like a good adjunct therapy if it is offered to you.

  27. F September 2, 2015 at 3:20 pm Reply

    Anyone have any experience with Neurontin(Gabbapentine) or Lyrica (Pregabuline) for Neuropathy pain?Or the Tricyclic Antidepressants like Amitripityline?

    • Josie September 2, 2015 at 4:26 pm Reply

      My body is burning and throbbing so bad

      Is this neuropathy? :(
      It feels like the flu but ten times one hundred

      • F September 2, 2015 at 5:09 pm Reply

        Oh Josie,I feel your pain. I really do. Even though doctors are pretty unpopular around here. They can tell you if you have neuropathy pain. But neuropathy pain is often burning, tingling, numbing, electric shock type pain. It can also be areas of you body where things that wouldn’t normally cause pain…do. For instance, a light touch of your skin or sometimes even a light breeze against you skin causes pain. Neuropathy is often in the feet and hands but can be anywhere on the body. I have it in the feet that makes walking a challenge. I wish and all of us a speedy recovery.

        • Josie September 2, 2015 at 6:10 pm

          So I don’t know if it’s neuropathy then… It’s like a sun burnt feeeling and aching feeling

          I willl be going organic on the18th. I will heal. I know it.

        • Rene September 3, 2015 at 11:30 am

          Hi Josie,
          I am sorry your going through this, but yes you will get better. It is like we are in a POW war camp….sending messages over the fence to help escape….We are in the Fox hole with you.

          I highly recommend that you Avoid supplemental Calcium…..from food is perfectly fine of course, but supplementing calcium is unwise for most becuase of the ratio unbalance between Magnesium & Calcium. Dominant Calcium to low magnesium fires up pain more so…..If you tolerate Epsom Salt or Magnesium – Ancient Mineral bath flakes might be helpful to relax your system.

          If you haven’t yet, I encourage you to get a Vitamin C IV drip, and Magnesium shot or IV. Also of course as others have often mentioned Alpha lipoic acid. If you can tolerate sulfur based supplements.

    • Jen September 3, 2015 at 7:39 am Reply

      F, I tried gabapentin for my peripheral neuropathy symptoms but only for a few days because I had an allergic reaction…broke out in rashes all over my body. But I did feel like it helped a little bit in the few days I did take them. I never went back on it but my symptoms are now very minimal to none. It’s been a year for me since being floxed and I tried the gabapentin back in November of 2014.

  28. F September 3, 2015 at 10:18 am Reply

    Jen, thanks for the reply. I am glad you have recovered. If you don’t mind my asking, What sort of symptoms did you have, and where, feet? hands? How long did it take to recover? My neurologist says it can’t be the Cipro and that I will never get better, only worse. I am 4 1/2 months out and scared. Thank you again. It’s good to know you can recover.

    • Jason September 3, 2015 at 11:05 am Reply

      F, did you get PN basically right after Cipro? Many do, which shows you that the neurologist has VERY limited use sadly, do not listen or trust everything you here from the Medical field, they lack knowledge in many many areas, Floxing is just one of them.

      There were many posts in the past on PN here at FH, I think you seen some of them, it seems many recover in the 18 to 30 month mark, so patience here will be necessary, my opinion is things CAN be done to help, lots of past discussion on this, many do not find the right combination of things to help but some do. Good luck, PN is no fun for sure, keep the faith though tons of people recover

      • Jason September 3, 2015 at 11:17 am Reply

        Remember to the Medical Field got us into this mess, trust is not something that can be put into them either :(

    • Jason September 3, 2015 at 11:07 am Reply

      F, did you get PN basically right after Cipro? Many do, which shows you that the neurologist has VERY limited use sadly, do not listen or trust everything you here from the Medical field, they lack knowledge in many many areas, Floxing is just one of them.

      There were many posts in the past on PN here at FH, I think you seen some of them, it seems many recover in the 18 to 30 month mark, so patience here will be necessary, my opinion is things CAN be done to help, lots of past discussion on this, many do not find the right combination of things to help but some do. Good luck, PN is no fun for sure, keep the faith though tons of people recover

    • Linda Livingston September 3, 2015 at 11:28 am Reply

      You need to get a new neurologist. Better yet, a naturopath, or try to find an integrative neurologist. The one you are seeing is not only not helping you, but is taking away your hope.

    • Rene September 3, 2015 at 11:41 am Reply

      Your Neurologist is ignorant of the facts. And FYI : My leg and foot were so severe that it felt like I had been savaged by wild animals. It was very very painful. I did not use any drugs becuase I never wanted to risk any unknown calamity again. My first 1.5 years were a challenge with lots of tears like a sobbing child…..BUT I did get better, and can walk and stand on my feet, on cement, and for long periods of time.. I do still have some deformity in my lower leg, meaning the calve area is much smaller than the other leg, and not developed but flat/stick….but I am not in pain like I was even on Rainy days or damp weather.

      So forget the nonsense the Neurologist said about your recovery and the cause. He just doesn’t know thanks to the FDA and the medical system.

    • Jen September 3, 2015 at 4:27 pm Reply

      F, my symptoms started 2 wks after I finished my 2 wks of cipro. At first I didn’t have the PN symptoms. It started with 1 foot pain then both feet. I’d say the PN symptoms started a few wks later. I had pain in my feet, legs, hands, arms mostly and random places like back of neck/upper back/shoulders etc. It felt like my body was raging war on me. I also had joint pain. My hands and feet would get extremely cold and then hot. I also felt tingling, numbness and electric shock like pain. Sometimes the shocks would be so bad that it would make me jump. I was mostly bedridden during this time. I used to ice my feet throughout the day for the burning sensations. For awhile I had to take Tylenol before bed just to be able to get some sleep. I would say that I noticed the decrease in my PN symptoms around the 5th month or so. I noticed I was only icing later in the day and then not at all some days. None of my doctors believed or admitted that it was Cipro…my primary doctor who prescribed it, 2 ortho specialist, nor the rheumatologist. Don’t let them convince you that it will get worse because they don’t know that! Sorry for such a long reply. Btw, I just reached my 1 yr mark a few days ago. Please don’t ever be afraid to ask any questions…everyone here have always been so very helpful. :)

      • F September 3, 2015 at 6:55 pm Reply

        Thank you Jen, That really helps! For me it started with tingling to one foot, then the other then a skin burning sensation with light pressure like when I’m wearing shoes and socks, walking, standing, you know unimportant stuff like that! LOL! It moved up my legs a bit too but seems to have stopped. Sometimes it’s a cold burn, like ice, so I know what you mean about hot then cold burning.
        I had some tingling in my hands but that seems to have gone..I hope. I have also used Ice off and on. I have been able to keep walking..an act of will power and desperation. And what’s weird and lucky is if I keep my shoes and socks off I can be comfortable to an extent. Things have been changing, not sure for the better or worse. 4 1/2 months out. So far it looks like my stuff is pretty mild compared to yours and many others.
        Thank you for your encouragement and just to know that I can get better is so helpful!
        You are so right about everyone here being so generous and helpful.!

        • Jen September 3, 2015 at 7:55 pm

          F, well it sounds like things have been changing for the better from what you say. :) And just know that the healing isn’t always linear…I’ve had setbacks that would scare me but then the healing would pick up where it left off and continue onward. My husband would always remind me to not compare my healing on a daily basis but to compare it every month or two. Not easy to do when you’re going through it but I realize in hindsight that he is right. :) Don’t lose hope. Believe you will get better and give it time.

        • F September 3, 2015 at 8:34 pm

          It is difficult when all the PN websites say that unless you find a “Treatable” cause that PN gets worse not better. They ruled out all of the treatable causes, by their standards in my case. But they still don’t get the Cipro thing.

    • Lisa Bloomquist September 3, 2015 at 7:03 pm Reply

      I HATE when people steal the hope of others. Telling you that you’ll never get better after 4.5 months of peripheral neuropathy – WTF is that? He doesn’t know that you’ll never get better – how would he know that? What is he basing that assertion on? But to tell you that sure is a set-back. I’m sorry that you heard that. I’m sorry that it came from an authority figure too. Those notions are difficult to fight.

      A friend of mine was told that he would never walk again and that his spine would degenerate completely when he was about 20. He’s now 45 and last I checked was walking quite well.

      Sometimes you have to walk out of those doctor’s offices with a defiant attitude. They don’t know. YOU will defy whatever notions are leading them to their dire predictions. YOU will be okay. THEY don’t know.

      It’s easier said than done, but hang in there, and get mad at those who try to steal your hope. THEY don’t know. YOU are strong and YOU will get better.

      Four and a half months does not equal permanent either. When I was having pelvic pain the docs tried to put me on a psychotropic drug for chronic pain. I was like, “it’s been 3 weeks, can we not call it chronic?” and declined the drug. I’m doing fine now.

      Hang in there.

      Hugs,
      Lisa

      • F September 3, 2015 at 7:31 pm Reply

        Thanks Lisa. It IS HARD to ignore comments from authority figures like that. IT JUST IS!
        The opposite of placebo, as you are aware, is nocebo, the dark side. The Dr. tells a man he’s got cancer and has 6 months to live, odds are he’ll be dead in 6 months. Another doctor tells that same man he has cancer but with help he may live indefinitely, bet he lasts longer than six months no matter what the F@#$ statistics say.

        • Lisa Bloomquist September 3, 2015 at 7:40 pm

          Yup, I’m horribly susceptible to absorbing negativity and taking nocebos personally. My friend who had the “I’ll prove you wrong” attitude toward doctors is certainly my hero in that department. Because I take negativity so personally, and I know others do too, it really pisses me off. Try to ignore it. He’s not a God. He doesn’t know what is going to happen in your body. Your healing abilities are more powerful than either of you have any clue about. And don’t let people steal your hope. Hope stealers begone! :)

  29. Jason September 3, 2015 at 11:06 am Reply

    F, did you get PN basically right after Cipro? Many do, which shows you that the neurologist has VERY limited use sadly, do not listen or trust everything you here from the Medical field, they lack knowledge in many many areas, Floxing is just one of them.

    There were many posts in the past on PN here at FH, I think you seen some of them, it seems many recover in the 18 to 30 month mark, so patience here will be necessary, my opinion is things CAN be done to help, lots of past discussion on this, many do not find the right combination of things to help but some do. Good luck, PN is no fun for sure, keep the faith though tons of people recover

    • Jason September 3, 2015 at 11:08 am Reply

      Damn I guess something happened to website or my computer, sry for the triple post

    • F September 3, 2015 at 12:59 pm Reply

      Jason my pn started with tingling during the last week of a 6 week course of cipro for so called prostatitis and progressed from there. I also got tinnitus . Rene, thank you for the words of encouragement. This the hardest thing I have had to face. And have had to face a lot as a paramedic and recently with family loss.

      • Jason September 3, 2015 at 1:21 pm Reply

        Well there you have it, most definitely from the Cipro, just like 1000’s of others but Doctor’s are just not educated about this, and/or some chose to ignore the facts too.

        Tinnitus is from the Fluorine in the drug, basically Fluoride poisoning causes a whole tirade of symptoms with Tinnitus being just one of them. Its very annoying, I am 95% healed, Tinnitus is the one main symptom left that I have, and I shower in Fluoride water everyday, so to me it is not surprising that I still have Tinnitus. There are some things you can do to help this, avoiding all sources of Fluoride is the most important, I find charcoal and other things that soak up toxins help too, but then every time I mobilize toxins through exercise or whatever it creeps back.

        It is fairly minor for me, I tried a couple other things way back for it but I have so many bigger health fires that I just do my best to ignore it for now (always worst last night and upon rising, otherwise I don’t really notice it and its gone for most part) while I take supplements for other more pressing issues.

        • F September 3, 2015 at 1:39 pm

          Jason you’re right, the tinnitus fades into the background. Fortunately there is no fluoride in the water here. Funny I haven’t had any tendon or muscle stuff….and I hope it stays that way but some night sweats that I thought was from the infection for about of 4 weeks while on the cipro. Now I’m not so sure. Some horrible anxiety that seems like a normal reaction to getting pn. What a mess!! :(

        • Jason September 3, 2015 at 5:39 pm

          Well you are very fortunate with the water situation, that will help your healing in my opinion. Also very fortunate no muscle/tendon stuff, one of the most common symptoms with Cipro. It could actually be MUCH worse believe or not, so keep the faith I believe you will be fine again in time. Avoid Advil, chemicals, drugs and any other toxins you can and this will also help.

  30. Stephanie September 3, 2015 at 3:12 pm Reply

    Has anyone found any benefit in getting a diagnosis from a spinal tap? Please let me know been sick for six months and terrified of a spinal tap

    • Linda Livingston September 3, 2015 at 3:43 pm Reply

      I would find out WHY this doctor wants to do one. I am guessing, like most tests floxies do, it would come back negative, unless there is something else he/she is looking for. At the very least I would definitely get a second opinion before you put yourself through that.

    • Rene September 3, 2015 at 4:48 pm Reply

      Dear Stephanie, That seems unnecessary, and invasive. I don’t see any value in doing that whatsoever! You do not have an infection…..or need to check for bleeding around the brain. Please explain what you mean by “sick”.

      • Stephanie September 3, 2015 at 5:38 pm Reply

        So I was given levequin and flagyl then just flagyl then cipro in a two month span of time since then I have been dizzy my left side of my face droops and it moves to the right sometimes. I have pain in my feet legs and hands on and off I have developed a form of turrets where I just say da da da da randomly, I sometimes get confused and have to remind myself what I was doing. I am on disability right now because I can’t work. all after I was given all those drugs for a stomach ach. I can’t get a dr to diagnose me they flip out when I mention fts. I was hoping letting them do a spinal tap would clearly point out that I am sick and that I do in fact have it. It’s been so hard and I am so scared that I will be like this forever. No doctor is willing to say I was given evil medication.

        • Jason September 3, 2015 at 5:43 pm

          Even if a test came back positive, they will defend Cipro and all other drugs until they are blue in the face, they too have been lied to by Big Pharma, even though some of them are smart enough to know better.

          I agree with Rene and Linda on getting that done, however the big question is, which problems did you have BEFORE Cipro?

        • Stephanie September 3, 2015 at 5:57 pm

          Hey Jason,
          I just had a really bad stomach issue before given any medication. All the symptoms I listed above all came after given the pills. No doctor will help me not even naturopaths. I am shocked they all say oh no it can’t be that. I am just at the end of my rope. I have changed my diet got a little better went back to work for a while then had to go back on disability because I got much worse. Even doing a puzzle at home makes me tired but I force myself to do stuff around the house I force myself to walk even when it burns.

        • Lisa Bloomquist September 3, 2015 at 7:09 pm

          What a bizarre system medicine has become. A patient who is clearly sick and not functioning well reports that they are, indeed, sick, and the docs say “you’re fine” because the tests don’t show that the patient is sick. Um…. no. That just means that the tests are inadequate.

          I haven’t heard of anyone getting validating results from a spinal tap. It seems awfully drastic and invasive too.

          Have they checked your urine for high histamine levels and/or high oxalates? Those are tests that may be validating – and if either turns out positive you can make diet adjustments accordingly. Peeing in a cup seems a lot better than a spinal tap too. :)

          Regards,
          Lisa

        • Stephanie September 3, 2015 at 8:29 pm

          Thank you I will try that. Yeah it sounded insane to do a spinal tap and my doctor is too scared that I do have it maybe I just need to find a new doctor.

        • Linda Livingston September 3, 2015 at 8:15 pm

          Well, I don’t know about the spinal tap, but MOST diagnostic tests come back negative, because, as was pointed out by Dr. Todd Plumb this is a functional problem rather than a structural one. I am afraid it would only add to their belief that there is nothing wrong. Really, what you need to do is find an integrative doctor or a naturopath, esp one that has treated or at least HEARD of FLQ toxicity or cipro toxicity. (My ND has now treated a half dozen! Tomorrow I see an accupuncturist and HE has a patient who had extreme muscle waste.) I just hate for you to keep beating your head against the wall with the naysayers. I went through 12 doctors before I saw my ND and in restrospect I wish I had gone much sooner.

        • Stephanie September 3, 2015 at 8:33 pm

          I am going to a naturopath now and tried another both freaked out when I mentioned floxie. My nerurologist says probably floxie but he is on vacation and hard to talk to. I am going to try a toxicologist next. It’s a crazy world when you have to look for a doctor who has the balls to tell you the truth.

        • Jason September 3, 2015 at 8:30 pm

          Yes Linda has the right idea here. Even IF a Doctor could confirm Cipro did the damage, take one guess what their solution would be (most what not have a clue what to do first off)? Yes that’s right, more drugs of course! :( Odds are of course that those would only make you worse off. Doctor’s are either ignorant or in denial about the true risks of these drugs, worse is some knowingly ignore the facts.

          Linda was in very bad shape herself after these nasty drugs and though it was costly is getting her health back (good job!), really we can’t put a price on health because without it we have nothing at all. Diet is crucial, but so is ridding the body of toxins especially the damn drug, as Linda says a good ND can help here with some “natural” methods, not more chemical cancer causing concoctions from the Medical system.

  31. Jen September 3, 2015 at 4:40 pm Reply

    I have been meaning to post but just haven’t gotten around to it. I am 1 yr and a few days out and while I can’t say that I am 100% recovered I am able to get back to “normal” living. Before being floxed I was a gym rat and post floxed I became pretty much bedridden initially for about 6-8wks. I had seen 2 ortho specialists and a rheumatologist and misdiagnosed. It wasn’t until I stumbled on this website that I realized that I’d been poisoned by cipro. I want to thank everyone on this website who have helped me along the way with answers to my question, comforting/supportive words, etc. :) THANK YOU SO MUCH! I am now able to get back to the gym a few days a week…not at the same level as I was pre-flox but still I am grateful to even be able to go the gym and work out. And I feel like I’m still improving everyday. This website is a blessing! :)

    • Rene September 3, 2015 at 4:42 pm Reply

      That is WONDERFUL NEWS!! God Bless you, and yes you will continue to recover!
      That made my day to hear that you are doing so much better!!!

    • Jason September 3, 2015 at 5:46 pm Reply

      That is awesome Jen, maybe consider writing up a brief story for Lisa to add to the website, the more healing stories we have here the better, people really need messages of hope like this, and of course any helpful tips of things that might have helped. (I too need to write up a story one day….)

    • Stephanie September 3, 2015 at 5:58 pm Reply

      Wonderful news so amazing!!!! I am truly happy for you. Gives me hope. 😜👍😉

    • Lisa Bloomquist September 3, 2015 at 7:10 pm Reply

      That’s WONDERFUL, Jen! Thank you so much for the great post!

      If you ever want to share your full story on here, please let me know. :)

      Best,
      Lisa

    • Linda Livingston September 3, 2015 at 8:17 pm Reply

      YEA!!!!!! That’s great. Thanks for letting us all know.

      • Jen September 3, 2015 at 8:18 pm Reply

        Thank you Linda. :)

  32. Jen September 3, 2015 at 7:57 pm Reply

    Thank you Rene, Jason, Stephanie and Lisa!

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