Welcome to Floxie Hope

Hope Clouds

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

An excellent support group for those suffering from Fluoroquinolone Toxicity can be found on facebook.  Here’s the link to the group – https://www.facebook.com/groups/floxies/

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

Please support Floxie Hope -

Click “Support” to contribute to Floxie Hope. Thank you!

Thank you!  More info can be found HERE

2,349 thoughts on “Welcome to Floxie Hope

  1. Peter August 26, 2014 at 3:41 pm Reply

    So more bad news. I just started my job again and after 2 days of standing and teaching, both of my ankles are hurting terribly again. This is the first time for them since the June 2013 -January 2014 episode. I’m not having any luck in getting better. I thought I beat this ankle thing too, guess not.

    The other newest symptom I’m noticing more and more and can’t really say when it started is in my right wrist. In suddenly feels like someone stabbed me with a needle. The pain is intense and goes away instantly though. I had it happen today about 30 minutes ago. It was so bad that I ended up yelling loudly and jumping, scared the crap out of my girlfriend. Has anyone had these weird feelings?

    • rene August 27, 2014 at 4:43 am Reply

      Hi Peter,
      The first 2 years were the most challenging for me, and I too was very surprised and alarmed that new symptoms cropped up or suddenly manifested. The overall impression was that the more I was able to become active even in minor ways would reveal areas that were unknown to me. However it was still many upon many baby steps over the course of 3 years that I made the progress forward to be able to stand and walk, and eventually for longer periods of time,, and longer periods of time on cement as well.

      The best thing for you at this moment is to soak in Epsom Salt, or at the very least your feet/ankles. The other is to wear very comfortable shoes and apply mineral oil from Anciet Minerals in the mornings and again during the day on your feet and ankles. Whenever possible of course sit, and get off your feet.

      • Josie August 27, 2014 at 7:53 am Reply

        Hey you guys I have a question. :) when your eyes are slightly dry or just dry do you Get a ghosting effect from things? Like not double vision exactly but kinda like a ghosting effect around things?

      • jimmy August 28, 2014 at 9:34 am Reply

        hi rene, I am 15 mos out and have been doing pretty good. minor neuropathy in my feet, but tendonosis in my gluteus minimus and medius which is making walking difficult. So I’m trying to stay put so I don’t make things worse. Then last night, I had what can only be described as a burning in my arms and legs, a terrible night sweat, and i would wake up every hour or so as the pain was pretty much unbearable. I did forget to take my magnesium yesterday, and in the evening, took zinc just before bed, and also ate a small slice of melon after dinner which was very sweet –these were the only ways I strayed from my normal routine/supplements. I assume this was some kind of neuropathy and this morning, i hear a little more “popping” than usual. was i just going through heavy oxidative stress/ROS and or neuropathy? and any ideas if i Caused it with the melon or supp? and is there anything i can take to calm it if it comes back? is it gabba related? i do have some d ribose and kavanase my NP just prescribed and one of which is supposed to support gabba. should i do this? any thoughts/explanations/suggestions would be much appreciated. ps..even a little carpel tunnel feeling in both forearms this morning so must be nerve related?

        • Melanie Kemp August 28, 2014 at 9:47 am

          Jimmy.
          funnily enough I had some cantaloupe a few nights back and the next day. (Yesterday) was horrible. Stinging all over.Today not good either but mildly better.

        • rene August 28, 2014 at 3:07 pm

          Hi Jimmy,
          I am sorry you are hurting and this is kicking up…..You are always going through oxidative stress, this continues, and because it is chronic it depletes your glutathione. The strange occurrences you describe are just more of what you have already experienced. 1.5 months for floxed folk is considered the beginning give or take 8 months or so. Besides the magnesium baths, trans-dermal magnesium oil applied to local areas…the only thing I can think of is to do a vitamin C drip. That worked well for me…but not an absolute thing as far as relief. It did provide me relief…..you have to try to find out. Stay well hydrated….not forced but keep drinking water throughout the day. Rest, and dont fight it or stress about it. You kinda have to surrender during these episodes, which is what I did, and spent that time is as pleasantly as possible…resting watching happy movies, or sitting outside in the park when cool…..not be closed in by myself.

          FYI: read labels of all supplements if there is more than (1) ingredient. If you are taking anything to increase circulation & nitric oxide and it has the ingredient Theophylline – stop taking it. Will make you very much worse. However will subside after about a week to a month. Theophylline is a “methylxanthine. Methylxanthines are metabolized by cytochrome P450 in the liver.

          My overall sense is that detoxification is an issue…and cycles of mini crisis are the outcome. this is not a straight line upward in improvements its a jagged line with deep valleys and slow upward momentum.

        • jimmy August 28, 2014 at 3:33 pm

          hi rene, thanks so much for your message. i’m actually 15 months out, not 1.5 :(
          my story is that I had a very rough first 6 months, then at about 7 or 8 began to recover. by 8 months out I felt 85% recovered. most pain and neuro went away for many weeks, then at month 9 or 10 i over did it with exercise as I was pushing really hard (wanted my old self back) and i caused a relapse. and this time, i went downhill fast and had more muscleoskeletal issues than before. the neuropathy stuff is just starting but i am definitely on a bit of a downward spiral as new symptoms keep popping up, but they usually seem to come and go. the only thing that is taking some time to go is the tendonosis. which I understand can take months or years. anyway, i appreciate all your suggestions. would you mind emailing me at jimmybruhl@gmail.com and i could ask you just a couple other questions. it would mean a great deal to me. thank you.

  2. Michael Teeter August 27, 2014 at 2:02 pm Reply

    Well I went to the neurologist and she said that It is not neurological. She referred me to a rheumatologist. Huh that is exactly what I wanted in the first place. I was prescribed a low dose of Neurontin for pain. Anyway another day another experience.

  3. Mark August 28, 2014 at 5:01 am Reply

    Gtfo.
    Using an ad-bot on THIS site?
    Wth?

  4. Josie August 28, 2014 at 7:24 am Reply

    Hey you guys! So I have a symptom that’s always been there lately, it’s kinda weird to explain I guess! So like, if I go in my bathroom at night (only at night I see this which is strange maybe it’s more pronounced cause I’m tired and what not) but when I look left to right, or whatever I get two big huge black lines in my vision that are just huge. and they kinda flicker I guess? And what else I have always had (always thought it was due to the static) is during the day if I look at something It looks like it’s vibrating slightly and my bottom vision and side vision have a noncolorless flash in it, it’s not a flash but it makes everything look like it’s vibrating/flashing in my vision. and I have been REALLY REALLY REALLY stressed out this past week and a half.. and last night I went into the bathroom and obviously I test it out to see if it’s still there or whatever, and I looked and there was a lot more lines than usual and it stood there in my vision for maybe 20 seconds or less.. and I don’t know if my visuals are getting worse or if my anxiety is creating all of this and making it worse? Can someone please shed some light on over here? I was up all night walking around testing my vision and freaking out. I was doing so well and I can’t help it! I don’t think it’s got anything to do with my birth control considering I’ve only been on it for like two days.. :P I’m so scared things will get bad that eventually things will look like theyre shaking badly like words and stuff (though that’s not happening… hopefully it doesn’t) I have to graduate this year and I plan on moving away from my family and I’m absolutely terrified of things getting worse… :( Can someone shed some light over here? Do you think my anxiety could be making me freak out more about it? I’m gonna try that aplha lipioc acid thing that Sheryl suggested but I’m kinda scared about it… I don’t wnat this to get bad where I can’t drive. :( So scary..

  5. Heather Rayne August 28, 2014 at 9:34 am Reply

    Got a call from the GI RN. My liver enzymes are within normal range!! Horray! She said that the Dr is sure it was all from the antibiotic. She said tho that I could go to an allergist and be tested. I had no idea they could do this. I doubt I will because I am not sure what that would entail but it sounds shady to me. She said they won’t need to see me again until I am 50 and need a colonoscopy. I told her would await anxiously lol.

    Chiro said he notices significant improvement in my joints and muscles. Just need to keep up with therapy and hopefully I will one day be back to normal…or maybe if I am lucky – even better now that I won’t be losing so much blood each month.

    Worst 6 months EVER!!! I can’t want for more positive changes.

    • Angie August 28, 2014 at 10:08 am Reply

      Heather that is great! I went to PT yesterday and it went well. We did light stretches. Are you seeing a regular chiropractor? The ones I’ve been calling only deal with car accident related injuries.

      • mark August 28, 2014 at 11:02 am Reply

        Angie how far out are you?

        Mark

        • Angie August 28, 2014 at 1:00 pm

          Mark I am 10 months out. Unfortunately in the very beginning my doctor wouldn’t acknowledge that my symptoms could have been cipro related. Although I’ve never had joint problems prior to taking cipro. So I’m getting a late start with supplementing and everything else.

  6. Melanie Kemp August 28, 2014 at 9:55 am Reply

    Rene
    could you possibly E mail me if you get time.
    I feel like im going down fast.Its a repeat of 2010 and im really lost here
    melglove@hotmail.com
    Thank you

    • Josie August 28, 2014 at 1:27 pm Reply

      Hello you guys. I went to a stir where they sell supplements and bought this supplement called ocu support it’s suppose to help with visual things lol and also liver detoxifier and regenerator lol.. Anyone ever hear of these or try them?

  7. Josie August 29, 2014 at 6:25 am Reply

    Heather I hope you do see some positive changes as well :)
    Mark, how have you been doing? :) I hope you are all doing well.
    I plan on going to church this sunday! I haven’t went all summer and I really want too! (:
    My visual disturbances are a lot better today and I think they are because I was so stressed out yesterday and also I missed a birth control pill! Hormone changes.. ha you wouldn’t believe how scary it was. The walls looked like they were moving!! haha! (:

    • Angie August 29, 2014 at 6:45 am Reply

      Hi Josie. Glad to hear that your visual is much better today. Stress and anxiety plays a major role in the functions of our bodies. Be well!

  8. Michael Teeter August 29, 2014 at 8:26 am Reply

    Hello Again everyone,
    When I went to the Neurologist she said I do not have Neuropathy. She said it is a false Neuropathy cause by inflammation pressing on my nerves. Oh I also wanted to tell everyone who has asked me on my CRP levels dropping that I asked my ND Doc and he said the IV Glutathione that I was one lowered my CRP. Along with the Boswellia nd Cat’s Claw that I was taking. He read my data from the 23andme site and it shows I have mitochondrial issues and said I should take Co-Q 10.
    I also sent in all my SSI paper work and I am waiting on that. Just FYI. I will be doing much more research this weekend to see if I can find anything helpful.
    I wish everyone a wonderful weekend.

    Mike Out.

    • Sheryl August 29, 2014 at 8:37 am Reply

      That is great news as I don’t have much neuropathy at all. I agree with the cat claw and Boswella as I take it in a supplement called Candikill which heals leaky gut. Joint pain is slowly subsiding only slight pain for me now so happy for you. As long as I take me supplements I am inflammation and joint pain free…

  9. Carrie August 29, 2014 at 9:03 am Reply

    What is the explanation/theory behind the loss of flexibility? Since being floxed I can no longer stretch, I can’t sit “criss cross applesauce” or reach down to touch my toes. At one point I had no problem stretching or bending forward and touching my hands flat to the ground. I also have extreme pain in my “toosh tendons” – the area near your “cheek folds” on both sides. It has been super painful, sore, and the nerve/burning pain is horrible. That part never seems to get any better… I have a very hard time sitting and can’t sit on any hard surface whatsoever.

    • Michael Teeter August 29, 2014 at 10:47 am Reply

      Well it all depends what the cause of your your loss of flexibility. I can not cross my legs anymore either. The main cause with me is severe inflammation. Here is an article I just read. Very interesting when you read about the mitochondrial connection.

      http://www.lef.org/protocols/health_concerns/chronic_inflammation_01.htm

      • Heather Rayne August 29, 2014 at 10:53 am Reply

        I have the same issues. My Chiro said that if he didn’t know better, he would have thought I was just in a very bad accident. Every muscle is (or was) nearing spasm. Joints inflamed and nerves shot. Also, I had adhesions throughout my abdomen. I have been having physical therapy/chiro therapy and scar tissue release therapy. I go twice per week and have noticed considerable different. He said it is all do to the systemic toxicity from the antibiotic. But I have no idea HOW it technically happens.

        • Michael Teeter August 29, 2014 at 5:14 pm

          Heather I met a former Floxie she had it for 7 years and she got better by going to a Chiropractor and an Acupuncturist and this is weird but she took aspin which I know is an NSAID but she is better now, She would go too the Chiro first then go to the Acupuncturist and drink lots of water.

          I am going to both but I am leery of the asprin for obvious reasons. Just FYI I hope you feel better.

      • Carrie August 29, 2014 at 10:56 am Reply

        it feels as if my entire body is inflamed or I have lactic acid, but have not exercised. My CRP tests all came back normal – so there is nothing showing actual inflammation.

      • Michael Teeter August 29, 2014 at 11:16 am Reply

        CRP is used mainly as a marker of inflammation. I think if I can remember it is cause by the liver or kidneys. People ho have arthritic conditions have or may have high levels of CRP. Inflammation is a protective attempt by the organism to remove the injurious stimuli and to initiate the healing process and Inflammation can be classified as either acute or chronic. It is our immune a reaction in our immune systems often connected to something foreign in the body like infection etc.

        I know of people who have inflammation but do not have a CRP. People who have tendinopathy and tendinosis don’t always have a high CRP as far as I know.

        • Josie August 29, 2014 at 11:23 am

          Visuals are a lot worse latel.. I getting double vision and flashes in my eyes when I look left to right. I think it’s the birth control and I have after images too… :(. So in stopping the birth control and hoping things subside. :)

        • Carrie August 29, 2014 at 11:47 am

          Michael, thanks for the explanation.. it makes sense entirely. I am assuming then the pain I feel – inflammatory type pain is either tendinosis or tendinopathy, neither of which any of the doctors I have seen have discussed with me. They can’t find “anything wrong.”

  10. karen August 29, 2014 at 12:36 pm Reply

    I am 7 months out & now only have slight rib ‘catches’ & burning calves & ankles. Just started having very itchy skin at creases in elbows & backs of knees for few weeks. Hard to tell what’s from floxing & what’s something else. Anyone else experienced that before?

  11. Jane August 29, 2014 at 12:37 pm Reply

    I was floxed about a year and a half ago. Today I went to the dentist due to a bad toothache, and he said I had an abscess requiring antibiotic treatment. Without informing him that I had been floxed, which from what I’ve heard seems to cause too many doctors to raise their eyebrows and just write the patient off as a crank, I simply told him that I’m allergic to most antibiotics except for the old-fashioned ones like tetracycline and penicillin. He ended up giving me a prescription for amoxicillin.

    This is my first time having to take another antibiotic after being floxed, and I am nervous about it. Prior to my floxing, I had no issues with antibiotics at all and even tolerated several courses of fluoroquinolones over the years, before the final one that left me with serious tendon, muscle, and nerve damage. I’ve taken amoxicillin in the past without incident, but now I don’t know what to expect. It’s like I don’t have the same body anymore. I used to be very hardy and quick to recover from injuries or illnesses, but now my system is just limping along.

    I intend to take the amoxicillin. I saw the x-ray. The abscess is pretty bad and has even caused some bone loss. It must be treated. I guess I’m just sort of venting my fears before taking the plunge and popping the first pill. At least I’m not being required to take a stronger antibiotic.

    Please pray for me. I’ll let you know how it went if I survive it, LOL. I’ll admit I’m a bit angry that I have been reduced to being afraid of this.

    • Jane August 30, 2014 at 5:42 am Reply

      I just took my 3rd dose of amoxicillin. So far, no signs of any negative side effects. I seem to be tolerating it as well as I did before being floxed. I’ll let you know if anything changes.

      I imagine this will wreak some minor havoc with the good gut flora I’ve worked so hard to reestablish since my floxing, so I’ll make it a priority to rebuild friendly bacteria after the course of amoxicillin is finished.

  12. Michael Teeter August 29, 2014 at 5:09 pm Reply

    Carrie and everyone,
    The main problem I see is that you have to be treated as an individual because we all react differently when we are poisoned with an FQ. I think I have found out how my body and immune system is reacting. One thing that is positive is that our body is reacting in a way for self preservation. Often it is over kill and it acts like some kind of auto immune disorder.

    The first thing to do is get this stuff out of our body the be st we can. Magnesium and vitamin C and glutathione Liquid chlorophyll etc.

    Second you have to deal with the pain and inflammation. I personally take acetaminophen and Cat’s Claw and Boswellia and Tumeric. Then I chenged my diet to the anti inflammatory diet.

    http://www.drweil.com/drw/u/PAG00361/anti-inflammatory-food-pyramid.html

    I also run a rife machine. It seems to help. I take a multivitamin. I am taking a low dose od prednisone 5mg that my MD prescribed I am now taking a low dose of Neurontin 300mg 3 times a day that my neurologist prescribed to me.

    I use DMSO on my knees and ankles and I use Cryoderm and soothanol for external pain relief. I also use a tens machine and it helps.

    Went ahead and had a 23andme DNA test run and my ND read it and it is giving me something to work with.

    I am going in for more labs next week running an ANA an IFA a Fed rate and an ANTICCP and maybe another CRP.

    I keep soaking in Epson Salts when needed.

    I hope everyone else is finding something that works for them.

  13. Michael Teeter August 29, 2014 at 5:19 pm Reply

    Hey I also went to see my ND and he ran his PEMF machine on me and I felt great for several days. For those who do not know about this machine and how it works here is a link that explains it for you. I think I will run this for a month and see if it helps.

    http://www.doctoroz.com/videos/pulsed-electromagnetic-fields-how-they-heal

  14. Josie August 29, 2014 at 5:38 pm Reply

    Can someone message me on facebook? Josie Lynn Klemett.. I’m very scared. :(

    • Michael Teeter August 29, 2014 at 8:16 pm Reply

      Hey Josie I did not know you are in my state. Hey I just messaged you. Hope you are feeling better.

    • karen August 29, 2014 at 9:03 pm Reply

      Josie, wasnt sure how far out u are from taking cipro, but my first few months were awful, & I had black floaters in my vision. The anxiety initially was awful, & i worried about all my symptoms constantly & was miserable. I promise it does get better. It helped me to be around other people & be outside as much as possible. I think when ur anxiety goes down ur symptoms lessen. This has been my experience. Still not healed, but better. Way better. Try & get lots of sleep. Time definitely helps :)

    • Jane August 30, 2014 at 6:27 am Reply

      Josie, my heart goes out to you. Intense anxiety and panic attacks are documented side effects of fluoroquinolone toxicity, and when you combine that with the crazy physical side effects, the terror can become astronomical. Just know that it gets better with time. Take a deep breath, take good care of yourself, and keep telling yourself that this is only temporary.

      To be on the safe side, you may wish to see an opthalmologist about your vision disturbances to rule out any retinal issues.

      • Angie August 30, 2014 at 8:35 am Reply

        Hey Josie. Hang in there. I know how you feel. When I was at work yesterday my anxiety was out of control. Anyway please stay strong. It will get better sooner than later. God bless and be well.

  15. Debs August 30, 2014 at 1:31 am Reply

    The fluoroquinolone antibiotics carry as class effect ADR of connective tissue degenerative damage , this applies to every single person who has ever taken them floxed or not ( yet) floxed . This damage can range from slight softening of these tissues, through to complete destruction of the same. The damage to these tissues is includes the tendon cartilage/ ligament/ fascia all collagenous connective tissue in the body . One VERY important fact to keep in mind In respect to the tendons is that we as a whole do not suffer from TendonITIS ( inflammatory ) as is often assumed , but instead TendonOSIS Degenerative ) sometimes with slight inflammation at first , & this difference is extremely important to become aware of as as any PT which is attempted MUST be adapted to this fact When seeking therapy PLEASE make sure the therapist KNOWS this, as the treatment for both is not the same., If we get the wrong therapeutic input i.e. for tendonITIS, this can often cause further damage to these tissues, which can then set us back in our healing sometimes for a long time.

    The class effect ADR of connective tissue degenerative damage means although none of us likes to hear it, that our bodies in respect of the connective tissues are just not the same after taking fluoroquinolone antibiotics & we must always be careful to try to avoid further injury. Also connected is the fact that wounds often take a disproportionate amount of time to heal from, I have been floxed many times over 25 years & having been part of the furniture so to speak have seen way too often, people thinking they have healed from floxing far sooner than they actually have, and them then rushing headlong into exercise at intensity, not knowing about the mechanism of damage to the connective tissues then end up wondering what the hell has just hit them, with a major relapse, feeling as if they have been refloxed. Please ALWAYS build up very slowly in respect to any exercise attempted, & LISTEN your body at all times. keep in mind that the Connective tissue injury which is universal in those who have taken fluoroquinolone antibiotics as I mention above, is NOT your usual tendonitis etc, but a completely different animal altogether .

    • Josie August 30, 2014 at 5:52 am Reply

      I’ve been getting an increase in afterimages lately and stuff.. :( stopped the birth control. Michael, I never got a message from you. You should see a picture of a girl showing two pictures wearing a belly button shirt hahaha! :)

      • Jane August 30, 2014 at 6:51 am Reply

        Josie, I saw your earlier post about your sudden onset of flashers and floaters. If the issue is getting worse, I think it would be a good idea to see an opthalmologist as soon as you can, just to be sure that everything is ok with your vision. (Please note that you do NOT want to see an optometrist. Only an opthalmologist is qualified to diagnose you.)

        Don’t panic about it, just promptly make the appointment. Seeing an opthalmologist and receiving a proper diagnosis will also help to put your mind at ease.

  16. Destruida los Restos August 30, 2014 at 6:35 am Reply

    Never trust anyone who gives you food, even if they promise about what it conatins.
    Fir 45 years I’ve been vegetarian, for five years I’ve been recovering from FQtoxicity. This summer i was stronger and livelier and weller than I’d ever hpoed – it was marvelous. Then I moved to this house. I explained to the neighbou¡ts all about FQs. I also said I hadn’t eaten meat for 45 years and didn’t want to eat dead animals. A neighbour, a “sweet old lady,” brought me some soup. She assured me again and again that it was only vegetables. I thought there was a funny tstae, like chciken, asked again and she reassured me. It would have been churlñish to refus eor throw it away sectretly, so I ate it.
    Since then, have been getting iller, weaker, tireder, more confused, have electrified arms and hands, feel very sick, dizzy, arms and lesg heavier each day, sight dreadful, tinnitus horrendous.. more and more symptoms.
    FIVE YEARS and a bowl of soup has wrecked me. And I’ve eaten a piece of a cadaver. She has a picture of the “blessed virgin” and a rosary above her bed, but she lied to trick me into acting agaisnt my deepest principles and she’s poisoned me into the bargain.
    I can’t recover again. What a stupid ay to finish.

    NEVER eat anything a stranger gives you. Never trust what they say about it.

    • Josie August 30, 2014 at 7:23 am Reply

      Jane. They’re not lightning flashing like you’d see with a retinal detchatment. They’re like.. After image flash things.. Hah. Please pray that this really is ijst the birth control and nothing more !

    • Mark August 30, 2014 at 7:48 am Reply

      That sucks,

      I wouldn’t blame meat though, just not organic ingredients all together.

      Meat in the right quantities is important and healthy imho.

      Mark

      • Destruida los Restos August 30, 2014 at 8:13 am Reply

        If even a “floxie” doesn’t undrestabnd what i’m aying..
        The meat had been dosed with FQs, Mark. The Fqs have re-toxed me.
        AND I’ve eatebn a piece of dead body of an animal that had been tortured in life and in death.
        But it’s the FQ in the meat that’s brought back all my symptoms and worse each daya.

        • Mark August 30, 2014 at 9:04 am

          Yeah as I said “non-organic ingredients” aka antibiotic containing meat and pesticide containing rest.

          Mark

        • Catherine August 30, 2014 at 11:36 pm

          Destruida, how are you today?
          Although your anxiety will exacerbate things, I don’t believe your symptoms are all in your head. I also think it’s entirely possible to be re floxed due to FQs in meat – some people are more hyper sensitive to them than others. Are you in touch with Erin Wilson? She had the same thing happen to her – doing well again now, however.

        • Melanie Kemp August 31, 2014 at 9:22 am

          Catherine
          youre right.We are all very different and its absolutely true that it may not take much to reflox a person.
          I guess I kinda discounted that with my previous comment.After getting well from floxing I pretty much ate whatever for several years with no problem but for some of us thats not the case.
          just like my flare up is now into month 4 for no apparent reason that I can think of other than a workout program I started.
          There’s no ryme or reason to it….quite baffling.And thats what makes it such a difficult illness

    • Jane August 30, 2014 at 8:26 am Reply

      I’m so sorry this happened to you, and I truly pray it’s only a temporary setback. Please don’t give up hope.

      You are correct about not trusting people who give you food, especially if they don’t adhere to your dietary ideology. I learned long ago that people are certifiably insane when it comes to food, due to the silliest thing, the fact that I don’t have much of a sweet tooth. I can’t even begin to tell you the number of times I’ve had someone literally float a cookie or some other sweet treat in front of my face within inches of my nose after I said “no thanks” when the treat was initially offered. For whatever strange reason, a lot of people just are not happy unless you’re eating what they’re eating.

      I don’t think your neighbor intended to belittle your beliefs or do you any harm. Most people don’t understand anything about floxing and have a hard time believing it even after you’ve explained it. I could see my grandmother doing something similar, making you her prized veggie soup with a bit of chicken that everyone raves about, ignorantly thinking that the little bit of chicken wouldn’t hurt you.

      I read about a severely floxed man who recovered then had an acute reaction to eating quail. He had been told by a family member who bred and raised the quail that it was safe to eat, only to have the relative later fess up to giving his quail regular small doses of fluoroquinolone antibiotics. The relative didn’t think the little bit of antibiotic residue would do any harm, so he made a unilateral decision to give false assurances instead of full disclosure. The man who was refloxed by the tainted quail was not set back to square one though. At first he thought he was, but he ended up recovering from it much more quickly than he recovered from his initial floxing.

    • Lane August 30, 2014 at 8:32 am Reply

      Hi Destruida,
      I would urge you to please re-look this situation, you cannot be sure there was meat in the soup, nor can you be sure that anything in the soup contained FQs…look at this reasonably…weren’t you suspicious of the soup to begin with? So don’t you think your mind could be recreating the symptoms based on this suspicion? Let’s not forget the mind-body connection here…it is more damaging to think you have been re-floxed than believe that your mind is recalling the floxed state. We have all be deeply traumatized by the FQs and deeply sensitized, I do not believe that you have been re-floxed, but your mind is rather re experiencing the symptoms based on your anxiety over the soup and your past anxiety – would not this be a more likely explanation for your symptoms? I am simply urging you to see this holistically.

    • Melanie Kemp August 30, 2014 at 9:30 am Reply

      Destruida
      I recovered after 18 months and because I didnt know what happened to me I went on with life eating whatever I wanted which included meat.Ive been great for several years and only this year am I having a terrible flare up from which I feel I wont recover.I dont know.Im at a really low point now and very sick.
      I tend to think these flares happen just because. ..maybe it was just our time.
      I dont know.If it was meat then wouldn’t I have gotten sick way before now?
      Im sorry this is happening to you to.
      Its bad to go through it once never mind twice

      • Catherine August 30, 2014 at 9:51 am Reply

        Destruida, what a totally shitty thing to happen! I’m so sorry, after you were doing so well. I have heard of a number of people who were re-floxed after unknowingly consuming non organic meat. They did all get better again – and quicker than the first time round, so please don’t give up hope. Sending you positive, healing thoughts all the way.

    • Michael Teeter August 30, 2014 at 9:59 am Reply

      Yeah I am with everyone else. It was not the meat. Maybe the water was fluoridated or as you said FQs in the meat but I doubt or as Mark said pesticides in the veggies. But if you drastically change your diet it could cause an adverse reaction. Just FYI everyone GMO veggies can be really bad and the main companies behind these are big Pharma and our honey bees are disappearing because of them.

    • Lisa Bloomquist August 31, 2014 at 7:53 pm Reply

      I’m so sorry for both the betrayal of trust and the set-back, Destruida! To be hurt by someone not being upfront with you is so violating and horrible. I’m so sorry that this happened to you! I hope that you recover your strength and energy to the level that it was before you had the soup soon!

      • Destruida los Restos September 1, 2014 at 12:49 am Reply

        Thank you Catherine, jane, Lisa and – I think I’ve missed a name, sorry. It’s really bad – arms numb nad useleess but electric, sihgt blurred, tinniutus and can only shuffle slowly round the house. stauts take ages. Worst is the dementia that’s come back really badly. All getting worse eaah day. I asked her three times – it never occiurred to me she’d lie, sweet old lady. Ribs hurt, nightmares. Keep finding myself sitting on the bedspring, rocking and rocking. What a stupid trick. I moved recently, no deliveries here and no-one to get me shopping.

        • Catherine September 1, 2014 at 4:39 am

          Destruida, do you live in the UK? If so, is there anything I can do to help with regards to shopping etc?
          I wonder if your neighbour genuinely thought the soup was vegetarian? People are amazingly ignorant about what constitutes a vegetarian diet. People describe themselves as “vegetarian” when they eat fish, or items containing meat stock. She may have used stock in the soup, but called it vegetarian because it did not contain any actual meat. I realise this does not change the effect it has had on you. I just can’t imagine why anyone would deliberately give someone meat against their will.
          The psychological symptoms are horrible at first. I’m still having episodes like you describe now, although much less frequently than before. I do feel for you so much. If there is anything at all I can do to help, please just say.

        • Melanie Kemp September 1, 2014 at 7:11 am

          Destruida
          I feel for you.
          im going through this again after several great years.
          It seems we are never free from it even when we think we are.
          I to have the brain fog which is the worst for me.
          Today my skin is stinging and I ache badly.
          its frightening

        • Sheryl September 1, 2014 at 8:34 am

          Hope all is well. I am doing so much better now. I wish everyone luck with recovery. I may be on a lot of supplements but I feel 90% normal. I can practically eat anything but I never did a lot of sugar. Did a lot of detoxing and treatments which I think helped a lot. I also think I am doing much better as after 4 months of not having a menstrual cycle it has return with no pain thanks to msm. If I have a backache I drink baking soda and lemon juice to alkaline. Joint pain subsiding as well. My cure is and always will be candida. I am now only taking my supplements twice a day and I feel fine doing this. You all will get better as I have I believe the toxins whatever they may be need to with themselves out your muscles and this is the reasons for more symptoms. If anyone wants to contact me and I will definitely let them know how I beat this… 9 months floxed and no getting my life back :) email: javay4395@gmail.com

        • Michael Teeter September 1, 2014 at 7:57 am

          Destruida,
          I am sorry you are going going through this. Your reaction reminds me of my friend who has celiac disease. If she just gets a hint of glutton just a trace she feels she is on the shady side of death. My advice is not to focus on her lying or whatever. I would focus on you learned something and you will never let that happen again.
          I am very careful of what I eat.

  17. Michael Teeter August 30, 2014 at 12:45 pm Reply

    Boy am I craving seafood!

    • Melanie Kemp August 30, 2014 at 12:52 pm Reply

      http://www.exhibithealth.com/natural-knowledge-base/health-benefits-of-pau-darco-tea-516/ pau d’arco tea. 

      This looks very interesting.
      Just send hubby off to get some

      • Melanie Kemp August 30, 2014 at 12:54 pm Reply

        Guess it didnt add the link.
        anyways
        pau d arco tea

        • Josie August 30, 2014 at 5:42 pm

          Hey you guys! I’m buying some artificial tears for my dry eyes:).
          Any suggestions?

    • Jane August 31, 2014 at 4:32 am Reply

      After being floxed and doing a ton of research into meat and fish farming practices to try to figure out what I could safely eat, I stumbled across a miracle seafood. Though it was so common, it was always in my face, I had completely overlooked it as an option, until it came up time and time again in my searches, lauded as an amazing superfood, and it’s ideal for floxies. This miraculous superfood is sardines.

      Those cans packed full of lowly little fish that most of us snub are a powerhouse of nutrition. They’re an excellent source of omega 3 fatty acids, coenzyme Q10, magnesium, calcium, vitamin D, vitamin B12, and a bunch of other vitamins and minerals. Because they’re low on the food chain, they’re far lower in mercury than fish like salmon and tuna. They’re wildcaught, not farmed, so no antibiotic residue. And they’re not in danger of being overfished. Plus they’re inexpensive.

      Here are a couple of the many articles about the superfood nutrients in sardines:

      http://www.fitday.com/fitness-articles/nutrition/healthy-eating/the-nutrition-of-sardines.html#b

      http://drlwilson.com/Articles/SARDINES.htm

      Sardines have been a lifesaver for me. I reside in a third world country and don’t have access to the slew of nutritional supplements and organic food options that people in first world countries do. I don’t have access to fish oil supplements, which I’m not sure I’d trust anyway, organic dairy is hard to find, and there’s no organic meat here.

      I’m one of those people who requires some meat and dairy in my diet. I’ve been able to regularly find organic yogurt and kefir, and every once in a while I stumble across some organic eggs, but that’s it. And it wasn’t enough. I started searching online for fish that weren’t farmed, and that’s when I discovered sardines. Then more research showed that they were the perfect food for me. I’m not the only one. The paleo diet people appear to have discovered sardines as well.

      I eat sardines with the skin and bones packed in olive oil. I’ve been eating about a can every other day ever since, and I began experiencing benefits quickly, both health benefits and a notable change in my skin. I lost 10 years of lines off my face. The healing from my floxing really kicked in after adding the sardines to my diet. That’s when I began feeling stronger and started having days when I felt almost normal for the very first time.

      A lot of people don’t like sardines. My taste buds weren’t exactly jumping for joy at first either, but more research turned up some good recipes online. There are ways to incorporate sardines into salads, pasta dishes, dips for veggies, and sandwiches that taste very good.

      • Melanie Kemp August 31, 2014 at 8:29 am Reply

        Jane.
        I just read about sardines a few days ago.
        I actually dont mind them.Havnt had them in years but my mum would buy them when I was a kid.
        Ive started an anti candida diet and its on the list of foods to eat.
        Thanks for youre info

      • Lisa Bloomquist August 31, 2014 at 8:02 pm Reply

        I’m so glad that sardines have helped you, Jane! I tried to eat sardines a while ago because of all of the benefits that you mentioned, but had trouble with them because they gave me heart-burn. I have no idea why they gave me heart-burn, but they did. I think that they’re a good thing for Floxies to try though, for all the reasons that you stated. Also, they’re high in purines which can be converted into uric acid, which is a powerful antioxidant. This post has more info on the topic – http://floxiehope.com/2014/08/05/cellular-oxidative-damage-from-fluoroquinolones/. It’s a dense post, but the gist of it is that uric acid is a powerful antioxidant and that is part of the explanation as to why sardines help you and brewer’s yeast helps me. But we should probably be cognizant of the fact that high purine foods can lead to kidney stones and gout. I think that both sardines and brewer’s yeast are healthy foods and I recommend both. It should be known though, that they may increase the likelihood of developing kidney stones or gout if consumed in excess.

  18. Michael Teeter September 1, 2014 at 7:51 am Reply

    Well I am going to go in tomorrow for more test. I am switching doctors and I am being referred to a rheumatologist who has worked with Floxies before. Each day is an adventure. Oh and I am taking Co-Q10 now see if it will help me. I have been able to walk more with a cane and or crutches. So it’s a start. I hope everything is going well for all of you.

    Mike Out

    • Angie September 1, 2014 at 8:58 am Reply

      Hi Michael. If you don’t mind please share what your rhuematologist says as it relates to how he/she treated other floxies as well as how your overall visit goes? Thanks.

  19. Melanie Kemp September 1, 2014 at 9:34 am Reply

    Has anybody heard of floxies getting better only to years later have a relapse and how long did it last.
    Im going into month 4. Extremely anxious.Cant work now.Just so weak along with all the original symptoms

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Follow

Get every new post delivered to your Inbox.

Join 136 other followers

%d bloggers like this: