Welcome to Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

An excellent support group for those suffering from Fluoroquinolone Toxicity can be found on facebook.  Here’s the link to the group – https://www.facebook.com/groups/floxies/

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

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3,541 thoughts on “Welcome to Floxie Hope

  1. Melanie Kemp November 19, 2014 at 4:25 pm Reply

    Hi gang
    I hope everyone is doing well .
    So for the past 3 days ive been up and mobile. Staying up all day and evening.
    Its nit that I feel great but obviously better than I had been doing..I was pretty much bedbound.
    A few positives ive noticed.
    1.Up and mobile
    2. Can blow my nose (its been dry for months)
    3.I ate popcorn last night with no ill effects (huge)
    4.Eyes not as blurry or dry
    5. More BMs (not so constipated)
    6. Nowhere near as weak
    Now if the big stuff would go away :)
    But like my friend Tammy pointed out.
    The small stuff is the pre cursor to the big stuff.Its letting you know youre healing

    • SM November 19, 2014 at 6:28 pm Reply

      Good stuff, Mel! Small steps first.

      • Melanie Kemp November 19, 2014 at 6:30 pm Reply

        Yes SM
        baby steps. Least I know now what im up against and can takebetter care

  2. Jane November 20, 2014 at 1:24 am Reply

    I just had a good 2 months. I was floxed 20 months ago with Achilles tendon problems that didn’t seem to want to resolve. The last 6 to 8 weeks my Achilles have felt much better, enabling me to walk without pain.

    My left rotator cuff flared up as soon as my Achilles improved, but it wasn’t that big of a deal. I could still function and was so happy to be walking that I just sort of thumbed my nose at my shoulder and kept going.

    Now my shoulder is calming down and Achilles feeling slightly sore again, like they’re working shifts or something, one clocks out and the other clocks in to make sure that something is always a bit sore. Even then, it not as bad. I am healing.

    I am curious to know why the tendon issues seem to travel. As one tendon improves, another one flares up, and it keeps bouncing back and forth. All around, it is getting better, but it’s just so weird.

    • SM November 20, 2014 at 7:04 pm Reply

      Jane,
      I have noticed that since the beginning. I feel this symptom or that one but never both. My feet burn or ache, never both. It’s awfully strange.

    • Lisa Bloomquist November 23, 2014 at 5:51 pm Reply

      The traveling pain in various tendons is common. Honestly, I haven’t heard a very good explanation as to why the pain travels. Maybe it means that it’s nerve flares, and not tendon tears? Maybe it’s inflammation from use? I’m not sure, to tell you the truth. My left knee would hurt one day, then the next day my right ankle would hurt, and so on. I had to tell myself that the pain in the left knee went away, so the pain in the right ankle would too. Telling myself that helped me to get through it. It happened to be true too.

      Ruth has said in comments that pain can be a sign of the body healing. It’s a good way of thinking about pain. Re-frame it – this is what healing feels like. It may help.

      Tart cherry juice has helped a lot of people with pain. It’s tasty too.

      Regards,
      Lisa

  3. rich November 21, 2014 at 7:52 am Reply

    keep going mel.. so strange that vision goes blurry

  4. Melanie Kemp November 23, 2014 at 1:29 pm Reply

    So things got bad again. Honestly I dont see any hope in sight.
    I feel like im dying a slow painful death.
    Things just go from bad to worse. Unbelievable! !

    • Jimmy November 23, 2014 at 2:25 pm Reply

      Hi Melanie, sorry to hear you are not doing well again. Do you have my email? I think you sent me a message some time ago but can’t find it. Maybe I’m wrong. Pls write me again so we can communicate there. Jim

    • Lisa Bloomquist November 23, 2014 at 5:44 pm Reply

      I’m so, so sorry, Melanie! Gentle hugs to you! It would be nice if the good days would continue, wouldn’t it?

      • Melanie Kemp November 23, 2014 at 6:01 pm Reply

        Ive come to the realization that I wont heal again. I had one shot at it. I guess I zhould be grateful I had a few good years. I cant do this anymore.

        • t bryan November 23, 2014 at 7:40 pm

          U are getting good days Mels!!! That is an improvement from before. Just hold on to the excitement of 2 days ago. (Hugs)

        • Melanie Kemp November 23, 2014 at 8:51 pm

          How are you doing traci

        • SM November 23, 2014 at 11:14 pm

          I hate to hear you say that, Melanie. I understand it though. It is so hard when one is in pain and experiencing this toxicity to think that it is possible to escape. I don’t know how many do escape this hell. There are no official or even unofficial stats on recovery rates. For me, and I’m not suggesting that anyone else should do this, I owe it to my wife to fight this. I don’t think I’ll do so forever and I think it would be unfair for anyone to expect another person to live like we are right now for 40 or more years. But I owe it to her to fight like hell for a few years. People recover. Most? I’m not sure. But some do. I need to see if I’m one of the some.

        • Melanie Kemp November 24, 2014 at 9:00 am

          SM. I suppose I see it as that I was one of those that recovered but maybe it qas my last shot.
          At recovery. Plus quality of life.Mine is minimal. Havnt been out of my hpuse in I dont know how long.Miserable doesnt do it justice

          How many recover twice??? Its not even like I took the darned stuff again. Relapses arent supposed to be this bad.

          Catherine. Its good you had those days but I know how you feel. Its hard to be shoved back down into hell. How have you managed 20 months????? Im coming up to 7 and im already done with this. Mind you its just me and hubby at home. All kids are grown up .
          How long does one wait is the question. I guess thats a very individual thing. I told my mum id wait til after Christmas. I dont see much changing from now til then but ill wait anyways.

        • Catherine November 24, 2014 at 11:07 am

          Melanie – I don’t really cope, I just survive. My children are still at primary school, so I can’t leave them yet, although I sometimes feel they’d all be better off without me. My dad died when I was very small and it was horrific. I would have preferred to have had him ill in bed all the time to not at all. (Not sure that he would have preferred that, however). So i just couldn’t leave them like that. If it wasn’t for the kids I wouldn’t be here. If I’m still ill when they’re grown and independent, then I’ll think again. You have to remember too that I have had over 400 FQs – a lot of which I took after I was floxed because I didn’t know what was wrong with me. So I suspect my chances of getting better are pretty remote.

        • Melanie Kemp November 24, 2014 at 11:16 am

          I understand that Catherine. I talked to my mum just a few minutes ago. I told her id wait until after xmas. We had talked about this a few months ago and she had said wait until xmas (thinking id be better by then) I hadnt bought it up again until today so I guess she thought it was out if my mind. I told her its only 4-5 weeks til xmas. She then said to come home in Jan. Fares would be cheaper. I told her no. My mind is set. Id really rather be gone now but id promised.I wont talk to my husband. He wont listen to that conversation. I dont blame him.

        • Catherine November 24, 2014 at 1:51 am

          I understand how you feel Melanie. I had about 10 days recently when I felt a bit better. For the first time in 20 months I could get washed and dressed by myself. It took all day, but it was still progress. And my sense of humour came back, which was wonderful. And then I crashed back down, and now I’m buried alive again, feeling like death, trapped in bed and totally helpless. I wish I hadn’t had those better days. They gave me false hope, and now it’s even harder to cope now.

        • Melanie Kemp November 24, 2014 at 10:04 am

          Catherine. What are you’re symptoms exactly? ?

        • Kel November 24, 2014 at 8:12 pm

          You don’t know that you will not heal. When my first illness flared up before FQ I never imagined I would ever read a webpage or written page again in my life. Never go to school, work or drive. I accomplished 3 out of 4 of those but it took a heck of a lot longer than I thought that it would.(over 10 years for some of that) My body was ravaged and never developed as a mans body should develop no matter how hard I pushed. Though I managed some sort of life. FQ poisoning is hell… and I expected it to leave but my expectations are shot. Illness doesn’t follow Doctors Orders, Sagely Advice or your own expectations. It has to pass. Right now as I write my left foot is crippled. It feels as if I have lead weights dug into the ligaments and I am pulling it with all my strength. It is like I am 90 in parts of my body. I don’t doubt this will take a long time and some will not heal…..but believe you will heal….my expectations are lower than most with severe health issues prior to floxing but damned the Doctors they have never been right. Damned everyone you fight for yourself..

          FQ seems hopeless but some people are getting better. A lot of people…I am hopeless a lot but without positive energy this will only burn our immune systems and slow us down if not halt altogether healing. Melanie please get better with me and us

        • Melanie Kemp November 25, 2014 at 2:16 pm

          No. I dont know that I wont heal. But im also very realistic and I know how my body is deteriorating and how fast. I dont want to kid myself into false hope. I know many say hope us all we have and if thats how you feel then thats how you feel.We are all different. I just refuse to be bedridden and have to be looked after with hopes of someday getting better when we all know this thing has its own way of doing things. Sure..people recover…I recivered once. Or so I thought. Now I look at it differently. I dont think we ever actually reciver. Once the damage is done its there. Its just waiting and biding its time. Wether the relspse comes sooner or later the possibility of it happening is great. I went 3.5 yrs feeling pretty ok. Still had minor things that I didnt notice much but they where there never the less. Just reminding me that the damage was there.Tammy went 6 years and had a relapse. Others have gone years to. Doesnt matter wether that relapse was in youre control or not. Could be you get sick from a cold or the flu. Could be you need dental anesthesia. Could be you need a surgery…youre stressed…whatever. I mean who would think that doing excersise could bring a person to thier knees.
          ive had a lot of time to think being as im mostly bedridden now. And I truly believe once floxed the damage is always there and the possibility of it rearing its ugly head is very very possible. As we get older I think the possibility is greater…
          For everyone sick with this still im really sorry. I wish recovery to each and everyone. I just know where im at in this. I know my symptoms and I know how bad it is and I dont kid mysel about it.Im not one for trying every potion and lotion out there. It may work for some but it also hurts others. I did try a few things and they made me worse. So I certainly am not going to keep trying everything and nothing. Im in the mind that its mostly a time thing. You either recover or you dont. I recovered last time with doing nothing but this relapse is much much worse. We all do what we feel is right for ourselves

        • Melanie Kemp November 25, 2014 at 3:01 pm

          Also to say. Im no weak person. My tolerance for pain is high. Im a do’er…a go getter. When things need doing I did them. To be bedridden for the most part. Tonnot even be able to shower without exhaustion. To only be able to eat a handful of things and have those be cooked and served to you each day because you cant do it yourself. To have everything you knew about yourself dumped in the toilet..anlong with the endless list if things wrong with youre body and still find hope..Ummmmmmm! Im.not that naive.
          Yesterday I looked down at my feet. My skin is now flaking off my body. Its so damaged it cant do anything else except break apart. Ive lost 50 pounds and look skeleton. Burning skin. Wrinkled dry skin. Blurry vision. Hair falling out.Brain issues to numerous to mention. Let me just say. If you look on the list of symptoms that can be attributed to this drug I have all of them except tendon issues. Every single one of them. So im no weak person.Ive endured and there was a time I had hope but thats gone. Im not a selfish person and I know my actions will impact loved ones. But they also cannot be selfish in expecting anyone to endure this kind of life. Just so they can see you breathing.My husband has become a caregiver and I will not tolerate that. He has his whole life ahead of him and I wont hold him back by having him have to care for me.That in my eyes is unacceptable.For me anyway.

  5. Heather Rayne November 23, 2014 at 10:40 pm Reply

    Wondering if anyone has had joint issues since toxicity? I have never had so many issues (none really) as I do know with joints. Also have disc issues in back. So I have to wonder because you hear so much about tendons – it would make sense I all connective tissue were affected.

    On another note, I have found a small dose of muscle relaxer to really really help a lot of my pain!!

    • SM November 23, 2014 at 11:07 pm Reply

      Heather,
      Joint pain is absolutely normal. I had very sore joints, almost like arthritis. Most of that is much improved now. I have nerve issues still but most of the joint and tendon issues are very minor. I’d say knees seem to be hit pretty hard.

      • Angie November 24, 2014 at 3:11 pm Reply

        Hi SM,

        I also have joint pain as well since being floxed. Did you take anything in particular to help with the joint pain?

        • Daniela November 24, 2014 at 6:05 pm

          Pineapple juice, sour cherry juice, no dairy, and sardines have helped me for joint pain. Once the sardines backfired, so I would say to eat them to relieve joint pain, but then stop for a while once the pain is better.
          Brusque rubbing up and down along the sides of the knee relieved pain I’ve had for three years.

        • Angie November 24, 2014 at 7:13 pm

          Daniela,

          Thank you so much. I saw were you posted the video of the lady showing how to rub the sides of the knees. I’m going to try it.

        • Daniela November 25, 2014 at 5:06 pm

          I’m thinking of reintroducing some dairy, because I am getting really thin, and see if I can offset it with the other things. But I definitely recommend cutting dairy for as long as you can at first — it stopped all my small joints pain the very next day and stayed that way for the last 8 months.

  6. Jolea Jensen November 24, 2014 at 4:27 am Reply

    Hello again, everyone,

    It was a long time ago that I posted about being floxed. I guess mine was rather minimal, as I don’t seem to have symptoms anymore. (Sharp pain behind left shoulder blade, pain in arches of feet/legs, pain in left ear, scary dreams). I took Cipro 500 / 2x day back in August, but stopped after the fourth dose.

    I am, however, still dealing with illness. I’ve been sick since mid-July, have been on antibiotics 6x, and an afunginal once and am now awaiting results of yet another urine culture/sensitivity and hoping the bacteria doesn’t travel up to my kidneys again. I think sometimes that if I’d been able to manage the Cipro back at the beginning, that i”d have gotten better and wouldn’t still be dealing with illness, however, the thought of floxing for life seems much worse.

    I run fevers daily, have seen 9 doctors as well as consulted with 3 dr friends at my church, have had millions of tests run (OK, NOT MILLIONS, but it seems like it), was positive for C Diff as a result of all the antibiotics, had pelvic abscess, OB Gyn issues, candidiasis, etc. etc. The frustration lies in the fact that drs. have not yet been able to pin-point the exact cause of my fevers. At least the energy is returning, and I”m able to teach again. I couldn’t do my normal teaching duties (I teach music at a college) for 8 weeks last sem due to extreme fatigue, shakiness, fever, etc.

    I sincerely sympathize with each one of you who are continuing to deal with illness as a result of floxing and other long-term illnesses. It’s frustrating when dr’s don’t know what to do or don’t believe you. I had one dr. essentially give up on me. I had to ask her for a referral to another Infectious Disease dr, because she was not offering any more advice. My plan is to go back to her and tell her what they find is wrong with me–in great faith that my new dr’s workup will give results. :) I’m NOT imagining my fevers–I typically don’t run fevers. :)

    Nehemiah 8:10, “The Joy of the LORD is my strength.”

    Jolea

    • Daniela November 24, 2014 at 6:01 pm Reply

      Hi Jolea, do you mean chills? I had chills, flushes, night sweats, acute sound sensitivity, insomnia, hip pain, for the first two years immediately following IV and oral Cipro and other medications. Those symptoms totally ended, but then I got refloxed :( Still, I am very happy and grateful not to have those symptoms anymore.

      I went to lots of doctors at that time who were really strange about it and just passed me on to someone else. Finally I was diagnosed with chronic fatigue syndrome. I kept saying, that’s some coincidence but everyone gave me a very blank look.

      So I suspect the doctors know these are Cipro symptoms but don’t want to talk about it. Anyhow, I just forgot about them and concentrated on feeling better. During that acute phase, I went to an acupunturist from China who focused on immune support.

      • Destruida los Restos November 25, 2014 at 12:44 am Reply

        Those chills, flushes and night sweats are your body trying to get rid of the toxins.
        Chronic fatigue syndrome just means “we haven’t a clue what’s wrong” – it’s not a specific illness.
        I don’t think many doctors do know that they’re Cirpo symptoms – they’ve been well trained and the medical journals are full of articles written on behalf of drug companies but signed by paid-tp-sign doctors.

      • Jolea Jensen November 25, 2014 at 1:06 am Reply

        No, not chills. I just got shaky. I was shaky again today when I went to get my urine culture/sensitivity results. Only to be discouraged again because they found not one but three bacterias and consequently were not able to give sensitivity for them. Sigh. So, I’ll have to do another sample tomorrow. Hopefully this one will work. I showed up with >100,000/ml Acinetobacter lwoffi, 17,000/ml proteus mirabilis, and 6,000/ml diptheroids. Both the Acinetobacter lwoffi and proteus mirabilis are rare infections in the urinary tract and are often drug resistant. Well, I KNOW that whatever I’ve had is drug resistant. Hopefully tomorrow’s sample will work… I see my dr. on Saturday.

        • Lisa Bloomquist November 25, 2014 at 9:09 am

          Hi Jolea,

          I thought of you when I read this –

          http://www.hormonesmatter.com/one-familys-experience-periodic-high-fevers-pfapa/

          Have you looked into PFAPA as a possible source of your fevers? You’re not a child, so it would be very unusual for you to have it. And your fevers are daily, not periodic, right? But maybe there are some similarities between what you are experiencing and PFAPA that could be helpful. In the post that I linked to, I thought that it was particularly interesting that the drug that worked for the girl with PFAPA was one that increased stomach acid. I know that a lot of Floxies, including myself, have had success with supplementing HCL – hydrochloric acid – stomach acid – to relieve some floxing symptoms. I wonder if either supplementing HCL, or digestive enzymes, or probiotics with apple cider vinegar, would get your stomach working better and maybe that, in turn, would help relieve your fevers? I’m not a doctor, but it seems like that line of thinking is worth looking into.

          Here is another post written by a Floxie friend whose daughter also has PFAPA –

          http://www.hormonesmatter.com/autoinflammatory-syndromes-adjuvant-induced-pfapa-cyclic-fever/

          I would love to know what your thoughts are about this. I hope that you recover too – as that is what is most important.

          Best regards,
          Lisa

        • Jolea Jensen November 25, 2014 at 6:52 pm

          thanks…

        • Jolea Jensen November 25, 2014 at 6:55 pm

          but my fevers have never been higher than 100.7 :)

        • Destruida los Restos November 26, 2014 at 2:29 pm

          They aren’t rare bacteria.
          “Acinetobacter lwoffii is a non-fermentative aerobic gram-negative bacillus that is seen as a normal flora of the oropharynx and skin in approximately 25% of the healthy individuals. Due to its ubiquitous nature, it is a potential opportunistic pathogen in patients with impaired immune systems, and it has been identified as a cause of nosocomial infections like septicemia, pneumonia, meningitis, urinary tract infections, skin and wound infections. ”
          Proteus mirabilis is, in many countries, trhe second most common bacterial cause of UTIs.” Proteus mirabilis is part of the normal flora of the human gastrointestinal tract. It can also be found free living in water and soil. When this organism, however, enters the urinary tract, wounds, or the lungs it can become pathogenic. Proteus mirabilis commonly causes urinary tract infections and the formation of stones.”
          “Diphtheroid bacilli are often found in the healthy mouth and pharynx. They also occur frequently on the skin and can be isolated from the nose and urogenital tract. They are ubiquitous saprophytes which only occasionally become pathogenic for man.”

          Your immunity was lowered by the quinolone and any other pharmameds you took, so these bacteria flourished, got over-confident and are now causing you hassle. They are surely responsible for the low-grade fevers, etc.
          I suggest you take d-mannose twice a day for three moinths, then once a day (or more or less, no big deal, follow your own intelligence) and avoid all meat, eggs and dairy products other than wild game and wild fish (poor darlings) because otherwise you’re ingesting secondhand antibiotics. You can order a homeopathic potency of those three bacteria combined, from any good homeopathic compounding pharmacy; I’d get a lowish potency such as 30c or its equivalent and take one, under the tongue in a flavourless mouth, each day for a week, or stop sooner if feel improvement. You might use aconite or something as well, for the shakiness, but I haven’t thought.
          Some people use echinacea to rebuild immunity. I haven’t tried t, so can’t comment.
          Make sure you eat a suitable diet, epsecially no sugar or refined flour – check out diets for a neutral Ph or slight alkalinity. Probably best no oranges or citrus except lemons. Few or no cereals – seeds are good and almonds and walnuts.
          Drink lots of water – chlorine-free is best.
          Everyone should have lots of cold-pressed virgin olive oil and some apple cider vinegar, also honey and garlic. Also vegetables, not too cooked. Unless you can’t tolerate herbs, do use some of the antiseptic herbs, such as thyme, goldenseal, sage, and some bitter herbs such as rue – nit in vast quatities or all the time, but they should be in everyone’s diet.

        • Destruida los Restos November 26, 2014 at 2:38 pm

          But start the remedies again if feel worse. Or it might be better take one a day for three weeks, or one a week for longer – I sort of play it by ear, so it’s hard to give a protocol, but the suppliers may.

          I’ve found this place I didn’t know about: http://www.remedia-homeopathy.com/en/homeopathy/homeopathic-remedies/s1.html although it’s 200 tears old! It looks good, but I don’t understand their potency system.

  7. Melanie Kemp November 24, 2014 at 9:40 am Reply

    Jolea
    was the fevers since Cipro or before Cipro? I had fevers after being floxed but they went away. For me it was a floxing symptom. So not a real fever.

    • Jolea Jensen November 25, 2014 at 1:07 am Reply

      the fevers started before cipro but have gotten successively higher. My current urine c/s showed Acinetobacter lwoffi >100,000/ml and Proteus mirabilis 17,000/ml. They could be the culprit, maybe….???

  8. Destruida los Restos November 25, 2014 at 12:00 am Reply

    Mel, you think you were damaged as much by the anaestheic used when you had a sinus operation as by FQs, so why dont you try taking a homeopathic potency of the anaesthetic? Can’t hurt, costs a few dollars, might help a lot. Same with other homeopathic meds – they’ve made and continue to make a massive dfference to me, so why is everyone completely uninterersted? It’s very odd. Is t because people don’t undertsand how homeopathy works, even after it’s explained to them, or because it seems so unaggresive that thye don’t believe it? Only one floxed person, in four years of writing, has tried homeopathy at my suggestion and her myclonic storms wree cured after two doses – she now goes to Dr. Yurkovsky and is much better. Unfloxed people, however, often do listen and try it and are delighted, so I think it’s connected with the general negativity of mind that often results from floxation.
    Melanie, what was the sinus op. and did you have a general, reguional or local anarethetic, or was it “twilight sleep” (sedation)? Would your primary healthcare physician have details in your notes – should have – or can you ask the surgeon? If you find out what they gave you, you can probably go at least some wy to reversing the effects by taking a homeopathic potency of same. I did, when I hadf a G.A. some years ago and felt very grotty afterwards.
    I could write you a suggested programme of homeopathic remedies, or even order them for from Ainsworths and your mother could pay, or you could, or I could list them and you could ring them (via Skype to be cheaper) or order them by email.
    Ainsworths and surely other homeopathic compounding pharmacies have anaetsthetic remedies and will compound the exact one if you ask them, but that’s not usually necessary.
    “Floxie Hope” means just that, means don’t despair – it dpoesn’t mean that reading the messages every day will cure you!
    I’m trying to think of the specific suicide-obssesseion remedy that¡’d suit you, but haven’t had interent or time and am not a trained homeopath – there are over 3,000 remedies to choose from and i only know a few. I may get it, though – I think I may have the other day, but have forgotten again!
    Then you could use nux vom at th very least for your constipation – you can probably buy a tiny tube at your local heañth food shop or alternative pharamacy or something – but there are lots of other possible hom. rems for constipoation. And you don’t mention whether you’ve even tried the usual, non-homeopathuic, natural remedies such as prunes, figs, etc.
    Have you eaten any activated charcoal, if your digestion’s so bad?
    For non-homeo, I’d start with charcoal, then get going on the prines, figs, lemons – stew them gently or just soak them (not the lemons!) then if you have a blender, blend them – the yellow zest and the joice of lemon, all figs and prunes but not the stone) and eat lots. If that doesn’t work, move on to next suggestion, etc. Just being constipated is enough to give you brain-fog, fgs.
    I did make some suggestions by email and you justreplie that you didn’t want to try, so if you’re in that sort of negative phase, no-one can help. There’s no point in keeping asking other people how many they took, how long they’ve veen ill, etc., as we’re all different.
    You may be partly toxed (in fact you m u t be) by the nasty neurotoxic roducts use oin dogs.. ..but I’ve told you all this and you just stopped, so I s’pose you don’t want to try, juts to be miserable.

    In September, one of my neighbours, aged 75, fell over something and dislocated her arm so violently that the top of the humerous was on her chest, at the top of her breast, so about 4 ribs down. Obvuiousy, the main tendon was comnpletely ripped – her arm, once back in place, juts hung uselessly. The doctor explaine dthat, without an operation, it’d always be thus and she’d always be in pain, wanted to operate and gave her Ibuprofen. Six weeks ago, I gave her some rhus tox 30c, ruta graveolens 30c and a tiny bottle of arnica-suffus oil. Her tendon regrew and she’s using the arm normally.

    After my chicken soup poisoning, I took:
    activated charcoal powder (not a homeopathic remedy) three or four times, till my stomach stopped gurgling and puffing
    arnica 10m (twice) for shock
    arsenicum album 1M (twice) the number one poisoning remedy
    a combination remedy of chicken (yes, really) two FQs (probably no pont, but theyw ere available so I added them in case) E.Coli and – bother, forgotten, but the other most common bacterium that survives the quinlolones and is passed on if you eat the poor treated animal.
    Nux vom a couple fo times
    I wash my sore eyes with a few drops of mither tincture of eiphrasia (eyebright) in a little water
    and am using hypericum 30c and ruta graveolens 30c most days – whenever my feet or other tendons hurt for the ruta and whenever nerve pain or tingling for the hypericum.
    I’ve also taken chinensis sulph 3oc again for the tinnitus, but I think I should try taking it daily for a few days, a sit’s only worked a bit this time – may need a different remedy.
    There is absolutely no doubt that all of the above have made a huge difference, usually within five or ten minutes. If I were more disciplined about taking care of myself and less forgetful, I’m sure I could improve a lot more a lot faster.

    I still get suicidal on bad days, but not because of being FQ’d – I already had a million tragedies and griefs on my shoulders and in my mind and heart – I’d be quite happy about being only this much recovered of that were all. I can get dressed, do the housework, visit neighbours, go for walks (but my feet do hurt afterwards) write rather badly, but legibly, read if I sit down and have a light on the paper and wear glasses, laugh, cry, chat.. I only get want-to-die-ish because of things that are completely unrelated to floxation, though of course if I were a boit healthier I’d feel more cheerful more of the time. What I’m trying to say is that you can probably recover, but you’re being rather passive about it and could try harder. Pity you mum isn’t there – you probably need someone to bully you a bit in a kind way. You asked earlier whether a positive attitude can heal you. We know that happy things releasy ndorphines, dopamine, etc. and that those help in healing. You might still drop dead at bnew year, but at least you’d have had a larf!

    I reckon every toxed person shpuld read, or re-read, What Katy Did. Mind you, it’s easy to preach, not so easy to do, but worthwhile things are seldom easy (she added preachily.)

    At least set yourself some task that helps others, to fill in the time. I made some suggestions in an email, I think. Then you won’t have wasted every day. Or learn something – learn basic Spanish or natural dog-grooming (for when you recover if you do) or the history of coal-mining in north-west France or how to knit or soemthing.

    There are remedies of homeopathically potentised Frontline, for instance – the minic¡scule, potenetised (not just dilutred) dose stimulates your body and mind to sporing into action and mend itself.
    Anyway, I shan’t mention it again – there must be good homeopaths in the USA and i know thgere are some good naturopaths who use homeopathy and other things as well. People in other fou¡rums who’ve bene to them have done much better than the ones who just keep gouing to special doctors, having tests and gobbling supplements, all of which costs a fortune. I can’t promise homeopathy would cure ypoui or help you, but it works for most people, so I can’t see why it wouldn’t.

    As for suicide, most of us yack on about it or a long time and annoy everyhone around us – it’s an absolute obsession and very boring for other people, because hardly any floxed people actually do it, just moan on about it daily. Bob grozier, RIP, kept a oaded revolver in his desk drawer and took it out every day for seven years, but he died without using it.

    Anothert hing you could do – you love your dosg and like dogs in general – well, start researching which meds are toxic to them (Previcox, for instance, but it has a different name in USA) make some little cards or leaflets telling your clients about FQs, for people and animals, and about other toxic meds, send to your clients and ask to leave some in local health store. Force yourself to help others and there’ll be multiple benefits, to them, to you, it’s win-win. I know I sound preachey and of course it’s easier to say than to do, but it’s also partly habit – suicidal thoughts or cheerfulness can become habits.

    • Kel November 25, 2014 at 2:23 pm Reply

      Dear Destruida,

      old Natural Medicine is what you’re writing about in Homeopathy? I have tried a few herbs for my sinuses, a few herbs for allergies. I have tried some lemon and some other items… I wonder if so many years of firing ballistic missiles at my problems, a softer approach may be tougher to get the natural gears in motion. I also smoked the hell out of some weed and nothing on the planet, out of any natural item did me the good and bad. The lung damage may or may not have been caused by that as I suffered such severe GERD the Surgeon was literally quoting, “This is the worst GERD in recorded history.” I know from research it was not but it certainly probably was for that Gastro-Doctor. That and I smoked Tobacco, drank coffee 24-7 and drank alcohol all at the same time. Coping with Depression.

      Depression and suicidal thoughts are a natural human instinct. More people off themselves and I know it is something that society shuns but you have to be sensitive to it. My hangnail might be your dislocated arm or busted heart. Pain is relative in that each person is very different. I am a psychic and a spiritualist and I have spent years using natural Blue Light Healing on myself… The most natural and affordable healing you can buy. Did it work??? I have to say it was so slow I would have gone for the surgery probably but alas I avoided a knife and potentially dangerous medication. Which at the time I didn’t know could be so dangerous. MY family and friends would tell me I am nuts for not jumping on the Knife and Needle more often. Coming from a family that professed that more often.

      I also interested in your ideas. I have used natural foods, even Amish Corn with a ton of Butter on it and just about anything I could stuff in my face to attempt to improve my health. I suppose not a very graceful means but I have to admit at least I felt better about myself when I was doing that. Lately though the pain and limitation of the FQ on my body makes going to get that harder. Preparing it harder.. Just makes me more blah.. This stuff certainly zaps the spirit and I think that’s the core of we need to treat. The symptoms are secondary, once a Floxed person finds hope again they will begin to heal no matter the route the end result hopefully be the same.

      I am interested in the Pharmacy you mentioned and are do they serve the USA? I am allergic to Pain and TV Screens so it may be hard for me to handle some herbs but I will try anything. Can we speak sometime and could you make some suggestions? I am open minded some and I believe in some attempts to try new things. At least once. I went through the expensive supplements and spit them up more or less…

      As for depression, aggressive counseling by people who are capable of coping with the adverse emotions and prescribing a dose of reality and hope is the only hope. I have been there and it worked. Someone needs to be reassured life will turn out okay for them. All humans sit on the razors edge. All of us have weak knees when the going gets tough. There are a few that are tough : ) I am not…

    • Melanie Kemp November 25, 2014 at 3:32 pm Reply

      I had a general anesthesia. The sinus surgery was to clean out an infection that I couldn’t get rid of. It was in the spenoid sinuses.
      I had symptoms before surgery but I was mistakenly attributing them to sinus infection and menopause. I now know some of them was due to FQs. I never put two and two together because I didnt think an antibiotic could cause long term damage.
      I believe the anesthesia may have caused the symptoms to become exaggerated just as steroids or NSAIDS do. A ticking time bomb so to speak.
      I have severe sensitivity to most everything. This incluses even over the counter things or supplements. The most benign thing will set me off so its little wonder I am nervous of takingaanything. Im already suffering badly and I guess dont want to suffer more. I know people say what do you have to lose but when the pain is already unbearable its hard to see the forest for the trees.

  9. Destruida los Restos November 25, 2014 at 12:45 am Reply

    Sorry about multiple typos – early morning and need more sleep.

  10. Destruida los Restos November 25, 2014 at 12:52 am Reply

    Mel, can you drink almond milk? It tastes nice, most people can take it and it’ll help to stop the weight loss.Also olive oil, apple cider vnegar and honey should be in your daily diet – lots of olive oil and no animal fat.

    • Daniela November 25, 2014 at 9:07 am Reply

      Almond milk, you mean just grinding almonds? What is the recipe?

      • Destruida los Restos November 26, 2014 at 3:45 pm Reply

        You can buy almond milk, but most brands have a lot of additives or aren’t very nice. It’s easy to make your own – lots of recipes online, buit the important thing is to be able to use fresh, plump, shiny almonds with no hint of rancidity. Also, the often suggest vanuilla essence, but a tiny piece of a real vanilla pod, or a whole pod that you dry out and use again and again, is incomparablyy better. Oat milk is excellent – oats are a a nerve food – soy not good and rice milk is thin and tasteless.
        Tahini and hummus would fatten you up, also sweet potato.

  11. Destruida los Restos November 25, 2014 at 12:54 am Reply

    Oh yes, as well as the things I listed abobve, I eat lots of Dr. S’s SFP and Marmite, but some people can’t take Marmite because of the yeast. I eat it when i crave for it and not when i don’t.

  12. Destruida los Restos November 25, 2014 at 2:16 am Reply

    Cantharis (homeopathy) would probably help with burning, stinging pain.

  13. Daniela November 25, 2014 at 9:01 am Reply

    I think the US is very anti-homeopathy — and when you find someone who does it, it is extremely expensive and seems to be more about profit than healing. The teaching hospital in NY City used to be homeopathic, but suddenly ceased to be in 1928 — they say it was the discovery of penicillin when they abandoned homeopathy, but that doesn’t sound right because other disciplines of therapy didn’t suddenly cease at that time. But for some reason, Americans go beserk when you mention homeopathy, but they are also obsessed with vaccinating for everything, which sort of works similarly.

    • Daniela November 25, 2014 at 11:14 am Reply

      Ha, I did not see the irony is saying that the advent of antibiotics led to the end of homeopathy!

    • Michael Teeter November 26, 2014 at 11:11 am Reply

      Your Right Daniela,
      But then look at the science behind vaccinations and compare it with homeopathy and wow it looks very similar. US medicine speaks out both sides of it’s mouth.

  14. Daniela November 25, 2014 at 9:20 am Reply

    Reflox by dental anaesthesia

    “The health problems experienced by patients treated with Articaine™ seemed to fall into two categories:

    “Neurological problems, disorders of the (central) nervous system. These disorders exhibited themselves as Parkinson’s (tremors), ME-type complaints, ALS and MS. Also included in this category are patients with muscle failure and long-term tingling in the fingers and toes.”

    http://bosscherstichting.org/en/information/the-articaine-problem—patients.html

    I can’t find anything on the website about what to do about it :(

  15. Daniela November 25, 2014 at 9:25 am Reply

    The above website says you can be susceptible to problems from dental anaesthesia if you have a Cholinesterase deficiency. From NIH:
    “Pseudocholinesterase deficiency can also have non-genetic causes. In these cases, the condition is called acquired pseudocholinesterase deficiency; it is not inherited and cannot be passed to the next generation. Activity of the pseudocholinesterase enzyme can be impaired by kidney or liver disease, malnutrition, major burns, cancer, or certain drugs.”

    I guess in our case, that drug was a fluoroquinolone.

  16. tricia November 25, 2014 at 9:01 pm Reply

    Hello everyone…. I’m happy I came across this site. I was recently floxed last month, late Oct… I took levaquin, and three days later I took ibuprofen for back pain. That’s when all the horrific symptoms began….suicidal thoughts, brain fog, confused, panicky, blurred vision, tinnitus, widespread joint pain and fatigue. Now..at 4 weeks out I just have body wide joint pain, not too severe, and fatigued…mildly depressed. All other symptoms have left for now. I was hopeful on recovering….. I have been detoxing and supplementing right away…..but now reading some of these stories I am having serious doubt’s that I will ever be healthy again…. And wonder if my 4 year old will ever have her vibrant, happy mom back? I’m really scared about this and have no idea what my future holds. What are the chances of recovering from this….if any??!! Good luck to all of you and I hope we can all heal from this

    • Melanie Kemp November 25, 2014 at 9:26 pm Reply

      I believe if you are seeing recovery and lessening of symptoms theres a very good chance you will recover.There are no guarantees of course and recovery isnt linear. Symptoms can come and go. Wax and wane but I think youre chances are very good if at only 4 weeks you are seeing good improvement

      • tricia November 25, 2014 at 10:04 pm Reply

        Thanks Melanie! I pray that you are right! When I first got floxed, the only thing I wanted was my full mental health back, and my vision. There’s nothing more scary than the feeling of literally going insane, and being suicidal is a thought I’ve never had! Luckily i took a supplement, pharma gabba, and that brought my mind back to almost normal . My joints are cracking and popping, and I’m more fatigued than I’ve ever been . how are you? I’ve read your posts and I do hope you recover, at least enough that you will have far more good days than bad. You’re lucky to have a husband, someone to care for you in all this. Im a single mom and trying to keep it together for my daughter….. It’s not easy!!! Good luck and hugs :)

        • Lisa Bloomquist November 25, 2014 at 10:37 pm

          Welcome Tricia! I’m so sorry for what you’re going through but I’m glad that you found this site and our little community! All of the stories have nuggets of wisdom in them and I hope that they help you!

          Meditation, and especially a class called Mindfulness Based Stress Reduction, helped my mental state immensely. So did acupuncture and having a trusted person tell me that I was going to be okay. Doing anything that you can to minimize anxiety will probably be helpful. Some people have found some supplements to be helpful for treatment of the mental floxing symptoms. I’m glad that the pharma gaba is helping you! Feeling like you’re losing your mind is terrifying, for sure. For me, it passed. It all passed – thank God and knock on wood.

          Like Melanie said, the fact that you are improving is a good sign.

          A piece of woo-woo advice – please be kind to yourself as you go through this. I think that it’s easy to get caught up in being self-critical, especially when others are depending on you and you think that you may be letting them down. But they’ll probably be okay and love you no matter what. Being kind to yourself as you go through it will make it easier.

          Hugs back at ya,
          Lisa

  17. Lisa Bloomquist November 26, 2014 at 7:42 am Reply

    “In the end, though, maybe we must all give up trying to pay back the people in this world who sustain our lives. In the end, maybe it’s wiser to surrender before the miraculous scope of human generosity and to just keep saying thank you, forever and sincerely, for as long as we have voices.” -Elizabeth Gilbert

    Happy Thanksgiving!

    I hope that all of you have a wonderful Thanksgiving! I’m checking out for a few days. I will be in touch when I return to the internet. :) xoxo

    • Lisa Bloomquist November 26, 2014 at 7:43 am Reply

      And THANK YOU to all of you, for the community that you have created, the friendship that you have contributed and for simply being you. xo

  18. melanie kemp November 26, 2014 at 4:57 pm Reply

    Do probiotics actually even work?? If so whats the best kind. Ive been taking one for awhile with no real results…or none that I can see.

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