Welcome to Floxie Hope

Hope Clouds

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics - http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 - more news stories, research papers and other resources can be found on the “Links and Resources” page.

An excellent support group for those suffering from Fluoroquinolone Toxicity can be found on facebook.  Here’s the link to the group - https://www.facebook.com/groups/46690244194/

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

910 thoughts on “Welcome to Floxie Hope

  1. bohongboguo April 8, 2014 at 11:23 am Reply

    – regarding excise…
    Maybe I am too cautious… I have this hypothesis based on my experience and on the readings.

    Hypothesis:
    after we discontinued FQ drug, it still damages/weakens our tendon&cartilage step by step, day by day. Maybe you do not feel the damage because the weakness has not reached some sport-limit level yet.
    Use numbers. Lets say, we are able to run a 42-Kms marathon prior to FQ, and we took FQ in Dec last year, then for instance:
    Jan: our tendon can tolerate 30 km running (do we know about it ? No)
    Feb: our tendon can tolerate 20 km running
    Mar: our tendon can tolerate 10 km running
    Apr: our tendon can tolerate 3 km running
    May: our tendon can NOT tolerate running
    June:our tendon can NOT tolerate WALK much
    July: barely able to walk
    ….
    ..,
    Several more months later, the damage finally stopped and we begin to climb the recovery curve. The tendons begin to heal step by step, day by day, very slowly.
    2 years later, we are back to average normal.

    If this hypothesis is fairly ture, we do not really know exactly “WHERE AM I NOW ?”, “what is my capability now”. Besides, there are fluctuations on the curve. Thus, be careful when we do excise.

    Hope all of us can manage to enjoy the recovery stage, even though there are real pains.
    cheers….
    Bo

    • cd April 8, 2014 at 11:51 am Reply

      Bo
      There could be some truth behind that theory. Although I took in november, had instant reaction which resolved in upper body after 3 months only to return and get worse in achilles, heels and upper body, hands, elbows, forearms- that was my own fault for pushing things though.
      Other people I’ve spoken to in the uk also regressed up until 5 months or so and then stagnated until around 9-12months then started to recover after that. Although theyre 2-5 years out of floxing and all have been left with some symptoms, I.e. tight muscles, mild tendinopathy etc. But on a more manageable level which doesn’t really affect their lives. Theres hope for us all!!
      I just hope this nightmare ends sometime soon…..

      • bohongboguo April 8, 2014 at 12:06 pm

        Yes it will end. Every nightmare ends, some longer some shorter.

        “It is not all bad to live an old person’s life for a while when you are young — it gives you a new perspective of life.” — not sure where I heard of this.

      • cd April 8, 2014 at 12:17 pm

        Its certainly put a lot of things in perspective and the way lisa describes seeing life through a matrix hits the nail on the head. You do look at life very different including the importance of a good diet. I don’t quite think I’ll ever be the same in a lot of ways that I was before.

    • R April 8, 2014 at 12:33 pm Reply

      It takes tendons a long time to heal, 3-6 months minimum, some recommendations are 9+ months. I feel significantly better the past week or so. If I feel good at the end of the month I’m going to start counting my months then. After 1 month progress I’m going to start walking up stairs. 3-4 months progress swimming, maybe biking. 12 months progress running.

      • cd April 8, 2014 at 12:54 pm

        In regards to tendon damage/pain induced by fluoroquinolones will enhance recovery by following normal tendinitus treatments I.e. foot splints, icing, cross friction massage, will any of these treatments speed recovery time? Even if mri is not ahowing any damage?

      • cd April 8, 2014 at 1:10 pm

        Eccentric exercises for achilles? Or could this contribute to further degeneration of the collagen etc

      • cd April 8, 2014 at 1:43 pm

        @R

        We will get there mate and we’ll both smash the iron man triathlon when we’re fully recovered. I always said I’d complete it by the time I was 35years old and I don’t intend on moving from this… that gives me a few years yet.

        @bo

        Do you grt cracking throughout your body which wasn’t there before u took cipro? My forearms crack and my lower legs like the tissues are cracking sounds awful, doesn’t hurt but sounds like I’ve just snapped my arm.. or leg .. crazy. Do u have any symptoms like this…?

      • bohongboguo April 8, 2014 at 4:27 pm

        @cd
        Yes I got the “crack” or “poping” sounds on the joints.

        Feb~April 2014, cracking mainly on the knees. It is a little bit so called “stiffness” , and after I shake my leg it cracked, and the stiffness goes away. It happens several times on my knees.

        Dec 2013~ Jan 2014, the crack was on feet, knees, hips, shoulders. Not they are mostly gone except my knees.

        Therapies you mentioned :
        What I tried : ultra sound , physiotherapy (massage). Did not really help.
        What I did not try yet : Acupuncture. Some people/doctors recommend me to try acupuncture, but I have been so scared of doctors’ advice …

        Cheer up guys, lets look into the future. Years later we run together, and we put our recovery story in here.

      • R April 10, 2014 at 12:52 pm

        Since we don’t know the exact mechanism by which fluoroquinolones affects the joints/tendons I think the only thing we can do is to take the general advice for tendon recovery.

        My right knee cracked every time I extended it for a couple weeks, not painful or anything, but it’s stopped doing that now.

      • Lisa Bloomquist April 10, 2014 at 1:29 pm

        I believe that peroxynitrite (ONOO-) is damaging to tendons. (Mitochondrial damage caused the mitos to start producing peroxynitrite and I actually think that peroxynitrite is causing most of our issues.) Per http://physrev.physiology.org/content/88/4/1243, “The reaction of superoxide with NO to produce peroxynitrite (reaction 3) occurs approximately three times faster than the dismutation of superoxide to produce hydrogen peroxide and even faster than the reaction of NO with heme proteins; hence, this is the primary reaction when both are present O2- + NO = ONOO- (reaction 3) Peroxynitrite (or its protonated form ONOOH) is a strong oxidizing agent and can lead to depletion of thiol groups, damage to DNA, and nitration of proteins. A further effect of the formation of peroxynitrite is a reduced bioavailability of superoxide and NO.” Ironically, (ironic because NO is part of that equation – or maybe it’s not ironic, I just don’t think like a chemist), we need to increase our levels of NO (nitric oxide) in order for our tendons to repair. Here is an article about the role of NO in tendon healing – http://www.ncbi.nlm.nih.gov/pubmed/22244067. And here is a post about foods that increase NO – http://anabolicmen.com/foods-that-increase-nitric-oxide/ Beets helped me immensely.

      • impossibleadversity April 10, 2014 at 9:35 pm

        @Lisa: That’s a great link, I was reading about ways to increase NO for brain fog/fatigue reasons but had no idea it was involved in tendon repair.

        Those beets again (nitrates too)! I read about arginine/citrulline supplements to increase NO but was put off by articles like this: http://thyroidbook.com/blog/nitric-oxide-modulation-for-autoimmune-disease/ I figure maybe it’s best to have a modest arginine intake but boost BH4-salvaging nutrients (vit c, folate) and try to get some nitrates from food.

        My only worry about those foods listed is some happen to be high in oxalates (spinach, beets, chocolate).

      • R April 12, 2014 at 10:33 pm

        @Lisa

        Thanks for the information. I’ll try to incorporate some more of those foods into my recovery plan. It’s too bad there isn’t that much conventional medical knowledge about fluoroquinolones considering how much they’re used.

        At least I’m at the point where daily activities don’t really bother me. I can walk a lot, bend down, etc, but If I run to the end of the hall or some short distance then the pain in my knee will show up. Doctors think it’s the cartilage. In addition to my regular supplements I supplemented quite a bit of magnesium over the past few weeks: twice a day magnesium liquid, once a day epsom salt bath, and once a day magnesium gel. I can’t say that I’m too upset with my progress.

  2. bohongboguo April 8, 2014 at 4:27 pm Reply

    ” It happens several times PER DAY on my knees.”

    • cd April 10, 2014 at 3:12 pm Reply

      @lisa

      Interesting stuff. I consume probably 16 of those nitrite boosting foods daily. Looks like I’m on the right track ;) and giving my tendons the best possible chance of healing.

      Lisa no damage to achilles tendon is showing on mri but no doubt I’ve been in quite a bit of pain with my heels for the last 7 weeks. The only thing to ease the pain is ice baths. It numbs my feet and provides relief. This would suggest there is some form of inflammation but the structure of the tendon us solid. Is there a possibility is could be damage to nerve endings thats releasing pain signals? How long did your tendon pain last before u felt no pain at all?

      Chris

  3. sweetjan79 April 8, 2014 at 8:19 pm Reply

    i have a major Loudest pop and crack on my forearm when i forced my hand to go through a tight top – how careless of me. i shouldn’t even force my hand if i can’t wear forget it.

    as it stands, some hours later, i started to experience a bit of pain at wrist.

    floxies need to be careful. don’t over exert. learn to let go….!!

    • cd April 8, 2014 at 10:46 pm Reply

      Bo I’ve had 4 sessions of accupuncture. Can’t say that it really helped but the accupunturist was very calming and reassuring and most of all could believe my reaction to the drug which for me was a relief that someone actually understood. He didn’t pescribe me any herbs as he said theres nothing really that can help as my body is pretty balanced already. Ita just the rendon issues. He said my body would fight this and eventually it will come right on its own and not to take any additional supplements.

      Accupuncture here is quite expensive too at 35pound a session and I can’t afford to keep paying out money on treatment.

      Apart from a couple of magnesium tablets at the very start I have taken anything else since. So I’m just letting my body figure this out and adapt.

      • bohongboguo April 9, 2014 at 1:46 pm

        @cd
        Thanks for response and the valuable information ! :)

  4. Kim April 8, 2014 at 11:20 pm Reply

    I’m just posting here a link discussing the neuroprotective benefits of Curcumin (Turmeric), particularly with respect to fluoride neurotoxicity.
    http://www.activistpost.com/2014/04/the-spice-that-prevents-fluoride-from.html?m=1
    I don’t even know if in fact it is specifically the fluoride that has damaged us so badly, but I’m always hunting for anything that may help and just wanted to pass this on for others to consider. I have actually already been taking curcumin, (don’t think I’ve noticed a benefit…but who knows), but not in nearly as high a dose as suggested by this study (30mg/kg bodyweight).
    Healing wishes to everyone.

    • Destruida los Restos April 8, 2014 at 11:30 pm Reply

      Hi Kim, it’s not fluoride in FQs, but fluorine, and quinolones were highly toxic long before FQs were invented. As for turmeric, I’ve been eating it and lots of herbs and spices all my life; they help to keep you well as long as you don’t get FQd or nuked or similar, but they won’t magically change things now.

    • Destruida los Restos April 8, 2014 at 11:49 pm Reply

      I didn’t mean you shouldn’t eat it, just correcting the fluoride thing.

  5. sweetjan79 April 8, 2014 at 11:41 pm Reply

    Hi Destruida,

    I hope your eye is well now :-)

    like to send you a song

    Enjoy!

  6. Jenny April 9, 2014 at 1:50 am Reply

    Hi.
    I am currently floxed 1 month in, got tested today for neuropathy and had some blood tests done for vitamin deficiencies and am X-ray on my right foot. I am a 23 yr old female. New here and trying to find recovery stories! Any help? The only posts I see are from this month…

  7. Jenny April 9, 2014 at 1:59 am Reply

    Also, has anyone known someone who’s been poisoned by Cipro or a drug related to, had aches and pains at night and was still able to get pregnant and carry a full term pregnancy? please answer ! I Am scared.

    • Destruida los Restos April 9, 2014 at 2:09 am Reply

      Yes, of course, and the children were healthy and breast-feeding was fin.e. Don’t worry – just don’t take any more pharma-drugs.

    • Lisa Bloomquist April 9, 2014 at 8:16 pm Reply

      Hi Jenny,

      Briean has had 2 beautiful babies since she got floxed. She was still pregnant with her second post-flox baby when this story was written. Both her 2 year old and her 6 month old are healthy and happy. http://floxiehope.com/brieans-recovery-story-levaquin-toxicity/

      It’s scary, I know it is. Please try to believe that it will get better. It will.

      Best regards,
      Lisa

  8. sweetjan79 April 9, 2014 at 2:42 am Reply

    Regarding fluorine, i read it will lurk in your deep tissue for at least 1 year. no way at all to detox this creep?

    • bohongboguo April 9, 2014 at 1:53 pm Reply

      @Jarene
      Seems no way, (as far as I know) unfortunately.
      If there is an quick and effective way, we will be healed already.

      FYI:
      My doctor friend, who has very good Traditional Chinese Medicine and acupuncture experience also has western medicine certificate, recommended me to do “Vitamin C flush”. She trust the VC flush may flush some toxity out of our body. Of course this is not once-and-for-all solution, and she recommend me to do it twice a month.

      I did it for 3 months (i.e., 6 times). Not sure it worked or not on me. I do feel better very slowly, but it maybe the other supplements I was taking (grape seeds extract, e.g.,), or probably it is time that is working while not supplements.

      cheers
      Bo

      • sweetjan79 April 9, 2014 at 6:41 pm

        Hi Bo,

        Thank you. Good day to you!

        Where do you buy vitamin C flush? i checked online on how it works. drink in the
        morning every 15 min and have it flushed out. looks like a form of detox

        have you considered Vitamin C or glutathione injection IV ?

        i remember i read some floxies share their success using these IV (either one) to resolve symptoms, some are not tendon/muscles related but it has helped in a large scale.

        on that record, i asked my acupuncturist doctor on these jabs but she immediately shake her head and said no…citing it’s not recommended. i regretted not asking in detail why..perhaps next sessions i will.

      • sweetjan79 April 9, 2014 at 8:10 pm

        Hi Bo again,

        since you know this chinese doctor, i think it’s good to get some herbs recommendation for detox. i am using herbs to detox e.g. take in 4 pills before night and the next day, i poo non stop. haha

        not sure if it can detox cipro or not at all. normal people need detox not to mention us. i tried to maintain my speed but some night i didn’t take. next day too intensive for me haha

        if you are keen, i can go home and write down the chinese herbs

        please let me know

        Jarene

      • bohongboguo April 10, 2014 at 10:32 am

        @Jarene
        Good day to you !

        Actually I was using USANA Poly C to do the VC flush. My doctor friend recommended me to do it “gently”, i.e., take 2 pills per hour, and 24 pills per day — this counts as one day of VCFlush. Do at least twice a months.

        Negative side:
        Some reports show that taking too much VC may get you kidney stones.
        Some reports said that VCFlush is simply nonsense, no matter kidney stone or not.

        I really do not know which side is right.

        cheers
        Bo

      • bohongboguo April 10, 2014 at 10:46 am

        @Jarene
        “if you are keen, i can go home and write down the chinese herbs”
        —-> sure, please write it down in either Chinese or English, whichever convenient to you. I will discuss with my TCM doctors about your therapy.

        As I said, I did some short term tests on myself : in several days I discontinued all kinds of supplements, and recorded how I felt in those days. You know what, I felt the same old, that is, sometimes better sometimes worse in those days, or say “bumps on the road” or “cycles”.
        In other words, I did not find association between supplements and recovery speed.

        On the other hand, of course, supplements (if it is really important and beneficial to us) may show its effectiveness only after we have taken them for a “long term of several months”.

        My mother is very reservative, she does not want me to take any kind of supplements. She simply told me to take lots of water…..

        ——————>
        Summary: I talked to three top notch doctors in China who all have seen FQ toxity patients themselves (remember there are 1.4 billion people in China !! A top notch doctor has to see averagely 100 patients in his/her practice day !! This is crazy if it happens in the western countries.).
        Anyway, they all told me : “THIS IS SELF LIMITED”

    • Lisa Bloomquist April 9, 2014 at 8:24 pm Reply

      I heard that cilantro was good for detoxifying fluoride from the body. I think that parsley is too.

      • sweetjan79 April 11, 2014 at 2:36 am

        yes and chlorella :)

      • impossibleadversity April 18, 2014 at 9:20 pm

        I supplemented boron partly for this reason myself, and interestingly temporarily achieved mental clarity supplementing 9mg/day (lowered afterward as the effect faded back into brain fog). I calculate based on my city’s fluoridation program and my water intake I must ingest ~3mg/fluoride per day from water alone.

      • impossibleadversity April 18, 2014 at 9:40 pm

        Damnit why did I put a slash there. I never used to make these kinds of mistakes

      • Lisa Bloomquist April 19, 2014 at 8:01 am

        Impossibleadversity – be nice to my friend (you)! A mild type-o is entirely forgivable.

      • impossibleadversity April 19, 2014 at 9:14 pm

        lol, I’ll try, thanks. It’s not like I’ve never made a typo but have been making ones I could never imagine before.

        Btw, continuing the comments about NO foods above, I ran into this interesting piece: https://www.ncbi.nlm.nih.gov/pubmed/23568620

        They found surprisingly that hypo rats supplemented via arginine pathway actually damaged NO levels further rather than helping them (as an athlete might expect). But supplementing via nitrate-nitrite-NO pathway improved levels, as expected.

        Particularly relevant for me as apparently I have hypothyroidism now, but other articles explain reasons it might apply to people with CFS or mito problems or maybe low NO in general. So beets/aragula probably safer than arginine sources in that list of foods. I still wonder about citrulline though (it gets converted to arginine but maybe it skips some processes?).

      • impossibleadversity April 19, 2014 at 9:27 pm

        Also here’s a neat piece I just skimmed through: http://www.ym.edu.tw/bps/paper/0514%20the%20nitrate.pdf

        In a recent study, rats were given sodium nitrate in the drinking water for 1 week followed by acute exposure to an NSAID (diclofenac) by gastric gavage. Dietary nitrate increased gastric NO levels and potently protected against the macroscopic injury caused by NSAID exposure.

        Isn’t that precious?

  9. Dean April 9, 2014 at 5:26 am Reply

    Anyone suffer from itching all over the body? I have just recently started to and I am wondering if it’s caused by the cipro?

    • Nick April 9, 2014 at 12:56 pm Reply

      I have not had itching all over the body. but I did develop some really dry skin though.

    • bohongboguo April 9, 2014 at 1:55 pm Reply

      @Dean
      Yes I had it, most gone, and still have it a little bit.
      According to my experience, take time, and it will be gone.

      Bo

  10. Jnnparis90@aol.com April 9, 2014 at 1:08 pm Reply

    Destruida los Restos:
    Thank you for your quick response I am happy to hear that!! Planing on have lots of kids here.

  11. Jnnparis90@aol.com April 9, 2014 at 1:09 pm Reply

    Nick:
    I suffered from itching all over the first few weeks. It’s gone now.

  12. Jnnparis90@aol.com April 9, 2014 at 1:11 pm Reply

    Dean*

    • cd April 9, 2014 at 10:26 pm Reply

      Don’t know if this had been mentioned before but I’ve been fascinated by mitochondria repair since all this happened to me and i came across a lady called terry whal who overcame multiple sclerosis just by changing her diet to feed and repair her mitochondria. I’m always sceptical of such radical changes especially when research is in its infancy however it’s worth watching a video she put on youtube of one of her seminars. It has to be better than shoving a cocktail of supplements down your neck! And a good diey goes without saying…

      http://m.youtube.com/watch?v=KLjgBLwH3Wc

      • bohongboguo April 10, 2014 at 11:09 am

        @cd
        Thanks Chris, very good video. Could you help summarize what to eat and what to avoid, if not a trouble ?

  13. bohongboguo April 10, 2014 at 11:07 am Reply

    — vertical ridges in fingernails —-

    @Jarene @all
    Since we talked about “detoxifying herbs”, I want to mention this “vertical ridges in fingernails”. Check whether you have it. To see a picture, google “vertical ridges in fingernails” , or check the picture on Page 66 of “the flox report .pdf version 11 year 2007″.

    TCM believes that fingernails is the extending of tendon, while tendon is related to liver.
    Thus, need treat liver. TCM recommends :
    1, green lemon with the green lemon skins…
    2, Wolfberry
    3, Acupuncture point: Taichong (on the feet)
    4, cry , sweat.
    5, sleep during 1AM~2AM (because this is the time that liver does its job)

    ( Western Medcine does not think so, WM just treat fingernail as fingernail. I do not quite believe in TCM before, but after flox I realized WM cannot always be helpful. In WM, if the lab tests do not show apparent abnormal, then you have no problem. however, apparently, we have problem even though our lab tests are fine.
    I am not saying TCM is always right, actually there are too many TCM treatments that cannot be testified by modern science…
    )

  14. sweetjan79 April 11, 2014 at 2:37 am Reply

    Hi Bo,

    Thanks for sharing with us :)

    Interesting! You use USANA Poly C to flush, i never thought of that, maybe i should give it a try! I’m taking Poly C with other USANA supplements together after breakfast and dinner. I took 2 each time. so 4 a day.

    As for the chinese detox herbs, i took photo and uploaded online. this is so i won’t leave out anything.

    please take a look:

    Ingredient listing:
    http://postimg.org/image/dp7zvvxsn/

    What it does:
    http://postimg.org/image/rjx3gx1gd/

    I think whether or not chinese herb can detox cipro, it’s certainly good to detox regularly so our body can continue to remove any toxins, prevent any more damage, reduce inflammation and promote our body to heal.

    So far i only heard Zeolite powder can detox antibiotic. haven’t yet to try. I tried Zeolite in liquid before a small bottle with dropper kind, i think you can forget about this. it works nothing and i quickly finished the mini bottle. then yesterday someone was sharing in facebook Zeolite must be tried in Powder format and some discussed it work for them! just don’t buy the liquid format….

    NAC supplement is useful but USANA didn’t carry NAC and this company believe their mega antioxidant is their prime product, contains way more antioxidant potency than others.

    during my initial month, i have used chlorella, MCP to detox. finish a cycle of bottle , didn’t notice a big jump in improvement. i think we might have to try a few more cycle to see results…slowly.

  15. Amy April 11, 2014 at 8:38 am Reply

    Help! My anxiety is horrible right now and I can’t handle any supplements due to my stomach being so nauseous!!! Has anyone tried buspar to help anxiety? I know most on here do not want to take any more pharmaceuticals (which I really don’t either) but it is impacting my job and family to an extent I am not comfortable with. I am starting to not be able to function!

    • Lisa Bloomquist April 13, 2014 at 9:15 am Reply

      Both acupuncture (including the herbs that my acupuncturist gave me), and meditating helped to calm my anxiety immensely. Also, regarding not being able to take supplements – my stomach issues (they were mild) got better when I started supplementing hydrochloric acid (HCL). It might help you when/if you take supplements.

      Also, I think that it’s helpful to stay away from horror stories about FQ toxicity. Stories of harm and severe hardship are really hard to deal with when you’re scared and falling apart. The people who are really struggling have all my respect and sympathy and they deserve to tell their stories – but if the stories make you more anxious, stay away from them for a while – for your health.

    • Michael April 13, 2014 at 11:54 am Reply

      Anxiety is a horrible horrible thing. You have to get it under control or it will consume you and you won’t be able to function at all. I had a horrible relapse about 6 weeks ago from taking advil for a kidney stone.
      I am much better now . Sometimes anxiety is caused by a real physical problem .sometimes it is just caused by your thoughts or in my case BOTH.
      When my anxiety gets real bad my hands and feet get tingly and numb.My feet sweat alot when really anxious which is not normal for me.My heart skips beats and my stomach creates alot of acid which in turn causes me all kinds of weird pains in my chest and back.
      The good news is you can stop it. You have to listen to your body.
      Find out what is triggering it.
      For me last month i realized any stimulation caused my chest to feel like someone was sitting on me.
      Here are some things .
      Hot showers or baths caused my heart to race (probably nervous system problems). Its like my body couldnt cool down for a while.Cold face cloths on my forhead and back of my neck fixed this.
      Just going on the computer and reading made things so much worse.Shut off the computer when anxiety is high.
      watching anything on tv that was intense or exciting, again watch something boring or just turn the tv off.
      Caffeine is major nono,avoid it until things improve.Even things like chocolate and peppermint mamake it worse.

      The single biggest thing you can do is to learn to control your thoughts. Find something to think about that calms you down. When you catch yourself thinking about something negative in your head just say STOP and force yourself to think of something nice.At first you will be saying to yourself (in your head) Stop every few minutes.

      If your stomach is bad apple cider vinegar will help with the acid reflux problems .

      Worrying makes you sick and helps NOTHING so don’t do it while your anxiety is high.
      Look for solutions to other problems when your anxiety is under control.

      Hope that helps,

      Michael

      • Amy April 13, 2014 at 4:56 pm

        Thank you everyone for the feedback! Michael- that sounds just like me! My heart races after hot baths. I have high BP anyways so this does not help. I am feeling a bit better now! I guess the fear of a possible UTI again and getting over the stomach bug just made things worse! I was starting to feel so much better until all of that came on! How long did you suffer with anxiety? Did you take many FQ? Are you doing better now? I sure hope so!

      • Michael April 13, 2014 at 9:17 pm

        I took 20 days of Cipro 2×500 mg daily , I was supposed to take it for 30 days.
        That was 3 and half years ago and I had just about all of the reactions you read about.
        I have recovered enough to get on with my life . I still have ringing in my ears and crap floating around in my vision but am still hopeful that it will fade away with time . I learned the hard way last month about NSAIDS , figured I was recovered enough to handle them…..wrong. Thank God the Advil only messed me up for a few weeks , I was afraid It would take years to pass if ever. It hit my nervous system really hard and my legs were all messed up again. I had a coffee today with no ill effects . My nervous system (and anxiety) has settled down to the point where none of those things I wrote about bothers me now.
        If I told a doctor what advil does to me now because I took an antibiotic 3 years ago they throw me in the nut house :-)

      • Lane April 13, 2014 at 10:51 pm

        Michael, Amy, I have the same issues. Heat will definitely cause my nervous system to go haywire. Michael, do you still experience the same sensitivity to heat? I think the floxed body may exhibit autonomic thermoregulatory issues, causing increased heart rate, palpitations, lightheaded/dizzy sensations, etc.

      • Michael April 14, 2014 at 11:14 am

        The heat thing passed eventually when i first was floxed and it has already passed since last months relapse from the advil. I believe my central nervous system is very fragile now and other things could trigger it again . I will pass on all pharmaceuticals from now on unless i have no choice.

      • jd April 15, 2014 at 3:53 pm

        Hi Michael,
        has your tinnitus improved at all? Mine started quite suddenly about 6 months after my last pill and has been constant for almost a year now. Recently I think it may have gotten a bit worse. Has anyone had ringing in the ears and then had it go away?

      • Michael April 15, 2014 at 11:24 pm

        Sorry to say it hasn’t really improved much. Sometimes are better than others where in the early years it was bad all the time.

      • impossibleadversity April 18, 2014 at 9:12 pm

        @jd: Yes I had tinnitus after taking cipro 4 months ago, I attributed it mostly to the NSAIDs (known side effect) but could have been antibiotics too. It’s improved and I only hear it a bit at night or at random moments during the day, at least I could live with this compared to the rest. I took ten million supplements though and have no idea which helped it. Only one I know to be related is zinc and I took 25-50mg per day. Also I avoid anti-inflammatory anything and painkillers (even naturals like bromelain, etc.) specifically for this reason (others also).

  16. Lane April 11, 2014 at 8:50 am Reply

    Hi Amy,
    I’ve had a lot of success with the Sedona method in treating my anxiety. If you are looking for a non-pharmaceutical solution you might give it a try.
    Hope you feel better soon,
    Lane

  17. bohongboguo April 11, 2014 at 10:51 am Reply

    @Amy
    I know it is difficult, it is painful, and the pain is real. Our hearts go to yours. We all have to experience anxiety and depression. I am a 34 years old man, but I cried several times like a little girl.
    “Danger is real, but fear is a choice”.
    Believe that you will heal. Since you will heal in future, you do not have be scarified by the present. All that ends well is well.

    PS: check the post I put for you under “Lisa’s story”. Have your lab tests done so as to check whether you are having infection. Sometimes it is not infection at all, even though you have UTI-like symptoms.

  18. Tiffany April 11, 2014 at 11:25 am Reply

    Have any of you had dental work done since being floxed? I need a filling on one of my teeth, and the doctor said they could either inject Articaine (4%) as a local anesthetic to the gum where the tooth is or inject Mepivacaine into the nerve block. I’m wondering which one to use. Thanks!

  19. Lillybet April 11, 2014 at 11:47 am Reply

    Hi all, I was given norfloxacin last year and literally fell apart ever since, I haven’t seen any improvement yet. I was also given a months worth of doxycycline which I finished because I was misdiagnosed as having Lyme disease :( I’m 23 I get the feeling of rubber bands snapping burning even my jaw is affected. The scariest thing for me is my joints now clunk :/ has anyone had this that’s gone away, I wasn’t sure norfloxacin could cause this as you usually only see cipro Levaquin, etc. I do push myself I walk I try to do all sorts and it took me months to figure this out so I also was prescribed all sorts of mess my back feels like its ripped to bits and is constantly in spasm! Anyone had these things and got better also my hamstrings are so tight I have tears all round my knees and the skin over them has become paper thin! Anyone out there had similar symptoms and seen improvement I’m young, scared missing out on life right now I’m losing all hope! I can no longer work or anything and worst of it all was I wasn’t even in my own country when I was prescribed this drug, fortunately I made it home before things got this bad, anyone? :’(

    • Nick April 11, 2014 at 5:23 pm Reply

      lillybet, yes i get the clunking in my elbows most frequently after they are bent and I straighten them. but I always had that to some extent. please don’t fret, you will get well. time will help you. and you need to also help yourself with positivity.

  20. bohongboguo April 11, 2014 at 1:53 pm Reply

    @Lillybet
    Norfloxacin is fluoroquinolones, so it is basically the same thing as “cipro Levaquin, etc.”

    First thing is to avoid NSAIDs and steroids, of course, avoid the other fluoroquinolones.
    Second, take several hours to read through the comments and stories in this website.

    • Lillybet April 11, 2014 at 3:52 pm Reply

      Hi I have read the recovery stories and understand no ones timeline is the same I had brain fog panic attacks was convinced I was floating, all this stuff has passed but my body is a mess, it was September last year I was given these, I honestly thought I was completely nuts! But I haven’t heard of anyone saying they hear a loud “clunk” in their joints, I have a lot of neurological problems too infact my right ankle reflex has gone completely, I’ve lost tons of muscle too, how long until things at least stop getting worse? :) and I now know about NSAIDs but wish I’d had known sooner as when we thought it was Lyme it was supposedly the best thing to take :(

      • Michael April 13, 2014 at 11:19 am

        “how long till things stop getting worse”
        It was a year for me but have read it can take up to 18 months. Somethings will go away only to be replaced by new ones.

  21. Nick April 11, 2014 at 5:27 pm Reply

    hello everyone on here. How is everyone doing? I just wanted to tell everyone here suffering and worrying about their future, dealing with pain and mental anguish and fear that you are not alone. Do not be afraid you do not walk alone.

    • Lillybet April 11, 2014 at 5:47 pm Reply

      Thank you and I know this is all rather scary though isn’t it, how long has it been for you? Are you any better? Sorry for all the questions :)

      • Nick April 16, 2014 at 5:03 am

        it has been about 3 months. I feel like I am getting better. things went bad about 2 weeks post flow.

  22. Jenny April 11, 2014 at 11:59 pm Reply

    Lisa:
    Thank you so much. And that story you recommended helped a lot!
    Bo:
    My right foot X-Ray had some abnormalities, not sure where yet (tendons, bone etc). They said “bone abnormalities” Now I have an appointment for that. Do you know what that means? Blood and Neuro tests haven’t came back yet.

    My sleeping schedule is way off so I stay up half the night in pain, If I get up to use the bathroom I feel like I had a day of athletic activities. When I wake up I feel great. Throughout the day I have minor pins and needle feelings in my legs and feet. Then when it’s really late my whole body acts up again. Does this happen to many people? Or is this considerd mild. The pins and needle thing is not diminishing and is worse at night.

    I have been drinking Caffine throughout this last week and eating a lot of candy which makes me wonder. I’m buying supplements and healthy food tomorrow.

    Again I’m floxed one month in. Many advice?

  23. Jenny April 12, 2014 at 12:24 am Reply

    Also, For two weeks I was using muscle rub at night for the muscle aches. It helped me fall asleep and felt better for the night, but then I read on what it could do if I use too much and I was drenching myself In it so I stopped. Can I continue rubbing it on?

  24. Jenny April 12, 2014 at 12:49 am Reply

    Lillybet:
    I feel your pain. I’m in my prime 20s feeling robbed of my body once healthy body. I keep worrying I’m going to snap a tendon because of all the muscle spasms and burning in my joints. And then there’s worrying about my future. I’m planing on doing light excersises, Epsom baths twice a week for 20 minutes, taking magniseum citrate(only the 250 knowing females can tolerate 350 a day) vitamin b12 and D, buying all of the food I need for a detox diet, drinking water all day long, getting some sun (vitamin C), wearing comfortable shoes, drinking a glass of cranberry juice and milk daily, sleeping everyday at the same time, resting when you have to (although it’s been one year for you you need to take it easy). I’ve done all the researching I can about fluorine poisoning, even reading about how it affected the test lab rats and how long it took for the rats with the adverse reaction to recover. And this site is helping me tons from what I read we should recover.

  25. Destruida los Restos April 12, 2014 at 3:33 pm Reply

    I’m really sorry I haven’t been able to reply to the fifteen messgaes towhich i want to and/or should reply. The answers are all written in my head, but I just can’t use the omputer at the moment. (It’s a laptop and no separate scren.) Also, I really need glasses, but in the whole four-an-a-half years since FQ, I’ve never managed to make and keep the appointments to have proper glasses, and have been hurting my eyes with those plastic 2€ drugstore ones – even worse now I’ve sat on them! So, as soon as I put on the glasses or look at the computer, let alone both at once, my eyes and head hurt again an I feel sick and dizzy. I’ll find a way to reply hwne I can.

    • Destruida los Restos April 13, 2014 at 9:57 am Reply

      I mean, the euphrasia made them better, but if I keep using the laptop and plastic cheap glasses, an ocean of euphrasia would be wasted. Alsp, the electro-magnetism is horrible.

  26. jd April 13, 2014 at 4:44 pm Reply

    I’ve noticed my skin becoming much thinner, looser and less elastic (and dryer). does anyone know whether this reverses over time? of course as we age this is going to happen, but I think this is different.

    • Lane April 13, 2014 at 10:40 pm Reply

      Hi jd,
      Yes, I have noticed the same thing…it appears that my skin has been aging faster, less elastic, deeper and more wrinkles/creases and things (like a watch) will leave an imprint on it that lasts a long time. Yes, it is different and you aren’t just imagining things (I thought I was too, but comparing photos of myself over the last year has really made it obvious what is going on). I think it’s due to the increased oxidative stress due to the mitochondrial dysfunction and also damage to the skin repair/maintenance processes. I have no idea if this is reversible.

      • Lisa Bloomquist April 14, 2014 at 10:44 am

        Lane, didn’t you mention a supplement that was making your skin look better? Can you please tell us what that was? Thanks!

      • Lane April 15, 2014 at 2:42 am

        Hi Lisa,
        I’ve seen some improvment with Neocell Super Powder Collagen, Type 1 and 3

        Seems to be helping!

  27. jeremy April 13, 2014 at 10:13 pm Reply

    7 months today and counting, I have seen some improvement and am off crutches around the house and office. Pain is still really high but getting better slowly. Hopeful for the future but being an athlete I have a fair amount of depression. Neuropathy pain is lower. Swimming helps.

    • Lisa Bloomquist April 14, 2014 at 10:38 am Reply

      I’m glad to hear that you’re seeing some improvement, Jeremy! The healing process is slow, and it sounds like you have been hit pretty hard. Both the pace of healing and the knock-down that you received are really, really, really difficult to deal with – there’s no denying that. I’m really sorry for everything that has happened to you and I hope that you continue to heal.

      Swimming helped me too. I think that even just being in the water is helpful.

      Please let me know if there is anything that I can do to help you through this.

      Regards,
      Lisa

  28. Paris April 13, 2014 at 10:43 pm Reply

    Does the adverse reaction effect your immune system? If someone’s sick in my house is it easier to catch it due to this problem ?

    • Lisa Bloomquist April 14, 2014 at 8:37 am Reply

      Fluoroquinolones do affect the immune system. Here are some articles (links on the links and resources page) about how fluoroquinolones affect lymphocytes – immune system cells –

      Nepal Medical College Journal, “Genotoxic and cytotoxic effects of antibacterial drug, ciprofloxacin, on human lymphocytes in vitro”

      Antimicrobial Agents and Chemotherapy, “Ciprofloxacin Induces an Immunomodulatory Stress Response in Human T Lymphocytes“

      Journal of Leukocyte Biology, “Several Gene Programs are Induced in Ciprofloxacin Treated Human Lymphocytes as Revealed by Microarray Analysis“

      Archives of Toxicology, “A Comparative Analysis of Chromosomal Abberations in Cultured Human Lymphcytes Due to Fluoroquinolone Drugs at Different Expression Periods“

      Many/most people react to getting poisoned by a fluoroquinolone by having a reaction that seems a lot like an autoimmune disease.

      I don’t think that it suppresses your immune system though. Most people seem to have the opposite reaction – that their immune system goes into hyper-drive. I haven’t been sick with a cold or flu in ages. But, then again, I didn’t get sick much before I got floxed either, so it might just be me.

      Input from others on this would also be appreciated. Especially those who know enough about how the immune system works to adequately interpret the articles noted. Thanks!

      • Catherine April 14, 2014 at 11:49 am

        I do believe that floxing causes up- regulating of the immune system. When I was very ill with ME/Lyme disease, I never caught any viruses that were going around. My immune system was on overdrive and zapping any germs as soon as I came into contact with them. As I began to recover, I started catching colds and flu again, as my immune system was acting normally. I actually really enjoyed having viruses, as I felt more normal again! Now I’ve been floxed, I’m back to not catching anything again – both my children had horrible flu this winter, and coughed and sneezed all over me for about a month, and I caught nothing. I hope one day I’ll be able to catch viruses again!

    • Lisa Bloomquist April 14, 2014 at 9:00 am Reply

      This is an interesting article about autoimmune reactions – http://www.hormonesmatter.com/molecular-mimicry-autoimmune-disease/

  29. sweetjan79 April 13, 2014 at 11:37 pm Reply

    the root of all evil, FQ

    Just a cup of slightly more red wine on a Saturday family dinner brought back my already-healed-Knee pain, how nice!!

    Pain for 3 days already. when i place my hand over my knee, it felt like it’s having fever?! perhaps it’s the heat pad i placed over the day before making it more inflamed.

    seems like our body is never the same after FQ. prone to re-injury easier. i wish my knee pain resolve soon. that feeling of it “coming back” while i have forgotten the pain send shiver.

    • Lisa Bloomquist April 14, 2014 at 8:21 am Reply

      Sorry to hear that, Jarene! That stinks! More than 25 months after I got floxed, I still don’t tolerate red wine very well. I don’t have a severe reaction like what you described, but I still don’t feel very good when I drink it. I’m not sure what it is about red wine that throws me off, but I still avoid it (I’m able to drink other alcoholic beverages).

      I think that, eventually, the body does go back to how it used to be. It takes time. I can now tolerate caffeine and most forms of alcohol again. I couldn’t for a while. My body adjusted and got better. I hope that yours does too!

      I hope that you feel better soon and I’m sorry to hear about the set-back!

      xoxoxoxo

      Lisa

      • sweetjan79 April 14, 2014 at 7:47 pm

        Hello Lisa sister,

        Thank you, love :) yes we will get back again and punch FQ in it’s face :)

        how sad isn’t it. FQ rob our life mercilessly yet not satisfied and shamelessly stole my joy of red wine. took everything and escaped through the back door. yet we are left sitting there, helpless.

        i was wondering why suddenly my little indulgence gave pain while all these times i can take it without any problem. i recalled i was running out of Milk thistle for a few days and then came that glass of red wine .

        my guess is supplement like milk thistle help detox liver and make things ok. And once we are off without liver cleanse even for a while, red wine might turn toxic and gives pain even though red wine is filled with antioxidant and some medical studies even showed that it help ease joint pain.

        that’s just my guess :) time is my best hope now to help me go back to how it’s used to be.

        xoxoxo
        Jarene

  30. Diego April 14, 2014 at 10:09 am Reply

    I have had the observation in my body in regards to not getting sick. I rarely got sick from a cold or flu bofre being floxed. I too believe the body goes back to normal. I could not tolerate any cereal in the morning the first two years after being floxed and now this past year, I can eat cereal again with almond milk. Also, some dessert sometimes!!! Hang in there, it will get better.

  31. Nick April 14, 2014 at 4:48 pm Reply

    I know I read this a while ago. My heels are crappy. Every step is achy not the Achilles but off to the side and a bit lower. Padded sneakers feel better though. You guys had this. I remember destruida talking about it

    • Lisa Bloomquist April 15, 2014 at 9:08 pm Reply

      My heels were crappy too, Nick. When I first got floxed I felt like there was a ball under the bottom of my heels. It hurt to walk/stand on them. And the tendons in my ankles that were the most inflamed were the ones on the sides of my ankles, not my achilles (unless that’s a part of my achilles). I wore Crocs for months. They’re ugly, but they’re really well padded and I couldn’t handle other shoes. My heels, and the rest of my feet got better. I hope the same for you!

  32. Angela April 15, 2014 at 2:18 pm Reply

    Hello everyone, I was hoping someone could help me. I’m thankfully physically better enough that I agreed to go on a 4day trek to Machu Picchu. We’ll arrive in Cusco to acclimate for three days before hand. My biggest worry is how my body will acclimate post floxing. I’ve been recommended to take Diamox before the trip to speed up the process but I’m still very hesitant to take any form of medication since I’ve had a history of relapses. Has anyone had any problems 1) acclimating at high elevations or 2) having really bad side effects to Diamox post floxing?? Any thoughts would be helpful!!

    • Lisa Bloomquist April 15, 2014 at 8:56 pm Reply

      Have a great time at Machu Picchu, Angela! I’m a bit jealous. I hope to get there at some point.

      I have hiked at high elevations since getting floxed. I live in Denver at about 5,000 feet above sea level and I have done hikes at 10,000 feet above sea level since being floxed. I get headaches when exerting myself at high altitudes that I didn’t used to get. I’m not sure exactly why that happens. Other than getting headaches, nothing bad has happened to me at high altitudes. Headaches aren’t exactly fun though. I have been on short hikes at lower altitudes – 7,500ish feet – more recently and I have been fully okay – without getting a headache.

      I don’t know anything about diamox post-floxing, so I can’t give you any advice about it. Be careful, of course.

      I hope that you feel great while there and that you enjoy it immensely!

      Please listen to your body while you’re there and be careful about altitude sickness. Keep your fluid intake up.

      Regards,
      Lisa

    • frankthetank831 April 15, 2014 at 9:53 pm Reply

      Hey why are you taking that prescription? I too have had major problems being in high elevations since being floxed, my ears get severely clogged really painful and I get a really bad pressure headache, isn’t diamox for those who suffer from intracranial hypertension?

  33. Joanna Grant April 16, 2014 at 4:02 am Reply

    Hi
    I am pretty sure I am suffering adverse effects from taking a fluoroquinolone antibiotic. I took Ciprofloxacin 500mg twice daily for two weeks in November 2013 for a bad bout of tonsillitis/pharyngitis and was given diclofenac and some kind of steroid nasal spray (can’t remember the name) at the same time. Towards the end of the second week, I started to get really bad pain in my neck and shoulders but when I went back to the doctor to check if the infection had gone I mentioned this and she said it was ‘probably just stress’. Since then, the pain has kept getting worse and now I also have muscle weakness in my arms and legs, random twitches and spasms all over my body, strange feelings of something crawling on my skin, ‘electric shock’ type pains up the side of my face, pins and needles in my feet (which also ‘fall asleep’ very easily), constant fatigue, and a general feeling of not being ‘connected’ properly to my body. I also feel like I am on the verge of tears a lot of the time and would burst out crying it someone just looked at me the wrong way. Despite all this, I have been telling myself that it is not due to the Cipro because I am not experiencing any problems with my Achilles tendon and my symptoms are not nearly as bad as those described on this and other forums. Do you think I have been floxed?

    • Catherine April 16, 2014 at 4:15 am Reply

      Hi Joanna, I’m so sorry you’re having such a bad time. It does sound to me as though you have been floxed – it doesn’t always have to include tendon problems. Your symptoms sound a lot like mine, which are mainly due to the central and peripheral nervous systems. If you are in any doubt, you could always ask to see a neurologist to find/rule out other causes of your symptoms. If they are due to floxing, the good news is that most people do eventually recover. There is a huge amount of information and support available here, and on other forums, from people who are much more knowledgable about it than I am, so do keep asking questions. I very much hope you recover quickly and completely.
      Catherine x

      • Joanna Grant April 16, 2014 at 5:21 am

        Hi Catherine, thanks for responding so quickly. It is such a relief to find people who believe me – I am reluctant to go to any kind of doctor (even if I could afford it) because I am sick of being told my symptoms are psychosomatic or due to stress/anxiety/bad posture. Now if I could only convince my boyfriend that I am not faking the pain, weakness and fatigue because I am “going off him”……

      • Catherine April 16, 2014 at 5:38 am

        I think most of us here have experienced disbelief from somewhere – doctors, family, colleagues etc. I try to avoid doctors as much as possible too. And I don’t waste my time or very limited energy on people who have such little respect for me! It helps to know that ALL our symptoms are physical – even the “psychological” ones like anxiety, depression and irritability are a result of the physical damage caused by fluoroquinolones. And all these symptoms can heal. I’ve been bedbound since my last dose of avelox in August 2013, but even I have noticed some improvement recently – much less anxiety/panic, and I’m sleeping better too. It’s slow progress, but these improvements give me hope that the rest of the symptoms will eventually heal too.

    • Michael April 16, 2014 at 7:49 am Reply

      Not being “connected” to my body is exactly how i described it to my wife.
      This is central nervous system damage. Are your ears ringing?
      Does your body jolt awake when you are falling asleep?

      • Joanna Grant April 16, 2014 at 8:03 am

        Hi Michael. I do get the jolting awake thing and when I do manage to fall asleep I am having some pretty weird and scary dreams/nightmares. My ears are ringing constantly but I am kind of used to it because they were doing that anyway with the TMJ problem (although it has got worse since the Cipro)

      • Catherine April 16, 2014 at 8:12 am

        My jolting awake thing and nightmares have just recently subsided in the past couple of weeks. They were bad for about 7 months. Magnesium helped a bit. I can now sleep deeply for 6 or 7 hours without waking. Hope it continues.

      • Michael April 16, 2014 at 8:23 am

        That’s good to hear. It should slowly pass with occasional flare ups .

  34. Amy April 16, 2014 at 7:17 am Reply

    How long did some of your digestion issues last? Anything I eat I have diarrhea. I don’t know if it’s anxiety or a side effect. This happened once before when I was really anxious a few years ago. Any suggestions on how to help this??

    • Michael April 16, 2014 at 7:38 am Reply

      I believe it is nerve related . Try probiotics.

  35. Amy April 16, 2014 at 8:31 am Reply

    Thanks Michael! Did you go through this? How long did it take your anxiety to calm down?

    • Michael April 16, 2014 at 9:27 am Reply

      I had this as well. Takes a few weeks for anxiety to settle down after you get your negative thoughts under control .

    • Nick April 16, 2014 at 11:01 am Reply

      Anxiety and increased heart rate too. I hate this feeling. I don’t like feeling my heart beat all the time

      • Amy April 16, 2014 at 11:50 am

        I don’t like it either but we will get better! How much did you take Nick? Sorry you are suffering also! Hope you have a speedy recovery. We are at about the same time frame. It’s been 3 months for me. Had a couple really good weeks, now hurting all over again. Just sore to the touch and stomach trouble.

      • Michael April 16, 2014 at 12:01 pm

        Feeling your heartbeat constantly really sucks. Try rubbing another part of your body with a fingerto get your brain focusing on that point rather than your heart.

      • Nick April 16, 2014 at 3:30 pm

        @amy. I took 3 fukin cipro pills. had both immediate and delayed reaction. i have been trying to aggressively rehab myself. I need to get back to work soon. bills bills bills. I fu#kin hate cipro.

      • Lillybet April 17, 2014 at 5:03 pm

        Hi although I am still going through this nightmare very much myself, I was floxed 1st of September last year on holiday in Thailand, i collapsed in the middle of qatar (my connecting flight back to the UK) with electric shocks running down my arms on the way home with electric shocks a pounding heart they wasn’t even going to allow me on the plane home! But i have to say to you the one thing that has improved for me is anxiety/ brain fog, the first few months were unreal for me I walked round in a world of my own I walked round the supermarket with my boyfriend crying because I couldn’t remember what I liked to eat, I couldnt get the words out I had pins and needles in my hands I felt as though I was coming out of my own body on one occasion and looked in the mirror and one of my pupils was tiny yet the other was normal at the same time! It was a scary time for me and my family they all thought I had mental health issues. I have a lot of physical problems yes what i didnt have at first but I just wanted you to know once I stopped listening to my GP and taking the shitload of drugs he was prescribing me such as anti depressants sleeping pills and amitryptiline for pain. My brain fog got better, yes I’m still depressed but that is due to what this drug has done to me. The anxiety should lift for you it took me six months. I hope you feel better soon all of you!! Including myself its awful to think that these drugs can unleash such hell on people and people are making money from it!

  36. Lisa Bloomquist April 17, 2014 at 8:29 pm Reply

    I’m feeling a little mushy at the moment. I want to thank all of you for your kind, thoughtful, insightful, inspirational comments. You are all very much appreciated! The fact that you are willing to take the time to answer the questions of fellow Floxies, to reassure them, to help them and to let them know the lessons that you have learned – is amazing. It’s truly wonderful and it’s beautiful and I really appreciate you all! Thank you!

    • B April 19, 2014 at 1:15 pm Reply

      Lisa we thanks you :)
      If it was not you, I will be much worse. — at least I do not take NSAIDs any more.

      If I found this website a month earlier…. if .

  37. Jenny April 18, 2014 at 8:15 pm Reply

    Lisa:
    I am thankful too for this site it has helped me so much through these last two months. It’s like part of my recovery process. I cried a lot. Depression and cronic fatigue – gone. I’ve been finding myself happier when I awake and find myself with more energy. It makes me so happy. Now just waiting for nightly muscle cramps/nerve burning/dry eye to leave.

    • Lisa Bloomquist April 19, 2014 at 6:04 am Reply

      Hi Jenny,

      I’m so glad that this site has helped you and that you are improving! Losing your health, even temporarily, is a really rough thing to go through, so crying a lot is a pretty reasonable thing to do. I hope that the muscle cramps, burning nerves and dry eyes improve soon! Some people have a fast recovery, others have a slow one. Regardless, time does heal and most people recover (either fully or a partial recovery) with time. Try to keep it in mind when you’re going through a rough time. It does get better.

      Best regards,
      Lisa

  38. R April 18, 2014 at 10:18 pm Reply

    Hello again. I hope everyone is making some progress. As for me physically, my lower body is significantly better, but my upper body is slightly worse. I’ve been on a mental/emotional roller coaster though. One minute, hope and optimism and the next, despair. Seems like I have some anxiety now and I’m having trouble sleeping too. I may try some valerian and melatonin. 2 things that I look forward to are epsom salt baths and foam rolling (also playing with my cat at my parents’ place – vets give animals fluoroquinolones too, so don’t let them do it to your pets!). Foam rolling really makes my muscles feel good and a lot looser.

    I wonder if my symptoms could have been triggered by a single advil I took a few days before I went running. Unfortunately after I hurt my knee I took a ton of advil and my symptoms spread from there.

    I will post one more link about PRP because this one relates directly to fluoroquinolones. http://orthodoc.aaos.org/WilliamFBennettMD/PRP%20Protects%20Tenocytes%20from%20Adverse%20Side%20Effects.pdf

    I’m not as high on PRP as I was before because I want my body to recover to a certain extent on its own first. Once I resume physical activity I will consider PRP if I run into joint or tendon problems.

    • Lisa Bloomquist April 19, 2014 at 7:53 am Reply

      I’m so glad to hear that your lower body is improving! Sorry to hear that your upper body has taken a turn for the worse. I hope that it improves soon!

      Melatonin has helped me when I have had (admittedly mild) insomnia. I hope that it helps you too! I always recommend meditation as well. It’s good for the body, mind and soul. It may help with sleep because meditation can help to calm your mind.

      I use a foam roller as well. I think that it helps but it sure doesn’t feel good. Rolling out my IT bands = youch! But I do think that it’s good for me so I do it. :)

      I exploded when I took an advil. I’ll never take an NSAID again if I can avoid it. Here is an article about how NSAIDs form acyl glucuronides and other nasty chemicals because they have a carboxylic acid molecule. It should also be noted that FQs have a carboxylic acid molecule. http://www.researchgate.net/publication/5420247_Metabolic_activation_of_carboxylic_acids (you have to click around to get the full article but you can get it without signing up).

      I would love to hear more reports from people about PRP! Most of what I’ve heard has been positive, but I honestly haven’t heard a lot.

      Regards,
      Lisa

  39. B April 19, 2014 at 1:12 pm Reply

    Hi
    awkward question: How to treat menstrual pain without taking NSAIDs ?
    I know some girl who has ” pain + muscle twitching” probably related to FQ & NSAIDs, while she has to find a way to deal with menstrual pain.

    thanks
    Bo

    • Lisa Bloomquist April 19, 2014 at 1:48 pm Reply

      Hi Bo,

      It’s kind of a predicament, to tell you the truth. I treat my menstrual cramps with the following:

      1. Tart cherry juice – it’s anti-inflammatory
      2. An herbal supplement muscle relaxer
      3. Hot pad
      4. epsom salt baths
      5. Marijuana
      6. Tylenol

      That list is in order of use and preference. I only use the tylenol sparingly. It’s not a NSAID.

      I hope that those suggestions help her!

      Regards,
      Lisa

      • B April 19, 2014 at 6:05 pm

        Cool. Thank you so much Lisa.
        I will advise her try Tylenol instead of her regular Advil. Every month, about 1 week after she took Advil, she feels pain in knees and heels and hip, also muscle twitching, not badly. Thus she can totally live a normal life and pain is not severe.
        She told me she had 12 days of antibiotics two years ago. I think it might be the reason

      • B April 19, 2014 at 6:13 pm

        Tylenon is last choice secondary to herbs.

        TCM recommends silkie chicken soup, rose flower in hot water.

        Cheers

    • Michael Teeter April 20, 2014 at 10:31 am Reply

      Has she tried Evening Prim Rose?

  40. Crystal April 20, 2014 at 6:26 am Reply

    Did anyone else notice that they had problems with facial recognition just after being floxed? I still run into this problem, but much less. Every stranger looked like someone I knew, yet I had more trouble recognizing people I actually DID know.

    • Lisa Bloomquist April 20, 2014 at 8:18 am Reply

      Interesting observation, Crystal! My facial recognition abilities have always been lousy. I have noticed that I feel more panicked and anxious when I have trouble recognizing people or remembering names post-flox. I can’t tell if it’s simply greater awareness or if it’s a symptom.

      • Michael Teeter April 20, 2014 at 10:33 am

        Yes I did for the first month at least. I really had to focus on who I was talking too.
        I believe it was a symptom? It gradually went away.

      • Crystal April 20, 2014 at 11:54 am

        Yeah, it lasted with me for a bit. I remember not wanting to talk about it because it was so bizarre. Now, people with more ‘common’ faces I just have trouble with. And YES! I sometimes totally blank out on peoples’ names, but same here – I don’t remember if that was a problem before.

  41. Crystal April 20, 2014 at 11:59 am Reply

    While reading about Pfizer, I found this ‘cleverly’ disguised article on Wikipedia

    http://en.wikipedia.org/wiki/Abdullahi_v._Pfizer,_Inc.

    it’s about a fluoroquinolone that was tested on children with meningitis, without parental consent. The control group was given substantially lowered doses of the tried and true treatment in order to skew results.

  42. B April 20, 2014 at 11:14 pm Reply

    Hi
    Anything that can help reduce tendon/cartilage pain ?
    Either some food, or juice, or herb, or supplement ..
    Thanks

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