Welcome to Floxie Hope

Hope Clouds

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

An excellent support group for those suffering from Fluoroquinolone Toxicity can be found on facebook.  Here’s the link to the group – https://www.facebook.com/groups/floxies/

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

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2,581 thoughts on “Welcome to Floxie Hope

  1. Jane September 12, 2014 at 5:56 pm Reply

    I’m kind of depressed right now, wondering when I’m going to be able to walk normally again without much pain. Currently I shuffle around like I’m 100-years old with enough pain to make it hard for me to walk more than about 30 feet before I have to stop for a while. Granted, it’s 100 times better than it was 18 months ago, when I couldn’t put any weight on my feet at all, but still, I really want to be able to walk around effortlessly like I used to do before being floxed.

    I just came out of a short relapse that was worse and weirder than usual. I had a headache that lasted for 3-days straight with ringing in the ears, numb lips, sore neck, some heart palpitations, every muscle in my body aching, and really painful tendons making popping noises every time I moved. It lasted 3 days then resolved. I’m back to feeling normal again, with normal for me now being having sore Achilles tendons but everything else okay.

    I’d say I was only moderately floxed. I haven’t experienced the full spectrum of bad side effects that more severely floxed people do, but my tendons got hit quite hard. They were at 10 on the pain scale for the first 6 months. Now the tendon pain falls between the 4 to 7 range, depending on the day and how much I push it.

    Has anyone else been through this? Did you have long-lasting tendon pain that ultimately resolved enough to enable you to walk normally again without a lot of pain? I used to run 10K races, but now I’d just be happy to be able to walk around my house without wincing.

    I also can’t make any fast movements without a tendon pulling. A couple of weeks ago, I hurt a tendon in my shoulder when I quickly slapped a mosquito. It feels better now, but it hurt for days afterwards.

    • Melanie Kemp September 12, 2014 at 6:13 pm Reply

      I understand Jane.
      I didnt get much in the way of tendon stuff.
      Mine is more how youre relapse sounds.
      Wierd head..aching all over..nausea.Ive lost 33 pounds over the last few months.My relapse has been going on for 4 months now.
      its very depressing indeed

    • Lisa Bloomquist September 12, 2014 at 7:48 pm Reply

      Jane and Melanie,

      Hang in there. I know that it’s difficult when you’re in the middle of hardship (and it is really hard and horrible – I’m not trying to minimize that in any way) but if you can keep in mind how far you’ve each come, I think that it helps in making this difficult time pass. Jane, you have come far in the last 18 months. I know that where you are right now is still frustrating and painful, but it is far better than it was, and that’s something to celebrate – or at least keep in mind. Tendons and nerves are slow to heal – but your progress shows that your nerves and tendons are healing – albeit slowly. Melanie, I know that this set-back is devastating and I am so, so, so sorry for all that you are going through! You healed once though. You can heal again – and you will. I wish that the healing process was faster. I really do. Hugs to both of you! I think that you’re both amazing, strong and resilient women!

      Best regards,
      Lisa

      • Melanie Kemp September 12, 2014 at 8:08 pm Reply

        Thank you so much Lisa for youre kind words.
        it has been extremely challenging and ive once again had to stop working.
        I try but it wears me out and the following day im good for nothing.Im a dog groomer so it takes some energy snd I dont have much of that right now.So I think for now its best to just take care of myself.
        Ive spent many a day on the phone with my mum.Sometimes crying.But she’s been a blessing and keeps reminding me that I got through this once and I can do it again.
        Im just so tired and drained and have become very depressed.How can it not make one anxious.
        I wish I where closer because even at my age I could do with having her here but im in the States and she’s in England

        • Jane September 12, 2014 at 9:52 pm

          Melanie, I completely understand what you mean. I’m far from home too. My family is in the USA, and I’m in Panama. It’s just my husband and me here. He’s been very helpful and supportive though.

          Like you, I’ve lost a lot of weight too, and I was on the thin side to begin with. I’ve experienced muscle wasting and can’t seem to build any new muscle either. I spent months on crutches and should have built up some solidly-toned arms, but they look like toothpicks, and I look like a scarecrow.

          It will get better for us, but meanwhile, it is frustrating and can get depressing at times. We just have to keep hanging in there knowing that this will pass.

        • Melanie Kemp September 13, 2014 at 9:06 am

          Hi Jane.
          I think not having my mum close is really hard for me.Shes such a rock and id love nothing better than to be in England right now with her.
          Its a trip I dont have the energy for unfortunately

          I did get through this once so I can only hope I get through it again.
          I just wish I wasnt so inclined to lose so much weight rapidly.
          Ive always been the same.Cant for the life of me force food down.Plus ive become so sensitive to lots of foods so its s battle.
          I know we should stay positive but honestly its difficult sometimes.
          Hugs !!

        • Destruida los Restos September 13, 2014 at 11:35 am

          Try Dr. Schulze’s Superfood Plus. It’s marvelous and I’ve recommended it to several very old people who had little appetite or poor digestion and were fading away – they’re all plump and jolly now! It saved me when I couldn’t eat anything at all.

        • Melanie Kemp September 13, 2014 at 3:12 pm

          Thank you Destruida
          I will take a look for that. :)
          Are you feeling any better at all

        • Destruida los Restos September 14, 2014 at 3:25 am

          Um, from the neck down, I’ve stopped getting worse and am a tiny bit stronger, the tinnitus has diminished, but all the CNS problems are relly bad, not improving at all, perhaps worsening. Memory and concentration back to about five seconds’ span, very weepy and unhappy, can’t “pull myself together” at all, sight very blurred – and so lonely in Spain, ‘cos when I took the Noroxin I didn’t even live in Spain, was just travelling through and had no friends or anything here and I never managed to get home to France, where I had 30 years’ residence, rights and friends. Am feeling very sorry for myself! :(

        • Destruida los Restos September 14, 2014 at 6:17 am

          I understand so well. I’m 67 and my mother died in 2001, but I long and long to be in my childhood bed with her there.
          This morning I started taking St. John’s Wort again, as I feel so depressed and it does help a lot. (Takes 2-3 weeks.)

      • Jane September 12, 2014 at 10:54 pm Reply

        Thanks, Lisa. Yes, I have come very far compared to where I was 18 months ago. After a worse than usual relapse or when I’m stuck in a plateau, sometimes I panic and wonder if I’ll ever be pain-free again. Part of me knows that it will all work out, and I’ll be stronger for it in the end. Another part of me is afraid and very frustrated.

        It really helps to be able to talk to others in the same situation, though I wish none of us had to go through this and that we were all healthy and whole. Thanks for giving us a place to talk and for all the great information. It helps a lot.

        As floxies our situation is a peculiar one. Though our malady is well-documented, and we’re in desperate need of care, the medical community refuses to acknowledge us, let alone help us. Many of us only have each other.

        My doctor was better than most. He believed me, gave me crutches, heel lifts, and braces and told me to take magnesium and Vitamin C. After that there wasn’t much more he could do. Medical researchers haven’t given even those doctors who want to help us any real tools to work with.

    • Destruida los Restos September 12, 2014 at 10:11 pm Reply

      Jane, I was very badly affected and in dredful circumstamces. For most of the first four years I could hardly walk, speak or think, couldn’t red or write more than one line on paper.. I recovered after five years so much that I was running, jumping, dancing, reading and writoing. (Then I ate some posioned soup from a wicked old woman and now am in a bad way, but I’m 67 so it’s not surprising.) So you should recover and run again, too.

      • Jane September 12, 2014 at 11:37 pm Reply

        Thanks, Destruida. It really helps to hear about how well you initially recovered, and from a more severe floxing than mine too. I’m sure you’ll heal again, much faster than last time.

        I look forward to the day when our stories are in the Recovery Story section, and we’re running, jumping, and dancing again.

        • Destruida los Restos September 13, 2014 at 12:26 am

          “I’m sure you’ll heal again, much faster than last time.” Thank you and, even if I don’t, at least I had those few weeks and boy, did I savour every second! That’s what we have to do – try to be cup-half-fullish about our own lives but honest about the dreadfulness of the situation.
          Perhaps you should add your doctor’s name to the list on the Facebook page.

        • Mark September 13, 2014 at 2:02 am

          Destruida,

          You were able to run, jump and dance 5 years after getting Cipro and then suddenly because of a chicken soup fell back into this mess???

          There has got to be something else in these side effects.
          I’m not buying the cellular damage alone.
          We have to try to find what causes a relapse like that.
          I mean wtf? Traces of antibiotics causing a months long relapse, working out sending someone back down in this spiral of Cipro side effects.

          Does anyone here have an idea what it could be?
          Which tests could be done?
          I used 23andme and am on the pursuit of dna testing.
          There’s something fishy going on here in our bodies, doesn’t make sense. :/

          Imho it feels like a little unknown thing that just needs to be fixed, not a mulitple system shutdown.
          Whatever this unidentified problem is, is what we need to solve to be truly healed and I mean completely healed.
          For me, I’m not healed if I can’t work out and eat non-organic chicken…

          To find out what it is, that’s what we all have to try our hardest.
          Literally as if our lives depend on it.

          Mark

      • Michael Teeter September 13, 2014 at 8:29 am Reply

        This is my Theory Mark,
        I think the FQs lay dormant in us and something causes a panic reaction in our immune system that knocks us for a loop. Whether it is Fluoride in something. Or FQ’s in our foods what have you. That is just my thoughts on it,

        • Destruida los Restos September 14, 2014 at 5:58 am

          Mark and Michael, you need to study for at least six years just to have enough basic knowledge to understand what is already known, let alone do research or contribute realistic hypotheses!

        • Mark September 14, 2014 at 8:43 am

          I respectfully disagree.

          Those that did study for 6 years tend to be very ignorant stagnant and not searching for new stuff regarding ciprofloxacin.

          My family has 4 doctors and I know that after finishing their studies it’s more or less daily work and no new stuff for them.

          What it needs for this mess to clear up is either a smart doc with lots of researcher friends getting sick or several lawsuits (won or lost) to urge the government to fund new studies for treatment options.

          Believe it or not but a week of study searching in the internet makes you the cipro expert compared to your usual doc.

          Mark

        • Destruida los Restos September 14, 2014 at 9:13 am

          As you wish.

        • Mark September 14, 2014 at 10:05 am

          What do you mean?

          What I’m saying is rather than counting on doctors and just letting the days slip by we can be much more goal oriented and active by reading studies and creating our own theories.

          Imho doing that and going after the doctors that gave you Cipro are the 2 most important things next to taking supplements.

          Mark

        • Destruida los Restos September 19, 2014 at 7:47 am

          I’ll try to explain what I mean when I on’t feel so awful, otherwise I might just be cross and snappy. :)

        • Jimmy September 14, 2014 at 1:03 pm

          Destruida, so you are stuck in Spain since floxing? You have not made it back to France for years? I had lived in Paris for 5 years and got Floxed while in Los Angeles for business and had to stay the last 15 mos. Maybe you can see your healer again? Do you think St. John’s wart is better than the homeopathic version?
          And regarding your discussion with Mark if I may add something which is known because it is fact. And on the basis of that gas that we may never know exactly what is happening to us from the drug even though in my opinion I suspect it is one mechanism initially and then it becomes several things cascading out of control which leads us here… The fact is these drugs were created for chemotherapy and cancer. They did not work but scientist recognized their incredible antibacterial component and the pharmaceutical company labeled them as such and marketed them to the public. They were created many years before it was even discovered that mitochondria exist in ourselves and how they work. I had nearly recovered after eight months, then I took some chlorella and a stomach enzyme and had a massive relapse that has caused cascading effects and ultimately put me in a wheelchair last month at 15 months post flox. I just spoke with a seven-year floxie who is working with two PhD’s to try to make sense of some of this. He believes it was the stomach enzyme or the combination and it caused drug that was stored in my tissues or in my liver to come back out and wreak massive harm. Of course we all have opinions and that is his. We have to detox at our own pace. And by the way I also recently spoke with someone who had recovered after three years… Had several years of recovery… And had a full relapse after eating some organic chicken. He is a scientist and believes that even organic meats and eggs can have trace antibiotics from the many years of pumping animals with them. So I have gone vegan and my pain has diminished in half. My tendons are actually feeling better as well. I had been vegan for many years and only began eating meat again a few years prior to being Floxed because I was trying to put on a little more muscle. I will happily do without that muscle and continue to be vegan the rest of my life if it will keep me feeling better… Not to mention that I have more reasons for doing it as well just like you. Since everyone has one, what is your opinion after several years… As to what is going on here?

        • Destruida los Restos September 14, 2014 at 7:39 pm

          Chlorella and spirulina are algae that absorb almost any of the things that are toxic to us, such as heavy metals and quinolones. Most of the chlorella and spirulina on the market is harvested from river estuaries, where pollution is most concentrated, so the algae are already loaded with toxins and when we take thm we add to the toxic load on our systems instead of diminishing it! Lots of people, with various pathologies, relapse violently after taking those products. (The algae in Dr. Schulze’s are harvested from nland lakes fed by very deep springs.)
          Too tired to write more and was conned and robbed on Friday – 400€, nearly a month of my pension, feel such an idiot and very miserable. I haven’t even got a mattrress, fridge or wshing-machine and now I’ve lost 400€. I have such dmentia.. ..wicked old woman with her bloody dead chicken, wih I could go home.

        • Destruida los Restos September 15, 2014 at 2:55 am

          The two are quite different. Homeopathically potentised hypericum perforatum (St. John’s Wort) is the first-line remedy for injury or trauma to nerves and helps them to regenerate; it’ll help to stop or reduce neuralgia (nerve pain) and that ‘ma’ feeling in teh nerves and can help your nervous system to regain better funcionality. It’s also completely safe, like all homeopathic remedies.
          The same plant as an extract (or even an infusion, but that’s less effective) is used to treat dperession (it lifts one’s spirits) and anxiety (it calms) in other words, it helps to regain emotional equilibrium. Look in Google Academics and you’ll see that it’s as effective as SSRIs. However, there are people who don’t tolerate it and there are many drug and food interactions, which should be checked before using it.

        • Destruida los Restos September 15, 2014 at 3:23 am

          ‘nother typo! I meant ‘mad’, not ‘ma’!

        • Lisa Bloomquist September 14, 2014 at 3:44 pm

          Mark – I think that it’s interesting that the people who have doctors as close relatives are the ones that encourage suing the doctors who hurt us most strongly. You’re not the only one. The spouse of a doctor put up on one of the facebook groups, “This will never change unless we all sue our doctors for all they’re worth.” Perhaps you guys are right. Unfortunately, the law is stacked against us. I am glad that people are trying though. I got rejected from a lawsuit because I took generic cipro. I also have a shitty case for various other reasons. I hope that those who are seeking justice get it though. Lawsuits are one way to make them hurt.

          Jimmy – I just had an AMAZING vegan black bean dip. I got it from a store, but here is a link for it if you want to try it – http://store.veganessentials.com/organic-cashew-cheese–black-bean-dip-by-beyond-better-p4155.aspx

        • Jimmy September 14, 2014 at 4:13 pm

          That looks super yummy Lisa. Thank you! Going now to order some!

  2. Michael Teeter September 13, 2014 at 5:20 pm Reply

    Well I got my labs back My Miscellaneous hematology Sed rate is 32 so i think that is High.
    My serology Cyclic Citrullinated peptide AB, S is 1.2 so I think that is normal.
    My dsDNA AB screen is Negative.
    Anti-Nuclear Antibodies
    ANA Titer method 1:2560 so lots of inflammation and possibly Lupus or auto immune or disorder or cancer.
    ANA pattern Homogeneous
    suggest testing for anti-dsDNA to determine what the cause is.

    My ENA came back negative.

    Anyone else have labs similar to these.

  3. rene September 14, 2014 at 6:05 pm Reply

    Jimmy,
    The Chlorella that you took is a tip off that detox is very difficult for you, in that you have an impaired ability to do so, which caused you to have a so called relapse. My opinion is that based on that extreme negative response you had to the Chlorella you like me have underlining issues with detoxification (trans-sulferation) pathway which is responsible for recycling glutathione. This means that when up against the burden of toxic agents in the environment from foods, beverages, air borne pollution etc…you will accumulate versus dispel effectively. That in itself causes oxidative stress, and a vicious cycle. You may respond well to a Magnesium IV & Vitamin C IV. I would not do any chelating IV’s for metal toxicity, very risky for someone who had negative response to Chlorella.

    I had a very severe response to Chlorella many years prior to my Cipro injury. Just dealing with Lyme. That made me so ill, I felt like a science experiment in a petrie dish. I know that I can never take or receive aggressive treatments that will chelate metals. That is way to radical for me, and does not address the issue. Many well meaning holistic ND’d & MD’s believe that the very ill who have heavy metals and are suffering chronically for years, just need to use chelating methods to rid the metals. There are other means, that take a longer time, but safer for folks like me.

    That does not apply to those, like myself whose pathways for detoxification are only partially working. The demand/burden is too great now that I also have Lyme, Metals, & Cipro injury.
    The organic food is not 100% free of stuff, it is the better option though.

    Consider taking:
    (NAC) N acetyl cysteine daily. 500mg (precursor to glutathione)
    Lithium Orotate 5mg – take 1/4 of tablet ( safe transport of B12 into cells)
    Phosphatidylserine (Brain)
    Zinc picolinate(wounds & many enzyme processes in many systems)
    Magnesium Citrate
    Lifewave Y-age Glutathione patch.

    God Bless,
    Rene

  4. steve September 15, 2014 at 6:25 am Reply

    well… where do i start. i think i may be a fellow floxie. hello.

    all the symptoms and a few other ones..

    i have been tested for leaky gut and i have shown positive on that, also i have lymph nodes swollen all over abdomen some in chest and a slight start in armpits, they hurt swell a little and then stop hurting, my bloods are coming back ok everytime, i feel my red blood cells are dropping slowly, some kind of anemia setting in, my thyroid took a whack and dropped a whole point from 2.30tsh to 1.07 at its lowest i see, it was recorded at 1.44 and was tested again 2 weeks ago so ill have the result to see if its dropped again, my testosterone came in low 7 and my liver ALT was recorded 2 days ago at 45 the lowest ive seen it in all this time, even tho i was taking amitriptaline and glutamine i thought they was meant to irritate it further? my bilirubin is up as well which is new it is 22 the range goes to 21 so something is up there. apart from that WBC goes up a little here and there, but nothing crazy never outside the range, and my lymphocytes fluctuate a little too, i remember seeing low potassium and phosphates at one point when i was at my worst

    i have extensive medical history if anyones interested and i have an abundence of info, but to be honest i feel ive been floxed slightly OR its slowly coming in, i too made the mistake of ibuprofen and cipro together, started with gut issues, then i couldnt go to the toilet even tho toilet was soft terrible pain around illeocecal valve area, (lower right abdomen) then i went on fast forward and could go to the toilet 3-5 times a day with clear mucus, that then slowed and went back to normal once a day in mornings and mucu stopped but i swear i used to digest food better than i do now, at worst i get cramping feeling around large bowel. rarely from small bowel area, and my lymph nodes swelled around abdomen in that shape, i also got neuro pain, fingertips sole of right foot, i get mottled palms if i stand or walk, eyes have floaters and a little pixel flash in right eye sometimes, twitchy right eyelid, insomnia problems, im able to exercise but i dont overdo it as heart seems to have a good thump when im walking (120bpm) but being outside is weird like vision is really weird, ive tried to consider maybe its all the computer screening i do where i stay in bed alot of the time, and dont really get out much no more, image afterburning in eyes, throat feels like it partially closes sometimes, stomach buring stopped after taking: garlic caps, oregano caps, slippery elm, DGL, i think my hunger is coming back (stomach rumbling) but im going to keep watch as last time that turnt to burning and acid, and ill get straight back on the slippery elm, pain is spots in back neck legs and spaces between knuckles? it seems tendon areas tbh, near joints but not at the joints, joints are noisy sounds like breaking vegetables when i do the muscle man pose, memory issues, concentration etc, anxiety depression, can be ok one minute and boom next im terrible, greasy skin, flaky skin, sweating issues, dry mouth/throat, and my skin feels ‘sick’ sometimes weird way to describe it but its the best i can offer and probably loads i cant remember

    also heres one…

    the colour of your fingernails is it paler? and also the white part of your fingernails have they retreted slightly towards your knuckles? mine did.

    im taking allsorts started L-glutamine a week ago, magnesium 250mg again last night, (any help on magnesium dose?)

    i take daily:

    garlic 500mg x 3
    oregano 150mg x 3
    cod liver oil 1000mg x 1
    natural essentials digestive enzymes x 3
    l-glutamine 5g x 2
    magnesium 250mg x 1
    centrum a to zinc x 1

    i have but dont take:
    25 billion probiotic
    peppermint oil
    mastic gum
    slippery elm

    ive ordered:

    colliadal silver
    psylium husks
    caprycilic acid 500mg tabs
    epsom salt
    st johns wort 1000mg
    dr schultz superfood

    i need some answers and conventional medicine isnt working, im in east london UK anyone else from round here? naturopaths are few and far between i have no clue what to do docs and hospitals think im nuts any ideas etc peeps? thanks

    also just a thought, when you mention what your taking on here always write the MG of what supplement :)

    steve

    • Destruida los Restos September 15, 2014 at 9:21 am Reply

      Read through the messages above; there are sevral people in Britain who’d be glad to be in touch – Catherine and Janet to name but two.
      Don’t bother with colloidal silver – dunno why you ordered it, but it’s pointless.
      I wouldn’t take the caprylic acid (presumably to suppress candida?) as it may kill or counteract the value of the algae in Dr. S’s. Anyway, it’s better to eat a diet that’ll discourage candida and forget the allopathic attitude.
      Slippery elm’s lovely, isn’t it? I’d get a small amount of acitivated charcoal (Baldwins are best – http://www.baldwins.co.uk/) That’ll help your tum – take it daily until you don’t need it; if using slippery elm, take the charcoal first and the elm later.
      Buy the simple, powdered herb whenever possible – you pay a fortune to have it compressed into pills or put into capsules. You can buy capsules (veg or gel) and do it your self if you want to. Otherwise, use the liquid extracts, but from a reputable company.
      Epsom salts are great, but I wouldn’ty bother with most of the rest and certainly not peppermint oil if you consider using homeopathy.
      Garlic and so on are best eaten fresh, if possible. I eat several cloves every day and have done for decades; also herbs and spices. Whole, local foods are best. A lot of the stuff people take and talk about is just a way to keep occupied while you wait to recover, but it’s great for supplement companies. Don’t patronise Holland and Barrett – it belongs to Cargill!

    • Jane September 15, 2014 at 3:46 pm Reply

      Steve,

      I’ve had some of those issues. Some acid reflux, though previously I’d had a cast iron stomach that was never upset by anything. A feeling of throat constricting a bit sometimes, usually accompanied by jaw feeling stiff and burning mouth syndrome. Occasional mental flakiness, though racing mind is more of an issue. Weird skin, oily one day, dry as a desert the next, and often with an odd waxy texture. Bouts of insomnia, then phases when I sleep 12 hours a night.

      I’d chalked a lot of this up to perimenopause, since I’d experienced these symptoms before being floxed. Of course, I had taken several courses of FQs over the years that I thought I had tolerated with no side effects. Maybe I was wrong about that, and these were the first signs that I was hitting my limit. I was already experiencing a strange intolerance to coffee and infrequent odd tics and twitches around the time that these other symptoms cropped up, and this was prior to taking the final course of FQs that floxed me beyond any shadow of a doubt.

      Like you, I’ve noticed a difference in my fingernails. For a year they were pale white and moons were hard to see. They also have noticeable vertical ridges now, including a few that are big and lumpy. The ridges seem to be growing out though. The older two thirds of my nails have ridges and the newer third is smooth, except for where the bigger ridges are. The normal color is slowly returning too. Maybe this is a good sign.

      I can’t offer much advice in the way of supplements. Where I live, I had to call all around town just to find Magnesium Citrate. I’m taking a good multivitamin/mineral supplement, Vitamin C, Magnesium Citrate, and Calcium Citrate (taken separately from the Magnesium and in a 1:1 Calcium to Magnesium ratio).

      The rest of my nutrients I get from food, Omega 3 fish oil from a small can of sardines every other day, probiotics from organic kefir and yogurt daily, 6 oz. of stevia-sweetened cranberry juice daily as a vasodilator (note: drinking too much cranberry juice can cause kidney stones). I eat a ton of veggies, sprouts, and greens, raw or steamed. Moderate amounts of fruits, beans/lentils/legumes, whole grains, nuts or seeds, mostly flax, chia, and sesame seeds. Extra virgin olive oil is the only oil I use, and I add a little raw, unfiltered apple cider vinegar to it to make a salad dressing. Garlic, turmeric, and/or ginger to spice things up. I’ll have organic eggs if I can find them, but hard to find here. I’ve eaten less than 2 dozen eggs in a year and a half. Sometimes I’ll have decaf green tea or rose hips tea sweetened with stevia.

      I also keep a bar of chocolate made of 90% cocoa in the fridge and occasionally have some, nibbling on it a square at a time. I eat about one bar a month. Real dark chocolate in moderation is healthy, and it’s high in magnesium. The taste is more akin to coffee with a cafe mocha flavor. I enjoy it, since I can’t have coffee anymore.

      • Marie September 16, 2014 at 12:43 pm Reply

        I am writing to you from Sweden.

        I have never taken fluoroquinolones but a friend of mine did.
        That´s when I started to look for information on the Internet and found the book Bitter Pills by Stephen Fried and lots of stories of people who had been floxed.
        I had never heard of it before. .This happened in 2004 and my friend passed away in 2007 (I feel that some of his problems could have been caused by medications).

        Last Saturday I read a local paper.
        One of their reporters is suffering from cancer and has gone through several chemos. Now and then,, he writes about it and this time he had added a photo of one of his finger nails.

        He wrote that the oncology nurse had told him that the ridges on his finger nail was from this treatment.

        • SM September 16, 2014 at 4:38 pm

          Yep, many floxies have those ridges. I do.

        • Lisa Bloomquist September 17, 2014 at 8:46 am

          Hi Marie,

          There was a great article floating around the internet a while ago about what your fingernails say about your health. I can’t seem to find it right now – or I’d link you to it. But, indeed, a lot of floxies have pronounced ridges in their nails. It is definitely a sign of ill health / being poisoned / cellular aging. :/

          Regards,
          Lisa

        • Destruida los Restos September 17, 2014 at 10:29 pm

          Isn’t it because of an imbalance in the formation of elastin and collagen? Or perhaps I should say elastin vs. collagen? I’m afraid I’ve rather assumed that and have never verified or collected proof, but I will and will let you know. Many of us now have skin that’s papery and inelastic, like very old people; our tendons go soggy but then stiff and fragile (inelastic) – isn’t it all because the fibroblasts are damaged and aren’t manufacturing connective tissue correctly?

        • Destruida los Restos September 17, 2014 at 10:49 pm

          Yes, that’s the simple explanation, though of course it’s really more complicated. Here’s the Google academics page for the search “role of elastin and collagen in aging nail structure,” which i used because we’re chemically aged. (Sounds quite distinguished, like brandy being aged in oaken casks.) : http://tinyurl.com/on4vbuv

    • Brandon Block September 19, 2014 at 5:32 pm Reply

      Steve — I am also in London, have been seeing a naturopath/M.D. He didn’t know much about floxing when I started seeing him, but now knows a bitmore, and is knowledgable on both gut and mitocondrial issues. Write to me for more details: bblock99@gmail.com

  5. Michael Teeter September 17, 2014 at 12:44 pm Reply

    Oh here is one from webmd. http://www.webmd.com/skin-problems-and-treatments/features/what-your-nails-say-about-your-health

    I have read others though.

    Mike Out

  6. Michael Teeter September 17, 2014 at 1:08 pm Reply

    Hello gang,
    Friendly neighborhood wheel chair man here! I have been able to walk some with the help of a cane. I am definitely seeing some changes. It ain’t no cure but it is a start.

    I have been researching enzymes and their uses in treating people. The study of enzymes is called enzymology. They are responsible for thousands of metabolic processes that sustain life. Enzymes are highly selective catalysts, greatly accelerating both the rate and specificity of metabolic reactions, from the digestion of food to the synthesis of DNA.

    I am currently taking a few. One it is Serrapeptase enzyme 40,000SPU. It is a proteolytic enzyme isolated from the non-pathogenic bacteria Serratia species found in the Japanese silk worm.

    Here is an article from doctor Weil on it.

    http://www.drweil.com/drw/u/QAA401051/Enzymes-to-Fight-Inflammation.html

    The other I take is a product called Multizyme by Standard Process, in it there is an enzyme in the almond bran. Also figs. It helps people with digestive problems.

    Here is another article on enzymes that I found.

    Amylase is the enzyme that helps us to digest carbohydrates. When you take it on an empty stomach it has antihistamine effects and alleviates inflammation linked to skin conditions, particularly when combined with lipase. Amylase is also well suited for athletes because it increases joint mobility and relieves muscle pain and inflammation.

    Bromelain is helpful in treating swelling and inflammation that is linked to injuries, surgery, swellings, and broken blood vessels; menstrual hemorrhaging; and blood clots.

    Catalase helps relieve inflammation linked to injuries, particularly when fluid-retention and edema are involved. This enzyme also functions as an antioxidant, which scavenges free radicals and prevents them from causing additional health concerns.

    Chymotrypsin is effective in treating inflammation, abscesses, wounds, and blood clots before and after tooth extractions and other dental work, as well as after surgeries.

    Lipase is particularly good for alleviating lymphatic swelling and muscle spasms linked to a calcium deficiency.

    Papain is helpful against insect stings and can help treat inflammation linked to gluten intolerance, swelling, and wounds.

    Protease supplementation is excellent for inflammation that tends to benefit from ice packs. It also alleviates soft tissue trauma linked to accidents or surgery. Like lipase, protease is also good for muscle spasms if they are linked to a calcium deficiency.

    Trypsin is helpful for treating wounds, abscesses, blood clots, injuries, and inflammations.

    Read more: http://www.care2.com/greenliving/treating-pain-and-inflammation-with-enzymes.html#ixzz3DbZaALJG

    Mike out.

    • Lisa Bloomquist September 18, 2014 at 6:26 pm Reply

      Hey Mike,

      Thanks for the info on enzymes!

      I’m going to start my response with my typical disclaimer. I’ve thought that I’ve gotten to the bottom of FQ toxicity symptoms multiple times. Every time I think that I know something, another new complication comes up. Basically, our bodies are incredibly complicated. It’s entirely possible that our capacity for comprehension is not large enough to understand what is going on in our floxed bodies. But it’s still worth trying to do.

      With that said, here are my thoughts –

      Fluoroquinolones are topoisomerase interrupters. Topoisomerases are “enzymes that regulate the overwinding or underwinding of DNA” – http://en.wikipedia.org/wiki/Topoisomerase. I think, that in addition to disrupting the enzymes necessary for bacterial DNA replication, FQs disrupt other enzymatic processes. I think that they do this through depleting intracellular magnesium. Magnesium is a vital catalyst for 300+ enzymatic reactions (http://en.wikipedia.org/wiki/Magnesium_in_biology). When intracellular mag is depleted, the cellular enzymatic reactions don’t work properly. This is especially problematic when ATP gets messed up because it’s the process through which our cells produce energy. Anyhow, I’m betting that a good portion of the enzymatic reactions that you listed got messed up by FQs. Unfortunately, as Dr. Weill mentioned in the link that you posted, replacing enzymes isn’t as easy as taking supplements of the enzymes because they are destroyed in the digestion process. They need to be made within the cells. To get your cells making enzymes properly, you need to give your cells the cofactors that they need in order to make the enzymes. I know that magnesium is a very necessary ingredient. I think that B vitamins are pretty vital too. There are probably multiple other things that are necessary. I think that supplementing magnesium and B vitamins is a good place to start though. I just wish that it was a fast and easy fix. It doesn’t seem to be though.

      I get my B vitamins through Brewer’s yeast. I think that it’s helpful (but it’s high in purines so ppl with a history of kidney stones should be wary of it). I also supplement mag and iron – which I also think are helpful.

      Best regards,
      Lisa

  7. Sophia R. September 18, 2014 at 8:14 am Reply

    I feel really bad for a lot of the posters. I was given cipro 500 for a UTI. After only 2 doses, I knew something was wrong. I stopped immediately and looked up cipro adverse reactions. I’ve worked in healthcare for over 20 years and pharmacy for 12 years. I knew all of the signs that I was having an adverse reaction. After doing a little research, including this page, I learned that most reactions are because of lack of magnesium. Well the best source of magnesium is Espom salt. I immediately drew a bath and filled it with epsom salt, apple cider vinegar and bentonite clay. These are three of the best detoxers in the world! They pull toxins from the brain, liver and kidneys. Luckily I had all three on hand. I filled the tub with VERY hot water and soaked from my neck down until the water ran cold. I did this 3 days in a row and my symptoms started to reverse. I know it may be too late for some of you but if you know anyone that does experience cipro poisoning, please tell them about this recipe! Good luck.

    Simultaneously, I was drinking 1 tsp. epsom salt mixed with 8 oz. of water. I alternated that with 2 tsp. apple cider vinegar mixed 8 oz. of water. This help with an internal detox.

    I continue to take the detox baths once a month. I drink the ACV drink once a day. I know that these things help me. I suggest trying these ingredients to see if they can help you.

    • Angie September 18, 2014 at 12:40 pm Reply

      Hi Sophia – thanks for the info. May I ask what were your symptoms? Thx.

      • Sophia R. September 18, 2014 at 4:37 pm Reply

        Hi Angie, I took my first dose in the evening I got my prescription. Everything was fine. I took my second dose in the morning. By mid morning I was experiencing burning pains in my feet and hands. My feet felt like someone was pouring hot water on them. Then I started having pains in my joints. My ankles, elbows, knees and wrist were the worst. Then I became dizzy. I started having chills without a fever. Since I was diagnosed with pre-diabetes, my first thought was to check my blood sugar. It was within normal range. Then I became lightheaded and tired. At this point it was evening time. I went straight to the drug index and saw the interactions/adverse effects of cipro was neuropathy. I knew that was what I was experiencing. I then started researching cipro toxicity and a lot of the sites mentioned magnesium deficiency as a factor in people who were diagnosed. So, I first threw away the cipro. Then I started drinking the apple cider vinegar. I drank it every 3 hours while awake. I also started my detox bath. The first day I felt a little better but I still had symptoms. After 3 days of baths and drinking ACV, I felt ten times better. I still occasionally feel twinges of pain in my joints. Whenever I do, I take a detox bath!

        • Angie September 18, 2014 at 5:25 pm

          Sophia – I experienced the exact same symptoms as you after taking the second tablet. Just like you I threw the rest out. I’ve just started the magnesium baths. Haven’t did the magnesium supplement as of yet. I always see magnesium come up when talking about cipro. Did you use a particular brand of magnesium that you really liked. I also hear good benefits regarding ACV.

        • Lisa Bloomquist September 18, 2014 at 7:15 pm

          Sophia, you may find this article to be interesting –

          http://www.medical-hypotheses.com/article/S0306-9877(14)00217-5/fulltext

          I’ve been in touch with the author. His contact info is on the article. He’s very nice and if you have any questions about it, I would think that he would be happy to answer them.

          Here is the post that I wrote about it – http://www.hormonesmatter.com/fluoroquinolone-antibiotics-diabetes-risk/

          The connection between fluoroquinolones and type 2 diabetes is interesting – and frightening. Intracellular magnesium depletion via drugs is a very, very bad idea. Epsom salt baths and mag supplements are what we can do to combat it. I’m glad that you’ve gotten going on those so quickly!

    • Lisa Bloomquist September 18, 2014 at 6:55 pm Reply

      Thanks Sophia! I think this is great advice for those who are newly floxed who have an immediate reaction to a FQ! Detox and get some mag into yourself – immediately!

      This article suggests that NAC supplementation is also helpful – http://www.bu.edu/abl/files/stm_kalghatgi.pdf. I think that it’s also best when done asap after taking a fluoroquinolone.

      It’s nice that you had an immediate reaction, so that you could identify the cause of your issues and so that you could detox immediately. Many people, myself included, have delayed adverse reactions. I think that this is because of the damage cycles that occur with mitochondria – they self-perpetuate damage until the threshold for damage is crossed – sometimes a while after the drug has been taken. Also, the magnesium depletion that you mentioned on facebook likely has to do with both the mito damage and the delayed reactions – it takes some time and maybe multiple insults to deplete “enough” mag to trigger a reaction.

      My adverse reaction was also brought on by taking NSAIDs (and my period – hormones play a role though it’s not entirely clear what that role is). Many floxies are unable to tolerate NSAIDs (but there are some exceptions) and I think that the carboxylic acid molecule in both FQs and NSAIDs is behind that contraindication.

      I’m really glad to hear that you recognized, caught and treated your reaction so quickly! I hope that you continue to feel well!

      Regards,
      Lisa

      • Sophia R. September 19, 2014 at 12:54 am Reply

        I agree Lisa. I do think I was lucky to have the reaction so quickly. But this was actually my 5th time taking a floxy. I had previously been prescribed levaquin twice for a post-op infection and cipro twice for a uti. I was shocked that I had any reaction considering nothing happened the first 4 times! But I am not a fan of NSAIDs. They cause more harm than they benefit. I strictly only use Tylenol. Which I used those first three days because I had horrible headaches with the joint pain. Like I said, I do feel twinges now and then, but I take my detox bath immediately.

  8. Melanie Kemp September 18, 2014 at 1:03 pm Reply

    What do you do when you lose hope.
    Ive tried to stay positive but every day I seem to get worse instead of better.
    ive lost 40 pounds that I couldn’t afford to lose.
    I have so much going on ive come to the bottom of my barrel.
    I beat it once but not sure I’ll be that lucky again and this is not living.
    I cant even leave the house now.
    Ive really lost any hope that I had and im in such a depression I feel like I just dont want to wake up another day.
    Sorry for being so down.
    Only you all truly understand the severity of this.
    I just feel like I have nothing else to hold on to.

    • Angie September 18, 2014 at 2:06 pm Reply

      Melanie – I dome times feel the same as you. It gets very frustrating but you just can’t give up. You successfully did it once so who’s to say that you can’t do it again! There are days that I get so tired of constantly being in pain but I know that deep down I can’t give up. My mind tells me to but my HEART says other wise. You will be ok as I’m sure that we all are because we have to keep our FAITH in tact. GOD is good all the time! I will say a special prayer for you tonight. I had Chinese good for lunch with a friend at work yesterday. I kid you not I never eat the fortune cookie that automatically comes with the meal. This time I just opened it up and it said “you will make a change for the better.” That’s my fortune to you Melanie. Take care!

      • Angie September 18, 2014 at 2:08 pm Reply

        Sorry for any typos!

      • Melanie Kemp September 18, 2014 at 3:54 pm Reply

        Thank you Angie. That means a lot to me.

        • Angie September 18, 2014 at 6:06 pm

          Melanie you are so welcome! I’m so glad that you are going to go visit with your mum and the rest of your family. May be that’s just what you need ; some good ole fashioned family healing! Have a safe trip! God bless!

    • Jordan September 18, 2014 at 4:48 pm Reply

      Melanie,

      I understand what you are going through. I am still trying to make my way through this relapse after being fine for almost 4 years. It is not fair and it is not easy, but we truly must hold on to faith and hope. When I feel really horrible or think my life is over, I try to think about all of the good moments of my life and all the things that I still have left to live for. I just learned today that my wife is having a baby, and getting better by the time he/she is born is going to be my hope and inspiration. You need to find yours and hold on to it as if your life depends on it. You will get through it again. The road may be long and it may be hard, but if we beat it once, we can do it again. Stress and anxiety will only compound itself and make all of your symptoms much worse. My symptoms skyrocket when under stress. Please hang in there and I will say a prayer for you tonight. God Bless.

      • Melanie Kemp September 18, 2014 at 5:17 pm Reply

        Hi Jordan
        Thank you so much for youre kind words.
        Congratulations on the baby :) Thats really something to look forward to.
        Im going to go home to England for awhile to spend time with my mum and family and it will help me de stress.
        Its difficult to not stress over this and my anxiety is high .I know it makes it worse but hard to stop.
        again thank you and I will also send up a prayer for you.

      • Angie September 18, 2014 at 5:31 pm Reply

        Jordan – Congratulations to you and your wife on her pregnancy! That is good news to feel good about. I agree that anxiety and stress is equally bad on a persons body. I know that I have a lot of stress and anxiety that I need to work on. I try to take it one day at a time and continuously pray that everything will get better when it’s time.

    • Lisa Bloomquist September 18, 2014 at 7:06 pm Reply

      Hugs, Melanie! I am so sorry that this relapse has knocked you down so much! I’m sorry that it has stolen your hope!

      When I was going through my roughest times emotionally and mentally, finding some spiritual and religious outlets really helped me. I’ve never been a very religious person, so turning to God was something that was very new and foreign to me. It was helpful though. Meditating and prayer were immensely helpful. I also found a lot of strength in Marianne Williamson’s book, “A Return to Love.” I thought it was beautiful and poignant. It was exactly what I needed when I needed it. Marianne Williamson has a way of saying things in a very very meaningful and poignant way and if her views don’t outright conflict with yours, I highly recommend checking out her books. She also wrote one called “The Gift of Change” that I liked a lot too – but not quite as much as “A Return to Love.”

      I hope that you find something that stirs your soul like Marianne Williamson’s books did for me! There is more strength in you than you realize. It is true for all of us. Our spirit is stronger than we can even begin to comprehend.

      xoxo

      Lisa

      • Melanie Kemp September 18, 2014 at 8:11 pm Reply

        Thank you Lisa. I will take a look at that book.
        I suppose im a little mad with myself for not finding out what this was until this relapse.So for 4 yrs I was oblivious so wasnt taking steps to better eating and caring for my body.
        I knew id been poisened but didnt know by what and the extent of how it devastates the body.I thought id had a severe reaction to anesthesia.
        But I suppose all I can do is move forward and do the best I can do now.

  9. Josie September 18, 2014 at 2:34 pm Reply

    Hey how is everyone doing? I started a job as a hostess at a restaurant and it’s going great!

    • Angie September 18, 2014 at 3:36 pm Reply

      Hey Josie – Good for you! How has your visuals been? Good I hope.

      • Josie September 18, 2014 at 5:35 pm Reply

        Hey Angie! My visuals are still the same but hey you know what. I realized me creaking out about them isn’t gonna change them! So :) how are you doing Hun? :)

        • Angie September 18, 2014 at 6:03 pm

          Josie – you got the right attitude!! I’m hanging in there. Still dealing with the joint pain. I just started the epsom salt baths. So I will see how it goes. It’s nice hearing from you! Again congrats on your new job!

        • Josie September 18, 2014 at 7:11 pm

          Thank you! I absolutely looooooove it :) I hope you get better soon :)

  10. Jolea Jensen September 18, 2014 at 7:43 pm Reply

    I’ve been following you guys since I started having symptoms of floxing from my recent cipro treatment for bacterial infection. since then, my doc changed me to Augmentin (which was ineffective), and I ended up getting kidney infection and going into the hospital and being given Tazocin by IV for four days. While on Tazocin, I started seeing flakes in my urine, most likely of yeast origin. I improved while being treated, but the antibiotic was stopped after four days due to the fact that my urine culture showed no growth. 48 hrs. after returning home from the hospital (I was in 6 days), my symptoms came back (fever, dizziness, exhaustion, ), and I made the rounds. my pap smear showed yesterday that I have a Heavy Growth of klebsiella pneumoniae and a Moderate Growth of candida non-albicans. I contacted my dr., but she will give no treatment. Instead she will do a repeat culture (urine this time) in two weeks. I am so tired and still dizzy and still getting low-grade fevers. Does anyone here know treatment that can help? Thank you. My cipro poisoning seems to be lessened, although I still get the pains in the arches of my feet and in my legs. I have a topical glucosamine chronditin magnesium cream that I apply as well as Natural Calm powdered magnesium that I take in boiling water.

    • Sophia R. September 19, 2014 at 1:07 am Reply

      Try drinking 2 tsp. apple cider vinegar in 8oz of water. And/or take a sitz bath with apple cider vinegar. ACV has both antibacterial and anti-fungal properties. It will clear up a UTI and a yeast infection.

  11. Jolea Jensen September 18, 2014 at 7:45 pm Reply

    Oh, and Cipro is on the list of drugs the klebsiella is sensitive to, but there is NO WAY I’m taking that again!!!!

    • Sophia R. September 19, 2014 at 1:09 am Reply

      And espom salt baths are the best for aching joints and muscles. The magnesium absorbs right through the skin.

      • Jolea Jensen September 19, 2014 at 3:32 am Reply

        thanks! :) I took ACV today as well as starting back on the oregano oil. So tired, and having been sick now for about 5 weeks, I haven’t been able to do my full load of teaching. Of course, I was hospitalized for a week out of that time and so weak following the hospitalization that going to drs. afterward didn’t help (so much time waiting/traveling, etc.).

  12. rich September 19, 2014 at 7:39 am Reply

    Hi guys
    Rich 28 from London here newely floxed after 12 cipro 500 x2 a day 2 months ago… I thought I was feeling weird! …..got given these for poss prostatitis that I prob never had .. just short term pelvic pain from stress…. ..I didn’t know only 5% of men ever have the bacterial version ..everyone else it comes down to tight pelvic muscles from stress but the urologist would never say this …most prob don’t know! …that’s a whole different story
    anyways ive had all the symptoms…..still have a few so am joining the club for hopefully not too long but wish to provide my healed story in the future and be a support for others………

    at present I have slight tight calves and Achilles that comes and goes…..one knee seems to be burning on and off…..waking up during the night like ive had a nightmare…..random pin pricks of pain over body and muscle twitches….everywhere!……

    Ive had my moments of moping and now ready for the fight!
    over and out

  13. rich September 19, 2014 at 7:46 am Reply

    the symptoms ive had in the past.and hopefully wont have again….I seem to be working through the whole log and they seem to be worse at night in bed….can be scary when you live on your own!

    – waking up to feel like I was a dried out prune….like spongebob when he reaches land
    -eye pain
    -shooting calf pain
    -Achilles feeling like they were in an oven
    – serious depersonalization….zombie mode
    -jelly legs and crawling sensations on legs
    -wrists locked up for a few seconds when I was asleep
    – slight tenis elbow on both elbows

  14. rich September 19, 2014 at 7:47 am Reply

    also thanks lisa for making this site…..your a saviour if I win the lotto I will buy you something nice …

  15. daniela September 19, 2014 at 7:56 am Reply

    How come several doctors knew what my symptoms were going to be? After weeks of IV and oral cipro, I had diarrhea, chills, weakness, barely out of bed, but the doctors kept saying, Tinnitus? Joints, tendons? Anxiety? I answered, NO, why are you asking me that? THEN the tinnitus kicked in. THEN the joints/tendons. THEN bizarre anxiety? THEN vertigo. Then more tendon issues. Vision problems. Here I am a few years later and can’t help wondering how they predicted what I was going to have, but still deny that it’s related to cipro. I am diagnosed with mono, chronic fatigue, ear infection, vertigo, lyme, RA — all coincidental? One dr insists the tendonitis must start WHILE on cipro, another says, It’s all part of the mystery of the human body.

    Oh well. My advice for pain — rub turmeric powder where it hurts. I’ve made an arnica oil and I put powdered turmeric into it. It turns everything yellow orange. Sometimes I cover myself in the powder and take an epsom salt bath. I have an orange tub and orange sheets! But it really works the very next day or so and lasts several days.

    Yay! I think the chills and tinnitus are mostly gone, definitely much more manageable after four years. I hope the turmeric will eventually wipe out the tendon issues, but it is really scary every morning to see what I will tear next that day. I think one knee and one shoulder are permanent.

    Any advice about the depersonalisation — I know pain is bad, but depersonalisation is the worst!

    I’m going to the church supply or ethiopian store to get frankincense, supposed to be good for arthritis, asthma, meditation — I hope it’s the ticket :)

    • Destruida los Restos September 19, 2014 at 12:35 pm Reply

      “Any advice about the depersonalisation — I know pain is bad, but depersonalisation is the worst!” Yes, and derealisation, dysphasia and galloping dementia – and psychosis – all th brain stuff.

      • mark September 19, 2014 at 12:43 pm Reply

        Imho pain and tendon issues are the worst.

        I prefer living with mental issues but being able to train and work.

        Mark

        • Melanie Kemp September 19, 2014 at 1:25 pm

          Funny Mark
          ive always thought id rather have the tendon issues which is what I dealt with when I very first took Levaquin years ago.
          I unfortunately didnt relate my two frozen shoulders to Levaquin but now I know.
          It was agony for sure.
          But now I have all the brain fogginess and PN and CNS stuff and extreme weakness which has debilitated me id prefer the tendon stuff.

        • mark September 19, 2014 at 2:00 pm

          We’re all different Melanie.

          For me my body is the most important thing.
          If I can move freely I’m happy, if I have to lie in bed all day with pain I’m not. :/

          Mark

        • Melanie Kemp September 19, 2014 at 3:24 pm

          I totally understand that mark.
          I guess it depends on how much tendon damage you have.
          I was still able to work and lead a life with my frozen shoulders.
          With this brain stuff its so bad that I cant work or leave the house and on many days cant get out of bed because it also saps any energy I might have and makes me extremely nauseated.
          But its all bad..whatever we experience. None of it should have happened.

        • Mark September 19, 2014 at 3:51 pm

          Yeah Melanie, not to take it at all would’ve been sweet! :)

          The level of tendon pain I have right now, meaning not being able to walk more than to the toilet and back to bed, is enough for me to trade it in against any mental problems.
          Heck I’d even take two frozen shoulders on top of it.

          That’s not to say that your situation isn’t bad, it is and I understand you completely.
          It’s just that I got different priorities I guess. ;)

          Mark

        • Jane September 19, 2014 at 5:23 pm

          It’s true; the grass is always greener on the other side of the fence.

          Mark, I’m in the same position as you, suffering mostly from tendon pain and longing to walk again. Sometimes I fleetingly wonder if mental issues would be preferable to this, except for one thing. When I was younger, I had a serious anxiety problem with major panic attacks for a while, and it was a nightmare.

          There’s nothing worse than being betrayed by your own mind. Having been there and done that, I consider myself fortunate that I’m currently dealing with physical pain only. As incapacitating as it is, it’s a lot less limiting than not being able to think straight.

          Anyone who’s ever been drunk can attest to how much a few little chemical changes in the brain can completely alter your reality. Feeling depressed, anxious, confused, and disconnected for an extended period of time is truly a miserable situation to be in, especially when you can’t will yourself to snap out of it because it’s due to chemical toxins in your brain.

          Melanie, please hang in there, and know that these are not your thoughts. These are the FQs trying to do the thinking for you. Rebel against the FQs in your brain as much as you can. Keep telling them that you’re the one who’s going to come out of this the winner, not them. There is hope. The odds are in your favor. Also, you have people who love you very much. I’m glad you have the opportunity to go home and see your family. I think that will do you a world of good.

        • Melanie Kemp September 19, 2014 at 5:37 pm

          Thank you Jane.
          Its really as debilitating as physical pain.
          As you said.Its like being drunk with the worst hangover 24/7.
          Throw in PN…Throw in nausea. Throw in GI issues ( very limited to what I can eat) severe weight loss.plus a host of other things.
          I cant work which is a huge deal in itself.
          Havnt left my house now for 2 weeks.
          Im not saying tendon issues are not a terrible thing…not at all.
          I think both are very debilitating.
          Thank you for youre understanding.

        • Destruida los Restos September 20, 2014 at 12:47 am

          Depersonalisation doesn’t just mean being like a zombie; it means losing one’s sense of self. Derealisation makes everything seem unreal; depersonalisation makes us feel that we’re unreal, not really here, nor ourselves at all. Loss of affect is the loss of capacity to feel love or affection.
          Mark, you’ve never experienced serious mental problems; if you suffer from derpersonalisation, derealisation, or visual, spatial, aural or oral dysphasia (I have them all badly) thn certainly you can’t exercise or work! I have really galloping dementia this time – luckily the house is all tiled or I’d have burned it down several times over. Can’t fill in a form remember what am supposed to do, nuffink. Feel as though have a cement-mixer in brain.
          Of course it’s worse than tendonosis and arthrosis – you lose your self.

  16. Mark September 19, 2014 at 10:05 am Reply

    I connect with this song somehow.
    It was 1 day before my symptoms started that I listened to it…

    “Waiting by the mailbox, by the train
    Passing by the hills ’til I hear the name
    I’m looking for a saw to cut these chains in half

    And all I want is someone to rely on
    As thunder comes a rolling down
    Someone to rely on
    As lightning comes a staring in again

    I’ll wait to be forgiven
    Maybe I never will
    My star has left me
    To take the bitter pill

    That shattered feeling
    Well, the cause of, it’s a lesson learned
    Just don’t know if I could roll into the sea again
    Just don’t know if I could do it all again
    She said, “It’s true”

    Waiting in my room and I lock the door
    I watch the colored animals across the floor
    And I’m looking from a distance
    And I’m listening to the whispers

    And oh, it ain’t the same
    When you’re falling out of feeling
    And you’re falling in and caught again
    Caught again

    I’m caught again in the mystery
    You’re by my side, but are you still with me?
    The answer’s somewhere deep in it
    I’m sorry but you’re feeling it

    But I just have to tell you
    That I love you so much these days
    Have to tell you
    That I love you so much these days, it’s true

    My heart is in economy
    Due to this autonomy
    Rolling in and caught again
    Caught again, caught again, caught again

    My heart is in economy
    (Caught again)
    Due to this autonomy
    (Caught again)
    Rolling in and caught again
    Caught again”

  17. Brandon Block September 19, 2014 at 5:35 pm Reply

    Anyone have any thoughts for those of us who appear Magnesium intolerant. When I take it my CNS symptoms get worse, get dizziness and often flare ups of peripheral nueropathy. Strangely I don’t have any digestive side effects. If magnesium is the key to gettting better, but we can’t tolerate it, then what? A

  18. Brandon Block September 19, 2014 at 5:38 pm Reply

    As for the mental issues, I took small doses of clonazepam when the anxiety and lack of focus was at its worst, and monitored what I took carefully to keep from getting addicted. The clonazepam pretty much saved my life, as I was having sucidal panics that melted away when I took those meds. From what I read Benzos can cause people huge problems, but for me under close supervision they got me through the worst of the panic attacks.

  19. Jordan September 19, 2014 at 5:49 pm Reply

    Lisa,

    Have you had contact with other Floxies that had relapsed after many years of good health? I can’t find anyone that has and recovered.

  20. Brandon Block September 19, 2014 at 5:53 pm Reply

    Has anyone ever had a positive test for protein in urine following floxing. Interested in finding out more about kidney issues…

  21. Debs September 20, 2014 at 2:06 am Reply

    Hi all,

    One thing to please keep in mind regarding magnesium , is that it is always wise before beginning supplementation with it to get your kidney function assessed. FQs can cause kidney issues, both acute & chronic. Kidney damage/ dysfunction ( chronic kidney disease specifically ) very often does not show any outward signs until a lot of the function has been lost, sometimes not until around 60 % of the function is lost & magnesium can be hard on the kidneys, I have FQ induced CKD myself now. I would also urge that if ever anyone decides to have a scan with contrast ( which imo, is not needed as often as they like us to think it is) that it is imperative to get your kidney function tested BEFORE agreeing to this, for the very same reasons. Epsom salts baths are also not suitable for all , prior to my kidney issues I was never able to tolerate them, they left me as weak as a kitten for days on end, & before I realised this was the cause, I had times when I was unable to even get myself out of the bath .

    As someone who has been in this parallel universe for a very long time & having also experienced all types of ADRs, neuropsychiatric, cognitive & physical , they all suck big time, however I found the neuropsychiatric symptoms the hardest to deal with , the 12 years of hell I went through & the Iatrogenic triggering of complications of this even more so, with my physical symptoms, yes I may at times be in a lot of pain but at least there are fleeting moments i can transcend this, with my neuropsychiatric reactions this was just not possible at all, & the specific cognitive dysfunction issues I have now triggered by my last severe floxing, I also find hard to deal with.

    I would just like to say a few things here about the psychotropic drugs. I believe that everyone should be given full informed consent on these drugs. The psychotropic drugs, although they indeed have their place & can literally save someones life if one is suicidal, ( due to the fact they flatten emotional effect, thus leaving you unable to act on these feelings, ) when used short term in those circumstance they are very useful ( & please keep in mind I am not in any way trying to dictate here whether someone should or should not take them, ) as I said above people must be given FULL informed consent on these drugs, & believe me you will NOT get that on ANY psychotropic drug from ANY psychiatrist, being as they are, joined at the hip with Big Pharma, they do very nicely indeed financially, both paid handsomely for every one they prescribe, & the inventing & voting in of new psychiatric ‘ diagnoses ‘ into the latest Diagnostic & statistical manual ( DSM ), also from the misinformation they trot out, re the so called chemical imbalance biomedical model, they state is responsible for mental illness, which actually does not exist.

    These drugs IMO, compound our issues still further, due to them triggering chemical imbalances in the brain, which are just not there before you take them, then if you continue to take them long term, either voluntarily, or if you are unable to get off of them due to withdrawal effects ( which btw, is your brains attempt at trying to rebalance these chemicals ) you are then on the train to psychopharmas long term agenda-land, where they are causing long term, all the conditions where we end up with no choice but ending up having to take even more of Big Pharmas poisons if we actually want to stay alive , for conditions such as CKD/ heart disease/ diabetes etc, which the various psychotropic drugs WILL trigger in many people if taken for long enough. they also, if taken long term have the potential to cause the various dementias. I have the benefit ? of being able to look back over many years ,of being able to see things from many angles. Myself having spent 14 years researching all aspects of psychiatry / drugs because of my experiences I knew there was something very wrong with psychiatry.& those drugs. Believe me I have seen this happen very often, In my 23 years trapped in that world , I saw too many people lose their lives due to this very scenario, lost friends, many of them in their late 30s & 40s, THIS is the information which psychiatrists will NOT give you when prescribing them, & at the end of the day we have to make our own decisions BASED on the information we are given, So I just wanted to say here, please, please, tread very carefully as far as psychotropic drugs are concerned,as we have been damaged enough already.

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