Welcome to Floxie Hope

Hope Clouds

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

An excellent support group for those suffering from Fluoroquinolone Toxicity can be found on facebook.  Here’s the link to the group – https://www.facebook.com/groups/floxies/

[This site is about Fluoroquinolone Toxicity Syndrome, Floxing, cipro side-effects, levaquin side-effects, avelox side-effects, floxin side-effects, fluoroquinolone antibiotics, antibiotic side-effects, dangerous drugs, cipro danger, levaquin danger, avelox danger, cipro reaction, levaquin reaction, avelox reaction, floxin reaction, Cipro recovery, levaquin recovery, avelox recovery, floxin recovery, recovery stories, fluoroquinolone poisoning, adverse drug reaction, healing, hope, and any other keywords that are important. :) ]

Please support Floxie Hope -

Thank you!  More info about supporting this site can be found HERE

Heal With Friends is a community of people sharing ideas, experiences and advice about many health issues – including fluoroquinolone toxicity.  Please join!  (Note – HWF is affiliated with www.hormonesmatter.com and that this is an affiliate link.)

HWF_Banner 468X60

3,095 thoughts on “Welcome to Floxie Hope

  1. Michael Teeter October 12, 2014 at 12:42 pm Reply

    Hey gang my parents just recently went to the optometrist to get their eyes checked to see if they needed new glasses. Their eye doc asked if they had any medical allergies. Well since my floxing they always put fluoroquinolones. Their doc asked about this and they explained the whole cipro and levaquin thing. Antibiotics with fluoride in them. The optometrist told them ok then said I don’t know if you are aware of this but almost all eye drops have fluoride
    in them, including the ones they us to check the pressure in their eyes.

    Just FYI.

  2. rich October 12, 2014 at 1:26 pm Reply

    i dont know what id do without this site…….i never got to see them but did you guys ever view the healing stories from the old yahoo forums i heard there was hundreds on there? ……;)

  3. Debs October 12, 2014 at 2:22 pm Reply

    Hi Michael,

    The fluorine is actually not thought to be the main reason we are so damaged, as the original Quinolones before the fluorine- carbon bond was attached to the pharmacore, ALSO caused a lot damage, very similar injuries , they actually hurt many people, subsequently a lot of them were actually withdrawn from the market. The original Quinolone compound, btw, on which ALL Quinolones/FQs are based is Nalidixic acid, which was approved in 1962, this is a known listed documented carcinogen.

    The Quinolone family as a whole are indeed nasty drugs, the anti malarial cousins to the FQs such as Larium, Plaquenil etc, ALSO carry the potential to cause severe ADRs, again many familiar to us.

    Fluorine is added to drugs, in order to make them more potent ( i.e. toxic) & of course also to save money for Big Pharma, as then less of the active ingredient is then actually needed. This in the FQs, is in a form of a carbon-fluorine bond. Adding the fluorine allows far greater penetration into every organ, every cell of the body , including of course far easier crossing of the blood-brain barrier. In Some fluoridated drugs. for example, inhaled General anaesthesia, the Carbon- fluorine is known to destabilise , & if this occurs the fluorine is then metabolised into free fluoride -ion in the liver. A sign of this occurring is the raising of the the serum fluoride level in the blood, this is suspected to happen with the FQs, when a paediatric study was carried out with a single pill of Cipro, this showed a 12 hour rise in serum fluoride levels, & subsequent excretion of fluoride in the urine some hours later. The fluorine added to the FQs imo certainly adds to the severity of our ADRs, & IMO, is also a reason behind why the majority of the fluoridated drugs, i.e. the psychotropics / statins for example ALSO have such severe potential ADRs, & IMO, is also a contributory factor behind the noted cognitive decline in the elderly which can then often later lead to dementia , also the learning difficulties which are showing up in children, who have had to go under anaesthesia numerous times at a young age.

    The fluorine added to the FQs, although not thought to be the main reason for our injuries, why we are so damaged, IMO is certainly a major contributing factor to the severity of them & I believe it has a LOT to answer for .

    • Michael Teeter October 13, 2014 at 8:56 am Reply

      I Think Fluoride is a toxic trigger point. Maybe it causes relapse.
      Thank you for your informative reply.

      Mike

  4. Mark October 12, 2014 at 7:32 pm Reply

    Hey @ all,

    Is here anyone who’s taking Iodine supplements and/or eating a lot of iodine containing food?

    Mark

    • Michael Teeter October 12, 2014 at 8:35 pm Reply

      Hey Mark,
      I was taking iodine drops in water for awhile but I discontinued it. Why do you ask?

      • Mark October 12, 2014 at 9:50 pm Reply

        Hi Michael,

        Did you have your iodine levels checked in 24 hour urine samples?
        I did and mine was very low (below measurable).

        I’m asking because as you may know I was an athlete before and always measured all my vitamins, hormones, etc every 6 to 12 months to stay in perfect health.
        Well my iodine was always in normal range so I suspect that the Cipro pulled it out.

        As far as I researched Iodine does play a role in collagen synthesis on top of almost every other metabolic process in the body.
        So I was wondering if anyone here has gotten behind this issue vigorously and succeeded?

        I use lugol’sche Iodine solution topically, starting off with just a drop and gradually increasing until one of my next tests shows up in regular range again.
        So far I cam say that this is the first supplement where I felt an immediate “tingling” on almost all my tendons.
        It hurts a little more when moving but in a good way if you catch my drift.

        Maybe just another empty hope but HGAF better than nothing. ;)

        Mark

        • Tim October 13, 2014 at 9:54 am

          Mark, I’m 15 mos out. Had the same issue with low iodine and began supplementing. One or two liquid drops a day. The only new supp I’d added in months. On the third day I began to feel really uneasy and then I had somewhat of a relapse though I’d improved per out 3 months. The next day I still took it and immediately felt I’ll and got a bad headache. So I decided it wasn’t my answer and discontinued. Tim

        • Mark October 13, 2014 at 10:29 am

          Yeah Tim I guess it’s called a healing reaction as Iodine removes Fluoride out of your system.

          Mark

    • Michael Teeter October 12, 2014 at 8:35 pm Reply

      Of course I crave sea food! :)

    • Lisa Bloomquist October 13, 2014 at 10:06 am Reply

      The depletion of trace minerals is an interesting (and really bad) thing about FQ toxicity reactions. I heard from another person who had close to zero molybdenum. It’s odd.

      Brewer’s yeast (I often use nutritional yeast too – I just call them both brewer’s yeast to simplify) apparently has all sorts of trace minerals in it. It also has aminos, which you were asking about earlier. I’m a fan of brewer’s yeast. I think that it helped me a lot.

      I also have used some supplements from a company called Ancient Minerals. The multi-mineral supplement that I take has trace minerals in it.

    • impossibleadversity October 17, 2014 at 10:09 pm Reply

      I still take a bit over 1000mcg for maintenance, with selenium, but too afraid to try more. I think the concern is it can trigger hashimoto’s, or hypothyroid if you increase too fast.

      • Mark October 17, 2014 at 10:22 pm Reply

        Hi i-a,

        How are you doing nowadays?

        Did the iodine help or worsened your symptons in any way?

        How much Selen are you taking and which form?

        Do you take the iodine as lugols solution?
        On your skin or oral?

        Are you taking any other specific nutrients together with the iodine?

        Thanks,
        Mark

        • impossibleadversity October 17, 2014 at 10:50 pm

          I have some serious non-cipro related issues, but for cipro-related issues (skeletal) it could be worse I guess; permanent damage clearly but in the sense I rarely get relapses; the closest was an apparent skeletal reaction to pycnogenol though it stabilized.

          I took iodine 1000-1200mcg from the start (before cipro). Increased it a little maybe to ~1800mcg at some point; couldn’t correlate with any skeletal symptom changes much. It’s potassium iodide (only) drops. I don’t know which form is best but was told to stay away from kelp due to possible contaminants, and that potassium iodide may be safer to take than iodine itself though results vary.

          I alternated selenomethionine and selenocysteine usually 200mcg/day plus food for most of the year. For brief periods 400mcg/day helped with brain fog (similar to NAC). Now I’m backing off a bit to maybe 100mcg/day suppl. because they seem like high doses to take for an extended time and already have quantities in food.

          I took pretty much all the minerals (from molybdenum to chromium to silica) though backed off recently. Selenium is the only one I make sure to take at same time as iodine, to prevent thyroid problems. Boron (3-9mg/day) also did good things and related in nature but probably not as essential and no longer noticeable.

        • Mark October 18, 2014 at 5:29 am

          The iodine affected me for sure.

          I got runny nose, brain fog and increased tendon sensitivity.
          The first 2 seem to be from bromide detox as my urine turned brownish for 2 days or so and smelled badly.

          Did you experience something similar?

          Mark

        • impossibleadversity October 18, 2014 at 10:26 am

          Can’t say I did, or if I did impossible to pin to it. I do suspect I probably accumulated some bromide and fluoride over the years so iodine and boron seem mandated. Boron was much more noticeable than iodine to me.

          Very curious about the tendon sensitivity. Don’t know enough about iodine to theorize on that.

        • Mark October 18, 2014 at 11:55 am

          What I did read about iodine is that it helps “kill” nonfunctional cells and aids in collagen synthesis, probably in synergy with vitamin c and selen.
          But I’m far away still from stating facts, gotta do more research as soon as the melon starts working again.

          Mark

        • impossibleadversity October 18, 2014 at 10:31 am

          Minor errata, tried almost all minerals but haven’t tried lithium yet.

  5. Alex H October 12, 2014 at 9:24 pm Reply

    Hi everyone. Finally decided to post my experience with Cipro. Is there a light at the end of this tunnel?

    My experience:

    About 5 months ago I came down with a bad stomach bug in Mexico that sent me to the hospital. Was put on an IV and recovered in a few hours. Doctor prescribed Cipro. Got home from the doctor and rested for several hours.

    Then I took my first dose of Cipro – just 1 pill. About 30 minutes later I started to get a slight tremor throughout my body. The tremor gradually increased. It was a frightening experience. I felt like I had adrenaline running through my veins but no way to get rid of it. Turns out (though I didn’t realize it at the time) that I was having symptoms of anxiety and panic attack. Needless to say, I stopped taking Cipro immediately. Not one more pill. Yet the symptoms have continued in some degree ever since.

    So, here I am, 5 months later and still having symptoms with anxiety/panic. I don’t ever have a full blown panic attack like that first night, but every morning I still wake up with nausea and jitters. It’s just “uncomfortable” and my days are not enjoyable like they used to be. That’s the best way to describe my life at the moment: “uncomfortable”. I also have a host of stomach issues that seem to accompany the anxiety, but after careful experimentation with various drugs (Imodium/Xanax), it seems that the stomach issues are caused by the anxiety and not the other way around.

    My doctor prescribed Xanax in case I need it, but I’m “right on the border” of taking it regularly. Part of me hopes that this issue will go away on it’s own. The other part tells me that I should take whatever I need to feel better, no matter the potential long-term damage (addiction/dependence).

    Has anyone else had to deal with long term anxiety/panic from taking Cipro? Is there a tried and true method to expedite recovery time? I feel like I’m improving, but it’s just going so damn slow. I’m 29 and in perfect health (aside from this), so I would think that my recovery should be relatively fast. But after 5 months I’m still having symptoms. This seems too long. Far too long. Keep in mind that I’ve never had any neurological, psychiatric or psychological problems before Cipro. So I’m in new territory here – a stranger in a strange land, so to speak. Any help would be appreciated. Thank you all, kindly.

    • rene October 13, 2014 at 1:44 am Reply

      Dear Alex,
      You are absolutely correct, the symptoms that you are experiencing for the length of time, and with minimal exposure to this DRUG can and often do change a person’s overall sense of well being, state of mind. Many people have had to go through this.

      Cipro interferes with the “Gabba receptors” in the Brain…..hence the anxiety. Therefore the counterpart to GABBA which is called Glutamate is left unopposed. The balance is thrown off. Leaving you anxious, with jumpy thoughts, not settled or calm. This can make a person feel tired and wired. Glutamate is supposed to be in balance with GABBA.

      I suggest that you get from your local health food store the following. Try the GABBA in the waking hours when you wake up….see how you respond. If all is well take again in the PM. Continue this for 5 days…..If you notice nothing, then increase dosage 2 AM & if all is well then 2 PM…..repeat this for 5 days. If no change, then try L-theanine. Stop the GABBA and see how you respond. 200 mg AM & 200 MG PM…….see if you notice any improvement…..if yes than continue…….if you do not than forget it.

      “GABBA”- (Veggie caps only) nothing else/ no other ingredient.

      L-THEANINE- may be of benefit to decrease some of the anxiety…..no other ingredient! NO CALCIUM.

      AVOID! Calcium supplementation. Read your supplement bottles carefully. Calcium supplementation is counter productive when you have GLUTAMATE laying around that is not adequately balanced with GABBA. This can exacerbate the problem of too much Glutamate and excititory over stimulating effect.

      Do not take any WHEY or protein powders that have “glutamine”. This will only prolong, and exacerbate the the anxiety issues.

      PLEASE :Avoid MSG, Natural Flavors, Hydrolyzed or Autolyzed anything! Do Not use artificial sweeteners!! they are very toxic to the brain. Nothing with Glutamate…makes pain worse. No to chewing gum, and fluoride toothpaste all loaded with chemicals that are not good for anyone, especially those of us who have been adversely/ poisoned by this class of drug.

      Please avoid PACKAGED FOODS: Too many chemicals that can potentially exacerbate this issue.

      DO NOT TAKE ADVIL or other NON – Steroidal DRUGS –Also -DO NOT TAKE STEROIDS !! Will make thinks worse, compromising Tendons, ligaments further. Dangerous! The risk of tears or ruptures is real.

      Vitamin D levels……Crucial! Vitamin( D3) supplementation is profound if your levels are low.
      Mine were low. I take 10,000 IU daily from Thorne Research (excellent quality brand) and just one small Vegetarian capsule! Vitamin D3 is a hormone…..very profound need by all. The United States is deficient. The minimum to address deficiencies is 5000 IU…..

      MAGNESIUM – Muscles & Nervous System.

      ORAL Magnesium – Magnesium Citrate – do not take Glyciante – or other forms. 400 mg daily.

      A) Trans-dermal Magnesium Oil… after 20 min…wipe off excess lightly with wash cloth. keeps skin from drying out. Very helpful. I bought on line from Ancient Minerals. The spray – sprayed into my palm and applied to hips, legs arms as needed.

      B) Epsom Salt Baths – Magnesium can be absorbed into the cells far better than just oral Magnesium. Helps alleviate anxiousness & the pain to various degrees. Do not underestimate the benefit. If you cannot tolerate the epsom Salt baths….that means that form of magnesium (SULFATE) is an issue for you. not magneisum.

      Cipro interferes in the intracellular magnesium so this is why these baths are profoundly important. Do NOT buy, Epsom Salt w/any aspartate, or anything that says anything but Magnesium Sulfate. Aspartate is an excito-toxin to the brain.

      C) Avoid packaged food –with preservatives, & chemicals. The burden on our detoxification pathway has been altered making us very sensitive to the exposure of the junk in manufactured, processed food…If God made it, it’s ok. Man made likely garbage.

      D) Drink water through out the day!!!! Everyday…you don’t have to guzzle, but drink through out the day…Hydration very important.

      E) Good quality PRO- BIOTIC….important

      God Bless,
      Rene

      • Catherine October 13, 2014 at 5:34 am Reply

        Rene, I think you have just explained something I’ve been trying to understand for a while – why I have lost the ability to feel happiness or humour. I’ve been very disabled with lyme for 18 years, but always kept my sense of humour, and was still able to find happiness in the things I was able to do. But since being floxed, I have lost my ability to laugh, or to enjoy things that made me happy before. Does this loss of a sense of well being ever get better? Physical disability is horrendous, but is easier to cope with if your mind is still ok.

        • Lisa Bloomquist October 13, 2014 at 6:38 am

          It got better for me, Catherine. I think that meditating helped me immensely. Making a concerted effort to find peace and beauty in something as small as the breath while meditating led to some shifts in my brain – I think.

        • rene October 16, 2014 at 1:15 pm

          Hi Catherine,
          There are so many things that can contribute to a flat emotional tone…..Lyme too. However the dullness for lack of a better word….is in my mind a overall burden of not detoxing well, and elimination….in concert with poor balance of minerals, trace minerals, amino acids, & gut health. The following list is the foundational support that I use…..things I take for acute situations. Which state are you residing?

          1) Lithium Orotate 5mg – take 1/4 of tablet ( safe transport of B12 into cells)
          Doctors Best – (brand name)

          The B vitamins are very very important. BUT many people have, as I do, issues with B12, Folic Acid, B6 . I don’t convert or efficiently utilize these crucial bio nutrients…..supplementation is an issue, with consequences. BUT there is a safe way to address this for the time being. You may be pleasantly surprised if you do take 1/4 of Lithium Orotate, that your overall mood improves or peripheral nerve pain decreases. If after 5 days all is well or better increase by 1/8th. If you feel WORSE or off then decrease to from 1/4th to 1/8th. This can be done by crushing w/pestle and using a knife to section off the measured amounts….you can use a tooth pick……This really helped me taking 1/4 of 5mg of Lithium Orotate. Which I still take.

          2) Molybdenum ( assist w/ sulfite & glutamate laying around that should not be there)
          3) Phosphatidylserine (Brain) membrane fluidity/neuro transmission/proper signaling of immune system/protective from excess glutamate)
          4) Zinc picolinate(wounds & many enzyme processes in many systems)
          5) Magnesium Citrate
          6) Lifewave Y-age Glutathione patch.
          7) 5HTP – Thorne Research/ (iherb on line) Serotonin Support/neurological support if you have twitching or glutamate issues.
          8) Vitamin D3 –
          levels are crucial- if not yet been tested then do so! Thorne Research excellent quality brand. (iherb on -line) They have 10,000 iu & 25,000 Iu…….When I was first injured I needed 20,000 IU for a couple weeks then reduced to 10.000 iu daily which I still take. (I also have genetic issue w/ Vitamin D3….felt a improved difference constitutionally after a couple weeks or so. All vegan capsules- NO Gelatin Capsules.

          BIO NATIVUS -Concentrated Trace Mineral Drop Complex (purchase on line from website)
          99% of the sodium removed. This will not effect your blood pressure.

          Every day our bodies rely on trace minerals to conduct and generate countless tiny electrical impulses. Without these impulses, not a single muscle, including the heart, is able to function. Ionic minerals also play a role in regulating hormones, enzymes, amino acids and the immune
          system. They are required to build and maintain the structure of the body, brain function,
          blood sugar and pH balance and keep the intestines healthy and fully functioning. Unfortunately, because of the lack of minerals found in today’s foods, mineral supplementation is required.

        • Catherine October 16, 2014 at 1:41 pm

          Thanks Rene. I live in the UK. I’m not taking many supplements at the moment. Just magnesium, vitamin D and micro minerals. I’m due to have the NutriEval test at the end of this month, and then hopefully find out more about my nutritional status.

        • rene October 16, 2014 at 4:18 pm

          Glad that you are doing that. These nutritional supports are important. The majority of psychoactive disturbances are due to these nutritive biochemicals running all these important processes in the body. Which is why the barbaric in human version of it via pharmaceuticals is a bad in harmonic choice. Not possible to improve what has been God created naturally. Not that you don’t know that. Here are some listings of practitioner that use electromagnetic field therapy called Odamed. This helped me tremendously with Lyme. I am grateful for the relief and improvements I gained. i dont know that they are within a realistic distance from you. But Just in case. You would be wise to try it if possible. I did 2 sessions a week for 4 months….and thank you sweet Lord it really helped me. I still get a session 8 weeks or so. God Bless Rene

          Dr. Kim A. Jobst, MA. DM. MRCP. MFHom.
          Functional Shift Consulting Ltd.
          Fern Lodge 5 Cotterell Street
          HR40HH Herefordshire
          Phone: 44 1432 353 656
          E-Mail: admin@functionalshift.com

          Elsa Turnbull
          The Get Well Place
          Bath
          BA1 2XX Somerset, United Kingdom
          Phone: 01225 90108
          E-Mail: elsa.turnbull@gmail.com

          Dr Shamim Daya BM DRCOG
          WHOLISTIC MEDICAL CENTRE
          57 Harley Street
          W1G 8QS London
          Phone: T: 020 7580 7537
          F: 020 7580 0551
          WWW: wholisticmedical.co.uk

    • Marie October 18, 2014 at 5:22 am Reply

      Thanks for sharing your story.

      I have never taken quinolones, that I know of, neither Xanax but I have read quite a few books and visited a few sites.

      When it comes to information about psychotropic drugs I would suggest that you visit http://www.breggin.org, http://www.madinamerica.com and http://www.davidhealy.org (search for Xanax etc).

      You will also find several interesting videos
      .

      .

  6. Carrie October 13, 2014 at 12:00 pm Reply

    It seems like after reading many posts/comments, that people have more of an immediate reaction to a FQ (within days of the pills) rather than a delayed one . For me, after having been floxed numerous times, and connecting many dots, the pain got worse each time I was given Cipro *yet, I didn’t know it was from the Cipro) and then the last time I took Cipro (last November) is when all hell broke loose. I believe I took Cipro in summer 2009 and then noticed pain in about December 2009. I tried to remember when I first start feeling pain many years ago, and it seems like the pain escalated about 4-5 months AFTER taking Cipro. Is it possible for a reaction to begin a few months later? Unfortunately, I have taken Cipro many times since 2009 – the last time Nov 2013 when my pain reached level 10. I have since tried to remain positive but it has been a really rough year for me. It is driving me crazy trying to remember when all the pain began – and finding out if it all corresponded to when I was given Cipro again.

    • Liz October 13, 2014 at 3:10 pm Reply

      Carrie, I had an immediate reaction that I didn’t connect to the Cipro, but my pain got bad months later and has continued to deteriorate. Next month will be one year.

      • Carrie October 13, 2014 at 3:28 pm Reply

        Liz, I took Cipro last November for a UTI.. by the third or fourth day, I felt like I had acid being poured on my legs. I had taken Cipro many times prior. I originally thought it was a nerve issue stemming from my back (as I had back surgery about 18 yrs ago). I immediately got in to see my neurologist and had another MRI.. but my MRI was fine, he couldn’t find anything wrong.. my pain got worse so he referred me to a pain management doc.. I went a few times, he gave me different meds to try.. pain meds and Lyrica, neither of which touched my pain.. it wasn’t until my mom was reading an article in a magazine that talked about FQ’s and their connection to peripheral neuropathy. She called me and told me that I need to really look into this, as she believed that was what might be wrong with me. I had also had a lot of other weird symptoms, extreme dry eyes, insomnia, fast pulse, brain fog, crying for no reason, anxiety, heart palpitations, fatigue, terrible pain and extreme soreness in my muscles – the list goes on and on. Not one doc found anything wrong with me. I am in a bad flare right now… and just need it get better. I struggle every day… recently the pads of my feet feel like they are no longer there, and I feel like my hip flexors won’t bend when I sit down.. have you seen any improvement in the past year?

  7. Melanie Kemp October 13, 2014 at 4:20 pm Reply

    I had to take Azithromycin.Ive been sitting on it for over a week.Terrified but decided I had to take it.So I did.4 hours ago.
    So far so good.I cant tell you how panicked I was.This is actually the only antibiotic I was able to safely take before floxing but wasnt sure how id react after.
    Least I know I am still ok with it.
    I did get a slightly tight throat but I think that was more anxiety than anything else.
    phew!!!!

    • Liz October 13, 2014 at 6:30 pm Reply

      Ha, when my doctor gave me Cipro I thought it was comparable to the z-pack. What an idiot I was.

      Carrie-I am worse than I was a few months ago. I really had a delayed reaction months later. I was pretty much fine for about 4 or 5 months. I have the acid burning on my feet. I’m really hoping it’s not here to stay.

      • Liz October 13, 2014 at 6:31 pm Reply

        Oh and my feet feel like that too. Like I’m walking on bones.

  8. brian October 14, 2014 at 8:30 am Reply

    Great. Now they’re coming up with new poisons to deal with FQ-resistant bacteria. I didn’t understand most of this, but I like how they refer to the new quinazolinediones as “topoisomerase poisons.”

  9. Carrie October 14, 2014 at 11:33 am Reply

    does anyone take antioxidant N-acetyl-L-cysteine (NAC)? is it something that might help floxies?

    • Mark October 14, 2014 at 1:06 pm Reply

      Hi Carrie,

      I bought it after a recommendation from a doc but haven’t used it yet.

      A researcher in Germany who did tests with it on achilles tendon cells said it did nothing.

      Mark

    • Kel October 14, 2014 at 3:05 pm Reply

      I have done a bit of research and consideration on these IV treatments:

      Vitamin C

      IV Glutathione

      IV Alpha Lipoic Acid

      Iron and other Nutrients as well via IV.

      I have heard a lot of people say they had good responses to Glutathione and being Floxed. That is initially a bit shocking and then it turned out to be good for them. Some raved about it. I am very very suspicious of this, these are expensive treatments. Without getting benefit from them, well, that is tossing a lot of cash. I would like to know the difference between the placebo effect and how good these are. Somewhere a guy from a Forum linked me to evidence of high powered antioxidants having effect in a research paper on FQs in an animal. I am pretty sure… It helped… or was a positive.(not sure if it was a German or French research or Australian I could look it up)

      I am also concerned going for these and having a bad reaction. I have severe chronic health issues pre-floxing. I really think there is a good possibility somewhere and somehow a therapy like one of these could be monumental for some people. I just don’t know where to go with it. The vitamins I have tried is magnesium and Liposomal Vit C and Unique Vitamin E , they did not metabolize and I know I didn’t get any benefit from them.

      Looked up NAC and it seems to be similar a powerful cleansing antioxidant with lots of positive… Would this be good or damaging? Which is sort of a rhetorical question for a lot of people post floxing. : )

      • Michael Teeter October 14, 2014 at 3:30 pm Reply

        Well Kel I Guess I would say “the damage is done so I guess I’ll be leaving.” lol.
        No really I am so damaged from being Floxed that the rare side effects from Glutathione and Vit C was worth the risk. I also took the Meyer’s multi vit cocktail.

        Here is what webmd has to say about it,

        http://www.webmd.com/vitamins-supplements/ingredientmono-717-glutathione.aspx?activeingredientid=717&activeingredientname=glutathione

        Here is another site.

        http://www.livestrong.com/article/442372-glutathione-injection-symptoms-and-side-effects/

        The article that you are looking for was one that Destrudia posted I think in French. Hey Des did you post that article?

        As far as it being costly.
        This is where I had it done. In Michigan

        http://www.agemanagementmi.com/

        glutathione was $40.00
        Meyer’s cocktail with C was $60.00 When I did it.

        I don’t know much about NAC maybe Mark or Lisa can help you on that,

        • Kel October 14, 2014 at 4:16 pm

          I am pessimistic : )

          Just so tired of having things pumped into my arms that are useless, 14 years ago I was a test bunny with illness Doctors wanted to play with. I know well what is to be a lab rat. I was one : ) and if I trusted them they would have killed me… but fortunately that has helped my floxing. If not for my own research, intuition and sense of spiritual self. I would never have healed or saw the age of 25.

          This is the article I have been reading about this stuff and considering it since February and March:

          https://www.bu.edu/abl/files/stm_kalghatgi.pdf

        • Michael Teeter October 17, 2014 at 1:23 pm

          Hey Kel,
          I know what your talking about. I study the Bible with an inmate in prison and his bunky started getting stomach cramps so the prison Doc gave him Cipro to help clear his bowels 500mg time released ones and said take 2 pills at a time. Talk about test bunny! Well since my floxing my friend told him to not to take it, but I think
          he took it anyway. I was appalled to hear that a Doctor would give someone 1000mg of Cipro for a blockage no tests for infections or anything even if the patient is an inmate.

          Mike

        • rene October 17, 2014 at 7:25 pm

          Inmates & soldiers are given shots and drugs routinely without accountability. It is a known practice for many decades.

    • Bo October 14, 2014 at 4:41 pm Reply

      @Carrier

      ——————- NAC
      I know a floxie taking NAC, glutathione. He said they did not do any harm to him, but neither did he notice any apparent good from them.
      Usually NAC is very strong anti-oxidant. Glutathione can detoxify.

      ——————-Regarding possibly effective IV or supplements,
      Check this out

      http://www.joomag.com/magazine/fibromyalgia-amp-chronic-pain-life-may-jun-2012-issue-5/0648498001339623432?page=28

      The last paragraph of the article mentioned all the IV & supplements.

      Note: the patient in this article got 2.5 years of treatment and then recovered. It is possible that the IV & supplements did no help, but time helped.

      Regarding time helping floxies recover, check the stories of this blog, and check “The Flox Report”, which is not academic nor accurate but still conveys some useful information.

      I personally printed this paper out and urged my doctor (who believes FQ toxity) to read it. The doctor told me he cannot find much scientific stuff from this paper.

      —————— Solutions
      We all need a solution. There maybe no quick solution till now.
      After over a year’s of extensive research
      (reading academic papers, news, communicating with floxies through internet, talking to various specialist medicine doctors, inner medicine doctor, reumatology doctor, neurologist, urologist, famous doctors from different countries …) ,
      I personally come to believe that currently there is no therapy
      (oral supplement, IV, USANA, laser therapy, prolotherapy…. whatever it is)
      that can solve the flox problem for most of us.

      If there is one, it is “time”. Many floxies recovered with time.
      Just do not do any foolish things during the “time”.

      ——————- Avoid ?
      If we want to try something, we can try but make sure it is safe.
      In general, those supplements that you can find in food or veges are safe. NAC and glutathione all can be found from food or vegetables or plants. Our system is supposed to be able to process most natural stuff from the veges or plants.

      Note: be careful of GRAPEFRUIT. Better not eat grapefruit. You can find reference from “The Flox Report”.
      Also some floxies reported they cannot tolerate caffeine, dairy … but they are not as harmful as grapefruit.
      Some other stuff that is possibly harmful to us, as you know, are NSAIDs, steroids, and potentially some other drugs.
      It is totally your decision to try or not try the drugs that doctors give you, but as some floxie mentioned yesterday : we may know more and better than those doctors on the FQ.

      Be careful. Some doctor gave me some drug that I never heard of, I was like “it is not Advil” so I took them. Then I realized one of its ingredients is NSAIDs. Google the drugs about its ingredient, if you wanna take it.

      ———- Hope
      Having said all that, do not be frustrated. Many people recover with time.
      Most papers or reports or stories tell us that many can recover with time.
      We do not know whether we are one of those luckies that can recover with time, but we should believe we are. We should not be anxious or depressed by something that is out of our control. I know it is hard. We can encourage each other.

      I cannot believe I wrote so much lines again.. I should get off internet and work on my project… I love you guys. My heart with you.

      • Carrie October 15, 2014 at 6:25 am Reply

        thank you for your post… I am trying to make sure not to get to overwhelmed in trying to figure out what is wrong with me considering no doctor can tell me.. I do know that many things have been ruled out.. but it is hard not to have a “diagnosis” of any kind. My pain is bad – 24/7 – and right now it is hard for me to cope and function. I do know that I need to give it time – it has been a year since my last floxing, but I have been in pain for almost 5 yrs. My legs have been affected the most – the back of my hamstring and toosh tendons are extremely painful… I can barely sit and standing is impossible most times. I have had days were even wearing pants hurts. I have a post it on my desk at work that says ” baby steps’ and it helps to remind me that it WILL take time.. I have to be patient, as what other choice do I have? My boys remind me everyday to make sure I smile, to make sure I try and be optimistic… Thanks again for all your encouraging words.. it is very helpful to me to know that others are going through this and that most recover… thanks for the support.

    • Heather October 17, 2014 at 7:24 pm Reply

      Hi I’ve taken it before, I took it at times before I was floxed and then regularly after I was floxed for a year. Its hard to tell what helped but I don’t think it hurt. I took a good brand either integrative therapeutics or pure encapsulations.

  10. Stanton October 14, 2014 at 9:17 pm Reply

    Thanks on your marvelous posting! I really enjoyed reading it,
    you could be a great author.I will be sure to bookmark your
    blog and may come back in the foreseeable future.

    I want to encourage that you continue your great job, have a nice holiday weekend!

  11. Debs October 15, 2014 at 4:50 am Reply

    Hi All,

    Just a quick reminder in regards to seeking information, in relation to The flox report

    For anyone who decides to seek out THE FLOX REPORT for information as mentioned above, in particularly in respect to seeking out timelines for improvement / recovery in their floxing, Firstly, It is important, in fact IMO, it is IMPERATIVE to read the introduction first, BEFORE anything else. This is because it tells you exactly how the report should be interpreted. If you skip the introduction It can be, & in fact often IS COMPLETELY misinterpreted, it causes many people, particularly if recently floxed, & often not yet having done much research of their own, to often become terrified that they might never get to a place where they feel they have recovered. This is just NOT the case. In regards to interpretation of the report, please be aware that in respect of potential timelines of improvement / potential recovery, It is important to realise that it is just NOT POSSIBLE to calculate this, in ANY way, shape or form, this goes for EVERY aspect of floxing & also for every aspect of any subsequent floxing a person might receive.

    This is because a persons individual floxing is completely UNIQUE to them.

    The Flox Report is indeed an invaluable resource, & IMO, is one of the most comprehensive, sources of information. It can save you erratic searches for answers when first floxed, & can also help overcome the disorientation we often feel, saving literally hours trawling the web, It gives a very good general idea indeed of THE floxing experience, It is IMO, very useful when it comes to the understanding of the mechanism of damage to the the connective tissue, also the / joint bones etc, the current report focusing mainly towards the more severe side of the spectrum, floxings experienced by those of an athletic persuasion, & so is particularly focused on all areas relevant to physical & athletic performance. However it should NEVER be used as the definitive guide for information.

    Always read The Flox report with a critical detached attitude, I suggest caution myself in looking at it too early on especially, If / when you are feeling rather vulnerable. Always keep in mind the fact that The Flox report was written more than a few years now the last edition being in 2007, & we are now more knowledgable, Things have moved on, & therefore some of the information in it is not now not so accurate This is so VERY important to keep in mind, the information must not be interpreted literally, The Flox Reort is NOT a manual for those intoxicated by FQs ,& if interpreted wrongly, it can be overwhelming, frustrating, frightening. So for anyone who does decide to seek it out . PLEASE do NOT skip that Vitally important introduction .

    • Kel October 17, 2014 at 2:14 am Reply

      Thank you Bo, for writing that. Was very soothing and heartfelt : )

      Debs, I found the Flox report but it was for sale… Hmm, very sneaky. I might dig into it, in a year when I am closer to being a veteran with this. : ) My mind is not what it was, it’s hard to accept that. I am still smarter than average though without half my wits :P ROFL HEHEHE

      Wonderful sentiment here, thanks guys for sharing

      • Debs October 18, 2014 at 12:01 pm Reply

        Hi Kel

        Sorry, not quite sure what you mean by it was for sale etc ?, sometimes people do have a bit of trouble accessing it i have no idea why it happens anyway here is the link which should take you to it ( hopefully ) so you can look into it if/ when ready to do so.

        Let me know if it works, or if you are still having issues with it.

        • Kel October 18, 2014 at 1:22 pm

          Debs, I found this link after googling a bit. http://www.myquinstory.info/wp-content/uploads/2010/01/FLOX_REPORT_REV_11.pdf

          If anyone has issues with the link let me know… I had found a site that wanted to charge 9 bucks to get access to it but I think this should be DLed and put on USB…

        • Kel October 18, 2014 at 1:25 pm

          Thanks, didn’t catch that in the thread : )

  12. rich October 15, 2014 at 5:38 am Reply

    yea I read it and it scared the hell out of me…. I take it im not a severe case as I wasn’t bed bound straight off the bat ..my reaction started 3 weeks after the last dose and have had about 25 different symptoms come and go………….still scared that I may go back to they gym and tear something as sometimes my muscles ache …..im 28 and took 12 500 cipro

  13. Catherine October 15, 2014 at 12:06 pm Reply

    I had a local anaesthetic in my face today, and am now feeling much worse. Has anyone else reacted badly to a local, and did it get better again?

    • Heather October 17, 2014 at 7:14 pm Reply

      Hi Catherine I can’t tolerate local anesthetics now. I had a few for dental work and felt horrible after, flare up of pain and migraines. Last cavity I had filled not using anything.

      • Catherine October 18, 2014 at 3:44 am Reply

        Hi Heather, how long did the flare up last after the anaesthetic?

  14. Bo October 15, 2014 at 5:05 pm Reply

    KEFIR : WHERE to buy?

    http://articles.mercola.com/sites/articles/archive/2012/10/20/fluoroquinolones-side-effects.aspx

    “….What finally sorted me out was kefir . In two weeks all the problems had gone….”

    Who knows about “kefir grains”, I mean, Where can we get them ?
    Thanks.
    As we know every flox is different, but I wish try this.

    • Mark October 15, 2014 at 5:25 pm Reply

      Do you have diarrhea and stomach cramps or do you think that kefir will ease tendon issues as well.
      Imho it won’t do much more than a good probiotic but is healthy for sure.

      Mark

      • Bo October 15, 2014 at 5:42 pm Reply

        I do not have diahrrea nor stomach issue . Actually I had super severe constipation when I was taking FQ, but that was solved after I finished the FQ.

        My major issue now is pain in/around joints, probably tendon, cartilages. The pains are associated with “activities” such as walking , standing, sitting in an uncomfortable chair, and driving.

        • Mark October 15, 2014 at 6:31 pm

          Bo did you also try taking iodine or know if you’re deficient?

        • Bo October 15, 2014 at 9:57 pm

          @Mark
          Thanks for the info. Understood. FQ toxity syndrome is complex.

          Let’s keep hope and do the right thing

      • Bo October 15, 2014 at 8:23 pm Reply

        @Mark
        I do not really know if I am deficient of iodine.
        I did not take iodine either.

        Is iodine related to FQ tendon damage ? If there is some report pls point to me. Thanks

        • Mark October 15, 2014 at 9:03 pm

          Bo,

          I’m still on the ongoing pursuit of getting more concrete infos about all of it, contacting the docs that wrote about it etc…but what I can say so far is that iodine seems to detox fluoride as well as bromine/bromide and has “killing” nonfunctional or sick cells as one of it’s actions on top of influencing almost all metabolic processes in the human body.

          Again I’m not where I want to be with this yet in order to give out facts but working on it.

          Mark

  15. mary October 16, 2014 at 11:46 am Reply

    Its nice you all have each other to talk to. Some may have been gotten their side effect and some may not have. Alot of other people have the same systoms and blame it on the Flu Shot. I myself do not like playing Doctor.

  16. Daniela October 16, 2014 at 3:54 pm Reply

    What can you do in advance of any potential hospital experience? You can say, No fluoroquinolones, but it’s more than that. I was refloxed by dental anesthesia.

    It’s really the whole medical model. I was just reading the German anti-Bayer site and I thought, Why do we consider this nazi based modern medicine of pills and injections and magic bullets better than tens of thousands of years of medical experience?

    Back to my original question, how can you stop them if you are ever brought into hospital in case of an accident, for example?

    • rene October 16, 2014 at 4:04 pm Reply

      Medical RX bracelet

    • SM October 16, 2014 at 9:10 pm Reply

      How do we avoid everything? I mean, no to FQs and steroids and NSAIDS is something I can do. But am I never going to need dental work done? I mean, how are we supposed to maneuver our lives in the medical system?

      • Melanie Kemp October 16, 2014 at 9:43 pm Reply

        SM
        I had a lot of dental work done with no issues.
        A whole top bridge.A crown. A root canal and an extraction.
        Its scary for sure but in my opinion its not feasable to be able to have to think about every little thing.
        Yes. Of course be careful but to have to go through life worrying about everything we do is very difficult.
        I just had to take an antibiotic. Yes I was very nervous but I took it.Really had no choice

        • Daniela October 17, 2014 at 10:58 am

          My worst and longest lasting symptoms were from dental injections. I felt the room tilt when I was injected — and it has not stopped for almost 3 years! The first year, I felt like I was walking on mattresses or marshmallows, and I rarely left my room. Then I got tinnitus and all sorts of other things. I can’t bear to shop in supermarkets — I feel like I’m losing my mind. So in my case, I would be very careful about dental work and I want to know exactly what that was that caused this to happen.

      • Lisa Bloomquist October 18, 2014 at 11:47 am Reply

        My personal plan is to avoid all drugs if possible. If it’s not possible to avoid pharmaceuticals – in the case of necessary dental work – I’ll probably use one of those glutathione patches to help me metabolize the drugs. That’s the plan. We shall see if I stick with it.

        There are other floxies who are less cautious/paranoid than I am. Many of them have taken non-FQ pharmaceuticals and have been fine.

        But some people get kicked down when exposed to other drugs.

        It would be really nice to know the rhyme and reason behind why our bodies react how they do.

        Be careful, but don’t drive yourself crazy. How one strikes that balance is not an easy question to answer.

  17. Bo October 17, 2014 at 1:14 am Reply

    Grapefruit seeds extract

    Hi
    I bought glucosamine lotion, and it’s ingredients contains Grapefruit seed extract.
    Is it safe to us ?
    I know we should avoid eating grapefruit, but it’s seed in lotion is OK ?

    http://ca.evitamins.com/glucosamine-msm-arnica-now-34358?utm_source=google&utm_medium=google_shopping_canada&utm_campaign=google_shopping_japan&gclid=Cj0KEQjw_IKiBRD7rPqut_OZ4qgBEiQASm4GAh7QMuaQ1ccY9FASbH6-6F4llfFls-J2dkRUmXwZPHUaAgP38P8HAQ#.VEDO3opHbCR

    Ingredients: De-ionized Water, Aloe Vera Leaf Juice, MSM (Methylsulphonylmethane), Glucosamine Sulfate Potassium Complex, Emulsifying Wax, Arnica spp. Flower Tincture, Vegetable Glycerin, Sweet Almond Oil, Caprylic/Capric Triglyceride, Safflower Oil, Cetyl Alcohol, Stearic Acid (vegetable source), Meadowfoam Seed Oil, Phospholipids, Ceteareth-20, Natural Vitamin E (d-alpha tocopheryl acetate), Grapefruit Seed Extract, Green Tea Extract, Cedar Bark Extract and Xanthan Gum.

  18. Bo October 17, 2014 at 1:25 am Reply

    Prolotherapy

    Hi guys
    Sorry bother you guys with questions in a row..

    I have not tried prolotherapy yet. Anyone of you tried it ? And is it safe ?

    Prolotherapy should be very safe, but you may understand my overcaution ever since we all took some “safe” drugs (FQ, NSAIDs) that screwed us.

    Thanks

    • rene October 17, 2014 at 7:38 pm Reply

      My understanding is that it is limiting in that the duration of improvement is short lived and not lasting…if any benefit occurs. That it is not substantial enough for fluoroquinolone injuries. That is not to say that for those that arr further along in their recovery should not consider or try it once.

    • Lisa Bloomquist October 18, 2014 at 11:54 am Reply

      Have you asked on any of the Facebook groups, Bo? I’m pretty sure that some floxies have tried it, but I can’t think of who or what their results were – sorry.

  19. Tess October 17, 2014 at 1:28 am Reply

    I lost sensation inside the body. My intestines stopped letting and moved slowly. I got cramps in the body that was horribly painful. I still do not know when I need to pee and have lost the ability to feel pain such as headache, menstrual cramps, stomach pain, etc.. I have had twitching inside the body and suffers from takkykardi. I am very depressed and scared that I’ll get cramps again. stopped breastfeeding in conjunction with that I got cortisone and ciprofloxacin. have always suspected that this was happening because of the hormonal transition. there are more who had experienced seizures or unpleasant sensations inside the body ?? please write in this case. feel so alone and no doctor wants to talk about what happened.

    • Kel October 17, 2014 at 2:18 am Reply

      Tess, I am sensitive to a lot of the foods and medications I have taken. Cold medication, caffeine sometimes, etc… With cramping in my chest, legs, etc… coming on with activity, it is a bit nerve wrecking at times to feel. I have take a minute to slow down the emotions and thoughts and say that isn’t a hard attack or what not. I am afraid I might have a hernia right now due to pain in my lower belly but you know it probably is just an a localized inflammation… You have to really listen to your body and know yourself with this Toxic Syndrome. I went to get a teeth cleaning on Monday and for a whole day afterwards my gums were 5 times swollen than normal. Floxies are so much more sensitive to everything…

    • Lisa Bloomquist October 18, 2014 at 12:00 pm Reply

      I’m so sorry, Tess! Have you tried supplementing either digestive enzymes or hydrochloric acid (HCL)? I think that both are good for getting your digestive tract moving again. They’re also good for helping you to get nutrients from your food. Supplementing HCL helped me with some (minor) digestive issues.

      Hormonal shifts do seem to trigger a lot of fluoroquinolone toxicity issues. :(

      My fluctuations in symptoms stopped being as bad when I started supplementing brewer’s yeast (or nutritional yeast). I’m not sure if that will help you, but it’s something that’s worth looking into.

      Feeling alone and fearful is something that a lot of us deal with. I’m glad that you found this community and I hope that you get answers from people here or in the other places that you can find floxies (mainly Facebook).

      Hugs,
      Lisa

  20. Debs October 17, 2014 at 2:27 am Reply

    Hi All,

    In regards to giving ourselves as much chance of avoiding becoming refloxed in particular potential scenarios when we are unable to advocate for ourselves, I have some suggestions

    Purchase some sort of medical ID , Laurens Hope is a wonderful site I recommend checking it out. it has some very beautiful jewellery, in fact cool ID for everyone, it even does tags for pets , as of course they get floxed too. ( see floxiepets ) Shadow my cats story is there.

    If you have a bracelet , I suggest wearing it on your LEFT wrist , as this is where they go first to check your pulse , & therefore the quicker they will come across it.

    On this ID , list at the top ( depending how much room you have / how many other allergies) something like severe allergy to ALL fluoroquinolone antibiotics & /or if there is room I suggest listing them by NAME , all too often idiot Drs do not have a clue i.e. that Cipro & Levaquin are both in the same class for example, and many people have been floxed again this way. If there is room underneath, I would suggest maybe also listing NSAIDS & steroids , you can argue the toss re this one, once you have regained consciousness, by doing this it gives you the best chance of avoiding them in the meantime

    Carry a wallet card at ALL times, with the same information , & you can put any other allergies on there there too, I ALSO have a list both by my front door, & beside my bed.

    If you are going into hospital for any elective procedures I suggest writing it on your body in permanent marker pen it is THAT important !, remember that FQs are often given as a preventative BEFORE some operations, & they WILL NOT tell you unless you ask. get it in writing if you can, confirmation that they will NOT be administering FQs , ( & get a copy of that operation report ) Same goes for the IV they have just attached to your arm, what exactly is in that IV ? ! they will not ell you unless you ask . !

    Remember, that ALL routes of FQ administration can cause EXACTLY the same damage. this goes for Oral , IV Eye/ Eardrops. They have also been known to use FQ soaked pads to pack wounds internally, ( pledglets ), & we have people who have been indeed been floxed that way. They are also ( & please note this does NOT, as far as I am aware apply to everyday catheters ) but DOES sometimes apply to LONG TERM ureteral catheters which are sometimes are used for weeks on end in hospital & long term outside hospital , known to sometimes depending on the situation, impregnate them first with FQs.

    The latest mode of administration I have come across, is in eye infections such as bacterial Keratitis. I have found articles mentioning as potential treatment, the use of contact lenses impregnated with fluoroquinolones

    Hope this helps.

    • Kel October 17, 2014 at 5:55 am Reply

      Saved that in a file.

    • Daniela October 17, 2014 at 11:13 am Reply

      In my case, the doctor at the hospital said, “Well you have more than proven that antibiotics will not help your condition, haha” — they left me on them to make a stupid point and also to keep me on something until the doctor returned from his weekend. When they gave me more to take home, the nurse said, “You have to take them, we have MRSA.”

      Do dentists sometimes also inject you with antibiotics at the same time as anesthesia? That could also explain my reflox. Also, they told me when I asked about a huge extra charge, “The dentist saw some infection so he used a liner.” I just looked at a website that says the liners are “fluoride releasing.”

      What is going on with everyone? That doctor and dentist didn’t care about me, they both were very inconsiderate and rude and treated me with contempt from the outset. I think they were just adding to what they can bill!

    • Lisa Bloomquist October 18, 2014 at 12:01 pm Reply

      That’s very helpful – thank you, Debs!

  21. Debs October 17, 2014 at 2:32 am Reply

    Almost forgot , One other thing , ALWAYS when they ask what happens re being allergic to FQs , use the anaphylaxis, immediate allergic reaction card EVERY single time time , imo, it saves a hell of a lot of hassle , they will less often question it, & used often enough , sometimes eventually it will find its way into your medical records automatically , without them realising it.

    • Daniela October 17, 2014 at 11:01 am Reply

      Great idea!

    • Lisa Bloomquist October 18, 2014 at 12:03 pm Reply

      Yup. They don’t associate “everything will fall apart” with drug reactions so there is no code for it. Saying that you will have an anaphylaxis reaction will help you to communicate how seriously they need to take your adverse reaction.

  22. KX October 18, 2014 at 1:14 am Reply

    Has anyone had issues with topical hydrocortisone cream or triamcinolone? I have some bad rashes (from before floxing) that need steroid cream and I have been avoiding due to cipro but not sure if topical use is safe? Please help :(

    If it helps I was floxed in Aug and just when I thought my pain was a little better it came back with a vengeance!

    • Lisa Bloomquist October 18, 2014 at 12:09 pm Reply

      Have steroid creams helped in the past? I have never used a steroid cream and I know very little about them. I have heard that rashes come back even worse after using them though. Have you found that to be true?

      I honestly don’t know if topical use of steroids will flare flox symptoms or not. :/ I wouldn’t think that it would suppress your immune system or weaken your joints when applied topically, but I don’t know that.

      Are there any alternative treatments for your skin conditions?

      Regards,
      Lisa

    • SM October 18, 2014 at 11:23 pm Reply

      KX- I have personal experience with hydrocortisone creams. I’ve used them for much of my life for mild eczema. I used some around month 3 for a rash that developed and within 1 day I had shooting pains in my legs and feet. It went away, but as you know steroids are generally a no-no for floxies. I wouldn’t touch it.

  23. Mark October 18, 2014 at 7:25 am Reply

    Anyone here used Nasivin or other nasal sprays against congestion?
    Problems?

    Thanks,
    Mark

    • Lisa Bloomquist October 18, 2014 at 12:16 pm Reply

      I haven’t and I think that it goes by a different name in the US. I have heard that one should be very careful with the nasal sprays and only use them as directed on the label. I think that most say that you shouldn’t use them for more than 3 days. If you can find the main ingredient name and look it up on http://www.askapatient.com, you should find some good info and advice there.

      Does Benadryl help? I’ve taken Benadryl and other antihistamines since getting floxed and have been fine.

  24. Daniela October 18, 2014 at 9:44 am Reply

    KX and Mark, please look into alternatives! For rashes, cook up some oatmeal or open an aloe leaf, apple cider vinegar (try it). For the nose, salt water wash. For both of you, check food allergies and look into what you eat. For congestion, no dairy. For rash, could be milk, eggs, soy, nuts, fish, shellfish.

    • KX October 18, 2014 at 12:55 pm Reply

      Unfortunately my body has gotten highly allergic to everything so putting food items on rashes almost certainly causes allergic reactions even upon later eating those foods so natural remedies are out :( I have tried several elimination diets and no success and all allergy testing is negative. Will these mild steroid creams cause relapse or worsening of floxing symptoms?

      • Michael Teeter October 18, 2014 at 3:02 pm Reply

        KX,
        It is hard to say. It hasn’t for me. I use them when the hives get bad. I also use my Rife Machine it has a setting for hives. I also up my mint intake and it seems to help.
        But everyone reacts differently. I have heard that Vit D 3 helps.

        here is an article for you to read.

        http://www.drweil.com/drw/u/QAA401430/Had-It-With-Hives.html

      • Daniela October 18, 2014 at 5:11 pm Reply

        KX, Since you know the food items are allergenic on your skin, that shows that the allergy testing was incorrect!! Just don’t eat the usual suspects — dairy wheat nuts shellfish chocolate soy eggs. This will certainly help in any event.

  25. Tess October 18, 2014 at 11:12 pm Reply

    Thanks for your comments! I do not have Facebook, unfortunately. The doctors have never met anyone with my symptoms. wondering if there are any more in the world that has lost touch inside the body. seizure I ficj was horrific. I was awake the whole time. it felt like I did not get air and pains in the body were horrific. as if I was about to go broke. got Valium twice and nothing helped. felt since the tendencies of these seizures in two months and nasty jerks and vibrations in the body. these have disappeared since two months. I am slowly getting better. have more energy and are not as depressed anymore. have recovered parts of touch. does that mean that the nervous system heals? has just gotten better and better. read in this blog that the myelin is destroyed by cipro. does that mean that you will get MS? by Ms. destroyed myelin. uch I’m so afraid of what damage the body received by this drug.

    • rene October 19, 2014 at 11:14 pm Reply

      Dear Tess,
      You will Not get MS. I am sorry that you have been put through this experience. Those fears and thoughts have visited most of us at one time or another. Please do not entertain them, they are imaginations that are harmful to your spirit and though often seem so convincing they come like a thief, to rob us of our hope. We are designed to heal, to live. Great suffering must be spoken to with words that are rooted in our deep abiding faith & reverence for God. It is his word that has life and power. In him, and only him we turn to, and are made whole again, restored. My prayer is that you and all of us that have been besieged with these injuries and fears are delivered from any stronghold of infirmity & torment. In my worst of times, I praised God for all that he had provided for me, and chose to rebuke all that was not born of him. It would not have any place in me.

      I know you are in Sweden, but here is the name of a physician in Germany that may be a good resource for you. The clinic is progressive and holistic. Call them and explain that you have a systemic injury from a fluoroquinolone drug. Severe Adverse drug reaction…..etc. Sometimes people have colleagues, or connections to others that may serve, or provide what we need. This is how God works. He takes circumstances that appear one way and provides for us life, his spirit that lives on through others in spite of the worlds limited understanding. God Bess you, Rene

      Dr. med. Wolf-Dieter Kessler
      Alter Postweg 5
      26624 Victorbur
      Tel.: 04942 – 3325
      Fax: 04942 – 2741

  26. Tess October 18, 2014 at 11:15 pm Reply

    I’m from Sweden and write on Google Translate because the text becomes a little weird sometimes. is not so good in English.

  27. Tess October 19, 2014 at 3:39 am Reply

    sorry for all the posts. is there anyone here who knows little about Cephalosporin? my symptoms started when I got antibiotics Cefotaxime containing this substance. I had at the time of severe abdominal pain and abdominal really numb after only two doses. Did this drug for about 5 days. Then I went over to ciprofloxacin and flagyl. that’s when I lost all feeling inside your body. after a few days with cipro I ended up in the terrible convulsions I wrote about earlier. still wanted doctors do not put out cipron. finally after pressure from my family, they put it out. but after a few days they put it back in !!! then it was out completely. totally insane.

    • Michael Teeter October 19, 2014 at 7:21 am Reply

      Hello Tess,
      Cephalosporin is an old school antibiotic. It is a type of cephem. It works much like penicillin does. It also has similar allergic reactions such as hives,rash, can also hit the kidneys.
      Tess I had a similar reaction much like you. I lost my ability for facial recognition, I also experienced other mental disturbances when I was on Cipro.I could not sleep and I could feel everything going on so heightened it drove me crazy things like my muscles shaking and jumping and even my heartbeat. The good thing is that this all went away with in three months. I neverhad convulsions though.
      Tess I think I figured out why I was having such a hard time. Electrolyte Disturbances I think once my electrolyte levels went back to normal I got better.
      Both Cephalosporin and Ciprofloxan can cause Electrolyte Disturbances.

      What I did was I started drinking Electrolytes and I used a Rife Machine for toxin removal settings. I also starting taking magnesium.

      Then I found my ND and he helped me out a lot.
      The main thing Tess is it got better! It went away.
      Your body is made with the amazing ability to heal! Hang in there and do not give up!

      Michael Teeter

    • rene October 19, 2014 at 10:38 pm Reply

      PROBLEMS w/ PHARMACEUTICALS post Fluoroquinolones:

      Fluoroquinolones inhibit the Cytochrome P450 Enzymes. CYP1A2, CYP3A4.

      For the many in the population, who also have an existing CYP1A2, CYP3A4 gene mutation in that detoxification pathway, Fluoroquinolones have proven to be extremely dangerous & life threatening. I have these (2) mutations Those individuals reach overdose levels rapidly. One tablet can and has set a cascade of destruction.

      For others “without” the CYP1A2 , CYP3A4 genetic mutation, repeated exposure will ultimately damage the Cytochrome P450 Enzymes ability to detoxify other chemical exposures found in the environment, food supply, & medications. An obvious example is not being able to clear caffeine, instead being highly & overly stimulated…and not coming down in a reasonable amount of time. This is apparent for those that have been floxed whether with mutations or not.

      The deleterious impact on the body manifests slowly over time as inflammation & mitochondrial damages systems throughout the body. This speaks to why for many, their first exposure to Flouroquinolones appears to be without signs of developing injuries.

      However, regardless of these severe injuries those same individuals can get better, enduring a lot on the long road of recovery.

      The Cytochrome P450 enzymes are also found in throughout the body not just the liver.

      My understanding from the research I did early in my injury back in 2010 was that Steroids, Cortisone, Prednisone, and all over the counter NSAID are to be avoided. Contraindicated.

      After a couple years or much longer the sensitivities to other drugs, and foods may improve, However to avoid, pharmaceuticals as a policy is the ideal. The instances of requiring them is clearly a challenge and may not be worth even entertaining with out advance knowledge of one’s gene mutations or using testing such as ELECTRO – DERMAL SCREEN TESTING or KINESIOLOGY.

      What country or state are you residing?

  28. Tess October 19, 2014 at 8:04 am Reply

    Hi Michael! Thanks for your post! So horrible what this medication may do to our bodies. When I was treated with Cefotaxime and Cipro changed all my blood. I had very strange abnormal values. I had cortisone injections in 3 weeks. I think I had magnesium deficiency, which apparently is not good in conjunction with cipro. Think also that you I had bad with electrolytes. Now I have good blood values ​​back even good electrolytes. You who seem well-informed about this with antibiotics. Do you have any idea why I reacted with CNS disorder before I got when I got Cipro cephalosporin? The medicine is supposed to have no effect on the CNS. nice that you have recovered from this. but do you have any left? I did not expect to get back my touch completely.

  29. Tess October 19, 2014 at 9:57 am Reply

    So what I mean is: if you have any idea why my problems from CNS started already when I got cephalosporin. I was numb and felt strange all over. But it was when I took ciprofloxacin as it got really bad. Heard a woman on youtube saying that she did not feel like a human being but as a chemical reaction. exactly how I feel. often say that I do not feel like a man anymore. Apparently this is also a side effect.

    • Daniela October 19, 2014 at 10:52 am Reply

      Hi Tess, I also had very high dosage of other antibiotics, then a lot of Cipro Flagyl and other drugs. The disorientation was very bad for a few years. Now I primarily have the achilles tendon and muscle problems. The mental problems were the worst. They will go away, it just takes time. My anxiety and insomnia went away all of a sudden, like it was a piece of ice inside me that melted. In just one moment, after a few years, they were gone.

      I think we have to stay away from all pharmaceuticals and let our bodies heal themselves.

      Do everything you can to make yourself feel good, relaxed and at peace. Since you are in Sweden, I think your food has less antibiotics and pesticides than here — so that’s great :) Take care.

    • Daniela October 19, 2014 at 10:56 am Reply

      Tess, I think I had exactly the same combination of drugs as you. And I also had a baby to take care of. I hope we can get better together!

    • Tess October 19, 2014 at 12:08 pm Reply

      poor you. what terrible it sounds. understand that you feel that all is hopeless, but do not give up. you’ve been good for so many years, you will surely soon feel better again.

  30. Melanie Kemp October 19, 2014 at 11:12 am Reply

    Hi guys
    things are so bad now.
    Has anybody ever got to the point of wanting to give up.
    Im about there.
    Sorry.Just about as low as I can be now..

    • Tess October 19, 2014 at 11:15 am Reply

      I have been there every day, Every minut for weeks, mounths. What do you experiens now make you feel so bad? Im sorry you feel tjis way :(

      • Melanie Kemp October 19, 2014 at 11:40 am Reply

        Im having a relapse after 3 yrs of being fine.
        Its as bad or maybe worse.My hair is falling out.Gums receding.Horrible brain fog and terrible feelings in my head.Lost over 40 pounds.Skin is paper thin and so sore and wrinkled.It burns.
        Its like I lost all the collegen under my skin.
        This is month 5. I just feel completely lost and hopeless now and truthfully very suicidal.
        Thats horrible I know but a person cannot live like this.

        • Mark October 19, 2014 at 11:56 am

          I’m thinking like that everyday and honestly I got no answer to the “why continue?” question.
          Maybe there’s a miniscule chance of getting 100% healthy?
          Maybe because our families would be sad if we’re gone?
          Maybe to stick around long enough to fuck those shitty doctors up?

          No idea.
          All I can tell you is to take it day by day, not fight as there is no fighting this imho, just survive.
          Yeah think about it as a survival challenge and push through.
          With a lot of luck you’ll recover again.

          Think about what caused the relapse, exercising huh?
          But why was that?
          Any environmental changes?
          Diet changes?
          Stress?
          Try to pinpoint it and research ways of counteracting said effect to keep busy.

          If you ask me why I continue I’ll tell you to wait until I’m strong enough to fuck the doctor up who ruined my life (legally of course I prooomise lol).
          Yep I live to detroy this guy now, maybe you can too?
          You know they’re living a happy life right now, money, health etc and don’t give a shit about you.

          Mark

        • SM October 19, 2014 at 3:21 pm

          Melanie,

          I’m so sorry. I remember your story well- you and I joined the FB group around the same time. I completely understand your feelings. I have said to my wife on many occasions that I will not live this way for the next 40 years of my life. For me, I have seen so many stories where people come from feeling horrible to bouncing back. Maybe they’re not 100%, but they are good enough to enjoy life again. I am not opposed to someone taking his/her own life at all. It’s very much on my mind as I write this, but I do feel that one really should give it enough time and fight it for a while before giving up. How long is enough? I’m not sure. But for me, I will fight for at least 3 years. I just have to. People do recover and it’s often in that 18-36 month range. Please hang in there.

        • Melanie Kemp October 19, 2014 at 4:51 pm

          Thank you all so much.
          I think uts because I dont gave much support here.My husband wants me to keep doing tests when ive already done all that in 2010.I spent a year seeing all kinds of specialists to no avail and I don’t have the energy.
          I want to go home to England but im to weak…honestly just cant see making that trip.
          Its so frightening not knowing if this is it.
          Made it through once but maybe nit so lucky this time.
          I didnt have hair falling out last time.Or gums receding.
          Sorry…just feeling so low and vunerable and not the strong woman I thought I was.
          Most days im bedridden.

        • daniela October 19, 2014 at 6:39 pm

          HI Melanie,
          I think you were refloxed like I was. I lost hair and teeth, and it was very demoralizing because part of what helped me the first time was still looking good! But you got better before, so you will do it again. Personally I felt like the doctors were preying on me, so don’t let them get to you. I also am stuck in another country.
          Soon me and you will be on our way home, and all this will be forgotten!!! Let’s make a pact and see who gets there first :)

        • Melanie Kemp October 19, 2014 at 7:43 pm

          I cant think how I was re floxed.
          I know I had a lot of stress going on..was working out pretty hard and on a diet.
          I suppose all of that caused the breakdown because I didnt take any meds of any kind.Thank you everybody for youre kindness.
          Its really needed

    • Lisa Bloomquist October 19, 2014 at 4:12 pm Reply

      I’m so, so, so sorry, Melanie! I don’t know what to say, and I hope that I don’t say anything that hurts rather than helps.

      I think that you never know what tomorrow will bring. It may bring something helpful or healing or beautiful. But if you’re not around to see tomorrow, you lose that opportunity to see that helpful, healing, beautiful thing. And that’s a shame. Hope is just hanging on, and keeping going through the pain, so that you can get to the good that is coming tomorrow (or the day after tomorrow – or just a tomorrow that is sometime in the future).

      A severely floxed friend posted a similar message on one of the Facebook groups recently. He had been diagnosed with all sorts of horrible diseases and, frankly, felt like death would be an improvement. Today he posted something about getting his motorcycle out of the garage and hoping that he’ll be able to ride again soon. He’s improving. He didn’t think that he would – but he is.

      Please seek help from someone that you trust to get you through this. There are resources out there that help people through illness, trauma and suicidal inclinations.

      Hugs,
      Lisa

      • Daniela October 20, 2014 at 9:06 am Reply

        HI Melanie,
        I also don’t know how I refloxed this last time. I think it might be that I started eating a bunless burger a couple of times a week to get more B12, and that meat had cipro in it. I really am feeling better in terms of depersonalisation as soon as I stopped meat and started nutritional yeast for B12.
        So in your case, be a detective. Not just beef, but I also found sardines to be a boomerang; they made the pain go away immediately and for many months, but then I started eating sardines again and the pain restarted! It is tricky to figure out what is going on. This time around, the pains all stopped when I stopped sardines (huh?)
        In your case, you were better for three years!!!! So retrace your steps, you can do it again :)
        I just made an experiment by eating feta cheese (which is supposed to be sheep’s milk cheese). I hope I don’t live to regret it.
        One more thing, no caffeine. Watch out for it, it’s hidden in many places.

        • Melanie Kemp October 20, 2014 at 9:45 am

          Maybe I should just become vegetarian.
          I only eat wild caught salmon and organic chicken.Eggs sometimes.Are those safe?
          Im already limited on what I can eat.Have many sensitivities now

        • Mark October 20, 2014 at 9:55 am

          Maybe it was the fish Melanie?

          Wild caught fish are often loaded with crap, especially if caught in the ocean.

          I eat eggs and organic chicken, brown rice, oats, sweet potatos, olive oil, salad, onions, garlic, carrots, broccoli, and that’s it.

          But I ate similar prior to being floxed so I only miss my morning coffee and the occasional treat. :/

          Mark

        • Melanie Kemp October 20, 2014 at 10:37 am

          Ill cut out the fish.
          Thanks mark

        • Daniela October 20, 2014 at 9:55 am

          I feel better when I eat mostly vegetables (not grains or legumes). You get all your vitamins that way too! And I make sauerkraut for probiotics. then a little piece of organic something for protein and that’s it. I really want to commit eating this way all the time. It really is so much better than sandwiches :)

        • Daniela October 20, 2014 at 4:23 pm

          Melanie, Didn,t you say you had a lot of dental work? Maybe that’s the source of how you feel now. My reaction was immediate to anesthsia, but yours might be a little delayed.

        • Melanie Kemp October 20, 2014 at 5:01 pm

          I did Daniela but it had been well over a year..
          I do know that I was eating just regular foods since being floxed with no issues…I didnt know id been floxed til earlier this year.
          So maybe that could be it but I tend to believe it was a lot of stress..dieting..working out.
          so maybe just an accumulation of many things.
          If I get through this ill be way more careful of what I eat and do.
          knowledge is power and I didnt have the knowledge unfortunately.
          I read Erins story on here a lot..her symptoms closely resemble mine so it brings me comfort and hope as do all of you :)
          I had an ok day today…tingling all over but least I was up and moving .

  31. Tess October 19, 2014 at 11:13 am Reply

    Hi Daniella! sweet thanks you for your post. I have also had a lot of mental disorders with anxiety and even suicidal thoughts daily. I could not sleep at all for several months after I got the cipro I slept 2 minutes and awoke with a start. it has gotten better now! I have Crohn’s disease so I have eaten high doses of cortisone since April when I became cipro poisoned. the body has not had much chance to recover. for six weeks since surgery I remove the diseased part of the bowel and now eats no medications. takes magnesium and B12. B12 will help to repair the nervous system. how are you now? You still suffer the side effects. would love to follow each other and be healthy together. Hugs

    • daniela October 19, 2014 at 6:31 pm Reply

      Tess, I would love to keep in touch. I speak other languages too.
      I also think magnesium and B12 are important. I use nutritional yeast for B12. Also because we have damaged colon and intestines, not eating dairy and grains is best. Vegetable, protein, sauerkraut. I hope Lisa can connect us.

  32. daniela October 19, 2014 at 6:27 pm Reply

    For me, the intense anxiety and insomnia lasted two years. And then it was GONE. I think if you are careful not to ingest other pharmaceuticals, maybe you will be better sooner. I was refloxed after two years, so I had another two years, but it went away again. Now I am at five years. I have problems with achilles tendons and arthritis in my fingers, as well as vertigo. But I do not have the anxiety or insomnia anymore.

    I think if you know it is artificial, it is not your fault but caused by cipro, then it is easier to accept. I didn’t know about cipro until a few months ago. Try to stay calm, watch nice videos…don’t take the medications that other people here are warning about. When the anxiety and insomnia are gone, you will not be depressed or suicidal anymore. It is not you, it is the Cipro !!

    Try this exercise: Think of a flower, kitten, puppy, baby, beach, mountain, whatever makes you smile both outside and inside. Can you feel how your body is changed when you think of that image? This is now your tool. Remember it whenever you feel bad. It works.

    • Daniela October 20, 2014 at 8:56 am Reply

      Oh, No. Always keep your fingers crossed. Last night I did not sleep a wink and I am so tired today!!!! When I floxed, I immediately became sensitive to caffeine — maybe there was some in something I had yesterday.

      Tess, I don’t have your email, but I hope Lisa gave you mine.

      Good luck everyone, take care of yourselves!!!!!

  33. Flynn October 20, 2014 at 12:55 am Reply

    Everything is very open with a clear description of the challenges.
    It was really informative. Your website is useful.
    Thanks for sharing!

  34. Tess October 20, 2014 at 1:17 am Reply

    I think a lot about why my symptoms started with the antibiotic cefotaxime. ‘ve read in some American sides that even this can have effects on the CNS, although it is rare. maybe I’m more sensitive in general? the question is just what antibiotics you should take if you really must. When I had surgery 6 weeks ago, I received sulfa drugs associated with opetationen. 3 tablets. Bactrim and Clindamycin. body seemed to cope with this.

  35. Tess October 20, 2014 at 1:19 am Reply

    Daniella. Now I have your email and you have mine :-)

  36. Andrew October 20, 2014 at 9:53 am Reply

    So this is my story:

    I have been living with Transverse Myelitis for about 14 years, so tingling and numbness in the feet and legs are not new to me. Neither is the feeling that there is a band around your mid-section. That said over the years I have found that if I take care of myself, reduce my stress I can get these symptoms down to almost nothing such that I can play hoops, jog, basically do everything I did before being diagnosed. Just a little less gracefully, but I have also aged over those 13 years. About 2 years ago I had a very bad infection from an infected cyst at the base of my tailbone. It was abscessed and the culture revealed mersa. Of course I took antibiotics etc while the wound healed. It took about 8 weeks. During the course of this the surgeon found an anal fistula and told me it need to be operated on to avoid infection. Needles to say just being a few months removed from this other surgery I waited and he agreed I could. In October of 2013 we decided it was time for the surgery, but we agreed I could wait until after the holidays. On around January 17th I had the surgery and was left with a wound that needed a seton to drain. Of course I was out under for all of this and then post surgery prescribed Tylenol. I then, while recovering lost a crown and had to have a tooth extracted, so I went through that and had to take the anesthesia, anti-biotics and more Tylenol. Last but not least my neuro wanted me to take a brain MRI as I had not had one in several years and even though I was doing okay, I had more pins and needles then normal. MRI came back normal and showed no plaques, so that was good news. I then developed some inflammation at the site of the wound and seton where the anal fistula was removed. I panicked and went to my surgeon who said he was a bit concerned because I had had the mersa, so he prescribed an anti-biotic – Cipro. I filled the prescription and took two pills that day. That night I checked to see if there was anything I shouldn’t do like drink a glass of wine or worry about taking my baclofen which I have been on for 13 years. I then read about all the side-effects, especially for people with neuro conditions. I felt okay though and took another does the next morning. That night I took my third dose and had hallucinations and woke up sick as a dog. Called the surgeon and didn’t hear back until later that night. He said I should take one more dose and then stop. I remember thinking – don’t swallow that pill, but I did and wanted to throw it up as soon as I did. But I was terrified of the mersa as it made me so sick. The next day I went to sit on the toilet and my back locked-up to the point I couldn’t stand and literally crawled into bed. Saw my kinseologist a few days later and he said I had sprained my pelvis – and I thought WTF? The I read that a sprain is basically all about the tendons and started to wonder if I had been floxed. The next week I had unbelievable pain in the Achilles, then a few months later dislocated my shoulder carrying a box up the stairs. Then the tinnitus hit.
    I am about 7 months out and taking a lot of magnesium, using magnesium oil, Epson salt baths, ubiquitol, a lot of B vitamins, d vitamins, evening primrose, an adrenal supplement and an ant-inflammatory supplement. This summer I went to the shore a bunch and swam and body-surfed etc. This past week I began going to the park and shooting hoops. I am in pain everyday, but I work through it and convince myself I will get better and won’t hurt anything as long as I am smart about it. I also see my kinseologist weekly and he is always positive and pushes me to heal.
    This site has been a great resource for me and I hope to continue my healing journey and join the ranks of folks whose lives return to normal. I struggle everyday and now have terrible tinnitus, a gassy stomach and fluttering in the chest and anxiety. I am afraid to get my dental work finished, so I have a missing tooth in the back. But I don’t want to mess with it now as I don’t want to have a set-back. So I have a few questions:

    Anyone have a good or bad experience with Cats Claw? I think I have something going on in my sinuses and a rumbly stomach. They say Acid Reflux can cause cold like symptoms, like dry mouth, coughing even sneezing. I would like to try Cats Claw again as it helped me pre-floxing, but I am always hesitant about what I put in my body. Also what is this rifi machine?

    Keep the healing going everyone – this stuff won’t beat us!

    • Daniela October 20, 2014 at 10:11 am Reply

      Hey Andrew, it’s really good they didn’t give you the Cipro all along for the other incidences. So maybe this won’t last too long. I wish you the best. You know they say that when it comes all at once like you experienced, it also ends faster, like a thunderstorm.

      I don,t know about Cats Claw, but in Mexico they take it (Uña de Gato) as a tea infusion with echinacea and mint for the flu.

      Look also into leaky gut, because you had a lot of meds.

      In my case, I didnt have mrsa but they scared me into taking cipro just in case, so I know what you mean about the little voice in your head saying, Dont take that pill ):

  37. rene October 20, 2014 at 10:21 am Reply

    Attention for all regarding MEDICATIONS after BEING FLOXED

    Please look at link listed below, which will give a list of which medications “inhibit” or “induce” various Cytochrome Systems. The list of drugs is obscene as I seriously doubt in balance they have done little to actually help anyone but line the pockets of the manufacturers.

    The term CYTOCHROME P-450 refers to a group of enzymes with are located on the endoplasmic reticulum. These enzymes are of particular importance when studying drug bio transformation and drug metabolism.

    Drug metabolism by the P-450 system is a new and secondary role for these enzyme systems.

    The primary role for the P450 system seems to be one of metabolism and detoxification of endogenous compounds after they have been taken in by mouth in the process of eating. This accounts for the high concentrations of these enzymes located in the liver and small intestine.

    The P-450 system can be altered by a number of mechanisms including inhibition and induction and can vary from person to person.
    There are over 30 human P-450 isoenzyme systems that have been identified to date. The major ones responsible for drug metabolism are the CYP1A2, CYP2A6, CYP2B6, CYP2C8, CYP2C9, CYP2C18, CYP2C19, CYP2D6, CYP2E1, CYP3A4 and the CYP3A5-7.

    http://www.edhayes.com/CYP450-4.html

    God Bless,
    Rene

  38. Daniela October 20, 2014 at 5:31 pm Reply

    Lisa can you give Tess my email, thanks! :)

    • Tess October 20, 2014 at 10:25 pm Reply

      She has Done that. I have your email now :-)

  39. best led tv 2014 October 21, 2014 at 3:05 am Reply

    excellent points altogether, you just received a new reader.
    What would you recommend in regards to your post that you simply made a few
    days in the past? Any certain?

  40. John October 21, 2014 at 3:44 am Reply

    Have you guys had any issues with your stool? Since I was floxed my stool has changed in shape and color and has not improved yet. Have you guys noticed any change in your stool after floxing? I am still thinking of other possibilities of parasites etc. Thinking of stool test soon..

    • karen October 21, 2014 at 5:01 am Reply

      Yes, for about 2 months..ate tons of yogurt & organic fruits/veggies during that time & it got better

  41. Andrew October 21, 2014 at 9:01 am Reply

    Anyone have any opinion on Cat’s Claw? I used it years ago before being floxed, but am trying to be very cautious about things I put in my body. Any feedback would be much appreciated.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Follow

Get every new post delivered to your Inbox.

Join 161 other followers

%d bloggers like this: