Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

25,521 thoughts on “Floxie Hope

  1. Barbara Arnold May 29, 2020 at 12:50 am Reply

    Dee,
    I don’t know if this will help, but I’ve just seen a post from a fluroquinolone site, where the poster, who is also a moderator said she took Betain HCL. The theory being that the reflux resulted not from an excess of acid production, but a general paucity. Blood cells in the respiratory tract could stack in what supposedly called the ‘Rouleaux formation’ This results from an absence of certain compounds necessary for digesting protiens. She said that taking Betaine HLC , a cheap probioctic complex, and some standard digestive enzymes, in less than a week this cleared up the problem. She also said it worked for people with ‘air hunger’ as well. It seemed to make sense to me, so I thought you might like to look into it. I really hope it helps.
    I also think losing weight could help, but like you I find this extremely difficult as I’ve got older, it sucks, but I’m really happy to hear just how far you have come. To be 90% recovered after 3 years, tells me you are doing well, and with your positive attitude you will get there. Never foreget how far you’ve come in one of the hardest journey’s of your life. Your stronger than you think.
    I wish you all the joy and optimism in the road ahead.
    Love Barbara xx

    • Dee May 29, 2020 at 6:52 am Reply

      Barbara, thanks for the suggestion on the Betaine HCL. I’ve thought about trying it in the past as I know it is possible that I have too little acid rather then too much. This actually is pretty common. I’ve never been tested so I don’t know the answer for sure in my case? BUT I think I will give it a try to see if it is a game changer! I’ve really got nothing to lose. I will know fairly soon after trying it if it works or not for me? Thanks for reminding me about it! I will update you when I give it a try!!! Take care and enjoy going out to eat in a week!! I miss hugging my grandson too! Time to start getting out again in a safe way before we all go crazy!!! Big hugs! D

      • Barbara Arnold May 30, 2020 at 5:53 am Reply

        Dee, just remembered I heard Apple Cider Vinegar can also help. You can mix it with juice apparently. Something else you could look into. Hope it helps.

  2. Lisa May 29, 2020 at 3:59 pm Reply

    Hi All,

    I can’t stop people from commenting on a particular topic or thread (as one can on Facebook), so I just deleted a couple threads that had become contentious on issues other than fluoroquinolone toxicity. I deleted entire threads so as not to single out any particular person. I have an awful tendency to always want the last word, and I don’t think I’m alone in that unproductive tendency, so I just deleted the threads, and I hope that those who were involved in the conversation can agree to disagree.

    Fluoroquinolones don’t care what a person believes, and people from every background and with beliefs all over the spectrum of possible beliefs, have been floxed. In a crazy way, it has brought people together who would not otherwise associate with each other, and that is a round-about blessing. I appreciate all the people that have come into my life because of this site and the “floxie” community. In no way do I appreciate the drugs or the damage they have done – but I do appreciate the people, even the ones that I disagree with and wouldn’t have associated with under other circumstances. This site has been a place where people can find things that they have in common, and they can help people through the horror of fluoroquinolone toxicity. Finding things in common and helping others is at the base of our humanity, and I appreciate seeing the humanity in everyone on here that has helped others through this difficult disease. You are all appreciated. Even those of you who are pissed at me for deleting long posts that took you a while to write. 😉

    We are living in contentious times, and our differences seem to be highlighted more often than the things we have in common. But we really do have more in common than we don’t – and that’s something we should all keep in-mind.

    I ask that until the world feels a bit less topsy-turvy, can you (collectively) please try to stick to topics that are fluoroquinolone toxicity and healing related? I know that COVID, and politics, and other contentious topics are on everyone’s mind, but if you can please stick to FQ related topics for the most part, your help will be appreciated. Thank you.

    Hugs,
    Lisa

    • Andrea May 29, 2020 at 4:13 pm Reply

      Got it 🙂

    • Virginia May 29, 2020 at 5:22 pm Reply

      Hi Dee, I might recommend some caution with Betaine hCl. An integrative doctor recommended it for me, and it, maybe combined with other meds/supplements, made my stomach hurt for a whole year. The doctor had told me to lower my dose when I felt a warmth and tingling in my stomach, but I never felt those sensations, so didn’t realize I might be damaging my stomach. For those of us with too much acid, B. might be unsafe. I think I’ve brought that up on this site before, but not sure if you’d seen it.

    • Virginia May 29, 2020 at 5:26 pm Reply

      Thanks for stepping in, Lisa, and for your tactful, peace-making explanation.

    • Barbara Arnold May 29, 2020 at 9:58 pm Reply

      Thankyou Lisa,
      I one hundred per cent agree with what you have said. Thanyou for this wonderful site that has helped so many, may it continue to do so. xx

  3. Orf May 30, 2020 at 1:01 pm Reply

    Thank you Lisa, thanks for this great site that gives people hope.

  4. Hans May 31, 2020 at 5:25 am Reply

    Thank you Lisa for putting together very useful pieces of information.

    here is also a nice resource for recovery:
    https://bit.ly/3gGj6aP

  5. joanneg May 31, 2020 at 10:26 am Reply

    Andrea, I take Healus which is tributyrate acid along with potato starch and a probiotic so basically the same thing your doctor ordered you and it works amazing for my stomach, gut inflammation and energy. Just wanted you to know in case you haven’t tried it yet.

    • Andrea May 31, 2020 at 2:08 pm Reply

      All right, thanks

  6. Lisa May 31, 2020 at 2:30 pm Reply

    I wanted to let you all know that I received an email back from Henk’s account – one of his loved ones wrote me back through Henk’s email. Sadly, Henk is not doing well. He is very weak and his prognosis is poor. I (Lisa) ask you to keep him in your thoughts, and if you are inclined, keep him in your prayers. He sends his regards to the community.

    I will send him any notes that you want to post here, or you can send them directly to me through the contact link above and I will forward them to him.

    Hugs,
    Lisa

    • Andrea May 31, 2020 at 4:22 pm Reply

      Thank you so much Lisa. Please tell Henk’s family or friends, to keep us updated on his situation, whatever happens. Tell them his floxie family loves him. I know it’s a big request, but try to understand. Thank you so much. Here’s my message to Henk :

      “Dear Henk, It’s Andrea, after a few days of concern because of your absence from Floxie Hope, Lisa informed us about your health status. Needless to say I’m deeply sorry for what’s happening to you. Many of us, me included, during theese days were asking about you. Not one minute I stopped thinking about you, hoping that you were doing better, sadly this wasn’t the case. I just want to let you know that, whatever happens, I consider you a friend. Since we’ve “met” on this website, you’ve always been very nice and friendly, to me and to everyone, and I will never forget all the knowledge and useful informations you’ve shared here. Not only that : all the comments, all the things you’ve shared here, all the worlds that you wrote, I will always keep them with me, in a special place in my mind and in my heart. Even though sometimes I’ve been quite rude with you, I know you’re a great, good guy, and you’ve never felt any anger towards me. You’ve already told me that, and I will always respect you and thank you for that. I wish I could help you, someway, somehow, but I can’t.
      What I can do, is telling you that, no matter what happens to you, you will always be in my thoughts. Like I said, you’re friend to me now. Not only that : you, me and everybody in this community, we share an unfortunate path, so I guess there’s a connection between us.
      I wish you could write me back, like you used to. There’re so many things I’d like to chat with you about, but this is a weird situation. I wish I could find better words, but I can’t.
      I miss you Henk, you’re a good guy.

      • Lisa May 31, 2020 at 4:33 pm Reply

        Thank you, Andrea! ❤ I sent your comment to Henk. ❤ ❤

        • Andrea May 31, 2020 at 5:26 pm

          Thank you Lisa

        • Barbara Arnold May 31, 2020 at 10:04 pm

          Dear Henk,
          You have been an amazing contributer to Floxie Hope, and you are very muched missed. We all thank you, and we think about you . I wish you strength and courage and love.
          Barbara Arnold x💜

        • Lisa June 1, 2020 at 5:30 pm

          Barbara, I forwarded your note to him. xoxo

    • Virginia June 1, 2020 at 5:32 pm Reply

      Lisa, would you please forward this to Henk:
      Dear Henk, you have been a constant source of support to so many on Floxie Hope over the years, and I hope you are feeling our support for you in this very hard time. I pray for your health, and strength and serenity to get through this.

      • Lisa June 1, 2020 at 7:13 pm Reply

        Thank you, Virginia! I sent it to him. xo

    • Rop June 3, 2020 at 3:23 am Reply

      Hello Lisa and all other friends of Henk,

      My name is Rop, I am a friend of Henk. Since Henk is no longer able to read his email, I am contacting you through this site to update you on Henk’s status.

      As you probably already know, Henk is very ill. He was diagnosed with esophagus cancer several weeks ago. The cancer has spread to his liver and lymphs. His prospects are not good.

      Henk has chosen not to undergo chemotherapy, but he has received radiation treatment to reduce the blocked esophagus. Sadly this had only limited effect and he remains dependent on a feeding tube.

      Henk’s time is limited. He would like to thank you Lisa, Andrea, Barbara, Virginia and all others from this site for your friendship and kind words. I will try to keep you updated by posting here.

      Regards,
      Rop

      • Andrea June 3, 2020 at 10:32 am Reply

        Hi Rop and thank you for supporting your friend in this hard time and keep us updated on his situation. We all love Henk, he’s one of us. Thank you again. Say hello to him from all of us

  7. Orf May 31, 2020 at 10:16 pm Reply

    Is Magnesium Cloride ok to take for qinn antibiotic poison? Any info appreciated.

    Thank you

    Orf

    • Andrea June 1, 2020 at 6:11 am Reply

      Any form of Magnesium (cloride, malate, citrate etc) should be good after a FQ course, since it’s shown that FQs depletes magnesium from your body. But keep in mind that we’re all different. For me, personally, magnesium has always been kinda tricky. At the beginning of my journey, son 3.5 years ago, magnesium seemed to do more harm than good. It took a while to see some positive effects. I now use, only sparingly, some magnesium malate (said to be the best for muscle spasms and weekness) and from time to time a liquid multimineral called Remyte mineral solution. It is said that the best form of magnesium for your brain, is magnesium threonate
      Anyway, to answer your question, I belive magnesium chloride is fantastic to use in baths (epsom salt), but I don’t think it’s a good choice to use internally. I would choose other forms.

  8. Dee June 1, 2020 at 2:41 pm Reply

    Lisa. Please send this note to Henk.
    Henk, you have always been there for all of us Floxie’s giving us valuable guidance, information and feedback. You have helped us all in our recovery and healing more then you know. Thank you for caring. Please know how much we appreciate your concern and support. I pray that you are finding strength and perseverance to get you through this very trying time. I pray that you also can find a sense of peace through this too. Thank you for being there always for so many of us. You have touched many of us. May you be surrounded in love and light always. Prayers and thoughts are being sent your way. Blessings.

    • Lisa June 1, 2020 at 5:31 pm Reply

      Thank you, Dee! I forwarded it to him. xo

  9. Orf June 2, 2020 at 12:42 pm Reply

    Thanks for the Mag. information everyone!

    Orf

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