Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

16,746 thoughts on “Floxie Hope

  1. Joanneg November 26, 2017 at 9:13 am Reply

    Hi Everyone,
    I just wanted to say since watching the video I posted a few days back about what fq’s do to you and how to heal from it, I added Dr Carolyn Deans Remyte Solution which is a multimineral solution to my regimen and it was a total game changer. It’s keeping all my symptoms at about 95% better especially my dizzy soupy brain!
    So for those who might be interested, I take 400mgs of magnesium 2 colostrum pills 2 4life transfer tri-factors kefir and a 1/2teaspoon of Remyte Solution 3x’s a day and it’s keeping me at a very good and very steady 95% better. If my vision wasn’t still blurry I wouldn’t even know I was floxed, but even that seems to be a little better.
    I just pray it continues.

    • Deb November 28, 2017 at 4:47 pm Reply

      Hi Joanne,
      Do you take much calcium? Deb

    • Barbara Arnold November 29, 2017 at 11:32 pm Reply

      Hi Joanneg, I have just read a lot on Dr. Carolyn Deans websight. It makes perfect sense, so although it’s expensive I have just sent for the remag and remyte solution. I will let you know how I get on. Glad it’s working for you. Xx

    • Andrea December 3, 2017 at 6:46 am Reply

      Very interesting, Joanne. I’ve never been very lucky with supplementing magnesium, but I’ve checked this Remyte Solution, and since it’s a complete multimineral, with not too execissive doses of each mineral, and it’s also liquid, I think I’ll give it a try, maybe not right now, but soon. Let’s se… As always, thank you.

    • Andrea December 3, 2017 at 7:02 am Reply

      Hi, after Joanneg suggestion,I was just checking this Remyte solution , and on the website (not the original dr dean website) they were suggesting to also take some pure sulfur crystals (msm). It should have detoxifing proprieties and they say it’s great for joint pain. Anyone tried it?

      • Deb December 4, 2017 at 6:02 pm Reply

        Hi Andrea,

        I took MSM before floxing, but not since floxing. I would think it has detoxifying properties since it is a sulfur, but I don’t know for sure. When I took it before it totally took away arthritis pain. I hope to try it soon in a very small dose.

  2. Harriet November 29, 2017 at 4:36 pm Reply

    Need vitamin D as well.

  3. Ni November 29, 2017 at 7:44 pm Reply

    Is an AHA like glycolic acid safe for use on skin after being floxed? As far as I know its not a steroid but im still wondering

  4. Michael Teeter December 1, 2017 at 12:38 pm Reply

    Hello everyone,
    It is going on 6 years since I was Floxed and it has been one heck of a ride. I want to thank everyone who has helped me on my road to recovery. I must say I miss running. Although I can walk again I feel my leg muscles are just not right anymore and I can not run. Maybe I’ll get there and Maybe I won’t I took my wife to the Club to work out the other day and I miss working out too! Don’t get me wrong I love being alive and that I am not in a wheelchair or hospital bed anymore. I am now 175 lbs which is much better than 114 lbs. I don’t even have to use a walker anymore just a cane. I do have the occasional fall from time to time.
    Now that I developed a rare auto immune disease and have to be on immune suppressants because they really are afraid my immune system will kill me. It is like after floxing my system went into super kill mode and they can’t get it to stop. It caused Adult Auto Immune Enteropathy which sucks. But it could be worse. Any suggestions on how to get back to running again?
    I hope everyone else is doing OK.
    Remember Never Give up! Never Surrender!
    Michael Out.

  5. Barbara Arnold December 2, 2017 at 2:53 am Reply

    Hi Michael,
    If running is difficult, why not try treading water in a pool if you have access to one. You get a whole body workout without the pressure. I met a guy in his 70’s who was recovering from cancer and started doing this. He could only manage 5 minutes to start now he can do hours at a time. His body has a six pack and he’s really fit. Just a thought xxx

    • Michael Teeter December 4, 2017 at 9:12 am Reply

      I have done water therapy before and felt stronger. So thanks maybe I’ll do that again.

  6. Joanneg December 3, 2017 at 2:28 pm Reply

    Just wanted everyone to know since I’m out of my flare and doing good, I’m now gonna be stopping all supplements except magnesium, kefir and occasionaly some Remyte.
    I do this because i’m pretty much afraid of all supplements, so when I start feeling better I want to stop them asap, but like I said before I never was able to stop magnesium without getting really bad, so I’ll continue taking that daily.
    Also, whenever I take a natural antibacterial, antivantiviral, antifungal supplement, which colostrum is, they make me feel great for a while like 10-20 days then I start to get worse. So I think they are good when needed but not long term. I think of them as antibiotics, it’s just that they’re natural.
    Anyhow just wanted you all to know.
    Wish me luck😊
    And I hope everyone’s at least better❤

    • Andrea December 4, 2017 at 8:42 am Reply

      Good luck Joanne. I hope you keep feeling good. Just one thing, I think magnesium does to you what vitamin D3 does to me. I sometimes give up almost all the supplements, but when I give up vitamin D3 all the pains inside my bones come back…magnesium never really helped me btw.

      • Joanneg December 4, 2017 at 10:34 am Reply

        Thanks Andrea, its crazy how we were all pretty much injured the same way, but we’re all different in what helps. Ive tried D3 many times without any help, and if i remember, i think it made me feel worse, but now you’re making me want to try it again. But I’ll wait till the next flare I don’t want to rock the boat 😊
        Good luck in your healing❤

    • Michael Teeter December 4, 2017 at 9:13 am Reply

      That is great news. I hope it all works out for you.

      • Joanneg December 4, 2017 at 12:12 pm Reply

        Thank you Michael, and good luck to you😊

    • Deb December 4, 2017 at 4:09 pm Reply

      Congratulations Joanne. It’s good to hear you are better!!

      • Joanneg December 4, 2017 at 4:18 pm Reply

        😊❤

  7. Harriet December 3, 2017 at 6:59 pm Reply

    oood luck. How did your flare last for if you do not mind my asking?

    Thanks

    • Joanneg December 3, 2017 at 9:29 pm Reply

      I had been in a flare for 2 months.
      After drinking 5 drinks at my son’s wedding, I went straight into a flare, and my usual supplements weren’t helping, so i tried a new one called 4life tri factor which pulled me straight out of it.

      • Harriet December 5, 2017 at 2:55 pm Reply

        Thanks for your reply. I ate just one strawberry one grape , a meringue and cream and have been in agony for three days. I also have cystitis and it is getting on top of me.
        I cannot believe that these foodstuffs are responsible but I am sure they are because of their acidity and also because I do not eat any fruit usually except avocados and bananas any more as I wish to abstain from acidic foods .
        Sorry but just feel too down and ill to write sensibly. Having the neuropathy is bad enough to deal without anything extra added on. Sorry to be so miserable.

        • Andrea December 5, 2017 at 4:51 pm

          Hi Harriet. Don’t apologize for anything. I understand, like everyone on this website, how miserable these symptoms are, expecially neuropathy. Anyway, I think food it’s defently something we floxies should consider as an healing weapon, but we should also understand it better. I’ve noticed that eating in a certain way helps me a lot, but eating other stuff triggers all my symptoms. That’s so frustrating. Stay strong.

  8. Debs December 6, 2017 at 2:39 am Reply

    Consuming too much sugar is one of the biggest enemies I personally have re pain Harriet, It sends my own pain levels, particularly the neuropathic pain I experience off the charts.
    i have to avoid sugar in my diet as much as I can possibly do so, as If I slip up, & for me this applies even just a little bit, which still can happen on occasion being human, I will subsequently pay for it each time, & also big time, with a very noticeable increase in my pain levels, & for many days afterwards, Christmas should be fun methinks.
    This link between the consumption of sugar & the worsening of pain experienced, particularly neuropathic pain is recognised.
    Although of course consuming too much sugar in various forms is not the only culprit here re potential worsening of symptoms, & various things can set of my flares, it is I feel, particularly having seen this mentioned so often, a major culprit for so many of us Imho when it comes to increase in our pain levels.

    https://www.weightandwellness.com/resources/articles-and-videos/neuropathy-sugar-connection/

    • Andrea December 6, 2017 at 3:14 am Reply

      Hi Debs. When you say sugar, do you also mean fruits? Refined sugar, junk food etc. it’s definitely detrimental for me, but fruits doesn’t really bother me, actually I think it’s beneficial.

  9. Jason December 6, 2017 at 10:23 am Reply

    Hi all — has anyone had surgery post-floxing? This is what I’m facing now and I’m terrified.

    Quick summary: Floxed in 2009 (tendon issues, nervous system issues), experienced some recovery but have had major set-backs due to corticosteroid use and I’ve even felt that some supplements have made me worse. I’m now off all medications and supplements, and have been on a strict paleo diet for a year.

    I still don’t feel well, but I’ve had some good moments lately and thought things may potentially be looking up — but I now have a hernia that needs operating on. It is not an emergency, but a doctor I trust has told me that it could very easily become an emergency situation and strongly recommended that I have surgery to repair it (he is not a surgeon himself, but he recommended I see one).

    This is a situation I have been dreading for years. I feel that I am HIGHLY sensitive to all drugs and am especially afraid of the general anesthesia that is apparently fluorinated. I think having these powerful drugs would throw a wrench in any recovery I may have had and make me much worse. With all the brain fog and cognitive issues I currently have, I cant even see myself coming out of surgery as the same person. I’m worried I’ll become practically brain-dead. Or worse.

    Please, has anyone had surgery since being floxed? With general anesthesia? I’m trying to at least find a surgeon that may do it with local or twilight, but I’m not sure if that will be an option. And even if it is, I’m still worried those drugs could also make me worse.

    This is just awful. I have an appointment with a surgeon, am I’m guessing he will be pushing for surgery with general anesthesia. I don’t know what to do. I can put it off and ignore this (I’m not in any pain from the hernia), but then I risk being in an emergency situation which may be harder on my body and where I may not have a choice about the kind of anesthesia.

    Any advice or insight would be greatly appreciated.

    • Bob December 6, 2017 at 1:40 pm Reply

      Can’t you wear some sort of brace or “truss” Surgery would likely be very rough.

  10. Michael Teeter December 7, 2017 at 9:46 am Reply
    • Andrea December 10, 2017 at 7:48 am Reply

      Hi Michael. I’ve tryied cbd oil capsules before. Actually even before being floxed. But it never did much to me. After reading your comment, I looked into my, by now too full (LOL) supplement drawer, and I’ve found some cbd pills I’ve had left. So I’ve tried them again, but didn’t noticed much. It’s been two days. But since it’s something that has always interested me, I think I’m going to buy some cbd crystals to vape or try the cbd drops. I’ll let you guys know…

      • Barbara Arnold December 10, 2017 at 8:38 am Reply

        Andrea, CBD oil and tincture is best. Plenty of information out there. You have to start slow and build. Really helped me with pain and sleep issues

        • Andrea December 10, 2017 at 10:55 am

          Hi Barbara.
          I’ve read on the endoca website (that’s where I bought the capsules) that vaping CBD is the most powerfoul way to get the benefits and also gives you the best absortion, also because crystals are 99% CBD, but the effect only stays in your system for about 2 hours, so they also suggests cbd chewing gums (with 15% CBD each one) or the oil. Do you think that 15 % CBD is good enough tough?
          PS I’ve noticed that CBD is so expensive, do you know any reliable website where they sell some cheaper CBD? Thank you.

      • Barbara Arnold December 11, 2017 at 3:06 am Reply

        Andrea,
        I honestly don’t know enough about CBD vaping etc. If you look on CBD facebook there are lots of people there who can advise you about vaping, strength etc than I can. I take Sacred Kana 10% oil and tincture, it works for me, but on facebook lots of people say it’s not the strength it purports to be. It’s a bit confusing so I suggest you thoroughly research before you try it. Some people said you have to be careful with vaping especially if you don’t smoke, but you really need to investigate this for yourself. That’s what I do, and I make up my own mind. So if it works for me I don’t take any notice of anyone who say’s it’s rubbish. As far as price is concerned, CBD user’s facebook will help you there. Sorry I can’t help you further but CBD oil is new to me as well. Good luck xx

        • Andrea December 11, 2017 at 4:33 am

          Thanks a lot, Barbara.

  11. Ann B December 7, 2017 at 11:01 am Reply

    Hi everyone,
    I just stumbled onto this website today. I finished a course of cipro for UTI and tues I started experiencing bi-lateral groin pain that has me barely able to walk and with extreme pain. I went back to ED and all tests came back negative and they said “sorry don’t know the cause” and sent me home with narcotics which I refuse to take. I have been scouring the internet and came across a correlation between my complaints and cipro injection which lead me to this site. My mind is reeling, I am terrified
    and angry and don’t know what to do first. But pain is the worse issue right now so any suggestions where to start??? AnnB

    • Michael Teeter December 11, 2017 at 11:21 am Reply

      If it was me and being hindsight is 20/20. Quit the Cipro and I would Immediately take high doses of Magnesium. Coupled with IV treatments of Meyer’s Cocktail and Vitamin C & maybe even some Glutothion. Seek out a Natural Path asap. If you are experiences adverse reaction to the Ciprofloxin report it to the FDA also report it to the Doctor that prescribed it.
      If you want to go to the regular medical people I received the best help from Rhuematologost coupled with my natural doctor and my acupuncturist and chiropractors.
      Depending if it was a generic or name brand drug you were given and what state you are in you may be able to take legal action for restitution. You may want to get the ball rolling for disability depending how bad you were hurt by this medication /poison.
      I wish all the best for you and I am sorry you have to go through this.
      Michael Out.

  12. Barbara Arnold December 8, 2017 at 12:19 am Reply

    Ann B. The first thing is get some magnesium in you. Dr. Carolyn Deans website will give you lots of info on mag and cipro. I use her Remag and Remyte which is a bunch of balanced minerals. All very absorbable. Or you can get it in tablet form, malate is good not oxide as thats not very absorbable. Cipro leeches magnedium from the cells. Kerri knox’s book will also give you lots of information about suppliments. Take the mag up to 1000mg or until you get loose stools, then you can back off a little. Tap on resources at the top of this page, tons of help there. Act quickly and you may be okay. xxx

  13. Barbara Arnold December 8, 2017 at 5:48 am Reply

    Ann B……As soon as you can go on a gluten and sugar free diet as both cause inflammation.
    What sort of pain do you have ?

    • Ann B December 8, 2017 at 1:15 pm Reply

      Barbara,
      Thank you for the tips. Yesterday I soaked in Epsom salt as I read in one of the posts. First my feet in a saturated bath for about 40 min then later on fully in a tub, although for that I used about 4 cups in the tub – wasn’t saturated. I also got fresh turmeric and ginger and ate that raw. Also, don’t know if it helps or not CoQ-10 and super B complex. My daughter is a bodybuilder and suggested BCCAs which I did also. I do feel better but still have pain. My pain is mainly bi-lateral groin area that is so painful when I walk. The pain shoots down my leg and across my pubic bone. The most difficult part is lifting up my foot to walk. This is clearly near-muscular-skeletal which I never had before. I am very active and healthy. No meds just supplements and my diet is pretty healthy. I don’t eat sugar fried processed or fast foods. I was rushed to ER with extreme abdominal pain where I was diagnosed with sever UTI was given 2 doses of IV antibiotics and discharged home on 500mg Cipr 2x day. Honestly can’t remember the last time I took a prescribed medication. Finished up meds on Sunday and Monday this all started. when my walking became unbearable which was this past wed I went back to ER. every test they ran was perfect! They pretty much said we don’t know sorry here are narcotics!!! I refuse to take them so I am scared depressed and so very angry. 2 weeks ago I was fine looking forward to holidays. Now Im hobbling around worse than my 86 yo father!

  14. Barbara Arnold December 9, 2017 at 12:03 am Reply

    Oh Ann B so sorry this has happened to you. The medical profession do this to you then don’t have any answers, you have to find the way to heal yourself. The reason the tests come back perfect is, this is damage at the cellular level and also they don’t look in the right place. This is another reason they don’t believe you when they can’t find anything wrong. You are doing the right things at the moment, but get lots of magnesium inside you as well. Coq10 is good, but make sure it’s Ubiquinol. Don’t know anything about BCCA’s sorry. Vit D3 Also. I can only tell you that after 3 years I am almost recovered and I did not know what happened to me for 7 months, so I never took anything untill then, so you have a heads up. Don’t expect to feel better overnight, it’s a marathon, not a sprint. Keep researching and take it easy. CBD oil is good for pain, just make sure you research it thoroughly first and start slow. Good luck xxx

  15. Andrea December 13, 2017 at 10:02 am Reply

    Hi Joanneg.
    After following your suggestion, today I’ve tried the Remyte Solution, I’ve only had 1/2 teaspoon so far, but I’ll let you know if I’m gonna find it helpful.

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