Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

17,231 thoughts on “Floxie Hope

  1. Joanneg January 28, 2018 at 6:55 pm Reply

    Even though this site is about cancer, it explains ozone therapy in an easy to understand way.
    https://thetruthaboutcancer.com/ozone-therapy-cancer-treatment/

  2. Joanneg January 28, 2018 at 6:58 pm Reply

    I forgot the video link

  3. Erin January 29, 2018 at 1:32 pm Reply

    Hi everyone. I was floxed in may 2016. I have to get all 4 of my wisdom teeth taken out, they are all impacted, and I’m worried about how to deal with the pain after extraction. I’m not going to be put under or on nitrous, I’m only going to be numb during the procedure. I haven’t taken any pain medicine since I was floxed and I know to avoid NSAIDS or steroids, but I am most likely going to need to take tylenol or some kind of pain medicine. Does this sound like a good plan, tylenol if I need it? I would appreciate any suggestions, thank you.

    • L January 29, 2018 at 1:37 pm Reply

      We are all different of course, but I had no trouble with tramadol.

  4. jat92517 January 30, 2018 at 3:37 pm Reply

    You can’t believe everything you see on the web.

    • D. Mowers February 7, 2018 at 1:13 pm Reply

      What’s that supposed to mean? We all know that the statement is true but what’s your point in posting it here?

  5. Joanneg February 1, 2018 at 12:09 am Reply

    Its 2:00 in the morning, and I can’t sleep. I go for my first iv ozone therapy in 6hrs! I pray it works. I’ll post back to let you all know how it goes😊

    • L February 1, 2018 at 8:57 am Reply

      good move!

  6. Barbara Arnold February 1, 2018 at 1:12 am Reply

    Joanneg, you will be absolutely fine, just don’t expect to much initially. Also don’t forget you may get a small herx, but that will pass. I think (can’t remember) I had about 10 or 12 sessions and it definately helped me. So tons of luck and I really hope it helps you. If you continue to have sleep issues, I recommend cbd oil, that also really helped me. xx

    • D. Mowers February 12, 2018 at 6:25 am Reply

      CBD Oil………….. Please people look into it! Everyone is different but it may help with pain and will most likely help with ANXIETY. Beware everyone is jumping on the CBD band wagon so be sure you are getting a quality product and not a cheap knock off. Trying to use junk will only discourage you from the receiving the potential benefits of CBD Oil. I use it daily and it helps. https://www.hemplandusa.com/ Very expensive but considered as one of the best because it is pure and the only additive is peppermint to enhance the flavor.

      • Barbara Arnold February 12, 2018 at 8:01 am Reply

        Yep, I agree, but I think most floxies do research on any products now. We are generally ultra careful, thank goodness.

  7. Joanneg February 1, 2018 at 9:00 am Reply

    Well I just got back my appointment. I didn’t get the ozone therapy, I drove 1 1/2hrs to be told i had to agree to an $8,500 care package.
    I SURE wish they would have told me that when we talked on the phone!!
    Barbara, did you have to sign up for a package deal? Do you live in the US, if so where did you get your treatments? And thanks again for trying to encourage me through this.
    Anyhow, I just plan on drinking a small glass of ozone water, but only like once a week cuz it was hard on my stomach, and I think it kills good bacteria even though most of the sites say it doesn’t.
    But I got a tremendous amount of symptom relief with it, so unless it does something negative that’s the plan.
    Hope everyone is feeling better😊

    • L February 1, 2018 at 9:16 am Reply

      Oh I am so sorry! I know several practitioners in the area that do ozone, and I do not believe any of them require that! (I am in southern California.)

    • Bob February 1, 2018 at 6:38 pm Reply

      I have researched ozone quite a bit and many believe that rectal infusions are just as good as treating the blood. I found someone locally that does treatments for $30.00 and they wanted 20 treatment package. I have been researching ozone generators for home use but haven’t settled on one yet.

      • Deb February 2, 2018 at 2:54 pm Reply

        I have heard positive results with the rectal infusions also.

    • Barbara Arnold February 1, 2018 at 10:49 pm Reply

      Oh Joanneg, really sorry, what a dissapointment for you and what a waste of time and energy. No I don’t live in the US I live in Spain. I am an ex pat. I paid 100 euros a session, but did not have to sign up for any package. The Doctor I saw only did ozone, nothing else, and he went by my symptoms, it was still expensive though. I also have an ozone water purifier, I don’t use it much now as I forget it’s there. I don’t think it kills good bacteria, there is a scientific reason, which I can’t remember, but I researched it fully before I bought it. If you are having gut problems you need to look at your diet more, what you are eating and what your not eating.. The ozonated water has to be drunk fairly quickly because the ozone does not last if left. I do hope you can find an alternative ozone doctor.

    • Henk Noordhuizen February 14, 2018 at 8:51 am Reply

      I got a course of Cipro in sept. 2016 and had to stop after only 2 days. My doctor subscribed this in spite of the fact that she knew that Cipro and Flecainide Acetate together are a very dangerous mix. Few days later,when I told her I stopped with the Cipro,she got realy angry at me until I told her that an other doctor give me the advise to stop.She even told me that she never had any complaints about this Cipro poison;I guess that I’m het first survivor :-((

      I had heart pulptations for over a year;a frightening experiance over and over again. Those are almost gone ;only sometimes come back but less severe.

      One of the othjer adverse reactions I had was hyperglycemia,and hypoglycemia as well (which was less severe and disappeared within the first few month).

      I write this as a reaction to the posting of Joanneg,and the absurd price she would have to pay for “the packet”. My first experiance with anti-bio’s was in 2004,with a course of 2 broad spectrum AB’s,and this made me sick to the bone,It took me 3 years to find something to cure and stabilize my bloodsugarlevels. Used this again because this same problem ,one month after tose 2 poison-pills,did not disappear ,and it helped a lot,although I could not eat as much bread without problems as before the Cipro. And 2 weeks ago,all of a sudden,the problem came back very severe;don;t understad what made this happen!

      Now I decided to follow the whole protocol (it’s called the Beck Protocol),and started 2 weeks ago.It worked miracles! Thank you so much,Bob back !!! And because it can be done in a very cheap way (like I did in 2007,after 3 years of severe problems),I will try to explain it the best I can (I’m from the Netherlands;english is not my “own”language).

      The Beck protocol consists of 4 seperate things; blood electrification, magnetic pulsing, consuming ionoc silver water and drinking ozonated water (with a timespan of atleast 1-2 hours between the ozone and the silver,otherwise both react into silver-oxides,which don’t work for you). The Silver Pulser (for pulsing your blood and making the silver water),and the magnetic pulser are fairly easy to make yourself,maybe with help of somebody who knows the basics of electronics. After my big success in 2007 I bought the (semi-)professional and more convenient devices made by Sota;the owner of that company showed Bob Beck his improvements on the simple schematics that Beck published on the web,and Bob gave him permission to produce and sell this improved devices on a commercial base.

      Now,two weeks into the protocol (which lasts at least 2-3 month),my bloodsugar levels are stabile! Yesterday I even tested it in a very risky way by eating a BIG piece of Panetonne and did NOT get a hyper (one hour after eating this I measured 8,9 mmol;the max “permitted”,but to be expected after the amount of carbs and sugars I consumed. While,two weeks ago,two slices of whole wheat bread gave me a level of 16,4 mmol ,one hour later. Toke way too long to to come down to a healthy level,too. An amazing improvement,in just two weeks.

      I’m not going to explain the protocol because there is an very good website about Beck,and his protocol : bobbeck.com Just want to share my experience with this protocol,first with the homebuild devices,and later on with the great devices from Sota. I had very positive experiences with magnetic pulsing (the pancreas is the main area to pulse for problems with unstable bloodsugar),and with musculare and other pains. It also helps against infections. The silver ions are antimicrobal; recent research showed it to kill breastcancercells in vitro. I advise you to view the lecture Beck gave,on Youtube;links can be found on the bobbeck website.And,while there,you might read about his live and works as well; this man is a real genious;worked for the navy in developing advanced devices.

      I’l read comments from time to time and try to answer questions the best I can. Wish you all to find back your health And I thank everybody for good advice given here (magnesium supplements are among my favorites for many years,and here,in The Netherlands,we got Zechstein magnesiumsalt,which is great!

      Greetings from Henk Noordhuizen,The Netherlands.

  8. Andrea February 1, 2018 at 12:25 pm Reply

    Hi everyone. I wanted to share with y’all, another disappointing experience I had.
    I spoke to another doctor yesterday. He works in a pretty important clinic here in Italy and he’s also a neurologist. I travelled to get there, because I thought I could spoke to some of the top doctors in this country, But I was totally wrong.
    First of all, he said that there’s no scientific evidence that Quinolones cause neurological damage in young people, and it’s impossible that they can cause damage to organs like the bladder. When I objected it, he said that I could belive him or not, but that’s what the science says. I wish I had brought with me all the scientific researche I’ve read during this year, plus, all of our experiences. He was only aware that FQs can cause tendinopathy, but only in elderly people. So, basically, a top neurologist, was only aware about the side effects written on the warning label. Wow…that’s comforting!

    • Joanneg February 1, 2018 at 12:52 pm Reply

      Yea, thats so unbelievable!! But par for the course.
      One thing we all learned through this is just how clueless most dr.s are to a lot of health issues but especially FQ’s!

      • Mary February 4, 2018 at 7:43 am Reply

        Joanneg I agree BUT there are also a lot of dumbass naturopaths. Ozone inhalation being one of the dumbest things I have heard of., Sorry but people need advising safely.
        Supposing someone so desperate for a cure tries it out and suffers irreversible lung damage?
        That is my fear.

        i

        • Andrea February 8, 2018 at 6:10 am

          I agree

    • Bob February 1, 2018 at 6:23 pm Reply

      What a pathetic dumb ass.

    • L February 1, 2018 at 9:23 pm Reply

      That makes me so furious!!! How about sending the idiot a copy of this? https://www.fda.gov/downloads/Drugs/DrugSafety/UCM365078.pdf

      You know, of the dozen or so doctors I saw post Cipro that threw me under the box, the neurologist was the WORST. He also was totally unaware of the damage from Cipro. He in fact, in his notes called me “delusional.” If I had a lot of money to burn I would buy up a lot of copies of the late Dr Jay Cohen’s book and send it to every knucklehead allopath I saw. Sorry you wasted your time and money.

      • Andrea February 2, 2018 at 3:40 am Reply

        Delusional!? I’m so sorry L, nobody, suffering like you do, should be called like that, expecially when you have evidence to back up your symptms

        • L February 2, 2018 at 12:22 pm

          yeah, that really was the icing on the cake. And at this point I was in horrible shape…35 lbs down, barely able to walk without help, massive visions issues, excruciating pain, and feeling like I had double pneumonia. I had already “had it” with allopaths and the ONLY reason I went to see him was to get the result of an ultrasound I had had on my wrist which swelled up over the tendon. I went to him in particular because a dr I had seen at UCLA, who also was not helpful, but had been the nicest and least dismissive, recommended him for the results of the test she ordered. Later when I tried to get my records for a lawsuit he refused to give them. I kept telling him he had to by law. Anyhow, after one of my visits trying to get the records, I looked at the couple in the waiting room and said “Run for your lives!” before I left. I then got a letter in the mail saying if I came to the office again they would call the police. 🙂 (I ended up sending him a flq article on nerve damage from Cipro, from the Journal Neurology with a post- it saying “Ever heard of this?” (IT is the most highly peer reviewed journal for neurology.)

        • Andrea February 2, 2018 at 2:51 pm

          Yeah,,,sad to say it, but the more I look at doctors, the more I see a vague clique. Don’t get me wrong, I still belive in official medicine, and I think that medicines and drugs are useful when you need them. As crazy as it may sound, I belive that even FQs are useful in some extreme cases (I’m talking about life or death situation) . And I think that there are still a few doctors out there, that really care for patients and are not ignorant. Anyway, most of them are too indoctrinated by big pharma. That’s a fact. Also, because of this, they tend to underestimate other great alternative approaches.

        • Mary February 5, 2018 at 6:42 pm

          Dr Mark Gillila talks about Cipro paralyzing him and successful stem cell therapy treatment in San Diego. The stem cells were taken from his own body fat according to CBS news report.
          See U tube as unable to copy the link for some reason.

          Dr Mark says his medical colleagues disbelieved him when he collapsed after taking Cipro for two weeks for a UTI!!!!!!

        • L February 5, 2018 at 8:20 pm

          I have also read that the value of the cells diminishes with age. I wonder too how much the time between being floxed, and the time of having this done matters. I spoke with the doctor and he said something to the effect of he thought “the sooner the better.”

      • Barbara Arnold February 3, 2018 at 2:45 am Reply

        You could be my sister L, we think alike lol Go girl go.

        • L February 3, 2018 at 11:08 am

          you gotta score those points where you can! 🙂

    • Barbara Arnold February 1, 2018 at 11:04 pm Reply

      Andrea, he is negligent in his duty of care. Some of these Doctors are arrogant beyond belief. I had a similar one who thought she was so important, and so far up her own…a.. I did make up a pile of evidence in 4 packages to give to every neurologist in my local hospital and delivered it personally to all their secretary’s. The first page I typed in bold YOU ARE NEGLEGENT IN YOUR DUTY OF CARE. Guess what… NO ANSWER, NOTHING. They are not healer’s in any which way at all. I avoid all Doctors now if it is at all possible as I have absolutely no respect for them. When I first got floxed I wasted nearly two years going from one so called specialist to another, all, with no exception were arrogant. This caused me so much stress and made my symptoms worse, I decided that I was never going to get anywhere with these idiots and stopped hoping that there was someone out there that was interested in actually helping me. I always look for ways to help myself now and I always tell as many people as I can about what happened to me. If I just save one person from the hell and devistation this shit causes then I’m happy.

      • Mary February 6, 2018 at 6:31 am Reply

        CIPRO IS POISON!
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        20 Things Cipro’s Warning Label WON’T Tell You:
        1. As everyone knows, all drugs have potential side effects. In the vast majority of drugs on the market (over 95% of them), these side effects are transient–meaning they cease when the medication is discontinued. This is NOT the case with Cipro. Many of the side effects listed on Cipro’s warning label (plus many others that are not) can actually be PERMANENT and result in lifelong disability! Bayer blatantly hides this fact, as the word “permanent” appears absolutely nowhere on the drug’s warning label1.

        2. Cipro is a purely synthetic chemotherapeutic antibiotic in the fluoroquinolone (also referred to as “quinolone”, “quin” or “FQ”) class of drugs. Well over HALF of all fluoroquinolone antibiotics have been pulled from the market over the years for their horrific safety records–and those remaining (Cipro, Levaquin, Avelox and a few others) are no safer! A study of ADRs in Italy, published in 2005, found that among more than 50 types of drugs, fluoroquinolones were involved in the largest number of serious problems and accounted for 11 percent of all adverse events.2 Every single drug in this class carries a black box warning–the equivalent of a skull & crossbones–for its nasty and long-lasting side effects. A black box warning is the last step before a drug is taken completely off the market. There is NO SUCH THING as a safe fluoroquinolone antibiotic! *Update: Cipro now carries TWO black box warnings!
        3. The odds of experiencing an adverse reaction to Cipro (including, but certainly not limited to tendon rupture) are MUCH higher than the warning label would have you believe. These adverse reactions are also much more severe and long-lasting than Bayer will admit to.

        4. Cipro’s warning label makes it sound as if tendon rupture is the worst possible scenario. What it doesn’t tell you is that the drug is actually capable of unleashing an entire SYNDROME of systemic toxicity upon the patient which is often referred to by victims as “floxing” or being “floxed.” Others refer to the condition as “fluoroquinolone toxicity syndrome.” Regardless of what you want to call it, it is absolutely devastating and commonly includes 30-40 different adverse symptoms all being suffered simultaneously and often lasting for YEARS. Many of these symptoms are devastating in and of themselves. This Cipro-induced toxicity syndrome wreaks absolute havoc on every part of a person’s body–every tendon and joint in the body can become affected, every organ (including the brain), peripheral nervous system (resulting in severe and potentially permanent pain conditions, dystonia, muscle weakness or autonomic dysfunction), vision damage up to and including temporary blindness, retinal tears and/or permanent double vision, permanent tinnitus (ringing in the ears), long lasting or permanent central nervous system damage (including relentless insomnia, memory problems, random panic, depersonalization, psychosis), chronic fatigue, multiple chemical sensitivities, severe muscle wasting, hair loss, skin changes, severe dryness issues (dry skin/eyes/mouth/nose), extensive dental damage, sudden development of new food allergies and on and on and ON. While many of these side effects are indeed listed on Cipro’s warning label, many are not. And again, nowhere in the drug’s literature does Bayer acknowledge the existence of this devastating syndrome–nor do they disclose that if you fall victim to it you’ll be experiencing nearly ALL of the ADR’s listed on the warning label simultaneously! More than a few victims, as you may imagine, have been driven to suicide as a result of being floxed by fluoroquinolone antibiotics including Cipro.
        5. Cipro attacks much more than just your tendons–it is toxic to ALL connective tissues including muscle/bone/fascia/skin/nerves/even cartilage!3 A laboratory study done on puppies showed that Cipro actually melts the cartilage out of their joints. (In case you didn’t already know–cartilage does not regenerate! Once it’s gone, it’s gone). Degeneration of the cartilage matrix in humans has been observed following as few as two oral doses of Ciprofloxacin.4 This information has been known by scientists for over a decade now, and yet the word “cartilage” still appears absolutely nowhere on Cipro’s warning label! There’s a huge difference between “joint pain” (what is described on the drug insert) and complete joint destruction requiring replacement! And yet numerous individuals–both young and old–have had to undergo full joint replacement surgeries shortly after taking Cipro. People have also suffered osteonecrosis (bone death) as a result of taking this drug.
        6. Cipro does not cause “tendonitis” as Bayer describes it on the warning label. Tendonitis is an overuse injury. Fluoroquinolones–including Cipro–are directly toxic to tendon cells, chemically altering and destroying them both at the cellular and DNA level.5 Again–there’s a big difference!
        7. Cipro-induced injuries DO NOT HEAL NORMALLY, if at all. Floxed bodies lose their ability to heal. A small injury that would heal in a matter of days for a “normal” person often takes weeks or months to heal in a floxed person, or may not heal at all.
        8. Cipro can and will attack your body regardless of your age or prior level of health. Do not think that because you are young, healthy or have never experienced any tendon or joint problems that you are safe taking this drug. It doesn’t work that way! In fact Cipro is not even permitted for use in patients under the age of 18 because it can interfere with the development of a child’s still-growing connective tissues. Cipro can render a top athlete of any age completely crippled and unable to walk, let alone workout or compete ever again.
        9. Do not think because you’ve taken Cipro on previous occasions without any apparent problems that you’re safe to take it again! Cipro’s damage is cumulative, and the drug can turn on you at any time. This is not an allergic reaction we’re talking about here. Everyone’s threshold for the drug is different, but given enough of it, anyone can and will become floxed by Cipro. Once you have surpassed your threshold–that’s it. There is no going back. Many disabled Cipro victims report having taken Cipro “successfully” a number of times before it finally turned on them.
        10. Unlike most other drugs whose side effects surface while actually on the medication, Cipro is capable of causing severe delayed reactions that don’t even manifest until long after you’ve finished taking the drug. This is unbelievably dangerous. What it means is that you could be experiencing a potentially permanent, crippling reaction to the drug but have NO IDEA until it’s too late! Victims often report finishing their entire course of Cipro before “the bomb” finally goes off inside their body. It is not uncommon for a week or two to pass between the ingestion of Cipro and the onset of its toxicity. Once floxed, your risk of tearing or rupturing a tendon continues indefinitely–there are people still experiencing tendon tears & ruptures many years after ingesting this drug. Those who suffer delayed reactions often never make the connection between their sudden ‘mysterious’ health problems and the antibiotic they took days, weeks or even months prior, so these reactions go largely unreported. Worse, these victims often end up taking more FQ antibiotics at some point, which then cripples them even further.
        11. People have wound up on crutches or in wheelchairs for the rest of their lives from as little as a few pills. As stated earlier, it is not uncommon for every tendon and joint in a person’s body to become affected including shoulders, arms and hands, so often standard wheelchairs are not an option and an electric wheelchair or motorized scooter must be used instead.
        12. In addition to being highly toxic to connective tissue, Cipro is also a neurotoxin capable of crossing the blood-brain barrier and causing severe long-term neuropsychiatric side effects. These include random episodes of panic and anxiety, relentless insomnia, seizures, confusion, depersonalization, psychosis, memory loss, paranoia and hallucinations. These side effects can result from as little as ONE pill and persist for years or in some instances even be permanent! People have ended up in psychiatric wards or worse–killed themselves–as a result of some of these psychiatric side effects. Imagine for a moment being unable to sleep more than 1-2 hours a night, every night, for YEARS. link1 link2
        13. There are entire online communities and support groups consisting of thousands of fluoroquinolone antibiotic (Cipro) victims, with new members unfortunately joining nearly every single day.
        14. Dental damage! Cipro can calcify all of the nerves in your teeth as well as permanently dry out your mouth, promoting extensive tooth decay and/or tooth loss. There are people in their thirties who now wear dentures as a direct result of Cipro destroying all of their teeth from the inside out. Others have had teeth literally break off at the gum line after becoming floxed. Again–NO mention of this anywhere on the warning label!
        15. As stated previously, Cipro is a 100% synthetic chemotherapeutic drug. It works by interfering with bacterial DNA, preventing it from replicating. The problem is, how can a synthetic chemical differentiate between bacterial DNA and your DNA!? As it turns out, it can’t. Hint: If your cells cannot replicate, your body literally begins to fall apart! Which–coincidentally–is exactly what happens when a person becomes floxed. Muscles rapidly waste away, tendons tear and rupture (sometimes even in one’s sleep), retinas spontaneously tear, cartilage erodes from the joints.
        16. The vast majority of doctors are completely ignorant about Cipro and its horrific and long-lasting side effects. Most won’t believe you when you tell them a prescription antibiotic has caused your slew of sudden disabling health problems–even if your symptoms match the ones listed right on the drug’s warning label! They’ll insist that the drug can’t possibly still be harming you days/weeks/months/years after you’ve ingested it. They’ll try and tell you you’re just getting old or they’ll subject you to a myriad of expensive testing in hopes of finding an auto-immune disorder or some other explanation for your problems. Inevitably the tests all come back negative. There is no auto-immune disorder…you were poisoned by an FDA-approved antibiotic. Sadly, even if you do manage to find a doctor who is familiar with fluoroquinolone toxicity, there is absolutely nothing they or anyone else can do to reverse the damage once it has occurred. There is quite simply NO treatment for floxing–no remedy, no tonic, no antidote. Once the damage is done, it’s DONE. And yet Cipro’s warning label instructs you to call your doctor immediately if you begin showing signs of an adverse reaction! What’s the point?!

        17. Doctors often try to misdiagnose flox victims as having auto-immune diseases such as multiple sclerosis, since many Cipro-induced ADR’s mimic those of auto-immune disorders. Other favorite misdiagnosises include reflex sympathetic dystrophy (also called chronic regional pain syndrome or CRPS), fibromyalgia, chronic fatigue syndrome, scleroderma, Raynauld’s syndrome, and Sjogren’s. Very few doctors–outside of alternative practitioners–will ever attribute your slew of sudden health problems to your having been poisoned by a prescription antibiotic.
        18. Bayer does not know the mechanism behind how or why Cipro cripples people (at least that’s what they claim). They also do not care, and are not interested in finding out. Bayer does NOT like to hear from their victims and does everything in their power to silence them. Many websites set up in order to spread information and awareness about floxing have been threatened with legal action and shut down. Others have ‘mysteriously’ disappeared from the web over the years without explanation. We’ll see how long this one lasts!
        19. If you become crippled by Cipro, don’t expect any lawyers to take your case. They will claim you were warned. Of course, as I have just outlined, you were not at all warned adequately or truthfully about the scope, likelihood, severity or duration (aka permanence) of Cipro’s nasty and life-altering side effects. Then there’s the issue of proving cause and effect and statute of limitations with a drug whose side effects sometimes don’t even fully surface until years after being ingested! Talk about the perfect crime!
        20. SSDI does not recognize fluoroquinolone toxicity as a diagnosis, so you will have to fight tooth and nail to obtain any disability benefits once you’ve been poisoned. The very government that allows this drug to be handed out like candy then turns around and tries to prevent you from collecting disability benefits once you’ve fallen victim to it!

        In short, a prescription for Cipro could end up being the most expensive prescription you EVER fill. My life ended on October 25th, 2009 thanks to just (12) 500mg Cipro pills I’d taken over the course of six days. Other than a suspected urinary infection, I had been an incredibly healthy and active 30-year-old prior to ingesting those six grams worth of poison. SIX GRAMS was all it took to completely and utterly end my life. I met NONE of the “risk factors” listed on Cipro’s warning label, and yet here I am years later housebound and essentially bedridden and with devastating injuries to my musculoskeletal and nervous system. Think for a moment of all the things that make your life worth living. Now imagine suddenly being unable to do any of those things. That is my reality now thanks to Bayer “Heathcare”, an inept FDA and my doctor who I trusted to ‘do no harm.’ Those 12 pills cost me absolutely EVERYTHING. No more work. No more traveling. No more gym. No more living on my own. No more walks around the neighborhood. No more trips to the mall. No more grocery shopping. No more swimming. No more tennis. No more bowling. No more dating. No more sex life. No more dreams of buying my own home or opening my own business. Hell, I can barely walk to the mailbox! My car is gone, credit is destroyed, quality of life demolished. EVERYTHING IS GONE!!!
        This site is my way of screaming from the mountaintops since the FDA is obviously NOT doing their job!!! This website is the warning I wish I had been given. Bayer may have crippled me, but as long as I’m still breathing they will NEVER shut me up about this! I will do my best to spread this website to the far reaches of the internet in an effort to try and reach as many people as possible before they too become unsuspecting victims of this horrific drug. This NEVER should have happened to me–not when there are a plethora of other, safer antibiotics on the market that are just as effective at killing bacteria WITHOUT the risk of permanently maiming the patient! The fact that both Bayer and the FDA know about Cipro’s horrific safety profile and not only look the other way but actively COVER UP these facts and keep them hidden from the public and the medical community is downright criminal! Do you know that I’ve filed adverse reaction reports with the FDA every six months since this happened to me and not ONCE has anyone from the agency bothered to contact me for any further information? As it turns out, the FDA’s main interest is NOT assuring public safety but rather maximizing drug company profits.

        Please read my story, visit the external links I have compiled and warn everyone you know about what is happening. I do not want one more person to fall victim to Bayer’s limitless greed and the FDA’s utter ineptitude and corruption!

        CIPRO IS POISON!!!

        1. As of August 2013, the FDA finally added the word “permanent” to fluoroquinolone warning labels, but only in regards to nerve damage: http://www.fda.gov/Drugs/DrugSafety/ucm365050.htm
        2. Galatti et al., Neuropsychiatric reactions to drugs: an analysis of spontaneous reports from general practitioners in Italy. Pharmacological Research 3: 211 (2005)
        3. http://www.levaquinadversesideeffect.com/wp-content/uploads/Documents
        4. http://www.jbjs.org/article.aspx?Volume=82&page=161
        5. http://www.ncbi.nlm.nih.gov/pubmed/18027099
        *Please note that EVERYTHING stated on this webpage is also true for Levaquin, Avelox and ALL other fluoroquinolone antibiotics–there is NO such thing as a safe fluoroquinolone antibiotic!

        • L February 6, 2018 at 12:04 pm

          Mary, I share your outrage. The devastation is CRIMINAL, especially since Bayer, Johnson and Johnson (Levaquin.Avelox) AND the FDA have known for DECADES.

          I agree as well with how out of touch (ignorant) most doctors are regarding the damage.

          RE “don’t expect any lawyers to take your case.” Yes, it will be difficult to find a lawyer, BUT it very much depends on individual circumstances. I ended up fighting my case on my own, but I have found an attorney for another floxie. What I will tell you is that if you took a generic you can’t (at this time—some law firms are working to change that) sue the manufacturer. BUT you can sue the doctor for negligence, depending upon the individual facts of your case and in some states you can sue the pharmacy depending on your state’s pharmaceutical laws (especially duty to warn laws.) I am afraid sometimes this is the ONLY message they will understand…when they are financially impacted.

          I would encourage you to look into prolozone for damaged tendons and other connective tissues. This helps the body heal itself. Post Cipro I ended up with torn meniscus. I used a cane to walk, couldn’t squat down, etc. Several months post injection, I was pretty much back to normal regarding my knees. (I wish it could correct the vision and olfactory and aural damage! Not to mention the fluid around my heart, and other issues.) But please look into this. IT is not very expensive either. My ND did it but many sports doctors are now using it. (Not to be confused with prolotherapy, which I think works on the same theory but does not use ozone.)

        • D. Mowers February 7, 2018 at 1:54 pm

          I am 83 years old and would you believe it just now learning about all the terrible things that flouroquinolones can do to a person. In the mid 1980’s I was in the clinical trials of Cipro. I took it then because I had acquired a chronic urinary infection and no other applicable antibiotic was successful. I have taken it many times since. In all I have probably taken it 50 to 60 times over the past 30+ years. Probably in the neighborhood of 1,000 pills. Over the years I have developed symptoms that doctors could not explain so they just lumped over it. I was told that it was just old age setting in and I accepted it.
          I recently had to make a trip to the ER and was given an IV dose of Leviquin. Upon release I came home and spent the next 10 days taking Cipro.
          As of today I am not seeing any more serious (than I already have) effects from the flouroquinolones.
          I must consider myself extremely fortunate in my past experience with Cipro. Now that I have been given the Leviquin IV…. I don’t know what to think. Now that I have found these sites discussing flouroquinolones and their terrible side/after effects I am really concerned about my future.

        • Bob February 7, 2018 at 2:54 pm

          Don’t succumb to the power of suggestion. Some people don’t seem to be hurt by cipro. You are probably a good detoxer. Don’t worry about it but make sure you are getting enough minerals like magnesium and calcium.

        • L February 7, 2018 at 6:52 pm

          Bob, it has been strongly suggested that virtually ANYONE would be affected by the fluoroquinolones, given their own personal threshold….that the damage is cumulative. D Mowers is indeed fortunate to have not been extremely damaged given all the fluoroquinolones given to date. But please do not suggest it is all in his/her head. We get enough of that from the medical community.

        • jat92517 February 7, 2018 at 9:53 pm

          D.

          Do a saturated Epsom Salt Foot Soak for a week. Search this site for details – Epsom Salt.

          If you react Vito this, it means you have other nutrient deficiencies. Ask a question on this blog and describe what you are feeling in as much detail as you can. Someone will answer you.

          John

        • jérôme February 13, 2018 at 5:33 am

          Did someone try a diet like paleo or keto,and a fasting?

    • Mary February 17, 2018 at 11:36 am Reply

      All these drs p… in the same pot as my father used to say.
      American Anaestheologist faked data! What a surprise LOL!

      https://www.scientificamerican.com/article/a-medical-madoff-anesthestesiologist-faked-data/

  9. Andrea February 2, 2018 at 3:34 am Reply

    Thanks guys for your answers.
    Yeah, I forgot to mention, that, when I asked him what he would suggest to do for my symptoms (I was there mostly for my bladder issues) he said, just to add fuel to the fire, that there’s probably nothing wrong with my bladder, maybe it’s just a little “weak”, and that I should watch my liquid intake during the day ( even if I repetedly told him that I only drink water and no more than 2 lt per day) and to start to “forget” about my symptoms, because, according to him, it became a psychological thing.
    Jesus… when this “doctors” have no answer and don’t know what the f**k to say, they soon come up with the psychological answer. That’s a great way to put the blame on you. Trust me, I wanted to spit in that face, but in the end, I just smiled, and said “Okay”, since I already knew that the visit would probably end up like this.

    • Mary February 7, 2018 at 7:06 am Reply

      Andrea I agree . I was referred to an endocrinology surgeon for thyroid issues following floxing of course.
      This prize idiot refused to do thyroid blood screening, she also refused to do an ultra sound scan of the thyroid despite it being the next move as a multinodular goitre had been found as an incidental finding when I had a ct scan to exclude blood clots.

      This apology for a dr said well ‘we may not find anything. To which I blurted out well you won’t if you do not look will you?’
      I advised her just in case she could not read that the ct scan showed a multinodular goitre and that blood tests done elsewhere showed thyroid disease.

      I had said I felt depressed and very anxious -lus about 10 other signs and symptoms all screaming out the diagnosis of thyroid issues and she asked me if I wished to be referred to a osychiatrist.

      I said NO I did not know that endo issues were psychiatric problems. The point of this is to show that these drs know nothing about most conditions let alone being floxed which damages the thyroid.

      /

      • L February 7, 2018 at 11:25 am Reply

        IT is astounding how ignorant so many doctors are. They have been force fed a standard protocol, relying heavily on big pharma, and if you have something that doesn’t fit perfectly in their little box, they are lost. And if you DARE to suggest a suspicion, you are ridiculed for doing “medicine by google” or told you are having mental issues. Another HUGE problem is that everyone is SO specialized, they not only are unable to make any connections to other parts of the body, they often complicate matters by treating part without looking at the whole. The ND that finally got me on the road to recovery, who of course is NOT covered by insurance, knew MORE about the entire body and its interactions/reactions than any of the other dozen MDs I saw.

        • Bob February 7, 2018 at 12:16 pm

          YES, It is astounding how ignorant they are. And they follow the guidance of the FDA. I am being treated by a homeopathic doctor right now and today he told me not to pay attention to anything coming out of the FDA. The FDA has been ” cracking down” on homeopathy which is by nature harmless. CIPRO which can cripple you and ruin your life is OK with them, the evil bastards.

        • L February 7, 2018 at 12:38 pm

          Yeah, my ND told me last week that they were making homeopathic remedies illegal, but I looked it up on Snopes and they are not illegal, but reclassified. Big pharma does not like competition. I just infuriates me that big pharma can literally KILL millions of people and disable millions more, but if ONE person has a bad reaction to anything natural, all hell breaks loose.

        • jat92517 February 7, 2018 at 1:24 pm

          When you realize medical school has only two years or less of technical courses and the rest is clinical ‘hands on’ teaching by observing the patients in thier field with no research project, our complaints fall in line with reality. They are not Doctors of Philosophy but Medical Doctors, trained in a treatment Protocol. We expect more than they are trained to do.

          Medicine chemistry has gotten so complex we need a new type of Doctor ,CMPhD to backup these people. They need to do some research that contributes to the “body of knowledge” (requires inductive and deductive reasoning and process analysis thinking skills) plus pharmacology, 6 chemistry courses, and Chemical process control experience. Then clinical on cases that require some dectective work under the supervision of a CMPhD plus a professor. The professor needs to keep learning the real world continuously.

          Then we’ll begin to understand how the human body works.

          I control my diabetes with a handful of over the counter supplements and a “eat what want diet” that limits, makes sure I get, or tracks the consumption of high glucose carbs. Often I am only taking one OTC supplement. I test my blood glucose once a week because it does not change very quickly.

        • L February 7, 2018 at 1:46 pm

          And yet, as I stated, my ND (AND my chiro AND my accupuncturist) know more about the body and its different systems than ANY of the MDs I saw. (and pharmacology is a big part of the problem.)

      • Bob February 7, 2018 at 12:22 pm Reply

        They are very poorly educated.

  10. Deb February 2, 2018 at 3:02 pm Reply

    Does anyone have herbal/natural suggestions for gastritis and indigestion? I don’t know if floxies can take antacids or something like Pepto Bismol. Thanks!

    • Virginia February 2, 2018 at 5:02 pm Reply

      There are lots of good natural remedies: I have used DGL (a form of licorice), Mastic gum, ginger, slipper elm, marshmallow root, aloe vera juice, and many others with success. You can google “natural remedies for gastritis/indigestion” and experiment with the suggestions.

      • L February 2, 2018 at 5:26 pm Reply

        Virginia do a word search on this site. There have been many posts dealing with this. Also look into betaine HCl with protein meals (dosage is tricky and best done with ND) Also digestive enzymes and absolutely add a good quality, multi strain probiotic

        • Mary February 6, 2018 at 12:45 pm

          L Thanks for your reply to the posting I sent with all the damage that Cipro and other flq causes to us.
          I will definitely try the prolozone as I am nearly giving in right now to these feelings of deep despair.

          There is no reply icon next to your name on your reply hence posting to you on another , hope that makes sense.

          Thanks once again. It does help to talk and share .BTW Did you read that drs/scientists re working on new antibiotics devised from ones they discarded in the past¬

          Chief of this crazy project is Dr O’Neill . London.Medical Research Council.

        • L February 6, 2018 at 1:12 pm

          Mary, it just makes me so disgusted that they are recycling old drugs. But I am not in the least surprise, because…..MONEY! How much cheaper to just bring back the oldies. A few tweaks, a new name, and they’ve got a new money maker!

          Are you in the US? If so, which state? You may be able to get someone to post if they have had the prolozone injections done in your area. (Btw, I am sure it depends on where you live, but my injections cost $200 per knee. Pretty cheap all things considered! My ND also did the arthritic hips, knees and back of the father of one of his employees, who just comes back every couple years for “tune ups,” but is good to go now!)

    • jat92517 February 7, 2018 at 10:00 pm Reply

      Deb,

      I still have a hard time posting this site . My equipment looses my posts. Yes you can take pepto Bismarck. Ginger tea also settles your stomach. Water helps me for a while.

      • Peter February 8, 2018 at 4:48 am Reply

        Additional comment – I also recommend finding a good Chinese acupuncturist who is proficient with herbs. My acupuncturist says that his herbs will not interfere with other meds or herbs I am taking. A good acupuncturist can address many of the issues related to floxing. Mine is dealing with 2 other floxies, one of whom was severely affected and is recovering. The Chinese approach is totally holistic and sees the body very differently from
        Western medicine, and distills the issue into simpler, broader solutions, but can also pinpoint individual specific symptoms. They can also activate healing processes.
        For gastric problems (I have acid reflux sometimes), I mix a little (1/4 teaspoon) baking soda
        with organic apple cider vinegar (2 tablespoons) in a small amount of water (no more than 1 cup). It will fizz at first. Doesn’t taste bad, or make me shiver like the cider alone does. Gives instant relief. The baking soda also draws out poisons. Again, run all these suggestions by your doctor first, to make sure there are no contraindications for you personally .

        • jat92517 February 8, 2018 at 5:42 am

          Peter,

          Baking Soad and Vinegar neutralize each other so basically you are drink mined Salt in water water. Better to use Sea salt in water or just water.
          John

        • Peter February 8, 2018 at 10:30 am

          Hi John –

          Ok. Seems to work for me when I have acid indigestion. Causes me to burb, and then
          the acid feeling goes away. Picked it up from a natural healing site.

        • Mary February 8, 2018 at 6:20 pm

          Peter Does the baking soda chelate the Cipro etc? Thanks sorry for short posting.

        • Peter February 8, 2018 at 7:19 pm

          Hi Mary –

          I don’t know, some research says baking soda does pull out toxins. When I use it for stomach acid issues, I use very little of it, half a teaspoon or less, and not often.

          Cilantro (coriander) has been known to remove heavy metal from tissues, so I eat a lot of it (I really like Indian food – there is a company called Saffron Road that makes excellent gluten-free frozen Indian, Mexican and other cuisines, all which are great with cilantro). A few people (about 10% of the population) genetically don’t get along with cilantro – you will know if it smells and tastes like soap, instead of the fragrant herb that it is. Cipro isn’t necessarily a heavy metal, but I go for anything that is healthy and has de-toxifying properties.

          I also put organic turmeric powder in these ethnic dishes. I also cook with it (it withstands the heat), and again, not much is needed. As the regime says, foods like broccoli, Brussel sprouts, garlic, onions, etc. are all good for floxies. I eat these foods cooked only. The raw form is too intense for the stomach. One must also find a really pure organic olive oil,
          cold pressed and unmixed with other oils, as a lot of olive oil is mixed.

          Organic coconut oil is excellent for the brain, especially a floxed brain. I put it in my oatmeal, along with organic lowfat plain kefir and berries – blueberries, blackberries especially, and cinnamon. Really good.

          After a time the Cipro is gone. The issue that remains is that the Cipro triggered the body to go into an aberrant autoimmune response that needs to be
          neutralized by building up your resources and immune system. Acupuncture is very useful to pinpoint the autoimmune response, and stabilize it back to equilibrium, along with diet, supplements, exercise, hydration, meditation and attitude. My acupuncturist is really good
          at the treatments, and I always feel relief for quite a while afterwards. Sometimes it
          is really powerfully relaxing, and I end up sleeping without movement right on the table,
          feeling nicely drugged by the bio-chemicals that have been released by my own body, and then float into my car for the ride home. Does not make me spacey. Quite the opposite –
          the physical relief also relieves anxiety and lets me focus.

          As always, check with your doctor first before following a layperson’s advice.

    • Henk Noordhuizen February 14, 2018 at 4:46 pm Reply

      I have the same problems and eating a grapefruit or other citrusfruit shortly after a meal really helps. Others deal with this problems by taking 1 or 2 spoons of appel cider vinager in a glass of water but I prefer fruit. why this helps? Because the main cause is,in most people, NOT too much but NOT ENOUGH stomach acid.

  11. Mary February 3, 2018 at 4:36 pm Reply

    Hi everyone Have u seen the warning from the fda about IMMODIUM/LOPERAMIDE/

    • Mary February 6, 2018 at 3:10 pm Reply

      L Thanks for your reply re making of ‘new’ antibiotics from the crap they discarded years ago. I am in the UK.

      I get really ratty with this peripheral neuropathy or whatever misdiagnosis given to me to cov er up the prescribing of Cipro with a short five day of prednisone for a chest infection. First thing that happened was severe depression followed by all the lovely side effects we know so well.

      A physio told me that the pain was due to medication! Then an endocrinologist confirmed this saying it was due to antibiotic toxicity syndrome that is what led me to this wonderful website. No bloody treatment offered !! Sorry for the rant.

      Did u see the video by Dr Mark Gallili who suffered toxicity but says stem cell treatment cured him?

      Take care.

      • L February 6, 2018 at 3:46 pm Reply

        I did see the video and in fact spoke with him on the phone. I think “The sooner the better” as far as that goes. Also I have read that age effects the viability of your own stem cells. Anyhow, can’t afford it!

        • Mary February 6, 2018 at 4:02 pm

          Hi L How much does it cost? Is it available in UK? Have u got his phone number please? I feel so depressed with all of this s… L have u got a list of ALL the drugs containing fluoride
          I wonder if Lady GAGA was floxed?
          Thanks.

        • L February 6, 2018 at 4:24 pm

          I just looked his number up online. You have his name from the article. He is in Beverly Hills I believe. CAn’t remember the cost just that it sounded like more than I could afford (several thousand) best to call and talk to him or his staff yourself

  12. patricia helt February 3, 2018 at 8:37 pm Reply

    Hi all
    I don’t visit this site much anymore so I apologize if this has already been brought up: i tried to reach out to a fellow floxie but got no response , but it is the subject on vaccines. Has anyone received the flu shot post flox? Im extremely sceptical about vaccines, but am considering switching careers where vaccines, especially the flu shot, are required. Any thoughts?

    • Bob February 3, 2018 at 8:56 pm Reply

      I would stay away from them. What does your intuition tell you?

      • patricia February 3, 2018 at 10:59 pm Reply

        Good question Bob:) im going w my intuition and staying far away

    • L February 3, 2018 at 9:01 pm Reply

      Both my ND and my integrative MD advised me not to. I will never get the flu vaccine again. There are too many toxins in it. Plus, it’s such a crap shoot….effectiveness can be as low as 10%. The last two years pre-floxing that I got the flu shot, I ALSO got the flu. Since then I have gotten the flu two of three years and nipped it in the bud both times with oil of oregano, Sambuca, olive leaf extract and zinc lozenges. If you have a career where you have to get the vaccine or wear a mask, I would opt for the mask. We have already had our bodies so damaged by toxins. We don’t need more.

      • patricia February 3, 2018 at 10:55 pm Reply

        Thanks L….i know how toxic those vaccines are, it’s frustrating how so many employers require these vaccinations.

      • Deb February 4, 2018 at 4:18 pm Reply

        Hi L,

        I haven’t had the flu but your advice on the oil of oregano was so good for the respiratory infection I had, I wanted to know your protocol for the oil of oregano, Sambuca and olive leaf are just to have. Thanks!

        • L February 4, 2018 at 5:05 pm

          Sure. For the oil of oregano I always buy organic and one that comes already mixed in a carrier oil (you never want to ingest it without the oil.) I put several drops under my tongue, hold for about ten seconds, add a bit of water, and swallow. I do that 3 times a day for 7-10 days. AS for the sambucol (actually sambucus, or elderberry, not that brand), I again buy organic and just follow the bottle directions. I think they have two sets. one is more for maintenance and the other is if you are actually sick. As for the olive leaf, my doctor put me on that for a month when he thought my asthma may have been from a virus. Again, I just followed the bottle directions.

    • Barbara Arnold February 4, 2018 at 2:12 am Reply

      Patricia, I have had the flu shot many times, before and after being floxed. I have not had the flu since. This is a very difficult decision for us all. We are all different with different health issues. I used to get bronchitis and the flu quite a lot before I retired. I did look into the ingredients and yes they to contain some toxic chemical’s, to preserve the vaccine, but the amount is so minute, a fruit juice or any package food stuff or even wine contain more toxins. However it was a no brainer for me because I am in the high risk group and I did not want to take the chance. So far so good. There are many different opinions on this and we all have to decide for ourselves. I personally did not have any negative re action, but that’s just me.

      • Madge hirsch February 4, 2018 at 11:40 am Reply

        Hi Barbara- oral ingestion of toxins such as aluminium is a lot less dangerous than having them injected into you.

      • patricia February 5, 2018 at 6:45 am Reply

        Thank you for your reply Barbara, im glad the flu shot has worked for you and you didnt have any reaction to it. I wonder about all the other vaccines, like MMR….if those are safe post flox?

  13. Barbara Arnold February 4, 2018 at 11:55 pm Reply

    L…that article scares me to death, so even only 20% effective I would still have it. Thing is, different Countries have different strains, and so far Spain’s strain seems to be warding off an epidemic. I’m not sure about the UK. It’s all a bloody minefield, but the jab is the only allopathic meficine I take. I do every thing I can to not take meds, but who knows for the future.
    I have just finnished my 20 sessions of hyperbaric oxygen therapy and I am feeling so much better. I have decided to have one or two a month to keep up the momentum. I would say overall I am 95 to 98% back to where I was, and considering my age I think that’s quite good. xx

  14. Peter February 6, 2018 at 3:41 pm Reply

    Hello all –

    I was floxed by Cipro at the end of October 2017, so it’s been over 3 months. Luckily I found this site the first day the symptoms appeared (thank you Lisa). My symptoms were neuropathy in the legs and some in the hands, but worst was the attack on the joints, especially shoulders and hands. There was some spaciness mentally, but I think a lot of that was the anxiety of having to deal with the floxing. Since then I have followed the diet and supplements regime.
    The neuropathy is pretty much gone, as is the pain and looseness in the hands. One of the shoulder sockets is still weak, but nothing like before.
    I found that not all of the supplements in the regime were good for me, because I already have a genetic central nervous system disorder called dysautonomia, and my type includes
    scoliosis, mitral valve prolapse and other features that cause issues. So, one has to try the supplements by trial and error, especially the dosages, to see how you react. Dysautonomiacs are hypersensitive to medications and supplements, so, especially with Magnesium, I have to be careful. The recommendation by one of the participants here named John to do Espsom salt foot soaks has been very helpful, with no side effects, and
    the relief is pretty quick. I also have Magnesium spray and gel when one joint acts up.
    The tendency is to do too much too quickly, which for me caused nausea and loose stools for a few days, as I was taking magnesium pills and the gel at the same time.
    Organic bone broth (they have it at Whole Foods and even at the Publix supermarket) is great to keep up collagen and protein, but I also take collagen supplement, the type recommended on the regime, plus the recommended multivitamin (which has a good amount of magnesium already), Vitamin C, D3, Omega capsules, etc. I found CoQ10 to
    aggravate palpitations, so I backed off, but that was due to dysautonomia.
    Organic plain kefir (not the versions with sugared flavors) has been great for the digestive system. No issues since having it daily. I mix it with organic gluten-free oatmeal and berries in the morning.
    Exercise daily, but no more than 30 minutes – swimming/walking/elliptical/light weights (but be careful or even avoid if joints are affected). Also, there is a very good website for dealing with anticipatory anxiety
    at http://www.verywellmind.com, plus Andrew Weil has a CD for breath techniques to help with
    anxiety.

    Just wanted people to know it gets better. I have stayed absolutely away from sugar, tobacco, alcohol. Eating organic (not just plants, but fish and chicken with no antibiotics, hormones, etc.) and staying hydrated. Pure water. Fight through and keep doing
    the things you need and love to do as much as possible. Keep your living area neat and clean, to help feel normal. Envision yourself getting better. Listen to music, watch funny TV, be with people who care about you and who are willing to listen.
    This is just what has worked for me. Run everything by your doctor first. Everyone is different, but everyone’s body wants to heal if you let it. The body is very intelligent, and
    has a lot of power and resources already built in for healing. Just allow it to do so by
    giving it what it needs to heal.

    • leslie February 8, 2018 at 7:57 am Reply

      hi peter. Did you do or take anything to make your neuropathy go away?

      • Peter February 8, 2018 at 10:24 am Reply

        Hi Leslie –

        A few things helped with the neuropathy – First is magnesium, and again, be careful – start with a small amount and work up to higher amounts. I found that for me, taking chelated
        magnesium tablets tended to have more side effects (loose stools, nausea at higher doses)
        than the Epsom salt foot baths. The magnesium gel (Amazon has the gel from Ancient Minerals, and Pure Magnesium Oil spray from Life-Flo). Both get their magnesium from the Zechstein sea bed. I found the gel to be more powerful than the spray, so be careful, especially if you also take the chelated Mg tablets. I actually burned the skin on my shoulders with the gel, when I first tried it, not knowing how strong it was. The gels have salt in them, so it will sting slightly at first. Both the spray and the gel should not be kept on for long – 15 min. max or less. If you feel relief before 15 min., wipe it off.

        The second help has been acupuncture and Chinese herbs. My acupuncturist is Chinese, and is proficient in Chinese herbs, and teaches doctors and med student at UMiami about acupuncture. Try to find someone trained in China, because they are better with the herbs, and are better able to give clear and simple overviews of your condition.

        Third is hydration. The body needs pure water to help eliminate toxins, and a dehydrated body, studies show, will show greater symptoms than one properly hydrated. This is not easy, since the thirst mechanism seems to get compromised in floxing, so sometimes you
        can’t tell that your body is thirsty. Also, on the other hand, too much water can be heavy on the kidneys, so you need to be very attentive to what your body is telling you.

        Fourth, and probably most important, is to get proper sleep. Best to be very disciplined
        with this – wake up at the same time every day, try to avoid napping, and go to bed the same time every night. If you have to nap, try to do it before 3 pm, so your night sleep isn’t screwed. This comes from both the Children’s Dysautonomia Foundation in Washington DC, for people with sleep issues, and also a sleep psychologist I worked with. The floxing
        intensified some of the dysautonomia issues (which are unrelated to but exacerbated by floxing), but I am happy and grateful to find that
        all these issues are easing off tremendously. The “hump” seems to have been about 3 1/2 months from the initial floxing symptoms. I have no more neuropathy, but
        it is very clear that the magnesium is still needed, as joint weakness reverts without it.
        Your body and autonomic system need sleep. That is when a lot of your unconscious healing mechanisms (your autonomic system) do a lot of their healing work. The vagus nerve exercises also prime your body and mind for that healing.

        Resolving anxiety may be hard if you are really anxious, which is why the Vagus Nerve booklet is really good – has great exercises for anxiety relief. Valerian root is also good for relaxation and sleep, but it is tricky, as dosage and quality must be carefully researched – don’t rely on what Whole Foods employees tell you – do your own careful research. One can also become dependent on such supplements, as they are meant for temporary relief.
        I have used it a few times, in liquid drops. Smells bad, tastes ok, and it worked for me. But,
        run it by your doctor as everyone’s body and health situation is unique, and it could
        conflict with other things you may be taking.

        Fifth, which is the most elusive, is your attitude and perspective. If you take the positive position that you are essentially in training to get stronger, and not a victim, the brain will start sending endorphins and healing biochemicals to the areas that need it. Visualizing yourself and all your organs, tissues, blood, brain, bones, etc. as getting healthier and stronger also sets up the internal healing mechanisms already existing and waiting to go
        in your body.

        Sixth is exercise – Some form daily. As Lisa mentioned, swimming is really good, because
        the water suspends your body weight. But, there should be cross-training, such as walking or elliptical, so your bones remain strong. Exercise does a million things to move the healing along, and also triggers more body chemicals that make you feel good physically and emotionally. Yoga is also really good. Sun Salutations done slowly with proper breathing
        are all I really need to do yoga wise. When I was younger, I also lived and traveled in India for about a year, meeting all types of teachers. I finally found one who shows a way to
        go within, very practically, and it really helps. Very powerful and wonderful feeling.
        You can check it out on http://www.timelesstoday.com. There is also an app. I have been practicing the meditation since 1974 and it has saved my life. Meditation, by all accounts,
        is tremendously helpful and activates your parasympathetic system, for rest and healing.
        There is no downside to meditation.

        Again, I am not a doctor, just someone who has been doing research and trial and error to
        get myself better. Check with your doctor before putting anything into your body you are not used to, how much exercise you should do, diet, etc.

        Visualize yourself as someone who is now doing what you can to help your body do what it wants to do, which is to recover and get better and really healthy. See your body and
        your whole being getting better. The dark side of your mind wants to dismiss attitude as having any power, but your mind and attitude will be the greatest elements in your healing.
        Bring some light into a room that has been dark for a while, and the darkness will go away immediately, no matter how long the darkness has been there, and no matter how dark it has been. There may be setbacks along the way, but you will find yourself getting
        that much better as you go along. Acknowledge and embrace the improvements in how you feel, and don’t dwell on setbacks, if symptoms linger or return for a while. It just means you haven’t yet given yourself and your body what they need to get better, and it takes patience. Once you do, you will get better. Enjoy your life while you go through this. Your life is not floxing. Floxing is just a temporary bump in the road.

  15. Mary February 6, 2018 at 4:15 pm Reply

    Dear Peter Just wanted to say what a great .If u don’t mind my saying so.
    A few days ago the PN seemed to calm down. I was worried as I had not taken any magnesium for a few days and felt I needed it to help the D3 absorb. I am convinced the magnesium triggered off a reaction. I feel suicidal.

    I cannot take CoQ10 enzyme either due to cardiac issues. Please can u tell me how to buy the organic bone broth? Is it produced in the UK or just the US?
    Magnesium gives me the same problems as it gives you .

    How are you feeling now/

    • Henk Noordhuizen February 14, 2018 at 3:19 pm Reply

      Mary,you can make (organic) broth yourself. In a shop which sells organic meat,ask for the bones you want Te.g.:chicken,cow,etc.). Cook them for 3-4 hours,with some salt added.There you have your broth :-))

      It is important to understand that too high levers of magnesium can give te same symptoms as too low levels. It is possible t let your magnesium be tested (intercellulair; the only reliable way to see if you are low,or high in magnesium. Calcium and Vit. D3 are,indeed,very important for the uptake of magnesium but Vit. K1 and K2 are of the same importance! The british cottage cheese is a good source of Vit K.

      In the Netherlands we have,deep underground,the most our source of magnesium chloride in the world:Zechstein. You can buy the salt (flakes) and make a (foot-)bath with it,but there’s also a liquid called magnesium-oil.It is not oil-based but just (destilled) water with 31% MgCl,which gives it a slippery feel,like oil. The oil is quite expensive but ik make it myself by making a saturated solution of the magnesium flakes (47% MgCl) in destilled water.I’m not sure if this magnesium salt is obtainable in the UK.

      Cardiac issues are often caused by a defficiency of magnesium and/or other minerals (e.g. natrium and kalium are important electrolytes). Of great importance is relaxation; yoga,meditation,a walk in the forrest or along the beach. Or just listening to calming sounds,classic music (Mozart,Dvorak,etc.).

      You can rub the magnesium-oil on your skin end,preferably leave it there.But when you are very deficient it might irritate a lot. The,next time,mix 1 part of the “oil” with one or two parts of (distilled) water. You can also take a bath with 400-500 grams of zechtstein salt,or Epsom salt,as hot as you can bare,and for at least 30 minutes,or longer. Let someone keep an eye on you;you might get so relaxed that you fall asleep and could end up drawning. Both ways,the oil-rubbing and the bath,are very relaxing and alow for a way higher intake of magnesium without it acting as a laxative,like it does when you consume a magnesiumsupplement.

      • L February 14, 2018 at 3:37 pm Reply

        good advice Henk. Except for bone broth, bones need to cook for 6-24 hours, and preferably toward that latter number. (The reason most people don’t do it themselves.)

        • Henk Noordhuizen February 14, 2018 at 3:46 pm

          The 3 hours I mentioned is the shortest time they need. You can start the process right after you started your day and leave it on the stove untill you go to bed (a total of 14 to 16 hours?). It helps a lot if you break the bones (hammer?) because the bonemarrow contains lots of good stuff :-))

  16. Peter February 7, 2018 at 9:16 am Reply

    Hi Mary – the bone broth comes in cartons of different sizes, for beef, chicken and turkey broth. Your local health food store can get it for you if they don’t have it in stock. Whole Foods also has bone broths with herbs, mushrooms, etc., for taste, as the
    plain bone broth is pretty bland. I sometimes mix in celery, carrots, salt (I use Himalayan pink salt, which has lots of good minerals in it). I actually also need salt for blood volume, which is a dysautonomia issue – the opposite of most people.

    I just looked on Amazon – for bone broths they have Pacific brand and Kettle and Fire, the two types I use – in cartons. It’s not cheap, but I find it very helpful – your body will tell you how much to take. Some days I want it more than others.

    From what I understand: whatever fluoroquinolone is taken leeches magnesium from connective tissue, and needs to be replaced. D3 is needed to process, as is calcium, but
    it is recommended to get your calcium through your food rather than supplements, due to
    potential interference by the calcium supplement to other processes. If you take it through your food, your body will process it as needed to work with the magnesium. Your body’s internal doctor is the best and smartest doctor you can get.

    If you had a bad reaction to the magnesium, you likely took too much. The amount recommended on this site was way too much for me, even when I did a gradual increase – caused palpitations, loose stools,
    nausea. But, when I reduced the dosage (I top out at 300-400 per day, including gel or spray) on the magnesium, those symptoms went away and clicking, popping, pain and looseness in the joints subsided. But, I again recommend the Epsom salt foot baths that John recommended on this site. I use a plastic tub big enough for both feet, fill it with warm water up to the ankles, and put in 2 lbs of the salt, and move my feet around in it until it dissolves,
    and have my feet in it for 15 minutes, then wipe off with a towel. I do not rinse off right away.
    In the same way as above, the body seems to know exactly how much to absorb (magnesium absorbs easily through the skin, and the feet are the most resilient access point and less prone to dryness.) If you do the foot baths and still have pain, then a good magnesium gel or spray, applied very lightly to the area of concern, can help directly and quickly.

    Again, run all of this by your doctor, especially if you have cardiac issues. Magnesium
    is something you have to be very careful with. Floxies need it more than other people, but
    it is easy to take too much. Everyone’s body is different. Having dysautonomia makes me hypersensitive to all meds and supplements, so I take less of everything than normal.

    The article that was presented by Lisa Palmer called “The Vagus Nerve Guide” is very good.
    Has a lot of good stuff in it to learn how to relax and get your parasympathetic (rest and healing) part of your central nervous system stimulated, and to get many of the body’s organs into equilibrium, and reduce stress and anxiety. I got it on the Amazon online feature off the link from this site.

    Visualizing yourself getting better, one day at a time, is very powerful. Don’t fall prey to
    the negative thoughts. Reject them and visualize yourself healthy on a peaceful beach, breathing normally and relaxed, and happy and confident. It really works to activate
    healing hormones and to just relax and relieve worry. The mind has a lot to do with this.

    If you have Apple TV, watch the movie called “Heal”. Excellent movie about the power of
    mind to heal.

    I am not a doctor, and am only talking from my experience and personal researach. Run any suggestions on this site by your doctor first (I have found that most doctors need to be educated about this syndrome – bring literature and shove it in their face if they look skeptical). Most specialists are myopic, and focus only on their specialty, and do not have
    holistic knowledge of the body. My best link is my general practitioner, who I have been seeing for over 25 years – he is more open and knowledgeable about all these things, as he
    sees many different conditions and ailments, whereas specialists only see ailments within their discipline. I have seen a lot of specialists over the years, and most of them are more ignorant than they want to admit.

    Keep going – you will heal, don’t worry. Enjoy your life, and adjust the way you see
    what you are going through – see an open peaceful road rather than a prison, because that
    open road runs next to the beautiful beach, where you can go if you want to relax and watch the beauty, and breathe slowly and deeply.

  17. Andrea February 8, 2018 at 6:36 am Reply

    Hi everyone. After reading about stem cells, I’ve just contacted, via email, a stem cells clinic in Switzerland. I’ll keep you updated as soon as they answer me.

  18. Gerard February 13, 2018 at 3:37 am Reply
  19. jérôme February 13, 2018 at 5:34 am Reply

    Did someone try a diet or a fasting?

    • Andrea February 13, 2018 at 11:32 am Reply

      Hi Jerome. Yes me.
      If you read some of my previous posts I’ve shared my exeperiences. Anyway I’ll sum them up here : Diet, very important. I’ve noticed a big difference when I eat clean. By clean I mean lots of organic veggies and frutis. Whole grains,beans, some organic eggs. I’ve noticed that an 80-90% vegan diet works the best for me. Dairy seems to be pro inflammatory for me. Same with chciken and meat. I try to avoid any kind of simple sugar,refined carbs and junk food in general. They’re so bad for me. I completely give up coffe too. It’s the worst for my brain/dizziness issues.
      I’ve tried to fast for 3 days.No food, no supplements. Only water for 72 hours straight. I did it because I’ve read about the fast mimicking diet by Dr Walter Longo (check it out and let me know what do you think about it), who is Italian like me 🙂 ,but I’ve gotta tell you that it was too much for me. I was too weak, too dizzy and by the third day all my symptoms fleared up again. Luckly after reintroducing food and supplements , expecially Vitamin D3, they were back to normal. I hope you’ll find this helpful.

      • jérôme February 14, 2018 at 2:16 am Reply

        Andrea,have you tried also a monodiet? I intend to to a coconut monodiet for 2 or 3 days…I will probably do a long water fasting if my symptoms don’t improve…

        • jérôme February 14, 2018 at 2:17 am

          I take only one meal a day (Omad) and feel it gives me more energy

        • Andrea February 14, 2018 at 12:07 pm

          Nope. Never tried a monodiet. Anyway, be carefoul if you want to try to fast. There were moments during the fast that I barely could stay up for more than a few minutes. Like I said, it was too much for me.
          It wasn’t the first time I fasted. I remeber years ago, so before being floxed, I tried to fast for 2 days and it wasn’t that bad…Did you checked the Valter Longo’s mimicking diet? It is basically a 5 days “fast” with minimal amounts of foods,It is supposed to regenerate your cell

  20. Andrea February 13, 2018 at 11:38 am Reply

    Hi everyone. I’m probably going to do a new medical exam, and there’s a big chance of contracting a Urinary tract infection from that. I’ve already explained to the doctor my problems, and he prescribed me Trimethoprim/sulfamethoxazole by the commercial name Bactrim. Does anyone knows if it’s compatible for us floxies? Thanks a lot.

    • jérôme February 14, 2018 at 2:34 am Reply

      Andrea,Bactrim is a very dangerous antibiotic;try to avoid it…google it

      • Andrea February 14, 2018 at 12:08 pm Reply

        All right. Thanks.

  21. Mary February 13, 2018 at 6:55 pm Reply

    Contact Us
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    You are here: Home / Lupus Primer / Lifestyle and Additional Information / Things to Avoid
    Things to Avoid
    If you have lupus or a condition that predisposes you to lupus, such as undifferentiated connective tissue disease (UCTD), there are certain foods and medications that you should avoid. The substances listed below have shown to induce lupus signs and flares and should be avoided by people with lupus or autoimmune diseases suggesting “pre-lupus.”
    (1) Sunlight
    People with lupus should avoid the sun, since sunlight can cause rashes and flares. Some people are more sensitive to sunlight than others, but all people with lupus are advised to be cautious when they are outside. Of course, it would be impractical to completely avoid going outdoors, but try to be prepared. Carry a sunscreen with an SPF of at least 70 and be sure that your sunscreen contains Helioplex, an ingredient that blocks UV-A and UV-B rays, both of which are harmful to people with lupus. Apply sunscreen to all areas of the body, even those covered by your clothes, since most normal clothing items only protect your skin to the level of SPF 5. In addition, carry a hat with you when you know you will be outside. Certain sportswear manufacturers now make hats with SPF built into the material, which may be helpful for people with greater photosensitivity.
    (2) Bactrim and Septra (sulfamethoxazole and trimethoprim)
    Bactrim and Septra are antibiotics that contain sulfamethoxazole and trimethoprim. They are grouped as “sulfa” antibiotics because they contain a substance called sulfonamide. Bactrim and Septra are often prescribed for bacterial infections, especially urinary tract infections. They are also sometimes given prophylactically (i.e., to prevent infection), especially in people taking immunosuppressive medications. However, it is very important that you avoid Bactrim and Septra, because these antibiotics are known to cause an increase in sun sensitivity and lower blood counts in people with lupus, resulting in lupus flares. Several medications can be used instead of Bactim or Septra for the prevention and treatment of infection; perhaps the most frequently used substitute is Dapsone (diaminodiphenyl sulfone) to prevent Pneumocystis pneumonia.
    (3) Garlic
    Scientists believe that three substancs in garlic—allicin, ajoene, and thiosulfinates—rev-up your immune system by enhancing the activity of white blood cells, particularly macrophages and lymphocytes. Scientists also believe that the sulfur components of garlic help to prevent and suppress cancer in the body. For this reason, garlic is often used as a supplement to combat colds and infections. Unfortunately, the enhancement of immune response is counterproductive in people with autoimmune disease such as lupus, because their immune system is already overactive. As a result, people with lupus and lupus-like signs should avoid cooking with garlic and adding it to food. Of course, a tiny amount of the herb will not harm you, but try to consciously avoid purchasing and preparing foods with garlic.
    (4) Alfalfa Sprouts
    Alfalfa sprouts contain an amino acid called L-canavanine that can increase inflammation in people with lupus by stimulating the immune system. As a result, people with lupus and similar autoimmune conditions should avoid alfalfa sprouts completely.
    (5) Melatonin and Rozerem (ramelteon)
    Melatonin is a hormone secreted by the pineal gland in your brain that regulates other hormones in the body that control how your body reacts to daily patterns of light and dark. Melatonin release is suppressed during the light hours of the day and stimulated by dark, helping you stick to patterns of nighttime sleep and daytime wakefulness. As a result, melatonin is often used as a sleep aid over other medications. Melatonin and melatonin-containing supplements should be avoided in people with lupus and other autoimmune disorders because they may stimulate the immune system. In addition, people with these conditions should also avoid the prescription sleep aid Rozerem (ramelteon), because it mimics melatonin in the body. It is important that you understand the necessity of avoiding both melatonin and Rozerem, since sleep aids are often used to help people with fibromylagia and other conditions to attain normal sleep patterns. In general, be sure that you speak with your physician before taking any new medications or supplements.
    (6) Echinacea
    Echinacea is often used as a dietary supplement to boost the immune system against colds and other illnesses. However, because Echinacea boosts your immune system, it may cause flares in people with autoimmune diseases such as lupus. In fact, Echinacea supplements sold in Europe bear warning labels that advise against use by people with autoimmune diseases. As a result, people with lupus and other autoimmune diseases should avoid these supplements. In general, it is important that you speak with your physician before taking any new medications or supplements.
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    • Andrea February 14, 2018 at 12:10 pm Reply

      Thanks Mary

  22. jérôme February 14, 2018 at 2:22 am Reply

    jat92517,what do you mean by saturated foot bath?

    • Theresa Warren February 14, 2018 at 8:52 am Reply

      He has mentioned it many times. It is a foot bath with so much epsom salt that a thin layer of salt lies on the bottom of the tub because the solution is saturated.

  23. L February 14, 2018 at 11:55 am Reply

    So….Lisa has posted a few blogs re mast cell activation after being floxed, and now I just read that if you have one of of MTHFR mutations, you are ALSO more likely to be plagued by this. Double whammy. No wonder I am so congested all the time!

    • Mary February 16, 2018 at 3:00 pm Reply

      L I know it really makes me despair. I detest drs for their arrogance, lack of knowledge etc, etc. I wish I had never taken any meds especially that poison aka Fluoroqiunolone. xx

      • L February 16, 2018 at 4:51 pm Reply

        yeah, me too. I am down to thyroid meds and a rescue inhaler. Hope to not take ANY pharmaceuticals ever again!

        • Mary February 20, 2018 at 7:44 am

          L mind my asking what inhalers and thyroid meds you are taking?

          Have you ever been prescribed that poison aka Lyrica. It destroys the immune system. Website Lyrica survivors . Sorry re the questions.x

        • L February 20, 2018 at 10:20 am

          Levothyroxine for the thyroid, and Ventolin a “rescue inhaler.” Re lyrica, I had read realy bad things about it, so no never took it. I will not take a prescription unless I have exhausted all other possibilities. I was on inhaled steroids for decades, during which time I was assured by doctors that they would not harm bones, even though I was skeptical. And of course now it turns out they do. Plus they contain not just steroids but fluoride. I had to find a way off of them when I was floxed, and fortunately ended up with an ND that gave me H2O2 IVs. I weaned off of them, and for three years never had one asthma attack. More recently, last November, I had breathing issues, that I think came from some kind of virus. I was using the rescue inhaler, with my doctor’s “blessing” up to 5 times a day. I got some IVs when it was really rough, and took supplements to help with inflammation and congestion. I am back to being inhaler free now.

      • jat92517 February 17, 2018 at 1:11 am Reply

        Mary,

        Chronic congestion is one of the symptoms of food intolerance. Alternating loose and hard stools is another. Pimples in your skin all over is a third. One does not always experience all. The ruling diagnostic is to look internally at the condition of the intestinal villia. OR you can lookup elimination diets – you avoid a list of foods for a week to see if your congestion improves. There are 8 common foods – gluten and soy are the top two. As all soy is toxic today, soy should be avoided. Peanuts is a third. Peanuts can give severe allergic reactions also – this is not the same thing.

        Something is making this mucus. If you can’t bring it up and Mucinex doesn’t work, Dr. D’Adomo sells Redox – an herbal decongestant that will loosen this type of congestion. Call his office and the person you talk to will give you a quiz on symptoms first. That is another diagnostic. A bottle costs $25 but you get an answer in two days. If it works look for which food is the cause.

        Food intolerance is difficult to diagnose as there are many causes and many symptoms. Everybody can have this to different degrees…but chronic congestion often appears.

        I hope you do not have this as it eventually makes you nutritionally deficient and recovering from that is tough duty.

        LOL,

        John Taylor

        • Henk Noordhuizen February 17, 2018 at 6:00 am

          All this symptoms are,indeed,symptoms of a food intolerance. And thát is a symptom of an imbalance in your gut,because the antibiotics killed lots of bacteria. Some bacteria-families will probably have totally,maybe even permanently have disappeared,and some others took their place,among them,possibly,”bad” ones. Medication to work on the symptoms won’t give a lasting effect; main thing to do is bringing the good bacteria back,if possible. You’ll need a good probiotic,and a good prébiotic as well,to help those new bacteria (probiotics) settle in your guts.

          Congestion,when talking about mucus in the lungs you can’t get rid of: try tea of Narrow Leaved Plantain;it works miracles! I have two different plants of Plantain in my garden (The Narror Leaved is from seeds I collected in the wild,the quite Common Plantain grew there already) The juice from the leaves works miracles on irritation from nettles,or musquito bites (I’ve tried ol the salves available on the bites but nothing works near as well as Plantain juice. You can eat the leaves in salads,too,or use some leaves when making a healthy juice with your (slow-)juicer. The taste of the leaves is not my favorite but in a juice with other ingredients it’s fine.

          When you have problems with a (too) hard stool, try Psyllium seeds. My doctor gave me a synthetic fiber drink but I was not happy with it. It worked well in softening the stool (averse reaction from another medicine),but it had its own nasty adverse reactions, and I replaced it with the Psyllium seeds. The seeds I buy are broken already; just add water,and I add half a teaspoon of Vit. C powder as wel.

          I had,after the first cours if AB’s I got in 2004 (Amoxicilline and Metronidazole) loose stool for over 3 years (!),and even little bits of sugar or carbohydrates (whole wheat bread,etc).made my bloodsugarlevel go crazy. Up and down (hyper- and hypoglycemia). I lost all hope to ever get well when I (re-)discovered the work of Bob Beck.I build a Blood Purifier (now called Silver Pulser,made by Sota),and a Magnetic Pulser, decided to give the MP a try on my belly,and, to my big suprice, after just two weeks I had a normal stool,and the intollerance for carbo’s and sugar was almost gone. That’s why I decided to by those devices from Sota; my homebuild are still there and I often use those but I’m happy as hell that I own those Sota devices;they’re more convenient to use and very well build.

          After the Cyproflox (2 days/4 pills,sept.2016) my stool stayed oké (thanks to the nasty medicine that still makes it so hard?),but my bloodsugarlever went crazy once again. After a month I decided to use the Pulser again and in two weeks time my bloodsugar stabilized. A few weeks ago the went crazy once again,probably because op the preservatives in the bread I ate (to my suprise that bread did not spoil for almost 2 weeks;normaly I see the first start of fungus after 3-4 days). Now I decided to do the whole protocol (except for the Coll.SIlverwater),and concentrate on pulsing my pancreas,and after,again,two weeks,my sugarlevel is,again,stable!

          I know that one of the reverse reactions to antibiotics is a (severe,sometimes even daedly) infection of the pancreas,but now I believe that the Hyper- and hypoglycemia is related to someting like that. The Beck Protocol really works; inform yourself (bobbeck.com) and build those devices yourself (cheap,but work well) or find a friend/neighbor who can help you with the build.When you have plenty of money;boy from Sota Instruments;you won’t be disappointed.

          I want to excuse myself for my long writings but it took me years to collect all the information that helped me so well; there’s a lot of BS on the web an it took a lot of time to find the onfo worthy of knowing (and a lot of money ass well :-(( and now I want to share what I know and found to work with other people who might need it.

          Have a nice weekend.Greetings from The Netherlands :-))

  24. Andrea February 14, 2018 at 12:25 pm Reply

    How about Ampicillin? Like I said, I’m going to do a cystoscopy, and the doctor says there’s the risk of contracting an infection. He wanted me to take Bactrim, but ‘m not going to take it. Some side effects are similar to those of FQ.I’ve read the article that Lisa posted about the antibiotics after being floxed, but I found nothing about Ampicillin, any iinfo?

    • Madge hirsch February 15, 2018 at 9:49 am Reply

      I have recently finished a 14 day stint of Augmentin iv and then oral for another severe bout of diverticulitis. Apart from some diarrhoea after switching to the oral I have been ok. The diarrhoea was helped a lot by taking Saccharomyces boulardii a probiotic yeast and my usual probiotic in between the doses of Augmentin. I have noticed some worsening of my floxing symptoms but that could be down to the stress of being unwell and the prospect of the bowel resection I have decided to undergo as I am sick of these diverticuli !

      • Andrea February 15, 2018 at 12:50 pm Reply

        Thanks a lot for the infos Madge

      • Mary February 16, 2018 at 1:39 pm Reply

        Andrea I recently read an article on the causes of gut problems. additives, processed foods , artificial sweeteners and this includes aspartame and saccharin.

        Lactose can cause irritation of the intestines and diarrhoe Augmentin is a fierce antibiotic.

  25. Martha February 14, 2018 at 12:48 pm Reply

    Thinking of everyone who has suffered with this. I am three years lost floxing from levaquin. I regained all functionality thank God. But the use of medications proves tricky. Recently had other health issues but found doctors and nurse practitioners who don’t dismiss me. Had to use antibiotics a few times and discovered that I am now allergic to penicillin, amoxicillin and possibly keflex. It may not have any relation to being floxed but could be. Bactrim wipes me out with fatigue. Doxycycline works for me with no side effects. I really appreciate docs who get it. I had one doc talk to me about using meloxicam for pain and when I told him about my experience he actually did his own research and said no to using nsaids. I do take antidepressants and mirtazapine and Amitriptyline work for me. Cymbalta did not as it caused nerve tingling like I had when floxed. I did use a very short course of predNisone for an allergic reaction that helped with no issues. I think each of us is unique in responses to things so just work closely with doc who dont dismiss you. If they do not find another doc if you can.

    • Andrea February 14, 2018 at 1:47 pm Reply

      Thanks Martha

    • L February 14, 2018 at 1:49 pm Reply

      You were lucky to have found a doctor who takes the time to do research. I would be VERY cautious of using prednisone. (I am convinced the reason I was hit so badly is that I was given prednisone at the same time as Cipro. I would also avoid other antibiotics whenever possible. Things you can take instead: oil of oregano, olive leaf extract and colloidal silver tincture.

      I had been on antidepressants for decades. A doctor told me I had to be on them for life. Well, I had read that they did a study with turmeric (95% curcumin) fared better than Prozac. So I slowly weaned myself off the antidepressants (you can’t just stop or the side effects are awful) and on to the turmeric. And for a full year before I was hit with the Cipro, I was doing fine. OF course then the depression came back in spades. Still I refused any other meds. And now I have read that a) there has never been any actual proof that depression is caused by a chemical imbalance and b) patients fared equally well using a placebo….

      • D. Mowers February 16, 2018 at 7:33 am Reply

        I have found a web site selling homeopathic products for many different problems.
        http://www.nativeremedies.com
        It may be worth looking into. One of their products might help you.

      • Don February 17, 2018 at 8:53 pm Reply

        More supplements and more supplements. Check out St. John’s Wort as a “natural” for depression and SAMe is supposed to be a “mood enhancer”. And of course our heavily discussed here “magnesium” at proper levels too.

        • Andrea February 18, 2018 at 6:36 am

          Don,
          I’ve tried SAMe for a couple of months this summer, Didn’t do really anything for me. It was just another pill to pop, so I gave it up, but hey, it might help someone else. Defently better try that than conventional antidepressant.

  26. Henk Noordhuizen February 14, 2018 at 4:57 pm Reply

    Has anybody on this forum/blog ever read about the historical background of Bayer? You can find it here: http://www.profit-over-life.org/ And the plans for the EU are made by… well,you guessed it. The same Bayer Is trying to merge with the second evil company: Monsanto. For those who wonder how Bayer,and other evil companies,can get away with poisening the whole world.They simply OWN our governments.

  27. Don February 16, 2018 at 7:23 am Reply

    URINARY TRACT INFECTIONS & D-Mannose. Many of you have commented that you started having symptoms of being Floxed whether immediately or shortly after being prescribed one of the Fluoroquinolone antibiotics for a urinary tract infection. Please, please read this. (especially women) Look into and research “D-Mannose”. D-Mannose is not a drug. It is a supplement. Many of you who have contracted urinary tract infections have been told to drink cranberry juice. Why? Because cranberry juice contains D-Mannose. Why drink cranberry juice when you can buy pure D-Mannose from a health food store? D-Mannose has the ability to make the urinary tract walls “slippery”. Slippery to the point where the bacteria can not easily attach to the walls and can be washed away with the urine. D-Mannose also seems to have the ability to attach to E Coli and ball it up where it can not stick to the urinary tract walls. I will not go into more detail on D-Mannose but YOU should look into D-Mannose and consider using it as a preventive.
    I USE IT. D-Mannose
    After years of wondering why I feel the way I do (and finding nothing from the doctors) I found Floxie Hope.com and the Floxie page on Facebook. I now realize that after being prescribed Cipro for 30+ years for the recurrences of a chronic urinary tract infection I am Floxied. I am 83 now. My goal is to learn to live with the problem now that I have found an underlying reason for feeling lousy.
    Being Floxied is causing me neurological problems. as well as many others.
    Please people. Look into the possibility that D-Mannose may help you avoid any future urinary tract infections and needing antibiotics.
    God help us all to cope with the insidious side effects of Fluoroquinolones.

    • Henk Noordhuizen February 16, 2018 at 8:24 am Reply

      D-Mannose is,indeed,a safe way to handle UT-infections. A good preventive could be granberry-juice with extra Vit.C (which,too,reaches the bladder when taken in high enough doses). Have used my Beck magnetic pulser with success as well. But most of all: drink enough water,specially in case of a UT- infection; the fluid will help drain the bacteria out of your bladder.

    • L February 16, 2018 at 10:43 am Reply

      Yes Don—you are correct that D Mannose helps keep the little buggers from sticking to the wall. IT is not a cure but can be used preventatively. There is also a protocol, that any ND (esp female ND) should have that treats UTIs if you do get one. It included D-Mannose, high doses of vitamin A, vitamin C and Herb PHarm’s urinary system support. IT is rather complicated in that the dosages change, and it can take weeks to get rid of it. But so worth not having to take an antibiotic.

      Something else that can help prevent it is corn silk tea.

  28. Andrea February 16, 2018 at 7:47 am Reply

    Thanks a lot Don. I’ll try D Mannose if I’ll do the cistoscopy.

  29. Don February 17, 2018 at 12:35 pm Reply

    Just a note. D Mowers is Don, an 83 year old male. I would like to pass something on to all who read the information on this site. Have you read about Dr. Carolyn Dean? Dr. Dean has specialized in understanding magnesium. I read that a few of you have commented on magnesium. Good. Go to this web site and read what Dr. Dean has to say about magnesium. How deficient most of us are and how it is something that affects our health but somewhat overlooked by the MD doctors as long as the lab test come back within the published limits. The web site to start at.
    http://drcarolyndean.com/magnesium_miracle/
    Bottom line and not to bore you with more chatter. Raising your magnesium level to what Dr. Dean is suggesting may help with our toxicity problem.
    Better health you all of you.

    • Henk Noordhuizen February 17, 2018 at 1:07 pm Reply

      She just updated her book,The Magnesium Miracle,as far as I know. Another important advocat of magnesium is Dr. mark Sircus:
      http://drsircus.com/magnesium/transdermal-magnesium-therapy-2-2/
      Fro this methode you can use a bath woth Zechstein magnesiumfakes or Epsom salt (don’t forget my warning about taking a bath with magnesium),or you can use magnesium-oil (Zechstein). I found a cheaper method for the magnesium-oil: buy the Zechstein flakes an put 660 grams of the flakes in 600 ml (6 dl) of (destilled) water and heat this a bit while stiring untill the salt had desolved. Way cheaper than the “oil” (which is,actually,the same;31 % MgCl). By the way: in the “alternative” sector magnesium deficiency is called “the doctor’s best secret”.

      • Don February 17, 2018 at 8:47 pm Reply

        As far as I know the latest book Dr. Dean has is the copy I have dated 2014. I just looked at the web site of Dr, Sircus. It looks like there is some very good information there. I am in search of all I can find out about what will help a person who has been Floxed.

        • Don Mowers February 18, 2018 at 7:51 am

          Browsing the web sites of Dr. Dean I see that there is a 2017 issue now.

        • Henk Noordhuizen February 19, 2018 at 1:34 pm

          Latest update is from last year:https://drcarolyndean.com/category/books/

    • jat92517 February 17, 2018 at 4:31 pm Reply

      Hallayluia !!!!

      A 200 pound person has a normal 1 gram of magnesium in the blood and 6000 grams in tissue.

      Guess where the deficiency is. Now figure out how to replace it… Saturated Epsom salt foot soaks give you 30 to 50 grams a day.

  30. A.Coleman February 17, 2018 at 5:45 pm Reply

    Hi gang – I have been experimenting with my Mg supplementation lately and those informal tests reaffirm that it is having a large positive effect on my neuropathy. Even though I have been a floxie for over 2 1/2 years I never had a Mg test. Based on my informal tests I got my integrative medicine doc to order a test and I got her to order the RBC test, which is more accurate than the serum test.

    My question is that she said I had to stop supplements and all other vitamins for one week prior to serum collection. Has anyone else experienced this? I see stopping the Mg and even stopping my vitamin D and maybe even vitamin K2 since metabolic use of Vitamin D sucks up Mg, but what about other vitamins like B or E?

    Any experience out there would be appreciated.

    BTW – this experimentation all came about after a float session my wife got me for Christmas. I think that much Mg transdermal was still a bit much for my body, but after the initial stress my body settled down and I even had a couple of nearly symptom free days. More to come on that in a later post – but my primary comment would be that this is too intense of a treatment for someone who is less than 75% of normal post floxing.

    • Andrea February 18, 2018 at 6:47 am Reply

      A. Coleman / jat92517

      Hi, The only supplements I’m taking for my floxie symptoms are vitamin D3 and K2. I’ve tried magnesium many times and in different forms, but it always seemed to make my symptoms worse. Any thoughts on that?
      I take vitamin D3, because I’m almost sure it’s the only thing that really helps me. When I don’t take it, all the pains inside my bones, expecially in my shinbones, flear up.

      • Don Mowers February 18, 2018 at 7:47 am Reply

        https://drcarolyndean.com/ Have you looked into the magnesium that is available from Dr. Dean? I can’t find the statement but I read that Vitamin D depletes the magnesium in a person’s system. Do you know what you magnesium level is? Word is that the RBC test is more accurate than the simple blood test. Considering how important magnesium is according to Dr. Dean are you on the right track? Maybe her formula of magnesium will work for you. She details how it is different from others. More expensive but I am going to try it. What ever it takes to mitigate my discomfort and neurological problems. https://www.rnareset.com/products/remag-magnesium-solution?variant=13899661319

        • Andrea February 18, 2018 at 9:35 am

          Don, I’ve tried the Remag, I’ve got the open bottle in my supplement drower. Nothing different from the others magnesium supplements I’ve tried. When I’ve checked my magnesium it was ok. And I’ve also done the RBC test. Nothing wrong with it either.

      • Barbara Arnold February 18, 2018 at 8:32 am Reply

        Andrea, some people feel worse on mag because of decreased sodium levels which affect the adrenals. Aldo vit d can deplete magnesium. You can also feel worse before you feel better. Or you may have other ‘toxins’ that re act with the mag, or you may be one of those people that are very sensitive to mag and other suppliments. I would recommend you check out Dr. Deans web as she is an expert on magnesium. Or start again very low and slow.

        • toby February 18, 2018 at 9:14 am

          I also felt worse on magnesium. Should I test sodium levels or something else?

    • jat92517 February 18, 2018 at 7:33 am Reply

      A. Coleman,

      If you are taking magnesium by mouth you are getting very little. Your blood holds about 1 gram. Your body uses about 6000 grams. FQs flush Mg out of your body. Very slow process to recover orally. Much more than a gram of any salt MgCitrate or worse Mg Cloride gives you cramps and diarrhea.

      You can get much more transdermal and recover from being floxied faster. Any adverse symptoms are likely from another deficiency that gets absorbed into,your cells along with the Mg. Mussels are the likely culprit. They require Mg, and Potasium ….and Calcium but we tend to have enough Calcium. Calcium suplimmets are indicated with arthritis and osteoporosis. A Potasim deficiency feels like a muscle spasm to be distinguished from a muscle cramp that won’t stretch out -,Mg.

      So please sure exactly what you felt from the bath.

      John Taylor

      • Andrea February 18, 2018 at 9:40 am Reply

        John, I’ve tried many magnesium supplements, I’ve also tried magnesium spray and only a few times magnesium soak bath. Nothing helped. Actually when I take magnesium orally,alone or in combination with other minerals, like the Doctor Dean Magnesium, I just feel worse in my brain.

        • jat92517 February 18, 2018 at 10:07 am

          I pickup on two key phases. Magnesium bath and feel worse in my brain.
          A bath is long way from a SATURATED Epsom salt foot soak. You can’t haul in enough salt for a satires bath. Waste of money anyway. If you don’t gel a benefit from a SATURATED foot soak. That would be interesting.

          The brain part needs more information. Do you know your rrsting blood glucose level and is your Vitamin D H25 above 30. How would you describe your sleep in general.

          John Tsylor

        • Andrea February 18, 2018 at 10:41 am

          Sorry, I didn’t express myself properly. When I’ve wrote “magnesium bath” I meant I’ve tried for a couple of times, what you have suggested, so an epsom salt foot soak. Now, I don’t know if it was saturated enough, but it was a basin, with warm water at ankle level. I think there was enough epsom salt, because it didn’t dissolve completely. If you could suggest a proper water/Epsom salt ratio, please share it.
          My Vitamin D level is 48 ng/ml, and my blood sugar level was 89 a few months ago when I’ve checked it. My sleep,would be good, overall,if it wasn’t for my bladder problems, that sometimes makes me wake up many times at night.

        • jat92517 February 18, 2018 at 11:53 am

          I don’t know why Magnesium makes your brain feel bawd. These numbers are quite good good and suggest you are past the floxie symptoms. Can that be?

        • L February 18, 2018 at 11:56 am

          To say “suggest you are past the floxie symptoms” makes absolutely zero sense. You cannot tell this from vitamin d levels. There are far too many things going on.

        • Andrea February 18, 2018 at 10:45 am

          And my magnesium blood level was 2.04 mg%

        • Andrea February 18, 2018 at 12:37 pm

          John, It’s not that “magnesium makes my brain feel bad” . Let me rephrase that : I just feel worse when I take it orally : dizziness, headaches, weakness, joint pain, all these symptoms seem to flear up, and the soak/spray thing never did anything to me.

        • A.Coleman February 19, 2018 at 6:31 am

          Andrea,

          I never had negative impacts from Mg supplements, but never saw any real improvement either until I had the soak session, which uses massive amounts of Epsom salts to obtain the neutral buoyancy for your body. That is similar to John’s foot baths but for your whole body.

          I don’t have full evidence yet, but do note that since I had the float and have started taking my own Epsom salt baths I am feeling better. Now I want to check my levels and see just how I need to proceed to obtain optimal Mg levels, which will support my Vitamin D, which is a bit lower than your level, at 42ng/ml.

          Finally, I see your Mg blood level of 2.04 mg% and note that is pretty low actually, especially if that was an RBC test, which Dr. Dean recommends at 6.0 to 6.5. If a serum test then those are basically worthless because that is the last place in your body to show low Mg. I would try to get an RBC test then you will know and can plan your approach with knowledge. If you can’t get your doc to order one they are only $49 online.

          I know different things work differently for different people, but I wonder if the Mg soaks aren’t just a little too much too soon for you. In my initial post I noted that I wouldn’t recommend anyone try a float session who was a floxie and hadn’t recovered to at least 75%.

          If you have tired John’s foot baths and still are getting a negative experience try a traditional Epsom salt bath with a much lower concentration of Mg. Start with two or three cups of Epsom salt in the whole tub. The next day may be a bit worse but watch it over 2 or three days, then repeat. Keep it up twice a week or so for two or three weeks at least and see if it doesn’t help.

          Regardless having an accurate RBC Magnesium count is the most informed approach – which is what I am doing so I can stop guessing at my level and treatment approach.

      • A.Coleman February 19, 2018 at 6:19 am Reply

        John,

        Thanks for your information and your previous posts on Mg absorption via foot baths. I realize that my supplemental Mg (via Magnesium Glycinate) hasn’t been doing much other than keeping me from an even bigger hole. I even quit using Mg for a while due to a perceived lack of impact and only started taking it again because I learned it is needed to help facilitate Vitamin D absorption. (At one time post floxing my Vitamin D was a measly 13 ng/ul and it is still only 42 now).

        I had tried Epsom salt baths over the last few years but infrequently. Following the float session, which uses massive amounts of Epsom salt to create the neutral buoyancy I noticed a vast improvement. The float solution is at the saturation level of your foot baths, but with a whole body to absorb the Mg. That’s when I started experimenting with my own Epsom salt baths.

        The approach you recommend is one that I plan to try when I can start taking Mg again. While it helps me, sitting in a bath tub for 20 to 30 minutes daily isn’t as attractive as using a foot bath is.

        I would still like some feedback from everyone on the need to stay off my vitamins for a week before the RBC blood test. I plan to get the blood draw on day 6 after finally finding one website that called for the week wait, while most others call for only a 24 hour wait.

        • Barbara Arnold February 19, 2018 at 6:36 am

          A Coleman….you need k2-7 for better vit d absorbtion

        • Andrea February 19, 2018 at 7:51 am

          Thanks A. Coleman.
          Yes, I think my magnesium levels was from a serum test. Anyway I don’t think your vitamin D level is bad. I think the right spot is anything between 40 to 50 ng/ml. I don’t think that higher levels are considered healthier. Actually they can be dangerous, anyway, defenetly higher than normal range. Anyway, like Barbara suggested, alway remeber to take k2 along with it, for better absortion and avoiding too much calcium in your blood.
          One thing I don’t understand, it’s,why you think that taking too much magnesium, from soak/bath or supplements, should be bad for someone in an early stage of recovery? Also, can you be more specific on the water/epsom salt ratio of your baths? Thanks a lot.

        • A.Coleman February 19, 2018 at 9:47 am

          Barbara – Thanks I should have clarified. I have been taking both Vitamin D and K2 all along. Stopped the Mg for about 2 months when I didn’t realize that was an important Vitamin D cofactor. Resumed about 5 months back but only started seeing Mg positive impacts to me after the float session and Johns helpful posts about Epsom Salt foot baths put two and two together.

        • A.Coleman February 19, 2018 at 10:02 am

          Andrea,

          Hi – if you google Magnesium Herx you will find several posts and theories most from our friends in the Lyme sufferer group. Here is one http://www.lymebook.com/mag-excerpt.pdf to check out.

          As to my “low impact” Epsom Salt ratio – I noted that I put 3 cups of Epsom Salts in a whole bath tub – then soak in water as hot as I can stand it for 20 to 30 minutes. I have been doing this twice a week – but feel in my situation I may be ready to ramp it up to start using a higher saturation and foot baths as John suggests.

          The float session is a whole body session in water that is super saturated with Epsom Salts and lasts 50 minutes. That was a bit much for me, but even still helped after two days of feeling a bit worse.

          So, my recommendation is to start slow with Mg in a tub and then move up as tolerable. Sure you could do the same small amount in a foot tub – but that would be a bit lower as you would have less skin to soak up the salts.

        • L February 19, 2018 at 10:12 am

          I had a panel done that included RBC (it was quite comprehensive, several pages long from True Diagnostics, and included MTHFR among other things.) It was just the standard morning fasting before the test.

          I also want to emphasize the importance of D. My doctor (integrative internist and pulmonologist) has me on 10,000 units a day, even though according to tests I am in the normal range. He said the ranges are too low. I even dropped to 2,000 a day and he said that wasn’t enough.

        • Andrea February 19, 2018 at 10:41 am

          Thank a lot for the infos A. Coleman. Here’s a link about vitamin D suggested levels

          https://www.vitamindcouncil.org/i-tested-my-vitamin-d-level-what-do-my-results-mean/

        • Andrea February 19, 2018 at 10:48 am

          Anyway you still didn’t answer one of my question 🙂 , why do you think certain floxies can’t handle too much magnesium, at least at the beginning? If FQs depleted it from my body, wouldn’t be it the contrary? Why this adverse reaction?

        • Henk Noordhuizen February 19, 2018 at 1:49 pm

          Has anybody else got the problem of double vision? Have it since about two weeks and it frightens me (photography is one of my main hobbies). It seems,for the last 2 days,to get way less severe but every once and a while it returns,most of the time for less then a minute. Is there a good chance for it to completely disappear after a while?

  31. toby February 18, 2018 at 8:30 am Reply

    Hi. I am using probiotic which contains L. rhamnosus Rosell 11.
    If I add L. rhamnosus GG, will I have some additional benefits? Can these two be combined?

  32. KS February 20, 2018 at 8:08 am Reply

    Hi all. I have an endoscopy coming up and the doctor wants to use propofol. Has anyone had experience (good or bad with it)? I am a bit worried about my symptoms resurfacing or getting worse. I have had lidocaine before with no issues.

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