When I got floxed in 2011 there was less than 1/10th the information about fluoroquinolone toxicity available that there is now. The information available about fluoroquinolone toxicity has increased exponentially over the last few years–and with increasing information comes greater acknowledgement of the problem, empowerment of those going through fluoroquinolone toxicity, and more. I am grateful to everyone (both the scientists and doctors, whose acknowledgment is necessary for change, and also those citizen-scientists and hackers—who are trying to figure out what happened in their bodies) who have contributed their time, expertise, and sleuthing abilities, to gather and synthesize information about fluoroquinolone toxicity to share with others! We truly have come a long way.
The amount of information available about fluoroquinolone toxicity is getting to a point where it is somewhat overwhelming. People are now asking, “Where do I start?” because a starting point isn’t evident.
Here are my suggestions for where to start:
First, read through the recovery stories on www.floxiehope.com. Every healing story is different. The journey through fluoroquinolone toxicity has not been the same for any two people. Even though each story is different, each story has some valuable wisdom and guidance in it. As you’re reading through the stories, I suggest that you write down the healing tips and steps that resonate with you. Try those things one-by-one and see if they work as well for you as they do for the person who recovered from fluoroquinolone toxicity and wrote the story.
Second, the ebook, The Fluoroquinolone Toxicity Solution*, has helped many people through fluoroquinolone toxicity, including Ruth, Cindy, Lizzy and Daniel. It gives particularly good guidance for those looking for supplements to help them to heal from fluoroquinolone toxicity.
You can find support, guidance and advice through many web sites and social-media groups. Comments on the home page of floxiehope.com are typically responded to quickly and there is a wealth of information in the past comments. The Fluoroquinolone Toxicity Group on Facebook is also an excellent resource for support and information that also has years of helpful posts stored on it. (Try not to get overwhelmed by these sites, and if you do get overwhelmed by them, I recommend that you step away from them until you are emotionally able to handle being on them.)
The Floxie Food Guide: Guidelines for Recovery from Fluoroquinolone Toxicity contains information about diets that have helped people through fluoroquinolone toxicity. (Renee was helped immensely by The Wahls Protocol by Dr. Terry Wahls). It also contains guidance for foods to eat to help your mitochondria to heal, your gut microbiome to heal, and also foods that are full of minerals that fluoroquinolones deplete. (Note – You now get The Floxie Food Guide along with the purchase of The Fluoroquinolone Toxicity Solution. Yay! Please click on the link below to get both. Thanks!)
I wrote the following posts to give people basic information about fluoroquinolone toxicity:
- Fluoroquinolone Antibiotics: Are you at Risk? / Fluoroquinolones 101: Antibiotics to Avoid
- Are Dangerous Antibiotics Causing Chronic Illness?
- What is Fluoroquinolone Toxicity?
Additionally, the post, Articles About Fluoroquinolone Toxicity to Give to Your Doctor, links to several articles about fluoroquinolone toxicity that give a good overview of the condition. More articles can also be found on the Links & Resources page of floxiehope.com (but there are literally hundreds of articles linked to on that page, and the amount of information there can be overwhelming).
There are doctors who have helped people through fluoroquinolone toxicity. If you find a good doctor who you trust to be your guide, he or she can be incredibly valuable. many floxies have been helped by naturopaths and functional medicine doctors. You can find a functional medicine doctor in your area through The Institute for Functional Medicine.
Those are the initial steps I recommend for gathering information on how to recover from fluoroquinolone toxicity. I wish that there were a single cure, or method, or procedure, that helped everyone to recover from fluoroquinolone toxicity. It would be nice if we could say, “take ___ milligrams of ____ per day for ___ days and you will recover,” or “eat _____ and _____ for breakfast and you will recover,” or, “Do _____ exercises and you will recover,” but we can’t say those things because there is no one single cure for fluoroquinolone toxicity. There is, however, recovery from fluoroquinolone toxicity for many people—and there is information that is helpful for your recovery journey throughout this site and other places on the internet.
I hope this post gives you some help with direction.
Please let me know if you need assistance. Hang in there.
Lisa
Thank you
Hope someone can find the best protocole
Tanks for the hope
This is a timely post, I was just commenting to someone on how I was confused when I first found Floxiehope, because there seemed to be no general guideline on what to do, you have no rectified that for all new comers!
My suggestion would be to add the link to this post in the “blurb” on the homepage so hopefully most of the new people will find it easily.
Remember all Floxies, Chemicals are toxic.
http://articles.mercola.com/sites/articles/archive/2015/07/08/chemicals-cumulative-effects.aspx
A Floxie body is already overwhelmed with Toxins, the more you can avoid the better to let yourself heal. Note it even points out the pitfalls of things like Synthetic supplements, like Idebenone, a Quinone (not related to this drug just similar name). In other words if its not natural, its man-made crap, and doesn’t belong anywhere near the body
And this here, is just the tip of the Iceberg on why you need to scrutinize every ingredient in the foods you eat. The same mantra applies, if its not natural, man has screwed with it and added chemicals to it. The sad part is like the video indicates, many have been given GRAS status from the FDA which they really shouldn’t
https://www.youtube.com/watch?time_continue=191&v=yvvvPTksIJ4
I was just this week also told I have something bad going on in my inner ears called BPPVertigo I wonder if anyone has had the same diagnosis it has to do with Crystals
A great compilation of information. Thank you.
Hello. I am unable to access the doctor referral list. Can you make the google doc public or upload the list on a different format? New floxie here… very grateful for the information and compassion on this site.
Good man Jason always admired your dedication to this cause
I need support this is unbelievable to me. Cipro toxicity has changed my life.
Jason thank you for all your info especially in fluoride. It seems impossible to avoid all fluoride. I just bought a bunch of spring water. But how do you avoid it when you have to take a shower?
I was floxed a month ago.My main symptoms are Achilles tendon pain and swelling. I am unable to drive due to this making life very stressful. I also came back positive for rheumatoid arthritis. A few questions.
1. What did you feel helped your tendon/joint pain?
2. My doctor told me that there is not a test for magnesium at the cellular level and the test is inaccurate. Do agree?
2. Magnesium gives me diarrhea and gas, I did buy flakes and made the spray. But this still bothers me. Any suggestions?
Thank you, Lisa. You are and bring a beacon of hope to so many. I particularly needed to read this today, because although I’m at 90%, lately I’ve felt like I’m skipping backwards. And I’m not getting any younger, not much time to combat this. So, again, thank you. ????
I’m getting serve anxiety that doesn’t let me sleep I running on no sleep can someone please help me?
Is there an update on the floxed in 2018? It’s happening to me now..would love to hear.
Is this site still being updated? I was floxed approximately a year ago, and life has been hell since. I was damaged by IV Levaquin. I have, what I believe others are calling “brain fog”, except it is severe and it presents as severe vertigo. My world has been spinning for a year now and the depression and anxiety are getting to be more than I can handle. Does anyone have any links or resources they recommend? Or am I looking at weeks & weeks of slogging through the copious posts on this & other websites? I have tried every form of magnesium that I could find at my local vitamin shop and none of them gave me relief. Grateful for any assistance.
My main issue after Cipro has been orbital inflammation and Trochleitis. I’ve searched the site for other who’ve experienced these issues, and it does not see as common. Typically, and Ophthalmologist would give a steroid injection for these issues, but floxies can’t go the normal route, so I guess we are left to deal with inflammation. The concern is, I’ve read long term inflammation in tendons and muscles can cause long term issues. Any suggestions for eye muscle inflammation and orbital tendinitis?
It makes me feel so much better to read other people’s stories regarding be floxed. Even friends and some family members scoff at me. “How can a pill do so much damage?”
Thankful to find this group.
If cipro can be a cause of Mast cell activation disorder does that mean its permanent or is there hope for it being cured or going into remission?
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