Tag Archives: Recovery stories

Healing Data

Vince, a fellow floxie, did something really amazing–he read through all 124 recovery stories on Floxie Hope (as of 11/18/2020) and compiled data on what helped those who recovered. He has graciously granted all of us access to the data that he gathered. You can view it here:

FLOXIE HOPE RECOVERY DATA

The things mentioned most often in the recovery stories are:

  1. Magnesium supplementation (73 mentions)
  2. A healthy diet (69 mentions)
  3. B vitamins (37 mentions)
  4. Vitamin C (36 mentions)
  5. Vitamin D (33 mentions)
  6. Exercise (30 mentions)

I suggest that all of you look through the rest of the data compiled by Vince to get the full picture of what helped the 124 floxies who have shared their stories on Floxie Hope. It’s a really wonderful compilation.

I have always meant to put together something like the spreadsheet that Vince created, but I never got around to it. Vince took on this project like a BOSS and got it done. (Note – he did it on his own without me asking him to do it, I just have always thought that it would be a great thing but I never got around to it – Vince did.)

THANK YOU, VINCE! This is a wonderful tool for the floxed community.

*****

 

The Risk in the Remedy

For better or for worse, there is no one-size-fits-all method for recovery from getting floxed. Some people are helped by supplements, others can’t tolerate them, or even feel worse when taking them. Some people are helped by acupuncture, others think acupuncture is a waste of time and money. Some people are helped by physical therapy, others aren’t. Some people are helped by specific diets, others feel better when they don’t restrict what they eat. Some people are helped by nutritional IVs, others aren’t – and some people have even been hurt by them. As of right now, there is no right way to get through fluoroquinolone toxicity. There is no single supplement, or diet, or exercise, or practice, or IV, or food that cures everybody.

Even though we are lacking a specific cure for fluoroquinolone toxicity, there are people who recover. Each recovery journey is different, and the differences between the various recovery journeys can be hopeful or frustrating, depending on your perspective. The recovery stories on Floxie Hope (59 stories have been published so far) offer a tremendous amount of insight and information, and, more importantly, they offer hope. They let people know that recovery is possible, and hearing that other people have recovered is important for those currently going through the “flox bomb” going off in their body.

Because there is so little research into cures for fluoroquinolone toxicity, the information in the recovery stories and the support group forums is often seen as the only advice and guidance available to floxies. Though the recovery stories and comments on Floxie Hope (and the FB support groups) are intended to be helpful, and it is hoped that what helps one person can help another, it should be noted that everyone’s journey through fluoroquinolone toxicity is different, and what works for one person may not work for another. We all have different genes, different microbiomes, different hormone levels, different toxin loads, different viral loads, different liver function, different tolerances for each treatment, etc. There is no one-size-fits-all solution for fluoroquinolone toxicity, and what helps one person may not only not help another person, it may actually hurt them.

I encourage you to approach any and all remedies for fluoroquinolone toxicity with caution, thoughtfulness, and guidance from someone with an outside perspective or, even better, medical expertise.

Many floxies distrust doctors. It’s reasonable to distrust them – doctors played a role in poisoning each of us, then many people face denial and derision from doctors post-flox. But if you can find a doctor who you trust, who is open-minded, and who is willing to run multiple tests for you, his or her guidance can be incredibly valuable.

This disclaimer is posted at the bottom of each story on Floxie Hope:

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

People typically pay little attention to disclaimers, but I really want people to read and heed that one when they read the stories on Floxie Hope.

There is a lot of wonderful information on Floxie Hope, and each story is the 100% true story of the person who experienced/told/wrote it. They each shared their story to help others. But, for better or for worse, their story is not your story. We’re all different.

I certainly don’t want to discourage people from trying things that they think will be helpful in their recovery journey. I just want people to realize that we all react differently to different remedies, and that invasive and/or risky remedies should not be taken lightly.

The recommendations for fluoroquinolone toxicity recovery that people give can be broken up into three general categories–things that can’t hurt, things that are unlikely to do harm, and things that have some risk and can potentially do harm. It seems excessive to say that you need medical advice before doing the things that can’t hurt – like meditation or having a positive attitude. Likewise, for the things that are unlikely to hurt you, like changing your diet in a non-drastic way or taking epsom-salt baths, asking a doctor first is probably not necessary (in my opinion, but feel free to consult a doctor if you feel differently). But, for things that some people have reported being hurt by (and other people have reported that these things have helped them too – there’s that side as well) like nutritional IVs, essential oils, and even supplements, it’s probably best to consult with a doctor before going forward with those remedies.

Just…. be careful, my friends. We all want to get better, and it breaks my heart a bit when someone reports feeling worse after trying something mentioned on Floxie Hope. We’re all trying to get better and/or help others. Please just approach the remedies that have risk associated with them with caution…. and consult your doctor when necessary.

 

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All of the recordings for The Anxiety Summit are available for purchase. I am one of the interviewees. 🙂

 

Sharing Recovery Stories

Several people have asked me why there aren’t more recovery stories on www.floxiehope.com. Perhaps I’m reading into the question too much, but I sense some disappointment in the question—as if the questioner believes that since there are only 37 (as of 4/23/15) stories of healing on Floxie Hope, there must only be 37 people who have recovered and everyone else must still be sick and suffering, and that’s really not very many stories and therefore most people must still be sick, and recovery is rare and everything is horrible.

I encourage you not to think those things, mainly because I don’t think they’re true.

There are many, probably thousands, of reasons why some people don’t want to share their recovery stories on Floxie Hope. Some people are too private to share things about their health on the internet. Some people feel guilty and ashamed about what they went through and don’t want their friends, family or co-workers to know that they have been dealing with health problems. Some don’t want to jinx their recovery. Some may not think that recovery from FQ toxicity is a big enough deal to write about. Some people don’t like to write. A lot of people recover from FQ toxicity without fully knowing that they were floxed – they were sick, they didn’t know why, then they got better – c’est la vie. Some people just want to forget their time of sickness and move on with their life. Some people don’t know about Floxie Hope. Some people don’t think that anyone else would be interested in their story. Some people neither like nor trust me and don’t want to contribute to my site. Some people would rather forget their time of being poisoned, and writing about it is too hard and traumatic. And there are many, many other reasons why many people who are recovered from fluoroquinolone toxicity don’t put their story up on Floxie Hope.

Please try not to read into the quantity of stories on the site, or the frequency at which recovery stories are published, as a data point about rates of recovery. I don’t think that it’s a very accurate or reliable one.

Any recovered floxies who want to write their story for Floxie Hope—I would LOVE to publish your story! Recovery stories help those who are suffering. I have received countless messages from people saying that they read the stories on Floxie Hope over and over again and that the stories of hope and recovery are what keep them going. If you can/want to give that gift to your fellow floxies, it will be greatly appreciated! Please email me any recovery stories through the Contact link on this site. Thank you!

A lot of people who have recovered from fluoroquinolone toxicity post a note about their recovery on one of the floxie facebook support groups (The Fluoroquinolone Toxicity Group – https://www.facebook.com/groups/floxies/ – is currently the biggest and most active group). Facebook is great, and there’s nothing wrong with posting a recovery story on facebook per se, my only objection to that method of conveying recovery stories is that they get lost. After a day or two, no one can find or refer back to the recovery story. The recovery post on facebook gives the people who see it hope, but it’s not available to help other people weeks, months or years down the road. Stories on web sites (Floxie Hope, or elsewhere – if you want to put it on another site, that’s cool) are stored in a single location, they’re easy for people to find, people can learn and gain from them for a long time, and the search engines can index them, raising the profile of FQ toxicity on the internet.

There’s no length or detail requirements for stories on Floxie Hope. If you want to copy your recovery blurb from facebook into an email for me to put up on the site, that can be your recovery story – no problem.

All recovery stories are GREATLY appreciated! I appreciate them and thank you in advance for your contribution to the site! Recovery stories aren’t about maintaining this site though, they’re about giving hope to your fellow floxies. Recovery stories truly do give hope, strength, and ideas for how to go about recovering to fellow floxies. Hope is immeasurably important. It’s a beautiful gift to give to others and I thank everyone who has contributed their story of hope and healing to those who are hurting – you are appreciated!

Stories about fluoroquinolone toxicity are not all recovery stories. Fluoroquinolone toxicity involves neither puppy-dogs nor sunshine. There is genuine suffering that comes before the recovery stories are possible. There are people who don’t recover. Stories of pain caused by fluoroquinolones are important and they should be shared too. I’ll write another post about the importance of sharing stories of pain caused by fluoroquinolones shortly.

Thank you to all my floxie friends who have given support, advice, and hope to their fellow floxies – especially those who have contributed (stories and comments) to this site. You are appreciated!

 

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